Scottie’s Story

Site created on October 8, 2022

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
  
Life interupted February 17th, 2020 when I was diagnosed with stage 4 Mantle Cell Lymphoma. After being on a watch and wait for little over 2 years we have started a 6 cycle clinical trial called EA4181. We have been thrown a mass amount of information and drug names etc, too much to even write about. I had my first 8 hour session of blood draws (too many to count) and chemotherapy on June 9th 2022. Definitely feeling some side effects that came from that and on a scale of 1-10 I would say I was at about a 5, it felt manageable. The following day on June 10 2022 I had a shorter session with a bag full of Platelets because my platelets dropped really low from the previous day, possibly the Rituxan and that was follwed with a chemotherapy of Bendamustine. The following day some newer side effects arose. Here we are, in the fuckery of Cancer and at the beginning of a long and challeging road ahead. We have created this CaringBridge account to keep family, friends far and near up to date on all the happenings in this new way of life for our family. Rather than updateing social media, texts, e-mails this will be a main outlet to communicate how we are fairing. Granted all the posts, texts etc. are greatly appreciated and encouraged to keep Phlowing, it just might take a little time to respond but know that you all are in our hearts and minds. With this CaringBridge as well it will be a journal entry for me to track and trace my appointments, chemo sessions, drugs, journaling and kind of something where we can easily reference back to thru this crazy journey. The dictionary defines the word Journey as a "Passage or Progress from one stage to another" and that is exactly where we are in life right now. With this CaringBridge we will also have a registery where fellow humans who have been searching for ways to help our family can use as a guide with anything we may need. Many people have offered help and this will be an easy way to help navigate what we might truly need to make this road a little smoother for us. Over the last two months and even in the last two years we have had major financial set backs as well as some serious life heartbreaks. Starting a little over a month and a half ago we knew the time for treatment had come. Following that I had to get a Port put in that will be where infusion or withdrawls will be taken throughout the treatment so my veins dont get wrecked. The next week I had to have a heart monitor to track my heart for a week to make sure it is strong enough to go thru treatment. During these two weeks our sweet baby girl Otter became very sick with vomitting and then anorexia. After multiple vet visits and major expenses, Mariah took her to an emregency vet clinic and learned on a Friday afternoon that the best thing to do for our sweet babygirl was to lay her to rest. The stomach cancer had taken over her body, she was suffering greatly and the road to recovery was non existent. Mariah plead with the vet to send Otter home with pain meds for the weekend so she can have a few more days with our family before crossing the rainbow bridge. As soon as Otter was brought home I headed to the ER for what we thought was an infected bug bite on my left calf. The emergency department doctors immediatley wanted to admit me for further intravaneous antibiotics for the next 48 hours. What we thought was an infected bug bite was actually a serious skin infection called cellulitis and it was rapidly spreading. My time with Otter, who Mariah and I had raised since she was 6 days old was cut short. I was in the hospital until Sunday evening until my celluitis started getting better. Sunday evening we had our last sleep with the most amazing dog daughter, sister and friend we could have ever dreamed of. She found us and we are forever grateful for the gift of being her humans. Monday afternoon Mariah and I took her to her vet and were with her until her last breath. Devastated is a word that barely scratches the surface of our grief. She was only 8 years old and such an amazing doggy, she will be missed forever. During this time as well I had to cut back on my hours and roll as bar manager for Mac's Local Eats which was truly a bummer but I needed to focus on appointments. My mind, body and spirit had become my new focus. Mariah was also going through some major job transitions due to circumstances that are too much to even touch on here. Basically, it had to happen and sometimes timing isn't right but when you must make a change for your well being it just has to happen. Financial cluster fuck is an understatement and with medical bills piling, unexpected vet bills and major job transitions, we found ourselves in this part of our journey. This new part is a place to call on fellow humans, friends, family and anyone who has crossed our paths who have been searching for ways to help us. Whether it be through crowd funding or our registry, anything helps and we appreciate you all. It truly is so dificult to ask people for help but this is the chapter of our life where we must ask. We are beyond grateful for everyone, near and far and from the bottom of our hearts. Even just a message of hope and love is plenty to fill our hearts. My road to remission starts here and the future is now.

Newest Update

Journal entry by Scott Sindelar

YANG!  I had my treatment on Wed 3-6-23 and I took a different approach pre and post treatment this time around, and how treatment went was, my YANG. I have been reading about fasting prior to chemo and considering I have been handling the drug fairly well I thought I would give it a go. I did a water fast 48 hours prior to treatment, exercised the night before as well as the morning of. Went thru treatment which was nice and smooth. Post treatment relaxed that night and ate a fairly healthy meal. The morning after I did some exercise and seem to recover fairly quickly and been feeling pretty strong since. This approach seemed to work for me and the 4 remaining treatments I have for this year will include this path or at least I will give it my best. Trying to get back to work hopefully in the next few weeks and a “normal” way of life.
    YIN! When we got home from Durango on Sun March 24 I fell sleep feeling a little off. Woke up at 2am w/ chills, sweating, congested and body aches. Bed drenched w/ sweat in morning and I literally slept until Wed morning. In and out of sleep for 2 days and Mariah giving me medicine and fluids. Monday night she was down with the sickness and we both quarantined in  bedroom. Wednesday morning around 5am I woke up to use the bathroom and as I was coming out I lost consciousness  and fell down about 8 stairs and woke up shortly after with Mariah awoken by my fall. I fell on the right side of my face and hit my head pretty hard, I felt it. As I got up started sweating profusely, sat on a chair for 5 minute. Immediately Mariah got us ready to go to the ER and with the help of family we both checked into the ER. She could not breathe and had all the same symptoms plus S.O.B. She had a respiratory infection as well as Flu. We both tested negative for covid and this strain of flu was really intense. It’s April 11th and I’m about 80%-85%. We did a MRI and my head was clear of intrusion and had Acute Viral Syndrome. Had an appointment w/ General Dr. and have another one in two weeks. She wants to keep an eye out for brain bleeding that might not show for a couple weeks after the initial fall. My congestion seems to get better each day and the headaches are becoming less, I think. Taking it day by day and will get back in if headaches, numbness come around and get another MRI. Mariah came around earlier in week feeling better.
     YIN!  of cancer treatment is the financial fuckery of trying to heal while maintaining a balance of paying bills and keep your head above water. This reality has not been as easy or successful as I would hope it to be and has put us in a financial pickle. I was supposed to be back to work in February but the bar “Yonder Bar” that I’ll be tending at for the afternoon shift a few days a week has been delayed due to city inspection, permits etc.They are hoping to be up & open by late April or early May . I don’t want to lose disability until I am done in December w/ my last chemo  treatment & hopefully get back to some normality next year. This is my optimistic mind set that will hopefully manifest w/ patience and perseverance. Truly appreciate all the donations and encouragement over the last couple years. It’ll be two years of chemo come June 2024, crazy. I am truly hoping everything comes together for us and this will be the last time for now that I will have to share my Go Fund Me. Beyond gratitude for any help big or small or just words of hope and love! I also hope to turn my Go Fund Me into a place to raise money for research to find a cure for Mantle Cell Lymphoma. Having an incurable cancer is by far the hardest thing I have had to endure in my life. Finding the bright side of life is the only path I will take and I know my own voice in my head can be my worse enemy, but I do my best has to walk  steps of peace and optimism. For me it’s a choice. If you made it this far or not, truly nothing but love from the Sindelar / Garcia family. Peace and love to you all far and near.
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