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Tyler’s Story

On October 29, 1998, at age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood.  
He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends.

After several years in remission, on May 25, 2005 at the age of 12, while living near Pittsburgh, he would face cancer again and endure another 3 1/2 years of chemo.
He finished his chemo treatment in the summer of 2008.  Things had been going well and we had been looking forward to Tyler's Senior year in High School.  We had been getting prepared with school with such things like new supplies, clothes and Senior portraits.  
In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go see an ophthalmologist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test. 
Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye.

With his doctor on vacation, the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis on September 18, 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place on March 3, 2010.

It has been over four years since that day.  Since then, Tyler has been dealing with late effects from his 6 ½ years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease.  He was diagnosed with Pulmonary Fibrosis and Bronchiolitis Abliterands in early 2012 as a result of the radiation treatments.  His condition steadily deteriorated through 2014 and on November 16, 2014 Tyler received new lungs.

After being diagnosed a 3rd time with Leukemia, having a Bone Marrow Transplant  in March 2010 and a Double Lung Transplant on Nov. 16, 2014, Tyler continues to fight this battle.  However, God continues to work in his life today.  For brief synopsis, in his own words, of his struggles this past year, You can watch this video: Tyler's Storyhttp://youtu.be/ejoT_x7Wxj4.

Latest Journal Update

Update on Ty

Ty spent last night in the ER.  The meds are causing a lot of pain and swelling.  He has a very hard time sleeping.  After spending the night in the ER he left for church early this morning and was there for both services.  He was scheduled to run the sound board.  I asked him before he left why he was going.  He said he needed to keep his word.  Keeping your word no matter how hard it hurts.  That takes integrity.  Something that is rare these days.  Doing the right thing especially when it costs you something.  A lesson I learned again today.
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6 Comentarios

Beverly Olson
By Beverly Olson
Karen and Regis, Tyler is a reflection of what he has seen demonstrated all his life, through the two of you. God bless you for raising such honorable children. I'm praying for our dear young man every day and will continue to.
leona hensel
By leona hensel
Praying 🙏 that Tyler is doing much better. God will honor his sacrifice for going when he wasn't feeling well and just got out of the hospital. We are praying 🙏 against whatever this is trying to start from the medication that he's had to take. The enemy is just mad because of all the church ⛪ activities he's been involved in since he got his new lungs. He's using it for the Lord and the devil don't like that. Hard to believe its been almost a year since he got his new lungs. Look how far God has brought him since then. He don't start something not to finish 🏁 it. Love ❤ all. Hang in there and we're here if you want 😊 to talk to me. Let God carry you. We're still praying 🙏 for all of you and your extended family 👪. Your Bartlett Illinois UPC prayer 🙏 team
Joyce Nosker
By Joyce Nosker
What a terrific man you have for a son! Tyler does have integrity, faith, and the will to keep up the fight for his health and life.
Praying for the Lord to intercede and help Tyler with the side effects of his medication.
Sandy Daron
By Sandy
Poor guy! I am soo sorry! I pray Ty will be weaned off the meds soon.

Love ya,
C.O.L.E.s Foundation (Caring Openly, Loving Eternally)
Say A Prayer, Send A Smile, Make A Difference
www.colesfoundation.org www.kidsunitetofight.com www.colespages.org
1 person hearted this
Jennifer Green
By Jennifer Green
Continuing to pray for Ty, that the swelling with discipate and that he is able to get some much needed rest.
Jennifer Green
c.o.l.e.'s prayer team
1 person hearted this
Terry Wells
By Terry Wells
I can't even imagine how proud you are of your son! God bless you Tyler! I will continue to keep all of you in my prayers!!
Love and peace,
1 person hearted this