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I remember your boys every single day...and always will.
K Vajda
Belleville, Illinois - Tuesday, August 30, 2016 10:52 PM CDT
I have been thinking a lot about you lately. I have been thinking about Sam and Zach and all the hearts they touched on this earth in their short lives. I have been thinking about Samya, Leanna and our entire life experience and what to make of it all. Of course, as usual, I have no answers except to say that they have left a broken heart that will never ever heal until this is all behind it. I know you are having a lot of trouble with your health on top of the emotional pain and praying for you. I want t reach out and give you a cyber hug and cry with you, for you and for myself and say that our children are worthy of our tears. I am wondering about how you are doing and just wanted you to know that you are in my thoughts!
Suhad Haddad <suhad88@hotmail.com>
Northridge, CA USA - Sunday, July 28, 2013 10:50 PM CDT
Logging in for Zack Sides
Donny Harris
Timberlake, NC USA - Sunday, July 14, 2013 1:37 PM CDT
Happy Birthday Zach!
Hannah Bergland <hanbana23@aim.com>
Glendale, Wisconsin United States - Saturday, April 20, 2013 5:26 PM CDT
In the midst of things we don’t understand—things that leave our hearts broken and questioning… there’s a beauty about springtime in the endless ways it reveals God’s faithfulness and His promise to make all things new. Knowing this isn’t an easy time for you, I’m praying that God will give you strength, peace— and through the celebration of our risen Lord—infinite hope for your heart and soul. Blessings and Prayers at Easter
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Sunday, March 31, 2013 11:04 PM CDT
Hoping the New Year bring these wishes to all of you: Warmth of love and comfort of home, joy for your children, company and the support of family and friends, a caring heart that accepts and treats all human beings equally, enrichment of knowledge and richness of diversity. Courage to seek and speak the truth even if it means standing alone Hopes and dreams of a just world and the desire to make it happen A light to guide your path Helping hands to strengthen unity, serenity and peace within your mind, Heart and soul with food for thought and soul and a hand to hold.
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Tuesday, January 1, 2013 5:15 PM CST
Remembering Zach today and thinking of you Anne.
karen schaefer
brookfield, wi usa - Tuesday, November 27, 2012 10:05 AM CST
Happy Birthday Sam!
Cindy <kurtcindyb@aol.com>
Waukesha, Wisconsin - Wednesday, May 9, 2012 4:11 PM CDT
Happy Birthday Sam!
Hannah <Hanbana23@aim.com>
Glendale, Wi - Wednesday, May 9, 2012 9:44 AM CDT
Happy Birthday Sammy!
karen schaefer <kschaefer@chw.org>
milwaukee, wi usa - Wednesday, May 9, 2012 9:39 AM CDT
In the midst of things we don’t understand— things that leave our hearts broken and questioning… there’s a beauty about springtime in the endless ways it reveals God’s faithfulness and His promise to make all things new. Knowing this isn’t an easy time for you, I’m praying that God will give you strength, peace— and through the celebration of our risen Lord— infinite hope for your heart and soul.
Blessings and Prayers at Easter
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Sunday, April 8, 2012 12:36 AM CDT
Dear Zach,
Just wanted to drop by and say that I am thinking about you today, as I do everyday, but today especially for a reason I don't know haha. I miss playing GameCube with you and talking about video games with you so much. I have been playing Microsoft stuff on my xbox 360 lately, just because it is the new thing and call of duty is pretty fun. But I love how we both had and still do have such an appreciation for the Nintendo stuff. I loved talking to you and playing Mario hoops 3 on 3, the sonic games, and of course more Mario stuff. I feel like Nintendo is sort of dying out but I'm glad that we both had a liking for it :) anyways I miss playing with you, you always were my favorite person to play against :) I hope you are playing loads of Nintendo games now! And maybe even some microsoft and Sony stuff too (don't worry its not a betrayal to Nintendo I do it too ;)) say hi to Sam for me! And know that you are loved and missed!
Hannah
Hannah <Hanbana23@aim.com>
Glendale, WI - Thursday, March 22, 2012 11:42 PM CDT
I know you don't know me, and that is fine. Just wanted to let you know that for some odd reason, I was told to come here the second post you made. Never really commented. Always prayed. And tonight, wishing you peace from someone who checks weekly/fine, daily.
Kathryn Campbell
- Friday, March 16, 2012 10:19 PM CDT
Had lunch with Hannah today and as what always seems to happen we talked about Zach and Sam. I think it is a true testament to how special your boys are that they have made such an imprint on our lives having only known them for such a short time.
Cindy <kurtcindyb@aol.com>
- Friday, March 16, 2012 10:00 PM CDT
Thinking of your family and you as your thoughts turn to remembrance of Sam this week. Someone so special can never be forgotten. Please know how much you are loved and how deeply your loss continues to be remembered by others as well.
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Tuesday, March 6, 2012 4:13 AM CST
Remembering Sammy today...He is so loved and missed!
Hannah Bergland <hanbana23@aim.com>
Glendale, Wisconsin - Saturday, March 3, 2012 10:55 PM CST
Dearest Anne and family,
It has been quite awhile since I`ve checked in, but you are never out of my thoughts and prayers.Hope live is treating you more kindly.Take care
Cousin Lynn
Lynn Walsh <law65@live.com>
Duluth, MN USA - Friday, February 3, 2012 11:05 AM CST
Hi Angels Zach and Sam name is Jenna and i came across your site. You have never met, but I wish I had. I am just someone that is touched by your story, and the fight that you fought so bravely and courageously. You are a really handsome angels, and a hero forever. You have taught me that know matter how hard my battle is, I cant give up, because you never gave up. You fought untill your body just got tired and god called you home cause he didn't want you to suffer anymore. You won your fight, and you taught everyone about life. Your family will be in my thoughts and prayers. http://www.caringbridge.org/visit/champ291am
Jenna <fighterchamp9@aol.com>
Kamloops, BC Canada - Sunday, January 29, 2012 2:05 PM CST
♥ ♥ ♥ ♥ ♥
♥♥░(¯`:´¯)░♥ ♥ ♥ I'm
░.(¯ `•.|/.•´¯)♥ ♥ sending You
░(_`•.(۞).•´¯)░(¯`:´¯)♥ ♥Love
...░ (_.•´./|.`•._)(¯ `•.|/.•´¯) ♥ ♥Light
░ ░ ♥(_.:._)░ (_`•.(۞).•´¯)♥ ♥Blessings
░♥░ (¯`:´¯)░ (_.•´./|.`•._)♥ ♥Hugs
♥░.(¯ `•.|/.•´¯)░ (_.:._)♥ ♥and Prayers
░ (_`•.(۞).•´¯)♥ ♥░ ░(_.•./|.`•._) ♥ ♥ ♥ ♥ ♥
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Sunday, January 15, 2012 6:48 PM CST
A New Year Wish for You,
May serenity touch you gently every morning, may peace be your companion through each day, and in every restful hour, May dreams renew your soul. Wishing you a year filled with good health, happiness, and all good things. It's a New Year to wish you bright moments of happiness, quiet moments of beauty, and a year filled with all the good things you deserve! Happiness Now and Always
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Sunday, January 1, 2012 3:05 PM CST
Merry Christmas to you, Anne! I hope that you are doing well. Just thinking of you and your family with love.
Linda Zajork <Lindazrn@gmail.com>
New Berlin, WI USA - Monday, December 26, 2011 9:06 PM CST
…………(¯`O´¯)
…………*./ | \ .*
…………..*♫*.
..………, • '*♥* ' • ,
………. '*• ♫♫♫•*'
…..….. ' *, • '♫ ' • ,* '
…..….' * • ♫*♥*♫• * '
….… * , • Merry' • , * '
…..* ' •♫♫*♥*♫♫ • ' * '
….…' ' • Christmas . • ' ' '
' ' * • ♫♫♫*♥*♫♫♫• * ' '
…………..x♥x
...………….♥
May the Spirit of Christmas
fill your heart all year long,
the new year bring you joy,
and may you be blessed with
miracles the whole year thru.
God Bless you all.
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Sunday, December 25, 2011 7:27 AM CST
Dearest Anne and family,
Just want you to know we are thinking of you and zach on this very painful time of he`s going to heaven to be with he`s brother Sam. Hope the rest of your family and you are doing okay health wise. Take care you are always in our prayers.
Cousin Lynn and family.
Lynn Walsh <law65@live.com>
Duluth, MN USA - Tuesday, November 29, 2011 1:13 PM CST
It was a cold and quiet day yesterday. But I can say that our thoughts of Zach always bring warmth to our hearts. It was the constant smile and infectious laugh that will never, ever leave our thoughts and hearts.
I wish you didn't have to relive this one day each year. If only the sadness could forever be replaced with the happy memories and thoughts of good times. You and the boys are always in our prayers.
karen kurt schafer <kschaefer2@sbcglobal.net>
brookfield, wi - Monday, November 28, 2011 5:42 AM CST
I just reread your entry on the face page of Zach and Sam's CaringBridge page and your eloquent description of both boys, their energy, laughter and fullness of life they shared with so many. They were both really inspirational kids whose lives were far too short.I know you are thinking of Zach today and I have been too. Your love was, and still is, so deep and everlasting. I think Zach must be so proud of you for the courage and strength you carry with you .My thoughts are with you today Anne. Love MJ
mary jean <mjgreen@wi.rr.com>
Greendale, WI United States - Sunday, November 27, 2011 8:52 PM CST
"Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend. Gratitude makes sense of our past, brings peace for today, and creates a vision for tomorrow." With that being said, I am Thankful to have experienced my past, blessed to experience my present, & giving thanks in advance for my future! Thanksgiving Day brings to mind the blessings in our lives that usually go unnoticed: a home that surrounds us with comfort and protection; delicious food, for pleasure in both eating and sharing; clothes to snuggle up in, books and good entertainment to expand our minds; and freedom to worship our God. Most of all we are thankful for our family and friends, those treasured people who make our lives extra special. You are part of that cherished group. On Thanksgiving, (and every day) we appreciate you. Wishing everyone a Safe, Happy, & Blessed Thanksgiving Holiday!
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Thursday, November 24, 2011 8:23 AM CST
As Halloween approaches I can't help but think back to my favorite Halloween when a bunch of us went trick or treating at your house with both Zach and Sam present. That's a memory I will never forget and a memory I will always hold close to my heart. Have a Happy Halloween Zach, Sam and entire Juhlmann family! I carry you all in my heart.
Hannah <hanbana23@aim.com>
Glendale, WI United States - Sunday, October 30, 2011 11:25 PM CDT
Dearest Anne,
You and your family as always are still in our prayers and thought of often. Hope things are better for all of you. Miss your postings but know that its good that your lives are moving forward . Hope you and the girls are doing okay.
I know you weren`t feel very well hope some of that has cleared up for you as well as your girls. Take care say Hi to your Mother for me too if you get this message.Also hope she is doing okay.
Cousin Lynn Walsh Duluth MN
Lynn Walsh <law65@live.com>
Duluth , MN USA - Saturday, October 8, 2011 12:55 AM CDT
Hi Anne,
Just wanted you to know I often think of you and the boys. I'm hoping you and the girls are doing well. Sam and Zach will never be forgotten...how could they? I feel honored to have known your family. I miss you.
Barb Bilicki <frabe3@aol.com>
Saint Francis, WI USA - Tuesday, September 27, 2011 11:53 PM CDT
Dearest Anne and family,
Hope life is moving you along a greater path of hope and continued recovery from your loses and Illnesses you seem to have encountered in the last few years.Also hope your Mother is doing okay too.
Miss your postings but Its more important you keep your life moving forward then keep us updated.Hope your whole family is doing better.
Love Cousin Lynn and family ps Maybe you could e-mail me some time.
Lynn Walsh <law65@live.com>
Duluth, MN USA - Saturday, August 20, 2011 12:47 AM CDT
Anne I think of you often and miss our discussions. When you feel up to it feel free to email me. We moved but my email address remains the same.
Loriann Melby <lmelby1000@sbcglobal.net>
New Berlin, WI - Saturday, July 30, 2011 7:15 PM CDT
Dear anne and family,
Just a quick note to say have a great July 4th.
Take care prayers as always.
Cousin Lynn
Lynn Walsh <law65@live.com>
Duluth, MN USA - Friday, July 1, 2011 5:50 PM CDT
Dear Anne, Miss your postings but glad that you feeling more free to continue on with your life for you and your family. Though I know you will always grieve for your two angels in heaven and miss then and the pain from the lose of them will never go away completely as you have said life goes on and your daughters need you and zach and sam will be happy that you are able to laugh about their silly stuff that you recall more them shed so many tear.Though I know there will always be times for that too.Take care dear anne and Family and know you are always in our prayer.
Love cousin Lynn and family Duluth MN
Lynn Walsh <law65@live.com>
Duluth, MN USA - Saturday, June 25, 2011 6:27 PM CDT
Just checking in prayer and best wishes for you and your family.
Love cousin Lynn and family.Duluth MN
Lynn Walsh <law65@live.com>
Duluth, MN USA - Friday, June 17, 2011 8:14 PM CDT
Hi,
Just want you to know that as always you and your family our in my prayers.
Love cousin Lynn and family
Lynn Walsh <law65@live.com>
Duluth, MN USA - Wednesday, May 25, 2011 10:02 AM CDT
Hi Anne,
Checking in to let you know I'm thinking of the boys and the family. I have a lot of good news to report, let's trade some emails sometime soon. Have an inspired day!
Adam Keller
Waukesha, WI 53188 - Monday, May 16, 2011 11:59 AM CDT
My eyes pricked with tears reading your birthday update for Sam. Belated birthday wishes to a very special angel. Praying for you all as ever. Wishing you a blessed weekend.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Friday, May 13, 2011 7:27 PM CDT
Dearest Anne,
Thanks again for writting such a great letter to your little boy sam on he`s birthday.He must of made you laugh alot and I hope these memories that you write about keep that laughter in your heart and mind for ever.Thats the greatest gift any child can give a parent. and Sam certainly did that.And I know your son zach I`m sure did the same. Bless you all.
Cousin Lynn and family.
Lynn Walsh <law65@live.com>
Duluth, MN USA - Wednesday, May 11, 2011 7:44 PM CDT
tears Anne~ Sending hugs to you...and prayers that somehow Sam gets to play a good one on you..in a dream, an action of someone, or an orange butterfly going by... God bless your precious Sam and you...You are a wonderful mother Anne.
Hugs,
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Tuesday, May 10, 2011 11:15 AM CDT
HAPPY BELATED BIRTHDAY to Zach and Sam! Those smiles, those eyes, the laughter and joy exuding love and fun every day they could! Remembering them both with fondness. Embracing the memories you share to keep their spirits alive in our hearts! Thanks!
Meg Steimle <msteimle@chw.org>
- Tuesday, May 10, 2011 8:34 AM CDT
Thank you for sharing Sam's birthday. Thinking of all of you.
Julia Hatfield
Kaitlin & Emilie's mom
- Tuesday, May 10, 2011 8:14 AM CDT
Happy belated birthday wishes, Sam! I'm always late but I enjoyed your cheerful memories and musings, Anne. Sammy's antics continue to make me smile and feel happy. (I was thinking of French fries on Monday).
Julie Turkoske
Waukesha, Wi USA - Tuesday, May 10, 2011 6:37 AM CDT
Anne, what beautiful birthday thoughts of Sammy! [You think them everyday, I know.] I love our forever first grader. When I was at school yesterday, to couch reading, I WAS hot! Sam, on your birthday I remember thinking "it's hot in here!" What are the chances?! Were you asking me??
Donna Brooks <daniel8546@sbcglobal.net>
Waukesha, WI USA - Tuesday, May 10, 2011 6:23 AM CDT
Blessed Birthday thoughts and memories of both Sam and Zach. I hope this day can be filled with memories that bring your family and you joy. I hope you know what a profound influence both Sam and Zach were in the lives of so many people including my daughters and mine I think of their presence in the world as a ripple in a vast sea, a ripple that touched the lives of many people. This is the perfect time to remember the triumphs and pleasures, the laughter and cheer, and the joys shared with the loved ones near. So many special memories that are warmly woven into our hearts, and cherished forever. Remembering the good times with Sam and Zach,the smiles,the lessons they taught others about life. Remembering the belly laughs, the hugs and the playfulness. Keep those in your heart taking them with you where ever you go.
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Tuesday, May 10, 2011 6:19 AM CDT
Dearest Anne and family,
Today my prayers are with you even more.Sam`s birthday .
You are never far from my thoughts and I pray for you and your family daily.Hope your health Anne and that of your girls is improving.Hope your mother is also doing okay.
Take care. will check in again soon.
Love cousin Lynn and family.
Lynn Walsh <law65@live.com>
Duluth, MN USA - Monday, May 9, 2011 1:00 PM CDT
So here it is....Sammy's birthday. HAPPY BIRTHDAY SAMUEL PATRICK! I hope you and Zach have loads of fun.
Anne, Abby and Brittany - I'm thinking of you all today and hoping you find a way, as you always do, to celebrate and honor Sammy.
karen schaefer <kschaefer2@sbcglobal.net>
- Monday, May 9, 2011 7:58 AM CDT
Anne, your birthday tribute was beautiful and touching. Thank you for sharing your raw thoughts and feelings with us and allowing us to grow and love and learn. Thank you!
Jill Nelson <tjtbnel@sbcglobal.net>
Oconomowoc, WI - Sunday, May 1, 2011 7:53 PM CDT
Your entry on Zach's birthday was so touching and amazing!!!
Jennifer Schultz <Schultz@wi.rr.com>
Waukesha, WI USA - Tuesday, April 26, 2011 10:58 PM CDT
What a beautiful, touching tribute to "the one and only Zach". He truly was a beautiful little guy. I remeber well first getting to know him while at therapy...Zach and Abby with their blond heads and always smiling faces. Will make a special effort to give blood in Zach's honor in the next week or two.
Pat Carriveau <pcarriveau@chw.org>
Hartland, WI - Tuesday, April 26, 2011 12:25 AM CDT
Dearest Anne and Family,
Thank you again as always for your insight into the life of your family. Your deepest thoughts about your boys especially zach on He`s birthday. Zach was a very mature person for he`s age always it seems.Maybe your right an old soul in a young body.Even as you were having false labor etc. with him he was letting you know he`s was kicking he`s way into life and planned on continuing to do so know matter what life throw he`s way.He has taught us life is good even when it may be shorter for some . Happy Birthday Zach for even in heaven your life goes on.You and Sam are still and always will be amazing boys,or maybe I should call you young Men.Cause thats how you seemed while on earth with the rest of us.Teaching how to live and love..Anne thank you again .I hope brittney and you are doing better health wise. For I pray for that everyday.I also pray for your Mother Mary Jo Hope all is still going okay for her too.
Love and prayers Cousin Lynn(Royer)Walsh and family.
Duluth MN.
Lynn Walsh <law65@live.com>
Duluth, MN USA - Monday, April 25, 2011 7:00 PM CDT
\ /)
( . .)♥ Happy Easter!!!!
c(”)(”) Wishing you all an Easter filled with favorite traditions and happy new memories, but most of all, an Easter that renews your faith, uplifts your spirit, and fills your heart with joy.
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Sunday, April 24, 2011 8:48 AM CDT
Hope you got my text yesterday. Have been thinking about the "one and only" for several weeks now. Happy Birthday Zachary Ryan Juhlmann!
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Thursday, April 21, 2011 7:24 PM CDT
Happy Birthday to Zach! I was just talking to a friend yesterday...telling her stories of Zach that Hannah has shared with me. I am not even sure at the moment how we got on the topic. Zach and Sam continue to not be far from our thoughts!
Cindy Bergland <kurtcindyb@aol.com>
WAUKESHA, Wisconsin United States - Thursday, April 21, 2011 4:43 PM CDT
I LOVE the picture you posted of Zach (minus the Eagle's shirt of course)! Happy b-day to the always positive, one and only Zachary Juhlmann! Missing my secret cuddle time with Sammy at night while he was sleeping too. Thinking of you Anne...talk soon. Love, KP
Kris Pallett <kpallett@chw.org>
- Thursday, April 21, 2011 4:25 PM CDT
Happy Birthday Zach! Anne, thank you for sharing... I so love hearing about your life with your boy. I remember many of the same feelings when pg with Sean. Zach was, and is, a most precious gift, never to be forgotten, always to be treasured by many of us out here. Lots of hugs.... Heidi
Heidi
- Thursday, April 21, 2011 8:59 AM CDT
Happy birthday, Zach.
LeeAnn <photomom5@comcast.net>
savannah, GA - Wednesday, April 20, 2011 7:47 PM CDT
Wow, it is another birthday for you Zach. I always remember how much you enjoyed them. I miss you!!
Stephanie Mauck <TMauck@aol.com>
Waukesha, WI - Wednesday, April 20, 2011 2:01 PM CDT
HAPPY BIRTHDAY ZACH! I know you and Sam are having a great party in heaven.
Anne: I hope you have a peaceful day with fond memories of the many birthdays you had together.
Karen Schaefer <kschaefer2@sbcglobal.net>
Brookfield, WI - Wednesday, April 20, 2011 8:07 AM CDT
Just checking in to tell you we (Bonnie and I) still think of you and your family..... I re-read your well articulated post and hope that you are still writing and looking at brighter days.
~Lyn
Linda Marie Codier www.caringbridge.org/az/bonniemarie <lynsmusikgarten@cox.net>
Mesa, AZ - Monday, April 11, 2011 6:35 PM CDT
Hey, Just wanted to say Hi and that you are all still in our prayers.Hope all is going better for you and your family.
Love cousin Lynn and Family.
Lynn Walsh <law65@live.com>
Duluth, MN USA - Monday, April 4, 2011 5:23 PM CDT
Thinking of Zach and Sam a lot recently.
Hannah <hanbana23@aim.com>
Waukesha, WI USA - Sunday, April 3, 2011 8:10 PM CDT
Thinking of Zach and Sam a lot recently.
Hannah <hanbana23@aim.com>
Waukesha, WI USA - Sunday, April 3, 2011 8:10 PM CDT
Hi there,
I don't know you, but I've been reading about Zach and Sam for years. I woke up this morning and realized it was April Fool's Day, and Zach was the first person who came to my mind. I'll be thinking of him (and Sam, too) all day.
M.
Philadelphia, PA - Friday, April 1, 2011 7:49 AM CDT
Dearest Anne and family,
Just wanted you to know that you are in our thoughts and prayers as always .Hope all is starting to get alittle better to endure your life with out your two angels by your side I know it will never get fully better but hope more funny things about them comes through more each day to add alittle more stars to your life
Take care and may the good Lord bless and keep you all in he`s arms to help give you the strenth to move forward with your life.Still think you should write a book because you are so insightful and could help so many others through some of their hardships too.I`ve learned alot from you about so many things.
Love cousin Lynn
Lynn Walsh <law65@live.com>
Duluth, MN usa - Thursday, March 31, 2011 8:23 PM CDT
I just wanted to stop by and say hi. When I realized this Friday was April 1, I immediately thought of Zach and the stories you have posted in the past about the different pranks he loved to play for April Fool's. The memories brought me some smiles. I'm so glad for the way you have always shared your family with all us CB readers.
Erica Beyea <debeyea@verizon.net>
Eden, NY - Wednesday, March 30, 2011 11:26 PM CDT
Hi Anne,
Just wanted to send warm thoughts and hugs your way.
Phil
Phil Talsky <philtalsky@yahoo.com>
- Friday, March 25, 2011 1:15 AM CDT
Dearest Anne and family,
Thinking of you as always and pray for you all.
Take care hope your changes you spoke of in your last posting are helping you move forward as you wished they would.
Love cousin Lynn and Family.
Lynn Walsh <law65@live.com>
Duluth, MN USA - Sunday, March 20, 2011 3:12 PM CDT
Happy Samuel Patrick's Day!! Thinking of Sam and the entire Juhlmann family today.
Bridget Bruno
- Thursday, March 17, 2011 6:45 PM CDT
Samuel Patrick's Day is coming up!
Barbara Hayskar <bhayskar@comcast.net>
Antioch, IL 60002 - Tuesday, March 15, 2011 6:51 PM CDT
Dearest Anne,
Thinking about you and your family at this difficult time,All my prayers to you and yours.
cousin Lynn Royer Walsh
Lynn Walsh <law65@live.com>
Duluth, MN USA - Sunday, March 6, 2011 11:20 AM CST
Thinking of you and Sam today on this sad anniversary. If I only had an orange shirt I would have worn it today! Sam, you are still missed here on earth.
Pat Carriveau <patcarriveau@earthlink.net>
Hartland, WI USA - Thursday, March 3, 2011 6:20 PM CST
Six years ago this world lost a gift to our earth. I miss my Sam and Zach stories so much. I like you Anne HATE the fact that I have no new Brody stories. I can only imagine how hard today has been for you Anne. I just hope that you are able to recall a few memories today that maybe you haven't thought of in awhile. I pray that somehow you are able to feel Sam's presence in something that happens today.
Kristi Cole <kristi33333@comcast.net>
Atlanta, GA USA - Thursday, March 3, 2011 4:23 PM CST
Anne, i think of you often. Always glad to see a note on here. To "hear" your "voice". Glad you are writing for yourself.
I never met Sam, but I think of him often. i think of the things you've told me about him that remind me of Maya. Mostly the teacher having to "teach" his dog during school. :)
Holly
Delafield, WI United States - Saturday, February 26, 2011 10:58 PM CST
No one could put into words the raw emotion of your loss. A child is a special part of a mother that only another mother could understand. I think that I understand, in a small way, how you feel. I wish that I could help lessen your pain. It gets better as time passes but it will be with you for the rest of your life. God bless you.
Frank B <fcarlb@execpc.com>
Waukesha, WI USA - Tuesday, February 22, 2011 2:37 PM CST
Sam
Frank Balistreri <fcarlb@execpc.com>
Waukesha, WI USA - Tuesday, February 22, 2011 2:25 PM CST
I think of you pretty much daily. I don't understand life and death other than it is.
my loss, i didn't know Sam except a little through you and this format. thanks for that. I feel like i got to share with Zach a bit, and am grateful. He will always hold meaning for me about caring.
I got my dream car a few years ago. It is a Z-4 (bmw). From day one the Z reminded me of Zach. He has an open invitation to ride with me. I'm pretty sure he's taken me up on that. love; Dan
Dan Horton <dwhorton@live.com>
scottsdale, AZ usa - Tuesday, February 22, 2011 11:33 AM CST
It is great to hear that you are writing again. I only know you and the boys through caring bridge. I miss Zach and Sam! I love the picture you posted of Sam and the jeep and how he liked to run people over. I will never forget your boys and their zest for life! Take care!
Dawn Anich <Danich1@wi.rr.com>
Racine, Wi - Monday, February 21, 2011 11:39 AM CST
Dearest Anne,
You as always have spoken with such clarity about your feelings and what is happening in your life Thank you.You don`t have to apologize for being human,and caring and having feelings you can`t control or should even think of controlling. Life is what it is .and so is death and sorry. You are doing what you must to survive.Just wish that what we say to you helps sometimes. March 3 here again already.I`m sure that one of your thoughts is that it comes all to soon each year. as does the 27th of Nov.
Writting even just for your self is good.Putting down ones thoughts on paper helps clarify and sort out ones confusen I`ve alway thought any way. Hope the whole family is doing better and thank you again for taking the time to express your deep feelings from your inter soul.Heart breaking but so meaning full. Prayers as always to you and yours
Cousin Lynn and family...
Lynn Walsh (Royer) <law65@live.com>
Duluth, MN USA - Saturday, February 12, 2011 12:31 AM CST
Wow Feb. is here already. Sure am getting alittle tired of all the snow seems to be snowing almost every other day, and been going on since Oct. Hope things are going better for you and your family.
Love cousin Lynn and family
Lynn Walsh <law65@live.com>
Duluth, MN USA - Thursday, February 3, 2011 10:15 AM CST
{{Anne}} Love you and Miss you.
steph
- Saturday, January 22, 2011 0:31 AM CST
Dearesr Anne,
Hope your new year has had a great start. And continues to be that way the rest of the year..
Cousin Lynn and family..
Lynn Walsh <law65@live.com>
Duluth , MN USA - Saturday, January 15, 2011 12:46 AM CST
Hi Wishing you and your family a better new year..
Cousin Lynn
Lynn Walsh <law65@live.com>
Duluth, MN usa - Wednesday, December 29, 2010 11:41 AM CST
Hi Anne,
Just wanted to let you know I'm still listening. Merry Christmas to you and you family.
Love to you,
Karin
Karin Burrow <kburow2944@att.net>
Waukesha, WI united States - Friday, December 24, 2010 10:20 PM CST
Hi Anne
I was just on Deb's CaringBridge site, thinking about Connor, than my mind went to you and your incredible sons. I read your last post and I appreciate your honesty. I just want you to know that although I don't check in on you as much as I should, nor do you write as much, I still care about you. You have a lot going on in addition to ongoing grief and my heart goes out to you. Hang in there, take one day or even one moment at a time and just do the best you can do. Thats all any of us can do, so give yourself lots of grace and forgiveness. I hope you get to spend Christmas with both your daughters this year. May the coming year bring you a little more joy than you have felt this year. Sam and Zach are not forgotten by me.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ Morris - Monday, December 20, 2010 5:50 PM CST
Thought of you and your family on the 27th and of course zach. May your holiday season be full of many more joyious memories then sad. Say Hi to your Mother for us..
and no we didn`t forget Sam or your girls either they are also all ways in our thoughts and prayers as are you and your husband..
Cousin Lynn..
Lynn Walsh <law65@live.com>
Duluth, MN USA - Wednesday, December 1, 2010 9:17 AM CST
Remembering Zach on the anniversary yesterday. Hoping you are taking care of yourself. Sending lots of love and hugs.
Meg Steimle <msteimle@wi.rr.com>
Wauwatosa, WI - Sunday, November 28, 2010 9:54 AM CST
Thinking of you and all your family. Beautiful post...it is OK to be and feel as you do and you share that so well with others.
Laura
- Sunday, November 28, 2010 7:35 AM CST
Thinking about you and remembering Zach....
Erica Beyea <debeyea@verizon.net>
Eden, ny - Friday, November 26, 2010 9:47 AM CST
Thinking of you and your family on this thanksgiving day,Much love and prayers.
Cousin Lynn and family..
Lynn Walsh <law65@live.com>
Duluth, MN USA - Thursday, November 25, 2010 5:53 PM CST
Just wanted you to know I remember your boys.....and you.
Teryl O'Grady <tro2511@wi.rr.com>
Waukesha, - Friday, November 19, 2010 6:22 PM CST
Dearest Anne and Family,
It was gracious of you to take the time to post again on zach and sams web site. Thank you for all the times you gave of your self emotionally and physically when your pain was and still is as raw as an open wound. Starting to heal to only be torn open again by moments in time such as codes where you work and the like as you go forward or at sound of a siren. Please Don`t give up on the stars cause they are there and can give you cause to ponder lifes mysteries of grief and wonderments. I`ll send as many your way as I can..Hoping you can grasp some of them and hold them near as you do the wonderful boys of yours and their many moments of laughter they gave you.As you speak more of those times as the years go by the stars will be easier to hold on to and see.Your wonderful daughters are still your stars too.And I know you think of them as such.Wish your health would improve too cause that takes away from your ability to deal with such open wounds. Sorry I hope I didn`t rattle on to much of course I did...And Anne Don`t ever feel bad about Bearin your most raw feeling or not bearing them cause this is about how you can best deal with what life has handed you not about us the outsiders looking in as you bear your soul to us.But Always know You are in our prayers as is your family including your two angels in heaven.They I`m sure are very pround of you and send you all the stars they can send your way.Look for them in the most minute places they are their.Sorry I was so long winded.Hope it made sense some how.****************
Lots of stars for you and yours..
Love cousin Lynn Royer Walsh Duluth...
Lynn Walsh <law65@live.com>
Duluth, MN USA - Saturday, November 13, 2010 2:25 PM CST
Sending lots of gentle hugs your way.
Marcia <marciat@sympatico.ca>
Bradford, ON Canada - Thursday, November 11, 2010 10:29 PM CST
It has been a while since I have stopped by but not a day goes by that I don't think about Sam and Zach and wonder how you are doing. So I stopped by today only to see that you had a new post as of today. I can hear the pain in the words that you write and wish that there was something that I could do or say......I know there isn't though...not really. You and Lou, your girls and your boys remain in my prayers.
Cindy <kurtcindyb@aol.com>
Waukesha, - Thursday, November 11, 2010 9:03 PM CST
Dearest Anne and Family,
It`s been along time since you`ve posted on this site.Hope all is well with you and yours.Just want you to know our thoughts and prayers are still always with you and your family. Also hope all is going okay with your mom.
Love and prayers cousin Lynn Duluth MN.
Lynn Walsh <law65@live.com>
Duluth, MN USA - Friday, November 5, 2010 6:44 PM CDT
Just wanted to stop by and say hi and tell you that I was thinking of you and the boys today.
Erica Beyea <debeyea@verizon.net>
Eden, ny - Sunday, October 24, 2010 10:55 PM CDT
Hi,
Just wanted to let you know as always you are in our prayer for better health and less stressful times...
Lynn Walsh
Lynn Walsh <law65@live.com>
Duluth, MN USA - Tuesday, October 5, 2010 6:39 PM CDT
Sorry haven`t checked in for awhile. Hope you and your family are doing better. Love and prayers for you all.
Cousin Lynn Duluth MN
Lynn Walsh <law65@live.com>
Duluth, MN USA - Tuesday, September 21, 2010 8:24 PM CDT
leah tyykila
janet gozanski <wijan1963@hotmail.com.>
superior, wi douglas - Thursday, September 16, 2010 8:34 PM CDT
Great to hear about your group of hard workers.You are such an amazing person always working for others even through your own troubles.Hope you and the rest of your family are doing better. Loved your pictures.Such happy times even through tough times your children always with smiles on their sweet faces.
Love cousin Lynn and family.
Lynn Walsh <law65@live.com>
Duluth, Mn USA - Thursday, August 26, 2010 9:04 PM CDT
I was thinking about Brody tonight, which led me to think about Zach and Sam, which led me to this site. I am sorry to read about Alex. All I will say is that living on this earth without our boys sucks! I'm just keeping it real.
Thinking of you my friend-
Kristi
www.carepages.com
Carepage Name-brodyjcole
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Friday, August 20, 2010 11:53 PM CDT
Dear Anne
I am so sorry to hear you have not been well and Brittney has been having trouble as well. I think of you often!
Danielle Donnelly(Ryan and Chase's mom)
Danielle <danni003@comcast.net>
audubon, nj usa - Friday, August 20, 2010 7:01 AM CDT
Dearest anne,
Sorry to hear you are not doing so good.And that brittney is having such head aches.Hope her dr. and yours can help you both.Also sorry to hear of the passing of zachs friend alex.Will also pray for them in their hrs of grief.sorry you could not be their for them like you wanted to be,but I know they knew you were there in spirit even though you couldn`t be there in person..Take care of your self Anne and your family and you are always in my prayers all of you.
Love Cousin Lynn
Lynn Walsh <law65@live.com>
Duluth, MN USA - Monday, August 16, 2010 9:55 PM CDT
Hi Anne
So sorry to hear that Alex passed away, my heart goes out to that family and for you as well. Alex seemed like quite a fighter and that he did his best to live his life. I am praying for you and that up coming doctor's visit. I don't know what else to say but I am so sorry.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ Morris - Wednesday, August 11, 2010 11:03 PM CDT
I truly hope that Alex has a peaceful journey into heaven. And I bet that Zach is up there waiting with the cards to play the game they both so loved. I love reading your journals. You have such great messages in all of them. May God be with Alex and his family at this time.
Lynne Barker (Grandma to Dylan Faith Kulik) <lbarker@asd.net>
East Peoria, IL USA - Monday, August 9, 2010 9:08 AM CDT
Hi Anne,
I so "get" it and can relate to this update. I truly HATE mito and the physical and emotional pain it causes for individuals and families. We have added Alex to our family prayer list and continue to hold you close in thought and prayer.
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Saturday, August 7, 2010 5:34 PM CDT
Anne,
Thank you as always for your thoughtfulness and You bet I will add Alex and his family to my prayers.Sorry that it brings back such hurtfull memories of your son zack too. But I also know they don`t ever really go away.I look forward to your next writing and update of your insightfulness and also how you are doing.I know your not well and pray also for you always.Hope your girls and husband are doing ok. And your mother too.
Cousin Lynn and family..
Lynn Walsh <law65@live.com>
Duluth, MN USA - Friday, August 6, 2010 9:15 PM CDT
As ever, sending best wishes and hugs your way from the U.K. Anne. Thinking of you all. Have a blessed weekend.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Friday, August 6, 2010 8:20 PM CDT
Thinking about you and praying for Alex and his family.
Cindy
- Friday, August 6, 2010 1:11 PM CDT
Hugs my dear friend! xoxo
Kelly Kilbride <kilbridek@yahoo.com>
Georgetown, On Canada - Friday, August 6, 2010 2:08 AM CDT
Dear Anne,
I'm thinking of you today. Miss you.
Love, Kaf
Katherine <kfrontier@chw.org>
- Thursday, August 5, 2010 2:13 PM CDT
Anne, Thinking of you often and remembering times with Zachary a lot lately. Love, KP
Kris Pallett
- Wednesday, August 4, 2010 0:34 AM CDT
Lines rock! Thinking of you.
Kathryn <campfam@htc.net>
Columbia, IL - Tuesday, August 3, 2010 0:27 AM CDT
Dearest Anne,
Just checking in .Hope all is going better for you and your family. Prayers and thought of often.
Cousin Lynn and family
Lynn Walsh <law65@live.com>
Duluth, MN USA - Saturday, July 31, 2010 11:07 AM CDT
Just stopping by to say hi and let you know that I was thinking of the boys this week. Had to come see the pictures once again. :-) Hope you are feeling well enough to enjoy the summer a bit!
Erica Beyea <debeyea@verizon.net>
Eden, ny - Friday, July 30, 2010 9:53 PM CDT
Hi Anne
I was thinking about you and decided to let you know. I hope you are doing okay and enjoying your summer. Keeping you in my prayers and remembering Sam and Zach.
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ Morris - Friday, July 30, 2010 4:59 PM CDT
Zach and Sam left so much of a imprint on my heart, they will never "leave" me; impossible to "forget". I think of them constantly-- bright orange, and purple...every time. Bright orange used to be associated with that horrific trauma almost 7 years ago now. It was kind of a PSTD reaction to just the color....but now it represents to me the vivacious, mischievious SAM I AM, Samuel Patrick's Day and more. They are part of me, my life, my thoughts and live on; the stories, the pictures.
When people tell me (ad nauseum) that having multiple children this ill is "impossible" and try to hang some type of super-woman status on me, I think of you and tell them, NO it is not me. I know superwoman and I dont hold a candle to her (you obviously). Love you, miss you. Would like to hear more about your stuff and how you manage it. I get dowright MAD when my body doesnt cooperate, especially when I need to be there for the boys. I wonder how you keep all that together and keep the anger at bay. Love you girl- Hoping I wont see you too soon in the coming days/weeks.
Steph
- Friday, July 23, 2010 2:01 AM CDT
Dearest Anne,
I miss your updates of what is with your family and especially you.Hope things are starting to get better.Pray for you often.You are such a great oratator and have such a gift for putting thing on paper for all to understand. These last few years have been very painfull for you yet you kept us informed anyway.Thank you for your insite about all things relevent.Which Is Love Live and how to survive sorrow and the hardships live can give us.
Thoughts and prayers always.
Love cousin Lynn and Family Duluth MN...
Lynn Walsh <law65@live.com>
Duluth, MN USA - Thursday, July 22, 2010 11:33 AM CDT
I suspected that you too have Mito...so sorry to hear of it's progression. Thought about you just yesterday as I was shopping with my 8 year old grand daughter who happens to have Down's Syndrome. She saw a pair of Toy Story 3 sneakers with a photo of Buzz Lightyear on them. They light up when she walks. I could only think of your Sam and how thrilled he would have been to have these sneakers. Yes, we did buy them and she hasn't taken them off! Thinking of you. Anne R.'s (older) cousin...
Barbara Hayskar <bhayskar@comcast.net>
Antioch, IL United States - Saturday, July 17, 2010 3:03 PM CDT
Just gotta love those fake spiders!
Meg <msteimle@wi.rr.com>
Wauwatosa, WI - Saturday, July 10, 2010 10:23 AM CDT
Dearest Anne,
Hope you are able to regain some of your hope and will power back.Your are and always will be an inspiration to me and my family for you have shared your most painful moment with us and I know I felt your pain of the lose of your fight for the life of your dear boys sam and zach.and as long as you write about them and your family I will always embrace and charish these moments with you.I pray for you daily that life will give you a break and let you continue your great work for your boys and yourself.which I know all of us will benefit from.
Take care and I wish all of you better health and God`s blessing.
Cousin Lynn (Royer) Walsh Duluth Mn
Lynn Walsh <law65@live.com>
Duluth, MN USA - Friday, July 9, 2010 6:31 PM CDT
Anne, as long as you write, we will continue to visit and read, look at pictures, watch the videos, your boys are very much alive...and we do this even when you are not writing...
LeeAnn <photomom5@comcast.net>
Savannah, GA USA - Thursday, July 8, 2010 9:34 PM CDT
Hi Anne,
I just wanted you to know you remain in my thoughts and prayers. You and your boys are an inspiration to me every day. When days are hard I remind myself that you did a whole lot more each and every day and all of your hard work for your boys truly paid off. My heart breaks for you that they are no longer physically on this earth, but they have truly left their incredible mark and continue to do so. Nathan thinks Dr Aiken is the best. He did his line last week. A friend of ours who also has a son with Mito is getting his line next week and Nathan said the best thing they could do is have Dr Aiken do it. Praying that you are able to regain your strength and health!
Tammy Martin, wwwlcaringbridge.org/visit/martinkids
Galesburg, MI United States - Thursday, July 8, 2010 7:28 PM CDT
Did I ever tell you about the Pokemon story from last fall? At my house, on my car parked outside, I found (2) Pokemon Energy cards. Wonder who put them there? I know who--it was Zach. I still have them in my drawer to remind me of him and HIS energy every day. Best to you and the girls!
Adam and Elizabeth K. <adam.keller@nmfn.com>
Waukesha, WI - Thursday, July 8, 2010 12:47 AM CDT
Anne, I dont have the right words. Just know that I miss the boys and enjoyed all the stories when they were here.
Also, know that I "get it". Moms arent supposed to get mito. It isnt fair, it sucks. Love to you and your wonderfulgirls!
Step
- Wednesday, July 7, 2010 9:01 PM CDT
Dearest Anne,
Prayers with you always. Our Older Brother Bill passed away this morning in his sleep.Please foward this to your mother for me.I talked to your grandpa Wayne and he might have already told her.He was 72 and still looking for work cause he got laid off in feb on he`s birthday.Needed to keep working cause he`s wife wasn`t old enough for Medicare.yet only 62..Cousin Lynn
Lynn Walsh <law65@live.com>
Duluth, MN USA - Monday, July 5, 2010 8:17 PM CDT
Dearest Anne,
Just wanting to let you know you are in my thoughts and prayers as always. As is your family. All of them even those who have passed on to where they can`t hurt anymore.
Hopfully as we were told to a peaceful and beautiful place with God and he`s other angels.
Love cousin Lynn
Lynn Walsh <law65@live.com>
Duluth, MN USA - Saturday, June 26, 2010 1:29 PM CDT
Hey Anne! I can't imagine how you are coping through your struggles with health and thinking back to the boys and their care. I was struck by the comment you surmised Sammy would make about you having a "line". Funny how there is safety in sameness, a commeraderie of sorts, much like our "team". Happily I think of the boys and you every day cuz, you know, there is the amazing tribute in our space at the office. Wishing you some healing and wellness so we can chat face to face. Get well roomie!
Meg <msteimle@wi.rr.com>
- Thursday, June 24, 2010 3:48 PM CDT
Anne, I'm missing you much and thinking of you daily. I hope you feel better soon; you do have MANY stories yet to tell! We have a picture of Zach and Sam hanging in the kitchen, so it is a daily reminder of the gift that they are (Sammy, so funny with his strong "advocacy" skills and Zach, with his kind and gentle heart yet "scheming" sense of adventure!)
Julie Turkoske
- Wednesday, June 23, 2010 10:19 PM CDT
Anne,
The boys are NOT forgotten. I can never hear a notice about a blood drive without thinking of Zach and Sam and how it made a difference for them. Giving blood is very meaningful when you can think of real kids who depended on this gift of life. Hope to see you soon.
Pat Carriveau <pcarriveau@chw.org>
Hartland, WI - Wednesday, June 23, 2010 2:38 PM CDT
Dearest Anne,
Your pain is felt through your words, Your heart ache is painful. I feel so close to you at these times when you write about your boys and family. I`m sorry you too seem to have fallen pray to this horrible disease.Yes people do tend to not forget but speak less of love ones who have passed.But as you say they are not forgotten,for a scent or flower or word can bring them back as if they had never left. Thankfully we have this gift.My prayers are with you and yours always. And I`m sure you tier of keeping people updated on your life and that of your families.Dearest Anne I wish you would really think hard about writting a book, because it would be so helpful for others ,because you have such insite and caring about all things .Not just your boys Your dear angels.but empathy for others as well.
Take good care of your self.Hope your mother and the rest of the family is doing better also.
Love cousin Lynn and family...Prayers and thought of always..
Lynn Walsh <law65@live.com>
Duluth, MN USA - Saturday, June 19, 2010 12:36 AM CDT
Dearest Anne,
Just wanted to say Hi. And let you know that you and your family are thought of often.
Cousin Lynn Duluth
Lynn Walsh <law65@live.com>
Duluth, MN USA - Friday, June 4, 2010 5:24 PM CDT
I have a son who`s birthday falls on Mothers day to every so often. Sam was so full of live as you say, so it`s hard for me even though I didn`t know him personally not to miss him because you have made him always a part of my life through your words.Thank You ..May God continue to help you through out your life to go on and enjoy your boys laughter and fun times they gave you.And of course your girls that thankfully God has chosen to leave with you
hopefully for a long time.
Prayers always for you and yours.
Cousin Lynn Duluth MN
Lynn Walsh <law65@live.com>
Duluth, MN USA - Thursday, May 13, 2010 1:38 PM CDT
Just thinking of you and your family...
LeeAnn Kole <photomom5@comcast.net>
Savannah, GA USA - Thursday, May 13, 2010 6:35 AM CDT
Happy Birthday my dear friend Sam. Yesterday, I saw an ad with a blue dog who was wearing an orange collar. I think you would have laughed and laughed at a blue dog. The orange collar was just icing on the (birthday) cake.
Love and miss you,
Kaf
Katherine <kfrontier@chw.org>
- Monday, May 10, 2010 8:59 AM CDT
HAPPY BELATED BIRTHDAY, Sammy....sorry I'm late. I'll bet birthdays in heaven are awesome, but you must know how much you are missed here on earth.
karen s <kschaefer2@sbcglobal.net>
milwaukee, wi usa - Monday, May 10, 2010 8:23 AM CDT
Happy Birthday to Sammy and Happy Mother's Day to his Mama! I'm sure he is loving all of the attention on him for his special day. Thinking of you often! Love, KP
Kris Pallett
- Sunday, May 9, 2010 10:51 PM CDT
Hi Anne,
The value of a life is measured by the moments giving one's self, sharing wisdom, inspiring hope, wiping tears and touching hearts. You've touched many hearts just being the wonderful woman you are. Have a beautiful Mother's Day.
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Sunday, May 9, 2010 10:15 PM CDT
Happy birthday Sam!
I hope your Mommy will have a happy Mother's Day knowing that you are safe in Heaven and we can all be together again where there is no pain, fear, or sadness.
Tell Zach I said Hi, and tell Mamie and her Grandma and Jesus I love them.
www.caringbridge.org/al/mamieadams
Mamie's Daddy <georgefadams@gmail.com>
Huntsville, AL USA - Sunday, May 9, 2010 8:26 AM CDT
Have had Sam and Zach on my mind this week so I wanted to stop by and say hi. Praying for you all.
Cindy <kurtcindyb@aol.com>
- Friday, May 7, 2010 8:22 AM CDT
Dearest Anne,
Just a quick note to let you and your family know you are always in our thoughts and prayers.
Cousin Lynn and family. Duluth ,Mn
Lynn Walsh <law65@live.com>
Duluth, MN USA - Thursday, May 6, 2010 3:04 PM CDT
Zach's heartbeat never ends, we feel it and see it from your words of love written here...
There will most certainly come a time when you'll be together again...
Gods love to you all, Grace and Katey Olsen <olsens5@wi.rr.com>
Waukesha, WI - Tuesday, April 27, 2010 10:50 AM CDT
Dearest Anne,
As always you`ve expressed your deepest feelings to the world,this time on Zach`s 18th birthday.Thank you...On behalf of my family we wish you all the best of memories and hope the hurtfull ones start to dim.Though I know that will probably never happen.Maybe they will dim just alittle and allow you the very best moments to shine through.You brought back those memories of when I held each of my children for the first time and the joy I felt.
Anne you have such a gift for putting into words the hopes fears and joys and sorrows so well.I thank you..Please think about writing a book about your boys lives for Everyone could benifit,and help maybe some people see what joy they have in their lives through their children.Sorry I wrote such along note.Prayers and best wishes to you all.Hope your health is getting better.Also your Mothers..
Cousin Lynn Duluth Mn
Lynn Walsh <law65@live.com>
Duluth, MN USA - Sunday, April 25, 2010 5:58 PM CDT
What a beautiful, moving entry Anne. I'm sure that Zach and Sam have wonderful birthdays where they are. One day you'll be able to join in again, when you are reunited for eternity. All the best from the U.K. - thinking of you all.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Saturday, April 24, 2010 3:16 PM CDT
Anne,
I just read Zach's birthday tribute today (on Dan's birthday.) Your words are so beautiful and help me to realize the wonderful miracle our children are. Missing Zach and Sam...
Julie Turkoske
Waukesha , Wi - Thursday, April 22, 2010 8:03 AM CDT
Hi Anne
Happy Belated Birthday Zach. Thanks for touching my life in such a special way. My boys are 16 and 18 and when you would tell me some of the things Zach enjoyed, he reminded me of my younger son. I know your sons had challenges that my boys could not even understand. Zach lived his life well, was blessed to have the most wonderful mom and sisters and has an unbelievable following. I miss Zach even though I never met him, love him for the person he IS. Take care of yourself Anne
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ USA - Wednesday, April 21, 2010 7:45 PM CDT
Zach and Sam have been on my mind lately so I wanted to stop by to wish Zach a Happy Birthday!
Cindy
- Wednesday, April 21, 2010 7:30 PM CDT
sending love . . .
Kathy <corleyfive@comcast.net>
Signal Mountain , tn - Wednesday, April 21, 2010 2:16 PM CDT
Thank you, one more time, Ann, for putting into words what I feel. And yes, one more time I have tears. The day a child enters this world is to be remembered, and Zach sure is! Forever.
Theresa <bookangetl1993@yahoo.com>
- Wednesday, April 21, 2010 8:07 AM CDT
Happy Birthday Zach! Anne and family, I am thinking of you today and holding you all in my heart on Zach's special day. What an honor it was to know him. I am planning to give blood on Thursday as a special tribute to Zach (and Sam too), Warren also will be donating. Miss you at work Anne, hope you will be back soon.
Pat
Pat Carriveau <patcarriveau@earthlink.net>
Hartland, WI USA - Tuesday, April 20, 2010 9:39 PM CDT
Anne, Just want you to know you are in my thoughts and that I'm remembering Zach on his 18th birthday. I remember his handsome face, warm heart and special love of April Fool's Day. He certainly kept you and the girls full of anticipation come April 1st didn't he? What a prankster he was.
Mary Jean <mjgreen@wi.rr.com>
- Tuesday, April 20, 2010 7:17 PM CDT
HAPPY BIRTHDAY ZACH!
We always remember you on your (and, of course Kurt's) birthday. He is proud to share the day with such a special young man. Tonight we will eat cake in honor of your special day and hope that you are smiling down on us all.
Karen <kschaefer2@sbcglobal.net>
Brookfield, WI - Tuesday, April 20, 2010 11:29 AM CDT
Anne,
Hope you are feeling better. I will be thinking of you tomorrow as you remember Zach's Birthday. My oldest, Maddi, has the same birthday. I like to think that although Sophie arrived first, the boys are there to guide her and help her out in heaven and that they are there to shine their light on all of us.
Cindy Loppnow
- Monday, April 19, 2010 10:53 PM CDT
Hello Anne, Thinking of you and sending you well wishes. You, and your family, have touched sooooo many people and are truely an inspiration to me. Please know in your heart that you are thought of more often than you know...and I am very unfortunate to have never met you personally....I hope you feel better soon. Your in my thoughts and prayers always, your friend,
Wendy
West Allis, Wi - Friday, April 16, 2010 9:22 PM CDT
May your spirit be renewed by the miracle of Easter and the promise of each new day. May your faith be refreshed by the love and grace that surround and protect you always...
and may your heart be blessed with new joys that blossom all through a beautiful springtime. Have a Wonderful Easter
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Sunday, April 4, 2010 10:46 PM CDT
Hi Anne, Just wanted to stop by and say hi. I'm sorry to hear about all the health struggles you have been having. I was sitting here thinking about tomorrow being April 1 and it made me think of Zach and all the stories you have shared about his tricks on that day, which made me laugh so much. I hope it means a lot that Zach's stories are still bringing a smile and joy to others!
www.caringbridge.org/visit/beyea
Erica Beyea <debeyea@verizon.net>
Eden, ny - Tuesday, March 30, 2010 11:26 PM CDT
Just wanted you to know that I read someone's closing on FB the other day and they referred to themself as "The One and Only." I have to admit initially I was mad!!! In my mind and in SO MANY others Zach will always be "THE ONE AND ONLY!!!"
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Saturday, March 27, 2010 10:31 PM CDT
Hi Anne, good to know that your heart is responding well to treatment - healing hugs sent your way. Glad you enjoyed Samuel Patrick's Day :o) Best wishes from the U.K. as ever.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Friday, March 19, 2010 8:06 PM CDT
Thinking of you all!
Cindy <kurtcindyb@aol.com>
- Wednesday, March 17, 2010 10:07 PM CDT
Dearest Anne,
Thanks for the update on your health situation.Sounds serious,but seems treatable.Your heart is giving you problems? Meds helping? Immune system of this family is sure screwed up.Wonder where it originated from.Lots of strange ailments going on in this side of the family too.
Hope this merry-go-round that you seem to keep getting on gives you a break soon.I think our dr. need to do a study on all of us. Might help others. Prayers as always.
Cousin Lynn and Family.Duluth MN
Lynn Walsh <law65@live.com>
Duluth, MN USA - Wednesday, March 17, 2010 6:48 PM CDT
I thought about you a lot on March 3rd. Didn't have any connection to the world. I'm so glad I "found" you a few years ago but it was also with regret that I never met Sam or been there for you all those years. Funny thing is that when I think of Sam I smile. See, I just think of you because from all the stories you have told I am pretty sure that he was very much like you. So I imagine you as a 2 yr old, a 5 yr old, an almost 8 old and I cannot help but smile. The wonderfully fervent, passionate approach to each day that you attribute to Sam could have only come from his Mom who has always had the same approach to life Too many parents squash what was blooming in Sam but you allowed it to flourish and let Sam become Sam each day. You taught him how to choose joy. That I know even if I was not there because I have known you so long and also because I did get to witness how you nurtured the same in Zach during his first year of life. I am sorry Anna. I know things are so hard and always will be day to day. This life and profession and my imability to cure are hard to process at times. But it does not compare with my inability to cure your heartache. You know I would if I could.
B
- Friday, March 12, 2010 4:11 AM CST
You've been in my thoughts and on my mind all week Anne..Your precious, beautiful, funny, blonde haired, Kindergarden loving Sam has been in my thoughts too... I had some McD's fries this week too and thought of your dear ^Sam^ ...
God bless you both,
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Friday, March 5, 2010 9:22 PM CST
Thoughts of you and Sam entered my mind all week.Sorry to hear you are not feeling well.Take care ..Love and prayers always.
Cousin Lynn and Family.
Lynn Walsh <law65@live.com>
Duluth, Mn USA - Friday, March 5, 2010 5:20 PM CST
Sam popped into my head today so I wanted to stop by and say that I am thinking about you all.
Cindy <kurtcindyb@aol.com>
WAukesha, - Friday, March 5, 2010 11:08 AM CST
Sending you plenty of hugs and best wishes Anne, and thinking of you all from the U.K.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Thursday, March 4, 2010 7:41 PM CST
Thinking about Sam today and yesterday especially. Hard to believe 5 years have passed. Always remembering his smile and bright happy eyes! Sending love and prayers and wishing you comfort and health.
Meg Steimle <msteimle@wi.rr.com>
Wauwatosa, WI - Thursday, March 4, 2010 6:51 AM CST
Thinking of you today Anne!!
Amanda Glorioso <aglorioso@chw.org>
Milwaukee, WI United States - Wednesday, March 3, 2010 8:52 PM CST
It's hard to believe it'll be 5 years tomorrow since Sam left this world. I just wanted you to know I'm thinking about you and wishing your broken heart could heal. Hoping that the memories you hold so dear will help you get through another year. Sam will never be forgotten, and will always be missed.
Karen Schaefer
Brookfield, WI USA - Tuesday, March 2, 2010 11:22 AM CST
Just thinking about you and the anniversary of Sam's passing this week. I cannot believe it has been 5 years...doesn't seem possible. Of course it doesn't seem possible that Zach has been gone 2 years and Brody almost 6 mths. It doesn't seem possible, fair, or right. Guess you don't need me to tell you that. Just know that you are in my heart!
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA - Sunday, February 28, 2010 9:32 PM CST
Dearest Anne,
Just want to touch base with you and your family. Hope things are going okay with all of you. You are in our thoughts and prayers.
Cousin Lynn and family.
Lynn Walsh <law65@live.com>
Duluth, MN USA - Tuesday, February 23, 2010 10:43 AM CST
Dearest anne,
As always you write with such clarity there is never a doubt of how you feel and your interaction with the rest of us that makes us feel as though we are part of your experiences. Thanks you....And I never meet your boys personally yet I feel I knew them always because of you. Sharing their laughter and joys and pain are so so real through you. Thanks again for you. And you really shoud write a book about their lives and your families together. It would be all inspiring ....Never doubt your ability to relate your true feelings cause you do it with grace and style and show your love always. Through you doubting and questioning even those who are in the know seems more easy to do. As we always should feel able to ask question and be able to question something we don`t think is quite right to us .For there are many ways to treat someone and new thoughts and ideals should not be dismissed quickly by anyone especially a health care person.I have such a Dr. and am so glad to have him he always listens and works with me and my husband on everything. Sorry didn`t mean to ramble on so. Keep up the good work.
Thank you cousin Lynn and Family.Duluth Mn
Lynn Walsh <law65@live.com>
Duluth, MN USA - Saturday, January 23, 2010 1:42 PM CST
Hi Anne, I'm glad that the blood drive was a success :o) As always, sending you all best wishes from the U.K. May 2010 be a year of blessings for you all.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Thursday, January 21, 2010 6:40 AM CST
Anne, you really need to write a book. There is so much power in your writing. You could really open the eyes up of so many people in so many ways. I always read about Zach and Sam on their caringbridge page and reading their story helped me after losing our granddaughter. Her death was not from a disease but from lack of receiving organs needed. You have really inspired a lot of people to give blood (me included). Zach and Sam were as lucky to have had you for a mom as you were for having them as your sons. Take care.
Lynne Barker (Grandma to Dylan Faith Kulik) <lbarker@asd.net>
East Peoria, IL USA - Wednesday, January 13, 2010 8:58 AM CST
Anne, Of course that was an extremely touching entry again! I need to plan my timing when I read them, as I always need a moment (or ten) to reflect. I wanted to share a little story with you as well. My son, Mark is 13, and he has never met Zach or Sam. When I came down to Ten Chimneys to donate, it made me a bit late for "Dinner on the House" with my boys. (Not much). Needless to say, they asked me where I had been, and I told them what I was doing. I told them that one blood donation can save three lives. He was very impressed! He asked if he was old enough to donate. I told him that he wouldn't be for a couple of years, but when he was, I would certainly sign his papers. He sat quietly for a minute, and then said "But Mom, I thought blood cells didn't even have any mitochondria". (Gotta love 8th grade science class.) I explained to him all the reasons someone might need blood even if they didn't have a mitochondrial disease. Momentary silence again... then he said "Mom, you should donate right away next time you can! Then "how come Dad doesn't donate.....He's probably too scared". I am always surprised by how caring and how very intuitive he is! Your boys absolutely have made an impact on our family...even the members that never got to meet them!
Jennifer Gawalek <jgawalek@yahoo.com>
- Wednesday, January 13, 2010 7:56 AM CST
I believe people are put in our paths when we need them. I am glad that she was put in your path today even knowing that you would have much rather had Zach and Sam.
Cindy <kurtcindyb@aol.com>
- Tuesday, January 12, 2010 6:30 PM CST
Dear Anne,
What a beautiful post. Thank you. While I couldn't make it out to 10 Chimneys last Wednesday, I did donate blood last Wednesday at the blood center. As I squeezed that little squishy thing they give you, I thought of Sam and Zach. So, I figure, add my pint to your total. That's 120, right?
Love you,
Kaf
Katherine <kfrontier@chw.org>
- Tuesday, January 12, 2010 5:07 PM CST
Dearest Anne and Family,
Merry christmas and Happy New Year. The time goes by so fast now adays not sure if it`s because of growing older...
Hope your blood drive gets more people as the time draws near.Glad Brit got to visit. Hope your Mother Is still doing okay..Say Hi From all of us Royer`s in Duluth and else where around the country. Sure your Angel`s where watching over you especially this time of year.
Take Care and God Bless you and yours now and always..
Love cousin Lynn and family...
Lynn Walsh <law65@live.com>
Duluth, MN USA - Saturday, January 9, 2010 3:38 PM CST
I hope you enjoyed your week off with your girls. I am thinking about you and just wanted to let you know. I have no words of wisdom, no answers for the pain you feel each day, all I can say is that I care and am always there to listen. Thanks for posting your feelings. I am so grateful that your boys taught me so much, life lessons that have altered the way I think and feel for the positive. Take good care of yourself Anne in the coming year.
Love, Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
denville, NJ USA - Saturday, January 2, 2010 12:04 AM CST
May the dawn of New Year leads you to the path of beautiful tomorrows and brings abounding joys, filling your heart with love and home with happiness. New Year is meant for celebrations and spending joyous time with loved ones. May the beauty of New Year be with you forever and your wishes of peace, health and happiness ring true.
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Friday, January 1, 2010 8:53 AM CST
I can vouch for you crying when Frosty melts, way back when. "I have to get Busy, busy, busy!" Remember that?
Zach and Sam will come back someday or you will find them. You know how agnostic I am, but I know you promised to find them and I do believe you will.
Thinking about you.
Bill
.
- Saturday, December 26, 2009 1:40 PM CST
It's Christmas, hearts reach out and memories come alive in the warmth of love. Once again, it's Christmas - that delightful time of year when hearts are filled with gratitude and homes are bright with cheer. When everyone's remembering good friends and loved ones too - so naturally, the warmest thoughts and wishes go to you. May your home be filled with happiness, your hearts with love, and your days with joy - at Christmas and always! Friendship is a promise strengthened by each smile, each teardrop, and each treasure of life that’s shared. We share so much as friends — thanks for being a very special part of our lives. Merry Christmas.
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Friday, December 25, 2009 10:22 AM CST
Merry Christmas Anne! Thinking of you and your boys today - missing Zach! I'm glad you got the Darth Vader ornaments up on the tree!! I hope you have a good week with your girls!! Talk soon~
Love Amanda
Amanda Glorioso <aglorioso@chw.org>
Greenfield, WI United States - Friday, December 25, 2009 10:03 AM CST
I just got to read your update for the 29th. Somehow it wasn't showing up on the main page. I just wanted to make sure I had "caught up" with all your entries. When I read about Zach being untarnished I can relate. Sam was the same way...so was Brody. Some of their expressions-(like jokes, persistence, and an occasional standoffishness) might have seemed imperfect, but thier hearts were pure and PERFECT! Your words on this site are important...they let me know I am not alone in my feelings, only you can probably understand the magnitude of that statement.
Always remembering-
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Saturday, December 5, 2009 10:58 PM CST
Dearest Anne,
As always you have written with such clarity there is no way any one could misunderstand how your life and that of your two angels that have passed on and when to a place that they can no longer hurt or feel pain but only peace has effected not only your life but our`s as well. I`m often amased at how much through your words your boys have come to life before my eyes and i am very greatful for their haven been and that you have shared them with me. Zach and Sam were and still are those wonderful and amasing beings that God blessed you with .that helps the rest of us appreaciate even more through you our own lives both happy and sad as ways to learn and appreciate what we have now and in the future.Sam and Zach where blessed also by having a Mother like you who through your examples also learned at an early age what living for the moment ment for you never know how who or what you do with effect other now or in the future. I hope someday to meet you and the rest of your family. Maybe you could put Duluth Mn on your list of places to visit some day.It would be great to see your mother Mary Jo again as well as Your Aunt Judy and Uncle Dan.Probably will never happen but wish it could. I`d also like to see My uncle wayne again.But I know it is probably hard for him to travel at he`s age.
Take care Have a better Holiday season this year for your boys would want it for you.
Love cousin Lynn(Royer) Walsh Duluth MN
Lynn Walsh <law65@live.com>
Duluth, MN USA - Tuesday, December 1, 2009 6:33 PM CST
Hi Anne
I cried reading your last post and I thought about how much you miss Zach, how grieve may change direction but not actually get easier. How can you not miss Zach, he was and is your One and Only Zach. I loved him myself just from the pages of your beautiful posts, I just wish I knew him personally. He did know how to really love and he did teach you so many things about life that will always be with you, things that are making you live a different life yourself now. Zach taught me a lot as well, things I hope will make me act differently. I cannot do anything about the pain of missing Zach or Sam, but please know that I do care about you and really loved your boys. I have forever been changed from knowing them and knowing you. I loved your post, thanks for telling us why Zach was so special to you.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Tuesday, December 1, 2009 4:34 PM CST
Thinking of Zach and how it seems impossible that two years have passed since he left to go to another place. He and Sam will wait patiently until they can be together with their family again. He really was a great kid, I am honored to have known him.
Pat Carriveau <patcarriveau@earthlink.net>
Hartland, WI USA - Monday, November 30, 2009 2:00 PM CST
Thinking of all of you and remembering Zach and Sam.
Mimi <mimischwarz@sbcglobal.net>
- Sunday, November 29, 2009 5:02 PM CST
I'm finally getting smarter. If I see that you've updated, I grab a tissue before I sit down to read it. I've been thinking of you all a lot over the past few days, and I've been trying to send some good vibes your way! I called the blood center earlier in the week and asked them if I could donate one day early. I told them why I needed to donate on that day, and they said it would be fine. So, I'm scheduled at 2:30 for a double.
Jen
Jennifer Gawalek <jgawalek@yahoo.com>
Menomonee Falls, WI USA - Saturday, November 28, 2009 6:32 PM CST
I've been thinking of Zach alot over the last few days. I said a little prayer for hinm and for you on Friday. I guess because it was Thanksgiving and I recalled how much he enjoyed Christmas - not so far away. It must be tough even now to get through the holidays. Please know that Zach and Sam are in my heart and in my thoughts. They are very special boys and I will remember them always.
They are both luckey to have you as their Mama and I know Brittany and Abby feel the same.
May the spirit of this season warm you with the memories that make you laugh and smile. Be well my friend.
Meg <msteimle@wi.rr.com>
- Saturday, November 28, 2009 12:23 AM CST
My eyes misted up as I read this latest update. ^Zach^ had a special, loving heart it's plain to see. I just know he shines in the afterlife. Best wishes sent from the U.K. as ever.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Friday, November 27, 2009 8:27 PM CST
We are all thinking about Zach today! He is never far from our thoughts or our hearts.
Hannah Bergland <hanbana23@aim.com>
- Friday, November 27, 2009 8:25 PM CST
My eyes filled with tears, Anne, because I've always felt blessed to be the mother of Michaela...that SHE certainly taught ME more than I could have taught her. I believe our special children came to earth knowing everything they needed to know, and that they came to enlighten. I laugh now at the thought of Michaela having an IEP - that she, Zach, and Sam could actually be GRADED on anything! They were all in a class by themselves, to be compared with NO ONE.
Theresa <bookangel1993@yahoo.com>
- Friday, November 27, 2009 6:26 PM CST
Reading your account of Zach defending dear Sam's life and eternal presence has me in tears..God bless your dear wise Zachary..Indeed Zach lives on in his lessons as you retell his stories and I thank you for continuing to share your precious sons lives with us. The lessons continue and Zach lives on in those.. HUGS,
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Friday, November 27, 2009 6:23 PM CST
Thinking of Zach today!! Missing him so much! I'm thinking of some practical jokes I can play in his honor :) I hope you and the girls are able to spend time together today!! Miss all of you!
Love,
Amanda
Amanda Glorioso <aglorioso@chw.org>
- Friday, November 27, 2009 11:19 AM CST
Just wanted to stop by and send some hugs. Thinking of you all during this time, and wanted to let you know that we are remembering the boys in a special way!
Erica Beyea <debeyea@verizon.net>
Eden, NY - Thursday, November 26, 2009 3:49 PM CST
The things that matter most of all are often close at hand — A touch, a hug, a gentle look that says, “I understand.” The smile that inspires us, the words that let us know the way our hearts are leading is the way that we should go — These right-before-us, simple things may seem to be so small, but they’re what life is made of, and they matter most of all. May you find time this Thanksgiving to enjoy the things you hold closest to your heart. Thoughts of you at Thanksgiving are also heartfelt prayers that you and your family be blessed with much happiness, and that all of you will always know how very special you are.
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Thursday, November 26, 2009 2:01 PM CST
Dear Anne
Happy Thanksgiving Anne. I hope you and the girls enjoy your day and think on all the good and wonderful memories you had as a family. Happy Thanksgiving Zach and Sam, enjoy your feast with Jesus and all your other friends. Praying for you this month especially, but you are always in my thoughts and prayers. To Sam and Zach's forever Mom, please try to enjoy your day.
Love,
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ USA - Thursday, November 26, 2009 1:03 PM CST
Hugs sent from the U.K. as ever. Thinking of you all. Have a blessed Thanksgiving.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Wednesday, November 25, 2009 7:08 PM CST
Anne
You are always Zach and Sam's mom and you are always you. I would recognize you anywhere.
B
.
- Tuesday, November 24, 2009 11:28 PM CST
Dearest Anne,
You expressed your self very well, and your right people will not think of your boys as often .But they will never forget them entirerly.Because through you they have become part of our being as any other person who passes through our lives.We may not think of them every day but they will alway have a place in our hearts. And as with you something will bring them to our minds now and then.
Take care and thank you again for sharing your family with us.
Cousin Lynn(Royer) Walsh
Lynn Walsh <law65@live.com>
Duluth, MN USA - Thursday, November 19, 2009 11:36 AM CST
Hi, My name is Amy. I was just diagnosed with mitochondrial disease, and joined a mito group on yahoo. I have been looking through other caring bridge guest books to find people with mito. I came across your caring bridge website and it brought me to tears. Your love for your boys comes across in such a huge way. I am sorry for your loss, but happy for your gain. You gained two wonderful boys that spent their days happy because of you. I am not a mother - I am was trying to conceive but recently told it would kill me - so I can't say I understand your feelings or know what you are going through, but i do know what it is like to lose someone you love. I think about my grandmother every day, many people stopped talking about her long ago, she's only been gone now for two years. It doesn't matter though, yes it hurts to think people could move on so quickly, what matters is that your boys are living through your memories and through you. They always will, and NO ONE can take that away from you. Truly I miss your boys even though I didn't know them. Your story really touched me, I hope you don't feel me as intruding as I wasn't given your caringbridge website directly by you.
With Much Love & Lots of Hugs,
Amy Witonsky
www.caringbridge.com/amywitonsky
Amy Witonsky <amywitonsky@gmail.com>
Albany, NY USA - Tuesday, November 17, 2009 8:43 PM CST
Well said, Anne. The time away from Michaela is longer and longer with time, but then again, I could say that it is a shorter time until I see her again. Zach and Sam will forever be a part of what you do on a daily basis - they are threaded throughout you, just as Abby and Brittany are. I believe our children are evolved versions of us, and I can only hope to hold onto their coattails!
Theresa <bookangel1993@yahoo.com>
- Tuesday, November 17, 2009 7:28 PM CST
always thinking of you and the boys.... and the girls too.
Hugs,
Catalina
catalina
- Monday, November 16, 2009 2:17 PM CST
Anne, At the moment I am unable properly express my feelings. It seems like my ability to write lately is more than lacking. The words are stuck in my head. I feel like a dog chasing his tail -the words are spinning in my head and I'm constantly chasing them. doesn't the dog catch the end of his tail every now and again though?? I have something I want to say but WHERE ARE MY WORDS!?
Love
krystena <krystena@easiky.com>
- Monday, November 16, 2009 11:43 AM CST
Hi Anne
I still think of you as Zach and Sam's mother, you always will be. That is who you are, a wonderful mother, an amazing mother to 4 beautiful children. I did not know Zach and Sam personally, but through the pages of your posts, I feel like I know them. I know the last about 2 years of Zach's life I followed closely because it was just something about him that drew me in. My heart still aches when I think about your loss, losing one child is too much. Anyway I love hearing about your memories of your sons, if you repeat a story that is fine with me. It was great reading your post and I also like to hear from you to make sure you are okay.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ USA - Sunday, November 15, 2009 5:17 PM CST
Hi Anne. I don't want to reiterate what so many have stated. I will simply state that I love to read your entries. Your courage to say what is so difficult to express is very inspirational to me. I remember Zach and Sam very clearly, although I did not know them all that well. It is because of them that Megan's care as a youngster was so excellent, and possibly the reason that she's still here. The way you have handled things with your girls gives me insight into how to handle my boys. Your whole family, and your story continues to give me the stregnth to write ours. I wish I could give you a hug today. I would love to hear Zach and Sam stories if you would ever like to share!
Jen and Megan
www.caringbridge.org/visit/megangawalek
Jennifer Gawalek <jgawalek@yahoo.com>
Menomonee Falls, WI USA - Sunday, November 15, 2009 3:29 PM CST
Hi Anne, Just checking in on you. Always thoughts and memories of you and Zach and Sam. I'm sad that there aren't new memories too, but the ones I have are worth their weight in gold. I still remember admission Sunday nights when you guys would come rolling in. Sammy in his little stroller...aww:) You would be all set for the week. Movies to fight over with Zach usually giving in to Sam's wanting to watch the same movie over and over.
It wasn't easy to see Zach so sick in the ICU, but it was even harder to say goodbye to him. I will always remember your boys and share memories with those who knew them and those who didn't. Love, Kris
Kris Pallett <kpallett@chw.org>
- Sunday, November 15, 2009 1:57 AM CST
I agree with Colleen, Ann - your entry was amazing - and so true...
-Lyn
Linda Marie Codier www.caringbridge.org/az/bonniemarie <lynmarieco@cox.net>
- Thursday, November 12, 2009 2:04 AM CST
Your writing is brilliant, Anne. You state in words what so many others can never state verbally, much less write. The human condition can be so cold and seemingly heartless when two bright lights in the world are extinguished and life goes on. The truth is that because of those two bright lights, so many lives were changed forever. I love that you maintain this site because the reminder of all that you have gone through is one that we need so often. SInce relocating to NV, I have been teaching a number of children whose birth parents were addicted to drugs prior to and during their prenatal months and afterwards. I think of how hard you fought for your boys' lives and how little these people cared. By returning here tonight after many months away, I am now inspired to return to my classroom tomorrow with renewed energy to fight for these kids whose parents did not care and who are now with relatives or in foster care. Zach and Sam are never far from my heart and I am spreading your love and committment for your boys out here.
Colleen Hecimovich <mikkicol@yahoo.com>
Reno, NV USA - Wednesday, November 11, 2009 11:40 PM CST
So yesterday Hannah and I were in the car waiting to pick up Michaela and Hannah says to me, "Mom, you know it is almost 2 years since Zach died." Then tonight we stopped at my in-laws as they called to tell us they got a new puppy. So we head over to see the puppy, walk in and find out that they named the puppy Zach! Hannah stopped in her tracks literally she went from reaching out to touch the dog to pulling her hand back to turn and ask me if I heard that they named the dog Zach! WEll--I was standing right there so it would have been hard for me not to hear. Thinking about Zach the last day or so brought me to the site and then I read your entry. My heart is heavy. There is so much that I wish could change. I wish time didn't go so fast. I wish that Zach and Sam were still here. I wish that I understood the whole,"there's a reason why these things happen." I guess all I can say from our little corner is that Zach and Sam are thought about, talked about and loved by the Bergland Family.
Cindy
Waukesha, - Wednesday, November 11, 2009 8:38 PM CST
There isn't a day that goes by that I do not think of you and those boys. I have been bad about checking sites lately. Life is really hard these days but I wish I could bring myself to check your site more often. You are such an inspiration, as are Zach and Sam. How painful it is to just read about what transpired. I cannot imagine living it. As you know... I'm a little partial to boys :) Your boys stole my heart. Over the years, I am so glad you have taken the time to share stories about their likes, dislikes, their personalities and their desire to live. They were magnificent little people. I'm sure Zach wouldn't like being called little :) but he was little when I first "met" him. I still remember where I was and what I was doing when Dawn called to tell me Sam had passed away. I was driving and remember exactly what mile marker I was on. I read about Zachs passing myself. Please know your little men will always be remembered and loved.
Krystena <krystena@easiky.com>
- Tuesday, November 3, 2009 7:36 AM CST
Every time I think about those last days, I think about how much I wanted him to wake and laugh about the camoflauge gown from the land of guns and knives!
Kathy <corleyfive@comcast.net>
- Tuesday, October 27, 2009 8:38 PM CDT
Dearest Anne,
Thanks again for your thoughtful and insightful words as always when you speak of your boys and also about their friend brodie.Very sad but always with laughter at some of their ways of expressing them selves and how they injected their brand of humor to the rest of the world with how they handeled them selves.
Take care and thanks again for your loving memories and sharing your heart ache with us. I hope when you do this it helps you go on and makes it easier to move forward.Though I know it never will go away completely the pain. But as you have often said of your two angels they loved to laugh and could make other people laugh with them. That`s worth alot.Hope it helps comfort you.
Love Cousin Lynn and Family always in our prayers.
Lynn Walsh <law65@live.com>
Duluth, MN USA - Thursday, October 8, 2009 9:29 AM CDT
Oct 6, Thinking about Kevin today. Nine years seems too long doesn't it? I often wish he was here because he would know just what to say to make you mad and then make you laugh. It's hard not to laugh thinking about that. He had it down to a science.
I don't have his talent but been thinking about you the last few days and today. Many memories and miracles to think about.
I know you're exhausted. Praying God gives you the strength you need.
Mike
- Tuesday, October 6, 2009 8:45 PM CDT
Hi Anne
I learned that Brody's battle with Mito disease ended through Deb, my heart aches to know another child died to that awful disease. I cried reading your post, I remember coming home each day from work, just hoping and praying that Zach would make it. I am so grateful that Zach was given just a little more time and that he knew how much he was loved,and cared for by all his doctors, nurses, all his medical team and most of all by his wonderful and amazing mom. Your post was so touching and I so appreciate you sharing your feeling with us. Your words on the life Brody lived and on his great mom was beautiful. So many of you parents share the same heart ache, you all had the most amazing kids and you are all in your own unique ways are out doing things to make a difference in honor of your children. I cannot say enough how much I loved Zach even though I never met him. Those 9 weeks were rough for me, never mind for those who really were close to Zach. I was not reading your posts when Sam was alive, but he sounded like a funny kid. Anne thanks for posting and take care of yourself.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Sunday, October 4, 2009 8:35 PM CDT
Thinking of you and remembering the night of Oct. 3rd/ Oct. 4th morning. We would not give up on Zach, and I kept wishing we could call another attending doctor to help us. Thankfully Zach came back to us... to you! Much love for you and your boys. I'm attempting to run Al's run on Saturday, and will be running with the boys' spirit! Love, KP
Kris Pallett
- Sunday, October 4, 2009 5:07 PM CDT
Sorry to learn of Brody's passing. Another wonderful little flame snuffed out too soon... Best wishes sent to you all as ever from the U.K.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Saturday, October 3, 2009 2:09 PM CDT
"Let me win, but if I cannot win, let me be brave in the attempt." I think that's the special olympic quote. It seems to also be the motto of the 7 yr old red and yellow power rangers who have taught everyone a lot. Hang in there Anna B.
Bill
.
- Friday, October 2, 2009 11:14 PM CDT
I was thinking about Zach and Sam tonight and realized that I haven't written in a while but wanted you to know you all continue to be in our prayers.
Cindy <kurtcindyb@aol.com>
- Wednesday, September 23, 2009 9:50 PM CDT
Dearest Anne,
Hope this e-mail finds you and your family doing well,including your mother. I`ve got a new e-mail address but it`s still your cousin Lynn from Duluth. Prayers as always..
Lynn (Royer) Walsh <law65@live.com>
Duluth, MN USA - Tuesday, September 15, 2009 6:50 PM CDT
Just stopping by to say hello. Was thinking of you all tonight. Thinking about Zach and Sam. Hope all is well. I'm so happy to hear about the great success of your team for the walk. What a tribute to the boys! :-)
Erica Beyea <debeyea@verizon.net>
Eden, NY - Saturday, September 12, 2009 11:28 PM CDT
OUR THOUGHTS AND PRAYERS ARE WITH YOU. WE MISS SEEING ALL OF YOU AT THE OFFICE.
BETTY, VICKY, ILENE, VICKIE <betty@skinsolutions1.com>
COLUMBUS, IN USA - Thursday, September 10, 2009 8:29 AM CDT
I can't wait to live closer and be a part of your team next year! I'm so glad it was so successful this year. I hope things are going well for you.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Sunday, August 30, 2009 9:16 AM CDT
Hi. I am so sorry you lost Zach and Sam. In a bad translation of a lovely prayer, may you be comforted among the mourners of Zion.
I have Mito disease and receive blood regularly. Your blood donation slide show is WONDERFUL. May I put it on my site, credited to you, of course?
I am lucky enough to have a mom who is an R.N. We were wondering if there is any process to request infusing blood products at home. I need platelets 3xweek and PRBCs weekly, FFP on a more irregular basis. We are allowed to give clotting factor at home. I would be grateful for any info on this. We are in Michigan.
Thanks very much. Blessings to your family.
Miri
www.caringbridge.org/visit/mirib
Miriam Braunstein
MI USA - Thursday, August 27, 2009 0:11 AM CDT
Thinking of you today. Nena
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
- Tuesday, August 25, 2009 7:11 AM CDT
Dearest Anne,
Just checking in to let you know that you are always in my thoughts and prayers.Feally glad to hear your mother is recovering so well. Fantastic.
Take care Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Friday, July 17, 2009 12:24 AM CDT
I love the poem! :)
Kathy <corleyfive@comcast.net>
Signal Mountain, TN - Thursday, July 16, 2009 11:28 PM CDT
Anne, I can so hear and see Zach crossing out the sign to mess with Brittany. I also love the notes for daddy. He would get so frustrated that Lou hadn't paid up! I love it!
Hope <hmaptchak@yahoo.com>
- Sunday, July 12, 2009 5:09 PM CDT
Hi Anne
Loved your pictures, you made the most of your time together and of course the time was not long enough. Thanks for sharing the funny notes, your memories, funny stories and also the painful side of life, living your life without them. You are an amazing mom and I feel honored to know you even if it is only through CB. I don't miss Zach and Sam like you do, but I do miss them. Sam and Zach just captured my heart from day one and I really loved them. I think of you so often and I hope you are okay. I was reading Deb's post about grief, that it is not confined to a period of time, it is more like a life long journey, so true. I am sending you all my thoughts and prayers your way and letting you know that I care. I love all of your posts, even the ones that are painful to read.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Wednesday, July 8, 2009 10:17 PM CDT
Love the 4th of July pictures of your kids. It just seems like every moment is lived to the fullest. What a gift that is.
Cindy
- Tuesday, July 7, 2009 10:09 AM CDT
What It Means to Be an American
To believe in the promise of a better tomorrow, and stand united in our efforts
to give a peaceful nation to our children...
To honor each other's differences and cherish the richness of our history, even as it continues to unfold from sea to shining sea...
To love deeply our friends and family, day by day, and never take for granted
the privilege of calling ourselves American. America — we are more than a people, we are a family.
Happy 4th of July
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, July 4, 2009 10:57 PM CDT
Well once again you have managed to bring me to tears with your words... I love hearing about your boys, and your words always hit home.
I came here today specifically looking for your Nov 27th 2008 entry - your GPS comparison is one that I think of on a daily basis... as I find my brain saying 'recalculating' 'recalculating' while we stumble through this foreign landscape.
While we find ourselves in a nightmare, we draw strength from those who are with us.
And you my friend, are with us daily.
Thank you for sharing your life, and your boys with the rest of us.
Love always,
Keely
www.caringbridge.org/visit/brandonandtyler
Keely
- Tuesday, June 30, 2009 8:17 PM CDT
Hi Anne, your entries never fail to move me. This one teared me up as I read those moving notes from the Bethseda School. Sending best wishes from the U.K. and thinking of you all as ever.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Sunday, June 21, 2009 1:16 PM CDT
Dearest Anne,
Sorry I haven`t written for awhile. Life has away of distracting us soom times.Family ,health issues etc.
Books are wonderful, Couldn`t read enough myself when I was young got me through afew things.Don`t read as much as I should any more. Thanks for sharing one more of your lovely moments with us. Take care always in our thoughts even though I don`t always write.Prayers and best wishes. Hope your mother is still moving forward towards better health.Last notation from her site was about her hearing aids.Nothing has been posted since. Cousin Lynn and family..Duluth Mn.
Lynn Walsh <irishcoast1@hotmail.com>
Duluth, MN USA - Saturday, June 20, 2009 10:28 AM CDT
Anne~
Thanks for sharing about the Bethesda School community. Sam loved books like Michaela loved books, it seems...and he impacted people! So glad I read this...
Theresa <bookangel1993@yahoo.com>
- Friday, June 19, 2009 8:02 PM CDT
Hi Anne
Sorry I haven't written in awhile, life just gets so busy sometimes. I used to give blood up until last April, I was at my church supporting Deb and Scott's blood drive in Connor's memory when I was denied. The blood center said I couldn't because I have not been cancer free for 5 years yet. I had thyroid cancer 5 years ago this June. However for the past few years I have been donating and I do always answer all the blood centers questions honestly. Well I was so disappointed that day. When I started getting to know these special children, like your boys, it made me feel helpless. I would lift them up in my prayers, but I always felt I needed and should do more. I have been giving blood for years and cannot wait until I am able to start giving again. Deb and Scott have blood drives about every 2 or 3 months which I think is great. It is so easy to do and these children like Sam, Zach and Connor would not have lived as long as they did without our life saving blood.
So please all you healthy adults please go out there and give blood on a regular basis. Summer times blood banks are begging for donations, so please help.
I miss posting to you and I love all your beautiful posts. Missing Sam and Zach.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ USA - Friday, June 19, 2009 2:42 PM CDT
I am a regular blood donor - have been since I was 18 years old (which is more years than I can count!) I am also 0-negative - I typically give a minimum of 4x/yr.
While I have never needed blood, I have family who have, and can only say in has strengthened my resolve to give!
O-negative donor in the Midwest
Midwest, USA - Thursday, June 18, 2009 5:54 PM CDT
Hope your working on your book so we can all add it to our piles and shelves.
Your boys are always in our thoughts as are you.
Kris and the boys <pnkntwins@charter.net>
- Monday, June 15, 2009 7:16 AM CDT
Anne,
Thank you for reading Abby's website. I have read through as much of your caringbridge pages as I could. The death of Abby is so fresh, it is difficult to read other's stories, but now I know we are not alone in this dreadful experience of mitochondrial disease and death. Your messages are very insightful and honest.
Beth Kasuba
Beth Kasuba <arktjk@comcast.net (believingandachievingforabby.com)>
Wheaton, IL - Sunday, June 7, 2009 6:59 PM CDT
Hey Anne,
I havent read your site in a while, but not for lack of thinking of you... I found myself thinking alot about your GPS comparison recently... sure does encompass what 'life with mito' is.
Your words are good for a tired heart - I will be back more often.
Hoping for peace,
Keely
www.caringbridge.org/visit/brandonandtyler
Keely <kschellenberg@mts.net>
- Wednesday, June 3, 2009 1:15 PM CDT
Happy Graduation Sam! Heaven must have wonderful celebrations for children graduating from the 5th grade!! You are always on my on my mind and in my heart.
Love,
Krystena <momof2withga2@yahoo.com>
- Wednesday, June 3, 2009 11:17 AM CDT
It has been a while since I have written but not a day goes by that I don't think about Zach and Sam.
Cindy <Kurtcindyb@aol.com>
- Tuesday, June 2, 2009 5:23 PM CDT
Just checking in. Hope the sun is shining and the days are warmer for you. I know Lauren shared with you that Brody and Abby were neighbors in Cleveland...how ironic to meet someone from Atlanta in Cleveland. All I can say is the world is full of Anne Juhlmann friends!!!
Take care,
Kristi Cole & Brody
www.carepages.com
Carepage Name-brodyjcole
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA United States - Saturday, May 30, 2009 8:18 AM CDT
Remembering your little soldiers today. Love and comfort to all of you.
Kris and the boys <pnkntwins@charter.net>
- Monday, May 25, 2009 9:34 AM CDT
Sorry so belated on wishing Sammy a Happy Birthday! I miss him very much, the good old days with Zach and Sam at 7am on 4 west. "Now Sam, don't wake Zach up..." I'd step out of the room for a minute and miraculously Zach would be awake and all of the lights would be on...hmmm? Never a dull moment with Sam Juhlmann around. Forever in my heart, Love, Kris
Kris Pallett
- Monday, May 25, 2009 2:35 AM CDT
God bless America and keep us safe and free — Safe from all our enemies, wherever they may be... Teach us to walk humbly and closer in Thy ways, Give us faith and courage and put purpose in our days, Make each one of us aware that each must do his part, For in the individual is where peace must have its start — For a better world to live in where are all safe and free Must start with faith and hope and love deep in the heart of me. ~ HELEN STEINER RICE ~
The beauty of a life well-lived becomes a legacy that stays behind and warms the heart with every memory. Our family is thinking of you on Memorial Day wishing you peace and happiness today and always.
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Sunday, May 24, 2009 3:54 AM CDT
I have read about Sam wanting to fly every day for a week and I laugh each time thinking how Sam is not so different than his Mama. I don't know where they are either. I like to think they are everywhere, most of all in your heart and the hearts of all who knew them and of them. It often occurs to me that wherever they may be Jack must delight in Sam and also feel he's found a soulmate in Zach. The world needs both and you, Anne, nurtured both boys to give what each had to offer. Random splashes of bright orange and smooth strokes of purple.
I hope you're resting and feeling better. Don't mess around with that shoulder/arm. I need you to be well for I think the world is not nearly done with you yet. I've told the others that Zach says we are "doctors without a border" and it gives us a great laugh which is often needed. We could use Zach's humor or an Anne/Sam "disturbance" most days.
Remember I'll be "out of touch" for some time now.
Love you my friend. Keep flying.
Bill
.
- Tuesday, May 19, 2009 11:22 PM CDT
Your baby birds are flying now, Anne! Happy birthday, Sam!! Hello, Zach! I know that you are still winning at UNO..how do you DO that anyway?! Love you both....
Colleen Hecimovich <mikkicol@yahoo.com>
Reno, NV USA - Wednesday, May 13, 2009 11:51 PM CDT
What a moving post, Anne - had me misting up... I hope your Heavenly Birthday was fun, ^Sam^ :o) Praying for you all and sending best wishes from the U.K.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Monday, May 11, 2009 7:06 PM CDT
Oh Anne, My heart is breaking. I will never take another day for granted. Everything else can wait. Today is too precious. Thank you, thank you for sharing Sam's life with us. What an amazing little boy. I feel like I knew him. Sam and Zach both will forever be in my heart. I think about them a lot. I don't know what else to say. Other than, you are also an amazing person/mother.
Much love,
Krystena <momof2withga2@yahoo.com>
- Monday, May 11, 2009 1:58 PM CDT
Happy Mother's Day Anne! I didn't know until this post that you brought Sam home on Mother's Day...this is why your continued posting is so very important, because we are all still learning things about your special boys.
Happy Birthday Sam!!! When I read your post on FB about Sam loving you 700 cc's or to the moon and back 500 times I could so relate.
Thinking of you on this day especially...
Kristi Cole & Brody
www.carepages.com
Carepage Name-brodyjcole
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA United States - Monday, May 11, 2009 0:06 AM CDT
There are times when only a Mother's love
Can understand our tears,
Can soothe our disappoints
And calm all of our fears.
There are times when only a Mother's love
Can share the joy we feel
When something we've dreamed about
Quite suddenly is real.
There are times when only a Mother's faith
Can help us on life's way
And inspire in us the confidence
We need from day to day.
For a Mother's heart and a Mother's faith
And a Mother's steadfast love
Were fashioned by the Angels
And sent from God above.\
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Sunday, May 10, 2009 8:15 PM CDT
Happy Mother's Day Anne. Happy Birthday to you Sam. You are all in our thoughts and prayers and give us daily inspiration.
My boys are just around 7 years, 9 months, and 20 so days old....your post touched my heart as always. I will be a better Mom today...thank you all for your gifts.
Kris V <pnkntwins@charter.net>
- Sunday, May 10, 2009 7:00 PM CDT
I loved the story of Sam. I know I'm a day late, but I was thinking of him yesterday and always feel I have met him because of your stories.
Happy Mother's Day Anne. Your children have have all been blessed to have you guiding them on this journey and just as Sam always knew, giving them wings to fly.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Sunday, May 10, 2009 11:29 AM CDT
Beautiful Sam- I cannot even imagine you at 12 years. What a pre-teen you must be! Happy birthday.
Julie Turkoske
Waukesha, Wi - Saturday, May 9, 2009 3:48 PM CDT
Happy Birthday Sam! You are so loved and so missed!
Cindy
- Saturday, May 9, 2009 3:44 PM CDT
Happy Birthday dear Sam. Your Mama wrote such a beautiful story all about you. I remember how you loved birds, and the bird I call " Sam Bird," an oriole, with your favorite color, came to sit at the feeder for the first time today. I felt like your spirit bloomed orange to let us know you were not far away.
I miss you every single day.You are in my heart. Always and forever. I love you. Gramma
Mary Jo Balistreri <joeybfl@earthlink.net>
Waukesha, WI USA - Saturday, May 9, 2009 12:41 AM CDT
Happy Birthday, Sam. ((((HUGS)))), Anne.
Sarah (Angel's Mama) <sarahjean05@yahoo.com>
- Saturday, May 9, 2009 12:12 AM CDT
HAPPY BIRTHDAY SAM.....
Love Cousin Lynn and family...xoxoxoox
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Saturday, May 9, 2009 11:45 AM CDT
Thinking of Sam on this special day. A day to remember his birth. What a boom there was that year!!!
Love to the whole Juhlmann family.
Bridget Bruno
Oconomowoc, - Saturday, May 9, 2009 10:05 AM CDT
Happy Birthday Sam! And much love and peace to your heart Anne!! I am sorry you have to do this twice. Just not right.
Elizabeth Westbrook <ewestbrook@wi.rr.com>
- Friday, May 8, 2009 10:03 PM CDT
Equanimity and Latin. Ten years ago I'd either have laughed or said "told you so." Probably would have done both. Now, it's enough to break my "cold and icy heart." I hate the journey you took from there to here - I'd argue every day w/ you if it could bring Sam and Zach back.
B
-
- Tuesday, May 5, 2009 9:46 PM CDT
I appreciate the concern which is been rose. The things need to be sorted out because it’s not about the individual but it can be with everyone.
Drug Intervention Ohio
prevenor <lewistaylor.taylor@gmail.com>
bangalore, ka india - Monday, April 27, 2009 1:39 AM CDT
Happy Birthday, dear Zachary. You are so loved. I miss you everyday, but I celebrate the boy you were, the joy you brought to all of our lives. I'd like to think we are more compassionate, loving people because of the life you shared with us. Gramma
Mary Jo Balistreri <joeybfl@earthlink.net>
Waukesha, WI USA - Friday, April 24, 2009 11:52 AM CDT
Happy Birthday Zach!
Lots of Love,
Krystena & Boys <momof2withga2@yahoo.com>
- Thursday, April 23, 2009 7:54 AM CDT
Happy Birthday Zachary. Thank you Anne for sharing him.
Love to you all
Kris, Paul, and the boys <pnkntwins@charter.net>
- Tuesday, April 21, 2009 5:51 PM CDT
Dearest Anne and family,
Thank you again Anne for sharing your deepest and loving memories Of Zach on he`s 17th Birthday.And I feel as I`m sure you do that he is celebrating this day up there with Sam and the rest of the angels there with him. Your words as always move me and comfort me at times knowing that I`m not the only one who feels aloved ones life still goes on for those who loved them and always will. Your Cousin lynn and Family. Prayers and caring for you all as always..
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Tuesday, April 21, 2009 12:44 AM CDT
A very happy birthday Zach... you are missed, you are loved.
Hugs,
Heidi and the Idaho gang
- Monday, April 20, 2009 11:56 PM CDT
There are countless joyful reasons to celebrate the anniversary of Zach's birth and every happy birthday he experienced. I only wish there had been more . . .
Love,
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Monday, April 20, 2009 9:29 PM CDT
Happy Birthday to your first born son, Zachary Ryan! You are all never far from my mind or my heart. I love remembering Zach's excited manor of speaking, his laughter and his energy! (miotochondrial disease effecting your energy?) Much love and peace to you, KP
Kris Pallett
- Monday, April 20, 2009 8:08 PM CDT
Happy Heavenly Birthday Zach. As always, thinking of you all and praying for you from the U.K.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Monday, April 20, 2009 6:48 PM CDT
Happy Birthday Zach. today is also a special day for me. It would have been my 18th wedding anniversary. Bob and
I loved to watch the Boston Marathon (before I started running the marathon). So today Kayla and went to Boston and watched the marathon together from Bob's special spot at the finish. And in my heart Bob was acclimating you to watching the marathon from your special front row seats. It was a day for special memories.
Kris and Kayla Biagiotti <kbiagiotti@yahoo.com>
Franklin, MA USA - Monday, April 20, 2009 5:51 PM CDT
Happy Birthday Zach! I know your wish list would be long with many requests. Perhaps a pet (the creepier the better) or a new game. I'll be having Zach's famous guacamole with my dinner tonight. Cheers to you always!
Love, Katherine
Katherine <kfrontier@chw.org>
- Monday, April 20, 2009 5:44 PM CDT
Thinking of you today Zach.
Hannah Bergland <hanbana23@aim.com>
- Monday, April 20, 2009 4:51 PM CDT
Happy Birthday Z-master!!! I miss you so much! I hope you are having a great day! We saw your favorite this weekend!! DARTH VADER!! Love, Hopey
Hope <hmpatchak@yahoo.com>
- Monday, April 20, 2009 3:23 PM CDT
Happy Birthday Zach!!
Miss you so much! Wishing you could be here to celebrate your 17th birthday! I'm sure you would have had big plans for today!!
Love you!
love amanda
Amanda <aglorioso@chw.org>
- Monday, April 20, 2009 11:50 AM CDT
Happy Birthday Zach.
Donna Noble <donnanoble2001@yahoo.com>
Grove City, Ohio United States - Monday, April 20, 2009 11:42 AM CDT
HAPPY BIRTHDAY ZACH!!! WE MISS YOU
Steph/Papi/Kboys
- Monday, April 20, 2009 11:39 AM CDT
HAPPY BIRTHDAY ZACH! You are missed.
karen <kschaefer@chw.org>
brookfield, wi - Monday, April 20, 2009 9:09 AM CDT
Hi Anne -
Fondly remembering Zach on his birthday - especially April Fools jokes, Star Wars, that leap off the stage during the Music Celebration (that almost gave me a panic attack) and his ability to joyfully embrace life on a daily basis.
Nancy D-S
Nancy Dexter - Schabow <ndexschabow@hotmail.com>
Hartland, WI USA - Monday, April 20, 2009 7:55 AM CDT
Happy Birthday Zach!
We can't imagine what your party will be like, but we know it will be like nothing that ever happened on Earth.
I'm guessing that the cake will have different sections so every child will get a piece of his or her favorite flavor, and every one will be a corner piece with lots of frosting. The ice cream will probably be a new flavor never tasted before. I expect Mamie has the archangels busy blowing up balloons and, even though it's a rainy night here and we can't see them, your candles have already been lit all over the sky. I wonder if Sam got to help light them for you. (Some people call them stars.)
www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Sunday, April 19, 2009 10:19 PM CDT
I watched the new video and cried. Normally it takes a lot to get me to this point but I could see the normalicy in your lives despite the day to day overwhelming medical issues. The normalicy is what we all strive for...it is my goal...it just doesn't always happen. Your boys were so special to so many!!! Through reading about them via this site we came to love you and the girls also. We came to appreciate all that was done for them by their providers. I recently included Dr. Hickey's quote from the PALS coursebook in a speech I gave at the hospital and it has created quite the stir. I think I told you I had the opportunity to meet him last September in the ER at Pitt. I had no idea he worked at the Children's Hospital in Pitt, but how many Dr. Hickey's can there be???? He seemed very shocked but pleased to know that I had heard about his quote from your website and that it had struck a chord with me and probably so many others.
****Happy Birthday Zachary-"The One and Only"
Kristi Cole & Family
www.carepages.com
Carepage Name-brodyjcole
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Sunday, April 19, 2009 9:47 AM CDT
What a beautiful video and song Anne... the photos bring such memories of all the stories of your children that you have shared over the years.
Sending much love and many hugs,
Heidi in Idaho
- Friday, April 17, 2009 9:32 AM CDT
Dearest Anne,
Thanks again for such a lovely inspiring video.Love is all around and you and your family show it in so many ways. May you start to have many more rainbows .I know they will never replace or fully comfort you when it comes to the loss of your dear Boys but They will remind you of them for they were built of many colors as the rainbow is.
Love cousin Lynn (Royer) Walsh In our prayers always...
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Monday, April 13, 2009 7:44 PM CDT
Thinking about you and your boys. They are not forgotten and neither are you.
Kris and the boys <pnkntwins@charter.net>
- Monday, April 13, 2009 5:51 PM CDT
May your spirit be renewed by the miracle of Easter and the promise of each new day.
May your faith be refreshed by the love and grace
that surround and protect you always...
and may your heart be blessed with new joys that blossom all through a beautiful springtime.
Have a Wonderful Easter
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Sunday, April 12, 2009 7:51 AM CDT
Hi Anne, what precious memories of your boys... As always I'm sending best wishes and hugs your way from the U.K. - thinking of you all.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Tuesday, April 7, 2009 6:47 AM CDT
Dearest Anne,
As always thank you for your vivid recall of zach`s fun day.And of course of sam`s st.pats day. We were so glad to hear of your Mothers ability to go home.She I sure is much happier in her own home. I hope her recovery is a progressive one. Slow and steady is okay as long as things improve.At leasts that the way I see it. As I`m sure you do too.You are all in our prayer and thoughts.
Take care Love cousin Lynn and family..xoxoxoxoxo
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Sunday, April 5, 2009 10:59 AM CDT
Hi Anne!
Just wanted to let you know that I was thinking of you, Zach and Sam today. If you had telepathy, you'd know how much you and your boys go through my mind and how grateful I am to know all the things they taught me about life and being a doctor. I hope you're doing okay and hanging in there. Will sing happy birthday on the 20th. :)
Brenda Mandelin
- Saturday, April 4, 2009 12:02 AM CDT
Thinking of Sam and Zach often these days! Hoping your mom is feeling better!
Cindy
- Thursday, April 2, 2009 5:32 PM CDT
I can still hear Zach's laugh, glee and excitement for April fools. What joy.
Kaf
- Thursday, April 2, 2009 9:15 AM CDT
Today I again find myself thinking of your boys and wondering what sort of mischief must be taking place just beyond the ethereal veil that separates this world from the next. Feeling inspired (thanks to Zach!) to cause some mischief of my own this evening when I am welcomed home by my boys. Zach, "thank you" in advance for the howls of laughter and ear to ear grins that will surely come as a result of this Momma knocking off some of your most infamous pranks.
Kristi
- Wednesday, April 1, 2009 4:29 PM CDT
planning out some pranks for tomorrow..... :)
Brittany Elise Juhlmann the FIRST and ONLY
Minneapolis, MN - Tuesday, March 31, 2009 8:46 PM CDT
Hi Anne, good to hear from you :o) As always, praying for you all and sending hugs from the U.K.
love, Nigel XXX
Nigel Burrell <bosca@mondopipppi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Tuesday, March 24, 2009 3:49 PM CDT
Dearest Anne,
Thank you so much for the update on your Mother and how she is doing. Glad to hear the drs. couldn`t find and thing to biopsy. Hope it stays that way. Say Hi from all of us in Duluth.
Love Cousin Lynn and Family Plus (Royers) xoxoxoxox
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Monday, March 23, 2009 6:47 PM CDT
Dearest Anne,
Thank you again for your update and wisdom about life and feeling many can`t express.And Sam Patrick day .What ajoy that young man was and still is through your words.Hope your mother gets to go home soon. Our prayers are with all of you.
Cousin Lynn and family.xoxoxoxoxo
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Thursday, March 19, 2009 6:42 PM CDT
Thinking of a sweet mischievious boy here in Limerick, Maine.
Theresa <bookangel1993@yahoo.com>
- Tuesday, March 17, 2009 6:20 PM CDT
I am a stranger to you as were your boys to me but…I will think of Sammy all day long thanks to your post today! Quite a kid…it only seems right that the world would designate a day to recognize and celebrate one undeniably mischievous, irresistible, vibrant little boy from Wisconsin! For Sammy's sake I pray that there are shiny beads and noisey doo-dad's wherever it is we go from here for he so very much deserves them!
And Zach…God Bless him for having the patience and energy (yes!) to be Sammy's loyal companion and "Best Brother" the mold was broken when those two were made!
I hope to post again or email you soon…Happy Samuel Patrick's Day indeed!!!
Kristi
- Tuesday, March 17, 2009 5:06 PM CDT
..and forever more every March will be "Samuel Patrick Day".... I keep wondering why they mispronounce it on t.v. and in the papers? Geez.. Get it right already! Keeping your family in our prayers, always.
Steph/Papi/Kboys
- Tuesday, March 17, 2009 1:30 PM CDT
And he has the smile to pull it off too! I love that he felt he deserved an extra special day!
I think of the boys often. Their love of life continues to fill my memories and make me smile!
Meg Steimle <msteimle@wi.rr.com>
- Tuesday, March 17, 2009 8:59 AM CDT
Yeah! I love Samuel Patrick Day! I hope you are well Anne. You will be fabulous at the Make A Wish Gala. I kep pulling for your mom.
Love you,
Kaf
Katherine <kfrontier@chw.org>
- Tuesday, March 17, 2009 8:42 AM CDT
What a precious, precious boy. Sam will forever & always be in my heart. Thank you for sharing his life with us.
Love,
Krystena
http://www.caringbridge.org/ky/cadencarsen/ <momof2withga2@yahoo.com>
- Saturday, March 14, 2009 11:48 AM CDT
Thinking of all of you and your beautiful boys. Healing wishes to your Mom and wishes for rest and peace for you.
Kris and the boys <pnkntwins@charter.net>
- Thursday, March 12, 2009 7:33 AM CDT
Hi Anne
Wow, what a beautiful tribute to Sam's life, thanks so much for sharing it with us. Sam's smile was something else, I wish I witnessed it in person. Sam was an amazing little boy who enjoyed his short life and loved his family. You are an amazing mom, I loved seeing you have fun with your family.
I am praying for your mom.
Happy Belated Birthday Sam, I hope you and Connor had a blast on your special days, you are both free from all your earthly limitations, that must feel amazing. Love you both and Zach too.
Anne sending you all my good thoughts and love.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, March 7, 2009 6:46 PM CST
Dearest Anne,
I`m using this site to tell you how much I appreaciate your updates on your mother`s heath problems.I know this has got to be very difficult for you with it being in the same hospital were sam was taken from you.But I also know your Mother Knows and loves you even more for this.Hope you get some better news on your Mother soon,I know you want her to be able to go home soon and be able to get back to her life with you and the rest of your family. Say hi to her from all of us in Duluth MN (Royers) and let her know we think and prayer for her recovery often.
Love Cousin Lynn and Family.xoxoxoxoxox
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Saturday, March 7, 2009 11:57 AM CST
Remembering Sam & Zach today and always. Thinking of you all frequently.
Kristi Cole & Brody
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Friday, March 6, 2009 9:25 PM CST
Just wanted you to know I was thinking of you all today.
Laura
- Wednesday, March 4, 2009 6:02 AM CST
I just wanted you to know that I am remembering Sam today. I love the stories you tell about him. I never got to meet him in person but I smile every time I think of him.
Meagan and Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Tuesday, March 3, 2009 11:22 PM CST
I watched the videos again tonight and smiled and cried. What a joy Sam is. He and Zach brought so much to this world that no one else could.
Julie T. <jturkoske@wi.rr.com>
Waukesha, WI - Tuesday, March 3, 2009 10:51 PM CST
As always, sending best wishes and hugs from the U.K. - thinking of you all.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Tuesday, March 3, 2009 9:20 PM CST
Thinking of you tonight Anne. Thanks for sharing the beautiful photos of Sammy and to Brittany for the memories. They made me smile. Sam had a sparkle in his eyes and a personality bigger than life and will not be forgotten.
MJ
- Tuesday, March 3, 2009 9:05 PM CST
So all day I have been walking around thinking it is March 2nd. When I get home from work Hannah is in the kitchen and she has on her Zach and Sam Mito walk shirt. I say to her, "why aren't you saving that shirt for tomorrow." Her response was one of looking at me like I was speaking another language so I stupidly say to her again,"why aren't you wearing that shirt tomorrow?" Hannah then informs me that today is March 3rd and then points out to me that I have chosen to wear my orange jacket today! So even in the furtherest places of my mind--Sam was there today. Sending prayers your way today and everyday!
Cindy
- Tuesday, March 3, 2009 7:07 PM CST
Always remembering Sammy with fond memories! Thinking of you. Love, KP
Kris Pallett
- Tuesday, March 3, 2009 6:48 PM CST
Thinking of you today, Anne. I was reading Brittany's list of memories of Sam this morning and laughing so hard! I would have gotten such a kick out of Sam - so funny! I'll be sure to eat some french fries for him (and maybe tell a bad joke, too)!
love, amanda
Amanda <aglorioso@chw.org>
Greenfield, WI - Tuesday, March 3, 2009 2:47 PM CST
I am thinking of you all and remembering Sam and what a wonderful little boy he was, his joy in life and love that radiated from him. His life made such an impact on so many others, and he will never be forgotten.
Pat Carriveau <patcarriveau@earthlink.net>
Hartland, WI USA - Tuesday, March 3, 2009 1:05 PM CST
Dearest Anne and family,
Thank you for sharing this day with us.Your thoughts and caring show through as always brighter then ever.Sorry that you have to relive this day at the same hospital that your Mother is in.This can`t be easy especially not knowing how your Mother`s care will turn out.But knowing your there for her I`m sure is the greatest gift you could give her at this time of uncertainty .God bless you Anne now and always. And I know Sam is smiling down on you and yours right now as he probably plays some kind of trick up there in heaven and Is laughing along with Zach. Take care as always You are in our prayers and thoughts. Loved the Pictures of sam`s first 4 yrs. He sure was and is a cutie.
Love cousin lynn and family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Tuesday, March 3, 2009 12:43 AM CST
Remembering Sam, thinking of Zach and praying for you all.
Meg Steimle <msteimle@chw.org>
- Tuesday, March 3, 2009 10:56 AM CST
Thinking about you today (and everyday).
Eileen Clark <eclark@chw.org>
Milwaukee, WI USA - Tuesday, March 3, 2009 10:29 AM CST
Our hearts are with you as this milestone approaches today. Sam will never be forgotten no matter how many years pass. He will be in the hearts of those who knew and loved him forever. Sam’s' brave spirit and his beautiful smile will always live on.....in our hearts and memories of him. It is such an honor to have known such a remarkable soul. I want you to know that you always remain in our thoughts and prayers....but especially today. I cannot imagine your sorrow...but know that I will continue to pray that the memory of Sam will continue to bless your lives and the pain of losing him will lessen.
Yesterday, TODAY, Tomorrow & Always...You, Lu, Brittany & Abby are in our hearts, thoughts and prayers.
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Tuesday, March 3, 2009 10:12 AM CST
Thinking of you today. We are wearing our orange and will have fries today! I loved looking at the montage of photos and especially seeing my very favorite one - Sam signing "birdie". He continues to touch so many lives and always will.
Love,
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Tuesday, March 3, 2009 8:46 AM CST
It would be impossible for anyone who knew Sam to forget him. His laughter will forever permeate our memories. His great sense of humor will leave us laughing and his love will be forever in your heart.
Thinking of you and praying.
Karen Schaefer <kschaefer2@sbcglobal.net>
Milwaukee, WI - Tuesday, March 3, 2009 8:38 AM CST
I know it was only scanning photographs. It wasn't much to offer, but it meant so much to me . . . I got to hold little moments of his sweet life in my hands, just like the little moments in stories shared between mothers across the miles and the years. I love you, friend!
Kathy
Kathy Corley <corleyfive@comcast.net>
- Tuesday, March 3, 2009 8:19 AM CST
What a beautiful boy with a beautiful mama. Sending you peace and light,
Nena and Reese
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
Hermantown, MN 55811 - Tuesday, March 3, 2009 7:10 AM CST
Keeping you in my thoughts and prayers today Anne...and remembering Sam with lots of love and laughter....and orange.
BIG hugs,
Kass & kids ( http://www.caringbridge.org/visit/mcnairs ) <kass@swbell.net>
Dallas, TX - Tuesday, March 3, 2009 1:17 AM CST
Thinking about you on this day, and sending lots of hugs and prayers your way.
Marcia,okbabes <marciat@sympatico.ca>
Bradford, ON Canada - Monday, March 2, 2009 11:01 PM CST
I saw on your Mom's site how tomorrow marks 4 years since Sam was here on earth. I think of him (and your family) a lot lately as my Rafi is totally obsessed with Buzz at the moment, and I get to see a lot of him (we have 3 action figures from his grandma). I see Sam's laughing face each time. I am so truly sorry for your loss(es) and for having to go through the ICU with your mom. Sending strength your way, and healing for your special mom.
Jackie K. and family <aeonflux4444@yahoo.com>
brooklyn, ny - Monday, March 2, 2009 7:52 PM CST
I know tomorrow it will be 4 years. We are sending prayers your way. I can not imagine how hard it will be to spend the day there.
Sam continues to touch so many lives. I hope you find some measure of comfort tomorrow in knowing that you and Sam are loved by many.
I know Sam will be sending you many hugs and kisses tomorrow. To Infinity and Beyond.......
Donna and Kyle www.caringbridge.org/oh/kyle <donnanoble2001@yahoo.com>
Grove City, Oh USA - Monday, March 2, 2009 3:56 PM CST
Dear Anne,
I know that tomorrow will be Sam's anniversary ( very twisted word). I want you to know that I am thinking of you. I am sorry you are having to go through difficult times with your mom, especially when it is such an emotionally extra difficult time of year. May you stay strong and get through all of this. You are such an amazing person and the world is a better place with you in it. I know from experience that statement does not alleviate your pain, but it remains a fact that I must remind you of and you are loved by many.
Suhad
Suhad Haddad <suhad88@hotmail.com>
Granada Hills, CA USA - Monday, March 2, 2009 11:19 AM CST
One of my favorites poems kept going through my head this morning as I prayed for you. It is called, "Thy Way is Perfect," by Amy Carmichael. I send it to you now hoping it comforts your heart as it often did hers, and mine:
"Long is the way, and very steep the slope;
Strengthen me once again, O God of Hope.
Far, very far, the summit doth appear;
But Thou art near, my God, but Thou art near.
And Thou wilt give me with my daily food,
Powers of endurance, courage, fortitude.
Thy way is perfect; only let that way
Be clear before my feet from day to day.
Thou art my Portion, saith my soul to Thee,
Oh, what a Portion is my God to me!"
My thoughts and prayers for you continue!
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, February 28, 2009 6:56 AM CST
Dearest Anne,
Just want to let you know that You are doing a great job watching over your mother at this time,as are all of your family.And I know your Mother appreciates everything you do for her and Frank too.Take care and know that you are always in my thoughts and prayers as is your mother.Hoping and praying all goes well with her.Thanks for all the updates...
Love Cousin Lynn and family.
Lynn Walsh(Royer) <jamesgreenman@hotmail.com>
Duluth, MN USA - Tuesday, February 24, 2009 6:47 PM CST
Thinking about you and and praying for your mom.
Cindy
- Sunday, February 22, 2009 3:22 PM CST
Hi Anne --
Please know that I'm thinking of you here in Maine, as you face challenges with your mom's health.
Theresa <bookangel1993@yahoo.com>
Limerick, Maine - Friday, February 20, 2009 12:44 AM CST
I am glad to hear that your mom is doing a little better. Still thinking about how you are doing though and knowing that March 3rd is almost here. Praying for you, Abby,Brittany and Lou.
Cindy
- Monday, February 16, 2009 4:56 PM CST
Dearest Anne,
Thank you so very much for keeping us posted on your Mother`s progress etc. Your right on though about questioning the how or why of the things that we go through. We all do that.You never know when what ever it is you learned or experienced will come in handy some where
else.And then you question why did you have to go through it anyway? There`s never a sound coherent answer. I hope God lets some of the things you gone through be valadated
in the near future. Not sure thats the right word but I`m sure you know what I mean. Take care.Hope the rest of your family is doing okay.Prayer are with you and yours.
Love Cousin Lynn and family. xoxoxoxox
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Monday, February 16, 2009 4:16 PM CST
I was just remembering when Zach made us Valentine's at the hospital (I think it was 2 years ago). I was excited that I got a Darth Vader one :) Happy Valentines day! So glad your mom is doing a little better! Hope it continues. She is so lucky to have you as her daughter and to have you watching over her!
Amanda <aglorioso@chw.org>
- Saturday, February 14, 2009 5:39 PM CST
Your Mom is so lucky to have you watching out for her. I hope and pray she stays around the corner she has turned. Get rest when you can...we all count on you for the enlightenment and wisdom (that was serious although you probably think it was funny).
Love and best wishes to all of you
Kris and the boys <pnkntwins@charter.net>
- Saturday, February 14, 2009 4:19 PM CST
Just stopping by to check in on you and to say hello, this Valentine's Day. Though I haven't said "Hi, there," in ever so long don’t think for a minute that anything's wrong — I keep pretty busy with things I must do, but I think of you often —believe me, I do.
Valentine treasures are people who have often crossed your mind, family, friends and others, too, who in your life have shined the warmth of love or a spark of light that makes you remember them; no matter how long since you’ve actually met, each one is a luminous gem who gleams and glows in your memory, bringing special pleasures, and that’s why this Valentine comes to you: You’re one of those sparkling treasures!
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, February 14, 2009 9:03 AM CST
Hi, Anne and Maribeth. You've both been on my mind all week. Hoping there's been some improvement for your mom. My heart is with you and your entire family. Love, Gail
Gail Comorat <gailcomorat@comcast.net>
Rehoboth, DE USA - Sunday, February 8, 2009 4:45 PM CST
Praying for you and your family as always.
~Katie and the Kids
www.caringbridge.org/visit/alexanderlindemann
Katie
- Friday, February 6, 2009 9:55 AM CST
Wow Anne! What an amazing accidental meeting. I am so happy that you were able to have the conversation you did. I hope that it gives you a taste of what the rest of us who know you, Sam, and Zach have known for a long time now. You and your boys are so amazing and no one will ever forget them, I know I won't! The only numbers I will remember them as is #1!!!!!!
Jill Nelson <tjtbnel@sbcglobal.net>
Oconomowoc, WI - Wednesday, February 4, 2009 9:13 PM CST
WOW, I am moved to tears by what transpired at Community Memorial between you and the doctor that was on the night Sam died. I'm so glad that he agreed to speak with you. Thinking of you and remembering your boys always. Love, KP
Kris Pallett
- Tuesday, February 3, 2009 4:06 PM CST
Seems like your conversation with that doctor has helped to bring about some kind of 'closure' for you? I hope your mother is okay. Sending best wishes to you all from the U.K.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Sunday, February 1, 2009 4:49 PM CST
Dearest Anne,
As usual you have inspired us all by your words and deeds.
Thank you for the update on your Mother I will write to her care of her site.Thank you for setting it up.In our prayers always
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Sunday, February 1, 2009 2:08 PM CST
Dear Anne
I have told you that I did not get the opportunity to get to know Sam before he died, like I did Zach, however because of your wonderful stories I feel like I did know him. I am so glad that you had an opportunity to speak to that doctor that treating Sam in the ER and it was nice that it was a honest conversation. I am glad that Sam changed him even though for you the results do no change the outcome. Both of your children's life's have changed me, the way I think and feel. I am so grateful to Deb for asking me to pray for Zach and then therefore getting to know each of you. I count it my joy getting to know your boys through this site and yes I also wish they were both still alive. I hate mito disease and hope more research can be done to cure it or at least slow it's progression. Anyway I really hope your mom is doing okay, I will be praying for her. Love your posts.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, January 31, 2009 6:41 PM CST
Hi Anne -
I hope your mother is doing OK...Re-reading what you wrote when Sam died brought that day back. I remember it, too, even though I feel like I was still in a fog from Michaela's leaving. He is not forgotten...
Theresa <bookangel1993@yahoo.com>
- Friday, January 30, 2009 8:49 PM CST
I am so touched by what transpired. The courage you even had to have a conversation with that person. For such a tiny person, Sam's spirit is enormous. Thanks for sharing Anne!
Cindy
- Friday, January 30, 2009 9:52 AM CST
Dearest Anne,
As always you are so right about the way things are seen by most people. Your vision is so clear and you have such a great sence of seeing through all the fog when it comes to things of the heart and life. Thank you for your wise words.And also for taking the time to write them down for us.You I`m sure have helped many people have a clearer picture of so many things.God has Blessed you with the wisdom of the ages.Sorry It has caused you so much pain to have acheived it.
Our prayers are with you and your family as always..
Cousin Lynn and family..
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Thursday, January 22, 2009 7:15 PM CST
Thanks for sharing your gift of words...insightful and inspiring as always.
Thinking of your beautiful boys as we often do.
Kris and the boys <pnkntwins@charter.net>
- Thursday, January 22, 2009 9:17 AM CST
Speechless. Bet you didn't think that was possible.
B
- Wednesday, January 21, 2009 8:07 PM CST
Hi Anne, what an amazingly moving and powerful update. You have a real gift as a writer. Sending you all best wishes and hugs from the U.K.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Wednesday, January 21, 2009 4:34 PM CST
Anne-
I saw an update for their guestbook early this morning. I put all else aside and sat to read your insightful message. I always enjoy your updates, your insight, your feelings, your writings. Thank you for continuing to share them with us all.
:) Melody
www.caringbridge.org/visit/natalieholmes
Melody <sharnholmes@netscape.net>
- Wednesday, January 21, 2009 5:35 AM CST
Hi Anne,
As a mother who is parenting chidlren with complex medical challenges and as I mother that has experienced the passing of children before, I can relate on so many levels. A few years ago I came across this powerful quote that seems so appropriate.
There is a sacredness in tears. They are not the mark of weakness, but of power. They speak more eloquently than ten thousand tongues. They are the messengers of overwhelming grief, of deep contrition, and of unspeakable love. ~
Washington Irving
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Tuesday, January 20, 2009 12:48 AM CST
Thank you Anne. You have, yet again, touched my heart, imparted a wisdom, and inspired me beyond my ability to express.
BIG hugs,
Kass
Kass & kids ( http://www.caringbridge.org/visit/mcnairs ) <kass@swbell.net>
Dallas, TX US - Tuesday, January 20, 2009 11:00 AM CST
Hi Anne
So happy that your blood drive was such a success. I am giving blood this Sunday at my church in memory of Connor and for the Connor House, I am looking forward to it. I feel frustrated that I cannot wave a magic wand and cure these awful diseases, but I can give blood. Anyway just want to let you know that I am thinking about you and just love those stories about your boys.
Love
Ann Marie
Ann Marie Gleason <aleason130@yahoo.com>
Denville, NJ 07834 - Friday, January 16, 2009 11:40 PM CST
Hi Anne, so glad to learn how successful your blood drive was! :o) Well done! I just know that Zach and Sam are both so proud of you :o) Best wishes sent from the U.K.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Tuesday, January 13, 2009 10:09 AM CST
Anne, so very excited about your Blood Drive! This is amazing news! Yipppeeee!!! The boys are so proud I know it! Keep on keeping on Anne! You are doing a wonderful job. I love the "fastidious" story! I really enjoy when you share stories about your boys! Much love and prayer, Deb
www.caringbridge.org/visit/connorscott99
www.connorshouse.org
Deb Millard
- Tuesday, January 13, 2009 6:05 AM CST
While sitting in church today, I noticed a young infant sitting behind me. I was completely struck by how much he looked like Sam. Seeing that beautiful angel reminded me of the sweet angel that Sam is looking down on all of us. My thoughts are with you and your family today.
A
Waukesha, WI USA - Sunday, January 11, 2009 6:42 PM CST
I have been delinquent reading CB's. I am so sorry about your Mom...doctors' wisdom and prayers for healing for her. Congrats on your blood drive...what a wonderful tribute to your boys. I think about them and all of you at least daily. You may not feel strong in midst of the incredible losses that you have survived...but you are...which is inspirational to us all.
Kris, Paul, and the boys <pnkntwins@charter.net>
- Thursday, January 8, 2009 5:51 PM CST
Thinking of you all day today! I know it was a huge success!! Zach and Sammy continue to inspire us all!
Love,
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Tuesday, January 6, 2009 9:48 PM CST
Thinking of you all today and hoping that things go well.
Cindy
Waukesha, - Tuesday, January 6, 2009 6:32 PM CST
A - I hope it goes well today. Wish I could be there. Zach and Sam are so proud of their Mom. Me too. Wish I could say I trained you but I think it was vice versa. Get some sleep tonight and stop getting sick. Physician. Look it up in the dictionary.
B
- Tuesday, January 6, 2009 12:25 AM CST
Anne,
I read your entry with disbelive.How can so much happen to one family.Tell your Mother we are all praying for her as well as the rest of your family.Hope your blood drive is a success.May your New Year now bring hopfully news for your mothers diagnois,and treatment.I`m really almost speechless with this turn of events.My Mother and your grandmother and now your Mother.I`m sort of in shock and can not believe it is true. But I hope with all the new treatments out there now your mother will do well.
Love Cousin Lynn and Family. Prayers always..
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Sunday, January 4, 2009 3:09 PM CST
Happy New Year to you. Your faith love and hope inspire me. My daughter to at age 12 who is again being tested for Mitochondrial (this has been ongoing since age 2) is showing signs of this thief taking away her strength but Kacey's zest and happiness in life outshine this disease. I think we are all blessed by Godn and have seen a piece of what heaven is in the beauty of these children. God gave us a gift in these "Angels" . My prayers and thoughts are with you and your family. I will light a candle tonight in tribute to yours. May God continue to bless you and know they are never gone but always here watching over us from Heaven above. God Bless Jackie
Jackie Moccia <jackie.gaffey@chainstore.com >
attleboro , ma - Friday, January 2, 2009 6:05 PM CST
I know it's hard. I know none of us can know. I'm so proud of you for what you do every day no matter how hard it is.
B
- Thursday, January 1, 2009 11:02 PM CST
A New Year Blessing Especially for You,
May the road you walk be a smooth one,
May your troubles be few — if any,
May the days and years that lie ahead
Be healthy, happy, and many,
May you have friends in abundance,
May the sun shine bright around you.
May the world be a wonderful place to live,
And may God's love always surround you.
Hope you have a joyful new year
and many happy years ahead!
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Thursday, January 1, 2009 9:24 PM CST
Hi Anne
I hope the coming year brings some good things your way. I am so sorry about your mom's throat cancer, I will keep her in my prayers. I had thyroid cancer about 5 years ago and I am grateful to be cancer free. Cancer is always so difficult and I will pray that your mom has more good days than bad ones during the course of her treatments.
I loved all your wonderful memories you shared with us about past holidays with your family. I have always been impressed by Zach, but your story of being run over by his wheelchair, bleeding and hurt and then Zach says he is trying not to feel hurt. Zach's postive attitude makes me try to be more upbeat about my own life and struggles.
I will hopefully be giving blood in January at Bethlehem Church, that will be in support of the Connor House. I just had minor surgery on 12/29th, so I just have to check to make sure I can donate, I hope so. I know without so many people giving blood where you live, Zach and Sam would have died a lot sooner and that would have really made you scream. I pray that your blood drive and Deb's and Scott's will be a complete success. If I can give in January, I will do so in memory and love for Connor, Zach, Sam, Kyle, Joel, Evan and Christian and for those who are still in the battle for their life. Thanks for sharing your heart with us.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Thursday, January 1, 2009 1:03 PM CST
Happy New Year to you, too, friend! Hoping for time filled with goodness for you in 2009. I had not heard about your mother. Please tell her I am thinking of her and hoping for the easiest possible and most successful treatment.
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Thursday, January 1, 2009 11:26 AM CST
Hi Anne, Thinking of you and the boys. I will see you on the 6th for the blood drive. Love, KP
Kris Pallett
- Tuesday, December 30, 2008 6:24 PM CST
I sat down at work tonight and spend A LOT of time reading over your stories and looking at pictures, and my heart just breaks. I could not take my eyes off of your stories. They were so heart felt and I felt as though I could feel your frustration and pain, also your cherished memories felt so real to me, as though I was right there sharing in them with you. When I was in orientation they told us the story of your boys and showed us a slide show...they said you did a better job of presenting it but were unable to make it. At the end of the slide show I cried, I felt as though I had known your wonderful boys all their lives. It is very misfortunate that terrible things like this happen to people and their families but life must go on. You and your family are very courageous and I can't imagine how difficult this journey must have been for all of you. All though I'm sure it is extrememly difficult to move on, you just have to be thankul that Zach and Sam were able to fill your lives with so much happiness and joy during the times that they were alive. From all of the stories you have told and memories that you reminisced about, I can tell that they did bring much pleasure to your lives. I don't have kids, but as a mother I can not imagine how difficult that must have been and my prayers go out to you and your family. Eversince that day of orientation when I saw that slide show, I have continued to think about your story. I am so happy I was able to find your caring bridge for them!! I think some people tend to take life for granted, and when I come to work and see sick children struggling and trying to hold on to their dear lives, it really makes me rethink things and gives me a different outlook on life. I wish everybody would do the same! Although they were sick, they constantly had a smile on their faces. I really appreciate you being able to share your emotional stories with us! Your story will always be a part of my memory and I wish you and your wonderful family all of the happiness in the world. YOU DESERVE IT!!!!
Amber Szymborski
Hales Corners , WI 53130 - Tuesday, December 30, 2008 2:18 AM CST
Hope the Christmas of this year also brings back fond memories not just sadness. and hope the new Year gives you and your family much blessings you all deserve them.Prayers your way as always.
Cousin Lynn and family. PS Loved the pictures of your christmases and memories that you shared.Thank You All.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Sunday, December 28, 2008 4:53 PM CST
I will be back soon. You've been on my mind. A few more weeks -I'm actually ready for the break. I have a Star Wars story to tell you. Zach would love it.
B
- Saturday, December 27, 2008 11:59 PM CST
Merry Christmas to you. I absolutely loved watching the Christmas memories video and reading all the favorite memories. You have truly taught me to cherish each moment.
Erica Beyea <debeyea@verizon.net>
Eden, NY - Thursday, December 25, 2008 10:31 PM CST
Wishing you all a Christmas of love and peace.
Tammy Martin <dtmartin6281@sbcglobal.net, www.caringbridge.org/mi/martin>
MI - Wednesday, December 24, 2008 10:22 PM CST
Sending you peace, love and light,
Nena
Nena Johnson <nenaelise@yahoo.com>
Hermantown, MN 55811 - Wednesday, December 24, 2008 10:09 PM CST
Thinking of you tonight Anne. Enjoyed watching Christmas Joys again...remembering Sam and Zach and wishing you joy and peace during the holidays.
MJ
- Wednesday, December 24, 2008 9:53 PM CST
Thinking of you, your precious boys and your beautiful girls tonight. Sending love your way.
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Wednesday, December 24, 2008 9:01 PM CST
Thinking of all of you this Christmas Eve.
Kris, Paul, and the boys <pnkntwins@charter.net>
- Wednesday, December 24, 2008 4:54 PM CST
Dearest Anne, remembering your sweet boys this Christmas. Holding you and your girls in our hearts as we all miss our children. Know you are in our hearts, in our thoughts and our prayers over the holidays.
with much love,
Deb, Scott and Connor, always in our hearts
www.caringbridge.org/visit/connorscott99
www.connorshouse.org
Deb
- Wednesday, December 24, 2008 1:24 PM CST
Meagan and Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Wednesday, December 24, 2008 1:19 PM CST
We huddle by the fire on this bitter cold night,
Enjoying hot cocoa by the warm fire light.
While the smells of a feast fill this rickety old shack,
Icy winds whistle as they dance through the cracks.
Surrounded with blankets, sweet carols we sing,
Happily awaiting what this Christmas will bring.
You won't find any presents 'neath our skimpy tree.
Ornaments are hand-made and so is our wreath.
Under limp mistletoe, mom gives dad a kiss,
Atmosphere of joy and love
Merry Christmas to all of you.
Everyone here at our house is thinking of you.
Remember Christ loves you, no matter your worth.
Revel in the illuminating joy of His birth.
Your love is the only gift He'll ever ask.
Celebrate His life and in His light you'll bask.
Holiday giving and the spread of good cheer,
Really is something we could keep up all year.
Imagine a world where it was Christmas each day,
Sounds hard to do, but it could be that way.
This is our Christmas wish for all of you tonight--
May His warmth surround you like a blanket of light.
All your wishes be granted with His blessings of love,
Sent special delivery from the Angels above.
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Wednesday, December 24, 2008 8:45 AM CST
Thinking about you all as Christmas approaches. You are in our prayers as we remember Zach and Sam.
Merry Christmas.
Bergland Family
- Tuesday, December 23, 2008 6:50 AM CST
You were on my mind---it's been a while since I have signed it but wanted to let you know I am still here checking up with you and yours and praying for you my dear one.q
shelle and hannah <shdmiller@yahoo.com>
- Sunday, December 21, 2008 10:03 PM CST
Still catching up with my CB updates... Sending seasonal best wishes to you all - Have a very Merry Christmas :o)
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Sunday, December 21, 2008 1:11 PM CST
Hi Anne
I found your page via Maya. I am a Mito sufferer, but lucky to have survived to 33. Maya, your sons and I have very similar issues, although I have had more neuromuscular manifestation and less marrow involvement until my teens. I have been quadriplegic from childhood, Jtube and TPN fed for decades, red cell dependent, immune deficient and have significant autoimmune involvement. I spend about 2/3 time inpatient.
Recently, I went into what looks like terminal metabolic crisis, and my whole system has flipped. We are treating for everything, but with Mito-- well, you, if anybody, would know.
I cannot believe all that you were able to do at home. Your boys were blessed to have so much life quality. I'm so sorry you lost them.
I am hoping that at my time, I can meet Sam and Zach and Pancakes, and all the other kids and adults lost to Mito.
THANK YOU!
Miri B.
www.caringbridge.org/visit/mirib
Miri B.
MI - Wednesday, December 17, 2008 4:47 AM CST
Dear Anne,
I wanted to let you know that I have not forgotten the anniversary ( what a twisted word) of Zach's passing away. You are in my thoughts and prayers. I have been wrapped up in my self pity this month with samya's 6th anniversary. For some unknown, unexplainable reason, this year was harder than years before for me and I felt like I took 3 years in steps back. There are days when I just cannot handle the little things and I try to tell myself that 6 years is enough. It is time to move on, but I am stuck and cannot move on without my children. It does not matter how long it has been, it still feels like yesterday. We have both been way too much for any mother. I have no wondeful wise words. i just stopped by to let you know I am thinking of you.
Suhad Haddad
Suhad Haddad <suhad88@hotmail.com>
Granada Hills, CA USA - Monday, December 15, 2008 10:50 PM CST
Dearest Anne and Family,
Merry Christmas and a better New Year.And yes I think more people should say Merry Christ-mas or Happy holiday.Out loud for all to hear cause tis the season for all man kind no matter what their belives are.spred Joy and Love to all
Love cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Monday, December 15, 2008 12:30 AM CST
Hi Anne
Lighting a candle for Sam and Zach tonight and for Connor, Kyle, Evan, Joel, Christian and my sons best friend, Lee. Those are just the kids I have had the pleaasure of knowing and loving through CaringBridge. Too many children to light candles for tonight, too many kids who are no longer here to enjoy life with. My own heart aches for you and for all the other parents who have lost a child or children. I will keep you, Brittany and Abby in my prayers and I will always remember Zach, your One and Only and your funny and adorable Sam.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Sunday, December 14, 2008 6:37 PM CST
On this night of Worldwide Candle Lighting for the children we have lost, I have not only lit candles for my children, but for yours. They are all so loved....
Marcia <marciat@sympatico.ca>
Bradford, ON Canada - Sunday, December 14, 2008 6:06 PM CST
Anne,
I just want you to know that I am thinking of you and your family. I hope that you have a peaceful holiday season...
LeeAnn <ajz3@bellsouth.net>
Savannah, GA USA - Tuesday, December 9, 2008 7:46 PM CST
Hi Anne
Love the collage your friend made about your boys, just so many wonderful words to describe Zach and Sam. So many memories always, but especially at this time of year. Reading your post and Deb's are heartbreaking, all I can do is to let you know that you both are in my thoughts and prayers.
Good luck Abby with the driving, my son Jon is also getting his permit. He is 17 years old. I am keeping you and Brittany in my prayers. Take good care of eachother during this time of year.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Tuesday, December 9, 2008 7:14 PM CST
Dearest Anne, May your family and you have the a christmas season full of mostly fond memories and I hope most of the dark ones stay at bay as best you can make them which I know won`t be easy.Know you are in our thoughts and prayers as usual.
Cousin Lynn and Family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Saturday, December 6, 2008 2:37 PM CST
{{{{{{{{Anne}}}}}}}}}
steph
tubetown, - Thursday, December 4, 2008 7:49 AM CST
I've been thinking about you all and just wanted to let you know that even though I don't post often, I haven't forgotten (just like so many others that visit this site frequently). Sending my love and prayers to your family.
Laura
Albuquerque, NM - Monday, December 1, 2008 1:04 AM CST
My heart breaks as I read your words of pain. I can't believe it has been a year either. One year ago I was in the hospital with Joey in the PICU following his major hip surgery, watching him with C-pap keeping him breathing and hearing the news of Zach's passing and I wept so hard. It is hard to believe it is already a year ago. I will be praying for you during this Christmas season as I am sure it will bring many memories... God bless...
Darla Klein <ddk61387@msn.com>
Des Moines, Iowa USA - Saturday, November 29, 2008 6:37 PM CST
Dearest Anne,
As always you have given all of us a glimpes of your fears and anguishes,but also your vision of hope and trust and how you loved so deeply and shared so completely with us the outside world as we look in to your world of sorrow.
Thank you for that vision.God bless and keep all of you.
Love Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Saturday, November 29, 2008 11:29 AM CST
Hello Anne,
Peace and Love to you.
Elizabeth
elizabeth westbrook <ewestbrook@wi.rr.com>
- Friday, November 28, 2008 7:20 PM CST
Sending hugs....
Erica Beyea <debeyea@verizon.net>
Eden, NY - Friday, November 28, 2008 6:51 PM CST
Love you.
Thanks for continuing to share. I miss your boys.
Kaf
- Friday, November 28, 2008 6:26 PM CST
Hi tammy, i hope you had a great thanksgiving. I hope god blessed you with a hungry appetite and lots of love...vicki
vicki stensgaard <vickiandpete1@hotmail.com>
shoreview, mn united states - Friday, November 28, 2008 5:16 PM CST
Hi tammy, i hope you had a great thanksgiving. I hope god blessed you with a hungry appetite and lots of love...vicki
vicki stensgaard <vickiandpete1@hotmail.com>
shoreview, mn united states - Friday, November 28, 2008 5:14 PM CST
Grief is a long and lonely road. Continuing to pray for you all. Sending best wishes from the U.K. - have a blessed weekend.
love, Nigel XXX
bosca@mondopippi.fsnet.co.uk <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Friday, November 28, 2008 4:31 PM CST
Hi,
I just wanted you to know that I've been thinking about you and your boys......
Anne Reckling <areckling@aol.com>
Columbus, OH - Friday, November 28, 2008 6:18 AM CST
Anne,
Just wanted you to know that you and your family were on my mind today. I think grief is a "different" emotion in that unlike being sad, angry, lonely, etc. it never truly goes away!!! You will never stop grieving/missing Zach and Sam. There is no time limit for wishing that they were still with you. I think that while people in general can get past the initial anger-(although it too probably has a way of sneaking up on you when you least expect it), and you can do things that take away your sadness for the time being....but longing to have your children back with you...I can only imagine that will be the utmost desire of your heart forever.
Praying for you all!!!
Kristi Cole & Brody
www.carepages.com
Carepage Name=brodyjcole
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Thursday, November 27, 2008 10:07 PM CST
Anne - Thinking of you and Zach today. Thought of him especially when I stepped outside into the sunlight, it reminded me of his eternally sunny outlook on life and the joy that he brought me whenever I cared for him. Missing him always.
Sara O'Toole <sotoole@chw.org>
Waukesha, WI - Thursday, November 27, 2008 9:47 PM CST
Thinking of you today. Sending hugs
Sharon and the boys
Sharon <lawblond7@aol.com>
Lorton, VA - Thursday, November 27, 2008 8:08 PM CST
Ann, Reading your words to describe your grief, pain, joy, love, forgiveness was heartbreaking and all so true. I'm always amazed by you and your ability to bear your emotions and feelings through your words. I know that you probably are told very often how strong you are, as I am, and probably don't believe it, but I hope you do and know, that you truly are so strong! I'll be thinking of you today, praying, and always carrying Zach and Sam in my heart. With alot of my questions regarding Why?? One of them is...why are so many Mito Angel Days and Birthdays so close together and around the holidays? Anyways, I'm rambling....missing my Skye and all the other kids with Mito I have come to love so much. Thank you for sharing so much of your thoughts and feelings with us. Your words whether painful, joyful, grieving, help me. Because all too often I stuff it down and try to contain my grief. Much love, hope and prayers always!!!
Tamm Mom to ^Skye^ <Tamm06@aol.com>
- Thursday, November 27, 2008 12:22 AM CST
I am so sorry.
Love,
Krystena <krystena@easiky.com>
- Thursday, November 27, 2008 11:02 AM CST
Anne, Sending you peace today. You have been in my thoughts and prayers. You have always amazed me as a mom and you continue to do so. You are the mom that I strive to be each day.
Tammy Martin <dtmartin6281@sbcglobal.net, www.caringbridge.org/mi/martin>
- Thursday, November 27, 2008 10:02 AM CST
Dear Anne
I can't believe it has been a year already, I clearly remember rushing home after work or on weekends to check your updates and praying so hard that Zach makes it. It was an emotional time for me because are church family just lost Connor and I did not want to see another precious child die of that awful disease. I am grateful for the time that I did get to know and love Zach, he was the One and Only. Some of your stories rememded me of my own son, Christopher who is 15 years old. I pray that someday soon that Mito disease will be cured.
I am glad that you are forgiving yourself because you could not have done more for your son. I know people can tell you that, but you have to believe it yourself. You did love Zach enough and did everything possible to give him a good life for 15 and 1/2 years. Zach also loved you more than words can describe. Thank you for sharing your heart and pain with us today and I will always be grateful for Zach and his wonderful and loving mom.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Thursday, November 27, 2008 9:59 AM CST
Sending you peace, light, and much love today.
Love, Nena and Reese
Nena Johnson <nenaelise@yahoo.com>
Hermantown, M United States - Thursday, November 27, 2008 9:00 AM CST
Anne:
I've been thinking of you and your family this week; knowing what the 27th would bring in ways of memories. Thanksgiving being Zach's favorite holiday. And I think of him as my oldest son, Parker, who in many ways is like Zach, turned 16 today. Will have a piece of pumpkin pie in honor of Zach today. You always write such profound words and get me thinking and for that I say thank you.
Lisa Nerenhausen <lnerenhausen@new.rr.com>
Appleton, WI USA - Thursday, November 27, 2008 8:39 AM CST
Anne, I'm grateful that you are beginning to forgive yourself. I can't imagine the mounting pain with the approach of this date. I cried reading your entry today. Know that I continue to love you and your family.
Julie Turkoske <jturkoske@wi.rr.com>
Waukesha, WI - Thursday, November 27, 2008 8:19 AM CST
Anne,
I am thinking of you today. Among the things we will be giving thanks for at our table today will be your beautiful boys and you. Zach and Sam have touched so many lives and will continue to through you. I am so thankful to be one of those people.
Claudia <cmf@utk.edu>
Knoxville, TN - Thursday, November 27, 2008 7:47 AM CST
In these pictures again, Zach looks so much like Kody. When Zach was in the ICU last November, it was amazing how much he reminded me of Kody at that time. Others have commented on this as well. We're thinking of you, my friend, and sending you just a little more strength.
Steph
tubetown, - Thursday, November 27, 2008 6:53 AM CST
Anne-
I just want you to know that I'm thinking of you, Zach, and your family today. I can't believe it has been a year. I can't imagine how hard this is for you. I miss him so much - work isn't the same without him here. I miss taking care of him. I always looked forward to seeing him and being his nurse. He always made me smile. I miss talking about April Fools Day with him and trying to understand Star Wars and the video games he played! He is so special to me and he always will be. Thanks for continuing to write on this and posting new pictures. I love seeing all the pics of Zach!
Love,
amanda
Amanda <aglorioso@chw.org>
Greenfield, WI - Thursday, November 27, 2008 5:13 AM CST
Altho I do not know you personally, you are in my thoughts and prayers today.
Michele Sullivan <michsull@aol.com>
Plymouth, MA USA - Thursday, November 27, 2008 4:33 AM CST
Thinking of you.
Sh
- Wednesday, November 26, 2008 11:43 PM CST
Anne and family,
Zachary is not forgotten and many will be remembering him this Thanksgiving. I wish for you all to be able to remember the happy, the good, the laughter, and the joy his life brought to you as I know how hard and painful tomorrow will be.
Cindy Loppnow
Waukesha, WI - Wednesday, November 26, 2008 10:36 PM CST
Thinking of you and sending you peace.
Love, Nena and Reese
Nena Johnson <nenaelise@yahoo.com>
Hermantown, M United States - Wednesday, November 26, 2008 7:53 PM CST
Anne,
I know there is little solace for the living...it is not that I don't have faith..I do..but I know to live with out your babies can only be hell on earth. Someday you will be with them and that will be a joyous day.
Meanwhile...I want you to know how very thankful I am for the gifts you and Zachary have given me. Because you shared your child with me my own life is more meaningful. Because you have shared Zachary with me I am a better mother. Because you shared Zachary with me I am a more tolerant and giving person (or at least I aspire to be). Because you shared your child with me I find joy in things that I hadn't before.
Your beautiful boy gave me these priceless gifts and I will carry him in my heart and love him forever for that. Tonight, tomorrow, and everyday I thank you and Zachary.
With love and wishes of a peaceful heart to you,
Kris and the boys <pnkntwins@charter.net>
- Wednesday, November 26, 2008 6:00 PM CST
Thinking and praying for all of you this week. Thank you Anne for keeping on no matter how impossible it is some days. Zach and Sam continue to shine through you every day.
love, Mindy & Elena
Mindy Welhouse <mwelhouse3@new.rr.com>
Kimberly, WI - Wednesday, November 26, 2008 2:06 PM CST
You & the girls are on my mind and heart this week Anne. Madison shares her earthly birthday with Zach's heavenly birthday and thus he's become even more entwined in our lives and my thoughts on this day. Please know we are thinking and praying for you all.
BIG hugs,
The M's
Kass & kids ( http://www.caringbridge.org/visit/mcnairs ) <kass@swbell.net>
Dallas, TX - Wednesday, November 26, 2008 1:47 PM CST
Zach is on my mind and heart this week as I remember the sad day he left our presence. His light shines on for sure in the many people whose lives he touched in big or small ways. I will make sure to find time to make a blood donation and will think of the boys as I give my gift of life.
Pat Carriveau <patcarriveau@earthlink.net>
Hartland, WI 53029 - Wednesday, November 26, 2008 1:30 PM CST
Just thinking of you all with the upcoming anniversary of Zach's heavenly healing...We are praying the boys, bestest buds for sure, are busy cooking up a way to bathe you in their special light and for each of you to feel the warmth of their love reaching down from Heaven...there will be a day when you will all be together again until then we are praying for God's unfailing Promise to bring your hearts Peace and comfort... Have a Blessed Thanksgiving~
Grace and Katey Olsen <olsens5@wi.rr.com>
Waukesha, WI - Wednesday, November 26, 2008 0:18 AM CST
and over and over . . .
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Tuesday, November 25, 2008 9:59 PM CST
Thinking about you over and over this week.
Kathy <corleyfive@comcast.net>
Signal Mountain, TN - Monday, November 24, 2008 8:11 PM CST
You all are very much on our minds this week. It is so hard to know what to say as there just are no words-- so all I can do is share a Zach story that Hannah just shared with me. Hannah is a diver on North's swim/dive team. Everyday at practice as she goes off the board there is a purple star on the wall that she looks at. As she looks at the star she thinks of Zach every time and she says to herself that Zach was the bravest person that she knew and if he could do all the things that he did then she should be able to make the dive. Silly as that may sound it speaks to me about the large presence that Zach has.
Cindy
Waukesha, - Monday, November 24, 2008 6:12 PM CST
Dear Anne, Lu, Brittany and Abby,
Just know my thoughts and prayers are with you this week. I am so sorry you don't have your sweet boys with you. You are doing an incredible job of keeping their memories alive. Look at how many people they have brought together!
I keep imagining a puzzle, that once was complete and made a beautiful picture. Now a two pieces are missing, and the picture will never be the same again. There's no way to make a piece that will fit, so the picture will always be incomplete, even though it may still be lovely. I am praying that God will be able to fill that void with His love, His assurances, and His peace, so that you can "see" the picture, complete again, as it will be again one day. I long to be in that beautiful place myself; there are some days that my earthly "quilt" feels like it's coming apart at the seams! You all remain in my prayers
Thinking of you....
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Monday, November 24, 2008 2:08 PM CST
Dear Anne and Abby, I cannot pretend to know what to say to make these coming days easier for you and your family. I will dedicate my prayers to Zach and Sam. Michelle Vogt
Michelle Vogt
Elkhorn, WI - Saturday, November 22, 2008 5:55 PM CST
Thinking of you as you go through this time of the year.
Erica Beyea <debeyea@verizon.net>
Eden, NY - Saturday, November 22, 2008 8:57 AM CST
I think a lot about what life was like last year. I worried about you both even when I was off. I almost wished I could work all the time. It makes me sad to know that almost a year has gone by and I haven't seen Zach. I went 4 years seeing him every month, and now it's been a year.
Can you imagine what he would have said to know that Stella was a girl! and that Tom was a DAD and I was a MOM! He would be so proud to know that we have watched Star Wars with Stella and Tom is showing her the Star Wars ropes....
All my love...
Hopey
- Friday, November 21, 2008 5:30 PM CST
Anne,
Know that you are in our prayers at this time more then ever.Zach died a year ago th 27th but he`s always with you and always will be.Sam too.I`m sorry he`s passing fall on thanksgiving this year cause it makes it harded to feel thankful for anything. Take care and god bless you and your family and keep you all safe.
Cousin Lynn and Family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Wednesday, November 19, 2008 12:02 AM CST
Hi Anne and family,
During this cold cold month of November, our thoughts turn to you and your loss last year. November, at least for me, always seems like the coldest and darkest month of the year, and last year it got colder and darker with Zachary's passing.
I pray that you and your family find strength and blessing through what can be the most joyous times for most families, but surely some of the hardest times for those who have lost members.....the holidays. I hope you all are able to celebrate with Zach and Sam in spirit and mind, although not in the physical. I have the feeling they will be celebrating what they are most likely thankful for.....having time, albeit too short, on this earth with their wonderful family.
Thinking of you all.
John Fischer <jdfischer0505@hotmail.com>
Avoca, IN 47420 - Wednesday, November 19, 2008 8:09 AM CST
Thinking of you and your amazing boys. I am sorry that Zach and Sam are not here to celebrate with you. There's not much more to say than that.
Sending you peace and light, Nena
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
Hermantown, M United States - Tuesday, November 18, 2008 9:45 PM CST
Hello Anne,
Just want you to know I am thinking about you at this time of year..knowing that your heart is searching for answers, for comfort. Zach and Sam are not forgotten. I pray you find peace in these upcoming weeks..
Love, Elizabeth
elizabeth westbrook <ewestbrook@wi.rr.com>
- Tuesday, November 18, 2008 9:53 AM CST
Thinking about Zach and all of you a lot lately. We remember last November like it was yesterday. Lots of strength and love to you during this time and always.
Kris and the boys <pnkntwins@charter.net>
- Sunday, November 16, 2008 3:14 PM CST
I know that I think of the pathologists that read biopsies as physicians, but have never really put a lot of thought into the ones that do autopsies. Leave it to you to bring light to this situation as only you could.
Kristi Cole & Brody
www.carepages.com
Carepage Name=brodyjcole
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Saturday, November 15, 2008 10:25 PM CST
Dearest Anne and family
You are never far from our thoughts and prayers.I know the coming weeks are going to be very diffecult for you and your family.So I`ll pray extra hard and long for your whole family to get through this time with not only fond memories but laughter along with your tears,to help you get through this trying time.
Cousin Lynn andFamily.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth , MN USA - Friday, November 14, 2008 9:34 AM CST
You continue to touch our lives. You and your family are never far from our minds and hearts. I do not know if you know how much of a positive impact Zach had on Alex he talks daily of how much he misses him. Hope to see you soon.
Megan
Megan Reid <dmreid1994@sbcglobal.net>
wheeling, IL - Friday, November 14, 2008 8:48 AM CST
So our parish blood drive usually nets about 12 or 15 pints. Monday we had 40! The Blood Center wasn't prepared for all of the people that came as we usually have so few donors. I had to smile at this news and think that Sam and Zach had something to do with it. I know privately they were my motivation/inspiration/who I thought about as I did the publicity. I know as I talked to people about donating in memory of someone those two boys of yours were who I was thinking about. God works in mysterious ways and so do those boys of yours.
Cindy <Kurtcindyb@aol.com>
Waukesha, - Thursday, November 13, 2008 7:54 PM CST
Anne, what an amazing update in so many ways. You were blessed to have such a wonderful pathologist for Zach. Sending you all best wishes from the U.K.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Wednesday, November 12, 2008 9:17 AM CST
You continue to inspire me, Anne. I can only hope to be half of the mom/woman that you are. Blessings!
Sarah Jean - Angel's Mama <sarahjean05@yahoo.com>
- Tuesday, November 11, 2008 10:59 AM CST
Anne,
Thank you so much for printing Abby and Brittany's words. Sam, Zach and all of you continue to inspire me.
Love,
Mary
Mary <mkrupski@yahoo.com>
Woodbury, MN - Sunday, November 9, 2008 4:46 PM CST
Wonderful words from such wise girls.
Marcia <marciat@sympatico.ca>
Bradford, ON Canada - Thursday, November 6, 2008 8:09 AM CST
Thank you and your family again for sharing such personal feelings joys, and sadness about your angels in heaven with us.Your girls are such amazing people and we wish them the best always.
Cousin Lynn and family..
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Wednesday, November 5, 2008 1:48 PM CST
So powerful to see how your girls are inspired by their brothers...all your children are such wonderful souls.
I hope your day is filled with the excitement of a "New" America.
Kris and the boys <pnkntwins@charter.net>
- Wednesday, November 5, 2008 8:11 AM CST
Simply beautiful. I hope one day to meet your beautiful, amazing daughters (and their mom).
Sending you peace and light, Nena and Reese
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
- Tuesday, November 4, 2008 9:01 PM CST
Thank you for sharing Abby and Brittany's words. You all were in my thoughts on Sunday. It must be hard to put into words such a deep sense of loss not having your boys here. Somehow your girls found just the right words. They are amazing people!!
Cindy
- Tuesday, November 4, 2008 4:55 PM CST
You must be so proud of your girls. All your children are amazing. That is because of you, Anne.
I always find comfort reading this blog. Thank you for sharing your life with us.
Linda Rowley
Mineral Point, WI USA - Tuesday, November 4, 2008 2:58 PM CST
What a truly moving update in so many ways. Anne, you must be so proud of your daughters, their words along with yours show such deep and lasting love for Zach and Sam :o) Your brave boys will never be forgotten and will continue to be inspirational to so many people from all over the world. Continuing to pray for you all and to send best wishes from the U.K.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Tuesday, November 4, 2008 2:18 PM CST
Abby and Britney, Thank you so much for sharing your thoughts with all of us. It was very touching to read, and I'm sure it was even more blessed to those who got to hear your speeches in person. I love the way you went back and forth and built on what each other said. Just reading/hearing the words makes me feel the special bond that you and your brothers share. Many thanks, and hugs.
Erica Beyea <debeyea@verizon.net>
Eden, NY - Tuesday, November 4, 2008 9:50 AM CST
Beautiful words. Thank you so much for sharing them. I happened upon them today, Miss M's Angel Day. The words were inspirational...
Theresa (mom to Miss M forever 10) <bookangel1993@yahoo.com>
- Tuesday, November 4, 2008 9:38 AM CST
All I can say is "WOW". You should be so proud of your daughters as much as your daughters I am sure are proud of you. You all do so much to keep Sam and Zach alive in memory and that is great. I am sure they were both up in heaven with big grins on there faces as they listened to you both speak.
Lynne Barker (Grandma to Dylan Faith Kulik) <lbarker@asd.net>
East Peoria, IL USA - Tuesday, November 4, 2008 8:31 AM CST
We had the memorial service at St. Chris on Saturday... When I read what Brittany & Abby said I was so inspired and also in tears. You girls really said it all. There is a lot to say, but I will just say it simply...You really touched me completely. I know Zach and Sam are so completely proud of who you are, of who you are becoming and of what you will do in the future. God bless you!
Deb, Connor's Mom <sdcm@optonline.net>
- Tuesday, November 4, 2008 5:58 AM CST
So glad to hear that your mom's reading went well and that she sold all her books plus some!!! Hope that today's memorial celebration is a wonderful experience for the girls and all who have the opportunity to listen. Wish I could be there . . .
Keeping all my fingers and toes crossed until Tuesday!
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Sunday, November 2, 2008 10:01 AM CST
Hi Anne Brittany and Abby
I just wanted you to know I will be thinking about you guys tomorrow and I think what you will be sharing with others is so important. You girls lost more than most kids your ages, both your brothers to a horrible disease. Your feelings, memories and insights into the loss of Sam and Zach are important and I hope at a later time you share some of them with your friends from Caringbridge. I only started reading your mom's posts about one year before Zach died and believe me when I tell you his life meant something to me. I got to know Sam by reading the earlier journals and by your mom sharing her memories of him. You really did have 2 amazing brothers and someday you will be reunited with them in heaven. However in the meantime I realize it must be so hard. Your friends do normal things and may not understand what you are feeling, but I hope that you both have some friends that will spend the time trying to get it.
Last thing I want to express is how impressed I am with both of you girls and you already know that your mom is so proud of both of you. So tomorrow I pray the words come out exactly the way you want them to and that people will learn from your experiences and learn from your amazing brothers, Sam and Zach.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, November 1, 2008 8:37 PM CDT
Hi Anne! Happy Halloween (a day late)! I was trick or treating with my cousins' kids and saw three little boys dressed as Buzz Lightyear - couldn't help but think of Zach and Sam. Later, the kids were running around the house and scaring us with fake spiders. I loved it b/c it made me think of Zach - he would love it! Remember when we put the plastic spider on his forehead to scare the docs?! Hahaha! So funny! Glad you got to see Sam's friends yesterday! Talk to you soon!
Love, Amanda
Amanda <aglorioso@chw.org>
- Saturday, November 1, 2008 1:58 PM CDT
Hi Anne
I enjoyed your fun memories of Halloween with Zach. Getting to know Zach these past 2 years, I can almost picture Zach's excitment at this time of the year. Halloween can be so much fun if a child can keep it just pure fun and silliness. I have to admit my 2 teen-agers still get dressed up, but in stupid and scary outfits. I miss the days when they wore cute customes. I wish Sam got to enjoy more Halloweens and Zach as well. Memories are nice, but never like the real thing. I think of you often, especially this time of the year. I hope Abby and Brittany are doing well. No magic words but just know that I am thinking about you, especially at this time of the year. I am really glad you continue to share your heart, thoughts, memories and insights with us. My life is enriched just knowing you from many miles away.
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Friday, October 31, 2008 9:25 PM CDT
Hi, Anne. Just stopped by to say hi. I think of you often and of Sam and Zach. I'll be thinking of their spunky personalities this Halloween. Thinking of you, too. Hugs,
Cindy Cruz <rella19@comcast.net>
Edmonds, WA - Wednesday, October 29, 2008 11:11 AM CDT
Thinking of your beautiful boys.
Kris V <pnkntwins@charter.net>
- Tuesday, October 28, 2008 9:55 AM CDT
When Hannah talks about her favorite Halloween she talks like it happened yesterday. I don't know if it was 5th or 6th grade when the "gang" from Bethesda met at your house and went trick or treating pushing Sam in his wheelchair. Including Sam made the night special for her. Sam had that effect on people though.
Cindy
- Tuesday, October 28, 2008 5:38 AM CDT
I thought of Zach the other day. I know that he really liked April Fools' Day, but the other day I left fake spiders out where my husband would find them. It's not something I would usually do, so we had a good laugh about it. Given that we frequently have spiders in our house, i knew he'd fall for it. I'd like to think Zach enjoyed the joke, too.
Jessy Enters, RN
- Monday, October 27, 2008 6:49 PM CDT
Hi Anne-
Just wanted to see how you are doing and be inspired by your life story. You continually inspire and by reading your words, I know it is okay to be sad and how important it is to make memories everyday. Praying for you and thanking you so much for your words-
Jayme <january11292@yahoo.com>
Walton, KY - Monday, October 27, 2008 6:16 PM CDT
Anne,
It`s me again cousin Lynn sorry for the miss spells in my last posting..
Take care Lynn
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Saturday, October 25, 2008 7:36 PM CDT
Anne,
What are you Sorry about? Everything you write about is full of love and of course sorrow.Life handed you a great chalenage and you handled it very well,and sharded it for all of us to read and enjoy and connect with you and your family,especially the boys/Sam and Zach.I`m just sorry you had to go through such sorrow,but I also know you wouldn`t change a thing you loved your boys so.And just having them with you even for a short time was a blessing to you .Lots of sad memories but a lot more good ones of the boys.I also remember how you talked about how the boys loved Halloween.So a time that should be happy is now sad for you.know that you are in our thoughts and prayer`s at this time as always.
cousin Lynn and family..
Lynn Walsh <jamesgreeenman@hotmail.com>
Duluth, MN USA - Saturday, October 25, 2008 7:33 PM CDT
It's been almost 5 years, and every time I walk through a toy isle I find something that Sonja would just love. I have bought them for other kids, but none of them have appreciated them like she did. Still, it makes me feel good to buy them.
Good for your girls for being able to get up and speak. I'm sure they'll touch a lot of people!
Marcia,okbabes <marciat@sympatico.ca>
Bradford, ON Canada - Thursday, October 23, 2008 10:48 PM CDT
You are an AMAZING MOMMY!!! I pray for you and you girls daily. When you get a second check out Joey's site. God Bless you!!!
www.caringbridge.org/visit/joeynelson
Tamara <sdj02@access4less.net>
Missouri - Sunday, October 19, 2008 5:34 PM CDT
I LOVE LOVE LOVE LOVE Sam's book! It is just delightful! Thanks so very much for sharing it! It brought back so many memories! Your children are so very precious. Thank you!
http://connorscott99.blogspot.com
http://www.caringbridge.org/visit/connorscott99
Deb , Scott, and Connor, always in our hearts <sdcm@optonline.net>
- Monday, October 13, 2008 6:18 AM CDT
Love the "Sam I Am" book!!! What a blessing and joy to read. I wish Brody felt the same way about school. You know that Sam's story is what inspired me to push to get Brody into school last year. After all was said and done...he hates it!!! He still goes, he just doesn't see it as a privilege like Sam. It leaves me wondering where I went wrong????
Thinking of you all,
Kristi & Brody Cole
www.carepages.com
Carepage Name-brodyjcole
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Sunday, October 12, 2008 10:38 PM CDT
Fantastic, Thanks again for sharing.Can`t wait to read the updated version.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Sunday, October 12, 2008 4:21 PM CDT
Wonderful!!!
Marcia,okbabes <marciat@sympatico.ca>
Bradford, ON - Thursday, October 9, 2008 11:04 PM CDT
Anne -
I always loved reading the Sam book when I came for Zach & Abby's piano lessons. Thanks for posting it!
Nancy D-S <ndexschabow@hotmail.com>
Hartland, WI USA - Thursday, October 9, 2008 9:23 PM CDT
I'm so happy that I turned to CaringBridge today. The photos are all beautiful and they tell such a happy story of Sam and Zach. Thank you, Anne and Abby for giving us this wonderful picture show to help us all celebrate Zach and Sam! Love, Josey
Josephine Zell <josephinezell@sbcglobal.net>
Madison, WI USA - Thursday, October 9, 2008 6:44 PM CDT
I love, LOVE, L.O.V.E!! The painting and the book! Thank you for sharing. Hope you are having a gentle day. Much love....Tamm Mom to Angel Skye
Tamm <Tamm06@aol.com>
- Thursday, October 9, 2008 1:10 PM CDT
Dearest Anne and family,
Just droping you a quick note to say you are in our thoughts and prayers.And to say never doubt the choices you have made especially when it comes to your children.We as parents can only do the best we can feel what is right at that time. Never doubt your choices they were always done for love.
Cousin Lynn and family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn. USA - Wednesday, October 8, 2008 10:07 AM CDT
Thinking a lot lately about Zach...I miss him dearly...
Hope <hmpatchak@yahoo.com>
- Tuesday, October 7, 2008 6:52 PM CDT
Thinking of you and Zach and Sam and your girls...
Anne R <areckling@aol.com>
- Tuesday, October 7, 2008 6:01 AM CDT
Anne-
Thinking of you and praying---
Jayme <january11292@yahoo.com>
Walton, KY - Monday, October 6, 2008 10:30 PM CDT
Hi Anne, I am holding you in my heart right now as I think of and remember hearing Zachary on the phone that day I called to talk to you. Hearing his voice. His voice was so absolutely precious. To a mother her child's voice, there is nothing so wonderful! I will never forget the last few words my little boy spoke to me either. Much love and prayer as you remember...
Deb
http://www.caringbridge.org/visit/connorscott99
http://connorscott99.blogspot.com
Deb Millard
- Monday, October 6, 2008 9:32 AM CDT
Anne, I never realized the proximity of all these dates. I guess last year when Zach arrested it did not hit me how it was almost Oct. 6th. I realize that every day your memories abound and always you miss those you love. Today I thought about Kevin. Somewhere I imagine he is with your boys and they are saying "Mama, we'll be there every mile"
Love
Jackie
.
- Sunday, October 5, 2008 8:57 PM CDT
Hi
I saw your post on the mito yahoo group and followed your caring bridge site. I was reading your post in September about feeling frusterated about other's silence. I lost my year old baby Jasper in June of this year from Leigh's Disease (a mito condition) and I have been feeling the same about many people around me. So many with wonderful support and responses, but so many people seem so afraid to say anything. I don't know why either, that people are so afraid to acknowledge our dead children. our memories and love don't fade just because their physical presence is not here. My husband and I talk about something we call the "dead baby stare" that people give us when they don't know what to say. They kind of cock their head to the side and raise their eyebrows and sigh a little. Instead they could just say "I'm sorry" or "I miss Jasper". I don't really get it. I just really resonated with what you wrote and wanted to thank you for being so honest. Your words were clear and I felt like I could be saying the exact same thing! Thank you again, and I wish you continued closeness with your memories and those around you.
In loving-kindness
Kenda
www.caringbridge.org/visit/jasperyundt
kenda burke <chirokenda@yahoo.com>
Oakland, CA - Sunday, October 5, 2008 7:14 PM CDT
Anne, I think of you and the boys often. I come here to see their bright smiley faces and here your stories. I've read your intro hundreds of times because I love to hear you talk about the boys and feel I know them better through you (I only know Sam though you). Know you are never far from my thoughts and always in my prayers.
Holly
Holmen, WI - Sunday, October 5, 2008 6:57 PM CDT
Thinking of you today.
Love, Nena and Reese
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
- Sunday, October 5, 2008 6:29 PM CDT
Hey Anne,
Thinking of you today and unable to comprehend the emotions you must be feeling. So many people miss Zach too-(including myself). God Bless "The One and Only" and his bestest brother!!!
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Saturday, October 4, 2008 4:32 PM CDT
Thinking about you all and know that Sam and Zach still speak in so many ways today. It can't compare though to hearing the sound of their voice.
Cindy <Kurtcindyb@aol.com>
Waukesha, - Saturday, October 4, 2008 1:53 PM CDT
Hi Anne~ Thinking of you and Zach today. Remembering how brave he was. I was so proud of him for being so strong and fighting so hard. I'm still so proud of him. He's an inspiration to me and I will always hold him close. Talk to you soon.
Love, Amanda
Amanda <aglorioso@chw.org>
- Saturday, October 4, 2008 1:14 PM CDT
Thinking of you and Zach. Was that a year ago today? It's still hard to believe that he is not with us. I miss hearing Zach's voice and his laugh. That was such a terrible night, such a loss of control for you and me. I know Zach knew we were there and doing all we could do to make him feel better and pain free. Never to be forgotten for the young man he was. I also always keep Sammy close to my heart. Thinking of you. Drop me an email if you want. Love, KP
Kris Pallett <krayzee77@hotmail.com>
- Friday, October 3, 2008 11:41 PM CDT
Hi Anne
Powerful and thought provoking post and I have to admit that I avoid direct contact with people who have lost a child or children. Case in point, I have been attending the same church as Deb and Scott for many years, yet when Connor died and all this year, I used the CB site to let them know that their son meant a lot to me. I called Deb recently and told her I am sorry that I take the easy way, I do find it easier to think about what I am going to say in the journal rather than risking saying the wrong thing to her. She understood, however I still realize it is stupid, even if I did say the wrong thing, she would understand. I have never met you or your family so communicatng through the CB site is fine and I am so glad we can talk this way. I never had the pleasure of meeting Sam or Zach, but their lives will always mean something to me. It for me was not that Sam, Zach and Connor were kids that were sick, it was how they lived their short life's that touched my heart. I told Deb last year that I grew so attached to Connor and to Zach that my heart actually hurt and I wanted to stop reading any site that might lead to me getting attached to another child that might die. I do suffer from on and off again depression, so I do think I internalize too much. Well I have grown close to other kids, but to me Zach was the One and Only. I was not reading this site when Sam was alive, but Zach just grabbed my heart, maybe because he was the same age as my son Chris.
Anyway your post was great today and I hope I never stop telling you that Sam and Zach were just the best. I will never miss them like you do, but I do miss them. Thanks for always making me think and never let me forget why I read your site to begin with, for me it was and still is because of Zach's amazing life. You are in my prayers, I read also because I do care about you and your terrific girls.
Love
Ann Marie
Ann Marie Gleason <ageason130@yahoo.com>
Denville , NJ 07834 - Friday, October 3, 2008 4:58 PM CDT
Oh Anne, I hate to say that I know exactly what you are talking about and feeling. It's been 30 months since Skye died and I feel the same way. There are few ppl that I can say, Oh Skye would have loved that! or talk about my memories with. I too get up everyday because of my memories and because of Skye and my other 2 girls. I will always carry Zach and Sam in my heart. I think about them often and you. I wish I had words to help ease the hurt and heaviness in your heart but I know all too well there are no words. Just know that I am here, always thinking, praying, and remembering our precious children, Zach, Sam, Skye. Much love and hope always.....Tamm
Tamm www.caringbridge.org/oh/skyecoleycole <tamm06@aol.com>
- Thursday, October 2, 2008 8:19 AM CDT
Just wanted to say hello and that I think your latest entry was wonderful. I realize that death is a part of life but SO ARE YOUR BOYS!!!!!!!!!! And although they are living in Heaven now, they are STILL YOUR BOYS!!!!!!!!! I think it would be odd if you didn't talk about them! I still talk about my Dad all of the time. I started immediately talking about him, going to the cemetery, etc. after his death, as I knew it would make it easier down the road to continue doing so. I don't WANT to forget. I don't NEED to forget. There is no reason. I would be lying if I said that I hadn't played the scenario of Jacob dying in my head over and over during phases of his short life. While I think the pain is unbearable, it is NOTHING compared to what you actually are going through. And you've went through it twice. I remember that you gave me Sam's blue chair for Jacob to use. We use it every day. I remember where it came from and I remember who used it. I don't want to forget... and there is no reason to forget that it came from Sam. I am sorry that I don't sign more often. I only saw you that one time with Marisol and Zach and you were in a hurry to get to Radiology, so I am not 100% sure what you look like (I'm getting old at a rapid pace!!!) so if I've "ignored" you in the hallway, plz know it is not intentional. In fact, if you would stop me, I would love it!!! After a while, people WISH I'd ignore them :-) Plz know that you are thought of often.
Lots of love and prayers... of remembrance.
Jen, Jeremy & Jacob Schultz <Schultz@wi.rr.com>
Waukesha, WI USA - Wednesday, October 1, 2008 11:41 PM CDT
Zach. Sam. Callie. I remember. Your lives intertwined and your daily choice to keep going is something that has impacted my life more than you can imagine.
Love
Jackie
.
- Wednesday, October 1, 2008 8:54 AM CDT
Every bright orange balloon or bright orange anything, and I think of Sam and smile. Everything Star Wars and many times when I just look at Kody-- it's Zach. It still happens, I still think of them and their lives. Touched forever by them, they were here and they changed us all.
If I could be there to help you get out of bed one morning, or just give you an extra blanket and help soak you in precious memories...
steph
tubetown, - Tuesday, September 30, 2008 9:05 PM CDT
Dearest Anne,
Thanks again for your thoughtful comments on how people deal with you and how you wonder why your sons names are not often mentioned in your presents any more. You are so right people do get to a point feeling not only uncomfortable about mentioning their names ,but probably feel they are helping you through the healing process by not bring them up so often. They are wrong but meaningful in that they care for you and your family and think this is the way to help you heal from the loss of your two little angels Sam and Zach.I feel the more they are talked about the more it helps instead of the other way around. Remembering the good times and the hard times and the funny times and the laughing times is what make life what it is even after someone has passes on. Enjoy as you heal and your right you`ll never forget and you shouldn`t ever forget the time of tears either cause that part of lives healing process too.
May God be with you and your family now and forever.
Cousin Lynn and Family..
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Tuesday, September 30, 2008 6:39 PM CDT
Thinking of Zach and Sam. Wishing we could carry some of your heart's heaviness for you. Your boys are in everyone's hearts and minds...you educating us on how to express that is a good thing.
Kris and the boys. <pnkntwins@charter.net>
- Tuesday, September 30, 2008 9:32 AM CDT
You all have been very much in my thoughts as I am trying to organize a blood drive. Trying to motivate people to donate when they have a million excuse one of which is always, I'm so busy. Thinking of you all especially those two very inspiring boys of yours.
Cindy <Kurtcindyb@aol.com>
Waukesha, - Monday, September 29, 2008 9:20 PM CDT
Anne, Thanks for the post on our caringbridge page. I will definately call you before I pop back down to Milwaukee. I believe my next appointment is in February but we may be bumping that up. I love your mom's poetry and someday, when the mood strikes you, I'm sure you will start a book of your own. In your own time.
Angela Zutz <angiern5612@charter.net>
Plover, WI USA - Monday, September 29, 2008 1:49 AM CDT
Hey Anne,
Just sending you a note to catch up. Thought I would let you know that while inpatient a couple of weeks ago in Pittsburgh I was afforded the opportunity to meet a Dr. Hickey, the ER attending and man who wrote the forward in the PALS book on the front of this website. I would have never have known about this forward but asked him if he was "the" Dr. Hickey who wrote the forward. He said he was indeed and was amazed that someone outside the medical profession-(I didn't tell him I was a nurse as that was irrelevant-that is not how I acquired the info!!!) knew of this forward. I told him he would be surprised at how many people probably knew of his work through two special boy's website. He seemed quite pleased. Just thought I would share this with you. Love the new video of the kids and the song couldn't be more appropriate.
Thinking of you always!
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Friday, September 26, 2008 10:52 PM CDT
Thought of you all today as I was headed to pick Michaela up at Bethesda and saw a man leaning up against Sam's tree. It made me think about how Sam continues to hold people up whether through the memory of his incredible personality or his laugh and even the tree.
Cindy
Waukesha, - Wednesday, September 24, 2008 3:34 PM CDT
Thinking of you today! I am tempted to take a trip to Mpls to meet you and your girls. This is our first weekend home in a long, long while though. Keep me posted on your next trip west and I'll see what I can do.
Sending peace and light, Nena
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
- Tuesday, September 23, 2008 10:00 PM CDT
I love your mother's poem! What a talented family you have--full of poets and writers and musicians and artists--insightful thinkers, all. Hard to believe it is the end of September again already. I remember the days leading up to the hospitalization--the lack of gun stores in San Diego, the party, the fall at school, the care conference. I remember. I wish it had turned out differently. I miss Zach being a part of this world! He certainly made it a much better place--being an artist and insightful thinker, himself.
Thanks for your note on Anna's caringbridge site . . . and no, there wasn't a copay with the admission. Worse--80% coinsurance PLUS an ER copay, I think! Yes, insult to injury. Oh, well. Let's hope that things start to change after this election!
Love,
Kathy
Kathy Corley www.caringbridge.org/visit./annacorley <corley_kathy@comcast.net>
Signal Mountain, TN - Tuesday, September 23, 2008 8:17 PM CDT
The poetry of your mother is amazing, as I am sure your BOOK would be. You could publish your journal entries and have a best seller. I also am so inspired when I read them. Whenever I am tired, sad, or just feel overwhelmed I read your writings and am uplifted. It is as if, your boys are speaking to all of us through your words of wisdom Today, reading of the friends in the hospital, I could so relate, how for us there are times I almost wish we were admitted, as the nurses understand my exhaustion when no one else really has a clue.... praying for you as I always do -
Jayme <january11292@yahoo.com>
Walton, Ky - Tuesday, September 23, 2008 10:41 AM CDT
HI ANNE, THANK YOU FOR SHARING YOUR MOTHERS'S BEAUTIFUL POEMS WITH US, I PURCHASED HER BOOK AND WILL ORDER OTHERS, IT IS JUST WONDERFUL. I AM SURE ABBEY HAD A GREAT TIME AT THE PARTY.
LOVE YOU ALL.
FRANCIS
FRANCIS NATOLI <FRANCISNAT@AOL.COM>
NAPLES, FL USA - Tuesday, September 23, 2008 3:36 AM CDT
Love the picture of Zach and Sam. I would love to see Abby's homecoming pics too!
Your Mom's poem was just beautiful...how could it not be with the muses that inspire her. I know you will publish too...how could you not with muses like Zach and Sam gifting words to you. What a beautiful way to share your boys with the rest of the world.
Your boys are in our hearts.
Thanks so much for sharing.
Kris and the boys <pnkntwins@charter.net>
- Sunday, September 21, 2008 11:47 AM CDT
Your Mom's poem about Sam is something else. I was in tears reading it. Thank you so much for sharing...so touching. I will definitely be ordering a copy.
Much love and prayer always,
Deb Millard <sdcm@optonline.net>
- Sunday, September 21, 2008 6:37 AM CDT
Thinking of you all today!!
Cindy
- Saturday, September 20, 2008 8:11 PM CDT
Anne,
Thanks again for letting us share with you.Your thoughts and astute observations about what was never obvious at this time last year for your family.And even knowing as you write this now to share with us that life is what it is very tenious at best. and your boys did seem to know and live what ever time they had with nothing but zest for life as they saw it. They were and are truely an inspiration for the rest of us. Thanks again for sharing your most intimate thoughts with us.and may God help you and your family as you relive this most difficult time again.Remember the laughter as well as the tears..They are both needed in the healing process.You and your family will be in our prayer even more at this time.
Love cousin Lynn and Family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Saturday, September 20, 2008 6:03 PM CDT
Anne I heard you speak last week and I was so touched. I told a coworker. He gave me the link to your sons' website. I have been reading and laughing and crying and thinking all week as I read from the beginning. honestly, I wondered if you were for real and was assured by many many people that you are as authentic as they come. Your story has already changed the way that I approach my patients. Thank you Anne.
annonymous
- Thursday, September 18, 2008 8:28 AM CDT
Anna Banana - Come up to Alaska to visit us and we'll talk politics!! I love how Zach just got to the point. He's such a neat kid and I use present tense very deliberately. Sam and his love for explosions and "spirited" debate (not arguement mind you) sounds like Bill, who I see from your guestbook surfaced briefly. Thinking of you during this fall as you remember those days.
Mike
- Thursday, September 18, 2008 8:18 AM CDT
Anne,
Very well put.politics is such a challenge,which way to go who to vote for.And yes jfk was great,as was he`s brother Bobby.in fact I think He would of been even greater.And Kids do seem to hit the nail on the head and cut through all the junk better then most adults. Kodos to you for your great observation as usual. You really do need to write books,you have such a knack for it. You cut right to the chase so to speak.
Cousin Lynn
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Tuesday, September 16, 2008 6:53 PM CDT
Palin has nothing on you. You can start as a state rep! A book first would be a good idea to get your name out there. Just kidding... or not.
Love to you and always thinking of your beautiful boys.
Kris and the boys <pnkntwins@charter.net>
- Tuesday, September 16, 2008 6:23 PM CDT
Hey! I got your message! Thanks for remembering. I am in civilization briefly but too late to call and did you say your computer blew up? Really Anne!!I think I have a date -Nov 24 or 25. I'm sorry to be so cut off from things. The timing was not perfect. I just hope that every day you find that strength that I know you already have deep inside of you. Hang in there!
BK
- Tuesday, September 16, 2008 0:31 AM CDT
I can still see Zachary rolling his eyes when we all started talking politics!
Hopey
- Sunday, September 14, 2008 11:26 AM CDT
Never knew you had an aunt that died that fateful day.She seems to have been quite and inspiration to you ,just as you are to many others now,You never know as you said how someone will impact your life.Blessings to all .
Cousin Lynn and family..
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Saturday, September 13, 2008 8:02 PM CDT
I had a fortune cookie today and the fortune was Laughter is the best medicine, I thought of Sam instantly.
Thinking of you often
Hannah Bergland <Hanbana23@aim.com>
- Saturday, September 13, 2008 6:56 PM CDT
I had no idea.I am so sorry about your lovely Aunt.
So tragic...
Love,
Krystena <momof2withga2@yahoo.com>
- Thursday, September 11, 2008 9:06 PM CDT
Thanks for the montage. I just got internet the other day and we can't play videos on our work computer so I haven't been able to see it until now but it's really cool so thanks.
Brittany
- Tuesday, September 9, 2008 7:54 PM CDT
Hi Anne
When Deb asked us to pray for Zach, I checked out his site and just felt an automatic connection to him. I continued to get to know Zach, not because he was sick but because of who Zack was and is. Zach did make a choice to live his life to the best of his ability, to make the most of his life. I truly learned from your son and Zach is the One and Only. My heart is with you and your girls, its also with Deb and Scott. My heart is also with some of the other wonderful kids who loss their battle to disease this past year alone. I hate Mito disease, I hate cancer and I hate when kids have to suffer. I do not understand all of God's ways, but I do know he loves you and your girls. He loves Zach and Sam and all the other children who are with him now. When you say that your girls give you the strengh to go on and make the most of your life and Anne I am glad for that. I have hope and confidence that you will continue to do your best, you have great examples in your sons. Take care of yourself.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Monday, September 8, 2008 8:00 PM CDT
Anne:
Beautiful words as always. When you least expect it, comfort comes from the unexpected places. I have high hopes for the dems. It is time for a change and hope. A book you may want to read is called THe Shack. It is an excellent book on faith. It's about a man and he meets God. And you won't believe who God turns out to be. I'm buying the book and using it as a reference for teaching my Jr. High Sunday School class. There is so much in there that you go wow to. My oldest son, Parker (15 years old) read it in a week and loved it. He got the name of the book from the chaplin who visited him in the hospital in June when he was ill. Hope school is going well for the girls and life in general. Take care Anne. Peace to you and your family.
Lisa Nerenhausen <lnerenhausen@new.rr.com>
Appleton, WI USA - Monday, September 8, 2008 2:33 PM CDT
Isn't it amazing how something touches us in a way we do not expect!
I appreciate you as a mom so much!
:) Melody
www.caringbridge.org/visit/natalieholmes
Melody Holmes <sharnholmes@netscape.net>
- Monday, September 8, 2008 5:49 AM CDT
Anne-
I was in the car today with Hannah and she was telling me how much she misses Abby. It was just one of those out of the blue statements. She went on to ask if Zach's tree ever got planted. I did know the answer. It made me stop and think about the new quiet of your house that you have to live in yet I imagine you can never get used to that new quiet. Thinking about you all!
Cindy
- Sunday, September 7, 2008 9:36 PM CDT
Dearest Anne and family,
Anne as usual you hit the nail right on the head the first time,you are so right about your observations and your boys and your daughters lives be as they are all of us need support and most of the time it comes out of nowhere it just pops up in the most unusal ways. Thank you again for your astute observations. I like Joe Biden too.Glad he`s on the ticket..Say hi to your family and Mine sends all their love your way..
Cousin Lynn and family..
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Sunday, September 7, 2008 7:49 PM CDT
Anne,
Your entry today struck a real chord with me. I still am telling my students about Zach, his love of life and learning, and how he impacted me. I think of Zach and Abby often and the impact they have had on me.
Marianne Kirsch <mkirsch@waukesha.k12.wi.us>
Elm Grove, WI USA - Sunday, September 7, 2008 10:10 AM CDT
anne--- beautiful. Thank you. Sometimes when we cant reach out for help, folks dig in and pull us up. Thank God.
Steph
tubetown, OH - Saturday, September 6, 2008 5:25 PM CDT
Beautiful and agree with your friend Kris. You really should send this to Joe Biden. I imagine he'd love it - who would not want to know they are cut from the same mold as Sam?
AK
- Saturday, September 6, 2008 11:28 AM CDT
Anne,
Zach, Sam, and you are the "because of others" for so many of us. You and your boys inspire us and impact how we lead our lives.
They legacy is never-ending.
Kris and the boys <pnkntwins@charter.net>
- Saturday, September 6, 2008 10:04 AM CDT
Thinking about you as school has started. Sam would have been a 5th grader and Zach a sophmore. It hurts my heart to think about them not here. I can't imagine the depth of your hurt having to live with the quiet there must be in your house not having those sweet boys of yours there. You are in my prayers.
Cindy
- Thursday, September 4, 2008 9:30 PM CDT
Anne, I just read your entry, you amaze me with your strength on this drug matter.Yes, the tears came but you did all the paperwork and things that needed to be done. As you said this will not bring Zac back but could help another child in this situation. What a wonderful thing you did to help others and I can only imagine how difficult it must have been. Our thoughts and prayers are with you,
The Hunter's(angel Zac)
Kim Hunter <widgit@earthlink.net>
- Monday, September 1, 2008 8:54 AM CDT
Anne,I have just read your latest entry about Zach (Aug. 29) and send love and prayers tonight. It was only today when your Mom brought up the stressful events of recent weeks that I realized the difficult time you and your family are going through. I am sorry for my lapse in following your commentary regularly. It will not happen again. Love and prayers, Josey
Josephine Zell <josephinezell@sbcglobal.net>
Madison, WI USA - Saturday, August 30, 2008 10:34 PM CDT
Anne,
May you find comfort in knowing that what you are doing now may make the drug company more accountable in the future.But this sometimes in not the end result as we all have dealt with some of the FdA inability to police its self or the drug companies. But try and keep the faith..
Sorry you had to relive such heart wrenching things.
Take care and god bless you and your family.
Cousin Lynn
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Friday, August 29, 2008 4:29 PM CDT
What you are doing needs to be done. I am proud of you... yes for your bravery. You are one courageous Mother. I know Zach and Sam are proud of you too.
Love,
Krystena <momof2withga2@yahoo.com>
- Friday, August 29, 2008 2:19 PM CDT
Dear Anne. Thinking of you today.
Sending you peace and light, Nena
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
- Friday, August 29, 2008 8:47 AM CDT
Dearest Anne,
You are so right on about how things were viewed and should have been viewed a year ago.What a great tribute to zach and abby`s commitement to each other. and them doing what was best for them not always what zach`s health seem to want to dictate. your looking aback at this moment now is very intuitive and very constructive for your family and you to be able to keep moving forward.Thank you for your insite into these personal things that you share,for I`m sure as I do many people who view your web site come away with some thing to reflex on and use maybe in future issues of their lives. God Bless and Keep you all in he`s sights and watch over you and yours.
Love cousin lynn and family.
PS.May you keep the strength and wisdom to see you through the next few momths are you relive these tramadic moments,that lead to the passing of your beloved Zach.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Tuesday, August 26, 2008 11:23 AM CDT
Hi Anne
So nice to see you posted again, I hope you enjoyed your time away. I am glad that you let Zach go to that party with Abby at a time when his health was declining so much. I am glad that he had a great time, but not nearly as glad as you are. Yes sometimes what was best for Zach socially and emotionally was at times more important than what maybe the doctors would not recommend medically. I also remember the weeks leading up to Zach's surgery, not of course in the same way that do, but I was so sacred for him but hopeful. So many memories this time of year for you, Abby and Brittany. Thanks for giving appreciation to the few kids that did continue to include Zach, that were his true friends. It is hard for adults to handle sickness, but for a teen ager it is so much harder. It can be very scary for them, but those that did stick by your son, I am sure they are glad they did. You continue to touch my heart with your honesty and good heart.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Monday, August 25, 2008 7:03 PM CDT
Your family is always in my thoughts and prayers. As I sent Alex to kindergarten for the first time today, there was not a single part of me that was sad. I was so joyful that he is able to be a kid. I think as parents of chronically ill children, we are blessed to see the little and often overlooked joys in life. Such a normal experience for a 5 year old meant so much more to me today. Those deeper memories and feelings are God's gift to us. I am glad that you are able to remember your boys life in such wonderful ways.
~Katie
www.caringbridge.org/visit/alexanderlindemann
Katie
- Monday, August 25, 2008 3:09 PM CDT
I love reading your journals. You have such a gift of hitting the hearts of many and showing the love you had for your boys. They are so lucky to have had you for a mom and what a great couple of sisters they had. Thanks for continuing to share them others.
Lynne Barker - grandma to Angel Dylan Faith www.caringbridge.com/il/dylan <lbarker@asd.net>
East Peoria, IL USA - Monday, August 25, 2008 9:29 AM CDT
You are the most inspirational writer, that I have been lucky enough to have read. Your ability to celebrate life during adversity is awe inspiring. Thank you for continuing your journal, and continuing to write of Zach and Sam. Your daughter's are blessed to have you as a mom, and we who have come to know you from the TPN support group are fortunate to have you to give us hope when skies are gray, and to give us inspiration in all you write.
God bless you and know that we continue to think of you and appreciate all you do -
Jayme <january11292@yahoo.com>
Walton, KY - Sunday, August 24, 2008 10:30 PM CDT
Thinking about you. Praying for Abby and Brittany as they are about to start the school year without their brothers. You are always in my prayers Anne.
Cindy
- Sunday, August 24, 2008 6:21 PM CDT
So glad that you and Abby were able to go down the shore. We think of your beautiful boys daily, at least. Wishing we could take some of your hurt away or lend you strength to endure...but I know we can't.
How are the quilts coming along...
Kris and the boys <pnkntwins@charter.net>
- Sunday, August 24, 2008 9:40 AM CDT
Your family has come to my mind several times in the past few weeks. A cb friend of ours had a fundo and g-tube placed. We saw him at RMH four days later; that later that evening they found that it had ruptured and he has been critical ever since. This was about 5 weeks ago. (www.caringbridge.org/visit/aaronczup)
Thank you for sharing about your special family! It is wonderful to hear from you!
:) Melody
www.caringbridge.org/visit/natalieholmes
Melody <sharnholmes@netscape.net>
south bend, IN - Saturday, August 23, 2008 10:35 PM CDT
Anne,
I cry with you, remembering all those details, and aching so for our beautiful children. You make perfect sense to me. Blessings to you, and much peace in the days and hours ahead.
Love, Elizabeth
Elizabeth Westbrook <ewestbrook@wi.rr.com>
- Saturday, August 23, 2008 6:57 PM CDT
What a moving update. Zach was a very special boy obviously (like his brother Sam), and how difficult it must be not to have him around. Praying for you all. Best wishes from the U.K.
love, Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, United Kingdom - Saturday, August 23, 2008 5:45 PM CDT
oops,
Forgot to mention the Philly cheese steaks .your right there is not place on earth that makes them as good as there,always have family bring some back when they visit that area..
Cousin Lynn
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Thursday, August 21, 2008 6:43 PM CDT
Anne,
Glad everything seem to fall in place for you in ocean city,NJ It is a great place.WE use to live in that area too.years ago moved back to Mn in 1985. Still miss it some times.Have a son who still lives out in jersey,in the burlington area.We lived in Cape May Court House New Jersey,then moved to Philly and then bought a house in Willingboro NJ,then back to Duluth.Spent a total of 11yrs.
around there. Glad you were able to revisit and renew lots of good memories. We also visited there over the years.
Welcome back..Take care.In our prayers.
Cousin Lynn and family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Thursday, August 21, 2008 6:39 PM CDT
I missed your postings while you were away, however reading about your time away made up for it in a big way. I am so glad you were able to go home, and that Sam and Zach were there with you. As always, keeping you all in my thoughts and prayers.
BIG hugs
Kass & kids ( http://www.caringbridge.org/visit/mcnairs )
Dallas, TX - Wednesday, August 20, 2008 0:30 AM CDT
{{{Anne}}}}
Welcome home, from home. :)
Steph
tubetown, OH - Tuesday, August 19, 2008 8:01 PM CDT
Hello Ann,
I am so glad to hear you were able to enjoy your time away. Sounds like a awesome trip that you so deserved! Take care and know that you are continously in my thoughts and prayers!
Brenda Prindle <blprindle@sbcgloabal.net>
Little Chute, WI - Tuesday, August 19, 2008 7:25 PM CDT
I am glad you felt Zach and Sam's presence in a comforting way there. The trip sounds heavenly! Books, custard, cheese steaks, and the beach. Can't imagine anything better! I have a Brazilian friend who tells me that it is good to have "brown feet" because it shows that you are living well. I hope your feet are nice and brown after the respite!
Kathy
Kathy Corley www.caringbridge.org/tn/alexcorley & www.caringbridge.org/visit./annacorley <corleyfive@comcast.net>
Signal Mountain, TN 37377 - Tuesday, August 19, 2008 9:12 AM CDT
So glad you were able to enjoy your time and reflect. Glad you were able to feel close to your boys. I think of you often, it was good to hear your words again.
Holly and Maya
Holmen, WI United States - Tuesday, August 19, 2008 8:18 AM CDT
Anne; Thank you for the beautiful, informative video on Blood Donation and how very important it is...I feel so informed and now able to talk to people about it's importance...In Honor and rememberance of Sam and Zach...Bless you...Tina White in Ohio
www.caringbridge.org/visit/rickiwhite
tina white <ocecdtw@netlink.net>
sebring, oh usa - Monday, August 18, 2008 11:22 PM CDT
I miss reading your words and thoughts. Hope you enjoyed the time. Thinking of you and your boys.
Kris and the boys <pnkntwins@charter.net>
- Saturday, August 16, 2008 3:11 PM CDT
Thinking of you!
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Friday, August 15, 2008 7:54 PM CDT
I hope you are having a wonderful break. Alex and I wanted you to know that not a day goes by with us not missing you and Zach. We pray for you everynight. I hope the girls are well. Talk to you soon.
Megan and Alex <dmreid1994@sbcglbal.net>
Wheeling, - Thursday, August 14, 2008 9:41 AM CDT
Dearest Anne and Family,
Hope you all are enjoying your time away from things for awhile.You all need it Thinking of you always.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Tuesday, August 12, 2008 3:52 PM CDT
Thinking of you.
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Sunday, August 10, 2008 11:01 AM CDT
Hey Anne, thinking about you and your family today. I have the pic of Zach & Sam up on my fridge...always thinking of the best brothers up in heaven playing with my boy! Much love and prayer,
www.caringbridge.org/visit/connorscott99
Deb <sdcm@optonline.net>
- Saturday, August 9, 2008 5:51 AM CDT
"In my heart, in my soul and on my mind..."
Love,
Krystena <momof2withga2@yahoo.com>
- Friday, August 8, 2008 11:32 PM CDT
Anne,
Thinking of you always. During this hospital stay I too have been thinking about how Brody has affected so many lives here. I can't tell you the number of times that we meet someone-(obviously who is new!!) who says "I have heard all about your son." Zach & Sam touched lives in the hospital, at school, and across the world via this caringbridge site. You continue to touch lives now with your devotion to blood donation, education for the residents at your hospital, and your words of wisdom and insight on this site.
Always remembering the two best brothers!!!!!!!!!!!!!
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Wednesday, August 6, 2008 2:31 AM CDT
Thinking of you. Enjoy your two week hiatus. We will have to do a b-day dinner soon. Love, KP
Kris Pallett
- Tuesday, August 5, 2008 11:45 AM CDT
To see Zach's art work again just melts my heart. To see where he placed colors, shapes, forms. . .what a precious gift he gave to you--us all.
Thank you for sharing--
Sheila DeKold
- Monday, August 4, 2008 11:22 PM CDT
A Little Late for Your Birthday
Seems like life keeps moving faster, but I keep moving slower, and the more stuff I try to remember, the more I find myself forgetting the really important things.....like your birthday, for instance.
Sorry I missed it, Anne— hope it was a great day!
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Monday, August 4, 2008 1:53 PM CDT
Just stopped by the site today because I was thinking about you all.
Cindy
Waukesha, WI - Sunday, August 3, 2008 12:35 AM CDT
Anne -Before he left Billy told me to make sure to tell you HB since he cannot get to ph/email. I'm sorry this is a little late. But that is me messing up. Not him. I think he would have delayed the trip if he could have just to tell you HB himself. Who woulda thought that he'd remember anyone's birthday? I think he/we are afraid you'll get lost again. But you won't. I hope today had some of your startled by joy moments. Love you, Jackie
J
- Friday, August 1, 2008 0:47 AM CDT
Anne, Happy Birthday......I come here and read your words and see how your grief deepens and my heart just breaks. I have no words of wisdom, I don't know how we survive the death of our child/children......Just know that I am here everyday thinking of you and always carrying Zach and Sam in my heart. I feel you have such a gift with your way with words and the way you write...I never know what to say here in the guestbook...Thanks for sharing so much with us and especially your heart and your boys. Much love,
Tamm Mom to ^Skye^
Tamm www.caringbridge.org/oh/skyecoleycole <Tamm06@aol.com>
- Thursday, July 31, 2008 5:21 PM CDT
Happy birthday dear Anne and your artist on display is lovely,lovely,lovely. Thinking of you.
Donna <donerleg1@yahoo.com>
louisville, ky usa - Thursday, July 31, 2008 4:54 PM CDT
Happy Birthday Anne!!!
Love,
Claudia and Kyle
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Thursday, July 31, 2008 5:29 AM CDT
Dearest Anne,
Thanks for sharing as always it`s ajoy to read your entries. Yes your Boys did belong to everyone who came in contact with them because even as death drew near they shared their courage and resilence in quite but loud voices even though they were silent and your hopfullness always showed through for them. Hope your Birthday is a Great day, even though your lovely angels won`t be their physically they will be watching from above and would not be happy if you didn`t have a great day tomorrow.And your girls and the rest of your family I know will try their best to make it so.Laugh, cry ,or what every else will help you make it through you Day.God Bless.
Cousin Lynn and family..
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Wednesday, July 30, 2008 7:34 PM CDT
We will be thinking of you tomorrow and celebrating in your honor... and in Zach and Sam's. Wishes for peace, rest, love, and lots of cake to you on your Birthday.
Kris and the boys <pnkntwins@charter.net>
- Wednesday, July 30, 2008 11:00 AM CDT
Anne, let me tell you Samuel, Martin and I will celebrate your day truly is a reason to celebrate you and your boys are really a special gift to us all..........
Sharon ,mum to Martin & Samuel & ^Savannah^ <mb-sb@hotmail.co.uk caringbridge.org/europe/samuelbell>
GLASGOW, Scotland - Tuesday, July 29, 2008 5:41 PM CDT
P.S. That's to say J'OD. At first I could not figure out why Sherry was looking at me so funny. B.
_
- Tuesday, July 29, 2008 7:55 AM CDT
I don't know how either. I just know that your spirit has not allowed anything or anyone to bind it in the past. I don't believe anything could ever really repress your spirit permanently. Maybe that you are here asking the question is the answer. You survive by questioning every single day how you can survive what should be impossible rather than assuming you cannot.
Anne - I leave tonight. Not sure when returning but doubt I'll have access initially if at all. I know but think WWJD? Bill
_
- Tuesday, July 29, 2008 7:46 AM CDT
Ann,
Like so many times before, your entry has brought tears to my eyes and also a warmth to my heart. I am one of many who never got to meet your boys but I love them all the same. When I read the stories you tell about them I feel as though they are right in front of me. Thursday I plan to embrace their spirits and do all the things they would do if they were with you in body. I am going to celebrate "Anne's Day" with my kids. We will paint rocks, color, watch movies, cook up their original recipes and hug a little tighter and for a few seconds longer at bedtime.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Sunday, July 27, 2008 9:21 PM CDT
Dear Anne
I cried during your entire post and I can see why everyone loved your boys. Love was present in the ICU and Zach and Sam's spirit does live on in all those that knew them. I never had the pleasure of meeting Zach or Sam, my loss, however their lives have impacted mine so much. Like I said yesterday, I cannot imagine what your life is like without Sam and Zach, but somehow you go on. I think of Deb and Scott, Donna and Rich, Tina and Dave and too many others too numerous to list that have lost a child this past year or two. My heart aches for all moms and dads that have lost a child and also I ache for the sibling left without their brother or sister. I wish you Happy Birthday and I hope you do all the things that Zach and Sam would want you to do on your special day. I know your birthday will be so different this year and for that I am sorry. My birthday is on August 9th and I will try to celebrate my day Sam and Zach's way. I will cherish my two sons each day and always be grateful for their good health. Maybe someday Mito disease will be curable, that is my hope. Zach and Sam will be forever missed and have changed the hearts of many and so have you Anne.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Sunday, July 27, 2008 12:52 AM CDT
Dear Anne
I will be praying for Angel and her wonderful parents. I really hope that Angel's body accepts the new liver. I also love the video, what a wonderful idea of writting a book about grief for children. I read your comments about how it never felt like a burden to you to take care of Sam and Zach, it was your pleasure. They taught you so much and gave you so much love, I cannot imagine what your life is like without them. Anne you are an amazing mom for so many reasons and I cannot help but admire you. I do understand why you feel your boys filled your life up with good things, I feel that way about my 2 sons. I love them so much, they fill my life and give my own life meaning. I cannot even imagine my life without them and that is why my heart justs breaks for you and all the parents that lose a child or children to any disease.
Sending you my prayers and praying for that little fighter, Angel. Thanks for sharing the great video, your posts are always so heartfelt and insightful.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, July 26, 2008 4:36 PM CDT
I hope that some day the links will be to videos of you and your book/s. You have the gift of word and what better inspiration for writing than your beautiful boys. What a wonderful forum that publicity would be to the causes that you hold dear. No pressure..
Thinking of all of you,
Kris, Paul, Cole, and Zack. <pnkntwins@charter.net>
- Friday, July 25, 2008 6:56 PM CDT
You don't know me, but I feel as if I know you and your family. Thank you for sharing; it has helped me in my journey with a relative who has a mitochondrial disease and has fought long and courageously for many years.
Anyway, I just wanted to say I watched your blood donation video - it was awesome -- invoked many emotions on my part, with tears streaming down my face -- all those lovely children.
I am a regular blood donor, and at times a double red donor. I have been donating since I was 18 years of age, and that is more years than I care to count. Through my parents I learned the importance of blood donation from their example.
I have also been tested as a bone marrow donor, and of course, have the signed drivers license.
Thanks for the inspiration.
Someone inspired in the midwest
, - Thursday, July 24, 2008 6:45 PM CDT
Dearest Anne,
Thanks again for sharing with us your story about angel and the video both were great and i will pray for angel and family, and also for the family who`s child`s life was lost and thank them for their selfless gift of a new life chance for angel.
Take care and god bless your family now and in the future.
Love Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Wednesday, July 23, 2008 6:20 PM CDT
Thanks for the video clip, what an amazing lady. Reminds me of someone else...YOU!!! I'm going to look for the book next time I'm at Barnes and Noble.
Jill Nelson <tjtbnel@sbcglobal.net>
- Tuesday, July 22, 2008 3:32 PM CDT
i check in much more often than i write. i was thinking very strongly of sam, zach, and your family today, i am sure sam and zach have a whole band of angels watching over Angel right now.
Jackie K <aeonflux4444@yahoo.com>
brooklyn, ny - Monday, July 21, 2008 8:41 PM CDT
Me too!
___
- Sunday, July 20, 2008 3:23 PM CDT
Just thinking of you today.
Julia Hatfield, Emilie, Kaitlin, and Ian's mom from Our-Kids
Evansville, IN - Sunday, July 20, 2008 1:57 PM CDT
miss u annie. when are u going back to ny so maybe this time i can see u? i love that poem and the video is exactly as u said - inspiring
anne
- Friday, July 18, 2008 9:00 PM CDT
I wanted to send the email to Zach so bad. It popped up on my address book too. I did say thank you to all the boys that night...I was so worried Tom would get stopped at the red lights and all I wanted was to get to the hospital. Luckily every stoplight was GREEN! I said out loud "Thank you Mattie, Zach and Sam"
Hope <hmpatchak@yahoo.com>
- Friday, July 18, 2008 5:37 PM CDT
Incredible video, Anne. Thanks for sharing...
Theresa <bookangel1993@yahoo.com>
Limerick, ME 04048 - Wednesday, July 16, 2008 12:33 AM CDT
You are, have always been, and will always be a wonderful..the best.. mother to your boys..and your girls.
Kris and the boys <pnkntwins@charter.net>
- Wednesday, July 16, 2008 11:24 AM CDT
Hi, Thanks for the great video on donating blood. I donate dual red blood cells on a regular basis. Until you know a special needs child and they connect you to all these other families, you don't relalize the need. There are so many children and adults that their lives depend on blood donors. If people don't donate, I hope this video reaches them and they become regular donors. It makes you feel good to do something for someone you will never know, but you may have saved their life. Glenda Fisk
Glenda Fisk <jfisk@wi.rr.com>
Waukesha, WI - Tuesday, July 15, 2008 1:44 PM CDT
Thanks for the smile with the video clip today. I borrowed it for Reese's site. Thinking of you!
Love, Nena & Reese
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
- Tuesday, July 15, 2008 9:15 AM CDT
The marigolds are blooming. Orange. I miss Sam. I always will.
Linda
Milwaukee, WI - Tuesday, July 15, 2008 6:34 AM CDT
that is inspiring.
jackie
camden (not really), - Monday, July 14, 2008 1:17 PM CDT
That's awesome. You're awesome.
Dave
- Monday, July 14, 2008 0:02 AM CDT
((((Anne))))) thinking of you and sending prayers for solace for you and faith and conviction that Zach and Sammy are both safe, warm and with each other warm,loving and comforted knowing someday you too will be there to make it all complete.....God Bless you dear Anne...
LeeAnne
LeeAnne Bye
NJ - Sunday, July 13, 2008 6:24 PM CDT
Anne
I wish I was there to sit through the thunder with you. I'm so sorry. One thing I know is that those boys know their Mama loves them. You never once left them in the hospital. You were with them day and night. You were always there when they needed you. Your job and your own life and even your own sleep and health were second to those boys and they knew it Anne.
No one has ever fought harder for her children than you. I have seen a lot and there are wonderful caring parents every where who love and advocate. But you must know how you stood out to all of us as a mother who fought with everything she had day after day after day for 15+ years. So when it thunders please remember that Zach and Sam know you are with them in every way that you can be. They always knew this and they always will.
Now about the FDA - God help them. I know the FDA is bigger and unfamiliar to you. But remember how unfamiliar childrens was to you initially. You did not know any of us either. Yet you changed so much Anne.
I know you're tired and I wish I could do this for you. But the truth is no one could be you. We could all try but no one can get mountains to move like you do. When it seems insurmountable read this. These are just a few of my favorite things you did that everyone said you could not do:
1)changing our approach to line infections (not pulling lines willy nilly the minute cxs are + unless kid is in shock)
2)Z & S getting not just cryo but every known blood product at home
3)a zillion IV drugs at home - especially ones you were told could not be given at home :-)
4)cardiac drips: Nicardipine, Labetalol, Phentolamine and Milrinone outside of the ICU
5)starting three of those at home with Sam and then you and P telling cardiology that Zach would NOT be staying in the ICU to start his milrinone drip because after all you had started it at home with Sam.(that was funny)
6) enoxaparin IV and not SQ(that was funnier!)
7)IV push calcium (definitely the funniest!)
8)A middle of the night invention to safely clear CVL precipitate and stay out of the dreaded ER (your most creative by far. you should have put a patent on that!)
9)daily IV acetylcysteine for liver protection(and it worked!)
10)You and Peter explaining to the residents why the boys could go home with all sorts of things that made the residents nuts. I'll never forget this one resident's face when Peter said Sammy could go home with his K sitting between 1.5 and 2. Priceless. I think Sam was about 2.
Anne - if you cannot get through to the FDA then I am convinced God could not either.
I'm sorry this is so long. To think this may be the first time i wrote in this guestbook. I promise not to ever write this much again. My heart just hurts thinking of your pain and thinking how tired I know that you are. I felt so strongly that you should be reminded of how much you have done because of your boys. please dont ever doubt that.
Love you,
SAR
- Saturday, July 12, 2008 10:43 PM CDT
Dearest Anne,
Thanks for sharing and for you to wonder how the boys are and what they are doing and feeling is so very normal.Memories are such great things most of the time,even when attatched to sorrow.Don`t ever be afraid to think of their fears or their joys for they were ment for all of us left behind by loved ones to charish and have forever.God`s gift? Who`s to say but I know it`s a gift that your boys left for you..Take care Don`t let sadness overwhelm you to much,but remember it is also natural to always remember and continue to love those that have passed on .Your angels miss you too...
Love Cousin Lynn
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Saturday, July 12, 2008 2:35 PM CDT
Mattie was afraid of thunder too, he would get so scared. My mom, Mattie, and myself would climb into bed together when there was a storm. I was not as afraid as they were. I think about that too, I hope he's still not afraid. I always think of Mattie during storms. But somehow I think he's above the storms, and perhaps hasn't seen a storm since he's been gone, maybe there are no storms where he is. And if there is, I hope he finds Zach and Sam and they are close to each other, they all liked Buzz Lightyear and Mattie really liked Star Wars. I miss all three. Love, Hope
Hope <hmpatchak@yahoo.com>
- Saturday, July 12, 2008 1:04 PM CDT
Thank you, Anne.
Sh
- Saturday, July 12, 2008 12:00 AM CDT
My heart truly aches for you. I think how you feel is completely normal for the totally NOT normal experiences that you have lived. I have to believe that your beautiful boys are are safe and have no fear. Thank you for sharing...this entry made me incredibly sad..but yet inspired me again to treasure my time with my own boys...for that I will always be grateful.
Kris, Paul, Cole, and Zack <pnkntwins@charter.net>
- Friday, July 11, 2008 6:14 PM CDT
Beautiful song...thanks. I truly hope that you were not on the receiving end of any negativity, intentional or not. Your writings are treasured by so many of us. I am so sorry that your boys were not with you this Independence Day, and every day.
Kris, Paul, Cole, and Zack <pnkntwins@charter.net>
- Wednesday, July 9, 2008 6:59 PM CDT
I have never been able to listen to that song without sobbing through the entire thing. It is a beautiful tribute to her brothers but the video is hard to watch. I love the picture of Zach and Sam - soo cute.
Thinking of you,
Krystena <momof2withga2@yahoo.com>
- Wednesday, July 9, 2008 5:24 PM CDT
Anne,
House teacher of the year? Now why am I not surprised? Just remember who your favorite residents are. Congratulations! As for the FDA I confess I laughed when I read that update. God help the FDA - I guarantee they have never met someone quite like you. If anyone can get through to them it will be you. Keep the faith my friend!
Love,
Mike Fitz
- Wednesday, July 9, 2008 2:24 AM CDT
anna,
do you know i can't send an email to you right now. no idea what that is about. you may want to think about finally getting voice mail on your cell. it's only been how many years that you have gone without it? i'm not sure i buy the "it's too hard to figure out" from a girl as smart as you. ask those smart girls of yours to program it for you. thanks for your msg. i'm glad to hear that brittany is getting time away. she deserves it more than most anyone i know. it's funny to think of her in boston - our favorite city of long ago. i hope she has fun. i'll try to email you tomorrow. are you sure you did not block me? in the meantime if you get the dates settled let me know. as of now i am set to go to kenya for 3 weeks and unless that changes i think we'll miss one another. i'd say something about last minute plans but then you wouldn't be you. i'm just glad you may get out of there and get home to "your ocean." (which you realize is mine too!!)
Bill
- Wednesday, July 9, 2008 2:15 AM CDT
Hi Anne
Beautiful picture of Sam and Zach, you can just see their wonderful personalities shine through in all their pictures. I appreciate your effort to use this CB site the correct way, we all should. I have never met you or your boys, but I still feel such a connection to you and Sam and Zach. You have a beautiful heart and that shines through in all your words and actions. I have been reading your posts for maybe 2 years because I fell in love with Zach and I have admired how you did everything possible to give Zach a happy childhood. Zach had an amazing way of making the best out of a bad situation, he was determined to live his life well and he did.
I am personally very happy that you are still posting simply because I do care about how you are doing and because I learn so much from you. I don't want you to feel pressure about how often you write, let it be whenever you feel up to it or when you need to talk. I will be there, we will be there.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Tuesday, July 8, 2008 10:36 PM CDT
Hi Anne! I checked out that song - it's beautiful! I've been missing Zach a lot lately. He's on my mind often and he will always be so special to me! Hope you are doing ok and not too busy with work! Talk to you soon!
Love,
Amanda
Amanda Glorioso <aglorioso@chw.org>
- Monday, July 7, 2008 9:43 PM CDT
I can just hear Zach talking about how excited he would be about fireworks and Sam just wanting things to go boom. I miss them. Have a good week. I WILL see you soon!
Love, Hopey
Hope <hmpatchak@yahoo.com>
- Monday, July 7, 2008 5:20 PM CDT
Anne, Thank's for your entry on the 4th. I was definitely picturing Zach and Sam being so excited for fireworks and it's good to think of them enjoying the parade too. I also appreciated the information on conivaptan. That part about the drug showing improvement in labs but not the clinical status of the patient was extremely interesting. It is unfortunate that we didn't have this information a year ago. I miss you.
KP <krayzee77@hotmail.com>
- Monday, July 7, 2008 2:44 PM CDT
Love the picture of your boys! Thinking about you all!
Cindy
Waukesha, - Monday, July 7, 2008 2:32 PM CDT
Oh what a beautiful song! I enjoyed that.
Danielle
www.sweetlittlenoodle.blogspot.com
Danielle <danni003@comcast.net>
Audubon, NJ USA - Monday, July 7, 2008 9:27 AM CDT
I forgot to add Audrey site
www.caringbridge.org/visit/audreylawrence
Doyle <angelaudrey2003@yahoo.com>
Perryville, Mo - Sunday, July 6, 2008 3:09 PM CDT
Just got done reading some of your post, I too know how you feel, somedays i feel angry and hate everything and others well there is just others. I feel like a car that is missing a spark plug, I run am a little sluggish and will continue to run,but until the plug is put back you'll will never be the same. We don't know what to do with our time, we want to be around people, then when I am there I can't wait to leave. I want to laugh and smile but when I do I feel guilty, I am not sure why. I love to just sit and look at all her things and then the next minute I don't. I would love to run away to get away from it all but there is know place that far. I wonder how eveyone else can go on like nothing has happened, why hasn't the world slowed down to see what is happening to my family and I? I dearly miss Ms. Audrey nothing or know one can ever replace the piece that was removed from me the day she passed. I relive those last days over and over, almost looking forward to the crying that goes on afterwards. It feels good to know I haven't forgotten. I hope eventually you find a little comfort in knowing that they are in a better place, I know I am not to that point yet. I want her here with me. Audrey passed away May 12, 2008 between her mom and I wrapped in her 2 favorite blankets, a journey of grieving to follow that only a parent who has lost a child can understand, you don't just pick up and move along in your life. I think you have to heal and for a wound this size there is know timeline.
Take care and god bless,
Doyle Audreys Daddy
Doyle Lawrence <angelaudrey2003@yahoo.com>
Perryville, mo united states - Sunday, July 6, 2008 3:07 PM CDT
Hey sweet Anne,
I'm feeling better and hope to talk with you soon. I spent last night catching up. I'm so proud of you regarding your award. I always knew you were the best teacher. Zach and Sam must be so proud.
Love, S
__
- Sunday, July 6, 2008 8:57 AM CDT
Anne,
Thinking of you during another holiday. They just are very challenging....as are many days. We were at Oley in Ca. this past week awarding Kyle's scholarship and was asked to talk at the memorial service that they have each year. Donna and I thought of you and your boys, even more so when we were at Disney for a few days. We rode on the Buzz ride for them and for Kyle too. Kyle really loved that ride....You could shoot at all the characters, get points, etc...Disney does it well..It was hard being there...without Kyle...again. Our 4yr old foster child was happy and will remember it forever though.
Prayers to you for strength now and in the coming months.
Time now is just so different just thinking of when we will be reunited with them forever..
Blessings to you and your family.
Richard Noble <rwnoble2003@yahoo.com>
Grove City, Oh Franklin - Sunday, July 6, 2008 0:28 AM CDT
Anne, I love the pic of the boys you posted. Absolutely beautiful. Thank you so much for sharing it.
My heart is also so full of sadness. I miss my little boy, and my heart is sad. Much love my friend.
Deb
Deb
- Saturday, July 5, 2008 8:49 AM CDT
Thank you, Anne.
Sh
Floyds Knobs, IN USA - Friday, July 4, 2008 8:31 PM CDT
Thank you, Anne.
Sh
Floyds Knobs, IN USA - Friday, July 4, 2008 8:31 PM CDT
You writing always seems to move me. You do such a nice job expressing how you feel it always makes me reevaluate things and how I feel. Congrats on your award and I really believe you make such a difference in what you do at work, it's more a gift than work when you do it. Enjoyed reading the articles too.
holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Thursday, July 3, 2008 1:07 PM CDT
Hi Anne
Your last post was beautiful, it was nice that you gave honor and praise to some very new doctors. They worked hard and learned so much at that hospital and are now ready to move on with their careers in medicine. I give all the doctors and nurses that care for sick children all my respect, it is such a difficult and heartbreaking job. It is also very rewarding, these doctors and nurses do make a difference to their patients.
I just had a full body scan since it has been 4 years since my thyroid cancer, I am cancer free. I thought about how easy my thyroid cancer was handled, my entire thyroid was removed and I had one dose of radiation. When Zach had a tumor on his thyroid, the solutions were not easy and all carried so many risks. I don't know too much about mito disease, but I am learning through you and Deb. I pray that more research is done to cure or halt the progression of the disease. Maybe someday another mother will not have to lose her child or children to such an awful disease. My heart continues to ache for you and I still miss Zach. He really is the One and Only. Thanks for sharing your heart and insights with all of us. All of your children are wonderful, I just wish your boys could still be here with you in body. Deb says wishing does not make something real, she is right about that fact.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Monday, June 30, 2008 7:26 PM CDT
So rarely do people seem so perfectly matched with their job...seems almost serendipitous. Your boys are very proud of you, I am sure. I have such great expectations for you (as I am sure your boys do). The book, of course..., then maybe some political aspirations.
Thinking of you and your precious boys
Kris and the boys. <pnkntwins@charter.net>
- Saturday, June 28, 2008 3:01 PM CDT
Anne and Family,
Thinking of you as always.Thanks for the update.And congradulations on your award,which I`m sure was well deserved.
Cousin Lynn and Family..
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Friday, June 27, 2008 6:33 PM CDT
You are an amazing woman and I am sure your daughters will follow your footsteps. You are a gift to the world!
Michele Sullivan <michsull@aol.com>
Plymouth, MA USA - Friday, June 27, 2008 4:56 AM CDT
Anne, I read your journal entries often to help keep perspective on the difference between your immense loss and my decision to ...I'm not sure exactly what I have done but the pain, guilt, remorse and confusion are constant, and knowing that all of my children are alive and relatively well is always reflected in your journal entries. I just wanted you to know that the depth in which you are able to touch my heart and soul is greatly appreciated.
Your ability to see directly through the exterior of everything and expose the inner core is just phenomenal. Thanks so very much for your help it is truly treasured.
Sincerely, Ann
Ann Karvelas
Franklin, wi United States - Thursday, June 26, 2008 6:34 PM CDT
Thinking of you....
Catalina
Atlanta, GA - Wednesday, June 25, 2008 12:21 AM CDT
Thinking of you all!
Cindy <Kurtcindyb@aol.com>
- Tuesday, June 24, 2008 6:49 PM CDT
Anne,
Still listening and praying.
Love
Karin
Karin Burrow <Kburow2944@att.net>
Waukesha, WI United States - Tuesday, June 24, 2008 8:16 AM CDT
Thank you sharing your boys lives with so many of us and for expressing that what is so hard to put into words. Our son Adam died five years ago in July of suspected mito (at only 4 months) and I sometimes feel that it is those who have never suffered such a loss who are the "unlucky" ones. Our children are and were miricles to be alive at all for any amount of time.
Liz <eneprice@verizon.net>
Wayland, MA - Monday, June 23, 2008 8:46 PM CDT
The loss of your boys seems unfair, unjust, and unfathomable to us too. The fact that you are still standing is truly incredible. You do make a difference in many lives. Your words are a gift to us and truly do inspire. Waiting for your book...you must write one.
Kris, Paul, Cole and Zack <pnkntwins@charter.net>
- Monday, June 23, 2008 4:37 PM CDT
Anne,
You say what I feel so perfectly. At times I think I "get it" then something happens to show me otherwise. Today it was the table at Cracker Barrel, we sat at the day after Kyle died before heading to the funeral home. I am sure the waitress thought I was a loon as I had to change seats as she sat me in the same seat. I "think" I know that there will never come a time that reality does not smack me in the face again with the fact that Kyle is not here with me anymore.
When we head to Disney next week, I plan on riding Buzz Lightyear and the new Toy Story ride in Kyle and Sam's memory. I know both boys would want to ride.
Know that you are always in our thoughts and prayers.
Donna and ^Kyle^ Noble www.caringbridge.org/oh/kyle <donnanoble2001@yahoo.com>
Grove City, OH USA - Sunday, June 22, 2008 6:14 PM CDT
Dearest Anne and Family,
Your continual updates on your life and feelings are so uplifting to the rest of us out in this weird world of mostly misunderstood feelings.You speak with a clarity which is so refreshing and amazing.Thank you for your continual thoughtfulness,as you keep us in your circle of life.
You are in our prayers now and always.
Cousin Lynn and Family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Saturday, June 21, 2008 7:37 PM CDT
Anne,
I have always heard the expression that everybody has a "twin" somewhere in the world. A person who looks just like you. So I took my son to camp and saw all the boys and girls and this one little guy stopped me in my tracks! Anne it was Sam's twin!! He even had on a bright orange shirt! It was the most amazing thing! And he has a smile that goes from ear to ear to boot! Still thinking about your family and of all the wonderful things you are doing to educate others. God's peace be with you!
A Friend
OH USA - Friday, June 20, 2008 12:38 AM CDT
Michaela and I were out in Wales today and stopped to see Zach and Sam. It was a very moving experience. There has been so much going on in our family that I felt compelled to start an online journal and though I am not as gifted a writer as you I couldn't help but write today about what the time with Zach and Sam meant to us. You continue to be such an inspiration to me. http://www.familyspirituality.blogspot.com/
Cindy
- Thursday, June 19, 2008 4:38 PM CDT
Thanks for sharing the recollections. You do such a great job of keeping Sam and Zach alive and vibrant, which is truly a gift. I hope your week gets a little brighter.
Laura
Albuquerque, NM - Wednesday, June 18, 2008 7:36 PM CDT
You are so right-- Life has been so busy since school got out I feel like I see Hannah for five minutes a day. I was catching up with her in her room trying to find out what her plans were for tomorrow and not comment on the condition of her room when I turned around and there was Zach's face looking at us. She has his picture right in the middle of her bulletin board. He made me stop--right in my tracks. I couldn't take my eyes off of his smile and the light that was shining out from his eyes. My heart breaks for the loss that your family has experienced. I just wanted you to know that you all are never far from our thoughts and prayers.
Cindy
Waukesha, WI - Tuesday, June 17, 2008 10:12 PM CDT
I love hearing these memories just like I always loved hearing your stories about the boys. I am so glad you are posting them . . . Anna was signing bird today. Couldn't help but think of Sam.
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Tuesday, June 17, 2008 8:21 PM CDT
Boy did that bring back some memories... the hair washing...Connor hated it with a passion. Well anything to do with HIM being WET! Argh.... Anyway, it is always so wonderful to read about your boys. Always. Thanks so much for sharing how special they are.
We love Tim Russert too and were just so shocked to turn on the TV on Saturday morning and see that he had passed away suddenly. Scott and I would take turns going to church on Sunday and whoever was home with Connor would always watch Meet The Press. Just like you, I am unsure how much Connor liked it, but he put up with it too, and we always looked forward to seeing it. He was the BEST. We surely will miss him.
Thinking of you and your family with love as always,
God bless Anne,
www.caringbridge.org/visit/connorscott99
Deb, Scott and Connor, always in our hearts
- Tuesday, June 17, 2008 10:30 AM CDT
I hope your schedule slows down...I don't think you ever did tell us what your new job is...please share! What a gift to hear Zachary's voice. I always wish for you that sleep comes easily and is filled with sweet dreams of your boys.
Really so sad about Tim Russert. He was such a treasure. I saw an interview that he did with Susan St James a few years back when she and her husband (NBC sports chief) lost their son, Teddy. I remember thinking that in addition to his political expertise, he was incredibly kind and compassionate soul.
Thinking of your beautiful boys and all of you,
Kris and the boys <pnkntwins@charter.net>
- Tuesday, June 17, 2008 9:01 AM CDT
Sending you peace and light.
Love, Nena & Reese
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
- Tuesday, June 17, 2008 7:03 AM CDT
so precious
donna <donerleg1@yahoo.com>
louisville, ky usa - Monday, June 16, 2008 9:05 PM CDT
I miss Zach too...I can just see him rolling his eyes and asking what the big deal was. Maybe once he figured out exactly how much Star Wars teaching I would let him (and Tom) do he would change his mind...
I love the bank, it's up in the baby's room already and it will remain a constant reminder of Zach. I have the puppy out too, always thinking of Sammy when I see it.
Love, Hopey
Hope <hmpatchak@yahoo.com>
- Monday, June 16, 2008 8:32 AM CDT
Was at Connor's site (his mom is a friend of mine) and clicked on the link to yours cuz you had TWO boys gone. I can't imagine! :-( But I read Sam's "Ambulenz" poem and had to laugh, and cry, at the same time. Said a prayer for you and your family.
Martha Spittal <spittal1@verizon.net>
Wilmington, DE USA - Friday, June 13, 2008 1:36 PM CDT
Thinking of you! Cute little Sammy. How I wish he had been one of Alex's bunk mates this year at Victory Junction! I know they would have been great friends.
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Thursday, June 12, 2008 1:02 PM CDT
Thinking of you all today.
Love,
Nicole Watson
www.caringbridge.org/visit/maddisonwatson
Nicole M. Watson <nicolemwatson@wi.rr.com>
Franklin, WI USA - Thursday, June 12, 2008 11:05 AM CDT
Felt like I could hear the voice of an angel as I read the passage by Sam. Beautiful! So glad to hear Brittany is doing well -
You are such an inspiration, we are so blessed to have this Caringbridge site-
praying
Jayme <january11292@yahoo.com>
walton, ky - Thursday, June 12, 2008 7:01 AM CDT
Thank you.
Sh
Floyds Knobs, IN USA - Wednesday, June 11, 2008 8:25 PM CDT
Sam's "voice" was so clear in his writing! Once again, I can feel his humor. I had to read it to my son, Remi, because he has that sense of humor, too, where he would LOVE to have an excuse to speed and break the law:)
Theresa (mom to Miss M forever 10) <bookangel1993@yahoo.com>
- Monday, June 9, 2008 7:59 PM CDT
Makes me want to be an ambulance too. Thinking of you and your beautiful boys and girls tonight.
Love, Nena & Reese
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
- Monday, June 9, 2008 7:33 PM CDT
I absolutely loved this story Sam wrote. It made my heart smile. Thank you so very much for sharing this Anne.
www.caringbridge.org/visit/connorscott99
Deb
- Monday, June 9, 2008 3:17 PM CDT
Gosh he was a cute kid. And funny! I chuckled as I read about Ambienz. Very tool.
MJ
- Sunday, June 8, 2008 10:36 PM CDT
Anne-
What AWESOME pictures! They just made me smile this morning. You're so great about updating the site and changing photos on the site. I love seeing Zach and Sam- and the girls, too.
What a beautiful family! You have 4 gorgeous children. I know you miss your boys so much - I know the pain, the emptiness.
I love the pictures.
Much love,
Leslie
Leslie Reynolds <rey7@bellsouth.net>
Roswell, GA - Saturday, June 7, 2008 9:55 AM CDT
I love this pic of Sam at the beach! Just love it! Thanks so much for sharing this story about your sister and her writer's conference.. hey maybe we could go together one year...we so need to tell our boy's story...
www.caringbridge.org/visit/connorscott99
Deb
- Friday, June 6, 2008 2:44 PM CDT
You certainly do have a talent for the arts in your family...not surprised that your sister is an author. I am waiting for your book Anne...you should really consider it. You also have a gift for words and much to share.
Thinking of you and your boys as always,
Kris and the boys <pnkntwins@charter.net>
- Friday, June 6, 2008 3:57 AM CDT
Happy Belated Birthday Abby!!!!!
You are a very special young lady whose heart has been touched due to having Zach and Sam as brothers. You will forever be changed...but in a good way. As your mom said, although you have the pain you wouldn't change it for anything. Being Zach and Sam's sister and going through what you have went through has made you the person you are today. So many people have been touched by not only Zach and Sam's story, but by you, Brittany, and your mom....by your courage, your grief, your endurance, your honesty, and so many other wonderful traits that make you who you are today.
Thinking of you all,
Kristi Cole & Brody
www.carepages.com
CP: brodyjcole
Kristi Cole <kristi3333@bellsouth.net>
Atlanta, GA USA - Thursday, June 5, 2008 6:15 PM CDT
Aunt Maribeth...You are awesome!!
Hope <hmpatchak@yahoo.com>
- Thursday, June 5, 2008 5:25 PM CDT
Abby,
You are an incredible young lady--LOVED seeing all the photos!
Bless you.
Sh <sheDeKold@aol.com>
Floyds Knobs, IN USA - Tuesday, June 3, 2008 9:20 PM CDT
Abby;
I hope you had a fabulous birthday - it was a beautiful day. I'm sure the sun was shining just for you. You are an amazingly beautiful person, inside and out. I'm sure your brothers are very proud of you, just like your mom is!
Karen Schaefer <kschaefer2@sbcglobal.net>
- Monday, June 2, 2008 12:13 AM CDT
Happy Birthday, Abby!
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Monday, June 2, 2008 6:18 AM CDT
Happy Birthday Abby...I hope they all gave you lots of presents! I love the pictures... you are just absolutely beautiful.
Kris, Cole, and Zack <pnkntwins@charter.net>
- Monday, June 2, 2008 5:09 AM CDT
HAPPY BIRTHDAY,HAPPY BIRTHDAY TO YOU DEAR ABBY, HAPPY BIRTHDAY TO YOU..
COUSIN LYNN AND FAMILY
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Sunday, June 1, 2008 3:28 PM CDT
Happy Birthday, Abby! It was a beautiful day and I hope you did something special.
Julie Turkoske <jturkoske@wi.rr.com>
Waukesha, WI - Sunday, June 1, 2008 12:20 AM CDT
HAPPY 15TH BIRTHDAY ABBY!
From the Bye family
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Saturday, May 31, 2008 8:43 PM CDT
Dear Anne and Abby
Happy Birthday Abby, I hope you are having a great day.
Anne I love the pictures you shared with all of us, they show us better than even words can express what a loving and wonderful family you are. I hope Abby can feel her brothers love coming to her on her special day, although I realize it is not the same.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, May 31, 2008 4:57 PM CDT
A very happy birthday to you Abby! I loved seeing the photos, such a gift of memories....
Heidi in Idaho
- Saturday, May 31, 2008 1:15 PM CDT
Anne, as always I am thinking of you and praying for you. with love,
www.caringbridge.org/visit/connorscott99
Deb Millard <sdcm@optonline.net>
- Friday, May 30, 2008 8:47 AM CDT
anna,
you are my hero
Bill
- Wednesday, May 28, 2008 10:27 AM CDT
Anne, I am sorry for the pain this holiday must bring.
All my love,
Krystena <momof2withga2@yahoo.com>
- Tuesday, May 27, 2008 6:54 PM CDT
Thinking of your Jedi soldier this holiday and his brother.
Kris, Paul, Cole, and Zack <pnkntwins@charter.net>
- Monday, May 26, 2008 4:51 PM CDT
"Strong faith and a sense of humor are essential if you want to stay sane -- or at least if you want to APPEAR as if you are."
Thinking of you. Glad the FDA listened to you and maybe it will help give some answers and closure to the lingering questions.
hugs,
Sharon and the boys
www.caringbridge.org/visit/claytonandcole
www.caringbridge.org/visit/jakeski
Sharon <lawblond7@aol.com>
Waldorf, MD - Sunday, May 25, 2008 12:15 AM CDT
Anne I am glad they listend and paid attention to your report...and I hope they will look deeply into the concerns. You are SO very right, in the world of complex and chronically ill children who may be terminal it is so easy for some to turn their backs on something that may have hastend the process of a death that seemed inevitable. As you so wisely point out, time is PRECIOUS, all time, and no none knows exactly how much time any of us have including our frail children may have...BUT the process of giving life extending medications and care is dependent on that very scrutiny you seek. Anne, I cannot help but think your dear sons, Zach and Sam, have had a huge impact in this world, much more then you as their loving and devoted mother can ever realize. They continue to reach out and help others. I wanted to let you know I also shared some of our discussion and your wisdom this past week with our health care providers who agreed very much with your wisdom and lessons learned from your precious boys. Thank you Anne and God bless you in this ongoing journey...
Hugs and prayers,
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Friday, May 23, 2008 8:51 PM CDT
I think there is good reason to hope. Like all hospital charts, what they send will be a good bit of nonsense. Rarely is anything too helpful from a chart review because it lacks context - you're exactly right. YOU have your amazing ability to present information that is actually meaingful and if you can get that to them at the same time they'll look because it will tell the story in a way that paper charts from a scattered day here and there can never do. Especially because you do know the right language. You have doctors that truly care about honesty right there by your side to help you and they will no matter what. You know that. You have a good brain and a wonderful way of using words. You have 2 senators working for you who I bet would step in and at least facilitate the process. There are lots of things we can think about. You are not alone in wanting them to look at this and it is sad that anyone would turn this into a "we'll give our stuff and "we'll leave you by yourself to you do what you want." What the *&&^ kind of team work is that? I can tell you that no, there are not rules against them giving more than what was requested. I am not surprised they won't do it but sad. Let this propel you to write the best packet of information the FDA ever saw. You still must remember this is not insurmountable. Do I need to quote your esteemed cousin Teddy to you?
Bill
- Friday, May 23, 2008 7:39 AM CDT
Anne,
Wow the FdA that`s sure seems like a first.Good for you,thanks for writting them about your concerns about this drug.All to many people`s hands are tied by the buracracy (oops) spelling? Maybe your concerns will translate to positive results.We can all hope anyway that this is the results.
Take care. Prayers as always.
cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Thursday, May 22, 2008 4:56 PM CDT
Hi Anne,
I read your entries daily & I have been following your story. Please know that you and your family are always in my prayers. I applaud you for your efforts in seeking answers. I lost my father last month in a hospital here in Milwaukee & I continue to grieve. I know that my pain cannot compare to yours - but I, too am a nurse & I question what happened. You have been a rock for me & I, too am pursuing answers & I also have issues with the both the medical and nursing care that my father received. I, too will not let this rest. Thank you for being such a strong advocate for all of us. Bless you and your family. I know that Sam & Zach are with my father, too. From your stories I know that they will all make each other laugh.
Kathleen Turner <kturner28@wi.rr.com>
Menomonee Falls, WI USA - Thursday, May 22, 2008 12:08 AM CDT
{{{{Anne}}}}
Roxanne Szymanski <rmontgo892@aol.com>
Vermont - Wednesday, May 21, 2008 5:48 PM CDT
I am excited for you that you have a new job...but sad because I know that time was taken up not that long ago taking care of your boys. I am so sorry time is available for a new job..that probably doesn't make sense. I think about your boys often...as I am sure many other do... I look at my own boys and see the images that you have shared of yours...and learn to treasure every moment. I will always be grateful to you for that.
Love and rest to you
Kris and the boys <pnkntwins@charter.net>
- Tuesday, May 20, 2008 8:44 PM CDT
I love the pictures from the first mito walk. What a beautiful day it was in so many ways and yet sad too. Would the day have happened if Sam would have lived? I don't know the answer to that but I do remember feeling Sam's presence that day everything from the energy of the crowd to the absolutely beautiful weather that we had. Thinking of you all.
Cindy
- Monday, May 19, 2008 9:27 PM CDT
Think of you and the boys everyday.
Our newest addition- the 4 yr old foster daughter- has taken to requesting Kyle's Buzz Lightyear cup and plate. Everytime she uses them I can't help think of Kyle and Sam. I am sure they are playing in tent cities and keeping everyone in stitches.
Donna and ^Kyle^ Noble www.caringbridge.org/oh/kyle <donnanoble2001@yahoo.com>
Grove City, OH USA - Saturday, May 17, 2008 8:07 PM CDT
Thinking of you and missing Zach and Sam.
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Friday, May 16, 2008 10:43 PM CDT
Once again, your words are poetic and touching. Thinking and praying for you and the family today and always.
~Katie
www.caringbridge.org/visit/alexanderlindemann
Katie
- Friday, May 16, 2008 1:58 PM CDT
Thank you Anne for you note in Ryan's funeral guestbook. It meant alot to me.
Danielle(Ryan's mom)
www.sweetlittlenoodle.blogspot.com
Danielle Donnelly <danni003@comcast.net>
- Thursday, May 15, 2008 10:25 PM CDT
Anne and Family,
Another entry well written and received with heart felt thanks.I feel like I`m there with you with the way you explain your deepest thoughts ,but not only with you but your whole family.Your girls sure made Mothers Day I`m sure more enjoyable for you with the extra time and effort they spent getting you your cookies..Awesome :-)
Take care always in our thoughts and prayers.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Thursday, May 15, 2008 6:23 PM CDT
bless your precious heart
donna <donerleg1@yahoo.com>
lou, ky usa - Thursday, May 15, 2008 6:12 AM CDT
I will say it again, so many things about you and your family are simply amazing. Sending you peace and light tonight, Love, Nena
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
- Wednesday, May 14, 2008 10:07 PM CDT
Let Abby know that my room growing up sounded a lot like hers! But the true test of a messy room is that we lost the family cat once for 24 hours and it was in my room!
Anne Reckling <areckling@aol.com>
- Wednesday, May 14, 2008 10:35 AM CDT
Thank you for sharing Sammy with us!
Anne Reckling <areckling@aol.com>
- Tuesday, May 13, 2008 10:54 AM CDT
Thankyou for sharing your Sam with us! What a comedian, his quotes were so funny. Both of your boys have/had a great sense of humor. This is a wonderful tribute to both of your boys. Take care,
Kim Hunter (angel Zac)
kim hunter <widgit@earthlink.net>
- Tuesday, May 13, 2008 10:32 AM CDT
Thanks for the memories that you shared with us they were so funny but sad too. You must miss him so very much, but what fond memories you have.He was quite the cut-up as the saying goes. And your right it must of been almost impossible to be mad or stay mad at him..Happy Birthday Sam.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Monday, May 12, 2008 7:02 PM CDT
Anne, I thought of you on Sam's birthday and on Mother's Day and my heart reaches out to you on these especially difficult days but I'm sure for you everyday is especially difficult, but you know what I mean. It's sometimes so hard to express oneself when I've never lost my child and can't possibly fully know your pain. I just wanted you to know you were in my thoughts. I really enjoyed your long entry with so many memories of Sam. I sure can remember Sam in reading group! And the sign-up sheet to stay in and play with Sam at recess and his laughing. Sam loved to laugh and he did it better than anyone else!
Donna Brooks <daniel8546@sbcglobal.net>
Wauksha, WI - Monday, May 12, 2008 5:59 PM CDT
Happy belated Birthday Sam....I loved learning more about you with the stories your Mom shared. You are missed by many. Happy belated Mother's Day Anne...I am so sorry it was spent without your boys.
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Monday, May 12, 2008 4:46 PM CDT
Thinking of you this Mother's Day Anne and hoping you were able to spend time with your precious daughters and remember fond memories of your dear Sam and Zach...praying too for solace and comfort as you go through this day..
Hugs and prayers,
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Sunday, May 11, 2008 8:16 PM CDT
Dearest Anne, I LOVED reading all the wonderful things Sam said...Wow... What a terrific boy. So full of it. Some of the things he said were so much like Connor, and some so very different. I love the amazing personalities, the love for life our kids have. I know they are must really be causing quite a commotion up in heaven. Don't you think? I often wonder, do they sleep there??
Please know I have been thinking of you all weekend... you have been in my heart.
With much love and prayer,
Deb
www.caringbridge.org/visit/connorscott99
Deb
- Sunday, May 11, 2008 7:38 PM CDT
Anne,
What an amazing gift. Your girls are.
Thank you for sharing more of your Sam. Orange will always have a new tint to it because of him.
Sh
Floyds Knobs, IN USA - Sunday, May 11, 2008 5:36 PM CDT
Happy Birthday Sam!
You have the prettiest eyes!
Hannah <hanbana23@aim.com>
- Sunday, May 11, 2008 3:35 PM CDT
Thinking of you on this Mother's Day. I hope that it is filled with many special moments, and lots of beautiful memories!
How wonderful to read all of Sam's quotes. What a great kid!
Marcia <marciat@sympatico.ca>
Bradford, ON Canada - Sunday, May 11, 2008 2:16 PM CDT
Dear Anne
Happy Mother'sDay Anne. I will be thinking and praying for you today. You are a wonderful mother, Sam and Zach were so blessed to have you love them with all your heart. They I am sure are sending you their love from heaven and I know that it is not the same. I hope you find some joy today and feel so proud, you did and are still doing an awesome job as a mom. That is our most important job, to raise our children well.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Sunday, May 11, 2008 2:08 PM CDT
Happy Mother's day to a wonderful mother. You are an inspiration and have touched my heart today with all of Sam's saying. I hope you have a wonderful day.
Megan and family <dmreid1994@sbcglobal.net>
- Sunday, May 11, 2008 1:44 PM CDT
Anne,
Happy Mother's Day to an amazing mother!
I loved your tribute to Sam--Happy Birthday, Sam! Although I never had the honor of meeting Sam in person, he still makes me smile and I feel like I know him through your writing. I love the "fastidious" prayer.:)
Your love for your children, ability to be present with both sorrow and hope, and gratitude for the blessings that exist in pain are truly gifts. Although I only know you through this Caringbride site, I admire you as a mother and have learned so much from you. Thanks for sharing your heart and your family, and Happy Mother's Day to a truly incredible mama.
Paige
Paige Lepley <plepley@gmail.com>
Minneapolis, MN - Sunday, May 11, 2008 1:14 PM CDT
Happy Mama's Day Anne!! Hope you like your Lorna Doones!!! :) It was nice to see your oldest yesterday!!
Love, Hopey
Hope <hmpatchak@yahoo.com>
- Sunday, May 11, 2008 11:21 AM CDT
There are times when only a Mother's love
Can understand our tears,
Can soothe our disappoints
And calm all of our fears.
There are times when only a Mother's love
Can share the joy we feel
When something we've dreamed about
Quite suddenly is real.
There are times when only a Mother's faith
Can help us on life's way
And inspire in us the confidence
We need from day to day.
For a Mother's heart and a Mother's faith
And a Mother's steadfast love
Were fashioned by the Angels
And sent from God above.
Happy Mother’s Day, Anne and Happy Birthday Sam.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, May 10, 2008 10:51 PM CDT
Happy Birthday Sam!
Anne, I am honored to be able to read this entry. Sam was right, he certainly was funny. I am glad you shared this. I really needed to smile from my heart. I will never stop laughing over him ending his prayer in "A lady". ~BIG SMILE~ Again, thank you for sharing. It done my heart good.
Love, Krystena
http://www.caringbridge.org/ky/cadencarsen/ <momof2withga2@yahoo.com>
- Saturday, May 10, 2008 9:17 AM CDT
I thought of you guys many times today (Friday). I loved hearing all the things Sam enjoyed saying...brought many a smile.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI United States - Saturday, May 10, 2008 1:36 AM CDT
Hello Anne, & Family,
What a wonderful tribute that you gave to Sam.
Your family is such a lucky family to have a wonderful Mom, Wife, Friend, and Caregiver to head there family.
Thank you, for sharing your heart and soul.
Prayers, Support, and Blessings,
Lesley
Clearwater, FL U.S.A. - Friday, May 9, 2008 10:43 PM CDT
Anne --
Your memories of Sam are priceless...thank you so much for sharing them! I laughed through most of them, but my favorite was about "stupid" and "shut up" and calling the floor "shut up". I couldn't have kept a straight face either! As I've said before, I really missed out on knowing Sam -- I know we would have had laughs together:) And Happy Birth-Day to you, as you mark the day YOU gave birth to a person that changed your life forever...
Theresa <bookangel1993@yahoo.com>
- Friday, May 9, 2008 10:14 PM CDT
Anne, honestly I haven't stopped by in awhile life has been busy but today Sam and Zach were in my heart. Right before I'm about to go to bed I decided to check the webpage. It's Sam's birthday......HAPPY BIRTHDAY SAM!!! I always enjoy reading what you write you have such a gift. Thank you for sharing such wonderful memories of sweet Sam with us. Always carrying Zach and Sam in my heart with my little Skye. Much love, hope, and prayers always.
Tamm www.caringbridge.org/oh/skyecoleycole <Tamm06@aol.com>
- Friday, May 9, 2008 9:56 PM CDT
Thinking of you all today. Happy Birthday Sam!!
Laura
Albuquerque, NM - Friday, May 9, 2008 9:53 PM CDT
Happy Birthday Sam!
Sure hope you are eating everything your heart desires. Anne and family, Thanks for sharing your memories. Anne, you are such an eloquent writer and I enjoy reading your site. Take care
Loriann Melby <lmelby1000@sbcglobal.net>
West Allis, WI - Friday, May 9, 2008 9:25 PM CDT
HAPPY BIRTHDAY SAM!!! I hope you had a good day!! What did Tigger see when he looked in the toilet....You're having WHAT for breakfast???
Love, Hope aka "Zach's nurse"
Hope <hmpatchak@yahoo.com>
- Friday, May 9, 2008 7:51 PM CDT
Happy Birthday, Sammy. I LOVED the stories and the pictures of Sam's smiling face and BIG eyelashes! Reading the stories made me feel as if Sam was right here. Thanks for sharing them.
Julie T. <jturkoske@wi.rr.com>
- Friday, May 9, 2008 7:29 PM CDT
Wishing Sam the happiest of birthdays!
Love, Nena & Reese
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
- Friday, May 9, 2008 1:52 PM CDT
Dear Anne, I am thinking so much about you today and hope that your memories of Sam's wonderful sense of humor and all his little antics and hearing his and Zach's laughter can get you through another difficult day. Your tribute to Brittany is amazing. What an incredibly mature, loving, generous young woman! What an inspiration and role model to others!! I want to wish you a beautiful mother's day even though it will be another painful day for you. To me you are the epitome of motherhood. I know of no other mother who has given so much of herself to her children. Brittany, Zach, Abby, and Sam so reflect the light, beauty, and goodness with which you raised them. Sending you, Brittany, and Abby love and big hugs!! Donna
Donna <dmkuhtz@yahoo.com>
- Friday, May 9, 2008 11:16 AM CDT
HAPPY BIRTHDAY SAM....After reading your beautiful tribute to Brittany, I wonder if Sam would be thinking about something Buzz Lightyear said: "There seems to be no sign of intelligent life anywhere"
Please give Brittany my best. We always loved having her here. Her empathy, compassion, giving heart and soul will be appreciated and valued more than she will ever know.
I hope your day today is filled with many fun-loving memories and not too much sadness.
Karen <kschaefer@chw.org>
- Friday, May 9, 2008 8:48 AM CDT
Hi Anne, I flipped my calendar today and immediately thought of spunky, smiling Sammy. I hope you have a piece of orange cake and a couple of french fries, my meals today will have to have some McDonald's Fries! Sorry I missed lunch with you and Kath, Jackie and Chris. Please try to do it again. I'd love to see you! Love and Blessings, Amy Treptow
Amy <btreptow@wi.rr.com>
New Berlin, Wi - Friday, May 9, 2008 8:13 AM CDT
Anne & Family-
Holding you close in my heart today - May 9th- Sam's birthday. I know you miss him so much and would give anything to celebrate his birthday with him.
Love,
Leslie
Leslie Reynolds
Roswell, GA - Friday, May 9, 2008 7:04 AM CDT
Hi Anne,
I am always in awe of you and your family and how amazing you are. Brittany is no exception and I find it remarkable that, in the face of all your family was going through, she found the strength in her heart to give to another family going through similar challenges. It is the intent behind an action that makes someone a hero, not necessarily the outcome of that action. Brittany has shown through all that she does that she has an amazing heart and gives so freely of herself to help others. She has already made such a difference to those people whom she has reached out to and I have no doubt that she will continue to make a difference in the future.
Brittany, I am so sorry for all you went through with the transplant team. The medical system is so backwards and just don’t seem to handle “unique” situations the way that they should and yet you continued to give and find ways to be a hero even when you weren’t able to give your own kidney. I remember meeting you a few years ago at the conference in Atlanta and thinking how wonderful you were. You have a heart of gold and you are so smart and determined that I know you are going to accomplish whatever you have your heart set on. Despite what obstacles are thrown in your way, keep your wonderful, determined attitude and always keep believing in yourself. You are AMAZING!
If you ever want to chat, please know I am just an email away.
With love,
Malisa <malisam@comcast.net www.caringbridge.org/pa/malisa>
- Friday, May 9, 2008 2:30 AM CDT
Anne, It really didn't surprise me to read about Brittany on here and the gift she was willing to share. I think her heart of giving and spirit of compassion comes naturally for her as it is what she has learned from you throughout her life.
Brittany, it really doesn't matter if you were the one donating for this young boy, you were willing to give and when you couldn't you helped find someone who could! I think you're an amazing woman and I hope you don't lose heart from a few people making gross errors in their judgement. I hope your passion and determination only grows stronger & stronger each day!
Patty & Colyn <pattywoods@mac.com>
Hemet, CA USA - Thursday, May 8, 2008 0:58 AM CDT
Brittany (aka britt-a-ny),
I am just in awe of the amazing things you do! From your pay it forward trip, to organizing blood drives, to offerring your own kidney to a child - you truly are amazing!! I am so impressed at how much you do for others while remaining so humble. You do these things out of the kindness of your heart - you really are a hero! I really look up to you b/c of the way you live your life - it is truly admirable! I know your family is proud of you, but know that I am, too!! Good luck with the end of your semester! Talk to you soon!
Amanda <aglorioso@chw.org>
- Wednesday, May 7, 2008 10:46 PM CDT
Dearest Brittany, You are the epitome of courage in the face of sorrow, fear, loss you have continued to find a path to bring light, good, love, kiindness, compassion in this world. You are the true definition of a hero, not caving in the face of obstacles but having perserverance to push on. I am so sorry you were not treated with more coompassion, empathy and understanding by the transplant team. It is hard to understand how oblivious and lacking compassion some people can be...and most certainly the transplant folks should have known better from the beginning, I as a nurse agree with your mom..BUT God Bless you for taking on this mission and working so hard for that child. Your selfless love and mission are priceless and show a depth of love, understanding and compassion few show to their fellow man! Your brothers must be so very proud of their courageous, heroic sister! God Bless you Brittany. The world is a better place because of you!
You have my deepest respect,admiration and thanks,
LeeAnne, Samantha's mom
www.caringbridge.org/visit/byesibliings
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Wednesday, May 7, 2008 9:02 PM CDT
Brittany,
I do not know your mom personally, just through this page. You are what we as moms hope our children will turn out to be, the best part of us. Your mom is an incredibly special lady, and you have learned well from her.
LeeAnn <ajz3@bellsouth.net>
Savannah, GA USA - Wednesday, May 7, 2008 9:01 PM CDT
Brittany
I've never signed the guestbook before even though I read every day and your Mama and I have been friends for 10 years - so I guess that might tell you something about how strongly I feel about what you have been going through and how much you have given of yourself. Your Mama and I have shared some of the saddest times of our lives but we've also shared many happy stories and you and your brothers and sister have always been at the center of those stories. I have watched you grow up from a distance and because I lost my own beautiful girl (who would have been 19 this year) I have cherished your mother's generosity in sharing something of your life with me. I really want you to know how proud we all are of you. I am amazed by your generosity of spirit and it makes me feel confident about the future of this world to know that there are young women like you in it.
Lynne Seear <lynne.seear@qag.qld.gov.au>
Brisbane, QLD Australia - Wednesday, May 7, 2008 7:09 PM CDT
Brittany,
I have worked in public schools for many years and have had the fortune of working with some pretty incredible youth and young adults. I have nominated students for awards, written letters of recommendation, and sat on numerous committees looking for that one student who exemplifies outstanding volunteer service to his/her community or that one student that persevered regardless of obstacles placed in his/her way. I can honestly say that you epitomize a hero. They say that you know the essence of a person when you observe how they behave under stress. Your life is a testimony of everything good and right in this world. While unfortunately I can't give you an award, I can tell you that you have every reason to be proud of the beautiful young woman that you are. You are a hero in my eyes and I would love to meet you in person some day.
Laura
Albuquerque, NM - Wednesday, May 7, 2008 6:44 PM CDT
Dearest Anne, and family,
You never stop amazing me with your heart and soul so dedicated to your cause and family,not just yours but everyone who you come in contact with or hear about,your family and you are ready to step in. Brittany is definately a hero many times over. She gives so much and asks nothing in return as do you and the rest of your family. God bless you all and keep you in he`s sight always.And you were so right to feel that they treated your daughter badly cause she felt even worse cause she found out she couldn`t help the way she wanted to.Bless her heart.And I`m sure abby is just as giving with her time and energy, cause they have such a good example in you. May God Bless you always,and watch over your family cause he`s got angels here on earth with all of you. Plus your angels in heaven,though I`m sure you wish he` had left here with you.
Cousin Lynn and family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Wednesday, May 7, 2008 5:17 PM CDT
It does not surprise me at all that Brittany is the incredible person that she is, with everything that you've done, Anne! Yes, she may "handle things" in a different way than you, but her passion for doing what's right is just like her mama!! Brittany is a light in our sometimes dim world...I hope my little passionate 9-year-old girl grows to be like her.
Theresa <bookangel1993@yahoo.com>
- Wednesday, May 7, 2008 4:51 PM CDT
No matter the circumstnaces or injustices done, the one thing that nobody will ever change is Brittany's heart. Her willingness to donate unselfishly was incredible. But it is dwarfed by her compassion and willingness to forgive and not become angry at how the situation turned out. The magnitude of this reflects a young carpenter that lived about 2000 years ago - treated unjustly, unfairly, and insensitively despite a pure heart. No amount of preaching or teaching can match a life lived through such Christ-likeness. Thank you Brittany...and Ann for sharing this.
Charles Fischer and family <charlesfischer@verizon.net>
Murrieta, CA - Wednesday, May 7, 2008 4:16 PM CDT
Brit-tan-ny....Friendly, Warm, Loving, Compassionate, Beautiful, Protector of the Juhlmann sibilings, Amazing big sister...Hero. I am so proud of you, you keep fighting not just for Zach, Abby, and Sam but for the entire world. This takes strength and profound courage. You did everything right my dear. I am so sorry it didn't turn out at you had planned, but putting his name out in public will help. You are so brave, it's hard to put your heart on the line time and time again, but it's SOOOO worth it. I could take a few lessons from your amazing heart. Hope to see you soon! I am going through withdrawls!! ;)
Love, Hopey
Edward Monkton is my fav author!!!! :) <ilove to read@ the pig of happiness.com>
- Wednesday, May 7, 2008 2:46 PM CDT
Anne -
Thank you for sharing so much and letting us know what is going on. I'm so devastated for you and for Brittany. To say this isn't fair is an understatement. I ask myself - why does Anne J have to go through all of this? AND now sweet Brittany?
I know you are one amazing mom - you really are SUPER Mom in my eyes. I think the world of you and love how you honor all 4 of your gorgeous children. I know when someone hurts our babies- it is an attack on us!
Brittany- I am so very sorry for this. You did everything right - you were honest and showing unconditional love - just like your mom! I am so sorry for such an ignorant mistake. You were giving the gift of life and I don't know of a better gift. You are certainly a HERO in my eyes. You are beautiful from the inside out. I know your mom and entire family are SO proud of you – I know I am!
Love,
Leslie
Leslie Reynolds
Roswell, GA - Wednesday, May 7, 2008 2:19 PM CDT
Anne,
Thank you so very much for sharing this precious story about Brittany. It's funny, so many people use the word 'hero' so loosely, yet they forget to look for the everyday heroes that pass through their own lives every day. I can only tell you that as a mother, I know that you have to be so very proud of the daughter you have raised. She is truly an inspiration and an example to others. What an amazing young woman!
Sue Koprucki
Williamsville, NY USA - Wednesday, May 7, 2008 1:40 PM CDT
Hi, Brittany -
For several years now, I have borne witness to families who were deeply changed by events. I have watched many respond to extraordinarily difficult circumstances in the most hopeful and life affirming ways. I have been inspired and strengthened by their stories and their reactions. I long ago started thinking about how the strength it takes to respond hopefully in spite of terrible sorrow is monumentally heroic, and that this kind of everyday heroism is often unnoticed or overlooked by so many. Your family is certainly among the heroic ranks--though it is definitely hard to consider your family part of any rank and file. Your family responds in ways that are exceptional even for already being exceptions to the rule! So in a way, the fact that you are so astonishingly extraordinary is really not so astonishing at all for those of us who have watched you grow into this amazing person who you are. Nonetheless, my "hero list" has another addition: you--not just as a part of your amazing family, but just you for who you are! Completely on your own merits, dear heart . . .
Sending love,
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Wednesday, May 7, 2008 11:03 AM CDT
Dear Brittany,
I have just read CaringBridge, but even before that wonderful tribute by your Mom, I think you knew --you are my hero. You are an amazing young woman and you continue to teach me everyday by your example of courage and compassion. You open my eyes, and take me to places I would not have gone by myself. Thank you for being there, for showing us by your selfless gifts, what grace looks like. I love you. Gramma
Jo Balistreri <joeybfl@earthlink.net>
Waukesha, WI USA - Wednesday, May 7, 2008 10:41 AM CDT
Many people want to help others, but few actually act upon it. Brittney, YOU are MY hero! I'm so proud of you! Anne, your beautiful heart shines through your children.
Karen Lipps <klipps@cox.net>
Goodyear, AZ - Wednesday, May 7, 2008 10:36 AM CDT
Anne, your daughter(s!) are both treasures! Thank you so much for sharing what happened with the transplant situation... what an amazing young woman Brittany is. Through the years and the stories you have shared about her, she has shown such strength of character, such love, and compassion... she is truly her mother's daughter. She and Abby (AND YOU!) are some of my most precious hero's...
sending much love,
Heidi in Idaho
- Wednesday, May 7, 2008 10:36 AM CDT
Dear Anne
There is so much excess in our language and actions and habits these days; such excesses include using the words "hero" or "heroic" in reference to rather prosaic people or actions. However, heroic is the perfect description of Brittany's experience.
Your description is also a profile of an extraordinary young woman who displays the qualities of caring, tenderness, kindness and selflessness-------but driven with strong currents of vision, tenacity,resourcefulness and courage. Collectively this is a most rare set of attributes------think about it------how many individuals of any age display and use such a collection attributes on a continuing basis?
As I read and re-read your piece Anne, I see that I just don't know my Grandaughter very well at all------and that is in part a function of how this beautiful young woman is continuing to grow. What I do know though is this description of Brittany's role in the kidney donation incident is also a descriptive profile of who Brittany is.
I am in awe of you Brittany----and humbled too.
Brittany's role as you describe here is heroic in another sense; it is inspirational------in effect it tells each of us to be less self-absorbed and do more to make a difference------give blood, volunteer or mentor, stop the excessive consuming and accumulating, slow down and listen more, etc.
Thanks Brittany-----and thanks Anne.
John Fischer <jfischer708@yahoo.com>
- Wednesday, May 7, 2008 10:22 AM CDT
Anne - You have always had such a gift for capturing the very essence of your childrens' hearts and souls with your words. The picture that you paint of what I am sure is just a small portion of the depth and determination and gusto for life that Brittany possesses give me a window into a courageous young woman on her journey of life, and the reflection to the outside world gives me such encouragement. Your strength has been and continues to be amazing, and Brittany is a testimony to the strength acquired and learned from her family, which is fortified with passion and desire within her to see the possibilities out there. Thank you for sharing her with us.
Lauren FitzPatrick <ljfitzpat@bellsouth.net>
Woodstock, GA USA - Wednesday, May 7, 2008 10:07 AM CDT
Anne,
I'm not one to post on this or any other site, even though I read it religiously every week. But how can I do otherwise than post when I read the inspiring story you've shared about my beloved niece? She has always been a hero to me, for so many reasons relating to the person she has become. But I didn't have a clue -- I never do -- as to just how heroic she truly is. All four of my wonderful Juhlmann nephews and nieces inspire me in so many ways, challenging me to look past the fake obstacles I place in my own way and focus on what is really important. How weird it is to think how much I have to learn about living from a young woman who is not even half my age. But I do.
I love you! Mike
Mike Fischer
Milwaukee, WI USA - Wednesday, May 7, 2008 9:02 AM CDT
Anne,
The story you wrote about Brittany is beautiful, but how could it not be, for there would be no story at all, if not for the beautiful person, inside and out, that Brittany is. She gives and gives and gives, and she has altered in ways she cannot imagine, the lives of that family...what a beautiful thing for them to know, that this smart, talented, beautiful (I can't stop using the word) woman cared enough about them, valued the life of their little boy,and believed that she could find the answer for them, which she did. I am so proud of her, I am so lucky to be the aunt of your four amazing children.
maribeth <mbfischer1@verizon.net>
Rehoboth Beach, DE usa - Wednesday, May 7, 2008 8:05 AM CDT
A hero she is. Brittany...you are an amazing young woman.
Kris, Paul, Cole, and Zack Vajda <kcvpcv@yahoo.com>
- Wednesday, May 7, 2008 3:48 AM CDT
Anne, you have done it again... you have touched my heart so deeply by your willingness to share completely with everyone who reads your entries daily. Brittany is an amazing young woman and you should be proud, I am sorry to say though, this entry though it made me cry did not surprise me. Why would it be surprising that a woman, a mother as wonderful as you are to your children would have children any less wonderful and proactive as the woman who raised tham. I want to say Thank You, Thank You for all you have done to make this world a better place for children and families.
Jill Nelson <tjtbnel@sbcglobal.net>
Oconomowoc, WI - Tuesday, May 6, 2008 10:54 PM CDT
This is for Brittany:
Heroes are people who rise to the occasion and slip quietly away. ~ Tom Brokaw
and
A boy doesn't have to go to war to be a hero; he can say he doesn't like pie when he sees there isn't enough to go around” Edgar Watson Howe
I read a story yesterday, Brittany, and it made me think of you. It completely missed the point of what a hero is. You, quietly making a difference each day, no matter the obstacles, are the hero. Just like your mom. With so much respect of and admiration for you Brittany. I hope to meet you one day.
JD - your mom's "old" friend
- Monday, May 5, 2008 7:39 AM CDT
Anne,
Thanks as always for taking the time to up date us on your daily progress forward with your life and your families too.It is very informative and I`m sure helps many other people who have gone through the same situations that you have.Your a great role model for others to seek out on this site.Take care Our prayers are with you always..
Cousin lynn and family..
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Sunday, May 4, 2008 10:33 AM CDT
Dear Anne
Your last post made me think about how many times I want to come up with the perfect words to comfort someone, but I come up with nothing. I read Deb's post to you and you guys speak the same language, one that I do not fully understand. I say that honestly because unless you have lost a child or children you can only imagine what that kind of pain would feel like. My boys are healthy and are my life and I want them to out live me, however I cannot perdict the future. Somtime I see Deb at church and I am speechless, I search for the right words but I fail to find them. My heart just aches for both of you and for all the other families that lost a child. Anne your words spoke to me because I do not need the right words, I just need to be there, to be willing to listen and give comfort.
I know you look at the great examples that Zach and Sam were and that gives you the strengh to keep trying. I admire Zach for even on his really bad days, he tried to keep living to the best of his ability.. Anne I think you are doing great, doing your best to live your life like your great sons did, with strengh, with courage and with hope. Thanks so much for posting, I love to see how you are doing. Looking forward to seeing what you were doing at the blood bank, I am sure you are up to more good things. You, Brittany and Abby are always in my prayers and Zach and Sam are a part of my heart forever. If I live my life out with even half the strengh and courage that Sam, Zach and Connor had, I would be doing pretty good. I am not there yet but I have to keep trying. Take care of yourself.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, May 3, 2008 1:14 PM CDT
Your journal entries are precious to me. They always have an emotional impact that makes me think and better my relationship with my children..of course they are sad...how could they not be? You lost two beaufiful boys and that the heart break is beyond anything anyone could comprehend. The cold lips, blue coffin, and black coffin reference was so powerful that it literally made me vow to be a more patient and tolerant mother during trying times. Thank you for continuing to share...it means so much to many. Your boys are in our hearts.
Kris, Paul, Cole, and Zack Vajda <kcvpcv@yahoo.com>
- Friday, May 2, 2008 7:16 PM CDT
Hi Anne!
We are moving to the Minnesota at the beginning of June or mid June....Woodbury, MN to be exact...you are always welcome! The kids are already asking when Brittany is coming over, we are only 20 mins from the city. We are so glad that plans have put us back together. Your family is always in my prayers. I am giving blood on Tues AM. Your family has taught so many how to live, to love and to give. I hope to see you soon.
Love, Mary
Mary <mkrupski@yahoo.com>
Essex, VT - Friday, May 2, 2008 1:20 PM CDT
Anne, you say things so perfectly. I could not think of those words but that is EXACTLY it. You know, you understand...
I so wish you didn't. I so wish that we were not bound by such horrific truths about our lives. But we are. And you most definitely do understand the pain of my heart.
Sometimes when I read your words I almost can't believe that someone gets it so well... and then I remember, of course you do... of course. You get it even more than I ever could. I wish with all my heart that it wasn't true, but it is.
Thank you for sharing. Thanks for opening yourself up so that I know I am not alone. I know it's not easy to share your heart. But please know that it does make a difference.
With much love
Deb
www.caringbridge.org/visit/connorscott99
Deb
- Friday, May 2, 2008 11:41 AM CDT
Hi
My name is Jenna and I came across your site. I just wanted to let you know that I will be keeping you in my thoughts and prayers.
caringbridge.org/visit/champ291
Jenna <nevergiveup301@aol.com>
Kamloops, BC Canada - Thursday, May 1, 2008 1:29 PM CDT
Anne-
I loved what you wrote. Learning to go on and live this different life you now have without your boys faces to smile at or hugs to feel--well I can only imagine it being like walking through deep snow or thick mud. So often people, our society, puts parameters on the way to grieve and the time that is appropriate totally disregarding the fact that grief is not something like an illness that you recover from. It is not linear nor is it cyclical. It is something so different for each person that goes through it that I think it is unfair to try to label it at all. The strength and wisdom that you share with all of us through your words on this site--it is no wonder to me that you have 4 very wise children with spirits that will live on forever!
Cindy <cbergland@tds.net>
- Thursday, May 1, 2008 7:58 AM CDT
Anne,
I love you. Hope you know that always.
Jackie
- Thursday, May 1, 2008 6:58 AM CDT
If you get a chance, take some pictures. I'd like to see Abby in action too! Carsen loves soccer. It's a very hard sport. Carsen doesn't understand why they won't kick him the ball :)
Love,
Krystena
http://www.caringbridge.org/ky/cadencarsen/ <momof2withga2@yahoo.com>
- Wednesday, April 30, 2008 4:45 PM CDT
Hi Anne, Lou, Brittany and Abby,
I loved seeing all the new pictures of the boys and reading the letter that Zach wrote about himself. We still think of you all daily! Love to you all!
Mimi Schwarz <mimischwarz@sbcglobal.net>
Cedarburg, WI - Tuesday, April 29, 2008 4:22 PM CDT
And totally cool about Brittany. We were never that smart in college -were we? I agree - it is often great to see young, new researchers and listen to them talk a mile a minute full of enthusiasm. It reminds me to remain curious. Like our pal George. Too bad Rey did not write an adult book for us.
B
- Tuesday, April 29, 2008 8:48 AM CDT
I love that book. I didn't think anyone read those old books. Saint Ex is a smart guy. I know it is hard even though I do not know how you feel. But you remember that nothing will swallow you up. Look at your Buzz night light and remember that.
B
- Tuesday, April 29, 2008 8:40 AM CDT
HI Anne:
Way to go Brittney!!!! You could feel the proudness you have for your daughter. I'm so glad there is hope for the future. That is all we ask for at times; hope. I love the train and agree with you about the time. I took a train out west and even though it took two days it was fun to walk around, meet people and especially see the beautiful scenery. I like to feel the sway of the train and the steady sound it makes. Yes it takes time to get to your destination; but its a relaxing time. As always, I so enjoy reading your journals. They always get me thinking and going ahhh; continue to post your thoughts. Peace and blessings to you and your family.
Lisa Nerenhausen <lnerenhausen@new.rr.com>
Appleton, WI United States - Tuesday, April 29, 2008 8:37 AM CDT
sending you hugs and positive vibes from NC. I think of you and your family often. I will continue to pray for you all. I know Sam and Zach are watching over us all.
Michele, Nelson, Kess and Miles Hendrix <lyta2000@triad.rr.com>
High Point, NC - Tuesday, April 29, 2008 7:35 AM CDT
Just wanted to tell you how I hate that darkness. I know it is not always possible for you to reach through the darkness, but I want you to know that I am always there, reaching through for you. I am sure there are many others, too, who are reaching through holding onto you. It can't swallow you completely because too many of us are there and will never let go!
Sending love,
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Tuesday, April 29, 2008 7:23 AM CDT
Anne,
I've stopped in many times already just on this last journal entry, trying to sign in. I can usually find something to say but this time....it's not so easy. My heart breaks for you. I was home alone when I read your entry – the boys were off to school. I too have a monitor in my bedroom. The sound of their pumps at night, which are never in synch, allow me to sleep. It's the most comforting sound I hate to hear. One part of me hates the fact of what the sound represents but the other side of me knows that life is in those rooms and that's all that matters. Home alone, reading your entry…the only sound coming through was some slight white noise. I imagined what it would be like to never have those grinding sounds coming through the speaker again or the occasional disturbing deep breaths they take or the prolonged breath that often takes my own, as my body unconsciously breathes when they breathe. I suppose I feel like I am "hearing" the sound of a noun, ‘Hope’, that isn't supposed to be heard but felt. You are surviving the unsurvivable, Anne. The pictures of the boys in PT remind me so much of my boys. As I've said before I think Sam looks similar to Caden when he was a little one. I also saw you in Zach's profile in these pictures. Do I? I hadn't noticed that before. That little foot of Sam's kicking the ball…..Both of them watching the bubbles with such intensity - like it was the first one invented and possibly the last. My boys LOVE bubbles. In fact that is what got Carsen through one of his roughest hospitalizations. My sister's nickname (from Carsen) is Bubbles because she is a bubble supplier. It's the little things, right. I am thankful you continue to share your Zach and Sam stories. It’s hard to hear the sadness that you feel but it’s important that you never stop talking about it. It does my heart good to know of a Mother’s love like yours. I’ve said it a zillion times – so many it goes without saying ~ Zach and Sam are part of me. They will forever live in my heart – forever.
Love,
Krystena
http://www.caringbridge.org/ky/cadencarsen/ <momof2withga2@yahoo.com>
- Monday, April 28, 2008 9:36 PM CDT
Anne-
When I logged on to your site and saw the new pictures of your boys--it gave me goosebumps--such sweet faces! It just doesn't seem real that they are not physically here. We hold you all in our thoughts and prayers.
Cindy
- Monday, April 28, 2008 4:30 PM CDT
HAPPY BIRTHDAY ZACH! I was reading your letter that you wrote to the ICU staff. I had quite a few smiles while reading it. I hope you are pulling some jokes on the other angels. Please look for my Zac, he would enjoy your jokes. You are a special child that I wish I had the honor of meeting while you were here in your earthly body. Your mom does a great job in letting everyone know just what a great kid you were/are.
kim hunter <widgit@earthlink.net>
- Sunday, April 27, 2008 5:00 PM CDT
Sweet Anne, you never cease to amaze me with your kindness... You share yourself and your sadness about Connor, even though I know how very much you miss your own boys. Thank you for your love for my son. I can't even begin to tell you how much it means to me.
I am remembering Zachary today. I know how much these days mean, how hard they can be, but also how much we remember our boys on these days. Thinking of you today Anne.
I so wish we could be bound by our boys, being here with us and being friends... I know they are friends in heaven. I just wish beyond wishing that things were different. Wishing doesn't get us anywhere... But know that is what I long for... I know someday in heaven we will all be together, our boys are just waiting there for us. I would imagine they are just having a blast sharing their WAR STORIES...maybe eating some french fries, and some spicy food too...definitely playing with lots of puppies!
Much love and prayer,
Deb
www.caringbridge.org/visit/connorscott99
Deb
- Sunday, April 27, 2008 4:11 PM CDT
Hi Anne,
I just read your entry regarding planting flowers for Zach. I know very little about flowers, but decided to google Darth Vader Flowers. I found a Sinningia "Peridots Darth Vader" flower from the Vancouver African Violet and Gersneriad Society 2005 Show. It was exhibited by Lain James. I have no idea how hardy a flower like this would be, but it looked pretty neat!
I continue to think about you and your family often, and your journal entries never fail to inspire me.
Sincerely,
Lindsay Deinhammer
Lindsay Deinhammer <schoolrnphn@aol.com>
Kenosha, Wi USA - Sunday, April 27, 2008 11:03 AM CDT
Hi Anne, Brittany and Abby
Sometimes this CaringBridge site makes this world seem smaller and more connected and than other times I feel people I care about are way too far away. I have enjoyed getting to know Zach this past year through this CB site, however I sure wish I had an opportunity to meet him. Zach is the One and Only to you, to Britany and Abby and to all those who knew him.
Brittany thanks so much for sharing your memories of your brother with us. What fun Zach had planning his birthday celebrations and very smart of you with giving him some price limits. He really had such a sense of fun and I can only imagine what a wonderful birthday he had in heaven. I know life in general will forever be different without Zach there to share it with you. I am sorry you don't have Zach to go on the fast rollar coasters with or the many other things you enjoyed doing together. You lost 2 great brothers and that kind of pain does not just go away. I will pray that God gives you the peace and comfort for each day, I do not have the answers for grief.
Anne I think it was so nice of Elizabeth to put a Super Hero balloon on Zach's cemetary site. She knows all too well what you are going through and I am sure it is a comfort to talk to her.
Thanks so much for sharing so honestly with us, I hope it helps a little to put down your thoughts in this journal. Please know that I think about you often and lift you up in my prayers. My son is 16 years old and my heart aches that Zach never made it to 16 years old. Life is not easy, but you are not alone. Take care of yourself.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, April 26, 2008 11:07 PM CDT
Anne,
Thanks again for sharing your most intimate thoughts about yours boys and family.As always you make them so real for the rest of us even though we never meet those loving angels. Take care and as always you are in my thoughts and prayers.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Friday, April 25, 2008 7:56 PM CDT
I just recently found you, so I was never able to get to "know" your boys -- even through Caring Bridge. But I wanted to comment on what an absolutely beautiful and touching photo you have of the two of them together at the top of your page. It just tugs at my heartstrings. I like to imagine them together like that now.
Tracy Stanley
Ramsey, MN - Friday, April 25, 2008 2:55 PM CDT
Happy Belated 16th Birthday, Zach!
Anne,
Thank you for sharing his and Brittany's words. What precious children...
Pamela Matthews
www.caringbridge.org/tx/dinahmatthews
Pamela Matthews <gmatth1111@att.net>
Houston, TX - Friday, April 25, 2008 8:36 AM CDT
I haven't checked in for a while, but wanted you to know how special your family is. What beautiful boys (and girls) you have. I am so sorry that they are not all here to celebrate Zach's birthday. He was truly a kindred, gracious spirit. Love, Nena and Reese
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
Hermantown, MN 55811 - Wednesday, April 23, 2008 8:58 PM CDT
You know I am thinking about you. You have so much to offer. You always have and you always will. Call me next time you doubt that. Good luck today.
Bill
- Wednesday, April 23, 2008 8:22 AM CDT
Happy Birthday Zach, Anne, Britanny and Abby, I wish birthday wishes really could all come true.
LeeAnn <ajz3@bellsouth.net>
Savannah, GA USA - Wednesday, April 23, 2008 6:45 AM CDT
Happy Belated Birthday Zach! I will always carry you, your brother, and my Skye in my heart forever!!!
Tamm www.caringbridge.org/oh/skyecoleycole <Tamm06@aol.com>
- Tuesday, April 22, 2008 8:43 AM CDT
Happy belated birthday Zach. thinking of the whole family and always praying for you guys.
steph www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville, PA - Monday, April 21, 2008 7:24 PM CDT
Happy Birthday Zachary.
Kris, Cole, and Zack <pnkntwins@charter.net>
- Monday, April 21, 2008 4:00 AM CDT
Happy 16th Birthday Zachary Ryan!! I miss you tons and thought about you a lot today. Of course I have no doubt that you sent us the beautiful weather today, as heaven forbid it rain on your birthday because that would NOT have been part of your well thought-out plan! Love Sara
Sara O'Toole <sara_o2l@hotmail.com>
Waukesha, WI - Sunday, April 20, 2008 10:16 PM CDT
Hi Anne, Abby, Lou and Brittany,
Happy birthday Zach!!!! In my mind I can hear Zach tell me everyday how close he is to driving. I can hear his laughter as he shares with me his birthday festivities. What a wonderful blessing it is to have known Zach and to have shared some of his wonderful, infectious love of life. God bless you Zach and happy birthday.
Marianne (Mrs. Petro) Kirsch <mkirsch@waukesha.k12.wi.us>
Elm Grove, WI - Sunday, April 20, 2008 9:56 PM CDT
Hi Anne & Abby & Brittany & Lou -
Just wanted to leave a little something for Zach. I can still hear his laughter everyday!
Happy birthday Zach! I miss you greatly - I think I could have talked you into playing the Indiana Jones march this Spring, but you'd probably make me find another Star Wars or Batman song! Thursday afternoons still don't feel right without you.
Thanks for the sun today!
Nancy D-S <ndexschabow@hotmail.com>
Hartland, WI USA - Sunday, April 20, 2008 9:38 PM CDT
Happy Birthday Zach!
Donna Brooks <daniel8546@sbcglobal.net>
- Sunday, April 20, 2008 9:17 PM CDT
Thinking about you guys today on Zach's very special day. Please know you are in our thoughts and prayers today. I wonder what our boys are having to eat today to celebrate... I'm sure they are partying big time in heaven. Much love and prayer. God bless.
Deb & Scott
Deb Millard <sdcm@optonline.net>
- Sunday, April 20, 2008 9:05 PM CDT
Anne,
Have been thinking of you and of Zach all day today. I love his introduction...it reminds me of his story about East Tennessee! Another awesome writer in your family! Thank you for sharing it today.
Much love,
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Sunday, April 20, 2008 8:00 PM CDT
Happy Birthday Zach! You are in my prayers.
Risha :)
- Sunday, April 20, 2008 7:49 PM CDT
Anne, I've been thinking of you and Zach today. Thank you, Brittany, for sharing your thoughts and thanks, Anne, for posting Zach's letter. I love reading what he's written and remembering that wonderful one and only.
Julie T.
Waukesha, - Sunday, April 20, 2008 6:51 PM CDT
Happy Birthday Zach! Hannah and I have been thinking about you a lot lately and talking about you as often as Hannah brings you up. You were such an amazing person who still continues to touch so many of us. It is so easy to hear your voice in that letter you wrote to the ICU staff. You are dearly missed.
Cindy
- Sunday, April 20, 2008 6:51 PM CDT
Thank you, Brittany, for sharing your thoughts on Zach's birthday. And Anne, thank you for sharing Zach's ICU letter. He obviously knew himself very well! I've been thinking of him today, as he and I share a birthday...At my age, I don't plan quite like he did. He definitely had things to do!
Thinking of you here in Maine...
Theresa <bookangel1993@yahoo.com>
- Sunday, April 20, 2008 6:36 PM CDT
HAPPY BIRTHDAY ZACH!!!!
I miss you so much!! I wish you could be here to plan out your b-day wish list and have a party with your family! I know you were looking forward to your 16th birthday, so I hope you're finding a way to drive around!! I miss you and I love you - you are greatest teenager I have ever met!
Anne - I love the PICU letter he wrote!! We were reading it at work last night and laughing so hard! I never knew about the reading before Nintendo rule!! I think I'm still laughing about the androgel thing, too!! Anyways, hope you're finding a way to celebrate Zach's birthday - I can't imagine how painful this day is for you without your Zach! I'm thinking of you and I miss you too!
Love,
Amanda
Amanda <aglorioso@chw.org>
- Sunday, April 20, 2008 5:14 PM CDT
Happy birthday, Zachary..
Miss you, Anne.
Wendy Runge
Waukesha, WI - Sunday, April 20, 2008 4:58 PM CDT
Happy Birthday Zach
Thinking of you all
Emma <emma@wheelchairprincess.com>
UK - Sunday, April 20, 2008 2:48 PM CDT
Thinking of Zach today, and you. So glad to have met and known your Amazing son.
Holly and Maya
Holmen, WI United States - Sunday, April 20, 2008 2:43 PM CDT
Thinking of you and of Zach today. Wishing that things were different . . . but oh so glad that he was here and left his mark on my heart!
Love,
Kathy
Kathy Corley www.caringbridge.org/tn/alexcorley & www.caringbridge.org/visit./annacorley <corleyfive@comcast.net>
Signal Mountain, TN - Sunday, April 20, 2008 2:18 PM CDT
Dear Anne
Happy Birthday Zach, we are all missing you so much but we do know that you are more than okay now.
Thank you so much for sharing Zach's letter with us, I am still crying. He loved you so much and he loved life. I will keep this short, Anne just know that you are in all my thoughts and prayers today. Zach is an amazing person and always will be even though he is not with you in flesh, he is with you. I know it is not the same thing and for that my heart aches with yours. Love you all.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Sunday, April 20, 2008 1:01 PM CDT
I read Zach's ICU letter an hour ago and am still smiling. What a kid! His incredible sense of humor just cracks me up. Happy Birthday Zachary. You still are the one and only.
MJ
- Sunday, April 20, 2008 12:48 AM CDT
DEAR ANNE AND FAMILY, THINKING OF YOU AND YOUR BEAUTIFUL FAMILY, ENJOY THIS DAY WITH LOVE, AND JOY , TO HONOR ZACH'S BIRTHDAY. MY LOVE TO ALL
FRANCIS NATOLI
FRANCIS NATOLI <FRANCISNAT@AOL.COM>
NAPLES, FL USA - Sunday, April 20, 2008 11:27 AM CDT
HAPPY BIRTHDAY ZACH!!! We miss and love you so much!! Tom and I have planned a birthday celebration of guacamole, chips, and lots of Star Wars watching. But now after reading your letter to the PICU nurses I may have to make muffins too!! (I don't think Tom will complain at all!!)
Anne, You did remember the letter. You told me a few times how you had to find it. You looked but then got side-tracked. It's written in pure Zach fashion. I hear his voice when I read it and I can see the two of you working on it together. Happy Birthday to your amazing son. Love, Hopey
Hope <hmpatchak@yahoo.com>
- Sunday, April 20, 2008 9:03 AM CDT
Happy Birthday Zachary Ryan!
Hannah <hanbana23@aim.com>
- Sunday, April 20, 2008 8:02 AM CDT
Dear Anne, I'm thinking of you and Abby going to be with Brittany, celebrating her achievement. Congratulations! And on Sunday your family will be in my thoughts and prayers as you gather for Zachary's birthday.
Josephine Zell <josephinezell@sbcglobal.net>
Madison, WI USA - Thursday, April 17, 2008 8:32 PM CDT
I hope your talk went well today. Thinking of you. Enjoy your weekend with your two amazing daughters.
Cindy
- Wednesday, April 16, 2008 8:19 PM CDT
A FRAUD! Well, I can understand why you might feel that way, but I think I can speak for all your friends in saying that you could never be a fraud! It is Sam's and Zach's story, but it is also your story. You have been there every step of the way, and this will always be your story, too. And as long as I am alive, there will always be someone who not just remembers you as once being, but THINKS of you always as Zach and Sam's mama. Your story--their story (they are intertwined in a way that cannot ever be untangled)--is absolutely legitimate. It has tremendous value and should be told. You have one voice that is part of a chorus of parents with stories that must be told so that others can understand, and parents new to each challenge can find strength, and so children can live fuller lives. Good luck bearing witness. I know you will do it wonderfully, and in a way that honors your beautiful children!
Kathy
Kathy Corley www.caringbridge.org/tn/alexcorley <corleyfive@comcast.net>
Signal Mountain, TN - Wednesday, April 16, 2008 9:48 AM CDT
What a beautiful picture of the boys...I so wish they were still here with you. I hope that sleep is coming to you these days and that your dreams are filled with your boys at their best.
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Tuesday, April 15, 2008 10:02 PM CDT
April 20th is a very precious day, will always be, Anne.
Thank you for all the encouragement along this journey. One of your thoughts you sent me long ago is one that I always share and hold to when I second guess myself. And since then I've had so many say the same thing, but not the same way. Art teacher vs. Nurse
Thank you, Anne.
Thinking of you.
Sh
Floyds Knobs, IN USA - Sunday, April 13, 2008 6:29 PM CDT
You inspire my daily! Love the idea of the tapestry--so cool!!!! Not a day goes by that I don't think of you.
shelle and hannah <shdmiller@yahoo.com>
- Wednesday, April 9, 2008 9:21 PM CDT
Anne, just stopping in and wanted to thank you for continuing to share your thoughts with us on this site. I wish we could have seen you when we were in town this week, but I know how busy you are and you don't work on Monday's. I think of you daily and am looking forward to searching for my contribution to their tapestry.
Holly Owens
Holmen, WI United States - Wednesday, April 9, 2008 8:07 PM CDT
Dearest Anne,
Your entry as usual was and is very profound.You sharing your most intimate thoughts is such a gift to the rest of us.I`ve been trying to figure out what to sent for the quilt haven`t quite figured it out yet but hopfully I will soon.Though I`ve never meet you dear cousin or your lovely children your ability to make them real for us out here is such a blessing.Zach will be 16 on the 20th of April weither he`s there or not,we always think of those we love and who have passed on on their special days as we should and as you should.Hope he`s day isn`t to hard on all of you,though I know it will be.Your in my thoughts and prayers often you and your whole family.I haven`t seen your mother and her side of our family since Grandpa Loubek died in 1958,yet still think of them often.Take care.
Cousin Lynn and family..
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Wednesday, April 9, 2008 12:07 AM CDT
It has been a while since I visited the boys site. I love the blood donor video you did. I just wanted to stop by and say hi and send you some hugs and well wishes.
Lots of hugs,
Wendy
www.caringbridge.org/visit/colbydinwiddie
Wendy Dinwiddie
- Wednesday, April 9, 2008 10:25 AM CDT
Hi Anne,
I was thinking about you all today, and wanted to drop by. I loved your post regarding Alex and Abby. Our local MRDD program has integrated healthy children with special needs children for many years now, and have had wondrous results. All of our children went to nursery and preschool there as healthy children, not knowing that a year would come when Collin would enter as a special needs child, after a traumatic brain illness. It was a tremendous blessing for all the children to go there. Lizzie now attends as a special needs child, and we know she benefits from all the play of her peers, and it's so sweet to know little children are learning how to show friendship and compassion. Anyway, thinking of you and your children often. Joni H.
Joni Holycross <loerco333@yahoo.com>
Rushsylvania, Oh - Tuesday, April 8, 2008 4:07 PM CDT
Life is so fragile. I gave a talk the Saturday before Easter on using the gifts that we have been given to the fullest each and every day and couldn't help but talk about Zach and Sam as two special people that did just that. The lives they lived--especially the lives they touched made them such people of the light and not the dark. You never know when your life is going to take a turn toward that darkness and so living life like Zach and Sam did--they were such a gift to see their love for life--nothing could stop them or get in their way. Truly and inspiration for me!
Cindy
- Monday, April 7, 2008 7:53 PM CDT
Oh yes, I remember Abby back then. As in Sam, the speech therapy worked rather well, wouldn't you say? I was sad to hear Brittany did not get to NY. So happy to read about her community service spring break but not surprised. Your girls have always been bright treasures.
PattyK
- Monday, April 7, 2008 9:08 AM CDT
I am thinking of you Anne. Can we have lunch soon? I'll call you this week to see what works.
Amy
- Monday, April 7, 2008 9:01 AM CDT
Anne, there are times I am especially struck by how much you have not changed from the time you were young. (I mean to say "younger" since neither of us are old yet!) Reading what you wrote today is one of those times.
I point this out because I know you feel that who you are today is unfamiliar and new. While I respect that sentiment, even though I cannot come close to understanding the feeling, I hope it comforts you to know that your heart remains as beautiful as it always was to me from that time.
Do you remember that school for autistic children we went to while at Rutgers? I had forgotten. But while reading your post today I remembered and could hear you so clearly, sharing the lessons you felt you learned from those kids when we went to class. The rest of us were so full of ourselves and so sure that as smart as we were, we were the gift to them. You were the only one who understood all the gifts the kids were bringing to us.
I am not generally a public person with my thoughts yet I want to write this for others to read who did not know you as a "kid." I want others to know how genuine you are and that none of this is new. Your heart has always been so open to learning and experiencing what others have to teach you and because of that you have been a teacher to people from the time I knew you and I am sure long before that.
Your friend,
Mike
P.S. Really glad you got to St. Patrick's and lit candles.
Mike F
Anchorage, AK - Monday, April 7, 2008 8:58 AM CDT
Well, Anne, you did it to me again -- said what I always seem to never get out right. We are put on this earth to love and learn and live. No stupid IEP or state mandate or curriculum can be written to tell us how. I guess it's an unwritten rule. It can be so hard to be a teacher in public education, listening to teachers who don't get it. I have to say 2/3 of them do -- but that 1/3 can be poisonous.
I always said Michaela came to earth to teach, and that she already knew everything she needed to know when she got here. Her eyes told me that -- they held such intelligence and mischief! And yet so profound. I definitely believe that about your boys, Anne. I think of you often, and check your site when I get a minute. I know this is a difficult month as you celebrate Zach's 16th birthday. Take care...
Theresa <bookangel1993@yahoo.com>
Limerick, ME - Saturday, April 5, 2008 10:59 PM CDT
Dear Anne
I loved your entry and cried reading it. I also related to it because of a few reasons. I work as a staff assistant in a full day step up class in NJ and those special children do teach each other things and defintely teach me many things. We do have parents who worry about putting their child in the full day program because those kids do have more severe delays but for the most part I find that the child that is not as challenged still progress. They are like Abby, they notice if their friend is happy more than if their friend talks or can walk.
My second reason why I related to your post is because I have a special needs child, he has been classified since he was 4 years old, he is 14 years old now. He has resource room classes and does well, but he still needs the help and support from his Special Ed teachers.
I am so glad that Abby is okay and the fact that she has all the wonderful qualities she has now is because of those early friendships and because of Sam and Zach. I plan to share your posts with Cathy, by boss and friend and the other wonderful caring friends I work with.
I am sorry that Alex died and I am glad you attended his funeral. You are right, life can change in an instant. I try to cherish all I have in my life right now, like my children, my family, my church family, my friends, my health, my kids health, my job, the children in my class and most of all the promise of my salvation.
Anne thanks again for sharing your life with us, you never fail to make me think and feel things. Love to you, Abby and Brittany. To Zach and Sam you will always be a part of my heart.
In Christ's Love
Ann Marie Gleason
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, April 5, 2008 1:57 PM CDT
amen, i love your heart.
donna <donerleg1@yahoo.com>
louisville, ky usa - Saturday, April 5, 2008 9:19 AM CDT
Anne,
What a beautiful entry. Thank you for sharing it.
Soul family, we truly are!
luv Kelly and
^^Angel Kirkland^^ xoxo
Visit our event site
Kelly Kilbride <kilbridek@yahoo.com>
Georgetown, On Canada - Saturday, April 5, 2008 8:55 AM CDT
Anna K - Can't find your work # and boarding the plane soon. I'm leaving for 10 days- remote area, will tell you more when home. My heart is heavy for you this morning. Know that.
BK
- Thursday, April 3, 2008 9:08 AM CDT
Anne,
First of all, YOU ARE AMAZING!!!! I wish I had your energy and determination. I am so glad you and your daughter got to go on the trip. You so deserve it! My heart aches for the loss of your boys, but when you see them again, they will be well and happy to see you! I think about you all the time. Thanks so much for checking out Shelby's page. I feel so honored. May God continue to give you strength, and most of all happiness.
Lot of hugs,
Lori/cp/shelbywood
Lori Wood <woodyou@comcast.net>
Clarkston, MI usa - Wednesday, April 2, 2008 8:36 PM CDT
Anne,
I ran across a quote today that made me think of Sam:
"Orange is the happiest color."-Frank Sinatra
Sam was in classy company!:)
I continue to think of you and your family often and keep you in my prayers. I pray that God's love for you and your love for each other will continue to sustain and uplift you.
Happy April 1 and God bless you!
Paige <plepley@gmail.com>
Minneapolis, MN - Tuesday, April 1, 2008 10:22 PM CDT
STRIKE 3:
told the cleaning lady at my work that the toilet was flooding all over the place....you should've seen her run! i've never seen her laugh so hard when I said APRIL FOOLS! She didn't even know it was April 1st!
Hilarious Britt <juhlm014@umn.edu>
Minneapolis, - Tuesday, April 1, 2008 10:06 PM CDT
STRIKE 2:
called my roommate and told her that our landlord did a surprise inspection and was charging us $350 for our broken closet...........hahaha she really bought it
Humerous Britt
Minneapolis, - Tuesday, April 1, 2008 10:05 PM CDT
Today I had a MicB lab quiz and me and my friend Salwan took an extra quiz and filled out ridiculous answers that had nothing to do with MicB. Then we wrote APRIL FOOLS on the back of the test. We then proceeded to pretend like we were cheating and Sal was looking at my answers and when the TA "caught us" we showed him the fake test that Sal was "cheating" off of- he got a kick out of it! THIS DAY IS FOR YOU ZACH!
Funny Britt
Minneapolis, - Tuesday, April 1, 2008 6:15 PM CDT
Happy April Fools Day! I'm planning some jokes that I know Zach would love!!
Amanda <aglorioso@chw.org>
- Tuesday, April 1, 2008 2:02 PM CDT
I HATE that Brittany missed NYC!!! So sorry! But glad that you and Abby got to see MAX (and Laura). Grand Central and the library are my favorite places . . . wish that Sam and Zach could have been there.
Kathy
Kathy Corley www.caringbridge.org/tn/alexcorley & www.caringbridge.org/visit./annacorley <corleyfive@comcast.net>
Signal Mountain, TN - Tuesday, April 1, 2008 12:53 AM CDT
Happy April Fool's day!! Remember last year when I short sheeted Zach's bed and he didn't understand what was going on!! And then my payback was coughing when I gave him Benadryl!! That was funny!
Hopey Dopey <hmpatchak@yahoo.com>
- Tuesday, April 1, 2008 8:05 AM CDT
Anne -thinking about you a lot.
Mike
- Tuesday, April 1, 2008 0:54 AM CDT
Hi Anne
I am glad that you and Abby got to see Grease, I bet it was great. I am really sorry that Brittany was not able to make it to NYC, very disappointing. You can never be sure of the weather, but better customer service would have been nice. I am still glad the you and Abby went even though you would have loved to share NYC with Zach. Looking forward to the pictures of the trip and from the blood drive. Sending you all my love and prayers your way from a friend from NJ.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Monday, March 31, 2008 7:35 PM CDT
I am so glad you made it to NYC. I am so sorry that the snow prevented Brittany from going and that your boys were not with you. We look forward to pictures of San Diego and the Big Apple! Your boys are thought of daily (at least) and we will do lots of fooling in memory of Zach tomorrow.
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Monday, March 31, 2008 5:20 PM CDT
Hi Anne! I'm glad you were finally able to leave the snow and come home a little late. we ahve lots to chat about! Let's lunch very soon.
Love you,
Kaf
Katherine <kfrontier@chw.org>
Wauwatosa, WI - Monday, March 31, 2008 3:41 PM CDT
Thinking of all of you.
Cindy <cbergland@tds.net>
Waukesha, - Sunday, March 30, 2008 8:10 PM CDT
There is not a day which goes by that I do not think of your family. I am praying for you today, Anne. I am thinking of you, today.
Today is the day.
Sh
Floyds Knobs, IN USA - Sunday, March 30, 2008 10:15 AM CDT
Thinking of you Anne
Love,
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Friday, March 28, 2008 7:36 PM CDT
Dear Anne
I just wanted to drop you a quick note to tell you that I am praying for you and thinking about you. Please try to take care of yourself.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Wednesday, March 26, 2008 10:00 PM CDT
Anne,
We are hoping that eating Peeps somehow helped minimize the affects of veiwing snow drifts at the end of March. We also hope you had a blessed Easter!
Thinking of you,
Mary and Bill <bfowler40@comcast.net>
Oakdale, MN USA - Monday, March 24, 2008 4:30 PM CDT
Happy Easter and thinking of you today and always feel your heart and soul in your words.
hugs
Sharon and the boys
www.caringbridge.org/visit/claytonandcole
www.caringbridge.org/vist/jakeski
Sharon Goldin <lawblond7@aol.com>
Waldorf, MD - Sunday, March 23, 2008 5:45 PM CDT
Dearest Anne and family,
Thanks as always for your update and your great way of explaining things that are happening now and have happened to you . May the start of this new season of spring bring you some comfort as you start your journey forward, missing your boys but moving ahead with your life.Nature has away of helping us cope sometimes when we least expect it. Happy Easter to all of you, and know you are in our prayers..
cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Sunday, March 23, 2008 3:42 PM CDT
Just wanted to check in and let you know I stop by often and think of you daily. Nice to know there is a fellow peep lover! I love them in the microwave especially!
www.caringbridge.org/mi/mayam
Holly
Holmen, - Saturday, March 22, 2008 9:28 PM CDT
THIS DAY'S GREATEST GIFTS
We can't change the past…
But we can gather up
It's lessons and move on,
Stronger and wiser.
We can't control the future…
But we can send our dreams
Ahead of us
To help prepare the way.
We can live each moment…
Heart and soul,
And cherish this day's
Greatest gift…
The gift of now.
May peace with the past
And faith in the future,
Gently guide you through each
Precious moment of Today.
I pray you have a Blessed Easter
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, March 22, 2008 9:26 PM CDT
Funny Peep story...Tom got hit in the EYE with a Peep and scratched his cornea. (ok so not so funny for him, but 10yrs later it's hysterical!) So he curses Peep's when we see them in the store! So I don't think I have had a peep in at least a decade! They are not allowed in my house. :)
Happy Easter!!! Miss you so much I can't hardly stand it!!!! (I hate snow)
Love, Hopey
Hope <hmpatchak@yahoo.com>
Milwaukee, WI - Saturday, March 22, 2008 2:39 PM CDT
Love to hear your voice in your updates! Thinking of you often . . . will be dyeing eggs tomorrow with the kids. I think all mine (because I always have to dye a few myself) will be purple and orange. :)
Kathy
Kathy Corley www.caringbridge.org/tn/alexcorley & www.caringbridge.org/visit./annacorley <corleyfive@comcast.net>
Signal Mountain, TN - Friday, March 21, 2008 9:23 PM CDT
Anne,
A beautiful entry as always. I miss hearing from you. I miss hearing about Zach's recipes. I love the picture on the front page. You are in my thoughts. I do know the pain each holiday brings - I know you miss Zach and this 1st Easter without him. Please know I think of you all the time. I was with my family over the last week and my mom asked how you were doing. I told her I think of you and the boys daily.
I'm here- I hope we can chat soon.
Love,
Leslie
Leslie Reynolds <rey7@bellsouth.net>
Roswell, GA - Friday, March 21, 2008 7:20 PM CDT
Dear Anne
I am glad that slowly you are getting some comforting answers to your many questions as to why Zach did not make it. The blood center in your state is doing a really great job and they DID DO Everything possible to give life back to your children, but the disease was too strong and powerful. I am sure that Zach received the very best care, he was so loved by the doctors, nurses and entire staff and you his loving mom loved and fought for him his entire life. You made sure he got what he deserved which was the very best. At this moment I can see Zach and Sam so free, playing with his friends Connor, Kyle and all his other new friends and most of all he is in the presence of his Savoir, Jesus. I hope you have a Easter filled with a little peace, much hope for your future and a lot of love from your heavenly father. Thank you so much Anne for sharing your heart with us and Sam and Zach with us. Your daughters are the best and I am sure you are so proud of them. Great thing Brittany is doing, giving back to her community along with the other great students. Love you all and take care of yourself Anne.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Friday, March 21, 2008 10:32 AM CDT
Hi Ann, Still love looking at the pictures of the boys, they were just plain adorable!! As for the peeps, well I did that yesterday, sat down and ate a whole package. Great stress reliever.
hugs to you all.
Missy and Jeremy <Willisdm02@comcast.net>
- Friday, March 21, 2008 9:02 AM CDT
I never really thought people at the peeps...they just turn into hard yellow rocks here.
Your boys are always in our minds and hearts and we are so sorry that they are not physically with you.
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Friday, March 21, 2008 7:07 AM CDT
Dear Anne,
It is so cute that Sam thought of St. Patrick's Day as his day. These memories are so precious. I want to share a memory about this holiday with you. Ever Since Samya was little, she always wanted a green theme for her birthday. I would tell her that she did not have to do that and could choose something else. No way! She insisted that she had to celebrate St Patrick's Day because it was her birthday. Then when Leanna was old enough to understand that her birthday was on cinco de Mayo, they both got the biggest kick out of the fact that they were born on Holidays. To make matters even funnier to them was that their dad was born on Christmas day. They used to tease me because I was the only one in the family without a holiday on my birthday and I used to tell them, " Well neither of you is Irish ir Mexican, so there!!" They would both laugh because it was too funny to them and never got old. Oh how my heart skips a beat when I recall these memories. I smiled a huge smile and felt warm in my heart when you shared that about Sam and St. Patty's day.
Love,
Suhad
Suhad Haddad <suhad88@hotmail.com>
Granada Hills, CA USA - Thursday, March 20, 2008 11:41 PM CDT
Precious stuff.
YOUR FRIENDS in SOUTHERN END OF INDIANA
Floyds Knobs, IN USA - Thursday, March 20, 2008 9:42 PM CDT
Dear Anne
It is so funny that Sam thought that St Patrick's Day was a celebration for him. It is funny what kids think, their imagination and sense of wonder is what I love about kids. I know you are the kind of mom that would let him believe that day was for him. Love the background Anne.
I did not know that Zach liked finances, saving money and planning his future. It is sad that a lot of those dreams he never will see happen. My 14 year old son Chris likes to save money and he is saving it for a car. Then he said because he knows I do not have much money that he is saving his money for college. Some things that you write I say that is like my son. I love hearing about Sam and Zach, they melt my heart and I never even met them
I am worried about your arm, I hope you are going back to the doctors. I will keep your arm and your health in my prayers.
I have been telling people to watch your slide show, you did an excellent job with it. It made a difference and an impact, I just know it did. Seeing the faces of your boys, Connor , Kyle and all the other children helps people see why they should give blood. When you make it personal, people get it, at least many do.
Try to take care of yourself. Is your daughter coming home from college for Easter"?
One more thing I am so glad that Joseph is moving closer to you, you will bless his life and his family's life. It is great that your lovely daughter got close to Joseph. I will Keep Joseph in my prayers and I know he will bring some sunshine into your life.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Tuesday, March 18, 2008 8:01 PM CDT
Thank you for the wonderful montage you put together for "How to save a life". I just wanted to let you know that I forwarded it to everyone in my address book, and got many, many email responses in return, some from people I don't even know, about how touched they were by it, and how they intended to give blood because of it. It truly is a very, very special work. Just wanted to let you know of yet another way that Zach and Sam and all the other kiddos in the video are touching lives!
Erica Beyea <debeyea@verizon.net>
Eden, NY - Monday, March 17, 2008 10:13 PM CDT
I was thinking about Sam plastering that play dough on his face/nose and telling Dr. Havens "look I'm squidward 'Hanens'" and then you and Zach and Dr. H laughed and Sam was so full of himself that he could not stop laughing and kept doing it over and over again. Gosh, that was so so long ago. It was always a joy to be in the room with all of you and all of the jokes and teasing and laughter. I never saw boys love their mama or their doctor or their brother as much as Zach and Sam did. Well, I just wanted to tell you that I was thinking about that and your boys still makes me smile a lot.
Amy
Milwaukee, WI - Monday, March 17, 2008 8:21 PM CDT
Love the picture of your two sweet boys--such sweet faces they have! Happy Samuel Patrick Day!
Cindy
Waukesha, - Monday, March 17, 2008 6:44 PM CDT
Happy Samuel Patrick's Day! Love the background and the reasons behind it. Thinking of you often, hope to get the chance to see you soon.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Monday, March 17, 2008 6:17 PM CDT
Happy Samuel Patrick's Day! (and Sean Patrick's Day too!... Sweet boy children)
Sending lots of hugs your way...
Heidi in Idaho
- Monday, March 17, 2008 1:30 PM CDT
HAPPY SAMUEL PATRICK'S DAY!!!! Love, Hopey
Hopey <IamsoIrish@Hopeydopey.com>
- Monday, March 17, 2008 11:58 AM CDT
Happy Samuel Patrick Day!!!!
Steph, Papi and Kboys
tubetown, - Monday, March 17, 2008 9:57 AM CDT
Hey green eyes - happy St Paddy's day, Samuel Patrick's day!
BK
- Monday, March 17, 2008 8:39 AM CDT
I never really celebrate St. Patty's Day, but now that I know it is for Sam, I definitel have something to celebrate now! Anne, you are such an inspiration to me! Your faith and strength are amazing! I am so honored to know you. You and your girls are always in my prayers!
Love,
Lori/cp/shelbywood
Lori Wood <woodyou@comcast.net>
- Monday, March 17, 2008 7:29 AM CDT
Hey Anne, love love love your posts... I sent a message to your private email. Not sure if you get those quickly or not. I would like to use a couple lines of one of your journal posts on Connor's site and wondered if that was ok... Can you email me?
As always thinking of you and praying for you and the girls... much love,
Thanks,
Deb
www.caringbridge.org/visit/connorscott99
Deb Millard <sdcm@optonline.net>
- Sunday, March 16, 2008 2:04 PM CDT
St. Patrick's Day with Jack -yes that makes all of us privileged to know him smile. How ironic that YOUR child, Sam, would end up thinking the day was so special. I don't think I knew that story about Sam. Jack in you in Sam in all of us in ao many people we know. Life endures. Mike's note just proved that beyond doubt to me.
Love,
Jackie
P.s How many shamrock shakes have you had so far?
Jackie <getmeashamrockshakestat@mcdonalds.com>
currently Boston, - Sunday, March 16, 2008 9:50 AM CDT
How neat for Brittany. I remember you telling me about that wonderful family!
Zach and Sam did happen. They did live. They were happy. They impacted others. They impacted me.
Kris
Milwaukee, WI - Sunday, March 16, 2008 9:43 AM CDT
Thinking about how it is almost Samuel Patrick's Day. I love thinking about your little boy thinking St. Patrick's Day was made for him. It never fails to make me smile. Do you remember how much Jack loved St. Padddy's Day? I'm sure you do. That makes me smile too. He still inspires me after all these years. I wish the world had not landed on your shoulders. I wish so much for you...
Mike
- Saturday, March 15, 2008 1:21 AM CDT
Anne - you're amazing. And the boys' lives were so worthwhile. I don't understand why people walk away. Maybe theycan't deal with death, pain, want to lie to themselves, too self conscious??? dunno. It has nothing to do with you but you end up hurt and it is not fair. That's what I know. And I'm sorry because the people who were involved with Z + S are the ones who should be standing with you. I aint going anywhere. Promise. See you next week.
shouldawoulda
- Friday, March 14, 2008 3:52 PM CDT
Dearest Anne,
Thank you so much for continuing to write and fill us in on your thoughts etc. Your sharing is important and I`m sure helps someone every day.Our thoughts are with you and your family now as always..
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Thursday, March 13, 2008 11:45 AM CDT
I started singing this morning....yup I think I can carry a tune? Cornnut has now decided he/she likes white milk...well I wanted cereal in the worst way! I started singing out of the clear blue with no intention of doing it at all..."Milk, milk, milk, I like milk..." I stopped myself I thought of Zach...and how much I miss him.
Hopey Dopey <hmpatchak@yahoo.com>
- Thursday, March 13, 2008 7:59 AM CDT
Anna, I'm in the airport. I will be in the States by Thurs night. Your boys DID do extraordinary things. They have an extraordinary mom as an example. I have no doubt that you will carry on and do 3 lifetimes's worth of goodness (for Sam, Zach and you). You are a survivor. You have survived more than I can comprehend and beyond what most people can even begin to imagine. You may feel that you are not you and I know that every experience changes a person but your soul is still you: hopeful, strong, beautiful and compassionate. You are the proverbial promentary - like it or not. (sorry -could not resist and aside from that it is true)
BillY
- Wednesday, March 12, 2008 11:46 PM CDT
Thank you for putting into perspective how we should appreciate what we have, including the things we consider most annoying or challenging. Hope your head feels better.
LeeAnn <ajz3@bellsouth.net>
Savannah, ga USA - Wednesday, March 12, 2008 7:10 PM CDT
Just wanted to say we are thinking of you. Your entries are touching. I made several scrapbooks of our Zac after he passed. One thing I put in the back of one was a list of his favorites. Everything from movies to food etc. I will never forget my Zac but the little things like his favorites maybe harder after some time. I wrote them down so whenever I look through they book they will be there forever. Being a mom of a sick child(ren), you certainly know of the being attached at the hip to them. It seems life revolved around hospital stays and that we spent more time with the staff than with some of our family members. I look forward to the day when we are all reunited with our beautiful sons. If you are up to it, please check out our site at www.zacsmemorychests.com As I mentioned before we would be honored to make one for Sam and Zac. Take care,
Kim Hunter(angel Zac)
kim hunter <widgit@earthlink.net>
- Wednesday, March 12, 2008 2:16 PM CDT
"Each shamrock brings a wish your way
For a truly bright and lucky day."
Here’s a wish for sunshine
And a heart that’s filled with cheer,
And joys that grow like shamrocks
Through a bright and happy year!
May you find friends in abundance,
May the sun shine bright above you,
May the world be a wonderful place to live,
May you always have someone to love you.
Wishing You the Sweetest
St. Patrick's Day Blessings
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Wednesday, March 12, 2008 10:13 AM CDT
Anne,
Just want you to know you are thought of often. Although I have not lost one of my children to an illness, I have lost my dad to one a few years ago. I can completely understand wanting that just one minute with him, also knowing that one minute would lead me to want another. I know this is not possible but that one day i will have an eternity with him. Keep talking about your boys, keep laughing at the silly things they did, cry, and you will one day be with them again. Life is hard, no doubt. I would love to go back to the hospital stays with my dad too, just to have him. I really feel for you. But, like i have my kids who like to hear about what i used to do with him and what he used to do or say, you have your girls who love those boys too and who also want to remember them forever. No one can say what is right or wrong on how to grieve or for how long one should grieve, but you are doing so much for so many in your grief! Your words are amazing! You give hope! Praying for your peace at heart knowing you are loved by a stranger! Thank you so much for sharing your heart!
Your friend from Ohio <tze_tzeb@sbcglobal.net>
OH USA - Wednesday, March 12, 2008 8:44 AM CDT
Hi Anne,
I just want you to know that your email and picture montage of your boys and the other children has motivated some of my friends here in Ohio to give blood.
Anne Reckling <areckling@aol.com>
- Wednesday, March 12, 2008 7:31 AM CDT
Dear Anne,
Your entries never fail to amaze and inspire me. I continue to think about Sam and Zach often. They have truly made impressions on my life (and so many others!) I think it would be great to honor Zach with some kind of naming at the Smoothie Bar!
I plan to bring the link for the blood drive montage to our next school nurse meeting, which is this coming Monday. I hope to get a group of us together to donate blood (I have never donated, but am again inspired by your words.) Thank you.
Take Care Anne, I hope you continue to feel better.
Lindsay
Lindsay Deinhammer <schoolrnphn@aol.com>
Kenosha, WI USA - Wednesday, March 12, 2008 7:29 AM CDT
Anne, I gave blood at West last week. What a great experience! The gym was buzzing with activity all day. I looked for you and was sorry to hear you were not feeling well. Take care of yourself.
JoAnn Krofta <jkrofta@waukesha.k12.wi.us>
Dousman, WI USA - Tuesday, March 11, 2008 12:11 AM CDT
Please care for yourself as you well as you do for your children...I hope you are feeling better.
LeeAnn <ajz3@bellsouth.net>
Savannah, ga 31405 - Monday, March 10, 2008 9:15 PM CDT
Anne, I hope you are feeling better as I type this. I found after Skye went to Heaven trying to decipher what was physical grief and an actual Mito episode was tough. Either way, your body needs rest. I pray you are able to relax enough to get the rest you need so that you are not in pain physically. Know that I'm here thinking of you, praying you feel better, and always carrying Sam and Zach in my heart!
Tamm <Tamm06@aol.com www.caringbridge.org/oh/skyecoleycole>
- Monday, March 10, 2008 8:18 PM CDT
Anne,
I hope you are feeling a little better. Don't push yourself too hard. Congrats to every donor from last week, what a gift they gave.
See you soon!
Love, Kaf
Katherine <kfrontier@chw.org>
Wauwatosa, WI - Monday, March 10, 2008 5:39 PM CDT
Anne I hope you feel better soon. We (Amanda and I) didn't faint! Hope to see you soon.
Marisol <Marisolrn2007@hotmail.com>
Milwaukee, wi - Saturday, March 8, 2008 1:31 PM CST
Anne, When you are ready, call or email me, I think it would be great to send some support each other's way. Evan's mom 949/842-9975
Gina Cousineau <ginacinsc@aol.com>
San Clemente, CA United States - Saturday, March 8, 2008 10:30 AM CST
Abby, thanks for the update. I'm so glad to hear the blood drive went well and can't wait to see pictures.
Anne, I hope you begin to feel better soon. Sounds like you have good help :)
Take care and let me know if there is anything I can do.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Saturday, March 8, 2008 0:17 AM CST
Thank you, Abby, for writing the update today. I'm amazed at the number of donors! Please tell your Mom that I hope she will soon feel a lot better. I check your CB site regularly, and I just love the new montage! Josey
Josephine Zell <josephinezell@sbcglobal.net>
Madison, WI US - Friday, March 7, 2008 8:52 PM CST
Thanks for updating Abby.
Anne, I hope you are feeling better soon. Sounds like you have good help in the mean time :)
Love,
Krystena
Caden, Carsen, Warren & (baby boy Richards due 6-20-08) <momof2withga2@yahoo.com>
- Friday, March 7, 2008 4:51 PM CST
Hi Abby
Thanks so much for the update. Sounds like the blood drive was a huge success! Tell your Mom I hope she is feeling better very soon. Thinking of you all daily.
Love,
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Friday, March 7, 2008 4:15 PM CST
Dear Anne
THANK YOU so much for sharing that important and amazing slide show with me about giving blood. I used to give blood 2 or 3 times a year, but when I was going through my divorce I stopped even doing that. I also know that 2 or 3 times a year is just not enough, I get that now. I saw children in that video that I love and got to know, like Connor, Kyle and of course Zach. Countless children and adults need life saving blood and blood transfusions just to live. Weeks ago Deb gave me the name of the blood center that she and Scott go to and now I use them as well. I plan to give my platelets often and you are right it is so very easy. Knowing Connor and Deb and Scott has already changed the way I think and now you are changing me for the better. I love all these kids and I don't want to just sit here and do nothing, I do want to help in tangible ways. So Anne again Thank You for sharing the video, it was important that I watched it.
I always keep you in my prayers and I just adored your son Zach. I wish I was reading when Sam was alive, wonderful and funny little boy he was and still is in heaven. I can see Sam, Zach, Connor Kyle and all the other kids playing together. My heart aches that they both are not still with you.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Thursday, March 6, 2008 7:53 PM CST
Anne,
I have been following the story of your beautiful family for the last few months. I am always so touched and encouraged by your words, your deep hope in the midst of pain, and your ability to experience joy and neither drown in sorrow nor ignore it.
I read a quote once that said "The glory of God is man fully alive." -St. Irenaeus. Although I did not have the privilege of meeting them, Sam's life and Zach's remind me of that quote--fully, brilliantly alive, and gracing the world around them with vibrant love, joy, and wisdom. If that's not the glory of God, I don't know what is. The impact of their fully lived lives on and on and on.
You said in your last post that if giving witness to Sam's life prompts just one person to donate blood, you would have found a rainbow. The montage and the story of both your boys prompted me to make an appointment--I haven't given blood for years but am going next week. Just wanted you to know.
Thank you for sharing your heart with such courage, vulnerability, and openness. You and your children impact more people than you know!
God bless you. You are in my prayers as you continue to remember and celebrate Sam.
Paige <plepley@gmail.com>
- Tuesday, March 4, 2008 5:24 PM CST
Anne,
Sam & Zach are always with me. Not a day goes by without thinking of them. Through you, they captured my heart and became part of me. The montage is incredible...just like the boys.
Love,
Krystena
http://www.caringbridge.org/ky/cadencarsen/index.htm <momof2withga2@yahoo.com>
- Tuesday, March 4, 2008 10:19 AM CST
dear anne,
woke early today-3am, thinking about karlee beth. i havent been here in a while. your words are so helpful to me. i am sorry for you. thank you for sharing.
love and hugs for you.
davonne atkins
moma to my angel karlee beth 11-14-02 8-10-04.
davonne atkins <kipatkins@aol.com>
seymour, tn - Tuesday, March 4, 2008 4:31 AM CST
Thinking of you and praying for you especially today Anne. We loved the tribute to Sam. Absolutely beautiful. You are amazing making it and we so thank you for including our special boy. Loved seeing Brody, Maya, and so many other kids we love in it.
Much love and prayers,
Deb, Scott and Connor, always in our hearts
Deb <sdcm@optonline.net>
- Monday, March 3, 2008 9:45 PM CST
It's so hard to believe that 3 years have gone by, but I imagine every single day has been painful for your family. Thanks for the beautiful pictures of Sam.
Julie
Waukesha, - Monday, March 3, 2008 9:38 PM CST
Anne, I just wanted you to know that I thought of you and Sam today. I broke my wrist otherwise I would write more.......I'll carry your boys forever in my heart and I always tell people about them and you. Thank you for continuing to share your thoughts, feelings, and your boys with us. Skye's Angel day is on the 18th........I know that they are forever watching over us till we see them again......much love, prayers, and hope...
Tamm www.caringbridge.org/oh/skyecoleycole <Tamm06@aol.com>
- Monday, March 3, 2008 8:10 PM CST
I already sent an email to you, Anne, but had to sign in to let you know how much your montage has brought tears to my eyes...Michaela also received IVIg many winter months during her last years with us. Without it, I don't think we would have had her as long as we did...Thinking of you...
Theresa <bookangel1993@yahoo.com>
- Monday, March 3, 2008 7:18 PM CST
I am sure every day without your beautiful boys seems like an eternity. Sam, Zach, and you have taught us so much...we thank you.
Kris, Paul, Cole, and Zack Vajda <pnkntwins@charter.net>
- Monday, March 3, 2008 6:37 PM CST
oh Anne!
Donna <donerleg1@yahoo.com>
Louisville, Ky USA - Monday, March 3, 2008 6:22 PM CST
Anne,
Thinking of you and Sam today...The montage is great, thanks for taking the time to do it. Raising awareness is so important. God bless you.
Oula Haddad
Oula Haddad <jhaddad1@yahoo.com>
silver spring, md usa - Monday, March 3, 2008 6:17 PM CST
I LOVE YOU Samuel Patrick. We're gonna eat french fries tonight just for YOU - nobody else!! I know you just LOVE that attention. Forever and for always baby....
Sam's Proud Lil Sis <writercrazy15@yahoo.com>
- Monday, March 3, 2008 6:14 PM CST
{{{{{Anne}}}}}}
Stephanie and Kboys
springboro, OH - Monday, March 3, 2008 5:56 PM CST
Anne,
I've been thinking of you and of precious Sam all day. I love the photos of him in the collage and at the beach, the vivid orange background and the wonderful video montage on "How to Save a Life" in his memory. The pictures of him are always so dear - my favorite will forever be the one of him signing "Birdy" - yet,they are each so precious sometimes I can't say for sure which is my favorite!
It's been a sunny, spring day here today and that's certainly how I think of Sam - with his sunny, bright smile and personality! You and your boys are in my thoughts each and every day. Thanks for giving so much to so many.
Much love,
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Monday, March 3, 2008 5:33 PM CST
Thinking of you on this day and always. You pictures are beautiful and so is you writing as always. I never met Sam but can only imagine how incrediable he was and always will be. Prayers with you every day. We are missing Zach as well.
Megan Reid <dmreid1994@sbcglobal.net>
Wheeling, - Monday, March 3, 2008 4:50 PM CST
Once again I think of Sam, on this sad day. But I also remember his great personality, joy in life, and how he made the most of the short time he was here. He did more in those 7 years than many do in a much longer lifetime, and touched so many by his courage and spirit. Hold all the memories in you heart, his presence remains as long as he is loved and remembered.
Pat Carriveau <pcarriveau@chw.org>
- Monday, March 3, 2008 2:52 PM CST
Anne
what a beautiful montage indeed. i have been following Zach's site for some time but have never signed the guestbook. You are one cathartic person! Your kids are lucky to have you as a mom and friend. Your words bring smiles and tears to me. I enjoy reading your posts and feel like i "know" Zach and Sam. I used to donate in college but have not in years, i will the next drive my community has if i am not sick!!! Thinking of you and your family on this difficult day. Hold in your hearts the great memories of your boys. Praying for peace and comfort to you and the girls and Lou.
A friend in Ohio
- Monday, March 3, 2008 2:35 PM CST
Anne,
I am thinking of you all today and remembering Sam. We will never forget Sam or Zach!!! And we are still here for you. You and your family are always in our hearts and prayers. We love you all!!!
Mimi Schwarz <mimischwarz@sbcglobal.net>
Cedarburg, WI - Monday, March 3, 2008 2:01 PM CST
Anne,
I think of you every day. I pray for you often, but today you are especially heavy on my heart.
I look at your beautiful children and am amazed by who they are and have been and will always be.
Know that we up top our house on the hill care.
Sh
Floyds Knobs, IN U*S*A! - Monday, March 3, 2008 1:52 PM CST
Wanted to leave you a note and let you know that you all are in our thoughts and prayers daily. Your writings are always amazing, but I have to admit you have always amazed me. Your kids are truly blessed to have such an incredible mom. You all have inspired me with hope as well as strength. Know that you all are thought of regularly.
Tammy Martin <dtmartin6281@sbcglobal.net/www.caringbridge.org/mi/martin>
- Monday, March 3, 2008 1:35 PM CST
Just wanted to stop by and say hello and let you know we are thinking of you today as we do everyday. Sam was such a special little boy and is missed by so many, I look forward to meeting him again one day. He was an amazing child in so many ways, due in large part to his wonderful parents. Thank you for continuing to share his spirit with us through your writing.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Monday, March 3, 2008 11:49 AM CST
Thinking of you all today. Love and Prayers
Bridget
Oconomowoc, WI - Monday, March 3, 2008 11:17 AM CST
Sam- It seems like only yesterday you were here laughing at the sock hop, making those that were around you smile when they saw you. It may be three years since your body failed and God welcomed you into heaven but I know that your spirit, your heart and your soul live on each day touching the lives of those who knew you and loved you. You continue to touch the lives of many whom you didn't know. In that way you are three years older, three years wiser and three years more missed. Thank you for continuing to inspire so many. My girls look at life so differently now, not because you are in heaven but because of the extraordinary way that you lived your life.
Cindy
Waukesha, - Monday, March 3, 2008 8:32 AM CST
Thinking of you all today, especially Sam.
Laura
Albuquerque, NM - Monday, March 3, 2008 7:43 AM CST
Ann, Thank you so much for your post today. Can we talk soon. I am so behind on my postings and emails that I don't even want to try to catch up. Yet, I feel so connected to you and your girls, and know that a phone conversation, possibly regularly could help us both. Too much to say. Would you please send me your email and/or your contact info. Evan's mom
Gina Cousineau <ginacinsc@aol.com>
San Clemente, CA United States - Monday, March 3, 2008 0:51 AM CST
Sammy baby, I miss you. You are ALWAYS in our hearts little brother!!!! Whether three years, ten years, forty years....we still think of you daily.
Brittany
- Monday, March 3, 2008 0:05 AM CST
Hi, Sam and Zach.
I hope Mamie has introduced you to her Grandma, if introductions are needed in Heaven. She joined you almost two weeks ago, while Mamie got there a few weeks after Sam. It probably seems silly to you that it would seem like such a long time to those of us who were left behind. We'll understand some day when it is our turn to see you again and see how short our separation really is compared to eternity where there is never a dull moment and certainly never any pain, fear, or sadness.
www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Sunday, March 2, 2008 10:48 PM CST
Hannah saw the website and wanted to find some fabric for the weaving. I will get it to you tonight or tomorrow at some point after the girls have had a chance to write something on it. As we were looking at fabric pieces Michaela was telling us how her teacher, Mrs. Bartol, talks about Zach and Sam. Especially when it comes to science she will share stories of something that Zach did. Holding you all up in prayer.
Cindy <Kurtcindyb@aol.com>
Waukesha, - Sunday, March 2, 2008 1:50 PM CST
Dearest Anne and family,
Our thoughts and prayers will be with you on monday as you think of you little angel Sam on the day of he`s passing three years ago. I never even knew of sam until after he`s death, but feel never the less inspired by he`s ability to laugh and share he`s smile and great sence of humor with all that he came in contact with..Do what you must on this day for your self and your family and don`t worry about what others think or say about how you treat this day. It is your to do with as you wish and always should be..I`ll be thinking of you amd your family and adding my prayers to he`s many colors of orange that he proudly wears in Heaven..I know Heaven is blessed to have him thought you`d rather have him here with you..Take care
always.and thanks again for sharing sam and zach with us.
Cousin Lynn and Family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Saturday, March 1, 2008 5:58 PM CST
Dear Anne
Love the orange background in memory of Sam. I did not read your journals when Sam was alive so unfortunately I did not get the chance to know him as well as Zach. Sam sounded like a cheerful, funny and sweet boy. I can appreciate your honesty that knowing he is in heaven does not really make it easier or your pain any less. You had so many hopes and dreams for Sam that was cut short and I am very sorry he is not with you. I wish I had the right words to comfort you, but I don't. The way somesome grieves is personal and different for everyone and I respect that. Today as you know is Connor's 9th Birthday and I have no words for Deb or Scott either. All I can do is pray and support both of you. I hope Connor's Book Fair is a complete success as you do as well. I also hope the blood drive in Zach's memory is a complete success as well. I am giving my platelets for the first time this Tuesday and plan on doing so on a regular basis.
Sending you all my prayers, love, support and understanding from a friend from NJ.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, March 1, 2008 4:54 PM CST
Oh, Ann! My favorite color is orange, too, and when I saw the background, my eyes widened and I had a huge smile on my face!!! Zach and I are "orange buddies" :) I am hoping to get a piece of fabric to you. Jacob uses Sam's blue chair everyday. (Being the rude mother that I am, I do not believe that I have ever properly thanked you for letting the girls bring that over to us~ THANK YOUUUUUUUUUUUUU!) What a blessing to have not only the chair, but also something of Sam's. I think of you often and you are one of my inspirations. I think you are amazing and are one hell of a dedicated Mommy :)
Lots of love always from Jen, Jeremy & Jacob Schultz
Jennifer Schultz <SCHULTZ@WI.RR.COM>
WAUKESHA, WI USA - Saturday, March 1, 2008 8:02 AM CST
I love the pictures of Sam, thanks for sharing them. You will be in my prayers Monday as you are each day.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Friday, February 29, 2008 4:43 PM CST
I absolutely LOVE the pictures you posted of Sam! That is the way I remember your perfect little boy. I'll have to think of something to add to his tapestry. You know I lack creative juices at times, but caffiene usually kicks my right brain into gear. I miss you and think of you often. I still can't believe Zach is gone. It's really hard to comprehend at times for me, and I cannot imagine how you must feel. Always remembering your boys with funny stories shared amongst my nurse friends and others who know how much Zach and Sam have meant to me. Love, KP
Kris Pallett <krayzee77@hotmail.com>
- Friday, February 29, 2008 4:16 PM CST
<3 <3 LOVE YOU ZACH AND SAM <3 <3
your Big Sis
- Friday, February 29, 2008 1:50 AM CST
3 months since Zach died and Monday is 3 years since Sam died how is it possible? Gosh, my heart breaks just thinking about that reality that you have to face everyday.
Keeping you, Abby, Brittany and Lou in prayer.
Cindy
Waukesha, - Wednesday, February 27, 2008 4:30 PM CST
Anne, thinking of you always, but especially on days like today. Marking those anniversaries is so painful, yet also so important. For us three months was so difficult. We are praying for you and holding you in our hearts. Much love and many prayers my friend,
Deb
Deb <sdcm@optonline.net>
- Wednesday, February 27, 2008 1:08 PM CST
Just dropped in to say "Hi"
Sheryl
www.caringbridge.org/visit/trinity
sheryl sumlin
atlanta, ga usa - Tuesday, February 26, 2008 11:11 PM CST
Glad to hear you all got home safe and sound. hope the hot sun warmed you and helped take away the chill of the longings for your sons,which I know will never go away but maybe it help alittle to be some place more nutural.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Tuesday, February 26, 2008 6:34 PM CST
You DESERVE to have someone setting food in front of you!!! You are amazing.
Jen, Jeremy & Jacob Schultz <Schultz@wi.rr.com>
Waukesha, WI USA - Tuesday, February 26, 2008 8:20 AM CST
Enjoy you fun in the sun! You are not missing anything here except cold snow and more snow! Thinking of you often,
Love,
Mindy
Mindy Welhouse <mwelhouse3@new.rr.com>
Kimberly, WI - Monday, February 25, 2008 6:32 PM CST
Hope you and Abby are having a relaxing time in the Florida sun. Thinking of you always.
Love,
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Monday, February 25, 2008 9:10 AM CST
Hi Gramma, Mom, Abby (3 generations of beautiful women!)!!!!
UHHHH I was just at the Gophers vs Badgers hockey game WHICH WE TIED (although we won last night- haha yeah, I chose the better school!) but since I went to that, I had to leave work a little early and come back later which is where I am now at 10:30 on a SATURDAY NIGHT!!! But I should get to leave in an hour and go back out!!!
Anyways, I was going to say that you really don't need to update the CaringBridge site to tell us how Florida was because we don't really want to hear about how sunny and hot and beautiful and non-snowy it was- that will ruin our day up here in the Midwest!!!! Just kidding! Hope you are all having fun without me! And Abby- NO I did not actually get frost bite lol! I was just exaggerating!
BRITTANY
FREEZING MINNEAPOLIS, - Saturday, February 23, 2008 10:33 PM CST
Anne,
While I don't post back often, maybe because I am not sure I will say the right things, I want you to know I am still checking in often and thinking of you and the boys. Hope you had a good break in Florida!
Sarah Pouzar <filta1@charter.net>
Hartford, wi USA - Friday, February 22, 2008 8:55 PM CST
Thank you for the Sam story at the end to have laughter, deep gut laughter at the end of deep tears.
May the sun of the south warm the bones of your body.
Sh <sdekold@mac.com>
Floyds Knobs, IN USA - Friday, February 22, 2008 6:40 PM CST
Anne,
As I read your journal entry, I thought, "What you went through with just packing for a trip was "normal""! And here you are with a different "normal" - one without both of your precious boys... I can't imagine what your heart must be feeling but i KNOW, like you, that God WILL see you through - in the midst of the overwhelming pain in your heart.
Praying for you today -
Pamela Matthews
www.caringbridge.org/tx/dinahmatthews
Pamela Matthews <gmatth1111@att.net>
Houston, TX - Friday, February 22, 2008 9:38 AM CST
It must feel very strange to just pack up and go. Always thinking of you Anne.
Donna <me@here.com>
Lou, KY USA - Thursday, February 21, 2008 7:26 PM CST
Hope you are enjoying Florida and you and Abby are getting in some sun and well deserved rest. I think of you often.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Thursday, February 21, 2008 7:10 PM CST
Dear Anne,
I am viewing this site for the first time-came across it while looking at info. for the Writers at the Beach, 2008 conference. Meribeth, and I see her face in yours, has made me know of you and your family, through her words-and in her longings. Now I see more clearly, through the photos and text, your courage, love and heartbreak shared so openly and honestly with the world. You have made all of this so much more real to me.
I can only try to express a deep sympathy to you and your family. Sincerely, Alice
Alice Morris
Lewes, De. - Thursday, February 21, 2008 11:32 AM CST
Dear Anne
I hope you enjoy your time in Florida. I hope the weather is warm and beautiful and you and your daughter get a chance to relax and enjoy each other. I remember your journals detailing the preparations of your last vacation with Zach and yes it is a lot of work. I know all the work was worth it just to take your children on vacation. I know you all had a great time and I am so glad that all went so well. The poem was very sad and it does seem like the clock should stop ticking when you lose a child, but life goes on. I am a single mother with 2 sons, ages 14 and 16 and I cannot imagine losing either one of them. They are my life and what makes my life mean something. They are healthy but I know I cannot take that for granted.
My heart is still so sad over Zach and I wish you could have taken this trip with Zach and for that matter with Sam as well. Deb wrote once about wishing for something does not make it happen and that is the truth. So I will keep praying for you Anne and will forever remember Zach and Sam.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Wednesday, February 20, 2008 11:42 AM CST
Anne, I have just read your journal from yesterday with great interest! I send good wishes to you and Abby for your vacation in Florida. What a fun time you will have!
Josey
Josephine Zell <josephinezell@sbcglobal.net>
Madison, WI US - Wednesday, February 20, 2008 8:01 AM CST
The Project DOCC panel presentation that is used during Grand Rounds at hospitals around the world has a point where a parent pauses to explain something to the effect of "if we could ensure that their lives were painfree, we would be glad for this lifestyle to go on forever." Lifestyle meaning all the STUFF that goes along with caring for a chronically ill or disabled child. As parents of children with special needs, the care can be hard work but is never a burden--rather an honor bestowed upon us and one we strive to live up to. I have always said that my goal is simply to be worthy of my children, and they are so precious that I am not sure I could ever be. I know that there are probably people who do not understand how you could be longing for the work, people who think that you must feel some relief now. My, how wrong they are!!! I know you would have shouldered infinitely more if you could have kept your boys with you. I wish they were here to go with you and Abby tomorrow.
And Laura is so right! While it may not be a whole scale stopping of time, there are plenty out there who have paused and will continue to pause to think of Zach and Sam. I am certainly one.
Love, Kathy
Kathy Corley www.caringbridge.org/tn/alexcorley <corleyfive@comcast.net>
Signal Mountain, TN - Tuesday, February 19, 2008 8:47 PM CST
I think it is safe to say that for many the world did pause when your beautiful boys were no longer here. Even though some did not have the rich blessing of Sam and Zach's vibrant presence in their life; those of us who did will continue to pause everyday when we think of them. They have touched so many lifes in ways that are unmeasurable, yet profound.
Everything that you do without your boys is a painful reminder that they are no longer here. Your courage and strength is evident as you take those difficult steps to live each day without them.
I hope that you have a great time in Florida.
Laura
Albuquerque, NM - Tuesday, February 19, 2008 5:19 PM CST
I think it is safe for me to say that for many of us who followed Zach (and that is an enormous amount of people), our world did pause/stop when Zachary died whether we knew him personally or not. His victories meant something to us and when he lost the fight I think we all lost some of the hope that inspires us in our own lives.
I am so sorry your boys won't be on the plane.
Safe travels for you and Abby.
Kris, Paul, Cole, and Zack Vajda <pnkntwins@charter.net>
- Tuesday, February 19, 2008 3:58 PM CST
Just wanted to let you know we are thinking about you and your family.Much prayers now and always..
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
duluth, mn usa - Tuesday, February 19, 2008 9:50 AM CST
Thinking about you this morning... and each and every day.
Keeping you in my prayers, and sending lots of hugs,
Heidi in Idaho
- Tuesday, February 19, 2008 8:14 AM CST
Just thinking of you tonight . . . wishing there was something I could do to make even one beat of your heart a little easier. Sending love -
Kathy
Kathy Corley www.caringbridge.org/tn/alexcorley <corleyfive@comcast.net>
Signal Mountain, TN - Monday, February 18, 2008 8:59 PM CST
Hello Anne,
I always leave this caringbridge site inspired. I check on you often and recently couldn't sleep and watched the one true videos with Zach, Sam, and your family for over an hour. I feel like I knew Zach and Sam and I guess I did...through your eyes and words. Seeing the videos brought back so many memories. Funny huh, but I have read stories about many of these pictures. Sam's first day of school, Zach's game room, piano recitals, etc. Thank you for giving us memories and making us think. I am reading a very inspiring book right now called "If I Get To Five" by Fred Epstein who is a well known pediatric neurosurgeon in New York. It is about the courage and strength that we adults can be taught by our children. Fred reminds me a lot of Peter in the care he provides to his patients...care from his heart even with the realization that loss would mean surrendering a piece of his heart also. I love you and think of you daily.
Kristi Cole <kristi3333@comcast.net>
Atlanta, GA USA - Sunday, February 17, 2008 9:43 AM CST
Dearest Anne,
Your right what is black and what is white? It`s in the mind of each of us and we all see it different.Your view is very astute .Your heart is so full of compassion for others and for your boys,and we thank you for all the time and energy you give to us to express all that you feel and all that your boys felt and gave to others by their very exsistence.I believe God gave you a wonderful gift your sons even with all their special needs because they as well as you taught us all how great but fragile life can be.And we should never cheat ourselves or our kids of all that we can give and share with them .You did everything possible to ensure your boys got the best of care and love,and though your heart is breaking right now you still did the best for them at all times,even knowing that you had to let them go.Not much comfort I know...Bless you and your family Our prayers are with you always.And your even allowed to be mad at God for not letting you keep you beloved boys.Zach and Sam Truely were your angels here and for always.Also your girls are blessed to have been given to you for God knew you would take care of them and love them as you did and still do your boys.Hope Florida help put at least the physical warmth of the sun upon you and yours and hope soon it will start to enter back into your whole being again.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Saturday, February 16, 2008 8:29 PM CST
Oh Anne,
I can only imagine the pain you feel after losing two such special boys..and your anger and sadness at the cruelty of it all. Lately I notice I feel worse than ever...and I have lost one child...My husband Robin often comments that he wonders what makes the heart ache, and how and why does it keep beating..after we feel like it is totally broken. We were with another family this past week..they will bury their second child at Salem on Tuesday. Another disease, another family dealing with loss and grief...this does not make sense to me.
Take care my friend. I hope you get some peace at times.
Love, Elizabeth
Elizabeth Westbrook <ewestbrook@wi.rr.com>
- Saturday, February 16, 2008 4:59 PM CST
Anne-
Thanks for the amazing insight. Thinking of you and continuing to pray for healing for your entire family.
Bridget
Oconomowoc, - Saturday, February 16, 2008 2:59 PM CST
Dear Anne
Loved your last post and all your insights. I do not understand your insights to the degree that Deb and Donna due and to tell you the truth I never what to understand it that well. I am so thankful that my children are healthy but my heart aches so much for you, Deb, Donna and all the other parents who have lost a child or children. We just lost Joel and I say we because all of us that invest in these kids life's fall in love with them. I read Zach's journey for I think a year before he died and more than you will ever know I was rooting for him. It hurt to know that he did not make it because he still had so much more to give. Anne your son was an amazing boy and even though I never met him, I still miss him. I am so glad for this CaringBridge site because the world does not seem so small. Keep writing, you always make me think. I hope you reach out to others that are where you are now, like Deb etc, they get it. Sending you my prayers and love.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, February 16, 2008 2:15 PM CST
Anne,
The first thing that struck me was that your post was done at 2:55PM on Friday exactly 60 weeks to the minute that Kyle's heart stopped beating. His heart that was so full of spirit and caring ceased beating. I often feel like you that the only way my heart continues to beat is through and because of Kyle and his amazing strength. I often wonder why I am still here when my heart is broken and smashed into a million pieces. I cried as I read your entry as it really hit home.
Know that we think of you every day.
Donna and ^Kyle^ Noble www.caringbridge.org/oh/kyle <donnanoble2001@yahoo.com>
Grove City, OH USA - Saturday, February 16, 2008 1:56 PM CST
Not a day goes by that we don't think of your beautiful boys, you, and your family. Your thoughts and insight are precious to all of us that read them..thank you.
Kris, Paul, Cole, and Zack Vajda <pnkntwins@charter.net>
- Saturday, February 16, 2008 11:15 AM CST
with love,
Sh
Floyds Knobs, IN USA - Saturday, February 16, 2008 8:21 AM CST
OHHHH (((Anne))) tears...how your broken heart keeps beating...Broken though it must be. God bless you...Such incredibly wonderful, brilliant, shinning, full of life beautiful hearts your dears sons have...
Love and prayers Anne...
LeeAnne
LeeAnne <allenleeannebye@aol.com>
NJ - Friday, February 15, 2008 9:15 PM CST
Anne, so much of what you said in your "black is white/white is black" post was so true also for our son. I cried and cried and cried. Today we lost another child to HLH... the "lightning strike" disease... I always call it that because I just can't believe he could have gotten that on TOP of mito. It was like getting struck with lightning... Our kids have such amazing hearts. Such an amazing ability to show us what life is really all about. I feel so incapable in comparison to my son, so weak and scared, where he was so strong and so brave. I'm so proud of him, as I know you are of your boys. I remind myself all the time, YOU CAN DO THIS... one step in front of the other. Just keep getting up every day. Keep on going. You can do it. If he can do what he did every day, I can do this. You are amazing Anne. Every time I read your posts I am filled with such hope. Thank you for giving me back hope.
God bless Anne,
Deb
Deb
- Friday, February 15, 2008 3:10 PM CST
Brittany is an amazing young woman who in the midst of her sadness and grief was able to reach out to Hannah and help her to feel better after Zach died. As we were driving home from Zach's memorial service Hannah was so upset that Zach was gone and she felt bad that she didn't spend more time with him. Trying to comfort her I told her that anyone who knew Zach was probably wishing for the same thing-everyone wanted more time with Zach. The next day there was an email to Hannah from Brittany thanking her for being a good friend to Zach and for all of the emails that Hannah would send to Zach. She told Hannah she could email her whenever she wanted to talk about Zach. What an amazing, wonderful, thoughtful young woman she is. Abby, Zach and Sam are blessed to have a big sister like Brittany.
Cindy
- Friday, February 15, 2008 2:48 PM CST
Alex told me yesterday that him and Zach were in the hospital last year on Valentine's Day together. He remembers the Darth Vador card and jolly ranchers Zach gave to him. We miss him and You. I want you to know there is not a day that goes by that we don't think of Zach and your family. Hoping today is peaceful.
Megan and Alex <dmreid1994@sbcglobal.net>
- Friday, February 15, 2008 8:05 AM CST
Thinking about you all and praying for you too.
Love,
Bonnie (www.caringbridge.org/az/bonniemarie) <bonniebelle@cox.net>
Mesa, Arizona USA - Thursday, February 14, 2008 8:01 PM CST
Dear Anne
I know this Valentine's Day is not the same without Zach and for that I am so sorry. I love the heartfelt words of Brittany's, what a special relationship they had. I loved all the funny stories that she told about Zach and why she admired her brother so much. My heart goes out to both his great sisters, I know they miss him so much. Zach was an amazing boy and I love learning more about him. I hope the blood drive in Zach's memory is a success, what a great thing people can do for others. Like you said Anne, giving blood is a gift of life for those in need. I am due to give blood on March 4th in my home town. Always thinking and praying for you and your girls.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Thursday, February 14, 2008 6:51 PM CST
To our collective sweetheart
We're all together and want to say we love you Anne. We are thinking about sweet little Callie and how precious she was and how much she taught all of us. We have been talking about what a good "Mommy" you were to her when she needed one the most. 16 years is a long time but she remains in our hearts and we have never been the same after watching your selfless love for her. To think you would repeat that experience - with your own children would have been unfathomable then and is equally so now. We know you are hurting today, remembering a life lost 16 yrs ago, remembering that Zach was here, talking Star Wars, a year ago, remembering Sam so excited for his school Valentines Day party. We're so sorry -so so sorry. We wish there was more we could do or say.
Jackie, Bill, Sherry
- Thursday, February 14, 2008 6:43 PM CST
I'm sending you a Valentine's Wish
Filled with Hugs and Kisses too.
Because there is a special place
Within my heart for you.
May this Valentine's Day be filled with love, understanding, and contentment as you journey through life with those you hold dear.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Thursday, February 14, 2008 11:05 AM CST
Love Brittany's speech. Truly beautiful. What a tribute to Zach, and to what a wonderful woman Brittany is. What a special bond they share... Love the pics...
Deb
Deb Millard <sdcm@optonline.net>
- Thursday, February 14, 2008 4:37 AM CST
Anne and Brittany,
What a beautiful tribute to Zach. Brittany - you are a talented writer, like your mother. We are fortunate that you both have the gift of words to share those intimate, personal moments with us. Thanks Anne for sharing. I hope that many people showed up to give blood today.
Laura
Albuquerque, NM - Wednesday, February 13, 2008 5:42 PM CST
I can still hear his laugh....and the way he says "Brit-tan-ny". Thanks for sharing Brittany's beautiful speech. She did such an incredible job, I admire her courage and strength.
Hope <hmpatchak@yahoo.com>
Milwaukee, - Wednesday, February 13, 2008 5:23 PM CST
PRAYING GOD SEND YOU COMFORT!!
WWW.CARINGBRIDGE.ORG/VISIT/JOEYNELSON
Tamara Nelson
Fair Grove, Mo USA - Wednesday, February 13, 2008 11:10 AM CST
I have really been praying hard for you guys. You are such a good mommy. Your boys were very loved and they knew it. I hate MITO!! God Bless You!!
Tamara(mommy to Joey age 8)MITO
Fair Grove, Mo USA - Wednesday, February 13, 2008 11:05 AM CST
Dear Anne,
I am mother on a mito list and saw a post of yours on bleeding disorders and mito, which brought me to your caringbridge site. I just want to say that your dedication to your children and family is inspirational. Your determination and hopefulness is amazing. I read through the history and I am so sorry for all your struggles and for your terrible losses. Your daughter's comment on laughter will stay with me as I fight mito disease in my family. I wish you peace and strength.
Take care,
Maura Buckley www.specialbrothers.com
Maura Buckley <maura@specialbrothers.com>
Lexington, MA USA - Tuesday, February 12, 2008 11:01 AM CST
Dear Anne,
I am mother on a mito list and saw a post of yours on bleeding disorders and mito, which brought me to your caringbridge site. I just want to say that your dedication to your children and family is inspirational. Your determination and hopefulness is amazing. I read through the history and I am so sorry for all your struggles and for your terrible losses. Your daughter's comment on laughter will stay with me as I fight mito disease in my family. I wish you peace and strength.
Take care,
Maura Buckley www.specialbrothers.com
Maura Buckley <maura@specialbrothers.com>
Lexington, MA USA - Tuesday, February 12, 2008 11:01 AM CST
Dear Anne: Wishing you warmth and comfort from the Florida sun. Just wanted to let you know I am thinking about you and always checking in to see how you are doing. I miss seeing you at work since I left Children's. Please know there are many of us keeping you and your wonderful family close to our hearts.
Linda Oleson <loleson@wi.rr.com>
New Berlin, WI - Monday, February 11, 2008 8:26 PM CST
hi! just stopping by...love your writing, it always makes me feel so good, you manage to make even small things so meaningful and beautiful.
Jackie K <aeonflux4444@yahoo.com>
brooklyn, ny - Sunday, February 10, 2008 1:02 AM CST
Dear Anne
I loved your letter reagarding Sam and how much he needed blood tranfusions just to live. You made Sam real to people and then made your point of how important and easy it is to give blood. I used to give blood about twice a year and then I stopped even doing that. I am set to give blood in March and I promise you it will become a regular part of my life. I want to give my platelets which I know you can give more often and it only takes about 2 hours or less. I know each time I do I will think of kids like Sam, Zach, Connor, Kyle, Evan and my other friend Lee. I will do it for all the kids that still need blood transfusions in order to live. Anne thank you in your pain to remind us of how much our blood can mean to so many children. I hope the blood drive in Zach's memory will be a complete success. I think of you so often Anne and lift you up in my prayers. I really love reading your posts, you are a great writer and your posts always make me think and feel things.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denvillle , NJ 07834 - Saturday, February 9, 2008 8:45 PM CST
From 97 to 99 I worked part time at the blood center making calls to match donors to patients. I know from talking to so many of those donors how happy it made them, not that someone was sick, but that they were being called to help. Most of the matches that I worked on were for children at Children's Hospital. I remember staying late many times to make those calls to find all the matches that were needed. I couldn't leave knowing we still needed donors. Donors would often ask if we knew or could tell them what the illness was that the person they were donating to was being treated for. When I told them it was for a child at Children's there was real concern and love for the recipient. I can say without a doubt in my mind that Zach and Sam were loved by their donors each and every time they got that call, each and every time they donated. I continue to be amazed with the realization that those two wonderful boys of yours impacted and continue to impact so many lives. So many lives touched. So much loved shared.
Cindy
Waukesha, - Saturday, February 9, 2008 7:19 PM CST
Hey Anne, until a few weeks ago I had never given blood. Years ago I was unable to. They would not take my blood because for quite awhile I needed blood products... IVIG. When you get blood products they won't let you donate for awhile after that. Then, I needed to be a continual caregiver to my son, who was in need of blood products...whole blood, platelets, FFP, IVIG and factors...etc.etc... So much he needed, so often he needed them to give him life. Just recently I was able to go and donate platelets. I can't even describe the meaningful purpose that gave to me, and also to my husband. It's one of the only things that has given us meaning since Connor went to heaven in September. Your essay about Sam's donors sure says it well. Keep on writing. You have such a gift with words, and for touching hearts. Also I can't tell you how much your Sammy reminds me of our son Connor, in so many ways... it warmed my heart.
God bless Anne.
Deb
www.caringbridge.org/visit/connorscott99
Deb Millard <sdcm@optonline.net>
- Saturday, February 9, 2008 10:19 AM CST
Anne and family
Glad you are going someplace warm with your girls etc.The sun always has a warming effect at least on the outside and hopefully soon on the inside too.Thanks for the story about sam`s blood it was very inspiring, and your view of it so true.take care say hi to your mom for me when you see her.
cousin Lynn and family
many prayers as always...
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Friday, February 8, 2008 6:44 AM CST
Thanks for your note of encouragement in Anna's guestbook. Staying busy around here (I know you know) but wanted you to know that I am still thinking of you daily. I am glad you posted your essay about Sam and his "blood" family again. I have always thought that was one of your best--truly inspired. I remember when you first wrote it, I felt so proud that we were friends!!!! (Then and a million times since.) Have fun with the girls this weekend. I am glad Brittany will be home!
Love,
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Thursday, February 7, 2008 10:19 PM CST
Thinking about you and wondering how you have been. Sounds like you are keeping active and I am sure you are looking forward to your older daughter's visit. Keep coming around ok...
www.caringbridge.org/ia/mitomomof9 (Asenath and Zipporrah)
Darla Klein <honeybear50317@msn.com>
Des Moines, Iowa USA - Wednesday, February 6, 2008 11:49 PM CST
(((Anne)))..had you on my mind tonight, said some extra prayers for you.... wishing there were more..but want you to know you are in my thoughts and prayers so very often..
Hugs,
LeeAnne
LeeAnne <allenleeannebye@aol.com>
NJ - Wednesday, February 6, 2008 8:55 PM CST
Oh Anne.
I pray the sun is there--and you and your girl enjoy it to the degree you are able.
And--yes, what a great gift our children give to us--when they love each other. . .
Your friend,
Sh
- Wednesday, February 6, 2008 6:38 PM CST
Hi Anne,
Just checking in on you. after watching the ABC news with Charlie Gibson about mito and Izzy, I thought of all the mito kids that have lost their fight.
I am sure giving the speech was hard. It is so hard to accept that there will never be any NEW stories. I am just thnakful I have so many "old" stories and memories to savor.
Know that you are never far from our thoughts and prayers.
Donna and ^Kyle^ Noble www.caringbridge.org/oh/kyle <donnanoble2001@yahoo.com>
Grove City, OH USA - Wednesday, February 6, 2008 3:34 PM CST
Hurray for Florida!! Tell your mom (and Frank) I said hello!! I sure do miss them. You two deserve a little get away. Miss you lots...Hopey P.S. I hope to see pictures soon of "the dress" for the dance!! I can only imagine what would have come out of Zach's mouth...
Hope <hmpatchak@yahoo.com>
Milwaukee, - Tuesday, February 5, 2008 2:11 PM CST
Your latest post reminded me of something Douglas Gresham wrote in his introduction to his stepfather C. S. Lewis's book "A Grief Observed":
"Jack refers to the fact that if he mentioned Mother, I would always seem to be embarassed as if he had said something obscene. He did not understand, which was very unusual for him. I was fourteen when Mother died and the product of almost seven years of British Preparatory School indoctrination. The lesson I was most strongly taught throughout that time was that the most shameful thing that could happen to me would be to be reduced to tears in public. British boys don't cry. But I knew that if Jack talked to me about Mother, I would weep uncontrollably and, worse still, so would he. This was the source of my embarassment. It took me almost thirty years to learn how to cry without feeling ashamed."
Bob McAdams
Lincoln Park, NJ USA - Tuesday, February 5, 2008 3:04 AM CST
I hope the sun shines for you in Florida...you deserve the warm light. My heart breaks for your girls....I know you cannot fix their pain but I imagine that you are incredible support for them. Safe travels to all of you in the upcoming days.
Kris, Paul, Cole, and Zack Vajda <pnkntwins@charter.net>
- Tuesday, February 5, 2008 0:31 AM CST
Thinking about you Anne. I was sharing at school on Saturday about how hard it is for me to understand why God would want our children more than we need to have them here with us on earth. It is so hard to understand that and wrap your mind around it even being a person of faith. I told my teacher how inadequate I feel in trying to put words to that as in my mind it makes no sense. My teacher told me that God weeps with us. Just a simple little phrase. The words were out of her mouth even before I think she had a chance to really think them--God weeps with us. That through His son Jesus he understands our pain and suffering. Now I can say that I never pictured God weeping, never really thought about it. Having thought about it the last few days though, it is comforting in some way to think that God may really understand that we don't like that our children aren't here and that he may weep. I pray for you all every day and in my Catholic tradition for St. Sam and St. Zach.
Cindy <Kurtcindyb@aol.com>
Waukesha, - Monday, February 4, 2008 8:20 PM CST
Hi Anne, just wanted you to know I am thinking of you today. You are on my heart often. I think of your beautiful boys. Their pictures are up on my fridge along with Connor, Kyle, Evan and so many other precious angels, so they come to mind often. Know you and your girls are in my prayers. Much love
Deb
Deb Millard <sdcm@optonline.net>
- Monday, February 4, 2008 6:31 AM CST
Dear Anne,
You are on my heart today. I want you to know that I am thinking of you and your beautiful family. May today you smile, just one smile that is yours, and may God ease your pain in some tiny way.
With love
MC <longfellowsmuse@aol.com>
- Saturday, February 2, 2008 2:32 PM CST
HI Anne
I may have never lost a child, never mine two, however your latest post I found so true. It does seem like life has no rules, what happens in our life's often do not make sense. I believe that you did everything in your power to help Zach have quality to his life. You knew all about Mito Disease already from Sam, but you did not let that diagnosis prevent you from doing everything possible to help Zach. I agree your son died way too young, that the disease he and Sam had is at this point incurable. Zach was so stong and had a great attitude which helped him live as well as he did. I have so much respect for how he handled his disease and how he decided to live his life. I also know that Zach and Sam did make a difference in this life for many people and continues to do so. The more I learn about your sons, the more I love them, the more I wish I had an opportunity to meet them. Zach was really an outstanding child and I know you are so proud of him. Anne you did a lot right in your life, you brought up 4 beautiful children and for that you have no regrets, dispite the heart ache you are feeling now. I do not write as beautifully as you do, like I said before your last post was great. Praying for you and your family often.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Friday, February 1, 2008 10:35 PM CST
Anne:
I come to your site and am amazed by the words you write. The feelings you invoke in me. And then I went to the link and when I heard Brittney speak of the family and being the most optimistic family; I thought of her family. Your kids are who they are because of the wonderful parents they have and they have observed you both and how you dealt with life and will continue to spread that love and knowledge to others. You have much to have bragging rights on all that your children offer you. From on earth and above they continue to amaze me.
Lisa Nerenhausen
mom to Leah
Lisa Nerenhausen <lnerenhausen@new.rr.com>
Appelton, WI USA - Friday, February 1, 2008 8:43 PM CST
Anne- I have had you on my mind. What a wonderful girl Brittany is reaching out to try to help others in the midst of everything that has been going on in your family. Sam, Zach, Abby and Brittany are all just simply amazing people. I was at a conference last week and the speaker was talking about grief and how for him it was like cutting off his arm. Yes, his arm would eventually heal, the bleeding would stop, but his arm was not going to grow back and so he could never be the same person he was before he lost his arm. Praying for a little healing for all of you.
Cindy <kurtcindyb@ao.com>
Waukesha, WI - Friday, February 1, 2008 7:11 PM CST
Dearest Anne,
Your latest entry was so fully of your pain and the flustration you feel about not having had control of anything in your life for quite a while.I`m glad you are able to express that,Just wish I could help some how.
There are no words that can comfort you I know ,but you and your ways of sharing your family`s sorry and joys have help many others I think view what they have and appreciate them more. Small comfort I know, but true never the less.Thank you all for letting us in..I pray for you all often .
cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Friday, February 1, 2008 6:32 PM CST
I was one of the medical students in Wednesday's lecture. It reminded me of something and later I realized I had read an article about your boys before Christmas. (which is how I got this website)
Thank you for Wednesday. We were talking and none of us can imagine having your grace and courage. So many of us said afterwards that you reminded us of why we wanted to be doctors, which gets lost in medical school sometimes. The lessons you shared, I will not ever forget. I want you to know that Zach and Sam and you have inspired me. Hearing the things that mattered to you really changed my perspective. I wish I could have shared MY chili recipe with Zach.
med student
Milwaukee, WI - Friday, February 1, 2008 8:29 AM CST
Anne, as always thinking of you, praying for you, remembering your precious boys. Letting you know that they are never forgotten. Holding all of you in my heart.
Deb
Deb Millard <sdcm@optonline.net>
- Friday, February 1, 2008 6:28 AM CST
How beautiful is selflessness, especially in the face of such a sunless world we live in. Brittany is certainly everything I'm sure you imagined she'd be the day she was born. Please give Brittany my love and birthday wishes.
Love,
Krystena (and boys) <momof2withga2@yahoo.com>
- Thursday, January 31, 2008 11:32 PM CST
Happy happy birthday, Brittany! I am delighted but not surprised by the article your mom posted. You truly do have a generous giving spirit. I am so honored to know you!
Love,
Kathy
Kathy Corley www.caringbridge.org/tn/alexcorley <corleyfive@comcast.net>
Signal Mountain, TN - Thursday, January 31, 2008 7:27 PM CST
Anne, I only just "met" your boys shortly before Zach died. Amazing, wonderful children come from amazing, wonderful parents. You are truly a gift to anyone who is lucky enough to find your CB site (and I am sure to anyone who knows you in real life). Thank you for sharing.
Sending much peace, Nena (Reese's mom)
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
Hermantown , MN 55811 - Thursday, January 31, 2008 12:05 AM CST
Anne, just wanted you to know you are thought of and prayed for today...everyday. I think of your boys and my boy and I wonder what they are doing. I think of them laughing, smiling and playing. I hope that in their hearts they know how very very much they are loved.
much love
Deb
Deb Millard <sdcm@optonline.net>
- Thursday, January 31, 2008 9:16 AM CST
I stopped by here the other day, in a mood evidently I was not aware of and cried and cried...cleared up my sinus infection :-)LOL
SO I try again tonight to finish reading previous post or two, and I get sucked into your insights again (no doesn't matter Dems or Reps-neither play by the rules) and well, what can I say to followup on Brittnay's effort?! Amazing to know your family.
kelly-ann <kalars69@yahoo.com>
Richfield, MN - Wednesday, January 30, 2008 11:26 PM CST
Oh Brittany. What a beautiful woman you have become.
Our love to your family.
The DeKolds
Floyds Knobs, IN USA - Wednesday, January 30, 2008 11:08 PM CST
Happy Birthday Brittany!! What an inspiration you are. Great article and story up there in MN. Anne, you have such amazing children and I am quite sure they learned much of it from you and the life that you lead. Being hopeful when it is the most difficult. Remembering Sam's sparkling eyes and Zach's witty remarks and Abby's beautiful music and Brittany's giving heart. You have children that must make your heart sing even during the dreary and cold days. Thinking of you always.
Meg <msteimle@wi.rr.com>
Wauwatosa, WI - Wednesday, January 30, 2008 8:53 PM CST
I'm not sure how I came upon your site, but what matters is that I'm here. I've spent the morning reading, wandering with you and your beautiful sons through your memories, laughing at the funny memories that you've given to me, and crying as I am now, your pain, my pain, how I wish that I had some way to help you, but all I have to give are tears. I don't know you, yet I know you in the deepest place in my heart. Thank you for sharing your amazing boys with me. Thank you for sharing your family and who you are with me as well. You have such a beautiful journal, you are a treasure, and your boys are as gold, precious and beautiful. No power within heaven or earth can ever change the love that exists between you and your boys. That is the wonder of love I guess, that it can never be extinguished from whatever burns in us, whatever keeps us breathing when we are just too tired to go on. The veil between what is and what will be is bridged by love, always love, always there, and death has no rights in that territory, no claim to our soul.
With love, sorrow, and joy in who your boys were and continue to be,
Maureen Camfield
NH
Maureen Camfield <longfellowsmuse@aol.com>
Mont Vernon, NH USA - Wednesday, January 30, 2008 1:33 PM CST
Wow Anne, I love what you wrote about the "rules of life". They rang amazingly true for me, as what you write so often does. Thank you also for sharing about Brittany. I have been able to get to know her a little bit and boy what a privilege that has been. You have amazing children! God bless Anne,
Deb
Deb Millard <sdcm@optonline.net>
- Wednesday, January 30, 2008 11:04 AM CST
Anne-
Once again I marvel at your children. You and Lou have raised some amazing young people. Happy Birthday to Brittany.
Love and Prayers,
Bridget Bruno
Oconomowoc, - Wednesday, January 30, 2008 10:01 AM CST
Anne,
I was thinking of you this morning and wanted to stop by and let you know that your cared about.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Tuesday, January 29, 2008 12:04 AM CST
(((Anne)))) and prayers... it is good to hear from you. Praying your days and nights are not too difficult. Thanks for sharing your precious family with us, your courage, your sincerity, your precious children and devotion..it all rings through Anne.
God Bless you all..Love and prayers,
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Tuesday, January 29, 2008 8:15 AM CST
Hi Anne, Thinking of you. I had a dream about Sam and Zach last night. In the dream, Amanda and I were talking to the boys, along with Dr. Havens. I could hear Sammy's voice ringing in my ears throughout the dream and even as I was starting to wake up. Zach was very quiet, but maybe because Sammy wasn't letting him get a word in edgewise. In my dream, after we talked with them, I came to see you to tell you I got to see and hear your boys. I kept thinking today as I was awake that we had discussed this already. Not sure how or why I had this dream that felt so real, but I was so happy to hear from my little buddies. You are all so close in my heart and mind, although we may not see eachother the way we used to. I feel privledged to have such good memories of the boys. Love, KP
Kris Pallett <krayzee77@hotmail.com>
- Monday, January 28, 2008 7:44 PM CST
Anne, We love the pic of the kids on the homepage. LOVE IT! Just to let you know I was thinking about you a lot yesterday. Anniversaries mean a lot to us, and I'm sure also to you. We were thinking of you with it being 2 months. God bless, and many prayers sent your way. Much love,
Deb, Scott, and Connor, always in our hearts
Millards <sdcm@optonline.net>
- Monday, January 28, 2008 6:09 AM CST
Praying for you every day!!
Tamara(Joey's mom, unspecific Mito) <sdj02@access4less.net>
- Saturday, January 26, 2008 7:24 PM CST
Loved the emails between Zach and Grandma, they show such love and compassion. I continue to marval at your strength-
prayers
Jayme <january11292@yahoo.com>
Walton, KY United States - Saturday, January 26, 2008 2:50 PM CST
Thanks for continuing to share Zach and Sam's stories. I loved reading the communication between Zach and his grandma. I think March is the perfect month to donate some blood!
Julie T.
Waukesha, - Saturday, January 26, 2008 10:47 AM CST
Hi Anne, I just wanted to let you know I think about you and your family all the time. We still have Zach's picture hanging on our wall at work. No one seems to want to take it down. Debbie and I still feel like we're forgetting something every week, we should be getting Zach and Sam's order ready. I miss talking to you, miss reading about the boys. I miss them and I was so peripheral in your lives, it's hard to imagine what you are feeling. Thank you for continuing to write, to share your feelings. There is no way Zach or Sam will ever be forgotten. They have touched so many lives.
Barb Bilicki <frabe3@aol.com>
New Berlin, Wi USA - Friday, January 25, 2008 9:33 PM CST
I LOVED IT--and your stature with me has grown all the more--
another anti meatloaf person.
It is beautiful these words of Zach.
Bright is right.
Sh
Floyds Knobs, IN USA - Friday, January 25, 2008 0:57 AM CST
Dear Anne
I so respect the fact that you always tried to show your boys as just children without showing them with their limitations. I however appreciate you sharing the pictures of Zach in the ICU, they do show a mother who does respect her son and they do honor his memory. I love his PJ's that people made him, that was a great thing that you asked talented friends to do for Zach. You already knew how he hated the hospital gowns. I do believe that Zach did know that you were beside him, reading to him, talking to him and just loving him. Anne I really love learning more about Zach, however it really makes me realize I missed out by not meeting him in person. Zach's letters to his grandma were beautiful, funny and so sweet. Thanks so much for sharing so much of your heart with us and I hope the blood drive is a complete success. You are right, each of us who are healthy like myself can give blood to all those who need it. Sending you all my prayers and love.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Thursday, January 24, 2008 8:02 PM CST
Hi Anne,
I heard Zach's voice when I read the emails. They are so totally Zach and it made me laugh. I was so happy to hear his voice. I too am NOT a meatloaf fan. Bad experiences as a kid. Zach would have cracked up at my issue and the reason I can't eat meatloaf to this day. Love the pictures. Amanda's right, very stylish scrubs! Thanks for sharing. Love you!
Kaf <kfrontier@chw.org>
- Thursday, January 24, 2008 5:30 PM CST
Hi Anne
You are amazing as to your ability to express your feelings. thanks for shaaring them. I'm glad you got the report a little at a time. It was horrible to read ours alone and all at one time......threre was far too much to absorb.
Judy
Judy C. <cheeks7514@!aol.com>
Danville, Pa. USA - Wednesday, January 23, 2008 6:47 PM CST
Hey Anne
I like the pics of zach. I do like the stylish scrubs someone sent to him. I am sorry things are so difficult. I know the autopsy results will be exceptionally difficult but like you said will be the right thing in the end
Thinking of you and praying for you
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
phoenixville, PA - Wednesday, January 23, 2008 5:49 PM CST
Love the picture of your four kids and the ones of Zach in ICU-you can see his spirit for life shining through his eyes. Praying for you all.
Cindy <kurtcindyb@aol.com>
Waukesha, WI 53188 - Wednesday, January 23, 2008 5:11 PM CST
Hi Anne!
I like the pictures you posted of Zach in the ICU - stylish scrubs on!! I'm glad his nose wasn't covered up :) I love that you have a picture with his eyes open - we knew he was awake, aware, and understanding us. Those were definately special times spent with Zach in the ICU and I am so grateful to have had that time with Zach. Thank you so much for continuing to share stories about the boys!!!
Love,
Amanda
Amanda Glorioso <aglorioso@chw.org>
- Wednesday, January 23, 2008 3:43 PM CST
Anne, thank you for sharing so much with us all. Your story and insight offer so much to everyone. Even through your pain you are touching others by sharing even your smallest details and thoughts. You continue to move forward (no matter the pace), and that is truely inspiring. The emails are priceless. They show so much of Zach, his compassion for others (a trait I am certain he gets from you). I have always loved the way you have portrayed your family through this site, including the new pictures of Zach. They are beautiful.
Angela Zutz <angiern5612@charter.net>
Plover (formerly Manitowoc), WI US - Wednesday, January 23, 2008 11:06 AM CST
Anne,
Thank you for sharing the photos from ICU. So precious... I love the one with Zach and Brittany, such love is so important and so dear.
And thank you also for sharing the email exchange... I so appreciate being able to continue hearing about your family, your boys, relationships amongst you all, you are a part of our hearts and our lives, always.
Hugs,
Heidi and the Idaho boys
- Wednesday, January 23, 2008 10:20 AM CST
Dearest Anne,
I too was very much aware of Zach~s PaPa being sick in june.
I talked to your mother and your Aunt Judy by phone at that time to keep track of how he was doing. I`ve always keep in touch with my Uncle Wayne and Aunt Mary Bless her soul,and was very upset that he had hurt himself and was so glad he was able to recover,and he says he still sings.
Your had a great Aunt Mamie who was also sick at this time.
She was married to your grandmother`s Brother (Robert Loubek)I was very close to her, cancer took her away july 22,07 which was kind of strange since my mother past away in 1983 on july 23 of cancer as did your grandma mary in dec 1998 afew months after my father did in Oct 1998. Enough of that .It is great to read the e-mails from zach to he`s PaPa and grandmother.Sorry I like meatloaf.
Take care and our prayers are with you. An I can truly say I felt as you did that zach understood you and could hear you by the way you said he reacted to your voice.That is one conforting thing you can keep always in your heart,cause everything else was out of your hands to control.
Love cousin Lynn and family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Wednesday, January 23, 2008 10:13 AM CST
I loved reading the e-mail exchange...from everything you share it seems like Zach had wit and wisdom much beyond his years. I am so glad you got confirmation that his brain was intact...I know he must of cherished that one-on-one time with his Mom because he loved you so much. Thanks again for sharing his life with us.
Kris, Paul, Cole, and Zack Vajda <pnkntwins@charter.net>
- Wednesday, January 23, 2008 2:18 AM CST
Thanks for sharing the email exchange between Zach and his grandma. It was nice to see and experience this side of Zach and I love hearing about him and Sam. You do such a wonderful job sharing all of who they are.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Tuesday, January 22, 2008 10:30 PM CST
how precious
donna
lou, ky usa - Tuesday, January 22, 2008 6:21 PM CST
Anne, I didn't think there was a food that Zach didn't like! With all of his weird food concoctions, I think meatloaf just might be too simple. :)
Thinking of you,
Krystena <momof2withga2@yahoo.com>
- Tuesday, January 22, 2008 4:29 PM CST
Love reading that exchange--it does reveal so much about Zach.
Kathy
Kathy Corley www.caringbridge.org/tn/alexcorley <corleyfive@comcast.net>
Signal Mountain, TN - Tuesday, January 22, 2008 9:55 AM CST
HI ANNE, THANK YOU FOR POSTING THE EMAILS BETWEEN ZACH AND YOUR MOM WHEN SHE WAS IN AZ. JUST GREAT.( I NEVER ENJOYED MEATLOAF EITHER.)GOD BLESS YOU AND YOUR BEAUTIFUL FAMILY.
LOVE FRANCIS
FRANCIS NATOLI <FRANCISNAT@AOL.COM>
NAPLES, FL USA - Tuesday, January 22, 2008 4:00 AM CST
Dearest Anne and family,
It`s so sad to read your comments now for You bear your soul for all to see,but this is a good thing.For many of us can not express this things so clearly and wish we could.I ran across this prose afew years back and thought it might comfort you some how.
"Toll Gates TO Triumph"
We can not understand another`s anguish
unless our lives have known the pangs of pain;
We do not dread the vagueness of the future
unless our lives have held but little gain.
We constantly rebel against affliction,
But if it did not come, we`d never grow;
Compassion for mankind and helping others
Would be values that we could never know.
The singing heart that still remains unbroken
can never know the paralyzing blow
That one can feel whose love is killed forever.
Like lilies in a sudden springtime snow.
We walk the earth and seek the paths of pleasure
But blessed are the ones who know of loss,
For even Christ could only enter Heaven
By carrying an agonizing cross.
Author Georgia Radcliffe
Take care keep writing and speaking your thoughts out loud
for with these ways you`ll find more peace and the ability to cope better.
Cousin Lynn and Family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Monday, January 21, 2008 5:31 PM CST
Dear Anne
I thought my last post went through, but I don't see it.I just wanted you to know that you are in my thoughts and prayers. I hope the insensitive phone calls will stop, thats the last thing you need to deal with. It is strange that when someone dies, other service people are not notified. I am also glad that you find the phsicians are the ones that do not try to avoid you, I quess it is because they are used to death. It must be hard for doctors not to have all the answers to help their patients. I am sure Zach and Sam's doctors did the best they could with the progressive disease your boys had. I so admire Zach for his decision to make the most out of his life dispite his disease. I admire Zach for always keeping his brother's memory alive in his heart and in others. I also admire Zach for trying to make other people comfortable when maybe they were not at first. Zach was an amazing boy. Zach and Sam will never be forgotten by those who knew them personally or by those who knew them through this CB site.
Anne I hope you get some sleep and that work is going okay. Sending you all my prayers and love from a friend in NJ.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Sunday, January 20, 2008 8:38 PM CST
Anne,
I was sorry to see you had "a" sleepless night. I hope the next few nights you can get some rest. I agree with you that it is hard to experience the shortcomings of the system when it involves a mistaken belief that our loved one is still alive, especially when we are still working within our own mind to completely accept the reality that they are truly gone. However, it is uplifting to read that you were treated compassionately by the physicians who cared for Zach. I hope in the days that follow you will not have to deal with situations that compound your loss(es). Wishing you comfort, covering you in prayers -
Mary and Bill , parents of Jason Fowler from the U of M <bfowler40@comcast.net>
Oakdale, MN USA - Sunday, January 20, 2008 7:48 PM CST
Anne-
I love your entry- I can relate to it all. All too well. I hate it for you- I hate the sleazy sales people, the idiotic way hospitals are designed, the reminder calls... all of it. I remember our HOME NURSE agency calling TWICE to check on Morgan- I already told her once that Morgan had died and then again, the 2nd time- I was ready to scream at her. I told her the notebook was on the front porch and feel free to pick it up. It just hurts.
I know you miss Sam and Zach. I miss the stories. I have loved visiting their site and seeing their precious pictures. I love the current one on the front page- Sam is SO serious mixing the cake! I will miss all of the cooking stories, but I know you will keep telling all the funny recipes and memories about past cuisines!
Sending you all lots of love. We actually have had snow in Atlanta twice this week!
Love,
Leslie
Leslie Reynolds <rey7@bellsouth.net>
Roswell, GA - Saturday, January 19, 2008 8:43 PM CST
Just thinking of you! And yes you are right it is really cold here! Sorry about your sleeplessness, unfortunetly I am not the right person to help you on that matter. I love the videos of the kids. Beautiful as always and touching--Zach and Sam will never be forgotten.
Love,
Mindy
Mindy Welhouse <mwelhouse3@new.rr.com>
Kimberly, WI - Saturday, January 19, 2008 4:34 PM CST
Anne,
I love your entries. I agree with you about the hospital staff, and places to go to avoid people. Whenever I get bad news about Shelby or she is so sick I am at the brink of tears, I feel like I am on a stage for everyone to see. I just want to thank you so much for writing on Shelby's carepage. It meant more to me than you know. You have a special place in my heart. You are in my thoughts and prayers every day. Thank you for sharing your thoughts with us.
Much love,
Lori/cp/shelbywood
Lori Wood <woodyou@comcast.net>
clarkston, MI usa - Saturday, January 19, 2008 12:44 AM CST
Loving you praying for you and asking for some rest if that is possible.
donna
lou, ky usa - Saturday, January 19, 2008 8:12 AM CST
Anne, thinking of you, praying for you, holding you in my heart today,
God bless you and keep you,
Deb
Deb Millard <sdcm@optonline.net>
- Saturday, January 19, 2008 5:56 AM CST
I have been thinking of you guys a lot lately we were in for 2 weeks and missing you a ton. We will be in clinic in few weeks Alex and I will stop by to say hi. Your thoughts make perfect since......
Megan Reid <dmreid1994@sbcglobal.net>
- Friday, January 18, 2008 11:15 PM CST
Nope, I never got a speeding ticket. And quite frankly, I'm in shock that you have. You? A speeding ticket?
Thankfully, I'm not in range for the smack on the arm right now.
Billy
- Friday, January 18, 2008 10:19 PM CST
Hi Anne,
Just wanted to let you know that you are continously in my thoughts and prayers and that I am so sorry and heartbroken for all the pain you are having to endure.
Brenda Prindle <blprindle@sbcglobal.net>
Little Chute, WI - Friday, January 18, 2008 2:30 PM CST
(((Anne))) your ponderings make so much sense..if its any consolation which I doubt..but...I wish you sleep, rest and a reprieve from the insensitive or just plain ignorant of this world... Hugs and prayers Anne...
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Friday, January 18, 2008 1:04 PM CST
Well the boys have all the eloquent words this week so I'll leave it at I love you and hurt for you
J
- Friday, January 18, 2008 10:28 AM CST
Oh Hon,
I hear your pain,anger and frustration. The world is so different after your child dies..so cold, so stupid sometimes. I am sorry you are getting pictures of gravestones..that is sick!! I know when we picked out Laura's gravestone, we got the name from a trusted friend in the funeral business. Because I didn't want to feel "taken" by some dumb business that would benefit from her death. Another reality that is so angering...Yes, that isn't really a word..oh well.
I know that in time, you will have the perfect stone for the boys..whether it is one or two...however you want it..but it is not for those companies to decide!!
After Laura died, and to this day...we get mailings from the Association of the Blind...of books..now I just know by the size and feel what it is...and I want to scream...because it shows that they think life is fine, she is here. But, that is not reality!!! SO, I hear you!!
I wish I could make you feel better, but loss is so deep, so personal, so, just know I hold you close in thought and prayer..I will be in touch soon.
Bless you, Elizabeth
Elizabeth Westbrook <ewestbrook@wi.rr.com>
- Friday, January 18, 2008 10:07 AM CST
Thinking of you always. It's my turn to wish I was closer so I could come. I know I couldn't really help, but I could be with you.
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Friday, January 18, 2008 6:58 AM CST
You always give us so much to think about....thanks for sharing your thoughts. I pray good sleep comes to you. Thinking of your boys and all of you often,
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Friday, January 18, 2008 4:03 AM CST
Anne, just wanted you to know I am thinking of you and praying for you today. with much love,
Deb
Deb Millard <sdcm@optonline.net>
- Thursday, January 17, 2008 5:42 AM CST
There are two ways of meeting difficulties: you alter the difficulties, or you alter yourself to meet them.
- Phyllis Battome
Thinking of you and sending prayers. I cannot imagine loosing a child (although I seem to think about it daily lately) and I am always in awe of your profound writing and way with words.
hugs,
Sharon
www.caringbridge.org/visit/claytonandcole
www.caringbridge.org/visit/jakeski
Sharon <lawblond7@aol.com>
Waldrof, MD - Wednesday, January 16, 2008 7:35 PM CST
Dear Ann,
I have been reading your story for several months and I have not written back for some time. Please know that I have learned so much from your very personal story. My kids are grown and I thank God every day for them. I can't begin to imagine your pain. I love all of the pictures and the incredible art work that Zach created. I never met him, but I have heard from others that he was always so kind and polite. Your family pictures display very beautiful children. One would never know how sick Zach and Sam were. Ann, you and your family remain in my prayers always. I hope to meet you some day, to give you a hug, as I don't know what else I can do for you. I will look at the stars at night and think about your angels. They will be my angels, too. God be with you and your family. Kathleen Turner
Kathleen Turner <kturner28@wi.rr.com>
Menomonee Falls, WI USA - Wednesday, January 16, 2008 5:29 PM CST
Anne, My family loved looking at Zachary's artwork. One question. Where did he get that talent? You know we all think you're perfect at just about everything but it makes me laugh that you have such an artist for a son. I'm not picking on you but maybe it will give you a smile to remember how much fun we all had with the pictures you drew. You knew your A & P better than anyone but the pictures were hysterical.
No matter who you become, I hope you never lose that shining smile and laughter and ability to laugh at yourself....I know those smiles may be hard right now and laughter near impossible. Remember, though, how many people you have touched with that dazzling smile and laughter. In that way I am assured Zach and Sam will live on. I never had the privilege of meeting them (except Zach as a baby) but people write of their smiles and laughter frequently in your guestbook and I can clearly see it had the impact of their Mom's laughter and smiles. That is definitely a gift your sons inherited from their Mama and the sound of that never leaves a person.
You know I am not like Bill and Jack and not one to talk like this but truly I think smiles and laughter like your boys have, and you, light the world. Even now, not having seen you for ages, the thought of it makes me smile. That is an enduring gift you have given your sons and they in turn have left with all that knew them and it will have a ripple effect....so that I can easily imagine the whole world eventually looking up at the stars, hearing those stars laugh and in turn laughing with them and all those around us, even during the darkest nights. Your sons endure because of who they are, but also because of all their mother gave to them.
Mike and family
COLD Alaska, - Wednesday, January 16, 2008 10:05 AM CST
Hi Anne, I've read that before, I think I saw it on Kyle's memorial page. It is excellent, so well stating what it's like, how relationships change. It is such a challenging time, and it's so hard for others, even very well meaning friends to walk this road with us. I hold you in my heart and in my prayers each day.
Much love
Deb
Deb Millard <sdcm@optonline.net>
- Wednesday, January 16, 2008 6:14 AM CST
I've been thinking of you hour by hour. I have no way of understanding what you feel right now but I am here. We've been to the woods before...and I will go again with you Anne. I believe in you and have seen enough to know that your boys' ability to "drive life into a corner, not to practice resignation, to know it by experience and to give a true account" comes from their mother. You may not feel that strength today Anna, but you will...it is as much a part of you as your green eyes and your beating heart. Little by little you will find that part of yourself again. No matter who you end up being, (and the gap is right - how could you be anything but changed by your boys' deaths), but no matter who you become, I know you will still have have the strength to go back to the woods and life deliberately, honoring your boys and your beautiful girls. It is too deeply intrenched in your soul to vanish. It will take time -maybe months and maybe years. But I believe in you. I am here always and will call as soon as this nutso schedule ends. Or feel free to page me if you are awake in the middle of the night. Jackie sends her love!
Bill
- Wednesday, January 16, 2008 0:41 AM CST
My heart goes out to you. I know what it is like to lose a child but I do not know what it is to lose two. It must be double the pain. I loved watching your videos and can tell that your two boys were very close. They are now in heaven running around and having a blast. But we are here left to grieve and that is the hardest thing to deal with. I lost my son to Neuroblastoma , childhood cancer , in April 2007. He was 19months. old. It is hard because people don't understand the pain you are in and think it will just go away. Just know that you are in my prayers and I send a big hug to you for comfort. I pray that you will find peace. God Bless, Danielle McCormick (Angel Ryan's mom)
Danielle McCormick <djmccorm2@msn.com>
- Tuesday, January 15, 2008 11:58 PM CST
Anne-
Thanks for all you share. You are so giving of yourself and always have been. Thanks for the sharing the story. I can't even begin to imagine what you are going through. I think about you often. Ellyn
Ellyn <ellynheicher@sbcglobal.net>
Waukesha, WI - Tuesday, January 15, 2008 8:07 PM CST
The Gap--right from the title it tells it like I imagine it to be for all those families who are trying to live in a world that their children are no longer physically living in. Thinking about all of you!!
Cindy <kurtcindyb@aol.com>
Waukesha, - Tuesday, January 15, 2008 6:28 PM CST
Hi Anne,
Reading the Gap, and watching Zach's art montage made me smile and cry...He reminds me so much of my own daughter. I am amazed at the strength you have to even put it all together!! My daughters things are in tubs, in a storage area...I try to do something with her things, and I feel like I am being tortured...even after two years..so I congratulate you..between the blood drive and entering amazing things in the journal...wow!! I am sure Zach would paint a picture of you as "Wonder Woman" I am proud of you!!
Laura received blood and platlets many times over her treatment protocol..and as a nurse I see the need daily at work...you are doing a good thing. I would watch the blood going into her and think of the person who sat and took the time to GIVE the GIFT!!!
The Gap is amazing...I want to type it up and send it to everyone I know, but maybe I will just post it on Laura's site like you did. It makes such perfect sense.
I also understand what you say about grief never sleeping..ever since Laura got diagnosed (August 2001) until now, I felt grief..in all the times her friends were off having fun, and she was in pain, sick and then blind, because of the tumor location..I was grieving..my once perfectly clean house, organized life...took a much different ebb and flow...now I just do what I want...and sometimes that isn't much..hahaha ( I know you understand that)
Thanks for being REAL, I appreciate it!!
Love, Elizabeth
Elizabeth Westbrook <ewestbrook@wi.rr.com>
- Tuesday, January 15, 2008 10:01 AM CST
Anne:
The author is right, we who have not lost children will never know the pain, it's unimaginable. Often times, it's hard for people to know what to do or say. I hope they read The Gap. Perhaps it will help. I hope that you and I will be able to share Sam and Zach stories for a long time to come.
Karen S <kschaefer2@sbcglobal.net>
Brookfield, WI - Tuesday, January 15, 2008 8:25 AM CST
Thanks for posting the video with all of Zach's art! I loved watching it and seeing all the stuff he made! I was cleaning out my desk at home and found the valentine he made last year - so sweet that he gave everyone valentines!! I hope you're feeling better soon!! Talk to you later!
love,
Amanda
Amanda Glorioso <aglorioso@chw.org>
- Monday, January 14, 2008 6:29 PM CST
Thinking of you. Sorry to hear you're under the weather, probably a little bug combined with winteritis. Thank's for sharing Zach's art. Always such a boy with his favorite superheros and such. Love, KP
Kris Pallett
- Monday, January 14, 2008 0:41 AM CST
Thank you for the beautiful artwork. It brings me close to Zachary even though I never met him. Also, my sister Pamela received platelets and plasma many times as an adult,for plasma cell leukemia during her three-year illness.
Josephine Zell <josephinezell@sbcglobal.net>
Madison, WI USA - Saturday, January 12, 2008 1:16 PM CST
I love Zach art.
Sh
Floyds Knobs, IN USA - Saturday, January 12, 2008 3:27 AM CST
Oh Anne, I LOVE the artwork Zach did. He was so very talented. Sometimes I think the beautiful sunsets and such are artwork done by our kids up in heaven! The rainbows too!!! I think the blood donation idea is wonderful!
with much love
Deb, Scott, and Connor, always in our hearts
Deb Millard <sdcm@optonline.net>
- Friday, January 11, 2008 4:37 PM CST
Your videos left me in tears. How I wish that I could have had more pictures or drawings, or writings of Matthew's. But wait till we both see their best work, when we join our boys in heaven one day.
Darla, Angel Matt's Mom 7-3-90 - 4-22-04, www.caringbridge.org/in/angelbarneyboo <dlindenmayer2@aol.com>
VA - Thursday, January 10, 2008 8:29 PM CST
Thinking of you. Wishing you could take all of us to work with you (might be a crowded elevator)...Thinking of Zach and Sam daily
Anne R <areckling@aol.com>
- Wednesday, January 9, 2008 2:01 PM CST
Thank you for sharing is art work. What beautiful and priceless treasures he gave you.
Kris, Paul, Cole, and Zack Vajda <pnkntwins@charter.net>
- Wednesday, January 9, 2008 1:43 PM CST
Anne,
Thank you so much for sharing Zach's artwork; it's so amazing. Your family's is so talented, whether it's artwork or writing.
Oula
Oula Haddad <jhaddad1@yahoo.com>
Silver Spring, md usa - Wednesday, January 9, 2008 11:36 AM CST
Anne: What a wonderful tribute to Zach. Thank you for sharing his talents with us. You must be very proud!
Linda <loleson@chw.org>
- Wednesday, January 9, 2008 10:35 AM CST
What a truly wonderful tribute to a very talented young man!!
Bridget
Oconomowoc, - Wednesday, January 9, 2008 8:52 AM CST
Truly amazing! Thanks for sharing.
Karen <kschaefer2@sbcglobal.net>
Brookfield, WI - Wednesday, January 9, 2008 8:03 AM CST
What a beautiful display! So much precious talent. You can tell by looking at each piece that he put all of himself into what he was working on. How wonderful that he knew what his gifts were and he used them to his fullest ability. He was wise beyond his years!
Cindy <cbergland@tds.net>
Waukesha, - Wednesday, January 9, 2008 7:38 AM CST
Anne -
Zach's display is fantastic! I always told him that his self portrait made him look like a Jedi - he had to have Star Wars on his brain during that time!
Nancy Dexter - Schabow <ndexschabow@hotmail.com>
Hartland, WI USA - Wednesday, January 9, 2008 0:48 AM CST
Thank you so much for sharing from the one-and-only. Such a talented artiste. Know we are thinking of you daily Anne and are proud for every minute you get through.
Steph Papi and Kboys
tubetown, oh - Tuesday, January 8, 2008 8:20 PM CST
Dear Anne
I hope the Art Display of Zach's work went well, he was so talented. I cannot imagine how hard it was going back to work in the same hospital that Sam and Zach spent a lot of time in. The fact you said it went ok was good enough. All you can do is the best you can, the fact that some moments you feel like you are holding your own and other moments you are falling apart, is okay in my book. I hope you run into more people at work who will say hello to you, who will say they are sorry, who will not be afraid if tears should fall from your eyes. I hope people say their names often and tell you about their own memories of Sam and Zach. You will still run into some people who will try to avoid you because death scares them, but that would not be your fault.
I think Zach was so amazing and I can see why you feel he was the glue that held you together after Sam died. Zach wanted his brother's life to be remembered and at the same time wanted to live his own life to the best of his ability. How he always made others so comfortable when maybe at first they were not. He brought the smiles to situations and to his own life.
You are an amazing mom to 4 great kids, 2 still with you and with Sam and Zach with Jesus. Try not to second quess your decisions, you always did your best for both your kids. Take one moment at a time and just give yourself a lot a breaks, meaning don't be hard on yourself. yOU ARE DEALING WITH A LOSS i CANNOT EVEN IMAGINE, AND PLEASE KNOW YOU ARE IN MY THOUGHTS AND PRAYERS.
lOVE
Ann Marie
Ann Marie <agleason13@yahoo.com>
Denville, NJ 07834 - Tuesday, January 8, 2008 7:41 PM CST
Anne,
Thank you for sharing more of Zach with us. I love the artwork and the fact that the school found such a wonderful way to celebrate his life. What beautiful treasures you have to help you always remember the vibrant life that he lived. I feel like I know Zach even better tonight. Thinking of you always.
Laura
Albuquerque, NM - Tuesday, January 8, 2008 7:16 PM CST
Dear Anne,
Thank you for sharing your emotions and thoughts with us. They truly do inspire me. With our chronically ill children we just can't take one day for granted. I am going to get that book you talked about. It sounds like a good one. It sounds like you had a good new years. There is nothing like the sound of children's laughter! I know there are no words that can relieve your pain, but I am praying for you every day. You are an amazing mother!
Much love,
Lori/cp/shelbywood
Lori Wood <woodyou@comcast.net>
clarkston, MI usa - Tuesday, January 8, 2008 8:09 AM CST
Art work.
That is one of the most intimate closely related parts of us--that AND the written word which you and your family seem to know well.
I remember when you posted the picture of Sam's rainbow and my initial thought was--"wow, her baby painted that--every drip, line all of it--is Sam's" and from then on when I found crochet chains, tiny knitted pieces--I pick them up and put in the biggest vase I have--and they have become my daughter's textile flower bouquet--where others may see no value--I can and do. Even from the fact that Olivia's fingers worked that yarn.
I hope that Zach's art show totally compels the children of the school to live life fully--to their fullest potential, to come away a better different than before.
I so appreciate your transparency. It is so rich with nuggets.
I'm just so incredibly sorry that Zach and Sam are not with you.
Full of care-
Sh <Sdekold@mac.com>
Floyds Knobs, In USA - Tuesday, January 8, 2008 3:42 AM CST
Hey Anne,
It is midnight and I am here in the hospital thinking about how much you must miss Zach and Sam. Brody had surgery last Friday and despite our fears, he did great afterwards. All I could think of and what I shared with my mom afterwards is that I felt so bad for you, as I couldn't ever remember Zach or Sam doing "great" after a surgery. I only bring this up so that you know that Zach and Sam are thought of more than you know by others across the country. I watched the video and was in tears. The tears are over how precious all your children are and the disbelief that Zach and Sam are no longer here. From the pictures is is obvious that the Christmas' you have shared hold many wonderful memories. I was amazed at how much Brittany has come to look like her mother, and at how much all your children favored. I also noticed in all the pics that they were always smiling. Despite the circumstances they were always happy. Please know that I am always thinking of you and your family.
Kristi Cole <kristi3333@bellsouth.net>
Atlanta, GA USA - Tuesday, January 8, 2008 0:02 AM CST
Sending love and hugs and thinking of so many memories of Zach and Sam and how their lives were so special and wonderful.
Hugs,
Cindy Cruz
- Monday, January 7, 2008 10:01 PM CST
I hope you can post pictures of the art display, I would love to see the collection. Glad for you that your first day back to work is done...seems like a pretty big accomplishment to me. I think a puppy is a most excellent idea...look up miniature GoldenDoodles...they are cute and smart and don't shed.
Thinking of all of you,
Kris, Paul, Cole, and Zack Vajda <pnkntwins@charter.net>
- Monday, January 7, 2008 9:35 AM CST
Hey Anne
I hope you made it through your first days back to work. I ma sure it is horribly hard. YOu will be in my prayers all the time
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
phoenixville, PA - Sunday, January 6, 2008 4:21 PM CST
Dearest Anne,
Hope your first week back to work wasn`t to hard on you.Silly comment of course it was...But I do hope things get alittle bit better soon.In my thoughts and prayers always. Take care of your self and your family.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn. USA - Sunday, January 6, 2008 11:28 AM CST
Just thinking of you this morning and hoping that you are finding the energy you need. There are so many people who love you! Hang in there, Anne.
Love,
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Sunday, January 6, 2008 7:59 AM CST
The Mention of His Name
"The mention of my child's name
May bring tears to my eyes, But it never fails to bring Music to my ears. If you are really my friend, Let me hear the beautiful music of his name. It soothes my broken heart And sings to my soul."
Author Unknown
Marcia <marciat@sympatico.ca>
Bradford, ON Canada - Saturday, January 5, 2008 11:59 PM CST
Anne,
I sit here and weep; my heart just breaks for you... I'm so, so sorry for the earthly loss of Sam and Zach. I can't even imagine the grief you bear with two children gone.
Please know that I am praying for you.
Pamela Matthews
www.caringbridge.org/tx/dinahmatthews
Pamela Matthewsq <gmatth1111@att.net>
Houston, TX - Saturday, January 5, 2008 11:31 PM CST
There really are no words to express the losses you have suffered but from your words I can tell you that Zach and Sam got their strength and courage from you. I hope things go okay at work and you are able to begin to rebuild. Best wishes for you and your family in the coming year.
www.caringbridge.org/visit/colbydinwiddie
Wendy Dinwiddie <ricwendy@sbcglobal.net>
Burleson, TX USA - Saturday, January 5, 2008 8:38 PM CST
i dont know WHAT to say thats different from everyone, so i'll just be honest: i've been thinking of you often, praying for you and the girls, hoping the boys are playing pranks up in heaven, and really, really wishing i lived closer so i could come over in person and spend some time with you, no i do not mind crying at all ; )
i know putting an arm around you seems little, but a virtual hug and message of support is all i can think of from far...also know that i think you are amazing and holding up quite well- i dont know i would be functional enough to even have a website, forget about considering working...
Jackie K <aeonflux4444@yahoo.com>
brooklyn, ny - Saturday, January 5, 2008 6:51 PM CST
Anne,
Thinking about you and hoping your first day back at work went as smoothly as possible. I hope that there were lots of comforting people there right when you needed it.
Laurel <DAlsmith@aol.com>
Medford, NJ usa - Saturday, January 5, 2008 6:15 PM CST
Anne,
Thinking about you, and your first day back.....(Thought about you all-- over the holidays, all the time....) I really miss my dad too...
I really want to thank you for continuing to post photos of Sam and Zach, and things they enjoyed doing! (Especially new pictures I never saw.) It helps me to see them-- as we missed seeing them more after our move. You and Lou taught them so much about love, and how to relate and love others. In their lives, they "mirrored back" everything they learned from you. It's an honor, and a blessing, to know you connected with your children on that level, and had a "give and take sharing" about what's important in life. Some families (Or elevator people...) go through a lifetime, and never even really "get connected"...(..or skim the surface.) I'm leaving something for you, in your mailbox. I hope you take it to work with you, and that it helps. When you look at it, you will see them both. They will always be there. Lots of love,
Mary
Mary <beadit@wi.rr.com>
Waukesha, WI USA - Saturday, January 5, 2008 2:53 PM CST
Anne- Know that you are in our thoughts and prayers. Missing you and Zach.
Megan Reid <dmreid1994@sbcglobal.net>
- Saturday, January 5, 2008 10:26 AM CST
Anne, I just read your Wednesday entry and you've already been back to work. I wish I'd read it sooner because I would have offered to go with you just to get you where you needed to be without being alone. If you ever need someone to keep you company and talk about the boys just call me up and we can get together.
Donna Brooks <daniel8546@sbcglobal.net>
Waukesha, WI - Friday, January 4, 2008 9:50 PM CST
Anne:
Just got done reading your I guess we can call it a blog. Hope your first day back at work went, well, you just did something for youself. Know that even though physically Sam and Zach weren't with you; in full spirit they were. It's ok to cry. I wish more people could do that and feel comfortable crying and people that aren't crying can feel comfortable with someone showing their emotions. Your doctor friend was right; we aren't comfortable with death. We don't know how to be around people who have lost a loved one. We like tears of happiness not sorrow. I hope to read how work went and that each tiny step you take will be come bigger and bigger and Zach and Sam will always be with you because their spirit lives on in each you and your family members.
Lisa Nerenhausen
mom to Leah
LIsa Nerenhausen <lnerenhausen@new.rr.com>
Appleton, WI USA - Friday, January 4, 2008 8:47 PM CST
Anne, how honest you are in your comments. Some people just don't know what to say, others act like nothing has happened. I am amazed at your bravery to have carried on after all you have been through. I can't imagine what it will be like to return to work at the hospital, but please know you have the support of many people. Just to visit another clinic family at the hospital it took me months to face the reality of walking back on that inpatient floor. I felt sick the whole drive there but challanged myself to do it. I thought of my Zac's spirit. You can do it with your Sam and Zachary's spirit helping you along. They will be smiling down from Heaven saying "look what mom can do!" Take care and keep your head up, you have nothing to be embarrassed about, they(people) do for looking the other way instead of facing the issue.
The Hunter's(angel Zac)
kim Hunter <widgit@earthlink.net>
- Friday, January 4, 2008 8:08 PM CST
I think of you every day, admiring you so and only hope I handle our future with as much courage and grace as you.
shdmiller@yahoo.com <shdmiller@yahoo.com>
- Friday, January 4, 2008 12:37 AM CST
Dear Anne,
I hope yesterday went better than you expected and the love from both Sam and Zach that lives in your heart lifted you through such a hard day.
Hugs to you and your family
Catalina
Atlanta, GA - Friday, January 4, 2008 11:05 AM CST
Anne - Thinking of you and Zach and Sam every day. Thought about you today when I was at work during the day, too. Miss you all. Love Sara
Sara O'Toole <sara_o2l@hotmail.com>
Waukesha, WI - Friday, January 4, 2008 0:33 AM CST
Anne, No Happy New Years to us. We have lost our sons this year and as you so perfectly put it, such a bittersweet year. I have followed your sons' illnesses and have become friends with Connor's mom Deb, even got to visit her last week in New Jersey. Our Evan's story was so different, perfectly healthy until April 30 when he had a seizure. The next day we were told that he had a terminal metabolic disease we had never heard of. November 2, the day before his and his twin sister's 10th birthday, he passed away from post transplant complications. Our stories so different, yet our endings are the same, missing our boys desperately. Am here is you ever want to cry with me. Always looking for "new" friends who "get it" Evan's Mom 9498429975
Gina Cousineau <ginacinsc@aol.com>
San Clemente, Ca - Thursday, January 3, 2008 11:30 PM CST
vast love.
sh
- Thursday, January 3, 2008 9:38 PM CST
Anne,
I hope your first day back went okay for you. I know it had to be so difficult to be at the hospital again. I pray that you feel the support and love that all of us are surrounding you with and know that we walk with you down the halls, and we will support you! With love,
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Thursday, January 3, 2008 8:48 PM CST
Hi Anne,
I hope today went OK with you. You are so courageous to jump back into work; I'm sure your boys got a lot of their courage from you. Thank you for shedding light on your perspective of grief. I think in our society we really don't know how to deal with grief and the result is that a lot of people think that saying nothing is better than saying the "wrong" thing. You've enlightened me once again, and from now on I'll always take the initiative to say something to when I encounter a bereft person. God bless you!
Oula Haddad
Oula Haddad <jhaddad1@yahoo.com>
Silver Spring, md usa - Thursday, January 3, 2008 8:46 PM CST
Oh my dear I am praying for you.If love could come through this keyboard you would feel the love I have for you. You are undoubtably the dearest person I have ever "not" known in my life... and Im grieving with you...grieving...bless your heart
Donna friend of Sheila <donerleg1@yahoo.com>
louisville, ky usa - Thursday, January 3, 2008 7:58 PM CST
Anne:
Hoping today went better that you thought it would. Thinking about you. And I agree I think people say nothing for the fear of saying the wrong thing without realizing that saying nothing hurts more.
hugs
Sharon
Sharon <lawblond7@aol.com>
Waldorf, MD - Thursday, January 3, 2008 7:39 PM CST
(((((Anne)))))
I hope today went better then you feared and your dear sons, Zach and Sam were both spoken of with love, affection, respect...awe for the incredible boys they were and will always be..carried in our hearts...
Hugs Anne,
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Thursday, January 3, 2008 6:57 PM CST
Anne,
I hope today went ok. I can't imagine how difficult it must be to go back to work at a place where Sam and Zach were so much a part of. We continue to pray for you today and always. Sending big hugs your way...
Laurel <Dalsmith@aol.com>
Medford, NJ USA - Thursday, January 3, 2008 5:00 PM CST
Dearest Anne,
Bless your heart what an honor it was to read your comment today.Expressing all your doubts and fears takes courage .
Zach and Sam would be both very proud of you.Don`t try and hide your sorry or apologize for feeling it.Embrace it. Thats what is needed at this time, and if other people feel uncomfortable about it or around you .Just forgive them and except somepeople just don`t know how to handle such emotional ,nothing to do with you just their way. We all handle things differently ,and as a nurse and care giver your self I`m sure you help may people deal with simular emotions.This may seem like hollow advice and maybe I shouldn`t say it but try and put some of your thoughts back to some of those times maybe your own advice can help you deal with your own grief. Your lose it great and don`t minimize it. Take care and my prayers are with you.You and your family are in my thoughts daily.over the past six months I feel like we`ve known each other along time.Only because you`ve written so beautifully and expressed your thoughts so clearly. Zach and Sam such lucky boys to have a mother like you as are your girls.
Cousin Lynn and Family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Thursday, January 3, 2008 4:42 PM CST
Anne. I'm sorry I wasn't there today to welcome you back to work. I can't imagine how hard it is. We did miss you and are happy to have you back. We will miss new Zach stories, but we love to hear and talk about all the Zach and Sam stories....when you are ready and able. Always remember that we love you and are here for you in whatever capacity you need us.
Karen <kschaefer@chw.org>
Brookfield, WI - Thursday, January 3, 2008 4:07 PM CST
Dear Anne,
I just read your journal. What a wonderful tribute to your sons. How great your grief must be, losing both sons. I lost my daughter Adrienne on December 2 to mitochondrial disease. I understand your feelings about people avoiding you. The same happens to me. People don't seem tp realize that I need to talk about Adrienne. I will keep you in my prayers and hope that we both find some peace.
Beverly Ingram <bapingram@aol.com>
Woodbridge, VA USA - Thursday, January 3, 2008 3:59 PM CST
Thinking of you, Anne. Thank you, once again, for putting into words how I have often felt when walking into places that remind me of Michaela...
Theresa <bookangel1993@yahoo.com>
- Thursday, January 3, 2008 2:45 PM CST
Praying that today went better than you thought it might. Hoping that you could feel the presence of your precious boys with you as you faced this challenging new day--at least the sun is out!
Cindy <kurtcindyb@aol.com>
Waukesha, - Thursday, January 3, 2008 2:07 PM CST
Dear Anne,
I can only imagine how fragmented you feel. The challenge of getting through the day may seem beyond your desire or capabilities. I hope you can let your heart dictate your direction allowing for rest and reflection. I know many people aren’t comfortable with tears but I’ve found they do help me feel better. Do you have any projects you can work on quietly, slowly, and lovingly? More than anything, can you follow your own lead; do what allows you some relief? Over time you will regain some degree of peace and strength. I glad you are continuing to journal some part of yourself--your knowledge, affection, skills, guidance, and kindness. You have consistently demonstrated resilience by putting your grief into action as you work to reshape your future. Continue to use the resources that helped you to this point. I’m certain Zach and Sam would want you to proceed forward with as much perseverance and vision as they demonstrated. Trust yourself to do so, to follow the path that honors your heart. For today, I will be praying that you find some level of peace as you resume your journey through the halls at CHW.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Thursday, January 3, 2008 11:24 AM CST
Anne-
Praying that you have strength to get through today. I know that BOTH of your boys are with you encouraging you and knowing that you will still be making things better for so many other children.
Bridget Bruno
- Thursday, January 3, 2008 9:13 AM CST
Hi Anne ~ Thinking about you and Zach and missing you both! I hope work goes OK for you today. I know there are SO many things here that remind me of Zach - it's kind of nice sometimes b/c I like thinking about him and remembering all the things about him!! He always brings a smile to my face (sometimes a tear, too, but mostly a smile)!! Take care and I'll see you soon!
Love,
Amanda
Amanda <aglorioso@chw.org>
- Thursday, January 3, 2008 4:20 AM CST
Praying you through this day, the first of many firsts.
Sending lots of hugs your way,
Heidi in Idaho
- Wednesday, January 2, 2008 11:50 PM CST
"I do not believe that sheer suffering teaches. If suffering alone taught, all the world would be wise, since everyone suffers. To suffering must be added mourning, understanding, patience, love, openness and the willingness to remain vulnerable." Anne Morrow Lindbergh
You truly have a gift. Your boys were truly gifted. I can not understand the pain of losing one child, let alone two, though my heart hurts with you.
Nena (mom to Reese, Complex IV deficiency)
www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
Hermantown, MN 55811 - Wednesday, January 2, 2008 8:02 PM CST
powerful. . .
Sh
Floyds Knobs, - Wednesday, January 2, 2008 7:45 PM CST
Anne...
Thinking about you today and always.
Laurel <Dalsmith@aol.com>
Medford, NJ USA - Wednesday, January 2, 2008 6:52 PM CST
Anne, Lou, Brittany and Abby,
Always thinking of you all and praying for your heartache to lessen. I hope 2008 will bring you many happy moments together! Love to you all,
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Wednesday, January 2, 2008 3:45 PM CST
So today Hannah comes downstairs with her Sam shirt and Mito bracelet on. I have not seen the mito bracelet in many months so when I inquired as to it I was told in a stearn 14 year old voice that I made her clean her room this week! So we start 2008 with Sam and Zach so much a part of our day. Praying for you all as we start this new year and hoping that all of us remember not to take even a moment for granted.
Cindy <kurtcindyb@aol.com>
Waukesha, - Tuesday, January 1, 2008 8:07 PM CST
Anne, I hear you, my heart aches too..........
Sharon ,mum to Martin & Samuel & ^Savannah^ <mb-sb@hotmail.co.uk caringbridge.org/europe/samuelbell>
GLASGOW, Scotland - Tuesday, January 1, 2008 6:59 PM CST
You are one of the great hearts in this world.
donna <donerleg1@yahoo.com>
louisville, ky usa - Tuesday, January 1, 2008 4:40 PM CST
Anne ~
I am constantly touched. You are positive. You are grateful. So Admirable.
~ A mom in Maryland
- Tuesday, January 1, 2008 3:51 PM CST
Anne, Brittany, Abby, we are praying for your comfort, peace, and strength in 2008. With much love and prayer,
Deb, Scott, Casey
& Connor, always in our hearts
Millards <sdcm@optonline.net>
- Tuesday, January 1, 2008 12:13 AM CST
We treasure your honesty, insight, and the memories of your beautiful boys. Your journey is one of our darkest fears...my heart is so sad for all of you. Your words always remind me to treasure what I have every moment of everyday...it is a gift that I always be thankful for. I wish I could take your pain from you...just for a moment in return.
Kris, Paul, Cole, and Zack Vajda <pnkntwins@charter.net>
- Tuesday, January 1, 2008 11:37 AM CST
Thinking of you last night at Midnight. Tom and I said a special prayer for Zachary and Sammy. The gifts that Zach gave me are priceless and will forever remain in my heart. Happy New Year. Love, Hope
Hope <hmpatchak@yahoo.com>
Milwaukee, WI - Tuesday, January 1, 2008 11:16 AM CST
Anne:
Just wanted to let you know we are thinking of you. I so appreciate you expressing your feelings. There is no "proper" way to grieve and no one can tell you how to feel, act, etc. Your strength in the eye of adversity is inspiring and your patience immence.
Thinking of you today
hugs
Sharon
www.caringbridge.org/visit/jakeski
www.caringbridge.org/visit/claytonandcole
Sharon <lawblond7@aol.com>
Waldorf, MD - Tuesday, January 1, 2008 10:12 AM CST
Praying for you and your family continuously as we remember all of the blessings from the year past.
Crystal Bates (Elena's Aunt) <batesc@fonddulac.k12.wi.us>
Fond du Lac, - Tuesday, January 1, 2008 9:19 AM CST
Dearest Anne,
Today is The last day of a very trying year for you and your family.I wish it had never been, but hope that the new year with time will ease your pain.Ane hope that sleep will come to you more easily, for sleep does help one deal better with such pain and sorrow.God grant you the sleep you need to carry on for your self and the rest of your family.Bless your daughters and your husband also lest we forget they also suffer at the lose of their two beloved ones Sam and Zach.Prayers always...Though they mean little comfort now.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Monday, December 31, 2007 6:56 PM CST
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