Brian’s Story

Site created on March 4, 2021

February 8th, 2021 is the first day that Brian began feeling under the weather with cold-like symptoms.  He was certain it was COVID as he has a known exposure and was in quarantine when symptoms developed.   For the next few days his symptoms waxed and waned, but were not severe, in fact a few days after falling ill he felt well enough to go outside and blow the drive.  A week later, February 15th, instead of his symptoms getting better, they began to worsen as he developed some progressive discomfort with breathing intermittently.  He went to the ER Tuesday morning and at the time (barely) qualified for monoclonal antibody treatment, which he received before being discharged to home to monitor his oxygen saturation and continue his course of dexamethasone.  The following day (Wednesday), he was progressively becoming more and more uncomfortable breathing room air.  He returned to the ER where they performed a chest CT to rule out any clots in his lungs and discharged him home with an oxygen machine and directions to supplement O2 (up to 6L) and monitor sats, return if they consistently fell below 90.  At that time he still did not meet the criteria for admission.   The next day, February 18th, was a tough day at home with progressive discomfort, especially when he moved around.  By the evening, he was requiring 5-6L of O2 and could barely catch his breath if he got up to move around, and his sats were dipping into the 80's.  He no longer felt comfortable going without the oxygen long enough to get to the hospital, so he was taken via EMS to St. Joseph's where he was admitted.  Because we are living in this crazy season of COVID, he was not allowed to have anyone with him after leaving his home in the ambulance.  After admission, he was moved to the "covid-floor" at the hospital and supported with oxygen per nasal canula.  The hardest part at this time was the limited communication we had with him as there are no visitors allowed, and the nurses were very busy caring for the patients, often too busy to give updates.    We were texting and calling, but it was very hard to get a good read on how he was doing.  At this point he was on 15L of O2 per nasal canula but seemed to be doing well.  They started the IV remdesivir (antiviral) shortly after admission and ordered convalescent plasma.  We were encouraged that he was getting "the big guns" treatments.  By Saturday afternoon, he was having more trouble maintaining his sats and was becoming more uncomfortable with the high flow O2 in his nose.  He was moved to BIPAP oxygen delivery Saturday evening.  Early Sunday morning we received a call that Brian had not had a good night and was being moved to ICU.  They wanted permission to intubate him if needed.  Several grueling hours later without communication, we found out that they did in fact have to intubate him and he was now on full respiratory support in the ICU.    Brian stabilized for several days with the ventilator support, but did start requiring additional support through the ventilator over the next several days.  He got a second infusion of the convalescent plasma. By Friday, February 26th, Brian's medical team determined that he would benefit from the use of ECMO to offload his lungs, and hopefully allow them to begin healing. At that time he was moved to the CCU where he remains and is being closely monitored to give his lungs time to heal.

Newest Update

Journal entry by Heather Grant

Four months ago today – May 22 – Brian came home from his 13-week hospital stay.

 

Many of you have asked how Brian is and we are immensely grateful for your continued prayers and concern.

 

As you’ve read, heard and probably guessed, the recovery from COVID is not an easy one. Even those who never entered the hospital or had to go on life support can feel the setbacks for months on end.

 

At some point during each day, something happens that reminds me of how far we’ve come – and how close we were – and fills my eyes with tears and my heart with praise and gratitude to God. 

 

Every. Single. Day.

 

So how is Brian?

 

I had someone say to me recently, “always start with the good news” and I like that! So here goes:

 

He is, by every measure, a God-given miracle. 

 

He never had a cough, still doesn’t, and did not need oxygen when he was discharged from the hospital, which, when you’ve had ARDS, COVID, and double pneumonia (among others), is absolutely astounding.

 

He barely needs his cane for most of the day, only using it for a bit of confidence and balance.

 

His blood clot in his lower right calf resolved – praise God! And he is off of his blood thinners.

 

He completed his physical therapy and continues with exercises at home to stay active and build endurance.

 

He is driving, working from home a bit, and has even had a couple of meetings with clients on job sites (outside, distanced, with masks on).

 

His trach scar is barely noticeable and his ECMO scar on his neck continues to be my ‘miracle kissing spot’ every chance I get.

 

He is fully vaccinated, as am I; you don’t go through what we went through without using the tools of medical science to help prevent it from happening again.

 

He makes us laugh on a daily basis and is, in every way, my rock that he’s always been.

 

He has climbed mountains to get to where he is today and I could not be more proud of all he’s achieved.

 

But there are mountains still to climb – and a few specific prayer requests to help get him there.

 

Due to all of the massive packings that had to be used to stop his nose bleeds while on life support, the left side of his nose essentially ‘collapsed,’ which is impacting his breathing in addition to the damage from COVID. So he is scheduled to have surgery to repair that damage on November 4 and your prayers are greatly appreciated. The surgeon is wonderful and also very straightforward saying this procedure may or may not work and there may be a second one needed. After all Brian’s been through, I fervently pray one surgery will do the trick! And I thank you in advance for joining me in that prayer.

 

His stamina, strength and breathing are still lagging. Yes, he can and does get up and do many things (often more than I wish he would) but walking from room to room makes his breathing more labored and takes its toll mentally and physically.

 

Nerve pain. This might be the worst of all for him. As the feeling in his arms and legs began to return in the hospital, nerve pain set in. Thankfully, it has resolved in most areas that were hurting, but not in his lower back and left leg – all the way to his toes. He doesn’t have much movement in his toes on his left foot and when he walks, his left foot drops despite his many efforts to control it. Mornings are when the nerve pain is at its least but around dinner time, it begins to set in every night and I can see his legs and feet jumping from compulsive pain ‘contractions’ (for lack of a better medical term). He does stretches and percussion massage every night to get enough relief to get to sleep but on some level – at all times of the day – he is in pain.

 

Which brings me to my second specific prayer request: we have secured an appointment with the Post-Covid Clinic at Emory. They have been researching, treating and helping patients with post-covid symptoms for over a year now and we are hopeful that their specific knowledge in all things post-covid may help Brian move closer to the full recovery we know God has in store. 

 

For those of you who may not know Brian personally, it’s important to remember that before COVID, Brian didn’t even have a regular doctor. He took no medicines. Zero. He was an active 47-year-old who worked hard, wrestled and did races in the yard with his kids. He could lift, move or open anything I needed him to. And though even he would admit, like most of us, he could have been a few pounds lighter – otherwise, he was a healthy, typical male. COVID hit him – hard -  but it won’t define him.

 

Covid is a beast. It just is. I don’t know why it does what it does – who it chooses to pass by – who it chooses to impact very little – or who it chooses to devastate, or worse, take their last breath. Admittedly, those unknowns paired with all Brian’s been through have me battling fear on a daily basis. Then I stop. I breathe. I ask God to let me feel His presence and thank Him for guiding our steps - He always has and I know, with full faith and confidence, He always will.

 

Thank you for your continued prayers and support! We pray you all are staying safe as you continue to shine the light of God for all the world to see.

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