Baby Girl’s Story

Site created on August 19, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement.
Rachel and Dan welcomed Baby Girl Krantz into the world on Saturday, August 17th. As the family settled into recovering from what seemed like a typical labor and delivery, some routine tests showed that Baby Girl was not maintaining her oxygen levels. After a long night of testing and a transfer to the NICU at Akron Children's Hospital, it was determined that Baby Girl has a CHD (Congenital Heart Defect). Some valves did not connect to the right places, so her blue blood and red blood is mixing; surgery will be required to correct this. The official diagnosis is: TAPVR (total anomalous pulmonary venus return). While this is a difficult and unexpected situation, the Doctors anticipate a very positive outcome. 

See the Ways You Can Help journal entry to learn how you can help them.

Right now the timeline looks like:
- 1-2 week hospital stay 
- surgery on Friday morning
- recovery for 3-7 days

***NOTE: Avoid using Baby Girl or Big Brother’s names on social media, per their parents’ request****

Newest Update

Journal entry by Rachel Krantz

Cardiologist appointment today. The fluid around her heart is gone, so we can stop with the Lasix dieuretic. Her right atrium is almost back to normal (had swollen from getting extra blood diverted to it). Her incision is healing nicely and looks good. We go back in a month for continued follow-up.

We are also waiting to hear back from a company that provides a dosage of RSV antibodies (not a vaccine) to babies with depressed immune systems (which includes practically all babies discharged from the NICU). According to the pamphlet, RSV is responsible for more infant hospitalizations than the flu, and of course she is more susceptible, so I'll have to follow up with that if we don't hear something soon.

We are also crossing our fingers that she doesn't get Big Brother's croup. And I'm about to stock up on every immune supporting kids medicine at Mustard Seed (basically a local version of Whole Foods).
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