Cara’s Story

Site created on July 22, 2008

Hi! Welcome to Cara's CaringBridge. If you know her, you know she is one of the most amazing women ever :) I'm Lauren, her 19 year old daughter and biggest fan. I'll be keeping up this site as a place to keep all the people who love her as much as I do updated on her journeys as a medical mystery as they happen, and of course for everyone to show their love and support.

Well, mom had writing a "full story" on one of her many lists, and it just never quite got to the top of the pile - the updated journal entries are very detailed though and hopefully sufficient to keep all of you friends and family in the loop :) Her surgery, to repair a rare, unruptured aeortic aneurysm (if I even spelled that right...) is scheduled for September 17th at Stanford University Medical Center. We are very blessed to have her in the BEST of hands, one of the few surgeons who are known for this type of procedure, and know that everything will go as smoothly as possible there. She is looking forward to putting this stage of "what ifs" and perplexed doctors behind her and being able to go back to her life of kickboxing, heavy lifting, and excitement asap. With any surgery, especially such a rare and invasive one as this, there are lots of questions and lots of concerned family - mom always says herself that WE are the ones with the hard part (I'm not sure I entirely agree, but thats my selfless mother for you!) since she will be sound asleep after a simple shot. That's where this site comes in - CaringBridge was a blessing during the illness of my Grandpa, Cara's dad Richard Rashi, and our dear friend Mary Claire. It was a great way to stay in the loop on any new developments, and I hear that guestbook was good for lots of smiles and the sharing of many warm wishes and love from friends and family. SO... here we are, Cara's very own CaringBridge for her medical journey and for all of YOU to share in it with her. All of the love and support are much appreciated. My mom is an incredible woman, and I hope that one day I can touch even half as many lives as she has. I also know that her love for all of her family and friends is unconditional and we wouldn't be where we are without you!!

Newest Update

Journal entry by Cara Cohen

Happy 12 year Heart-iversary to me!

I am so grateful for another year on this planet because of the brilliant handywork of Dr. Miller at Stanford on this day in 2008. I have celebrated this day every year with such passion and excitement! The bigger the celebration the better! I have tattoos to prove it!

This year carries with it a different "vibe". Wrapping my head around the fact that I wouldn't be out creating chaos in the world, but instead in a complex and intense surgery for a tune up, was an adjustment that took me a long minute to process. But, I did, and I used every bit of emotional, physical and mental energy preparing myself and my loved ones for that. 

I have decided to be vulnerable and share my true feelings. This year is a struggle for me. Being around people? Nah. Celebrating? Nah. The last 2 years of prepping for this next surgery that we knew was inevitable have been turbulent, exhausting, informative...and physically, being in the beginning stages of heart failure, I have felt like crap most of the time. But I adapted my lifestyle and immersed myself in every possible alternative to surgery: fitness, weight loss, healthy lifestyle habits, knowledge, you name it. And hence, two more years! Then, early 2020 the decision was made that it was time to fix what was fixed. I was given permission to wait until after Lala's surgeries (to repair her aneurysm which she inherited from yours truly). I have spent more time during the last 5 months at Cedars, all during Covid which presents its own challenges. What Surgeon? Meet with a few, let them dissect and interpret in their expert opinion. when, where, how, what type of valve, who can do it, can we just do 18 more tests...??? Okay, we got this. Final word. Surgery NOW. AS long as you do it by the end of 2020, you're good. September 17th? Perfect. I love that date as an Anniversary for heart surgery. I had 5 weeks to go ALL IN and prepare and plan. Done.

Nope.not quite. I thought I was done. And then, one of my favorites jumped in with an assessment that could not be ignored.  Thats what I get for reaching out to "break up" with him? No, its positive, right? They will get on the same page and I am CERTAIN that everything that has been decided was well thought out, right? Well, yes, but what? I am confused.

Stay strong, stay focused. Keep an open mind. Do what is best. Wait, what? He said what to who? More tests? Talk to who? 

And then it happened. I broke. When I said in a previous post that Tom was there to pick me up off of the floor, that was literal. and I couldn't explain anything other than feeling broken. And today, on this amazing and special day, I just feel broken. I can't imagine ever feeling positive about this mess of a heart. But I don't reallly feel that way. I love my sweet heart. She has endured so much and I am a firm believer that things happen for a reason. Life is short, enjoy. Take care of yourself and those around you. Be kind. Having spent almost 15 years in the health care system, I have learned a lot. As an enigma, genetic mutant, whatever you want to call it...special, I apppreciate my team. Yes, I go very far out of my way to connect with them as people. They know I am in their corner and I know they are in mine. Which is why this turbulent ride has been difficult.

I have a dear and special friend who has allowed me to escape to her beach house for a few days. It is proving to be a life saver. I am able to process, share, love and work on repair from this experience. And for those of you that know me, I tend to default immediately to getting up and moving on! As they say in Book Of Mormon (and very accurately describes my childhood) "Turn It Off". Physiologically, it's time to listen to what my body and mind are saying. And right now they are saying ALOT. 

Thank you to all of you for having my back and allowing me, Cara Cohen, to be a sad sack. I really wish I had been blogging or vlogging this experience, just to put the real out there. I keep thinking about how this experience could really help somebody. We all have different reasons to feel overwhelmed, or even "broken". But there IS a warrior in all of us that can help us work through the tough times. 

Much Love,
Cara Mia

Patients and caregivers love hearing from you; add a comment to show your support.
Help Cara Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Cara's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top