History

Friday, April 3, 2009 6:42 PM CDT

It has been over a year since we have updated this page. So much has changed, but most things remain the same. Teresa relapsed back in October 2008. We recently stepped up our treatment to include Irenotecan and Temador. This is the combo that worked so well before. It has now been 5 years since her diagnosis. I am happy to say that she looks great. She contnues to do well in school and will graduate from the sixth grade in June. This summer, she wants to visit Washington DC, and like so many other little girls, she wants to meet Michelle Obama, Sasha and Malia. Oh yea, and if the president's around, she might even say hello to him too.

I believe and pray that she is responding well to treatment. I am really looking forward to the day when neuroblastoma is behind her and all of our children.

I know that this is just a quick note after such a long time, but Rhonda is the novelist in this family, so I'll let her fill in all the gaps I've left out. In the meantime, may God Bless all of you and all of our children.

John

Monday, March 3, 2008 11:10 AM CST

Hello everyone,

First, I would like to thank all of you for your continued prayers and well wishes for Teresa. On December 31, 2007, a biopsy of her bone marrow was N.E.D. This was the first clear bone marrow result in nearly 20 months. Fortunately, cancer has not been detected in any other part of her body. So needless to say, we all (doctors, nurses, friends and family) were very pleased. Teresa has attended school regularly since last September and has felt just fine for nearly 7 months now. She is currently receiving out patient treatment, and has really thrived at being able to stay home and not spend so many days and weeks at the hospital with the constant beeping of the instruments, checkups, etc. Please continue to pray. We believe that the combination of good medical care, lots of love and attention, and God’s mercy and grace, have sustained us through this storm and will eventually brings us through it completely.

The Montgomery’s

Friday, August 31, 2007 7:50 PM CDT

Hello.

I know it has been a long time since we last updated, but there hasn't been a lot of changes. That, in a way, is really good news. Today, Teresa celebrates her three year bone marrow transplant anniversary. Jasmine (big sister) and donor helped her to celebrate. They celebrated by enjoying a full day of school. This day also marks our 16th wedding anniversary. To tell the truth, we are just happy that everyone is feeling well. Teresa is on a regimen that consists of Temador (5 days a month) and accutane (7 days a month). So far, so good. She is a 5th grader right now and looks forward to a good year. This is simply a quick up-date to let friends and family know that Teresa and family are doing great. Please pray for healing for all of the children fighting disease, and also for their families.

God Bless all of you for support and prayers.

The Montgomery's

Monday, May 7, 2007 12:20 AM CDT

Hello Everyone,

Teresa was discharged from the hospital on Monday, April 9th. Just in time for Jasmine’s birthday on the 10th.

Jasmine made herself some birthday brownies and I cooked her some seafood. I need two doses of Benadryl to get through the night. My throat was so scratchy that night that I thought my windpipe was closing. Fortunately, I survived and will have to give up seafood.

The chemo from early March kept Teresa’s counts down for about 8 weeks. While we waited to do chemo, we squeezed in a dentist appointment for Teresa for a cleaning.

Jasmine participated in the district's Solo and Ensemble Festival and earned a Superior Rating for her Violin Solo.

Teresa began chemo on Monday, April 30th. Teresa handled the treatments well throughout the week. On Saturday, the nausea and the diarrhea started. She refused to take any medicine for either condition and rapidly declined.

We checked into the hospital for hydration Sunday afternoon. She will get some blood today and start TPN.

Teresa had a surprise guest today. Miss America – Lauren Nelson came by with the hospital entourage. Teresa took a picture with Miss America while wearing Miss America’s crown. When asked if Teresa wanted Miss America to sign an autograph card for Jasmine, Teresa said NO. She wants Jasmine to be jealous.

Overall, Teresa is doing much better than the last time she got chemo. She listened to her body and we listened to her.

I will add the picture with Miss America as soon as I get home and scan it into the computer.

Thanks for checking up on us.

Rhonda

Friday, March 30, 2007 11:18 AM CDT

Hello Texas

Hello Everyone,

If you read the last entry, you are aware of my desire to return to Texas. However, Teresa’s medical drama continued on our home soil.

We arrived at Addison Airport around 8:30 pm on Monday, March 19th. We went home and slept. John had called Teresa’s Dallas doctors earlier in the day and told them of her need for nutritional support. I decided we needed one night at home.

Tuesday morning, Teresa looked lethargic. She had an appointment scheduled for 3 pm but I called the office to tell them she needed to come earlier. The response was to come NOW. It took me an hour to get her there; but once we arrived, she was quickly escorted to an in-patient bed by the doctor.

Teresa’s electrolyte counts were so off that it took until Friday before everything was in range. Teresa finally started eating Saturday and she was discharged on Monday.

Her blood counts started dropping on Saturday. Teresa was discharged on Monday. I was hopeful that she would continue to eat when we went home. You guessed right, she didn’t. Wednesday we went back to the office for blood work. The doctors authorized home administration of TPN. A nurse came out and showed me what to do and she got TPN overnight.

Thursday morning she woke with a fever. By the time I got her to the hospital, it was 102.8. The nurses immediately drew blood cultures, gave a fever reducer, started fluids, and gave a broad spectrum antibiotic. Thus far, she has not had another fever but her culture showed gram negative bacilli. We are still waiting to find out which bug in this family is the culprit. The doctor warned me that this nice family of bacteria may require 10 to 14 days of treatment.

So thus far, we have been away from home almost three weeks and we are looking at potentially 2 more. Jasmine’s 13th birthday is April 10th. Hopefully, we will be home before then.

If the infection and malnutrition issues had to be addressed, I glad we are in Texas versus NYC.

Hopefully, the next entry will be filled with funny anecdotes from Teresa and the happenings of everyday life.

By the way, I’m starting a petition to remove March from the calendar. Teresa was diagnosed in March of 2004, relapse was confirmed in March of 2006, the progression of the disease was documented in March 2007, and she is now fighting a potentially serious infection and malnutrition in March 2007.
Thanks for checking on us. Please continue to pray for us and for others in our society of childhood cancer.

Rhonda

Tuesday, March 20, 2007 5:38 PM CDT

Bye, Bye New York

Hello Everyone,

As I write this, Teresa and I are flying home courtesy of Corporate Angel Network. I am not allowed to mention the name of the company that is giving us a ride but thus far the trip has been the most relaxing experience since our trip to the Natural History Museum on Saturday, March 10th.

Let me tell how last week went.

On Monday March 12, 2007, I took Teresa in to begin the next round of Beta-Glucan with 3F8s. Instead of doing the 3F8s, Teresa starts chemo because the scans done the previous week show that the disease slightly progressed since January.

On Tuesday, March 13th, I go to the hospital cafeteria to get Teresa something to drink. While I am gone, construction workers hit a pipe a floor above where Teresa’s treatment occurs and engineering turns off the elevators. The hospital keeps the stairs locked so I have to search for an alternate way to get back to Teresa.

Wednesday, March 14th, Teresa throws up one of her medicines and needs a change of clothes. Of course, I did not bring any extra so I have to go back to RMD House to get a change of clothes while Teresa hangs out in a hospital gown.

Thursday, March 15th, Teresa again throws up one of her medicines which cause us to stay at the hospital longer than intended.

Friday, March 16th, Snow falls in New York City. Cabs are hard to come by, it is too cold to walk, and the RMD shuttle takes at least an hour to arrive.

Teresa also went back to the RMD House each evening with IV fluids.

On Friday, Teresa confessed that she is choosing not to eat because she felt that eating would feed her cancer. The nurse practitioner talked with her in depth and assured Teresa that eating was in her best interest.

The clinic staff did try to help us get through this tough week. Every time I would try to discuss treatment options I would start crying. The other families dealing with Neuroblastoma tried to be supportive but whenever I tried to discuss our situation I felt overwhelmed. By Friday, I just wanted to be home.
A new approach in treating Neuroblastoma is to treat it as a chronic disease just like hypertension or diabetes. These diseases are not cured just managed. Just as one can keep their blood pressure within normal limits with various meds, we hope to keep the disease from growing any further with low dose chemo. I am beginning to favor this option over aggressive treatment which may do more harm than the disease. Right now, I want to stay home at least until the end of the school year.

This morning, we go in to get a Teresa’s final blood count before leaving. We arrive around 8 am. It is 10:30 before we see the Nurse Practitioner, who orders a farewell dose of nausea meds and a bolus of fluids. While Teresa was being examined by the Nurse Practitioner, she took out pictures of John and Jasmine and looked at them with such a longing. You guessed it, I started crying again.

While Teresa received fluids, I rushed to Fed-Ex to ship our final suitcase home. When Corporate Angel confirmed our flight, I learned the flight stipulations.
• Business casual dress – i.e. Go buy slacks and flats, put Timberlands in suitcase
• Luggage limited to small bag and one carry-on per passenger – i.e. Ship your luggage home via Fed-Ex - in three separate trips to Fed-Ex (thanks to donation of family member’s Fed-Ex acct number) Hopefully, we will see our luggage again by Friday.

All of the extra work to get on Corporate Angel was definitely worth it. We have leather captain’s chairs, fresh food and a relaxing environment. A private plane is the best way to fly. Teresa should have asked “Make a Wish” for a jet instead of the Disney trip we did in 2005.

We are getting closer to Texas. I can feel my mood improving the further we get away from New York.

We will see the Texas doctors tomorrow. Teresa may have radiation to the area of the new disease in a couple of weeks.

The last dramatic incident I have for you is about my fear of arrest from the Collin County Sheriff’s Department.

One of the days while I was away I received a jury summons. John told me that I had to appear for jury duty on April 3rd. He failed to mention that I was to complete the jury questionnaire within 10 days. I had completely forgotten about the summons until I found it in one of the three stacks of mail. Upon reading, I see the ten day time limit. Do I know when my ten days are up? Nope. I can’t find a postmark on the envelope, so I have no idea when the summons arrived. According to the news media, people skip jury duty all of the time. I, of course, would be the one arrested for not showing up or completing the questionnaire. Upon inspection, I notice an email for the jury clerks. I email my sob story and attempt to complete the questionnaire online. My pop-up blocker blocks the questionnaire twice. I wait 20 minutes then use John’s computer which does not have a pop-up blocker. At 10:11 pm, I receive an email excusing me from duty. I plan to print out the excuse and carry it with me for a couple of years.

I have more moments to share but you will just have to wait.

Through all of the craziness I described, God brought us through and brought us home. In the middle of the last week’s nights, I would wake up and the only way peace returned was for the Holy Spirit to minister to me with songs of old such as “Blessed Assurance”, “What A Friend We Have in Jesus”, and current ones like Donald Lawrence’s “I Speak Life” and Tramaine Hawkins’s “When You Pray”

Tramaine sings: “When you pray, everything will be okay. Just have Faith when you pray. When you call Him, He will answer your prayer in despair He will be right there. Just have Faith when you pray.

God has sustained us throughout all of Teresa’s treatments and we know He will continue. When Teresa asked if she was going to die, I told her no. But aren’t we each getting closer to dying each day we live. Fortunately, God does not allow us to set up a convenient date for our last day. Every night when we lay our heads down we have a 50-50 chance of waking up. There is absolutely nothing we can do to make ourselves wake up if God does not authorize it. So please do not fret over our situation. We pray that we all have a long happy life ahead but everyone reading this should realize that one needs to make the best of each day he/she is given.

Thanks for checking up on us.

Rhonda

Thursday, March 15, 2007 7:43 AM CDT

Hello Everyone,

We arrived in New York, Wednesday March 7th. Teresa had her MIBG scan and bone marrow biopsies on Friday the 9th. Saturday the 10th, we visited the American Museum of Natural History. Sunday morning Teresa started coughing up phlegm. She slept most of the day in bed on Sunday.

On Monday, I took her to clinic early in hopes of getting her hydrated before treatment started. In Texas, I could call and say that Teresa is dehydrated and that we are coming in. The nurses would have fluids waiting for us when we walked in the door.

Since I don’t fully understand the appointment system at Sloan, I just showed up. I figured that when we rolled through the door that she would at least be able to begin hydration until the doctors or NP could see her. Instead I was told we have to wait.

I felt so helpless that I could not even demand that she be given attention. I stood in the hall and cried. Fortunately, one of the research nurses saw me and we got to see someone quickly.

When the receptionist came to get us I expected a quick exam for Teresa and fluids which would get the ball rolling. I walk in the room and Dr. Modak asks what is going on. I tell of her failure to eat or drink since Saturday afternoon and I attribute it to a virus or something she might have been exposed to while at the museum.

The next words from Dr. Modak caused the flood gates to reopen. He said, “The MIBG does not look good. The disease has progressed.”

He then began to go over the treatment options as if I could make a decision in 5 minutes. I called John and let them talk. We decided to start Irinotecan and Temodar.

We should finish chemo on Friday and we hope to get a Corporate Angel Flight out on Monday.

Teresa is in her usual chemo routine which includes not eating or drinking. She has been coming back to the RMD House everyday with iv fluids. I hope we can continue the fluids through the weekend.

John and I must now decide between aggressive treatments which may do nothing or something less aggressive which would enable us to stay in Texas. The aggressive options would require a stem cell rescue. We never collected any stem cells because she had marrow disease at diagnosis and at relapse. We did not want to give her diseased marrow back so she had an allogenic transplant from her sister at the end of induction. The doctors here appear reluctant to again use her sister’s marrow for rescue.

After multiple cycles of chemo, the marrow is still diseased. We question the efficacy of taking out diseased stem cells, followed by extreme treatment which would require the marrow to be rescued by the diseased cells.

Well, that about sums up our time here in the Big Apple.

Again, we must acknowledge that we have to absolutely Trust God regardless of what man has to say.

Please continue to pray for us.

Rhonda

Tuesday, February 20, 2007 2:09 PM CST

Hello Everyone,

Teresa has completed her first cycle of Beta-Glucan/3F8. One down, three to go.

The first treatment week started with Teresa waking up at 6:30 to begin to drink the Beta-Glucan. Everyday Teresa would figure out how to sleep a little later. Monday and Tuesday, we arrived at clinic about 8:45. Wednesday, we got there around 9:30 and by Friday of the first week we were arriving around 11:00.

The second week the nurse kindly placed us on the afternoon rotation. We enjoyed sleeping in but we usually did not leave the hospital until dark.

Teresa tolerated the treatments well. She usually only had pain after the infusion was finished. Her evenings at home were usually pain free.

The first week in New York, Teresa and I did not do anything exciting. She did however figure out a way for me to spend $40 on taxis going to the Disney Store on Wednesday and FAO Schwartz on Saturday.

On Sunday, John’s aunt and cousin came to visit. I had never met them but they immediately made me feel like I’ve known them for years.

On Monday, February 12th, a worker at the RMD house noticed Teresa carrying her stuffed dog that I bought at FAO Schwartz. The worker then told me that he was signing Teresa up to meet the dogs at the Westminster Dog Show. The next day I find out that Teresa would go out on the floor of the Dog Show. I thought the person meant that Teresa would get to pet some of the dogs in-between events.

It turns out that Teresa did get to pet some dogs at the show. We spent time in the Green Room with “Therapy Dogs” from the “Angel on a Leash” program.

It turns out that we went out onto the floor of Madison Square Garden. We waved to 20,000 people and saw Glenn Close up close and personal. We almost made the national telecast but were not in the camera angle.

We had a great time and met some very nice people.

Thursday, a Texas based law firm came by to host a carnival. Teresa got both cheeks painted, ate the icing off of her cupcake, and received a goody bag.

When we finally made it back to Texas Saturday night, Teresa ran into John’s arms. She and Jasmine stayed up late enjoying each other.

Well, that’s all for now.

Thanks for praying and checking up on us.

Rhonda

Monday, February 5, 2007 8:19 PM CST

Hello Everyone,

Teresa was evaluated at Sloan Kettering the week of January 22nd. After a CT, MIBG, and bone marrow samples, we received the results we expected. Neuroblastoma was still present.

Because she is a relapsed patient, we signed her up for the Beta-glucan/3F8 study.
She began the Beta-glucan on Wednesday, January 31st and had her first injection of 3F8s on Monday, February 5th. We spent more time waiting for the infusion than she actually spent in the treatment area. Teresa surprisingly did not have much pain. We hope that this situation continues.

While waiting for the treatment to start, music therapy came by, the doctor came by, and we met with the Nurse Practitioner. Teresa also had time for a little educational instruction. Music therapy, the doctor, the Nurse Practitioner, and the administering nurse all wanted to warn me about the side effects and Teresa possible reaction to the pain. I wanted to scream “STOP TALKINGAND JUST GIVE HER THE 3F8s AND GET IT OVER WITH.

We arrived at 9 and Teresa did not receive the 3F8s until after 1. I was told that Mondays are horrible. The worst part of the day was the waiting. When they were finally ready to start, I started to get sick. My anxiety went start to my gut and bubbled over. I’m finally feeling better after my dinner of crackers and Sprite. Teresa is no worse for the wear. She ate Mac and cheese, green beans, and chicken nuggets followed with a fruit roll-up and Doritos.

I hope that the remaining 9 days of treatment are without incident as today appears to have been.

When we were here last, we were able to catch “Beauty and the Beast” compliments of a donation to Ronald McDonald House. Hopefully, we will do something fun while we are here this time as well

That’s all for now,

Rhonda

Thursday, January 18, 2007 5:35 PM CST

Hello Everyone,

Sorry for the lack of updates. But how many ways can I say that Teresa had chemo followed by fever, neutropenia, and more days in the hospital.

In November, we made the decision to start the conditioning chemo for the 3F8 antibody trial at Sloan Kettering. Since relapse she had at that time endured 7 rounds of various chemos and Neuroblastoma was still hanging around. We finally accepted the fact that her disease was showing resistance to chemo.

We are scheduled for the consultation scans Monday, January 22nd through Wednesday, January 24th.

I’m all packed and ready to go. We just need the Texas weather to behave.

Well that’s all for now. I’ll try to update more frequently in the future.

Thursday, November 2, 2006 6:44 PM CST

First of all, let us apologize for not posting for the last couple of months. But as they say, no news is good news. In our case, no news simply means that our situation has not changed much. Teresa's bone marrow biopsy continues to show neuroblastoma. However, recent CT's, MRI's and bone scans are all clear and that is good news. In addition, her VMA and HVA levels are both normal, which is excellent news. Our oncologists have told us time and time again that as long as neuroblastoma is in the bone marrow, the amount of disease is irrelevant, since only a few spots can be observed. But we do take comfort in knowing that there are no measurable tumors present. Also, as parents, we can tell when our children are feeling healthier. Trust us, Teresa is feeling very healthy these days, much better than she was when we realized that she had relapsed, and we are very thankful for this. Please continue to pray for Teresa and all of the other children and adults who are fighting cancer. Prayer Works!

God Bless,

John & Rhonda

Monday, August 14, 2006 8:34 AM CDT

Hello Everyone,

Since I last updated, Teresa went to the American Cancer Society’s “Camp Discovery”. She had a good time but she also had a few moments of home-sickness. She was so sad that the cabin counselor called so that she could talk to us. We convinced her to stay and told her to “Have Fun!”

When she returned from camp she had a CT scan, bone scan, MRI and bone marrow biopsy. We had also done a random catecholamine urine before camp. The catecholamine test is what started us on this relapse road back in March came back within normal limits. The CT, bone scan, and MRI were all clear. The marrow came back stating that there were premature cells present exhibiting a pattern which often indicates Neuroblastoma. But the pathologist did not see active Neuroblastoma. So we did a round of Ifosamide and Etoposide. Teresa did not have fevers during the day 10 to 14 counts drop. She has been very talkative and silly.

Teresa looks happy and healthy now. We will do another urine today and probably do another biopsy in one to two weeks. We hope for the next biopsy to be the last biopsy.

Please continue to pray for us and all of the others who have walked through similar circumstances.

Rhonda

Saturday, July 1, 2006 9:20 AM CDT

Hello All,

Since Teresa’s diagnosed relapse in March of this year, she has had two cycles of Topotecan/Cytoxan followed by two cycles of ICE. Her urine catecholamine levels have continued to get closer to normal after each cycle.

The doctors did a repeat bone marrow biopsy before the latest cycle of ICE. The cancer is still present. They refuse to give us a percentage involvement but we feel that we are heading in the right direction.

We plan to do another biopsy and a full series of scans the week of July 24th.

We did an abdominal series at diagnosis and a MRI in May with all results showing NO Evidence of Disease. It appears that the disease is localized in the marrow.

Teresa handled the second cycle of ICE much better than the first. We are hoping that that means that she will get a complete response and our chemo days will be over.

The plan is to start Oxalplatin in July if disease is still present after the scans and biopsy. If clear, we will start Accutane again

That’s all for now.

Thanks for checking up on us.

Rhonda

Tuesday, May 23, 2006 6:16 PM CDT

Hello everyone.

Today, Teresa is beginning her 3rd round of treatment since her relapse in March. She appears to be doing well and has handled the first two rounds with few complications. The topetecan seems to be having a positive effect. We know that this treatment protocol is more pallitive than curative, but our faith and hope remain strong. We will have a better idea of how she is responding and where we go from here in a couple of weeks. At that time, an update will be provided. Continue to lift Teresa up in prayer, along with all of our children who are dealing with sickness.

Your prayers and support help to sustain us. Thank you.

John Montgomery

Tuesday, May 23, 2006 6:04 PM CDT

Hello everyone.

Today, Teresa is beginning her 3rd round of treatment since her relapse this passed March. She appears to be doing well and has handled the first two rounds with few complications. The topetecan seems to be having a positive effect. We know that this treatment protocol is more pallitive than curative, but our faith and hope remain strong. We will have a better idea of how she is responding and where we go from here in a couple of weeks. At that time, an update will be provided. Continue to lift Teresa up in prayer, along with all of our children who are dealing with sickness.

Your prayers and support help to sustain us. Thank you.

John Montgomery

Monday, March 27, 2006 5:50 PM CST

Hello

It is with a heavy heart that I must inform you all that Teresa has relapsed. According to our oncologist, a small amount of cancer was found in her marrow. This was discovered after we noticed higher than normal levels of catacholamines in her urine. A CT of her chest and abdomen, however were clear and she appears to be asymptomatic at this time. The plan is to start chemotherapy to remove the cancer from her marrow. We remain resolved that her healing will be earthly. We take comfort that there is no evidence that her relapse is widespread. Our last scans, prior to this month, were in January, and she was perfectly clear. We had not tested her marrow since July 2004, 1 month prior to her BMT, so we are unsure how long this small amount has been hanging around. Please continue to keep Teresa in your prayers. We will post as our news changes.

Thanks,

John

Sunday, January 22, 2006 2:25 PM CST

CLEAR SCANS!!!!!!!!!

This month we celebrate one year of technically NO EVIDENCE OF DISEASE.

On New Year’s Eve, John and I testified about how God has healed Teresa and sustained us all before, during, and after her treatment. We are extremely glad that Teresa is out of treatment. But there are so many kids who have relapsed after having NED status. To me one kid relapsing or newly diagnosed is one too many. We have learned to not take things for granted.

On Teresa’s previous MRI exams, mucosal disease was always indicated and our oncologists said it was just an after effect of the radiation. On the last MRI it said that the mucosal disease had greatly decreased.

Teresa and Jasmine have both maintained perfect attendance thus far and they both made all A’s on their most recent report cards.

We know that Teresa has eternal Healing. We pray that the Healing continues to manifest itself on Earth until Teresa is a great-grandmother.
John and I know that God is truly in control. I often wish that the lesson of God’s sovereignty could have been different but as His word says: All things work together for good for them who are called according to His purpose.

Some of the good things that were manifested included: Spending more time with my parents, people reached out to us, John and I had to let others into our little bubble, and mostly, God was and continues to be Glorified.

Please continue to pray for us as well as anyone who may be battling illness.

Rhonda

Thursday, December 8, 2005 10:09 PM CST

Teresa had surgery to remove the mediport on November 23. The procedure was over in about 30 minutes, and she recovered quickly. In fact, she was running and playing Thanksgiving Day. It has been two weeks since the surgery, but Rhonda still refuses to allow Teresa to take her much anticipated bubble bath (for fear of an infection). I am pleased to report that Teresa is doing very well. She continues to excel in school, as does her sister, Jasmine. As previously noted, Teresa’s goal for this school year is to have perfect attendance. So far, so good. The girls are very excited about Christmas. Rhonda and I are simply excited because on this day, our children are healthy.

Teresa is scheduled to have her next set of scans performed in January, so please include her in your prayers. I have certainly learned that prayer truly works. We all are familiar with the saying that “God works in mysterious ways”. Not long before Teresa was diagnosed, I had a conversation with a co-worker. I confidently stated that I was a Christian, but I was not “one of those Christians” that got excited about it. Well folks, my problem was that I had yet to receive my testimony. I praise God for all that he has done, and I will continue to praise Him, period. And you know, that is something to get excited about.

As a parent, I am concerned about the possibility of a relapse. But I have learned to be thankful each day, and not to worry about tomorrow. My wife and I have long since realized that we are not in control, but that we can continue to pray and accept God’s healing and trust in His plan. There are so many people who have encouraged us and given us strength, and we are grateful to each of you. So to all of you, our family, friends and prayer warriors, please continue to pray for us and I asked that you extend your prayers to include the countless others who are facing difficult times as well.

God Bless and Merry Christmas,

John & Rhonda

Thursday, December 8, 2005 9:37 PM CST

Saturday, October 8, 2005 8:09 AM CDT

Hello Everyone,

I am glad to say that everyone is healthy. I remember the days when I would update sometimes daily. I don’t miss those days. Teresa is doing great. Teresa and Jasmine joined the Girl Scouts. I somehow became Treasurer/Assistant Leader for Teresa’s Brownie Troop. Teresa is also trying out for 3rd grade UIL Music Memory.

Teresa was also honored as an Anderson Elementary "Shooting Star". Per her teacher, " Teresa has overcome a huge obstacle in the past year! She has maintained academic excellance and a positive attitude through it all."

Teresa and Jasmine both had all A's for the 1st report card.

Teresa and Jasmine wanted at least two of their grandparents to visit on September 30th for VIP day at school. My parents were not at all thrilled about driving 300 miles for an afternoon program. When asked by the kids, my parents never gave a clear answer.

The kids got their desire and my parents were here for VIP day. They were chased from Beaumont, Texas by Hurricane Rita. My brother and I called daily starting when “Rita” was still in the Florida Keys. My “adult” parents finally decided to leave after a mandatory evacuation was ordered. It took about 15 hours to get to Tyler, Texas which on a normal day would have taken about 4. Once they left Tyler, they took a short cut to almost Oklahoma before making it to our house. They did arrive safe and still somewhat sane.

They are still here. My father is afraid that since the city has reopened, the traffic back will be as bad as when they came. Reports are that their house was spared any major damage. My mother is ready to go clean out the freezer and refrigerator. Teresa’s ninth birthday is Wednesday, so my father is using that as an excuse to stay.

I’m sure they will go home before November. While they are here, we will just enjoy them.

That’s all for now.

Thanks for checking on us.

Rhonda

Monday, September 12, 2005 12:07 AM CDT

Hello Everyone,

Sorry, I haven’t updated recently.

The girls are just going to school, doing homework, and being silly.

School pictures were taken on September 2nd. Teresa wanted braids for her picture. Her attitude changed when she had some hair to swing.

We went to dinner for Teresa’s transplant birthday, Thanks again Jasmine day, and our anniversary. All of this was on August 31st.

On Tuesday, Sept 6th, Teresa woke up complaining of blurred vision. The doctors scheduled an emergency MRI and an appointment with the ophthalmologist and blood work. Before diagnosis, Teresa complained of occasional blurred vision. She had seen an optometrist who didn’t find anything and we blew it off as eye fatigue. Fortunately, everything turned out fine. The ophthalmologist thinks the blurred vision may have just been from dry eyes.

Teresa has over 300 thousand platelets. She could probably donate some if she was eighteen.

What a difference a year makes.

Although, we have cause to rejoice we still read of families enduring relapse and death. Please continue to pray for families whose children have or had cancer.

Thanks again for checking on us. Please sign the guestbook.

Rhonda

Monday, August 22, 2005 5:03 PM CDT

Hello Everyone,

Since I last updated, the girls started school and I started working again.

I’ve delayed Teresa’s mediport removal. She is aiming for her first ever perfect attendance year. I will schedule the removal for October during the school’s fall break.

I think we are getting into the swing of things in the mornings.

Teresa is given a homework packet for the week. She tries to complete it on Monday so she can have the rest of the week homework free.

Jasmine tries to finish her homework while at school.

Teresa gets to have two more immunization shots on Thursday.

A week from Wednesday, we are to celebrate Teresa’s transplant birthday and Thanks Again Jasmine day ( Jasmine donated bone marrow to Teresa). It is also John’s and my anniversary. Any suggestions on how to word all of that on a cake?

Thanks for stopping by. Please sign the guestbook and continue to pray for families dealing with cancer.

Rhonda

Tuesday, August 2, 2005 9:59 AM CDT

Hello Everyone,

Well, Teresa survived camp. She came home talking about how much fun she had. She petted a tarantula, a chicken, a bunny, and a frog. She rode a horse, shot a bow and arrow, and swam everyday. She wore make-up at a party and made new friends.

She has tried to convince me that Whoopi Goldberg was at camp one day. I have yet to obtain confirmation from an adult.

Last week, she had a MRI, bone and CT scans. They gave her a clean bill of health. As a bonus of having clean scans, she had the joy of being re-immunized. She got three shots in her thigh. She gets to enjoy this pressure for the next three months. I hope she will get out of the car when I start putting the EMLA on her thighs.

The girls start school on Monday and I’m supposed to start working as well. I’ve taken on call positions so that I will not have to commit to a daily schedule.

I’m trying to schedule Teresa’s mediport removal. She will not want to miss school to have her port removed.

That’s all for now.

Thanks for checking up on us.

Rhonda

Thursday, July 21, 2005 4:34 PM CDT

Hello Everyone,

Teresa is at Camp Discovery. Hopefully, she is having a great time. Surprisingly, we have not cried. I guess because we know she is coming back home.

Jasmine and I have been busy. Monday, we shopped for “Interview” clothes for me and dress shoes for her. Somehow Jasmine wore a 4 ½ girls shoe on Sunday and by Monday she needed a woman’s 7. Do you know how hard it is to find a size 7 that doesn’t have a 3 inch heel?

Tuesday, I had two interviews while sitting on my couch. One was with my old company that agreed to take me back and the other was a placement agency.

Wednesday, Jasmine and I went horseback riding. After riding for an hour, Jasmine has told me that I don’t have to save up for a pony.

Today, I took two drug tests. I’ve yet to decide which job I think is best. Hopefully, I’ll make the right choice.

Earlier this week, I dreamed that the doctors removed Teresa’s mediport. I guess that means that her scans next week will be clear.

Two and one-half weeks before school starts.

What a summer!!

Please sign the guestbook so I’ll know who stopped by.

Rhonda

Thursday, July 14, 2005 12:14 AM CDT

Hello Everyone,

Things are going well. We just returned from a drive through the southern U.S.A.

First we went to Atlanta for John’s family reunion. While there, we visited Zoo Atlanta.

The girls and I met several of John’s relatives for the first time.

On the 4th, we left Atlanta for Valdosta, Georgia, a four hour drive further south.

As soon as we checked in the hotel in Valdosta, we were treated to fireworks. Then we caught up with some more relatives that the girls and I had never met. So we declared the 1st weekend in July, as “Meet Relatives Weekend”.

While in Valdosta, we visited Wild Adventures amusement park. We rode rides during the day and returned in the evening to a great laser fireworks show.

We stopped in Alabama on the way back home. We missed our turn and ended up passing through Tuskegee, Alabama. The kids did not appreciate seeing neither the campus nor the monuments around it. We saw Booker T. Washington’s home and campus buildings named after famous African-Americans.

We then purchased a map and found our way to our hotel. Fortunately
, we made it to the hotel early enough for Teresa and Jasmine to see the new “Raven” episode. Don’t you dictate your travels based on what is on TV?

We visited Desoto Caverns in Childersburg, Alabama before driving twelve hours to get back to our beds.

As soon as I unpacked the suitcases, I began packing for Teresa to go to camp next week.

This has truly been a busy summer.

I’ve begun to send out my resume so I can go back to work. Please pray that I chose the right job.

I’ll update after camp.

Take care,

Rhonda

Friday, July 1, 2005 7:46 PM CDT

Hello Everyone,

I did not realize until today that I have not updated in a month.

Teresa’s health has been fine. We are just keeping busy.

Since I last wrote, we visited John’s parents and celebrated their 50th wedding anniversary. That eventful weekend was followed by 2 weeks of swim lessons.

After swim lessons, we had “Dentist week”. Jasmine got her bottom braces, Teresa got sealants, and I had to have a cavity refilled.

I also had to have my hearing checked. The cisplatin Teresa had in cycle 3 caused high frequency hearing loss, which made her turn up the volume on everything. This spring I noticed that I had to have people repeat themselves to me. After three tests, the doctors and I agreed that I have some low frequency hearing loss. It only seems to bother me when there is a lot of background noise. Supposedly, it is a genetic condition. My father has been talking loudly all of my days. So I figure, I got from him.

Thursday of this week, we visited the oncologist. Blood work and a mini-physical were done. Teresa’s hemoglobin is higher than mine and so are her platelets.

She is going to Camp Discovery the week of the 17th. Upon, her return we will do CT and bone scans and a MRI. If everything remains clear we will remove her mediport and see the doctors every 2 months or whatever schedule is needed to re-immunize her.
Since she got Jasmine’s cells, they are working on the premise that all previous immunity is gone.

Well, that’s all for now.

Take care,

Rhonda

Tuesday, May 31, 2005 3:32 PM CDT

Hello Everyone,

I’m sorry that it took so long to update.

Teresa is doing great. We have been busy with a lot of little activities.

The school’s annual Field Day was May 13th. Jasmine played her violin in the school Talent Show on May 17th. The end of school picnic for second grade was May 25th.

During this time, I visited my doctor for my annual physical exam. The doctor discovered a thyroid goiter. I was sentenced to weekly visits to the radiology department for various tests,scans, and a Fine Needle Biospy. After three weeks, it was determined that the goiter was cystic.

Our summer is jammed packed with activity. We just returned from visiting my parents for the holiday. This weekend we are to visit John’s parents to celebrate their 50th wedding anniversary. When we return, the girls start swim lessons and Teresa’s LAST COURSE OF ACCUTANE. The Monday after they finish swim lessons, Jasmine gets her bottom braces. About two weeks later, we take off for a country drive to Georgia.

I think a week after we return Teresa is scheduled for Cancer Camp.

Sometime in July, we need to squeeze in her quarterly scans. Provided all is clear we may remove her port since she will be 11 months post-transplant.

Reviewing what I just wrote is wearing me out.

Well that is all for now.

Rhonda

Monday, May 9, 2005 11:42 AM CDT

Hello Everyone,

Fortunately, there is really much to report.

The Relay for Life went well. It was cold and windy but according to the newspaper, the event raised about $120,000.

I have no idea how much was given in honor of Teresa because most was donated offline. The American Cancer Society informed me of who gave just not how much.

For all of you who donated, thanks.

Since the “Relay”, Jasmine has had a violin recital and a class program. Teresa was diagnosed with an ingrown toenail which we had removed on Friday, May 6th.

While waiting in pre-op, she told everyone that this would be her 6th surgery. She tried to comfort the kids getting tonsils removed and she joked with the anesthesiologist. Upon returning from surgery, her first question was “When can I eat?”

By Saturday, Teresa was running around without a pain in sight. Sunday, John took the kids bike riding.

On Thursday, I literally lost my voice. I had to write notes to communicate to my family. Have you ever tried to write as fast as you can talk? John enjoyed his few hours of voiceless Rhonda. My voice came back slightly. I now will need to sing bass instead of soprano. To top things off, I’ve taken to coughing nightly from 2 am to about 5 am. I had already scheduled my annual physical for tomorrow. John can’t wait. He might even let me camp out at the doctor’s office overnight so that I won’t be late.

Honestly, he has not complained. I guess because of that “In sickness or health” line we repeated 13 years ago.

Please sign the guestbook. We love to know who is checking up on us.

Looking forward to a soprano voice again,

Rhonda

Saturday, April 23, 2005 5:02 PM CDT

Hello Everyone,

Everyone in the house is doing great.
Since the last update,
Jasmine celebrated her 11th birthday with a party at Main Event. Main Event is a combo bowling alley, laser tag arcade. Jasmine, Teresa, and friends had a great time. Teresa was nice and let Jasmine truly be the center of the show.

Since the party, we have just been doing normal things: playing basketball, riding bikes, and going to the park. I even let Teresa play in the DIRTY sand without freaking out. However, we did sanitize our hands when we got back to the car.

The kids and I went to the Spring Fling at school on Friday. The kids dance and work off the stress from the mandatory tests all the students of Texas had to endure earlier in the week.

Next Friday, April 29th, Teresa and the family will participate in the American Cancer Society’s Relay for Life. Teresa doesn’t really understand the concept of the fund raiser. I tried to explain that she only has to participate in the Survivor lap. I also tried to explain that survivorship comes with the responsibility to give others hope and encouragement.

I know that many people in the Neuroblastoma community are not fond of the American Cancer Society because their budgeted amount for childhood cancer research and Neuroblastoma in particular seems rather low. Nevertheless, a little research funding is better than none at all and they do provide much of the informational booklets patients are given at diagnosis as well as sponsoring the Cancer camps for kids.

If you would like to donate in honor of Teresa, please click the link below and donate any amount.

I next scheduled doctor’s appointment isn’t until May 3 which just consists of blood work.

In the last few weeks, at least 4 children have died from this disease. Please continue to pray for families dealing with cancer.

Rhonda

P. S. Thanks for any donations made to Relay for Life

Friday, April 8, 2005 8:59 AM CDT

Hello Everyone,

Sorry for the delay in reporting the scan results.

On test day, Teresa declared that she did not need to drink the contrast for the CT scan because there is nothing growing in her stomach (abdominal) area. Well you know, Teresa IS RIGHT!

The scans were declared No Evidence of Disease. We rejoice at this statement but we realize that it only means that the technology we depend on could not see every cell in her body. What was seen was clear. We have to pray that the scans are a truthful representation of her entire body with every cell deemed healthy.

Please continue to pray for us and for other families in the war against cancer.

That’s all for now.

Rhonda

Saturday, April 2, 2005 5:45 PM CST

Hello Everyone,

In my last update, I mentioned scans. They are still scheduled for April 5.

Since the last update, we visited John’s parents in Pecos, Texas. John’s father had not seen Teresa since prior to her diagnosis. Teresa gave her grandparents many hugs during our visit.

On Thursday, Plano West High School presented the Make-A-Wish foundation with a check for $7,000. Teresa happily posed with the check and the Student Leaders. On the way to the school, Teresa asked if the teenagers and the doctors really wanted her to go to school. I said, “Of course.”
Teresa’s response, “Then why do they keep scheduling things during school hours?”

This weekend, the weather has been nice and we were able to go to the park, ride bikes, and play basketball.

Next week will be busy. Teresa has scans on Tuesday and a doctor’s appointment on Thursday. Jasmine has the Math TAKS test on Tuesday, a field trip on Wednesday, and her 11th birthday party on Friday.

Relay for Life is scheduled for April 29th in Allen. Please consider donating in order of Teresa or whomever you know who has been affected by cancer. IT’S TAX DEDUCTIBLE AND A LINK IS PROVIDED AT THE END OF THIS PAGE.

Don’t forget to check the scan results next week.

Rhonda

Thursday, March 24, 2005 11:47 AM CST

Hello Everyone,

Teresa is doing great.

A year ago, March 22, 2004, at 10:35 am, Teresa’s pediatrician gave me a hug and told us that Teresa needed to see an oncologist.

Today, we sit on the other side of the diagnosis. Teresa has basically completed her treatment. After four surgeries, 7 rounds of chemo, targeted and total body radiation, and a bone marrow transplant from her sister, Teresa is probably healthier than she has ever been.

As we rejoice in Teresa’s health, other families are being diagnosed or facing difficult decisions. Please continue to pray for a cure to all childhood cancers.

Teresa will be re-scanned April 5th. The scans are done to supposedly give us more confirmation that all is well. This disease unfortunately has a high rate of relapse. We truly have to stand on Hebrews 11:1

“Now faith is the substance of things hoped for, the evidence of things not seen.”

We hope for clean scans the evidence being NO EVIDENCE OF DISEASE seen.

I will update after the scans.

Thanks for your continued support.

Rhonda

Sunday, March 13, 2005 9:22 PM CST

.
We had a fun filled time in Orlando. We stayed at the Give the Kids the World Village. The Village was designed with kids in mind. It is like a mini-resort. It has its own arcade, putt-putt golf, ice cream parlor, and movie theater.

On Saturday, we visited SeaWorld Orlando. While there we saw the Shamu Show, dolphins playing, sharks and stingrays. We returned to the village so that Teresa could go swimming for the first time since her diagnosis a year ago.

Sunday, we visited Epcot and had breakfast with the Disney princesses. The girls were able to get autographs from Aurora (Sleeping Beauty), Mulan, Princess Jasmine, Snow White, and Belle. We later rode the monorail over to the Magic Kingdom where we rode Big Thunder Mountain Railroad. We also met Aladdin and Genie while there.

We went back to the village to swim and later returned to the Magic Kingdom to see the Wishes nighttime spectacular.

Monday morning was full of activities. Some of the Disney characters came to the village. We took pictures with Mickey and Minnie, got their autographs as well as the autographs of Pluto, Goofy, and Cinderella.

After getting autographs, the girls were treated to horseback rides.

When we finally made it back to the Magic Kingdom, John and Jasmine rode Space Mountain. We all got front row seats for the Share a Dream Come True Parade.

We ended our day at the Magic Kingdom by seeing Mickey’s PhilharMagic and riding Big Thunder Mountain Railroad again.

Tuesday, we gave John the opportunity to play golf. The girls hung around the village. We played Dino-Putt and arcade games.

Wednesday, we visited the Animal Kingdom. First we went on the Kilimanjaro Safari. We saw elephants, giraffes, a sleeping lion, warthogs and zebras. We capped off the visit by seeing the Festival of the Lion King. The girls were asked to participate in the finale. The girls marched around the stage shaking handheld percussion instruments.

We ended our visit to Florida on Thursday with lunch at Planet Hollywood in Downtown Disney.

.
We really had a Great time.

Teresa, Jasmine, Rhonda, and John Montgomery

Friday, March 11, 2005 6:17 PM CST

We just returned from our Disney trip. I will update will all of the details soon.

Rhonda

Monday, February 28, 2005 12:57 AM CST

Ready or not, here she comes.

On Thursday, Teresa was given permission to be in crowds. I figured that if she could go to the mall, she could go to school.

I had already planned for Teresa to attend Friday since it was “Class Picture Day”. Teresa woke up stating that she could not attend school without me. What? Where did that come from? Teresa and I had talked about picture day a number of times. On Thursday, she went running around the office excited about being able to go more places. After taking Jasmine to school, I convinced Teresa to go for the picture and stay through recess. After leaving school, Teresa agreed that it wasn’t so bad after all. Her homebound teacher came by later and gave Teresa a stern pep-talk. We planned for the teacher to meet her Monday morning and walk her to class. While waiting this morning, Teresa decided that she could go to class alone. So, off she went.

Over the weekend, Jasmine developed a low grade fever. At one point, Teresa grabbed a mask and gloves before approaching Jasmine. Jasmine hates medicine. She usually wills herself well. I explained to Jasmine that I am licensed by the state to dispense medicine. I gave the spill that ‘Mother knows best’. We even threatened to take away privileges. Three days later, fever free, the Tylenol tabs still sit on the table waiting to be used.

This week promises to be busy. We have two parties before flying to Orlando on Friday. The school has open house Thursday evening.

Please pray for SUPER SUNNY SKIES next week in the general Orlando area.

Thanks for your continued prayers. I will update with Disney pictures upon our return.

Rhonda

Monday, February 14, 2005 6:17 PM CST

Hello Everyone,

We just returned from the Valentine Party at school. The kids all greeted Teresa warmly. Teresa enjoyed the pizza and the sugar cookie she got to decorate. All of the kids remembered to give her a Valentine.

The teacher’s assistant helped Teresa deliver Valentines to the kids she did not know. Teresa took it in stride. I had to fight back tears; because this disease has kept her from the normal things like knowing her classmates.

Medically, Teresa is doing great. We thought that she would need another dose of Immune Globulin and it was vetoed by the doctor. Her blood work looks great. The doctor also released her diet restrictions. She wasn’t allowed to eat fresh fruit and vegetables because of the possibility of mold. Once she was told she could have lettuce, grapes, and strawberries she demanded that I go to the grocery store. I think she ate two pounds of grapes over the weekend.

We have had two 70 degree plus days in a row. The girls rode bikes, flew a kite, and enjoyed themselves at the park.

On Friday when Teresa opened her door, she accidentally hit the car next to us. This new father was more interested in the nick in the door than in spending time with his wife and new baby. He was so upset that he called my insurance company before I made the 20 minute drive home. I hope he learns to treasure his family as much as he treasures his car. Teresa later commented, “It’s just a car, get over it.” Priorities, maybe it’s a male thing. I just thought that nicks on car doors were one of the risks one takes when parking in a parking lot. When his kid throws up in the car, will he clean up his child or his car first? Okay, enough of soap-box.

Since diagnosis, Teresa has said that she can only see light out of her left eye. She seems to compensate so well. Since that complaint played no bearing on the treatment we delayed having an extensive evaluation. She will have an official ophthalmology visit next Tuesday. Hopefully, she is actually seeing more than she realizes.

Jasmine and the other 5th graders of Texas have the mandatory – must pass TAKS reading test Wednesday the 23rd. Please pray that all of the students pass the test.

Thank you for your continued prayers and support.

Please view the pictures from the Valentine party.

Rhonda

Saturday, January 29, 2005 3:46 PM CST

Hello Everyone,

Teresa is doing well. She has handled the Accutane quite well. The list of possible side effects is so extensive that the prescription can not be filled without documented blood work.

The doctors are almost ready to send Teresa back to “a normal life”. I reluctantly agreed that if she could go to Disney World during Spring Break, then she could go to school when we get back. Teresa promises to get up in time to eat breakfast and take her medicine so that we can leave at 7:30. Since she was discharged from the hospital, I've been pulling her out of the bed at 7:40. She sleep-walks to the car, so that we can drop Jasmine off. I hope we will not be in truancy court because of excessive tardiness.

Since Teresa’s isolation requirements have been somewhat lifted, John and I rejoined the choir at church. Teresa and I run errands during the day. Teresa has been my bagger at the grocery store. We have managed to arrive home without any broken eggs or mashed bread.

Teresa is full of energy. Every time we go somewhere, Teresa wants to run and scream for the joy of being away from home and the doctors.

On Tuesday, Teresa and I took some soup to Jasmine for lunch. Jasmine had her wires placed through the braces and could barely eat. After giving Jasmine her soup, Teresa decided she needed to visit with the Assistant Principal. That visit went so well that she took off down the hall to her classroom. The kids nor Teresa knew what to say once she made it in front of the class. The kids just said “Hi”. They were polite; they smiled, they listened while the teacher talked with Teresa and told Teresa they were happy to see her.

Teresa is more thrilled about going back to school than she is about going to Disney World.

Jasmine is the excited Disney girl. I told her not to mention Disney until March. Jasmine visits the Disney website daily to make sure that the Firework shows’ schedule doesn’t change.

I dare not tell Jasmine that Mickey and Minnie will be at the Village where we are staying, nor the fact that I booked breakfast with the Princesses.

Please continue to pray for Teresa. She has five more months of Accutane therapy and a life-time of follow-up blood work and scans. Fortunately, our visits are becoming less frequent.

Thanks for your continued support.

Rhonda

Thursday, January 20, 2005 5:09 PM CST

Hello Everyone,

Teresa is doing well. She now gets to expand her socialization circle. She still can’t go into crowds but she can be around about 10 people instead of just 2 or 3. She also gets to go mask-free. She is as silly as ever. Rhonda attempted to take some pictures to update the website. Rhonda’s digital camera has a delay after hitting the shutter button. Teresa posed for the picture; but, once Rhonda hit the shutter button Teresa took off running. Instead of getting a nice picture of her pretty face, Rhonda got her back fleeing down the hall.

On Monday, she started taking Accutane. No, Teresa does not have acne. Accutane has been shown to inhibit Neuroblastoma cells from maturing. Accutane comes in a capsule form, which Teresa can not swallow. So twice daily for two weeks per month, Rhonda will poke a hole in capsules and squeeze out orange goo into ice cream. This method provides an incomplete dose but we guess incomplete is better than not at all. The treatment protocol requires the use of Accutane for 6 months.

Over the weekend, Teresa had a sleepover to celebrate John’s birthday. Jasmine and Teresa picked out balloons for John which they knew would make good volley-balloons. Rhonda helped Teresa make John a chocolate cake, which she and John ate pretty much all by themselves.

It is amazing how much we now enjoy the simple things in life, like having the entire family under one roof. We lived such a blessed life before and have learned to enjoy each precious moment.

We are thankful to God for Teresa’s progress. We are thankful to the doctors, nurses and attendants for their skills and caring ways; and we are thankful to all of you who continue to pray for Teresa’s complete healing. Please continue to pray for all the children who are suffering. We know that prayer makes a difference.

Rhonda and John

Sunday, January 9, 2005 12:37 AM CST

Hello Everyone,

On Wednesday, January 5th, Teresa was scanned from head to toe.

The results from Teresa's scans were impressive. There was an area near the base of her skull, the sphenoid region, which showed possible signs of remaining tumor. However, the abnormalities could be attributed to scar tissue. All other areas that previously showed disease are now completely clear and clean and appear to be normal. She is now considered to be in Complete Remission. One doctor went on to say that there is No Evidence of Disease. This is the news we were hoping for and expecting. Sure, we are concerned about the possible remaining tumor, but the doctor said that because of the radiation that Teresa had it may be a year before the MRI shows the area as clear. We have faith that all Teresa has endured has brought her to the point of complete healing. I know that the Power of Prayer to the Creator is responsible for this good fortune. This crisis has and will continue to serve a greater purpose. I do not know the future, yet I will continue to pray that this trial has somehow brought Glory to God. Please continue to pray for our peace in the midst of the storm. We have only seen a glimpse of what is possible.

On another note, the wonderful nurses at the doctors’ office have chosen to embark on new opportunities. We wish them well but wonder who will run the office. The doctors are great, but they do not know how to draw blood the way Teresa likes it. Please pray that they find nurses who run the office as smoothly as Dana and Heidi did.

Thanks again for your continued support.

Rhonda and John

Tuesday, December 28, 2004 9:05 PM CST

Hello Everyone,

I hope all of you had a blessed Christmas.

Jasmine dreamed of a “White Christmas”. During the Christmas week, we had the Dallas version of a blizzard; sleet, ice, and snow flurries followed by multiple accidents on the road. Fortunately, the fridge was stocked and no appointments were scheduled.

Now that I feel we have jumped some major hurdles in Teresa’s journey; I’m ready to help Jasmine tackle the orthodontist.

We had begun consultation earlier this year before Teresa was diagnosed. After Teresa’s diagnosis, I felt I could not handle two children who may not be eating for various reasons on various days.

Jasmine’s journey thus far leads me to believe that I was right to wait. She had the separators (spacers) anchored in on Monday. She has been on soup, noodles, and yogurt with Anbesol chasers. She will have her braces placed on Monday, January 10th. Jasmine tells me that the pain of the spacers is worse than the pain she endured when she donated her bone marrow. Hopefully, she will get accustomed to the pain. I jokily tell the kids that “Sometimes outward beauty requires sacrifice for the patient and the family.

I have absolutely no understanding of her dilemma. Jasmine will be the first generation braces wearer for the family.

Teresa will be scanned next week to determine if there is any residual disease left after all of the chemo, radiation, and the bone marrow transplant. Monday was her last day of her anti-rejection drug. We will continue to watch for signs of rejection. Today is day 119 post transplant. I can’t believe that it has been 4 months already. Teresa has been home continuously since October 25th.

I pray that these updates have been an encouragement to someone. Even in the midst of joining the exclusive club of childhood cancer, there is always hope. Daily I read stories of kids whose treatments have been more difficult or with less than desirable results. I read stories of families who battle multiple diseases and realize that in the midst of everything that has happened, We Should Still Consider Ourselves Blessed!!!!!!!

We will get our official report from the scans the week of January 10th.

Please keep us in your prayers.

Thanks,

Rhonda

Thursday, December 16, 2004 4:17 PM CST

Hello Everyone,

Sorry for the long delay between updates.

Teresa is doing great. She has periods in which she is bummed out from “House Arrest”, but for the most part she makes the best of it.

John’s company Christmas party was last weekend. Jasmine regained her crown as Hula-Hoop Champion. She lost last year after winning the two previous years. She practiced this year and admitted that “Practice makes ‘perfect’”. She almost lost the hoop and had to squat down to bring the hoop back to her hips. She had the crowd cheering her on. Teresa stayed with my brother and made Gingerbread cookies.

The weekend was warm enough for bike riding. Teresa had forgotten how to ride but John taught her how to ride again. We realized that the girls have grown. Teresa needs Jasmine’s 20 inch bike and Jasmine could use a 24 inch. Since it is 40 degrees today and getting colder, we will wait until the spring to invest in more Huffys.

Teresa’s appointment was this morning. At the last visit, blood was taken to determine how many of Jasmine’s cells have grafted into Teresa’s bone marrow. The tests show that 100 percent of the cells belong to Jasmine. The test was a molecular study. The doctors explained that the margin of error is probably less than 1 percent. We have to believe that the test tube tested is indicative of Teresa’s entire cell volume. The medical theories imply that the chemo and radiation that Teresa endured killed all of her abnormal cells. The bone marrow transplant should enable Teresa’s marrow to produce only healthy cells. If abnormal cells are present, we hope Teresa’s body will now recognize them as foreign and destroy them before they can reproduce.

As we rejoice in more good news, there are families who are being newly diagnosed or relapsing. Please pray for all families who have to endure the unpleasantness of cancer. I have added a link to “Relay for Life”. It is an American Cancer Society fundraiser. Please donate in honor of Teresa what you can to help destroy all cancers.

Now to Him that is able to do exceeding abundantly above all that we ask or think, according to the power that worketh in us, Unto Him be glory in the church by Christ Jesus throughout all ages, world without end. Amen
Ephesians 3:20, 21

Enjoy your holidays.

Rhonda

Tuesday, December 7, 2004 1:52 PM CST

Hello Everyone,

Teresa is doing great.

One day we had a stuffed animal fight. Teresa threw stuffed animals over the banister while Jasmine and I tried to throw them back upstairs. It became hilarious. When John joined it, the girls ganged up on him.

On another “stuck inside day”, John and the girls played baseball. John pitched a mini beach ball and the girls batted with a leftover wrapping paper roll. The girls would bat then run around the first floor to score a run.

Yesterday, Teresa woke up complaining about stomach cramps. She later complained about her throat hurting. The days of saying “It will pass” are over. We promptly called the doctor and took Teresa in. I was worried about an intestinal bug and Graft vs. Host Disease. When we arrived at the doctor’s office Teresa was back to her old perky self. She looked and felt so well that the doctors didn't even do blood work.

Most days we believe that God has healed Teresa forevermore. Unfortunately, when we let our “shield” down we allow doubt and fear to gain a stronghold.

Yet, it is Christ that died, yea rather, that is risen again, who is even at the right of hand of God, who also maketh intercession for us.

Teresa will mark her 100th day post-transplant on Thursday. For a special present she will allowed to eat a few fresh fruits.

Thanks for your continued support.

Rhonda

Tuesday, November 30, 2004 5:19 PM CST

Hello Everyone,

NEW PICTURES ADDED 12/01

We had a great time over the weekend.

We spent Thanksgiving at my brother’s house. On Friday, John’s mom, sister, and nephew visited from West Texas. Teresa and Jasmine had much fun beating up on their fifteen year old cousin.

A few weeks back I mentioned that Teresa said that it hurt to swallow. After going to see the GI pediatric specialist, we scheduled a test to look at her esophagus. The pain with swallowing conveniently disappeared and with the oncologists authorization we canceled the procedure.

The oncologists have begun to reduce the dose of Teresa’s immunosuppressant. Teresa will be able to make a few visits away from the house once she is off the immunosuppressant.

Teresa is doing so well that she gets a reprieve from doctor’s visits until Dec 9 which will be Day 100 post transplant.

Last Wednesday, we had a 50 degree day. Teresa ran out of the house without a coat. She was running down the sidewalk screaming “I’m free, I’m free!!!”

I was chasing her down the sidewalk trying to put on her coat. I caught her and carried her back into the house. I blocked the front door. She promptly let the garage door up and ran out again. As far as I know, Teresa and I were not caught “Live on Tape”.

Well, that’s all for now.

I’ve been working on the Montgomery family letter. If you want a copy of the Christmas card with Jasmine and Teresa send your street address via email if you know I don't have it.

Thanks for your continued prayers.

Rhonda

Tuesday, November 23, 2004 3:38 PM CST

Hello Everyone,

It’s almost time for us to celebrate Thanksgiving. Since March 22, we have looked at more days as days of Thanksgiving. Although, we would not volunteer our child for cancer, we are thankful that she was diagnosed promptly. We are thankful that we never had to enter the Pediatric Intensive Care Unit nor live out an episode from “ER”.

It seems that all of the doctors who have treated Teresa are on the “Best of Dallas” list. Teresa recovered from the surgeries (4), the rounds of chemo (7) and radiation treatments well. My parents put their lives on hold to come help take care of John and Jasmine when Teresa and I were in the hospital.

We were pleasantly overwhelmed with the outpouring of love and support. People started praying for us even before we knew the full story of Teresa’s diagnosis or treatment plan.

Today, Teresa is doing well. Her blood counts are all within acceptable levels. Her biggest issue is conquering her boredom. In the past, we could trek off to the mall or the movies. Since the transplant, Teresa has basically been confined to the house. Since her immune system is still new (84 days), the doctors want to keep her away from as many germs as possible. Just remember the movie, “Outbreak”. Germs travel through the air with a vengeance.

Please continue to pray for families battling cancer.

Enjoy your holiday and remember “EVERYDAY IS A DAY OF THANKSGIVING”

Rhonda

Sunday, November 14, 2004 6:03 PM CST

Hello Everyone,

Teresa is enjoying life away from the hospital.

Monday, Tuesday, and Wednesday we went to the park for a little while before picking up Jasmine from school. Teresa made me ride the see-saw with her. The see-saw is reinforced with springs which aided Teresa’s attempt to bounce me off my seat.

Thursday, I packed up food, the computer, and DVDs for an extended stay at the doctor’s office for IVIG (immune system booster). I thought the infusion would last four hours and Teresa tolerated it over 2.

While speaking to the doctor, Teresa mentioned that sometimes it hurts to swallow. Since we can no longer blow off complaints, Teresa will see a GI doctor on Tuesday to make sure she does not have any esophageal damage due to the radiation or worse Graft vs. Host Disease ( Jasmine’s cells attacking Teresa’s body).

Thursday night, John kicked me out. Our friend Wanda and I went to dinner at Terrili’s in Frisco. After we finished our German Chocolate Cake and our pasta dishes we stopped by Kohl’s for a little shopping. Teresa did not even call and ask what was taking me so long to get home.

Friday, the girls received their report cards. Teresa received all As and Jasmine got As and Bs.
The girls went to my brother’s house while John and I went to On the Border. When the waiter handed me my spoon for my Tortilla Chicken Soup the paranoia surfaced. I wanted to ask if he had least washed his hands before her brought my spoon. Germs, Germs, Germs---- We are surrounded by germs.
John and I managed to talk about other things besides the kids. What a strange evening.

Saturday, Teresa had a friend over while Jasmine and I went shopping. They played Tea Party, ate pizza, popcorn, and played with stuffed animals.

Today was Pajama Day for Jasmine and me. Teresa and John found their way to the closets. Right now the girls and John are having a dance party.

That’s all for now,

Rhonda

Sunday, November 14, 2004 6:03 PM CST

Friday, November 5, 2004 12:40 AM CST

Hello Everyone,

Things are going well. The Pulmonary Doctor discontinued Teresa’s breathing treatments. Her lung function is as normal as a non-asthmatic kid’s. Her appetite is improving daily. She is doing a great job with her class work.

Teresa is still smiling and giggling. She conquers her bouts of boredom by watching TV, playing on the computer, and playing with her full-time playmate (me).

Most days John and I are upbeat. Occasionally, we take turns thinking about the seriousness of this situation. How we miss the good ole days when we could blow off complaints of aches or pains. FAITH is truly the substance of things hoped for, the evidence of things not seen. --- We have to believe that healing has occurred because even with medical science we will never be able to look at every single cell in Teresa’s body.

We know that because Teresa received Jasmine’s bone marrow she was given disease-free cells. The standard protocol for this disease consists of extracting stem cells from the patient and giving them back at a later date. It breaks my heart every time I read of someone enduring this procedure. I pray and I hope you will pray with me that the cells those kids receive are disease-free. Maybe Teresa’s recovery with aid in changing the treatment protocols. Please tell all of your pregnant friends to donate their umbilical cord to someone who may have a child who needs a new start in life.

My parents arrived home safely on Wednesday. I’m glad they ran to rescue “their little girl” and her family.

Jasmine is doing well in school as well. She has received “a Shooting Star” award at her school. She is being honored for enduring the “family drama” and continuing to do well in school. She was deemed “a real trooper”. She is also beginning violin lessons today. I’ll let you know when she is ready for Carnegie Hall.

Thanks again for your continued prayers,

Rhonda

Friday, October 29, 2004 5:29 PM CDT

Hello Everyone,

Teresa was discharged on Monday. When we left the hospital, it was raining. However, I felt sunshine. Teresa chattered the whole way home. The last two months Teresa was in the hospital she did not talk much. She has been jabbering and smiling non-stop since Monday. She even smiles when I give her medicine.

On Thursday, Teresa had a follow-up appointment. The doctors were so impressed with her joy that they were taking her around showing her off. Teresa’s twice weekly appointments were reduced to once weekly. Teresa’s blood counts are fantastic.

Teresa received a pair of long socks that have candy corn designs on the back. She chooses to wear the bright orange and yellow socks with a green striped shirt and jean shorts. Next time she does it I’ll try to remember to grab the camera.

Teresa and Jasmine have decided to pool their money for Disneyworld souvenirs. We will not be going to Disneyworld until March. I’ll let you know how long this saving plan works. Did I mention that Jasmine had $6.00 and Teresa somehow banked $85.00? Hey, at least the girls are getting along.

My parents are leaving us to fend for ourselves next Wednesday. Please pray for their safe trip home. They have to travel about 300 miles.

Thanks for your continued prayers,

Rhonda

Friday, October 22, 2004 4:19 PM CDT

Hello Everyone,

Teresa has had no rejection complications from the transplant. However, she has a respiratory infection caused by mycoplasma. In other words, she has “walking pneumonia”. Her condition has improved since admission. She has gone from breathing treatments every 3 hours to every 4.

When she is discharged, we will have fun filled days. She will need breathing treatments every 4 hours while awake. I jokingly told my mother that I would need a car adapter for the nebulizer machine so that Teresa can take her treatments while driving to her various follow-up appointments.

Thank you for praying for us. Please also pray for any families battling cancer. Some of the kids are enduring an enormous amount of pain. Some families have to not only leave their home but the entire community as well. These families relocate for months seeking care for their children.

Since Teresa was diagnosed in March, I have seen and heard how the outcomes could have been drastically different. For example, many people have to have numerous office visits before the illness is diagnosed. Many kids with Teresa’s disease have to endure numerous rounds of chemo before the tumor can be removed followed by more chemo and radiation. I could tell more stories of how even in the midst of this, there are still BLESSINGS.

Take care,

Rhonda

Saturday, October 16, 2004 7:05 PM CDT

Hello Everyone,

The last time I wrote, Teresa was at home enjoying the simple life. On her birthday, (Tuesday), we visited the doctor and received a good report. Jasmine, Teresa, and I attempted to work on our Tennis skills later that day. We enjoyed baby-back ribs and potato salad for dinner with brownies for dessert.

Wednesday was another good day.

Teresa has had a cough for a few weeks. While in the hospital she had at least three x-rays which showed her lungs were clear. Another x-ray was taken on Thursday. In the time it took for the radiologist to read the x-ray and the doctor’s office to call in a prescription, Teresa developed a fever of 101.5. Back to the hospital she went.

The good news is that her immune system did try to fight the infection. It probably was fighting a few days before any scientific evidence was available.

Right now, her fever is gone but she has to have a series of breathing treatments.

After 7 weeks in the hospital, I was hoping to never set foot in here again. I have to remind myself that even otherwise healthy children sometimes need extreme measures to battle respiratory infections.

Teresa is still in isolation and visitation is discouraged.

We were told to expect a hospitalization of 3 to 8 weeks after bone marrow transplant. I guess Teresa, the textbook patient, owed the program one week.

Below is a copy of an email John received. Anyone who has or had a child with a potentially terminal illness can identify with the story. I added past tense because I have to have faith that she shall forever be known as the kid who HAD cancer not as the kid with cancer. I know that everyone gets healed. I believe that healing has occurred on this side of glory.

Tomorrow morning," the surgeon began; I'll open up your heart..."
”You'll find Jesus there," the boy interrupted.
The surgeon looked up, annoyed "I'll cut your heart open," he continued, to see how much damage has been done..."
”But when you open up my heart, you'll find Jesus in there," said the boy.
The surgeon looked to the parents, who sat quietly. "When I see how much damage has been done, I'll sew your heart and chest back up, and I'll plan what to do next."
”But you'll find Jesus in my heart. The Bible says He lives there. The hymns all say He lives there. You'll find Him in my heart."
The surgeon had had enough. "I'll tell you what I'll find in your heart. I'll find damaged muscle, low blood supply, and weakened vessels. And I'll find out if I can make you well."
“You'll find Jesus there too. He lives there."
The surgeon left. The surgeon sat in his office, recording his notes from the surgery, "...damaged aorta, damaged pulmonary vein, and widespread muscle degeneration.
No hope for transplant, no hope for cure. Therapy: painkillers and bed rest. Prognosis: "
here he paused, "death within one year."
He stopped the recorder, but there was more to be said. "Why?" he asked aloud.
Why did You do this? You've put him here; You've put him in this pain; and
You've cursed him to an early death. Why?"
The Lord answered and said, "The boy, My lamb, was not meant for your
flock for long, for he is a part of My flock, and will forever be.
Here, in My flock, he will feel no pain, and will be comforted as you cannot imagine.
His parents will one day join him here, and they will know peace, and My flock will continue to grow."
The surgeon's tears were hot, but his anger was hotter. "You created that
boy, and You created that heart. He'll be dead in months. Why?"
The Lord answered, "The boy, My lamb, shall return to My flock, for He has done his duty: I did not put My lamb with your flock to lose him, but to retrieve another lost lamb."
The surgeon wept... The surgeon sat beside the boy's bed; the boy's parents sat across from him. The boy awoke and whispered, "Did you cut open my heart?"
”Yes," said the surgeon.
"What did you find?" asked the boy.
"I found Jesus there," said the surgeon.
Author Unknown - Celebrate Jesus in 2004 and always

I THINK THE POINT OF THE STORY IS THAT GOOD CAN COME FROM WHAT MAN DEEMS TERRIBLE CIRCUMSTANCES. I PRAY THAT SOMEONE WELCOMED JESUS INTO HIS/HER LIFE IN THE MIDST OF OUR TRIAL.

"JESUS is my source of existence and Savior. He keeps me functioning each and everyday. Without Him, I will be nothing. Without him, I am nothing,
but with Him I can do all things through Christ that strengthens me."
Phil 4:13)

We saved Teresa’s Welcome Home Banner. I’ll let you all know when we hang it back up.

Rhonda

Monday, October 11, 2004 9:36 PM CDT

TERESA WAS RELEASED FROM THE HOSPITAL ON SUNDAY, October 10TH, (Jasmine’s half-birthday).

I enjoyed being in my own bed so much that I slept until 9:30 am.

Teresa got back into the swing of things really quickly. She confiscated the remote control and stretched out on the couch within 5 minutes of walking into the house.

Teresa and Jasmine are getting reacquainted.

HAPPY BIRTHDAY TO TERESA!!!!!!!!!
She is 8.

Can’t keep a secret Jasmine told Teresa she was getting a Tea Set. Jasmine wants to play the maid.

Things are getting back to normal quickly.

Thanks for your continued support.

Rhonda

Friday, October 8, 2004 5:03 PM CDT

Hello Everyone,

I hope this will be our last report from the hospital.

Since Sunday’s update, the doctors have determined that Teresa’s remaining adrenal gland can’t handle its job requirements. The left adrenal gland was removed when Teresa was diagnosed back in March. The adrenal gland is necessary to maintain electrolytes, blood pressure and the fright/flight response. The remaining adrenal gland had behaved since March. We are hoping that this week’s experience is only temporary. Teresa’s body has endured a lot of stress. Until it resolves itself, the condition can be managed with medication.

We are anxiously looking forward to going home. Last night, perky, talkative, silly Teresa reemerged. She chattered about Jasmine. She giggled and smiled from ear to ear. I was so happy that I called John to tell him that Teresa had returned.

Teresa started eating last night. Her appetite seems to be improving rapidly.

Everyone is encouraging Teresa to eat, drink, and take her medication.

On paper, Teresa’s immune system is excellent. She has healthy white and red blood cells and has a good supply of platelets. The doctors will still limit her visitors. The immune system is in its infancy. We still need to keep her away from crowds just as if she were a newborn baby. Customarily, healthy transplant patients are steered away from crowds until day 100 post –transplant. That date will be December 9th.

Thanks again for your continued prayers,

Rhonda

Sunday, October 3, 2004 9:16 AM CDT

Teresa is still asleep. She has been asleep since 8:00 pm last night. Viewing her counts has placed a smile on my face, as her counts are within normal ranges for most parameters. Typically, Rhonda authors this journal, keeping you all (family, friends and well-wishers) up-to-date on Teresa’s progress. But I thought I would take the opportunity this morning while I have a chance. Teresa is experiencing a little difficulty in getting enough oxygen as she will not inhale as deeply as she should. This is due to the procedure to clear her sinuses. She would probably be served well by taking her sinus medications, but she simply and adamantly refuses, which I am certain is direct result of her receiving Jasmine’s bone marrow. You see, Jasmine, a.k.a, “the rescue kid” has refused to take any medication since conception. I am being told that the best thing for Teresa is to get her out of bed, and have her walk around a little. But all in all, Teresa is really doing great. God has Blessed my Family.

I am soliciting your prayers for Rhonda. She spends 5 days and 5 nights every week in the hospital. When she doesn’t spend the night, she has extended visits during the day. When she’s at home, she tries to squeeze in a week’s worth of activities with Jasmine. Please pray for her strength, because she’s getting a little worn out. But, like me, she exists on the 12th floor, until we can bring our child home.

I must give thanks for my mother and father in-law, who have left their home to take care of ours. I must also give thanks to all of you, who continue to support us with love and prayers. God has truly Blessed my Family.

John Montgomery

Friday, October 1, 2004 9:42 AM CDT

Hello Everyone,

I’m still reporting from the hospital.

Monday afternoon:

Teresa has had a CAT scan of her head and neck. It was observed that 3 of the 4 pair of sinuses appeared cloudy on the scan.

Tuesday evening:

Teresa had surgery to clear her maxillary sinuses.

Since her surgery, her temperature is in the normal range.

On Wednesday, the doctor ordered a steroid to reduce any residual swelling. She was so moody Wednesday night that on Thursday I wanted to put a sign on the door that said “Enter at Your Own Risk”.

Thursday, the nurses had to hold her down to irrigate her nose. I didn’t stay and watch. I was frustrated with her rebellion that I walked down twelve flights of stairs. She, however, decided to comply for the other irrigations later in the day.

Teresa’s teacher, Mrs. Rindler, came by about 2 for class. Teresa was lying in the bed as if she just exited the womb. The teacher not only convinced Teresa to get dressed but she had Teresa smiling and laughing before class was over.

Teresa is truly stir-crazy. She has been in this room for 39 days. The only times she has left this floor has been to get radiation, a cat scan, and for 3 surgeries. She truly feels she is never going to leave this place.

In the midst of the drama of this week, Teresa’s blood counts are fantastic. Presently, her counts are in the normal range. The doctor feels that Teresa’s body has accepted Jasmine’s cells and those cells are busy working to strengthen Teresa. Teresa’s platelet count is at 130 t/mm3 which is the low end of normal. The platelet count is a good indication that the bone marrow is healthy.

Now begins the testing of our faith. Forevermore, whenever Teresa has a complaint about something hurting or a fever we have to trust that it is just a childhood illness and not a relapse.

If possible, we would scan her daily, hoping not to see anything growing inside of her, so we could rely on knowledge and not on faith. Since that option is not available, we have to rely on FAITH.

Thanks for your continued prayers,

Rhonda

Monday, September 27, 2004 2:17 PM CDT

Proverbs 27:1

Do not boast about tomorrow, for you do not know what a day may bring forth.

I read that this morning when I had to admit that Teresa will need to stay in the hospital.

She is doing okay. She developed a fever overnight. Provided her cultures come back negative she is still in for at least 3 days.

I guess I won’t mention a release date, until we are released.

Typically, transplant patients have to be hospitalized sometime after initial discharge. I am trying to be optimistic and say we are taking care of the return trip now.

Jasmine is doing well. She is being very understanding in regards to my absence.

Please pray for John. He sometimes works from 7 to 5 and then visits us until 9. He is getting tired.

Teresa’s birthday is October 12. The doctor said she could have a couple of disease free friends over. Please pray that she is at home to enjoy her birthday.

Thanks for your continued prayers,

Rhonda

Friday, September 24, 2004 1:44 PM CDT

Monday, September 27 is release day.

Teresa is going home sometime on Monday. She will receive one medication via IV and Home Health. This one medication, Neoral, has a liquid form which Teresa refuses to take. She would have to take 0.5 ml twice daily. 0.5 ml equals about 10 drops. She protests so strenuously that we are giving up and giving it to her IV. This medication is necessary so that she does not reject the cells Jasmine donated.

Since Teresa’s diagnosis in March, she has had three surgeries, 7 rounds of chemo, radiation from the top of her head to the soles of her feet, and blood and platelet transfusions. When she wasn’t in the hospital, we were going to the doctor’s office twice weekly. She has battled nausea on occasion, had people stare at her because she is bald, been called a boy, and missed out on so many things we used to take for granted. The only other time she protested treatment was when she needed to drink contrast for a CAT scan. Overall, she has complied.

Pray she will she concede and realize that 10 drops twice daily is better than 2 IVs over 4 hours per day.

Now that our stay is almost over, I can see that it wasn’t as bad as I feared. It wasn’t like staying at the Westin or the Wyndam Anatole but I did have a nice hospital bed instead of a fold out chair.

We must still restrict visitors. Basically, she will just see us and her homebound teacher.

She has bonded with her current teacher and will have to reestablish her relationship with the Allen teacher.

I hope to write more boring accounts of our life away from the hospital.

Rhonda

Wednesday, September 22, 2004 12:58 AM CDT

Praise be to God!

Teresa’s long list of medications has greatly decreased. As of today, she only has to take Neoral (anti-rejection drug) twice daily. The antifungal, antiviral, and nutritional supplements have been stopped. Teresa just needs to eat, drink, and take her one medication to get her walking papers.

Teresa’s white cells (infection fighters) and platelets (clotting agents) have started to go up on their own. Teresa is showing NO SIGNS of rejection. We will have to have FAITH that God’ healing consists of cancer remission and no detrimental effects from the chemo, radiation, or the drugs she has taken.

I am eager to go home but I don’t want a return visit. The doctors have told us next week but I would be willing to stay longer to avoid a return visit.

In the words of Kirk Franklin: “It’s gonna be a brighter day!

Lookin Out For Me by Kirk Franklin

Every time I look back, and every time I think back
On all the stuff I been through ,I prayed through I cried through
And then I tried You and Just ,When I was about to fall
Your love caught me when Your name I called
Jesus You keep on lookin out for me

Remember when the doctor said, He said he couldn’t help you and
Remember when the money was getting low, You’re hurtin now you’re feelin low and just When you thought the night would never end, The sun came out now you can smile again
Jesus You keep lookin out for me.

CHORUS

You keep on lookin out for me (3x), In spite of all I’ve done, Jesus You keep lookin out for me

I shouldn’t be here today, And when I look back on all my mistakes, If it hadn’t been for Your grace,
I don’t know where I’d be where I go, Who can love me like you do?
And who can hold me when I’m going through
Jesus You keep on Lookin out for me

If you had not guessed, I am listening to Kirk Franklin while typing this. Each song just reminds me more and more that I still have a lot to be thankful for and God is due His Praise.

Psalm 145:1-3

I will extol You, my God, O King; And I will bless Your name forever and ever.
Everyday I will bless You, and I will praise Your name forever and ever.
Great is the Lord, and greatly to be praised. And His greatness is unsearchable.

Go forth and Praise God.

Rhonda

Friday, September 17, 2004 12:01 AM CDT

Drama!

We have had none! It’s okay to watch on television or read about in a book; but, in real life I prefer the term boring.

Teresa’s white cell counts are progressing daily. Her platelets are not were we want them yet but no one seems upset about that issue. Teresa’s pain medication was stopped on Monday or Tuesday. Teresa’s mouth sores are almost completely healed.

The beeps in the middle of the night have decreased because some of her medications have been discontinued. Today, we will begin to change some of the IV meds to oral. We hope to convince her to eat something this weekend.

Last night, Teresa and Jasmine got to hang out together and enjoy their favorite past-time: TELEVISION. John and I could have left the room and they would not have noticed; just like at home.

I know that the Earth has continued to rotate on its axis so I sure that there are concerns outside of these walls. I pray everyone outside of this hospital room is enjoying life.

Rhonda

Monday, September 13, 2004 5:23 PM CDT

Hello Everyone,

While Teresa naps comfortably, a little girl a couple of doors down may be taking her final breaths. I see the strength of the Scott family (www.scotthousehold.com) as they let go of their 8 month old daughter. In this little elite club, (parents of potentially terminally ill children), we know that some of the children will proceed us to Glory. However, no parent ever wants it to be their child. Please pray for peace and comfort for the family.

Teresa is still climbing uphill. Her white cells are increasing, i.e. her immune system is trying to develop. Her platelets (cells which cause blood to clot) are developing slowly. She has had about 5 platelet transfusions thus far. The doctors tell us that the platelets are the slowest to recover.

So far, it appears that Teresa’s body is accepting Jasmine’s bone marrow. When together the girls tend to fuss. All of my friends who have sisters tell me that Jasmine’s and Teresa’s behavior is common. I’m so glad that their cells are not caught up in sibling rivalry.

Jasmine was allowed in Teresa’s room yesterday. Teresa can now venture out of her room as long as she wears a mask and stays on the 12th floor.

The doctors tell us that if Teresa doesn’t have any setbacks, she could possibly go home in about 2 weeks. Home will still require isolation; but, she will be in a multi-level, multi-room holding cell.

I’m getting the air ducts and carpets cleaned for her arrival. We have washed the windows and blinds. Drapes and bedding are at the cleaners. The house will probably be cleaner than the day we moved in.

Thanks for your continued prayers,

Rhonda

Friday, September 10, 2004 9:48 AM CDT

Sorry I did not update for a few days. Remember the old adage: No news is Good news.

Teresa is doing fine and improving every day. Her white cells (infection defense system) are gaining daily. The white cell count needs to get to about 8 thousand. So far she is at 500. Two days ago she was at 100. Since Teresa’s marrow was supposed to have been destroyed by the radiation and chemo, we believe that the marrow donation from Jasmine has begun its’ rescue. The marrow from Jasmine is slowly making itself at home within Teresa. THIS IS WHAT WE WANTED TO HAPPEN!

Teresa’s mouth pain has greatly abated. Sometime she wants to catch up on her talk time. She excitedly talked to Jasmine on Tuesday. They both sounded happy.

Teresa is doing a great job with her school work.
Jasmine is happy. My mother is making sure Jasmine gets all of her homework done. I told my mother she needs to stay until Jasmine finishes fifth grade.

It is such a blessing to have my parents here. Jasmine gets to know them better. My mom takes care of the house. My dad is Jasmine’s personal chauffeur, delivering safely to and from school and gymnastics.

John and I are doing fine. We have resolved that we will switch kids at designated times. The girls seem to understand. Hopefully, Teresa’s counts will improve to the point were Jasmine can visit and we can spend some family time together in this little hospital room.

Some of you have commented on the faith and strength that John and I appear to have. Please give that praise to God for it is truly the Holy Spirit at work within us. For example, on Sunday I went to church, sang the praise songs, and listened to the sermon. When church was over, I went out of my way to avoid talking to people for fear I would break down. We and all parents who are members of our little elite society (parents of children with serious or potentially terminal illnesses) need constant intersection on our behalf. I want to thank all of you who continue to pray for us. The smiles or laughter we exhibit is only because through your prayers, God reminds us that He Has Got This!

Please pray for the family of Allie Scott. The doctors say that her time here is very limited.

Rhonda

Tuesday, September 7, 2004 4:15 PM CDT

Today is truly a better day. Teresa woke this morning with a low grade fever versus one over 101. She slept well last night. Don’t tell Teresa; but, I glad she has convenient hearing. She is able to sleep through the beeping of the iv pumps in the middle of the night, the nurses coming in to adjust the pumps, the nurse’s aide taking blood pressures and temperatures.

She slowly becoming the content child she used to be. She has decided to be nice to the Homebound Teacher. Their first two visits were not at all pleasant. Today, the teacher left with a smile on her face, amazed at how bright and engaging Teresa can be.

Teresa enjoyed the non-medical visitor so well that she immediately began to work on her assignments.

Medically, the doctors still say she is doing well. All systems are operational. She retains fluid which is removed with the aid of a diuretic. Her pain is under control. She seldom asks for any additional boosts of medication.

Jasmine returned to school today. She was given a Buddy from the High school. The buddy will offer moral support to Jasmine during Teresa’s recovery.

Thanks for your continued prayers.

Rhonda

Monday, September 6, 2004 9:42 AM CDT

Hello Everyone,

Teresa has had a rough couple of days. Her pain worsened on Friday and Saturday. We decided to place her on continuous pain relievers. This way she should not experience peaks and valleys of control. As of yesterday, she was able to talk easier. Her pain is caused by mouth sores which is a result of the radiation and chemo.

Saturday evening the doctors started her on antibiotics. Her fever is still not under control but it is manageable.

During the midst of all of this anguish, Teresa comforted me. I was tearing because John and I allowed the doctors to do all of these things to her which would cause pain. Teresa asked, “Why do you look that way (pitiful I guess)?” I told her that I wanted her pain to stop and that I could not really do anything to help her. Her response: “YOU CAN STOP CRYING!”

Okay, how often does the patient encourage the caregiver?

Jasmine update:

Yesterday, I asked Jasmine to do Head and Shoulders, Knees and Toes. I was an attempt to see if she could bend her back and stretch her hips without hurting. She not only did that but she did a cartwheel. I guess she is back to her old form.

After doing so much classwork at home, Jasmine has decided that she will never miss a week of school again. We are sending back to school tomorrow with TWO backpacks. On Monday of last week, we probably brought home 7 textbooks.

Please continue to pray for Teresa’s speedy recovery and for peace in the midst of this trial for the rest of us.

Rhonda

Friday, September 3, 2004 12:01 AM CDT

Well the drama begins.

The doctors are adjusting Teresa’s nausea meds. She has been vomiting mucus and bile about 4 times a day. It isn’t very much at a time but Teresa reacts as if she is pulling the phlegm from the soles of her feet. The nurses set up a device that she can use to extract the excess saliva from her mouth. It works like the tube that the dentist uses to extract excess water while cleaning your teeth. Of course, she doesn’t want to try it.

The above mentioned problems are a result of her total body irradiation and high dose chemo she received last week.

She admitted to the doctor that her throat hurts. The doctor in turn ordered a narcotic to handle her pain. He said that it may come to a point in which she will need a PCA pump (patient controlled administration).

All of the above is what the doctors warned us would happen. It is hard to see it in action. We are shown daily how we can control absolutely nothing.

The doctors anticipate that Teresa will begin to need blood and platelet donations in the near future. Please consider donating at any Carter Bloodcare Center.
. Teresa's acct # is SPON 039359.

Two Collin County locations are

322 W.Campbell Richardson, Texas 972-437-4483 or
4709 W Parker Road Suite 505
Plano,Texas 75093
972-612-2098

If anyone wants to organize a blood drive just email me and I give you the contact person’s name.

There is still good news. Teresa hasn’t developed an infection. Her temperature, blood pressure, and breathing are still great.

Teresa is napping right now. I better use this opportunity to get something to eat.

Please continue to pray that all the Teresa suffers will bring Glory to God and that her EARTHLY healing will manifest itself REALLY, REALLY, QUICKLY.

Rhonda

Wednesday, September 1, 2004 4:37 PM CDT

Transplant day started at 4 am. I had set my clock for 4:15. My caring father woke me up at 4 by turning on the overhead light. “Aaah, bright light, bright light!” My father probably has been waiting twenty years to wake me up in the morning.

Jasmine and I made it to the hospital about 6 am. She had endured pre-op testing on Monday; therefore, we just had to show up for her to get her name tag and get blood pressure and temperature taken before going into surgery.

Jasmine has two marks on her rear about the size of a sharpie marker point. Thankfully, technology allows the other 98 sticks into her marrow to be done under the skin versus through the skin.

Jasmine’s first comment after waking up from the surgery was “My butt hurts.” She was up walking around within a couple hours of the surgery. She said that the pain was not too bad. She has refused to take any pain relievers. My children hate taking medication by mouth. They are so glad that IV formulations are available for most medications.

Jasmine woke this morning without pain. Her biggest issue now is doing all of her classwork at home instead of at school. She felt so good yesterday that she called the teacher to ask what the teacher was teaching at that moment.

John and I got plenty of exercise yesterday. We kept swapping kids. They were in two different buildings. John would visit with Jasmine while I visited with Teresa then we would switch. When we were not switching we were calling each other on our cell phones.

The fluid extracted from Jasmine’s bone marrow was filtered and infused into Teresa before Jasmine was released.

Teresa received a cake in celebration of her new birthday. Her life will forever be dated post transplant. For example, today is Day 1 post transplant. When she is ten, it will be 3 years post-transplant.

Before Jasmine and I went home for the day, we were allowed to be together as a family for a whopping 5 minutes. Teresa and Jasmine smiled, chatted a little, and hugged. They were truly happy to see each other. They probably will not get to see each other until Teresa’s counts go up which may take 2 to 3 weeks.

Teresa’s hardest trial will be the next two weeks. Her white blood cells (busybodies that prevent/fight infections) will be non-existent soon and remain that way until Teresa’s body starts producing bone marrow again.

Right now, Teresa’s day consists of playing on the computer, playing her gameboy, watching TV, and being permanently attached to an IV pole.

She receives the following types of drugs:
1. Anti-rejection
2. Antiviral
3. Hydration
4. Nutrition
5. Steroid
6. White cell stimulator
7. Anti-nausea

If she should develop an infection, the doctors will probably add at least 2 more drugs.

I said all the above in order to say: KEEP PRAYING!!!!!!!!!

Please pray for Allie Scott and her family. She is 8 months old and the family received some devastating news.

Rhonda

Monday, August 30, 2004 6:40 AM CDT

NO MORE CHEMO REQUIRED

Sunday was Teresa’s last dose of chemo. We pray we never have to use that word ever again.

She has handled all of the treatment thus far without incident. Her major hurdle thus far is overcoming cabin fever. She wants to get out of her room so badly that she is willing to submit to more radiation just to leave the room. Of course, that is not an option.

Today, her body gets a day of rest from harsh treatment. She gets Jasmine’s cells tomorrow afternoon.

So far, Jasmine is okay. We will have to be at the hospital at 6:30 on Tuesday. Therefore, we will have to leave home no later than 5:45.

Jasmine’s major concerns are the following: When do I eat? and How much will it hurt?

Teresa’s immediate neighbors are infants battling different yet potentially terminal diseases. Please pray for them as well, Fieldon and Allie.

Sydney Sims of Florida, who has the same disease as Teresa, is battling a serious infection and cancer is again present in her bone marrow. Please pray for her quick recovery.

Thanks for sharing your time with God with us.

Rhonda

Friday, August 27, 2004 2:22 PM CDT

Last night at about 1:30, Teresa woke up to go to the bathroom. Before she got out of the bed she asked if I would run away with her. She had such delight in her voice when she asked the question. Now of course, she remembers nothing about the statement.

She woke this morning with a smile on her face. She has been quite pleasant. She has eaten.

For exercise, she attempted to ski down the bed. She raised the head of the bed as high as it would go. She then climbed until she could sit on the very top. She then slid down the bed. The chemo started today. I’ve told you before how it must contain some amphetamines. Her counts are dropping as expected. We will probably have to decline visitation over the weekend. I also learned that the hospital suggests that we not bring any balloons or things that can collect dust into the room.

I’ve already packed for my sabbatical at home this weekend.

Please pray for Jasmine. She is afraid of the pain she might have after donation.

Thanks again for prayers. Don’t forget to sign the guestbook.

Rhonda

Thursday, August 26, 2004 10:48 AM CDT

Shortly after I accepted my salvation in Christ Jesus in 1988, I purchased a key chain with the following scripture: Isaiah 40:31 - But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.

Last night, I realized that the scripture says nothing about how long to wait. But, I also realized that God has been renewing our strength daily. In a world which wants immediate gratification, waiting is a hard principle to accept. Since March we have gotten more practice in the art of waiting. Through the waiting, we have truly appreciated each day.

Since Teresa’s arrival into the stem cell transplant unit, I have met other families who continue to press on through their trials. They are smiling and laughing in the midst of their concern.

We all know we have no power. All we can do is Stand on the Word of God and depend on God for healing for our children. We have cast our burdens onto the Lord as the Word says in Psalms 55:22: Cast thy burden upon the Lord, and he shall sustain thee.

I truly believe that the only reason we are not in a constant state of dread is because God is sustaining us.

Teresa has one more radiation treatment. She starts high dose chemo tomorrow. She has been in good spirits with an occasional mood swing. Jasmine is being very compassionate. Whenever I speak with her she always asks about Teresa. I’m sure she is looking forward to me being home a little while this weekend.

Thank you to all who have sent gifts for both girls.

Thank you for your continued prayers.

The Spirit at work within you knows what the mind of the Spirit is because he directs you to make intercession for the Montgomery family according to the will of God.

Rhonda

Wednesday, August 25, 2004 10:55 AM CDT

After my update yesterday, Teresa felt good enough to request private time with her beanie babies. She kicked me out of the room three times. At home she would always retreat to her room to spend time talking things over with Barbie and her stuffed animals.

She wants to see someone other than family members. When I told her that her friends could not visit because they were under 14 she replied, “I’m not 14 so I should not be in this room.” I then explained that the rule does not apply to the patient. The staff did bend the rules and allow Jasmine to visit. Jasmine immediately came in and started riding the exercise bicycle.

Teresa had worked tirelessly on a gift for Jasmine. As instructed, Jasmine received the gift with much enthusiasm. After dinner, Jasmine and I worked on homework while John stayed with Teresa. Jasmine seemed to enjoy our time together. I guess I did not have time to turn into “Mean Mommie”.

Please continue to pray for our strength, emotionally and physically.

Thanks again for your notes of encouragement.

Rhonda

Tuesday, August 24, 2004 10:51 AM CDT

August 24, 2004

What a difference a day makes!

Monday was crazy. Teresa went to radiation twice for about 45 minutes each session. She handled lying still quite well.

She also had to have surgery to place a central line. This will allow the infusion of multiple items a one time. The anesthesia mixed with the pain medication turned her into a sobbing wino. She blamed herself for the pain then of course she blamed me. She wanted Jasmine and John. She told me to leave, and then she said she needed a hug. She cried. I cried because I could not fix her pain nor could I ease her anxiety.

However, the crying did pass. She later ate, watched movies, hogged the computer playing video games, and gave John a hard time. She slept well and has been in a relatively good mood today

She is already bored and tired of having to stay in her room. The playroom is off limits since she is in the transplant ward. She is busying herself by having some detailed conversation with her stuffed animals.

She still has a rough road ahead. Please pray that I remember all of those scriptures I quoted when she is less than her usual perky self.

Thanks again for standing in the gap,

Rhonda

Sunday, August 22, 2004 2:00 PM CDT

My wife, Rhonda has maintained this website from the start, and has done a good job keeping everyone up to date on all that is going on. Today, however, I have decided to provide a male perspective. As you are already aware, on March 22, 2004, my family received life changing news. Through it all, we have learned how to pray, love and hope. The support that we have received from our friends, neighbors and co-workers has been tremendous. We have drawn strength from their encouragement. Teresa has done remarkably well through all of the chemotherapy and radiation treatment. Today, she will be admitted and will begin the final stages of treatment prior to her transplant. Her spirits are high. Jasmine, her sister and rescuer, is also having a good time today. I am very proud of how they have come together over the last few days. They have kept each other grounded. I have often said that Teresa will touch a lot of souls in her life time, and that she was destined for something special. Her destiny remains to be seen or realized, but in the years to come, I am sure that she will realize her destiny. A dad’s job is to be strong, to have all the answers, and to be the one who is blamed for everything that goes wrong, especially in a house full of girls. So far I have lived up to my end of deal!

John

John started the letter because I didn’t know how to start. Teresa still has a hard road ahead. We have prayed for healing. Soon we will find out whether the healing will be earthly or heavenly. Through all of this we have been blessed. We have been spared many things others have had to endure. Such as: fights with the insurance company, having to leave our home and traveling great distances for treatment.

We have been able to keep our heads up and see the blessings God has before us because of the continued prayers of the saints.

Thank you for praying for us.

The next few days of treatment for Teresa are outlined below. Please pray that the treatments kill any remaining cancer and that all of her organ functions remain unaffected. The list of possible short term and long term side effects is quite extensive. Just pray that she remains the perky, talkative little girl who just happens to get an extended stay at the hospital. I will list the room number and telephone number later tonight or tomorrow. The hospital recommends we limit visitation. No one under 14 will be allowed to visit. Only 2 visitors are allowed at any one time. Which really means one since John or I will be with her at all times. If you desire to send something, she can not have any fresh fruit or flowers. She can not have dried fruit or flowers either. Mylar balloons and stuffed animals are okay. However, she does not really need anything.

Treatment plan- the short version

Before the transplant on Tuesday, August 31st, she will have to have surgery to insert another catheter. (This will aid in giving multiple drug infusions). Her whole body (hairs on head to soles of feet) will be radiated twice daily for four days. All of this will be followed by 3 days of high dose chemo.

Jasmine's bone marrow is used to rescue Teresa from the above treatment.

May we continue to remember Romans 8:26-28, 31, 34, 37-39 Likewise the Spirit also helpeth our infirmities: for we know not what we should pray for as we ought: but the Spirit itself maketh intercession for us with groanings which cannot be uttered. And he that searcheth the hearts knoweth what is the mind of the Spirit, because he maketh intercession for the saints according to the will of God. And we know that all things work together for good to them that love God, to them who are the called according to his purpose. What shall we then say to these things? If God be for us, who can be against us? He that spared not his own Son, but delivered him up for us all, how shall he not with him also freely give us all things? It is Christ that died, yea rather, that is risen again, who is even at the right hand of God, who also maketh intercession for us. Who shall separate us from the love of Christ? Shall tribulation, or distress, or persecution, or famine, or nakedness, or peril, or sword? Nay, in all these things we are more than conquerors through him that loved us. For I am persuaded, that neither death, nor life, nor angels, nor principalities, nor powers, nor things present, nor things to come, nor height, nor depth, nor any other creature, shall be able to separate us from the love of God, which is in Christ Jesus our Lord.

Ephesians 3:20-21
Now unto him that is able to do exceeding abundantly above all that we ask or think, according to the power that worketh in us, unto him be the glory in the church and in Christ Jesus unto all generations for ever and ever. Amen.

Thanks again for your continued prayers.

Rhonda
Don't forget to sign the guestbook. If you have any private messages, just email me at the link provided.

Sunday, August 15, 2004 6:11 PM CDT

Teresa had a good week. She went to school daily for 4 hours. She started radiation to the original tumor site on Wednesday. The radiation treatments have not slowed her down. She is full of energy.

I’m teaching her to multi-task. While waiting for Jasmine in the pick up line, Teresa and I do her required reading.

Teresa still keeps us laughing.

Saturday, she was in trouble for fighting with her sister. Of course, she blamed Jasmine for the fight.

The smart mommy that I am, I said, “Two wrongs don’t make a right.”

Teresa replied, “Three rights make a left”.

My straight face lasted a full 2 seconds before I started laughing.

We have one more week before Teresa’s hospitalization.

In future updates I will speak of some of the procedures Teresa has ahead of her.

Thanks for your continued concern and prayer,

Rhonda

Monday, August 9, 2004 8:42 PM CDT

August 9, 2004

Counts are good. Teresa is happy and very energetic. We have been trying to fit in as many fun things into our life as we can.

We went skating on Friday. It was more like I towed Teresa around the rink. Occasionally, she skated on her own. Mostly, we skated hand in hand. I felt that John was missing out on joy as he was busy bringing home the bacon. Jasmine enjoyed herself as well. Jasmine joined in the hand holding during the turns in the rink.

Saturday, we were treated to Ringling Bros and Barnum & Bailey Circus. It was our first time in the American Airlines Center. We had great seats. The circus was quite entertaining.

Sunday, we visited one of Teresa’s close friends.

Today was the first day of school. Jasmine said,” I need one more week to rest before starting school.”

Teresa went to class, gave me a kiss on the cheek, and sent me on my way.

The first day of school was “the Best Day Ever” per Teresa.

Wednesday, August 4, 2004 8:25 PM CDT

August 4, 2004

Great news! The doctors gave her permission to attend school the two weeks before hospitalization as long as her blood counts are okay.

The doctors are in full preparation for the transplant. Teresa has had a few tests to establish baselines in the event the treatment alters her heart or lung function. Six to eight little test-tubes of blood were extracted from both Jasmine and Teresa. I signed consent forms for the transplant which listed everything possible which could go wrong.

Undeterred, Teresa has been as cheerful as ever. Teresa is eating every chance she gets (vegetables included), making up silly songs to sing, and finding ways to make us laugh. Last night, she told me to give her five. As I attempted to slap her hand, she continued with “thousand push-ups”. She knows I probably need oxygen if I do 10 push-ups. She is such a character. I wish we could have a film crew follow her around. She is so much funnier than some of the shows on TV.

She is excited about starting second grade. She has been playing "Bespelled" on the internet. She made it to level 8 with 180,000 points. Today, when I asked her if she wanted pasta and barbeque ribs on Thursday before “Meet the Teacher”, she told me that “Ribs are soooo 1st grade”. Maybe if I promise not to tell she will eat the ribs.

We went to Build-A-Bear today. She picked out an adorable dog. We compromised. I have told her that she can have a dog when she has her own apartment. Since this dog doesn’t need food, vet, walking, or a pooper scooper I said she could have her dog now. She named it after her friend, Megan, the Child Life Specialist.

Find time to laugh, it helps you enjoy life.

Rhonda

Sunday, August 1, 2004 2:59 PM CDT

August 1, 2004

Teresa and the family had a good week.

On Monday, I managed to bake a sheet cake without burning it. The family ate half of the cake after dinner.

Tuesday, we had friends over. The kids played freeze-dance and ran around the house talking loudly.

Wednesday, Teresa needed a blood transfusion. I was semi-prepared. I had the trusty laptop for entertainment. However, we reached some surprising news. Megan, Teresa personal Child-Life Specialist, has chosen to take a job outside of the hospital. Megan was always a friendly ear for Teresa. For sometimes kids feel better telling others about their concerns than their parents. Megan will be missed. We wish her well in her new endeavor.

Thursday and Friday we just hung around the house after getting home from the radiation treatments. A photographer was at the hospital Friday to take pseudo Glamour Shots. Teresa wore a lion costume while Jasmine wore a princess costume. The girls were also able to take pictures with Megan before we left.

Saturday, John and I went on a date. We ate Mexican food in a little hole in the wall (The best type of restaurant) and went to the movies. We managed to stop talking about the girls within an hour of date.

Praise God, Teresa has been able to sleep in a bed in the house (she somehow ends up in our bed) for 5 weeks. This is the longest she has been home at one time since March.

Teresa has been quite active. I sometimes wonder if she really has been getting chemo and not amphetamines (uppers).

School starts in about 10 days. Hopefully, the doctors will let her go at least half a day until she is hospitalized on the 22nd.

As her hospitalization approaches, I sometimes feel overwhelmed. She and I for the most part will be in a hospital room where I have to leave to go to the bathroom and to eat. The hospital recommends that we limit her visitors. Jasmine will not be allowed to visit until the doctors feel Teresa is not a risk for an infection. The hardest part will be to convince Teresa to eat the hospital food for all restaurant food will be prohibited.

Please continue to pray for I truly believe we go forth because of the intercession of the saints.

Rhonda

Saturday, July 24, 2004 6:30 PM CDT

July 24, 2004

Well, we survived Intestate 75 and its drivers. Teresa handled the chemo and radiation rather well. Most days she killed time with her video games, listening to her cds and of course humiliating me in Uno.

We had an impromptu party Friday. Teresa played herself out. The next party will have to be shorter than 4 hours.

The doctors have given us the schedule which leads up to the transplant. They reiterated that Jasmine is as close of a match as a non-identical twin sibling can be.

Provided there are no unforeseen complications, Teresa will begin her countdown to transplant on Monday, August 23. Jasmine’s bone marrow will be extracted on the morning of August 31st and given to Teresa that afternoon. (FYI- August 31st just happens to be our anniversary -13 years).

According to medical science, the transplant is Teresa’s best chance at full recovery. The transplant comes with risks. Mainly, Jasmine’s marrow realizing that it is in a foreign environment and attacking Teresa’s organ systems.

Please pray that we all (everyone that knows us or knows of us, and of course us) Glorify God through this trial.

Many people have asked “How we are doing?” I guess you want to know how we function in the midst of this.

We laugh a lot. Teresa keeps us in stitches with her jokes and facial expressions. I laugh at myself when I do silly things, such as looking for an earring that is already in my ear or wondering why the bacon is not cooking when I haven’t turned on the fire. Ultimately we truly understand that tomorrow is not promised. We don’t waste time moaning about our situation. We are grateful that God continues to provide. Right now, we can fully give our attention to the girls. We lack nothing.

Today, I realized that we truly have to trust God forevermore! Neither we, nor the doctors can guarantee that all of the procedures done thus far or which will be done in the future will prevent this disease from reoccurring. Relapse cure rates are written in single digits if at all.

I was lead to this scripture today:

Isaiah 41:10 Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes I will help you. I will uphold you with My righteous right hand.

Thanks again for your continued prayers.

Rhonda

Saturday, July 24, 2004 5:19 PM CDT

July 24, 2004

Well, we survived Intestate 75 and its drivers. Teresa handled the chemo and radiation rather well. Most days she killed time with her video games, listening to her cds and of course humiliating me in Uno.

The doctors have given us the schedule which leads up to the transplant. They reiterated that Jasmine is as close of a match as a non-identical twin sibling can be.

Provided there are no unforeseen complications, Teresa will begin her countdown to transplant on Monday, August 23. Jasmine’s bone marrow will be extracted on the morning of August 31st and given to Teresa that afternoon. (FYI- August 31st just happens to be our anniversary -13 years).

According to medical science, the transplant is Teresa’s best chance at full recovery. The transplant comes with risks. Mainly, Jasmine’s marrow realizing that it is in a foreign environment and attacking Teresa’s organ systems.

Please pray that we all (everyone that knows us or knows of us, and of course us) Glorify God through this trial.

Many people have asked “How we are doing?” I guess you want to know how we function in the mist of this.

We laugh a lot. When I do silly things, such as looking for an earring that is already in my ear or wondering why the bacon is not cooking when I haven’t turned on the fire. Ultimately we truly understand that tomorrow is not promised. We don’t waste time moaning about our situation. We are grateful that God continues to provide. Right now, we can fully give our attention to the girls. We lack nothing.

Today, I realized that we truly have to trust God forevermore! Neither we, nor the doctors can guarantee that all of the procedures done thus far or which will be done in the future will prevent this disease from reoccurring. Relapse cure rates are written in single digits if at all.

I was lead to this scripture today:

Isaiah 41:10 Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes I will help you. I will uphold you with My righteous right hand.

Thanks again for your continued prayers.

Rhonda

Thursday, July 15, 2004 8:11 PM CDT

July 15, 2004

Today we went to The Science Place.

Although, we have seen most of the exhibits several times, the girls still enjoy going. We did do something new today. We rode the Swan Paddle Boat in 95 degree heat. I had to paddle the boat with my out of shape self. I could barely walk after the trip around the pond.

Teresa started radiation Tuesday. She has not had any complications. Praise God.
She will start outpatient chemo on Monday. Please pray that 75 and its’ drivers are nice to us next week.

Please pray for the Mease family in Pennsylvania. Their daughter, Michaela, died this morning. Please pray for comfort and peace for them.

Teresa is energetic and happy. If she did not have a little bald head, no one would know that she is fighting a potentially terminal illness.

Thank you for your prayers.

Please look at the pictures and sign the guestbook. A note in the guestbook is not necessary, your name is enough.

Rhonda

Monday, July 12, 2004 11:15 AM CDT

July 12, 2004

The week has been calm.
Friday, Teresa needed blood and platelets so we had another 6 hour appointment. We had planned to do something fun on Saturday but her counts were still down.

On Sunday, Teresa’s friend, Jessica and Jasmine’s friend, Samantha, came over for a sleepover. I passed out around 11:30. The 7 year olds stayed up to 1:30 and the 10 year olds made it all the way to 2:00.

I can’t describe any of the hilarious things that Teresa does. I told John that we need to have a camera going continuously throughout her waking hours for she just makes you laugh. The other day she and I were playing an innocent game of Uno when she started singing a song about humiliating her mother in Uno. In case you wondered, YES she did humiliate me.

This week she starts radiation. If she tolerates it well, I will surprise her and Jasmine with a trip to the Science Place.

The doctors postponed chemo for a week so she will have the duo of chemo and radiation next week.

Thanks to all of you for your prayers. Know that Teresa is as energetic and loving as ever.

Rhonda

Sunday, July 4, 2004 10:17 PM CDT

July 4, 2004

Happy Fourth of July

We just returned from watching the fireworks in Plano. Allen had them last week and Teresa missed most of them so we went to Plano tonight. We found the OFF, sprayed ourselves, and climbed into the back of John’s truck.

Saturday we spent most of the day at the hospital. Teresa was complaining of headaches that were a pain level of 4 on a 0-5 scale. The doctor thought that Teresa’s headaches were caused by a low hemoglobin count; thus, she went to the hospital for a blood transfusion.

Some of you may be confused about the way I report her progress. The chemo cycles are designed to start when her immune system is at its’ best. After chemo her levels fall which often require platelet and blood transfusions to give her a boost until her immune system kicks back in.

Overall, she is feeling good. She has been singing, kicking us out of her room, and playing on the computer.

As I think about yesterday, I realized that because she was at the hospital we were forced into some family time. If we had been at home, we probably would be in different rooms doing our individual things.

That’s all for now.

Rhonda

Friday, July 2, 2004 9:02 PM CDT

July 2, 2004

We have had a good week thus far. However, another family whose daughter, Michaela has the same disease as Teresa, has been placed in hospice care. Michaela has endured two bone marrow transplants and the disease has reoccurred twice. The doctor’s only plan now is to manage her pain. Please pray for peace for the family.

Now for the Teresa update

Monday, Teresa’s friend, Jessica came over for a few hours. Teresa and Jessica ran all over the house playing. They even convinced me to bake Sugar Cookies. They filled the house with giggles. When Jessica’s mom came to pick her up we had to chase them around the house in order to get Jessica out of the house.

Tuesday, we went to the doctor for lab work. Wednesday, we hung around the house because it was raining and Teresa’s counts were down.

Thursday, we went to the hospital for a platelet transfusion.

Friday, we went to see the Radiation Oncologist. It appears Teresa will start Radiation July 13 along with another round of chemo.

Through it all, Teresa is quite happy and cheerful.

Sunday, June 27, 2004 4:00 PM CDT

June 27

We are home from the hospital. Teresa is happy. She and John got home just in time to see the finale of the Fireworks show. Saturday evening before discharge Teresa called to find out if she could go out on a date at 15. I told her she could only go if I went with her. We joked back and forth on the phone for a few more minutes then she hung up on me.

Before discharge the doctor told John that more tests came back with great results. We will find out next week when we will meet with the Radiation Oncologist.

Thanks for all the encouraging messages in the guestbook.

For all those who donated blood in honor of Teresa. Thank you. We don’t know who all of you are because of the Privacy Laws.

Thanks again for your prayers and your encouragement.

Rhonda

Thursday, June 24, 2004 2:33 PM CDT

Our God is an Awesome God,
He Reigns from Heaven Above
With Wisdom, Power, and Love,
Our God is an Awesome God!

(One of the songs Teresa requested on the day of her surgery)

June 24, 2004

We have had an interesting time thus far during this hospital stay. I tell the story later but first I would like you to intercede for 2 more little girls who also have Neuroblastoma.
Sydney S. from Florida and Michaela M. from Pennsylvania. They are about the same age as Teresa. From the emails I’ve received from their mothers, their journey has had crooks and bends. Please pray for the families continued strength and the complete healing for their children.

Tuesday morning the doctors did a bone marrow biopsy to determine the effectiveness of the drugs. Wednesday, a MRI and CT scans were scheduled. Wednesday was crazy.
I woke Teresa up at 8:00 (her usual wake up time is 10:30) to try and get her to drink a lemonade concoction of contrast dye. Fortunately, the MRI transport came and took us to listen to a continuous oscillating motor which required earplugs to just be in the room.
She somehow slept during the hour test which was the reason she gave for staying up to midnight.

After the MRI test it was time to drink the lemonade concoction. Three different people, nurses and child life specialist, tried to talk Teresa into drinking the abomination. We finally had to force a ng tube down. If a boxing announcer had been here, he would have said “Now entering the ring, Teresa AKA Jet Li, Jackie Chan, Neo from Matrix, and Muhammad Ali. Her opponents today include her mother to hold her upper body, one nurse to hold the legs, another to hold the hands, and still another to insert the tube.”

We got the tube down and the contrast in only for her to throw half of it up. Thru all of this she wasn’t allowed to eat. So finally at 4:30 we go down for the scans. We get her on the table ready to begin …stop… bathroom break needed.

After we finish the scans we rush back to the room. Teresa is ready to eat the sheet because she is so hungry. I’m hungry as well because all I had all day was a granola bar.

Two hungry Montgomery women – watch out.

Teresa is hungry yet still boycotting the hospital food. I take off to KFC for chicken and mac and cheese.

We finally eat and the earth continues to rotate.

Through all of the chaos the oncologist tells the nurse that the pathologist said “THE BONE MARROW IS FREE OF CANCER”.

I’m so scatter brained that John is here at 30 minutes before I remember to mention it.

Teresa also had some wonderful visitors. Christine and Elise Arias. Elise and Teresa played uno, watched a movie, and just chatted like kids do.

After the tests Teresa returned to her Cheerful Self.

Today, the oncologist also told us that the scans showed that from the chest down was clear of cancer. He also told us that what was in the skull/ brain stem area was 85 to 90 one.

All of this time, John and I knew that there were cancer cells behind her optic nerve. Yet we never classified it in our minds as a brain tumor. At any rate whatever is showing on the MRI scan are most likely just dead cells. The doctors feel that there is absolutely NO REASON for brain surgery. I feel we didn’t concern ourselves with this because the Spirit of the Living God knew how much we could bear.

We will find out within the next 2 to 3 weeks if we will skip cycle 6 and proceed to a week of radiation before the transplant or what they have in store.

We and even the doctors are encouraged. Please continue to intercede for us.

Rhonda

She will be in the hospital until Saturday evening.
Room 610 Building D 972-566-8710

Monday, June 21, 2004 8:45 PM CDT

June 21, 2004

Teresa is ready for cycle 5. She has had a good week. We went to an arcade, the mall, and to church.

Her appetite has returned. Her favorite food this week is Cheese Ravioli. I bought some to take to the hospital since she boycotts the hospital food.

Teresa will be scanned again before or during the chemo.

The hospital number is 972-566-8710 and my cell is 214-679-5694. We are in room 610 Building D
She has requested visitors so if available feel free to come by.

Feel free to email me. I can receive my Comcast.net mail but I can’t send from it while at the hospital.

Rhonda

Monday, June 21, 2004 8:39 PM CDT

June 21, 2004

Teresa is ready for cycle 5. She has had a good week. We went to an arcade, the mall, and to church.

Her appetite has returned. Her favorite food this week is Cheese Ravoli. I bought some to take to the hospital since she boycotts the hospital food.

Teresa will be scanned again before or during the chemo.

Feel free to email me. I can receive my Comcast.net mail but I can’t send from it while at the hospital.

Rhonda

Monday, June 21, 2004 8:26 PM CDT

June 11, 2004

We returned to the office for fluids and a platelet infusion. Jasmine wanted to hang with us instead of going to daycare. Thank goodness for a laptop. The computer games kept her entertained for the 8 hour appointment. When Teresa was receiving fluids the three of us were in the bed together. I started singing 3 in a bed and the little one didn’t say anything because she was sleep.

Five hours after getting home, John took Teresa back to the hospital with a fever. We stayed until Monday afternoon.

Thursday, June 17

Teresa had a hearing test in a sound proof room to determine if the medication had affected her hearing. The tests showed she has lost some hearing in the high tone range. The audiologist did not tell me the exact frequency lost.

Monday, June 21, 2004 7:44 PM CDT

June 5

Just in case you doubted - the fervent prayer of the righteous availeth much.

Teresa just finished her fourth course of chemo. On May 24, her routine blood work showed her platelet count to be 39 t/mm3. The platelets allow the blood to clot when a cut occurs. A normal healthy child should have a platelet count of 130-400 t/mm3. On Tuesday, June 1 when cycle 4 of her chemo was scheduled to start her platelet count was 312 t/mm3. The doctors were excited. They told us that because her platelet count was so good chances are that no cancer is present in the bone marrow. The bone marrow is the organ that produces the red and white blood cells as well as the platelets. I.E. , the chemo is defeating the cancer .

Thank you all for praying for us and checking up on us.
Please continue to stand in the gap for us for I know that the only reason we go on is because you along with the Spirit are making intercession for us with groanings which cannot be uttered.

Let the following be our testimony.

As Jesus told the disciples in John 11:4 when told of Lazarus's sickness that "This sickness is not to end in death, but for the glory of God, so that the Son of God may be glorified by it."

Rhonda

Monday, June 21, 2004 7:42 PM CDT

Blood drive results

Mike Gonzalez from Carter Blood Care said that the church won some type
of plaque for having a blood drive at such a critical time and he will
stop by tomorrow to deliver it to you personally. He said that our
drive was one of their more successful one's.

Blood Drive Stats:

32 Donated Whole Blood
17 Rejected
2 Donated Platelets

I am glad the we were able to help.

Wendy

Monday, June 21, 2004 7:41 PM CDT

May 28

We met Gail at the Frisco mall to see Shrek 2.

We then went to Chuck E Cheese. The girls had fun while the adults were exhausted. A lady spoke to Gail and asked about Teresa. The complete stranger told Gail that God would heal Teresa.

Monday, June 21, 2004 7:40 PM CDT

Info to a friend
On March 22, I took Teresa to the doctor because she had been complaining over the weekend that her back was hurting. She had been experiencing low grade fevers off and on for 10 days so I thought she had an urinary tract infection. Once that was ruled out, the doctor did blood work in the office and immediately sent us to the oncologist.

The oncologist immediately did a bone marrow biopsy and a spinal tap. The following day Teresa had CT scans which showed the tumor lodged between her spleen and left kidney.

On Wednesday, the tumor was removed and the pathology confirmed that Teresa has Neuroblastoma. A very rare yet aggressive cancer. They tell us that the 5 year survival rates are less than 50%. We refuse to accept that possibility.

She has rebounded well from her first 2 cycles of chemo. She has 4 more cycles of chemo, then radiation, followed by a bone marrow transplant. Jasmine is a match for the bone marrow and she is happy about being able to do something to help that no one else can do. As I told someone yesterday, God created the solution before we discovered the problem.

We have not had the courage to tell the kids the seriousness of this disease. They know Teresa has cancer but we saw no need to tell of what the doctors feel her odds are when we are waiting for the evidence of God's healing power.

Rhonda

Monday, June 21, 2004 7:37 PM CDT

May 19
Teresa finished her third cycle of chemo. The drugs used for this cycle
were not tolerated as well as the drugs used in cycles 1 and 2. She is
slowly returning to normal.
While in the hospital last week, she was rescaned and the scans showed less
cancer present and no new growths.
Which means that she is responding to the treatment.

We will probably be back in the hospital after Memorial Day.

Overall, she is doing well.

Thanks for the prayers and please don't stop.

Rhonda

Monday, June 21, 2004 7:35 PM CDT

May 15

The scans showed that the chemo is working for there is less cancer present
and no new growths.

The doctors appear more optimistic than when she was first diagnosed.

To God be the Glory!

Rhonda

Monday, June 21, 2004 6:22 PM CDT

May 9

Teresa returns to the hospital on Tuesday. Last time we were there I did not tell many people. Teresa told me she would like visitors. The hospital number is 972-566-7000. Just call sometime after Tuesday afternoon and they will connect you to the room. If by chance we are on the internet or in the play room try my cell 214-679-5694.

Wednesday she will have a CT scan so that they can see if the chemo is working.

That's all for now.

Rhonda

Monday, June 21, 2004 6:19 PM CDT

May 7

Teresa is in good spirits and has handled her two cycles of chemo quite well. She has lost her hair and when we are allowed to leave isolation she usually chooses to leave her wigs and hats at home.

She still has four more cycles of chemo followed by radiation then the bone marrow transplant. Her sister, Jasmine is a match. There was only a 25% chance that they would match so we Praise God for his divine wisdom in creating the solution before we discovered the problem.

Jasmine is happy that she can help her sister in a way that neither her father or I could.

John and I are being sustained emotionally and spiritually by the grace of God. I truly believe that the saints that have prayed for us have helped us to not focus on the worse case scenario. I am constantly lead to scriptures which remind me that God is in control; therefore, we just need to wait for the physical evidence of his healing. My favorite scripture is Hebrews 13:8 which states "Jesus is the same yesterday, today, and forever". I say that because the gospels speak of Jesus just speaking and people were healed. Therefore, He can speak healing for Teresa.

Monday, June 21, 2004 6:17 PM CDT

March 29, 2004

Teresa’s first official day of chemo began.

Round one of chemo goes well. She tolerates the meds without any nausea. She continued to recover from the surgery. After her three days of chemo we stayed in the hospital a couple more days for observation and nutritional enrichment.

Upon discharge, I had to take on the additional duty of shot giver. I had to give Teresa a shot of Neupogen ( stimulator of WBC) daily for 10 days. The doctors told us that most patients return to the hospital with a fever within 10 days. Fortunately, Teresa only returned for a blood transfusion on Good Friday.

April 10

Jasmine is now 10. We planned her party quickly. We sent the invitations out the Tuesday before the party. We had cake, pizza, and a few healthy friends over. After Jasmine opened her presents, I took Jasmine and her friends swimming. We tested Jasmine yesterday to see if she is a bone marrow match.

April 13 – Day 16 following chemo

Teresa’s ANC is 4789 Yeah we are released from isolation. We pick up Jasmine at school, see a few teachers and go to see “Home on the Range”.

Teresa has begun losing her hair. I see it separating from her scalp. I can just pull it off without her feeling any pain.

Monday, June 21, 2004 6:14 PM CDT

Blood drive/ bone marrow info
How long does a blood donation take?
A routine whole blood donation takes only about ten minutes. Your entire donation appointment will take about forty-five minutes to one hour; this includes time for registration, mini-physical, donation, and snacks.

Which types are needed the most?
Approximately four million people need blood each year - one patient every twelve seconds.

O positive and O negative are needed most. Nearly 50 percent of patients are group O and group O red cells can be transfused to all other blood types in emergencies.
Top of Page

African American Facts & Figures

The Need For African American Stem Cell Donors ( Bone Marrow and Stem Cell are used interchangeable)
Each day, thousands of African Americans face a frightening dilemma. They suffer from leukemia, aplastic anemia or other life-threatening blood diseases. For many, their only chance for survival is a marrow or blood stem cell transplant.
These transplants require matching certain tissue traits of the donor and patient. Because these traits are inherited, a patient's most likely match is another family member. Unfortunately, 70 percent cannot find a match within their own families. They need an unrelated individual willing to donate healthy stem cells. Stem cells are immature cells that can develop into red blood cells, white blood cells and platelets. Although it's possible for an African American patient to match a donor from any racial or ethnic group, the most likely match is an African American. ( Jasmine is a match for Teresa; however, John and I wanted to conduct this drive because we are aware that other families may not have a matching family donor- John and I have been on the donor list for several years because we wanted to make ourselves available if God chose to use us to help someone else.
What Has Been Done To Help African American Patients
The National Marrow Donor Program (NMDP) created a national education and recruitment initiative called African Americans Uniting for Life. The goal is to recruit more African Americans to become volunteer donors.
By reaching the community through the African American and mainstream media, community groups and individuals, large numbers of African Americans have come forward to answer the call for volunteer donors.
NMDP Registry Growth
African American 388,847
As of December 31, 2002, the total number of volunteer potential donors was 4,890,973. Recruiting minorities to be volunteer potential donors continues to be a focus for the NMDP.
American Indian/Alaska Native 60,996
Asian/Pacific Islander 316,776
Caucasian 2,563,596
Hispanic 415,383
Multiple Race/Other 106,784
Unknown 1,029,777

The increase in African American volunteers has improved the likelihood of identifying a matched potential donor for African American patients. The number of transplants performed for African American patients has nearly tripled since 1995.
NMDP Facilitated Transplants
African American 645

American Indian/Alaska Native 66
Asian/Pacific Islander 458
Caucasian 12,689
Hispanic 899
Multiple Race/Other 264
Unknown 535
As of December 31, 2002, the NMDP has facilitated 15,556 unrelated marrow transplants, 645 of which have been for African American patients.

Why African American Volunteers Are Still Needed
Although more African American patients are finding donors for their transplants, they are still less likely than Caucasians to identify a matched donor. African American patients will continue to benefit from the addition of more African Americans joining the Registry. More African American donors are still needed, so others can have a chance of finding a matched donor. Make a personal commitment and join other African Americans Uniting for Life. Anyone between the ages of 18-60 and in good health can become a volunteer donor.

SEE ALSO:
African Americans Uniting For Life
Join The Registry
General Facts & Figures

Minority Affairs Committee
Black History Month
Volunteer Embodies KWANZAA In Lifesaving Efforts

Friday, June 18, 2004 8:46 PM CDT

March 29, 2004

Teresa’s first official day of chemo began.

Round one of chemo goes well. She tolerates the meds without any nausea. She continued to recover from the surgery. After her three days of chemo we stayed in the hospital a couple more days for observation and nutritional enrichment.

Upon discharge, I had to take on the additional duty of shot giver. I had to give Teresa a shot of Neupogen ( stimulator of WBC) daily for 10 days. The doctors told us that most patients return to the hospital with a fever within 10 days. Fortunately, Teresa only returned for a blood transfusion on Good Friday.

April 10

Jasmine is now 10. We planned her party quickly. We sent the invitations out the Tuesday before the party. We had cake, pizza, and a few healthy friends over. After Jasmine opened her presents, I took Jasmine and her friends swimming.

April 13 – Day 16 following chemo

Teresa’s ANC is 4789 Yeah we are released from isolation. We pick up Jasmine at school, see a few teachers and go to see “Home on the Range”.

Teresa has begun losing her hair. I see it separating from her scalp. I can just pull it off without her feeling any pain.

Friday, June 18, 2004 8:13 PM CDT

March 28, 2004

John’s brothers and sisters came to visit. John had given the guys assignments around the house while I had the sisters redoing Jasmine’s hair.

Teresa’s teachers, Dee F. and Theresa W. came to visit on Saturday. Teresa told of watching movies at 3 o’clock in the morning, sleeping late, of having people rub her feet. She even talked Dee into giving it a try.

I told Dee and Theresa of how I had ironed and packed John’s clothes then left the suitcase at home. I did not realize I didn’t have his suitcase until I was 5 blocks away from the hospital. The night I left John’s clothes at home Teresa insisted that I stay. Of course I didn’t have any clothes either. John said he would go home and get the suitcase and bring me something to wear.

He brought back the clothes I wear when painting and no undergarments. I had to wear his underwear. The most amazing thing was that the briefs fit but the boxers didn’t.

Friday, June 18, 2004 7:53 PM CDT

March 25, 2004

We returned to the room about midnight. My husband and I both stayed with her overnight. She was very weak on Thursday. Bert got upset that we had so many visitors. He felt that all the concern was hindering Teresa’s recovery.

On Friday, the doctors confirmed the diagnosis as Neuroblastoma and scheduled a conference with us for Saturday. Before the official diagnosis we had begun to research info on the internet which just made us weak at the knees. No one had anything good to say.

During the conference, the doctor took his time and was very thorough. We immediately asked when we could test Jasmine for a bone marrow match.

Before the conference we were given books to read about Childhood Cancer. We were visited by Social Workers, a Family Therapist, and Child-Life Specialists.

The Child-Life Specialists were very patient when explaining things to both Jasmine and Teresa. They advised us to use the word “cancer” with both kids.

Friday, June 18, 2004 7:32 PM CDT

March 24, 2004

Last night we started receiving calls and emails. I had emailed church and other friends and family. The surgery was scheduled for 2:00. People started coming by around 11 am.
Actually people started coming Tuesday afternoon. I told her teachers and the school counselor Tuesday afternoon. The teachers must have left immediately to visit because they arrived before 5. They brought balloons and a beautiful beanie baby named Gloria.

The elementary school has a wonderful grapevine. We received emails, cards, and gifts from so many people that I’m sure we did not thank them all.

We sent Jasmine to school promising her that we were doing all we could to make Teresa better. I told her it was okay if she felt like crying and that the teachers would understand.

Jasmine said she assigned her classmates “Get Well Cards” for homework.

Back to the day of surgery

Our Pastor, Choir director and his wife, and the Children’s Ministry Coordinator came by to pray with us before surgery. Teresa was so entertaining. She requested that the women sing then the men sing. The only question she wanted answered was “When can I eat?”

Do you think the surgery started on time?

Of course not. However, the surgeon did an excellent job. He had to cut across her stomach yet her scar now just looks like a long thin scratch. As she goes and her stomach stretches, it will hardly be noticeable.

Friday, June 18, 2004 12:56 AM CDT

March 23, 2004

Immediately after Teresa finished her CT scan, I saw the radiologist run out of the room with much urgency. Within the hour, the oncologist came to tell me that he believed that Teresa had Neuroblastoma and that a tumor was present between her left kidney and spleen and surgery would be scheduled for the following day.

I called my husband, John, and told him without breaking down. I then tried to call my mother and by the time she answered the telephone I could not speak. I was sobbing so that I sounded like a dog barking. As I was barking, I saw a nurse approaching and was able to regain my composure. I quickly told my mom that Teresa was in the hospital and I would have to call her back.

After the nurse left I called my mom back and was able to explain everything as best I could yet no fully understanding the implications of Teresa’s condition.

Friday, June 18, 2004 11:01 AM CDT

Here are some scriptures that have given me comfort through this crisis. May they provide comfort to you.

Hebrews 11:1 – Now faith is the assurance of things hoped for, the conviction of things not seen.

I Corinthians 2:9 – but just as it is written, “Things which eye has not seen and ear has not heard, and which have not entered the heart of man, all that God has prepared for those who love him.

Ephesians 6:12 – For we do not wrestle against flesh and blood, but against the rulers, against the authorities, against the cosmic powers over this present darkness, against the spiritual forces of evil in the heavenly places.

I John 3:8 – The reason the Son of God appeared was to destroy the works of the devil.

Romans 5:5 - and hope does not disappoint, because the love of God has been poured out within our hearts through the Holy Spirit who was given to us.

I Samuel 12:24 – Only fear the Lord and serve Him in truth with all your heart; for consider what great things He has done for you.

Romans 8:6 – To set the mind on the Spirit is life and peace.

Revelation 21:3 – And I heard a loud voice from the throne, saying, “Behold, the tabernacle of God is among men, and He will dwell among them, and they shall be His people, and God himself will be among them.

Matthew 28:20 – And “behold, I am with you always, to the end of the age.”

Isaiah 59:1 – Behold, the Lord’s hand is not so short that it cannot save; Nor is His ear so dull That it cannot hear.

Psalm 138:3 – On the day I called, You answered me; my strength of soul you increased.

Jeremiah 32:17 – Ah Lord God! Behold, You have made the heavens and the earth by Your great power and by Your outstretched arm! Nothing is too difficult for God!

John 11:4 – But when Jesus heard this, He said, “This sickness is not to end in death, but for the glory of God, so that the Son of God may be glorified by it.

Psalm 34:9 – O fear the Lord, you His saints; For to those who fear Him there is no lack!

Philippians 4:6 – Be anxious for nothing, but in everything by prayer and supplication with thanksgiving let your requests be made known to God.

Mark 11:22 – And Jesus answered saying to them, “Have faith in God.”
Psalm 121:5-8 – The Lord is your keeper; The Lord is your shade on your right hand. The sun will not smite thee by day, nor the moon by night. The Lord will protect you from all evil; He will keep your soul. The Lord will guard your going out and your coming in from this time forth and forever.

Psalm 46:1 – God is our refuge and strength, A very present help in trouble.

Psalm 54:4 – Behold, God is my helper; The Lord is the sustainer of my soul.

Psalm 54:7 – For He has delivered me from all trouble.

Psalm 55:16-18 – As for me, I shall call upon God, and the Lord will save me. Evening and morning and at noon, I will complain and murmur, And He will hear my voice. He will redeem my soul in peace from the battle which is against me.

Psalm 55:22 – Cast your burdens upon the Lord and He will sustain you; He will never allow the righteous to be shaken.

Psalm 56:3-5 – When I am afraid, I will put my trust in You. In God, whose word I praise, In God I have put my trust; I shall not be afraid. What can mere man do to me?
Psalms 23 - The Lord is my shepherd; I shall not want. He maketh me to lie down in green pastures: He leadeth me beside the still waters. He restoreth my soul: he leadeth me in the paths of righteousness for his name's sake. Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me. Thou preparest a table before me in the presence of mine enemies: thou anointest my head with oil; my cup Runneth over. Surely goodness and mercy shall follow me all the days of my life: and I will dwell in the house of the Lord for ever.

Psalm 48:1 - Great is the Lord, and greatly to be praised in the city of our God, in the mountain of his holiness.

Psalm 86:12-13 - I will praise thee, O Lord my God, with all my heart: and I will glorify thy name for evermore. For great is thy mercy toward me: and thou hast delivered my soul from the lowest hell.

Lamentations 3:21-26-This I recall to my mind, therefore have I hope. It is of the Lord's mercies that we are not consumed, because his compassions fail not. They are new every morning: great is thy faithfulness. The Lord is my portion, saith my soul; therefore will I hope in him. The Lord is good unto them that wait for him, to the soul that seeketh him. It is good that a man should both hope and quietly wait for the salvation of the Lord.

Isaiah 6:1,3 -I saw the Lord sitting upon a throne, high and lifted up; and his train filled the temple. And one cried unto another, and said, Holy, holy, holy, is Jehovah of hosts: the whole earth is full of his glory.

Hebrews 12:1-2 - Let us lay aside every weight, and the sin which doth so easily beset us, and let us run with patience the race that is set before us, Looking unto Jesus the author and finisher of our faith.

Matthew 6:9-13 - After this manner therefore pray ye: Our Father which art in heaven, Hallowed be thy name. Thy kingdom come. Thy will be done in earth, as it is in heaven.
Give us this day our daily bread. And forgive us our debts, as we forgive our debtors. And lead us not into temptation, but deliver us from evil: For thine is the kingdom, and the power, and the glory, for ever. Amen.

John 3:16 - For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.

Psalm 91 - He that dwelleth in the secret place of the most High shall abide under the shadow of the Almighty. I will say of the Lord, He is my refuge and my fortress: my God; in him will I trust. Surely he shall deliver thee from the snare of the fowler, and from the noisome pestilence. He shall cover thee with his feathers, and under his wings shalt thou trust: his truth shall be thy shield and buckler. Thou shalt not be afraid for the terror by night; nor for the arrow that flieth by day; Nor for the pestilence that walketh in darkness; nor for the destruction that wasteth at noonday. A thousand shall fall at thy side, and ten thousand at thy right hand; but it shall not come nigh thee. Only with thine eyes shalt thou behold and see the reward of the wicked. Because thou hast made the Lord, which is my refuge, even the most High, thy habitation; There shall no evil befall thee, neither shall any plague come nigh thy dwelling. For He shall give his angels charge over thee, to keep thee in all thy ways. They shall bear thee up in their hands, lest thou dash thy foot against a stone. Thou shalt tread upon the lion and adder: the young lion and the dragon shalt thou trample under feet. Because he hath set his love upon Me, therefore will I deliver him: I will set him on high, because he hath known my name. He shall call upon me, and I will answer him: I will be with him in trouble; I will deliver him, and honour him. With long life will I satisfy him, and shew him my salvation.

Psalm 63 - O God, thou art my God; early will I seek thee: my soul thirsteth for thee, my flesh longeth for thee in a dry and thirsty land, where no water is; To see thy power and thy glory, so as I have seen thee in the sanctuary. Because thy lovingkindness is better than life, my lips shall praise thee. Thus will I bless thee while I live: I will lift up my hands in thy name. My soul shall be satisfied as with marrow and fatness; and my mouth shall praise thee with joyful lips: When I remember thee upon my bed, and meditate on thee in the night watches. Because thou hast been my help, therefore in the shadow of thy wings will I rejoice. My soul followeth hard after thee: thy right hand upholdeth me. But those that seek my soul, to destroy it, shall go into the lower parts of the earth. They shall fall by the sword: they shall be a portion for foxes. But the king shall rejoice in God; every one that sweareth by him shall glory: but the mouth of them that speak lies shall be stopped.

Psalms 119:105 - Thy word is a lamp unto my feet, and a light unto my path.

Proverbs 3:5-6 - Trust in the Lord with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths.

Romans 8:26-28 - Likewise the Spirit also helpeth our infirmities: for we know not what we should pray for as we ought: but the Spirit itself maketh intercession for us with groanings which cannot be uttered. And he that searcheth the hearts knoweth what is the mind of the Spirit, because he maketh intercession for the saints according to the will of God. And we know that all things work together for good to them that love God, to them who are the called according to his purpose.

I Corinthians 1:9 - God is faithful, by whom ye were called unto the fellowship of his Son Jesus Christ our Lord.

John 17: 20 – 24 - Neither pray I for these alone, but for them also which shall believe on me through their word; That they all may be one; as thou, Father, art in me, and I in thee, that they also may be one in us: that the world may believe that thou hast sent me; And the glory which thou gavest me I have given them; that they may be one, even as we are one: I in them, and thou in me, that they may be made perfect in one; and that the world may know that thou hast sent me, and hast loved them, as thou hast loved me. Father, I will that they also, whom thou hast given me, be with me where I am; that they may behold my glory, which thou hast given me: for thou lovedst me before the foundation of the world.

Isaiah 43:1 - But now thus saith the Lord that created thee, O Jacob, and he that formed thee, O Israel, Fear not: for I have redeemed thee, I have called thee by thy name; thou art mine.

Hebrews 4:14-16 - Seeing then that we have a great high priest, that is passed into the heavens, Jesus the Son of God, let us hold fast our profession. For we have not an high priest which cannot be touched with the feeling of our infirmities; but was in all points tempted like as we are, yet without sin. Let us therefore come boldly unto the throne of grace, that we may obtain mercy, and find grace to help in time of need.

Thursday, June 17, 2004 9:15 PM CDT

The journey began March 22, 2004. After experiencing low grade fevers off and on for 10 days, I took Teresa to the doctor because she began to complain about back pain. My husband and I assumed she somehow had an urinary tract infection. After the test results were negative for the infection, the doctor continued to evaluate her. Upon examination, she noticed that Teresa's spleen seemed enlarged. The doctor did blood work and immediately called the oncologist.
The oncologist saw us, did a spinal tap and bone marrow biospy in the office and admitted Teresa to the hospital.

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