Barb’s Story

Site created on April 28, 2023

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting and please note that all donations go to Caringbridge and not to me!!  

On Tuesday,  April 4, 2023, my world was changed forever! I was having some headaches for a few weeks.  Then, the headaches got worse along with vertigo symptoms. I just turned 50 and thought I was having symptoms around getting old!!  However, the symptoms kept getting worse so I decided to go see my PCP  who sent me for an MRI on Tuesday at Beaumont Dearborn.  There, i was lucky enough to run into a friendly face from high school (Nick Kilburg) who actually performed the MRI on me.  I was obviously in pretty bad shape by this time so i went directly to the ER across the street at Beaumont Dearborn right after the scan.  

I was immediately whisked away to the ER and in there, I started meeting with people who started saying terms such as neurosurgery, brain mass and cancer.  I was terrified!!!  Over the next few hours, I was admitted to the hospital, had a brain biopsy, another MRI, CAT Scan and it was confirmed that I have B Cell Lymphoma.  I stayed in the hospital until Friday and then waited.  You get this news and you have to just wait. Well as you can imagine, that's pretty difficult! So over the next 3 weeks, I tried to stay sane, keep busy and not google what my chances are. Am I going to die? Am I going to lose my hair? What's going to happen to my boys? The questions don't stop, your mind keeps swirling and well you still just have to wait. 

Once again, my PCP office comes through and has an appointment set up for me with a Dr. Modi at Karmanos for Wednesday, April 26, 2023.   My sister Jenny and Dave came with me.  What is he going to tell me? Is it too late, did it spread? Am i I going to like him?  I can't even explain the emotions one goes through during this.  Well I get whisked away again, meet tons of people, and finally after what feels like hours , in walks Dr. Modi and immediately I feel at ease.  He sat down, talked to me with words I can understand  and reassured me that even though I have a very aggressive cancer, that with my health history, and age that I can beat this.  THAT IS ALL I WANTED TO HEAR!!!!! That I have a chance! WHAT A RELIEF!!!

However, unfortunately it will not be easy. How do I beat this? Well It means I will start out with 4 treatments of an aggressive chemo plan where I will go in the hospital at Karmanos every 21 days and receive these treatments.  I really have no idea what to expect.  However, I do know that I will lose my hair, be tired and probably won't want to eat. However, if that is what I have to do to beat this, then that is what I will do.

After Phase 1 above,  I will probably then have a Stem Cell Transplant to kill the cancer once and for all. However, that is down the road so I am taking this one step at a time for now.    I work for a great company so luckily I am off work now so I can deal with this!!!  The amount of love and support I have received from my work colleagues has been amazing!

So now that I got through all the medical side of things, let's just talk about the emotions, anxiety and all the outpouring of love and support from my family, dear friends and colleagues.  I am truly so very grateful for all of this.  When you are going through the fight of your life, knowing everyone that is on your side literally keeps you going.  So thank you to everyone who has texted, called, sent cards, flowers, fruit baskets, gifts, etc.  These things are what makes someone going through this want to fight!! So thank you and please keep those prayers and well-wishes coming! 

Lastly, I know there will be some very dark days ahead and I am ready to deal with that because honestly I have no  other choice. I have a lot of people who need me and I plan on being there for each and every one of them.  I have put my trust in GOD and I know he will be with me every step of the way. Knowing that also makes me realize I can do this!!! So thanks for stopping by and i am looking forward to kicking cancer's ass with all of you!!!


Barb

Newest Update

Journal entry by Barb Brady

It has been about three months since my last update, so I wanted to inform everyone on what has been happening since my last post.

The plan was for me to try again to retrieve my stem cells for a future stem cell transplant. We wanted to wait about 3 months after my last chemo treatment since it takes such a toll on my body. So, the day after Thanksgiving, I began the process of giving myself 5 shots a day for 5 days which is supposed to boost my white blood cells and to release stem cells into the bloodstream so they can collect it.  This time around I had the side effects of headache, achy body, flu-like symptoms so I was all ready on Tuesday, November 27th for stem cell collection Attempt #2.

My sister, Jenny and I headed to Karmanos at 7:00 am where once again they draw my blood and then send me for the central line insertion in my neck where they will withdraw my stem cells through.  And then you wait for about 4 hours for the lab results.  They want “some” lab number to be around 20. The first attempt I was at 1 so we were hopeful this time it would be much better. Unfortunately, my “number” went down to .84.  They tried to send me home with that line coming out my neck and come back tomorrow to “try again.” Luckily, my oncologist knows me and took my call right away, agreed that my numbers were too low and to just go home.  So, they took my line out and we came home with a follow-up visit scheduled with Dr. Modi.

Last Tuesday, I met with Dr. Modi and we both agreed that it just seems like my body, at this time, is not ready for the stem cell collection/transplant. We agreed that we will just take a “wait and see” approach and monitor any chance of recurrence by doing quarterly MRIs. I am honestly relieved right now to not have to go through such an aggressive procedure.

It is funny when I tell people what is happening with me, some people say I am so sorry; others say congratulations. And that is exactly how I feel right now.  I am so happy that I can get back to my “normal” life but in the back of my mind will always be the thought of my cancer coming back or is this headache a sinus headache or my cancer?

So even though my cancer does have a very high recurrence rate in the first two years, I am determined to put this cancer behind me and live my life. There are so many people who are going through way worse things so if they can do it, so can I.  Once again, I appreciate every single one of you who were there for me during some of my darkest days and will gladly take any prayers occasionally! Thank you!!

Barb

Patients and caregivers love hearing from you; add a comment to show your support.
Help Barb Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Barb's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top