Ben’s Story

Site created on January 23, 2023

It all began very subtly. Ben felt that he was experiencing chronic fatigue since around the beginning of 2022. Since there were no other symptoms, we suspected possibly sleep apnea, or thyroid issues, etc. and planned to get him checked out at some point. The sleep apnea test came back as very low probability, so we dismissed it. By the time fall came around, we had not yet got around to checking thyroid. Life was very busy. Ben had started our emergency bathroom remodel and was working every spare minute he had on that. 

Around Thanksgiving 2022, Ben caught some kind of cold/virus that was going around at the time. Towards the end, he began to experience shortness of breath & coughing fits. This lasted for about 2 weeks and tapered off. We thought nothing more of it until approximately the 2nd week of January, when the shortness of breath and coughing returned, along with constant fatigue. 

During this time, we had begun the process of relocating from Ellensburg, WA to Bonners Ferry, ID. Ben felt that he was just pushing too hard with trying to wrap up his job, while packing and moving. He attempted to slow down and rest so as to overcome the symptoms. On Thursday, Jan 12, a few brethren helped us load a trailer, and we took our first load to the new place in ID. Over the weekend, Ben seemed to progressively get worse. Eventually, he couldn't walk across a room without being out of breath. Ben was beginning to think it might be pneumonia, and decided to get checked out.

Monday, Jan 16 Ben visited a family doc in Bonners Ferry. The doc promptly sent him next door to the Bonners Ferry hospital for a chest x-ray, EKG, and a full panel of blood work. Within a couple hours, the results began to come back. The family doc called and stated that the chest x-ray showed Ben's right lung was totally incapacitated by fluid around it, and that his heart and left lung were being affected by the pressure. He suggested that Ben head for the larger emergency room at the  Couer D' Alene hospital. Shortly after hanging up with the family doc, Ben received another call from the Bonner's Ferry hospital. It was their doc that is in charge of reviewing all outpatient testing. He told Ben that his case had caught his eye, and that he suspected Lymphoma. He seconded that Ben should get to a larger ER as soon as possible. 

We made the 1.5hr trip to the Couer D' Alene hospital, and were admitted to the ER. From there, it was a whirlwind of bloodwork, CT scan, echocardiogram, chest tube installation, etc. The staff was extremely professional, kind, and efficient! Once the CT scan came back, they immediately found an 14 x 18cm mass growing in the center of Ben's chest. This along with the presence of fluid around the right lung caused them to also suspicion Lymphoma. 

Tuesday, Jan 17, the docs ordered a biopsy of the mass. They also continued doing blood work each morning to watch various levels. Ben's calcium was high, as well as uric acid. They were able to bring those levels under control, and continued to monitor him closely. Over time, 3 liters of fluid were drained from around Ben's right lung, allowing him to breather better. They released it slowly so as not to collapse the lung. It worked and the lung successfully regained its capacity. For the next several days, they simply continued to correct various levels, and flush him with IV fluids. 

Finally, on Friday, Jan 20, Ben requested an anointing, and our dear brethren from Cascade Valley made the long trip over. We enjoyed a precious time of worship and prayer with anointing in the hospital room. The docs also started Ben on a high dose of steroids in an attempt to keep the mass from encroaching on arteries, throat, heart, etc.

After monitoring Ben through Sunday morning, Jan 22nd, they finally discharged us so that we could go home and pack for Germany, which brings me to the fact that we found a renowned doctor over there who has an extremely good track record of treating cancer.  The plan going forward is to travel to Rheinfelden, Germany on Jan 27th, and begin treatment there on Feb 1st. We are not sure how long it will take, but we do know it will be at least a month. 

We will have to leave our precious daughters behind in the capable hands of family. Please pray for us as we will miss them dearly!


 


 

Newest Update

Journal entry by Ben Cook

The gate may be straight, but the path sure isn't! :-)

I'm currently sitting on a train, contemplating the above fact as we roll through the Swiss countryside.

I am finally feeling well enough to write, so I thought I'd take some time to catch up on recent events in our journey...

Due to the following circumstances, our plans have changed once again.
- I had MRI & CT scans last week, and the results were very positive; the MRI reported that all tissue and organs look clean and in great condition. The CT showed that my cancer growth has drastically decreased in size, by approx 80%. Dr. Renz says that the radiologist doesn't use the word "drastically" lightly. We are very thankful!
 
- Then, on April 6th I began having a slight infection around my chest port incision. This concerned Doc, as an infection that close to a port can easily be deadly. We ended up stopping at the clinic on the way to church Sunday morning to get an antibiotic and Vitamin C injection. That cleared up the infection within a very short time. We've continued to apply antibiotic cream daily, and so far, so good.

As we consulted with the doc, he felt that we should go ahead and stay another 4-6 weeks if possible, since the growth is not yet gone, and if we go home now, it will most likely grow back quickly. If we stay, we can build on the progress and hopefully get it completely this time. 
Our treatment plan moving forward will involve another round of chemo, only a much smaller dose then even before, and starting a new Immunotherapy. Eventually the goal is to move completely from chemo to immunotherapy for the remainder of treatment, as long as my body doesn't react to the immunotherapy. This can be continued in the US if needed. Hopefully not more than a few months total.

So, we once again changed our ticket and extended our airbnb. Dr. Renz offered to rent us one of his vehicles at half the cost of a rental vehicle. We are very grateful! It was a bittersweet feeling. We were looking forward to seeing our family and friends again, but are also thankful for the opportunity to stay and receive treatment.

Katrina Harris joined us for the duration of our original stay. She was a real blessing and help to us while she was here, removing a big load from Heidi! Thank you to her and her family for this gift! 

After Katrina left, Judy Renicker graciously offered to come and help Heidi. She flew from Mexico to Zurich, a long tiring flight. No sooner had she arrived, news came that her mother had passed away in Ohio. We felt so bad for her! After a couple days together, she flew back to Ohio. Thank you Mark & Judy, for your willing service! 

Our Father has been so good to us. Yes, this has been a real roller coaster ride, and this particular round of treatment has been tough on our family. The struggle has been very real at times, especially as it drags on. The unknown future is sometimes hard to leave in God's hand. But through all of this, we feel a very real peace, and we trust Him fully! He has always provided for our needs, sometimes right down to the wire, but always in some way or another. 

Many thanks to all who have been praying, giving, and checking in on us. We love you!

-Ben

Patients and caregivers love hearing from you; add a comment to show your support.
Help Ben Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Ben's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top