Welcome to Carly’s CaringBridge Site
Sign In to Show Your SupportHi everyone!
I apologize I haven't updated this in the past month. It's been a little over a month since my initial diagnosis and as I'm sure you can imagine, it's been a whirlwind of activity and emotion.
Northern News Now did a story on me which I have linked. Talking to Cara was a great experience, and everyone at Northern News Now has been nothing but kind and supportive.
I have some things coming up I'm pretty excited about!
Things aren't all awesome. My speech has gotten a bit worse. I've been spitting out drinks more frequently. I'm really easily tired out, and I sleep a lot. I get exhausted just from eating a meal or running a few errands. That's to be expected and I just have to listen to my body and let myself rest. I've been noticing weakness in my right hand since January, and it has been impacting my handwriting. I wear hair claw clips a lot, and I usually have to put them on with my left hand now, because my right hand is too weak to open them. I've been having pain/soreness in my right leg for a few days, but that could be from sleeping on it weird. The providers at my ALS Clinic will be able to help me with techniques and strategies for speech and swallowing, and stretches/exercises to maintain strength in my arms and legs - so you can see why I can't wait to get there.
I wouldn't say that having a routine or maintaining a health regimen is my forte, so getting into a rhythm and making sure I'm doing everything I can to take care of myself has been a struggle, but I'm getting there. I think I'll have a better idea of what my routine should look like after the ALS Clinic.
I continue to be overwhelmed and deeply, deeply touched by the kindness and well wishes that have been sent my way. It's so early in my journey and my emotions vary from day to day. I don't know if I've fully accepted what ALS means or what my life will look like going forward. There is a lot unknown. I'm so grateful for the support everyone has shown me. It really does help. Love y'all.
13 Hearts • 4 Comments