Well once again it's been a while since we have updated everyone.  This past summer Rory's neurologist closed her practice and we were forced to find a new doctor.   We found on through the Mayo that we like.  For the past few years, Rory has been on Gabapentin.   Over the years her doc's have kept upping her dosage as she experienced more pain.  One of the side affects of this medication is tiredness.  She was always tired.  Well this new doc has switched it up and has actually started to wing her off of the Gabapentin.  She is now taking Cymbalta and it has been working wonders for her.  She has had less pain and more days of actually being able to do things.  She is not as tired and is more active during the day.   So for now she continues to enjoy life to the fullest and has been busy working on her art.