Hello everyone! 

Sunday update, no real big changes with Annabelle. This is both great and frustrating. Great that she has remained stable and happy, frustrating because we are just sitting in limbo waiting. 

Annabelle continues to struggle with weight gain, mostly because of her dialysis. She has been as high as 8.3kg but always falls back to 8.1. The last few days her fluid balance has been VERY negative and her team wonders if that means she's having more urine/stool output then she was before. They plan to change her dialysis fluid again and see if that will allow her to be a little more positive in her fluid status and help with her weight gain.

Last week we did a kidney ultrasound to check if there has been any noticeable changes to her kidneys. The results showed both kidneys are still in normal range for her age group with is great! This means the kidneys are not atrophying and the likelihood of their function returning is greater. We continue to pray that she is able to start peeing more on her own so we don't have to transfer to Chicago.

It has also been decided to stop weaning her oxygen support and leave her at the NAVA level and settings that are comfortable for her. The hope is this will allow her body to grow and focus on healing instead of asking it to support her lungs more. 

Thank you for all the prayers and support. Hopfully we can get her kidneys online and look forward to accepting a heart. Until then please keep praying and keep your eye out for this special little girls birthday celebrations coming up at the end of this month!

Love,
Sidney & Luke