This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
May 19-25

This Week

Cheryl hasn't added requests yet
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

 

And, a special Hap! Hap! Happy! Very extremely belated Happy Mothers Day to all Mothers, Mothers-in-law, Grandmothers, Great Grandmothers, Mothers of Invention, wait, that’s Frank Zappa, and anyone else that I might have missed.  

Not really much to update. We are just plugging along and staying the course.  Things are going well for the most part.  Very tired and sleeping a lot.  Dealing with the occasional low grade fever. Putting up with some headaches and not wanting to eat much.  Nothing tastes good but she will get the occasional craving for something.  

She did get her favorite Mother’s Day present.  On Saturday morning at the butt crack of dawn, Cheryl and I made our yearly run to the Farmers Market for the last of her flowers.  She received special dispensation to go as long as she was masked up and didn’t go touching them.  We found out it is more the dirt that would cause problems if it got into a scratch or cut.  Cheryl pointed out what she wanted and I had to play Sherpa and drag it all back to the car.  Nick, Will and Kate came over (Liz had to work) and we had breakfast.  Then Will and Kate got a lesson in planting flowers under the watchful eye of grandma.  A nice job was done by all.  

 Cheryl had a big day on Thursday .  The IV with the immunotherapy drug was removed after a 4 week run.  This is the first round of this therapy to try and get the last of those little, evil cancer cells that are hiding in her blood.  If she doesn’t do this then the acute part of this cancer kicks in and she takes a big setback.  That means if they don’t get the last of the evil cancer cells, it will start up again fast and be harder to defeat.  Cheryl gets a two week reprieve from this and then she starts again.  One thing good, if you want to call it good, is she most likely will not have to go back in the hospital to have the next round set up.  The homecare people will come back out and get her set up with the next round.  Cheryl had an appointment with her diabetes doctor and they made some adjustments to her insulin pump to help her out with the blast of steroids she gets to to start the next round.  

Friday morning Cheryl said she was feeling pretty good.  She had some energy, was able to do a few things around the house and such.  That came to a screeching halt in the afternoon.  It was back to the clinic for another lumbar puncture and spinal chemo infusion.  This time they switched her chemo to a different one to hopefully see if that would make a difference in how crappy and sick she felt afterwards.  It must have worked as she was not as bad as last time.  Still sick feeling  but not quite as nauseated as before.  We got her medicated up before bed and she managed to get about six hours of good sleep in bed for once.  
We will see how she does now for the next two weeks with just her regular meds and without any extra meds or procedures going on.  

So that is about it for now.  Hopefully this two week break will recharge her system.  Next up after the next round will be another bone marrow biopsy.  This will tell us if she needs to go on with round three.  The doc is looking for a deep, black hole type remission that leads to the magic word,  CURED!  We do know that this is a long battle. Much more to come, one day at a time.  The Good Lord is leading this fight, it’s in his hands.  We just follow his directions.  I will report back again if there is anything new.  

Like Bartles and James, thank you all for your support.  
Petey

 

Read the latest Journal Entry

3 Hearts • 2 Comments

SVG_Icons_Back_To_Top
Top