Journal entry by Elise O'Neill —
*Avery Update*
Okay, so this is where we are at....
Since all of our meds have now been switched over to our feeling tube, we were able to take out her PIC line! This is the line in her arm thats been in for MONTHS! Now we are only attached to 2 things instead of 3.
The only thing keeping us here is weaning the vent settings. Today we are on the lowest setting of CPAP, so tomorrow that means we will switch to high flow. This comes with a smaller nasal cannula and is something we can GO HOME on 🙌 They would like to see her stable on high flow for several days before we start to wean that. Pulmonary would like us to get to a certain spot on high flow before they would send us home. So right now they are working on the criteria for going home.
Her cardiologist stopped in the other day and told me Avery is surpassing everyone's expectations. It's so crazy to think of where we started out from to where we are now. She is such an amazing strong little girl!
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