Betsy ’s Story

Site created on August 17, 2018

I am 34 years old at 37 weeks pregnant; I was diagnosed with Breast Cancer.  This is our journey. I can't promise to always be positive - but I promise to always be looking for the positive. I am determined to show my girls about that  strong women - fight for what they want, ask for help when  needed, and believe in themselves no matter what.  

While in the shower, I found a  mass in my L breast. I mentioned this to my OB (Healthcare for Women) at a weekly appointment, and she scheduled me for an ultrasound the following week.  At that point, we really had hoped that it was just a clogged duct, or some other pregnancy thing. 

That ultrasound came back abnormal in both the breast and a lymph node. They were able to tell that it was likely NOT a clogged duct, as we originally thought, but were unsure what it actually might be. They took me back for an immediate biopsy of the breast. The  Radiology doctor (Dr. Berman)  called my OB  soon after the biopsy, but before she had concrete results - and they were more than a little bit concerned. At that point - we knew we needed to start getting a plan into action. 

When I first met with Oncology (Dr. Favret), before we even had final results, she started to walk me through what to expect.  She was beyond impressed that I found the mass, that I mentioned it to my doctor, and that my doctor pushed for an ultrasound. (Reminder to all of us to feel our boobs as often as possible, and to know what feels normal, and to speak up!) 

The biopsy did come back as positive for breast cancer - Invasive Ductal Carcinoma (which is the most common breast cancer). It is Estrogen Positive, Progesteron Positive, HER 2 Positive.  The size of the mass in my breast is likely 2.5 cm (which is small-medium). It is Poorly Differentiated.  All of this means it is fast growing and aggressive, but it has all the signs of a cancer that will respond well to an aggressive Chemo treatment.  The lymph node biopsy came back as negative. 

We all know I love a plan - here's the plan for the next year. It is aggressive and will be challenging. I will have 6 rounds of aggressive chemo (TCHP in an IV mediport) each three weeks apart. About 1/2 way through, or in October, I met with genetics, the breast surgeon, the plastic surgeon.  I had an MRI, and various other scans to make sure the cancer has not spread to other areas. All of this will help with a plan for the Spring.   

Baby ERC was via C-Section at Virginia Hospital Center on August 27th (Dr. Winterling)
First Round of Chemo - Sept 20 2018
Last Round of Chemo - Jan 10th 2019. 
Double Mastectomy- Feb 13 2019.  (Dr. Akbari and Dr. Rao)

I will  continue an every three week infusion of a different chemotherapeutic drug (with fewer side effects) until fall 2019. 

I have an amazing team here to support me. 

Husband - Randy 

2 Kiddos - (I don't like to use their names on the internet, and ask you not to use them in the comments) 
 Baby #1 - M (Age 2) 
Baby #2 - Baby E (Age 0)

Lots and lots of awesome parents, siblings, family and friends who have already been incredible. 

We appreciate beyond measure every text, every email, every card and every gift  that has been sent. As an introvert, I humbly ask for no phone calls.  

We believe in the power of prayer - whether you pray in a house of worship, on your own, on a hike in the woods, on the water, on your yoga mat - wherever your heart and mind connect to some inner light and a greater light in the world. We appreciate being on every prayer list, and every positive thought you send our way. 

Newest Update

Journal entry by Betsy Cotten

Cheers to one year! One year (and a day) ago, I had my double mastectomy. I’ve spent one year with these new boobs. At times it feels like a lifetime ago; and at others it feels like yesterday. My hair is coming back, curly. And life is slowly returning to normal.

I had my one year follow up appointment with Dr. Akbari, my surgical oncologist, on Tuesday. In these appointments; we basically check in on my life - primarily my well being; anything I may be concerned about; and a good solid boob exploration - searching for more cancer. And, I had my first survivor meeting with the oncology team in November. This meeting was a bit more challenging as we talked about my future. 

Where 2019 found me continually checking the boxes for answers and appointments; I am embracing this feeling of unknown in 2020. I’ve committed to 2020 being the year of exploration. I’m partial to the Panic! At the Disco version of “Into the Unknown” from Frozen 2 - it feels like my power song of the year. I know there is something out there waiting there for me, and I’m on the path of figuring out what that is.
I left the McDaniel Admissions Office(where I had worked for 10+ years). I loved my time there, but needed a change. I needed something new.  I spent the fall in the College Counseling Office at Bullis in MD as a Long Term Sub. It was an incredibly valuable experience. I am so exceptionally thankful to all the people that made up these experiences. Thank you. I am currently NOT working. This is providing me some space to really dig into the explorations. I don’t know what’s next - I feel called to help people to find their best selves. (Folks tell me this is Life Coaching, but that feels odd…) Simultaneously, I feel called to open a Bed/Breakfast; to go to school to be as Counselor/Social Worker; to explore some sort of faith based something; to go to culinary school. And, Mom calls about once a week with a new career I should pursue. Who knows where life will take me; but I am grateful to be here for it.
One of my ‘intentions’ for 2020 is to explore 20 new exercise routines. Crazy, yes! But so much fun. I’ve found some really cool opportunities. Most notably, I’ve committed to Pilates -which I find exceptionally hard. I think my body can do so much more than it actually can right now. I am often frustrated after class - wishing I could actually do more! When I look at myself from the outside, I can say “Give yourself grace! Remember all you have done in one year!” But when I’m on the Reformer and totally confused - gosh, it is hard to practice patience. As I do my mind mapping, I am continually reminded that I just want to be “good” at something; more specifically I want my body to be good at something. It seems everywhere I go, folks are encoring me to “love my body” or “to love myself”. Which on the surface, are exceptionally admirable goals. I think many of us struggle with what we see in the mirror, and accepting that she is worthy. I’ve spent the past year, trying to love my new body. Loving her for her flaws. Loving her for what she has overcome. Loving her for what she’s accomplished. Loving her for where she is headed. 

As for the cancer - the doctors seems exceptionally proud and hopeful. They think the cancer is gone. They cannot find any signs of the cancer now. And, they say that by the time they completed surgery; they could not find the cancer. This is a good sign -it means we shrunk the cancer to such a small size they couldn’t find it. The cancer had not spread - meaning it was virtually gone from my body. The folks at Hopkins think my NF is only related to breast cancer and my risk of other cancers is small. The doctors want me to eat a Mediterranean diet as this is proving to be the most helpful in the fight against cancer. There is also research out about the importance mindfulness - and its help in the fight against recurrence. It’s still feels like an unknown, and I will admit that at times I drift to the negative space of losing hope in my body and its ability to fight this cancer. And, then I return to prayer - begging with God to give me more time; knowing that God will. I have to remind myself that I did it. That we did it. 

This cancer thing is hard. It’s what dominated my life for the past 18 months. It’s hard for me to go into any conversation without referencing it. I don’t want to be a victim of it; but it also shaped and changed my perspective on pretty much anything. I struggle to know when to mention it; and when to not say anything. I am proud of myself for what I did. But, I don’t want that to be the only thing in my life. For example, I’m headed on a retreat this afternoon and know I will need to introduce myself - do I say “I beat breast cancer in the past year” or do I just let it slide? I find myself trying to protect the people that are listening; not making the situation awkward; or not wanting the only thing to be cancer.  I don’t know what’s right. So, I’m sorry to anyone who I made feel awkward in the past year for talking about my cancer.  It both defines my life; and it was nothing. 

That’s the truth. A year later - I feel like nothing happened. A year later - I feel like a Mom; and a wife; and 30 something year old operating without direction. A year later - I know that something major happened.  I am grateful I had the journey I did. I am far less judgmental of myself and others because of it. I am more likely to embrace changes and challenges because I know I can get to the other side. I know that I am worthy and that my body can do wild things. I know how to rely on others and how to speak up for myself. I may have learned all of these things without cancer; but that wasn’t God’s plan for me. 

How are we? Big M is all about rainbows, unicorns and princesses right now. She’s equally in love, however, with Godly Play at church. So we operate in this odd land where Mary is a Princess who looks after the sheep. She’s three and loves to challenge everything about me. And E, man she’s fun! I love 18 month olds. They start to have opinions (E loves chocolate and can throw quite the fit when I tell her no!). She’s walking (FINALLY!). She’s just a blast. I don’t even have the right words to express my affection for both of them. 

My incredible Valentine has been my calm confidant through out all of this. As we have space for more- he’s starting to pursue things within his passion. Like brewing his own beer! Yay for him having time. 

This week, my mantra is “I hope to understand more than I am understood”. This is what I will take to Yoga with me. This is what I will take to my retreat with me. I hope to continue to understand the plan ahead; and to worry less about being understood. In the year ahead; I hope to be more open to exploration and to learning to listen/trust. In the years ahead; I hope to further understand why I had this cancer in my journey. And, I hope to bring so much joy to the world. Because I have it; I am joyful to be here. I am joyful you are here with me. 

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