Hey everyone! We’ve been getting lots of questions about Chloe so figured we’d give a quick update.

We had our first follow up scan last week, which thankfully came back clear meaning no further treatment at this stage. Fantastic news and such a relief for us! 

The scan did show some scar tissue which is to be expected and totally normal but... the doctors want to check it out in the next scan to make sure it’s not changing or anything more sinister.

In terms of Chloe's recovery it’s mostly been good news…

Post surgery Chloe had rehab 2 times per week. She killed it in physio and fine motor therapy. Speech was a bit average but nothing to really worry about. She was definitely communicating and parroting everything we said a lot better than before the surgery. She had good days with tons of play but usually the next day she was fatigued and could only say “what’s that?” to everything. We took her to daycare a few times for an hour or so. Took awhile for her to “warm up” but she loved it. Especially the “happy feet” lady with magic, music and dancing. Chloe does struggle with lots of children since she’s had so much adult time at rehab. She is really happy most of the time and realizing she’s getting a baby sister soon :)

The only set back was around Mid September. We noticed she didn’t pee once during the day (only in the night and nap time). We spoke to the rehab team and they told us to monitor her drinking. A few days later we were very concerned with all the dry diapers so we decided to go to emergency and get answers.

Once the doctors saw Chloe and found out her past history, we were admitted that evening. She had 4 catheters throughout her stay which were all very traumatizing for her as well as a few enemas to get things moving. The doctors all believed her constipation from the surgery caused all this. The constipation made it too hard to pee and then her bladder became stretched. We thought things were better about a month after surgery so we were reducing her constipation meds but we definitely did it too soon. After lots of constipation meds in hospital (which were challenging to give her) and many tests later her bloods, urine and kidneys were found to be normal. We were released to go home after 5 days.

Chloe will be on constipation meds for a while, but things do seem to be getting back to normal which is great.

23 September was her last day of rehab. She had a blast playing and drinking water with Jen from the rehab team (and peed twice before noon!). Chloe will get extra help with her speech in the next couple months but the good thing is she is tracking well. It’s fun for her too! The rehab team has given us the tools to be better parents and help with Chloe’s development. We got our little girl back :)

Her 1st day with the nanny and her bestie (Murielle and Daniel) was the 28 Sept. She did fabulous. She was tired and glued to the TV when she got home that afternoon. It was a big day for her and the 1st step to getting completely back to normal.

All things considered Chloe has been great and we are hopeful we can put all this behind us and get ready for Chloe's little sister who should be arriving any day now!!