He is officially one year out of treatment! Yeah! His last MRI a couple of weeks ago was clear so that is wonderful news. He recently had a test done to monitor how well his kidneys are filtrating. He has had this test done before his stem cell transplant rounds and at the end of chemo. Unfortunately this test didn’t bring back the news we were hoping for. His kidney functioning is down and they are calling it chronic kidney disease. We don’t have much information at this point and probably have more questions than answers but we will be seeing a nephrologist in the upcoming months to find out more information. 

Andrew is still walking around furniture and just this past few weeks he has had the confidence to let go and try to take a couple of steps. This is huge for him because he hates to walk so we are very excited. He is still very unbalanced but he is making improvements still. 

He is still not drinking anything and we have made zero progress in the last year. We have a referral to see a GI doctor as well to see if they can offer any help. 

Andrew recently had ear tubes placed in his ears because he kept getting ear infections. We were hoping his ears were the cause of him still not sleeping great since the end of chemo but it hasn’t changed much. We will be doing a sleep study in September just to make sure we aren’t missing something. Due to is history of vocal cord paralysis he is at risk for some sleep issues. 

Andrew will be turning 3 in October and will age out of early intervention which is the program through the state that provides PT, OT, speech, and hearing for him right now. We have a meeting soon with the school district and they will be doing an evaluation for developmental preschool. I am a bit nervous about sending him. It’s the best next step but he is delayed in so many areas that I am hoping he fits in. We would appreciate the prayers.