Since release it seems that Bowie’s been able to manage the pain when he doubles up on medication (as allowed by on-call doctor).  Unfortunately, this pain med makes him very nauseous and he threw up twice while we were traveling to/from Nico’s soccer game yesterday (once in the car!).  So now we’re adding anti-nausea meds to the mix.  😬

I sent out messages to Dr.  Costello at the Mayo Clinic as well as Dr. Kessler at Anchutz to make sure they were aware of the development .  I’ve. Kessler called me Friday night to assure me that this wasn’t necessary a bad turn… She pointed out that the comparison scan that ER was using to show ‘growth’ was actually from January and that we knew it had been growing since then already.  The more appropriate comparison would really be his more recent scan at the Mayo.  In that light, the change looks much smaller. (Mayo scan was 5.7” x 4.2” x 6.4”).  She also said they couldn’t get Bowie started on stem-cell replacement / high does chemo any sooner 5/23.  Impressively, Dr. Kessler related that she’d already spoken prior with Dr. McFarland about her aggressive treatment recommendations and he said he was fine either way.  She and Dr. Costello had also made contact over Bowie’s case, albeit briefly since he was out of office.  We’ll hear his full reaction and that of her Anschutz colleagues (the ‘tumor board’) this week, but she doesn’t anticipate any pushback.  All the scheduling details and current chemo decisions will also come out this week.

Although he has discomfort, Bowie feels it’s manageable enough for he and Alex to continue the plan to go up to Steamboat this week.  All still on track for him to have a ‘fun’ week.  Mercifully.

I’ll update closer to the start of stem-cell replacement therapy start.  Thank you so much for continuing prayers. 💜

With love and gratitude,

Pam

#teambowie

#bowiestrong

#fuckcancer