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Tuesday, March 2, 2004 12:06 AM CST

Hi to all

I know I haven't updated for a while. I wanted to let everyone know that we are "Keepin on Keepin on for the Lord" and taking one day at a time.

You know sometimes we think we suffer down here but none have ever suffered like Jesus Christ. I have not seen the movie BUT I read the book! I thank God he sent his SON for me and that Jesus GAVE his life and conquered death, hell and the grave so that we may inherit everlasting life.

If I did not have that HOPE at this time in my life I would be miserable.

I am thankful I have a shephard and that he leads me, because sometimes as a sheep I dont pay attention as I should and the shephard can see what lies ahead. So he protects and guides me and not only me but his flock.

Sometimes the path HOME down here is rough for the flock and Jesus can see what lies ahead so he picks up the little lamb so that he can spare it from danger and he can protect it and he carries it TILL IT IS SAFELY HOME!

Then that mother sheep takes notice when her little lamb is being carried and knows that she must stay close to the GOOD Shephard so that she can make it home too. I thank God for that Shephard.

I've got more to go to Heaven for, I sure dont feel at home in this world anymore they say open confession is good for the soul, well I think I just got to comfortable down here and got caught up in being ruled by the clock.

I always thought I would be the first to go being the parent and all, but God knows best. He says he will never leave us and I thank him for that. God don't make mistakes and that is such a comfort to know.

I ask for continued prayers for me and my family. I am still in this old natural body and still feel pain, but by God's grace one day when he calls I can have that spiritual body and go to that land of perfect peace and rest. No more sickness, death or separation.

What A Day That Will Be as the song says.

Death is not an ending it is a eternal beginning.


Love to all

sonya


Saturday, February 7, 2004 8:10 PM CST

Hi to all.

I know it has been a bit since I updated. Lets just say that this is tough stuff to have to endure BUT by the grace and mercy of GOD we shall.

I know people were wondering how we are doing, well right now it is minute by minute a bunch of emotions and thoughts going through the mind. I do wish to thank all for your continued prayers and support through this trying time.

I know some of you knew McKenzie personally and some only through my journal entries and pictures but she was so strong through this whole journey, when she was faced with a knew obstacle whether her balance, sight, or hearing she readjusted and went on. She is one of the strongest people I know. She never complained only ever now and then she would say mom my head hurts. When someone would ask her how you feelin she would say, "fine," and me knowing otherwise. She is a truely amazing person.

To me McKenzie did not lose her battle with cancer she had victory. God allowed for Victory over more than cancer but this life. She went on to a life without all of the sickness, pain, and stife that we must endure here. God granted her so much grace and spared her from suffering anymore and I thank God for that.

When McKenzie was dx I prayed that GOD's will be done not my will and God healed McKenzie completely. I miss her so bad that it hurts inside and yes I cry but the tears I shed are for myself because I know she is ok but I still have to go through the day without her and all I want to do is hold her,I must say it is so hard but to bring her back I would not.

I can go be with her and that is my goal to make it to heaven where there are no more sickness, heartaches, pain, or cares of this old world. What I am having to deal with is the "time" down here till I can just get home.

I do ask for continued prayers for our family


Love to all

GOD Bless all

sonya








Friday, January 30, 2004 11:26 PM CST

McKenzie "Kenzie" Sha Brewer, 11 of Prichard, WV made her transformation into one of God's perfect little angels on January 29, 2004 at her home. A celebration of McKenzie's new eternal life will be held at the Prichard Freewill Baptist Church on Saturday, January 31st starting for family at 12:00pm and friends after 2:00. Funeral services will be conducted on Sunday, February 1st, at 2:00pm with Brother Darrell Brewer, Brother Charles Brewer and Brother John Cavins officiating. Burial will follow in McKenzie's Place of Peace, Queens Creek.

McKenzie was born on September 23, 1992 and is the youngest daughter of Steven and Sonya Brewer of Prichard, WV. McKenzie attended fifth grade at Fort Gay Elementary and was a faithful member of the Little Hurricane Freewill Baptist Church. She made her peace calling and election sure on March 28, 1998 at an altar of prayer located in the Prichard Freewill Baptist Church.

McKenzie was preceded in death by grandparents: Noah Damron, Dollie Thompson, Bill and Sis Brewer, Jim and Florence Patton, Bill and Marjorie Staley, and Lowell Beckley.

Surviors include: her very, very, very special "Sissy" Kayla Brooke Brewer who resides at home, a loving companion Dale, who was her little maltese puppy, "boyfriend" Eric Hatten, Grandparents: Mae Damron, Betty Beckley, Betty Perry, Papaw Darrell, Granny Etta Mae, Papaw Mike, Granny Pam. Uncles and Aunts: Junior, Lisa, Jeff, Jen, Angel, Jeremy and "his future wife" Miss Molly, Duane, Mo Mo, Dana, Eddie, Troy, Sherry, Traci, Randy, Lula Belle, Eugene, Ava, Carl, Sally, Roger, Charles, Fontella, Hershel, Gladys, Wes, Toots, Milt, Linda, Pal, James, Glora Jean, Bob, Eva, Kenny, Wilma, Amy, Fred. Cousins: Cait, Trey, Will, Kierra, Derrik, Tori, Justy, Joey, Mason, Kim, Mark, Baby Avery, Brad, Mary Ann, Jon Jon, Melissa, Lori, Evan, Jared, Dawn, Tyler, Brody, Mikey, Sean, Tressa, Annie, Taylor, Danny, Christy and many more.

McKenzie was a very special little girl who was received into the hearts of many, whom the family wishes to thank.

McKenzie will forever be Mommy's Beautiful Green Eyed Baby and her Daddy's Girl. She is deeply loved and will be greatly missed until our reunion in Heaven.


Thursday, January 29, 2004 9:22 PM CST

Hi to all

I just wanted to let all of our caringbridge friends and family know that McKenzie made her transfiguration into an angel today at 5:05pm.

I love her deeply, but I did not want her to suffer anymore.

She was my beautiful green eyed baby girl and I will miss her beyond what words can express. I will journal tomorrow with the arrangements.

THANKS TO ALL FOR YOUR PRAYERS AND SUPPORT


Love to all Sonya

God Bless ALL


Wednesday, January 21, 2004 8:32 PM CST

Good evening to all

I have a question, How do you get a cow out of a ditch?

That was the question pressing us this morning, We get a knock on the door about 9 am , it was the electric man, and he said you have a cow in the ditch. OK CHRIS dont fall out of your chair laughin.

Let me set the scene: Steven and his Uncle have a few cows and in front of our house is where they keep some of these cows, anyway there is a steep road that leads to the top of the hill and for draining purposes a ditch that goes down beside it.

OK Next Question : How in the world did the cow manage to get itself into this ditch? I HAVE NO IDEA!

But now we have to get her out.

Well Steven went up and checked out the sit u a tion, then he went and got his Uncle. They tried but to no avail was she coming out of this ditch.

SO, they went to the barn and got the tractor with the fork lift and some straps. I could not stand it so I had to go up and check it out. We tried for bit to get the straps right but with the close quarters she had gotten into, it was a feat. Steven's brother in the meantime showed up and helped JOE get the straps set and Steven ran the lift and I was there rootin on that there heffer.

The cow is now resting in the barn, safe and snug. Never a dull moment on the farm.LOL

Ok now for how McKenzie is, Each day it seems something new is happening, and over the past couple days she is having some trouble chewing, she says it feels like her mouth wont open, but It is opening, I think it maybe some lose of feeling in her mouth making it feel that she isnt opening it.

Over the past week though the look in her eyes has changed, not just the way they move, I mean deep in her eyes and her facial expressions have changed also. To say this is hard is an understatement, but we must KEEP ON KEEPIN ON!
BY the GRACE OF GOD WE ARE GOING TO MAKE IT THROUGH THIS!

This next topic is one that if you are a child reading this please ask a parent to join you or ask a parents permission to continue. I started not to write about it but A FRIEND said it may help someone else to read this and maybe it will help me get someones perspective who has been down this road also.

McKenzie is the type of child who in her own time, when SHE is ready will start to ask questions. She was told from a dr from her date of dx that she had 6-12months (she has out done that by the way) THANK YOU LORD!

Anyway, on Jan 3 while I was bathing her she started asking me some questions about a friend who is also having some problems simular to her. McKenzie had started noticing some hearing loss in her left ear at this time, anyway she continued and said, "Mom I am getting worse everyday." She went on about some of the limitations she was having, and I needed to tell her some things to make sure she knew especially with the hearing loss happening.

I told her, " McKenzie you know how the dr's said that if this tumor kept growing that you will die," and she said yes with the tears starting (she has only cried a few times since this dx and she dont let anyone cry around her) so this was needful for her. I told her due to the location of her tumor that this was causing her symptoms and that we are going to keep on PRAYIN!

I then continued talkin and explained how wonderful Heaven is going to be and that it is a good place. I had to make Heaven ok and that it is like the trip we must prepare for kinda like Hawaii but way better and I explained that she had already made her preparations on March 28, 1998. I had to make sure that within myself she did not blame GOD for this tumor and she assured me she didnt.

I explained that it is just this old world we live in that caused this. She was still unsettled and I knew something else was pressing on her mind. I asked her if there was something else she needed to talk about and she said she was worried that when she gets to I wont get to be her mommy. I told her I would always be her mommy (and I will) and that when she gets to Heaven she will have a perfect love for everyone with a glorified body.

She also was concerned about the being away from me. I then explained that the way I believe, is that time isnt going to be like over here I think It will be like going to sleep and waking up in the most beautiful, peaceful place. Then she asked me if her dogs were going to be there. I told her I really dont know about the dogs but if and when I get there, there is dogs she can say "TOld ya so MOM!" I told her I didnt know what Heaven is exactly going to be like but I know its real, and it is a place of peace and love and that I will be there because I am ready.

I also told her what wasnt going to be there and that is sickness and death.

It is hard to write this exactly how we talked, but this talk is something that is so personal between you and your child that it is hard to put into words exactly how touching and in its own way relieving.

She stopped crying and and we hugged and about an hour later we were setting around and she told me she wanted buried close to home and that she wanted a certain picture on her headstone without tears. I said whatever you want.

I want to make sure that if she does leave and go on before me that I have done within myself what she would want. I couldnt live with regrets and what if I's. So we have cleared some of these obstacles out of the way and who knows It aint over yet God is still in control and this talk my be just a memory we set and talk about one day 15 years down the road.

Either way She will get her healing.

Well I am going to go for now

LOVE TO ALL

GOD BLESS

sonya




Tuesday, January 20, 2004 12:35 AM CST

Good Day all

Well it is still a chilly here, but warmer today than yesterday. Me and McKenzie are sittin here still tryin to figure out who the Salem Serial Killer is, any ideas out there.

Well Mckenzie is down to 1 mg of decadron, please keep prayin the the headaches stay away. You know decadron is good for the Increased ICP, but the effects of decadron on other things is hard to take. I would like for someone to invent a drug that can help the increased ICP, but not cause the cushingoid effects.

Since starting the decrease McKenzie has lost some of the tightness in her abdominal area helping her not to smother(not sure of the spelling) as bad. I thank the Lord for that.

I know she could be so much worse and I Thank God she isnt.

We have a few friends undergoing check ups this week and we ask for prayers for clean scans, and stable scans for them.

Karina
Christal
Cheyenne

I ask for special prayers for a little boy named aaron also.

Thank you for your continued prayers and support

LOVE TO ALL

GOD BLESS

sonya


Thursday, January 15, 2004 11:06 AM CST

Good Day to all:

Well it is a bit cold here today but no snow yet, which makes Kayla B a happy girl seeing as she has a snowball dance scheduled for saturday. AH AH AH 13 and in the boy phase. LOL

Well the decrease in the decadron continues, still so far so good. However, McKenzie has caught a slight cold. So we have started deep breathing exercises, tussin syrup and antibiotics.

She has been having some labored breathing for a couple weeks,prior to this so we now need to make sure she is expanding her lungs well, that is why the deep breathing. (We dont want anything having time to try and settle in them there lungs.)
She is having some trouble with trying to cough after doing the deep breathing it seems that her cough reflex is weak, but she is doing her best to get it outta of there.

McKenzie and I are now millionares by the way. LOL She loves to play who wants to be a millionare, so I got her the games to play on her laptop, we have won 3 million dollars!! We plan to share lol!!!! Eventhough her right side dont cooperate, her noodle is still on top of it.

Well I will go for now,

Love to all

GOD BLESS

sonya


Thursday, January 8, 2004 6:19 PM CST

Hi everyone.

Well it has been colder than a frog's belly here on the creek tonight and we have a dab of snow on the ground. Me, Steven and McKenzie went to store to get some goodies just in case it snows to where we hibernate for a few days. We got shrimp and tp so we are ready. LOL.

McKenzie got her Who Wants To Be A Millionare games today so that she can play them on her laptop. These games she can play one handed so it helps her stay busy. She loves gameshows, so we watch quite a bit of the gameshow network.

Me, McKenzie and her Granny Etta Mae and Papaw Darrell went shoppin yesterday and had a nice day out and about. I think we all needed that, her and her papaw had quite a few laughs. Hint of advice when ordering the new combo deals at Applebees the dessert is half the regular size. Mckenzie stuck with her usual order and didn't go for the combo like the rest of us did. Lets just say when the desserts arrived Darrell asked where is the rest of mine. McKenzie cracked up it was pretty funny.

Now on a sadder note Our family had to give up a wonderful lady last Saturday morning, Steven's grandmother Lillian "SIS" Brewer "Granny Brewer" to us. She is now in heaven with her husband Bill "Papaw Bill" and I know that she is happy now. She was a loving mother to 7 kids and not only to her family but to neighbors and friends. She is greatly loved and we will miss her immensely.

On a Happier note: We can be together again someday in HEAVEN and there we have to part NEVER AGAIN. What a day that will be.

Well I am going to go for now but I do request special prayer for a friend of ours , she also went through treatment with McKenzie and has the same dx. Her name is Rawan and if you can drop by her sight and send some words of encouragement to her and her family. They are wonderful people. www.caringbridge.org/al/rawan

Love to all

GOD BLESS

SONYA

PS The decrease continues to do well, Thank You for the prayers :)))))






Thursday, January 1, 2004 1:26 PM CST

Hi all!

First of all I would like to apologize to Ms. Weaver for the hang up. My husband answered the phone and thought it was a prank. I am so sorry and do sincerely appreciate the thought and your continued prayers.

Well things are well here on the creek today, the decrease continues doing well.

I hope that all had a wonderful New Years Eve, and wish all a productive, peaceful, new year filled with love.

Take care and GOD Bless all

sonya


Wednesday, December 31, 2003 6:14 PM CST

Happy New Year to all!

Well still so far so good on the decadron decrease.

Me and the girls went to see Cheaper By The Dozen this afternoon. It was a pretty good movie. Then we stopped and got some pizza and are in for the evening.

Last New Year's Eve went like this: It was the day after we had buried my papaw and we had gotten an appointment for McKenzie with her eye doctor (seeing as her left eye that had decided to go inward on DEC 18 was not showing signs of improving.)

Anyway, upon the examination the dr. left us in the room and was gone for what seemed an eternity when I think it was actually about 30 minutes. Upon coming back in he looks at me and asks me to come over so that he could show me that her eye wasnt workin,(not a surprise done knew that), then he said well has McKenzie had a head injury in the last few days? I said not that I am aware of. (But I had been letting her dad fill in taking her to Basketball practice seeing as my papaw was not doing well) anyway, he said well I have made her an appointment for Jan 2 with a pediatric neurosurgeon for Jan 2, because the exam has shown that she has a paralyzed left lateral rectus muscle, I said ok, so how do we fix it? His reply was we have to determine the cause first.

So I went to the car and got my husband and had him to come in so that he could get the directions and things. When we got home I started calling her coaches praying for them to say that she had takin a lick to the head. (I know that sounds bad, but I was really hoping they could tell me she got hit in the head) the coaches said no not that they knew of. Yes my stomach fell. I hit the puter to see what else could cause this,hoping to rule our the Brain tumor theory) put it this way (head injury or Pontine glioma) I turned the puter off! Went to his moms and lost it!

Then we went for the appt on Jan 2 the cat scan was clear and an MRI was scheduled for Jan 10. We all know what the MRI showed.

That New Year for us sure has been a journey. I am praying for a Miracle in The New Year 2004. I know it can happen!!!

What I have learned from last year? Patience the hard way, FAITH ( I thought I had Faith before but nothing like I have now) How to Lean on GOD (ever heard that song Learning to LEAN)

So I guess this has been long enough.

Love to all

LOVE< PEACE> JOY to all in the NEW YEAR!

GOD Bless everyone!

sonya


Monday, December 29, 2003 6:30 PM CST

THE SERENITY PRAYER


God, grant me the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Amen.

By Reinhold Neibuhr

Evening all:


We had a wonderful CHRISTmas and McKenzie is doing ok. She has started to experience some hearing loss in her left ear but still no headaches or nausea (THANK YOU LORD).

McKenzie wanted to start to go back down on her Decadron dosage so we have started the decrease. She really dont like the effects from the decadron (puffiness) and where she has put on weight it makes her short of breath. Please pray that she can come down off this decadron without the headaches and nausea returning.

I would like to thank everyone for their continued prayers and support.

I know this is short but I just wanted let everyone know how things are.

Thanks again,

Love to all,

sonya


Monday, December 15, 2003 10:32 AM CST

THE SERENITY PRAYER


God, grant me the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Amen.

By Reinhold Neibuhr

Good Day to all:

We welcomed into the family a new member on Dec. 10, weighing in at a whoppin 3 pounds, he is a 3 month old, white,Maltese puppy whose name is DALE. McKenzie has always wanted an inside dog, I always said never. Who says CROW doesnt taste good. LOL And McKenzie is getting a kick outta MOM GIVIN IN. The spark in her eyes makes it worth every pee puddle. So parents again NEVER SAY NEVER LOL!

AND WE ALL KNOW WHATEVER MCKENZIE WANTS MCKENZIE GETS!!! LOL

I wanted to let everyone know that Mckenzie is doing better with her Headaches, Nausea, and Vomiting. The increase in her Decadron dosage has seemed to help those issues but as we parents of children on this drug know there is now the issue of puffiness for her as an 11 year old girl to deal with. But as always she is a trooper.

Her mobility issues on her right side have yet to improve from the increase in dosage but we will take the NO HEADACHE< NO VOMITING and BE VERY THANKFUL!!!

WE are also THANKFUL for the prayers and support, we LOVE you all even though some we have never met, we know you care and that is greatly appreciated.

Our oldest daughter Kayla Brooke will be celebrating her 13th Birthday Decemeber 20th. YEP A Teen- ager UGGG! LOL! She is a wonderful young lady with a BIG HEART.

Mckenzie went and got Kayla's b- day gift, we came home and I wrapped it up. Well when Kayla came home she wanted to open them soooo bad , sooo we were havin soup beans for dinner (KAYLA HATES BEANSSS)) and mckenzie knows this,so in order for miss kayla to get to open the gifts she had to eat a soup bean (talkin about a fear factor challenge) HA HA
Kayla ate the bean and McKenzie gotta big kick outta that, and she didnt rub it in or nothin. (NOT)

Well I gotta go for now

Love to all

GOD BLESS

SONYA



Tuesday, December 9, 2003 7:47 PM CST

THE SERENITY PRAYER


God, grant me the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Amen.

By Reinhold Neibuhr

Evening all

I just wanted everyone to know that we are ok and I would like to thank everyone for there kind, uplifting thoughts, and prayers.

The meeting with Hospice today went amazingly well. I know that people view Hospice differently but for us it is nice to not have to drag Mckenzie out to the Dr. and we have someone who can make housecalls anytime of night if the need should arise. It is not a sign that we are giving up HOPE or FAITH but as I explained to Mckenzie that this is the step we take when the Dr's have said that they have done all they can do (radiation , chemo) and these nurses can come to the house and she dont have to go set in a waiting room to be seen and they can get her some medicine that will whip up on those old headaches.

Mckenzie has had some pretty bad headaches since saturday but she is doing well now. We got the decadron up to 4 mg a day. She is handling things just like a trooper (as always).

If you havent heard the song by Martina McBride (In My Daughters Eyes) find it and listen. This is the song I heard coming home from Memphis and it is a beautiful, and true song.

Well I have to go for now, but thanks again for thoughts and prayers.

GOD BLESS ALL

LOVE TO ALL

sonya

PS GOD will give us GRACE, STRENGTH, MERCY, and FAITH for this task set before us.

P.s.s Thank you Trish, Kim, and Chris for your calls. I Love ya'll and you are always in our hearts.


Saturday, December 6, 2003 7:22 PM CST

THE SERENITY PRAYER


God, grant me the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Amen.

By Reinhold Neibuhr

This will be short but I wanted to let everyone know that we are home from memphis.

The mri results confirmed what I knew before we went and that is that the tumor has grew considerably. I will write more later but right now I just cant put into words what is going through my head.

I do ask for continued prayers for Mckenzie but also for a little boy named Darrell. Their family is going through the same situation.

Thank you for your prayers and support.

GOD BLESS

sonya


Wednesday, December 3, 2003 11:18 AM CST

THE SERENITY PRAYER


God, grant me the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Amen.

By Reinhold Neibuhr

Hi to all

We are getting ready to leave for Memphis as I type. Please remember MRI Friday and for a safe trip for us in your prayers.

Thank You all

Love to all

Sonya

PS will fill all in on MRI when we know something. :)


Saturday, November 22, 2003 2:20 PM CST

THE SERENITY PRAYER


God, grant me the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Amen.

By Reinhold Neibuhr


Good Day All!

Well Mckenzie has been doing better this week. She went back to school Monday, after being out for 2 weeks. She was a bit tired Friday morning and didnt make it to school, but by afternoon she was doing better so we all went for dinner and a movie. McKenzie seen Brother Bear she loved it.

Well last weekend McKenzie had a 5th grade field trip to Cosi. Cosi is located in Columbus, OH, so we stayed over with family in OH for the weekend. She had a great time at Cosi and at Tressa's.

We are so very thankful for the wonderful, caring, supportive family and friends that God has blessed us with and we love each and every one of you!

We are scheduled for appointments in Memphis on Dec. 4th and a MRI on the 5th, so we would appreciate your prayers.

Just in case I dont get to update before Thanksgiving, I wish all a very Happy Thanksgiving!!!!

What I am thankful for:

ABOVE ALL: GOD's presence and love in my life
My 2 beautiful girls
A wonderful husband
Family and Friends

GOD BLESS EACH AND EVERYONE OF YOU!!!!

This is a song that we sing in church and it is what I am feeling so here it is:

I've a roof up above me
I've a good place to sleep
There's food on my table
And shoes on my feet
You gave me your love Lord
And a fine family
Thank you Lord for your blessings on me.

As the world looks upon me
As I struggle along
They say I have nothing
But they are so wrong
In my heart I'm rejoicing
How I wish they could see
Thank you Lord for your blessings on me.

Now I know I'm not wealthy
And these clothes are not new
I dont have much money
But Lord I have you
And to me that's all that matters
Though the world my not see
Thank you Lord for your blessings on me.

LOVE TO ALL

SONYA

I have copied and pasted a very nice prayer that was written by the quilt of love angel. Thought it would be nice to add to the page seeing as it has put into words what I feel.



I Pray

I pray to my Lord nightly
and here is what I say
"Please bless all the children
give them strength for another day

Father please dry all their tears
make their pain and sorrow flee
They are so young and so innocent
please hear this prayer I plea

Dear Lord through their trials
their tribulations and their fears
Please be right there beside them
hold their hands and dry their tears

Enfold them in your loving arms
and let them know they are loved
By their family here on Earth and
by You Father, in Heaven above

Please let them know I love them too
and I pray for them each night
And if I could I would take them all
and hold them long and tight

Father, ease their pain and suffering
let their road ahead be bright and clear
Please bless our Quilts Of Love children
in Angel's hearts, we hold them dear"
Copyright © October 2003, Island Princess....All Rights Reserved

Written with love and affection for the Quilts Of Love children and their families





We Are Thankful















Although things are not perfect
Because of trial or pain
Continue in thanksgiving
Do not begin to blame
Even when the times are hard
Fierce winds are bound to blow
God is forever able
Hold on to what you know
Imagine life without His love
Joy would cease to be
Keep thanking Him for all the things
Love imparts to thee
Move out of "Camp Complaining"
No weapon that is known
On earth can yield the power
Praise can do alone
Quit looking at the future
Redeem the time at hand
Start every day with worship
To "thank" is a command
Until we see Him coming
Victorious in the sky
We'll run the race with gratitude
Xalting God most high
Yes, there'll be good times and yes some will be bad, but
Zion waits in glory...where none are ever sad!




Happy Thanksgiving Everyone
















Sunday, November 9, 2003 7:32 AM CST

THE SERENITY PRAYER


God, grant me the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Amen.

By Reinhold Neibuhr



Good Morning to all!

Well McKenzie just got home from the hospital yesterday. She had to go in and receive some IV antibiotics.

On Wed. she woke up with a sore throat, then on Thursday her throat was even more sore and she had a fever to accompany it, so into the hospital she went.

She is doin much better. Her White Blood Count is now 1.1 and her platelets and Hemoglobin are comin on up too.

Just wanted to fill all in.

Thank you for your continued prayers.

Sonya


Wednesday, November 5, 2003 6:30 PM CST

THE SERENITY PRAYER


God, grant me the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Amen.

By Reinhold Neibuhr

Evening ALL

Well I will fill everyone in on yesterday. As you all know we had labwork on Monday, so yesterday at 9am I get a call from St. Jude. They said Mckenzie needs to be set up for a platelet transfusion that her platelets are a low (9,000) this is critically low and that her ANC (absolute neutrophil count) (this is the part of the White blood cells that fight infection is 0 so we needed to start monitoring fevers and things. This first round of chemo (Temador) has laid a whammy on my baby girl. We went and got her platelets and have to return on Friday to check the blood work again so we shall see how it goes.

Thank you to all for your continued prayers and support.

I'll fill all in on Friday.


Love to all and God bless

sonya




Monday, November 3, 2003 5:39 PM CST

THE SERENITY PRAYER


God, grant me the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Amen.

By Reinhold Neibuhr

Good evening all! Well the St.Jude Children's Research Hospital Miracle Mile Fitness Walk went great!!! We had a beautiful day for it and the support and contributions was amazing. I should have a final tally Saturday evening but right now we are at 4500.00. Thank You Lord for such caring people!!! Makes we know that through all the bad that is out there, there are people who still care about others.

Thank you to all who contributed to this event!!!!!!!!!!

Mckenzie stayed home today and slept, she has been a bit tired, pale, nauseated and a few headaches. We had her weekly blood work done today so we will be awaiting the go ahead for round 2 of chemo.

She has still been going to PT 2 x a week and given it her all, though today she bypassed the 6 minute exercise bike. But she done the rest. She is as tough as a PINE KNOT!!!

Well I will fill all in later about the Grand total on the Miracle Mile Walk.

Thanks again for continued prayers and for caring hearts!

Love to all!!!

Sonya

Thanks again to all who helped in the success of the walk!

ps I started to list personal thank yous, but I am afraid I'll forget someone and I would not want to do that, because I could not have done it without each of you.

THANKS









Sunday, October 26, 2003 5:38 PM CST

THE SERENITY PRAYER


God, grant me the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Amen.

By Reinhold Neibuhr

Hi to all! Well we have welcomed a new member to the family. Steven's sister Jennifer and her husband Jeff had their first baby on Wednesday, October 22 at 12:00 noon. Will weighed in at 7lb. and he is 19 inches long. We are all so thankful for his arrival and are plannin on spoilin him rotten. LOL!! He is beautiful!

We are also having a St. Jude Childrens Research Hospital Miracle Mile Fitness Walk on Saturday Nov 1 from 9am- 3pm at the Lawrence County High School Track across from Three Rivers Medical Center. All proceeds from the walk will go to St. Judes Hospital. If any of you locals are interested in walkin just get people to sponsor you per lap or they can just give a flat donation then write their names down on a sheet of paper and when you get to the walk Saturday we can fill the names in on the sheets that I have. WTCR is suppose to come out for the walk, pray the weather is nice, please. If anyone has any questions give me a call at 304 648-8267.

Mckenzie has been going to PT (physical therapy) 2x weekly she can now bend 3 of her toes on her right foot. THANK YOU LORD! She is still havin some strength and dexterity probs with her fingers but she is workin on it. She is due for blood work tomorrow so we shall see how the counts are. She is feelin a bit tired this evening and has a headache so she is layin here restin up! We thank all for your continued prayers !!!!!

Next MRI scheduled for DEC 5th.

GOD BLESS ALL!!!!!!

sonya


Monday, October 13, 2003 7:27 PM CDT

THE SERENITY PRAYER


God, grant me the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Amen.

By Reinhold Neibuhr


Hi to all. Well we went back to Memphis last week and we got home Saturday morning about 7 am. Mckenzie had her MRI and it showed that the tumor is approx 20arger. What is swelling or what is actual growth cant be determined. They say that time will tell. Anyway this came as no surprise because over the last 2 1/2 weeks she has been showing some right sided weakness and balance issues are more noticable. We have started PT )physical therapy 2 x a week and chemo (temador) She finishes her 1 st round tomorrow night. We love all and thank all for everything. I have to go for now but will update soon. This pic on the homepage was taken last saturday 10/3/03. Isnt she beautiful!!! WOW what a set of green eyes!!!!!!

God Bless All!!!!

sonya


Wednesday, October 1, 2003 7:37 PM CDT



THE SERENITY PRAYER


God, grant me the Serenity
To accept the things I cannot change...
Courage to change the things I can,
And Wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as the pathway to peace.
Taking, as He did, this sinful world as it is,
Not as I would have it.
Trusting that He will make all things right
if I surrender to His will.
That I may be reasonably happy in this life,
And supremely happy with Him forever in the next.
Amen.

By Reinhold Neibuhr




Thursday, September 25, 2003 5:26 PM CDT

Hi to all. I wanted to fill everyone in on McKenzie's birthday. We celebrated her birthday on Saturday the 20th with a bowling/pizza party. I think there was between 90-100 there. She had a blast. We thank everyone who was able to attend and for those who said special prayers for her. It was a bitter sweet day. I was soo happy that she was able to go and enjoy herself but later that evening that joy and turned to heartache for another family. Thank you God for everyday that we are blessed to be here together! This is my motto.

McKenzie has being going to school even though the past couple of days she has had some vomiting early in the morning she just keeps goin like that energizer bunny. LOL!

We have been doing fundraisers at school for her 5th grade class. They are planning a couple trips this year. We sold about 200 bags of popcorn Tuesday, and about 117 nachos and cheese today and tomorrow I will be at Kayla's middle school helpin with a hotdog/nachos and cheese sale for their girls basketball team. Do I hear a YIPPIE SKIPPY! lol No I really love doin this kinda stuff! Oh yeah we are getting ready to make Apple butter for the church so that happens on Oct 18th and those locals out there may want to get an order in to me seein as we sell out pretty quick each year. :)

Well I just wanted to check in with all!

We love ya and thank ya'll for everything!!


sonya (aka mckenzie mom)


Monday, September 22, 2003 11:03 AM CDT

Hello to all: This journal entry is going to be a copy and paste from Miss Marissa's site. I would appreciate it if when you read this you will say a special prayer for her family. This little girl holds a very special place in my heart forever and always. We love you Marissa.


Marissa Faith Burghart


Journal

Monday, September 22, 2003 8:43 AM CDT

Services and Memorial information:

Visitation at the funeral home will be Monday from 12-5 PM at Broadway Colonial Funeral Home 120 E. Broadway, Newton, KS 67114 316-283-4343

Rosary will be at 7 pm Monday night at St Mary's Catholic Church, 106 E. 8th Street (8th and Main) Newton, KS 67114 (Where Marissa will lie in State)

Mass will be at 10 AM Tuesday at St Mary's Catholic Church, Burial to follow at St Mary's Cemetary, Newton, KS, please do not wear black, if you have something purple, Marissa would love it!

Lunch following at the church, if you will be attending the lunch,please let us know so we can give the church an approximate count. You can just e-mail us ASAP. Please feel free to attend the lunch,
especially those of you coming from out of town.

Memorials will be set up tomorrow at the following, in lieu of flowers:

1. Half the Sky Foundation- Marissa Burghart Dianbai Orphanage Fund

2. Newton Community and Healthcare Foundation-"Marissa Burghart Art Scholarship Fund"

3. St.Jude Children's Research Hospital-"Memorial and Honor Program-Brain Tumor Research" in Marissa's name

4. His Kids Ministries, Inc. -Marissa Burghart -Orphan Relief & China Adoption Grant.

Thank you all for your outpouring of Prayers, love, support & comfort. Kim, Steve, Justin, Alex, Grace & Jade and our Forever Angel Marissa Faith Miao 9-19-95-9-20-03

Marissa: You have touched more lives than we will ever know and our hearts are forever broken, but we are so blessed to be your forever family,you are forever in our hearts and we are so much better people for having been blessed to call you our own. You have given us so much incredible joy, you always loved everyone 110nd more and you gave everything your all! You taught so many how to love unconditionally, you inspired so many to adopt a child. You are the bravest, most courageous child We have ever known. Never could we have imagined how many lives one tiny little girl could touch. Your smile lite up the room always wherever you went and the heavens shine brighter with you there. We love you sweet Angel girl and our arms will forever ache to hold you again......you are free at last of the pain.... hurt no more our beautiful,special little girl.....fly free like the birds, run fast as the wind, let your spirit soar free at last...... Enjoy the horses, the butterflies and the purple flowers and we pray that they had Chinese buffet waiting for you at the pearly gates, with lots of mushrooms too! Jesus has a very special little girl with him in Heaven, until we meet again, you will be in our hearts forever......You will always be the light of our lives. Shine on for eternity!


www.caringbridge.org/ks/marissa


Tuesday, September 9, 2003 3:36 PM CDT

Good day to all. First I apologize for not updating as much as I used to, it has been rather busy here. A thank you goes out to all who have been sending McKenzie B-Day cards, she lights up when she goes to the mail box. A thank you goes out to all who have added mckenzie to their sites and prayers. Right now I can really use your prayers for strength, and for the power of "NOT FEARING AND ONLY TRUSTING In the LORD. I have been letting FEAR enter in and I can not allow this to happen. Mckenzie is in her 3rd week of Protocel and is doing very well with it. Still some nausea but no vomiting for about 6 days. She is currently on zophran, protocel and PRAYER. We just got our St Jude schedule and we head back to memphis for appointments on OCT 9, 10. The 10th is MRI day, 6 months post radiation. Please keep mckenzie in your prayers because she had some hard topics to deal with after her last MRI and she is at an age where she understands the extent of all this and it is alot for me to deal with much less having to be the one that it is happening to and having to deal with this. We have had some talks after the last MRI news and stopping of chemo and I will just say that it is talks of her fears that no child should have to face and I just pray that a cure comes for Cancer so that NO ONE will have to face this beast.

On a brighter note we have planned a Bowling B-Day party for 9/20/03 and she is rarin and ready to bowl. She has been at school everyday since it started and has only came home early 1 day. She is such a trooper. We also welcomed a new memember to our family this weekend. My cousin had her baby and he is just the most beautiful little boy. He was 7 weeks early but he is doin good. Avery weighed in at 5' 3oz and 18 in. long. Mckenzie and Kayla just love him soooo muchhh. Now my sister- in - laws baby is due Nov 4th so they are goin to have to wait a little while for him, they just love them babies.

There are some kids who can use a really special prayer:

Marissa
Julia

Please remember all kids with cancer in your prayers also.

Well I am gonna go for now!

Much love and prayer for all out there!

God Bless All!!

sonya


Wednesday, August 20, 2003 1:53 PM CDT

Hey all. Well we are home from our trip to memphis, we got home about 11:30 pm monday night. Thanks to all for the prayers.

Ok now about the trip, Mckenzie hasnt been eating to well for the past 2 weeks and she has had some vomiting for the past few days, (which could be the ear infections), she has lost 7 1/2 lbs in 27 days (which could be that we are off the decadron for 2 weeks and 2 days,lack of appetite and vomiting).

Ok the Mri, the Dr. said that her tumor was a littleee larger in the back, but is still considered to be STABLE, as that post radiation inflammation can occur at the stage of post radiation 4 months. They feel that it is inflammation from radiation.

Ok next matter, the chemo she has been on : 4 kids have had bleeds from the tumor (which is very devasting to the child and family) They have closed this protocol to investigate this because though mckenzie's type tumor is known to be very vascular and already has a potential to bleed this could increase the potential for a bleed. There are 2 kids with Brianstem gliomas and 2 supratentorial tumors that have had bleeds. So when the kids with the supratentoral tumors had bleeds they linked this back to the ZD 1839 (Iressa). They gave us the option of staying on the protocol for now, but do not know what the results from the investagtion will show and they MAY even completely shut it down. Anyway they are investgating the bleed factor.

Ok now about the option of staying on the chemo : ok doc give me the benefits vs risks. Seeing as it has only been used in kids since July 2002 the benefits remains to be seen and bleeds are devasting and her tumor is already at risk and Iressa is available on a compassionate basis but if I had a patient wanting it for that use I would not suggest Iressa at this point. Well to make a long story short, Mckenzie is no longer on Iressa.

So next matter: Changing to another chemo called Temadar (which is known to make the blood counts drop.) Mckenzie has had 3 ingrown toenails that we have been trying to get cleared up(salt water soaks 3 x day and 2 rounds of antibiotics plus her prophylatic antibiotic). Well today she had an appointment with the poditrist, he looks at them and says "only one way to solve this infection," yep you have probly guessed it, cutting out the 3 ingrown toenails. The numbing procedure was tough on her (10 shots in 3 toes) but then after it was numb she sat up and watched him cut away the nails, she is such a trooper.

So bet some are thinking well she got a laptop for doing radiation without sedation so wonder what she got for this: (A portable dvd player.) Yes again whatever mckenzie wants mckenzie is going to get. Especially after today.

Well we are unsure at this point when we head back to memphis. She has to be off the other chemo for a period of time and we have to have the nails cleared up before starting the Temadar.

NOTE: Temadar has not been shown to stop this blasted tumor but we have started another alternative therapy called protocel so please say some prayers for us all it has been a very emotional couple days, for mckenzie especially. We will update soon, thanks to all for your prayers.

Love to all

sonya (aka mckenzie's mom)

God Bless all!!!


Saturday, August 16, 2003 6:32 AM CDT

OK Mckenzie's Prayer Pals it is once again time for the trip to memphis. We are leaving here at 12:25. Mckenzie has her MRI Monday at 1:30 memphis time. We ask that you please remember her in your prayers. I will let ya'll know something when I know. Mckenzie has been feeling better the last couple days (ears are clearing up.) This is gonna be short but we appreciate each one who takes the time to check in here and most of all we appreciate your prayers!

Love 2 all and GOD Bless each one!

Say a special prayer for:
Marissa
Julia
Darrell
Zoie

Prayer changes things!!!!

Here are only few names of some other kids who can use prayer, so givem an x tra boost this week, some of them will be startin back to school soon if they haven't already.

Emma Grace
Crystal
Karina
Rebecca
Derek
Rawan
Emily
Bobby
Jake
Hannah
Seth
Baby Hannah
Ashley 1
Sara
Ashley2
Nakosha
Brice
Maddie
Cheynne
Jacob

Please remember all the sick kids of the world and there families.

Love again 2 all

sonya (aka mckenzie's mom)


Tuesday, August 12, 2003 10:21 AM CDT

Hey everyone Kenzie had a good time camping, except she had to go to the doctor while she was there. She has ear infections in both ears so they put her on some medicine to help it.she is doing alittle better. The thing she wanted to do most while we were camping is that she wanted to go to the pool and jump off the diving board. She had a lot of fun and we also went to a cave while we were there, we had fun. Well i got to go. Much love to everbody!!!!!!!!!!!!!!!!!!
love,
Kayla


Saturday, August 2, 2003 12:13 AM CDT

Hi to all. I know it has been a while since I updated but it has been rather busy around here. McKenzie is doin great and is almost off her decadron, she should be completely off by next friday. We are due back down at memphis for an mri on august 18th. School starts here on august 26th and she is excited about going back. We have a camping trip next weekend planned with our church group and she cant wait, she loves to camp. This summer has flown by, but considering all things this has been a great summer and I thank God for that. Well I just wanted to let everyone know that she is doing great and I have added some pics from hawaii. Love to all and God bless

sonya

please keep her in your prayers


Wednesday, July 16, 2003 4:15 PM CDT

Aloha!!!! Well we made it back home yesterday evenin. As most know we flew out at 6 am on the 7th of July, headed for Hawaii. We landed in Honolulu at about 5pm, their time, and then caught an Aloha flight over to Kona. We were greeted by a very nice greeter who helped us get over to the Aloha check in via the Wiki Wiki shuttle. We stayed in the Kona by the Sea condo's, which had a beautiful view of the ocean from our balcony. The following day we went for a glass bottom boat cruise and in the evening we finished up with a sunset horse ride. The glass bottom boat ride made a few very nauseated, but they handled it very gracefully. The horseride was very wet and cold. We didnt relize the temperature changes that can take place on the island of Kona, they have various climates all over the island. The ride we took was on an 11,000 acre farm with over 6,000 cattle, we did get a surperb view of a double rainbow while on the ride, so if it did not rain then we wouldn't have viewed the beautiful rainbows, so it turned out wonderful in the end. A hint to those who are goin to visit Kona, take a jacket, long pants, and a spare change of clothes in the car. On the 9th we went to the volcanoes national park for our tour, it was great, but again take long pants,a jacket and a spare change of clothes. But it was a greatttt tour with alot of great views and info on volcanoes and the rainforest. On the 10th we boarded at the Kona airport, a little hint (be there at the Kona airport 2 hours prior to your flight)headed for Maui. Maui has alot of things to do there. We stayed in the Maui Hills condo's, beautiful place, and headed over to the beach to watch the sunset. Kayla and McKenzie started the 11th off with surf lessons, Kenzie decided with her balance issues that she didnt want to take on that BUT Kayla and her papaw Darrell sure did, Kayla was a natural, Darrell on the other hand gets a great big A for the effort. We have some great pics of Kayla (the surf shop takes shots) 20$ each for the 8x 10 but the are great pics. Then we headed over to the Marriott for the lu ow ( not a great speller here) talking about a shin dig. That marriott was a A plusssss place. Great entertainment. Then bright and early on the 12th me, steven, kayla and mckenzie took off on our 5 hour snorkle cruise of molokini island, this is a must doooo, kayla and kenzie took right off in that deep, deep, crystal blue water. Steven got a little more sun than he bargained for, but he is good now. Then the 14th we checked out and headed to the airport on our adventure back home, a great time was had by all and we made it safely back home. A great big thank you GOD for the safe trip. When we arrived at the airport yesterday we were greeted by a host of family, friends, and tv cameras, and a GREAT BIG YELLOW HUMMER that took us over to her Make a wish Party and Ponderosa. Make a wish sure did out do themselves with this wish and we wish to thank them from the bottom of our hearts. I would like all to consider making a donation to make a wish when possible because they really make things happen for these kids. Well I have to run for now, but Mckenzie done great on the trip and she looks great and is feeling pretty good so thanks to all for your prayers we love all and thank all for keepin us in your prayers.

Aloha to all!!

God Bless All!!!

sonya


Sunday, June 29, 2003 8:46 PM CDT

Good evenin to all. I just seen where the update That was posted friday night did not post. mcKenzie's Mri showed that her tumor was presently stable: which means there was no further shrinkage BUT there was also NO FURTHER GROWTH which is what we are aiming for. SO a big THANK YOU LORD!!!! I just wanted to fill all in, McKenzie is doing so good!!!!! Her personality has returned and she looks great. another THANK YOU LORD!!!! I do have a very special request for those out there I need some very special X_TRA prayers for a dear little girl named Marissa, she is not feeling well and her and her family need prayers for comfort, strength, and healing for her little body. I have to go for now. We leave for Hawaii on July 7th. Thanks to all for your prayers.

much LOVE

G
O
D

B
L
E
S
S
!

sonya


Thursday, June 26, 2003 7:22 AM CDT

Good Morning all! Wanted to drop a few lines in before we go to the hospital this morning. Today is MRI andPet scan day! The dr told us yesterday not to be surprised if they would happen to say that the tumor appears larger or the same as last MRI, she doesnt think that is the case because mckenzie looks so good, but with radiation effects it is possible. The tumor in other words could just be inflammed not growing. We wont be leaving here till about 4-5 pm if we are lucky, so we wont be home till late. So just didnt want anyone to worry , if I havent updated until tomorrow i WILL update tomorrow . Have a wonderful day all.

Much Love

And

G
o
d

B
l
e
s
s

sonya


Sunday, June 22, 2003 9:48 PM CDT

Good evenin to all! Well we are back here in Memphis for Mckenzie's check up. MRI and PET scan set for Thursday. We are thankful for the beautiful day that the Lord provided for this trip and most of all for his protection while traveling the highway. I will let all know how things turn out when we find out the results. I am asking that all McKenzie's prayer pals: PLease say some x-tra prayers for her.

She has had such a great past 2 weeks and has been so talkative and quirky and was able to go to VBS all 5 nights. Thank you LORD! Everyone has commented on how much she has been like her old self and we are very thankful for that. Her Hawaii trip is 2 weeks from tomorrow and she is soo excited. Well thats about it for now, but we will fill ya'll in when we know something.

Love to all

sonya


Thursday, June 12, 2003 3:20 PM CDT

Hi all! McKenzie is doing well this week, she was able to take the trip with the acedemic achievers from her school. We drove her up and back to the zoo in the van, she really had a great time. We are still preparing for bible school that is due to start this Monday. The kids really enjoy this, we will be heading back to memphis june 22nd for a week of tests and checkups: 23 Bloodwork, 24 PET scan, 26th MRI. While we are there we are going to visit the zoo so that the girls can see the panda's. Then JULY 7th we are headed to Hawaii "Aloha" for Mckenzie's make a wish trip. Well we will keep all posted as we can. We love ya'll!!

Take care and God bless

sonya


Tuesday, June 3, 2003 7:08 PM CDT

Good Evenin to all! Mckenzie had a good day today. Her school class was treated to a day at gatti land (pizza and games) by a some very special people (Mr. Charles Salmons and Mrs. Joann Hurley) whom we thank from the bottom of our hearts. The support of her school and community has been so marvelous and is soooo appreciated. McKenzie has been in bed since 6:00 pm but she looked and acted more like her prior self today. The class had a blast. She is looking so forward to the acedemic achievers trip that is scheduled friday and saturday, I just hope this isnt tooo much of trip for her, but as we all know whatever she wants and We can give it to her, she is gonna get. Well I know I havent updated much lately, but please keep prayin for her and all the St. Judes families. We love all and thank all for your prayers and support!

God Bless
sonya


Wednesday, May 28, 2003 3:40 PM CDT

Good day all! Well we are home from our trip to St. Jude, as most know Mckenzie was not herself over the weekend but she is doing much better today! We are still on 1/2 mg of decadron 2x daily so we are gonna hold that decrease for another week before we go down anymore. We have the next mri and pet scan june 26th. The dr thinks Mckenzies fever is viral and that the the sleepiness is due to inflammation from radiation. Right now we are gonna just watch her and stick to the 1mg of decadron daily and her chemo. Well just wanted to fill all in. We love all!

God bless

sonya


Saturday, May 24, 2003 5:56 PM CDT

Hi to all! Just poppin in to fill all in on Miss McKenzie. Friday about 2:30 am she started with a fever of 102.3 so I gave her some tylenol and called St Jude. We took her to the hospital and had some tests ran: chest Xray, blood sample from her medi-port, urine, strep, cbc with diff, so far all has came back negative. They decided to start giving 1x day dose of rocephine into her port fri, sat, and sun until they confirm no growth from the blood sample obtained from the port. We are to fly out back to St Jude on Monday so that will be good. She is still runnin a low grade fever in the evenings, but tylenol and motrin are keepin it down. Just wanted to fill all in keep all the sick in body in your prayers. We love all!!

God bless

sonya


Monday, May 19, 2003 8:11 PM CDT

Good evenin to all! Mckenzie stayed home from school today. She slept most of the day, I think she wasnt feeling to well, but when I ask her she says I am just fine mom. She is such a brave little girl. She has been having some leg pains at night so I am gonna have to ask about that when we get to st jude on the 27th. I hope it is just growing pains. Well I just wanted to check in with all. It has been a bit busy around here lately. We love Ya'll !

Take care and God bless ALL!

sonya


Tuesday, May 13, 2003 9:17 PM CDT

Good evenin all! McKenzie is doing good and we are still workin on decreasing her decadron she is now on 1 1/2 mg not to much farther and she will be off it. We have been busy with the spring clean up around here I almost have it whipped lol. Just wanted to let everyone know Kenzie is still tough as nails and she is doin great. We love and thank all for your prayers. I am headed to beddie bye for now.

We love all

God Bless all!!!

sonya


Thursday, May 8, 2003 8:42 PM CDT

Good evenin all! McKenzie is doing great!! Guess what came in the mail today? Bet ya can not ever guess this! Ok Ok suspense is killin me lol. Mckenzie received a letter frommmmmmmmmmmm PRESIDENT BUSH!!!! I could not believe it!!! I just started to cry when I read the letter. Denise (our mail lady and dear friend) delivered it to the door. I could not wait till McKenzie got home to read this one!! She is planning on taking the letter and pictures to school tomorrow. Well just had to tell all this news!! Love to all!!!

sonya


Wednesday, May 7, 2003 6:48 PM CDT

Good evenin to all!! Thought I would catch everyone up on Kenzie. She is still going to school part days, she is doing well. If all goes well this week we will get to decrease the decadron again Monday. The Lizzie Mcguire movie was greattt!! We had a very nice evenin. We got a phone call from make a wish and It looks like McKenzie is not gonna get to meet Lizzie but, She gets the 2nd wish, which is a trip to HAWII. She is wild about it. We are suppose to get to leave around July 7th Lord willin. I am sorry I have not updated for a few days but I have been busy cleanin, paintin and wallpaperin. Just wanted to fill all in and let ya ll know that Mckenzie is doin GREAT!! Thank ya God!!!!

Love to all!!

sonya

sonya


Friday, May 2, 2003 11:24 AM CDT

Hi to ALL! McKenzie has gone to school today and she is doing well. She is looking forward to the Acedmic Achievers Trip planned June 6-7th to the Columbus ZOO, and her Safety Patrol trip scheduled for may 20th. The dr has started to taper her off the decadron so we will have to see how that will proceed. We are due to travel back to Memphis on May 26th and 27th this trip will be to have an exam and pick up her chemo. She is scheduled for her next MRI and PET scan in late June around 23 or 24th. This evening we are going to the premier of the Lizzie McGuire movie courtsey of Make a Wish she is sooooo excite and we are very thankful to make a wish. She loved getting to see miss emma grace, christal and chris, brendal. We had a phone call yesterday evenin from miss rebecca's mom (beth) and rebecca is doin greatttt. We also had a call from our WV neighbors Ashley Wauls mom (Tina) she has 7 more treatments of radiation and she is doing goood, was great to hear from them. Well I gotta gooo

Love to all

sonya


Wednesday, April 30, 2003 6:32 PM CDT

Hello all,
We are home now, the flight was great. The MRI results showed that the tumor has shrunk 15-20 percent. She will remain on her chemo and return to St. Jude on Memorial Day, for a check-up.Also,they are starting to wean her off her steroid.She had a good day but is a little tired.
Love to all,
THE BREWERS



Sunday, April 27, 2003 3:27 PM CDT

Howdy ALL! Well we MADE IT SAFELY back down here to st judes. Mckenzie loved flying. I thought it was a piece of cake compared to some of the roller coasters I have ridden. She is a little tired right now. We had breakfast with Chris and Christal it sure was good to see them. We stopped by the Ronald house and visited a few people. Brendle looked so good, We sure were glad to see her lookin so good. We also got to see Michael and Linda , Michael looks good too. We are hopin to see Barney, Trish (little miss emmag grace's parents) tomorrow while Mckenzie is havin her MRI. Well just checkin in with all. We will let ya know somethin when we know somethin about kenzie's mri. Love to all


sonya


Saturday, April 26, 2003 11:18 AM CDT

Good Day ALL! Well today is the day we fly for the first time! I yua yua!!! We fly out at 400 from huntington. McKenzie is doing well she is very excited about flying. All I can say is it will be an experience to add to my list.LOL Well I know I havent checked in for a few days, but I have been trying to get things together. We went and got Kayla's prom dress for next saturday, she looks so pretty in it. Where does the time gooo. She is already 12 and it just seems like she was 2 not so long ago. McKenzie will be having the post radiation MRI on MOnday. We are very excited to get to see Chris, Christal. Emma grace will be in isolation she is having her bone marrow infused on Monday but hopefully we will get to see Barney and Trish. We love U guys and have missed ya greatly. We are also hoping to get to see miss emily she will be there for her follow up. Well gotta JET !! Literally LOL Love to all!!!

God Bless

sonya


Monday, April 21, 2003 6:16 PM CDT

Good Day ALL! Well we had a wonderful Easter. I finally got my christmas tree down. YIPPIE SKIPPY!!! McKenzie is doing fine. Spring break is this week so she can rest up from last week. It has been so wonderful to be home and I have listened to them there frogs chirpin every evenin and enjoyin every minute of it. It will be nice to get to see our friends this weekend when we fly back to Memphis. We miss them dearly and are prayin for them. Miss Emma Grace is preparin for her bone marrow transplant which is suppose to be infused on the 28th I think, so please everyone say a prayer for that little girl. Cant wait to see little christal and spencer too. We miss ya guys!! Well just wanted to let everyone know that McKenzie is fine and we thank each and all for your prayers keep em goin up please. Love to all!!!!

God Bless

sonya


Saturday, April 19, 2003 10:02 AM CDT

Hi to all! It is another beautiful day here that the Lord has made. Mckenzie is doing well I took her and Kayla B to the basketball games last night. We watched some of McKenzie's little friends play. McKenzie and Kayla had a couple of friends over for the night so you can imagine the gigglin at my house LOL 4 little girls!! Spring break has started for the kids here and Kayla is Lovin it, McKenzie would like to be goin to school LOL!! We are schedule to fly out next Saturday going back down to Memphis. McKenzie has her first post radiation MRI on the 28th and we will get the results on the 29th and fly back home. Then she is scheduled for trips every 28 days back to Memphis. I may have explained this before, but I see we have some new friends signin in and I want to keep them updated also we need all the prayers of GOD's people we can get. We Love you everyone. Happy Easter to all!!

GOD BLESS YOU ALL!

sonya


Thursday, April 17, 2003 2:38 PM CDT

Hey all! Sorry I didn't get the page updated last night was up opening mail. McKenzie received around 1500 cards and 30 packages yesterday, then today she received 1700 cards and 50-60 packages. I am so amazed that their are so many caring people out there. We are thankful for every single envelope and package, most of all we are so thankful for the prayers that are put with each card for miss mckenzie. She came home from school early today her little tummy was hurtin, but she is feelin better now. She is all excited, we got our litature for our bible school program last night at church. We have already started learning the songs, they have some great songs for this theme (Treasure of the Nile). We look forward each year to bible school, I get such a blessing from it, it is better felt than told. We are planning for the middle of June to be the date. Pray for our efforts to teach our youth, they are the church of tomorrow. Kayla is workin on a special song for sunrise service, the song is on the bible school cd we got last night, Passover Lamb, we got it just at the right time, isnt God wonderful he gives us each day exactly what we NEED just when we NEED it. Well just wanted to check in with all.

We love ya'll

God Bless Everyone


Tuesday, April 15, 2003 11:25 PM CDT

Evenin all! Well it has been a busy day here up the Queens Creek Holler. McKenzie completed another full day of school today and when she arrived off the bus this evenin was greeted with 700 cards and a stack of packages. She couldnt hardly believe it lol. She is sleeping right now, she was pretty tuckerd out this evenin, we'll see what the morning brings, her stomach was aching before she went to sleep, but she is resting good so hopefully it passed. She is eating well now and no vomiting for almost a week, which makes us very happy. I finally got the van unpacked and cleaned out from the trip, that was a major task. lol Well just updating all.

Love to everyone

sonya


Monday, April 14, 2003 10:22 PM CDT

Hi to all! Well Miss McKenzie went to school the whole day today she, she is tired this evenin but she done it. She started the day off by getting stung by a wasp on the bus this morning, but she is fine. I on the other hand, started my spring cleaning this morning so that I would not be up at school following her around. Hopefully I will get the christmas tree down tomorrow, LOL. Almost christmas in July. McKenzie received around 400 letters today, I haven't got to get through all of them yet, Steven is still openin, Mckenzie fell asleep in the floor beside of me reading them to her. She was sooo happy today, It was soo great to see that smile of true joy on her little face. McKenzie has been eating alot better this week so she should start to put her weight back on. We will be flying out on April the 26th and her MRI will be on April 28th so please remember us, We have never flew before, this should be an interesting entry on this page LOL stay tuned for that entry. LOL Well I am gonna turn in. Love to all!!

Sonya


Sunday, April 13, 2003 8:04 PM CDT

Good evenin all! Well we have had a busy couple days. Last night the church we attend had a gospel benefit sing for Mckenzie, it was great to be back in God's house again. I drew strength from the very spritual service. We had a great evening. Mckenzie is doing very well, she is so excited that she gets to go to school tomorrow. I took her and Kayla to the mall yesterday and got them some new clothes we had a great day together. This is gonna be short, but I just wanted everyone to know that McKenzie is doing great.

Love to all

Sonya


Friday, April 11, 2003 10:05 PM CDT

Good evenin to all! Well we made it home. We were greeted by a host of family and friends armed with pizza, cheese sticks, cakes, and pop. It was really nice. We had to say so long to some really close friends this morning whom we are going to miss greatly, but we plan on stayin in touch with each of them. A special thank you to Chris, Barney and Trish who came over to the hospital to say so long to us this morning. Chris made a special trip from the RMH to see Mckenzie off, I hope she knows how much that truly meant to us. Cristal her little girl was having a MRI at 2 pm today, I am praying that all went well. Barney and Trish's little girl was having tests also today so I am prayin that all went well for her also. We are very anxious to here the results of these tests CHRIS< BARNEY & TRISH LOL. Just wanted all to know we are home safe and are praying for each child daily. We LOVE ALL YA"LLS!

SONYA

PS Tell rebecca, christal, and rawan that McKenzie says hi and sends a big hug to them and a very special hug to CHRIS!

and Kayla says to tell Rawan thank you for the gift.


Thursday, April 10, 2003 10:42 PM CDT

Howdy all! Well tomorrow is the day we have been waitin for. McKenzie is doing soo much better the last 2 days, since they started her on the decadron (this reduces the intracranial pressure). She is so excited to get home. It is funny how we have counted down the days till we get to come home and now that is has arrived I am going to miss soo much the friends made here. If someone would have told me I would get so close to these families, I would not have believed them, but we all have 1 common factor among our differences ( ACCENTS(lol), states of residence, culture, religon, and who folds our laundry (LOL))that common factor being that our children are faced with CANCER and each family actually knows what that feels like. I am overwhelmed with the feeling of gladness to get to come home, then there is this sadness of leaving here. Saying bye to Beth and Rebecca, Chris and Christil, Barney, Trish and Emma Grace, Janet and Brendel, Linda and Michael, Elias,Ilhamn, and Rawan, John and Spencer has been overwhelming.

Here at the RMH when a family gets to go home the children put their hand prints on the wall. McKenzie and Rebecca done this together this evenin. A very touching site.

Also tonight at the RMH a group of pagent winners hosted a dinner in which a king and queen were drawed. Mckenzie and Dalton won this, she got a banner and crown. I was glad though that they gave all the little girls crowns because they are all little queens.

The girls (christil, mckenzie, rawan, and rebecca got together tonight for one last "radically changed" group gathering before turning in this evening. This to was a very touching scene.

Well this is enough emotion for one evening so I am turnin in.

Love to all: Old friends, New friends, and family.

Sonya


Wednesday, April 9, 2003 7:44 PM CDT

HI and GOOD evenin to ALL! Mckenzie has had a better day today. She visited the dentist this morning, no cavities, but her salivary glands are not working like they should ( a side effect to radiation, it may get better ,it may not) anyway, they gave her some special mouthwash, toothpaste, and a special flouride rinse for at night before bedtime. It has been very cool here in Memphis today, I think that mother nature forgot it is suppose to be Spring. LOL 2 more treatments to gooooooo! I am gonna miss the new friends made here, but it sure will be good the hear the frogs chirpin at night back at home. I will be keeping the page updated when we get to go home, so for those faithful night viewers I'll keep ya posted. Thanks for caring!!!

I bet when Chris reads about the frogs chirpin, I'll hear her laughin across the hall. JK LOL Love ya girls!!!

Well gonna go for now.

Love ya all!!

sonya


Tuesday, April 8, 2003 8:52 PM CDT

Hi all! It has been a long day here today. The Dr.s decided that it was best to begin the decadron today, seeing that Mckenzie's eyes, balance,N and V are worsening. They done a cat scan today just to make sure that the symptoms were not from a hemorrhage in the area of the tumor. That is one of the serious things that can happen from this type of tumor. Anyway, no bleed so that was good news. They decided that all the symptoms were due to inflammation of the tumor as a result of radiation which is putting more pressure on her cranial nerves. On the lighter side of things we had a community dinner in Kitchen B this evening it was great. A bunch of us RM House inmates threw the bash of the year here. LOL I have met some very Kind, Loving, STRONG, families here and I Thank God for that. I also thank each family for there support, talks, and shoulders at times to lean on. We truly love ya guys!!!!!!

THANK YOU!!!!!!

McKenzie has an early day tomorrow so I am turning in.

Love to ALL!!!!

3 more treatments to GOOOOOO!!!!!


PS Some of ya are lettin down on signin the book!!!!! :)


Monday, April 7, 2003 8:28 PM CDT

Hi all! Well, weigh in today. McKenzie is now at 81 pounds, she has lost 3 lbs in a week. We have to get that back up. She has now lost 14 pounds since January. 4 more treatments. She has also started losing patches of her hair today, she is handling it pretty good. We are veryyy anxious to get home, I have packed the van with everything but a few outfits. We are readyyyyy to roll!!!! Gotta go for now.

Love to ALL!

sonya

ALMOST FRIDAY KAYLA B!!!!!!!!!!!!!!!! WE LOVE YA BABY!!!!


Sunday, April 6, 2003 12:13 AM CDT

Hi to ALL!!!!! Sorry that I didn't get to update the page yesterday we have had a busy couple days. The Lakers game was great, McKenzie had a great time. Last night we went to the Smucker's Star on Ice . The show was great. After the show the St. Judes kids got to meet the skaters back stage and they signed autographs. The skaters were really nice. McKenzie had a great time and she got them to sign a T-Shirt. MCKENZIE is doing great!! Well I gotta go for now.

Love to all!!!!

Sonya


Friday, April 4, 2003 6:04 PM CST

Hi ALL! Well we are getting ready to go to the B Ball game in a few minutes. Mckenzie's day started off quite rough this morning but then by 2 pm she was doing alot better, she is pale and has some dark circles this evening but she is doing better. She insists on going to the B Ball game so we all know that what McKenzie wants she gets lol! 7 more daysssss to go Kayla B!!!!!!!!! McKenzie is having a treatment in the morning about 9:30 so that we will be able to leave next Friday. Gotta go!!! Take care all!!

Love to ALL!

sonya


Thursday, April 3, 2003 5:42 PM CST

Good Evenin to ALL! It has been a good day here! McKenzie is doing good today. Angel headed home to Wv and Steven got here today. McKenzie is down in the gameroom. She is lookin forward to the game tomorrow night. 8 more days!!!!!! McKenzie is looking so forward to getting home and going back to school. I tried to get her to get set up on a adjusted schedule but little miss stubborn said I am riding the bus to school and home from school! LOL I figure she will do well it is me that wont be able to do the whole day! lol Well i gotta go for now!

Love to ALL!!!

sonya


Wednesday, April 2, 2003 5:43 PM CST

9 more days to go!!!!! Hi all! Mckenzie's day started out rough. She was very nauseated and felt yucky, but she is doing alot better this evening. Hopefully we will get to take her to see the Lakers vs the Grizzlies B ball game here at the pyrimid Friday night. She is wanting to really go. Gotta Go for now. Love to ALL!

sonya


Tuesday, April 1, 2003 4:42 PM CST

Good Day to ALL! Mckenzie is doing good. We will be leaving here on Friday, April 11th. We got it set up today so that McKenzie can take a radiation treatment this Sat so that her last treatment will fall next Friday instead of that following Monday. So that make us verryyy happy. There are a couple of new pics in the photo album. Thanks to Aunt Traci, who not only took the pics but also done the bedroom wall for McKenzie. For those who are wondering what I am talking about, I called Traci and asked her to paint a sponge bob scene on the bedroom wall for a surprise over the weekend. Traci done a beautiful job and we thank her. If you would like to see the pics use the link to the photo album , the pics are added at the bottom of the page. The weather is beautiful here today the temp is around 70. Just wanted to check in with all and let everyone know that all is well with us here in Memphis.

Love to all!!!!

sonya


Monday, March 31, 2003 3:49 PM CST

Hi ALL! Well we made it back to the RMH safe and sound. Was great being at home. TWO more weeks to go. Mckenzie is doing good today, a little tired from the trip but she is in the game room so she is doin fine. She cant wait to get back home and go to school. She had fun at home this weekend it perked her up gettin to go home. She weighed 84 pounds and they took some blood today to check her levels so she can start the 2nd course of chemo. 1 course= 28 days. Well I am gonna go for now. Love to ALL!!!!!

sonya


Thursday, March 27, 2003 6:19 PM CST

Good Day All!!! We just got back to the RMH, we took the girls for putt putt and a game of bowling. McKenzie is still doing good a little tired right now from being out and about but she is great. We will be heading home about 9am tomorrow, cant wait to get there. McKenzie won at bowling, i have no idea where she gets that competitive edge. LOL!!! Just wanted to fill all in!!!! Love to all!!!!

Sonya

OK OK You all know by now what the ps is gonna say!

ps dont forget to sign the book :)



Wednesday, March 26, 2003 5:01 PM CST

Good evenin all! Things are goin well down here in Memphis. Talked with the dr. today and even though McKenzie's eyes are still not moving like before,that we are going to try and still hold off on the steroids (decadron) for now, as long as she is not showing weakness on one side or the other. She said if Mckenzie can handle her eyes doing this for now it should subside after radiation. It is the swelling from radiation not because the tumor is growing so once the system absorbs the dead cells from the radiation the symptoms should subside. She is doing great today and is lookin forward to comin home for the weekend. Her and Kayla B are workin on scrapbooks from the zoo pics that we have taken. We had a long talk with the dr. today and all I am goin to say is please keep prayin, she is doing good now and radiation can keep workin for 2-3 months after she finishes, but 4- 6 months down the road she is really gonna need prayer. We need GODS ALMIGHTY POWER TO INTERVENE whether thru medication she is currently on or thru other roads that we may have to be lead down in the future whatever his will be. Just please dont forget her when you see her doin good over the next few months, we still have a long battle ahead and we need GOD's strength to endure and conquer this. Lord I'm Depending On You is the song in my head at this moment and I know that he never fails. With God leading the way I know we SHALL win this battle. Love to ALL!!!

Sonya

ps Dont forget the book :)


Tuesday, March 25, 2003 3:35 PM CST

Hi ALL! Cloudy but warm here today, looks like it may rain. Mckenzie is doin good today. The dr told us that her left eye isnt movin out like it was so that may be due to some increased swelling around the tumor from radiation, he is goin to check her tomorrow and if its not better he said he may start her on a small dose of steroids to reduce the swelling in there. Say a xtra prayer for her she dont want to take em, and the dr really dont want to have to start her on them. All in all she is doin good today! She is as tough as nails lol! YA'LL KNOW US HILLBILLY GIRLS!! lol Love to all!!!!!!!!

sonya

ps dont forget to sign the book :)


Monday, March 24, 2003 5:56 PM CST

Good Evenin to ALL!! Well things here at the RMH have not been dull this evening. While setting on the patio after dinner this evening, up pulled an ambulance outside of the fenced security area around the RMH. Then a herd of police cars soon behind it. Some people walked down the sidewalk to find that there was a man leaned up against the wall, he was dead. The police came in to the front office to get video tapes of the alley for the past 3 days. I could actually see the poor mans body from the laundry window. They said he was a murder victim. The guy named Harold said he seen him setting there yesterday but thought he was sleeping. That is what the area outside of these gates is like. This town is ROUGH!!! Man i miss home!!!! McKenzie is doing alot better this evening, she had kinda a rough morning.But she is out and about now. She ate very good today!! Her and Kayla are having a great time together. Keep on prayin!!! God bless all!! We love ya'll!!!!

sonya


Sunday, March 23, 2003 5:03 PM CST

Howdy All! We have had such a beautiful day here today, i think it was around 75. It made me really miss being back at home workin out in my yard. We had to get out so we went to the zoo again. Granny etta mae got sick, so her and papaw and Angel headed home about 12:30 today. Kayla is going to be staying the week with us. We are going to miss Angel this week. Funny thing, we never thought we were alike, until we started finishing each others sentences. That seemed to be happening alot. LOL! Guess we are more alike than we thought. That is scary! JK Angel knows that! I love ya Angel! Take care of yourself I wont be there to supervise you. We took 7 roles of film at the zoo today! So I know we had to get some good pics lol! Well Mckenzie is doing so good today I think the fresh air and sunshine is what she needed. Well I'm gonna go for now! Love to ALL!

sonya

ps dont forget to sign the book.

Also thank you to all who have taken the time to hold benefits for Mckenzie!! Again you will never know how much it means to us to have so many people taking the time to pray and worry about her. We thank each one from the deepest part of our hearts! I gotta go I am teering up!!

I hope i spelled teering right! lol oh well! this isnt english 101 lol Love again to all!

bye for now!!!


Saturday, March 22, 2003 6:51 PM CST

Hi all! We just got back from Graceland. McKenzie is doing great today. She and Kayla B had fun at Graceland. McKenzie thinks that Elvis is upstairs and that is why they wont let people visit up there. lol. She ate a great dinner at RYANS steakhouse gotta get them there pounds back on her. lol Well just wanted to check in with all. We love you all!!!

SONYA

PS DONT FORGET TO SIGN THE BOOK! LOL We love to read notes from all!!! Keeps the spirits up!

LOVE YA ALL!!!!!!


Friday, March 21, 2003 3:27 PM CST

Hi All! TGIF!!! Thank Goodness It'S FRIDAY!!!!!!!!! McKenzie is down in the gameroom shooting a game of pool, so I guess that clue's you into how she is feeling. She is doing fine and eating well. Granny, papaw and Kayla are on their way down here, so say a prayer for them that they will have a safe trip. If all goes as planned we are going to try and visit Graceland this weekend. We will fill everyone in on that if we get to visit. McKenzie is now 1/2 through her radiation treatments. Tenative date for coming home is April 11th. Thanks to all who take the time each day to check on her and for the kind words written, it is really apprectiated. LOVE TO ALL!!!!

sonya

ps dont forget to sign the book :)


Thursday, March 20, 2003 5:28 PM CST

Good Evening to All!! Mckenzie is doing very good today. She wanted Dominos pizza for supper and she ate good. McKenzie is looking very forward to a visit from her granny etta mae, papaw darrell, and most of ALL her sister KAYLA BBBBBBBBB!!!!!!!!!!!!! Just wanted to let everyone know that she is doing good today. I gotta go for now!! Love to all!!

Sonya

p.s aunt angel says if you view this page u must sign the book lol !!!

P.s.s We LOVE YOU KAYLA BBBBBB!!!!!!!!!


Wednesday, March 19, 2003 2:02 PM CST

Good Day All!! It is sun shiny and beautiful here in Memphis. McKenzie starting feeling better about 2 hours after her radiation yesterday so last night some of us parents got together and took her and some friends bowling. They had a blast. And by the way she got her lap top yesterday so she is all hooked up to the world again. lol She is doing good today but they weighed her today and she is now at 83 1/2 pounds. We gotta work on that! By the way the Pics that Angel took of Tim McGraw did not turn out. Go figure huh! lol Angel was kinda upset! We got a plan though, Tim is coming to Charleston in May!!! We'll have back up camera and batteries then. LOL!! McKenzie's balance is off right now, I asked the Dr. and they said it can be from the intial swelling from radiation but should start subsiding in the next week of treatments. All in all she is feeling good today and smiling!!!! Well gotta go for now love 2 ALL!!!!!

P.s LOVE YA KAYLA BBBBBBBBB!!!!!!!!!!!!!!!!!!



Tuesday, March 18, 2003 2:08 PM CST

Good Day to all! Well after I updated the journal yesterday, McKenzie took a headache after radiation and started throwing up sooo we didnt get to attend the Tim McGraw concert, but today we think we may have found out the reason for her headaches, nausea and vomiting only happening after her treatment on Mondays and lasting until her treatment on Tuesday. That being that on Mondays she has what is called picture day and has to remain flat on her back for double the time she usually does just for treatment and with the location of her tumor it causes a fluid shift increasing the pressure where her tumor is lying, therefore, increased pressure= HA, Nand V. The other possibility is that where she gets weekends off a rebound effect. The DR. said most people start feeling yucky by the end of the week that the rebound effect is only seen in 1% of pts. He told McKenzie that he bet she had always been that special type of person. Anyways, angel still got to attend the concert and get her a t-shirt, and Angel also snuck up from the nosebleed section to very close to the front so close that she said she could see the sweat on Tim's face and she got some good pictures we are hoping. So McKenzie is doing better this afternoon since treatment and just wanted to let all know how things are going. Love to ALL!!!!

Sonya


Monday, March 17, 2003 1:29 PM CST

Good afternoon to all! Well McKenzie is done at the hospital for today. She has lost .3 or 3 tenths of a pound this past week so we are glad of that. She woke up this morning wanting gravy, biscuits, bacon and eggs, so with an appetite like that she'll be back to her old weight in no time. lol She done her treatment and tutor early today so she could get outta there and get ready for TIM MCGRAW. We invited one of her new friends and mom to come along with me, her and Angel. Her name is Rebecca. She is a little doll. Well gotta go for now just wanted to let ya know that McKenzie is doing great today! Love to ALL!

LOVE YA KAYLA B!!!!!!!!!!!!!!!!!!!!!!!!
MISS YA KAYLA B!!!!!!!!!!!!!!!!!!!!!!!!



sonya


Sunday, March 16, 2003 6:23 PM CST

HI ALL! We are now back at the RMH in memphis. We had a wonderful trip home. McKenzie is doing great. She got her hair cut yesterday while we were home. It looks cute on her! Just wanted to let everyone know that we made it back fine and that she is doing great. Love to All!!!

Sonya


























Thursday, March 13, 2003 5:59 PM CST

Hi! McKenzie is doing great today! We will be leaving right after radiation in the morning, so we should be on the road by 9:00 am. The radiation machine was down when we got there for her appt today at 2:30 and she didnt get to have her treatment until 5:00 so we all know how patient she is lol. Anyways, McKenzie is doing better since they put her on the kytril and she is looking very forward to coming home. Love to all!!!!

Sonya


Wednesday, March 12, 2003 6:45 PM CST

Good evenin all! Mckenzie is doing alot better today! We had a beautiful day here around 75 and sunny. They cancelled mckenzie's 9:00pm blood draw for today so we are finished for the evenin. She has a blood draw at 8:50 am in the morning. We are planning on driving home for the weekend, mckenzie says she is going home this weekend no matter what! lol And as we all know what ever mckenzie wants, mckenzie gets LOL! Thanks to all for the notes! Yall dont know how much they are truely appreciated! 2 more days!!!! We are leavin here on Friday around 9 am Lord Willing. Love TO ALL!!!!!

Sonya

ps we got tim mcgraw tickets for his concert here at the pyramid on March 17th. :)

* Kayla i miss and love ya, and Daddy too. see ya'll Friday. Big kiss and hug.
mommy

**by the way for those who don't know March 17 is Steven and my anniversary 13 years!!!! Are you reading this steven lol!!!! LOve ya! bye all


Tuesday, March 11, 2003 4:42 PM CST

Hi all! Well as you can see I did not get the page updated last night. McKenzie had a rough evening after her radiation appointment yesterday. She had a headache and her energy was zapped. She woke up throwing up this morning, so her Dr changed her from zophran to kytril. She is doing much better this evening. She had however lost 3lbs in a week so I gotta get that back on her. She is in the room right now watching Inspector Gadget 2 waiting on me to fix her some steak. She is set up for blood draws starting at 8:00 am in the morning then 9, 10, 12, 2, 4, 6, 8pm then the following day at 8 am again so remember her in prayer, we had her access put into her port today and they checked her cbc and chemistry levels ill get those results in the afternoon tomorrow. If you are wondering why so many blooddraws tomorrow it is to check the levels of the chemo that is getting into her blood stream at different intervals after taking her chemo so that they monitor it. Well as you can see busy day tomorrow so if I dont get the page updated dont worry. I gotta go for now.

love to all

sonya


Sunday, March 9, 2003 5:00 PM CST

Hey everyone!!! Me and McKenzie just got back from walmart, she had to go and get her film developed from the zoo yesterday. She got some really good pics of the animals, especially the gorilla and the python. McKenzie is doing great today, still no nausea so that is good and she hasn't lost any hair yet. Steven and Kayla headed home today, Kayla left with a smile this time, so that makes it alot easier on us and her. The weather here has taken a turn to the chilly side today, alot colder than yesterday, but the sun is shining bright. Well gotta go for now!

Love and prayers to all!!!!

sonya


Saturday, March 8, 2003 6:02 PM CST

Good evening to all!!! We just got home from the zoo!! The weather was beautiful here today. Mckenzie is doing very well today, no nausea. I could tell while we were visiting the zoo that she tired easy, but again that is to be expected, we just rented a large stroller and she done great. She especially loved the monkeys, she said she just wished that they had been more active. While me and her were waiting outside the gift shop before we left the zoo, she turned to me and said "Mom is my head straight? I said no and put it to where she was looking straight ahead, and she said I can see that you have one nose, one eye here and one eye there. I said so you just see one of me and she said yes. For those who did not know McKenzie was having to turn her head to the right so that she was able to just see one of everything. She still does not have use of her left and right lateral rectus muscles as of yet, but the dr is hoping that will return. But no double vision is a very good sign. She still is turning her head to allow her to see laterally but maybe by the end of next week that will return also. Keep prayin for her. She has had a great day!!!!!!!!! Thanks for ALL the PRAYERS!!!!!

Love to all, and GOD BLESS!!!!!!!!!!

sonya


Friday, March 7, 2003 2:55 PM CST

Good afternoon to all!!! McKenzie had kinda a rough morning with nausea and stomach pain, but she is doing fine now. Her and her uncle Jeremy are shooting a game of pool. The Dr.'s are going to keep check on her eyes just to make sure that she is not having a pressure build up in her brain, they said that sometimes waking up nauseated, like she has been having can be a sign of pressure build up, but they are monitoring that. She currently is not on any steriods (Decadron) and we are hoping that she wont have to be, but if the nausea is due to the pressure she may have to, keep prayin for her. She is ready for the weekend off!!!!!!!!!!!
The weather is beautiful here today, pray it holds for tomorrow so she can visit the zoo. Gonna go for now!!!

Love to all!!!!

Sonya


Thursday, March 6, 2003 5:23 PM CST

Hi to all!! It is almost the weekend!!!!!! Today Mckenzie has made a new friend, she is 9 years old and has been dx with the same thing as mckenzie (diffuse pontine glioma) brainstem glioma. Her parents are orginally from jeruslem, but came to the usa in 1957. they are wonderful people who believe in God's power. McKenzie is doing well today, she is feeling tired but that is to be expected. She is looking forward to the weekend, her uncle jeremy, molly and granny pam are coming to visit. She is hoping that when her Kayla also gets here for the weekend that the weather will allow for a visit to the zoo. She misses Kayla verrrryyyy muchhhh as do IIIIIII. We love you Kayla B !!!!!!!!!!!!!!

Gotta go for now

love and prayers

sonya

ps

add Rawan and Bobby to your prayers also


ty


Wednesday, March 5, 2003 6:10 PM CST

Hey All! We just got through with dinner. The Dr. put McKenzie on some zophran for nausea and it is really helping her, she ate her steak and potato along with a piece of chocolate cake she had me bake for her. Just wanted to let everyone know she is doing fine no nausea this evening!!!!! She is looking forward to the weekend!!

Love to all,
Keep us in your prayers

Sonya


Tuesday, March 4, 2003 5:50 PM CST

Hi again! Mckenzie is in the room resting. She is feeling tired and a little nauseated, but she is fine. She says that while she is taking her radiation that it makes her smell rotten pumpkins. I ask her Dr. about that and he said that about 2% of patients on radiation therapy say that they either see lights or hear noises or smell funny smells, they think that it is due to the area of the brain being radiated that is being excited, so that it is normal. She just ate 2 five piece chicken tenders with barbaque sauce, next to steak with A-1 sauce it is her next favorite. She insisted that her dad make the trip to BK for them cause she likes BK the best. McKenzie also had her first day with her teacher over at St.Jude, his name is Justin. Justin said that McKenzie told him that she makes straight A's at home and that he was gonna let her teach him. I thought to myself: buddy you have no idea, she is as quick as a whip.


Tuesday, March 4, 2003 9:57 AM CST

Hi all! Sorry that we didnt get the page updated last night. Long day at the clinic, but everything is on schedule now. McKenzie had her first radiation treatment and she done great. She had a headache last night but she is fine and dandy now. She also took her first dose of Iressa, her dosage is 3 100mg caps and a 25mg cap, so she takes 4 capsules each day continous, for as long as they are stablizing the tumor. Mckenzie also had her first blood draw from her new port a cath, that was sooo much easier on her. For those who dont know what her radiation consists of: mckenzie has had a plastic net mask that fits her whole face made, imagine laying on a table and taking a tennis racket and stretching it across your head till it reaches the table, then they fasten it down to the table, that the best way i can explain it, anyway it fits tight. Her treatment lasts only one and a 1/2 dixie chicks songs, that's how she is timing them so approx 6-7 min. well we gotta go get ready for another day. MCKENZIE is doing GREAT!!!!! Love to ALL!!!! KEEP ON PRAYIN!!!!!!!!!

ps HERES SOME NAMES I WOULD LIKE TO GET OUT FOR PRAYER:

BRENDLE
REBECCA
MICHAEL
JACOB
SARA
THERE ARE 2 ASHLEY'S (GOD KNOWS THEM)
TANIKA



Friday, February 28, 2003 2:21 PM CST

Hi! We got results to yesterdays MRI of the brain. Dr says that there has only been minimal growth since 1 month ago. McKenzie had her surgery this morning to install her port a cath,(form of a central line that is under the skin). she is doing great today. We are still set to start her radiation and chemo pill on Monday. SHE GETS WEEKENDS OFF! YIPPIE!!!!!!!!!!!


Thursday, February 27, 2003 6:43 PM CST

MRI of brain completed today. Scheduled for placement of port a cath in the morning. Plans right now include starting radiation and chemo (Iressa) on Monday. Please remember me in your prayers.





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