Aug 22, 2020 Latest post:
Oct 31, 2020
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of encouragement! Our little Boone was diagnosed with Epidermolysis Bullosa at birth, which is a rare, genetic skin condition that causes extremely fragile skin and blisters. There are 3 types and different subtypes and we still do not know which type Boone has. He’s currently at Cincinnati Children’s in the NICU.