Charlotte Madeleine’s Story

Site created on October 30, 2018

Hi and thank you for visiting Charlotte's CaringBridge website!

Sweet Charlotte Madeleine was born in Chicago on October 9, 2018 and her birth parents asked us (Sonia and Jeff McGarrity) if we would welcome her to our family.  Our other children (Thomas, Sean, Jeffrey, Brendan, Cecilia, Augustine and RoseMarie) were overjoyed when she arrived  in Colorado on Friday, November 9.

Charlotte had an atrio-ventricular septal defect (AVSD), a condition in which the heart does not form properly, which often happens to differing degrees in children with Down Syndrome.  After several (scary) days in the Cardiac ICU here in Denver when she first arrived, she was able to come home to grow and await open heart surgery to correct the AVSD.  

Charlotte had her first open heart surgery performed by Dr. Max Mitchell at Children's Hospital in Denver on Thursday, February 21st, 2019. While this surgery is performed several dozen times each year at Children's, since Charlotte was only four months old, there was obviously some risk involved but she came through with flying colors and was home in a week!

She has grown well over the past year however after two echocardiograms that looked fine, an echo on Dec. 6, 2019 showed that her heart pressures were elevated and another on December 17 confirmed that one of the “valves” that Dr. Mitchell created in her heart had come apart which was allowing blood to go in the wrong direction.

She has a second open heart surgery scheduled on Friday, January 31st. Dr. Mitchell is her surgeon again and he has shared that because of the fact that her heart formed so a-typically, it is going to be more difficult to repair this time and she may eventually need another surgery to insert an artificial valve.

We are grateful for your journeying with us as God’s plan for Charlotte unfolds in the lives of our family, our friends and our faith community!

Newest Update

Journal entry by Sonia McGarrity

Hi Everyone,
Today is one year since my second heart surgery, January 31, 2020 and I want to let you all know that I am doing great!  THANK YOU to everyone who has been praying for me and asking about me.  Here's what has been going on since I last wrote.  (Sorry it has been so long since I was in touch!)

I got out of the hospital on February 10, last year.  Then on March 15, everyone in my family started staying at home ALL THE TIME!  Having everyone at home to hold me and talk to me and play with me and pray with me helped me so much while I recovered from my surgery.  I took my first steps on May 1st, when I was just 18 months old.  Rosie, my big sister, took her first steps when she was two, so I'm a little ahead of her ;-)  And at the beginning of August I started walking "full time."  No more scooting around for this little girl!  I'm ready to face the world.  Daddy keeps telling me he wants me to wear a "Fitbit" to see how many steps I take every day (he's pretty sure it's more than 10,000 steps), but he thinks that I would just suck on the Fitbit all day and that wouldn't be good for me.

In the summer, I saw my pediatrician, Dr. Bob and the doctors at the Sie Center for Down Syndrome at Children's Hospital and they couldn't believe how busy and active I was after having heart surgery!  I told them that there are too many fun things to play with around my house and in my back yard so I have to explore them ALL!  

Some of my favorite things to do are to open the drawer with the Tupperware in the kitchen and start throwing it all over the floor.  Mommy loves that!  Then I go over to the "tea party bin" and scatter the cups and saucers around.  And to top it off, I dump my shape sorter and some Duplos to make sure the kitchen floor looks like a minefield.  Sometimes it looks like Mommy is dancing when she steps around everything on the floor.  She's so pretty!  

Daddy loves it when I sit by the pile of rocks in the back yard and throw one after another into the grass.  He says finding the rocks is like looking for Easter eggs, so I'm going to keep doing it since he has so much fun finding them!  

I also love to play with ANYTHING that my family leave on the counters and I'm very good at climbing onto chairs, too, so I can get at everyone's desks to play with the keyboard, the mouse, their iPhones and whatever else I find.

I was on oxygen at night after my surgery but in June Dr. Ivy said I didn't need that any more, so my cheeks, which were a mess because of the tape to hold on my cannula, have now healed.  I've also had eye tests and hearing tests and those have looked great too, so other than my heart needing some help (thanks, Dr. Mitchell), I'm put together pretty well!  

My second birthday was on October 9 and in addition to having some cake and ice cream, I got to have a cardiology exam and see my cardiologist, Dr. Ivy, that day.  He  said that my heart looked great and he'll see me in six months (whatever a "month" is!)  

Mommy and Daddy say I'm a "Little Miracle," because I probably wouldn't be here to tell you about this today if it hadn't been for the amazing medical care I've received, the fact that someone invented a mechanical heart valve and my Coumadin medicine and because of all of the people like you who have prayed for me to be safe and healthy.  Thanks to all of you, and thank you, God.

Check out the YouTube link to see me "Showing My Stuff" earlier this month!

Thanks for keeping me in your prayers.

Love,
Charlotte

Patients and caregivers love hearing from you; add a comment to show your support.
Help Charlotte Madeleine Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Charlotte Madeleine's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top