Annika’s Story

Site created on February 26, 2023

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

As most of you know, Annika was born with a rare genetic condition called FoxG1 syndrome. It has affected all areas of her life… and ours.

She is non-verbal, non-mobile, fed by g-tube, and has epilepsy… to name just a few of the items she battles.

Her spirit is stronger than anyone else I know.

Her smile is the best thing in the world!

Newest Update

Journal entry by Christy Feist

We are home!!

The vomiting seems to be under control as does her pain.

We have some new regimens and meds on board and hoping they help to continue to give her relief.

We are all thankful to be under the same roof and sleeping in our own beds!!

There is no adequate way to say Thank You for all the prayers and support everyone has shown our family. We are always grateful!!

Let’s hope the rest of FoxG1 and epilepsy awareness month is a bit quieter for our peanut!!
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