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Dearest Anne,
Today is The last day of a very trying year for you and your family.I wish it had never been, but hope that the new year with time will ease your pain.Ane hope that sleep will come to you more easily, for sleep does help one deal better with such pain and sorrow.God grant you the sleep you need to carry on for your self and the rest of your family.Bless your daughters and your husband also lest we forget they also suffer at the lose of their two beloved ones Sam and Zach.Prayers always...Though they mean little comfort now.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Monday, December 31, 2007 6:56 PM CST
Thinking of you often and will be in touch soon! I miss you and Zach and Sam so much. Wish I could go back in time to watch the boys in action. Much love for your boys. Love, KP
Kris Pallett <krayzee77@hotmail.com>
- Monday, December 31, 2007 5:38 PM CST
My name is Deanna and I am a Recruiter in HR at CHW. Anne, I want you to know that each time I read your journal you inspire me. I know that sounds weird, but I lost my son Ian on August 10th of this year in our NICU when he was 47 days old. He was never even able to come home after he was born. His cause of death: unknown. Every single specialist we have here could not figure out what was wrong with my son. He is our Medical Mystery. But my point here is not to 'tell my story' but rather to let you know that you make me realize I am a 'normal' mother in greiving, if there is such a thing. I am also a different person. You help me realize that I don't have to be ok with the fact that Ian is an Angel in heaven. I want him HERE, on earth, with his mom where he belongs. Some days I am numb, some days I am angry that I laughed, some days I want to conquer the world so he is proud of me, and some days I don't want to speak. I have no words of wisdom for you, in fact, I have no words at all. I cannot even say, "I know how you feel" because you have lost 2 sons, something that I cannot even imagine without shedding tears as I write this. My heart physically feels like it is breaking at times, especially during the holidays, and I thought of you often. I didn't think I would stop crying. I am angry, at who? I don't know. God, maybe. At the end of the day all I want to know is ...WHY? But it pains me to know for the rest of my life I will never have an answer to that question. Just know my heart is with you and I have been meaning to send you a card, but I just couldn't get my bearings together during the holidays. The week before Christmas I sent out thank you cards for my son's funeral instead of sending our birth announcements of his first Christmas. Being that my son passed away at CHW, it was very difficult to come back to work in November and Nancy Korom referred me to you. But the timing has not been good for either of us. I would love to meet sometime. If we don't, that is ok too. Know your words help me. Every single one of them. Your children are so very blessed to have you as their Mom. God Bless.
Deanna <dgromowski@chw.org>
- Monday, December 31, 2007 12:45 AM CST
Thinking about what you have written and knowing that even though our thoughts and stories about Zach and Sam are nice memories they can't help touch the depth of the grief that you are experiencing. Our children are a part of us to our core. Whether we give birth to them or not they are a part of us, like our arms and legs. When they hurt, we hurt, when they are unhappy, scared, excited, joy-filled, so are we. To not hear their sweet voices, see those sweet faces or hold them breaks my heart for you. It makes no sense to me why this has happened again. My faith tells me that there are things that happen that are not for me to understand now. My heart as a mother tells me that no mom should have to go through this even once. I continue to pray for you and your family and for all those who are close to you.
Cindy <Kurtcindyb@aol.com>
Waukesha, - Sunday, December 30, 2007 9:23 PM CST
Anne, my thoughts and prayers are with you tonight. As I read your journal update I cannot imagine what it is like for you. Our loss was tremendous and yours was sooo much more. It is ok to weep and the sleep will come with time but as you know life will never be the same. I too think we carry on as different people, I will forever be my Zac's mom but will never be the same person I was before he died. WE find comfort in different ways and it helps some to dull the pain. May you have the strength to endure. I know all of our boys are in a better place but it is hard to get beyond just not having them in our arms where they should be. We continue to pray for some comfort for you. Take care,
The Hunter's(angel Zac)
www.caringbridge.org/visit/zacharyhunter
Kim Hunter <widgit@earthlink.net>
middle grove, NY usa - Sunday, December 30, 2007 5:13 PM CST
no one can imagine the way it feels to loose two beautiful precious sons unless it has happened to them. I am so achingly sorry for you and I am praying for grace in the biggest way. You are so dear and I am really really praying for you Anne.
Donna <donerleg1@yahoo.com>
louisville, ky usa - Sunday, December 30, 2007 4:59 PM CST
Dear Anne
I appreciate your honesty in your journals, I would not want you to sugar coat what you are feeling. I know you want Zach with you, I do understand that. Zach and Sam did die way before their time, like so many other chidren do. I do not know the reasons why, I may never know. I only recently heard of mito disease because of Sam, Zach, Connor and Kyle and it makes me angry also.
Anne I know this is easier said than done, but please don't second quess your decisions regarding Zach's care. You made decisions based upon the information you had at the time. I remember when you told us Zach may have thyroid cancer and these are his options, none of them were good. All of those options held a lot of risks, that was what you and Zach were up against. My own heart just ached for you because you had to make a decision, but which one. Anne again YOU DID the Best you could for Zach, always have.
I wish I had more words of comfort, but I know this is your journey. Anne you can only do the best you can, some days you might feel like answering some calls, other days you may want to talk to no one. Your friends will understand, and be there when you do reach out. I have no magic words to bring you sleep, to take away your pain, all I can do is lift you up in my prayers. Sending you all my prayers and love your way from a new friend from NJ.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Sunday, December 30, 2007 2:15 PM CST
((((((Anne))))))...no I cannot imagine you would feel any other way Anne...all sounds painfully real, reasonable.... just hugs and prayers that somehow this pain lessens in time...So very, very sorry Anne...
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Saturday, December 29, 2007 7:50 PM CST
Hello Anne,
As always, your family is not far from my thoughts, especially during the holidays. I'm sure things are even tougher than usual. Your last posting was so real and raw-it reminds me of what Suhad has been through. You have every right to feel angry and robbed; your loss is immense and it will take a lot of time for the pain to subside. If you feel like it, I'm pasting a link to an excellent sermon our pastor Lon Solomon gave a while ago. He has a daughter with mito, so he's no stranger to this cruel disease. I've actually heard this sermon several times and shared it with several grieving friends. I hope it gives you hope and perspective. http://mcleanbible.org/media_player.asp?messageID=6486
For the new year, I wish you a renewed sense of peace and purpose.
Sincerely,
Oula Haddad
Oula Haddad <jhaddad1@yahoo.com>
Silver Spring, md usa - Saturday, December 29, 2007 7:26 PM CST
I know things arent easy now. I just wanted to let you know that I am thinking of you and your family and sending you a huge hug. I know its not much and probably doesnt send much comfort but I wanted to let you know that you are in my prayers
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
phoenixville, PA - Saturday, December 29, 2007 3:45 PM CST
A New Year Blessing Especially for You,
May the road you walk be a smooth one,
May your troubles be few — if any,
May the days and years that lie ahead
Be healthy, happy, and many,
May you have friends in abundance,
May the sun shine bright around you.
May the world be a wonderful place to live,
And may God's love always surround you.
Hope you have a joyful new year
and many happy years ahead!
Joanne ~ www.caringbridge.org/il/annakris
Joanne K <servedogmom@yahoo.com>
- Saturday, December 29, 2007 3:33 PM CST
Hi Anne, I know that words can't comfort but I do want you to know that I am reading and that I, as some others, can bear to hear your grief. The quote from the holocaust survivor touched me. I don't find much comfort in the idea of multiple meanings for tragedy. Jacques Lacan (a French psychoanalyst) would agree - we are all impacted by the Real (trauma, death, the things that happen that can't even be captured by words, 'the unsayable') and we have no control over the Real; the hardest and most challening piece, according to Lacan, is learning how to live, desire, love, even in the face of the Real. Anne, thank you for writing and speaking and sharing your grief with all of us.
Anne R <areckling@aol.com>
- Saturday, December 29, 2007 7:26 AM CST
Anne,
I am so sorry and heartbroken for all the pain you are having to endure. Please know that you are continously in my thoughts and prayers. Take care!
Hugs,
Brenda
Brenda Prindle <blprindle@sbcglobal.net>
Little Chute, Wi - Friday, December 28, 2007 11:35 PM CST
I just want you to know we are still thinking of you and your family everyday. The boys will never be forgotten.
Love and prayers to you.
Megan and Family <dmreid1994@sbcglobal.net>
- Friday, December 28, 2007 10:31 PM CST
ANNE, THE VIDEO'S ARE BEAUTIFUL, THANK YOU FOR SHARING THEM WITH US. WITH LOVE
FRANCIS NATOLI
FRANCIS NATOLI <FRANCISNAT@AOL.COM>
NAPLES, FL USA - Friday, December 28, 2007 9:30 PM CST
Thank you for sharing how you are feeling. Please don't ever feel the need to stop doing that. I always enjoy hearing about your memories of the boys and will continue to. I know no words can fill the voids in your life.
Thinking of you and your family.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Friday, December 28, 2007 6:53 PM CST
Dearest Anne,
Your honest reaction to your son`s deaths is just what it is suppost to be.Anger....Second guesses etc. For we all should feel that way it is only natural.You said a very important thing when you said Zach helped you deal with the loss of Sam,and missing the dr. and the rest of the staff that helped you at the hosp.is natural also ,because that ment he was still here and you want that back with all that came with it.And yes meir words are usless at this time and maybe for quite awhile .your heart is broken and it will take time to mend and it will probably never fully recover, but live does go on and your life will as will the good and bad memories.Each has it`s place in time. Don`t fight them deal with them as best you can when you need to. Many tears help things grow.and hopfully more fond memories will overtake the bad.All the best to you and your family
cousin Lynn and Family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Friday, December 28, 2007 1:29 PM CST
(((hugs)))
I wish I had more, words on a screen seem so useless.
Thinking of you always,
Keely
www.caringbridge.org/visit/brandonandtyler
Keely
Winnipeg, Canada - Friday, December 28, 2007 12:49 AM CST
Thinking of you today .... and every day....
Hugs,
Catalina
Atlanta, GA 30092 - Friday, December 28, 2007 11:38 AM CST
Thinking of you here in Maine...
Theresa <bookangel1993@yahoo.com>
- Friday, December 28, 2007 10:59 AM CST
Anne, I so understand what you're saying. I feel much of it as well. Weep. I find it very healing to my soul. Rest. Allow yourself time. I remember well you telling me that time doesn't heal you, but that it helps you to start remembering more about his life and less about his death. That in time, you start thinking more about the joy of him, the joy of his life, the good things... the memories. For me that has been true. I pray for this to be true for you as well, my friend. Thinking of you all the time and praying for comfort, peace, rest.
Deb
Deb Millard <sdcm@optonline.net>
- Friday, December 28, 2007 9:01 AM CST
Your latest post expressed everything very well. I don't really have any words of comfort to offer beyond those you already know.
But I would caution you about second guessing yourself. There are times when we have to make life and death decisions, often with incomplete facts. There is always the possibility that there may come a time when we know more than we did then (even if that extra knowledge is nothing more than the actual outcome of the choice we made), and can try to second guess the decision we made. But none of that is legitimate! The only legitimate question is whether we made the correct and logical decision based on the information we had at the time.
Beyond that, all I can offer you is my prayers!
Bob McAdams
Lincoln Park, NJ 07035-1823 - Friday, December 28, 2007 3:22 AM CST
Thank you for sharing this...what beautiful children.
Kris, Paul, Cole, and Zack Vajda <pnkntwins@charter.net>
- Friday, December 28, 2007 0:55 AM CST
Your video was so very beautiful. Thinking of you often.
Wendy Runge
Waukesha, WI 53189 - Thursday, December 27, 2007 11:10 AM CST
Anne: What a beautiful tribute to your family. Thank you so much for sharing. You are in my thoughts and prayers constantly. I was caroling with Santa (Peter) on Christmas Eve in the hospital and thought of you and the boys many times. May God bless you and comfort you.
Linda Oleson <loleson@chw.org>
- Thursday, December 27, 2007 10:21 AM CST
Anne, I love the videos. They are so very precious...beautiful. Thanks so very much for sharing them. I know your heart longs for the day you will all be reunited in heaven. Until then...we pray for your peace, comfort, and strength, for the present. For today.
God bless Anne,
Much love, Deb, Scott & Connor - always in our hearts
Deb Millard <sdcm@optonline.net>
- Thursday, December 27, 2007 6:34 AM CST
Anne,
The video's are beautiful... they show the love that your children have for each other, for you and their family and loved ones. They are a gift, just as you are a gift to them. Sending lots of hugs your way...
Heidi in Idaho
- Thursday, December 27, 2007 5:46 AM CST
Thinking of you today and keeping you in my prayers!
Darla Lindenmayer, Angel Matt's Mom, www.caringbridge.org/in/angelbarneyboo
- Wednesday, December 26, 2007 11:50 PM CST
Your picture videos are so heart warming. I am so thankful you were able to capture so many memories you can cherish forever. Even through these difficult times your strength and courage are amazing and offer hope to so many.
Angela Zutz <angiern5612@charter.net>
Plover, WI US - Wednesday, December 26, 2007 11:02 PM CST
Dear Anne,
I logged on earlier and something wasn't loading right, maybe? I couldn't see the links for the slide shows then. But I tried again just now, and they were there. I am glad . . . you must have scanned more photos! I saw some old favorites, but lots of new ones I don't think I have ever seen. Thank you for sharing these beautiful images--proof of lives lived joyfully. I know we have spoken about this before: I don't know much about God's plan, or the answers to any of the great mysteries about God's mercy and human suffering, but the one thing that I know beyond a doubt is that LOVE is the ultimate purpose, and that your boys felt love and shared love throughout their precious lives.
Love,
Kathy
"God is love, and whoever abides in love abides in God and God in him." 1 John 4:16
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Wednesday, December 26, 2007 10:03 PM CST
Dearest Anne and Family,
Meir words are not enough to express how wonderful your picture cards were I watched both of them and felt lots of love through them THANK YOU . You could not of given your boys a more loving tribute to their lives,and also the rest of your family. God Bless and may the New year give you some comfort knowing that your boys where the greatest and shell always be thought of by many of us that you have selflessly sharded their lives and your familys with us.
cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Wednesday, December 26, 2007 7:33 PM CST
Thank you for sharing your beautiful photos with all of us. The love they share is so apparent. I'm sure that all of you are missing Zach and Sam so much now. I hope you could relive some of you fond memories and feel the love from your angels. Thinking of you with love and sending prayers for peace.
Sandra Swami
Sandra Swami <sandraswami@mac.com>
Shoreview, MN USA - Wednesday, December 26, 2007 2:05 PM CST
Hello Juhlmanns,
What a lovely montage...so very apparent the strong love in your family...I just want you to know that we are thinking of you and praying for you all as you head into the New Year...The boys may not be physically with you but I know you will always feel them strongly in your hearts and minds...Sam and Zach are safe in God's home celebrating the most incredible Christmas with HIM! Someday, there will be the most awesome reunion in Paradise, all because of the baby born in the manger...
GreatBigHugsLovePeace-n-Prayers, The Olsens <olsens5@wi.rr.com>
Waukesha, WI - Wednesday, December 26, 2007 11:29 AM CST
Dear Anne
Thanks for sharing that beautiful video of your family, it must have been so painful to put it together. Each of your children are beautiful and as I can see they all enjoyed many happy times together as a family. I am glad that you had so many good days to remember and be thankful for. I love pictures that Zach made, very talented he was.
Maybe he is drawing pictures for Jesus now and of course playing with his brother. Please know that I am thinking about you and your girls often and lifting you up in my prayers. Words don't seem to convey how sorry I am about Zach and how my heart aches for you. Zach and Sam are missed by many and they touched the lives's of many, including me.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Wednesday, December 26, 2007 9:31 AM CST
Anne, I have no words after watching the montage. So many happy moments and memories. YOur children are all so beautiful and shine so brightly. Thank you for sharing those wonderful moments with us and all those happy smiles. Praying for you always and always carrying Zach and Sam in my heart forever! www.caringbridge.org/oh/skyecoleycole
Tamm <Tamm06@aol.com>
- Wednesday, December 26, 2007 7:45 AM CST
What an amazing video, what a gift it is for all of us to share in your children's journey through these precious pictures and your words, Anne. The joy and love comes through in each photo. The real stuff shining.
Thank you.
Continued prayers.
Peace be with you.
Sh <sdekold@mac.com>
- Wednesday, December 26, 2007 7:23 AM CST
Words cannot express what a beautiful video you created.
Laurel <Dalsmith@aol.com>
Medford, NJ USA - Wednesday, December 26, 2007 7:05 AM CST
My girls and I think of you often.
Julia Hatfield, Emilie and Kaitlin
Evansville, IN - Tuesday, December 25, 2007 11:36 PM CST
Anne,
Thinking of you and your precious family today and wishing you all a Very Merry Christmas...
Brenda Prindle <blprindle@sbcgloabal.net>
Little Chute, Wi - Tuesday, December 25, 2007 10:32 PM CST
Anne,
Thinking of you so much, especially today. Sending love and prayers.
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Tuesday, December 25, 2007 9:48 PM CST
Thinking of you today.
Marcia , okbabes <marciat@sympatico.ca>
Bradford, ON Canada - Tuesday, December 25, 2007 8:42 PM CST
Just wanted to let you know that we are thinking of you today. May God give you peace and hold you close today.
Erica Beyea <debeyea@verizon.net>
Eden, NY - Tuesday, December 25, 2007 6:57 PM CST
May the peace of the season warm your heart. Know you are thought of and loved. Your entire family is held close in my heart today and always.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Tuesday, December 25, 2007 2:55 PM CST
Anne,
Thinking of you all today...
Laura
Albuquerque, NM - Tuesday, December 25, 2007 2:08 PM CST
Anne,
Just wanted to let you know we are thinking of you all today and always. We continue to pray for all of you and can't even imagine how much you miss Sam and Zach today. As I sat in the quiet of church this morning watching Jamie light the candles, I thought alot about miracles. Sam and Zach were blessed with many miracles in their young lives. All who know of your family and the boys have been touched in a special way. Your two miracle boys are a precious gift which you shared with the world in such an unselfish way. Thank you.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Tuesday, December 25, 2007 1:35 PM CST
Anne,
Just wanted to let you know we are thinking of you all today and always. We continue to pray for all of you and can't even imagine how much you miss Sam and Zach today. As I sat in the quiet of church this morning watching Jamie light the candles, I thought alot about miracles. Sam and Zach were blessed with many miracles in their young lives. All who know of your family and the boys have been touched in a special way. Your two miracle boys are a precious gift which you shared with the world in such an unselfish way. Thank you.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Tuesday, December 25, 2007 1:34 PM CST
I have been thinking about you and wondering how you are doing. I often sit at my computer looking at this site and thinking about you. We continue to pray for you and your entire family. I hope you are able to find some joy during this Christmas Day...
www.caringbridge.org/ia/mitomomof9 (Asenath and Zipporrah)
Darla Klein <honeybear50317@msn.com>
Des Moines, IA USA - Tuesday, December 25, 2007 12:31 AM CST
Always remembering your boys, and your family.... Sammy's joy, Zach's spirit, and your love for them and the girls....
hugs,
Heidi and the Idaho boys
- Tuesday, December 25, 2007 7:54 AM CST
Thinking of you guys today, and praying for comfort. Knowing our boys are in heaven, celebrating Christmas today. We love you,
Deb, Scott, Casey
& Connor - forever in our hearts
Millards <sdcm@optonline.net>
- Tuesday, December 25, 2007 5:31 AM CST
Im just praying for you still and always Anne.
Donna <donerleg1@yahoo.com>
lou, ky usa - Monday, December 24, 2007 9:32 PM CST
Thinking of you Anne and your precious family and saying special Christmas prayers that you will find some comfort and peace this Christmas day...HUGS Anne...
God Bless,
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Monday, December 24, 2007 8:28 PM CST
Thinking of you...
Anne R <areckling@aol.com>
- Monday, December 24, 2007 7:05 PM CST
Hi, Friend - Thinking of you. I have been thinking alot about what you said about feeling like you are outside yourself watching as you go about your day. What you are going through must be the biggest disconnect. If it is self preservation for your broken heart, then it is a good thing. Your heart deserves gentle treatment. Keep hanging in there . . .
The article is a wonderful tribute.
Sending love,
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Monday, December 24, 2007 4:17 PM CST
Thinking of you today and everyday. Know that you are in our prayers.
Praying that the boys send you signs today and tomorrow and that you are able to feel their presence and hear their laughter.
Donna and ^Kyle^ Noble www.caringbridge.org/oh/kyle <donnanoble2001@yahoo.com>
Grove City, OH USA - Monday, December 24, 2007 3:17 PM CST
In the quiet beauty of the snow-covered fields,
in the starlit wonder of the winter sky,
His Majesty is seen.
May all the beauty of this wondrous season
fill your heart with peace and joy.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Monday, December 24, 2007 12:38 AM CST
Merry Christmas Juhlmann's. Thinking of you today...Love, Hope & Tom
Hope <hmpatchak@yahoo.com>
Milwaukee, WI - Monday, December 24, 2007 10:39 AM CST
RE-evaluate is right.
Sh
Floyds Knobs, IN USA - Monday, December 24, 2007 10:06 AM CST
I hate grief too. I was going to write more about it, but you know the more..... thinking about your beautiful children and your family, sending care and comforting prayers.
Cindy
Cindy Loppnow
Waukesha, WI - Sunday, December 23, 2007 9:30 PM CST
Constantly thinking of you.
Sh
Floyds Knobs, IN USA - Sunday, December 23, 2007 7:13 PM CST
Dearest Anne,
Thank you for sharing the news article it is a tribute to you and your family that is well deserved,You shared so much with us about your difficulties with dealing with what life handed your family bless you all for that.Your angels in heaven are probably looking down upon us all thinking it`s no big deal.Only thing that they probably think about is how much they miss they family on earth, but they never really lost you cause they can look down on you each and every day and see what your doing.They are probably sad not to be here with you, but glad finally to be with out pain and enjoying each other again. Have a great Holiday for your boys they would want you to,for their sisters,father and you.Easy to say but I know not easy to do. But with so many people having sharded this sorrow with you and your family I hope it gives you what comfort it can.
Prayers AND TEAR for healing.
Cousin Lynn and Family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn. USA - Sunday, December 23, 2007 5:11 PM CST
All I can say about that article is Beautiful. What a beautiful way to tell others about the wonderful lives of your boys. It was just so beautifully written.
Anne, I am thinking of youand your family today and sending extra hugs through cyber space just because you are you.
Take Care, Karen www.caringbridge.org/wa/love4justin
Brubaker <karenbrbkr@yahoo.com>
Olympia, WA - Sunday, December 23, 2007 1:04 PM CST
Hello Anne,
I have had the pleasure to get to know Brittany a little. She is a beautiful woman, inside and out. In her sadness she still manages to be cheerful and enjoy things - I think equanimity must be a family trait. And she says only loving, supportive things about her family and her gifted sister. I can't imagine losing 2 of my children OR two of my siblings. So I can only think about the terrible grief that you are all struggling with and tell you how sorry I am. I never had the honor to meet either of your sons, but reading about them I feel as though I have. They were amazing people and have impacted so many lives through their spirits. I am grateful to have met Brittany and look forward to getting to know her better in the upcoming year. I hope she'll think of our family here as her "MN" family. Zach and Sam live on through her memories here in MN as they do in yours there in WI. Much love to you and my wishes for a peaceful holiday.
Sandra Swami <Sandraswami@mac.com>
Shoreview, MN USA - Saturday, December 22, 2007 4:03 PM CST
Anne,
Thinking about you all today. Praying that God will surround you all with love and comfort during this holiday season.
Laurel <Dalsmith@aol.com>
Medford, NJ 08055 - Saturday, December 22, 2007 3:41 PM CST
Dear Anne,
What a beautiful tribute to two very beautiful, special boys. Thank you for sharing it. I think of you and your family often.
Diane <blackfox@conknet.com>
Deering, NH - Saturday, December 22, 2007 7:33 AM CST
You have been on my mind today (even more than usual) as I sat and waited for Alex to get out of the OR. I had Lauren with me and I wondered how I am going to do this having 2 children with mitochondrial disease? Your eloquent words and amazing strength have truly been a source of inspiration. I truly believed that our children are hand picked for us by God. Zach and Sam needed you and you were there. Not only have your children touched the world by their presence...you have as well. You are an amazing woman that has raised amazing children. I am luckly to have such a wonderful role model. You and your family is in my prayers. Thinking of you often.
~Katie
www.caringbridge.org/visit/alexanderlindemann
Katie
- Friday, December 21, 2007 8:34 PM CST
Dear Anne
What a beautiful article on Sam and Zach. When I think of Zach, I do think of that awful disease that took his life, but most of all I think of him as just a great teenager. When I think of all the kids I have grown to love through the CaringBridge sites that have lost a child or in your case both your boys to mito disease, it makes me sad and angry. Sam, Kyle, Connor and Zach are to name just a few great kids who are no longer here because of that disease. I hope a lot of research is done on that disease to eventually find a cure. I am trying not to depress you, but I don't think I really can. Anne you fought so hard for Zach to lead as normal a life as it was possible , and Zach wanted that. I did not know him personally, but Anne your journals made me just fall in love with your son. Brittany's letter to her brother was so great, she just poured out her heart to him. I think about your lovely daughters so often and know that they miss their brothers so much. I cannot imagine losing my adult sisters, I cannot imagine what they are feeling. Anne thank you so much for sharing Zach and Sam with me, you write so honestly and beautifully. I will continue to keep all of you in my prayers. I can see Sam, Zach, Connor and Kyle up in heaven, PAIN FREE and so HAPPY. At Connor memorial service the pastor said that we believers grieve with the hope of eternity, but that we do still grieve. With that in mind my heart aches with you and prays for you every day.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 08734 - Friday, December 21, 2007 6:46 PM CST
Anne, what beautiful words to describe to wonderful children who have touched so many lives, and will continue to do so.......just like there awesome mother.
Sharon (mum to Martin, Samuel & ^Savannah^) <mb-sb@hotmail.co.uk caringbridge.org/europe./samuelbell>
Glasgow, Scotland - Friday, December 21, 2007 6:29 PM CST
I'm in internet zone. As you know I think equanimity is the perfect word for Zach AND YOU. I'd laugh at you
endorsing the trait except I am so sad. There is no joy in having the last word of that long ago arguement. I believe in your strength and your spirit and your infinite hope, though I know they feel buried to you right now. I am so sorry. I wish that I could fix this for you. If only duct tape could put your heart back together.
Billy
- Friday, December 21, 2007 1:29 PM CST
Anne and family,
What beautifull article. I think of you often.
Hugs,
Catalina
Atlanta, GA - Friday, December 21, 2007 10:54 AM CST
Dear Anne-
I am in awe of your courage and strength and ability in sharing with such transparency the depths of your pain and loss. I have also read Brittany's letter to Zach and went back and read Sammy's program from his Celebration of Life and can see so clearly where your childrens talents and creativity and openness come from - you have, for as long as I have known you, been a tireless warrior in a battle for your kids to be known, truly known by others as individuals with passion and depth and humor and character - and in the face of adversity when it can all so easily become about the disease and not about the child, you have persevered. It is through you and Brittany and Abby that I feel like I know Zach and Sam - their likes and dislikes, their quirks and smiles and habits and passions - all the characteristics that make us each a distinct and separate person. They are no longer physically here, but their presence is huge in my life because you have let me know them. Their spirit lives on because they learned from you the value of life. You have encouraged and inspired me when I have found myself feeling as if its hopeless to try and convey to people that my child exists outside of her medical condition - that she too has passion and strength and courage, and a spirit of grace and a soul of depth beyond understanding. I guess I am trying to say (and not very well at that!!) that there is no way for anyone to understand the depth of sorrow that you and your family is facing now, but I can share in your sorrow and pain because you have allowed me to by introducing your boys' to me and I am honored to have known them - and my life is so much richer for it
Love, Lauren
Lauren FitzPatrick <ljfitzpat@bellsouth.net>
- Friday, December 21, 2007 1:16 AM CST
What a beautiful story from the Sentinel Journal. Thank you so much for sharing.
Julia Hatfield--Kaitlin & Emilie's mom
Evansville, IN - Friday, December 21, 2007 0:21 AM CST
Anne and Lou, Abby and Brittany,
Still thinking of all of you.....Please know you're thought of often. Glad to hear about the tree at Butler! ...and nice to hear about the ways young teens are supportive, and understanding....and how they want to remember Zach! That's really special! He certainly touched many lives! We are here, for anything you might need..... I'm ready to go to Panera for lunch any day you feel like going...... Everyone needs to eat....and just getting out for an hour might be fun/or a change of scenery.... I'll drive....
(but I guess it doesn't matter, as we both learned to drive in New Jersey....... The ride will probably be about the same!) : )
Just needed you to know how often you are in our thoughts and prayers......
Mary
Mary <beadit@wi.rr.com>
Waukesha, WI USA - Thursday, December 20, 2007 7:52 PM CST
Absolutely beautiful....so many people touched and effected by these strong young men. I don't think you will ever know how far Sam and Zach's influence will be felt and shared with others. Thanks for sharing the newspaper article with us.
Laura
Albuquerque, NM - Thursday, December 20, 2007 7:02 PM CST
Anne,
What a beautiful story about the boys. They have touched more lives in their young lives than others who live 70 years. The author and the teacher said it just perfectly. Loved the pics too. Sam and that smile! You could see how much he loved life! Zach, the wise man...always the thinker.
We continue to hold all of you in our thoughts and prayers.
Laurel <Dalsmith@aol.com>
Medford, NJ USA - Thursday, December 20, 2007 6:50 PM CST
Thinking of all of you throughout everyday!
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Thursday, December 20, 2007 6:44 PM CST
Saw the article in todays Milwaukee Journal Sentinel. http://www.jsonline.com/story/index.aspx?id=698675 Another great tribute to the boys. Zach and Sam are rays of sunshine for me always! I still fondly remember Zach telling me I didn't LOOK like I was 50! What a joy to hear that! It keeps me smiling still. May hope and sunshine and warmth fill you. Be well Anne.
Meg <msteimle@chw.org>
Wauwatosa, WI - Thursday, December 20, 2007 12:03 AM CST
Thinking of you every day and holding you close in prayer.
Claudia <cmf@utk.edu>
Knoxville, TN - Thursday, December 20, 2007 10:30 AM CST
You all have been on my mind and yet it is hard to find words to write down. I was thinking about your entry and it made me remember what you said at Zach's funeral. After the day of his wheelchair mishap at West you went into his room and asked him how he was and he said good, like always, and you told him that he wasn't looking all that good and his response was, I know but I am really trying. He got that disposition from you. You are trying to shop and decorate and do and be "good" like Zach and yet your heart is broken and you have experienced loss on a level that most of us will never understand. You and your family are so inspirational in how you can face each day whether with tears or smiles--you face it. You all have touched the hearts of my family in profound ways. There is hardly a day that goes by that Sam or Zach are not spoke of. The orange shirts get worn weekly and almost always lead to a conversation about one of your precious boys either by our family or people that we meet who ask about the shirt. I hope you feel the love people have for you and the support that you are not alone. While we can't share in your grief--that is a place that only you know--we can walk with you and hold your hand along the way.
Cindy <kurtcindyb@aol.com>
Waukesha, - Thursday, December 20, 2007 9:51 AM CST
Hi Anne,
Just checking in. Praying for peace and comfort for you and the girls this Christmas.
Love,
Mindy
Mindy Welhouse <mwelhouse3@new.rr.com >
Kimberly, WI - Thursday, December 20, 2007 9:42 AM CST
Oh Anne,
How I can relate to all you write...your feelings mirror mine. I could take your entries and paste them on to Kirkland's page and they'd be perfect. I need to go shopping today but I don't want to. I don't want to be here another long day in this house but I don't want to go out either. I want to organize the chaos around here so I feel more in control of my life but I can't stay focussed enough on anything to really get anything accomplished. I do little bits of stuff around the house and feel like I've accomplished so much yet it's nothing compared to what I know I used to be capable of doing in a day. I watch the Hallmark movies too but am not really there...
I so totally relate to you. Thanks for sharing...I don't feel so 'out there' after having visiting you.
Hang in there,
luv Kelly and ^Angel Kirkland^ xoxoxo
Kelly Kilbride <kilbridek@yahoo.com>
Georgetown, On Canada - Thursday, December 20, 2007 8:09 AM CST
Anne,
Thinking of you this evening. You put into words beautifully what grieving is like some days you can't stop crying and other days you wonder how it could be that you actually laughed.
Know that you are always in our thoughts and prayers.
The students of Bulter are a testament to Zach and his wonderful spirit.
Donna and ^Kyle^ Noble www.caringbridge.org/oh/kyle <donnanoble2001@yahoo.com>
Grove City, OH USA - Wednesday, December 19, 2007 8:31 PM CST
Dearest Anne and Family.
Thank you again for sharing your love and caring that you have for both of your lovely boys and also your girls.
And we in the outside world appreciate the time that you took to let us know all that was going on during the hardest times in your life.What great school your children attended.I hope the holiday brings back lots of fond memories too of your two angels.tears are for healing allow your self that and don`t feel like your uncaring on the days that you are able to function some what near normal cause that the way life is suppost to be. Your girls also are so special and I know they bring you comfort
Your lives are inspiring to me.Your mothers poem was very nice and sums up the seasons of grief very well.I wrote a poem many years ago called The Seasons Of Time which was read at my mother funeral in 1983 Your mother`s poem reminded me of it.Take care Anne and Family allow your self`s all the time you need to grief and recover from such a long and painful road. Your always in my prayers
Sincerely Cousin Lynn and Family
lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Wednesday, December 19, 2007 6:46 PM CST
Anne, we are praying for you and your family's aching hearts--I can't even imagine how hard it must be missing both your boys Zach and Sam...I do know that what you write here of them keeps them so alive in our minds...We recognize that a pain so strong can only mean there is that love so strong...please be kind to yourself in the days ahead and know that we pray for you and your family to feel the boys' laughter and love every moment until you see each other again...
A beautiful tree at Butler...firmly rooted and reaching for the sky...We will remember your valiant boys always~
GreatBigHugsLovePeace-n-Prayers, The Olsens <olsens5@wi.rr.com>
Waukesha, WI - Wednesday, December 19, 2007 10:18 AM CST
Dear Anne:
I am the parent of a 15 year old daughter Tessa with Mitochondrial disease and know of you and your family throught the Mito yahoo groups. Although, we have not met in person please know that we are so very sorry for the loss of Zach. My heart goes out to you.I have no words that can express condolence for your unimaginable losses. In reading your sons' caring bridge sight I am very struck by the sense of love,humor and family that shines from the pages of the journal. Our thoughts and prayers are with you all.
I have always been impressed by the helpful information you have provided to families through your postings.
Best wishes,
Holly Robbertz and family
Holly Robbertz
New Albany, OH US - Wednesday, December 19, 2007 8:25 AM CST
Something I wrote a couple months ago and just found tonight....
Zach,
This is for you to read when you get better.
Things you should know:
1) You are so loved by so many people. In the past few weeks, you have had SO many visitors at the hospital and many more have been reading your CaringBridge page every day. There are people all over the country who pray for you all the time- even people who do not know you. You are practically famous! But seriously- I don’t know anyone who has more fans than you do.
2)You are so strong. Sometimes you feel like you don’t have very much energy and you feel very weak, but that is just physical because you have the strongest personality in the world. You have gone through more than any of your friends and more than most people will in their life. But you NEVER complain. That, my friend, is proof of your strength. Every time you get really sick, you keep fighting and fighting until you get better. When you don’t feel good, you still manage to joke around (or make fun of me!)
3)You have a GREAT sense of humor- very sarcastic like your good ol sister Brittany! And those practical jokes- oh how funny MANY YEARS LATER! You know what is the funniest? When you play practical jokes on OTHER people- like the nurses or Abby or mom. But honestly- you make me laugh. I often repeat the things you say and do to my friends.
4)You are so talented- your artwork is AMAZING. To let you know a little secret….you could probably make a lot of money off of your art if you really wanted. People love it! Me and Daddy can draw, but YOU can do sculpting and ceramics, paper mache, collages, painting, and probably any other kind of art you could think of. I hope when you get better you will find the time to make a lovely decoration for your sister’s college apartment- it needs some brightening up.
5)I miss you so much when I am at school and right now while you are sick. Every day I wish I could be playing cards with you. You know how I love Rummy 500. Or tetris- although that is not something we can do TOGETHER exactly- just something we can steal from each other. I even like when me you and Abby do the three person Pacman game. I miss having you make fun of me for taking too long to get ready and I miss arguing with you over what movie to watch. I have SO many plans for when you get better of things we will do together. Maybe you will be able to come to Minnesota and visit me this year. So even though I don’t call as much as I should, I DO miss you.
6)This letter is to cheer you up- NOT to be used against me in an argument. Got it? Just kidding!
There is a lot more I COULD say but do you REALLY want to read that much? It would feel like homework if I made it TOO long!
Love you little brother,
Brittany Elise Juhlmann- the ONE and ONLY (haha)
Brittany
Minneapolis, MN - Wednesday, December 19, 2007 1:49 AM CST
Oh (((((Anne))))...there are just no words... you describe one foot in front of the other..one step at a time...so very sorry for this incredible heartache...you remain in my prayers...
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Tuesday, December 18, 2007 9:46 PM CST
thinking of you...
LeeAnn <ajz3@bellsouth.net>
Savannah, GA - Tuesday, December 18, 2007 8:08 PM CST
Dearest Anne,
Such amazing tributes to two amazing boys who touched so many lives. We pray for you always and so wish that you did not have to go through this. Thank you for continuing to share the service with us and know that there are many people who love and care about you.
Laurel <Dalsmith@aol.com>
Medford, NJ USA - Tuesday, December 18, 2007 3:14 PM CST
Dear Anne and family,
All of our children have been in school with Zach and Abby at one time or another. Even though they don't hang around together, your family has touched ours deeply. The love and faith that you carry shines out to all who see you together. Our hearts break for all the loss you have suffered, but we do also rejoice with you in the knowledge that Sam and Zach are brightening up heaven while they wait for you to join them there. We continue to pray that God will hold you and comfort you throughout all your days. God bless you, Rose and Jeff Martin, Andrew, Alexandra, Annalyssa and Anastasia
Rose Martin <roseandjeff@tds.net>
Waukesha, WI USA - Tuesday, December 18, 2007 8:55 AM CST
Anne, I am thinking about you every day,but especially today. I think what the kids at Butler did is so beautiful for Zach. I also hate grief...
Much love and prayer,
Deb
www.caringbridge.org/visit/connorscott99
Deb Millard <sdcm@optonline.net>
- Tuesday, December 18, 2007 7:32 AM CST
Anne, just wanted to say I found this most recent post of yours so moving. It's truly inspiring to see the positive responses to Zach's passing as evidenced by his former classmates and other tributes to him - the planting of a tree in his honour is just one example. To lose both your sons to the same disease is truly tragic, but I hope and pray you will come to terms with their loss through the knowledge that they both touched other people's lives and were a true inspiration to so many who knew them, and knew of them through CaringBridge. Have as good a Christmas as you can, knowing that your boys are looking down on you from Heaven with loving smiles.
Love from Nigel XXX
Nigel Burrell <bosca@mondopippi.fsnet.co.uk>
Ely, Cambridgeshire, England - Tuesday, December 18, 2007 4:51 AM CST
Anne,
Just wanted you to see what I came across in Webgrader. Many people at Butler are thinking about Zach. What a great kid who touched a lot of lives! Who knew purple would be the "in" color in middle school? :^)
Subject: Daily Announcements - 12/13
Date: 12/13/2007 9:02:00 AM
BUTLER MIDDLE SCHOOL
DAILY ANNOUNCEMENTS
Thursday, December 13th, 2007
STUDENTS
WOW!!! Nice job on coin wars. All proceeds from Coin Wars will go to Children’s Hospital and a planting in Zach Juhlmann’s name. Purple was Zach’s favorite color – so in honor of Zach let’s wear purple tomorrow!
Beth Cobus <cobusfamily@juno.com>
- Monday, December 17, 2007 10:41 AM CST
Thinking about you all,holding you up in prayer and wishing there were words that could be said to comfort.
Cindy <Kurtcindyb@aol.com>
Waukesha, - Sunday, December 16, 2007 10:20 PM CST
Just checking in to let you know that you are all in my thoughts.
Laura
Albuquerque, NM - Sunday, December 16, 2007 9:30 PM CST
Anne,
Just checking in to say hi and let you know we are thinking of you all.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Sunday, December 16, 2007 5:48 PM CST
Anne,
Just wanted to stop in and leave a quick note to let you know that I will never know what it means to loose a child, but I grieve with you and am praying you find peace and some joy this Christmas with the boys in heaven. God Bless you all!
Love and Hugs and Prayers!
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, December 16, 2007 5:05 PM CST
Hi Anne,
I'm here with you...as are our babies up in heaven.
luv Kelly and Angel Kirkland xoxoxo
Kelly Kilbride <kilbridek@yahoo.com>
Georgetown, On Canada - Sunday, December 16, 2007 11:55 AM CST
Just thinking about you and wondering how you are doing. I have been reading your website lately and have really enjoyed getting to know your family better. Sammy and Zach were truly special boys and I am privileged to be able to read about them... Thank you for sharing the things you have been. We continue to pray for you.
www.caringbridge.org/ia/mitomomof9 (Asenath and Zipporrah)
Darla Klein <honeybear50317@msn.com>
Des Moines, IA USA - Saturday, December 15, 2007 11:46 PM CST
Dear Anne, I was driving in the beautiful snow today and suddenly Sam and Zach came into my mind and I wished they could be here to see how pretty and Christmasy everything looked. Then I thought how your family must be suffering this holiday without your beautiful boys. I hope this doesn't upset you [I know you're suffering all the time] but I just wanted to share how your sons can just "pop" into a person's mind at anytime. I think of Sam laughing at the reading table, so full of life and love. Well, I won't go on but just wanted to reach out to you.
Donna Brooks <daniel8546@sbcglobal.net>
Waukesha, WI - Saturday, December 15, 2007 5:03 PM CST
Dear Anne
Thanks for sharing some of Zach's memorial service with me, I wish I could have been there. It is wonderful so many people came, old pre-school teachers, hospital staff etc. Zach was so loved and that was so evident at his memorial service. What Abby wrote about her brother was beautiful They had such a special relationship, I love the pictures of them together. I just want you to know you are in my thoughts and prayers everyday.
Ann Marie Gleason <agleason130@yahoo.com>
Denvile, NJ 07834 - Saturday, December 15, 2007 1:04 PM CST
Thinking of you. So sad to read the school system had "deleted" Zach from the computer database. We've had similar things- not school systems- but other things that list us as having "just one child" or "since Carter is an only child." It hurts to hear- as if people are denying our other child existed. WE ALL know ZACH AND SAM will live in the hearts and memories of so many. Two of the most amazing boys- I love reading all of their stories and about your memories with them.
Holding you so close in my heart, Anne.
Love,
Leslie
Leslie Reynolds <rey7@bellsouth.net>
Roswell, GA - Friday, December 14, 2007 9:27 PM CST
Thanks for continuing to share with us. I love what Abby had to say. What a wonderful daughter you have. It is touching to see the love everyone has for Zach. Know you remain in my prayers and thoughts daily.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Friday, December 14, 2007 8:28 AM CST
I wish Bill would come back from his trek through no plumbing, no internet land because he always seems to have the right words to say. I don't Anna...just that I love you. And I am so very touched by what Abby wrote and then said. She is a beautiful girl inside and out like her Mama.
Love,
Jackie
Cherry Hill, NJ - Friday, December 14, 2007 0:18 AM CST
I think about you everyday. I love this verse you posted:
“But those who trust in the LORD will find new strength. They will soar high on wings like eagles....
How true....
Our boys are doing just that
Darla Lindenmayer , Angel Matt's Mom 7-3-90- 4-22-04, www.caringbridge.org/in/angelbarneyboo <littlesisdarla@aol.com>
Va - Thursday, December 13, 2007 8:11 PM CST
Missin' you today Zach....
Oh and Donna's cookies...those ARE the most wonderful cookies!!!! You cannot describe how good they are in words!
Hope <hmpatchak@yahoo.com>
Milwaukee, WI - Thursday, December 13, 2007 5:00 PM CST
Dear Anne,
You know that old saying "hindsight is better than foresight". That's because when you look back, you have more info then when looking forward. I am sure you have questions, anyone would, but you ALWAYS made the best decisions for the boys with the information you had. You always kept the whole of them in the forefront of your mind. They knew that and loved you for it. Zach and Sam would not want you feeling bad or questioning yourself because they know you did your best and how much they were loved.
Anne...thanks you so much for your beautiful words and sharing the boys with us. Seems like writing runs in your family.
Know that you are loved by many and prayed for often.
Laurel <Dalsmith@aol.com>
Medford, NJ USA - Thursday, December 13, 2007 2:47 PM CST
Thank you for continuing to share Zach's life with us. I am moved to tears with every new entry....what a wonderful and beautiful boy. Our hearts just ache for all of you. I pray your nights shorten and that you are able to sleep.
Kris, Paul, Cole, and Zack Vajda <pnkntwins@charter.net>
- Thursday, December 13, 2007 11:55 AM CST
Dearest Anne, I can most certainly relate to the could've, should've, would've issue. It's so easy to question our decisions as parents. I know I have gone back through each decision and wondered... But after all that doubt and all those concerns, I have really come to the conclusion even more resolutely that we absolutely did the best we could and made the best possible choices for our son. I know you did the best you possibly could for Zach as well. Sometimes it takes a lot of doubt and questions to come to that. I am praying that you'll be able to be at peace with it. Sooner rather than later my friend. You are a fantastic Mom. Believing and knowing this in your heart of hearts can sometimes be difficult. But, it is so very true, and I hope and pray that you can feel and know the truth. You are loved and prayed for so deeply. Please know that I am here for you any time. With much love
Deb
www.caringbridge.org/visit/connorscott99
Deb Millard <sdcm@optonline.net>
- Thursday, December 13, 2007 10:18 AM CST
And remember to be gentle with yourself. Remember that with hindsight you have more information but it is still not complete information and there is no way of knowing what twists and turns would have occurred if you chose differently. You never once approached decision making for your sons with anything but the strongest sense of importance at the duty. Not once.
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Thursday, December 13, 2007 10:07 AM CST
Anne -
It meant so much to be with you in the days before the service. It was a privilege both to help document the joy Zach found throughout his life, and to be with your family. It was amazing to see the number of people who wanted to honor and celebrate his life. Thinking of you and Zach daily. He will never be erased from my heart. Neither will Sam.
Love,
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Thursday, December 13, 2007 10:02 AM CST
Dearest Anne and Family,
Celebration of life what wonderful words,cause your two boys did in every sence celebrate their lifes and taught alot of us to remember to do the same.It`s hard because most of us get caught up in the everyday stuff to much. Glad to know you are slowly moving forward ,and stepping out of the house was a big one. Sorry that like you said your son`s name was gone from the school roaster so soon ,like he never was. That sort of puts it in to much of a black and white situation.Your sonzach will all
ways be bigger then life to me and also will your son sam even thought I never knew him sam I mean till he had passed away .through you I feeel like I knew both yours boys and the rest of your family forever.Thank you for that. Take care.
Cousin Lynn and Family .
lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Thursday, December 13, 2007 9:55 AM CST
Thinking about you all and knowing that putting one foot in front of the other can't be easy. Hannah is working on a speech for school. It has to be about someone who faced a monster, what the monster was and what qualities the person had that helped them face it. Zach and Sam came to her mind immediately. She has chosen to talk about Zach. We will share the final product with you as of now it is just rough notes. As she was talking to me about it tonight though I was amazed at how she saw Zach as he was. Sickness did not define him to her--she didn't see him as a person with an illness but as this incredibly strong, brave, positive boy who lived life to the fullest and happened to share her passion for video games!
Cindy <Kurtcindyb@aol.com>
Waukesha, - Wednesday, December 12, 2007 10:31 PM CST
Anne, just stopping by to let you know that I was thinking of you, Zach, and Sam. Many prayers for strength and peace. God Bless
www.caringbridge.org/oh/skyecoleycole
Tamm <Tamm06@aol.com>
- Wednesday, December 12, 2007 6:30 PM CST
You are so lucky to have that beautiful email to hang on to for the rest of your life! Praying for your family.
Kim Panitzke <kimpanitzke@yahoo.com>
Sauk Centre, MN - Wednesday, December 12, 2007 3:34 PM CST
Hi,
I just wanted you to know that I am thinking of you and your boys and girls daily. I find myself telling Zach and Sam's story frequently - they are such inspirations.
anne reckling <areckling@aol.com>
- Wednesday, December 12, 2007 10:39 AM CST
Hi Anne,
I just wrote a long note, only to delete it...as I cried my way through it..you understand. I will email you soon, thanks for your kind words.
Zachs email just made me weep...such an adorable young man...I can't imagine your pain at losing two beautiful children....I have only lost one...and still have trouble breathing...
Congrats on leaving the house, seriously, that is HUGE...some people may think nothing of it...but it means you will survive and thrive (someday)
My heart goes out to you. A day doesn't pass that I am not sending thoughts and prayers your way.
God Bless you my friend,
Elizabeth
E.Westbrook <ewestbrook@wi.rr.com>
- Wednesday, December 12, 2007 10:37 AM CST
Anne,
We pray for you all everyday! We have Zach's picture on our refridgerator and we talk about him all the time with our girls. My daughter likes to look at the pictures on the web site of you all and she thanks God every night that Zach is not in pain anymore and that he's with his brother, Sam in heaven. With Love,
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Wednesday, December 12, 2007 9:19 AM CST
Anne, thinking of you and praying for you today, every day. We wanted to let you know this never stops. We love you,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Love the pic of Zach on the home page!
Millards <sdcm@optonline.net>
- Wednesday, December 12, 2007 6:29 AM CST
Anne, Lou and girls,
Just read Zach's letter to you and Tom's note. Zach's letter was beautiful, and as insightful as any of my former onco patients would have been. The difference is that Zach was able to say good bye to you, something that most kids usually don't do. That's something that you will always remember and sure to get you through all the hardships. I'm still thinking of you all, sending my prayers and thoughts. (I'm also particularly frustrated by the current state of mito medicine as i've had a patient "across the river" who is not receiving appropriate care despite my best efforts which makes dealing with this disease even harder for me). I will never forget when you came back to Medford several years ago, and hope that should you come back east for a visit, that we can get together for a little while.
And from my former occupation, though this is harder for me now because of Rhys, I know the next year a few months will be very difficult with all the anniversaries (b'days, etc). But I also know that you will find the strength to get through them all and you have a lot of support from everyone here (and I'm certain from Teri, Jeanine, as well as all the other "oldtimers" that i've seen in your guestbook). As Mickey Donaldson, my mentor, trained me, the only way to deal with this is head-on, and from what I can see, you're doing well. I only hope that Lou is OK too, for many of us forget the fathers, trust me, I know.
Again, my heartfelt sympathy, and know that you can reach out to me at any time.
Ken
Ken <mitodad@hotmail.com>
Bordentown, NJ USA - Tuesday, December 11, 2007 10:42 PM CST
Anne-
My Mom and I made pumpkin bread on Sunday and I took it to work on Monday to share with everyone. I hope it tasted as good as Zach's did. Please know that you are in my thoughts and prayers. Grayson and I promise to visit soon- especailly if it ever stops snowing!!!!!
Love-
Melissa and Jim and Grayson too
Melissa
- Tuesday, December 11, 2007 9:47 PM CST
Just checking in to let you know we are thinking of you all.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ - Tuesday, December 11, 2007 8:46 PM CST
Hi, Anne and family~I regret that I could not make it to Zach's memorial service, but, please know that my thoughts and prayers are with you. My heart goes out to you and your family in this very hard time. I didn't know Zach personally, but kept up with reading on this site and can tell he was quite a boy. I know he'll be missed!
Terilyn O-M Peterson www.caringbridge.org/visit/jacksonbradley <irishgemini@gmail.com>
Merrillan, WI - Tuesday, December 11, 2007 7:18 PM CST
Anne - It was a privilege to care for Zach as a baby. I wish I had been able to watch him grow, by all accounts, into a courageous, joyful child and teen.
Tom
- Tuesday, December 11, 2007 3:51 PM CST
I am a stranger, but your son's life has touched my family's heart with his heart of gold, his ability to look Mito in the face and still have a smile on his and how extraordinary his family is.
Your family will always be in our hearts and on our minds.
Monica Witt and Family <monica_witt@hls.ml.com>
- Tuesday, December 11, 2007 3:35 PM CST
Ann,
I know Lauren has expressed how we feel for you and your family.I came to this site from an e-mail lauren sent. I just wanted to tell you how I feel. How hard it is to go through this, I know a little bit. I can't express the prayers of groaning that I can only offer.
Kevin <fitzy5@actionautoonline.com>
Atlanta, GA - Tuesday, December 11, 2007 1:47 PM CST
Hi Anne,
I saw Zachary's obituary in the Sunday paper last weekend or so and I cut it out to read the website. I have 4 children 2 boys (of which one is named zachary) and the other is Daniel and I have 2 girls.
I can't imagine how you must feel losing 2 sons to the same disease, but know my thoughts and prayers are with you and always will be. I believe your boys are together in Heaven and at peace and watching over you and your family.
I will always say a special prayer at church for your boys.
Take care,
Summer
Summer <Summer.Horbinski@dhl.com>
Cudahy, WI USA - Tuesday, December 11, 2007 10:25 AM CST
Anne:
Your amazing strength and storytelling will always keep the boys alive in our hearts and minds. Thank you for sharing your heart and soul with us - I only hope it helps in your grieving process. You are in my prayers and will be forever; I'm guessing that's how long you will grieve. I only hope time will lessen the grief and your loving, funny and warm memories will carry you through.
Karen <kschaefer2@sbcglobal.net>
- Tuesday, December 11, 2007 10:15 AM CST
stopping in, thinking of you and sending prayers and hugs..
LeeAnne
Leeanne Bye <allenleeannebye@aol.com>
NJ - Tuesday, December 11, 2007 9:23 AM CST
My thoughts and prayers are with you and your family. Your sons have touched so many...their courage, love, laughter and love for life. These boys are and were a very beautiful blessing. God Bless you and your family, you are in our prayers!
There is a web site that has wonderful uplifting music-WAY FM.com.
Cathy Boehm <cathyboehm@verizon.net>
Walple, MA USA - Tuesday, December 11, 2007 9:02 AM CST
My thoughts and prayers are with you and your family. Your sons have touched so many...their courage, love, laughter and love for life. These boys are and were a very beautiful blessing. God Bless you and your family, you are in our prayers!
There is a web site that has wonderful uplifting music-WAY FM.com.
Cathy Boehm <cathyboehm@verizon.net>
Walple, MA USA - Tuesday, December 11, 2007 9:01 AM CST
Anne, Thanks for sharing Zach's email. It reminds us of the importance of remembering and cherishing and love. Zach continues to be inspiration and hopefullness in this time of change and re-defining life. My prayers and thoughts continue during this time of grief and wandering.
Meg <msteimle@wi.rr.com>
- Monday, December 10, 2007 10:37 PM CST
Anne,
Thank you so much for sharing that precious email that Zach wrote. I think it really exemplifies him so much; sweet, articulate, thoughtful and kind. I am praying for you and so many parents who have survived the loss of their children. I can only imagine your heartbreak, I hope that knowing how many people care about your family and truly feel inspired by your boys brings you a little comfort.
sincerely,
Oula Haddad
Oula Haddad <jhaddad1@yahoo.com>
Silver Spring, md - Monday, December 10, 2007 9:24 PM CST
Anne,Even now in all your sorrow you continue to amaze me with the power of your written word. You have touched so many by sharing your life with all of us, even those like me who have never met you. I truly hope that you will consider compiling all of these journals into a book, a tribute to your boys. That way their stories and the way they have touched so many can bless even more people for years to come.
God bless and know our prayers are with you always.
Lisa mom to AJ age 6 mito
Lisa <lisa_cannuli@franklin.com>
Moorestown, NJ - Monday, December 10, 2007 9:03 PM CST
Thinking of you. Hoping you are finding the energy to do what is necessary each day. Hoping that you are being gentle with yourself. Sending love . . .
Kathy
Kathy Corley <corleyfive@comcast.net>
- Monday, December 10, 2007 9:01 PM CST
Anne,
I wanted to let you know I was glad to be able to see Zach at the visitation. I would see him at Butler, and to be able to say good-bye meant a lot to me. I loved his art and the stories of others. He was an amazing kid, like his bother. You and your family are in my prayers always.
Teryl O'Grady
Waukesha, WI - Monday, December 10, 2007 2:06 PM CST
Your family continues to be in our thoughts and prayers daily. May Our Lady of Sorrows comfort you as you walk through these dark days. Zack has been such an inspiration to me, even though we never met. You should be proud to have such beautiful, loving children.
Roxy Rubinic (friend of the Nobles) <mrubinic@juno.com>
Hilliard, Oh - Monday, December 10, 2007 11:33 AM CST
Anne:
What you wrote in the journal is beautiful, as always. You state things so well. I love to read your stuff. Just wanted to let you know that I said a prayer for your family with my 7th grade Sunday School class and had a few moments of shakey voice as I prayed for your family. Also, Zach immediately comes to my mind as Parker, (my 15 year old) was at Toys r us with Leah and comes to me and said "Mom, I want the Star Wars Risk game version." I couldn't help but smile and think of Zach and had wished in a previous time that our two boys could have met. Glad you got out of the house. One step at a time.
Lisa Nerenhausen
mom to Leah
Lisa Nerenhausen <lnerenhausen@new.rr.com>
Appleton, WI USA - Monday, December 10, 2007 11:04 AM CST
Anne, Just checking in and wanting to let you know that I think of you and Zach and Sam daily. We will not forget. Thanks for continuing to share stories of Zach and Sam and also sharing your pain. It's a hopeless feeling on this end, knowing that I cannot take any of that pain away, but I pray for peace to come to your heart.
Julie T. <jturkoske@wi.rr.com>
Waukesha, WI - Sunday, December 9, 2007 11:29 PM CST
Anne, thank you for sharing with us and know that you remain in our hearts, on our minds and in our prayers... Sending you my love Anne and thoughts. I so wish there were more I could offer. Zach's email is precious; so honest, sincere, loving...so Zach.
HUGS and prayers continue,
LeeAnne, Sammi and family
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Sunday, December 9, 2007 10:08 PM CST
Anne,
Thanks for sharing such a beautiful letter from Zach. Like so many of our special children, he was wise beyond his age. He obviously has his Mom's gift for writing. Your stories about your boys always touch our hearts. Thanks for always being so willing to share them with the world.
We continue to hold you all up in prayer and send lots of love your way.
Laurel <Dalsmith@aol.com>
Medford, NJ USA - Sunday, December 9, 2007 9:25 PM CST
Anne,
Zachary and Seth are still praying for Zachary and Sammy. Tonight they prayed that the snowman they built in memory of Zachary (has a light saber in his hand) will not melt, adn that Zachary has found Sammy and Andrew in heaven and they are having fun. To be young and not realize that going to heaven means never coming back to earth...Anne, we think of you every night and how much grace you have. I too remember the quiet and wanting some noise, I wish I could send my kids... then you would wish for the quiet.
:)
Sherry Bishop <sbishop@kcc.com>
Appleton, wi usa - Sunday, December 9, 2007 9:25 PM CST
Anne, What an incredibly sweet and loving boy Zach. His words are strong. He knew that Love and expressing it is truly important in life. He forged a bond of love to each of you like no other. Know that in the stillness of the days ahead you WILL feel him and hear him in your heart--he will forever be there until the day you meet again in Paradise...Just want to send you GreatBigHugs from one mother's heart to another...Praying for each of you, Zach's "be loved" ones...
PeaceLoveHugs-n-Prayers, The Olsen Family <olsens5@wi.rr.com>
Waukesha, WI - Sunday, December 9, 2007 8:38 PM CST
Anne:
Thank you for (1) sharing you amazing children with us and your wonderful memoried; (2) for being an amazing pillar of strength, hope and support for so many of us who look up to, admire you and are in awe of your kindness and strength, even in the face of adversity, amd (3) for sharing all your feelings and thouhgts.
You should be so proud of the amazing children that you raised and that email brought tears to my eyes.
I am so sorry for what you have had to go thru and know that we continue to keep you and the boys in our thoughts and prayers.
hugs,
Sharon and the boys in Maryland
www.caringbridge.org/visit/jakeski
www.caringbridge.org/visit/claytonandcole
Sharon <lawblond7@aol.com>
Waldorf, MD USA - Sunday, December 9, 2007 6:49 PM CST
My dear friend Anne, what a special letter from Zach. What an amazing boy. My heart hurts for you. Tonight we will be lighting a candle for Connor. We will light candles for Zach and Sam as well. They are close to our heart. We know these boys are together now in heaven. The same disease took them, way before their time. They are now finally free of it in heaven... I can't understand this awful disease, and it hurts so much to think of what our children have gone through, at the same time it amazes me how brave and strong and gracious they were as they battled it. Mito did not win. They won, because they were always so strong, so brave, and indeed so amazing. We love you and will continue to hold you up in prayer. If ever you feel like talking, we are here.
Much love
Deb & Scott
www.caringbridge.org/visit/connorscott99
I do believe that the boys are playing with lots of dogs up in heaven... I wonder what they will name them, probably something very creative!
Deb Millard <sdcm@optonline.net>
- Sunday, December 9, 2007 4:35 PM CST
Anne I wish I really knew you so I could put my arms around you and comfort you, or cook for you or something real. All I can do is write words on a computer screen and hope that somehow they will mean something to you. Broken hearted for you is how I feel and thinking of you always. Lifting you up to the one who loves you most.
Donna <donerleg1@yahoo.com>
Lou, Ky USA - Sunday, December 9, 2007 2:44 PM CST
Anne,
I am thinking about you. My family and I will light candles for your boys tonight. We will light a candle for Callie too. We will not forget.
Mike
Anchorage, AK - Sunday, December 9, 2007 1:57 PM CST
Anne, I hope you remember me. I forgot about Princess Dazed One and why we would have named you that. I heard about your boys from a mutual friend. I have thought of little since. I cannot imagine where your thoughts go and how deep your pain is. I am so sorry.
I have never forgotten your laughter, talkativeness and kindness to and acceptance of everyone which you showed even when we were 6. From reading this site it is clear to me that that you have stayed the girl I grew up with and raised children with those same qualities. I laughed when reading about Sam talking so much and Zachary's laughter. Did they know their mom was corrected many times a day for laughing out loud and talking too much in class?
I am so sorry. I wish I could take us back to a time when you did not know sadness like this. I don't know if you have continued with your upbringing but if ever anyone lived a life worthy of placing the May day crown on Mary's head it is you.
Joe (Joey to you)
Philly, PA - Sunday, December 9, 2007 1:40 PM CST
What a special letter from Zach....something to treasure forever!
We will light a candle for Zach and Sam tonight, for the Worldwide Candle Lighting at 7pm. "That their light may always shine".
Marcia, okbabes <marciat@sympatico.ca>
Bradford, ON Canada - Sunday, December 9, 2007 1:15 PM CST
Dear Anne
Thank you for saying for us not to worry about what to say to you. I really just want you to know how sorry I am for your loss and how much I care about you and your family. I know each thing you try to do will take a lot out of you, all you can do is not to be hard on yourself. I have never lost a child so I don't want to give you too much advise, just know that I am praying for you. Thank you so much for sharing that letter that Zach wrote to you. Anne he totally loved you with all his heart, he appreciated you, cared about what you were feeling or if you were hurting and wanted to return something bach to you, like his handmade gifts, etc. I know that Zach gave you so much in just being himself, he was such a beautiful boy. I know maybe he would not like me to refer to him as beautiful, but he was and is. He is in perfect peace now, but that does not mean that you are yet. I know you so much wanted him to make it, I did too. I pay that God will get you through each moment of each day and give you some peace. Anne you are a awesome mom and a wonderful person. All my thoughts and love from a friend from NJ. Thank you again for sharing Zach with me and I do miss him even though we never met. I will keep checking in on you and looking forward to more memories shared about your precious son.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Sunday, December 9, 2007 1:02 PM CST
Dear Anne: Thank you so much for sharing your children with us. Their strength and zest for life certainly puts things in to perspective in many ways. I loved the email. I understand why you say caring for your boys was not a burden. They are true tresures given to you and brought you so much joy and love. I can't imagine how unbearable your loss must be, but take strength in the amazing gifts you and your boys have given to all of us that you have touched. The boys lives have touched me deeply even though I really never knew them outside of what you write about them. God Bless you Anne as you try to make sense of all of this. Know that you are thought of often and are in my constant prayers.
Linda Oleson <loleson@chw.org>
- Sunday, December 9, 2007 9:29 AM CST
I wish I was there to offer to keep you company and make noise in your house. Your sweet boy! That email is a treasure.
Keep hanging in there . . .
Kathy <corleyfive@comcast.net>
- Sunday, December 9, 2007 7:41 AM CST
Anne, I am so sorry for your loss. I was unable to make it to Zach's service but you and your family have been in my prayers. You ARE the true definition of a mom. The dedication and love you show your children is an awesome gift. As you think of Zach and Sam each day, smile, and know that they would want you to.
Tami, PICU RN <tamiblock@sbcglobal.net>
- Sunday, December 9, 2007 5:42 AM CST
Dear Anne,
Tomorrow (Sunday, December 9) is the Compassionate Friends Worldwide Candle Lighting. The candle lighting unites family and friends around the globe as they light candles for one hour to honor and remember children who have died at any age from any cause. As candles are lit at 7:00 p.m. local time, hundreds of thousands of persons commemorate and honor children in a way that transcends all ethnic, cultural, religious, and political boundaries. You can go to www.compassionatefriends.org and click the candle logo.
Candles
Our candles are reflections of our grief
The pain of loss is intense
It reminds us of the depth of our love
Our candles are reflections of our courage
To comfort our sorrow
To comfort each other
To change our lives.
Our candles are reflections of our memories
For the times we laughed
For the times we cried
For the times we were angry with each other
For the silly things we did
For the caring and joy we had
Our candles are reflections of our love
To cherish that special place in our hearts
That will always be reserved for them
To thank them for the gift that their lives
Brought to each of us.
We will light a candle for Sam, Zach and our sons who passed long before us. Continuing to pray for you and yours...
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, December 8, 2007 5:52 PM CST
Anne-
Thinking of you and Zach today. Hoping and praying for you everyday. You and your family our heavy in our hearts.
Love to you all.
Megan and Alex
Megan Reid <dmreid1994@sbcglobal.net>
- Saturday, December 8, 2007 2:12 PM CST
Thinking of you . . .
Love,
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Saturday, December 8, 2007 10:03 AM CST
Anne,
Just letting you know that you and your family are in my thoughts, in my heart, and in my prayers...
You are such a wonderful mother Anne, truly, the boys were as blessed to have you as you were to have them. The girls too of course.
Sending lots of hugs your way,
Heidi and the Idaho boys
- Saturday, December 8, 2007 8:40 AM CST
Dear Anne,
I just wanted to let you know you are continually in my heart and my thoughts. I know how hard this Christmas season is for us. You are in my prayers. May God grant you some peace and strength.
Love,
Suhad Haddad
Suhad Haddad <suhad88@hotmail.com>
Granada Hills, CA USA - Friday, December 7, 2007 11:09 PM CST
Anne,
You are continually on my heart, mind--I'm praying for your family.
Full of Care--
Concern. . .
love-
Sh
Floyds Knobs, - Friday, December 7, 2007 7:18 PM CST
Dearest Anne and Family,
Just wanted you to know you are in our thoughts and prayers now as before. Allow your selves the time to grief and time to laugh for as your griving you`ll remember some thing to make you laugh that Zach did or Sam ,cause these memories are entertwined and can not really be seperated as they are one with each other.
Take Care God `s blessings on all of you.
Cousin Lynn and Family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Friday, December 7, 2007 4:16 PM CST
Anne,
You have had to bear so much and always you have done so with grace. I have this picture in my head of Jack and his family playing with Sam, Zach and Callie on the beach. But that picture does not seem to ease the pain of knowing that your path has once again led you to the darkest part of the woods. I will be back in the states by Christmas.
Billy
- Friday, December 7, 2007 11:57 AM CST
Anne...
Just checking in to see how you are doing. You are all in our thoughts and prayers. I can't imagine how quiet and still your house is now. But I know that your beautiful boys are alive in your heart. I know that God will give you the strength to get through each day, and sometimes each minute of the day...just as he did so many times when the boys were with you.
Love to all of you...
Laurel (Dave and Jamie too) <Dalsmith@aol.com>
Medford, NJ USA - Friday, December 7, 2007 10:53 AM CST
(((((((Anne))))))) sending hugs and prayers...
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Friday, December 7, 2007 10:16 AM CST
Anne-
I am sending prayers to you and your family. We have never met but I want you to know that you and your boys are in my thoughts and heart always. Zach's spirit will always be alive.
gwen <gwenabele@hotmail.com>
waltham, ma - Thursday, December 6, 2007 7:11 PM CST
As your home quiets, and you are alone with your thoughts, be encouraged dear Anne, that your tears are valued and shared by us all. Take comfort that just as Christ, is our mediator with God, He also, being physically present with Zach and Sam, is the sweet bridge between your hearts. May His sufficiency carry you through the quiet. . .
Cyndi Fischer
- Thursday, December 6, 2007 6:19 PM CST
Anne...
Thinking about you all.
Laurel <Dalsmith@aol.com>
Medford, NJ USA - Thursday, December 6, 2007 5:29 PM CST
Dear Anne and Family
I really don't even know what to say to you, so I will just say I am praying for all of you. You gave your son everything and I know it was because you loved Zach more than words can say. I can see that in each word you ever wrote about Zach or Sam, or your girls. Zach is missed my many, including me. Thanks for writing, we all care about each of you.
Love
Ann Marie
Ann Marie Gleasn <agleason130@yahoo.com>
Denville, NJ 07834 - Thursday, December 6, 2007 4:08 PM CST
Hi, Anne,
Just thinking of you and sending lots of love and support. Thinking about Zach and Sam daily.
Cindy Cruz
- Thursday, December 6, 2007 3:46 PM CST
I keep thinking of you and Zach and Sam and their wonderful sisters. The losses are so profound that I don't know what to say except that you and your boys are on my mind many times each day. Zach and Sam!!!!
Anne Reckling <areckling@aol.com>
- Thursday, December 6, 2007 3:33 PM CST
Dearest Anne, Lou, Abby and Britanny,
I just heard from Ken. There are simply no words to express the depth of my heartache at your loss of Zach. May his legacy of love and strength, and the memory of his very unique spirit help carry you through. Please know that both Zach and Sam, in so many ways through the years, touched, inspired and changed many people's worlds. I thank you and them so very much for that.
Love, Jana, Boaz, Noam and Ariel
Jana Ben-Moshe <boazjana@shani.net>
Kibbutz Gezer, Israel - Thursday, December 6, 2007 5:14 AM CST
dear anne,
what beautiful words. those words are so real to me. i know you feel so blessed to have such sweet boys. you are in my thoughts... i am so very sorry.
love,
davonne
moma to my angel karlee beth 11-14-02 8-10-04 complex 1&4
davonne atkins <kipatkins@aol.com>
seymour, tn - Thursday, December 6, 2007 5:13 AM CST
Dear Anne,
We are so sorry for your loss. Please know you are in our thoughts and prayers.
Michelle McCardle and Family
Michelle McCardle <mmccardle@wi.rr.com>
Brookfield, WI - Wednesday, December 5, 2007 10:46 PM CST
Annie,
Today I recieved a note from Sue about Zach. I just wanted you and your family to know that you will be in my prayers.
Take care of yourselves.
Charmaine Cyrus <charms9@centurytel.net>
Wentzville, MO - Wednesday, December 5, 2007 5:36 PM CST
Anne...
Thinking of you today.
Laurel <Dalsmith@aol.com>
Medford, NJ USA - Wednesday, December 5, 2007 11:57 AM CST
Thinking about all of you today in the still and quiet that this day brings. Those of us who have not gone through this can't know the depth of your pain but please know that we surround you and hold you in prayer.
Cindy <cbergland@tds.net>
Waukesha, - Wednesday, December 5, 2007 11:05 AM CST
Anne, I've been thinking so much about you, Zach, and Sam. Thank you for sharing them with us. I will always carry both your boys in my heart. Many prayers for peace, comfort, and strength. ((((((((((hugs)))))))) www.caringbridge.org/oh/skyecoleycole
Tamm <Tamm06@aol.com>
- Wednesday, December 5, 2007 9:01 AM CST
Dear Anne,
Thank you for sharing your feelings with us. You are such an amazing and wonderful human being and I see where Zach got all his wonderful qualities. Like you said you will never get over this, but I pray that God gives you the strength, comfort, and peace that you need and deserve.
Lots of love,
Lori/cp/shelbywood
Lori Wood <woodyou@comcast.net>
Clarkston, MI USA - Wednesday, December 5, 2007 8:15 AM CST
Dear Anne,
We are so very saddened. Zach is such an inspiration for us. We think of you, Zach and Sam every day... and remember to laugh, to be joyful, to persevere, to have courage. Our lives, especially our lives with Jonah, have been so enriched by your generosity of sharing your boys. We are thinking of and praying for you and your family.
Diane, Kiah and Jonah <blackfox@conknet.com>
Deering, NH - Wednesday, December 5, 2007 7:52 AM CST
Hello - You don't know me - I came to your site off another site I visist frequently. My heartfelt condolences go out to you, and your family. To lose anyone we love is devastating, but to lose two children, I as a parent, cannot even begin to imagine the pain you are feeeling. You are obviously a very strong person, and had two wonderful sons, from what I gather. I do believe that God does not give us anymore than we can handle, even though sometimes I'd like to argue that point. Be strong, find peace, and know that your sons are no longer in pain, are healthy young men, spending their time with the most wonderful gift they could have ever been given - God in heaven. Take care, you will be added to my prayers...
Dawn Larson <larson.dawn1@mayo.edu>
Onalaska, WI USA - Wednesday, December 5, 2007 7:44 AM CST
Dearest Anne and Family,
Your empty feeling is now will start to fill up with lots of memories . the pain as you know is always there just in the wings to come foreward at any time,but I hope for you that the joys you felt as a mother taking care of your beloved ones will also come through.You will always be someone I will think of when times get tough because of your love and caring you shared with me through your web site. I wish there were words to help ease your pain now.
But time is the only solious I can offer you.Take care
Allow your self your time to grieve other thinks will wait until you are ready.
You have a great family God bless you all.
Cousin Lynn and family
lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Wednesday, December 5, 2007 7:09 AM CST
Our hearts are heavy for you. I know there is nothing we could ever do or say to lesson the pain...just know that we think of them and you often. I hope you will continue to journal and share memories ot Zach and Sam when you are able...reading about their lives and your insight is so precious to so many of us.
Kris, Paul, Cole, and Zack Vajda <pnkntwins@charter.net>
- Wednesday, December 5, 2007 2:02 AM CST
Anne
I can never know how hard all of this has been for you, but I do care. Everyone of you---Zach, Sam, Abby, Brittany, Lou, and you are in our thoughts and prayers. The best brothers are together again laughing, playing, loving, and talking about what a GREAT mother and family that they have. They both knew how wonderful you were, and the Love was expressed in their smiles, laughs, etc.
PLEASE try to keep your chin up and although it'll be very hard, try to carry that smile of theirs and yours with you each day.
My heart continues to break for you and I know yours is broken too. Someday it'll heal, but for now though know that each of us is there for you. I wish that we could be there physically if only to make noise. Since I'm not, please know that I'm a phone call away.
Sent with love and hugs,
Karen Nelson <KMNelson86@aol.com>
Sanford, NC USA - Wednesday, December 5, 2007 1:33 AM CST
Anne,
Zach's memorial service was beautiful - it really embraced who he is and always will be in our hearts. The strength and courage of each family member who spoke in turn was heartbreaking, but also heartening as I listened to people who love Zach speak of him with such truth, admiration and affection.
I am humbled to have known and worked with Zach and your family for all of these years (I think it's about 8 years - I can't remember). There is a void in my heart that I don't think could ever be filled. Thank you for sharing him (and Abby) so willingly with me.
Lou reminded me that I loaned our Star Wars movies to Zach which probably kick-started his interest in the movies. My apologies : ) I really enjoyed sharing the music and talking Star Wars trivia with him. It was truly a highlight of each week to spend time with Zach.
With sincere sorrow and sympathy,
Nancy D-S
Nancy Dexter - Schabow <ndexschabow@hotmail.com>
Hartland, WI USA - Tuesday, December 4, 2007 11:49 PM CST
Anne,
I will be praying for you, praying for the moments to pass quickly. The void of not caring for your beloved Zach will be huge..I understand what you are saying. After Laura died, I was lost..had no idea what to do with myself. I also agree about the time passing, it gets better, yet it doesn't. Oh, how my heart aches for you...I will keep you close to heart and mind, sending strenght to you.
Elizabeth Westbrook
Elizabeth Westbrook <ewestbrook@wi.rr.com>
- Tuesday, December 4, 2007 9:00 PM CST
thinking of you with tears in my eyes today. I will pray for strength for you and your family in the coming days weeks and months...
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
phoenixville, PA - Tuesday, December 4, 2007 6:52 PM CST
Anne Thank you...
Carrying you and Zach in my heart .....
Thinking of you, heavy on my heart..
God Bless,
LeeAnne
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Tuesday, December 4, 2007 5:47 PM CST
I am home now, but while I sat in the airport waiting on my flight I thought of you and your wonderful family at this morning's ceremony. Thought of you over and over again throughout the day, and will be thinking of you tomorrow as well. Zach was loved---so are you!
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Tuesday, December 4, 2007 4:36 PM CST
Dearest Anne and Family,
You have been in our hearts all yesterday and today. We thought of Zach and his love of Star Wars as we honored him last night. As Darth Vader was dangling and Luke Skywalker hung onto him, I was reminded of your story of the Darth Vader balloon in Zach's room and how it made us all laugh. Even in the darkest hours, you were able to find humor.
We can't imagine the pain and emptiness you are feeling right now with everyone leaving. Zach and Sam were so blessed to have you for a Mom. Your knowledge and insight were such a gift to them and I know that part of the reason that they were such shining lights is because they got strength from you, Lou and the girls.
We will always hold the boys and the lessons they taught all of us close in our hearts.
love
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Tuesday, December 4, 2007 3:41 PM CST
Dearest Anne and Family,
You have been in our hearts all yesterday and today. We thought of Zach and his love of Star Wars as we honored him last night. As Darth Vader was dangling and Luke Skywalker hung onto him, I was reminded of your story of the Darth Vader balloon in Zach's room and how it made us all laugh. Even in the darkest hours, you were able to find humor.
We can't imagine the pain and emptiness you are feeling right now with everyone leaving. Zach and Sam were so blessed to have you for a Mom. Your knowledge and insight were such a gift to them and I know that part of the reason that they were such shining lights is because they got strength from you, Lou and the girls.
We will always hold the boys and the lessons they taught all of us close in our hearts.
love
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Tuesday, December 4, 2007 3:41 PM CST
Dear Anne, Lou, Brittany and Abby,
What a beautiful tribute to Zach and his incredible spirit and zest for life!!! The way he lived his life with such enthusiasm for everyday will continue to be an example for all of us and the way we should all embrace life and every precious day we are given by God. I pray for strength and peace for all of you daily and will always carry Zach and Sam close in my heart! We will never forget what incredible boys they were!!! We love you all very much and are here for you in you need anything at all!!! Much love,
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Tuesday, December 4, 2007 12:25 AM CST
Dear Anne and family,
The service was so beautiful and such an amazing tribute to Zach. Everyone that was there not only knew him but his zest for life, sense of humor and his equanimity. Everyone that has met him, even if only for a moment knew there was something amazing about him--he truly was the "one and only." Please know that I am praying for you and your family.
Love,
Mindy
Mindy Welhouse <mwelhouse3@new.rr.com>
kimberly, wI - Tuesday, December 4, 2007 10:21 AM CST
Anne,
You were on my mind all day yesterday and this morning too. I'm sure you are drained today from the emotions of this past week. I pray daily for your strength and God's grace. I'm so sorry we couldn't be there yesterday at Zach's memorial. Our hearts were with you even though our bodies were unable to be there due to circumstance.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Tuesday, December 4, 2007 10:01 AM CST
Anne & Family-
You were all so heavy on my heart last night and continue to be. I so wish I could have been with all of you to pay tribute to The One and Only Zach!
I am sure you are emotionally wiped out today- I remember being totally drained last year after Morgan's service. It was as if someone stuck a straw in my heart and just sucked me dry of energy.
Please know how sorry I am and how much I love you and thank you for all you do for "moms like us."
Much love,
Leslie
Leslie Reynolds <rey7@bellsouth.net>
Roswell, GA - Tuesday, December 4, 2007 9:48 AM CST
My daughter met Zach when they started middle school and from what she's told me, and what was said at the service, he was a remarkable boy! The service was a beautiful tribute to him. What an extraordinary family. May you find strength in knowing that your boys are together watching over you.
Terri Geiger-Maas/Emily Geiger-Medina <myhomeparties@yahoo.com>
Waukesha, WI USA - Tuesday, December 4, 2007 9:44 AM CST
Thinking of you....
Marcia, okbabes <marciat@sympatico.ca>
- Tuesday, December 4, 2007 9:28 AM CST
We are thinking of you all today. Our thoughts and prayers are with you ... you and your family have touched so many of us.
Patricia, Clark, Jeff and Michael <patsbak@aol.com>
- Tuesday, December 4, 2007 8:41 AM CST
Looking forward to hearing the details about Zach's service. Can you post the letters read by the family. This would really help us that could not attend be part of this very special day. I know that Evan has recruited Zach and Sam to play hockey on his team, a team of kid's with so much heart, they will go undefeated for eternity. Love for California, Evan's mom
Gina Cousineau <ginacinsc@aol.com>
San Clemente, CA United States - Tuesday, December 4, 2007 1:19 AM CST
Dear Anne and Family,
Just wanted you to know that your precious family was in my thoughts and prayers today. I know it was a beautiful memorial service, but an extremely difficult day for all of you. I know Zach and Sam are so proud of you and your incredible strength. I hope that you feel all of the love that surrounds you today and always.
With Love and Hope Always,
Sonya and Taylor
Sonya Murray, Mommy of Taylor, www.caringbridge.org/visit/tay-tay <bamagirl01@comcast.net>
Smyrna, TN - Tuesday, December 4, 2007 0:07 AM CST
I have been thinking of all of you today. Although I was there in spirit and thought today, I really wanted to be there in person.
"There probably will be many times throughout our lives that we will feel the world has turned upside-down. What can always make us feel more secure, though, is knowing that love can hold many feelings, including sadness, and that we can count on the people we love to be with us until the world feels right side up again."
-- Fred Rogers
Laura
Albuquerque, NM - Monday, December 3, 2007 11:46 PM CST
The father of Zach and Sam has helped our church, St. Mark's in Cudahy, WI over this past year, to completely roof all areas. He problem solved our leaky roofs that occurred over the past 50 yrs nearly every 2 years. We have just completed the job and called to obtain further info regarding some changes that are necessary. We knew that Lou's family life included an ill son. We are saddened and feel the loss that the family has experienced. Things on earth now seem insignifant...this is the time to tend to memories and the sadness felt by all who were touched by Zach. I had worked for Children's Hosp. for a couple of years about 6 yrs ago. The families meant everything to me...they were the link to successful treatment of their loved one (s). May God send you all the love you can manage in order to comfort you.
We will have you in our prayers at St. Mark's.
Char Busse <gbusse@wi.rr.com>
Milw., WI USA - Monday, December 3, 2007 10:35 PM CST
My prayers include you and your family. I pray God will give you grace to see you thru the days ahead. The book, Heaven, by Randy Alcorn helped after Allison's death this spring. Sincerely,
Janet clark <janlee47@aol.com>
Owensboro, KY USA - Monday, December 3, 2007 7:30 PM CST
Dear Anne and Family-
My heart is heavy today. My thoughts and prayers are with you. I am so sorry we could not be here but could not leave Alex at this point. My heart breaks today. Alex was so touched by your words. Thank you! We are with you today in prayer. Knowing that Zach is resting and with his best brother Sam. Love to you All!!
Megan Reid and Family <dmreid1994@sbcglobal.net>
- Monday, December 3, 2007 4:49 PM CST
Dear Anne,
I have spent all day thinking of you and your family. I am just so sorry that you had a day like today again.
LeeAnn <ajz3@bellsouth.net>
Savannah, GA - Monday, December 3, 2007 3:26 PM CST
Dearest Anne,Lou,Brittany,Abby
This Is the Day you all wished would never come,as most of us do.May God be with you today and always,May your two angels Sam and Zach Look down upon you this day from above and some how I think they will let you know that they are together and pain free and at peace.Thank you again for sharing their lives with us.Reminding us how short a time we have some times and using it to the fullest.Your sons zest for life was so inspiring and I shall never forget them and you will always be in my thoughts and prayers.
Cousin Lynn and family.
I will e-mail you at your other address in the near future if thats okay just to check in and see how things are going.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Monday, December 3, 2007 1:10 PM CST
Dearest Anne and Family,
Our hearts continue to be so heavy for you at this difficult time. It is a beautiful day here in Jersey. The sun is shining brightly and the wind is gently blowing. I think that Zach and Sam are smiling down from heaven telling you that they are with each other and sending angel kisses in the wind. I so hope that it is this bright and sunny in Wisconsin.
We so wish that we could be there for you at this difficult time to celebrate Zach's life. We will be thinking of you tonight, tommorow and every day. We continue to pray that God will comfort you all in this time of sorrow.
Jamie has decided that tonight and tomorow night we will honor Zach by eating pumkin bread and watching Star Wars. Sending big hugs your way.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Monday, December 3, 2007 9:55 AM CST
Praying for you all today as you celebrate your one and only Zach's incredible life...I just know both of your best boys are together having the most Joyous time in Paradise. The boys live on in your hearts and minds and you will see each other again...
PeaceLoveHugs-n-Prayers, The Olsen Family <olsens5@wi.rr.com>
Waukesha, WI - Monday, December 3, 2007 9:51 AM CST
Dear Juhlmann Family,
Although I don't know you personally I wanted to extend my deepest sympathy to all of you. My son J.J. went to school with Zach in kindergarten and again at Butler. I remember waiting for kindergarten to get out and you waiting for Zach and carrying Sam. After meeting Zach and learning of his disease I remember thinking I wish there was something we could do. He was in the hospital for a while that year and I realized there was at least a small something I could do. I began donating to Childrens Hospital through the Dave & Carole WKLH Miracle Marathon in Zach's name that year and have done so every year since. I know from what I have heard that although nothing can make things truly "better" that we are lucky to have Childrens and that they do everything they can to make lives as best as possible. It sounds like that is the case from what I have read about Zach and Sam's story. I will continue to give and will always have your family in my thoughts and prayers. Know that Zach touched my sons life even in the few years they knew each other and obviously many others. That says so much for you and your family. God Bless you in your time of sorrow.
Cindy Becher <cbecher@gmrlive.com>
Waukesha, WI - Monday, December 3, 2007 9:14 AM CST
I am deeply saddened by your loss. A dear friend has a young niece with the mito disease. I pray for all the families and friends affected by this condition. God bless you and your family. I said a prayer for your sons, who join my son David who died at birth of a genetic defect.
Linda Jo Nelson
Linda Jo Nelson <nsundodger@aol.com>
Elkridge, MD USA - Monday, December 3, 2007 9:07 AM CST
Anne,
I was in one of your LINKS classes at CHW and vivdly remember the story of your family. I saw Zach's obituary this morning and my heart sank. I'm so sorry for the loss of your beautiful son. I hope you and your family can find comfort in all of the people your story has touched. You truly inspire people with your strength and love.
Dana Buffington <dbuffington@chw.org>
Waukesha, WI - Monday, December 3, 2007 7:43 AM CST
Anne- There are not words to describe the hurt I feel for you and your family. You are the stongest woman and mother I know. Thank you for being such an inspiratio to those around you. You deserve "the mom of the year for life" for all of the love you showed each and everyday for your 2 boys. I am thankful that I got to meet you and Zach. You bot have made a difference in my life. I continue to keep you in my prayers. I am glad I could be with you on that Monday night. I am so sorry. Love & prayers always!
Erin Cattey <catteyee@gmail.com>
Wauwatosa, WI - Monday, December 3, 2007 2:18 AM CST
I have visited here from the mito forum several times, and was inspired by your strength and preserverence.
I was very saddened by the news of your son's passing. I have been thinking of you and praying for you and your family.
Sincerely,
Ann Stoermer
www.caringbridge.org/visit/emilyjanae
Ann Stoermer <akstoermer@surewest.net>
Roseville, CA - Sunday, December 2, 2007 10:43 PM CST
Dear Anne, Lou, Brittany and Abby,
There have been many moments over the past week that I have been overcome with sadness. I know that each of you knows how that feels. Then there are moments that I think of Zach and smile. Zach, like his best brother Sam, knew how to laugh and how to make each of us who knew them well laugh so hard that at times there were tears running down my cheeks. Over the years, I have marveled at Zach's strength. His vast strength through his pain taught me how the power of staying positive can help heal. I had clear visions this week of Sam and Zach together. This gave me great comfort and I hope your family will heal in time, and smile and laugh with the memories of your amazing boys. Love you, Kaf.
Katherine <kfrontier@chw.org>
Wauwatosa, WI - Sunday, December 2, 2007 10:08 PM CST
Anne, you don't know me at all, but I and my family are good friends of the Lorimiers. I just want you to know that I am thinking of you, and holding you and your family in my heart and prayers. I will think of you and of Zach when I have pumpkin bread this holiday season.
Liz RB
Needham, MA USA - Sunday, December 2, 2007 9:35 PM CST
Dearest Anne, my heart is with you. Please know you are being prayed for and thought of throughout the days and the nights. Holding you in my heart,
Deb
www.caringbridge.org/visit/connorscott99
Deb Millard <sdcm@optonline.net>
- Sunday, December 2, 2007 7:16 PM CST
Dear Anne, Lou, Brittany and Abby;
Your family and your boys have done so very much for those of us in "Mitovia". You all have been a shining example of love and devotion and strength. Zach has gone to join Sam and be his big brother together again: at least that will be a comfort for you. I am so glad that I shared in your lives, even from a distance!
Jean Shepherd <mitoscottie@shaw.ca>
Courtenay, BC Canada - Sunday, December 2, 2007 6:39 PM CST
My heart is breaking at the news of Zach's passing. I have enjoyed reading your journal entries over the last few years and have marveled so many times at how amazing Zach was. I have always loved hearing stories through Holly as well. Know my thoughts and prayers are with you.
Karla and Jacob <my3sonshines@centurytel.net>
- Sunday, December 2, 2007 3:37 PM CST
Anne,
All my love goes out to you guys at this time. I wish I could be there with you all. Please accept my condolences. I love you all always. I'm glad that Sam and Zach are together again. HUGS!!!!!!!!!!
Cindy Hussey <CindyLou929@yahoo.com>
Albuquerque, NM USA - Sunday, December 2, 2007 2:59 PM CST
(((((Anne)))) thinking of you and keeping your precious family in my prayers....sending love and cyber hugs and praying God wraps His loving arms around you and brings all of you comfort and solace.....a moment in eternity our lives here on this earth, though I am sure the moments are agony..... until you meet your precious boys again I pray for comfort and solace for all of you.
God Bless,
LeeAnne, Sammi and family
LeeAnne Bye
NJ - Sunday, December 2, 2007 12:11 AM CST
Thinking of your family, Zach, & Sam today and always.
May God bless each of you with a wonderful memory of the "bestest brothers" today.
Take care,
Kristi Cole
Kristi Cole <kristi3333@bellsouth.net>
Atlanta, GA USA - Sunday, December 2, 2007 12:05 AM CST
Anne, Thinking of you often. My heart continues to ache for you, and I struggle to find insprirational, healing words to ease your pain. Thank you so much for sharing Zach stories with us... like the Barney stuffing story and the "best friend" story from San Diego. The "best friend" story sticks in my head as it displays all of Zach's character.... kind, loving, empathetic, non judgemental. What an amazing young man he was! I also cannot think of Zach without seeing his big smile and hearing his big laugh and energetic, loud voice when he was making his point known. I love that I was a part of his life and of course Sammy's too. The bond between the two of them was so fun to witness. The good morning wishes loud and clear from both of them as well as the friendly arguments over gameboys and what movies to watch. I imagine Sammy is having a lot of fun bossing, I mean showing, Zach all of the amazing things in heaven.
Beyond the "best brothers" bond was the amazing bond I have seen between mother and child with Zach and Sam. You truly have been the best mama in the world to them, and that is evident to all who have crossed your path. What an inspriration your love has been to all who know you! As you carry Sam and Zach in your heart, so do all who love them. I will see you tomorrow. Love and prayers to you and your family. Love, KP
Kris Pallett
- Sunday, December 2, 2007 11:49 AM CST
Dear Anne and Family
I wanted you to know that you are all in my thoughts and prayers. I never met Zach, but he still touched my life. I am so glad that Deb told me about Zach, and so happy that I got to know and love him over the last few months. I am so glad your family vacation worked out so well this summer, all the work planning all Zach's care went just fine. Anne you are an awesome mother, you did everything you could to make Sam' and Zach's life meaningful and happy. Look at the questbook and you know for sure that both your sons touched the life and hearts of so many people just like me. I will miss Zach, its funny that you can miss someone you never met, but its true. Thanks for sharing Zach with all of us, he was an amazing boy. Anne you and your girls are in my heart and in the hearts of so many of your friends. Reach out to us through this site anytime you feel like talking, we care so much for each of you. Remember those parents who have gone through a loss of a child, they are only a phone call away.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Sunday, December 2, 2007 9:05 AM CST
Dear Anne, Lou, Brittany and Abigail,
My Deepest sympathy with the loss of Zach who has now joined Sammy. At least they'll be together once again. I cried the other day when I read your e-mail Anne in the office, as we go back a long way, both at Cooper, Mike Jacksons list, etc. As you know Zach, Jamie and Rhys are the same age, so the worry never stops. You have been there for everyone on the list for years and though this isn't easy, at least his suffering has stopped. I wish that we were closer geographically, but my heartfelt sympathy and support are there for you and Lou and the girls.
Ken
Ken <mitodad@hotmail.com>
Bordentown, NJ USA - Sunday, December 2, 2007 8:58 AM CST
Dear Anne & family, my deepest condolences to you on the passing of Zach. I have followed Zach & Sam's journey over the years and was always delighted to read about their lives and you always portrayed their personalities so well, and I came to "know them both". They will live forever in my heart, alongside all our mitoangels.
Regards Jenny mom to ^Kayley^ 03/16/00 - 09/23/00
Jenny McManus <jenibru@embarqmail.com>
Clewiston, FL - Sunday, December 2, 2007 8:51 AM CST
Anne,
I dont know what to say. We are praying for all you. I cant imagine these days for you and your family. I pray that God wraps all of you in his arms. What incredible children you have.
Love, the Krupski family
Mary <mkrupski@yahoo.com>
Essex, VT - Sunday, December 2, 2007 6:32 AM CST
Anne,
When I heard that Zach had passed away I cried so much I had to step out of class a few times because I was about to cry. Something to bring your spirits up............... I remember when we came to your house one dat and we were playing ping pong and you hit me in the head with thge ping pong ball and then I hit you in the head. Zach and I played video games and ping pong. It was a day I'll never forget.
Love Carrie Wachowiak's daughter,
Kristin
Kristin
West Allis, WI United States - Saturday, December 1, 2007 11:09 PM CST
Anne,
When I heard that Zach had passed away I cried so much I had to step out of class a few times because I was about to cry. Something to bring your spirits up............... I remember when we came to your house one dat and we were playing ping pong and you hit me in the head with thge ping pong ball and then I hit you in the head. Zach and I played video games and ping pong. It was a day I'll never forget.
Love Carrie Wachowiak's daughter,
Kristin
Kristin
West Allis, WI United States - Saturday, December 1, 2007 11:09 PM CST
Dear Anne, I was so sorry to hear about Zach, but please find comfort in knowing that God is with you and your family, and He is now watching over both of your beautiful boys. They are truly in the best of hands. Love, Deb S.
Deborah
Milwaukee, WI - Saturday, December 1, 2007 9:56 PM CST
I encountered someone not long ago who was performing an incrediby generous act for a young man who was at Children's Hospital. While I was helping her with her purchase, another customer who knew this woman offered to help her complete the project. From their conversation, I gathered that this was a very ill young person and one of them made a comment to the effect that this was especially hard because the same disease had been the cause of the other brother's death.
This was all that I knew of the situation, but was impressed with whomever had inspired such acts of kindness and told my husband about it that night at home.
This morning I saw an obit in the Milwaukee Journal and I thought this might be the person that these two customers of mine were discussing some weeks previously.
This brings me to the website and guestbook tonight. What an amazing person at the center of all of this who made such a "splash" that it is still casting ripples out to someone who never met him!
Jennifer
Oconomowoc, WI USA - Saturday, December 1, 2007 9:43 PM CST
“I want people to know that in every life, there are storms. But we must remember to play after every storm and to celebrate the gift of life as we have it, or else life becomes a task, rather than a gift. We must always listen to the song in our heart, and share that song with others.”
Mattie Stepanek
You had shared this quote in a journal writing and it was perfect. You do not know me nor have I ever met you, but you have shared your song with me. I work at Froedtert Hospital and read about your sons passing in the paper. I am truely moved by your family's strength, courage, devotion and how you have celebrated the lives of two little angels. Even though I did not know them they have touched yet another life. You have so much to be proud of and are an angel of God yourself for all the love they knew because of you! Thank you for sharing your story and your lives. The only words of comfort I can give are ones that my own father told me once and those are that you will see them again someday. Definetly not soon enough, but the day will come. For now they have what everyone wishes for, especially this time of year...and that is peace. My prayers will stay with you and your family.
Renee Richter <reesman5@hotmail.com>
Burlington, WI USA - Saturday, December 1, 2007 9:40 PM CST
Anne
I'm so sorry for your loss of Zach. Both my church and I were praying for him and now we're praying for your family too. I think of Sam and Zach everyday and know that they are not suffering anymore. My thoughts, prayers and love are with you and your family.
Love Stacey Nelson www.caringbridge.org/nc/stacey <Stacey030182@aol.com >
Sanford, NC USA - Saturday, December 1, 2007 8:50 PM CST
I have shared Zach and Sam with the people that I go to school with. Over the past 4 years of taking classes together we have prayed for Zach and Sam many times. We spent some time today praying for Zach, for your family and for all families that have lost children.
Cindy Bergland
Waukesha, WI - Saturday, December 1, 2007 8:39 PM CST
Just wanted to drop in and let ya know we are thinking about ya....hugs
Millie <nena1294@aol.com>
Hamitlon, nj usa - Saturday, December 1, 2007 6:16 PM CST
Dear Juhlmann family,
If feels as though Zach was just here, sitting by the pool, laughing with friends at Brad's party in August. It was always so nice to have him in our home. Craig enjoyed teaching Zach at RiverGlen and admired his strong faith in Jesus and belief that his life had a purpose. He will be greatly missed.
As a family with all boys, we are heartbroken for your losses.
The Allens
Michelle Allen <our4boys@wi.rr.com>
Waukesha, WI - Saturday, December 1, 2007 5:08 PM CST
Anne & family we are praying for your strength today. God bless you.
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millard family <sdcm@optonline.net>
- Saturday, December 1, 2007 1:31 PM CST
I have had the plesuare of taking care of both Sam and zach and was sadded by the news of Zach passing. I hope to be at the visitaion on Monday but if not please except my sinsarty and best wishes to you and your family in this time of saddness. Thank you for the chance to work with and know your boys.
Jason <JOUSEY@CHW.ORG>
Milwaukee, WI - Saturday, December 1, 2007 1:23 AM CST
Our deepest sympathy to your family. We lost our 46 yr. old son to cancer in January. We miss him dearly but we know he is at peace. Our prayers are with you.
Virginia Schwerm
Milwaukee, Wi - Saturday, December 1, 2007 0:12 AM CST
Dearest Anne & family,
Our hearts are heavy as we are so sad for your loss of Zach. I wish we could reciprocate the compassion and caring that you always have when we or others face a health crisis with a child. You are so special and realizing the gifts that your wonderful children are is indeed a blessing. We pray that you shall be comforted and may know joy as you hold dear to the memories of both Zach and Sam.
Lois Lucas <lalucas@earthlink.net>
Pewaukee, WI USA - Friday, November 30, 2007 8:02 PM CST
I did not know Zach and Sammy on a face to face basis, but my sister Patty took care of both of them during their stay at Children's Hospital. She spoke very highly of both the boys and she misses them a lot. I am touched by your stories and I can not imagine what your going through. I am a mother myself and I can't even imagine the thought of losing my daughter. Your family appears to be very strong and God will pull you through this. Zach and Sammy are together again as "best brothers". Please know that you and your family are in my thoughts and prayers and May God Bless you during this time.
Jamie Kiely <Jamester325@aol.com>
Watertown, WI USA - Friday, November 30, 2007 8:00 PM CST
I don't know you and the family, but I have read about your two boys and the lost of them. I have two boys also , my 11 year old is a cancer survivor and my 3 year old is a survivor of birth complication, so I do know the pain a parent goes threw when their child(ren) are ill. I know no pain of losing two wonderful boys such as yours, our prayers goes out to you and your family. You were a great mom to those loving boys. May God bless you and keep you all.
Lisa Young <jaiwil@sbcglobal.net>
Milwaukee, WI U.S. - Friday, November 30, 2007 7:59 PM CST
Oh, Anne, I am so deeply sorry. So very sorry. Thank you for letting me know. You and your family are in my thoughts and prayers. The world became a better place when Zach and Sam entered it, and even better as they lived out their lives. You and your family have touched my heart and countless others'. The gift of you and your children shall always be remembered and appreciated. Zach and Sam are incredible credits to the human spirit and the human race. Thank you for sharing them and yourself with me. May Zach rest in peace with Sam. Sincerely, Charlene Willfong (mom to Maggie)
Charlene Willfong <willfong@satx.rr.com>
Seguin, TX - Friday, November 30, 2007 6:47 PM CST
I am lucky to have known Zachary, a boy with a perfect heart.
Judy <ebug1112@yahoo.com>
CHW-Day Surgery, - Friday, November 30, 2007 1:51 PM CST
My family and I wish to extend our deepest sympathy to your family. I can't imagine losing one of my children, let alone two. From what I have read, you certainly do have a lot to be proud of. As you enter this holiday season, make the memories of these two boys, fill you time with laughter. One of the greatests gifts our loving Father gave to us, is memories. My family and I will keep your family in our daily prayers. May God wrap his loving arms around you in this time of great sorrow, but during this most Blessed of seasons. God Bless you.
John Norgord <jnorgord@wi.rr.com>
Waukesha, WI USA - Friday, November 30, 2007 1:46 PM CST
Zachary, I love you buddy. Over the last couple years you have taught me so much. You taught me that hardships can and WILL be overcome. You taught me to laugh at myself. (I still have to work on that one.) You never let anything get you down, even when you felt your worst you pushed on. I am going to miss you so much. I looked so forward to seeing you and to hear what's been going on in life. You gave me so many great memories, I will hold them near to my heart forever. Your friendship changed me, it made me a better person and nurse. Give Sammy a great big hug, and watch over your family with him.
Anne, Thank you for being a friend, teacher and someone I look up to. You taught me so much and took the time to make sure I really understood. You gave me the chance to get to know Zach, I am forever grateful for that. He is the most wonderful person I know, so gracious, kind, polite, loving, and so much fun to be around.
Lou, Abby, Brittany, Thank you for sharing Zach, he's an amazing person. I am so glad he was, and will remain, part of my life.
My heart and prayers are with you all. Love, Hope
Hope <hmpatchak@yahoo.com>
Milwaukee, WI - Friday, November 30, 2007 1:04 PM CST
Anne,
Please know that you and your entire family are in my thoughts and prayers. What a gift of joy Zach was. Thank you for sharing yourself, your families experience and your heart and soul. You are an amazing woman and have touched so many peoples lives. May you know that there are many who would do anything for you and your family. Please let us help in whatever way you may need.
Take care
Nancy Doucette Wilkinson
Milwaukee, WI - Friday, November 30, 2007 1:04 PM CST
To the Juhlmann:
I do not know you and I did not know your sons. However, after reading the news article and then going on to your web page I was very touched. As a mother I cannot imaging the great pain of losing your sons, but you also had the greatest joy of being blessed with the time you had with them. They are together, at peace and from the sounds of it, probably playing tricks on God and his angels. My heart goes out to you and your family. Your sons are now healthy and at peace. God Bless you and your family in your time of sorrow.
Trinette Hernandez
Waukesha, WI USA - Friday, November 30, 2007 11:10 AM CST
To the Juhlmann Family,
I have no idea what words to use to express the sadness we all feel at the loss of Zach. The comforting thought is that he is no longer suffering and is playing again with his "best brother".
We have many memories of Zach ~ two that stand out are Zach, Tanner, and Collin playing video games and the three of them laughing and harassing each other. The other is the football game ~ Zach cheered the loudest and with the most heart out of anyone in the stands. He lived life like he played games ~ with passion, heart, laughter, and LOVE! If everyone of us could live life half as full as Zach did we could consider ourselves lucky! Our thoughts and prayers are with your family through this very difficult time.
The Dobrich Family <jdobrich@sbcglobal.net>
Waukesha, WI USA - Friday, November 30, 2007 9:45 AM CST
Anne,
Sharing tears and sending you a hug. All of us with mito kids keep moving forward because of the courage and joy that Zach and Sam showed. If they can find the courage to smile and live, then so can we.
www.mitoaction.org
Cristy Balcells <director@mitoaction.org>
Hingham, ma US - Friday, November 30, 2007 9:34 AM CST
Anne I have no idea what to say. Your children have become so precious to all of us because of you. How wonderful you made them sound and we have grown to love them, and you. Even those of us who havent met you. We grieve with you. I bless the woman that you are. One of the most amazing mothers I have ever "known".
Donna Asbury <donerleg1@yahoo.com>
Louisville, Ky USA - Friday, November 30, 2007 4:00 AM CST
You were in Zach's corner (and Sams) every second of every day, and both boys knew it. You did it all in a way that made those boys feal nothing but normall. My hat is off to you, the girls, and to those boys who did whatever you could to enjoy every minute God had given them. I am so sorry for your family's loss. I can't even count the number of people I have told about your family and how I encourage the blood donations. You and the boys suffered but, please know that many of us have listened and learned. It is so unfair how God chooses to work. Your family is forever in my mind and prayers.
DeeDee <conrad224@gmail.com>
Waukesha, WI Waukesha - Friday, November 30, 2007 1:36 AM CST
Anne and family-
There are no words to express the sorrow I have for you. Know that we continue to pray for yor entire family during this very difficult time.
Anne- I also have wonderful memories associated with pupmkin bread. I think you might enjoy-
as the daughter of a democrat growing up in the 70's in Minnesota, my special recipe came from the kitchen of Joan Mondale herself. That is the one I will bake for Monday. When I was a kid it was the pumpkin that we had on Thanksgiving. None of the kids in our family liked pumpkin pie, so mom decided to try the pupkin bread. For some reason she baked the bread in an old sanka coffee can. When the bread was done it came out in the perfect circular shape, complete with the lines from around the can. I managed to dig out the recipe, I however did not end up with the autographed copy, but one copied from my mom's. Dad continues to say it is the best pumpkin bread ever. I just think that is because the Mondales used to make it!! I don't know if I will be able to find a sanka can to bake it in, but I am sure it will taste the same in a loaf pan.
Love-Bridget
Bridget Bruno
Oconomowoc, - Thursday, November 29, 2007 9:30 PM CST
Anne, Lou, Brittany, and Abby,
We are so sorry to hear about Zach, but know he is at peace and happy to see his wonderful brother. A day does not pass that I do not think of you all. I will continue to pray for all of you.
Debbie, Brian, Melissa, Adam, and Jessica Manganello <mango207@juno.com>
Howell, MI USA - Thursday, November 29, 2007 8:05 PM CST
Dear Ann,
Our friend in common, Kathy Corley, made mention of you on Anna's Caring Bridge site. Although we have never met, please know that prayers are sent up for you and your family.
Tamra Craft <tcraft@netlink-systems.com>
Chattanooga, TN - Thursday, November 29, 2007 7:27 PM CST
Ann, please know I am thinking of you and I have you all in my prayers. You were such a Godsend to me after my son Matthew died. I know how hard this is for you to be going through this grief all over again. I know it never ends. I hope you find comfort knowing your boys are together again in heaven. Much love to you all.
Darla Lindenmayer, Angel Matt's Mom 7-3-90 - 4-22-04 www.caaringbridge.org/in/angelbarneyboo <littlesisdarla@aim.com>
VA - Thursday, November 29, 2007 5:28 PM CST
It's difficult to imagine the loss of such beautiful children. Blessings of peace and comfort to you and your entire family.
Lee Collins <leecol211@yahoo.com>
- Thursday, November 29, 2007 4:53 PM CST
What a sweet and "JOY"full boy Zach...he will surely be missed but I can imagine he is having the most incredible *Thanksgiving celebrations* in Heaven every day...
What a wonderful way to remember your sweet boy--Pumpkin bread, plain and simple, yet extraordinary all at once...Praying for each of you in the days ahead...
HugsLovePeace-n-Prayers, Grace and Katey Olsen <olsens5@wi.rr.com>
Waukesha, WI - Thursday, November 29, 2007 4:09 PM CST
Anne,
We have a mutual friend and she has shared your story with me. I am so sorry for your loss. I hope you find some comfort in the thought that so many are praying for you and your family.
God Bless,
Mardi
Mardi Leonard <fantasticfour@comcast.net>
Signal Mountain , TN USA - Thursday, November 29, 2007 3:39 PM CST
Ann, I am so sorry for your loss. It seems like just yesterday you and the boys were still on 5west. Your boys are truely amazing and I will always cherish how your family has touched my life. Thank you for everything you have taught me about what a mother is. May you be comforted in God's loving hands during this tough time.
Jill Nelson <tjtbnel@sbcglobal.net>
Oconomowoc, WI 53066 - Thursday, November 29, 2007 3:10 PM CST
The Prayer Bears
Praying for your comfort and peace of mind that on God can give you.
Blessings and Bear hugs,
Donna Boggs, Papa Bear’s Site <dboggs4newlife@yahoo.com>
Coeburn, VA - Thursday, November 29, 2007 2:20 PM CST
To the Juhlmann Family,
We are very sorry for your great loss. Our prayers go out to your entire family at this sad time.
"He had a face of light and is the calm within the depth of any storm. Gentle stranger, earth angel without ego or expectation- only dreams and hope for those he loved, and he loved many... but more loved and adored him. When our hope is lost, it is his smile; his indifference to all fear and chaos that opens each of us to the greatest love of all. His love and legacy teaches us only what we should give, not what we should take. His inner grace is our light in the dark, his flame is eternal."
Please take care,
From the Billing Department @ Home Care Medical
Robin Nelson <robin.nelson@hcmedical.com>
New Berlin, WI - Thursday, November 29, 2007 2:06 PM CST
I am heartbroken for you all. Words are never enough...Please feel the love and support of all your friends and family...know that we grieve with you and send all our good thoughts and prayers your way.
all my love,
your cousin,
Bekah
Rebekah Enzler <bekahenzler@yahoo.com>
Columbia, MO USA - Thursday, November 29, 2007 1:22 PM CST
Oh Anne - I just heard - and my heart breaks for you and your family. What a loss to the world to not have your wonderful boys. You do such a great job of describing them that I feel like I know both of them. Their strenght and their love of life despite hardships is inspirational and what I want for Havalah. I will be thinking of and praying for all of you and for everyone that loves your boys. Kristen
Kristen Wotruba-Kolb <kristennn@gmail.com>
Milwaukee, wi usa - Thursday, November 29, 2007 11:34 AM CST
Anne, Lou, Britanny and Abby... thinking about all of you. Do we call? Do we not call? Reading all the entries in the Guestbook I think would be overwhelming if we all called to tell you we care. We are sharing the "life lessons" explained and demonstrated to us by all of the Juhlmann family members. Patience, gratitude, determination, kindness, love...
Eileen <eclark@chw.org>
- Thursday, November 29, 2007 11:08 AM CST
Anne,
I would love to bring some pumpkin bread on Monday. You and your family continue to be in my thoughts and prayers.
JoAnn Krofta <jkrofta@waukesha.k12.wi.us>
Dousman, WI USA - Thursday, November 29, 2007 11:07 AM CST
Anne,
I am sorry for your loss. Kathy Corley told me about your family and what a help you have been to her. You have been blessed with beautiful children. Their smiles light up their pictures! Thank you for sharing them. I will keep you and your family in my prayers. May God bless and keep you.
Sincerely,
Candy Clark
Candy Clark <run4kids@comcast.net>
Signal Mountain, Tn USA - Thursday, November 29, 2007 10:53 AM CST
Anne, I have a wonderful pumpkin bread recipe I make often. In fact, I remember giving you some in the past. I would love to make it for Monday and it would be the most meaningful bread I have ever made. You and family are in my thoughts and prayers. Love, Marlene
Marlene Oswald <ozzy@netwurx.net>
Waukesha, WI - Thursday, November 29, 2007 10:36 AM CST
I am so very sorry to hear of your loss. Please know that your family is in my prayers. God Bless you all!
Helen Brell
Signal Mountain, TN United States - Thursday, November 29, 2007 10:29 AM CST
So Sorry to hear of your loss. I would love to bring a pumpkin bread in memory of Zach.
The Fosdick Family <carol.fosdick@we-energies.com>
Waukesha, wi usa - Thursday, November 29, 2007 10:01 AM CST
We know of Zach from Connor's website (4 Paws Family) and have been praying for him and following his progress. We so wanted another miracle for Zach and want you to know that we will continue to pray for you and your family. We are so very sorry for your unbearable loss. May God comfort you at times when you need him most, may you feel Zach's joyful presence surround you knowing he is with his brother and they are hand in hand.
Julie Holloway <jah522@sbcglobal.net>
Brookfield, WI - Thursday, November 29, 2007 9:12 AM CST
Dear Lou, Anne, Britanny and Abby,
We just heard and we are all so sad to hear that Zach lost the battle. Uncle Lou has been keeping us informed on his time in the hospital and our prayers are with the family. All of our Love, Colleen, Andy, John and Sarah.
Colleen AhKao <coleen.ahkao@sanofi-aventis.com>
Dumont, NJ US - Thursday, November 29, 2007 8:44 AM CST
I am so sorry to hear of Zach's passing. I see him with Sam though and they are together and free of pain. My heart goes out to you and your family.
Michele Hendrix <lyta2000@triad.rr.com>
High Point, NC - Thursday, November 29, 2007 5:48 AM CST
Anne, Lou, and family-
Our thoughts are with you. We are so sorry! I have pulled the pumpkin bread recipe and will make a couple loaves for Monday. Ellyn Heicher and family
Ellyn <ellynheicher@sbcglobal.net>
Waukesha, WI - Thursday, November 29, 2007 0:11 AM CST
Dear Juhlmann Family,
For nearly 12 years I have watched you come in and out of CHW on a much more regular basis than any other family I had ever encountered. Though I only cared for your boys a handful of times when Sam was a toddler, your family has left such a great imprint on my heart! My heart is breaking for all of you! I know with great certainty that both Zach and Sam could never have had a stronger, more loving, more devoted, and more determined mother than you, Anne! You are an inspiration to all mothers! May God bless you all with His strength and His peace. May you find comfort in memories and in visions of your boys together, healthy and free, in God's Heavenly Kingdom.
Amy Glorioso May <brettnamy@prodigy.net>
Waukesha, WI - Wednesday, November 28, 2007 11:52 PM CST
I am so sorry for your loss. God bless you and your family.
-Jessica White
Jessica White <JessicaFL127@yahoo.com>
St. Charles, MO 63303 - Wednesday, November 28, 2007 11:26 PM CST
Our condolensces to you and your family on your loss. Sorry we are a date late but our own Zachary is in the hospital as of we speak. At least we know he's in a better place where the pain and suffering will end finally. Our thoughts and prayers are with you and if you ever need to talk, please don't hesitate to.
Scott & Wendy Perrin <slappysappy71@msn.com>
Desoto, MO - Wednesday, November 28, 2007 9:40 PM CST
I am so sorry to hear about Zach. His strength and courage amazed me. I will always remember him (and Sammy).My thoughts and prayers are with you.
Karen Seiler <kseiler@wi.rr.com>
Muskego, WI USA - Wednesday, November 28, 2007 9:01 PM CST
To the Juhlmann's, I'm so sorry about Zach. I enjoyed working with him at Bethesda so much. He loved to play chess and had a great smile and a wonderful sense of humor.
I'm sure in my heart that he and Sam are together again as best brothers. You are all in my thoughts and prayers.
Trudy Staffeldt <www.dtstaffeldt@yahoo.com>
Waukesha, WI USA - Wednesday, November 28, 2007 8:12 PM CST
Dear Anne, Brittany, and Family
I just got off the phone with my son Jason, who works in the lab with Brittany at the U of M., and he informed us of Zach's death. We are very sorry for your loss. Going through it once was tough enough for Mary and I, and we could not imagine the depth of you and your family's pain of having to experience the loss of a second child. Your family is in our prayers as you go through the next few days and the months to follow. Tell Brittany if there is anything she needs when she returns to school, she is welcome to contact us!
Our deepest sympathy,
Bill and Mary Fowler <bfowler40@comcast.net>
Oakdale, MN USA - Wednesday, November 28, 2007 8:00 PM CST
Dear Anne, Lou, Abby and Brittany
We will always remember Zach's sense of humor, wit and smiles. We are praying for you. Please call if we can help in anyway.
The Garmans
jean garman <jakgarman@hotmail.com>
- Wednesday, November 28, 2007 7:59 PM CST
Words can't express how deeply sorry I am for your loss. May God Bless you with the strength to get through these difficult times. Please find comfort in knowing you are not alone, you are in the thoughts and prayers of many. God Bless www.caringbridge.org/visit/kellycogswell
Suzanne Cogswell <nursescooby@comcast.net>
Beachwood, NJ USA - Wednesday, November 28, 2007 7:49 PM CST
Hi Anne ^j^ I'm an old friend of Claudia's and she shared Zach and Sam with me. She also told me what an inspiration you have been to her and Kyle. You are on my heart and in my prayers.
janie stafford <janip@bellsouth.net>
dyersburg, tn usa - Wednesday, November 28, 2007 7:14 PM CST
Hello, Anne,
We have been praying for Zach, your family, and the staff at the hospital ever since your story was shared by Liz Romagna. We are still praying.
We are hopeful that you will be cared for and lifted up in this time of unspeakable loss and grief. Our hearts are one with you as we continue to hold you up. (We're a small church of caring people, and I'm the pastor there.)
Bonnie Bell <Bbell1@wi.rr.com>
North Prairie, WI USA - Wednesday, November 28, 2007 6:35 PM CST
To the Juhlmann family:
I am deeply sorry for your loss. Although I knew Zach for only a short time, he has touched my life deeply and helped me to learn things I never knew possible. He was always pleasant and energetic...a real joy to be around. As much as he will be missed, I am glad he is finally at peace.
Stephanie Behnke
Milwaukee, WI USA - Wednesday, November 28, 2007 4:00 PM CST
Juhlmann family,
I have followed your story thoughout the years. I don't stop in as often as I used to. Your family has encouraged me so many times and I am still encouraged by your stregth. I think of both of your boys today. They were so brave and brought so much to all of us along thier difficult journey. I pray for all of you at this time.
Ann <akurtz1974@msn.com>
Brighton, CO USA - Wednesday, November 28, 2007 3:32 PM CST
To the Juhlmann Family:
My friend, Claudia told me about your journal and after taking time to read it (not understanding all of it) I feel most blessed to be able to see what precious people Sam and Zach have been to so many. You are truly an inspiration to me and many others. My prayers are with you all today and from now on. May God keep you close and give you much peace.
Jan Grady <jgrady@utk.edu>
Knoxville, TN USA - Wednesday, November 28, 2007 3:06 PM CST
To Anne and the Juhlmann family- You are in my heart and my prayers. I can only imagine how this loss must sting in the still healing wounds of Sam's death not long ago. It was a privilege to be a part of Zach's care and to learn from him. He was a blessing in the lives of all who met him, but particularly those of us fortunate enough to help care for him while he was in the hospital. Thank you for allowing us that privilege.
Whitney McCall
Milwaukee, WI USA - Wednesday, November 28, 2007 2:32 PM CST
Ann, my heart sunk when I found out about Zach. Like you said he was very sick but it was so sudden. You must be so proud of both of your boys for the courage they had. You must also realize what a WONDERFUl mom you are. Zach couldnt have had a more devoted loving mom and family. Your family is in our prayers as you go through this difficutlt time. Zach was an inspiration to everyone he came in contact with whether in person or via computer
sending lots of hugs your way
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
phoenixville, PA - Wednesday, November 28, 2007 2:09 PM CST
Claudia asked that we take some time to read your journal, and I am so thankful that she did. I am thankful that she has a support network of strong and kind persons like you that truly understand her daily struggles and the blessings of the challenges as well. Most of us just shake our heads and say "I don't know how you do it". I am so impressed with your courage and insight, and commitment to being the best mother for whatever the day brings. While my mothering environment is very static, you have had to adjust daily and quickly. I'm sure Zach was enriched and blessed and thankful for the love and support you provided him. I am so sorry for your loss. I can't imagine your sadness at this point. God bless you and your faimly! I pray and cry for you.
Cindy Barnett <cbarnetttn@tds.net>
Knoxville, TN USA - Wednesday, November 28, 2007 2:02 PM CST
I'm so sorry for your loss.
It is amazing to see how many people you touched with your love for Zach and Sam. You all have brought hearts together and made a true difference in this world. You are in my thoughts, heart, and prayers.
Joshua Cooper <joshcooper111@yahoo.com>
Knoxville, TN USA - Wednesday, November 28, 2007 1:58 PM CST
Dearest Juhlmann's,
I'm saddened by your earthly loss but am comforted at the same time that ^Zack^ will no longer need to fight to live a courageous life. May you be comforted knowing that he is with his bestest little brother ^Sam^ and both are as God means them to be. There is NO DOUBT that ^Zack^ and ^Sam's^ legacy will live on in the hearts of those who have followed their lives through your eyes and gamut of expressions written and shared throughout their lives.
Zach fought hard to the very end and yes, it is very clear that he has touched the hearts of many as have you Anne! Please know that you and the girls and ^Zack's^ papa will be in my thoughts and prayers in the days ahead as you learn to live life with ^Zack^ in heaven.
God Bless you all!!!
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Wednesday, November 28, 2007 1:56 PM CST
Anne and family,
I was very saddened to learn of Zach's death when I came to work yesterday. Perhaps the miracle of healing that we prayed for came in the form of no more suffering and arriving in God's kingdom. I picture Zach joining Sam and knowing a peace, joy and love that we can only imagine. Anne, you are an amazing mom who gave your boys extraordinary love and care. They knew the love of God here on earth through you. You and your family are in my thoughts and prayers as you once again walk this journey that no parent or sibling should ever have to take. God bless you and hold you close now and in the days ahead.
Mary Kay Balchunas
Mary Kay Balchunas <mbalchunas@chw.org>
New Berlin, WI - Wednesday, November 28, 2007 1:24 PM CST
Thank you Anne for allowing us to be a part of Zach and Sam's lives. They will forever have a profound impact on so many.....and your words will always inspire us. While so very painful to hear of Zack's passing, the privelage of knowing him you have afforded us is so much more profound.
Your family will be in our hearts, thoughts and prayers....always.
BIG hugs,
Kass & kids
Kass <kass@swbell.net>
Dallas, TX USA - Wednesday, November 28, 2007 1:03 PM CST
Anne, I was so saddened when Marisol told me about Zach. I am praying for you and your family daily. Your boys taught me so much about how to be a good nurse - how to look past the illness and see the life of the child underneath. I will be forever grateful that I was blessed to be a part of thier lives.
Erin Rider <erider@chw.org>
Waterford, WI - Wednesday, November 28, 2007 12:23 AM CST
As friends of Kyle and Claudia we want you know that you are in our thoughts and prayers. Marcia and Sam
Marcia Boney
Penscola, FL USA - Wednesday, November 28, 2007 12:19 AM CST
Dear Anne,
I learned of Zach's passing from Brody's carepage. Words cannot describe how bad I feel for you. May God comfort you today and hereafter.
Praying for you.
In Christ,
Ann Eide <AnnE02@cableone.net>
Columbus, MS USA - Wednesday, November 28, 2007 12:13 AM CST
Just learned of your loss from Claudia Hughes. Spent an hour reading about the lives of your heroic sons. My heart aches for you. But I thank God that these two brothers have been reunited in heaven, where they are running and jumping and frolicking and telling bad jokes... they are healthy and pain free and together, again.
Tracey Flourie <TFlourie@aol.com>
Del Mar, CA 92014 - Wednesday, November 28, 2007 11:17 AM CST
Dearest Anne and Family,
Our hearts and prayers go out to you at this difficult time in your lives.Zach was such a special young man and I felt very blessed to have been able to get to know him these last few months. He was and will always be an inspiration to me, as will you and the rest of your family.
Darth Vadar would be very proud of his valiant warrior
Our deepest sympathy and prayers
God Bless and watch over you always.
Cousin Lynn and Family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn. USA - Wednesday, November 28, 2007 10:00 AM CST
You are in my Prayers... I came here from McKenna's site. ( She went to Heaven yesterday )
All these perfect Angels up there, watching over us ....
May God keep you strong, and help you heal youre Pain.
Jasmin <snowdemon@tm.net>
MI - Wednesday, November 28, 2007 9:52 AM CST
Anne,
My heart aches for you. I am so sorry about your great loss of Zach. You are in our hearts and prayers. Although we have never met you, we love you.
Connor's grandparents
Dorie and Dick Tiel <tiel@optonline.net>
Morris Plains, NJ - Wednesday, November 28, 2007 9:50 AM CST
Anne and family,
My thoughts and prayers are with you all. I know that you know Zach was very special to me. Zach taught me so much throughout the years. He taught me to think outside the box, to laugh even if you are in pain, to always be polite, to take on all challenges, and to FIGHT till the end! He will be a part of my life forever. Marisol
Marisol <Marisolrn2007@hotmail.com>
milwaukee, wi - Wednesday, November 28, 2007 9:43 AM CST
Anne,
We are deeply saddened by your loss. Even though we have not met Zachary, many tears have been shed in our office. Zachary's spirit comes through abundantly in these postings and pictures. Our thoughts and prayers are with you and your's.
Mark Campbell <markc@umdf.org>
Pittsburgh, Pa USA - Wednesday, November 28, 2007 9:35 AM CST
Hi, I am Megan, Scott and Debs cousin (Connor Millard's parents) I have been reading about Zach through Debs posts and I just wanted to tell you how sorry I am. You are in my prayers.
Megan
NJ - Wednesday, November 28, 2007 9:35 AM CST
My heart goes out to you and your family Anne. I cannot fathom losing one child and you have lost two. Claudia sings your highest praises about your love for God and for all your many attributes as a parent as well. I will never understand how people can go through life without God. It's a tough place to be even with Him with us but what a comfort it is knowing he is there to pick us up when we fall and especially to mend our broken hearts. Please know my love, thoughts and prayers are with you.
Karla Chitwood (friend of Claudia Featherstone) <kschitwood@aol.com>
Dyersburg, TN USA - Wednesday, November 28, 2007 9:12 AM CST
I was so shocked and saddened to hear of Zach's passing. I just wanted to thank you for letting me be some small part of Zach's journey. I wish I would have gotten to meet him when he was the vibrant young man everyone talks about. Please know that you are all in my thoughts and prayers and that Zach will have a permanent place in my heart.
Jessy, PICU RN <jessyenters@wi.rr.com>
- Wednesday, November 28, 2007 9:11 AM CST
I only had the pleasure of taking care of Zach twice, one of them being Monday, but Anne you have touched my life in so many ways. Your love, dedication, and perseverence are an inspiration to me. I will keep you and your family in my thoughts and prayers. God bless.
Jill Wallander (PICU nurse) <jwallander@chw.org>
- Wednesday, November 28, 2007 9:10 AM CST
You are all in my thoughts and prayers.
Abby I wanted to say i love you and will be here anytime you need me. I wish you could see all the orange that is in school today. Love, Anna
Anna Cobus <cobusfamily@juno.com>
- Wednesday, November 28, 2007 8:44 AM CST
You are all in my thoughts and prayers.
Abby I wanted to say i love you and will be here anytime you need me. I wish you could see all the orange that is in school today. Love, Anna
Anna Cobus <cobusfamily@juno.com>
- Wednesday, November 28, 2007 8:42 AM CST
Please know that you are in my heart, thoughts and prayers. Words are not enought to give you comfort or ease your pain. May time heal your sorrow, may friends ease your pain, may peace replace heartache, and may warmest memories remain. You have my deepest sympathy.
Kay Curry (Friend of Claudia Featherstone) <kcurry@cableone.net>
Dyersburg, TN - Wednesday, November 28, 2007 8:39 AM CST
I just want you to know that your family is in our hearts & our prayers during this difficult time of loss. No words can ever take away the hurt you are enduring, but I pray that God does provide you with comfort & peace knowing that Zach is sitting beside him and will be forever taken care of.
With sympathy & love
Nicole M. Watson
www.caringbridge.org/visit/maddisonwatson
Nicole M. WAtson <nicolemwatson@wi.rr.com>
Franklin, WI USA - Wednesday, November 28, 2007 8:39 AM CST
I am sorry for your loss, and I offer you and your family a virtual hug. Watching your children suffer is so hard, but we can tell you were strong for them, as mother's always are. Take care!
Cheryl <c_sarten@yahoo.com>
Phoenix, az - Wednesday, November 28, 2007 8:36 AM CST
No words to offer. Only heartfelt sorrow and sadness for all of you. I've only known Zach through Donna and this site, but he taught me much about life, and true appreciation for it.
You all have our deepest sympathy.
Alicia, Nick, Aurora, Ambrosia, Avalon, and Anam
Alicia Hall - Avalon's mom
Powell, OH 43065 - Wednesday, November 28, 2007 8:34 AM CST
Anne:
I read on the Yahoo site about Zach. My heart is so saddened. Zach was a little boy so full of life and joy. I am so profoundly sorry for your loss. You and your family are in my thoughts and prayers.
Sincerely,Bridget Willis <bridgetwillis@comcast.net>
Plymouth, MA USA - Wednesday, November 28, 2007 8:30 AM CST
Dear Anne,
My heart is with you at this time...my pain probably resembles yours more than any other mom who's writing here today...if that is any comfort. Kirkland too is at the end. His feed was turned off yesterday. We anticipate his passing soon.
I'm so sorry my friend...I am here.
love to your family at this time,
Kelly and Kirkland xoxoxoxo
Kelly Kilbride <kilbridek@yahoo.com>
Georgetown, On Canada - Wednesday, November 28, 2007 8:30 AM CST
Anne, just writing today to let you know I'm thinking about you and praying for you. Remember that there are lots of different kinds of "strong". One kind is to just "be" how you are today. Just to let yourself be as you are each day and not try to be any different, or put on a show of what you think people expect. You ARE strong, amazing and profoundly wonderful. Falling apart in tears and sadness IS strength. Also remember what an amazing Mom you have been to Zach. Remember, above else you have done the very best job you possibly could for him. Do not doubt this, even for a moment. God bless Anne. Know that we are here for you when you need us, to listen, or just be.
Praying and holding you in our hearts,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Wednesday, November 28, 2007 8:03 AM CST
Anne I am so sorry.
I wish I could be there to help in person.
I wish there was more I could say.
Keely
www.caringbridge.org/visit/brandonandtyler
Keely
- Wednesday, November 28, 2007 7:41 AM CST
I am sorry for the loss, but I am also grateful that Zach taught me how to live, through the things youhave shared about him. The best gift he gave to so many people was courage and laughter. It may be selfish, but I hope and pray you continue to share the wonderful things about zach and sam that you have for a while now, and we can still learn from the lessons they taught. Praying for you and your family through this very difficult time.
Donna Thorell and Tim <iluvdizney2@comcast.net (www.caringbridge.org/ma/thorell_kids)>
- Wednesday, November 28, 2007 7:30 AM CST
I am so sorry. I pray for comfort for all of you.
Kathy Jordan <kfjordan@earthlink.net>
- Wednesday, November 28, 2007 6:57 AM CST
Anne, I keep coming back to your site hoping that I'd find some wonderful words to write in the guestbook and I just can't find any. I well up with tears and can't hardly see the screen... I just want to give you and the girls a great big hug. I thought of Zach many times today while at the hospital and just believing that his heroism was giving other mommies and kiddos strength to press on. We love you so...
Sarah and Boys <sarahjean05@yahoo.com>
Redlands, CA - Wednesday, November 28, 2007 1:45 AM CST
I am saddened to hear about Zach.
Sheryl & Trinity sumlin
sheryl sumlin <sherylsuml@yahoo.com>
atlanta, ga usa - Wednesday, November 28, 2007 1:38 AM CST
Zach and your entire family will remain in my heart. Thank you for the privilege to participate in his life and in his medical care. With love and prayers,
Sarah Godbert
Milwaukee, wi - Wednesday, November 28, 2007 1:38 AM CST
Anne, Thinking about you so much and wishing I could take some of your saddness away. I think you are truly amazing - I can only hope to be as good as a mother as you someday! You have inspired me in many ways and I want to thank you for that. Thank you for making Zach a part of my life! He is so loved!!! I'll see you soon.
Zach, I love you so much, buddy! I can't believe how brave, funny, happy, and kind you are! You have always amazed me! I would look forward to seeing you every month - you always put a smile on my face!! I have been so blessed to be able to have you in my life, and it has been such an honor to be able to help take care of you. I'm going to miss you so much, but I promise that I will never forget you and I will have a special place for you in my heart! You're the best, Zach! And I know you don't want me to say it, but you really are so cute!! I love you Zach!
Love,
Amanda
Amanda <aglorioso@chw.org>
- Wednesday, November 28, 2007 1:32 AM CST
Praying for peace for your family durring this time of sadness...
Lori <lorismiley@hotmail.com>
- Wednesday, November 28, 2007 0:38 AM CST
I'm so very, very sorry. I pray for comfort for your beautiful family.
Julia Hatfield
Evansville, IN USA - Wednesday, November 28, 2007 0:10 AM CST
Dear Anne and family,
I have met your wonderful son before through this site. How sad I am to read of his passing today. I am sure that your family is suffering. To lose another son/brother to this dreadful disease is a tragedy. I am so sorry for all the grief and sadness all of you must endure. Please know that your boys will be remembered and that I am now changed after having read their stories. All my prayers for your family to share your love together and get through this with beautiful memories of your beautiful boys.
Sandra
Sandra Swami <Sandraswami@mac.com>
Shoreview, MN USA - Wednesday, November 28, 2007 0:06 AM CST
Anne and family,
My deepest, deepest condolences on losing your Zach ... my prayer is that the sweet memories of him will someday fill the void he's left in your lives.
Much love from South Louisiana,
Joel A. Ohmer <joel.ohmer@gmail.com>
Houma, LA 70360 - Tuesday, November 27, 2007 11:56 PM CST
Dear Juhlman family,
I am so sorry for your loss....I cannot even begin to imagine your pain....Your family will always be in our thoughts and prayers.
I came across Zach's and Sam's site over a year ago through a site of another young child. I was drawn to your site by your courage and strength. On so may occasions you have been such an inspiration.
Zach and Sam will continue to touch the lives of people from all over the world, as will you Anne.
My husband is a surgeon and I have shared with him several of your passages...He has learned so much from you, Anne....you have provide so much insight to the feelings of loved ones so often overlooked. He continues to share your story with residents and interns. So you, along with Zach and Sam have provided a legacy....a legacy of courage, strength and love.....Sam and Zach will never be forgotten.....
Michelle Warren <warriordoctorb@hotmail.com>
Statesville , NC - Tuesday, November 27, 2007 11:53 PM CST
Zachary Ryan Juhlmann - the one and only, God takes you in his arms and keeps you close.
God Bless
Linda Carole McIntyre <iblinders@gmail.com>
Santa Cruz, CA US of A - Tuesday, November 27, 2007 11:52 PM CST
Anne,
I was so sad to read your post today about Zach's passing. Did it surprise me that you posted yourself this morning...not one bit. Strength is your hallmark and what you will rely upon in the days to come. I cannot imagine your pain. The one thing that has run through my mind all afternoon since finding out about Zach was that the two "bestest brothers" were back together again. Please express my sorrow to Brittany & Abby also.
With a humble heart,
Kristi Cole & Family
Kristi Cole <kristi3333@bellsouth.net>
Atlanta, GA USA - Tuesday, November 27, 2007 11:26 PM CST
Our Prayers are with you all. We Pray that you feel Gods Loving Arms around you and he give you all his Peace, Comfort, Love Daily.
In Christ, Michele
Michele and Ron <ronmichele@noltefamily.org>
LeSueur, MN USA - Tuesday, November 27, 2007 11:17 PM CST
I love you Zachary Ryan. forever and for always, my brother you'll be. Don't ever leave me.
abby, ur lil sis <writercrazy15@yahoo.com>
- Tuesday, November 27, 2007 11:02 PM CST
{{<3}} love prayers and peace be with you
Darcie <sporklesnop@yahoo.com http://www.caringbridge.org/visit/darcie>
- Tuesday, November 27, 2007 10:44 PM CST
Our hearts are saddened by your son earning his wings.
We are sending our love and prayers to you. I am truly sorry.
God bless you all and i am truly sorry.
Heather Carter <morh2gs@alltel.net cb/ga/rheanacarter>
Atlanta, ga - Tuesday, November 27, 2007 10:36 PM CST
Anne, I am so sorry to hear about Zach passing away..He is truly an amazing boy, who I will always have such fond memories of (Playing Nintendo on 4W). You and your family are such an inspiration. Zach, Sam, and yourself have and will continue to be in my thoughts and prayers.
Sincerely,
Ann Scott
Ann Scott <asartini@yahoo.com>
- Tuesday, November 27, 2007 10:06 PM CST
Words cannot express the sorrow I feel for your loss of Zach. He will never be forgotten, his short life touched and inspired so many more. I fell certain he is with Sam and happy to be with Our Lord, but that doesn't help fill the void here on earth. My prayers will continue for you and your family.
Pat Carriveau <patcarriveau@earthlink.net>
Hartland, WI - Tuesday, November 27, 2007 10:03 PM CST
I have been following Zach's life and your inspirational journal writings everyday. I am so saddened to hear of Zach's passing and I can't even imagine the burden you are bearing at this time. I am praying for you, and your family, that God will make His grace and peace so very real and close to you during these very hard next few days especially, and also in years to come.
Erica Beyea <debeyea@verizon.net>
Eden, NY - Tuesday, November 27, 2007 9:43 PM CST
I am so sorry for your loss. I heard about your son's passing from Connor's website. I know he is with his brother Sam and Connor playing and running without pain or sickness. It is an amazing place that they are in. They are with our Lord! What a wonderful place to be. I will be thinking and praying for you and your family during this difficult time.
Dawn Brooks- Caregiver for Alex <dawnbrooks05@comcast.net>
Winchester, VA United States - Tuesday, November 27, 2007 9:34 PM CST
Anne and family,
No words can express my sorrow for all of you. May God be with you in this most difficult time.
Kathy, grandma to Audrey, 6yrs with Mito
Kathy <dklboone@sbcglobal.net>
Perryville, MO USA - Tuesday, November 27, 2007 9:26 PM CST
Anne,
I heard the news very early this morning and I am without words. Know that You all have touch my life in a way I cannot express. I hope that I was able to give you some small amount of peace and laughter during this very difficult period of your life. Please know that if there is anything I can for you I will. My thoughts and prayers are with you always.
Anne Dewey (PICU, RN) <dewey95@msn.com>
Fox Point, WI - Tuesday, November 27, 2007 9:12 PM CST
Dear Anne,Lou,Brittany and Abby,
My deepest sympathy to all of you at this time of the loss of your beautiful Zachary. I continue to hold all of you in my heart and will carry the boys with me in my heart, as well, always and forever. Love to all of you.
Linda
Linda Zajork <lindazrn@gmail.com>
New Berlin, WI USA - Tuesday, November 27, 2007 9:09 PM CST
Anne and family,
I am heartbroken with the news... dont know what to say as there is nothing that can take all this pain away. I will be praying for you all.
Hugs,
Catalina
Atlanta, - Tuesday, November 27, 2007 9:03 PM CST
Anne, my heart aches for your loss. You will always be in my prayers.
Pam Dobke <pdobke@wi.rr.com>
Waukesha, wi - Tuesday, November 27, 2007 9:00 PM CST
Hi Anne,
You do not know me, but I used to work with one of your newer neighbors at Wheaton Franciscan and I recently took a job at Children's. My deepest sympathy to you and your family with your most recent loss. May God grant you strength as you heal in this most difficult time.
Hugs
Theresa Miller
Helenville, WI - Tuesday, November 27, 2007 8:31 PM CST
Sincere sympathy from a stranger in Indiana who had been following Evan's lifes story. Mary asked us to give you our regards today. May your loss be another eternal gain.
God bless
Betty Hufford <bhufford@comcast.net>
Indianapolis, IN - Tuesday, November 27, 2007 8:29 PM CST
Dear Anne, Lou, Brittany and Abby, I am so very sorry for all of you that Zach has passed on and left you here with broken hearts. But please know that Zach and Sam are happy together. May that thought help to ease your pain as you try to "carry on". So many people have followed your family's journey and have come to feel so close to you. There are many, many sad hearts tonight.
Donna Brooks <daniel8546@sbcglobal.net>
Waukesha, WI USA - Tuesday, November 27, 2007 8:28 PM CST
Anne, I am so sorry to hear about Zach. I know he was greatly loved and will be missed so much. I have been praying, as have my entire church, for Zach and your entire family and want you to know we will continue to do so. Take care...
Darla Klein <honeybear50317@msn.com>
Des Moines, IA USA - Tuesday, November 27, 2007 8:00 PM CST
Oh I am so sorry to hear of Zach's passing. Just from reading about him, he was truly 'the one and only'.
Please know you are all in our prayers and thoughts.
Shelly
www.caringbridge.org/visit/rawlinsboys <mom24wildboys@sbcglobal.net>
Glendale, CA - Tuesday, November 27, 2007 7:59 PM CST
Dear Anne and family,
I was so saddened to hear of Zach's death. You are all in my thoughts and prayers.
Kathy and family
Kathy Rivers <rivers_k1@comcast.net>
Ellicott City, MD - Tuesday, November 27, 2007 7:59 PM CST
Dear Anne and girls
My heart just aches for all of you, I really hoped Zach would pull through this because selfishly I wanted a chance to get to know him better. I started to read your journals this summer, I don't even remember the first time I wrote to you. I really liked Zach as a person and he was easy to love. I cannot imagine how you are feeling and I really have very few words. Anne you did everything possible to help Zach recover and I admire you as a mom. I am so glad that Deb told me about your son. I can see him in heaven now, out of pain with his brother Sam, Connor, Kyle and all his other friends who have left this earth. Most of all Zach is with our loving God who loved him before he was even born. I hope you will reach out to those mom who have been through a loss of a child, they are only a phone call away. I will keep you and your girls in my prayers. Zach will be missed by so many people, but by his wonderful family most of all.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Tuesday, November 27, 2007 7:57 PM CST
Anne and Family,
My heart goes out to you. Reading through your guest book, it is amazing how many people have been moved by Zach. I think this is says a lot about the strength and love in your family. My thoughts are with you in this difficult time.
Phil Talsky (Samantha's Uncle Phil) <philtalsky@yahoo.com>
- Tuesday, November 27, 2007 7:52 PM CST
Much love and healing thoughts to the family of -- Zachary Ryan Juhlmann - the one and only. Please know that your sorrow is shared by so many. May you find peace and comfort in the days ahead.
Glinda
Glinda Foster Hill <fosterhillg@msn.com>
Washington, DC 20024 - Tuesday, November 27, 2007 7:35 PM CST
Dearest Julhmann Family,
Our thoughts are with you, I was soo saddened to read your post this morning. Our family hopes for nothing but the best for your family.
Hugs Tammy Mott & Family ( Mom to Erik Liddell 17 mito complex III& IV)
Tammy Mott <motcrew6@frontiernet.net>
East Branch, NY USA - Tuesday, November 27, 2007 7:34 PM CST
Anne, I was so sorry to hear that you lost another one of your precious boys. I can't imagine that kind of pain. Please know you are in my prayers. Zach and Sam are two awesome kids.
Nikki
AZ - Tuesday, November 27, 2007 7:27 PM CST
My heart was torn when I read about Zach. I am so deeply sad for your loss, but rejoice that we will all see Zach and Sam again one day. My love and prayers are sent to you, Lou and the girls.
Katie Jones (Burrow)
- Tuesday, November 27, 2007 7:22 PM CST
Anne and Juhlmann family,
I along with the hundreds of other people that have signed your page today, am deeply sadden by your loss. There is nothing that can be said to ease your pain and your hearts have been ripped out once again. I pray for peace for you. It will not come easily and it will not come soon, but it will come. I had not met Zach or Sam in person, but I knew them both through your beautiful writing. Many others knew them that way as well-be proud of how you offered up their lives to many others so that they could be known and remembered now. Through your pain and sorrow, one day there will be light. It will start small and dim and may be unrecognizable. That light will be Zach. You have seen that light every time you smile at a picture or thought of Sam. Hold those moments close. Each time you see it the light will grow imperceivably, but it will grow. And in the gaping hole in your heart will live that light. My prayers are with you.
Cindy Loppnow
- Tuesday, November 27, 2007 7:21 PM CST
Hi Anne,
I know Scott and Deb Millard. I have been checking in on Zach since Deb asked everyone who cared about Connor to pray for his friends. Although I never posted before I want you to know that I often prayed for his recovery. It almost looked like he was turning the corner last week. I am so sorry for your loss and I will continue to say prayers for you and your family. It is the very least I can do for such wonderful parents as you and the Millard's are. I truly admire the courage both of you have! May God bless you and your family.
Dianne Donohue <mapsddonohue@yahoo.com>
- Tuesday, November 27, 2007 7:21 PM CST
I am sorry to hear of your loss. Your family will be in my thoughts and prayers.
Jennifer Ramps <Jenniferramos27@aol.com>
Stafford, VA USA - Tuesday, November 27, 2007 7:19 PM CST
Dearest Anne (and family),
Words cannot express my sorrow as I learned of Zach's passing today. Our family has felt so close to yours for such a long time. The courage you have shared with us all has been far beyond what anyone could expect. You have given much even though so much has been taken from you. Please accept my heartfelt condolences as you go thru the very trying days that lie ahead. Zach is now with Sam and they are both free of the misery of the disease that took over their young lives for so long. Even though you are left behind to remember, they will always be with you. Please feel a warm hug and much love from Grandma Alice.
Alice Adams <justagram14@msn.com>
Albuquerque, NM USA - Tuesday, November 27, 2007 7:17 PM CST
No . . . I just keep looking at those words but I cannot believe it is true. I am so sorry. I would try to say something heartfelt about how much Zach means to me and how much I wish he was still here in body, but my heart is just broken and empty and I cannot find adequate words.
I am so deeply deeply sorry --
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Tuesday, November 27, 2007 7:16 PM CST
Anne and Family,
^Zach^ and ^Sam^ came from an amazing family - a family unafraid to show love, determination, fearlessness in pushing the envelope with his care, and the wisdom of knowing God had the final say in Zach's time on Earth. Now begins his life in Heaven with his Best Brother Sam. I can't begin to imagine the loss you have suffered; but, I know you put forward the BEST FIGHT that you could for your precious son. Please find comfort in that - you fought the good fight for your son.
Charla and Lexie <CharsFunnyFarm@aol.com>
Moreno Valley, CA USA - Tuesday, November 27, 2007 7:13 PM CST
To Ann and Family: I am so sorry for the loss of your boy, Zach. My thoughts and prayers are with you and your family.
(I am Mark and Gina Cousineau's cousin from NJ.)
Christy
Christine Gallacci <christine0213@aol.com>
North Brunswick, NJ USA - Tuesday, November 27, 2007 7:13 PM CST
Dear Anne,
You have my deepest sympathy. I am praying for you and your family. The part that makes me glad is that Zach and Sam are made whole now and are playing and doing things they didn't get to do here. At least you will see them again and on different terms- they will be well! I am sorry for your broken heart and will continue to pray for you.
Lots of love,
Lori and Shelby/cp/shelbywood
Lori Wood <woodyou@comcast.net>
Clarkston, MI USA - Tuesday, November 27, 2007 7:08 PM CST
Dear Anne and family, As I sit here in tears, please know that I send my deepest sympathy to you all and will continue to keep you in my thoughts and prayers.
Wendy Burgermeister
West Allis, WI - Tuesday, November 27, 2007 6:53 PM CST
Ann and family...
I am so sorry to read about Zach. However, I bet Sam and him are having a grand ole time and Sam is showing him all the coolest things he has learned! I will be praying for you who are left behind. You are a great mother, Ann! I pray for peace and rest in your hearts, souls, bodies and minds.
deb
www.caringbridge.org/tn/wells
Deb Wells <VisibleWorship@aol.com>
Boston suburb, Ma - Tuesday, November 27, 2007 6:52 PM CST
My Dear Ann,
I have no words to suffice, only tears and a broken heart. I am so sorry!!! I only wish I could give you a huge hug and cry with you right now. Zack was sucha beautiful spirit and very lucky to have an amazing mom. I know that does not help you feel better, but it is the TRUTH! When Leanna passed away, I kept reminding myself that she was now with her sister and somehow that was a "good" thing. I cannot explain it, but now Zack is with Sam and they are both mito free. I know your hurt so well and I wish there was something to lessen that deep pain, but I also know there isn't. Your children are worth every tear you shed. I am so sad and my heart hurts for you. I feel as if I know Zack so well and his amazing personality and I will miss him, too.
May God give you strength,
Suhad Haddad
Suhad Haddad <suhad88@hotmail,.com>
Granada Hills, CA USA - Tuesday, November 27, 2007 6:51 PM CST
Dear Anne: My heart so hurts for you. My thoughts and prayers are with you and your family. As many have said, the best brothers are once again together playing games and telling jokes. May your faith sustain you and your memories comfort you. God Bless you all.
Linda Oleson <loleson@chw.org>
- Tuesday, November 27, 2007 6:50 PM CST
My Dear Ann,
I have no words to suffice, only tears and a broken heart. I am so sorry!!! I only wish I could give you a huge hug and cry with you right now. Zack was sucha beautiful spirit and very lucky to have an amazing mom. I know that does not help you feel better, but it is the TRUTH! When Leanna passed away, I kept reminding myself that she was now with her sister and somehow that was a "good" thing. I cannot explain it, but now Zack is with Sam and they are both mito free. I know your hurt so well and I wish there was something to lessen that deep pain, but I also know there isn't. Your children are worth every tear you shed. I am so sad and my heart hurts for you. I feel as if I know Zack so well and his amazing personality and I will miss him, too.
May God give you strength,
Suhad Haddad
Suhad Haddad <suhad88@hotmail,.com>
Granada Hills, CA USA - Tuesday, November 27, 2007 6:50 PM CST
Ann
I am so very sorry to hear about Zach getting his angle wings. I will continue to keep you and the girls in my thoughts and prayers as you deal with your loss.
Laurie Fitzgerald <laurie.fitzgerald@gmail.com>
Jackson , MI United States - Tuesday, November 27, 2007 6:45 PM CST
Oh Anne, I am so sorry to hear this news. It just seems impossible after all you, Zach and your family has been through. I know there really is nothing any of us can say to ease your pain, but know we are all thinking of you and precious Zachary.
Debbie R. <mmercedesmom@cox.net>
El Cajon, CA - Tuesday, November 27, 2007 6:38 PM CST
So sorry to hear about your loss.
Janet Sample <jansample@charter.net>
Potter, WI USA - Tuesday, November 27, 2007 6:32 PM CST
Anne-our hearts are heavy and with sadness as we read of Zach's passing. We continue to keep your incredible family in our hearts and prayers. Hope that you can feel the love surrounding you and your two angels. There are no words, but perhaps the love around you can help to hold you
Stacy, mom to Rina
SG
- Tuesday, November 27, 2007 6:21 PM CST
Anne
I am numb and just don't know how to tell you how much we care and will miss ^Zach^. Right now, I'm holding together by the thought that ^Zach & Sam^ are together, laughing, playing, not hurting, and being the best two brothers either one could ever have.
With all that though, my heart breaks for you, Lou, Brittany, and Abby. Please know my heart and hands are reaching out with hugs and prayers.
Karen Nelson <KMNelson86@aol.com>
Sanford, NC USA - Tuesday, November 27, 2007 5:58 PM CST
Dear Anne and Family~
I'm so sorry to hear that Zach passed away. I know that things are tough but I hope you will find comfort in the fact that both Zach and Sam--and your whole family, have touched so many lives. Thank you for giving me the opportunity to care for Zach these last couple of months. I will continue to keep Zach, you, and your entire family in my thoughts and prayers.
Trina Gross <mgross@chw.org>
Milwaukee, Wi - Tuesday, November 27, 2007 5:55 PM CST
I picture Zach and Abby coloring at a table while you and I worked with his new enteral pump. I don't remember what pump it was, but I'll never forget those little blonde heads bent together, coloring and laughing.......I really thought he'd be going home again....
Barb Bilicki <Barb.bilicki@hcmedical.com>
New Berlin, Wi USA - Tuesday, November 27, 2007 5:52 PM CST
Dear Anne and Family,
Our thoughts and prayers are with your family at this time. Zach and Sam touched so many lives, thank you for sharing them with us.
The Culotta Family.
Lorie Culotta <LACulotta@aol.com>
Fort Bragg, Nc US - Tuesday, November 27, 2007 5:47 PM CST
Dear Anne,
You are a mother extraordinaire, and I have learned much from your amazing example of caring for your children.
You have journaled your family living each day seizing as many moments of joy as is possible (and I can never look at guacamole without thinking of Zach).
We are praying for your family and we are so grieved for your profound loss.
Linda Marie Codier www.caringbridge.org/az/bonniemarie <lynmarieco@cox.net>
Mesa, AZ USA - Tuesday, November 27, 2007 5:47 PM CST
To the Juhlmann Family, I was so sorry to hear about Zach. I remember how much he enjoyed chess. I especially remember his sense of humor and great smile. I'm sure Sammy and Zach are together again as "Best Brothers" even though it is heartbreaking for the rest of you. You are all in my thoughts and prayers, especially Abby. I've thought about her alot today. Trudy Staffeldt, former aide of Zach's at Bethesda
Trudy Staffeldt <dtstaffeldt@yahoo.com>
Waukesha, WI U.S.A. - Tuesday, November 27, 2007 5:45 PM CST
Dear Juhlmann Family,
I will never forget the first time I met Zach. He shook my hand with a firmness that was actually surprising (it hurt!) as if to say;"don't be fooled by my fragile exterior." He looked me right in the eye and introduced himself,"Zachary Ryan Juhlmann, the one and only."
It was a privilege to assist your son and Chris his wonderful Nurse at school. I am so glad Zach got to experience High School, even though his time there was short.
I will never forget Zachary the one and only.
I am so sorry for your loss.
Cindy Hunter West High School Health Room <chunterwauk@aol.com>
Waukesha, WI USA - Tuesday, November 27, 2007 5:41 PM CST
Oh Anne- I am so sorry!!! I just heard the news, and I am shocked and heartbroken for you and your family. I hope that you find some comfort and peace in knowing that Zach is with Sam and that you and the medical staff did everything possible for Zach. I don't know if there is a better mother anywhere than you, Anne. There is no doubt that Zach knew that he was loved and cherished. Please know that you, Brittany, and Abby are all in our hearts and prayers.
With love and tears,
Scott, Sonya, and Taylor Murray
Sonya Murray, Mommy of Taylor, www.caringbridge.org/visit/tay-tay <bamagirl01@comcast.net>
Smyrna, TN - Tuesday, November 27, 2007 5:40 PM CST
Dear Anne and family - I am heart broken to hear that Zach has gone but I know that he is in heaven with his brother and they are together and running around and having fun. You did so much for Zach and were his biggest ally in his fight. At this time things are so difficult for you and your family but remember the good memories of Zach and Sam. You and your family are in my thoughts and prayers.
Gayle Higgins
Gayle Higgins <Gayle.Higgins@tenethealth.com>
Palmyra, NJ - Tuesday, November 27, 2007 5:27 PM CST
Juhlmanns,
Our hearts go out to you in this difficult time. Working with Zach and Abby has taught me so much about the strength of the human spirit. Zach taught me how to find the bright spot in any situation. His sense of determination and sense of humor will always remind me of his infectious personality. We are keeping all of you in our prayers.
Marianne Petro-Kirsch and the Kirschs <mkirsch@waukesha.k12.wi.us>
Elm Grove, WI - Tuesday, November 27, 2007 5:25 PM CST
Anne, I am so sorry to hear of Zach's death. Although I never knew him before these last 2 months in the PICU, you, Zach, and your family touched my heart. May God bless you and surround you with peace.
Beth Hubert <ehubert@chw.org>
Brookfield, WI United States - Tuesday, November 27, 2007 5:13 PM CST
I use to read all about Sam and had not visited your site for some type until just a few days ago. My heart aches for what you must be going through. At least Sam has his brother with him and neither are alone. My prayers will remain with you and your family.
Lynne Barker (Grandmother to Angel Dylan Faith) <lbarker@asd.net>
East Peoria, IL USA - Tuesday, November 27, 2007 5:05 PM CST
I am so sorry for your loss. I stumbled across the boys website many years ago... I took care of little Natalie for years in Boston, and thru her website, I found your boys. I have been compelled to follow your families journey for the past 3-4yrs. You are truly an inspiration. My heart aches for you and your family. You are truly the definition of a great mom. Everything you do is for your children. You are a remarkable woman with undeniable strength, compassion, knowledge and love. Though I never met your children, it is obvious what great kids they all are, and that you instilled all your values in them. I have learned so much from you and your boys journey. I cannot imagine your heartache, but hope you find comfort in knowing that Sam and Zach are together again, best brothers forever.
anonymous
boston, ma - Tuesday, November 27, 2007 5:00 PM CST
My heart goes out to you. I am so sorry for your loss. It must be so hard. The girls and you will be in prayers. Thank you for sharing Zach and Sams story with us. It has truely been inspirational. They are brave boys with an amazing spirit. Your whole family has been inspiration.
In God's love,
Dawn Anich
dawn anich <Danich1@wi.rr.com>
Wi - Tuesday, November 27, 2007 4:53 PM CST
Anne,
Please know my heart is broken for your loss, I know your boys are together but how hard it is to carry on, please know you are a one in a million mum. We have been touched by you all here in Scotland.
Sharon ,mum to Martin & Samuel & ^Savannah^ <mb-sb@hotmail.co.uk caringbridge.org/europe/samuelbell>
GLASGOW, Scotland - Tuesday, November 27, 2007 4:38 PM CST
Anne,
My heart is aching with yours. I'm so very sorry. I'm so thankful I was able to meet Zach in Atlanta in June of 2006. Zach and Sam will always live on the hearts of all who knew them - and all who have read the stories about them on their CB site.
I'm here for you.
With Deepest Sympathy and Love,
Leslie
Leslie Reynolds <rey7@bellsouth.net>
Roswell, GA - Tuesday, November 27, 2007 4:20 PM CST
I am so sorry to hear the sad news. I was just called this morning by Deb. I wish I could have been there for you and Zach. I am glad you did have so much support with staff that knew you. You and the entire family are in my thoughts and prayers. Rachel
Rachel Grycan <rgrycan@hotmail.com>
Milwaukee, WI - Tuesday, November 27, 2007 4:10 PM CST
Dear Juhlmann Family,
Although you probably don't remember me,I am very sorry about your loss.I don't exactly know how the heartbreak actually feel, but it has to be an indescribable pain.As if one loss isn't bad enough.But at least you know that Sam and Zachary are safe with God.Just by hearing about this painful story really shows people how life is so valuble and that it can be taken away in a blink of an eye.I know all of these kind thoughts will make you happier and know that you are not alone but it will never truly take away all of your sadness.I send happy thoughts and prays to you all.You are all a huge inspiration on having the srtegnth to keep holding on no matter how much it hurts.Please know that my family and I will be thinking of you and praying.My heart hurts for you all.
Jenna (one of Sam's friends in kindergarden)
- Tuesday, November 27, 2007 4:10 PM CST
My sympathy Anne to you and family! Zach's laughter will remain with me forever. Love to you all, Marlene
Marlene <ozzy@netwurx.net>
Waukesha, WI US - Tuesday, November 27, 2007 4:07 PM CST
Dear Anne and Family,
There are no words to express my deepest sympathy for all of you. Sharing your intimate story with me has made a tremendous impact on my life. I know that Zachary is safe with God. Sam and Zachary and all of you will remain in my thoughts and prayers always. Kathleen Turner
Kathleen Turner <kturner28@wi.rr.com>
Menomonee Falls, WI USA - Tuesday, November 27, 2007 3:52 PM CST
http://s237.photobucket.com/albums/ff67/AngelTwinsMommy/designed%20tags/?action=view¤t=Image7.gif
Crystal (AngelTwinsMommy) <crystalmpaisley@sbcglobal.net>
Wharton, TX USA - Tuesday, November 27, 2007 3:49 PM CST
There are tons of prayers flooding heaven for you and your family. Hearing about Zach from Evan Cousineau's sister Mary... we want you to know that you are being uplifted. So much for one family to handle; know that you are not alone! Prayers from a family in SoCal... we care.
With love and support from the Zeiser family
Katherine Zeiser <katherinekzeiser@gmail.com>
- Tuesday, November 27, 2007 3:48 PM CST
Dear Juhlmann family,
I am so sorry for your loss. Though you're heart is broken, know that Zach knows only peace and joy with Sam.
Though his time here was way to brief, he lived and loved
with total zest and to the fullest.
Joni Holycross <loerco333@yahoo.com>
Rushsylvania, Oh - Tuesday, November 27, 2007 3:47 PM CST
I am very sorry for your loss....
julianna's mommy millie
millie <nena1294@aol.com>
hamilton, nj usa - Tuesday, November 27, 2007 3:45 PM CST
Anne, I am so very sorry to hear about Zach. Although I didn't know him personally, I feel like I knew the real him through you. Please know that he has touched many lives. His presence will be sorely missed by many people but his legend lives on. He will be remembered forever by lots and lots of people!
Pessy H.
Brooklyn, NY - Tuesday, November 27, 2007 3:34 PM CST
I just read Mary Cousineau's post and I'm so sorry. We'll keep you in our thoughts and send love to you and your family. All the best, Robin Felton
Robin Felton <ocfeltons@gmail.com>
Ladera Ranch, CA USA - Tuesday, November 27, 2007 3:34 PM CST
Anne,
My deepest heart felt sympathy goes out to you and your family. Sam and Zach will forever be in our minds, hearts and prayers. Thank you for allowing me to care for your children...
Ann
Ann Karvelas <KARVELASBOYZ@SBCGLOBAL.NET>
Franklin, WI us - Tuesday, November 27, 2007 3:28 PM CST
Anne, Louis, & Family,
I'm very sorry to hear about your loss. Zach was a student that touched my heart from the first time I met him. Seeing his smiling face always brightened my day. I enjoyed every minute I had with Zach in the student ministry at RiverGlen. The first time I met him he said he was Zachry Ryan Juhlmann and that is who he will forever be. May you find a peace and comfort in the arms of God during this time of loss. If there's anything we can do please let me know.
Kyle Turner <kyle@riverglen.cc>
Waukesha, WI USA - Tuesday, November 27, 2007 3:26 PM CST
I am so sorry for you loss. Zach & Sam will forever be in all our hearts. May God bless you all with peace and comfort at this difficult time.
Vicki & Caden Williams (mito)
Vicki Williams <vicki.williams@wallisd.net>
San Angelo, TX - Tuesday, November 27, 2007 3:20 PM CST
Praying for you and your family at this difficult time.
Sheridan
www.caringbridge.org/visit/sheridanjohnston
Sheridan Johnston <pickledfairy@gmail.com>
New Gloucester, ME USA - Tuesday, November 27, 2007 3:18 PM CST
Oh Anne, I am so, so sorry. I know that there are absolutely no words of comfort that I can send, so just know you and your family are in my prayers.
With lots of love and gentle hugs,
Marcia, Stephen, Nicole, Meghan, Kayla, Chrissy, Emily and our sweet Angels Sonja and Tanner, okbabes
Marcia, okbabes <marciat@sympatico.ca>
Bradford, ON Canada - Tuesday, November 27, 2007 3:13 PM CST
I just read about Zach on Brody's webpage and I was so touched by your loss. I know that nothing can take away the pain you must feel for losing Zach but I know in my heart that he is with his brother in Heaven. I hope that can be some small comfort to you. I will keep your family in my prayers for the strength to get through this.
Jeanne Bradley <jeanne_bradley@yahoo.com>
Athens, GA USA - Tuesday, November 27, 2007 3:11 PM CST
Anne:
I have been thinking about what to say for several hours - thru tears and such. I know no words that I have to offer will releive your pain or make it go away. I can offer cyber hugs and remind you of how good of a mother, friend and advocate you are. I just look at that smiling picture of Zach on the page and I am so happy that you got to go to San Diego and Zach got to have fun.
Sending love and hugs
Sharon, Roger, Clay, Cole and Jake
Sharon Goldin <lawblond7@aol.com>
Waldorf, MD - Tuesday, November 27, 2007 3:09 PM CST
Juhlmann Family,
My heartfelt condolences on your loss. It has been a great honor to have known and worked with both Sam and Zach. They will remain in my heart forever and guide me in my life as examples of what it truly means to enjoy and to live life to its fullest.
JoAnn Krofta <jkrofta@waukesha.k12.wi.us>
Dousman, WI USA - Tuesday, November 27, 2007 3:09 PM CST
I am deeply saddened to hear of your loss. Zach, like Sam, has touched the lives of so many. You and your entire family remain in our thoughts and prayers.
Angela Zutz <angiern5612@charter.net>
Plover, WI 54467 - Tuesday, November 27, 2007 3:04 PM CST
Zach will forever be in our hearts. He has taught us so much. We will continue to pray for strength for you and your family. Please know we are always here for you. Alex and I send our love.
Megan Reid <dmreid1994@sbcglobal.net>
- Tuesday, November 27, 2007 3:00 PM CST
I am terribly sorry for your loss. Our family will hold you in our thoughts and prayers during the diffcult time.
Jen Boutwell <jboutwell@bellsouth.net>
Suwanee, GA USA - Tuesday, November 27, 2007 2:53 PM CST
My heart aches for the loss of Zachary but know in your hearts he is with his brother and they are flying high in the heavens keeping watch over all of us. I know he would want each and everyone of us to be strong, happy, and remember the good times and all the joy and laughter he brought to each and every one of us. May god bless you and your family.
denise g <denisegehrman@comcast.net>
- Tuesday, November 27, 2007 2:42 PM CST
Your family is such an inspiration for me.
Please know that you guys are in our prayers.
How exciting it is to know that Sam and Zach are reunited together in a perfect place.
:) Melody
www.caringbridge.org/visit/natalieholmes
Melody <sharnholmes@netscape.net>
- Tuesday, November 27, 2007 2:37 PM CST
Anne:
My heart broke when I read your note. The thing is, you always write so beautifully. The words you use and how you twine them together is amazing to me. Even now when I read what you wrote about Zach's passing I read with the love you put in it and all that surrounded Zach during his passing was a caring support team. A love team. Know that there are many people surrounding you with love. From afar and near. But a vision for me is the best brothers are together. May the grace of God and all understanding be with you now and forever.
Lisa Nerenhausen
mom to Leah
Lisa Nerenhausen <LNerenhasuen@new.rr.com>
Appleton, WI USA - Tuesday, November 27, 2007 2:25 PM CST
We send you love and hugs from afar. Know that you are all in our prayers. Through Zach and Sam you have made a difference in so many lives. You have helped us moms as well. God Bless you all.
Mitzi Goldsmith <rgraygoldsmith@hotmail.com>
galloway, oh usa - Tuesday, November 27, 2007 2:25 PM CST
I am so sorry, although I have never met you and your family, I will so miss the Zach stories. My heart is broken for you all.
LeeAnn <ajz3@bellsouth.net>
Savannah, GA - Tuesday, November 27, 2007 2:20 PM CST
Anne and family -- Our hearts and prayers remain with you. Zach is such a bright star and such a fighter.... I've taken some time today to grieve before trying to write. A picture of Zach laughing it up in heaven's kitchen mixing something craaazy up with Sam popped into my head. I will be delivering hugs in person in the coming days. You are one fantastic mom, Anne.
Steph, Papi, Korey, Kody, Killian
Tubetown, OH - Tuesday, November 27, 2007 2:15 PM CST
Dear Juhlmann family,
I was so sorry to learn of your huge loss this morning; it was hard to hear. I am only happy that Zach is no longer struggling with mito and now he is with his beloved Sam Your family has inspired me in so many ways. Your love and strength are magnificent, your children are so lucky to have you as a role model. Zach and Sam were so blessed to be in such a nurturing family and someday your family reunion will be so sweet! I can't imagine the huge hole in your heart. I pray that you will have peace and that the love in your family will help your healing.
Sincerely
Oula Haddad
Oula Haddad <jhaddad1@yahoo.com>
Silver Spring, md usa - Tuesday, November 27, 2007 2:11 PM CST
Dear Anne and family,
Just take a look at the enormous number of people who have just signed your guestbook today to know how much we all care . Sincerely the Yelner family
Cheryl Yelner <cayay@comcast.net>
Doylestown, pa - Tuesday, November 27, 2007 2:11 PM CST
Dear Anne,
I have met Sam and Zachary through the Cousineau family. I learned today that you had lost your beloved son, Zach. I am so very sorry. I wanted you to know you were in my thoughts. For those of us who don't know your family, you've done a wonderful job of helping us get to know Zachary. His smile and sense of humor and spirit transcend through the pages of this Caring Bridge. May the Lord keep you and protect you.
Marie Luna
San CLemente, CA USA - Tuesday, November 27, 2007 2:11 PM CST
Anne --
I am so sorry to hear that Zach has joined Sam...I sit hear at the end of my school day, at school, reading and trying not to weep for you...Please know your family will be in our family's prayers today and in the upcoming days and months.
Theresa <bookangel1993@yahoo.com>
Limerick, ME - Tuesday, November 27, 2007 2:08 PM CST
Anne, Know that I'm thinking of you and your family. I feel very fortunate to have had the opportunity to know Zach and take care of him. He truly was such a great kid. I can only hope to have children as wonderful as yours and to be the best mother ever to my children as you are. I know Zach and Sam are together, healthy and happy.
Nicole Motley <mrs.motley@gmail.com>
- Tuesday, November 27, 2007 2:02 PM CST
Dear Juhlmann Family,
You are all in my thoughts and prayers. Zach was such an amazing young man. I was so blessed to be his homebound teacher for 5 years. He taught me much more than I could ever tell you and his sense of humor was incredible. He will be missed by so many.
With love,
Stephanie
Stephanie Mauck <TMauck@aol.com>
Waukesha, WI - Tuesday, November 27, 2007 1:59 PM CST
Anne: A while ago your oldest daughter mentioned that for every person who signed the guestbook, at least 3 more read without signing. I am one of those that have read on a daily basis for the past year but have never signed. The impact that your family has made on so many lives, including my own, is unbelievable. You are an amazingly strong person and I have felt honored to share in Zach's life through this site. Please know that in the short amount of time Zach was here, he made a huge impact!
Dawn Davis <dawn.davis@uwmf.wisc.edu>
Stoughton, WI - Tuesday, November 27, 2007 1:59 PM CST
iam so sorry for your loss, we will keep you all in our prayers.
jenn w. <countryfolk72@hotmail.com>
united states - Tuesday, November 27, 2007 1:58 PM CST
So, so devastated for your family. I really am. Please let me know if there is anything I can do.
Julie Manley
MS - Tuesday, November 27, 2007 1:57 PM CST
Anne, please accept my heartfelt sympathy today. Thank you for your journal written so soon to allow us to share your sadness. It has been wonderful for me to be able to get to know Zachary through your daily accounts. I send love to you all. Josey
Josey Zell <josephinezell@sbcglobal.net>
Madison, WI US - Tuesday, November 27, 2007 1:56 PM CST
Oh Anne, I wish that I was there since I don't have any words to say and all that I can offer is my hugs. We love you and Zach, Sam and the girls. Zach is and always will be "the one and only." I am praying for you to have peace and comfort.
Love,
Mindy
Mindy Welhouse <mwelhouse3@new.rr.com>
Kimberly, WI - Tuesday, November 27, 2007 1:55 PM CST
I have been so touched and inspired by your love and your proactive sprirt. Zach was a amazing boy with a amazing mom. My heart is very heavy for you today and always. Zach is the one and only, a special boy. Thank you for sharing him with me through caringbride. You have inspired me to always be Kourts voice. Thoughts and prayers with you!
Laura AKA Kourtneys mom <Kourtneysmom2002@yahoo.com>
- Tuesday, November 27, 2007 1:48 PM CST
((((Anne))))--there are no words. My heart breaks for you. Zach and his best brother are together again.
Cindy and Makenzie <rn4maknme@aol.com>
- Tuesday, November 27, 2007 1:44 PM CST
Anne, My heart aches for you and your family. I am so sorry for your loss. The stories of Zach always made me smile.
(((((((HUGS)))))))
Karen Brubaker www.caringbridge.org/wa/love4justin <karenbrbkr@yahoo.com>
Olympia, WA - Tuesday, November 27, 2007 1:39 PM CST
We woke to your news this morning of Zach’s passing. Charlie, Lauren, Taylor and I gathered for prayer, and we wept with you.
Zach and Sam have touched so many hearts. It’s not difficult to see the precious purpose of your sons’ lives, or to visualize their legacy. They have touched us, moved us, motivated us, and caused us to think about so many other children whom we have not met, but now, feel connected to. . .
While we grieve Zach’s passing, and remember Sam again with tears, we take joy, Anne, in what your family has built during these years together – a loving and devoted family, and a legacy of inspiration and hope for so many others. We are so proud of your boys, Anne and Lou, and we are so proud of your family.
Zach, we follow you with our love, and deepest yearning to see you – and Sam-- again in heaven. Until then, we’ll keep watch over your family and support them in any way we can. . .
With Our Love to You All.
Uncle Charlie, Aunt Cyndi, Lauren and Taylor
Cyndi Fischer
Murrieta, CA USA - Tuesday, November 27, 2007 1:38 PM CST
Zach will be missed but NEVER forgotten. Holding everyone who knew him close in Prayer but especially his family.
Emma <emma@wheelchairprincess.com>
UK - Tuesday, November 27, 2007 1:36 PM CST
There are no words Anne! I am so sorry and so sad for all of you. Know that we are all thinking about you and praying for you.
Cindy Bergland <cbergland@tds.net>
Waukesha, - Tuesday, November 27, 2007 1:28 PM CST
Our thoughts and prayers go out to you and your family. www.caringbridge.org/visit/connorscott
Jen Clifton <jenclifton@msn.com>
Pembroke Pines, FL USA - Tuesday, November 27, 2007 1:27 PM CST
ANNE,
OUR HEARTS ARE BREAKING FOR YOU, LOU, BRITTANY, AND ABBEY. ZACH IS AN INSPIRATION AND A HERO TO US ALL. WE PRAY THAT GOD'S BLESSING WILL FALL UPON YOU AND GIVE YOU THE PEACE YOU NEED KNOWING THAT ZACH AND SAM WILL BE TOGETHER FOREVER IN THE ARMS OF JESUS.GOD BLESS YOU.
NIKKI, BRIAN, TANNER AND BAYLEE
NIKKI <NCLEMENT1@WI.RR.COM>
- Tuesday, November 27, 2007 1:18 PM CST
Anne and Family. I am so sorry to hear about your loss. Zach will be missed, he is now with Sam and he's happy and free from the prison of Mito! I love you Anne, you helped me through a lot when Madison went through this!
Shelli <sgrantham_65@yahoo.com>
Hales Corners, WI USA - Tuesday, November 27, 2007 1:16 PM CST
I am so, so sorry for your loss. The overwhelming love and devotion for your beautiful children and family will never be forgotten. Zachary has indeed touched and changed so many people he has never met. Our prayers will be with you always. With deepest sympathy
Linda (TPNsupport) <pnlmay@aol.com>
Gardena, CA USA - Tuesday, November 27, 2007 1:16 PM CST
The enitre family is in my prayers.
Tara
- Tuesday, November 27, 2007 1:15 PM CST
Anne, I am so sorry about Zach. I wish there was something I could do or say to help. Let me know if there ever is. Love, Stacey
Stacey and Sheldon Fleming http://www3.caringbridge.org/ny/sheldonf/ <flemingstace434@gmail.com>
Milton, NY - Tuesday, November 27, 2007 1:14 PM CST
Anne I have no good words. I love you. My thoughts are with and of you and Zach, Lou and the kids.
Emily Fischer
MIlw, WI USA - Tuesday, November 27, 2007 1:14 PM CST
My thoughts and prayers are with you during this most difficult time. Although you do not know me, (I learned of your site through Evan C) you will continue to be in my thoughts.
Vicki
Le Center, Mn - Tuesday, November 27, 2007 1:14 PM CST
May God bless you and your family- I do not know what to say to make you feel better, nothing probably will at this time but I am praying for you to find some peace in all of this. I can not imagine your pain but will do some serious prayers for you-I am so sorry.
Regards,
Deana Drews (found you all via the Cousineaus, glad I did!)
Deana Drews <deana@whatthehairisgoingon.com>
Minneapolis, MN USA - Tuesday, November 27, 2007 1:07 PM CST
I don't know what else to say by I am so, so sorry for your tremendous loss......
Denise Lappan <denise.lappan@verizon.net>
Berwick, PA - Tuesday, November 27, 2007 1:06 PM CST
We are all grieving with you and for you. I am so sorry...this all seems so unfair. He was a wonderful boy and you are a wonderful mother. Our hearts ache for all of you. Zach and Sam will always be in the hearts of all that they have touched.
Kris, Paul, Cole, and Zack Vajda <pnkntwins@charter.net>
- Tuesday, November 27, 2007 1:05 PM CST
I am so very sorry for your loss. Please know you and your family are in my prayers.
Grace A dudley <dudley5060@roadrunner.com>
- Tuesday, November 27, 2007 1:03 PM CST
I am so very sorry for your loss!!! My heart aches for you and your family!!
Stephanie McAvin <stephsfun1982@yahoo.com>
- Tuesday, November 27, 2007 1:01 PM CST
I am so so sorry to hear this. I am praying for you. God Bless!!
Elicia Rivera <riverafamilygeorgia@yahoo.com>
gainesville , ga usa - Tuesday, November 27, 2007 12:59 AM CST
Keeping you in my prayers. May you find comfort in precious memories.
Kate <kpassow@cox.net>
Fairfax, VA 22033 - Tuesday, November 27, 2007 12:58 AM CST
I'm praying for your family. I always enjoyed Zach's smile and personality when I had him in the 5th & 6th grade class at RiverGlen.
Kari (Johnson) McGilvra <curiouskj@yahoo.com>
Waukesha, WI - Tuesday, November 27, 2007 12:54 AM CST
My heart weeps with yours today at the loss of your precious Zach. I am holding you and your family close in prayer.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Tuesday, November 27, 2007 12:49 AM CST
My heart is broken. I am so very sorry, Anne. Please know Sam and Zach both are forever in my heart.
Love,
Krystena <momof2withga2@yahoo.com>
Mt. Sterling, KY - Tuesday, November 27, 2007 12:47 AM CST
My condolences and prayers to your family
Michelle Vogt <lmvogt@hughes.net>
Elkhorn, WI USA - Tuesday, November 27, 2007 12:39 AM CST
So very sad to read of Zach's passing....I checked in late last night, not expecting to read more this am. I wish I had seen his spunky side in person. Prayers for you and family.
Kelly-Ann Larson <kwarren@visi.com>
- Tuesday, November 27, 2007 12:27 AM CST
Dear, dear Anne, Lou, Brittany and Abigail,
Zack changed the world. By touching each of our hearts and, through his example, making us a little bit more loving, compassionate and understanding, he changed the world. What a horrible loss, this brave soul.
We love you, our thoughts and prayers continue...
Laurie and Don <fischer@mc.net>
- Tuesday, November 27, 2007 12:24 AM CST
Dear Anne,
I am so sorry to read about Zach's passing. You and your family are in my prayers.
Anna Toberman
Arlington Heights, IL USA - Tuesday, November 27, 2007 12:24 AM CST
ANNE, LU, BRITTANY AND ABBEY, MY DEEPEST SYMPATHY FOR YOUR LOSS OF ZACH. WORDS CAN NOT EXPRES THE SORROW AT THIS TIME.
GOD BLESS YOU ALL, WITH LOVE
FRANCIS
FRANCIS NATOLI <FRANCISNAT@AOL.COM>
NAPLES, FL USA - Tuesday, November 27, 2007 12:20 AM CST
I am so sorry to hear about Zach. Your family is in my prayers.
Wendy Dinwiddie <ricwendy@sbcglobal.net>
Burleson, TX USA - Tuesday, November 27, 2007 12:17 AM CST
Anne
Our prayers are with you and with your special boys together in heaven.
Jodee and Matisse
Jodee Reid <jodee1@zoominternet.net>
- Tuesday, November 27, 2007 12:17 AM CST
Dear Anne, Lou, Abby and Brittany
We are so sorry to hear the news about Zachary. We have loved him and gotten to know him so well through your postings. We love Zach and Sam and will forever keep them close in our hearts. We are praying for comfort and peace for your family in such a terribly sad time for you. Love and hugs,
Cindy Cruz <rella19@comcast.net>
Edmonds, WA - Tuesday, November 27, 2007 12:13 AM CST
Juhlmann family, I am heartbroken to learn of your loss. I come here from Evan Cousineau's page and this is my first visit. I wish it were under different circumstances. Zach sounds like SUCH an amazing young man, and I know the world would've been a MUCH better place with him still in it.
I lost my daughter 6 months ago, and the pain is not of this world. But to endure TWO losses of the grandest magnitude possible is simply unfathomable to me. I am so sorry. I seriously don't have words. I won't even begin to try and imagine your pain, because there's no way ... It's just impossible.
I said I have no words, and here I am just babbling. I seriously am touched by your story and I will certainly be back to read your journal to learn more about BOTH of your amazing sons.
Zach, Sam, and all of their beautiful family will be in my prayers. I wish you peace and strength as you manage to get through the days ahead. Know that your angels are always by your side.
~Heide
m/o ^Jessica^; forever 17
http://caringbridge.org/visit/jessicarandall
Heide
Marshall, VA - Tuesday, November 27, 2007 12:13 AM CST
Anne,
You and your family are in our prayers and have the deepest sympathies at your loss of Zach. We have been keeping up with news of Zach and know that you did everything you possibly could to preserve his life and let him live as happy a life as posssible. If there is anything I can do for you please ask.
Loriann, Alan, Kyle, Jeremy and Lucas Melby <lmelby1000@sbcglobal.net>
West Allis, WI - Tuesday, November 27, 2007 12:07 AM CST
I just found out about Zachary through Evan Cousineaus site and I wanted to let you know that I'll be praying for you in this devastating time.
Tanya <t.koeppen@insightbb.com>
Lafayette, IN USA - Tuesday, November 27, 2007 12:01 AM CST
Anne and Family,
Zach has been on my mind all morning. So sorry to read your update that he has passed away. He was so courageous and oh so very strong. I know that your heart is breaking right now. I know that Zach has joined his brother and that they are somewhere in heaven running and playing...probably with a puppy. Zach was so loved and has touched the lives of so many. He will always be in our hearts.
You all continue to be in our prayers during this difficult time.
love...
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Tuesday, November 27, 2007 11:59 AM CST
--------------------------------------------------------------------------------
Anne, and Abby and Brittany,
Yet I never met Zach. He really inspired me. I am so sorry. I have been reading his CB updates everyday. He is an amazing boy. Anne you are an amazing mommy. Abby and Brittany you guys are amazing sisters. Zach and Sam are together in heaven playing this morning!!
Tamara(mommy to Joey w/ Mito age 8)
Fair Grove, Mo. USA - Tuesday, November 27, 2007 11:54 AM CST
I am so sorry to hear about Zachary. You are all in my thoughts and prayers.
Maureen Burnham (Natalie Eacrett's grandmother)
Maureen Burnham <mab6847@hotmail.com>
Lowell, MA 01854 - Tuesday, November 27, 2007 11:39 AM CST
Anne and Family,
When I woke up this morning, I had a sick feeling in my stomach. I just knew something bad had happened to Zach. I was so sad to read that Zach has passed away. Although Zach was half my age(I'm 28), I looked up to him. He was such a fighter and showed tremendous strength. He really was strong in his battle until God decided to choose him for His team. I know that I have never actually talked to you or your family, but reading your updates made me feel like I knew your family. My prayers are with you and your girls. May you borrow Zach's strength to get through this difficult time.
Love, Jenn Stacey
Jenn Stacey <staceyje@insightbb.com>
Morning View, KY USA - Tuesday, November 27, 2007 11:29 AM CST
Dear Anne, Lu, Brittany and Abbey,
My heart goes out to all of you at the passing of Zach. It is hard to know exactly what to say. From the start we have offered our thoughts, hopes, prayers, and support. That will never fade and we want you to know that we will always be there for you and the girls. We are very sad to hear that Zach had left us, but were so encouraged when we read about the peace that he had at that time. I realize how much you already miss him, but hoping it helps to know that Zach is no longer suffering, and is rejoicing right now with Jesus, Sam and the angels in Heaven! Please know we will never forget that beautiful smile and his awesome spirit and zest for life.
You need to know that there are many of us, including myself, that are praying for God's strength and peace to completely surround you. Please let me know if there is anything you need or anything I can do for you. Love and prayers to you all today and in the days to come.
With Deepest Sympathy,
Joanne and Family
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Tuesday, November 27, 2007 11:27 AM CST
So sorry for your loss, thoughts and prayers continue for you all.
rosie and alicia <rosiebowah@YAHOO.COM>
- Tuesday, November 27, 2007 11:26 AM CST
Anne, I can't even begin to find any words. I can't believe this bright star has gone out. And you dear, you have lost two. It just seems so unbelievable and difficult. My sympathy and condolences seem too small and too simple but it is all I have. I am so sorry Anne. Just so very sorry. You and your family are in my thoughts and prayers.
Jo <Lakotajo2@msn.com, www.caringbridge.org/ut/parker>
- Tuesday, November 27, 2007 11:23 AM CST
I am so sorry for your loss. (I have been getting updates through Connor Millard's site.) May God strengthen and comfort you in the days ahead. Our prayers are with you and your family.
Annette Conciatori <arconcia@aol.com>
Netcong, NJ USA - Tuesday, November 27, 2007 11:21 AM CST
Anne,
On behalf of Heidi and I, we want to send our condolences to you and your family for your loss. Zachary was a true fighter to the end just like many of our kids with mito were. Now he can play with his brother in Heaven. Words just can't say how sorry I am to hear about Zachary. I've been thinking of Zachary for a while now since he got admitted to the hospital. God bless you, Anne, for all that you have dealt with and for your patience and perserverance. God bless you and we'll be thinking of you.
Paul Coleman- dad to Heather (www.caringbridge.org/ma/heather) <dad2colemankidz3@aol.com>
Easthampton, MA USA - Tuesday, November 27, 2007 11:20 AM CST
Anne,
I am so sorry to hear of your loss. I can't imagine your pain in losing such a bright light in your life, but knowing he is finally at peace and with his brother will hopefully bring you some comfort. My heart is breaking for you, and I truly want you to know what an inspiration knowing you and Zach has been for our family.
Our prayers go out to you.
Much love and support,
Tina (and Andy) Severson, and our family
Tina Severson <tina_l_campbell@yahoo.com>
Kansas City, MO usa - Tuesday, November 27, 2007 11:19 AM CST
My thoughts & prayers are with you at the loss of Zach. I am so sorry~
Sheri
- Tuesday, November 27, 2007 11:19 AM CST
We have been following Zachary's progress and keeping you all in our prayers. We are so very saddened by the news of Zach's passing. Our hearts go out to you all.
God bless.
Bryan, Lisa, Ashley, Alex, Andrew and AJ(age 6/mito)
Lisa C. <lisacannuli4@comcast.net>
Moorestown, NJ - Tuesday, November 27, 2007 11:16 AM CST
(((((Anne, Brittany, Abby)))).....
Zachary is and was inspiring and put up an awesome fight, with courage,love and devotion to his precious family.We will always remember him and carry him in our hearts....shedding tears in New Jersey and praying for your solace and comfort. Praying Sam and Zach, best brothers, are together free, healthy, pain free and only a moment in eternity until you meet again....
Sending our thoughts, love and prayers to you all...
LeeAnne, Sammi and family
LeeAnne Bye and family <allenleeannebye@aol.com>
NJ - Tuesday, November 27, 2007 11:06 AM CST
I was directed to your site through Evan Cousineau's site. I am so sorry for your loss. My heart aches for your entire family. I don't even have the words to express my sorrow.
Josie & Brandon <josie.oxley@sppdistributors.com>
- Tuesday, November 27, 2007 11:05 AM CST
Dear Anne, I am so deeply sorry and so very sad. I loved that precious boy of yours and feel so blessed to have had him in my life the last year. Like I said many times, he ispired me to be a better person. He taught me much more than I taught him. And you, Anne, are the most loving devoted mother I know. I wish I had the words to help the terrible pain in your heart. Please know I am here for you and your family in any way that you may need. And I will carry your beautiful son in my heart forever. Love, Donna
Donna <dmkuhtz@yahoo.com>
- Tuesday, November 27, 2007 11:00 AM CST
I am so saddened to see Zach passed away. My thoughts and prayers are with you and your family.
Sonia Evans
Zach's 6th Grade teacher
Sonia Evans
Waukesha, WI United States - Tuesday, November 27, 2007 10:51 AM CST
Anne, Lou, Abby and Brittany,
Please know we are here for you in whatever your needs may be today, tomorrow.... anytime. Any day. We are all so very sorry to hear about Zachary. He really was amazing.... as all of your children are. Our thoughts and prayers are with each of you.
Mary and Brian, Brian and Julia
The Kost Family <beadit@wi.rr.com>
Waukesha, WI USA - Tuesday, November 27, 2007 10:44 AM CST
So sorry for your loss.....
the Macias Family
Mission Viejo, CA USA - Tuesday, November 27, 2007 10:41 AM CST
I am so sorry to learn about your loss. We are friends of Connor's family through 4 Paws For Ability, and relative neighbors of yours here in Wisconsin. Know that I'll be praying for you Anne, Lou, Brittany, and Abby. What an awful time for all of you, but I am so very glad that Zach is no longer struggling.
Chelsea <cbudde@neosoph.com>
Waukesha, WI - Tuesday, November 27, 2007 10:34 AM CST
Anne- My deepest sympathy goes to you and your family during this time of sorrow. Tears are shed in Kentucky... Please know that Zach has made such an inspiration on so many, touching lives he never met. God will have another Angel to help run things-as he and Sam are now together, best buds!
Jayme <january11292@yahoo.com>
Walton, Ky - Tuesday, November 27, 2007 10:32 AM CST
I just recently found Zach's website. I am so sorry for your loss. He sounds like a wonderful, courageous young man. May his spirit fly free.
Love and peace to you, Nena
www.caringbridge.org/visit/reesejohnson
Nena <nenaelise@yahoo.com>
Hermantown, MN 55811 - Tuesday, November 27, 2007 10:30 AM CST
Oh Anne, I so wish I could be there to hold you and somehow comfort you. You've lived through my greatest nightmare not once, but twice now. I feel so honored to be one of those with whom you shared Zach, and Sam as well. I've learned so much from your attitude and determination to make their lives as normal as possible. I know that those 2 "best brothers" are together now looking down upon you and whispering into your subconscious, "don't be sad, we're here, we're together again". With love and tears.
Barb, Don, and Ray Ballard
VA - Tuesday, November 27, 2007 10:28 AM CST
Anne- You have done everything possible for your sons-and I am sure Zach felt your presence- know that he is at peace and give YOUR heart time to rest.
I will pray for comfort and strength-
Suzanne Perryman in AZ
Suzanne Perryman
scott\sdale, az united states - Tuesday, November 27, 2007 10:27 AM CST
Anne, my heart breaks for you and your girls. Zach will be missed by so many people. What a brave and courageous fighter he was. Your entire family will be in our thoughts and prayers.
With love from Susan, Karuna, and family
Susan Agrawal
Chicago, IL - Tuesday, November 27, 2007 10:26 AM CST
So so sorry to here of your lost, my heart and prayers go out to you and I will continue to pray for god to give you the strength to go on.
Judy Derringer <derr7213@cox.net>
Lemon Grove, ca USA - Tuesday, November 27, 2007 10:25 AM CST
Anne, even though we have not met we are "cb family" our daughter Blair passed away at the age of 16 after a 2 year battle on 3/25/2007. I can not imagine how it would be to lose two of your children - one is tough enough. We are all here for you if you should need to talk or whatever. Lots of prayers for you and your family! God Bless Here is a poem that helps me out on tough days and I hope it does the same for you.
Dragonfly
In the bottom of an old pond lived some grubs who could not understand why one of their groups ever came back after crawling up the stems of the lilies to the top of the water. They promised each other that the next one who was called to make the upward climb would return and tell what happened to him. Soon one of them felt an urgent impulse to seek the surface; he rested himself on the top of a lily pad and went through the glorious transformation which made him a dragonfly with beautiful wings. In vain he tried to keep his promise. Flying back and forth over the pond, he peered down at his friends below. Then he realized that even if they could see him they would not recognize such a radiant creature as one of their number.
The fact that we cannot see our loved ones or communicate with them after the transformation, which we call death, is no proof that they cease to exist.
- Walter Dudley Cavert
Kim
www.caringbridge.org/visit/blair
www.blairstreeofhope.org
Kim Anderson <daisy62999@msn.com>
Minnetonka, MN USA - Tuesday, November 27, 2007 10:22 AM CST
I am so sorry for the loss of your precious son. Please know we are praying for you and your family. You have amazing strength and courage as a mother to see your son through this. I pray you continue to have that over the next several days. God Bless.
Tiffany Smith <smtcrl@aol.com>
Erwin, TN USA - Tuesday, November 27, 2007 10:22 AM CST
May God's peace be with you everyday, but especially at this most difficult time. I learned of your site through Evan Cousineau's site. I can't even imagine what you are currently going through and have gone through - but I can pray that God be with each of you and give you comfort, courage, love, and peace.
Melody Hime
Melody Hime
Shakopee, MN - Tuesday, November 27, 2007 10:21 AM CST
Oh Anne, and family...
I have no words. I am so sorry that you had to say goodbye to Zach. Dear wonderful young man. I will never EVER forget him, or Sammy... or the love that you and your children have for each other. You all will remain always in my heart...
Keeping you close in my prayers....
Heidi and the Idaho boys
- Tuesday, November 27, 2007 10:19 AM CST
Anne,
Our prayers are with all of you and our hearts are so sad.
Zach was so brave.
Justine and Samantha www.caringbridge.org/ma/samantha
- Tuesday, November 27, 2007 10:16 AM CST
Anne, praying for you and the girls. You are such a champion to your children and your boys have been so blessed to have you. Imaagine the reunion as they met again....brothers. Know I'm here if you need something or need to talk. So glad Zach was surrounded by those who love him so much, I pray you continue to be surrounded by the same.
holly
www.caringbridge.org/mi/mayam
Holmen, WI - Tuesday, November 27, 2007 10:15 AM CST
I am so sorry for your loss. Heaven has gained another AWESOME angel!
Love, Gwen
Gwen Haag <ghaag@frmc.us>
East Rochester, NY USA - Tuesday, November 27, 2007 10:14 AM CST
Anne, I am so very very saddened to hear this. My heart breaks for you. There are no words, but please know my heart is aching for your pain, and that I wish I could somehow take away the anguish you are facing. I know that I can't. That no one can. Please know that I am here if you want to talk. Zach was so strong, so brave, so amazing...You took such fantastic care of him. You truly an awesome Mom! He could not have had a better, more amazing Mom. God Bless you Anne. I am holding you in my heart, praying for you constantly. Much love and tears,
Deb
www.caringbridge.org/visit/connorscott99
Deb Millard <sdcm@optonline.net>
- Tuesday, November 27, 2007 10:05 AM CST
My deepest sympathies to you, Anne, and Abby and Brittany. I am so so sad. If it can comfort you at all, I hope you know how Zach touched so many people that he never even met. What an inspiration and source of strength he is.
anne r <areckling@aol.com>
- Tuesday, November 27, 2007 10:05 AM CST
God Bless your family! Without love, their would be no grief. I learned of your loss through the Cousineau family. My heart hurts for your families to loose such precious angels so early in life. They are the lucky ones to have lived on earth to serve their purpose and go to our Savior for his blessings.
Natalae La Douceur <natalaeladouceur@aol.com>
Capistrano Beach, CA - Tuesday, November 27, 2007 10:04 AM CST
Anee,
My deepest and heartfelt sympathy goes to you and your family. I was so blessed and honored to have gotten to know Zach. He will always have a special place in my heart. Now he and Sam can be together, happy and in no more pain. God Bless you and your family. I pray for peace, comfort and strength.
Joanne Holentunder
New Berlin, Wi - Tuesday, November 27, 2007 10:03 AM CST
Anne-
I can not believe that just yesterday I was caring for your precious Zach and now he is at peace in heaven. Sam and Zach are "bestest brothers" together forever with God. My life has been blessed because I met and loved Sam and Zach and was able to see you be the most loving mother to both of them. I hope that one day my sweet baby boy will feel the same way about me as Sam and Zach do about thier Mama. You are all in my thoughts and prayers. Hold tight to each other and may you find peace that they are together and not in any pain.
Love-
Melissa
Melissa
- Tuesday, November 27, 2007 9:56 AM CST
Zachary's parents, you are in our thoughts and prayers. Please except our greatest sympathies on your loss. I hope my Zachary was there to meet yours with open arms. Two very special Zachary's for God to love and heal.
The Hunter's(angel Zac)
www.caringbridge.org/visit/zacharyhunter
Kim Hunter <widgit@earthlink.net>
middle grove, NY USA - Tuesday, November 27, 2007 9:56 AM CST
Anne,Lou,Abby and Brittany
Thinking of you all today and sending so much love and sympathy your way..
Much Love
Wendy
Wendy Runge
Waukesha, WI United States - Tuesday, November 27, 2007 9:48 AM CST
Anne, Lou, Brittany and Abby,
My deepest sympathies on the loss of Zachary. It is comforting to know that he has been healed and is in the comforting presence of our Lord and his best brother Sam. Zach was a special boy and will always be remembered in my heart. Caring for the boys was the best thing I have ever done in my nursing career as it taught me so much about strength and resiliency. My prayers are with you.
Sarah
Sarah Pouzar <filta1@charter.net>
Hartford , WI - Tuesday, November 27, 2007 9:42 AM CST
My heart breaks for you. May Zach's strength give you guidance. He is rejoicing with the Lord and his brother.
Deanna G. <dgromowski@chw.org>
- Tuesday, November 27, 2007 9:15 AM CST
My heart breaks for you. Many prayers coming your way. May you find comfort and peace knowing that the boys are together again and without pain or suffering.
In prayer,
Katie
Katie
- Tuesday, November 27, 2007 8:51 AM CST
Our deepest symapthies to Lou, Anne, Brittany and Abby on the passing of Zach RIP, our tears are also flowing at the courage of this amazing young man but now he joins his best brother Sam RIP. There are no words that will comfort you all just now but just know that we will keep you all in our prayers.
Rivas Family <aineahern@aol.com>
Bakersfield, CA US - Tuesday, November 27, 2007 8:21 AM CST
Anne, please know how very hard we are praying for everything and everyone. You are CONSTANTLY on my mind, in my heart. I so wish there was more I could do for you in a tangible way. Please know we are here for you if you need anything at all. Let Zach know we are all praying.
Much love
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Tuesday, November 27, 2007 8:21 AM CST
Anne and family,
You are constantly on our minds; in our hearts and in our prayers. Still hoping and praying for another miracle.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Tuesday, November 27, 2007 5:12 AM CST
praying for you all
gretchen
Bradford, ON canada - Tuesday, November 27, 2007 4:55 AM CST
So sorry, we are heartbroken.
In prayer for all of you...
The Cousineaus
www.caringbridge.org/visit/evancousineau
Mary Cousineau
- Tuesday, November 27, 2007 4:45 AM CST
Dear Anne,
Hopeing and praying for Zach and all of your family. I wish we could do more.
Mary <mkrupski@yahoo.com>
Essex, VT - Tuesday, November 27, 2007 3:51 AM CST
Thinking of you all.
Kerry, Hailey & Brenna
Plymouth, MA - Tuesday, November 27, 2007 2:50 AM CST
Hoping along with you that the medicine begins to work quickly.
Laura
Albuquerque, NM - Monday, November 26, 2007 11:40 PM CST
PRAYING FOR PEE!!! :0)
Seriously - Sending our love and prayers,
Sonya and Taylor
Sonya Murray, Mommy of Taylor, www.caringbridge.org/visit/tay-tay <bamagirl01@comcast.net>
Smyrna, TN - Monday, November 26, 2007 11:14 PM CST
Hi Anne and family,
I was encouraged to see that Zach gained some ground today, but not surprised. Zach is amazingly strong, and he is fighting hard for every moment with you. Though I have never met Zach, I can see how tough and resilient he can be. I believe with all my heart that Zach can hear you Anne! You believe it , and I believe it, and you know it in you're heart, as Mom's know things no one else can know. I watched a segment on 60 minutes (last night) about comatose patients, and surprising info. from functional MRI results. A comatose patient had the same brain activity in response to identical questions given to the journalist. The results proved that both heard and understood the same question, and there were other tests with other patients that proved that comatose patients
clearly heard and understood their loved ones, they just couldn't reply. Zach hears you, feels your presence, and knows when you are there, not one doubt of that in my mind. You are a great mom, and you are a wonderful friend to your child. I have thought of Zach so many times a day, in Walmart, the doctor's office, our kitchen, everywhere, and whenever he comes to mind I lay down my task if only for a brief moment and cover him with prayer. Many, many people are praying for you all.
Joni Holycross <loerco333@yahoo.com>
Rushsyvania, Ohio US - Monday, November 26, 2007 9:24 PM CST
Anne,
I continue to think of Zach,you and your family. I pray daily. He is such an incredible young man! I completely respect your wish for limited visiting. It has been hard for me not to visit because he has become very special to me, his smile, his laugh, his mannerism. Please know how I sincerely mean every word I say. If there is ever anything I can do please let me know. I am here at the hospital for you,to lend an ear or just to get you a bite to eat or getting you some Mountain Dew please let me know.
God Bless Zach and your family.
Joanne (Home Care Medical)
New Berlin, Wi - Monday, November 26, 2007 7:25 PM CST
Anne-
Just want to let you know that we are keeping Zach and all of you close in our hearts with prayers and thoughts of strength and love to you and your incredible family.
Stacy (from the mito list)
SG
- Monday, November 26, 2007 7:24 PM CST
Dear Anne
Praying that the drug will work on Zach. Praying for Zach and for you with all my heart.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Monday, November 26, 2007 5:42 PM CST
Anne and Zach,
What an amazing person he is .He`s fighting this all the way good for him. How you do this 24/7 is so inspiring,and I know you`d have it no other way. Bless you both.Lots of prayers. Hope all goes well with todays choices you have to make. Also what an amazing hosp. staff you are working with. Blessing on all of you.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Monday, November 26, 2007 5:23 PM CST
Zach, every time I come to this page, every single time I am more and more amazed at your strength courage and resilience. Praying for you.
Emma <emma@wheelchairprincess.com>
UK - Monday, November 26, 2007 2:03 PM CST
Anne, checking in on you and Zach, hope that the med is working. We are keeping you guys in our prayers and hope that Zach will soon be listening to his Christmas music with you.
LeeAnn <ajz3@bellsouth.net>
Savannah, GA - Monday, November 26, 2007 1:54 PM CST
Anne
Please whisper to Zach that we all love him. We have a lot of storming going on: Prayers to Heaven, Christmas music to Zach (Let us know what he likes), and lots and lots of hugs for him and you too. He's such a trooper.
Karen Nelson <KMNelson86@aol.com>
Sanford, NC USA - Monday, November 26, 2007 1:35 PM CST
It's 1:43 here, so 12:43 there. Hoping for good response to that drug . . .
Hang in there . . .
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Monday, November 26, 2007 12:51 AM CST
It's about noon. Please know that we are praying this drug really helps and doesn't have any scary complications for Zach. Praying and praying here in NJ...
Much love and many hugs for all of you,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Monday, November 26, 2007 12:05 AM CST
In my heart - both of you
BK
- Monday, November 26, 2007 11:58 AM CST
Anne, Lou and family,
Hang in there! You are in our thoughts and prayers non-stop. Thank you for showing us the true meaning of love and compassion.
Laurie and Don <fischer@mc.net>
- Monday, November 26, 2007 11:49 AM CST
Anne,
You and Zach are both AMAZING and STRONG! I wish there was something I could say or do to make things better, but I can not. All I can tell you is that both of you are in my thoughts and prayers EVERYDAY.
Love,
Lori/cp/shelbywood
Lori Wood <woodyou@comcast.net>
Clarkston, MI USA - Monday, November 26, 2007 11:46 AM CST
Zach:
I LOVE CHRISTMAS MUSIC SOOOO MUCH, TOO!!!! As I was driving back from Mpls, MN I had one ear phone in my ear so I could hear my music while the kids were watching their dvd's. A new favorite of mine is the Josh Groben-Noel. So beautiful. May the spirit of the music keep your spirits up. Praying for you and your whole family. God's peace be upon you and your family.
Lisa Nerenhausen
mom to Leah
Lisa Nerenhausen <lnerenhausen@new.rr.com>
Appleton, WI USA - Monday, November 26, 2007 11:08 AM CST
Anne,
Still hoping and praying for Zach to pull off another miracle. If anyone can do it, he can. We continue to hope and pray.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Monday, November 26, 2007 10:44 AM CST
Dear Zach, Anne and family,
We continue to think of you all and are in our prayers every day and often. We trust that our great God is in control of all things...and know that He loves His son Zach. We love you.
Charlie, Cyndi, Lauren and Taylor Fischer <charlesfischer@verizon.net>
Murrieta, CA USA - Monday, November 26, 2007 10:31 AM CST
Kurt and I are praying, hoping, wishing and always thinking about Zach. It's not hard to believe that Zach is strong and a fighter...he has learned well from you. You and your kids are an inspiration and have taught us so much about what's important in life. We will continue to pray - it's all we know to do right now.
Karen <kschaefer2@sbcglobal.net>
Brookfield, WI - Monday, November 26, 2007 10:18 AM CST
Anne
We all pray that God has a few more miracles in store for Zack! Lots of Fischers are praying for those and for you.
Love
Aunt Vicki and U Tom
Tom and Vicki Fischer <tomfischer@wi.rr.com>
- Monday, November 26, 2007 9:58 AM CST
Ann, Lou, and all, we pray for Zach and for all of you daily. The world of hospital monitors, pharmaceuticals, lab coats, and stark white walls is too tiny to contain the magnificent spirit of your son/brother. Those of us outside those walls carry Zach in our hearts into our everyday worlds of work and play. We may shuffle papers at the office, enter numbers into complex data sheets, write novels, run errands, teach, direct board meetings, wash dishes, or fill our days with the endless details of life. But always there is Zach. Unc. Germs and I are thinking of you all. May God hold you in the palm of His hand--Katie and Jerry
Katie Fischer <kfischer@clarke.edu>
- Monday, November 26, 2007 9:36 AM CST
Praying for strength, praying for healing, and praying for time.
Bridget
Oconomowoc, - Monday, November 26, 2007 9:17 AM CST
I pray that God gives him new energy today. You too.
Julie Manley
MS - Monday, November 26, 2007 9:09 AM CST
Oh Anne,
The waiting is the worst. It sounds like you have wonderful, caring doctors who realize that not everything is within their control. I will be keeping you and Zach close in my thoughts and prayers.
Debbie R. <mmercedesmom@cox.net>
El Cajon, CA - Monday, November 26, 2007 9:02 AM CST
Sending prayers to you and you family, we think of you every day and ask God to give you the strength to keep going, stay strong.
Rivas Family <aineahern@aol.com>
- Monday, November 26, 2007 8:28 AM CST
Praying and Praying and Praying!!! Zach's strength and zest to live each day to the fullest is a true gift from God and that gift continues to amaze us all each day.
Bergland Family
Waukesha, - Monday, November 26, 2007 8:02 AM CST
Anne,
I am praying for you all and think of you throughout everyday. May Zach pull off another miracle!!!!
Love to you all,
Kristi Cole & Brody
Kristi Cole <kristi3333@bellsouth.net>
Atlanta, GA USA - Monday, November 26, 2007 7:53 AM CST
Anne and Zach,
We are pulling, hoping, and praying for you both. You are continually in our thoughts at this time.
John Fischer <jdfischer0505@hotmail.com>
Avoca, IN USA - Monday, November 26, 2007 7:43 AM CST
. . .precious--Zach.
Sh
Floyds Knobs, IN USA - Monday, November 26, 2007 7:38 AM CST
Good morning (or good evening - depending on the last time you slept!) I pray that God's hands continue to hold Zach and keep him peaceful and pain free as the road for him is layed before you. As you know, the road is already predetermined, so I just pray that he continues to be comfortable as God breathes strong healing into your Zach. Keep the faith!!
Deb Leipski <deb123kids@tampabay.rr.com>
Clearwater, Fl 3376 - Monday, November 26, 2007 6:28 AM CST
ANNE, GOD IS WITH YOU AND YOUR BEAUTIFUL FAMILY, ANNE, GOD WILL GIVE YOU TIME WITH ZACH, MY PRAYERS ARE WITH YOU AND FOR ZACH. WITH LOVE, FRANCIS
FRANCIS NATOLI <FRANCISNAT@AOL.COM>
NAPLES, FL USA - Monday, November 26, 2007 5:49 AM CST
Praying for another miracle.
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Monday, November 26, 2007 4:24 AM CST
Keeping you in our thoughts and prayers. Please know we will continue to pray for better days ahead.
Darla Klein <honeybear50317@msn.com>
Des Moines, IA USA - Monday, November 26, 2007 1:54 AM CST
Love you all. My prayers are with you.
Kaf
Katherine <kfrontier@chw.org>
- Sunday, November 25, 2007 10:41 PM CST
just wanted to let you know I am praying so hard for zach and your family. Pray he has teh strength to overcome these hard times so you can have many more sweet memories with your prescious boy. You are an amazing mom and have so much strength. Zach will pull from you too. Hugs from PA
steph
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
phoenixville, PA - Sunday, November 25, 2007 10:03 PM CST
Anne,
Just checking in again before we go to bed. We are thinking of you always. You have given many words of wisdom to other parents over the years and you know that Zach will show you the way. We are all praying and hoping.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Sunday, November 25, 2007 9:59 PM CST
Anne,
I am so sorry to hear Zach is having such a hard time. He is such a sweet boy and it breaks my heart to hear about the challenges he is going through as well as yourself. Please know that you are both continously in our thoughts and prayers and if there is ANYTHING we can do to help you through this difficult time, please don't hesitate to ask! Stay strong Zach and keep FIGHTING! Ryan and I are sending you both lots of HUGS!!
Take care,
Brenda Prindle
Brenda Prindle <blprindle@sbcglobal.net>
Little Chute, Wi USA - Sunday, November 25, 2007 9:54 PM CST
Hey Anne,
I tried to post last night, but it disappeared. I am praying for Zach and hoping for nothing less than a miracle for all of you.
Laura
Albuquerque, NM - Sunday, November 25, 2007 9:05 PM CST
Anne,
I don't know if you remember me, but my daughter Shelby has pseudo obstruction. I am so sorry that you all are going through such a hard time. Zach is in my constant prayers! And so are you! Please know that I am here if you need to talk or cry. There are lots of days when I feel good to let things out.
Lots of hugs,
Lori/cp/shelbywood
Lori Wood
Clarkston, MI USA - Sunday, November 25, 2007 8:51 PM CST
Anne
If all the prayers coming from NC and the rest of the world are indicative of the love and strength for Zach, you can rest assured we're working on some miracles. Both Zach (and mom) are SO STRONG. As I told Stacey's pastor earlier, Mom is the SMARTEST, most LOVING parent a child could ever have.
Holding both of you in our hearts and arms.
Karen Nelson <KMNelson86@aol.com>
Sanford, NC USA - Sunday, November 25, 2007 8:50 PM CST
Dear Anne,
You, and Zach, and your family are always in my thoughts. I have been a silent follower of your story (via the TPNsupport group). It has been a gift to get to know Zach through your beautiful writing, and to witness all of your strength and courage and love. Thank you for sharing all of this. I am hoping with all of my heart that the miracles will come.
Yuko Munakata <munakata@colorado.edu>
Boulder, CO USA - Sunday, November 25, 2007 8:46 PM CST
Checking in on you. Feeling the urge to fly up there every time I read an update. Desperately hoping for better kidney function . . . no words can begin to touch how strongly I am hoping.
Kathy <corleyfive@comcast.net>
Signal Mountain, TN - Sunday, November 25, 2007 8:42 PM CST
Anne, Zach, and family,
We're lifting all of you up in our prayers. You're on our hearts so very often. Praying for renewed strength and hope during this most difficult time.
With Love,
PK & Poppy (to Morgan & Carter Reynolds)
Paula (PK) Durham
Nashville, TN - Sunday, November 25, 2007 8:40 PM CST
We check the site everyday. We pray for Zach, the doctors & nurses, and your family. May God hold you in his arms.
Crystal Bates (Elena's Aunt) <batesc@fonddulac.k12.wi.us>
Fond du Lac, WI - Sunday, November 25, 2007 8:26 PM CST
Anne and Zach,
We continue to pray for healing and strenght for you both. You are loved by so many people and I hope you are able to feel the love and strength of all of us that truly surrounds you both as well as Lou, Abby and Brittany!!!
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Sunday, November 25, 2007 8:07 PM CST
Anne, you and Zach are in our constant prayers. Praying for the miracles we know can occur.
Susan & Karuna
Susan Agrawal
Chicago, IL - Sunday, November 25, 2007 8:03 PM CST
Zach and Anne,
We are sending many prayers and strength your way. You in our thoughts and at the top of our prayers.
The Kirschs
Marianne Kirsch <mkirsch@waukesha.k12.wi.us>
Elm Grove, WI USA - Sunday, November 25, 2007 7:58 PM CST
We are still here reading your every entry. Many tears have been shed on your behalf. God is good but sometimes it is very hard to see when things are like they are. You will continue to be at the top of our prayer list. You are all amazing and absolutely inspirational.
Jen, Jeremy & Jacob <Schultz@wi.rr.com>
Waukesha, WI USA - Sunday, November 25, 2007 7:51 PM CST
Anne, praying that God answers your prayers and that Zach CAN do what you want him to do which is pull outh another miracle.
As always praying for Zach, for you and for the rest of the family.
Donna and ^Kyle^ Noble www.caringbridge.org/oh/kyle <donnanoble2001@yahoo.com>
Grove City, OH USA - Sunday, November 25, 2007 7:45 PM CST
Praying your prayers are answered and Zach is around for a long long time to laugh with and be your and all of our inspiration- praying for you and Zach today and tomorrow=
Jayme and January (tpn support) <january11292@yahoo.com>
walton, kY - Sunday, November 25, 2007 7:37 PM CST
My heart breaks at this latest round of journal updates. I'm so sorry Thanksgiving wasn't nearly as positive as you'd hoped. Zach is truly an amazing boy with courage beyond what anyone his age should ever have to display, and you Anne you are such an awesome mom... I pray for your strength every day. Zach will show you and the doctors the way he needs to go... though it may be hard follow his lead and enjoy his company.
Love and Hugs and Prayers abound!
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, November 25, 2007 7:30 PM CST
Dear Anne,
I have been praying for Zach constantly. He is on my mind and in my heart. I can just imagine him in his Batman hospital gown. You are being held by God and given strength for each minute and hour. You are being loved and supported by all who care for you.
Connor's Grandma
Parsippany, NJ - Sunday, November 25, 2007 7:29 PM CST
I only know Zach through this CaringBridge page but I have been following his progress for over a month (found the link in Kyle's guestbook.) Please know there are people everywhere thinking and praying for Zach and your family.
Mindy Villines <evillines@hotmail.com>
Grove City, OH - Sunday, November 25, 2007 7:24 PM CST
Anne: I am holding you, Zach and your family close to my heart. May God give you what you need most and lift you up during this time. Please know many prayers are coming your way! Peace and blessings.
Linda Oleson <loleson@chw.org>
- Sunday, November 25, 2007 7:23 PM CST
You are in my prayers tonight, I to have a child suffering from mitochondria disease. My heart aches for you.
Lisa Moore <gothooreswife@hotmail.com>
Clarksville , TN USA - Sunday, November 25, 2007 7:11 PM CST
Anne, praying and praying and praying... you are right, he is an amazing & courageous boy. I am sure you are so very proud of him. What a battle he is fighting. We have been praying that he will not be in pain and I am so thankful to hear he isn't in any. We are praying for strength for you Anne, for peace, for wisdom. Please know you are in our thoughts and prayers all the time.
God bless,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Sunday, November 25, 2007 6:56 PM CST
Anne:
Praying, praying for Zach. He is amazing...as are you.
Diane, Kiah and Jonah <blackfox@conknet.com>
Deering, NH - Sunday, November 25, 2007 6:44 PM CST
Thinking of you and Zach often. Hoping and praying.
Anne R <areckling@aol.com>
- Sunday, November 25, 2007 6:38 PM CST
Father heal this boy in Jesus precious name...and by the power of his blood. so be it.
donna <me@here.com>
lou, ky usa - Sunday, November 25, 2007 6:38 PM CST
Anne,
Lifting you in thoughts and prayer.
hugs
rosie and alicia <rosiebowah@yahoo.com>
- Sunday, November 25, 2007 6:30 PM CST
Anne,
My heart aches for you and your family; you are in our thoughts and prayers. You continue to inspire me to be a better mom...
LeeAnn <ajz3@bellsouth.net>
Savannah, GA - Sunday, November 25, 2007 5:50 PM CST
Dear Anne,
My heart is broken--this is not the news that I wanted to hear. Anne if I only had the words right now to give you the peace and the hope that you need I would give them to you but my heart hurts too and nothing seems to fill that void. Please know that you are and always have been an amazing mother to all of your children. Everything you have ever done is with their best interest in mind and because you love them--that is all any child could ever ask. I am praying that God gives you the miracle that you are asking for and that your entire family finds peace.
Love,
Mindy
Mindy Welhouse <mwelhouse3@new.rr.com >
Kimberly, WI - Sunday, November 25, 2007 5:31 PM CST
Thinking of you constantly.
Sh
Floyds Knobs, IN USA - Sunday, November 25, 2007 4:34 PM CST
Zach is in our prayers. We believe in miracles. Love and strength to all.
Gwen <gwenabele@hotmail.com>
Boston, Ma - Sunday, November 25, 2007 3:33 PM CST
Anne and family,
We are all thinking about you and constantly praying for all of you. Your story has touched so many lives...there is literaly an army of people praying for you. In fact, Zach would probably be either overwhelmed or embarrassed by the number of people who admire him and his courage.
Sending lots of cyber hugs your way.
Laurel, Dave and Jamie Smith <Dalsmith@aol.com>
Medford, NJ US - Sunday, November 25, 2007 2:32 PM CST
I am thinking of you many times a day and say a prayer each time I do... Arms stretched out to hug and support you from many miles away.
Sarah and Boys <sarahjean05@yahoo.com>
Redlands, CA - Sunday, November 25, 2007 12:49 AM CST
With continued prayers, hugs and much love...
Meg, Mark & Adam <msteimle@wi.rr.com>
- Sunday, November 25, 2007 12:46 AM CST
((((((((ANNE))))))))
I'm so sorry Zach is struggling so much again, and I know you are struggling every step of the way right along with him. Please know you are constantly in my thoughts and I have many people and church groups storming Heaven with prayers for Zach, for you, and for the rest of your family. If there's ANYthing else I can do, please don't hesitate to let me know, even is it's only to be a supportive listener.
Lots of love and support,
Hope <hope2222@hotmail.com (www.caringbridge.org/ma/natalie)>
- Sunday, November 25, 2007 11:03 AM CST
No parent should ever have to deal with something like this. Our prayers are with you.
Isaiah 41 13 "God is grasping your right hand, the one saying to you Do not be afraid. I myself will help you."
Also, Revelation 21 3 and 4 " The tent of god is with mankind, and God himself will be with them. And, he will wipe out every tear from there eyes, and death will be no more, neither mourning, nor outcry nor pain be anymore, the former things shall pass away.
This is my hope for you and my little mito child as well.
My heart goes out to you at this difficult time.
Lanna Pastor Mom to Bryson
www.caringbridge.com/visit/bryson
Lanna Pastor <lannapastor@juno.com>
Madison, OH USA - Sunday, November 25, 2007 11:00 AM CST
(((Anne))) Praying for the STRENGTH no parent should have to draw on, the PEACE of knowing your decisions were the ones best made for Zach at the time each choice of treatment was made; before hind-sight clouds that vision, and the COMFORT of knowing your son never wondered if his mom and dad, sisters and family loved him and were doing their very best for him while he could not speak for himself.
Charla and Lexie TPN Support <CharsFunnyFarm@aol.com>
Moreno Valley, CA USA - Sunday, November 25, 2007 10:20 AM CST
You are in my thoughts.
Nena, Reese's (a fellow mighty kid with mito) mom
www.caringbridge.org/visit/reesejohnson
nena <nenaelise@yahoo.com>
Hermantown, Mn 55811 - Sunday, November 25, 2007 9:33 AM CST
Lots and Lots and Lots of Prayers going up from here in the UK. For Zach, for you, Anne, for the rest of the family. For those caring for Zach, for those searching for a cure and for blood donors. So Thankful that you are in my "virtual life".
Emma <emma@wheelchairprincess.com>
UK - Sunday, November 25, 2007 9:17 AM CST
You don't know me, but I am a friend of Connor, Deb and Scott Millard. I want you to know that I am sorry for all of your pain and Zach's pain. I pray for his comfort. No pain. Just love. I have read about him in the past. I know that Zach was there for so many others. I know that there are so many that are there for Zach. Hold him and hug him. He know's you're there for him.
Nancy Brown
E. Rutherford, NJ USA - Sunday, November 25, 2007 8:51 AM CST
Hi Anne-, we just got back from Atlanta-seeing Dr.Shoffner and mbx for Grant- wanted to make sure you got my package?! and check on Zach. (hard not being able to check on "family" while gone). I'll send along other 2 this week. Hugs and prayers for improvments. www.caringbridge.com/visit/linaeandgrant
Kelly-Ann Larson <kwarren@visi.com>
Richfiled, MN - Sunday, November 25, 2007 8:45 AM CST
This comes to mind as we wait for news.
Psalm 46:1 God is our refuge & strength - a very present help in trouble. Therefore we will not fear.....
God is in Control!
Praying for Zach and your family. Praying you will feel His love wrapped around you today.
Be still and know that He is God.
Love to you all.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Sunday, November 25, 2007 8:30 AM CST
I just want you to know we are keeping your son in our prayers.
jenn <countryfolk72@hotmail.com>
rector, ar united states - Sunday, November 25, 2007 8:20 AM CST
You are both heavy on my heart and in my prayers.
Love,
Leslie
Leslie Reynolds <rey7@bellsouth.net>
Roswell, GA - Sunday, November 25, 2007 8:10 AM CST
Dear Anne, Zach, & Family-
I am thankful for Deb passing on updates through Connor's CB site. You have been in our thoughts and prayers as your struggle has been so intense these past several weeks. I look at the wonderful pictures of you with your bright smiling face and know why you were Connor's hero. I think that boys with smiles that big have a very special bond. Our prayers will be for wisdom for both the medical staff and you as well as perfect peace in what lies ahead for today. I pray that today you will feel the prayers of many across the country. 'Where two or more are gathered...I am there in the midst of them'.
Continued Prayers,
Lisa Selan
Lisa Selan <sselan@carolina.rr.com>
Matthews, NC - Sunday, November 25, 2007 7:50 AM CST
I LOVE YOU ZACHARY RYAN JUHLMANN!!!!!
Brittany Elise
- Sunday, November 25, 2007 3:40 AM CST
Anne
I do not know if you remember me from TPN and mito lists and my Cb page as I have mito too. ITs been quite a while since I signed Zach's GB. But even though I do not get to sign Gb often, Please Know that I am praying and thinking of Zach, you and your family. I am sorry to hear of his most recent setback. Praying he turns the corner again soon.
I think you are an incredible mom who has always advocated and made the best/most appropriate decisions in the best interest of Zach, Sam and the girls too. I know you are faced with many difficult decisions right now in terms of Zach's care, treatments, and plans. Do not let anyone take away your mother's instict-- KEEP TRUSTING IT. Go with what your heart tells you-- even if that means trying meds, or treatments that are different from what docs' training tells them to do. Zach is here still with you today bc of your love for him and how hard YOU have fought for the best decisions to be made on HIs behalf. Just like you did for Sam.
God Bless
Heather www.caringbridge.org/pa/heather
Heather S <hjaschwe@fast.net>
PA - Sunday, November 25, 2007 0:51 AM CST
Dear Anne and family,
Prayers for strength and healing during this time. Listen to your heart and Zach during this difficult time. Zach knows you are with him and doing everything you can to help him thru.
Gayle Higgins
Gayle Higgins <Gayle.Higgins@tenethealth.com>
Palmyra, NJ - Saturday, November 24, 2007 11:17 PM CST
Anne and Zach-my thoughts and prayers are with you!!!Sending lots of hugs your way!!!!
Jen Johnson <jenjohnson_rn@hotmail.com>
- Saturday, November 24, 2007 10:54 PM CST
Praying with all my might for Zach and your family. So sad to hear that he was reintubated and that he is having more trouble. Zach is very lucky that you are able to be by his side constantly. I'm sure that is a comfort for him to feel your prescence beside him and he knows that you will help make the right decisions for him.
Jenn Stacey <staceyje@insightbb.com>
Morning View, KY USA - Saturday, November 24, 2007 10:52 PM CST
Anne,
I check your site with baited breath everyday and hope to see good news. I am so sorry how hard things have been the last few days. You and Zach are so amazing; just remember that everytime you look at him and admire his strength, remember that is all mirrored from you. His spirit and his strength are your spirit and your strength. Never, ever second guess yourself. You know Zach more than anybody on this entire planet. Mothers' instinct is amazing and you are doing everything humanly possible. I hope things improve really soon and quickly. I will keep you in my prayers.
Oula Haddad <jhaddad1@yahoo.com>
Silver spring, MD - Saturday, November 24, 2007 10:39 PM CST
Anne, I am praying for Zach. Please give him my love.
Krystena <momof2withga2@yahoo.com>
- Saturday, November 24, 2007 9:50 PM CST
Anne, continuing to pray so very hard for you.
Pam Dobke <pdobke@wi.rr.com>
Waukesha, wi - Saturday, November 24, 2007 9:40 PM CST
Oh ((((Anne))))---praying hard for you and for Zach. Just wanted you to know how much we are thinking of you.
Cindy and Makenzie <rn4maknme@aol.com>
- Saturday, November 24, 2007 9:23 PM CST
Anne,
I was so sad to read your update this morning. Zach, you and your family are always in my prayers and will continue to be.
Much love,
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Saturday, November 24, 2007 8:50 PM CST
You do not know me. I am came across your caringbridge page from my nephew's. You are in my thoughts and prayers.
Charlene
Charlene Mcnab <cmcnab119@verizon.net>
Damascus, MD - Saturday, November 24, 2007 8:44 PM CST
Anne and Zach-
As always you are in my thoughts and prayers. May God and his angels watch over you- especially that cute angel chasing all the puppies. I will see you on Monday.
Love-
Melissa
Melissa
- Saturday, November 24, 2007 8:26 PM CST
Anne, I wanted to let your family know that my kids have been saying a prayer for Zachary Julhman every night for weeks. Tonight's prayer was for stronger muscles so he can lift weights and get his driver's liscence. From the mouths of 8 year olds. Love always
Sherry Bishop and family <sbishop@kcc.com>
appleton, wi usa - Saturday, November 24, 2007 8:20 PM CST
Oh Anne, I'm so sorry to hear this latest news. Keeping you all in my prayers, as always.
Marcia, okbabes <marciat@sympatico.ca>
Bradford, ON Canada - Saturday, November 24, 2007 8:15 PM CST
Anne . . . I am so so sorry for this turn of events. The last few days but also the last few months. Isn't it interesting how things go with mitochondrial disorders . . . each change leaves me thinking of before. Don't you wish it was like those software things on computers that let you go back and reset the system to a previous time? I hate this and wish I could pray it away or wish it away or will it away. All I can do is send my love, as always. It just seems so very little . . . I am sorry.
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Saturday, November 24, 2007 7:38 PM CST
Anne, Zach and girls... keeping you all in our prayers as always. you're in our thoughts and on our minds constantly.
Steph
tubetown, OH - Saturday, November 24, 2007 7:13 PM CST
Anne, my son Philip Zell, his wife Sarah, and Kevalin and Andrew want you to know that they are praying for Zachary and your family.
Josey
Josephine Zell <josephinezell@sbcglobal.net>
Madison, WI US - Saturday, November 24, 2007 6:54 PM CST
Praying... for all.
Heidi and the Idaho in Seattle boys
- Saturday, November 24, 2007 6:28 PM CST
Dear Anne, I am praying for you, for Zachary and your family.
Josey
Josephine Zell <josephinezell@sbcglobal.net>
Madison, WI USA - Saturday, November 24, 2007 6:24 PM CST
All I can do is pray so that is what I will do.
shelle and hanah <shdmiller@yahoo.com>
- Saturday, November 24, 2007 6:18 PM CST
dear anne and family,
you are in my heart. so so sorry you have this pain.
i have not mailed you in some time, i started thinking about zach and wanted to check in. again i am sorry.
love and hugs,
davonne atkins
moma to my angel karlee beth 11-14-02 8-10-04 mito complex 1 and 4
davonne atkins <kipatkins@aol.com>
seymour, tn - Saturday, November 24, 2007 6:02 PM CST
Oh Anne--praying.
Sh
- Saturday, November 24, 2007 4:54 PM CST
You guys are in our thoughts and prayers, we are fighting with you!!!
www.caringbridge.org/az/bonniemarie
Bonnie <bonniebelle@cox.net>
Mesa, AZ USA - Saturday, November 24, 2007 4:48 PM CST
Zach & your family are in our prayers. I cannot imagine all that he & your family have been going through and the toll it must be taking. Our prayers are for Zach's healing & comfort, and strength, peace, comfort & guidance for you & the rest of your family. Our God is a mighty God. We are praying for a miracle in Zach's life.
Lisa, Dan & Erik Miller (friends of the Millards) <Eriksmomnj@gmail.com>
- Saturday, November 24, 2007 4:42 PM CST
Zach, we are keeping you in thought and prayer. Hang in there kiddo, you can do this. Mom is by your side knowing what you need. Anne, your decisions are the right ones, you know Zach better than anyone, you have been there through everything and know what is best for him. Do not doubt yourself - ever - ever. We hold you in our hearts.
Julie Holloway <jah522@sbcglobal.net>
Brookfield, WI - Saturday, November 24, 2007 4:19 PM CST
Praying hard for Zach, and your entire family.
Katie <katiebekah3162@yahoo.com>
- Saturday, November 24, 2007 4:18 PM CST
Zach has been on my mind all week, I havent checked in for a while and I am so sorry to hear he is struggling yet again.
I hope the day brought more ups than downs.
Keely
www.caringbridge.org/visit/brandonandtyler
Keely
Winnipeg, Canada - Saturday, November 24, 2007 4:15 PM CST
My prayers and heart are with you.
Love,
Diana
Diana Schmidlin <schmidlins@sbcglobal.net>
Lake Forest, Ca. USA - Saturday, November 24, 2007 4:07 PM CST
Bless your dear heart....
Donna <donerleg1@yahoo.com>
lou, ky usa - Saturday, November 24, 2007 4:04 PM CST
Dear Anne,
Please know that Zach, you, and your family are always in my thoughts and heart. Love you, Donna
Donna <dmkuhtz@yahoo.com>
- Saturday, November 24, 2007 3:38 PM CST
Zach is in our thoughts and prayers. He is such a fighter from what I have read and you are such a devoted mom. We lost our Zac earlier this year and we hope that your Zac continues with his fight and improves.
The Hunter's(angel Zac)
www.caringbridge.org/visit/zacharyhunter
kim Hunter <widgit@earthlink.net>
middle grove, NY USA - Saturday, November 24, 2007 3:33 PM CST
Anne
We're continuing to flood the Heaven's with prayers for Zach. We know without saying that Sam is collecting up those prayers to send Zach a gift of good health with a brotherly smile, kiss, and hug. The love that you've given and continue to give to both Zach and Sam is just a piece of the strength within each of you. Please know that our prayers, hugs, and love are with you too.
Karen Nelson <KMNelson86@aol.com>
Sanford, NC USA - Saturday, November 24, 2007 2:58 PM CST
Anne, We were so very sorry to hear Zach is struggling so very much. He is most definitely in our prayers right now and will be continually. You will be as well Anne. My heart aches for you in so many ways... words cannot express. I am thinking of you and holding you in my heart. Please know that you can call or email any time. Thinking of you and praying for you.
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Saturday, November 24, 2007 2:55 PM CST
Anne and Zach - thinking of you both and praying for you always. Sara O
Sara O'Toole <sara_o2l@hotmail.com>
Waukesha, WI - Saturday, November 24, 2007 2:08 PM CST
Anne, My heart aches for you. Thinking of you and Zach often and hoping that he is comfortable. Love, KP
Kris Pallett <krayzee77@hotmail.com>
- Saturday, November 24, 2007 1:58 PM CST
You guys continue to be in our prayers and in our thoughts throughout each day. I wish I had better words for you now...but I don't. I do know Zach is aware of how much you love him and all the energy and love you are pouring into his care.
Holly and Maya
www.caringbridge.org/mi/mayam
Holmen, WI - Saturday, November 24, 2007 1:56 PM CST
My thoughts and prayers for hope and healing are with you all.
Kaitlin T. (Julia's Daughter)
Southern, IN United States - Saturday, November 24, 2007 1:51 PM CST
I am continuing to pray for healing for sweet Zach.
Hugs to all of you.
Julia Hatfield
Evansville, IN - Saturday, November 24, 2007 1:43 PM CST
Anne...our hearts are just breaking for Zach and your entire family. He is such a strong guy with a lot of spirit. He knows you are there for him, loving him and doing all in your power to make him feel better. Even though he can't say that to you right now...he knows and feels your love. We are sending lots of prayers, thoughts and love your way.
Laurel, Dave and Jamie Smith <Dalsmith@aol.com>
Medford, NJ USA - Saturday, November 24, 2007 1:32 PM CST
Sendings lots of love, hugs and prayers to you and Zach.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Saturday, November 24, 2007 1:07 PM CST
Praying and sending love and support to you. Zach, we all love you, too!
Cindy Cruz
Edmonds, WA - Saturday, November 24, 2007 12:44 AM CST
Still praying...... You guys are never far from our thoughts and prayers.
Donna and ^Kyle^ Noble www.caringbridge.org/oh/kyle <donnanoble2001@yahoo.com>
Grove City, OH USA - Saturday, November 24, 2007 12:44 AM CST
I love you Zachy!! You are the most amazing person I have ever met. I admire your strength and courage. I am so proud of you. I am thankful for you. I am thankful I am your nurse. I am thankful for our shared love of Star Wars. I am thankful of every moment we spend together. I am thankful for our friendship. All my love, Hope
Hope Patchak <hmpatchak@yahoo.com>
Milwaukee, WI - Saturday, November 24, 2007 12:23 AM CST
Dear Anne
I do know that you love Zach with all of your heart, and you know that he also loves his wonderful mom with all his heart. You cannot do anything more for Zach than you have already been doing, which is loving him, caring for him, fighting for him and just being there with him. You are an amazing mom to one strong and amazing son. I will continue to pray that Zach keeps fighting and can pull through this sad setback. I don't know you personally Anne, have never gone through what you are, but as a mom of a 14 year old boy myself, my heart is just heartbroken for you and for Zach. Sending you and Zach and your daughters all my love, prayers and hopeful thoughts.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, November 24, 2007 12:16 AM CST
Dear Anne and Family, Please know that you are in our continuous thoughts and prayers. Praying hard that Zach's mitochondrial will quickly kick in and work. I can not imagine how difficult these last weeks have been and I find myself at a complete loss of what to say, but know that you are thought of and cared for.
Tammy Martin <dtmartin6281@sbcglobal.net/www.caringbridge.org/mi/martin>
- Saturday, November 24, 2007 12:09 AM CST
Still praying
Laura
Albuquerque, NM - Saturday, November 24, 2007 12:00 AM CST
Keep fighting Zach!!! We are sending up all of our prayers for you to make some improvements and get some strength back so you can keep fighting as hard as you have been over the last few months. We think of you and your family throughout every day and just pray to God to help you through this difficult time. Hang in there Zach!!!
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Saturday, November 24, 2007 11:40 AM CST
Ann
Know you are in our neverending prayers and thoughts. I am so sorry for everything going on. Hoping for strength for you today. Alex and I are praying like crazy for zach.
Megan Reid <dmreid1994@sbclobal.net>
- Saturday, November 24, 2007 11:23 AM CST
Dear Zach, Anne, and Family,
Sorry, I have not signed in for a little while, but I have been checking on you daily. I am so sorry that Zach is having to fight so hard right now. I know that you are all exhausted and worried. I pray everyday that Zach will recover quickly and completely. Please know that I am thinking about you constantly and sending my love, hope, and prayers.
Sonya Murray, Mommy of Taylor, www.caringbridge.org/visit/tay-tay <bamagirl01@comcast.net>
Smyrna, TN - Saturday, November 24, 2007 11:12 AM CST
As always thinking and praying for you all..so sorry I have not been down to see you and Zach, but just thought he (and you) needed the rest but my thoughts are with you constantly.
With love..
Wendy Runge <rn2wen@sbcglobal.net>
Waukesha, WI - Saturday, November 24, 2007 10:59 AM CST
I am so sorry hear that Zach is struggling. You all are constantly in our thoughts. We are all praying for things to turn around...and for strength to you Anne.
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Saturday, November 24, 2007 10:53 AM CST
Anne, Your tireless devotion and love for Zach is an incredible testimony. Lifting all of you up in prayers! Holding you close in my thoughts,
Kathy
Kathy Williams <teamwilliams@centurytel.net>
DeForest, WI - Saturday, November 24, 2007 10:41 AM CST
Anne, Zach and Family,
I regret not getting down to visit you but please know that there is not a day that goes buy without thoughts and prayers for you and your family. Love, JoAnn Krofta
JoAnn Krofta <jkrofta@waukesha.k12.wi.us>
Dousman, WI USA - Saturday, November 24, 2007 10:28 AM CST
Anne, Please know that Zach and all of you continue to be in our prayers and thoughts daily(hourly). Even though Zach's course has been a rollercoaster of events, two things remain ever constant....the incredible love you have for each other and the amazing strength you both have. Zach amazes so many people everyday with his courage and physical and mental strength, just like the super heros he loves to read about. Zach, you are our family's super hero!!!
The Kaupp Family <tkaupp@wi.rr.com>
- Saturday, November 24, 2007 10:26 AM CST
Anne,
Keeping you and Zach close in my heart, sending you all support and hope for improvements.
Debbie R. <mmercedesmom@cox.net>
El Cajon, CA - Saturday, November 24, 2007 10:21 AM CST
Zack, Ann and Family
You will all be my thoughts as you once again struggle with some scary times. I pray that you will come out on top once again.
Laurie Fitzgerald <laurie.fitzgerald@gmail.com>
Jackson , MI United States - Saturday, November 24, 2007 10:17 AM CST
Im thankful for you Anne
donna <donerleg1@yahoo.com>
lou, ky usa - Saturday, November 24, 2007 7:09 AM CST
I am ever so thankful for you and your family... I believe that I am a better mother to my boys because of you and your commitment and love for your family.
Keeping you always in my thoughts, my heart, and my prayers....
Heidi and the Idaho in Seattle boys
- Saturday, November 24, 2007 4:53 AM CST
Dear Anne:
Please know my thoughts and prayers are with you, Zach and the rest of your incredible family. Thank you for reminding me that even when things seem impossible, unfair and sometimes difficult to bear, we still all have things to be eternally grateful for. I am thankful for many things, but I am particularly thankful that my life has been touched by you and your incredible strength and faith. May God bless you and your family.
Linda Oleson <loleson@chw.org>
- Friday, November 23, 2007 7:17 PM CST
the evidence of things not seen...the substance of things hoped for....no matter what this life looks like! faith
donna <donerleg1@yahoo.com>
lou, ky usa - Friday, November 23, 2007 4:15 PM CST
Anne
I love your thoughts, your plans, your love, and your caring for Zach, your girls, your family, your acquaintances, and even a little for yourself. You are such a good mom, so amazing in so many ways. Zach, Sam, and the girls have a wonderful mom to look up to and know she's always with them. We're contiuing our prayers for Zach and throwing in lots of extras for you and the family.
We will keep stormin the heavens with prayers for Zach while he needs them now and whenever he needs them in the future.
Thinking of you and sending some hugs.
Karen Nelson <KMNelson86@aol.com>
Sanford, NC USA - Friday, November 23, 2007 11:07 AM CST
Zach was on my mind and in my heart all day yesterday. I thought of you both first thing this morning. Hopefully, the knowledge that so many of us are walking around with hopeful, prayerful thoughts of Zach and your family will help to sustain your strength and help Zach heal.
Julie T.
Waukesha, WI - Friday, November 23, 2007 8:03 AM CST
I thank God for amazing mothers like you. I thank God for all that you have done and will continue to do for your family. You are one precious woman and as always I am praying with the multitudes for you and Zachary.
Donna <donerleg1@yahoo.com>
lou, ky usa - Friday, November 23, 2007 7:56 AM CST
Anne-
Praying today, tomorrow and always that Zach will have better days. Praying that the doctors continue to respect and appreciate your amazing knowledge and that they will continue to defer to your judgement. Zach is lucky to have such a wonderful mother. You truly make us all stop and think how thankful we all should be-
Jayme and January (tpn support) <january11292@yahoo.com>
Walton, KY - Thursday, November 22, 2007 11:41 PM CST
Anne,
I am so sorry that things with Zach did not continue to improve today. We prayed for you all tonight and when we went around the table to each say what we were thankful for my 5 year old, Kaitlyn said she was most thankful that Zach was getting better! His story of courage and strength has even touched someone as young as her. You will all continue to be in our prayers!!!
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Thursday, November 22, 2007 10:45 PM CST
Anne,
I am so sorry to hear that Zach is struggling again. I have been reading all of your updates and was delighted that he seemed to be improving. These is nothing that I can add here except that I am praying for Zach and your family.
Love
Laura
Albuquerque, NM - Thursday, November 22, 2007 9:35 PM CST
I am not sure what to say . . . I wish I could say something that would make this all better somehow. I am sorry--I know you are exhausted and heartbroken and just so ready for Zach to feel better. You may not be Polly Anna, but I do know that it is only through hard determination and sheer will that anyone can focus on gratitude during dark moments. That is something much more valuable than blind optimism. I am so very thankful you are my friend.
Sending love,
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Thursday, November 22, 2007 8:20 PM CST
Anne-
I am ever impressed by your beautifully written thoughts and at the same time my heart aches for you and your struggles. As always I am thinking of you and Zach and also the rest of your family and sending you love and prayers.
Wendy Runge
Waukesha, WI USA - Thursday, November 22, 2007 7:43 PM CST
Storming heaven for prayers for Zach. I know that Zach has many special angels looking over him and you. Praying that the evening has brought small improvements for Zach
You are never far from our thoughts.
Donna and ^Kyle^ Noble www.caringbridge.org/oh/kyle <donnanoble2001@yahoo.com>
Grove City, OH USA - Thursday, November 22, 2007 7:39 PM CST
dear anne and family, first and foremost, I wish you a happy thanksgiving. As I read your list, I just wanted to say that I, and a lot of us here in your guestbook, are very thankful for you! Your strength and courage is an image that most of us wish we would have just an ounce of. Your son IS A HERO. He has touched our hearts and our lives with hope, faith, and pride. Thank you Anne, for you and your family. You will always be in my prayers, even if you don't know who I am... :) god bless.
Wendy Burgermeister
West Allis, WI - Thursday, November 22, 2007 5:04 PM CST
Dear Anne, Zach and girls
I am so heart broken oven your last e-mail, tears are filling my eyes as I write this. I will be praying for Zach and for you Anne who have to make so many hard decisions for your son. I am glad that your beautiful daughters are with you and their brother. I wish I could do more, but praying for Zach is all I can do. So many people are lifting Zach and all of you up in their prayers, you are not alone.
LOVE
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com.>
Denville, NJ 07834 - Thursday, November 22, 2007 1:23 PM CST
Anne, your beloved Zach, yourself and your family are in my thoughts and prayers today as I bow my head and give thanks.
Jo <Lakotajo2@msn.com, www.caringbridge.org/ut/parker>
- Thursday, November 22, 2007 12:48 AM CST
Anne, I continue to pray for you, Zach, and the girls. Your strength continues to amaze me as does Zachs strength and bravery.
holly
www.caringbridge.org/mi/mayam
Holmen, WI - Thursday, November 22, 2007 12:47 AM CST
I too am sad to read that Zach has taken such a bad turn. My thoughts and prayers are with you, Zach, your family and the PICU staff caring for Zach.
Debbie R. <mmercedesmom@cox.net>
El Cajon, CA - Thursday, November 22, 2007 12:29 AM CST
Dear Anne and Zach and family, Sending my love and concern and prayers. Zach, you are so dear to my heart and to so many people. I will be praying non stop for you and keeping you close in my heart,
With love,
Cindy Cruz <rella19@comcast.net>
- Thursday, November 22, 2007 12:24 AM CST
I am so sorry to read of a turn for the worse again. I read the site every day and think and pray for you and Zach often. I hope by the end of the day things are looking better. Zach seems to rally and show incredible strength despite such overwhelming medical issues. Keep faith in him and our Lord who loves him forever.
Pat
Pat Carriveau <patcarriveau@earthlink.net>
Hartland, WI - Thursday, November 22, 2007 11:05 AM CST
Thinking of you on this Thanksgiving Day, and praying as always!!
Love,
Hope <hope2222@hotmail.com (www.caringbridge.org/ma/natalie)>
- Thursday, November 22, 2007 8:52 AM CST
Anne and family,
We just wanted to let you know that we are thinking about all of you today. We hope that today is a quiet one (medically that is) for Zach and that you can all enjoy spending time together. We continue to pray for each and everyone of you.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Thursday, November 22, 2007 6:54 AM CST
Anne, Zach, Brittany, Abby, friends and family, we are praying as always for you, but it's even more important on the holidays, as it can be so tough to be in the hospital on those special days. I'm sure you, like us, have spent many Thanksgivings there, and have memories of those days as well, which just adds to the difficulty. Also of course you have memories of Sam, and missing him being with you today.
We share the joy and the sadness you feel today in that. We pray God fills our day with the good memories of wonderful times with our boys and touches our hearts with HIS love and tender comfort. We pray that today is a strong day for Zach, and that he can make some good progress today and enjoy some time with all of you. God bless you guys.
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Thursday, November 22, 2007 6:17 AM CST
Thinking of your family this Thanksgiving. Zach is always in our prayers.
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Thursday, November 22, 2007 4:28 AM CST
I know you don't know me, but I have been following Zach's journey. I pray for your family every day. I am glad to know that your family will be together for Thanksgiving, even if it's not at home.
Thanksgiving Myspace Graphics
Jenn Stacey <staceyje@insightbb.com>
Morning View, KY USA - Wednesday, November 21, 2007 11:18 PM CST
Anne,
We're praying that Zach will be able to get to the 4th floor very soon! And we hope that you'll be able to enjoy some time with your family while they're in town. Happy Thanksgiving to you, Zach, Lou, Brittany, and Abby!
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Wednesday, November 21, 2007 7:00 PM CST
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Wednesday, November 21, 2007 5:42 PM CST
Praying Zach is able to make the 4th floor very soon. . .continued prayers.
Sh
Floyds Knobs, IN USA - Wednesday, November 21, 2007 7:12 AM CST
Anne
We're continuing our prayers for Zach as well as the rest of the family. May Santa Claus come early for Zach bearing the gift of health and discharge.
Karen Nelson <KMNelson86@aol.com>
Sanford, NC USA - Tuesday, November 20, 2007 10:39 PM CST
Dear Anne
All my prayers and good thoughts coming your way. I am so glad that your family is coming for Thanksgiving, you all need to be together. Zach will be on my heart this Thanksgiving. I give so much thanks for my own healthy boys and will pray for the ones who are sick. Zach is an amazing boy and you are a terrific mom.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Tuesday, November 20, 2007 7:44 PM CST
Dearest Anne Zach and family,
It`s great to hear that your family will be home for Thanksgiving.I hope you can find lots of things to be gratful for though I know it will be hard But Zach has made some small steps and I wish with all my heart that they could be bigger ones as I know you do.He is such an inspiration such a fighter.Seeing him day after day wage such a battle must be a mixed blessing for you for ever moment he`s here is another great memory of him for you and your family.I wish you many more of them.My prayers always Take care.
Cousin Lynn and Family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Tuesday, November 20, 2007 6:41 PM CST
Dear Anne, Lu, Zach, Brittany and Abby,
T is for the trust the pilgrims had so many years ago
H is for the harvest the settlers learnt to grow
A is for America, the land in which we live
N is for nature and beauty which she gives
K is for kindness, gentle words, thoughtful deeds
S is for smiles, the sunshine everyone needs
G is for gratitude... our blessings big and small
I is for ideas, letting wisdom grow tall
V is for voices, singing, laughing, always caring
I is for Indians, who taught them about sharing
N is for neighbors, across the street, over the sea
G is for God’s blessings at Thanksgiving and always.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Tuesday, November 20, 2007 9:30 AM CST
Anne
have a wonderful few days with your whole family there. We send our best for a great Thanksgiving and that God blesses you in ways you cannot imagine.
Aunt Vicki and U Tom
Vicki Fischer <tomfischer@wi.rr.com>
- Tuesday, November 20, 2007 9:19 AM CST
Happy Thanksgiving Anne, Zach and the rest of the Juhlman clan! Anne... OMG, I got to laugh at your journal tonight... first in a long time. I too had to read Le` Petit Prince in HS and still only have the french version in my home library. I hope Zach enjoys it! I'm hoping your Thanksgiving wishes come true and Zach makes it to 4 West, but if not remember he is exactly where he needs to be at this present time. He is making such great progress...what a tenacious kid!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Monday, November 19, 2007 9:22 PM CST
Hi Anne,
I have been experiencing some shortness of breath and difficult taking deep breaths the last couple of days. I feel God has used this as a reminder for me to pray for Zach.I have been praying almost without ceasing.
I hope Zach is doing better and that you experience the love of Christ that surpasses all understanding.
Love,
Ione
Ione Bjegovich <jbjegovich@aol.com>
greendale, wi USA - Monday, November 19, 2007 8:23 PM CST
Hoping that Zach is breathing a little more easily, his o2 sats look good, and he is not working so hard. Hoping that the cryo is working on stopping that bleeding you are seeing when they suction him. Hoping also that maybe you are on your way out of ICU. Thinking of you . . .
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Monday, November 19, 2007 4:38 PM CST
Anne and family, My name is Deanna Gromowski and I am a Recruiter in Human Resources at CHW. I have been meaning to reach out to you several times and send you my thoughts and prayers. I learned of your 'story' during Links in 2006 and I remember my tears and my heart breaking for you. I cannot imagine the pain and hurt you must endure. Unfortunately it took me until now to send you a message. My son Ian was born on June 25th of this year at St. Joe's and never left the hospital. On July 8th he was transferred by our Transport team to CHW and lived there until he passed away on August 10th. I would love to chat with you because you are such a strong person and your son definitely mirrors that! He is lucky to have you as a mom! God bless.
Deanna Gromowski <dgromowski@chw.org>
- Monday, November 19, 2007 3:22 PM CST
Anne, we are thinking of you and praying. Zach, you are one amazing super hero! Connor always thought of you so fondly, that you were so strong, and I know he is so proud of you now too as is your brother. You are such a fighter. Know that so many are thinking of you and praying for you. You too, Anne...
Much love to you both,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Monday, November 19, 2007 2:47 PM CST
Anne, I threw a fair amount of rocks into the ocean last night and wished on all of them. I thought about our rock throwing days with Jack - and then after they passed away. I imagine Jack is still tossing those rocks and wishing and hoping for Zach. Maybe he has taught Sam. I think the ocean may not be big enough to contain all of the wishes and hopes and prayers for you and Zach.
Billy
- Monday, November 19, 2007 7:41 AM CST
Ann & family - What a trying time for all of you and poor, exhausted Zach. To think of all of the things to be thankful for this holiday would be an enormous task for you I imagine! The doctors and nurses, therapists, blood donors, friends and family, and prayer networks. Can you even imagine how many Zach is included in? It must be staggoring. You will all remain in mine. Take care of yourself too!! Waiting for more good news...
Deb Leipski <deb123kids@tampabay.rr.com>
Clearwater, FL - Monday, November 19, 2007 6:43 AM CST
Good to hear all the hopeful signs. Zach is amazing.
Shari Jordan <jordan1012@wi.rr.com>
- Sunday, November 18, 2007 8:49 PM CST
Wow, it would be so great to have Zach out of ICU and back to 4 West where at least you can be a little more comfortable . . . HOPING for it for you!!!
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Sunday, November 18, 2007 5:32 PM CST
I've been checking in everyday for updates. Zach and you are both so strong it amazes me in everyway!!! I'm praying that by Thanksgiving you are on 4 west. Praying for strength for both of you everyday, you are never far from my thoughts! The Little Prince is an awesome book I remember having to read that when I was in French class in 8th grade. Thanks for keeping us all updated. With much love and MUCH hope!! God Bless
www.caringbridge.org/oh/skyecoleycole
Tamm <Tamm06@aol.c om>
- Sunday, November 18, 2007 5:17 PM CST
Anne,
So glad that the weekend is going well and that Zach is doing a little better. I think the Little Prince is a great idea for both of you...glad you got to get out of the hospital for a few minutes. I am sure that Zach would not agree with me on this :))
We will all continue to pray for you all and that Zach is back in his familiar room for Thanksgiving. Lot of hugs and prayers coming your way from all of us.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Sunday, November 18, 2007 2:35 PM CST
Anne,
Your latest update sounds very promising Zach Keep on trucking It would be such a great gift at thanksgiving for him to be moved back to iicu.Prayers and star power.
cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Sunday, November 18, 2007 11:07 AM CST
Still checking in daily, still praying daily and you are all in my thoughts, constantly. Your latest update was hopeful and honest. Tell Zach he's got an army of followers!
Julie T. <jturkoske@wi.rr.com>
Waukesha, WI - Sunday, November 18, 2007 10:59 AM CST
Thanksgiving begins a season of miracles. I can think of none better than to have Zach out of ICU and feeling better enough to scold you for reading him anything other than Star Wars. It was wonderful to see some positive news from the greatest hero I've ever heard of. I'm sorry to hear about the moments of panic. I cannot begin to fathom what his mind is racing through. I hope, that thanks to drugs and your patient reading and cd's - Zach's spent the past several weeks in an X-wing fighter - battling his own "Death Star". If anyone ever deserved some Princess Leia (sp?) fantasy time...its Zach!
Sending wishes from one of your cyber friends/supporters/cheerleaders! We are holding you all close to our hearts.
Alicia and the A-gang www.crazycancermom.com
Alicia Hall - Avalon's mom
Powell, OH - Sunday, November 18, 2007 9:14 AM CST
Anne, your update warmed my heart. I know you are by no means out of the woods yet, but what an encouragement it must be to see Zach make progress. We are most certainly praying for him and for you. What an amazing Mom you are and I am so blessed to call you my friend.
God bless you,
Deb
www.caringbridge.org/visit/connorscott99
Deb Millard <sdcm@optonline.net>
- Sunday, November 18, 2007 5:17 AM CST
So good to see such an encouraging update!! To think that you might get back to IICU by Thanksgiving??? What an answer to so many prayers that would be. I can just imagine the relief you will feel when the time comes for him to move.
Breath, Rest and Cough... it's all up to you Zach. We are here, lots of miles away, but here, praying for you.
Patty & Colyn <Pattywoods@mac.com>
Hemet, CA - Sunday, November 18, 2007 0:43 AM CST
Just wanted you to know that I still read your every update... usually a few times in fact... my heart aches for you and I just wish that you didn't have to go through this... God knew what he was doing when He chose you to be Zach's Mom... You are truly amazing and I respect you immensely... Love you guys.
Jen, Jeremy & Jacob Schultz <Schultz@wi.rr.com>
Waukesha, WI USA - Saturday, November 17, 2007 9:59 PM CST
Anne
Our prayers continue for Zach. Glad to hear that the doc's are listening and pushing for ways to keep from intubating him.
Karen Nelson <KMNelson86@aol.com>
Sanford, NC USA - Saturday, November 17, 2007 6:54 PM CST
out of town, but thinking of you!!! Hoping for good progress. Love you . . .
Kathy <CORLEYFIVE@COMCAST.NET>
- Saturday, November 17, 2007 4:12 PM CST
Anne,
Boring weekends! A couple of boring days-- your days probably run into one another so that weekday and weekend is only different based on the staffing.
Keeping up with Zach on every update-- thank you for taking the time to keep us updated. Prayers as always. your boys are such FIgHTerS.
I wish there was something i could do to help comfort you, but I know there is nothing. Just know I care and am constantly thinking of you guys and sending up prayers.
Steph
tubetown, OH - Saturday, November 17, 2007 3:22 PM CST
Anne,
So hoping that you have a boring weekend. We are thinking and praying for you all.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Saturday, November 17, 2007 2:15 PM CST
Dear Anne
Yes I will pray for a boring and peaceful weekend for Zach. What a strong boy he is, just amazing. I will pray he gets stronger and is able take breaths without as much effort. So much to pray about, but take comfort in knowing an army of people are praying for your son. Thanks so much for the update, I know it is hard to find the time to write to us.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, November 17, 2007 1:03 PM CST
Dearest Anne Zach and Family,
Boring days sound fantastic hope they happen soon, Like yesterday already....Praying as always take care of your self.It won`t do Zach any good if you get sick..Try and remember to eat,but as you said the days go by so quickly with things happening all the time before you know it the day is over and you haven`t eaten`. Hope all else with your family is okay.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Saturday, November 17, 2007 10:09 AM CST
Anne,
I am so glad to read that Zach is making some progress. I will pray for a BORING and PEACEFUL weekend. We love you all!!!!
Take care,
Kristi Cole & Family
Kristi Cole <kristi333@bellsouth.net>
Atlanta, GA USA - Saturday, November 17, 2007 8:17 AM CST
Anne: I continue to keep Zach, you, the girls and Lou in my prayers. I check CB daily for updates. Please tell Zach I'm here always whether he can hear me or not. God Bless, Uncle Sean
Sruss
Savannah , Ga - Friday, November 16, 2007 10:05 PM CST
Thinking of you, prayers continue. Lots of people holding you both in prayer and sending positive thoughts and hope. Reports sound like the small steps are working.
Kepp the Faith roomie. Miss you. I'll do my best to get up to see you both. Hugs!!
Meg Steimle <msteimle@wi.rr.com>
Milwaukee, WI - Friday, November 16, 2007 9:28 PM CST
Thinking of you, prayers continue. Lots of people holding you both in prayer and sending positive thoughts and hope. Reports sound like the small steps are working.
Kepp the Faith roomie. Miss you. I'll do my best to get up to see you both. Hugs!!
Meg Steimle <msteimle@wi.rr.com>
Milwaukee, WI - Friday, November 16, 2007 9:27 PM CST
Just want you to know I 'm still here praying....both for you and Zach.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Friday, November 16, 2007 8:00 PM CST
Just checking in to let you know that you are always in our prayers. We hope and pray that Zach will continue to take baby steps and that your team will continue to go as slowly as possible so that Zach's weary mitochondria can work as efficiently as possible. You are all so amazing and we will continue to pray and pray and pray....
Laurel, Jamie and Dave <Dalsmith@aol.com>
Medford, NJ USA - Friday, November 16, 2007 7:27 PM CST
Dear Anne
Just wanted to let you know that I am praying for Zach right now. All my thoughts, prayer and love coming your way. I may not personally know Zach, but it did not take me long at all to get to know and love him because of this wonderful site. I hope you are hanging in there Anne, I cannot even imagine what you and your family are going through. I hope everything with Zach is going okay.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Friday, November 16, 2007 3:43 PM CST
Anne,
Know that we are here anytime you need. I know we pass each other frequently, don't be afraid to grab us to just talk if you need. Our prayers are with you and Zach and your whole family.
Cindy and Marc
Cindy Loppnow
- Friday, November 16, 2007 3:42 PM CST
Keeping you and Zack in prayer. I'm so glad to hear that you have such wonderful doctors watching over Zach. It's good to know that in such a stressful situation, you can lean on their knowledge and compassion.
Charla and Lexie (TPN Support) <CharsFunnyFarm@aol.com>
Moreno Valley, CA USA - Friday, November 16, 2007 12:03 AM CST
Always praying for Zach and always praying for you Anne.
Donna <me@here.com>
lou, ky usa - Friday, November 16, 2007 9:17 AM CST
Just checking in to say hi and let you all know that we are praying for you. Sending prayers and hugs,
Cindy Cruz <rella19@comcast.net>
Edmonds, WA - Friday, November 16, 2007 8:25 AM CST
Anne
We are storming Heaven with prayers for Zach. Please give him some extra hugs for me and keep some for yourself.
Karen Nelson <KMNelson86@aol.com>
Sanford, NC USA - Thursday, November 15, 2007 10:44 PM CST
Thinking of you guys. Hoping things are better tonight. Praying for you. Miss you in 4 west and be able to play game boy with each other.
Love Alex Megan
Megan and Alex <dmreid1994@sbcglobal.net>
- Thursday, November 15, 2007 9:06 PM CST
Anne,
Seems just as things seem to be heading in a better direction for zach somethings gets in his way, but even with all of that he pushes forward what an incredible young man you have there. Hope He`s able to stay breathing on he`s own and get the rest he needs. Also That you can get the rest you need,and feel comfortable doing so,like all mother when children are ill you sleep with one ear allways listening, just like when they were babies.
Lots of prayers and you and your family are never far from my thoughts
Cousin lynn and family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Thursday, November 15, 2007 3:53 PM CST
Anne,
Your strength is amazing. It is easy to understand where Zach gets his strength from. I continue to keep Zach and your family in my prayers. Praying for continued improvement!
Lindsay Deinhammer <SchoolRNPHN@aol.com>
Kenosha, WI USA - Thursday, November 15, 2007 3:42 PM CST
Anne, It is so difficult dealing with the ups and downs, the constant roller coaster of the PICU and how it wreaks such havoc on us. On top of that we are just so completely exhausted, so DONE... Yet, we are at the same time so incredibly proud of our kids! We are praying for you to be able to sustain this long and incredible battle you guys are facing each day and night. We are praying for Zach for restful sleep, for the ability to breath better for longer periods of time, for his kidneys to function, for so many many things for him. We continue to uphold him with love and prayer.
Much love from NJ
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Thursday, November 15, 2007 3:11 PM CST
Anne
we are all there with you, praying , hugging, hoping , just trying to do the distance. Zach is clearly the toughest, strongest, most determined 16 year old I have ever seen or could imagine on the face of the earth!
May the Force be with you all!
Love U Tom and Aunt Vicki
U Tom and Aunt Vicki <tomfischer@wi.rr.com>
- Thursday, November 15, 2007 8:16 AM CST
Anne and Zach,
Praying and hoping that things improve. Zach is one awesome young man who is strong beyond his years. Thank you for the updates, as it can't be easy on you to do when you are needed so much for him. Stay strong, we are all thinking of you both!
John Fischer <jdfischer0505@hotmail.com>
Avoca, IN USA - Thursday, November 15, 2007 6:44 AM CST
Baby steps are ok... take the positives and run with them!!!
So thankful for the good times you had this morning and praying for so many more for all of you.
Breath and sleep, keep on keeping on Zach.
Patty Woods
Hemet, CA - Thursday, November 15, 2007 0:41 AM CST
Anne,
Thank you for the update, I sure hope Zach has a restful night tonight, like he did last night. Sending healing thoughts to Zach and strength and wisdom to you and his doctors.
You are an amazing family!!
Debbie R. <mmercedesmom@cox.net>
El Cajon, CA - Wednesday, November 14, 2007 11:45 PM CST
Anne and Zach,
I have shared your story with so many people recently and they are always amazed at the strength that one 15 1/2 year old boy can possess! And they are all praying for you to continue healing and get out of ICU! We know you can do it Zach!!! Love and prayers to you both!!!
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Wednesday, November 14, 2007 10:08 PM CST
Hi Anne,
I've been praying for Zach throughout the day today: that the LORD would help Zach to continue to breathe on his own and that Zach would strongly sense His presence. Awesome news that the tumors were not cancer! I'm praying that Zach would return home soon.
I really miss all of you.
Love, Ione
Ione Bjegovich <jbjegovich@aol.com>
greendale, wi USA - Wednesday, November 14, 2007 8:48 PM CST
Hi Anne
I am praying so hard for Zach, he has been so strong through this whole ordeal and I believe he will continue to be strong. My heart aches for what your son is going through and my heart breaks for you. I will be praying for wisdom for the doctors and for you. Try to take care of yourself Anne.
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Wednesday, November 14, 2007 6:47 PM CST
Anne,
Thanks for the second update yesterday,Praying all goes better. Take care of your self too,cause your needed there that`s for sure,especially since you know your son the best.Good to hear he hears you when you read to him and it brighten`s him up.He is such an amazing young man,and continues to show such strength.Take care both of you.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Wednesday, November 14, 2007 6:19 PM CST
Just wanted to let you know that our prayers are with you. We miss you in the hood.
Johannah Siragusa <siragusag@bellsouth.net>
Waukesha, WI United States - Wednesday, November 14, 2007 5:33 PM CST
Anne, we are praying so hard for Zach to have the amazing strength and ability to fight hard to breath! We know how incredibly hard this is. wow... We are praying for wisdom for you and for the drs as you need so very much to make such difficult decisions as you help him through this. Much love and many prayers my friend,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Wednesday, November 14, 2007 4:21 PM CST
Anne and Zach....
Your always in our prayers. We hope that today is going well and that the breaths are easier today. Sending you lots of cyber hugs.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Wednesday, November 14, 2007 2:43 PM CST
Dear Anne,
I am praying for stronger and steady breathing. There is so much I hope to never take for granted ever again. I smile and think of Zach and your family daily and anytime Joseph mentions his superheros or Starwars...his 8 year old friend was Darthvador for Halloween and now he is a Star Wars fan too...and of course when he mentions Brittany, they keep hoping she is coming from MN to babysit, we would love that too! We love you all. God bless you. I pray this day brought many good things.
Love, Mary
Mary Krupski <mkrupski@yahoo.com>
Essex, VT - Wednesday, November 14, 2007 12:53 AM CST
Oh Anne, praying very hard that Zach is able to stabilize his respiratory status and improve without needing to be intubated. Praying like crazy Zach can muster the strength to get through this hurdle. Hugs and prayers for all of you, I can only imagine how much you must wish you could take some of this work from him.. HUGS and prayers,
LeeAnne, Sammi and family
LeeAnne Bye <allenleeannebye@aol.com>
NJ - Wednesday, November 14, 2007 9:50 AM CST
Anne,
Thoughts and Prayers continue for Zach and your family.
Hugs
Rosie and Alicia <rosiebowah@yahoo.com>
- Wednesday, November 14, 2007 9:34 AM CST
We coninue to pray for you ALL
Tammy Ross <tam@insightbb.com>
Memphis, IN USA - Wednesday, November 14, 2007 8:33 AM CST
Come on Zach ... I know you can do this. I am trying to get the entire state of Texas praying for you, and that is a lot of people. (We are also throwing in a few for your mom.)
Patricia <patsbak@aol.com>
Spring, TX - Wednesday, November 14, 2007 5:56 AM CST
Hi Zach and Anne!!
Thinking about you lots!! Zach, I'm so proud of you!! Keep being so strong!! I'll see you next week!!
Love,
Amanda
Amanda <aglorioso@chw.org>
- Wednesday, November 14, 2007 0:35 AM CST
Dear Anne and Family,
We are praying....hold on....these are such difficult days - hopefully they will get easier soon.
-Lyn
Linda Marie Codier www.caringbridge.org/az/bonniemarie <lynmarieco@cox.net>
Mesa, AZ USA - Tuesday, November 13, 2007 10:37 PM CST
Zach....I'll make sure Abby doesn't talk about guys...no worries!
ur big sis Brittany
- Tuesday, November 13, 2007 10:19 PM CST
Go Zach Go!!! You're almost there, and I won't stop telling you about all the guys in my life when i'm visiting you at the hospital until you wake up and tell me to be quiet! I love you.
ur lil sis Abby <writercrazy15@yahoo.com>
- Tuesday, November 13, 2007 9:23 PM CST
Anne-
Thinking of you and Zach always and hoping to see you back up on the 4th floor soon...
Much love to you both.
Wendy Runge
Waukesha, WI United States - Tuesday, November 13, 2007 9:17 PM CST
Anne,
Sending our prayers from Georgia. I check Zach's site daily...sometimes more often than that. We-(the boys & I) are praying for Zach. They say, "Zach-you know Sam's brother"...like they need to explain this to God. Keep us posted.
Love to you all,
Kristi Cole & Family
Kristi Cole <kristi3333@bellsouth.net>
Atlanta, GA USA - Tuesday, November 13, 2007 8:51 PM CST
Dearest Anne,
This Has to be very hard for you,and Zach when the breathing doesn`t work well,I`m sure your taking ever breath with him trying to help him,this has got to be very painful experience . I pray all goes better very soon.You all need abreak from this insanity.I pray the good Lord shows you some mercy soon and Zach is able to fuction soon better on he`s own.Not being able to catch your breath is scary for anyone. Thankfully the good Lord in he`s wisdom gave Zach a mother like you, and mostly dr. and nurses who are so dedicated to their patients..Hope tube is able to stay out.Just try and remember Anne Your doing all you can and we`ll keep praying that it all works.
cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Tuesday, November 13, 2007 4:49 PM CST
Anne and Family,
I do not know you but am friends with your cousin Patrica. I am praying for Zach,that God will take his fear away. Our God is good and can do anything. Have strong Faith.
Dana Slinkard <danaslinkard@comcast.net>
Spring, TX USA - Tuesday, November 13, 2007 4:13 PM CST
Praying for special wisdom, easier breathing for Zach and peace for both of you there.
Wendy
Wendy Hayhoe <pwhayhoe@csolve.net>
Loretto, Ont Canada - Tuesday, November 13, 2007 2:50 PM CST
Me too...I certainly hope Zach is able to keep up the fight on his own.
All of my love,
Krystena <momof2withga2@yahoo.com>
- Tuesday, November 13, 2007 2:38 PM CST
Praying for Zach - and for you, Anne. You are an amazing mom. Thinking of you all every day.
Love,
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Tuesday, November 13, 2007 11:58 AM CST
Continued prayers==
Sh
Fl, In - Tuesday, November 13, 2007 11:14 AM CST
Anne,
I can't imagine how hard this is for all of you right now. Especially watching him work so hard at breathing. We are continue to pray for all of you during this difficult time. I am sure that your presence is giving Zach a lot of comfort and reassurance right now.
Laurel <Dalsmith@aol.com>
Medford, NJ 08055 - Tuesday, November 13, 2007 10:24 AM CST
He is just teetering right at the edge of extubation/intubation. I am waiting for a wave of progress to push Him into the "able to move O2 easily" category . . . hoping it happens sooner rather than later. How awful to sit by and watch--do you find yourself just trying to breath for him? I know you wish you COULD do it for him. Thinking of you . . .
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Tuesday, November 13, 2007 10:13 AM CST
Anne
Glad to see that Zach is improving all-be-it slow. It's hard not to let them know or feel your fear, but I''m sure you are doing a great job.
You're a great mom.
Karen Nelson <KMNelson86@aol.com>
Sanford, NC USA - Tuesday, November 13, 2007 9:55 AM CST
Ann:
Thinking of each one of your family at this time. The togetherness you have and the ability to not and try and show the fear so Zach will feel the power of love and calmness from you. I pray that the breathing gets easier and Zach can cough easier each time. Blessings to each one of you. You have many angels watching over you all at this time.
Lisa Nerenhausen
mom to Leah
Lisa Nerenhausen <lnerenhausen@new.rr.com>
Appleton, WI USA - Tuesday, November 13, 2007 9:15 AM CST
Zach-
Stay strong and know that many people are praying for you that your breathing tube can stay out!!!!!! There are so many people very close to you to help you if you get tired and remind you how very strong you are!!!!!!! Tell your Mom to stay strong too!!!!
Love-
Melissa and Jim and Grayson too
Melissa
- Tuesday, November 13, 2007 9:11 AM CST
Anne,
I will be praying for easy breathing for Zach and continued courage for you both. You are both truly extraordinary people!!!
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Tuesday, November 13, 2007 9:10 AM CST
Ann-
Praying up here on 4 west that Zach did okay overnight. I hope the breathing is a little easier today. We think of you guys often. Tell him to come up here and kick us out of his room. Prayers and our thoughts are with you.
Megan and Alex
megan reid <dmreid1994@sbcglobal.net>
- Tuesday, November 13, 2007 8:25 AM CST
SO glad to hear that they went through with the extubation and am hoping and praying that it holds and there will be no need to intubate again. However, if that is the best for him, than so be it. Hopefully Zach will get some motivation with the extubation, and continue to keep fighting hard!
It really breaks my heart to hear about his look of fear. I know, thought, if it were I in his position, I would have the look of fear non-stop throughout this whole situation. Just goes to show how tough of a kid that he is...showing more courage than most adults would in this time.
John Fischer <jdfischer0505@hotmail.com>
Avoca, IN USA - Tuesday, November 13, 2007 7:21 AM CST
Anne, I was soooo glad to hear that Zach was extubated. After reading that he was going to the OR I prayed all night. Hopefully gravity and decadron will do their jobs. The amount of strength and will power that you and Zach have is phenominal.
Always in awe...
Ann
Ann Karvelas <KARVELASBOYZ@SBCGLOBAL.NET>
Franklin, wi us - Tuesday, November 13, 2007 7:13 AM CST
Anne, I was sooooo relieved to read that Zach was extubated. I was praying all night after I read that he went to the OR. Hopefully gravity and decadron will do their job. The strength and will power that you and Zach have together will carry you both through this.
Always in awe...
Ann
Ann Karvelas <KARVELASBOYZ@SBCGLOBAL.NET>
Franklin, WI United States - Tuesday, November 13, 2007 7:04 AM CST
Praying and hoping that everything goes well. You are in our thoughts.
Susan & Karuna
Susan Agrawal
Chicago, IL - Monday, November 12, 2007 9:15 PM CST
HOPING HOPING HOPING that he is off the vent and doing well with BiPAP!!!!! Thanks for updating about pathology. Isn't it interesting how at some point news just becomes information. All you can do is act on it in whatever way becomes necessary whenever the issue arises! Gosh, though, one more covert nonspecific thing to add to the "vigilance" list. Glad to hear about the calcium. Do they think that this will help with his back? Working on a gown that I hope will be a laugh for Zach at some point!!! :)
Love,
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Monday, November 12, 2007 8:09 PM CST
Anne,
Thanks for the update,hope all goes well this afternoon. am praying like crazy as usual,for more of those little steps forward.
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Monday, November 12, 2007 6:09 PM CST
Check in everyday and hope for news of improvement. Thinking about you all and praying that OR goes well today.
Bergland Family
Waukesha, - Monday, November 12, 2007 4:28 PM CST
Praying that all goes well this afternoon!
Love,
Mindy & Elena
Mindy Welhouse <mwelhouse3@new.rr.com >
Kimberly, WI - Monday, November 12, 2007 4:04 PM CST
Zaaaaaaaachhhhhhhhh!!!!!!!!! You woke up AFTER I left???? I bet you think you're funny but you better be awake next week mister.
Brittany
Minneapolis, MN - Monday, November 12, 2007 2:16 PM CST
Anne,
Thinking of you and Zach and praying that things go smoothly today in the OR.
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Monday, November 12, 2007 1:00 PM CST
I admire your courage, Ann. You are in my prayers.
Marnie Davis <marnie@riverglen.cc>
Waukesha, WI 53189 - Monday, November 12, 2007 10:53 AM CST
Praying for wisdom with decisions today. Your words are so well written on behalf of mothers in general and from a mom who is not a nurse I thank you for such a heart-warming tribute to us as mothers and decision-makers. With continued thoughts and prayers for you and your family.
Wendy
Wendy Hayhoe
Loretto, ON Canada - Monday, November 12, 2007 9:46 AM CST
Hi Anne, we are praying for you guys and thinking of you so much. I so wish we could bring Casey to visit you guys. She'd sure love to come up and visit Zach...we'd put Zach's hand against her soft, furry coat.. I wonder what he'd think? I wonder if he'd smile, even if he was asleep or sedated, he probably would. It's hard not to! She's just so warm and amazingly therapeutic. Know our thoughts and prayers are throughout the day, with you! We pray for the girls as well. keep up the good fight knowing you are not alone in this. Much love my friend,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Monday, November 12, 2007 8:17 AM CST
Hi Anne
I just wanted to drop you a note to tell you that Zach is in my thoughts and prayers. I can tell by the questbook page, your son is one loved boy, not just because he is sick, but because of who he is as a person and as child of God. Anne I have never experienced the pain you have gone through and are going through now, but you can be sure that I am upholding you in my prayers.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Sunday, November 11, 2007 6:13 PM CST
I just wanted to let you know that we're still thinking of you and Zach. I hope he continues to improve and that you are able to extubate him soon.
Stacey and Sheldon Fleming http://www3.caringbridge.org/ny/sheldonf/
Milton, NY - Saturday, November 10, 2007 9:37 PM CST
Anne - I am so sorry that the decision makers' perspectives are so one sided and limited. But I am more sorry that they are limiting his care in ways that do not seem logical. I know it means less rest for you when you already are getting so little. Glad to hear about the reduction of fluid and better lipase levels. Hoping the cryo, etc. do the trick for the nose bleeds and that he can finally be extubated. Hang in there . . .
Kathy <corleyfive@comcast.net>
Signal Mountain, TN - Saturday, November 10, 2007 8:42 PM CST
Anne... you are a wonderful Mom and advocate for Zach and all families who live with sick members. Your post came from the heart and you should be fired up about it all. Zach and the girls and Sam in his time are all so lucky to have you as their Mom! God Bless you all!
Oh...and not to forget... YEAH Zach... you go... one foot in front of the other and soon you'll be heading out that door!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Saturday, November 10, 2007 7:06 PM CST
Zach's Mom, I have followed you through another site. Your journal today was touching. Yes, I have been that mother that was Very involved with my son's care. I had to fight with doctors and do my own research at times over the 3 1/2 years our son fought a rare blood disorder. I learned to do many nursing things, run pumps, use central lines, J/Gtubes etc. I had no experience in this before and learned quickly because I had too if he could come home. There were times I wished I had the medical background so that maybe people could listen to me. In the end we found a great oncologist that helped us with all his chemo/meds and took my oponion seriously. Many doubted when my Zac had brain involvment, but I kept telling them all the signs and they thought I was just a paranoid mother. When the MRI can back with uncountable lessions in the brain they all just stared at me. My husband and I were able to spend quite a bit of time with our Zac while he was passing away in the ICU(april 07). I felt the nurses there weren't as friendly as we knew all the other nurses on the pedicatic ward. This was in Albany MEd in NY state. I completely understand your concerns. I was very outspoken the last year of my sons care. My favorite motto at the time was I am not here to make friends but to save my son. I stepped on many toes but always put Zac's interests first. Iknew him the best and knew what he could tolerate and at what rate but many would come on and say this was protocol etc. I did not back down until it was done the way his doc had told us to make sure it was done at and woke up many attendings during the night when I had to fight with the nursing staff or interns. Stick to your guns, it sounds like you have done a great job. I am sorry to hear that you lost your other son Sam. It must be awfully difficult to be in this situation again where your son is fighting for his life. We are incredibly lucky that our other two children(one is Zac's twin) are both pretty healthy and don't face any major issues. We will continue to have you in our thoughts and prayers and hope things improve.
The Hunter's(angel Zac)
www.caringbridge.org/visit/zacharyhunter
kim hunter <widgit@earthlink.net>
middle grove, NY USA - Saturday, November 10, 2007 10:19 AM CST
Dear Anne,
Zach is such a fighter! Amen, to your feelings.... After I read your entry today and being a mom of a medically fragile child, that just fired me up! You keep everyone in line! You know what's best for your son! Hang in there!
Miranda, Abby and Chris www.caringbridge.org/visit/abigailuren
Miranda U <muren@wi.rr.com>
Racine , WI USA - Friday, November 9, 2007 7:23 PM CST
Dearest Anne ,Zach and Family,
Your over all view of things is so true. Not because your a nurse but because your a mother of the patient they are taking care of.You`ve been through so much with Sam and now Zach . and I know if they told me I couldn`t be with my child at such a critial time I be like you very upset.Me being a nurse should have nothing to do with that decision as long as the family member stay out of the way which they can a still be close by in case things go so very wrong which they can. Seems like you needed to get that out,and I glad you shared that with us. As well as the other things you share,may help another parent step up and be more willing to speak for them selves. Hope it also helped you to say it out loud.Our prayers are with you all .take care of yourself,zach and family as best you can ,May you still hold on to hope now and always.
cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Friday, November 9, 2007 4:07 PM CST
Anne,
Just came by to check on you all. I'm so glad to read of Zach's recent improvement re: fluid balance, being more alert while awake, etc. I KNOW Zach's med schedule is tremendous...add to that his need for so many blood products per day and he is certainly in need of 2:1 nursing. I am sure that the nurses caring for him feel the same way, although they may not be able to honestly express this to their supervisors. I know I don't have to tell you to keep fighting the fight...it's just a shame that you are having to use your energy for this instead of what really matters. Keep us posted and know that we are checking on you daily.
Kristi Cole & Brody
www.transplant4brody.org
Kristi Cole <kristi3333@bellsouth.net>
Atlanta, GA USA - Friday, November 9, 2007 3:45 PM CST
Anne, You are something else....thank you from the bottom of my heart and for all the moms such as me that are not nurses...It's more than enough to have to fight your child's disease whatever it may be not to mention doing so with the heartache to your core that takes exhuastion to another level. To have to deal with the lack of staffing, ins...the list is endless as you well know...I thought this very same NEEDLESS part (my not being a nurse) of my battle was specific to my son's disease. A disease that there is much ingnorance in the medical community, not to mention controversy and no "standard form of treatment" I am very grateful for your efforts in enlightening the medical community..Please know your family has touched my heart and my family prays for yours. I check on Zach's progress daily and daily my heart goes out to your family as I pray for you all. May God bless you all as you have blessed so many. Praying Monday all goes well and able to SOON be at home.
Tammy Ross <tam@insightbb.com>
Memphis, IN USA - Friday, November 9, 2007 10:41 AM CST
{{{Anne}}} You are beyond exhausted. Thank you for not being "polite", as you are right-on and your refusal to perpetuate that attitude is one more step in the right direction. I cannot tell you how many times during all oru hospitalizations this month I was asked "are you a nurse"... and I have learned to reply-- NO, but I've been doing this for over a decade now, have many central lines in my house and I am an expert in OUR (my family's) care.
I will anxiously await the news that you can see Zach's entire face and maybe even hear some whispers of him giving you a piece of his mind (for all that classical music you've been punishing him with).
As for the amount of time in the ICU, that is LUDICROUS as you well know. Why is Zach any less important because he's been there a long time-- wait, is there a DISCOUNT after a certain amount of time??? I think NOT. Keep fighting girl; many many many of us will do whatever we can to help from afar.
steph
tubetown, OH - Friday, November 9, 2007 8:44 AM CST
I so pleased to hear that he has had improvement in some areas...Yah Zach! It just sickens me about the staffing though....I am so sorry to hear this and can't imagine the frustration and anxiety this has caused you. I hope you really let them have it. You are in our prayers and thoughts.
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Friday, November 9, 2007 0:19 AM CST
Oh Anne,
I am so sorry that they are not listening to Zach's mother.. the one person who knows and understands him best. You need your rest too and with losing a nurse, it will be that much harder. Please know that we are praying that TPTB have a change of heart and mind... and praying for Zach's continued improvement. Small steps forward, and hopefully as few as posible steps backwards.
We care Anne... you and your family are loved.
Heidi and the Idaho boys
- Thursday, November 8, 2007 11:46 PM CST
Hello,
I am glad he got to enjoy the movies and you got to see him enjoy them. It's nothing like watching our kids be happy and content with everything they go through. I am glad you are able to get some sleep.
Sheryl Sumlin <sherylsuml@yahoo.com>
Atlanta, GA USA - Thursday, November 8, 2007 11:37 PM CST
Dear Anne and family. I am getting bolder! this time I am sending you a message via caringbridge instead of your email.... I just wanted to say hi... I am still "stalking" your website and thinking of all of you often. You are all in my thoughts and prayers. Stay strong you are doing an amazing job. You are quite an inspiration.
Hugs,
Catalina
Atlanta, GA - Thursday, November 8, 2007 3:14 PM CST
Sorry he missed the extubation date, but it sounds like it was the right call... glad to hear he seems to be on the upswing, I sure hope it continues, you guys must all be totally exhausted.
Still thinking of you constantly...
Keely
www.caringbridge.org/visit/brandonandtyler
Keely <kschellenberg@mts.net>
Winnipeg, Canada - Wednesday, November 7, 2007 9:04 PM CST
Checking in as we do every day. Praying for Zach and also that you are able to get some rest. Please know how often we think of you and pray for Zach to get better.
Cindy and Makenzie www.caringbridge.org/va/makenzie <rn4maknme@aol.com>
- Wednesday, November 7, 2007 2:23 PM CST
Anne, Dear Anne, you are prayed for so often and thought of constantly. Please know how much you are cared for. Many times I think it is so easy to feel alone when many who care for you so much are so far away. Please know that here in NJ Scott and I really do care for you!!! A batman gown for Zach that my parents made (thank goodness they can sew) is on it's way... left here Saturday. We hope it fits! Please let us know when you get it and how it works out for him! Much love and prayer,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Wednesday, November 7, 2007 8:36 AM CST
Those missed target dates are so hard. I know I needed the target dates because I had to have something to be moving towards, but I felt crushed each time we got there are weren't ready to ________ (extubate, move to tube feeds from TPN, pull the chest tube, whatever). It is so hard when everything seems to move so fast yet at the same time creep along. Time is so screwy in intensive care. Something like those time lapse sequences where a flower blooms very slowly while the clouds whiz by and the days and nights alternate in just seconds . . .
Thinking of you,
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Wednesday, November 7, 2007 8:22 AM CST
Yes, Rest dear Anne--and ever so thankful for the moments of reading and watching with your Zach! Know we are NOT slowing down on praying for him.
Sh
Floyds Knobs, ZZ USA - Wednesday, November 7, 2007 8:14 AM CST
Just wanted to check in on Zach before bed (usual routine).
Much love and prayers are sent your way.
Love,
Krystena Richards <momof2withga2@yahoo.com>
- Tuesday, November 6, 2007 10:07 PM CST
Anne Zach and family,
You deserve only the best of things to happen and I hope they do soon. Sorry about the set backs ,but you all so had some forward steps. Yah...Praying always..
cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
duluth, mn usa - Tuesday, November 6, 2007 4:22 PM CST
Hi Anne,
I am checking in often even though I don't always have time to sign. We are praying for Zach to have an amazing recovery and soon. We will be down later in November sometime to see pulmonary but I know that you will be home and settled by then!
Love,
Mindy & Elena
Mindy Welhouse <mwelhouse3@new.rr.com>
kimberly, wi - Tuesday, November 6, 2007 11:29 AM CST
Hi Anne
I just wanted to let you know that I am praying for all the issues you mentioned in your journal, thanks for letting us know. I am so glad that Zach was more awake and alert with you, it must be so nice to spend time with him, watching TV, reading or talking. I am really glad his sister is coming to visit, it will be good for both of them. You and Zach are not alone, so many people care so much for you both. My heart aches for Zach and aches for you and your family. I wish he did not have to wait another 2 weeks to go to the OR, but I do think you and his doctors made a wise decision. You are a wonderful mother and doing everything you can to help Zach recover from all of this. He has a long way to go and I will be praying each step of the way. All my thoughts, prayers and love for Zach and his wonderful and loving family coming your way.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Tuesday, November 6, 2007 9:02 AM CST
Anne, I am so glad for the good news about Zachary this morning. Also that you are able to sleep more. I pray for you all and think about you so much.
Josey Zell <josephinezell@sbcglobal.net>
Madison, WI USA - Tuesday, November 6, 2007 7:32 AM CST
Hi Anne, so sorry Zach was not able to be extubated. It sounds like a very wise decision between all of you, just not the right time for Zach. But still I'm sure disappointing to have to wait another week. The days can seem so very long. We are praying about all of the issues you mention each time on his site, so thank you so much for sharing each detail. Please know you are not forgotten and that you are thought of and prayed for throughout each day. The strength you show each day, and the love you give Zach are truly amazing. You are an awesome Mom. Keep up the great work in caring for him, and keep trusting your instincts. We are praying for God's strength to hold you up each day. With love and much prayer,
Deb & Scott
www.caringbridge.org/visit.connorscott99
Millards <sdcm@optonline.net>
- Tuesday, November 6, 2007 6:50 AM CST
Sorry to hear about today's developments. I'm sure you feel like you are on a never ending roller coaster. I continue to be amazed at your wonderful team of docs and nurses who are working collaboratively to always keep Zach's needs in the forefront. I am glad that Zach was so awake today. I know that was a precious gift.
As always, you are all in our thoughts and prayers.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Tuesday, November 6, 2007 5:46 AM CST
Anne,
I keep checking in to see how things are going today. Know that I am thinking of you and hoping that today was a better day for Zach.
Laura
Albuquerque, NM - Monday, November 5, 2007 10:37 PM CST
Anne,
I keep checking in to see how things are going today. Know that I am thinking of you and hoping that today was a better day for Zach.
Laura
Albuquerque, NM - Monday, November 5, 2007 10:37 PM CST
We are still praying for wonderful Zach.
Julia Hatfield
Southern, IN USA - Monday, November 5, 2007 10:18 PM CST
Anne-
So sorry to hear that Zach is facing some nasty issues. Praying the new drip, and other medications work and the pancreas calms back down quickly. SO glad that the vent is helping him, and that he is able to work so well on his own. Praying for guidance as you and the team plan the best approach that will allow Zach to heal on his time. Praying that he is able to critique your oral reading soon - and laugh about how well his mom did reading his books! Sure he is listening and enjoying every minute of every book-
Jayme and January (tpnsupport) <january11292@yahoo.com>
Walton, KY - Monday, November 5, 2007 10:05 PM CST
Anne,
Just want to give you and Zach some encouragement, and to remind you that you are not alone. Here's a hug from us,
Cristy
www.MitoAction.org
Cristy Balcells <director@mitoaction.org>
- Monday, November 5, 2007 2:01 PM CST
Hello. I am a first time poster - I found your site through Connor's site. My friends the Cousineau's have introduced me to many wonderful children and families. I am praying for your family and will keep you all in my heart and mind.
Sandra Swami
Sandra Swami <sandraswami@mac.com>
Shoreview, MN USA - Monday, November 5, 2007 11:01 AM CST
Dearest Anne,Zach and Family.
Zach is such a special person as are you Anne and this roller coaster you are on I`m sure is wearing you down.
Try and Keep the hope and faith that all will get better for Zach and you`ll again beable to hear he`s voice and laughter soon. Sorry for the set back ,cause as you said he`s come so far. As always lots of prayers for you all.
cousin Lynn and family..Hope things work out today.crossing everthing I can think of even my eyes.:-)
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Monday, November 5, 2007 10:18 AM CST
Oh Zach...I hope your pancreas settles down and the new infusion helps with the fluid retention. Hoping and praying tomorrow is a better day. Wishing you all strength and energy.
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Monday, November 5, 2007 2:40 AM CST
Zach! I love "The Cay"! I am a rare signer, but daily checker-up-on, but when I read that you are listening to one of my favorites, I had to answer. I think it is a wonderful book, rather on the lines of Gary Paulson's work. Bravo for you!
Kathryn Campbell
Columbia, IL - Sunday, November 4, 2007 11:21 PM CST
Zach, hoping that the trip to OR in the morning will be a huge succcess, may the Lord guide all who take care of you, sending you, your parents and sisters prayers and blessings.
The Rivas Family <aineahern@aol.com>
- Sunday, November 4, 2007 11:01 PM CST
I am so sorry that Zach's pancreas is not cooperating. I know how hard it is to shoot for a target time to make the next move, only to find that it isn't going to happen. Nothing is ever certain and the landscape seems to shift right under your feet. It always left me feeling dizzy and uncertain. I hated it. I hate that you guys are there now. But like you said, Zach is strong--just keep hanging in there. (As if you could do anything else.) BTW, Alex just read Witches again one night last week . . . I think he must like the story, though he doesn't ever want to TELL me that he actually likes reading for -choke- PLEASURE!
Sending love . . .
Kathy <corleyfive@comcast.net>
Signal Mountain, TN - Sunday, November 4, 2007 9:56 PM CST
Hello Zack, Anne, & Family,
Our PRAYER'S go out to Zach and the rest of your family.
We see Zach as GOD does a child of his who has everything he needs right here and now. We know that GOD is guiding Zach's spiritual and physical body to move in the right direction. We know that GOD is guiding all the doctors, nurses and everyone who comes in contact with Zach. We see everyone guided to do just the right thing for Zach.
Know you are LOVE Anne.
PRAYERS, SUPPORT, AND UNDERSTANDING,
Nina & Lesley
Clearwater, Florida U.S.A. - Sunday, November 4, 2007 9:33 PM CST
Just checking in to let you know we are thinking about you. We hope your weekend was stable and that Zach continues to rest and heal. We will be praying for the OR trip.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Sunday, November 4, 2007 6:38 PM CST
Just wanted to let you know I have been checking in daily. Hoping that the holding pattern over the weekend was good for Zach . . . and that you are hanging in there.
Kathy <corleyfive@comcast.net>
Signal Mountain, TN - Sunday, November 4, 2007 5:54 PM CST
Anne,
So good to hear about Zach's progress. Time in the hospital does have a whole different rhythm to it. It sounds like everyone is working together to help Zach and allow him his own pace in recovering. I hope you are getting a bit of time to yourself too, you need to make sure you stay healthy and able to cope.
Debbie R. <mmercedesmom@cox.net>
El Cajon, CA - Saturday, November 3, 2007 4:13 PM CDT
SO glad to see some improvement GO ZACH. More awake and movement is good. Baby steps
Wishing you the best and sending continued prayers
hugs
Sharon, Roger, Clay, Cole and Jake
www.caringbridge.org/visit/jakeski
www.caringbridge.org/visit/claytonandcole
Sharon Goldin <lawblond7@aol.com>
Waldorf, MD - Saturday, November 3, 2007 9:45 AM CDT
Anne... Make sure you tell Zach next time you talk how AWESOME he is!!! Talk about a trooper... My continued thoughts and prayers for you all!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Saturday, November 3, 2007 9:27 AM CDT
((((((((ANNE))))))))
I am thrilled to read of Zach's steady improvement. :) Small gains of any kind are so important. My thoughts continue to be with you constantly & we are still praying like crazy here in MA!!
Lots of love and support,
Hope <hope2222@hotmail.con (www.caringbridge.org/ma/natalie)>
- Saturday, November 3, 2007 8:32 AM CDT
Anne, So good to hear the recent news on how alert Zach is. One day at a time... one foot in front of the other.
We will be praying for an incredible report from the trip to the OR on Monday...
Patty & Colyn <pattywoods@mac.com>
Hemet, CA - Saturday, November 3, 2007 3:26 AM CDT
I wanted to let you knwo I'm still here and praying for Zach's FULL recovery. I'm praying for you and the girls always too. I most likely won't be back for a couple of weeks, but I have people reading for me to keep me updated. Know I'm always thinking of you.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Friday, November 2, 2007 7:20 PM CDT
Happy to see the update. Zach is pacing things well it sounds. Keeping you in thought and prayer. Nice to hear about the small steps and that no one is in a rush for the healing to occur. Will be thinking of you on Monday. Hugs to Zach and you.
Meg <msteimle@wi.rr.com>
- Friday, November 2, 2007 7:11 PM CDT
Hi Anne
Thanks for the update, I know it must be hard to find the time to get your thoughts together and write in Zach's journal. I am so glad to hear that Zach is breathing on his own, that is big. I know the steps he is taking are small, but he is moving in the right direction. I will be in prayer for Monday when he goes to the OR. I hope Zach has a stable weekend and all goes well for him on Monday. I know it is hard to wait, but you also know that this is the best way to go for Zach's recovery. I am sure when he opens his eyes, he is so glad to see his wonderful mom beside him. Try to take care of yourself as best as you can.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Friday, November 2, 2007 6:26 PM CDT
Hi Anne,
So glad to see your post and that Zach is more awake and moving a little. We are all continuing to pray for all of you especially as you head to the OR on Monday.
love,
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Friday, November 2, 2007 6:12 PM CDT
Anne, LOVE the nice color on the website! Beautiful Buckeye red!!! Connor would love that! Then again, maybe you weren't doing it for the Buckeyes...? Hmm....
So great to hear that he is moving a bit more and really good to hear he is taking his own breaths. We pray he gets stronger and that the bleeding STOPS. Also we will definitely be praying about Monday in the OR. Praying for your strength Anne. God bless.
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Friday, November 2, 2007 2:43 PM CDT
Keep up the hard work Z-master!!! I am so proud of you!! I know I have told you that like a million times, but it's sooo true!! I know this has been a lot of hard work for you, but you are doing a great job! Love you buddy!!!
Hopey <hmpatchak@yahoo.com>
Milwaukee, WI - Friday, November 2, 2007 12:28 AM CDT
Dearest Anne,
Your update was nice to read,seems at least things are still moving forward some. Hope Monday goes well.
Zach hang in the buddy your an inspiration to all of us who conplain about every little ache and pain.God Bless you and keep you in he`s care.
cousin Lynn and family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN USA - Friday, November 2, 2007 12:04 AM CDT
What wonderful news! It is truly evidence to the power of prayer and your own family's strength!
~katie
www.caringbridge.org/visit/alexanderlindemann
Katie
- Friday, November 2, 2007 11:39 AM CDT
SO good to see an update! I am so PROUD of you Zach, and YOU Anne are a wonderful mother! Awesome, Awesome, Awesome! Small steps of improvement, lead to what we are all hoping and waiting for... out of ICU and on!
Continued prayers and hugs,
Heidi and the Idaho boys
- Friday, November 2, 2007 10:41 AM CDT
!!!!!!!ZACH!!!!!!!!!!!
Sh (www.caringbridge.org/in/oliviablinndekold)
Floyds Knobs, IN USA - Friday, November 2, 2007 10:09 AM CDT
I can remember those days of waiting for Hannah to MOVE. They were excruciating---it literally took weeks and she doesn't have MITO. She was so weak from all the trauma. I remember them telling me--when she is strong enough to lift her arms up to her shoulder is when she would be strong enough to breath on her own. How true that was but what a slow process. Thinking of you every day and sending you our love.
shelle and hannah <shdmiller@yahoo.com>
- Friday, November 2, 2007 10:00 AM CDT
Hello Anne and family! I'm thinking about you all the time. Hope things are going well! I love you and miss you all so much. Angie
Angie Baer <angie.baer@hotmail.com>
- Thursday, November 1, 2007 11:11 PM CDT
HEY ANNE,
I DON'T SEW AT ALL, BUT MY MOM WILL SEW A GOWN FOR ZACH. TANNER AND I WILL GET THE MATERIAL THIS WEEKEND!! IT WAS GOOD TO SEE YOU TUESDAY AND AS ALWAYS ALL OF OUR PRAYERS GO OUT TO YOU AND THE KIDS.
NIKKI
- Thursday, November 1, 2007 9:10 PM CDT
Dearest Anne,
Hope all is still moving forward with Zach and those little steps are getting bigger.Also that you are maybe able to get alittle more rest now.Lots of Prayers .
Cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, MN. USA - Thursday, November 1, 2007 5:32 PM CDT
Your family in California would love to make some hospital clothes for Zach. Tell him we'll get sewing right away and will send them soon. It would be our privilege to send our love to him though these gifts from our hands.
Cyndi, Lauren and Taylor Fischer <cyndifischer@verizon.net>
Murrieta, CA USA - Thursday, November 1, 2007 2:56 PM CDT
Your family in California would love to make some hospital clothes for Zach. Tell him we'll get sewing right away and will send them soon. It would be our privledge to send our love to him though these gifts from our hands.
Cyndi, Lauren and Taylor Fischer <cyndifischer@verizon.net>
Murrieta, CA USA - Thursday, November 1, 2007 2:54 PM CDT
Hi, Praying for all of you today and hoping that Zach is doing better and better... Hugs,
Cindy Cruz
- Thursday, November 1, 2007 12:37 AM CDT
Hi Zach and Anne
I just wanted to drop you a note to let you know that I am praying for you both. I hope Zach has been having a week marked with some improvements, even if they may be small. Anne I also hope you are getting some rest. My thoughts and prayers so often go to your son, I may be doing something with my own boys ages 14 and 16 and my mind will go to Zach. I cannot imagine what you are going through, but just know that I am praying. My mind has also been on Deb and Scott at this time of the year. The first Halloween, Thanksgiving and so forth without Connor, I know you and your husband know all too well what they are going through. I feel so grateful that my children are healthy, but feel an ache in my heart for the children who are sick. I know God is good all the time and that God has a reason for all things. I may not understand his ways, but I still need to have faith and hope. I pray God wraps his loving arms around you and gives you comfort and peace. I pray that God helps Zach recover from his surgery which I know means he needs to stop bleeding completely.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Wednesday, October 31, 2007 9:27 PM CDT
Hey, Anne - I found a pattern to use, and now I just need some fabric. Any hints about the type of fabric or colors Zach likes best??? I'll take my best shot--I bet Sarah can help me pick out something that boys his age would like. Hope that IR and the rehab consult all turned out well and that Zach is staying comfortable. Thinking of you constantly . . .
Kathy <corleyfive@comcast.net>
Kathy Corley, TN - Wednesday, October 31, 2007 9:05 PM CDT
Hoping and praying things are improving for you Zach, and that your Mom is managing to get a little bit of sleep when she can.
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Wednesday, October 31, 2007 10:43 AM CDT
Anne,
Glad the OR was a good trip for Zach. We will hope the same for the interventional radiology visit. I laughed so hard about Darth Vader! I wish I sewed. I used to but not in years and don't even have a machine that works anymore. What a great idea about the hospital gown. I never would have thought about it as like Zach, Jamie always wears his own "hospital stuff".
We continue to pray for all of you during this difficult time.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Tuesday, October 30, 2007 3:48 PM CDT
Ok- I'm really sorry. I had no idea the picture would be that big! If you want to delete it- I understand!
Love,
Leslie
Leslie Reynolds <rey7@bellsouth.net>
Roswell, GA - Tuesday, October 30, 2007 2:28 PM CDT
Anne-
I don't sew- but if I did- I would be busy sewing!! I'm sure you will have lots of new gowns for Zach soon. I have been checking in everyday, though I haven't signed in much- I'm sorry. I am just at a loss for words most of the time. You, Zach and your family are loved by so many!
Thought I would share a funny picture of Carter with George - modeling the "Mighty Mitochondrion" costumes.
Love,
Leslie
(and yes, it seems rotten to not have a little girl to dress up this year. I know you miss Sam so much- think he would have been Buzz this year?)
Leslie Reynolds <rey7@bellsouth.net>
Roswell, GA - Tuesday, October 30, 2007 2:26 PM CDT
Dearest Anne,Zach and family.
It`s great to read the up beat stuff that you finally feel free to pass on to us.So Glad to hear that Zach seems to be coming around enough to notice afew things and react, that must almost make you giddy.I`m so pleased for you and Zach and Family. Yes I know he has along way to go ,but he`s come so far already,Keep going Zach.I know he`s able to make this steps forward because of he`s great Mom and family support,and of course he`s Hospital care.Plus all the prayers. Sorry Never been a sewer either. You`d think with six kids I`d of learned how. Nope not one of my interest..Love and Lots of prayer thought that I can do..
Cousin Lynn and family..
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn. USA - Tuesday, October 30, 2007 9:27 AM CDT
Anne- THe minute I get home to the sewing machine I will go!!!! So glad to hear things are beginning to look up! Praying like crazy---
Jayme
JAyme and January (tpn support) <january11292@yahoo.com>
Walton, Ky - Monday, October 29, 2007 10:50 PM CDT
I wish I could sew well enough to make a gown! A Chuppah for Steph is about as far as I can go though... Now, if could find something plain that I could tie dye, that might be interesting... :)
I just love the stories you are sharing about Zach, he is SUCH a treasure, to so many! AND so are you and your girls! Sending lots of hugs and continued prayers to you all...
Heidi and the Idaho boys
- Monday, October 29, 2007 8:04 PM CDT
LOL...OH dear Anne...poor Darth...LOL.. So glad to read the little steps..praying for miracles for your precious Zach. He is an incredible young man! Hang tough Zach and you too Anne... continued praying and sending healing thoughts..
LeeAnne, Sammi and family
LeeAnne <allenleeannebye@aol.com>
NJ - Monday, October 29, 2007 7:22 PM CDT
http://www.lazygirldesigns.com/hospitalgown.php
off to th fabric store... Darth Vader and teenage boy stuff. OK-Dokey.
Kelly-Ann <kwarren@visi.com>
- Monday, October 29, 2007 6:53 PM CDT
anne,
you are a riot...I laughed reading this email... so good to see that you and Zach have priorities right: justice league, the fate of darth vadar....I love it. Give him a hug for me. i love you both. maribeth
Maribeth Fischer <mbfischer1@verizon.net>
- Monday, October 29, 2007 6:28 PM CDT
Our love and thoughts to you all.
Cousins Jason, Carrie, & Finn Enzler <jasonenzler@yahoo.com>
Washington, DC - Monday, October 29, 2007 10:25 AM CDT
Anne,
just wanted to let you know I'm thinking of you and Zach (and the girls!) today as I do each day. I pray you've both gotten to rest today with no "excitement" today and know how mcuh you are in everyones thoughts.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Sunday, October 28, 2007 10:32 PM CDT
Zach, sending you lots of prayers and sunbeams, we are following your progress and marvelling at how amazing you are. Stay strong young man, you are an inspiration in perseverance.
Rivas Family <aineahern@aol.com>
- Sunday, October 28, 2007 10:03 PM CDT
Dear Zach,
I am Ellie Kovalcik's grandma. Ellie's mommy told me that you have been under the weather lately. I just want you and your mom to know that I am praying for you. I hope that you will be feeling better soon. God bless you and your family.
Susan Winther <swinther@columbus.rr.com>
Powell, OH USA - Sunday, October 28, 2007 9:15 PM CDT
Hi Anne
I was so glad to hear the trip to the OR turned out fine, no more clots. I also think it great that Zach is letting you help him exercise his legs and finger a little. A small step, but considering what he has been through, it really is a positive sign. I know Zach has a long road ahead of him, and I will continue to pray for his complete recovery. Anne I hope you are getting some sleep, you need to take care of yourself. Zach is never far from my mind, even when my life gets busy. Zach is such a strong and brave teenager and I am sure all his classmates miss him a lot.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Sunday, October 28, 2007 6:47 PM CDT
I check on you everyday and am praying so hard for zach and you. Please try to get some rest too... I wish I could do something for you. Just know we are thinking of you all the time
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
phoenixville, PA - Sunday, October 28, 2007 6:30 PM CDT
Dearest Anne and Zach and Family,
Sounds like yesterday was a better then average day,Ya I know he has a long way to go,but at least he seems to know more of whats going on around him and that must be very encouraging to you just alittle anyway.I hope things continue this way. Little steps..Hopfully lead to bigger steps.That young man of yours is such an amazing fellow.
Lots of prayers Bleding I demand you to stop..Sounds Good.
Cousin Lynn and family.
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Sunday, October 28, 2007 3:43 PM CDT
Anne, I've been kept up to date by Bill while I have been gone. I am sorry for all the challenges but have absolutely no doubt that your hope will continue to shine and impact Zach and all of the staff.
Tom
- Sunday, October 28, 2007 12:45 AM CDT
Love you Anne! And we all love Zachary!
Sherry and Jackie
Camden, NJ - Sunday, October 28, 2007 11:51 AM CDT
Anne, I'm breathing a sigh of relief as I read of yesterdays update. Zach is truly amazing!!! Still holding you all up in prayer and HOPE...
Love and Hugs,
Kristie
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, October 28, 2007 11:04 AM CDT
Hi Anne, I loved reading about Zach helping with the leg exercises and moving his thumb! Hope is such a wonderful thing and I know your heart jumped with it when he did these things. We are praying as always for you and for Zach, Brittany and Abby. Please continue to remember what a fantastic Mom you are, and that you make the best decisions possible for your son. Remember how very much you are loved, cared for and prayed for by so many.
God bless Anne,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Sunday, October 28, 2007 10:26 AM CDT
((((((((ANNE))))))))
I don't sign much any more, but I read every post and keep up through TPNsupport as well. My heart is with you constantly and I'm praying like crazy for Zach and for you and the rest of your family as are my family and friends!!
Much love & support,
Hope <hope2222@hotmail.com (www.caringbridge.org/ma/natalie)>
- Sunday, October 28, 2007 7:51 AM CDT
Emily Dickinson
HOPE is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all,
And sweetest in the gale is heard;
And sore must be the storm
That could abash the little bird
That kept so many warm.
I ’ve heard it in the chillest land,
And on the strangest sea;
Yet, never, in extremity,
It asked a crumb of me.
Hope may seem so small and fragile, but yet can be unabashed and mighty! Hold on to your hope, Anne!!!
Kathy <corleyfive@comcast.net>
Signal Mountain, TN - Sunday, October 28, 2007 7:32 AM CDT
Continuing with prayers and cyper-hugs. I'm sure Zach feels your protection, presence and never-ending love. You are a special Mama - Zach's light at the end of his tunnel. You are his strength and his spokesperson. I am praying for your continued strength, and the gift of hope, comfort and healing, Anne.
Charla Kingsley <CharsFunnyFarm@aol.com>
Moreno Valley, CA USA - Saturday, October 27, 2007 9:08 PM CDT
Anne,
We are thinking about you constantly and checking on Zach. Thankfully you are there to be Zach's voice and advocate. Hoping and praying for baby steps and a safe change in breathing tubes.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Saturday, October 27, 2007 8:01 PM CDT
Hey Anne, yes, thank goodness that you are there every minute. Scott and I always felt this way as well with Connor's care and also made considerable sacrifices to be sure one of us was always there with him. While we felt that Connor's hospital and drs/nurses were so excellent with his care we also did not want to leave him for even a second. Our kids are so complex and we do indeed know them the best of anyone. We can sense even the slightest change in anything and can know so far in advance of it showing up in something "actual" or "objective" like a blood test or scan! It's so hard to explain, but we do have intuition as parents... and the smart drs and nurses do get to know us and listen. I'm glad there are some of those there with you. Hang on, hold on, and know you are doing an awesome job. We are praying and praying and praying.
Much love,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Saturday, October 27, 2007 5:25 PM CDT
Anne and dear family--
We are praying for Zach's tube and all that it means.
I'm also so very thankful you are there with Zach. Please know we are praying for him. With concern and care--
Sh <sdekold@mac.com>
Floyds Knobs, IN USA - Saturday, October 27, 2007 5:25 PM CDT
Anne-
You are the best thing for Zach at this time. You are there to be his mother,his voice, his advocate. Continue the hope you hold in your heart and listen to Zach. You are fortunate that you are able to be at his side all day every day. You are also fortunate that he has nurses that know him so well to work with you to do the best for Zach. You make a good point about other mothers not being able to stay with their child 24/7. It is very difficult. As I tell the residents when they rotate through our clinic, with the special needs children - listen to the parents - they know their child the best! Zach, you and your family are in my thoughts and prayers always. If you ever have any questions please email me. Hang in there - I know you are exhausted but Zach is taking small slow steps and he needs you by his side for the giant steps. Thinking of you.
Gayle Higgins
St. Christopher's Hospital
Philadelphia
Gayle Higgins <Gayle.Higgins@tenethealth.com>
Philadelphia, PA USA - Saturday, October 27, 2007 5:15 PM CDT
Thinking of you all and praying today has gone well. You continue to stay in my thoughts and prayers.
Love,
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Saturday, October 27, 2007 3:23 PM CDT
Anne, Lou, Brittany, Abbey, Sam, Zach,
I love you and you are with me and in my thoughts constantly. Dave
Dave Cieri <citizentrain@hotmail.com>
NYC, NY USA - Saturday, October 27, 2007 12:40 AM CDT
Thank goodness, Anne, that you are so hyper vigilant and so smart and so assertive and so devoted to that precious son of yours. Hopefully, by now Zach is out of the OR and everything went as was needed to. As always you are in my heart and thoughts all the time. Love, Donna
donna <dmkuhtz@yahoo.com>
- Saturday, October 27, 2007 12:20 AM CDT
Hi Anne and Zach!
I'm so glad they figured out what was wrong with his tube - you were right! It didn't make sense that he would be biting down on the tube. It's just not like him! I hope everything goes ok today! I'm thinking about you guys! Tell Zach I say hi, and I'll see him soon!
Amanda
Amanda Glorioso <aglorioso@chw.org>
- Saturday, October 27, 2007 12:08 AM CDT
Anne,
Thoughts and prayers continue for Zach's tube change today.
hugs
Rose and Alicia Hoelle <rosiebowah@yahoo.com>
- Saturday, October 27, 2007 11:42 AM CDT
Hi Anne
I will be praying so hard for Zach that everything goes well in the OR and I am glad that you can be there for your son all day. I am glad Deb asked me to pray for Zach, he is a great kid, and as I can see he is well loved by so many people. Thank you for letting us all know what is going on and I hope you can feel the prayers pouring over Zach and your family.
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Saturday, October 27, 2007 10:30 AM CDT
Anne:
No words have ever rang so true about being able to stay with your child and having the ability to have a flexibile job and people who you work with that are understanding. I have been so lucky about that too, with the boys and now my mom
I am praying so hard for you and your wonderful son and hoping all goes well today in the OR.
Sending you hugs and warm thought
Sharon, Roger and the boys
Sharon Goldin <lawblond7@aol.com>
Waldorf, MD - Saturday, October 27, 2007 10:27 AM CDT
Dearest Anne,
Hope all goes well today for zach,he deserves abreak from some of the merry-go- round he is on. And I also know first hand how important it is to have someone able to be at the hospital to ask questions etc. Thankfully as you say you are able to.Our prayers are with you and zach.Please take care of yourself too. you sound so tired and exasted which I know you would have it no other way.I`d be the same...And was..Tons of prayers are going your way from all over hopfully these will help.I know you`d like nothing better then to hear your son`s voice right now and know he understands what your saying to him. Soon Anne I`ll pray especially for that too.
cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Saturday, October 27, 2007 10:22 AM CDT
With continued prayers and hope from the heart...
Blessings come in many different forms in our lives.
You are constantly in our thoughts and prayers.
You're support some from far and wide. May it continuously sustain you and the family. With much love,
Meg, Mark & Adam <msteimle@wi.rr.com>
- Saturday, October 27, 2007 9:52 AM CDT
With continued prayers and hope from the heart...
Blessings come in many different forms in our lives.
You are constantly in our thoughts and prayers.
You're support some from far and wide. May it continuously sustain you and the family. With much love,
Meg, Mark & Adam <msteimle@wi.rr.com>
- Saturday, October 27, 2007 9:52 AM CDT
Praying for Zach as he heads to the OR today. Our thoughts and prayers are surrounding you and Zach.
Donna and ^Kyle^ Noble www.caringbridge.org/oh/kyle <donnanoble2001@yahoo.com>
Grove City, OH USA - Saturday, October 27, 2007 9:44 AM CDT
Praying this morning... and all mornings, afternoons, evenings, nights..
You are So right Anne, and I too am thankful that I can stay at the hospital when Sean is in. You are such a great mom for Zach, the girls, AND Sammy... they are all blessed to have you, just as you are blessed to have them. Always in your heart...
Lots of hugs,
Heidi and the boys
- Saturday, October 27, 2007 9:43 AM CDT
Anne,
Praying extra hard for Zach this morning that the ET tube change goes off without any complications and that you will soon be able to have the tube removed for good. Zach's strength inspires me and reminds me every day of what a truly special guy he is!
Take Care,
Sarah
Sarah Pouzar <filta1@charter.net>
Hartford, WI - Saturday, October 27, 2007 9:31 AM CDT
Zach is in our thoughts and prayers today as always, as are all of you. I am so sorry about the bleeding and the need for the OR again.
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Saturday, October 27, 2007 9:16 AM CDT
Praying all goes well today. Zachary is so blessed to have you by his side every hour of every day. We continue to pray and offer hope along side you.
Holly
www.caringbridge.org/mi/mayam <mom2maya@centurytel.net>
Holmen, WI - Saturday, October 27, 2007 8:25 AM CDT
Thinking of you daily. I know you must be beyond exhausted. Hoping that the bleeding has stopped and you are getting ahead of those clots. Hoping that Zach is comfortable and resting easily. Hoping that those who are treating him are remaining hopeful and attentive to his needs. Hoping that you are finding time to rest. Hoping that the girls are managing somehow to keep moving ahead with all the usually important things that must seem so trivial while Zach is hanging in the balance.
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Saturday, October 27, 2007 7:44 AM CDT
....praying, and not giving up hope.
Patty
- Saturday, October 27, 2007 0:58 AM CDT
Zach-
Sending hope and prayers your way. You are the strongest person I know! I am positive that things will continue to get better with the bleeding! Thinking of you always!
Hannah <hanbana23@aim.com>
Waukesha, WI - Friday, October 26, 2007 9:55 PM CDT
ANNE,
MY LOVE AND PRAYERS TO YOU AND YOUR BEAUTIFUL FAMILY, GIVE ZACK MY LOVE.
FRANCIS IN NAPLES.FL
FRANCIS NATOLI <FRANCISNAT@AOL.COM>
NAPLES, FL USA - Friday, October 26, 2007 6:28 PM CDT
Anne:
You are an amazing woman and never ever second guess yourself. You know in your heart you are doing what is right so keep on doing what works. Thinking of you and send prayers.
Hugs
Sharon, Roger and the boys
Sharon Goldin <lawblond7@aol.com>
Waldorf, MD - Friday, October 26, 2007 4:52 PM CDT
Anne,
We hope and pray for all of you. Your family has been through so much and Zach knows how much you love and care for him. Your an amazing person and have always had what is best for him in the forefront of everything else. Hang in there. We are all praying for you and the entire family as you face this difficult situation.
love,
Laurel, Dave and Jamie Smith <Dalsmith@aol.com>
Medford, NJ USA - Friday, October 26, 2007 10:27 AM CDT
Anne-
My thoughts never leave that PICU. I will be there tomorrow.
You know, I was thinking this morning, that Alex and Zach must be together playing video games, laughing, running in whatever place they go to when the meds are this heavy...I hope they will remember how much we want to play with them too.
Hoping, praying, coming.
Steph
tubetown, OH - Friday, October 26, 2007 9:53 AM CDT
Dear Anne and Zach, and the girls.. all of you,
you are one of the strongest families I know. You are all such fighters... for each other, for yourselves... God has blessed you all with a great spirit of independence and resilience. And HOPE and LOVE.
We continue our prayers for you and the medical staff, for God to surround you all with His peace and love. Knowing without a doubt that each and every person who comes into contact with you and with Zach will go beyond their wild imaginations to do the best job they can for your boy...
sending you lots of hugs!
Heidi and the boys
- Friday, October 26, 2007 9:30 AM CDT
Zach, sending lots of prayers, love and faith that this day will move you further along, we are cherring for you, your parents, sisters and extended family
Rivas Family <aineahern@aol.com>
- Friday, October 26, 2007 8:36 AM CDT
Sending warm wishes and many prayers for a good day with promising news and more hope...
Cindy Cruz
- Friday, October 26, 2007 8:26 AM CDT
Faith, hope and love, and the greatest of these is LOVE. That is what you are making your decisions on.. LOVE. Please do not beat yourself up. Yes, there is always hope. Praying for you all.
Tammy Ross <tam@insightbb.com>
memphis, IN - Friday, October 26, 2007 7:40 AM CDT
Anne and Zach,
You both are just amazing in how you are handling this situation. A true test of one's charactar is most evidenced when in situations such as this, and I don't think that there is a doubt that you both are showing us all just how strong of people you are. Praying for you both and the family as well.
John Fischer <jdfischer0505@hotmail.com>
Avoca, IN US - Friday, October 26, 2007 7:18 AM CDT
Much love, prayers and hope sent. . .
Sh <sdekold@mac.com>
Floyds Knobs, IN USA - Friday, October 26, 2007 7:06 AM CDT
Zach, you are in our thoughts as we wake up and we go asleep, we are cheering for you and know that you are so loved by so many people, you must be one amazing guy. You are an inspiration truly, your parents must be so proud of you every moment of the day. Sending you tons of moonbeams and sunshine from California and keeping you in our prayers, goodnight
The Rivas Family <aineahern@aol.com>
- Friday, October 26, 2007 0:25 AM CDT
Anne,
Hoping and praying like so many others. You are an awsome mom, always putting the kids first. Please know you are always in my thoughts, and my prayers.
holly
www.caringbridge.org/mi/mayam
Holmen, WI - Thursday, October 25, 2007 11:15 PM CDT
Dear Anne,
I cant imagine what you are going through and I wish so much you werent. Hope is powerful. You need to know that you are making all the right decisions. I will pray for that. I pray so much that Zach will heal and be safely extubated soon.
With love and prayers, Mary
Mary <mkrupski@yahoo.com>
Essex, VT - Thursday, October 25, 2007 10:48 PM CDT
Zach,
I miss youuuu!!!!! I can't wait to see you again. Guess what.....I already told you this but you might not remember so I'll tell you again.....I saw an ad about this store with all these halloween costumes and there was one that was a WHOOPIE CUSHION!!! HAHAHAHA I thought of you RIGHT AWAY and I might actually be that for Halloween! How funny would that be?!?!? Well you rest up buddy.....keep being strong and brave like always. I'll see you soon.
Luv your favorite (sorry abby) sister,
Brittany
Brittany
Minneapolis, MN - Thursday, October 25, 2007 9:41 PM CDT
Anne...praying for strength for both you and Zach and praying you will know all of your choices, decisions, actions have always been made with the utmost of love and care for your precious son and all are the best you can make...
Praying Anne...God Bless you both..praying Zach stops bleeding, praying for his healing...
Hugs,
LeeAnne
LeeAnne <allenleeannebye@aol.com>
NJ - Thursday, October 25, 2007 8:25 PM CDT
Anne,
I love you. I think of you and Zach constantly. I know you talk to him all the time. Please tell him I love him, and I can't wait to play chess with him.
Maribeth Fischer <mbfischer1@verizon.net>
- Thursday, October 25, 2007 7:24 PM CDT
Anne,
My heart is full of hope for Zach. Hope is a strong and wonderful medicine. Please do not second guess your choices for Zach. Everything you do for Zach is what is right for you guys.
I LOVED Saving Graces. I have read certain parts so many times it is tattered in places. I have given it to others. Elizabeth's message of hope and later of grief laced with hope is very moving and uplifting.
Know that you guys are never far from our thoughts and prayers.
Donna and ^Kyle^ Noble www.caringbridge.org/oh/kyle <donnanoble2001@yahoo.com>
Grove City, OH USA - Thursday, October 25, 2007 7:23 PM CDT
Quilt of Holes
As I faced my Maker at the last judgment, I knelt before the Lord along with all the other souls.
Before each of us laid our lives like the squares of a quilt in many piles; an angel sat before each of us sewing our quilt squares together into a tapestry that is our life.
But as my angel took each piece of cloth off the pile, I noticed how ragged and empty each of my squares was. They were filled with giant holes. Each square was labeled with a part of my life that had been difficult, the challenges and temptations I was faced with in every day life. I saw hardships that I endured, which were the largest holes of all.
I glanced around me. Nobody else had such squares. Other than a tiny hole here and there, the other tapestries were filled with rich color and
the bright hues of worldly fortune. I gazed upon my own life and was disheartened.
My angel was sewing the ragged pieces of cloth together, threadbare and empty, like binding air.
Finally the time came when each life was to be displayed, held up to the light, the scrutiny of truth. The others rose; each in turn, holding up their tapestries. So filled their lives had been. My angel looked upon me, and nodded for me to rise.
My gaze dropped to the ground in shame. I hadn't had all the earthly fortunes. I had love in my life, and laughter. But there had also been trials of illness, and wealth, and false accusations that took from me my world, as I knew it. I had to start over many times. I often struggled with the temptation to quit, only to somehow muster the strength to pick up and begin again. I spent many nights on my knees in prayer, asking for help and guidance in my life. I had often been held up to ridicule, which I endured painfully, each time offering it up to the Father in hopes that I would not melt within my skin beneath the judgmental gaze of those who unfairly judged me.
And now, I had to face the truth. My life was what it was, and I had to accept it for what it was.
I rose and slowly lifted the combined squares of my life to the light.
An awe-filled gasp filled the air. I gazed around at the others who stared at me with wide eyes.
Then, I looked upon the tapestry before me. Light flooded the many holes, creating an image, the face of Christ. Then our Lord stood before me, with warmth and love in His eyes. He said, 'Every time you gave over your life to Me, it became My life, My hardships, and My struggles.
Each point of light in your life is when you stepped aside and let Me shine through, until there was more of Me than there was of you.'
May all our quilts be threadbare and worn, allowing Christ to shine through!
God determines who walks into your life....it's up to you to decide who you let walk away, who you let stay, and who you refuse to let go.'
Surely your life quilt is full of holes.
Prayers for your family.
camie gray <dizzy72959@hotmail.com>
fort frances, On canada - Thursday, October 25, 2007 7:03 PM CDT
Anne, I wrote to your email, not sure if you'll get it, so I'll post here as well. Your post...my heart breaks for you. Please know Anne that you are doing everything you can possibly do for Zach. You have always been an incredible Mom to Zach, researching the alternatives, picking the best doctors, making the best possible choices even when none of them may seem even like good ones. You always have amazed me with your knowledge, wisdom and insight. I know you have used that to take care of your kids, and Zach has always been so blessed by you. Don't second guess yourself now. You are still that same person, thinking always of Zach first. Caring for his needs, being sure you are doing every single thing to be sure he is as comfortable and as cared for as he possibly can be. And you have the best drs you possibly can have, the best nurses, in the best place you can have him. Anne, you are doing the best you can for Zach. As you have always done in the past. Please know that. Know what a wonderful job you have always done, and are doing right now. And Anne, please remember how very much Zach loves you and that he knows you are doing your best for him. He wouldn't doubt that. So hang on. Keep holding on. Know how many people love you and are praying for you. Reach out to any one of us if you need us. We are praying for you and we love you.
Much love and prayer,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Deb Millard <sdcm@optonline.net>
- Thursday, October 25, 2007 4:51 PM CDT
Anne,
You are an awesome Mom which means you are the only
person who can advocate for your child. The decisions
you are making are ALWAYS right. Don't second guess,
go with what you know and what you know is Zach. You
are a very smart educated Mom who is doing the best she
can! Always keep HOPE and FAITH near to your heart.
A Mom who empathizes with you.
- Thursday, October 25, 2007 3:03 PM CDT
Hi Anne
I am so sorry to hear that Zach is still bleeding and clotting. Anne you are doing the best you can for your son and any decisions you make will be what you think is best for him at the time. I realize none of the options in front of you for Zach are great, but I will pray for wisdom for you and his doctors. I am glad that you have so many good friends that are helping with your daughter, I know this has to be so hard for her. Please hang onto the hope that comes from God. You are a wonderful mom and please know that Zach is in my prayers more than I can even express.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Thursday, October 25, 2007 2:32 PM CDT
HI ZACH,
I CHECK ON YOU EVERYDAY. I MISS YOU AT SCHOOL. KEEP GETTING STRONGER SO YOU CAN COME BACK. YOUR FRIEND, TANNER
TANNER
WAUKESHA, - Thursday, October 25, 2007 2:19 PM CDT
Thinking of you always and still praying for an end to the bleeding.
Bridget
Oconomowoc, WI - Thursday, October 25, 2007 12:27 AM CDT
Anne-
You are an amazing mom. There are no "right" or "wrong" answers... It is in God's hand. Please realize you are doing the best anyone can possibly do (beyond anything any of us have ever witnessed). Zach has love all around him here, and waiting for him there. Praying for miracles to continue and for many more days of creative cooking by Zach-
Stephanie
tubetown, OH - Thursday, October 25, 2007 11:09 AM CDT
Continuing to check in on you and Zach. Holding you all close in my heart. I read that book "Saving Graces" recently. It is really good, and I felt I related to so much of what she talks about and all the emotions she felt after Wade died.
Love,
Leslie
Leslie Reynolds <rey7@bellsouth.net>
Roswell, GA - Thursday, October 25, 2007 10:38 AM CDT
My thoughts and prayers are with you.
Anne R <areckling@aol.com>
- Thursday, October 25, 2007 10:22 AM CDT
My dearest Anne and family... Your courage and ability to write so eliquently at a time of such pain is such an inspiration... and yet you are the one that needs the support, prayers and encouragement... that I am looking to you at this moment with tears in my eyes and wonder in my heart at your ability to live on such a teeter-tooter from day to day I am speechless, but full of HOPE and full of Faith for what is right for Zach. You, Zach and the rest of the Juhlmann Family are a true testament to HOPE and FAITH!
A few years ago I wrote the following prayer... it has many many interpretations and not a day goes by that it doesn't provide some comfort for me... I hope the same is true for you and Zach.
For Healing
May we discover through pain and torment,
The strength to live with grace and humor.
May we discover through doubt and anguish,
The strength to live with dignity and holiness.
May we discover through suffering and fear,
The strength to move toward healing.
May it come to pass that we be restored
To health and vigor.
May life grant us wellness of body, spirit and mind.
And if this cannot be so,
May we find in this transformation and passage
Moments of meaning, opportunities for love,
And the deep and gracious calm that comes
When we allow ourselves to move on.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Thursday, October 25, 2007 9:53 AM CDT
Dearest Anne,
There is no right or wrong chose only the one that presents it self at that moment in time. You are doing all that one can ask of you and then some.Zach is so blessed to have a mother and family that he has.Remember dearest Anne what ever chose is make will be the right one, no matter how it turns out cause we have no control of these things as humans fate is the equalizer of our destiny.We can only chose what is best for our loved ones not for our selves,which is always a hard decision.May you always find the strength to do so. God bless you Anne and Zach,and family.
Love and prayer`s always
cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Thursday, October 25, 2007 8:40 AM CDT
Anne,
It has been such a rough few weeks for you all. I was so sad to read about the bleeding and more clots. I can't imagine how exhausted you must be. It sounds like you picked just the right day to start reading that book. Sometimes its hard to hang onto hope when things look so dark. When it gets hard to keep that hope, rememer we are all hoping with you and sending you lots of cyber hugs.
Laurel <Dalsmith@aol.com>
Medford, NJ USA - Thursday, October 25, 2007 5:02 AM CDT
Anne,
Please add me to the long list of worldwide "friends" holding Zach and your family close to my heart. We can hear your frustration, your fears, your exhaustion. We would all take some weight from your hearts, if we could. I won't offer empty promises or platitudes. I will only promise to pray for sustenance of your hope. My wish tonight is to help you hold on to that hope, it is your candle in the darkness. You have more hope and faith than most of us can ever imagine. Your children, the friends who love them locally, and those of us who love them from afar...they are all testimonies to your boundless love and determination. You, dear Anne, are the embodiment of hope. As you teach future doctors, advocate for Zach, and remind the world of the joy of Sam...you teach us all the definition of Hope. Hope is LOVE. Its just that simple.
Sending you cyber love and support,
Alicia - Avalon's mom
www.crazycancermom.com
Alicia Hall - Avalon's mom <castlehavan@columbus.rr.com>
Powell, OH - Wednesday, October 24, 2007 11:28 PM CDT
Anne, when your energy wains and you are questioning hope, remember all of the people across the country who love Zach and are hoping for and along with you. Whatever decisions you make are made out of love for Zach - therefore they are all the right decisions.
Julie T.
Waukesha, - Wednesday, October 24, 2007 10:55 PM CDT
Tried to call and sorry I missed you. It is heart breaking to read this. I am so sorry for all that has transpired. Hope and hope anne. Think of all you have been through and remember how you walked forward in the dark and saw the sun shine again. Keep walking Anne. The sun will shine.
BK
- Wednesday, October 24, 2007 10:50 PM CDT
Hey Anne,
I read your journal entries and am in a state of shock literally. I know MANY mito kids, including my own, who keep the docs guessing but I think Zach & Sam are in a league of their own. It sounds as if everyone-(including mom)is trying so hard to make all the right decisions for Zach. I know you are proud of Zach's team of doctors...as you should be. It sounds like everyone truly cares and thinks about Zach as a person first and foremost. I am still thinking and praying for you guys everyday. My boys ask every morning, "How is Zach?" One of my favorite Bible verses given to me by my pastor for Brody is:
Romans 4:18- "Who against hope believeth in hope..."
Keep up the faith...
Kristi Cole & Family
Kristi Cole <kristi3333@bellsouth.net>
Atlanta, GA USA - Wednesday, October 24, 2007 10:49 PM CDT
Anne,
Hold on to that beautiful, strong, healing hope that you have. I am doing the same. Hoping that the bleeding will stop and that Zach can be extubated soon, hoping that his lungs will be strong enough to breathe on his own, hoping that the collective wisdom of so many doctors will continue to make correct decisions, hoping that you can find time to rest and be at peace with these decisions you must continue to make, and hoping that Zach's amazing strength and spirit prove victorious. There is no doubt in my mind that your hope has already moved mountains.
Laura
Albuquerque, NM - Wednesday, October 24, 2007 10:42 PM CDT
Anne-
Know that I am praying for you and Zach right now. Never second guess any of your decisions, as they are always based on what is right at the time. Praying for wisdom and Gods help in all the decisions that you and the doctors are making during Zach's healing
Jayme and January <january11292@yahoo.com>
Walton, Ky 41094 - Wednesday, October 24, 2007 10:39 PM CDT
Anne,
It was so good to see you. I wish I could have said or done more, but know I am always praying. you are such a wonderful mom to all your children and your love for them always shows.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Wednesday, October 24, 2007 9:58 PM CDT
Anne,
So glad to here that the baby steps are continuing. We think about you every day and pray for you all every night. Zach is such a brave young man and you are an amazing woman. We hope that every day is another step in the right direction.
Love,
Laurel, Dave and Jamieson <Dalsmith@aol.com>
Medford, NJ - Wednesday, October 24, 2007 7:53 PM CDT
Anne,
Your courage and strength are inspiring. You have given Zach these wonderful qualities. If you need anything just ask.
Ann
Ann Karvelas <KARVELASBOYZ@SBCGLOBAL.NET>
Franklin, WI United States - Wednesday, October 24, 2007 7:13 PM CDT
Dear Anne,
Love and prayers to you every day.
Love, Mary
Mary <mkrupski@yahoo.com>
essex, VT - Wednesday, October 24, 2007 12:40 AM CDT
Hi Anne,
I may not be very good about signing your guestbook but you are forever in our prayers. You are an amazing family that inspires me. Glad to hear the bleeding has decreased. You are in our thoughts and prayers as you face this ongoing journey.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Wednesday, October 24, 2007 12:23 AM CDT
Anne, I saw a link to your page from Caden and Carsen Richard's page and I have been following Zach's story. He is in my daily prayers along with the rest of your family. I anxiously await updates and check his page each morning. Praying for the update when the breathing tube has been removed and no more bleeding. God Bless! Jenn Stacey
Jenn Stacey <staceyje@insightbb.com>
Morning View, KY USA - Wednesday, October 24, 2007 11:24 AM CDT
Anne, I am so glad for a positive update. Sounds like Zach is making good progress. I hope you are able to get outside a bit yourself, you need a bit of "normal" in your day too. I will keep sending positive healing thoughts Zach's way.
Debbie R. <mmercedesmom@cox.net>
El Cajon, CA - Wednesday, October 24, 2007 10:37 AM CDT
Hello Anne,
I am thinking of Zach, you and the rest of your family. I do not know what to say other than my heart goes out to you.
sheryl (&Trinity)
sheryl sumlin <sherylsuml@yahoo.com>
atlanta, ga usa - Wednesday, October 24, 2007 0:22 AM CDT
Happy to hear about small steps and less bleeding. Sending prayers and hope and hugs, as always. May God surround you all with love.
Meg <msteimle@wi.rr.com>
- Tuesday, October 23, 2007 10:45 PM CDT
Anne
was good to hear zach did as well as he did and as you say will pray for the bleeding to stop,as well as for he`s continued small steps forward.I`ll bet though you wish he could do one giant step about now.Bless you anne and please take care of your self too.
Cousin Lynn and family.
Lynn Walsh <Jamesgreenman@hotmail.com>
Duluth, MN USA - Tuesday, October 23, 2007 8:11 PM CDT
Anne,
While things still sound amazingly complicated, I am happy that everything went well yesterday. I hope today has been another good day with slow and steady improvement. Thinking of you!
Laura
Albuquerque, NM - Tuesday, October 23, 2007 6:27 PM CDT
Hi Anne
I am so thankful that Zach did better than expected on Monday. I am praying so much for Zach and will defintely pray that he stops bleeding. My prayers are also for you, for strength, peace and comfort. You are a wonderful mom and I am very impressed with your son. He's such a great kid, and he is being cared for by a staff of doctors and nurses that really love him. We all love him and your family.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Tuesday, October 23, 2007 6:18 PM CDT
Rooting for you and Zach always. Keep your hope Anna. It has seen you through your darkest hours and it will keep you walking forward now. Call if you need anything.
Bill
- Tuesday, October 23, 2007 5:56 PM CDT
Anne,
Thinking of you and keeping you all in our prayers. We will pray for the bleeding to stop.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Tuesday, October 23, 2007 3:50 PM CDT
Anne,
There is not a day that goes by that I do not think of or pray for Zach. I will contiune to pray!
Joannne Holentunder
- Tuesday, October 23, 2007 8:57 AM CDT
Alright . . . praying for a stop the bleeding but not too much clotting!!! Thinking of you.
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain , TN - Tuesday, October 23, 2007 8:32 AM CDT
So very glad to hear things went well in the OR and look a bit more promising! Praying, ppraying, praying that the meds do just the right thing to control Zach's bleeding and he can be extubated safely soon!! Hugs and prayers continue,
LeeAnne, Sammi and family
LeeAnne <allenleeannebye@aol.com>
NJ - Tuesday, October 23, 2007 7:17 AM CDT
What a great way to start the day when I read about Zach's progress last night. Small steps at a time, but such great news for Zach and the family! Continued prayer for a little good news each day.
John Fischer <jdfischer0505@hotmail.com>
Avoca, IN US - Tuesday, October 23, 2007 6:59 AM CDT
YEA, ZACH!! THIS IS THE BEST NEWS TO HEAR! I"M SO HAPPY THAT IT WENT WELL!
Anne R <areckling@aol.com>
- Tuesday, October 23, 2007 6:01 AM CDT
So very very very thankful to hear this news! God bless you Zach! You are so strong. We are praying and praying for you! Anne, we continue to hold you up in prayer! Thanks for how you always manage to encourage me in the midst of your own WAR! Much love
Deb
www.caringbridge.org/visit/connorscott99
Deb Millard <sdcm@optonline.net>
- Tuesday, October 23, 2007 4:16 AM CDT
Zach,
You are SOOOOOOOO strong and brave. Me, Abby, and Sam are so lucky to have such an awesome brother and Mama and Daddy are so proud to have you for a son! WE LOVE YOU ZACHARY RYAN JUHLMANN THE ONE AND ONLY!!!!!
Brittany
Minneapolis, MN 55414 - Tuesday, October 23, 2007 2:34 AM CDT
Zach, sounds like you had an eventful day, we are praying that the meds you recieved today will stand you well for the next chapter. Our prayers and thoughts are with you, your mom and dad and your sisters. Good night and may the Lord look over you as you sleep.
The Rivas Family <aineahern@aol.com>
- Monday, October 22, 2007 10:42 PM CDT
CONTINUING to PRAY
Sh
- Monday, October 22, 2007 10:41 PM CDT
Anne,
We are praying for the bleeding to stop and things to look better in the OR tomorrow. Thanks for the update!
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Monday, October 22, 2007 10:38 PM CDT
Whew! Thanks for the update. Now I can go to bed with the right prayers on my lips.
Julie T. <jturkoske@wi.rr.com>
Waukesha, - Monday, October 22, 2007 10:15 PM CDT
My thoughts and prayers are with you, Anne. The God of the universe, who determines each of these defining moments in life, is still on the throne! He does not sleep or slumber! He will walk this journey with you and Zach…giving you both strength for each day.
Karen Lipps
Goodyear, AZ - Monday, October 22, 2007 10:09 PM CDT
Thinking of you, Zach and your family - keeping you all in our prayers!!
caringbridge.org/visit/chaseandersonbeech
Dana Beech <gradstu12@aol.com>
Memphis, tn us - Monday, October 22, 2007 9:59 PM CDT
Thinking and praying for you! God bless. dawn Anich
Dawn Anich <Danich1@wi.rr.com>
Racine, Wi - Monday, October 22, 2007 9:00 PM CDT
Thinking of you and keeping you close prayer.
Claudia <cmf@utk.edu>
Knoxville, TN - Monday, October 22, 2007 8:43 PM CDT
Anne - This is so hard--for him, for you, for the girls. I am so sorry. I am glad they are helping him through the fear, and I am praying. Hang in there -
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Monday, October 22, 2007 7:03 PM CDT
Thinking of you and Zach.
Anne R <areckling@aol.com>
- Monday, October 22, 2007 6:43 PM CDT
Thoughts and prayers with you and Zach today.
Wendy Runge
Waukesha, WI USA - Monday, October 22, 2007 6:40 PM CDT
Lots of Prayers and Hugs coming from Missouri. We are praying for COMPLETE healing. God IS in control.
Tamara (Joey's Mom)
Fair Grove , Mo. - Monday, October 22, 2007 6:37 PM CDT
Praying for you all. You are blessed with two wonderful daughters and a very strong, brave son. Know you are all in my thoughts daily....hourly.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Monday, October 22, 2007 6:08 PM CDT
Thinking and praying for Zach and Anne.
Marisol <Marisolrn2007@hotmail.com>
- Monday, October 22, 2007 6:02 PM CDT
Thinking and praying for Zach and Anne.
Marisol <Marisolrn2007@hotmail.com>
- Monday, October 22, 2007 6:01 PM CDT
my thoughts and prayers are with you today and always.
karen brubaker <karenbrbkr@yahoo.com>
Olympia, WA - Monday, October 22, 2007 5:11 PM CDT
So impressed with the compassionate care & new technology available for Zach..our hearts, thoughts, & prayers are with you all! Love those two sisters...such tough times for everyone!
Asher's grandparents
JoAnn (RN, PhD) and Fred (MD) Reckling <jfreckling@comcast.net>
Fort Collins, CO USA - Monday, October 22, 2007 4:54 PM CDT
Dearest Anne,Zach and Family.
I`m praying with all my heart and might that all goes well today for Zach.From what you say ,he certainly has the right Dr`s etc. to help him the most at this time. Anne I hope they remember you also need support at such a trying time in Zach`s life.He`s ordeal must be very hard on all of you.I pray mercyfull Father in heaven give this loving family peace.
You cousin Lynn and family (May the force be with you Zach)
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Monday, October 22, 2007 4:51 PM CDT
Our prayers are with you today and every day.
Hoping that all went well this afternoon.
Pam Dobke <pdobke@wi.rr.com>
Waukesha, wi USA - Monday, October 22, 2007 4:37 PM CDT
Continuing to pray and wishing there was more we could do for you. Hannah talks about Zach every day--wonders how he is. Between all of the thoughts and prayers that are going on all over the country for Zach he is being held up. He is strong--like his mom. We will continue to pray for those little pieces of good news each day. May the doctors and nurses that are with him this afternoon in OR be just who he needs them to be.
Cindy
Waukesha, - Monday, October 22, 2007 4:12 PM CDT
I have continued to pray for Zach. I will continue to pray that everything goes well in the OR today.
Lindsay Deinhammer <SchoolRNPHN@aol.com>
Kenosha, WI USA - Monday, October 22, 2007 2:59 PM CDT
Thinking of you and Zach often! KP
Kris Pallett
- Monday, October 22, 2007 12:21 AM CDT
Praying that everything goes well today in the OR and that you will be able to extubate him very soon. I am thankful that the doctors are doing what they need to make him relaxed. That is so important for all of you. Again, keeping your family and the medical team in my prayers.
~Katie
www.caringbridge.org/visit/alexanderlindemann
Katie
- Monday, October 22, 2007 12:02 AM CDT
Anne, will continue to keep Zach in my prayers, especially this afternoon...praying for divine guidance and help for his docs to help Zach through this hurdle..Praying for you for strength too..I can only imagine how you might also like some of those meds for anxiety and worry! HUGS and prayers Anne..
LeeAnne
LeeAnne
NJ - Monday, October 22, 2007 11:43 AM CDT
Dear Anne, Zach and family, I'll be continuing to pray for you all today! Hugs and lots of care
Cindy Cruz <rella19@comcast.net>
- Monday, October 22, 2007 11:34 AM CDT
We are missing Zach in Earth Science. I was glad to see an update from you today. I am praying for your family. Mrs. Becker (Zach's Earth science teacher)
connie Becker
Menomonee falls, WI USA - Monday, October 22, 2007 11:12 AM CDT
Anne,
We will be praying for the doctors to be able to find answers when they go in there and get out quickly, praying for Zach to be comforted and for his recovery and praying for strength for you and the girls!
Patty & Colyn <pattywoods@mac.com>
Hemet, CA USA - Monday, October 22, 2007 10:56 AM CDT
PRaying all goes well for zach today. Thinking of you all the time
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
phoenixville , PA - Monday, October 22, 2007 10:41 AM CDT
Anne, we are praying so hard here in NJ. We love you so much,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Monday, October 22, 2007 9:26 AM CDT
Anne ~
I am still praying for Zach's full recovery.
Love, Krystena
Caden & Carsen http://www2.caringbridge.org/ky/cadencarsen/ <krystena@easiky.com>
Mt Sterling, KY - Monday, October 22, 2007 8:43 AM CDT
Anne,
Even though we've just "met" your family, we wish there was more that we could do to provide support to you. We are so grateful that you have trust in Zach's medical team and they have the experience to deal with the unexpected. We continue to pray for strength for all of you and a restful healing time for Zach.
Mary and Bill, Jason's U of M parents <bfowler40@comcast.net>
oakdale, MN USA - Sunday, October 21, 2007 5:08 PM CDT
Anne and Zach,
Will continue to pray for your day tomorrow. Glad the right doctors were there for you!
Love,
The Kosts
Mary Kost <beadit@wi.rr.com>
Waukesha, WI USA - Sunday, October 21, 2007 4:07 PM CDT
Anne,
I am so sorry that the extubation did not go as planned. Thank goodness all the right people were together at the right time and that they knew what to do. I hope the you and Zach are resting a little now. Sending prayers your way that this week will lend answers and next steps for you all.
Love,
Laura
Albuquerque, NM - Sunday, October 21, 2007 3:57 PM CDT
Oh my Anne...
I'm so sorry that Zach's extubation was so rough, but once again his angel was looking over him and made sure who he needed was there in advance. I can't imagine how it was for you, but am glad it wasn't nearly as hard/long as the first one. God Bless you all and the angel above! Thoughts and Prayers continue...
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, October 21, 2007 3:09 PM CDT
Dearest Anne ,Zach and Family,
Such a hard thing to watch happening,over again, Bless you all and our prayers are with you. Hope Momday goes better.
Love and prayers cousin Lynn and family
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Sunday, October 21, 2007 12:35 AM CDT
HI Anne
I am so sorry that Zach's extubation was such a nightmare. It is so scary to watch things go so wrong and I am glad to hear that he was more responsive to your words after that incident happened, no additional damage was done. I hope and pray Zach is having a restful and stable weekend. I will be praying that when the doctors do that same precedure again, that everything goes as it should for Zach. I hope you are getting some sleep, you need to take care of yourself, I know that is easier said then done. I am praying for peace for you and tons of wisdom for Zach's great doctors.
Love
Ann Marie
Ann Marie Gleason <agleason130@yahoo.com>
Denville, NJ 07834 - Sunday, October 21, 2007 11:29 AM CDT
We too are just wrecked to hear about the difficulties in the extubation. Just when you think you might see a little bit of clearing. I guess the small silver lining in this is that you did have the right people in the room at the time. I know people always say it's bad to ask 'what if?', but sometimes it reflects on how fortunate you are even in more dire circumstances. Jaime, Layla, and I continue our thoughts and prayers for Zach and for you family.
John Fischer <jdfischer0505@hotmail.com>
Avoca, IN US - Sunday, October 21, 2007 8:43 AM CDT
I am so sorry that the extubation did not go well. I hope and pray that everything improves this week. All of you are in our thoughts and prayers.
Kris, Cole, and Zack Vajda <pnkntwins@charter.net>
- Sunday, October 21, 2007 2:08 AM CDT
Hey Zach. I miss you so much but I believe so strongly in you. Just know that I am always here with you. You are such a big role model. I Love you very much and I hope we can hang out again soon.
~ur lil sis Abby
Abby <writercrazy15@yahoo.com>
Waukesha, Wi USA - Saturday, October 20, 2007 9:54 PM CDT
Anne-I can not begin to imagine how tired you are. Thank God that all the people were gathered who needed to be there to take care of Zach. Prayers continue for all of you.
Cindy Bergland <kurtcindyb@aol.com>
Waukesha, WI - Saturday, October 20, 2007 8:35 PM CDT
GOod grief! One step forward and two back sometimes. I dont know how you are still putting one foot in front of the other, but then I know you have no choice. Know that so many of us GET IT, and are praying for you, Zach and your family. We are thinking of you constantly and hoping for soome calm days. It is encouraging that he bounced back after something like this--- if they could "just" get the bleeding under control. ! I'm surprised they extubate there with just the nurse and RT-- Kody has always had an entire team with him for that.
Thinking of you--
Steph
tubetown, OH s - Saturday, October 20, 2007 5:04 PM CDT
Anne, I am so very sorry to hear this news. How very terrible for this to happen and of course so totally unexpected. I am so thankful that the right drs were there... the right people to help Zach. So many times this was true for us as well. We are praying for strength for you Anne, all the time, and I know that part of that comes from who is there to help with Zach when very scary things happen. We are thankful. God bless Anne. Please feel free to call anytime and know that I am here to listen. We are praying and thinking of all of you right now.
Much love and prayer,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Saturday, October 20, 2007 1:48 PM CDT
Anne - Those failed extubations are hard enough when the respiratory function just isn't quite ready, but to face a blood clot and compressions and so one -- I know it was awful to watch. I am thinking about you both and continue to pray for mercy. Hang in there . . .
Kathy <corleyfive@comcast.net>
Signal Mountain, TN - Saturday, October 20, 2007 1:20 PM CDT
Anne, I am so sorry to hear how awful the extubation went, thank goodness the whole team was ready to go into action to help Zach. I will keep positive thoughts and prayers headed your way.
Debbie R. <mmercedesmom@cox.net>
El Cajon, CA - Saturday, October 20, 2007 11:58 AM CDT
Oh Anne,
What a nightmare! I am so thankful though that the right people were once again where God wanted them to be, and that under the circumstances he is doing as well as he is.
Prayers as always, and lots of hugs
Heidi and the Idaho gang
- Saturday, October 20, 2007 10:27 AM CDT
Ann
I so sorry for the Zach and you right now. I am glad he is It won't have any lasting effects. Glad that all those great Docs and nurses were there with you. They are incrediable people. Praying for you and your family right now. Hoping the weekend brings rest for you and some healing for Zach. Know you are in my continued prayer and thoughts every day.
Megan
Megan Reid <dmreid1994@sbcglobal.net>
Wheeling, Il - Saturday, October 20, 2007 9:45 AM CDT
((((ZACH)))) ((((ANNE))))...it sounds like a horrifying and terrifying day. I am so sorry things did not go smoothly this time am praying the next is the charm and things go smmmmoooothhhly! Hang tough, Zach you are one strong kid! We are all thinking of you and praying for you here in the Bye house..Anne..wish I could do soemthing that wouod ease this just a little for you. You are in my thoughts and prayers..
HUGS and PRAYERS,
LeeAnne, Sammi and the Bye family
LeeAnne <allenleeannebye@aol.com>
NJ - Saturday, October 20, 2007 8:56 AM CDT
O my goodness Anne, I am sorry all this took place for Zach.
I pray he rests this weekend and gains some strength back so he can do this again on monday in the OR. I pray the right people are there for him and that it is successful.
You remain so strong despite so many circumstances that most of us would fall apart on. God is truly by your side and holding Zachs hand.
Donna Thorell <iluvdizney2@comcast.net (www.caringbridge.org/ma/thorell_kids)>
- Saturday, October 20, 2007 7:21 AM CDT
Zach, sorry that today was traumatic for you, we are heaping prayers on you and the medical team that you rest this weekend and be ready for the next try. I am sure your family will keep reading stories to you, we will keep them in our thoughts and prayers also. Goodnight young man
The Rivas Faily <ainahern@aol.com>
- Saturday, October 20, 2007 0:49 AM CDT
Well Im glad to hear that from a breathing standpoint he's in good (ish) shape... Im so sorry for what happened though, what a nightmare.
You must be totally exhausted, I wish there was more I could do than just send encouraging words.
I thinkg about you guys constantly, and am happy that while slowly, things are moving int he right direction.
Saw a darth vadar poster the other day and thought of Zach... :)
Keely
www.caringbridge.org/visit/brandonandtyler
Keely
Winnipeg, Canada - Saturday, October 20, 2007 0:14 AM CDT
Anne, So sorry that things were not to be as smooth as everyone wanted, but still must look at the positive and there is still so much positive. Glad to hear Zach is responding to those around him and his lungs and heart are doing well. Sorry to hear that the bleeding continues to be such an issue. Praying for God's hands to guide the ENT, and all to go well-
jayme and January (tpn support) <january11292@yahoo.com>
Walton, Ky - Friday, October 19, 2007 11:42 PM CDT
Anne, I'm so sorry that things didn't go as we all hoped. But remember how strong Zach is and he has his own time line when it comes to these things. He'll be ready soon. I'm thinking about you guys constantly.
Nicole Motley <mrs.motley@gmail.com>
4 West, - Friday, October 19, 2007 11:28 PM CDT
Hey Anne,
I cannot go to bed at night without checking on Zach. When it is good news I rest easy...when things happen like you witnessed today I can't sleep at all. I'm so sorry things didn't go as planned. I cannot imagine how terrified you were at the time, and now how you must be replaying that scene in your mind. I fell so helpless here in Georgia...I wish there was something I could do for you all. Please know that although we are MILES apart, we think about your family everyday!!!!
Keep us posted!!!
Kristi Cole & Family <kristi3333@bellsouth.net>
Atlanta, GA USA - Friday, October 19, 2007 11:27 PM CDT
Oh Anne- I am so sorry things did not go as well as everyone thought they would. My heart breaks for you as I remember how excited you sounded last night when I talked to you. We will keep you in our prayers this weekend. We have to come back to the hospital on Tuesday so I will try and call before then to see if you need anything. Grayson said to let you know that he hopes that you got the kiss he blew you when we stopped by today. Thank you for being an inspiration to me as to how strong we as mothers need to be for our very special children. Stay strong and keep believing in that brave boy of yours!!!!
Love-
Melissa and Jim and Grayson too
Melissa
- Friday, October 19, 2007 10:29 PM CDT
Oh Anne...my heart just fell. Your strength and Zach's is amazing. I pray he can get the rest and healing time he needs this weekend for next week to be successful for him. I wish so much there was something I could say or do to help, but know there isn't, but know the prayers keep flowing at this end. I don't want to bother you next week, but we'll be in town Tuesday so if there is anything you need please let me know and I can bring it to you. If you can think of anything else Zach would like to listen to let me know and I'll try to find it.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Friday, October 19, 2007 10:18 PM CDT
Wonderful news! Way to go Zach!
Thinking of you all and keeping you in our prayers.
Much love,
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Friday, October 19, 2007 3:16 PM CDT
I am so glad to hear things are steadily moving in a positive direction. That is wonderful news. I will be praying for everything to continue going in that direction. Hang in there.
Angie Z.
Angela Zutz <angiern5612@charter.net>
Plover, WI USA - Friday, October 19, 2007 12:28 AM CDT
Dearest Anne Zach and family,
It`s great to hear Zach is taking steps forward,and I`m sure your relieved. Yes I know it`s little steps, but thats great in it`s self,and starting to breath more on he`s own is fantastic. Hopfully you`ll be able to get off the merry-go-round for awhile and get back some sence of normal what ever that is for you and your family.Always in my prayers.
Love cousin Lynn and family.(using new e-mail address)
jamesgreenman@hotmail.com
Lynn Walsh <jamesgreenman@hotmail.com>
Duluth, Mn USA - Friday, October 19, 2007 10:13 AM CDT
Anne, so glad to hear the update and that things are improving. We continue to pray for you and think about you all daily. Tim
Tim Wynne <ugtwynnes@yahoo.com>
Union Grove, WI USA - Friday, October 19, 2007 9:59 AM CDT
Anne, so glad to hear the better news. So wonderful that Zach is breathing on his own so much. We are praying for his strength. It sounds like the ICU staff is really aware and listening. We pray for all the important things. Please feel free to call and chat if you ever want to/need to... just need a break. You are doing an amazing job. Much love and prayer!
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Friday, October 19, 2007 5:18 AM CDT
What fantastic new Zach that things are moving in the right direction , as my little five year would say, awesome and that is so cool. We are still paying that that the medical team be guided to make the very best decsions for you, you are amazing, we continue to pray for you strength and recovery
The Rivas Family <aineahern@aol.com>
Bakersfield, CA US - Thursday, October 18, 2007 10:23 PM CDT
SO glad to hear things are steadily improving! Sending healing vibes and keeping you guys in our thoughts and prayers.
Susan & Karuna
Susan Agrawal
Chicago, IL - Thursday, October 18, 2007 10:12 PM CDT
So glad to hear good news. Continuing to pray.
shelle and hannah <shdmiller@yahoo.com>
- Thursday, October 18, 2007 8:07 PM CDT
HI ANNE, GREAT NEWS , ZACH IS DOING GREAT ,THANK GOD.
MY PRAYERS AND LOVE TO ALL.
FRANCIS
FRANCIS NATOLI <FRANCISNAT@AOL.CPM>
NAPLES, FL USA - Thursday, October 18, 2007 7:02 PM CDT
thank you God and still praying but ever so thankful for all the good steps
donna <me@here.com>
lou, ky usa - Thursday, October 18, 2007 5:12 PM CDT
WAY TO GO ZACHARY RYAN JUHLMANN THE ONE AND ONLY!!!!! Keep up the strong work!! I am so proud of you!!! Love, Hope
Hope Patchak <hmpatchak@yahoo.com>
- Thursday, October 18, 2007 5:10 PM CDT
What strength both you and Zach have shown. You all continue to be in our prayers and I hope that each moment brings improvement.
In prayer,
Katie
www.caringbridge.org/visit/alexanderlindemann
Katie
- Thursday, October 18, 2007 2:45 PM CDT
Hope things are continuing to improve. Every step forward is a blessing.
Glad to see Brittany is coming home to visit. It will be nice to have everyone together. Take care and know you are thought about often.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Thursday, October 18, 2007 7:32 AM CDT
Hi Zach, just thinking about you and hoping that things are going well, you are in our prayers and thoughts, goodnight from California
Th e Rivas Family <aineahern@aol.com>
Bakersfield, CA USA - Thursday, October 18, 2007 0:58 AM CDT
yayyyy zach....i'm coming home tomorrow!!!! i can NOT wait to see you....maybe i'll read to you out of my fashion magazines haha JUST KIDDING
Brittany Elise
Minneapolis, - Thursday, October 18, 2007 0:43 AM CDT
Anne-
So glad to hear of Zach's amazing fighting spirit! SO glad things are improving. We continue to pray for the doctors, nurses and especially you and your family during this time of healing-
Jayme and January (TPN support) <january11292@yahoo.com>
Walton, Ky - Wednesday, October 17, 2007 10:25 PM CDT
Anne
So glad to hear the improvements Zach is making. He's surely one special young man.
We're continuing to send lots of prayers and hugs for all of you too.
Karen Nelson -- TPN Support <KMNelson86@aol.com>
Sanford, NC USA - Wednesday, October 17, 2007 9:28 PM CDT
I've been thinking of you two a lot. I'm glad to hear that Zach continues to improve, keep it up Zach!
Stacey and Sheldon Fleming http://www3.caringbridge.org/ny/sheldonf/
Milton, NY - Wednesday, October 17, 2007 9:12 PM CDT
Yeah Zach! You are an amazing young man and are such an awesome inspiring example to all who know you (know of you). You continue to be in my thoughts and prayers along with your Mom and rest of the Juhlmann clan. You are loved! Keep up the awesome work....
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Wednesday, October 17, 2007 8:18 PM CDT
I have been thinking about Zach and you all day. (And the girls and Sam, too.) Praying unceasingly . . .
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Wednesday, October 17, 2007 7:55 PM CDT
Ann,
Thoughts and prayers continue. So good to see the updates and know of his improvement and healing.
God Bless
rosie and alicia <rosiebowah@YAHOO.COM>
- Wednesday, October 17, 2007 5:02 PM CDT
Anne, thinking of you and praying for you here in NJ. Just wanted to let you know how very much we care for you, love you and are praying for you, Zach and the girls. We are praying that you are also able to get some much-needed sleep! So important right now Anne... Thanks so much for your love and encouragement to us, as always you are thinking of others, at such a difficult time for you. Much love and prayer,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Wednesday, October 17, 2007 3:24 PM CDT
Hi Anne
I am so glad that you had some good things to report about your brave son. I know it is such a slow process and I have to admit it I wish it would go a little faster for Zach. I will continue to pray for Zach and for your entire family.
Love
Ann Marie
Ann Marie Gleason <agleason@yahoo.com>
Denville, NJ 07834 - Wednesday, October 17, 2007 2:38 PM CDT
Hi Anne-
You are all loved!! We think about you often. Thanks for the updates.
Ellyn <ellynheicher@sbcglobal.net>
Waukesha, WI - Wednesday, October 17, 2007 7:27 AM CDT
Happy to read so many positive improvements! We will continue to pray for more progress. You are always on my mind!
With Love and Hope Always,
Sonya and Taylor
Sonya Murray, Mommy of Taylor, www.caringbridge.org/visit/tay-tay <bamagirl01@comcast.net>
Smyrna, TN - Tuesday, October 16, 2007 10:38 PM CDT
Zach,
You are our family's SUPER HERO!!!You are simply amazing!!!
We know you are working so hard everyday to keep getting better. Please know we are praying for you everyday.
Love, The Kaupp Family
Peggy Kaupp <tkaupp@wi.rr.com>
- Tuesday, October 16, 2007 10:12 PM CDT
Hey Anne,
Just thinking of you guys tonight and wanted to check on Zach. I think of you all everyday...praying for Zach's improvement!!! I am always humbled by Zach's fight/perseverance...he gives me strength!!! Keep us posted and please know that not a day goes by that we are not thinking of and praying for you all.
Kristi Cole & Family <kristi3333@bellsouth.net>
Atlanta, GA USA - Tuesday, October 16, 2007 9:36 PM CDT
Dear Anne,
Zach feels your love and belief in his strength, it has been unceasing and so powerful and healing in so many ways. We can feel it many miles away. We all send our love and prayers.
Love, Mary
Mary <mkrupski@yahoo.com>
Essex, VT - Tuesday, October 16, 2007 9:09 PM CDT
your family is in our thoughts and prayers every day. also sending over some virtual support and strength thru all this...
Jackie from TPNSupport
JK <aeonflux4444@yahoo.com>
Brooklyn, ny - Tuesday, October 16, 2007 8:52 PM CDT
Zach, we are still thinking of you and checking in on you. We are at Childrens several times a week and want you to wake up so we can visit. Evan is 15 too! You will continue to be on our minds and in our prayers.
Julie Holloway <jah522@sbcglobal.net>
Brookfield, WI USA - Tuesday, October 16, 2007 8:03 PM CDT
Zach, You are the strongest person I know. You never complain or give up trying your hardest. I know you will open your eyes soon and see all the love around you.
Rene Bjerke <r_marie65@ameritech.net>
- Tuesday, October 16, 2007 2:28 PM CDT
You don't know us, but we found your site from another's and want to let you know that we are thinking about your sweet boy & sending lots of prayers your way! Our God is the Great Physician, and things are in HIS plan.
Sending Healing Hugs your Way!
Love,
Nicole M. Watson
www.caringbridge.org/visit/maddisonwatson
Nicole M. Watson <nicolemwatson@wi.rr.com>
Franklin, WI USA - Tuesday, October 16, 2007 12:28 AM CDT
Hey anne
we are thinking of you guys and praying everyday. He is such a strong boy and has such a loving support system. He is one lucky boy! Pray he continues to make progress
steph
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
phoenixville, PA - Tuesday, October 16, 2007 11:17 AM CDT
It is so good to see he is making some progress.STill praying for you guys everyday. Ann you are such an incrediable mother and inspriation to us all. Thanks for the update.
Megan and Alex
Megan <dmreid1994@sbcglobal.net>
Wheeling, IL - Tuesday, October 16, 2007 10:03 AM CDT
Ever so thankful to see the update, and the good news. Keep on going Zach... we are so proud of you! And You too Anne... you are a great mother...
sending lots of hugs, and continued prayers...
Heidi and the Idaho gang
- Tuesday, October 16, 2007 9:47 AM CDT
Zach, what great news to read that things are turning for you, it is truly wonderful. You have a fantastic family, parents that adore you, sisters that adore you and and extend family as well as many friends that have never met you physically that are routing for you every minute of the day. Keep up the great work and go Zach go, the medical team must be in awe of you, what an amazing young man you are, what stories you will have for them when you will be able to talk once again.
The Rivas Family <aineahern@aol.com>
Bakersfield, ca USA - Tuesday, October 16, 2007 8:49 AM CDT
Anne, I really do believe that Zach hears you, knows you are with him and most definitely knows he is very much loved and cared for! You are the most amazing MOM! We are praying for Zach and praying for you! Please know that you are constantly in our prayers and thoughts.
God bless,
Deb & Scott
www.caringbridge.org/visit/connorscott99
Millards <sdcm@optonline.net>
- Tuesday, October 16, 2007 7:06 AM CDT
Praying for Zach to recover in his own time. Surrounded by such love and care he is certainly in the right place right now and all is being done I'm sure. He's been through so much for a boy his age, but he's a fighter for sure and he will be doing his best to come out of this rough patch. Thinking of you all at this worrying time,
love from Nigel XXX
Nigel Burrell
Ely, Cambs, England - Tuesday, October 16, 2007 4:48 AM CDT
Anne,
Glad to hear of a few, yet small, steps in the right direction today. I'm so glad to read through this guestbook and see all of the support you and Zach have throughout the country. Stay strong, like you have been for years, and our prayers down here in Indiana are with you all!
John Fischer <jdfischer0505@hotmail.com>
Avoca, IN US - Tuesday, October 16, 2007 2:09 AM CDT
Anne,
More small steps in the right direction!!! Praying that things continue to progress for Zach and hope to see you both soon. With love and prayers,
Mimi <mimischwarz@sbcglobal.net>
Cedarburg, WI - Monday, October 15, 2007 11:10 PM CDT
Checking again just in case you posted! Still sounds like you are moving in the right direction. Gosh, Anna had a little trouble with nose bleeds when they extubated and then had her on a cannula. It just dried out her poor little nose so badly. I suppose they will address that with Zach . . . so many things to think about and so many issues that are interconnected! I hate that you are wondering how he feels and if he is scared. That has to be hard to bear. But it also sounds like you know him so well and are working to provide him the things he needs to feel calm and loved. You are doing such a great job, Anne.
Kathy <corleyfive@comcast.net>
Signal Mountain, TN - Monday, October 15, 2007 10:43 PM CDT
Praying that your words of love and encouragement are fully felt by Zach. Please know we continue to uphold all of you in our prayers.
Your friend,
Sh
- Monday, October 15, 2007 10:40 PM CDT
Anne,
I am so happy to hear that things are trending in the right direction. You are in my thoughts and prayers continually.
Laura
Albuquerque, NM - Monday, October 15, 2007 10:37 PM CDT
some how I think Zach knows he is loved!
I think he also realizes he is very special and has an awesome family standing beside him... we are still praying!
Donna Thorell <iluvdizney2@comcast.net (www.caringbridge.org/ma/thorell_kids)>
- Monday, October 15, 2007 10:35 PM CDT
Anne, I continue to think of you and pray for you all several times a day. Zach is such a brave, strong kid. I know he has to know how much he is loved. You're love for him is obvious in each entry you write on this site. Take care and thanks for keeping us updated.
Holly
www.caringbridge.org/mi/mayam
Holmen, WI - Monday, October 15, 2007 10:08 PM CDT
Everytime I check in I hold my breath and say a prayer that things have improved and you've had a moment to take a break for yourself, get a little rest, something to eat and perhaps update th cb site.... I keep praying that Zach is comfortable, recovering and taking more baby steps every day, and that you Anne have the opportunity to smile in the sun and enjoy the warmth of all those who are caring for you now and sending their thoughts and prayers.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Monday, October 15, 2007 9:32 PM CDT
Zach, just thinking about you and sending tons of good wishes and prayers that the baby steps are continuing, keep it up.
The Rivas Faily <aineahern@aol.com>
Bakersfield, CA USA - Monday, October 15, 2007 9:31 PM CDT
Checking in again . . . want you to know I am thinking of you. I am hoping to see a post that says that the ventilator settings are coming down, he is breathing around the tube, that kidney function is looking a little better or at least manageable, and most importantly that you are seeing cycles of more wakefulness. Hoping you have staked out a comfortable corner somewhere to grab a nap, and that you are eating often enough. Hang in there . . .
Love,
Kathy
Kathy Corley <corleyfive@comcast.net>
Signal Mountain, TN - Monday, October 15, 2007 7:58 PM CDT
Just thinking of you all and continuing to send prayers your way.
Laurel, Dave and Jamie <Dalsmith@aol.com>
Medford, NJ USA - Monday, October 15, 2007 6:02 PM CDT
Well if I had a dollar for everytime I checked your site I think we would have enough money to find a cure! Thank you so much Anne for keeping us updated I know just how difficult that can be while you are supervising your child's care in the hospital. We hate to sneak away even for a minute. Elena was in Children's Fox Valley last week one night (she has pneumonia) and we were lucky enough to have Amy. She said that she was one of Sam's nurses so I immediatly knew that we were in the best of care! She said hello and that she has been checking in on Zach. I am so glad to see some improvements. Praise God!
Praying for you always,
Mindy
www.caringbridge.org/visit/elenashope
Mindy Welhouse <mwelhouse3@new.rr.com>
Kimberly, WI - Monday, October 15, 2007 5:51 PM CDT
Baby steps ARE good - and every little one counts BIG time! Keeping you guys in our thoughts and prayers.
Dana and Chase
tpnsupport
Dan Beech <gradstu12@aol.com>
Memphis, TN - Monday, October 15, 2007 3:40 PM CDT
So happy to read about all the "YES" answers! Thinking of all of you and holding you close in prayer.
Love,
Claudia
Claudia Featherstone <cmf@utk.edu>
Knoxville, TN - Monday, October 15, 2007 10:33 AM CDT
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