It’s been quite some time since we last posted. Alex said I could share an update with the latest after my visit last week.
I haven’t seen Alex since mid-September and I was absolutely floored with his progress. After my last visit I wound up as a hospital patient myself with some big pregnancy complications for about a month. Alex just loved that the tables were turned and he called all the time to ask about his favorite hospital patient! Baby girl Zoey Ann (named after my Mom, Harriet Ann and my Grandma, Zola) was born at 3.5 pounds and spent her first few weeks in a little incubator in the NICU. We’re finally all healthy, happy, home, and ventured out for our first adventure to visit Alex last week.
Right away when we arrived I had Alex hold baby Zoey. I think we were both in awe of her sitting on his lap. Being so little (only seven pounds now) she loves to be warm and so does Alex. Perfect match. He helped soothe her and feed her during the early mornings.
Alex can get up and walk around independently. He uses a cane or walker for longer distances but is pretty independent. Two months ago it took two people to help him out of a chair - amazing progress!!
Alex is settling in nicely to Lakeside and working hard to be more independent with daily activities. He’s still only able to use his left hand but it’s pretty impressive that he taught himself to be left handed. AC and I are supporting him in being as independent as he can. She recently taught him an iPhone trick to take pictures with one hand!
Earlier this week he had the first of probably several skin/scar release surgeries. Without enough movement the new skin gets very tight and then restricts further movement. This happened on his right arm so he had part one of a big shoulder release. Hopefully it helps and he stays active after part two is finished. He’s tired of AC & I nagging to do arm exercises so maybe the rest of you can pick up the slack! He’ll continue to be in and out of the hospital for the next couple years with more releases and touch up work as he continues to heal. Another reminder this is a marathon, not a sprint.
Alex mentioned people from coast to coast have called him and commented on how much they appreciate the caring bridge site. He doesn’t get on here to read the comments himself (yet) but continues to appreciate mail for those who like to send cards!
