Kyle is 7 months old now and it has been 6 weeks since his open heart surgery.  He is recovering beautifully and is doing very well.  He started rolling multiple times to get around again last week, and is working very hard on sitting independently.  Since surgery Kyle has had an aversion to being fed solids, we are thinking this may be due to the increase in oral medications we have needed to give him since surgery.  His pediatrician recommended putting purees or mashed foods on his tray and letting him play and experiment, it is so messy but fun and it seems like it may be working, he started eating the foods off his hands this week.  
Kyle has been on three medications at home since surgery: Propranolol every 8 hours to control heart rate and blood pressure, giving his heart additional recovery/healing time, Kyle has been on this medication since he was about two weeks old.  Low dose Aspirin once a day for the small clot in his right wrist.  And Furosemide(Lasix) twice a day for the first two weeks, now just once a day, this is a diuretic used to treat fluid retention caused by the heart surgery.  We are hoping to be able to stop the Aspirin and Lasix tomorrow after his cardiology follow up appointment.  He will be on the propranolol for approximately 6 more months. 
Until April 1st we had to follow specific sternal precautions such as, scooping him up rather than lifting under the arms, basically not putting any pressure or stress on his sternum.
Prior to surgery Kyle's feet were almost always cold and often purple, in the last few weeks his progress has shown as his feet are now usually more pink and warm like little baby feet should be.  Also prior to surgery, his oxygen saturation level was in the high 80s - low 90s, a definite improvement from when he was discharged from the NICU at three weeks old but still low.  Since surgery his oxygen level has been normal, in the high 90s.
The marks from IVs and toe pokes are still fading but are less noticeable every day. His scar is healing very well, Auntie Brooke was even able to do some scar tissue mobilization massage a couple of days ago. We will have to start doing this for him at home too so the scar grows well with him.
At Kyle's well check last week we realized that he hasn't gained weight in the last month, so we are going to do a weight check next week to see if he has made any progress.  Recovery from open heart surgery is tough stuff and hopefully that's all it is.  His doctor and an endocrinologist have also been monitoring his TSH (thyroid stimulating hormone) for the past several months because it has been high, we are hoping it gets to the normal range as he recovers.  We have to check it again in about a month, if it is still high at that time he will probably have to start a medication for it.

Also, Kyle has had his helmet for a month, he has done so well with it and really does not mind wearing it.  He wears it about 23 hours a day, during naps and through the night.  He has already made good progress but will most likely have to wear it through the summer.