Journal entry by Christa Benjamin —
Update:
The new seizure med given (Valproate) knocked Chris out last night and he slept well through the night. Unfortunately today he feels “drugged and tired”. He had a good breakfast (omelet with meat and lots of vegetables), a slice of banana bread, apple sauce, 3 fruit juices, regular coffee and a cup of water. Still zonked out and doesn’t feel normal. He enjoyed some interaction with Dr Willis, a doctor he had for a week on rounds last fall. They speak German to each other. He told her that he is very tired and feels like all he can do is sleep. (All in German!) It was great to have her stop by to say hello and also great to see him perk up for a couple of minutes!
Dr Quiznos stopped in at 8:25am and said she wanted Dr Spahija to do a full evaluation of Chris with the med change prior to discharge. Dr Spahija stopped by at noon and determined that the 3 doses a day of the Valproate put the perfect level of the med in his blood supply to prevent seizures and helps him rest well through the night but won’t work for Chris during the day. Tonight he will try an extended release dose of the Valproate and re-evaluate tomorrow. Lucky for us, Dr Spahija will be on shift for the rest of the week and will get this figured out.
Prayers for Chris and the medical team to get this figured out so that he can have his mind and energy back. 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏