Facebook asks “what’s on your mind?”……today I could write a book about that’s on my mind…..being a medical mom to a child who has gone through more in her three and a half years of her life is thrilling, scary, exhausting, I could go on and on. All the feels are so real right now. This life is so raw. One minute you have a normal three year old running all over. The next you’re rushing down to Sioux Falls because your immunosuppressant heart child has a 103.5° temperature and you can’t get it to break.

Two admissions in less than a month. Two. 

Last night her stats were scary low….to the point that she was as low as she was pre transplant. She is requiring oxygen. She refuses to use the oxygen. Talks of transfer to PICU….Heated High Flow…..Sedation to help her get better….oh and another type of influenza and Croup just to name a few things off the list of symptoms and issues. 

 How are we going to get through this? What about work? What about bills? What about food and groceries? What about making ends meet while you’re not getting an income because you’re in the hospital with your child exactly where you should be…..but you need to be at work…… 

My warrior is so sick. And I hate being helpless…..

Prayers needed.