This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
Apr 28-May 04

This Week

Amanda and Scott hasn't added requests yet
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

Monday October 7th we moved out of the ICU to the pediatric floor 10 East!!! Such a big step forward!!!!! It was so sad to leave our nurses that we’ve been with for over 3 months though. And VERY sad to leave our private room.

 Our roommate is 10 day old newborn that screams half the night. I stayed up here with Jacob that first night and quickly realized that I wouldn’t be able to do that every night. It was awful. I feel bad for those parents, it’s their first baby and they’re here. But Jacob sleeps all night, just wakes up for a diaper change around 2 and 6. And he needs his sleep. So this is NOT a good match. And I certainly need my sleep. Sleeping at night is what has saved me from losing my mind through all of this.  And I’m a light sleeper anyway. So they’re going to try to move us but I’m not holding my breath. We also don’t have the window side of the room. So I feel like I’m in a dark, loud, claustrophobic cave. Plus I feel like I can’t even talk to Jacob or use the phone in here because the poor new mama is sleeping all the time when her baby isn’t crying. And they don’t have a lounge or anything on this unit. Just a playroom that closes at 5. It is worse than I ever imagined it would be. Hopefully we can get out of here sooner than later.  Maybe by Thanksgiving.  Send help. Lol😭🙏😳😫 so I’m going to be sleeping at patient family housing at night, for my health and sanity. Unless we miraculously get a private room. 

Anyways.... 

Jacob is doing well. Monday they took his sump tube out! One less tube in his throat. He laughed for the first time Monday and burped for the first time too! (That I heard anyway). His laugh was so sweet and a little scratchy. Today they might move his feeding tube from his intestines to his belly!! This is a huge step, too! Although, I’m preparing for lots of messy puke. He gags so much now with nothing in his belly. I foresee lots of baby vomit in my future once there’s actually milk in there.  He lost weight the first night he was here so hopefully that isn’t a trend. But they can go up on calories. He’s going to have some things to adjust to, but he does have a weight buffer. He’s been gagging less while practicing nursing, but no actual nursing. We might introduce a bottle Thursday. Yay!!!

In other news, G-pa is in the house! Greg is visiting for a couple of weeks and Gigi is finally home after being with us for 3.5 months. We love you! I think Greg plans on doing some projects at our house. He’s very handy. 

Ella is adjusting to daycare pretty well I think. She gets emotional at naptime I’ve heard. But she’s crying less at morning drop off. She had her first school photos and I can’t wait to see them. She had a sleep regression overnight this last week but last night was good so hopefully she’s through that for scott’s sake. 

It’s Wednesday and I’m not going home to see Ella today, which is making me sad. But I’m going home for the weekend. Hopefully I’ll get to spend some time with family and friends. Maybe bring Ella to see jackolantern spectacular. 

I think that’s it for updates. Jacob is waking up after a nap on my chest in our cave. I love you guys. 

Read the latest Journal Entry

2 Hearts • 2 Comments

SVG_Icons_Back_To_Top
Top