Susan’s Story

Site created on April 11, 2024

April 11, 2024


Dear Friends and Family,


In February, I was diagnosed with Stage 2 anal cancer. Doctors located a two-centimeter tumor during a colonoscopy and have since determined that the cancer is in that one location only. Over the past several weeks, I have met with specialists to determine an exact course of treatment, and today I begin a 6-week course of chemotherapy and radiation at the Heimann Cancer Center in Medford.


This CaringBridge site will be updated periodically throughout my treatment—by me when I can, and by my son Frank if I’m not able to—to share my progress with friends and family. In this message, I’ll provide a little more information about my illness and treatment in case you’re interested in learning more about what I’ll be going through.


Starting this morning, I will receive the following treatment:


On day one, I receive two doses of chemotherapy (one round of Mitomycin administered while at the cancer center and one round of the chemo drug 5-FU delivered through a port over four days). Four weeks later, I will receive the same two doses again. The chemo is delivered throughout the body and attempts to prevent any dividing cells from becoming cancerous.


I will also begin 28 days of radiation treatment, delivered in seven-minute daily sessions, Monday through Friday.


The doctors feel optimistic that this course of treatment will allow me to be cancer free within several weeks of the completion of treatment. It’s obviously good news that at this point the cancer has not spread. Hopefully because they caught it early and the treatment regimen is fairly aggressive, I will be able to tackle this beast once and for all over the next several weeks.


Although the prognosis is pretty strong for this type of cancer, the unfortunate news is that the treatment itself is projected to be pretty challenging. (“It sucks,” one of my doctors warned me.) Because every patient responds differently to this type of treatment, they say I can look forward to some combination of fatigue (almost definitely), nausea, constipation, skin damage, discomfort sitting, hair loss, and more. Side effects usually begin several days after treatment begins and continue several weeks after treatment is complete.


I feel grateful to have a really supportive medical team, and although I am scared about my upcoming treatment and recovery, I am optimistic about getting through this process and making a full recovery. David Strother, my partner, and Frank, my son, will be managing my care. Another critical part of my care network is my daughter Melinda and my grandkids (Katelin, James, Ella, and Triton), who are supporting me wholeheartedly from a distance! Thank goodness for FaceTime, texting, and emailing—and our phones!


I can’t tell you how much I appreciate the words of support and encouragement so many of you have already sent along, as well as the many offers of help you have made (with meals, tasks around the house, and nursing care). I don’t quite yet know what my needs will be, but if you’ve offered to help, you can probably expect to hear from David or Frank or me in the coming weeks.


If you need to be in touch for any reason throughout my treatment, don’t hesitate to reach out to me. I may not always be able to respond, but if you follow up with a text to Frank (617-271-4781) and/or David (541-631-8849), one of them will get back to you.


Love,

Susan

Newest Update

Journal entry by Frank Honts

Hi Family & Friends,

 

As of today, I have completed one round of chemotherapy and 16 radiation treatments. I'm happy to report that overall I've been feeling so much better than I thought I would.  I'm eating well, getting good sleep, not experiencing much pain, and contending mostly with trying to keep a full, but not overfull bladder for treatment everyday (except weekends)! I have 12 radiology treatments left (scheduled to end on May 20) along with 4 more days of chemo that begin a week from now.  

 

Some of the side effects of the chemo and radiation that I feared, and still do to some degree, are weight loss, mouth sores, pain, fatigue and feeling sick overall. Weight loss can be a problem, but I have had a strong enough appetite that I've only lost a few pounds so far. I don't even crave chocolate at the moment. Shocking!  Probably a good thing. I've experienced "dry mouth" from the chemo, but not from radiation. I have experienced some fatigue, but again, I’m surprised that I feel so good. Grateful for that! Any pain I have had, I've been able to curb with Extra Strength Tylenol.  I've been trying to walk some each day, but I can still feel how I'm experiencing muscle loss. They really encourage exercise, and I totally believe in it, but I feel busy enough with treatment that it seems hard to find time to exercise. Once a week I see the Radiation Oncologist, Dr. Ikizler. I like him. He checks in to see how I'm doing. Suzanne, his nurse is terrific, too. The entire staff has been so gracious and kind and patient. I appreciate each one of them and respect how hard they work.  

 

Several of you have inquired about helping out, providing meals, or coming to visit. I don't think we need any help right at this moment (though that could change very quickly). A meal here or there, though, would be greatly appreciated. (I don't have many dietary restrictions, though protein/vegetables are a priority to keep my strength up.) Most of all, I would love to have short visits if you're interested in stopping by. My energy is low, so an ideal visit would be about 10-20 minutes. My treatment takes most of the morning, so visits are best from about 1:30 pm to 4:30 pm.  

 

If you are able to help with any of the above, or if you would like to come by for a visit, please text my son Frank at 617-271-4781, and he'll coordinate the details.

 

I appreciate all of your prayers and positive thoughts!

 

Love,

Susan

Patients and caregivers love hearing from you; add a comment to show your support.
Help Susan Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Susan's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top