Nov 11, 2019 Latest post:
Jun 16, 2020
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
As most of you know, Lillian was born with an Atrioventricular (AV) Canal defect in her heart. We thought that the repair done in May of 2007 would be her our only heart surgery. However a few years letter our pediatrician heard a murmur and we were back at the cardiologist to see what was happening with this little trooper's ticker. Lillian's mitral valve is not functioning like it should, causing some leaking between the chambers of her heart. The leak has caused her heart to enlarge, and if left untreated would result in overworking this heart muscle until we run the risk of it stopping it's crucial services. Lillian's heart has to pump more blood than most because oxygenated and un-oxygenated blood are mixing in the upper chamber of her heart. We've been going to cardiology appointments every six months for the last 8 years monitoring her mitral valve and overall heart health.
In April, 2019 we learned that it was time for surgery. Lillian will be having surgery at Seattle Children's Hospital on Tuesday, November 26th. They will attempt to repair the valve. If unsuccessful they will replace the valve with a synthetic valve. We're fortunate to have the same surgeon who performed her first surgery back for round two. We'll use this site to post updates throughout this procedure.