Happy 10 Month Birthday to the strongest Heart Warrior I know! This girl is kicking ass and taking names! This is the second month she has been extubated on her birthday and shes showing so much improvement on the daily.

She has continued to wean her respiratory support and is making leaps and bounds with OT and PT. We started "messy play" and letting her taste puree! While she isn't able to actually eat anything by mouth yet it's so fun to watch her explore and learn. Speech says she is really developing well and that her oral aversion from being intubated for roughly 5 month is remarkably low. She still loves her high chair and we are planning on getting her her own that has some fancy features so she can be on the floor and still have support while she practices sitting up by herself. She is also working on rolling and holding her self up on all fours! It's amazing to see her progress so well after so long of just laying in bed. I have a hard time believing she is the same baby from 2 months ago sometimes.

Our main goal is to keep growing and hopefully start peeing or seeing some signs that her kidneys are getting healthy. Other then that it's simply a waiting game. The plan is still currently to transfer to Chicago once she reaching 10kg. She is still hovering around the 8kg range so we have a bit to go but hoping with some tweaks to her feeds and meds we will start seeing some growth soon.

Thank you to everyone who has supported us through 8 months of hospitalization and kept us in your prayers. We feel blessed to have such a strong support group behind us.

Love,
Sidney & Luke