We have decided to set up this site to make it a bit easier to keep our family and friends in the loop. We will post often through out Brian's journey to keep everyone up to date. Thank you for all your support!
Brian Scott Ellis was born on September 21st, 2020. When Brian was about 3 weeks old we started noticing blood in his stool and it became concerning to us. We had a few appointments with Brian's primary pediatrician and for a couple of months we thought we were dealing with a milk protein allergy. I eliminated many foods out of my diet and we were not noticing a change in Brian's stool. It was very concerning the amount of blood we were seeing so Brian's pediatrician decided we should do a blood draw to check his hemoglobin levels. A few hours later we got a call saying we need to take Brian to Seattle Children's emergency room, his platelets are at 24k. Normal range is 150k-450k. After many tests and appointments Brian was diagnosed with a rare-immune deficiency disorder, Wiskott-Aldrich Syndrome. It was a lot to take in and absorb. The only cure for Wiskott-Aldrich Syndrome is a bone marrow transplant. Both of Brian's sisters were tested to see if they were a match. We are so incredibly blessed that both girls came back as a 100% match. Brian's sister, Kate, will be his donor. As of now Brian will begin chemo on Monday, November 15th and will receive his sister's bone marrow on Monday, November 22nd . Brian will be in the hospital for about 6 weeks. After we are discharged we will need to live close to the hospital in case of any emergencies. On day 100 Brian will finally be able to return home. The day Brian receives Kate’s bone marrow is considered day 0. We pray this will give him the life we dreamed of.
Brian’s bone marrow aspiration has been re scheduled. We got down to children’s this morning but because of his slight cough they didn’t feel comfortable putting him under. I will keep you updated on when the procedure will be. Thanks for all your prayers. ❤️🙏
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