×

CaringBridge Is Funded by People Like You

Make a donation to CaringBridge

Honor Katie with a tax-deductible contribution to CaringBridge today.

Click here to make your donation.

Katie’s Story

Prayers are being answered! Above all...continue to pray!Catherine (Katie) Hawley is a happy, outgoing, athletic and very spiritual 9 year old girl. She has always been able to comfortably walk into a room of strangers and ask the first person she sees if they would like to play. At a very young age she led our family in prayer at the dinner table.

At age 4 she started playing AYSO soccer with me (her dad) coaching her. Coaching my daughters was one of the most fulfilling experiences I have had as a father. Katie excelled, so at age 6 we decided to enroll her in a competitive club soccer program with the Southern California Blues.

In Jan/Feb of 09 during the Blues run for the California State Championship, we noticed a slight difference in her energy level but dismissed it as her just needing a break for a few weeks. During that time I also noticed her struggling to keep her feet under her. She appeared to labor to get up to speed and she seemed to have lost some of her quickness. Again, I dismissed it due to her recent growth spurt.

In the spring of 09 her club team took a much needed 2+ month break after they lost in the GU9 State Championship game. In this "off-season" period for the Blues, she continued to play soccer for the Ladera Ranch AYSO GU10 Plus team. That team won the championship for south Orange County and the end of season Area Tournament. At the same time, Katie worked out at an indoor conditioning facility.

During the early summer months her club team played in several soccer tournaments. Before the first Surf Cup tournament game on Saturday morning July 25th Katie threw up. About 2 days prior, Katie had complained about some minor but persistent abdomen pain. We thought she might have the flu, but she felt better after throwing up so we let her play. She was just not herself. She sat out during the 2nd game Saturday afternoon only to wake up on Sunday morning feeling better and wanting to play again.

Then the following Monday, July 27th, I decided to take her in to the local Urgent Care facility to get examined. Thank God for the perceptive Physicians Assistant that saw Katie named Michelle B. She just didn't think things seemed right and ordered an abdominal x-ray and ultrasound. The ultrasound showed a "mass" near Katie's stomach area so a CT scan was ordered for the next day. The result was further confirmation of the existence of the tumor.

This was the most shocking and devastating news MaryKay and I had ever heard. We cried during and in between making the calls to our family to tell them. At this point we did not know if the tumor was cancerous.

Another parent on Katie's soccer team had connections into the medical community.  That parent's name is Curt Wasserman and I will forever be in debt to him. Through his actions, and those of our new friend Len Shulman, we were immediately connected to Dr. Cairo in NY. Dr. Cairo is a world renowned leader in Oncology. He was on a speaking engagement in
Texas but offered his contact information to us, perfect strangers to him, so he could assist. He guided us to Dr. Marcio at CHLA, who is also a widely recognized "world expert" in Pediatric solid tumors. Dr. Marcio agreed to see Katie the next day, Friday, July 31st. That day, we were introduced to Dr. Stein, the leading pediatric surgeon at CHLA.

On August 5th, 2009, she underwent surgery to remove the tumor that was causing her abdominal pain. During surgery, it was determined that the tumor was malignant. Katie was diagnosed with Stage 3, High Risk, GanglioNeuroblastoma, nodular cancer. The egg-sized tumor growing from her right adrenal gland and the adrenal gland itself were removed as were 2 of Katie's lymph nodes. Cancer remained in her abdomen and she began chemotherapy treatments at CHLA on August 11th under the care of Dr. Araz Marachelian who we have the utmost confidence in.

In all, Katie has had 4 surgeries, 6 cycles of Chemotherapy, Stem Cell Chemotherapy, 12 rounds of Radiation, 5 rounds of ch14.18 and high doses of Accutane. She was declared N.E.D. (no evidence of disease) in December of 2009 and remains that way today.

Life has dealt us this unexpected and incredible challenge.  With your prayers, and God's Good Grace, we will continue to overcome this.  Please keep Katie in your prayers.

Latest Journal Update

reminder to pray

I am heading to work in 6 minutes, so this will be brief.. how many of you thought to yourselves 'good' - not a long winded post. haha.
 
Anyway, quick prayer. Katie had a pretty bad bloody nose yesterday morning, lasted about 45 minutes. Thank the LORD for her older sister Melanie who brought her home from school after running around campus for 15 minutes to try to find an open restroom, they were ALL locked! She had another one last night for about 15 minutes and she has one right now. For the most part she tries to remain calm, but I know it stresses her out.
 
Our doctor wants Katie back in the hospital May 3rd thru the 8th to start on round two of the 1418. Katie is adamant, that she is NOT doing this. Bob and I will sit down today to discuss this with her. I am leaning on Katie's side.
 
OK. that's all. Please pray!!! 
 
She is holding her nose right now!!
MK
 
To answer Debbie's question below. I would like to get back to New York and on their vaccine trial. It is less toxic, less time consuming (so Katie won't miss so much school and life), less painful and less frequent. Bob is not on board with us... some decisions to be made soon.
 
Let the morning bring me word of your unfailing love,
for I have put my trust in you.
Show me the way I should go,
for to you I entrust my life. 

heart
15 people hearted this

Comments

3 Comments

Debbie Spriggs
By Debbie Spriggs
What are the other options if you decided not to pursue 1418? What option gives sweet Katie the best chance for a sustained remission?
I pray out loud in church for Katie and another child battling a cancer . I will continue. I am with you. Xo
heart
2 people hearted this
Chelsea Murphy
By
18
Apr
Luke 13:12
But when Jesus saw her, He called her to Him and said to her, “Woman, you are loosed from your infirmity.”

When you have a need, do you pray or do you plead? Do you begin your prayers with words like, “Please God, please! God, I beg You to have mercy!”

Prayers that plead and beg imply that your heavenly Father is not willing to do it. Yet, He is far more gracious and willing to give to you than you are willing to ask, think or imagine. (Ephesians 3:20) He desires above all things that you prosper and be in health, even as your soul prospers. (3 John 1:2)

In fact, long before you have a need, God has already met that need. Long before you knew you needed a Savior, He sent His Son to be your Savior. This is your God! He is a good God. So when you beg Him for something, you are actually saying that He is reluctant to give and needs to be persuaded strongly before He will move. Yet, He is not like that.

Jesus knew the heart of the Father. When He saw the woman bound with a spirit of infirmity, He did not pray, “Oh Father! She has been suffering for 18 long years! I beseech You, Father, have mercy on her. Please, please heal her!” No, when Jesus saw her, He immediately proclaimed, “Woman, you are loosed from your infirmity,” because He knew the heart of the Father. He knew that the Father wanted her delivered from her crippling condition.

At the end of a church service, I don’t stand and pray, “Oh God, please bless Your people. Oh God, do keep them. Oh God, be ever so gracious to them!” Instead, I proclaim, “The Lord bless you. The Lord keep you. The Lord make His face shine on you and be gracious to you!”

Beloved, when you pray, proclaim your healing, protection and provision because your Father’s heart overflows with love for you. And when you declare it, He sanctions it. When you declare it, He establishes it!
heart
2 people hearted this
Sandy Barker
By Sandy Barker
Sending love, prayers, and (((HUGS))) your way!!
XOXO,
Sandy
heart
1 person hearted this