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Tyler’s Story

After being diagnosed a 3rd time with leukemia, and a bone marrow transplant  in March 2010, Tyler continues to fight this battle.  However, God continues to work in his life today.  For Tyler's story, read his background story below. You can also hear and download the song written for Tyler called "Keep the Faith" on the link www.dismantlerepair.net or join his Facebook group..."Support for Tyler". We appreciate all of your love and prayers.

At age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood. 

He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends. 

After several years in remission, on May 25, 2005 at the age of 12 years, while living near Pittsburgh, he would face it again and endure another 3 1/2 years of chemo. 

He finished his chemo treatment in the summer of 2008.  Things have been going well and we have been looking forward to Tyler's Senior year in high school.  We have been getting prepared with school with such things like new school supplies, clothes and Senior portraits. 

In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go to an opthomalogist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test.

Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye. 

With his doctor on vacation the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis in September 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place in March 2010. 

It has  been four years since that day.  Since then, Tyler has been dealing with late effects from his 6 years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease.  He currently has Pulmonary Fibrosis and Bronchiolitis Abliterands .....read the journal for further details.....

Tasks from Tyler’s Planner

Here’s your chance to offer a hand: Sign up for one of the tasks below in Tyler’s planner.

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Latest Journal Update

Waiting and enjoying His Blessings in life.

It was 5,844 days ago yesterday that this wild and crazy journey started for our family. Ty was 6, Chelsea was 7 and Josh was 2. My oh my how they grow. All three of them are so uniquely and wonderfully made. Each with their own special gifts to offer. Each with their own special place in our hearts. I cannot imagine and don’t even want to think about a life without Karen, Chelsea, Tyler and Joshua. I am truly a man blessed beyond measure. Yes, we have our family moments but through it all there is love, faithfulness, commitment, respect and honor. We’ve been through good times, bad times, sickness and health. Through richer times and poorer times but never have we been forsaken. Never have we been hung out to dry. Never have we been abandoned. All because the one member of our family who has never faltered in commitment, respect, honor and faithfulness. The one member of our family who has never forsaken us and never abandoned us, is true. He IS truth. He IS faithful. He IS love. He IS our Lord and Savoir. He IS Yeshua Ha Mashiach or in English - Joshua, the Anointed One. Or in Greek - Jesus Christos. Do you know Him? We do. If you want to know just a few things He’s done for us, you can read the well over 3,000 journal entries on our site or you can do it the easy way - Surrender to Him as your Lord and Savoir and He’ll show you all He’s done through your life.

http://youtu.be/yzqTFNfeDnE  Follow this link to our King, Do you know Him?

Keepin’ the faith,

Regis

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Comentarios

3 Comentarios

leona hensel
By leona hensel
You bet we know Him. We know Yeshua ha Mashiach. We have been praying for Tyler every single day and night and have watched Him do many wonderful things in Tyler's life and watched Him cast mountains into the sea. Even though we have never met Tyler in person he has still made an impact on all our lives. We've also been there with you through the tough times and held you up in prayer through it all. We've cried with you and we rejoice with you. Love and prayers from your Bartlett United Pentecostal Church prayer team. We are praying that Tyler gets a new lung very shortly but we also know that he's an ON TIME GOD as always. Hang in there.
cindi falzon
By Your sis, Cindi
Yes, yes, YES !!!
Melanie Kettner-Borough
By Melanie Kettner-Borough
We know and love Him praying eyes will be opened though your beautiful Faithful family. Sending love with continued prayer xxx