PRESS RELEASE ON GENE THERAPY

We haven't lost hope yet, but darn close as many of you may or may not know in January we were giving the horrible news that a cure was created, tested outside the US a year ago, with amazing results,  but ultimately haulted by new company owners. Financial development issues and needing 3 million dollars (hold on let me check my saving acct..... yup nope ain't got it)

A new company is on the scene taking up the fight for CLN2 families we hope!!

We are desperately fighting to keep hope alive, as our kids wish IS their hope to live, and thrive without there brain and body deteriorating. 

We can ONLY pray that if all comes together our kids eventually could be apart of this gene therapy,  not matter where we have to travel!

Keep praying & supporting these Batten's Fighting Siblings 🙏