Journal entry by Rachel Krantz —
Cardiologist appointment today. The fluid around her heart is gone, so we can stop with the Lasix dieuretic. Her right atrium is almost back to normal (had swollen from getting extra blood diverted to it). Her incision is healing nicely and looks good. We go back in a month for continued follow-up.
We are also waiting to hear back from a company that provides a dosage of RSV antibodies (not a vaccine) to babies with depressed immune systems (which includes practically all babies discharged from the NICU). According to the pamphlet, RSV is responsible for more infant hospitalizations than the flu, and of course she is more susceptible, so I'll have to follow up with that if we don't hear something soon.
We are also crossing our fingers that she doesn't get Big Brother's croup. And I'm about to stock up on every immune supporting kids medicine at Mustard Seed (basically a local version of Whole Foods).
We are also waiting to hear back from a company that provides a dosage of RSV antibodies (not a vaccine) to babies with depressed immune systems (which includes practically all babies discharged from the NICU). According to the pamphlet, RSV is responsible for more infant hospitalizations than the flu, and of course she is more susceptible, so I'll have to follow up with that if we don't hear something soon.
We are also crossing our fingers that she doesn't get Big Brother's croup. And I'm about to stock up on every immune supporting kids medicine at Mustard Seed (basically a local version of Whole Foods).
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