Tyler’s Story

Site created on September 21, 2009


On October 29, 1998, at age 6, while living in San Diego, Tyler was diagnosed with Acute Lymphoblastic Leukemia, a malignant disease (cancer) of the bone marrow and blood.  Acute leukemia is a rapidly progressing disease that results in the accumulation of immature, functionless cells in the marrow and blood.  
He spent the following 2 1/2 years going to the hospital for chemotherapy treatments.  In June 2001, we were so excited to know that his treatment was finished and celebrated with our family and friends.


After several years in remission, on May 25, 2005 at the age of 12, while living near Pittsburgh, he would face cancer again and endure another 3 1/2 years of chemo.
He finished his chemo treatment in the summer of 2008 while living near Akron Ohio. Things had been going well and we had been looking forward to Tyler's Senior year in High School.  We had been getting prepared with school with such things like new supplies, clothes and Senior portraits.  
In September of 2009, Tyler went in for his monthly routine check-up.  During his checkup, his doctor checked his neurological state and asked him to follow her finger where she pointed.  When she pointed up above, the iris of his right eye was not as strong and did not go to the same level as his left.   She suggested we go see an ophthalmologist to see why the iris on Tyler's right eye was lower than his left during a routine neurological test. 
Several days prior, he started feeling tingly sensation on the right side of his face, headaches, nausea, and neck pain.  After talking on the phone with the clinic, it was suggested we go down to have a CT scan and MRI  of Tyler's brain were they found a few lesions.  A 15mm lesion was putting pressure on an optic nerve that controls 4 muscles to the right eye.


With his doctor on vacation, the clinic still felt it was important enough for us to be seen by another doctor.   The next day, after a painful spinal and bone marrow test, we found out the horrible news, the lesions were a result of leukemia in his brain.


After his last diagnosis on September 18, 2009, he immediately started chemotherapy.  It was then determined a bone marrow transplant (BMT) would be necessary.  We were blessed with a perfect match donor, his sister, Chelsea.  The BMT took place on March 3, 2010.


Since then, Tyler has been dealing with late effects from his 6 ½ years of chemotherapy and radiation treatments as well as Chronic Graft vs. Host Disease.  He was diagnosed with Pulmonary Fibrosis and Bronchiolitis Abliterands in early 2012 as a result of the radiation treatments.  His condition steadily deteriorated through 2014 and on November 16, 2014 Tyler received new lungs via bilateral lung transplant.


After being diagnosed a 3rd time with Leukemia, having a Bone Marrow Transplant  in March 2010 and a Double Lung Transplant on Nov. 16, 2014, Tyler continues to fight this battle.  However, God continues to work in his life today.  For brief synopsis, in his own words, of his struggles this past year, You can watch this video: Tyler's Storyhttp://youtu.be/ejoT_x7Wxj4.


Since October of 2016, Tyler had Chronic Rejection of his new lungs and on February 13, 2018, Tyler had a bilateral lung re-transplant.

Newest Update

Journal entry by Regis & Karen Froats








The Lord has always been intensional in our lives. There was a reason He put it on our hearts to uproot our family and move across the country with no prospects of income or otherwise on the other end. We just knew were were to go and so we obeyed. There was a reason we moved to Sharon Township in OH and the Highland School district. (Our first choice was Hudson) Through ways to elaborate to explain in this written message, He moved us to Sharon and NE Ohio to show His works in a community that was about to undergo a series of tragedies and ultimately be near The Cleveland Clinic for Ty’s, unbeknownst to us, future medical conditions. All the details I’ve brushed over in these Devine interventions in our lives and would take hours to detail how God’s hand has guided us through this miraculous journey to bring glory to His Great Name.


I tell you this because a year and a half ago we moved from the Highland community to a small town about 12 miles south called Seville. All this time I’ve been wondering the purpose of why we are here. Yes, every time we move something major happens like Ty’s 2nd bilateral lung transplant. But this time we are not here to get the community’s attention in that way. Today I’ve learned why we not only live in Seville but why we live at our specific address. Our neighbor’s 2 year old daughter Penny has been diagnosed with neuroblastoma. They have a very busy day at the hospital today and should be home this weekend. We’ll pay them a visit when they get settled back in and offer whatever we have to them.


I tell you this so that I can ask you to please pray for little Penny and her family as you have done so many times for ours. Please know that your prayers make a difference. I know. I’ve seen it first hand.


Keepin the faith,


Regis

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