Renee and Zach’s Story

Site created on November 1, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Our fertility story is complicated to begin with. After numerous rounds of fertility treatments we decided to go the IVF route.  When we learned that we had 2 "beautiful" (the fertility docs words) embyros that took we were beyond excited (with a mix of, TWINS?!). They are non-identical, or paternal twins, otherwise known as dizygotic due to forming from 2 separate zygotes in the earliest embryonic stage. The hospital lingo is "di di" twins. They have their own placentas and amniotic sacs. 

We have been monitored closely since conception due to Renee's "advanced age" and carrying twins via IVF. We passed our 20 week ultrasound with the neonatal specialist with flying colors, and were just starting to get down to business getting a nursery ready, making a registry...etc. So, we were quite surprised when on the morning of Saturday, October 19th, (week 22) we found ourselves in the labor and delivery unit at the hospital in Duluth being told that Renee's water had broken and that she was not going to be leaving the hospital until birth. WHAT?! We were only 5 1/2 months pregnant!

We  also quickly learned that the Duluth hospital is not equipped to treat babies born pre-24 weeks. We also learned that most hospitals do not provide "life-saving" measures to babies born prior to 24 weeks. The reason being is that the survival rate of babies born between 22-24 weeks has been appx. 5%, jumping to 50% at 24 weeks. We were told that Renee had over a 50% chance of going into labor within the first 48 hours of her water breaking, at which point we would be able to "care and comfort" our babies until they passed. These numbers were also a bit more complicated due to twins, and any internal procedure for baby A would be too risky for baby B. If we made it the first 48 hours without going into labor, then we could look at being transferred to the University of Minnesota Children's hospital in Minneapolis, which is a setting 4 hospital that has recently started experimenting with providing treatment to babies born between 22-24 weeks.  We cannot put into words what the first 48 hours felt like for us...but we knew we wanted to do anything in our power to keep these little creatures cooking for as long as possible!

The following is what we have learned since being transported to U of M Children's Hospital in Minneapolis:

Baby A has what is called a "double bubble".  Simply put, there is fluid backup between the stomach and intestine due to baby A's stomach not developing properly in utero. This can result in excess amniotic fluid buildup in the sac, which can cause a preterm premature rupture of membrane (PPROM), or water breaking.  The  double bubble was detected during  our 1st ultrasound at Children's and will require baby A needing surgery post-delivery when we are in the neonatal intensive care unit (NICU). 

The statistics regarding PPROM at 22 weeks  with twins is not ideal, however each day the babies stay put the more of a chance they have to survive after birth. The good thing is that neither one of us have fallen on the "normal" scale statistically speaking...so we're hoping our little creatures inherited some of that :-)

Currently, we are making home in the antepartum unit. We have a view of the Mississippi River and 2 resident bald eagles that we see daily.  Renee has received antibiotics via IV and steroid shots to help the development of baby A's lungs. She has weekly ultrasounds, blood draws every 72 hrs (in the event of transfusion), and is hooked up to machines 3x's/day to monitor heartbeats and contractions. The biggest concern (other than going into labor) is an internal infection for Renee because baby A does not have any protective fluid left in the amniotic sac. She has, however, been cleared to take short walks around the hospital and to be wheeled outside for some fresh air! (which was HEAVILY advocated for mental health!)

We hope to update this page weekly, and remain in antepartum unit until January 10th! (or 34 weeks, when a c-section will be preformed... if we can keep them in that long). After that, we will embark on a different journey as we navigate the NICU post-delivery. So stay tuned- send us vibes, prayers, thoughts, wishes...we're on quite a journey that has barely begun. 

We have been beyond overwhelmed by the support we have received already, and are truly counting each day as a blessing. 

XOXO-

Renee,  Zach, and the twins :-) 



















Newest Update

Journal entry by Renee and Zach Burns

I’m writing this from one of our favorite places, which we’ve referenced multiple times since we started out Caring Bridge journals. Lutsen, Minnesota, on the ‘north shore’ of Lake Superior, holds an extra special place in our hearts as it is one of the places Zach 1st took me to when I visited MN, where we were wed, where we’ve vacationed, hiked, paddled, and skied from. It is also the place we “ran to” right after the girls discharged from the hospital just under a year ago. It’s a place that I had never heard of prior to Zach coming into my life, where the most “Superior” of the great lakes feels the freshest, the bluest, the coolest, the fiercest, and the calmest. Looking out from the couch I am sitting on (as I ice my knee post-skiing…another story for another day) I feel as though I am looking out across the ocean. No end in site, leaving the mind the space and freedom to wander down roads of reflections, of what-if’s, of possibilities, and of dreams of future adventures…

I was never meant to be a “midwesterner”. I imagined myself in the high dessert, or the mountains out west. I also imagined myself having a natural birth, possibly at home, without the support of drugs… I was never meant to go through IVF, to be hospitalized, to have twins who would need months of of medical attention…I was definitely not supposed to spend my 1st year of “mothering” from quarantine, during a pandemic….’stuck’ in the Midwest! Yet here I sit looking out at one of the most beautiful bodies of water I have seen (and I’ve seen some water!), with my dog next to me, my babies napping upstairs, and my husband nagging me about if I’m elevating and icing my knee properly enough to nurse it back to be able to ski again tomorrow. Being here, now, sharing this magical view with my daughters, is not all bad I guess ;-)

Over the past year, among all the things I’ve learned I think the one think I have honed in on the most is my ability to just be ‘here’- wherever that may be. Whether it was Christmas in the NICU, or babies first birthday in a pandemic. I love that my girls get to call Duluth, MN home, and that I get to share this magical place with them.

Currently, the here and now is me sitting on the couch- in Lutsen, writing my last Caring Bridge journal update- which is metaphorically a big deal. This practice has kept me honest, kept me real, and kept me connected over the past year. This space has also been the place I have done the most healing for myself, thus the creation of the Raising Peaceful Warriors website, where I will continue to update, reflect, and have space to heal. As someone who has experienced ‘trauma’ first hand, as well as someone who is certified to professionally work with trauma-survivors, I feel well equipped to speak to the subject:

This is our trauma story, and this is how I am finding healing for myself though this process. I know lots of people who get certificates, who follow procedures, and who seek out “expert advice” to deal with trauma. After this past year, what I have to say is, as long as you can OWN IT, and commit to seeking out what works best FOR YOU to process your own trauma- well, that is all that matters. However, until you can first OWN what you’ve been through, or are going through, it can be hard to process.

Anyway- that’s my own learning, opinion, rant, etc…take it as you will, but I truly believe that as long as you feel good about what you are doing to address the stuff…that’s all the matters.

So, for me, writing has helped me process, so I will continue to do so as Raising Peaceful Warriors. I will continue to share antidotes regarding the girls growth both physically and emotionally/mentally, as well as my growth as a mother, partner, friend, professional. I also look forward to being a resource, and support for others.

I have struggled with the transition to creating a more permanent social media/internet space to process…as I’ve been approached about “what I’m selling” or “how I’m planning to monetize.” This is my process for healing- not a place to sell a product. I am, however, here to share any aspect of my experience with anyone who is curious whole-heartedly. My life, my daughters, my family, and my experience are by no means meant to be sold as a product….So in saying that, I am bidding this Caring Bridge space a final farewell, and we, the Burns party of 4, are forever grateful for the support, curiosity, and love we’ve received through this space.

As far as the origin of the Caring Bridge site, it was meant to be an easy way to keep our family updated on our health while we were inside the hospital “trying to keep babies in.” It has grown turned into so much more, and has helped me honor a part of myself, my writing. The girls are growing, they are continuing to be followed by a handful of specialists, Vivvy-Lou is working with a pediatric physical therapist on weighting her legs/feet…and we hope they will have some hair by their second birthdays ;-)

Endless gratitude, we have felt the support, and love from all of you near and far, and seriously- when this pandemic is in the rearview mirror we hope to send an invite to any and all to celebrate with us in person, because you are part of the reason our little girls are turning into the peaceful warriors they are.

To find updates about the girl’s progress, and our ever-evolving life as a family of four in the future, feel free to follow us at www.raisingpeacefulwarriors.com, as well as instagram and facebook.

Endless Gratitude, love, and admiration for you all-

R, Z, V and E

Patients and caregivers love hearing from you; add a comment to show your support.
Help Renee and Zach Stay Connected to Family and Friends

A $25 donation powers a page like Renee and Zach's for two weeks.

If you donate by May 12, your gift will be doubled, up to $10,000, thanks to a gift from Living Water Foundation.

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top