A Go Fund Me has been started due to the wonderful outpouring of people who want to help. Please use the go-fund-me link below, because the "TRIBUTE" page on caring bridge only supports the site, but gives no funds to Beth's cause. Here is how you can help: The link is:
https://www.gofundme.com/f/beths-cardiac - thank you and God bless - Kathy (Beth's sister).
BETH'S STORY:
Beth has had heart issues for a while. When she was young she survived cancer. It was a Ewing’s Sarcoma. The radiation affected a lot of things including her heart. She has a bad valve that doesn’t pump correctly. Her ejection fraction was 22 a few years ago. A normal person at rest has an ejection fraction of 55-60. We visited Rochester Mayo a few years ago for an evaluation. The cardiologist we saw laid out the progression of what might happen. She has been taking medications to regulate her blood pressure. It is kept low. When she visits a doctor who doesn’t know her, he or she is usually quite alarmed until they understand her condition. In 2018, it was decided that her condition was deteriorating, so the cardiologists decided to implant an ICD. It is basically a device that detects her heart rhythm. If something is wrong, it can deliver a shock or reset a bad rhythm. She was diagnosed with heart failure.
On Saturday the 7th of December, Beth went into the ER because she was experiencing flu-like symptoms. They decided she probably had the flu and gave her Tamiflu. She went home.
On Sunday, her symptoms continued to worsen, so we decided to have her make an appointment on Monday and get checked out. Grandma Mari took her to the appointment. They ran some tests. I found out that she was in the ER. I headed over to Mayo to check on her. She was already hooked up to a bunch of lines. They had her hooked up to a monitor giving all of her vitals. When I arrived, they brought in another machine to read heart data and put shock pads on her. That machine basically had an AED and the capability to shock her if needed. They needed to get her heart rate down from 175 beats per minute to manageable. They also needed to get her heart into the correct rhythm. Once that was accomplished, they moved her to ICU.
I stayed with her overnight at La Crosse Mayo. A team of medical personnel was working with her. They tested her for the flu. It was determined that wasn’t the problem. Then they started testing for other things, but nothing was conclusive. They decided to run a line down the left side of her neck into her lungs to better monitor her heart. They were starting to worry she had a heart infection. With the condition of her heart, that was very problematic. They started talking about the possibility of sending her to Rochester Mayo. The thought was that if something happened, they wanted the best support possible. I am going to call this the second in a string of escalations of support. We keep hearing, “If the numbers get better, we can stop increasing the support. If they don’t we will have to . . .” Thus far, they have always gone to the next level of support. I asked when the decision to go to Mayo might be made. They told me sometime that afternoon, so I went home to get some things together. I received a phone call that the decision had been made to send her by Medivac to Rochester Mayo St. Mary’s. I called school to pull our children out, so they could see their mother before she left. They arrive in time so see the Medivac team load her and all of her equipment up. The kids were noticeably concerned, but brave. Uncle Mike drove me to Rochester. When we arrived, a large team of doctors was looking into her condition. They were concerned that her kidneys weren’t putting out urine due to septic shock of the heart due to infection of the pneumonia. They started talking about the possibility of a dialysis machine. It would be a while until they decided to do that. Then they suddenly decided to do that, so off she went. She came back with another tube sticking out the other side of her neck. Teams of people were popping in and out of the room taking blood and other samples to test. It was decided that they had tried every possible test to determine which virus or bacteria was causing the problem, but in the end it really didn’t matter because they were treating for all possibilities. At one point she was on 6 medicines and an IV drip. All of this time, she hadn’t eaten. On Tuesday, she did have a bite of applesauce. The staff couldn’t allow her to eat because there was always another possible procedure to try if her kidneys didn’t start functioning. The lack of oxygen being delivered when her heart was out of rhythm had injured them, so they were basically off line. The dialysis was being used to give her kidneys a rest. The kidneys needed rest to recover and come back on line. On Thursday, the medical staff started talking about an intra-aortic balloon pump. Basically this involves running a line up her leg with a balloon at the end. The balloon helium is shot up the line and sucked out. This assists the heart in pumping. The intent was to get the blood flowing to deliver more oxygen to the kidneys to help them recover. During this time, the possibility of a heart transplant was being considered. They had already started the formal evaluation process which is the first step of getting listed. Also, Beth has been hooked up to several lines to deliver different medicines, so her mobility is limited. She has been bed-ridden since Monday. All she has eaten is a bite of applesauce. They once again decided to do the procedure sooner than expected. They inserted the balloon pump and brought her back to the room. They started looking at the numbers and talking about the next step on. On Friday, they were discussing an extra-corporeal membrane oxygenator (ECMO). This machine operates as an external heart and lung. If they do this, she will be able to move a bit more. The team of medical staff just opened up to include a cardiac transplant surgeon. He and other members of the cardiac team gave the good news that they don’t need to go to the next step, yet. Beth will be able to eat. She ordered Cheerios and a fruit cup. The cardiologists just left the room. The idea of a transplant has gone from a strong possibility unless things turn around to a more likely scenario. When I asked yesterday if it was possible to have a transplant before the end of the year, I was told no. Now, it is suddenly possible, but not likely. Beth has been a fighter this whole time. It is likely she won’t leave Mayo until she gets a transplant if that happens. She wants to stick around to see her kids grow up like all of us do. The team of doctors at Rochester Mayo has been amazing. We feel that we are in good hands. Thank you to everyone for your continued prayers and support. -Kevin (Beth's husband)