Journal entry by Sarah Dimon —
Hello All,
You’ve been there through our highs and lows. This week we have had both. Anna has had some improvements since turning on her RNS device in July. Anna feels she is able to focus better at school and we have seen a big improvement in her schoolwork—which is just wonderful! However, while we have seen a mild decrease in her random break through seizures, her daily seizures have not changed. She has been on the lowest setting of her RNS, so a big improvement was not yet expected.
Last Friday was our 2nd appointment at the RNS clinic. They turned up her device another small amount. I am assuming it will take a while for her brain to adjust to it. Since then she has struggled with seizures and things have not been super. I am hopeful this will pass but will contact the MD today. If you are the praying type or the sending good vibes type, I’ll take it all. Please keep Anna in your thoughts this week. Thank you friends.
Love,
Sarah
You’ve been there through our highs and lows. This week we have had both. Anna has had some improvements since turning on her RNS device in July. Anna feels she is able to focus better at school and we have seen a big improvement in her schoolwork—which is just wonderful! However, while we have seen a mild decrease in her random break through seizures, her daily seizures have not changed. She has been on the lowest setting of her RNS, so a big improvement was not yet expected.
Last Friday was our 2nd appointment at the RNS clinic. They turned up her device another small amount. I am assuming it will take a while for her brain to adjust to it. Since then she has struggled with seizures and things have not been super. I am hopeful this will pass but will contact the MD today. If you are the praying type or the sending good vibes type, I’ll take it all. Please keep Anna in your thoughts this week. Thank you friends.
Love,
Sarah
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