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Tyler’s Story

After being diagnosed a 3rd time with leukemia, and a bone marrow transplant  in March 2010, Tyler continues to fight this battle.  However, God continues to work in his life today.  For Tyler's story, read his background story below. You can also hear and download the song written for Tyler called "Keep the Faith" on the link www.dismantlerepair.net or join his Facebook group..."Support for Tyler". We appreciate all of your love and prayers.

At age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood. 

He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends. 

After several years in remission, on May 25, 2005 at the age of 12 years, while living near Pittsburgh, he would face it again and endure another 3 1/2 years of chemo. 

He finished his chemo treatment in the summer of 2008.  Things have been going well and we have been looking forward to Tyler's Senior year in high school.  We have been getting prepared with school with such things like new school supplies, clothes and Senior portraits. 

In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go to an opthomalogist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test.

Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye. 

With his doctor on vacation the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.

After his last diagnosis in September 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place in March 2010. 

It has  been four years since that day.  Since then, Tyler has been dealing with late effects from his 6 years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease.  He currently has Pulmonary Fibrosis and Bronchiolitis Abliterands .....read the journal for further details.....

Tasks from Tyler’s Planner

Here’s your chance to offer a hand: Sign up for one of the tasks below in Tyler’s planner.

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Latest Journal Update

Home, Sweet Home. There's no place like home.

Ty came home today! He has always had the opportunity to go home whenever he felt comfortable doing so. We’ve arranged to have several O2 tanks at the standby for when he needs the extra boost. It’s been a hard week for all of us. Sleeping in a hospital for a few hours only to get up and put in another day of work. Poor Karen driving back and forth each day. But we are home now. Thanks Ty for the anniversary present.

Today is our 26th anniversary. We never could have imagined 26 years ago that we would be where we are now. The Lord made us a perfect match. No, we’re not perfect but we sure would not want to travel this road with anyone else. We’ve been through almost everything and still we stand united in Christ. That is the only way we can stand. He is the sole reason our marriage, our family has held together these past 16 years. If it were left up to us, we would have been wiped out a long time ago as so, so many have.

Happy anniversary my sweetheart. I love and cherish you.

Keepin’ the faith,

Regis

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Comentarios

1 Comentario

Debbie Barto
By Debbie and Dave Barto
Happy Anniversary!!! Glad to hear Tyler came home today, continued prayers for your family <><