Everett’s Story

Site created on March 22, 2021

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Everett had been feeling sick for many weeks through out the beginning of 2021. After many doctors visits and much care, he had been admitted to the hospital for further tests and support. After further testing, scans(showing a mass on left adrenal gland/kidney and metastatic lesions along his spine), and biopsy surgery to test bone marrow&to test the mass, Everett was diagnosed with stage IV neuroblastoma cancer come the end of March. 


Everett has a treatment journey of three different phases. Forecasted to be over 15 to 18 months, more or less depending on how Everett's body responds:
Phase 1--Cycle 1&2 of chemotherapy at Prisma(Palmetto Health) Children's Hospital in Columbia, SC
                   --MIBG therapy at Children's Hospital of Atlanta in Atlanta, GA
                   --Cycle 3&4 of chemotherapy at Prisma (Palmetto Health) Children's Hospital in Columbia, SC
                   -- Surgery to remove tumor(prior wrapped around blood vessel, hopefully not around blood vessel and easy retrieval come time for surgery)(Prisma in Columbia)
                  --5th cycle of chemotherapy (Prisma I'm Columbia)
                  --Tests and scans to determine treatment progression.


Phase 2--First 4 to 6 weeks of intense chemo paired with stem cell transplant(reinfusion of his own stem cells, harvested after cycle 2 of chemo in first phase) at MUSC Children's Hospital in Charleston, SC

               --Maybe a 2 to 4 week break at home or in Charleston, depending on if they want us nearby them
              --Second 4 to 6 weeks of intense chemo paired with stem cell transplant (reinfusion of his own stem cells) at MUSC Children's hospital
           ---Radiation at Prisma Children's Hospital in Columbia


Phase 3--Immunotherapy at Prisma Children's hospital in Columbia 




They ask for prayer and appreciate your support. 

Please pray for Everett, Heidi and Greg. They trust God to be with them through this difficult time.  They appreciate the love and support of their family and friends, as well as their greater extended family in Christ. We ask God for rest, comfort, provision, healing, hope, reassurance, wisdom, peace, and moments of joy.


Everett continues to be an old soul, charming his medical team, thoughtfully exploring his world, caring about others, and expressing the playful joy of life that five year old boys have, even in the midst of illness and pain. 

Newest Update

Journal entry by Heidi Burroughs

https://www.dignitymemorial.com/obituaries/lexington-sc/everett-burroughs-11780165
 
After a hellish Saturday and Sunday Everett defeated, and is free of, cancer by going home to be with Jesus Sunday April 21 at 11:13am. 
 
However, Everett is an old soul, the BEST kiddo, friend, and son to us.. that anyone could ever be blessed to have in their lives.♥️♥️♥️He is a gift. As we have been told from a wise physician, "Everett is beyond incredible." He is an unexpected surprise in our lives-we weren't trying to have children when we found out we were pregnant with him. He is the BEST! And we miss him so so so very much...heartbroken over him being gone and the deep hatred toward sin&cancer doesn't cut it...but, as we told him, time in heaven is different: he will only wait but seconds and we will be there with him, that we-him, Greg, his sister Esther, other lil sibling, and I--are always together by heart because of Jesus. He's up there playing with them, helping folks, and I'm sure is in charge of all of the turtles. 
 
There are so many more feelings, descriptions of all the awful pain and agony from last week and weekend, and still a few tender moments from Thursday, that happened leading up to his passing.... But sharing that is too personal here and words can not describe our heartbreaking sorrow over all that has happened, nor the gratitude that Everett is finally playing and better with Jesus&siblings and that we will be with him again, or the overwhelming pain of our loss of him for the rest of our time here on earth. But I do know that he wants us to love Jesus&others and live life to the fullest like he did. That, in Christ's strength, we will do. 
 
Everett's Celebration of Life Service is on Sunday 4/28/24@3pm @ Calvary Chapel of Lexington, 1156 Barr Rd Lexington SC 29072.
 
Also, thank you all for everything. We seriously couldn't have gone through these past three years without Jesus&y'all. 
 
In lieu of flowers please donate to pediatric cancer research to help find a cure to this wretched and very much hated disease. 
 
Children's Oncology Group--Dr.Laura, Everett's phenomenal home oncologist, alongside our best& amazing hematology/oncology Prisma home team(Dr Laura&them be family now), does fantastic work with this group for Everett and kiddos like him! https://donatenow.networkforgood.org/childrensoncologygroupfoundation/mobile 
 
https://musckids.org/help/give Also this website. You choose where the money goes and then if people want it for Neuroblastoma (NB). You put Neuroblastoma (NB)research in the comments--Dr.Kraveka and Dr.Hudspeth&MUSC are some of the super oncologists who have worked over Everett's cases there and this is Dr.Kraveka's fantastic research and work with Everett and other neuroblastoma kiddos like him! 
 
Beat Childhood Cancer--Dr.Kraveka from MUSC also is affiliated with this group. https://beatcc.org/foundation/
 
 
Our wonderful team with Dr.Hucks and Cammie at UNC Chapel Hill's donation set up is you click this link and then under "Gift Information" there is a drop down box to click on-that says "where the need is the greatest" and please click on "pediatric oncology fund". https://give.unc.edu/hfdonate?p=LCGO&s=MEDFOT22TSKU39&_gl=1*1ndpcgk*_gcl_au*Nzg0MzgxMTUzLjE3MTA2NzA4NDY.*_ga*MTYzMjk3NjA0Ni4xNzEwNjcwODQ1*_ga_V6CT25GSJJ*MTcxMDY3MDg0NS4xLjEuMTcxMDY3MDg2MC40NS4wLjA.&_ga=2.170020259.248942067.1710670846-1632976046.1710670845
 
 
While we weren't there long, the team at Children's Hospital of Atlanta were also very kind and helped Everett get his MIBG therapy the first time diagnosed. The link here is to donate: https://give.choa.org/site/Donation2;jsessionid=00000000.app201b?idb=0&df_id=1660&mfc_pref=T&1660.donation=form1&NONCE_TOKEN=8CD0C6C5A8CC58A6A636DB78D6D5AEC5
 
Donate blood and platelets too, cancer patients need them often. 
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