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Tyler’s Story

On October 29, 1998, at age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood.  
He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends.

After several years in remission, on May 25, 2005 at the age of 12, while living near Pittsburgh, he would face cancer again and endure another 3 1/2 years of chemo.
He finished his chemo treatment in the summer of 2008.  Things had been going well and we had been looking forward to Tyler's Senior year in High School.  We had been getting prepared with school with such things like new supplies, clothes and Senior portraits.  
In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go see an ophthalmologist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test. 
Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye.

With his doctor on vacation, the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis on September 18, 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place on March 3, 2010.

It has been over four years since that day.  Since then, Tyler has been dealing with late effects from his 6 ½ years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease.  He was diagnosed with Pulmonary Fibrosis and Bronchiolitis Abliterands in early 2012 as a result of the radiation treatments.  His condition steadily deteriorated through 2014 and on November 16, 2014 Tyler received new lungs.

After being diagnosed a 3rd time with Leukemia, having a Bone Marrow Transplant  in March 2010 and a Double Lung Transplant on Nov. 16, 2014, Tyler continues to fight this battle.  However, God continues to work in his life today.  For brief synopsis, in his own words, of his struggles this past year, You can watch this video: Tyler's Storyhttp://youtu.be/ejoT_x7Wxj4.

Latest Journal Update

Too Good to be True...

Seems so crazy to be saying this but I am feeling like a million bucks!  You ask, "How crazy is that?"  Well, just a few months ago both Tyler and I had such limited lives and now both of us are doing great.  Everyone I pass ask me, "So how is Tyler doing?"  To which I reply, "Gosh,  I am not sure how he is today, I haven't seen him today." He is enjoying life so much that he is never home.  What a great feeling to know he is not attached to oxygen tanks or anything else weighing him down.  Spending the time with friends, going to concerts, out to eat, and much more.  It is so nice to know he is feeling this good. 

And for me, people stop me at Buehlers and ask me, what is going on with me.  Why do I keep smiling and am looking so different.  Well, I truly feel great and do not have 50 lbs of garbage sitting on my shoulders. 

And now, we look forward to our daughter marrying an awesome guy in 7 weeks.  Life has been busy and we couldn't be happier. 

Thanks so much for all of the prayers and support.  We love you all so very much.

Blessings,

Karen

 



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29 people hearted this

Comentarios

15 Comentarios

Lynn Ozborn
By Lynn Ozborn
What a blessing for both of you!!!
Ken Weiner
By Kenny
My heart is so full. I am the happiest I have been in quite a while. Any person denying a miracle has taken place here is deaf, blind & dumb! Thank you Lord for answering our strongest prayers for these deserving faithful servants.
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1 person hearted this
Joyce Nosker
By Joyce Nosker
Always thankful for such wonderful updates. Those final weeks leading to a daughter's wedding are so exciting, tiring, and sometimes emotional. Enjoy this time in your lives.
Rita Jean Wagar
By rita jean
HOw wonderful, Karen. God does answer prayers!!
Terry Wells
By Terry Wells
Praising God right along with you, my friend!
Love and Peace,
Terry
Amy Harrell
By
I am so thrilled to hear how all of your are doing. God is good and has indeed answered many prayers for you and your family. We continue to pray that your lives continue to be blessed with much good health and happiness. You have an amazing family! God Bless!
Brenda Lucius
By Brenda Lucius
Awesome news Karen!! I am so thankful you all are doing well!!
Cheryl Cox
By Cheryl Parker
Praise God! I am so happy for you and Tyler and Chelsea and Regis and Josh!!! :) What an answer to prayers! God is so good! In His perfect timing... <3
Kris Dillenbeck
By Kris Dillenbeck
Thanks for the GREAT update. I couldn't be happier. God is soooo Good!!!! Continued thoughts and prayers are with all of you.
Debbie Barto
By Debbie and Dave Barto
What WONDERFUL news...God is soooo good!!