Oliver ’s Story

Site created on February 17, 2021

We went in for what we thought would be a normal 20 week ultrasound on December 9, 2020. To our excitement, the nurse immediately told us we were having twins (we found out a boy and a girl later that week)! Wow, so many emotions go through you when you find out you are having 2 instead of 1! The nurse took quite a while to do the ultrasounds and then called in the doctor. We were a little bit worried because the nurse didn't say much during the ultrasounds. The doctor immediately showed us the difference in the 2 babies' hearts and described what looked like (boy's heart) a Congenital Heart Defect (CHD) called Hypoplastic Left Heart Syndrome (HLHS). They set us up for an an appointment for an echocardiogram on January 8, 2021.  


HLHS is a congenital heart defect in which the left ventricle is underdeveloped due in part to reduced blood flow to the heart. There is no cure for hlhs, but there is a combination of 3 heart surgeries (Norwood, Glenn, and Fontan Procedures) that can be done to redirect the blood flow.  Over the next few days of extreme emotions, praying and processing we decided we cannot wait until January 8 for the official diagnosis. We got a hold of Childrens' Hospital in Minneapolis and got an appointment for December 20. We went down to Childrens on December 20 for an echocardiogram and Baby (boy) Goettle received the official diagnosis of HLHS.  


We are moving down to Minneapolis in March and the birth of the 2 babies should be around the beginning of April. The first surgery, the Norwood, will be most likely within the first week after birth. The second surgery, Glenn, will be around 4-6 months old and the third will be when he is around 2-3 years old. 

Newest Update

Journal entry by Stephen Goettle

Oliver Update! Oliver and Annie turned 3 last week! Oliver's development has been great and you wouldn't notice that he has had any issues with his heart other then he gets out of breath faster than Annie.  We are hoping that this next surgery will help increase his blood oxygen levels and give him a little more stamina. After our last cardiologist appointment and discussions with Children's, they have decided that this summer would be a good time to do the third surgery (Fontan). 


June 14 - Oliver will have a cardiac catheterization procedure where they will send some wires down into his heart to measure pressures in the heart and examine the blood vessels. They also want him to wear a Holter monitor while we are there to get some good readings on his heart functions. This is all expected to be done on the 14th and we will most likely come home that night.


July 31 - Fontan procedure.  They will be disconnecting his inferior vena cava from his heart and reconnecting it to the pulmonary artery so that the returning blood flow from the lower half of his body will be passively flowing to his lungs instead of to his heart. This is what they did to the superior vena cava for the upper half of his body in the previous surgery (Glenn). We will be at the hospital on the 30th for consultations and getting ready for the surgery and then the surgery will actually take place on the 31st. They have told us that the average hospital stay for this procedure is about 2 weeks. They want to make sure he is recovering and healing well before sending him home.


As always, we will try to provide updates as we can and we are most thankful for your thoughts and prayers for Oliver during this time. 

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