Dr Allen says I appear stable.  Strength is stable, endurance to exercise has improved, only drawback is I tweaked my back this week and can’t exercise.  

Anyway, Allen gave me a choice for moving forward. 

 1.) Reduce dose, keep schedule of every three weeks.

2.) Increase interval, same dose.  Which he tells me is actually already pretty low apparently.

3.) Wait for it………….. suspend infusions, a trial to see if my body has stopped fighting with itself.

Well I chose 3.  No time like to present to see what’s what!

So for the first time in close to 2 years I won’t have infusions.  

Now the scary part.  I get to go see the neurologist more frequently, starting at 5 weeks instead of 3 months.  I must be very aware of how I am feeling on a daily  basis.  The risk is of me starting to relapse, which is a frightening thought. 

 

The first time I went from walking to immobilized in less than a week.  So I am excited and anxious at the same time.  But I can’t pass up the opportunity to be free of the infusions if it is possible.

Dr Allen tells me although I could relapse as quickly it is highly unlikely, but it’s a small chance, so I will move forward with excitement and caution.  The first infusion I will not be having is the 29th.  I know the week following that Friday will have me feeling many things, so please keep me in your thoughts and prays. I think that week will be the toughest for me and second guessing every tingle and pain.