Orly’s Story

Site created on June 23, 2021

Welcome to Baby LaRose's CaringBridge website! We are using it as a platform to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting!!

Newest Update

Journal entry by Jenna LaRose

Two weeks home and all is well! Orly has been gaining weight slowly but surely and is now 7lbs 12oz!! 

Orly once again took control of his own care and pulled out his feeding tube on Wednesday night, but he was ready for it!! His weight gain was enough that we didn’t have to replace it! 

His incision is healing wonderfully and his sternum is also healing nicely. Orly is now completely free of all lines/tubes/dressings and is just a normal naked baby!! 

Orly eats like a champ and is sleeping well throughout the day and night. He is awake more and more during the day and is meeting all his developmental milestones! 

We have only a couple more follow up appointments before heading back to Montana on 9/11!!

Thank you to everyone that has sent prayers, positive thoughts or vibes, gifts, donated to Orly’s gofundme page, texted or called to see if we needed anything, or all of the above. We are so grateful for all the wonderful people Orly and us have in our lives. We couldn’t have done it without you! 💙💙
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