Mollie’s Story

Site created on December 2, 2010

Welcome. This site is for sweet Mollie Osborne. She was born12/14/2010 with tricuspid atresia, which we were lucky enough to know before hand. Tricuspid atresia is a form of congenital-heart defect in which the tricuspid valve is missing. This causes there to be an absent right ventricle in the heart.

Mollie is post Glenn- 05/13/2011 (the Glenn connects the superior vena cava to the right pulmonary artery) and post Fontan- 07/17/14 (the Fontan redirects blood from the inferior vena cava to the lungs without being pumped)

Mollie has taught and inspired us to take life as it comes one day at a time.

Newest Update

Journal entry by Brittany Osborne

Thursday marked Mollie’s summer check up. Due to changes in insurance, we had to move our visits from Neenah to Milwaukee making it an all day affair. All is as well as it could be. For her, her heart is doing good and her liver as well. We again talked about the fenistation in her heart being larger than we’d like, but they could not go in and just close it alittle. For now the long term benifits of keeping it open outweigh the possible short term benefits of closing it. We also discussed her being a part of a trial for medication that may help increase her blood oxygen but again that is an in the future thought. She was a trooper with her mask on for the whole ordeal, 2 1/2 hours of appointments, and it was good practice for the fall and heading back to school (if that is the case). Her doctor recommended getting her out to run errands, play at the park, and spend time with trusted family and friends following social distancing and mask wearing. He said although she is at a greater risk of complications there have not been any children admitted to Children’s Hospital for Covid complications who were already patients, leaving us caustiously optimistic. 
She came home with a 24 hour heart monitor on, which is standard, but she was disappointed because she couldn’t swim with it on but we assured her she’d survive one day not in the pool. Our next appointment is in December where she’ll under go a stress test to see how her oxygen levels hold out while exterting herself. 
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