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Apr 28-May 04

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Well there was news on Monday from the Liver doctor, MELD score went down.  Will see us in 4 months.  Our appointment is the 18th of Dec.  We will have to be there for three to four days because I have to have a endoscopy done to check the varices in my throat.  I went to my Primary and all looks good he said except my ammonia level is 180.  Normal level is 12 to 45.  So I have to take the lactulose to get it down or I may end up in the hospital.  I must say it is very disappointing and a roller coaster of maybes, yes buts and we don't no.  For people who have no idea of what liver disease is, there are so many things that the liver does and so many different organs that get effected, the body really goes through a lot.   There are so many complications that can arise also.  And then there's the itching.  A form of torture that is so unbearable.  You can't just scratch it and it's gone.  It stays and sometimes is in different areas all at once.  This is every day.  I am not as bad off as some people but I may go down that road someday.  No one knows.  I hope you keep us in your prayers and find it in your heart to help us with our up coming appointment in Dec and future trips.  Thank you all. 

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