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Tyler’s Story

After being diagnosed a 3rd time with leukemia, a bone marrow transplant  in March 2010 and a double lung transplant on Nov. 16, 2014, Tyler continues to fight this battle.  However, God continues to work in his life today.  For Tyler's story, read his background story below. You can also hear and download the song written for Tyler called "Keep the Faith" on the link www.dismantlerepair.net or join his Facebook group..."Support for Tyler". We appreciate all of your love and prayers.

At age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood. 

He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends. 

After several years in remission, on May 25, 2005 at the age of 12 years, while living near Pittsburgh, he would face it again and endure another 3 1/2 years of chemo. 

He finished his chemo treatment in the summer of 2008.  Things have been going well and we have been looking forward to Tyler's Senior year in high school.  We have been getting prepared with school with such things like new school supplies, clothes and Senior portraits. 

In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go to an opthomalogist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test.

Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye. 

With his doctor on vacation the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis in September 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place in March 2010. 

It has  been over four years since that day.  Since then, Tyler has been dealing with late effects from his 6 years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease and was diagnosed with Pulmonary Fibrosis and Bronchiolitis Abliterands.  Tyler received new lungs on November 16, 2014.....read the journal for further details

Latest Journal Update

Happy Thanksgiving Everyone

Happy Thanksgiving everyone. Thanks to Karen organizing a dinner and to those who so generously filled the need, we spent the day with people from around the country who have a loved one in ICU. They all wanted to meet Ty to get a glimpse of hope that their loved one will be up and around like Ty. When you watch someone you love fight for life for so long and so hard while you are helpless, getting a glimpse of what will be for them is so filling, so hopeful, so reassuring.

Ty continues to do very well. He is down to one drainage tube in his chest which may come out this weekend. He is still in a lot of pain but today it was managed well. He and I walked around the 8th floor today six times. We also went down to the fifth floor to eat and spend time with those who’s loved ones are still in ICU. Thank you for all your prayers. Not just for us but for those with whom we have become friends here at CC. An update for you on Lynn. She pasted away yesterday. Pray for her family as they have a difficult Thanksgiving today and for years to come. We have come to know far too many people who have left this life too early.

Be eternally grateful for all you have. And I’m not talking about the material things; although, we should be thankful for them, but the little things in life like that sibling you just had an argument with be fore giving thanks today. There will be a time when they will no longer be with us. Be thankful you can get up and go to the bathroom. Sounds ridiculous but there are many who wish they could.

God bless you all and keep the faith,

Regis

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Comentarios

9 Comentarios

Kathy Pietzcker
By Kathy P.
Tyler,
You truly are an inspiration! You've touched more lives than you'll ever know. And such a blessing!
I'm so glad you are doing so well! Thank you Lord.
God bless you today and always!
Sending much love,
The Pietzckers
Melanie Kettner-Borough
By Melanie Kettner-Borough
What a Thanksgiving! We celebrate Tylers life and the hope he is giving to others. We pray that they will see the one who is our Hope. Blessing as we continue to thank God for this miracle. Our prayers for Lynn's family and others. We are so blessed to have Kyle looking and feeling so well. Xxx
leona hensel
By ,Leona hensel
I am thankful for everything including being able to go to the bathroom. I'm also thankful that I've been able to meet your family through caring bridge. I'm thankful to hear how Tyler's doing. I'm glad to hear you had a good day with everyone. Love to all of you your Illinois prayer team. Please keep in touch with me.
Beverly Olson
By Beverly Olson, Cuyahoga Falls, OH
I am so happy that Tyler is doing so well. I continue to pray for him and for the precious Froats family. I'm sorry to hear about Lynn's passing. I will pray for peace and comfort for her family, as well.
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Sarah Nixdorf
By Sarah Nixdorf
I've been there its hard. Much love.
Sending smiles.
Www.caringbridge.org/ visit/ sarahnixdorf
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cindi falzon
By Your sis, Cindi
I'm so sorry to hear about Lynn. We don't always understand. Please give her family my regards, Tell them I've been there. It is HARD.
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Rita Jean Wagar
By Rta Jean Wagar
Such good news helps me at this difficult time. Ty, we love you!
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Joyce Nosker
By Joyce Nosker
What seems the most mundane activities of daily living become a true blessing when it is realized that in a flash they may become an impossibility.

I'm sorry to know that Lynn passed. Praying for her family.

Praying that each day Tyler will have less pain and have that last chest tube removed.

Karen's dinner sounds so wonderful for those families with loved ones in the ICU. God bless you Karen!

May the Lord continue to bless your family.


www.caringbridge.org/visit/larrynosker
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Dena Sneek
By Dena
Froat family,
that was a good idea to have dinner with friends that couldn't b home for the holidays.Im glad to read that Tyler is doing so good since he had his surgery.I have been following his site for some time now.sending prayers your way tonite.
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