Allison’s Story

Site created on December 16, 2019


Hi, thanks for stopping by. :)


Let me just be real and honest for a moment. No one wants to have to create one of these sites. No one asks for this, expects this, or hopes for this. But here I am and this is a part of my story right now. And already, I can see that there's beauty to be found here. Just the fact that so many people want to stay updated and keep me in their thoughts and prayers means more to me than I can say. So thank you so much for being here.


To start off, here are some details about my journey so far:


Back in April when I was still in Sacramento, I noticed a tumor and had it checked out. By the end of the summer, I had an ultrasound exam and a needle biopsy. Neither were conclusive, but after the biopsy, my OBGYN determined that it might be cancerous and referred me to a surgery clinic to have it removed and further inspected. Before my surgery, the surgeon was completely sure that it was benign and nothing to worry about, so I went in for a relatively quick and easy surgery and then moved to Seattle two days later. (Thanks to my parents and best friend for doing all of the heavy lifting and driving!) Ten days later though, I received a call from the surgeon with the pathology results and it turned out that it was something rare: a type of germ cell tumor called an extra-ovarian yolk sac tumor. (Yep, I had never heard of it either...) I was referred to the University of Washington Medical Center and over the past few weeks, I have had a couple consultation appointments as well as a PET and CT scan. Last Thursday, I met with my doctor and was very encouraged by the news that my scans looked normal. She initially recommended another surgery to remove any possible remaining cancer cells in the area, but the next day having talked with her colleagues, she recommended chemotherapy instead due to how aggressive my kind of case can be. As of right now, it looks like I will be receiving nine weeks of chemo (2-3 days in the hospital the first week, one day a week for two weeks, and then repeat that cycle two more times). My next steps are to find out more about the logistics and details and likely start within the next couple of weeks. I am going to talk with a nurse about the side effects, how it might affect my work schedule, etc. and also get a second opinion hopefully before I start treatment.



This has been hard. The ups and downs...being far from my family...the uncertainty and unknowns...the intense fears and grieving...grieving the loss of a "normal" life - one that I far too often took for granted. And yet...I have seen so much good. I've seen it in people...I've seen it in the amazing fact that in the less than two months I've lived here in Seattle, three close friends or family members have been up here at *just* the right time - on trips that they had planned even before I moved and certainly before I found out about all of this. I've seen the good in the wonderful medical care I've received. I've seen astounding beauty all around me - from bald eagles to waterfalls to sunlight breaking through gray clouds when it seemed like no light could make it through.



There's a verse I've been "hardcore" meditating on lately: Psalm 23:5 where it says "You prepare a table before me in the presence of my enemies..." Can you picture it? God setting out a feast for us (yes, here in the middle of our wildernesses, here in the middle of our deserts, our trials, our hardships!), saying to us: "Here is My Love - feast upon it! Here is My goodness - savor it! Take and eat; be blessed beyond belief! And know that when you cry, I am crying too. When you shout and scream...I understand. Look at My hands...and you will see: I know what it means to suffer. So let these same hands that were pierced for your sins, for YOU, be the hands that sustain and strengthen you...be the hands that carry you."


This is the God we serve. This is the God we worship. This is the God we know and love...better yet, who knows and loves us....perfectly.



So no, I'm not looking forward to chemo. No, I don't know what's ahead...and yes, it's right dang hard to trust and believe and hope that there's Light that's greater than the darkness. But it's true. And it's hard to trust and believe and know that I'm not defined by this - that cancer doesn't define me, chemo doesn't define me...but it's true: my identity is found alone in the perfect Love of Christ.



So to Him who is able to do far more abundantly than all that we ask or think...to Him be glory both now and forevermore. Amen.


*P.S. Thank you for reading all of this. And also thank you for your prayers, words of encouragement, etc. Even if I don't always get the chance to respond, please know that I deeply appreciate it. For those of you in Sacramento who might be wondering - I have a wonderful community up here in Seattle and my housemates have been very supportive and helpful (I'm so grateful that I ended up living in a missional community!). Also, my mom is planning to fly up here to be with me for some of the chemo treatment.


Newest Update

Journal entry by Allison Burkhard

So I have some major things to catch you all up on...here goes.

I mentioned in my last update that I had two drains placed to manage the ascites fluid from home. Unfortunately, the procedure was difficult as I got a little panicky and should have asked for more sedation. However, it was successful and after several days, the pain started to subside. We also had trouble getting doctor's orders for after care and more supply kits (to do the drainages), but with the help of my amazing home health nurse, primary oncologist, drain supplier company, etc., we have gradually worked those things out.

It is a huge blessing not to have to plan ahead for drainage appointments or especially visit the ER for weekend and holiday drainages...but every time I drain fluid (which has been daily), I also lose hydration and nutrition. Keeping things in balance has proved to be quite a trial. Then this week, the drainage flow began to decrease significantly and when I got checked out with ultrasound yesterday, it was found that tumors, not fluid, are now taking up most/all of the space in my abdomen.

Amidst all of this, I have seen glorious answers to prayer and this past week in particular, I've been absolutely blown away by the many ways God has given me peace and confirmation regarding medical decisions. We heard about two possible treatment options (one standard medicine, the other a holistic option) and I prayed for clear, prompt answers on whether or not I should pursue either. Through three very caring and thoughtful doctors, I received a clear "no" about those treatments and it felt like God Himself closed those doors through the best, gentlest medical professionals I could ask for. Several of them have given me hugs and cried with me, including the nurse practitioner and nurse who checked on my fluid yesterday. I am so incredibly blessed by the people God has brought into my life along this journey.

All of that being said, I made the decision on Wednesday to switch from home health to hospice (same agency). Over the past few months, I have been mulling over that decision and I've had several meaningful conversations with doctors, nurses, and friends about the philosophy behind hospice (which I highly recommend looking into if you're at all interested). For me, it's not about focusing on death and dying, but on comfort, quality of life, and spending time with those I love, however long or short that may be. As soon as I made that decision, I felt an overwhelming sense of peace and my nights (which have been restless lately) have been filled with a greater awareness of His abiding presence.

It's not to say that things aren't difficult. "Basic" things like eating, drinking, getting around the house, having the strength to get up, etc. are becoming increasingly harder. I would greatly appreciate prayers that I will lean into God's grace moment by moment and that He will keep my eyes fixed on Him. Furthermore, this is of course so hard for the ones I love, especially my family - so please keep us all in your prayers.

Only God knows how long I have left, but there are indicators that I may be on the home stretch for Heaven. ...and when I think of seeing the face of Jesus...oh the joy and hope! It goes beyond words. What a day it will be when I am finally Home with Him for all of eternity.

Love you all so much.

**Important note: I don't have much energy for phone calls, visits, texts, etc., but as my mom and I were talking today, I realized that notes or letters in the mail would be a wonderful gift if you want to send something. Our address is 1051 Aspen Brook Lane, Gardnerville, NV 89460. 

Finally, want to end with these verses that are giving me great comfort:

You hem me in, behind and before, and lay Your hand upon me. Such knowledge is too wonderful for me; it is high; I cannot attain it. -Psalm 139:5-6

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