First we want to thank everyone who has bought a t shirt, made a donation, texted us to check on Boone, literally everything! I feel so incredibly thankful for the people who surround us and love us. T shirts will be available until November 13th and we are donating a portion to Debra of America! Just wanted to give you a quick update on Boone’s health. His blisters have been pretty contained to his hands and feet still although he has started to get some very small ones on his face and he’s got some on his sides and back. We did have a set back with his left foot. We went to do a dressing change one day and we were immediately scared of what we saw and kinda freaked out a little bit. I’ve included some pictures. The whole top of his foot was a huge blister and his ankles were covered in big blood blisters. We still don’t know how he got them but we also realize that this is a reality we will have to face with him. We popped as much as we could and redressed it. He smiled at me the whole time I was dressing his foot. He is such a strong boy! His pain tolerance is pretty high, so about a month ago when he was super fussy and seemed like he was in pain we took him to the doctor and found out he had a double ear infection 😕 he is just now starting to feel better. His first antibiotic did not work so we got a second one and I think he is feeling better. His doctor feels that he will have to get tubes and we aren’t sure how that will affect him. We love the doctor and the office he goes to. He has his own jar of aquaphor with his name on it and they always ask us before they do any kind of examination. We will hopefully be seeing dr lucky here in the next month or two.