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My barely 2 year old nephew was diagnosed last month with a rare childhood cancer called Rhabdomyosarcoma. This has been very devastating to our family and is very heartbreaking. You can't feel how much pain it is unless it happens to you.
Unfortunately, there isn't much attention in Childhood Cancers since most of them are rare cancers. In effect, there isn't much studies and research done for their cure.
I signed the petition "Cure Childhood Cancer - Another Inconvenient Truth". I'm asking you to sign this petition to help us reach our goal of 1,000,000 signatures. I care deeply about this cause, and I hope you will support our efforts. Thank you!
Cure Childhood Cancer - Another Inconvenient Truth
Target:
News media (e.g. 20/20, Dateline, 60 Min.) - we need to tell our story!
Sponsored by:
CureSearch & Texas Children's Hospital
RAISE AWARENESS & FUNDING FOR CHILDHOOD CANCER
Childhood Cancer Facts
- Childhood cancer is the #1 killer disease of our children, more than from asthma, diabetes, cystic fibrosis, congenital anomalies, and pediatric AIDS combined
- 1 in 300 children will be diagnosed with cancer before age 20
- Each year 3,000 children die, and 35-40,000 are in treatment
- The National Cancer Institute's (NCI) federal budget was $4.6 billion. Of that, breast cancer received 12%, prostate cancer received 7%, and all 12 major groups of pediatric cancers combined received less than 3%
OBJECTIVE - RAISE AWARENESS
-Deliver signatures to ABC, CBS, NBC, CNN and Fox and challenge every prime time, investigative or news media to produce a special devoted solely to childhood cancer.
- The show will RAISE AWARENESS OF THE PROBLEM and show how special these kids are. Show how they face fear, pain, boredom and the unknown, many times for years on end. They may live or die, yet each will forever impact those around them in ways beyond their years.
You can make a difference. You can help. Please sign.
WEBSITE:http://www.thepetitionsite.com/1/CureChildhoodCancer
Maria
- Tuesday, October 14, 2008 11:17 AM CDT
Keeping you in my thoughts and in my prayer's always.
LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON
, - Tuesday, March 28, 2006 0:39 AM CST
SO happy to hear that you guys are doing so wonderful!!! Congrats on the move too!! What a great thing it is to be moving to a new and better place!!!!! Wishing your sweet family wonderful, happy and fun filled days always!
Brenda
Brenda Harris <bre3@austin.rr.com>
Austin, TX USA - Tuesday, February 28, 2006 6:31 PM CST
HAPPY Birthday, Sophie! Big hugs to you from Texas. Eat lots of Blues Clues cake!
Love,
Julie, Sean, Alex, Emma and Benjamin
Julie Buckley
Austin, TX - Saturday, February 25, 2006 4:02 PM CST
Happy Birthday to you, Happy Birthday to you, Happy Birthday dear SOPHIE, Happy Birthday to you...I hope you have a WONDERFUL day, little princess.
Joy-Joy
Las Vegas, NV - Saturday, February 25, 2006 12:09 AM CST
Great story.
I can bet those kids will NOT
forget those rings...ever.
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Wednesday, February 22, 2006 0:40 AM CST
I love the Valentine's story! That is so sweet. Sounds like Valentine's was a good one for all of you (except Mike - I hope the allergist can get things figured out). Enjoy the snow, but stay warm!
Briana Roehling
Pflugerville, TX - Tuesday, February 21, 2006 9:11 AM CST
Now we want to see pictures of those rings. (o:
Dawn <dawnie2@att.net>
Kent, WA USA - Tuesday, February 21, 2006 2:20 AM CST
Mike,
Thanks for the great Valentine's Day story. You'll be glad you have it for posterity!
Julie
Austin, TX - Monday, February 20, 2006 8:19 AM CST
Hi guys,
Hope you are enjoying the beautiful snow
we are getting tonight!! Did you kids
get to make a snowman?? Hope so.
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Saturday, February 18, 2006 8:41 PM CST
Hi there!
There is a perfect book to go with your purple day at preschool. It's called "I Love You Purple" by Barbara Joosse. It is a neat book. I hope that you are all having fun up in Utah! It is beautiful up there!
P.S. I am a friend of the Youngs' and I have been following Spencer's story also.
Lori Laws <tlaws@austin.rr.com>
Round Rock, TX - Thursday, February 16, 2006 12:56 AM CST
Hi there, just looking in on you.
Deborah <silverde@magiclink.com>
- Thursday, February 16, 2006 10:21 AM CST
LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA/CANADA, - Wednesday, February 15, 2006 1:52 AM CST
Just stopping by to wish you all a Happy Valentine's Day!
Briana Roehling
Pflugerville, TX - Tuesday, February 14, 2006 11:50 AM CST
I'm not sure a dog will pacify Annie. We have a dog and two cats and my kids still ask for a baby brother or sister. Not gonna happen here! Thanks for putting in a good word for me with the link. I appreciate it.
I'll keep you all in my prayers.
Briana Roehling
Pflugerville, TX - Friday, February 10, 2006 9:40 AM CST
Glad that you survived a trip to Primary. Our most traumatic experience was with an i.v. down there too. Maybe we had the same nurse? We'll be down on the 20th for a 5 day admit. Maybe we could get together?
Take care.
Denise Wedel <denisew@uidaho.edu>
Aberdeen, ID - Thursday, February 9, 2006 4:55 PM CST
We hope and prayer that Spencer continues to remain cancer free. I know it can be hard living in fear all the time, but God is good and he will see you thru the tough times. Keep up the good work of being a strong parent.
Connor's dad (http://www.caringbridge.org/tx/connormuscat/)
Tony Muscat
Seabrook, tx - Wednesday, February 8, 2006 11:19 PM CST
Hi,
I was at a loss for words this morning.
I'm so sorry that things were so rough
yesterday. Please know that we are
praying for Spencer and your family.
If we can help in any way, please give
me a call.
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Wednesday, February 8, 2006 4:08 PM CST
Poor Spencer. It doesn't sound like they handled it well. He's probably wishing he were back in Austin! I'll be praying as you wait for the follow up scan.
Briana Roehling
Pflugerville, TX - Wednesday, February 8, 2006 2:04 PM CST
Just thinking of you,
Alisa
Devin <tiredofcancer@yahoo.com>
- Wednesday, February 8, 2006 1:02 PM CST
Just stopping in to let you know Spencer has been on my thoughts and prayers today. I hope all went well. I know you won't have results for a little while, but praying they are all good.
Briana Roehling
Pflugerville, TX - Tuesday, February 7, 2006 1:55 PM CST
It's tuesday morning and I am thinking of Spencer..I hope all goes smoothly today. I am sorry to read of Mikes' allergic reaction, that must have been scary!!! Hang in there.love
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Tuesday, February 7, 2006 9:25 AM CST
Thinking of Spencer today during scans! Praying for the all clear! Hope Mike feels better, too.
tina jacks, mom to Ella Barna www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
austin, tx usa - Tuesday, February 7, 2006 8:26 AM CST
it is Tuesday morning, Spencer will be in my prayers today.
Love,Tina Pirro <kmpirro@msn.com>
metuchen, NJ - Tuesday, February 7, 2006 5:38 AM CST
I will keep Spencer in my prayers as he heads in for scans tomorrow. You will be in my prayers, too, as I'm sure it is not fun to wait for the results.
Stay warm!
Briana Roehling
Pflugerville, TX - Monday, February 6, 2006 1:34 PM CST
Shauna, we are thinking about you and your family. Hang in there.
Deborah & LeRoy <silverde@magiclink.com>
- Monday, February 6, 2006 9:59 AM CST
I am praying for clean scans!!
Poor Annie, i hope she feels better about living in Utah soon!!
Love,Tina Pirro <kmpirro@msn.com>
metuchen, NJ - Monday, February 6, 2006 8:21 AM CST
Just checking in on you guys!!
We still need to meet up....one of these days!!
Are you getting the Candlelighters mailings yet?
Hope so. I'm hoping Disney on Ice will be on the
agenda.
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Sunday, February 5, 2006 11:06 AM CST
Hi there. Thanks so much for the box of gifts...I loved them! I hope all is well with you. Your pictures are great! Miss you lots! Hope to see you sometime soon.
Jennifer Johnson, RN(nurse in clinic) <jjohnson@sfcaustin.com>
Austin, TX USA - Saturday, February 4, 2006 12:25 AM CST
When we took Benjamin for his appointment at Children's Hospital today, there was a little 3 year old boy with no hair. It immediately made me think of Spencer. Amazing what these little ones go through!
Julie Buckley
Austin, TX - Friday, February 3, 2006 4:16 PM CST
Spencer sounds like he has a career as a salesperson! Or a negotiator! That's too funny. They do learn early how to get what they want, though. Dalton has this "face" that he makes when he wants something. It's so cute it almost always works. Glad things are going well for you.
Briana Roehling
Pflugerville, TX - Thursday, February 2, 2006 10:37 AM CST
Shauna,
Joy showed me this cool website where you give updates on Spencer's health. I think that it is wonderful that you keep it up! I will now get to check it and see how he is doing...I think I will also go back and read some of the past entries so that I can get to know you and your family a little better. I am so excited to run with you and get to know you as a friend. I am glad that Joy is willing to share such a wonderful friend with me.
Elise Adams <eliseadams@gmail.com>
Lehi, Utah USA - Sunday, January 29, 2006 6:32 PM CST
I hope Annie had fun away from home. It is wonderful that you now live close to so much family.
Love,Tina Pirro <kmpirro@msn.com>
metuchen, NJ - Sunday, January 29, 2006 4:55 AM CST
Hi Jones Family!
I still check in every day although I don't sign in often. I'm so glad to hear that things are going well. I love the picture of all of you on the homepage. It's so amazing and inspiring to see how close-knit your family is and how strong your faith remains. Every time I come to this page there is an incredible sense of love and peace conveyed through your words. Your story is amazing and I hope things stay well for your family. I think of and pray for you often.
Love. blessings. and hugs,
Tanya
Tanya Nicole Servis <tanyans83@yahoo.com>
Newark, DE USA - Thursday, January 26, 2006 11:14 AM CST
Just stopping by to see what you have all been up to - those hot blankets sound like a great idea. I read your previous entry and wanted to cry, too. But Spencer is a special little boy and he is surrounded by so much love. There are special plans for him...I'm sure of it. Sneding love and hugs,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Thursday, January 26, 2006 4:44 AM CST
We are thinking of you Shauna.
Deborah <silverde@magiclink.com>
- Wednesday, January 25, 2006 2:46 PM CST
Hello from Idaho!
We can really relate to your latest entry and your Thanksgiving entry. We'll be praying that your doctors appointment will yield good results!
www.caringbridge.org/visit/annawedel
Denise <denisew@uidaho.edu>
Aberdeen, ID - Tuesday, January 24, 2006 4:27 PM CST
Your entry just moved me to tears as well. I suppose that is partially because of everything we are going through with Benjamin and all the thoughts we have about him. I only hope Benjamin will have as many people to love him and care for him in the coming years. Spencer is such a blessing and I am so glad to know him and your family.
Julie Buckley <bucklju@yahoo.com>
Austin, TX USA - Monday, January 23, 2006 2:33 PM CST
Wow - a very moving entry! Every time I see Spencer's picture, I just smile. I'm sure I am one of many who have never meet your sweet little boy but still have fallen in love with him! I also have a 4 year old boy (and a another boy AND a Sophie!) so I get the cranky and difficult part! God Bless Spencer and your family!
Karen Januschka-Johns
St. Paul, MN USA - Monday, January 23, 2006 9:10 AM CST
Spencie - we love you more than you'll ever know. Daniel's front tooth is dying - so I think he'll probably be toothless like you!
Shauna - you are an amazing mother and Mike is an amazing father. You are the best things that could have ever happened for Spencer. Mike is right.
We love you all. We cry with you, and we rejoice with you.
Joy
Las Vegas, NV - Sunday, January 22, 2006 6:48 PM CST
Thinking of you and your family, Shauna.
Deborah <silverde@magiclink.com>
- Thursday, January 19, 2006 10:58 AM CST
Glad to hear that you made it home safe, despite all the problems. I pray that everything with you is fine.
Briana Roehling
Pflugerville, TX - Tuesday, January 17, 2006 1:47 PM CST
You're right at least its not cancer...
cancer certainly helps us put things into
perspective...
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Monday, January 16, 2006 10:03 PM CST
Praying for your appointment to go well today!
Love, Allie <akbooth@aol.com>
Austin, TX - Monday, January 16, 2006 1:57 PM CST
Glad that surgery is behind you.
That place wears me out too!!! We were
out of there by 2:00, but have 2 more
appointments up there this week....aagh!!
Glad you had a good CL person. I don't know
what is going on with the clinic...hopefully
they'll get something straightened up soon.
Hope you are enjoying the white wonderland we're
getting today. Nice day to stay inside!!
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Sunday, January 15, 2006 3:35 PM CST
Hi Shauna,
It's great to hear that you all are doing well and life is 'blissfully boring'. I can't believe how long your hair has gotten and how much hair Spencer has... is his hair RED?? I think of you all often.
Love Holly
www.caringbridge.org/tx/thomas <mom03@austin.rr.com>
Buda, TX 78610 - Saturday, January 14, 2006 1:35 PM CST
I guess by now, you are at the hospital. I'll be praying for Spencer and hope the fasting this morning wasn't too bad on you.
I had to laugh at Spencer's conversation and the fact that he insists Jesus lives in Texas!
Briana Roehling
Pflugerville, TX - Thursday, January 12, 2006 1:36 PM CST
Sorry about the late check-in time. But, remember, it is Primary CHILDREN's--all they treat is children. So, if it isn't Spencer at a late check in time, it would just be another little kid having to fast that long. Look at it this way, maybe with your late check-in time, you are allowing some little 2 or 3 year olds an earlier check in time! Good luck with the fasting!
Karen
Karen Howell <karenhowell@byu.net>
Eagle, ID USA - Thursday, January 12, 2006 11:51 AM CST
I don't normally burst out laughing while reading something to myself- I've always thought it looked a little odd. But I just couldn't help myself when I read what Spencer said. Honest to gosh, I didn't tell him that :). But he's right, it's true! My bets are that He must be somewhere near Austin- I mean, do you need any more proof than the Rose Bowl last week :)? I love you guys, talk to you soon and good luck tomorrow. Love, Allie
hmm...guess <akbooth@aol.com>
Austin, TX - Thursday, January 12, 2006 0:02 AM CST
Good luck on that appt. tomorrow. I'm assuming you'll be in same day surgery........Devin has an EEG tomorrow in clinic B so maybe we'll run into each other........
Looks like we're finally getting our snow!!
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Wednesday, January 11, 2006 9:39 PM CST
Praying that all goes well with Spencer's dental work and that you are able to get that behind you. I am glad to hear that Mike is joining you for the 1/2. Maybe one day Joel will join me, but I'm not counting on it. Disney was wonderful! I'll send you an email with more details, but definitely one I would like to do again.
Briana Roehling
Pflugerville, TX - Wednesday, January 11, 2006 9:50 AM CST
Good luck with the dental surgery this week. I hope Spencer stays well so that can get done. You guys are so brave to be doing a half-marathon..let us know how the training is going.
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Tuesday, January 10, 2006 1:51 AM CST
Hi Shauna and family - thanks for swinging by to wish me a happy new year. I hope this one is a happy and healthy one for all the Jones family!
HelenH <geordielass999@hotmail.com>
THE KICKIN' CANCER'S BUTT STORE!, - Sunday, January 8, 2006 4:49 AM CST
Thanks for visiting Connor's website. I hope Spencer remains clean from disease and can continue to be a normal little boy. Enjoy the Utah snow while we suffer here in Texas in the 80 degree winter! We really love the Park City/Canyons/Deer Valley area. My brother, an orthopedic surgeon from Kingwood who has been instrumental in Connor's care, just skied Deer Valley last week and rates it as his number 1 place. I, like you, have been searching for a cause(?), it seems all too coincidental that some many little boys from our area are affected????? Please keep in touch and we will add your family to our prayer list. www.caringbridge.org/tx/connormuscat
Tony Muscat
Seabrook, TX - Friday, January 6, 2006 6:31 PM CST
Shauna, I'm so glad to hear that things start settling down after a while. Kevin and I are just finding out that Harley may actually be done with chemo (again) and it's really hard to understand it. It's reassuring that eventually you stop worrying about what might happen. I'm so happy to hear that Spencer is doing well. Let's pray for boredom! ;-)
Beth Freeborn <freeborn04@earthlink.net>
Austin, TX USA - Friday, January 6, 2006 5:01 PM CST
Shauna,
I would love to have you continue journalling on Caringbridge. I enjoy reading your "boring" stories. They always make us laugh and realize how much kids bring to our lives.
Julie Buckley <bucklju@yahoo.com>
Austin, TX - Friday, January 6, 2006 4:35 PM CST
Keep writing...
I love these happy ending stories. We wish
you nothing but good health from here on out!!!
Happy 2006,
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Friday, January 6, 2006 1:13 PM CST
Glad to hear that things are "blissfully boring". I enjoy reading about that kind of stuff and I'll continue reading as long as you keep updating.
Briana Roehling
Pflugerville, TX - Friday, January 6, 2006 10:10 AM CST
Don't you dare quit this journal. The Jones family is and always will be an inspiration-not a bore. I am sure there are many out there that could use your positive story.
Dawn <dawnie2@att.net>
Kent, WA USA - Thursday, January 5, 2006 4:22 PM CST
Wishing you a happy, healthy 2006!
Briana Roehling
Pflugerville, TX - Sunday, January 1, 2006 3:44 PM CST
Happy New Year.
Love, The Young's
Lisa Young <lyoung@austin.rr.com>
- Sunday, January 1, 2006 7:02 AM CST
I wanted to wish you all a very Happy and Blessed New Year!!
Rhonda Koneski <rkoneski@austin.rr.com>
Austin, TX USA - Saturday, December 31, 2005 8:22 AM CST
Sounds like a fun, joyful holiday. Who knew Santa enjoyed cheesecake?? All the best for a happy, healthy New Year. love,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Friday, December 30, 2005 7:55 AM CST
Hi Guys,
Glad Santa was able to find you in your
new home in Utah. Sure was warm for
Christmas!!
Hoping for a healthy, happy new year,
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Wednesday, December 28, 2005 8:13 PM CST
Hello,
I'm very glad that your son is recovered from cancer. I had a cousin that had a cancerous tumor in her neck. Shes all better too.
The best of wishes to you and your family!
Christopher Corkill <ccorkill88@stx.rr.com>
Corpus Christi, TX USA - Wednesday, December 28, 2005 2:50 PM CST
Merry Christmas from SUNNY Texas w/a high of 73 degrees & a forecast of 80 degrees on Tuesday!!!!! It was gorgeous & we spent most of the day outside :) We hope you had a wonderful day. I love the family picture. We miss you guys.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, Tx USA - Sunday, December 25, 2005 9:06 PM CST
Hope you have a wonderful Christmas,
Sorry about the lack of snow.........????
The Ross Family
Devin's site <tiredofcancer@yahoo.com>
- Sunday, December 25, 2005 4:36 AM CST
Happy belated Birthday Shauna.
Hope you all have a wonderful Christmas.
Love,
Blake's Page
The Youngs
Lisa Young <lyoung@austin.rr.com>
- Saturday, December 24, 2005 2:04 AM CST
Hope you have a great day Shauna!!!!
We will meet up one of these days,
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Friday, December 23, 2005 7:41 AM CST
Happy Birthday Shauna!!! Although I confess to being a bit envious, since I know you are younger than me!!! I hope you have a great day..and a wonderful year in your new home.love,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Friday, December 23, 2005 7:38 AM CST
Happy Birthday Shauna!! My Juliana's Birthday is the day before yours.
I hope you have a very Happy Birthday and a Merry Christmas.
Love,Tina Pirro <kmpirro@msn.com>
metuchen, NJ - Friday, December 23, 2005 5:49 AM CST
Just wanted to stop by and WISH YOU ALL A BLESSED CHRISTMAS!!
Wendy, *Spencer* Griffin & family ... www.caringbridge.org/nc/spencergriffin <wendy.griffin@wwdclt.com>
Marshville, NC USA - Tuesday, December 20, 2005 12:41 AM CST
Hoping that you get better soon. Congrats to Allie on her acceptance to Duke!!! Have fun with Joy and the kids.
Briana Roehling
Pflugerville, TX - Friday, December 16, 2005 9:57 AM CST
I hope you're all feeling better very soon! We can't wait to see you next week! Steve can't come - but the kids and I are still coming.
Joy <joy@joylayton.com>
Las Vegas, NV - Wednesday, December 14, 2005 10:10 PM CST
We've gone through that whole buying too much cold medicine before,too. We were all sick last year, so we went to the store to get stocked up. We were going to buy infant medicine for Sara, cough plus cold for Josh, nightime for Savannah, and adult medicine for me and Scott. They made us return one, so I just took it and went through another line while Scott bought the others. When you have so many kids at different ages (different doses required), you have to get that many different medicines. Hope you all feel better soon. If it makes you feel any better, we are all sick, too.
Karen
Karen Howell <karenhowell@byu.net>
Eagle, ID USA - Wednesday, December 14, 2005 2:21 PM CST
Hope everyone gets better soon! It's no fun to be sick. I had to laugh at Mike's grocery store experience! I understand the laws, but it is kind of a pain. Madison takes Robitussin every day, and we can no longer buy the big bottle, so it seems like we are buying it every week. Stay warm!
Briana Roehling
Pflugerville, TX - Wednesday, December 14, 2005 1:03 PM CST
Hello Jones'
Hope that everyone is over their colds and eye infections. It is terrible to be sick with anything over the Holidays. We are busy here and I just wanted to check in and say "Happy Holidays" before it got too busy. We miss you guys.
Colleen Burnham <smilesmom@austin.rr.com caringbridge.org/tx/garrettburnham>
Round Rock, TX - Monday, December 12, 2005 8:16 PM CST
Hello all!! I hope this note finds you doing well. I just wanted to let you know I miss you and love ya! I hope you have a great Christmas. Miss you lots!!!!
Jennifer Johnson, RN (nurse in clinic) <jjohnson@sfcaustin.com>
Austin, TX USA - Monday, December 12, 2005 6:44 PM CST
Praying that you are all feeling better today.
Briana Roehling
Pflugerville, TX - Monday, December 12, 2005 1:51 PM CST
Im very happy for the way i hear your son is comming along.
i hope he does his best, and keeps his confidence with him through all the surgeries, and i hope medical companies and insurance come through for you.
may christ be with him at all times,
christa
Christa
coral springs, Fl us - Thursday, December 8, 2005 8:49 PM CST
Sorry to hear about the surgery being cancelled and I hope that Spencer gets over his cold soon. And I can't believe I actually read that you were heading out for a run at 5 degrees!!!! It was in the 30s when I got home last night and there was no doubt that the treadmill was getting used. I'm such a weenie. It did get colder last night, and the kids are at work with me today due to school being cancelled. I know half of the nation laughs at Texans because we don't know what to do with this kind of weather!
By the way, I agree with you on the insurance. While I've not had to deal with it near as much as you have, I've had problems just from the 8 times Madison has had tubes and the 4 ER visits with Dalton. I can't imagine the nightmare families go through when dealing with cancer/chemo, etc. Good luck.
Stay warm!!!
Briana Roehling
Pflugerville, TX - Thursday, December 8, 2005 1:51 PM CST
Shauna you are so right about the healthcare/insurance issues in this country - it isn't right all the hoops you have to jump thru to get stuff paid for that is covered,or should be, in the first place. Ridiculous waste of time. Hope everything goes well tomorrow with Spencer's dental work. Thinking of you all - stay warm and cozy - oh and tell the kids their gingerbread houses look soooo yummy!!
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Thursday, December 8, 2005 1:06 AM CST
Hey guys,
My AOL's still not cooperating, so I'll send you a "mini e-mail" here. Today it was FREEZING cold here- a cold front blew in this afternoon and all anyone could talk about was how cold it was (gosh, it must've been, like, 30 degrees!!!). They came on the announcements 7th period and cancelled most of the after school activities. According to K-AHS, our student-run news show, the European Explorers Club meeting was cancelled "due to coldness." I kid you not. So right now it's about 25 degrees, which is about as cold as I remember it being in Austin. Both dogs, the cat, and all three bunnies are inside, and it's beginning to feel a little like a zoo around here. The best part? We might have a late start for school tomorrow if it's "icy" in the morning. Snow plows aren't really in the city budget. But hey, we'll take what we can get! The sad thing is that I was talking to a friend of mine and we were discussing how wonderful it would be to go to school late tomorrow, because then we would have more time for homework. There's something seriously wrong with that, but I'm too busy to try to figure it out! Anyway, hope you guys enjoy the snow, I don't know how long it takes to adjust to that kind of cold weather but I'm glad I'm only having to deal with 30 degrees. The funny part is that all of us poor native Austin seniors are beginning to rethink applying to schools in the big cold North (which translates to really anywhere north of Dallas). I just don't want to have to worry about it after the 15th! Anyway, I'll stop taking up your entire guestbook, stay warm and give everybody hugs for me! Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Wednesday, December 7, 2005 8:29 PM CST
Hi Guys,
Sounds like its as busy as ever at your house. ITs
that time of year!!!
Hopefully everyone will feel comfortable in their new
home soon.
Shauna I sent you an email about upcoming events. Let
me know when we might be able to meet up.
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Wednesday, December 7, 2005 10:11 AM CST
Spencer is as cute as ever, I LOVE Annies haircut and Sophie is looking very grown up.
Hope you are having a joyous Holiday Season.
Love,
The Young'sBlake's Page
Lisa Young <lyoung@austin.rr.com>
- Monday, December 5, 2005 7:30 AM CST
Miss you guys! I keep trying to e-mail you back but my AOL is having trouble. I'll talk to you soon! Love, Allie
akbooth@aol.com <akbooth@aol.com>
Austin, TX - Sunday, December 4, 2005 0:13 AM CST
Sophie - I miss you, too! Come visit!!! It was 65 degrees this morning when I took Kenneth to school! No coat required...
Joy
Las Vegas, NV USA - Friday, December 2, 2005 12:02 AM CST
I just showed Savannah your pictures. She said, "How come Spencer is dressed like a pirate? And Annie like a Bakery?" I think she meant a chef. But, you can tell Spencer that he can go ahead and think it is a pirate hat, because that is what it looks like to other 4 year olds.
Karen Howell <karenhowell@byu.net>
Eagle, ID USA - Thursday, December 1, 2005 3:18 PM CST
OH MY GOSH!!! That's a lot of snow for us Texans. I think I'd just hibernate if I lived there. I love the pictures. Great job on the gingerbread house and the hats.
Briana Roehling
Pflugerville, TX - Thursday, December 1, 2005 3:05 PM CST
It is great that you have so much less to report.
Deborah & LeRoy <silverde@magiclink.com>
- Thursday, December 1, 2005 3:05 PM CST
Spencer,
Hope you're enjoying the white stuff!! We're supposed to get some more tonight!!! Exciting!!
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Tuesday, November 29, 2005 6:27 PM CST
I got cold just reading about all the snow!! But sledding sounds like lots of fun! I've never done that before. Sounds like your Thanksgiving was great. I hope the rest of your holiday season is too.
Briana Roehling
Pflugerville, TX - Monday, November 28, 2005 1:54 PM CST
Shauna,
What a beautiful entry. I can only hope that the experiences that the children go through are encouraging and inspiring to friends and family. You hit the nail on the head about cancer being a blessing. I know that may be hard for some to swallow but it has been a life altering experience that has been for the better.
I am glad ya'll are doing so well and happy. I think of you often, tell Spencer that the "white baby" is fascinated with dinasaurs.
Thank you for sharing your thoughts and feelings so openly.
Blessings to you all,
The Young's
Blake's Page
Lisa Young <lyoung@austin.rr.com>
- Saturday, November 26, 2005 11:53 AM CST
Hi Shauna,
I just read your Thanksgiving entry and it's really inspiring! I'm so glad things are going so well for you and your family and that Spencer is port-free now. I think of you often. Happy Thanksgiving!
Love Holly (& Tommy, Sarah, Michael & Nicholas)
www.caringbridge.org/tx/thomas <mom03@austin.rr.com>
Buda, TX 78610 - Thursday, November 24, 2005 8:11 AM CST
Shauna, what a lovely entry. Yes, there are sometimes things to be thankful for that you would never imagine, blessings in disguise. Have a wonderful Thanksgiving with your beautiful family. With love,
Kellie & family <kelbri27@optonline.net>
Metuchen, nj usa - Wednesday, November 23, 2005 7:56 PM CST
Happy Thanksgiving!!
Great entry!!
The Ross Family
Devin's site <tiredofcancer@yahoo.com>
- Wednesday, November 23, 2005 7:49 PM CST
Happy Thanksgiving! I'm grateful that 28 years ago my parents put their house next to yours, Shauna, and that I have had you in my life since then. I have gained so much from knowing you. You and Mike are the strongest people I know. Have a wonderful,cancer-free holiday!
Dawn <dawnie2@att.net>
Kent, WA USA - Wednesday, November 23, 2005 5:38 PM CST
Wow...what a wonderful Thanksgiving entry! I have never signed your guestbook before, but I have grown to love Spencer (he always reminds my of my youngest who is the same age!). Wishing you a Wonderful Thanksgiving!
Karen
- Wednesday, November 23, 2005 10:16 AM CST
We were watching the Amazing Race last night and the remaining groups were in Utah (Salt Lake City part of the time). I told Madison and Dalton, "That's where Spencer lives now." They were all excited to get to see where you live. It looks beautiful there. Have a great Thanksgiving and stay warm!
Briana Roehling
Pflugerville, TX - Wednesday, November 23, 2005 9:07 AM CST
Happy Turkey Day to your sweet family! We do have so much to be thankful for!
Love and hope,
brenda
www.caringbridge.org/tx/koreylee
brenda harris <bre3@austin.rr.com>
austin, tx USA - Tuesday, November 22, 2005 4:52 PM CST
Hi Guys,
Hope to get to meet up with you all sometime soon. I saw a minivan yesterday with TX plates on it and immediately thought of you guys..............
Hope all is well,
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Tuesday, November 22, 2005 2:20 AM CST
Spencer, you are such a brave little boy!!! Congratulations on getting your port removed. I am sooooo proud of you. I miss you so much. I will talk to you soon.
Jennifer Johnson, RN ( your nurse) <jjohnson@sfcaustin.com>
Austin, TX USA - Tuesday, November 15, 2005 12:25 AM CST
Congrats on the port removal! I'm glad it all worked out in the end and you were out of there relatively early. Seeing your pictures with Allie make me cold! BRRRR.
Briana Roehling
Pflugerville, TX - Tuesday, November 15, 2005 11:46 AM CST
Hoping you are port free by now....just by a few hours, but hey.... They should let him keep it....at least they do here. One tip I got was to put it in a cup of alcohol....something about the smell...........NOT taking any chances and that's exactly where Korey's is right now, in the cupboard in a specimen cup full of alcohol! He wants to take it for show and tell.....
Sounds like Allie's visit was a HUGE success....had no doubt in my mind that it would be! Glad that Spencer was able to enjoy the weekend surgery free.....maybe that mix up was a blessing in disguise...... Very frustrating for you though, I'm sure.
Hoping all is well and everyone is happy about being port free....
Happy day,
brenda
Brenda Harris <bre3@austin.rr.com>
Austin, TX USA - Monday, November 14, 2005 5:42 PM CST
Sounds like Allie's visit was a hit! I can't believe you had snow (well, actually I can, but it's still in the 80's here). I wasn't able to play the video for some reason - I'll keep trying because I'm sure it's cute.
Briana Roehling
Pflugerville, TX - Monday, November 14, 2005 10:55 AM CST
Loved the video clip! We got brief snow in Flagstaff - Kenneth wanted lots of pictures. Glad you're having fun with Allie! What a saint she is, eh? Travel safely, Allie...
Joy
Las Vegas, NV - Sunday, November 13, 2005 0:44 AM CST
YAAHH!!! Clear scans. What a relief. Good luck having the port removed, comaped to everything else it is a piece of cake.
Love,
Lisa and Blake
Blake's Page
Lisa Young <lyoung@austin.rr.com>
- Friday, November 11, 2005 4:08 PM CST
Great news on the scans!!! Way to go!!!!!
Glad your clinic experience was a little better
this go around. Did you get my email about the
Candlelighters program?? I gave your name to the
parent support person (Bonnie) so hopefully you
will hear from her soon. She is VERY nice and
always helpful.
Talk to you soon,
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Thursday, November 10, 2005 5:58 PM CST
I think I must have been absent the day you talked about this surgery that Spencer is having tomorrow. What is it for?
Congrats on the clear scans--that's great news!
Karen
Karen Howell <karenhowell@byu.net>
Eagle, ID USA - Thursday, November 10, 2005 3:35 PM CST
Praise God for clear scans!! I'm so happy for you and will keep praying that every scan from now on is CLEAR! Have a great time with Allie tonight and this weekend. I bet Spencer is so excited he can hardly stand it.
Briana Roehling
Pflugerville, TX - Thursday, November 10, 2005 8:43 AM CST
YYIIPPPEEEE!!!!!!! Clear scans will always make you JUMP and SHOUT! Such WONDERFUL NEWS!!! I am so glad the versed worked - we haven't been able to use that since our Spencer had a BAD reaction in the PICU to it. He was exactly the opposite!!! NOT A GOOD NIGHT THAT NIGHT. Take care and God Bless!! xoxo
Wendy, *Spencer* Griffin & family .... www.caringbridge.org/nc/spencergriffin <wendy.griffin@wwdclt.com>
Marshville, NC USA - Thursday, November 10, 2005 8:10 AM CST
what wonderful news!!!!
I can't wait to tell the girls!
Give Spencer a big kiss from us
Love, The Pirro's <kmpirro@msn.com>
metuchen, NJ - Wednesday, November 9, 2005 8:21 PM CST
what wonderful news!!!!
I can't wait to tell the girls!
Give Spencer a big kiss from us
Love, The Pirro's <kmpirro@msn.com>
metuchen, NJ - Wednesday, November 9, 2005 8:20 PM CST
Congratulations, what wonderful news, and a true blessing. So glad the sedation went well. Good luck with the port removal tomorrow, I'm sure it will go smoothly. Have fun visiting with Allie. love,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Wednesday, November 9, 2005 8:02 PM CST
HAPPY BELATED BIRTHDAY, SPENCER!!!!!!!!!!!!!!!!!!!!!!!!
Woo Hoo!!!! What a great, late b-day present....one year and CLEAR SCANS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Way to go!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Good luck with the port out tomorrow! Glad Allie is coming to help save the day!!!!!!!! I think Korey's came out a lot easier than it went in.....of course, he didn't have 2 ear infections AND pneumonia AND wasn't on chemo when it came out either......maybe that had something to do with it, you think? I bet Spencer is up and running by tomorrow night....especially if Allie is there!!! No better medicine than Allie!!!!!!! Allie rules!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
WOW, Spencer! You have to know you are special now!!!! (even though everybody else knew it all along.....) Allie is coming all the way to Utah, just to see you!!!!!!!
What a great relief for you, too Shauna! You and Mike might have to sneak a date in while she is there! Did I mention that Allie rules!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Hang in there Mom!! So happy to hear the great news!!!
Hoping you can get some sleep tonight! I'm sure you will sleep like a log tomorrow night!
So glad to hear it is starting to feel more like home there. Personally, I'm pretty sure it's because you got your Texas star hung............... Miss you guys though!
Keeping you all in my thoughts and prayers!
I know you will post an update and let us know how everything went.....you are so great at that!! I truly love the awesome little things the kids say and do.....thanks for always sharing!!!!
Happy day to you all!
Love and hope always from Texas,
brenda
Brenda Harris <bre3@austin.rr.com>
Austin, TX USA - Wednesday, November 9, 2005 7:50 PM CST
Praying that all goes well with the scans today and that they are all clear.
Briana Roehling
Pflugerville, TX - Wednesday, November 9, 2005 10:09 AM CST
Great pictures!! Ferocious looking lion! You will laugh at me, but I thought as I was reading your entry, that the bean museum was really about, well, beans!! Until I read the next couple of lines!! That's because I have been to a Mushroom museum - in Pennsylvania - so I thought, wow, how cool, a museum just on beans!! Okay, laugh away .....I'm a kook, I know...So glad Spencer had such a nice birthday, too bad about the cold, though it seems everybody has the sniffles here, too.
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Monday, November 7, 2005 3:13 PM CST
The birthday "date" sounds like it was lots of fun. And the pictures are great! I'm sorry to hear that Spencer has a cold and will pray that it does not affect his surgery. I know he will have a great time with Allie when she comes.
Briana Roehling
Pflugerville, TX - Monday, November 7, 2005 1:15 PM CST
Spencer Happy belated Birthday sounds like you had fun with your MOM, can't wait to see the pictures. Keeping you all in our prayers that all continues to go well and ya'll all start feeling better soon.
Diane Blomquist <Blomquisttriplet@aol.com>
Taylor, TX - Monday, November 7, 2005 1:05 AM CST
We hope you had a wonderful birthday Spencer. Tell Mommy to hurry up and post some pictures. (o:
Dawn <dawnie2@att.net>
Kent, WA USA - Saturday, November 5, 2005 6:01 PM CST
Happy Birthday Spencer!!!
Rhonda <rkoneski@austin.rr.com>
Austin, TX US - Friday, November 4, 2005 12:51 AM CST
Happy belated birthday Spencer! I hope that it was a GREAT one.
Kari *Angels On Earth* <zfamily00@hotmail.com>
Wauwatosa, WI - Friday, November 4, 2005 12:34 AM CST
Happy "late" Birthday, Spencer!! Hope you had a wonderful day, and I hope you have a wonderful birthday party! Don't forget to make a wish!! Glad to see you all are doing so very well! Take care - xoxo!
Wendy, *Spencer* Griffin & family ... www.caringbridge.org/nc/spencergriffin <wendy.griffin@wwdclt.com>
Marshville, NC USA - Friday, November 4, 2005 8:38 AM CST
Happy Happy Birthday!!!
Love, The Pirro's <kmpirro@msn.com>
metuchen, NJ - Friday, November 4, 2005 4:42 AM CST
Our prayers and love is always with you
Deborah K Cayapano <dcatapano@austin.rr.com>
Round Rock, TX USA - Friday, November 4, 2005 0:10 AM CST
Happy Birthday Spencer! WE are so excited for you. We miss you guys so much, but you sound so happy. Family is very special. Have a great day Spencer!
Jen and Steve Hebdon <jenhebdon@yahoo.com>
Round Rock, TX USA - Thursday, November 3, 2005 9:25 PM CST
Hope you have lots of fun being 4!!
Jennifer ~Angels On Earth~ <pinkribbonmom@gmail.com>
Loveland, CO - Thursday, November 3, 2005 4:19 PM CST
Happy Birthday Spencer!!! Enjoy your day!!!
Melissa (Angels On Earth) <melnjess2002@yahoo.com>
Colorado Springs , CO USA - Thursday, November 3, 2005 4:05 PM CST
Happy Birthday, Spencer!
Angela~Angels on Earth~ <alisonheathersmama@gmail.com>
- Thursday, November 3, 2005 1:53 PM CST
Happy Birthday!!!!
Mandy (Angels on Earth)
mamatooryan
- Thursday, November 3, 2005 1:43 PM CST
Happy birthday to you, happy birthday to you, happy birthday dear Spencer, happy birthday to you!!! (Be glad you are reading that rather than hearing me sing it to you in person!). I hope today is a very special day and that you are spoiled rotten and get to do lots of fun stuff. Eat some cake for me!
Briana Roehling
Pflugerville, TX - Thursday, November 3, 2005 10:23 AM CST
Happy Birthday Spencer!! Have a great day!!! Being 4 is going to be so great, you'll see, just give it a chance...love,
The Davideits <kelbri27@optonline.net>
Metuchen, nj usa - Thursday, November 3, 2005 9:57 AM CST
Happy Birthday to you, Happy Birthday to you! Happy Birthday dear Spencer, Happy Birthday to you!!! A glorious milestone - I'm so glad your healthy & happy....even if you don't want to turn 4!
Joy-Joy <joy@joylayton.com>
Las Vegas, NV - Thursday, November 3, 2005 9:19 AM CST
Hope the dentist works his magic for Annie and that Spencer manages to come to terms with the horror of a huge pile of presents, a birthday cake with a sugar rush, and a gathering of friends and family who love him!
Would he perhaps feel better about losing his port if he was allowed to take it home with him? Lots of kids get to keep their ports after they're out.
Michaela
- Wednesday, November 2, 2005 11:53 PM CST
Hi Guys!!! Happy Halloween!!! Hope you had a great time trick or treating. Eric was fast asleep on the couch by 7 pm. Ali got tons of candy, it will take a very long time to eat it all - unless her Mom and Dad decide to help :) Shauna, when you get a chance, please e-mail your new address. Have a great week...
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Monday, October 31, 2005 8:11 PM CST
Congratulations on your new house!! I hope that you all have a great Halloween. If you have a minute to visit, I'm sure that Dave would like a call. He's starved for adult conversation while they're down there. Then number is: 530-0385 x315. Have a great day!
Denise Wedel <denisew@uidaho.edu>
Aberdeen, ID USA - Monday, October 31, 2005 11:12 AM CST
I'm glad to hear that the carpet situation is finally resolved. Have a safe and Happy Halloween! I hope the kids get lots of candy! And good luck in the volleyball games.
Briana Roehling
Pflugerville, TX - Monday, October 31, 2005 9:36 AM CST
Glad ya'll are doing so well. Way to go Spencer, it must feel great to have big boy underwear. Are you having a dinasaur party for your birthday? Blake and I got to see Jennifer this week, I am sure you and mommy miss her a bunch.
Take care,
Love,
The Youngs
Blake's Page
Lisa Young <lyoung@austin.rr.com>
- Sunday, October 30, 2005 10:11 PM CST
Hi there!! I miss you soooo much!!! I hope things get better with your new clinic. I will have to come there and show them how you like things done!! Ha! Ha! :) Congrats on your new house. I will have to come visit some time. Keep me posted on your scan results. Have a HAPPY HALLOWEEN!!! Love ya!
Jennifer Johnson, RN (nurse at clinic) <jjohnson@sfcaustin.com>
Austin, TX USA - Sunday, October 30, 2005 10:26 AM CST
Yeah for potty training!!!
Just got 'caught up' on you guys. Sorry the clinic experience wasn't the greatest...............and just an FYI the 'bingo fun' is ONLY on Wednesdays....sorry.
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Saturday, October 29, 2005 1:55 PM CDT
Way to go Spencer!!! You are such a big boy!!! And congrats, Annie, on the new pet. I bet you will be a great owner and will take really good care of Henry. I'm glad the carpet thing worked out and hope you get all the painting done in time. You guys are one busy family!
Briana Roehling
Pflugerville, TX - Wednesday, October 26, 2005 8:58 AM CDT
Wow! Lots going on in the Jones' household! Congratulations Spencer - Eric wanted Spongebob Squarepants underwear when we saw them at the store yesterday..so I bought them, but he has refused to put them on! Good luck with Henry, it's very responsible of you to have your own pet, Annie. Ali now has 3 loose teeth. She is excited about the tooth fairy making a visit sometime soon. Good luck with the painting and the new carpet installation.
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Tuesday, October 25, 2005 12:04 AM CDT
Hang in there Shauna.
Deborah & LeRoy <silverde@magiclink.com>
- Monday, October 24, 2005 11:16 AM CDT
Kenneth has been begging for a leopard gecko. We went to PetsMart yesterday to see how much they are. They are $30. The cage is $30. The sand is $10. The heat lamp is $30. The rock is who knows how much. He was very discouraged. He has $20 saved up and was coming up with all kinds of strategies for making it work. Poor kid. Good luck with your pet decision!
Joy
Las Vegas?!?!?, - Saturday, October 22, 2005 0:12 AM CDT
Hope you get "connected" soon. A week without email would be torture on me! I also hope the carpet situation gets resolved, too. We have cats who have had accidents before, so we understand the frustration and difficulty in getting the smell out.
Briana Roehling
Pflugerville, TX - Wednesday, October 19, 2005 11:04 AM CDT
I'm so happy that you guys have found a wonderful new house!!! Hoping the carpet problem is almost resolved....HOW FRUSTRATING!!!! It sounds like the oncology staff there leaves a lot to be desired, too.....but glad you guys have not had to deal with that this whole time!!! Give the kids a BIG hug from Texas!! Enjoy the new house!! Hope the unpacking isn't so much as stressful, but fun to be giving everything a new home!!!
Have a great day,
Brenda
www3.caringbridge.org/tx/koreylee
Brenda Harris <Bre3@austin.rr.com>
Austin, TX USA - Tuesday, October 18, 2005 6:00 PM CDT
How exciting! I hope all went well moving everything into your new house this weekend. It sounds like a neat neighborhood with all the kids! Hopefully you can get everything unpacked soon so that you can relax and enjoy it.
Briana Roehling
Pflugerville, TX - Monday, October 17, 2005 10:39 AM CDT
I hope your moving day went smoothly. I hope the kids settle in and feel like Utah is HOME very soon.
Joy <joy@joylayton.com>
Las Vegas, NV - Saturday, October 15, 2005 11:40 PM CDT
HI there,
I am following but not posting. You know that you are in our thoughts.
Deborah & LeRoy <silverde@magiclink.com>
- Friday, October 14, 2005 12:14 AM CDT
Wow! What a frustrating and disappointing experience for all of you! Adjustment is so hard, especially when it's something so important.
I'm jealous about the season change. We're just getting to the point where visits to the park aren't quite so miserably hot!! I keep wanting to wear a long sleeved shirt, but it only lasts for about 30 minutes in the morning. We had 100+ weather for a ridiculous number of days just a couple of weeks ago, so you can be glad you missed that!!
Have fun in the snow! We miss you!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Friday, October 14, 2005 10:24 AM CDT
Sorry to hear that Spencer's trip to the doctor wasn't the best experience in the world, but it's nice to know that the folks here are so wonderful. I think it's great that Allie will be coming and will be there when Spencer gets his port out. Congrats on the house!
Briana Roehling
Pflugerville, TX - Thursday, October 13, 2005 9:16 AM CDT
Hello I have been visiting your website for a while now. Your updates always bring a smile to me. My thoughts and prayers are with you. My heart goes out to you and Spencer I hope you adjust to Utah.
God bless,
Melissa Melvin <two_canes@hotmail.com>
Chatsworth, IL USA - Wednesday, October 12, 2005 10:51 PM CDT
Good luck with the new doctors. We will keep you in our prayers for scans. Blake's are the end of October until the beginning of November. Echo, EKG, pulmonary function test, Gallium scan, PET scan, chest x-ray, blood work, thallium scantanner staging and endocrine essesment. How fun? I am sure you are excited about the new house and ready to be settled.
Lisa Young <lyoung@austin.rr.com>
- Tuesday, October 11, 2005 10:55 PM CDT
Glad to hear that you all had fun on your trip. I always enjoy reading about your adventures. Happy Anniversary (a day late)! I wish you many more years of happiness together. I'll be praying for you and Spencer as he goes in for his check up.
Briana Roehling
Pflugerville, TX - Tuesday, October 11, 2005 10:21 AM CDT
Happy Anniversary! Sounds like a busy trip. Good luck with your closing and move. Oh, Shauna, embrace the princess costume days, they are short-lived, then you move into rockers and divas - and that truly is SCARY!
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Tuesday, October 11, 2005 2:22 AM CDT
Well, I was getting worried about you. I am glad you're home safely and had a wonderful time!
Joy Layton <joy@joylayton.com>
Las Vegas, NV - Monday, October 10, 2005 10:12 PM CDT
Howdy Jones family!! We hope everyone is doing well and is healthy.
You are in our thoughts and prayers.
Love, The Pirro's <kmpirro@msn.com>
metuchen, NJ - Friday, October 7, 2005 7:51 PM CDT
HI Guys! Hope you had a safe trip to Idaho and are having lots of fun..those mountains are beautiful! But I know how hard it is to get all the winter gear together for the kids, I always forget something, then I realize it the first time it snows!!! Take care,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Thursday, October 6, 2005 6:26 PM CDT
Great pictures! Could you send some of that fall weather this way???? PLEASE!!!! You left Texas just in time to miss the record breaking temperatures.
I'm glad you got the package and the kids liked the hats and scarves. Hopefully they'll keep the kids warm this winter. Have a good trip.
Briana Roehling
Pflugerville, TX - Wednesday, September 28, 2005 9:04 AM CDT
Spencer looks so happy with his Grandpa! The kids are lucky to be near their grandparents, and all their relatives for that matter. Now I just need to figure out a way to get the grandparents to move down here :). I'm starting to get jealous of those fall colors- it was 108 degrees on Sunday, 107 yesterday, and probably somewhere in that vicinity today. Oh well, being the Texas girl that I am, 108 is infinitely preferable to 50 (wasn't that Salt Lake City's low today?) so I'll enjoy it while I can! Hope you have a great trip to Idaho and a super cavity party :)! Love, Allie
Allie <akbooth@aol.com>
Austin, TX - Tuesday, September 27, 2005 7:26 PM CDT
Wow, Mike really looks like his dad! Thanks for posting the pictures of the mountains. I miss them sometimes too. They are so different from the ones here in Seattle. Travis saw them and announced that he now wants to plan a trip to his grandma's in Logan, so thanks for inspiring him. (o:
Dawn <dawnie2@att.net>
Kent, WA USA - Tuesday, September 27, 2005 5:50 PM CDT
Hope everyone is feeling better now. I'm glad all of your Texas family is safe. Be watching the mail for a surpise.
Briana Roehling
Pflugerville, TX - Monday, September 26, 2005 10:46 AM CDT
Hi Spencer & Family,
How's Utah treating you so far?? Hopefully you're enjoying the nice weather we've been having. You'll have to email me about the location of the house. We're in WJ too......and there are at least 4 houses in our neighborhood for sale!!!
Hope to talk to you soon,
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Wednesday, September 21, 2005 7:48 PM CDT
Hi Shauna,
We had such a good time with your parents this weekend. It is good to be reminded what a hero your father is. Congrats on the house, I hope we get to see it soon.
Deborah & LeRoy <silverde@magiclink.com>
- Wednesday, September 21, 2005 11:55 AM CDT
Im sorry that Spencer isnt feeling good. poor kid. I hope today is a better day for you all.
Angela *angels on earth* -HEATHER GRACE
- Wednesday, September 21, 2005 8:12 AM CDT
I am so happy you got the house!!
I read that story to the girls about Spencer getting sick and blaming it on the new house, they all had a good laugh!!
I hope he is feeling better by now.
Love,Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Monday, September 19, 2005 9:38 PM CDT
Congrats on getting the house! I had to laugh at Spencer's reasoning for getting sick. I think he's just a Texan at heart and always will be!
Briana Roehling
Pflugerville, TX - Monday, September 19, 2005 9:34 AM CDT
I am so happy for you! Can't wait to hear more about the house. I'll try to call soon. Love you, Allie
Allie <akbooth@aol.com>
Austin, TX - Sunday, September 18, 2005 9:47 PM CDT
So glad you made it back "home" safe!!! It sounds like you had a really GREAT trip back to Texas!!! Of course it was great...it's TEXAS!!!
I know the 4 hours at the Dr's was a drag for you, but I have a feeling that it would have been really hard to get Spencer to leave any earlier!! I'm so thankful for the fishroom, but it is always so hard to get the kids to leave because they ALWAYS have fun there!! Both of mine love it!!! I have to admit...I always enjoyed the time to get to talk to Hannah and to the other parents who are in there! It is so comforting to talk to other moms who also have kids on chemo...they really understand!!!
By the way...did you see the flier for the first official Garrett's KidStrong activity? It's not a board meeting this time...wish you guys could be here!! We will miss you, but you will be here in our hearts!!! I've been sick, but I am feeling tons better today...I have had a runny nose and cough so if I'm not well by Wed, I'm going to miss the 1st official activity too!!! I would hate that, but I would never expose the kids to all of those germs!!! Unfortunately, I completely understand about germs and cancer!! I have 3 days to get germ free....
The kids aren't sick and I'd hate for them to miss out on all the fun so I'm trying to figure out if it would be safe for everyone if I scrub the kids before we leave the house...Lysol the car...don't touch either one of them before we get there...Purell, purell, purell before we go in....I can go in with a mask and sign everything and then leave them there so they can play...thanks for child care provided by Youth InterACTIVE!!! I don't want to do that, but I don't want Korey to miss the 1st event! And jumping is Kylie's absolutely most favorite thing to do in the whole world!!! They both loved Pump It Up so much the one time they went!!!
My heart goes out to you and I hope you and Spencer weren't too traumatized by the port ordeal!! I KNOW it's extremely hard and stressful on EVERYONE when they can't get the port to work!!! Been there a couple of times...no fun at all!!!!! Of course it's hardest on the child, but being a mom is so hard too!! To have to sit and watch the nurse try and try and try to find the right spot and watch your baby be turned into a human pin cushion...your baby so scared and crying so hard and you can't make it all stop. The nurse always feels bad too...NO FUN AT ALL!!!
But, speaking of fun....I'm glad Allie got to hang out so much with Spencer!! I'm sure that was a huge help for you, too!!! She is really beyond wonderful isn't she?!?! She never ceases to amaze me...but then...almost everything she does is amazing so I'm never really surprised when I hear about the million of awesome things she does!!! Talk about an inspiration!!!! I really wish that we got to see her more! I don't even want to think about when she graduates and leaves for school for how many years???....
Congrats again on Mike's job!!! Hope he enjoys the work. I'm sure he is enjoying just getting to work!!
Good luck with the house!!! It would be nice to not have to look at any more, but if you don't get this one, that means there is a better house out there meant for you!!! I think it's sweet that the kids want to stay at Grandma's!! I'm sure you are enjoying it too, but there's no place like your own home!!!!! I hope the new house isn't too far from Grandmas and all the cousins! Wherever it is, you're closer than you were in Texas! So nice!!!! Reading your entries make me soooo homesick to see all of my cousins!!! Korey said we should have a family reunion every year and I think that would be awesome!!!! He hasn't even got to meet half of all my cousins yet!!
Sorry to write a novel!!! Just was thinking about you guys and so happy to hear all the great news from you all!!!! Take care and keep having fun and enjoying your days!!! Give all the kids a big hug for me...even though they don't remember me, I remember them and I think they are awesome!!!
Have a great weekend!
Love and hope,
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Saturday, September 17, 2005 1:05 PM CDT
Missing you terribly. Happy to send geckos, we have plenty :). Wish I could just send me! Love you all, Allie
Allie <akbooth@aol.com>
Austin, TX - Thursday, September 15, 2005 11:07 PM CDT
Shauna-LeRoy and I are thinking about you. Hope the househunting is fun, fun, fun.
Deborah <silverde@magiclink.com>
- Thursday, September 15, 2005 11:51 AM CDT
Sounds like you had an action packed trip back to Texas, but I'm glad Spencer got to see Jennifer and Allie. He is amazing to make that 24 hour trip twice and for him to do so well. Good luck on the house hunting. It sounds like things are starting to fall into place for you. I'm glad that Spencer got a clean bill of health, and I hope you got your much needed nap.
Briana Roehling
Pflugerville, TX - Thursday, September 15, 2005 9:25 AM CDT
Well, hopefully you guys had a nice trip and will be sleeping in your own beds tonight, if you weren't already home last night. Already missing you, of course! Thank you so very much for bringing Spencer- we had such a great time! I won't even try to write exactly how greatful I am for you bringing Spence, because it would need more exclamation points than the guestbook page allows and it would still be an understatement! Every second I got to spend with him was really special, and I can't wait to see everybody again soon! Never soon enough, though :). Love you guys and please tell everybody in Utah hi for me. Heck, you can give them all "loves" for me, too :). Miss you and congratulations to Mike on a stable job situation! Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Monday, September 12, 2005 10:22 PM CDT
YEAH!!!!!!! Having a job is always wonderful!!!!!! Hope you guys have a safe trip to Texas and back again!!!
Thinking of you all!
Brenda
Korey's mom
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Thursday, September 8, 2005 3:13 PM CDT
Congrats to Mike on the job!! Also glad that things may be working out with the house. Have a safe trip and enjoy your short time here.
Briana Roehling
Pflugerville, TX - Wednesday, September 7, 2005 11:11 AM CDT
Great pictures! I'm glad Spencer was excited about getting to come back to Texas to see Jennifer and Allie! Keeping you all in my prayers that everything works out.
Briana Roehling
Pflugerville, TX - Tuesday, September 6, 2005 9:39 AM CDT
The pictures are GREAT! I can't believe the red hair - especially after seeing the one on the homepage - him with blonde hair! He is such a handsome little guy! With much love to you all - xoxoxo
Wendy, *Spencer* Griffin & family .... www.caringbridge.org/nc/spencergriffin <wendy.griffin@wwdclt.com>
Marshville, NC USA - Tuesday, September 6, 2005 8:14 AM CDT
Shauna,
I really enjoy being able to check on you guys occasionally. I hope all goes well with the job search and house hunt.
We missed you tonight. We had a farewell for the Gardners tonight. They are moving to Illinois next weekend. (this all happened in about 3 weeks time) Elizabeth and Maureen and I were sad you couldn't be there tonight, but so glad you could be closer to family.
Just thought I would let you know that you were missed. Keep writing!
Love,
Juliene
Juliene Webb <juliene.webb@marykay.com>
Round Rock, TX - Sunday, September 4, 2005 9:37 PM CDT
have a fun trip back to Tx!
I am glad everthing seems to going well for you. I hope someone buys your house soon!!
Love,Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Saturday, September 3, 2005 7:55 AM CDT
LOVE the pictures!!! He looks so much older now. You guys sound great & I love your updates. Lots of family & fun, you guys have needed that for awhile. I know that things will work out & am glad that Mike is still w/CSC. That gives us hope w/Shawn! Enjoy your weekend. Have fun camping.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Friday, September 2, 2005 9:10 PM CDT
Hi Spencie! Only a week and an hour left until I get to see you! (But who's counting?) Congratulations on 50,000 page views- a lot of people love you! See you guys soon. Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Wednesday, August 31, 2005 9:34 PM CDT
Hi Guys! Wishing you all a very good school year and a happy fall! Shauna, you have much more patience than I, to be able to teach your daughter. There is a Cabelas in PA, on the way to HersheyPark - it sounds like so much fun - we'll have to stop the next time we are out that way...take care.
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Wednesday, August 31, 2005 4:37 PM CDT
Great pictures! You guys are keeping busy with all of that family you have! I hope the "school bell" works well, and I hope Spencer enjoys his "Allie" trip.
Briana Roehling
Pflugerville, TX - Monday, August 29, 2005 1:36 PM CDT
Hi there Spencer & family! Im so glad you had a fun time in Idaho, but im afraid you missed one of the best attractions..The Downing family! :) We are in Pocatello, you know! *sigh* Maybe next time. email me & let me know where you are now. We make a lot of trips to Utah for family & to Primary Childrens- maybe we can get the kids together to run & play! Keep smiling!
Angie Downing <mansymom@yahoo.com>
Pocatello, ID - Saturday, August 27, 2005 0:41 AM CDT
Good Morning Jones family. Sounds like the kids are having great fun with their cousins, it's so nice that they have a big extended family. Good luck to Mike on the job interview.
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Tuesday, August 23, 2005 6:12 AM CDT
Sounds like you are having tons of fun! I'll be praying that Mike's job interview goes well.
Briana Roehling
Pflugerville, TX - Monday, August 22, 2005 11:05 AM CDT
Glad that ya'll are having a good time in Utah. Hopefully you will get to see Anna. I signed her page today. It is so neat that ya'll will get to see Joy and her family already. Hopefully, we will have the KidStrong web site up and running soon. Add some pictures from Utah, I have never been there. It sounds beautiful.
Love,
The Young's
Blake's Page
Lisa Young <lyoung@austin.rr.com>
- Saturday, August 20, 2005 10:09 PM CDT
Welcome to Utah!!!! A little birdie told me you had arrived safe and sound. When you get a minute we should meet up somewhere. Devin is doing the Light the Night walk on September 17th....we'd love to see you guys there if your schedule allows.
Let me know!!!
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Saturday, August 20, 2005 3:11 PM CDT
Hi Spencer & Family
Your friend Dawn told me about your Caringbridge site. My Nephew Jacob is 2 (almost 3 now) and has just finished his treatment for ARMS. He had his broviac out yesterday. I am so happy to read that you are doing well, and enjoying life. Jacob gets to go camping with his family this weekend at Rucker (a Liahona Camp), but its not supposed to rain (LOL.. knock on wood). As for UT being a desert, I remember it raining everyday during the summer when we visited my grandparents there. And when I was there just a few weeks ago it rained as I was leaving, a nice warm summer rain. I hope things continue to go well for you!!! OH, and Jacob's site is www.caringbridge.org/ca/jacob.j
Lisa-Marie <yeeehaaaw@aol.com>
Orangevale, CA - Friday, August 19, 2005 11:11 AM CDT
Hi Spencer and family!
Sounds like you guys are having so much fun!!! All the cousins sound like so much fun! Makes me miss being around all of mine when I was little!!! Give all the kids a big hug from Texas! Enjoy the weather there!!!!! It is quite hot here isn't it?!?!
Have a great week!
Love,
Korey's mom
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Tuesday, August 16, 2005 12:41 AM CDT
Sounds like you are having lots of fun! Our kids always enjoy playing with their cousins, too, but it sounds like you have a lot more cousins. I think it is cute that Annie wants Kenneth to be her cousin. And, I have to admit, I'd be just like the kids and wrapped in a blanket in 60 degree weather. I'm a Texan by birth and while I can't stand 100 degree heat, I don't like the cold too much either (unless I'm skiing!).
Briana Roehling
Pflugerville, TX - Tuesday, August 16, 2005 9:52 AM CDT
Hi Guys, I am so glad that you are having so much fun. It sounds wonderful! Cool weather would be so nice, it's suppposed to reach 100 by Friday. Spencer will adjust, especially when you're able to get settled into a new house. Let us know how things are going on the job front. Take care. Jay has a football picture on his photo page. Hi to everyone.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Monday, August 15, 2005 2:22 PM CDT
hi iam so glad that you guy made it back to Utah so safe i hope that i can see you guys soon!! i hope that all goes well!
Love, Emilee Byers
Emilee Byers <cutiepie31689@juno.com>
Spanish Fork, Utah USA - Thursday, August 11, 2005 4:17 PM CDT
So glad that you had a safe trip. Missing you all. Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Thursday, August 11, 2005 11:40 AM CDT
I'm so glad that you made it safe and sound. I can't believe that you drove 23 hours straight through! And I really can't believe the kids were good enough for you to do that. Wow! Hopefully you'll establish your new routine soon and Spencer will feel right at home. I'll keep Mike in my prayers as he searches for that new job.
Briana Roehling
Pflugerville, TX - Thursday, August 11, 2005 9:11 AM CDT
My neighbor/best friend that walked with us through Morgan's illness has talked several times about moving and I just put my fingers in my ears and talk real loud when she does.
I know that the leaving is hard, especially when you have found such a wonderful family of friends for everyone!! It will be exciting to go through the new open doors and to find new people to share your hearts with. The hearts that you touched here in Texas will forever be changed!!
We'll keep checking on you! All the best in your new home!!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Tuesday, August 9, 2005 1:22 PM CDT
Hi Jones Family, We miss you already. We hope your trip to Utah was uneventful. Good luck with the job search, Mike!
Julie Buckley <bucklju@yahoo.com>
Austin, TX - Tuesday, August 9, 2005 1:15 PM CDT
Hi Guys, we hope you had a safe trip. We are going to miss you, but at least we have Caringbridge & Shauna, you've always been great at keeping it updated. I am glad that you are closer to family. You'll always have a place in Texas. Take care. Congratulations to Joy & her family!!
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, Tx USA - Tuesday, August 9, 2005 8:51 AM CDT
Hey guys! Hoping you arrive safe & sound in Utah! Keeping your family in my prayers!
Angie Downing <mansymom@yahoo.com>
Pocatello, Id - Monday, August 8, 2005 10:47 PM CDT
I hope that you had a safe trip and have arrived safely. Moving is never easy, but especially when you move so far away. The friends you made here in Texas will always be with you and your family will always be in my prayers.
Briana Roehling
Pflugerville, TX - Monday, August 8, 2005 9:33 AM CDT
Have a safe trip. I can't wait to hear all about it!!
Love,Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Monday, August 8, 2005 4:51 AM CDT
A big piece of MY heart just drove off in a minivan this morning! I'll miss you guys like crazy. Praying for a safe (and sane) trip to Utah. Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Sunday, August 7, 2005 10:19 PM CDT
Hi Guys! Congratulations to Joy's family on the birth of Caitlin. I wanted to wish you all a safe and happy journey back to your family. Spencer looks terrific, by the way, beautiful rosy lips!!!! love
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Friday, August 5, 2005 1:13 PM CDT
Just wanted to wish you a safe trip! I wish you and your family a wonderful life in Utah and hope that you can remember Texas fondly from time to time!
I still look forward to reading your entries...We'll always have Caringbridge!
Have a great day and safe trip!
Love,
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Friday, August 5, 2005 12:48 AM CDT
How exciting! Tell Joy congratulations!
Briana Roehling
Pflugerville, TX - Wednesday, August 3, 2005 1:17 PM CDT
Have a great week. You will all be in my prayers this week and as you drive to Utah. Change is hard for most adults, so I can see why Sophie is having problems with all the change. Best of luck!
Briana Roehling
Pflugerville, TX - Monday, August 1, 2005 9:14 AM CDT
Spencer's hair is so cute! A little red, a little wave. So cute! I was just in Aberdeen. Not much has changed. Same little sleepy town. Still feels like home. Thought of you alot while there. Good luck with your move!
Dawn <dawnie2@att.net>
Kent, WA USA - Monday, August 1, 2005 8:49 AM CDT
I am so sad that you guys are moving. I know it will be a good thing. I am sure over the last year you wish you had been near family. Friends are great and I know you had wonderful support but something with family is different. I am so glad we can keep in touch through Caringbridge. We wish you nothing but the best and will always have Spencie in our thoughts and prayers.
Love,
The Young's
Blake's Page
Lisa Young <lyoung@austin.rr.com>
- Wednesday, July 20, 2005 8:39 PM CDT
Wow. The move is coming so fast. Madison has a follow up appointment with her ENT that day at 4:00, so we may try to swing by on our way home to say goodbye. I'm glad we'll be able to keep up with you via this website so we can hear all about your new adventures and watch the kids grow up.
Briana Roehling
Pflugerville, TX - Tuesday, July 19, 2005 8:39 AM CDT
Sending prayers for Spencer to stay fever free and out of the green unit. I hope Mike was able to find the new Harry Potter book so that you can get some good reading time in today.
Briana Roehling
Pflugerville, TX - Monday, July 18, 2005 9:28 AM CDT
Hey Spencer, I love your hair! It is Awsome. I have been reading your Journal for a long time. My little boy Dustin finished his chemo shortly after you. He also had Rhabo. I am so happy to see that you are doing well (Other than the little fever)(: We can handle the little things like that! I will continue to read your journal and keep you in our prayers. Love Shawna Dustin's Mom www.caringbridge.org/fl/dustin
Shawna Smith <sapah76@hotmail.com>
Niceville, Fl - Saturday, July 16, 2005 10:55 PM CDT
Glad to hear you are having fun in your last few days of life in Texas!! I can't believe you will leave so soon!! I will still look forward to all of your wonderful entries and precious pictures!! Not to mention...Annie's wise and notable words of wisdom!! You are truly blessed to have such a precious family!! I wish you all of the best in your move and hope you will continue to keep us informed on all of the wonderful off treatment things you guys do!! It's so nice to see someone really appreciate and enjoy life!
You are an inspiration to all of us cancer moms everywhere!
I hope I get to hug all of your precious babies before you go! Good luck with all of the "fun" and joys of moving!!!
Have a great weekend!
Love,
Brenda
www3.caringbridge.org/tx/koreylee
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Friday, July 15, 2005 9:52 PM CDT
Good luck with your move and transition. I wish all of you the best!
Denise Wedel <denisew@uidaho.edu>
Aberdeen, ID USA - Friday, July 15, 2005 1:30 PM CDT
Glad to hear that things are still ticking over nicely with all of you. Be sure to send me a couple of pictures of Spencer in his new "survivor" shirt. I am busy updating the gallery so I will add them to his page. Big hugs and love to all
HelenH <geordielass999@hotmail.com>
THE KICKIN' CANCER'S BUTT STORE!, - Wednesday, July 13, 2005 6:57 AM CDT
Hope you are all having a good summer!
Angela ~Angels on Earth *- -HEATHER GRACE
<alisonheathersmama@gmail.com>
natick, Ma - Tuesday, July 12, 2005 7:51 AM CDT
Hope the job search is successful soon. We would love to have you back in the Northwest.
Deborah & LeRoy <silverde@magiclink.com>
- Monday, July 11, 2005 11:29 AM CDT
Hi Guys!! We are so ready for a (dry) weekend, too. We also saw Madagascar today, Ali liked it - Eric slept thru it. You are so right, Spencer's hair is getting redder!! Our condolences on the passing of Dori, sad for the kids. Enjoy the weekend...
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Saturday, July 9, 2005 3:43 AM CDT
Hi Spencie and all!!!
I'm sitting in our Holiday Inn in Wilmington, Delaware having MAJOR Spencie-withdrawals. We've seen Brown, Harvard, Yale, Princeton, and Haverford, and still have UPenn, Duke, UVA, and UNC-Chapel Hill to go. But I'm learning a lot! I'm sorry to hear about Mike's ankle, glad it wasn't broken but I know a sprain can be even more painful than a break. Best wishes for a quick recovery! I'm beginning to long for that 104 degree weather (Michael said that was what you guys had yesterday)- it's been pouring since we got here and high in the 60s. Brrrr!!! Anyway, we probably won't get internet access after this, so I love you guys and I'll see you soon!!!
Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX 78703 - Friday, July 8, 2005 8:43 PM CDT
I'm so sorry to hear about Dori. Please give Annie a big hug and tell her that I send her my sympathies.
So glad to hear Spencer is getting to enjoy his summer this year! It makes us thankful for their health this year doesn't it? I always think what a great year it is this year because Korey isn't on chemo!! You look back to this time last year and know that they are in such a better place now...I'm so very thankful and I know you are too!!!
Have a great time swimming and having fun in the sun!!
Love,
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Wednesday, July 6, 2005 12:21 AM CDT
Please tell Annie that I am so sorry to hear about Dori. Pets truly are a part of the family, and it's sad when they die.
I'm glad that you have been able to swim and have some fun this summer. I agree with you about the heat, though. We went swimming on Sunday and the water was lukewarm. I hope that Mike's ankle heals quickly.
Briana Roehling
Pflugerville, TX - Wednesday, July 6, 2005 8:32 AM CDT
Happy 4th of July!!
We hope you are all healthy and will enjoy fireworks tonight!!
Spencer is still in our prayers
Tina, Paul, Katherine, Carolyn, Juliana Pirro <kmpirro@msn.com>
Metuchen, NJ - Monday, July 4, 2005 6:09 AM CDT
Hi Just wanted to let you know you are being prayed for from Australia
take care I will check in on you often , you are a brave person and we have been inspired by your story
Sammy Joe and family
The Liistro Family <sammyjo2@bigpond.com.au>
Melbourne, Vic Australia - Sunday, July 3, 2005 8:55 AM CDT
Great pictures of the new haircut! Spencer looks like a very handsome boy in them! Have a great 4th!
Briana Roehling
Pflugerville, TX - Friday, July 1, 2005 8:59 AM CDT
Spencer has Mike's head! The top picture of the back of his head is so Mike. If you cropped the picture so you couldn't see anything but his head, I'd have thought it was Mike! What a cute haircut!
So, Sara pulled herself up into standing position today in her crib. She's going to be walking before I know it! Give me a call some day when we can just chat. I love you!
Karen
Karen Howell <karenhowell@byu.net>
Middleton , ID USA - Thursday, June 30, 2005 9:51 PM CDT
Uh-hem...New pictures please! We want to see Spencie's haircut.
Karen Howell <karenhowell@byu.net>
Middleton, ID USA - Thursday, June 30, 2005 12:14 AM CDT
Hi! Thanks for signing Cooper's guestbook! I was reading your journal and I find the cancer cluster stories interesting. I am one of those who wants to know exactly what caused this. I have a few things narrowed down. Cooper has a silver crown that he had put in about 6 months before he was diagnosed. I read that these can contain all kinds of metals, including tungsten. Let me know of anything that you find out!
Suzi www.caringbridge.org/mi/cooper <bellesbridal@comcast.net>
Grand Blanc, mi USA - Wednesday, June 29, 2005 1:39 PM CDT
Love you, Spencie!!!
Allie Booth <akbooth@aol.com>
Austin, TX - Monday, June 27, 2005 11:37 PM CDT
According to your journal entry, you are at Spencer's check up right now. I hope all is going well and I hope those nasty coughs have gone away. I'm sad that you are moving, but pray that everything falls into place with selling the house, getting a new job, etc. I know you will be happy to be closer to family.
Briana Roehling
Pflugerville, TX - Monday, June 27, 2005 2:35 PM CDT
I hope Spencer's appt goes smoothly on Monday.
Good luck with the move.
You seem so at peace with it!!
Love,Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Sunday, June 26, 2005 7:31 AM CDT
We missed you today! Hope the kids are feeling better!
Take care, Shauna,
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Saturday, June 25, 2005 10:21 PM CDT
Shauna,
I'm so sorry for the loss of your friend. It makes my heart sad too when I think of those 2 babies growing up without their mother. I will keep Rachel's family in my prayers -and you too! You have had such an emotional past year and now here is more. I'm so sorry to hear about your other friend's diagnosis also. That makes 3 of us Mom's that I know of with friends with breast cancer. It's hard when you've lived in a life with cancer and then a friend starts having to live that life too. You don't wish your life on anyone, much less a friend. I will keep you all in my prayers.
Wishing you comfort,
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Wednesday, June 22, 2005 4:38 PM CDT
Shauna,
I've been reading a book called "Trailing Clouds of Glory"--it's really good, I think you'd like it. But, I read a part in it the other day that I thought of as I read your entry today. It's kind of long, but I'm going to type it in here for you to read.
"I have always loved the idea of becoming a grandmother and when my son announced that he and his wife were expecting I was delighted. My son kept me informed on the progress of the pregnancy and called one day to inform me that his wife had gone into premature labor and that the baby was going to be born seven weeks early. He was clearly apprehensive but tried to sound optimistic. Jessica was born at 8:21 in the morning. She had dark brown hair and brown eyes like her mother. She was beautiful. But all was not well.
"Later that day the doctors came in and told us that my tiny granddaughter needed corrective surgery if she was to live because her esophagus was connected to a lung instead of her stomach. During that surgery they discovered that her heart was incomplete and she would need additional surgery to save her life. The happiest day of our lives turned into one of shock and disbelief.
"Before Jessica could recover from her first surgery she died in her father's arms. I was devastated.
"I could not bring myself to accept her death, and in my grief I was no help to my children. One day, about three months after Jessica died, my daughter-in-law asked me out to breakfast. Not only did we have breakfast but we shopped and lunched together. When we arrived home, it was almost dinnertime. It was the first time we had laughed together since before Jessica was born. When she dropped me off at home, she said, 'We had such a good day. Are you going to go into the house and cry because it is over?' I was puzzled by her remark but she continued with much love.
"'Don't you think how this might be affecting Jessica every time she looks down and sees you crying? She must certainly think she caused you all this pain and sadness. How can she help us if we don't give her a chance to be happy in heaven? I miss her too, but I want her to be happy.'"
I keep thinking about how hard it must be for you to be surrounded by so much sickness and so many deaths. But, you have also been so blessed to get to know so many wonderful people. I thought about what you said about Ian, about how much he had touched your heart. You are very lucky to have known him and to know his family--even if it was cancer that brought you together. I know this is way too easy for me to say and so much harder for you to do, but we have to remember where these loved ones have gone--back home to live with our Heavenly Father. They are happy there, and though we are left here on Earth to feel their loss, we are so blessed that we were given the chance to have them in our lives.
I'm praying for you and for Jeni and Rachel's family. I love you so much and hope you can find some peace through all this.
Love Karen
Karen Howell <karenhowell@byu.net>
Middleton, ID USA - Wednesday, June 22, 2005 11:41 AM CDT
Shauna, I'm so sorry to hear about your friends. I will keep everyone in my prayers.
Briana Roehling
Pflugerville, TX - Wednesday, June 22, 2005 9:58 AM CDT
Oh Shauna! How tragic, I'm so sorry about your friend. Sending you big hugs, and hope that your kids can help you smile some today. love,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Wednesday, June 22, 2005 9:02 AM CDT
I'm so glad you guys got to go out on a date!!!! It sounds like so much fun!!! I'm so thrilled for you that you will get to move closer to your family!! It is hard to be far from the people we love!! We will miss you guys though! Not sure what Allie will do with her spare time! I know she will miss you all and little Spencie too! I hope you will keep your page up so we can watch the kids grow! I just love your stories and would miss them terribly!! Enjoy your last time hanging out with the snakes and rats!!! I bet you won't miss those!!!!
Have a great week!
Brenda
www3.caringbridge.org/tx/koreylee
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Monday, June 20, 2005 10:38 AM CDT
Happy Father's Day, Mike! Those kids wore me out yesterday- believe it or not, I actually fell asleep in the sixth inning of the UT baseball game! This is sacrilege in our household and I'm not entirely sure that I'll ever live it down. So then I woke up in bed (still in my jeans and contacts and with no recollection of how I got there), when my alarm clock went off 12 hours later!!! My first slightly lucid thought was, of course, "who won?", but luckily the horns survived my absence :). (Okay, so I hadn't had a decent night's sleep in about two weeks, but it's easier to blame it on those munchkins.) Spencer has so much energy these days, it is a joy to see! I know I don't sign much anymore because I see you instead, but I still want to let you know how much I appreciate the updates. Your stories are so funny and your thoughtful insight on life is always a wonderful dose of perspective and a bright spot in my day! Thank you!
Allie Booth <akbooth@aol.com>
Austin, TX - Sunday, June 19, 2005 11:30 PM CDT
Sounds like you have had a very fun weekend! I'm sure you spoiled Mike today and did something fun today as well.
While I am happy that you will be closer to your families, I am very sad that you will be moving. Spencer was the first "caringbridge kid" that I actually met in person and, therefore, has a special place in my heart. Please keep us posted so that we can say good-bye in person before you leave.
Briana Roehling
Pflugerville, TX - Sunday, June 19, 2005 8:43 PM CDT
Shauna those stories are sooooo cute! Don't forget to write them all down...then, when their teenagers, you pull out your journal and read out loud to them! I did this and they love looking through the journals! You have such incredibly beautiful children!! Spence your eyes are gorgeous! Sending prayers and hugs from sticky South Florida!
Kathy
caringbridge.org/fl/david
Kathy <joy2jak@adelphia.net>
Boynton Beach, FL USA - Friday, June 17, 2005 6:38 PM CDT
Hi Spencer! I like your hair. Love, Michael.
Michael Booth <mtbooth93@aol.com>
Austin, TX - Friday, June 17, 2005 1:59 PM CDT
I found you through Devins site and wanted to let you know what a handsome little man you are, Spencer! And BRAVE, too! I read your journal a bit ands see your mommy used to live in Idaho? Thats COOL! We live in Pocatello! We moved here from Logan, Utah last year. We are bookmarking your page so we can check in. Our family is praying for you!
Angie Downing <mansymom@yahoo.com>
Pocatello, ID - Friday, June 17, 2005 0:06 AM CDT
I love those stories! It sounds like they are having a great summer! You are still in our prayers!
Holly Krus <hgkrus@yahoo.com>
Katy, TX - Thursday, June 16, 2005 12:43 AM CDT
Sounds like you had a great time at Volente Beach. Believe it or not, we have not been there yet, but I have heard great things about it. Maybe one day this summer.
Briana Roehling
Pflugerville, TX - Tuesday, June 14, 2005 1:56 PM CDT
Happy late birthday Mike! I hope you had a wonderful day and were treated like a king!
Briana Roehling
Pflugerville, TX - Monday, June 13, 2005 9:19 AM CDT
Happy Birthday Mike (I feel older - and I am!!) Hope you enjoyed your day,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Saturday, June 11, 2005 10:50 PM CDT
Happy 30... I feel sooooo old.
Love,
Lisa
Blake's Page
Lisa Young <lyoung@austin.rr.com>
- Saturday, June 11, 2005 10:00 PM CDT
Happy Birthday, Mike!
Joy
Round Rock, TX - Saturday, June 11, 2005 9:58 PM CDT
HAPPY BIRTHDAY MIKE!!!! You are still soooo young!!! Enjoy it!!! It was so good to see you and the kids the other day, Shauna! Everybody looks great!!! I hope they all had fun! Have a great day with whatever you guys do!!!
Love,
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Saturday, June 11, 2005 12:02 AM CDT
Hey, it's me again. I just had to tell you that we just got your package and it's a big hit. Savannah loves the ballet slippers and has them on with her pink leotard and skirt that I got for her there in Texas. And the high heeled feathered dress up shoes are a big hit with Joshua. He's walking around in them squealing "Shoes!!! Shoes!!!" It's pretty cute--good thing his Dad isn't here to see it. Thanks for the hand-me-downs!
Karen
Karen Howell <KarenHowell@byu.net>
Middleton, ID USA - Thursday, June 9, 2005 12:31 AM CDT
Shauna,
Scott's out of town again. This time it is for his calling at church. The youth have gone on a Super Activity to Salt Lake for three days and he went with them. I wanted to check to see if Mike has followed up with the Blue Cross job Scott e-mailed to him. Scott said he thought it looked like the best match for him and that Blue Cross is where his recommendation would have the most influence. So, if Mike hasn't done anything about it, you have to bug him till he does!!!
Love you!
Karen
Karen Howell <KarenHowell@byu.net>
Middleton, ID USA - Thursday, June 9, 2005 12:18 AM CDT
Annie, Happy Late Birthday! It sounds like you had a wonderful day!
Briana Roehling
Pflugerville, TX - Tuesday, June 7, 2005 11:43 AM CDT
Trust me, even 16 year olds aren't that mature! Happy Birthday Annie!
Allie Booth <akbooth@aol.com>
Austin, TX - Sunday, June 5, 2005 11:59 PM CDT
Happy Birthday to Annie today and Happy National Cancer Survivor Day to Spencer and family!!!
Glad everyone is getting better!!!!
Happy day!
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Sunday, June 5, 2005 5:43 PM CDT
Happy Birthday sweet Annie!!!!!!!!! Have a great time at your recital too!!!!!
I bet you guys have the greenest lawn in town!!!! I'll let you in on a secret that has so far worked with both of my kids......don't tell Sophie she has the teerible 2's! They are smarter than you think!!!! When they hear you say that, they think they are supposed to live up to the phrase...and then they DO!! Can't guarantee anything, but it worked with Korey and is working so far on Kylie....Good luck!!! Hope you guys have a wonderful weekend!!!! See you next week!!
Love,
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Friday, June 3, 2005 11:02 AM CDT
Annie, I will be leaving tomorrow for San Diego, so I won't be able to attend your recital. I wish you the best of luck and know you'll do great. I also want to wish you a happy birthday a little early! Have a great day on Sunday!
Briana Roehling
Pflugerville, TX - Thursday, June 2, 2005 11:54 AM CDT
I'll be keeping Mike in my prayers as he finds out what will happen with his job. I'm also interested in hearing what the Dr. says about the possibility of environmental factors contributing to Rhabdo. Sounds like you had a fun weekend! Have a great week.
Briana Roehling
Pflugerville, TX - Tuesday, May 31, 2005 9:45 AM CDT
Good news about your scans. I've always wondered about Rhabdo and environmental causes as well. I live in an area where it seems every time I turn around another child is diagnosed with some form of childhood cancer! All I can say is keep looking you might find something. I'm glad I found your website I'll keep tabs on you!
Michelle - Emily's mom - www.caringbridge.org/tx/emilysfight & Rhabdo Kids ACOR <thinsley@rgv.rr.com>
Mission, TX USA - Sunday, May 29, 2005 7:46 AM CDT
Hi Shauna, of course you are freaked out -it's scary and you are a mom and mom's want to protect and keep everyone well and thriving. Plus, with everything your family has been through already, it's just very stressful. I wish I had some wonderful advice for you. I guess, take a deep breath, sit back and review your options. I'm sorry Sophie's not feeling well, I hope she rebounds for the long weekend.
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Saturday, May 28, 2005 3:26 AM CDT
Shauna,
I would be freaking out too! I think most of us, Mothers anyway, would be freaking out!! Hopefully there will be answers and VERY SOON!!! Answers that will help stop this if something IS indeed causing the cancer! I can't imagine it being a coincidence at this point with the information that you have!! It might be hard to prove, but think of Erin Brockovich! (SP?) She did it!!! Your fight could be protecting many more innocent children and their families from having to suffer needlessly through the ordeal that Spencer and your family have suffered through and will go through for the rest of your lives. You could literally be saving lives because of your determination to get answers to questions that no one wants you to ask. To create questions that have answers that could quite possibly damage business in RR. I could see them fixing the problem quietly then trying to deny it was ever an issue at all! They would more than happy to fix the problem without a word to the public about the mistake and pretend like it never happened. After all, how many of their kids have cancer?
I am so sorry that there seems to be something wrong, something that seems to have created your cancer. Ours is random, no links to anything. It is the luck of the draw for Korey to have Leukemia. He used to ask me why did this have to happen to him. I said I didn't know why, but maybe God knew that Korey really wanted to help people and that because of his cancer experience, maybe that would really help him to help a lot of little kids who have to deal with cancer.
It isn't fair to any of your families that seem to be going through this horrible ordeal because of somebody's horrible mistake!! Not when all of this pain could have been prevented!! I know that opportunities present themselves when we need them the most. Maybe Mike's job uncertainty, as unfortunate as it may seem, it very well may be the opportunity you need to get out of Round Rock if that is what will make you feel safer. I know you will pray for the right answer and God will show you the right thing to do. I pray for him to give you the strength you'll need to do it!!
Please know that I am here thinking of you and praying for quick and definite answers to your questions! I can't imagine that if RR is at fault, they will want to publicly admit to the problem. An admission of guilt could destroy the whole city I would think!!! You know, maybe if someone made the higher ups at Dell aware of your findings, maybe they would join in your fight to expose the answers. Just an idea seeing that Dell Diamond is in RR and isn't a big Dell plant up there also? I'm not sure, I haven't spent a lot of time up North and right now I am thankful for that at the moment!!! What do you say we have our Friends meet down in south Austin from now on!? I'm sorry. I'm trying to have a little humor, but it is hard to joke about such a serious matter when it hits so close to home!!
I hope little Sophie gets better soon!! She has really been through the wringer lately!!! It's got to get better!!! I hope Annie still has her wonderful positive outlook and always uplifting observations that she makes about the world around her. I always enjoy her completely innocent and usually very positive comments that you frequently share with us. The innocent joy at her brother's hair coming in. How proud she was to receive her first trophy and to know how happy that it made her, thinking of things like this make my heart smile! When I think of how much joy she finds in the smallest things, she reminds me that there IS joy to be found in so many little things in life and leave it to a child to remind me of something so important!! Annie, at 6 years old is an inspiration to me. She inspires me to look for the joy in everything!! Thank you for sharing her with me!!!
I hope you feel calmer soon and are able to see your way clearly and do whatever it is you need to do for yourself and for your family. You are a wonderful mother and I know you will do the right thing with God's guidance!!
Take care Shauna and I hope to see you guys at the next KIDSTRONG meeting!!
I will be praying for you and your sweet family!
Have a great day!!!
Brenda
Brenda Harris <Brekh9@aol.com < www3.caringbridge.org/tx/koreylee >>
Austin, TX USA - Friday, May 27, 2005 2:17 PM CDT
Shauna, I don't blame you for feeling the way you do about the Health Department's findings. That is scary. My husband is from Brenham and his mom and his brother and his family still live there. There have been MANY people diagnosed with cancer lately, and I feel like there is something going on there that is causing it. Like you said, though, finding what that is and proving it would be extremely difficult. I hope and pray that it is all just coincidental and that you are not still being exposed to something that may trigger cancer. I will keep you in my prayers and will pray for Mike's job situation as well.
Briana Roehling
Pflugerville, TX - Friday, May 27, 2005 9:10 AM CDT
YAY!! I'm glad to hear the news that the scans were good!!! Good news just in time for summer!!!!!
Take Care,
Gretchen Edelmon <edelmon@austin.rr.com>
Austin, Tx - Thursday, May 26, 2005 8:09 AM CDT
I am so happy that you are satisfied with the results. Spencer is so big. I know getting Blake to drink the contrast is not always easy. Thank goodness you have such a supportive team.
We love you all,
The Youngs
Blake's Page
Lisa Young <lyoung@austin.rr.com>
- Wednesday, May 25, 2005 11:00 PM CDT
Hooray!! That's wonderful news!! Way to go, Spencer...love,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Wednesday, May 25, 2005 2:39 PM CDT
I'm glad the scan results came back good. I think that is wonderful that Allie came down to keep Spencer company. Have a great week.
Briana Roehling
Pflugerville, TX - Tuesday, May 24, 2005 3:13 PM CDT
Congratulations on the clear scans! I hope everything else is clear and easy for you for a while too!
JoLynn Wood <djrrw@worldnet.att.net>
Tempe, AZ USA - Tuesday, May 24, 2005 11:50 AM CDT
YEA FOR CLEAR SCANS!!!! And for results, too- that's exciting!!! Give that wiggleworm a hug for me! I have to say that I witnessed a true miracle with that contrast fluid- Mike is AMAZING. Too bad that's not a skill that comes in handy very often :). Have a great, worry-free night! I love you guys!
Allie Booth <akbooth@aol.com>
Austin, TX - Monday, May 23, 2005 10:12 PM CDT
YEAH SPENCER!!!!!!!!!!!! WAY TO GO!!!!!!! Glad everyone is feeling better!!!! Have a good week!!!
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Monday, May 23, 2005 9:38 PM CDT
I'm glad that everyone is on the mend. Praying for CLEAR, CLEAR Scans today!!!! & results by tomorrow morning :). Looking forward to seeing you guys tomorrow at Colleen's. Please tell Annie "Thank You" for letting me join you at the Ballet. I really enjoyed our girls night.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Monday, May 23, 2005 10:26 AM CDT
I'm glad everyone is feeling better and I hope you had a good time and enjoyed your trip to San Antonio. Have a great week.
Briana Roehling
Pflugerville, TX - Monday, May 23, 2005 9:07 AM CDT
So glad to hear everyone is getting better!!!!! Let the sunshine in!!!! Have a great weekend in San Antonio! Will be praying for good scans!!!!!
Brenda
Brena Harris <Brekh9@aol.com>
Austin, TX USA - Saturday, May 21, 2005 10:07 PM CDT
I had strep throat twice last summer, so I know how miserable it makes you feel. Hopefully those antibiotics will kick in fast. Do what Kellie suggested and throw out all the toothbrushes and get new ones. It does help.
At least the baby bunnies will give you all something to smile about as you get over strep throat. My parents had some in their yard back in March and the kids loved checking on them. They are so cute when they are that small.
Congrats to Annie on getting her trophy!
Briana Roehling
Pflugerville, TX - Wednesday, May 18, 2005 9:25 AM CDT
This may sound really dumb, but throw out all the toothbrushes and buy new ones! Especially with strep, so you don't reinfect yourselves...loved the story about the rabbits. There are 5 kittens living in the yard behind me, I can see them through the fence, so CUTE!! But, I have 2 older cats, Oscar and George, so no kittens for our house. I hope you are all feeling better very soon, love
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Tuesday, May 17, 2005 2:21 PM CDT
Hope you and Spencer are feeling better....I hope MIke's eye is doing better too!! Man, when it rains, it pours!!!
Please let me know if I can help with anything!
Wishing you a "GET WELL" day!!!
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Tuesday, May 17, 2005 9:36 AM CDT
We missed everyone Friday night. I hope that whatever it is that has you sick runs its course fast so that you are all well again.
Briana Roehling
Pflugerville, TX - Monday, May 16, 2005 9:09 AM CDT
Wow, Spencer!! 104.....YIKES!!! I'm so sorry Shauna, you must be so worried. We missed you last night! I hope you and Spencer are feeling better soon!!!!!! It's not fun to be sick!!!!! Glad Annie got to enjoy the ballet!! She is such the little lady!!
Hope you guys have a great weekend with everyone getting better!!! See you guys soon!!
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Saturday, May 14, 2005 8:23 AM CDT
I didn't get a chance to read my caringbridge pages before I left for the meeting, so Wendy caught me standing in the hallway looking hopefully toward the elevators and told me about Spencer being sick. That is a HIGH fever, I hope he's not feeling too bad! With viruses I guess it just takes time, but poor kid. The meeting was great, we missed you but I think we got a lot of ideas out there and we did a lot of brainstorming on activities and fundraising. (I can fill you in later or I'm sure you'll talk to Wendy.) Anyway, I hope this bug runs its course pretty soon and you guys have some time to relax! Tell everybody hi and I'll see you soon!
Allie Booth <akbooth@aol.com>
Austin, TX - Friday, May 13, 2005 9:25 PM CDT
Oh boy, that's no fun, a fever that high!! Poor Spencer, tell him we're sending him "feel better" hugs from NJ. Sounds like you have a budding ballerina , Ali's recital is June 19th- and they are doing ballet - but she wants to do gymnastics now, not dance (hoping she'll change her mind in the future) Hope you are all on the mend over the weekend, love,
Kellie <kelbri27@optonline.net>
Metuchen, nj usa - Friday, May 13, 2005 4:27 PM CDT
I'm glad that you, Annie and Wendy were able to enjoy the ballet, but I'm sorry to hear that Spencer is sick and that you and Mike are not feeling well. I'll keep you in my prayers and hope to see you tonight.
Briana Roehling
Pflugerville, TX - Friday, May 13, 2005 8:41 AM CDT
Glad everyone is up and well!!!! Have fun at Swan Lake!!! See you guys tomorrow night!!!
Brenda
brenda Harris <brekh9@aol.com>
austin, TX USA - Thursday, May 12, 2005 4:26 PM CDT
HAPPY MOTHERS DAY
Lisa Young <lyoung@austin.rr.com>
- Sunday, May 8, 2005 10:04 PM CDT
I love the new pictures! Poor Sophie. You know someone is tired when they fall asleep at the table. I hope she feels better soon and I hope that you can figure out what is causing Annie's pain, too. I hope that, despite everything, you have a wonderful mother's day today, Shauna. Maybe you were able to get some rest????
Briana Roehling
Pflugerville, TX - Sunday, May 8, 2005 6:03 PM CDT
HAPPY MOTHER'S DAY SHAUNA!!!!!!!!!!!!!!!!!!!!!!!!
Mike, you have strict orders to PAMPER your wife and make her feel like royalty! Of course every day should be like that, but us Mothers, who are always thinking of and taking care of others, will take just one day a year. Love you guys!
Karen
Karen Howell <KarenHowell@byu.net>
Middleton, ID USA - Sunday, May 8, 2005 2:01 PM CDT
Happy Mother's Day, Shauna!!!
I hope Sophie is starting to feel better today! It sounds like a really rough time for her! I kow it is hard on you too! The picture of her asleep is just PRECIOUS!!!! Hope you have a good day today! Looking forward to next week. Tell Annie she looked beautiful in her outfit!
Sending you happy thoughts!
Brenda
Brenda Haris <Brekh9@aol.com>
Austin, TX USA - Sunday, May 8, 2005 12:35 AM CDT
Hi Guys,
I hope that Sophie is starting to feel better. I love the pictures. I'll bet Annie is a great Madeline. Don't tell the boys (Jay & Josh), but they used to like watching Madeline on Disney channel!!! Spencer's got that mischevious grin on his face, it's too cute. I'm looking forward to seeing you guys next Friday. Thanks for being there when I called. It helps to know that there are others who've been in the same boat. Also, I loved you description of the Temple. It sounds like a wonderful, peaceful healing place to go. Call if you need to.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Saturday, May 7, 2005 6:07 PM CDT
So much for less time at the doctor's office now that Spencer's off treatment! Maybe the girls are trying to make up for his healthiness- after all, you have to have SOMETHING to worry about! I was just thinking that if you decide that Annie needs to see an orthopedic guy, I know a great one. My across the street neighbor, Dr. Williams, has an office right down the hall from the clinic, and I've been to him with a whole bunch of sports injuries and he is awesome! I just wanted to mention him to you in case you didn't have any other ideas, and you could always kill two birds with one stone if you needed to go by Dr. Sharp's. Anyway, hope your crew starts feeling better, especially poor Sophie- she doesn't weigh anything at all normally so she must be just about ready to float away! I'm done with most of my APs so if you are desperate this weekend and need to get out of the house for an hour, feel free to give me a call. You know I'm always up for playing :). Have a great and restful weekend, and I guess I'll see you at the meeting next week!
Love, Allie
P.S. I LOVE the pictures- the one of Spencer is priceless and Annie is really a beautiful ballerina!
Allie Booth <akbooth@aol.com>
Austin, TX - Saturday, May 7, 2005 0:17 AM CDT
Sounds like you had a nice day touring the temple, so glad you got to go, though sorry to hear that Sophie is still sick. I hope you have a wonderful Mother's Day. I have been receiving many priceless gifts this week: a bracelet made of green beads (that I am of course wearing everywhere), a plant and homemade cards. Enjoy yourself!! love,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Friday, May 6, 2005 2:54 PM CDT
Sending Sophie LOTS OF HUGS AND GET WELL WISHES!!!!! So cute to get belp from your little trooper!!! Tell Annie she is going to be the most beautiful ballerina there because she is beautiful INSIDE too!!!!
Tell Sophie to get well so she can play with Kylie next week! Hang in there Shauna! I know it's hard when the kids are sick! It's nice Mike is there to help!!
Have a good week and we'll see you soon!
Brenda
PS Thanks for the sweet entry in Korey's book! It is so nice to have everyone's support.
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Wednesday, May 4, 2005 12:22 AM CDT
I hope Sophie gets to feeling better soon and I hope it's not strep throat. I laughed at Spencer's "it's just a pit check!" I think at some point boys are facinated with the armpit. I was on the computer this weekend and Dalton came down the stairs and said, "mom, I'm going to have hairy armpits one day". I just about fell out of the chair laughing. Smile pretty for the ballet pictures, Annie.
Briana Roehling
Pflugerville, TX - Wednesday, May 4, 2005 8:57 AM CDT
Love the campout story! Sounds like fun. We don't have snakes (that we've seen...) around our house, but we have many scorpions!!! EEEEWWWWWW!!!! So, I think I would also have to have an indoor campout to keep away from the stings!
Hope you have a great week this week!!
Gretchen Edelmon Lane's Friend <edelmon@austin.rr.com>
Austin, Tx - Wednesday, May 4, 2005 8:29 AM CDT
I'm sorry Sophie's sick, I hope she gets to feeling better! I was reminded by your last entry of the time when we also camped in our living room. We were planning on going for a real campout but I got bronchitis and the doctor nixed that idea. I was so disappointed that Mom set up our huge family tent in the middle of the living room (there's a scrape mark on the ceiling to this day), and we ended up making smores over the stove and hot chocolate in the microwave. And having a clean bathroom fifteen feet away was a definite plus :)! Still, there are some really fun camping places in Texas, don't give up on it yet! You might like Lost Maples because the scenery is more like it is up north (and not a cactus in sight!). Anyway, stay well and have a great week!
Allie Booth <akbooth@aol.com>
Austin, TX - Tuesday, May 3, 2005 10:19 PM CDT
I loved your journal entry from May 1st. I really needed to read that right at that moment...thank you! As a mother, I can relate to your need to protect your children from everything, and it is very tough to have faith and let go of the fear.
Your camping "trip" sounded like it was great fun! What a wonderful idea. :-)
Your family is alway in our prayers!
Holly Krus <hgkrus@yahoo.com>
Katy, TX - Tuesday, May 3, 2005 4:52 PM CDT
Hi Shauna!
Thank you so much for the beautiful entry!!! I always enjoy reading your entries! I really loved what Annie said on the soccer field!!!! She is such an awesome little girl!!! You must be so proud of her!! You have taught her how to see the good things in everything! I still remember what she said about how happy she was that Spencer had his hair again.
I was reading your journal about camping and I had to stop and think about whose page I was reading....I knew it was Spencer's but I couldn't believe that you would go camping after finding the snake and rats in your back yard!!!!! Then I saw the part about the living room.....I loved it!!!!!! How fun to do that for the kids!!!!! And fun for you because you don't have to worry about the snakes!!!!!! I'm so glad you all had a great camp out!!!!
Thank you for reminding me to be happy for today!! Your page always reminds me to be happy and thankful for what we have. I'm sure you've read the poem on Blake's page www2.caringbridge.org/hi/blakeyoung "Just For Today" . I can't read it without crying though!!!
Give Spencer a hug for me!! I couldn't help but think of Spencer when we were at Relay the other night! The picture of him in his shirt is just precious!!
Have a great week and we'll hopefully see you at our Friends group next weekend! We are off to the park to enjoy the beautiful day and be happy!
Love,
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Monday, May 2, 2005 4:15 PM CDT
I can't let Joy be the only one who signs the guestbook. You are an incredible example to our family, and amazing friends as well.
Steve
- Monday, May 2, 2005 1:51 PM CDT
Shauna,
We had a lesson in Relief Society yesterday that you would have really enjoyed and kind of went along with what you were talking about in your journal entry yesterday. It was about being women of faith not women of fear.
The teacher said that when her first baby was born, she was overly cautious about germs. When someone wanted to hold him, they had to wash their hands with soap and water and then lather up with disinfectant, and that anything that went in his mouth had to be boiled 3 times and if anyone had a runny nose, they couldn't hold him. She said that it was really quite annoying to everyone around her. She said that one day her Mom said, "Terri, you can either be a mother of faith or a mother of fear--it's your choice." She said it was a real wake up call.
The teacher also told about how when her oldest was 3, they lived up in the mountains around Garden Valley. They lived on the side of a hill and had a big sliding glass door that she would watch Jared as he played outside on the hill. She said one day he was out playing, then all of a sudden ran into the house and said, "What, Mom?" She said, "I didn't say anything." He said, "Yes you did, you said" and he said almost in a whisper, "'Jared, it's time to come in now.'" She said she was totally freaked out, because she hadn't said that, and he kept insisting that he had heard it. She called her husband, and her husband said, "It's ok, that's just the spirit talking to him." She said she went out later to the top of the hill and found cougar tracks pacing back and forth across the top of the hill. A cougar had been stalking her little boy. She said she had two choices--she could never let her son out of the house again, or she could use it as a teaching tool to teach her son that if we listen to the Holy Ghost, he will protect us even from life threatening things. She said we have to let our children live their lives and trust that they will be protected by Heavenly Father.
She made us little magnets to place on our fridge for a constant reminder that says "Faith not Fear". I think especially with your experience with cancer, that would be a great motto. You can live your life scared about the cancer coming back and want to protect Spencie from every little thing, or you can let him be a normal little boy and try to live a normal life and have faith that everything will turn out in the end. And like you said, we don't always like to the answer we get in our lives, but our Heavenly Father loves us and he won't let us pass through more than what we can handle.
I love you. You are amazing and an inspiration to us all!
Karen Howell <karenhowell@byu.net>
Middleton, ID USA - Monday, May 2, 2005 11:48 AM CDT
I really enjoyed reading your journal today. It is true that we cannot prevent the pain or the bad times, but it is how we handle them that matters. Your "campout" sounds like just the thing your family needed and sounds like so much fun. Have a great week.
Briana Roehling
Pflugerville, TX - Monday, May 2, 2005 9:13 AM CDT
I love you Spencer! And Annie! And Sophie!
Allie Booth <akbooth@aol.com>
Austin, TX - Thursday, April 28, 2005 10:38 PM CDT
I'm a big ol chicken - I do not like snakes or hairy spiders. So it's okay for me to live here, just a little too cold in the winter. I would love to see Spencer roaring like a lion, I hope the link works. Have a great night, love
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Wednesday, April 27, 2005 8:14 PM CDT
Shauna, I'm sorry to hear about the rat/snake problem. My guess is that all the construction around your house is displacing them, so they are moving into the cozy areas (your shed) in the neighborhood. I'd be a little nervous, too, letting my kids play back there. Yikes!
It sounds like Spencer really enjoyed the zoo. I bet he is real cute doing his lion impression. When we went to the zoo, the elephants were the kids' favorite.
It stinks to hear that another child has been diagnosed. All the more reason to get that support group going.
Briana Roehling
Pflugerville, TX - Wednesday, April 27, 2005 2:51 PM CDT
It's so great to hear how well Spencer is doing now. He looks so adorable. Don't worry too much about potty training. Take it from me, boys just take longer anyway. We'll be keeping your grandma Hayes in our prayers.
Dawn <dawnie2@att.net>
Kent, WA USA - Tuesday, April 26, 2005 11:15 AM CDT
Yeah!!!! 6 months!!!!!!! Today is Korey's 1 month and we are happy and very thankful!!!!
Way to go Annie!!!! Korey likes soccer, too. He played this year and there was girls on the team and he was so excited! I asked him if it was because they were cute and he said "NO, Mom!! It's because girls are good players!"
It's really exciting when you score too!!!! Way to go!!!!
Sorry to hear about your grandmother. I'm glad she is doing better now. It must be frustrating to not be able to go see her now. It's funny how life has a way of working out sometimes...maybe you'll see her soon!!
Happy 6 month Anniversary Spencer and family!!!!! Looking forward to seeing you again soon!!
Love,
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Monday, April 25, 2005 4:40 PM CDT
Wow! Six months already? I'm so glad that Spencer is doing well. I pray that he continues to do well! Congrats to Annie on scoring her first goal! That's not an easy thing to do.
Briana Roehling
Pflugerville, TX - Monday, April 25, 2005 9:59 AM CDT
Hi Shauna and Spencer,
I'm so happy that Spencer's counts are so good!!! He really does look wonderful and healthy!!! Maybe you can relax and breathe easy for a minute before scans!!
I really like the purple stone and what it symbolizes. What you said about giving hope to a newly diagnosed person...that's what I want our support group to do...give hope to families that really need it! When you are first diagnosed it seems impossible to face...at least it did for me. Then meeting someone that has been through it and has survived offered so much hope.
That is a good word....HOPE !!!
It was nice to see you yesterday. It looks like our group might get rained out tomorrow...but I am thankful for the rain! We will make it another day!
Have a wonderful weekend and we'll see you soon!
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Thursday, April 21, 2005 12:42 AM CDT
What a GREAT picture of Spencer in his survivor shirt at the Relay! He is just too darn cute. I also really like the idea of the purple stone in the survivor bag. I'm going to mention that to the survivor chair of the Pflugerville Relay for Life. Since our Relay is the 29th, I don't know if there would be time to do something like that or not. I'm glad Spencer's doctor's appointment went well and his counts are good. Praying that they stay that way and that Spencer is indeed one day an 80-year cancer survivor!
Briana Roehling
Pflugerville, TX - Thursday, April 21, 2005 8:51 AM CDT
HI Guys!! Glad the Drs appt went well. The Relay pictures are great - Spencer looks terrific, he is growing and thriving, just like children should. Have a wonderful day, love
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Thursday, April 21, 2005 7:28 AM CDT
Hi Shauna and Spencer!
I'm so glad that you guys got to go to the Relay. I bet that was really something to see with Spencer and Allie!!! Wish we could have been there!! Korey is still sick. Sorry to hear you all aren't felling well either!!! I hope you are all feeling better soon!!!
We'll see you Wed at the Dr's. Have a great week!
Brenda
PS Love the pictures!!!!!!
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Monday, April 18, 2005 5:18 PM CDT
I'm glad you had fun at the Relay for Life. We meant to stop by, but I had a 14 mile training run Saturday morning and then spent the rest of the day at the soccer fields for Dalton's soccer tournament. By the time we were done at 5:30, I completely forgot about it. I think it's neat that Allie went with Spencer on his survivor lap. As much as I hear about her, she deserves some kind of award!
Briana Roehling
Pflugerville, TX - Sunday, April 17, 2005 8:55 PM CDT
Beautiful pictures!!
I am so happy to hear Spencer is doing so well!!
Love,Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Friday, April 15, 2005 5:28 PM CDT
Hey - it's a while since I've been by! I love the photos of you guys out in the flowers. That looks like fun and they are very cute pictures. Specer is looking healthier by the day. You sure did kick cancer's butt buddy!
HelenH <geordielass999@hotmail.com>
THE KICKIN' CANCER'S BUTT STORE!, - Thursday, April 14, 2005 4:47 PM CDT
Sorry to hear you guys aren't feeling well!! I'm glad you got to enjoy your sister and her family while they were here at least! It is always fun to have cousins around to play with!!! What a nice treat for the kids!!!
The storm sounds scary!!! Glad no one was hurt!!!
Looking forward to meeting you tomorrow!! Thanks for taking the time to be there and share your ideas!! If you aren't feeling up to it, we'd totally understand!
Have a good day Shauna! Get some rest!
Love,
Brenda
Brenda Harris <Brekh9@aol.com>
Brenda Harris, TX USA - Monday, April 11, 2005 6:07 PM CDT
I'm glad you had fun with all the relatives. They at least got to enjoy some wonderful weather while they were here. And sorry to hear about the hail storm. We saw on the news that severe weather was expected, but I don't think we got any at our house - or if we did, I was so tired that I didn't hear it! Hopefully your garden can be salvaged.
I hope that you are able to find your new "normal" in the cancer world. I guess each person is different and you'll have to find what works for you. I don't even have a child with cancer, and I get mad and hate cancer. Your family is in my prayers.
Briana Roehling
Pflugerville, TX - Monday, April 11, 2005 9:02 AM CDT
Hi Shauna, I know that too often there are more questions asking "why?" than there are answers. I had no awareness of childhood cancer before Ian, now I am all too aware of all the wonderful children fighting, some winning and others sadly not..I hang on to Spencer being in that winning column, a survivor. And to the blessings we have gotten on our journey - wonderful drs, nurses and families met through caringbridge. With love and hugs,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Monday, April 11, 2005 8:32 AM CDT
Dear Shauna,
I have spent the evening crying for the same reason. Russ has left for Europe and I am overwhelmed with fear that he won't return. I have never felt this way before. I am not sure that cancer is the only fear or source of anger, except for the fact that because of this beast we have experienced so much more loss then most. We end up looking at caringbridge sites to lend support to other families and then read stories of families like Molly's and Elly's that have suffered multiple tragedies in their families. I have personaly experienced since December, 2 children dying from cancer under 10, a husband and father who dropped dead after coaching his 9 year old son's little league basketball game (52)and a family who lost a husband 9 days after returning fron GKTW. Not to mention the countless children that I follow through caringbridge that have lost their battles. I did not know the family from GKTW personally, but having experienced the same trip at the same time and knowing that it all tragically came to an end, scares me. Sorry, this is probably not appropriate, but I wanted you to know that you are not alone. I feel like I have a strong faith and that is where I should take it; however, knowing that someone else with equal or greater faith is feeling the same pain is truely comforting. Of course I do not wish this pain on anyone, but I am grateful to have friends with the same experiences to share my fears with, and know they understand. Maybe we shouldn't read anymore, I don't know the answer. I do know that my life is forever changed and only hope that my family uses this experience for the good that God intended.
Much Love,
Lisa
Blake's Page
Lisa Young <lyoung@austin.rr.com>
- Sunday, April 10, 2005 10:13 PM CDT
Shauna,
Just wanted to let you know that you aren't alone in being angry!! I try to make sense of WHY all of this has to happen. So many innocent children and good, loving families are struck by this "bully"...bully is a good
word!!! It's not fair!!!!!!!!!!! And why does 1 family have to go through so much?! It's OK to feel angry sometimes...that's just how we feel. Then I stop being angry for a minute and just want to help. I just wanted to you to know that you aren't alone!!!! I think it will be great for us moms to get together this week and re-enforce that fact....You aren't alone!!!! Sometimes it feels like you are...and then there is caringbridge! I don't feel so alone anymore.
Keeping your family in my prayers!!
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Sunday, April 10, 2005 11:52 AM CDT
Shauna, I agree with you about checking Caringbridge site and it setting your mood. I have to say though as I read the various journals, including yours, I am encouraged by the strength and devotion each of you show. I learned about Caringbridge through a friend whose daughter was diagnosed with ALL right after her first birthday. I will keep Spencer and your family in my thoughts and prayers daily.
Jennifer
Jennifer Kaysak <kaysak@comcast.net>
Dumfries, VA United States - Sunday, April 10, 2005 8:07 AM CDT
I'll bet Spencer and the girls are having a blast playing with their cousins! Karen sure looks great! You guys look the same as you did when we were kids! Beautiful!
Dawn <dawnie2@att.net>
Kent, WA USA - Friday, April 8, 2005 3:21 PM CDT
I hope that you have had a great week with your relatives and have enjoyed the wonderful weather. Have a great weekend.
Briana Roehling
Pflugerville, TX - Friday, April 8, 2005 9:37 AM CDT
Shauna,
I love the latest picture of Spencer, he looks so cute with all the hair! He also looks so HEALTHY!! I'm so glad that things are going well for you and that you are enjoying 'normal' life!
Lots of Love,
Holly - Mom O' Tommy (6), Sarah & Michael(4), & Nicholas(1) <mom04@austin.rr.com>
Buda, TX 78610 - Friday, April 8, 2005 2:49 AM CDT
Hey Spence,
I guess Spencie is a thing of the past now; you look so mature! I love that picture of you and your mom, it sounds like you had a great time at the zoo! Have fun with your cousins this week with no germ worries. See you again soon! Love, Allie
P.S. Annie, I was just thinking that I would love to see one of your soccer games sometime! I'll talk to your mom about that, but in the meantime good luck with your games!
Allie Booth <akbooth@aol.com>
Austin, TX - Wednesday, April 6, 2005 10:58 PM CDT
You are such a cutie, Spencer!! Have a great time with your cousins this week. Love from NJ,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Tuesday, April 5, 2005 0:35 AM CDT
Have a great time with your cousins Spencer!!!! That's is cool you went to the Ft Worth zoo! We went last year and it was awesome!!!!!
Shauna, thanks for wanting to be part of our meeting!! I'm looking forward to meeting you and Spencer!!
Keep on having all of that fun!!!
Keeping you in my thoughts and prayers!!!
Love,
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Monday, April 4, 2005 10:42 PM CDT
Look at all that hair. Spencer, you are a very handsome young man. Abby may not have a fighting chance now, all the girls will be after you. I thought her only competition was Jennifer. Of course Spencer likes older women, but she is taken and all.(JK) Hope your having fun with your company.
Love,
Lisa
Blake's Page
Lisa Young <lyoung@austin.rr.com>
- Monday, April 4, 2005 10:14 PM CDT
Say HI to Karen & Scott.
Deborah <silverde@magiclink.com>
- Monday, April 4, 2005 10:39 AM CDT
Have fun this week with cousins in town!!! The zoo looks like it was a lot of fun. We haven't been to the Ft Worth zoo, so maybe we will have to try it out. The pictures were great. I really like the one of you and Spencer - all that hair!
Briana Roehling
Pflugerville, TX - Monday, April 4, 2005 9:17 AM CDT
I'm so glad that you're having a wonderful visit & that you have family down for a vacation, not a hospital stay!!! You deserve it. The weather this weekend was beautiful. We've never been to the Ft.Worth Zoo. Maybe I can time it w/one of Shawn's many Ft.Worth trips when the kids are out of school. I love Spencer's hair. Have a great week.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Monday, April 4, 2005 7:43 AM CDT
Great pictures! Spencer looks so "mature" with the haircut. Hope you enjoyed the wonderful day yesterday. If you have a soccer game this weekend, Annie, good luck!
Briana Roehling
Pflugerville, TX - Friday, April 1, 2005 9:49 AM CST
Nice hair cut Spencer!!!! You are so handsome!!!
Shauna,I read what you said about missing being around other cancer moms... A few of us "Cancer Moms" are trying to meet to talk about a support group for kids. I know Spencer is little, but we want for the parents to be able to hang out and just talk about whatever we want to talk about! Maybe you might be interested in getting together with us. Lisa, Blake's mom, Wendy, Jacob's mom, and me, Korey's mom are all interested at this time...so if anyone else is interested here in the Austin area Email me if you might like to get together with us!!!!
Keep having all of that wonderful OFF TREATMENT FUN!!!!!
Keeping you in my thoughts and prayers!
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Thursday, March 31, 2005 2:38 PM CST
Spencer's looking down-right grown up!
Joy <joylayton@austin.rr.com>
Round Rock, TX - Thursday, March 31, 2005 2:26 PM CST
Such beautiful "babies". I know, they aren't babies anymore. I still call Spencer my baby. They just grow up too fast, especially if they have had the life ours have had. I need to update my pictures more often. I love coming here and seeing the new pictures all the time. Take Care!!! xoxo
Wendy, *Spencer* Griffin & family .... www.caringbridge.org/nc/spencergriffin <wendy@wwdclt.com>
Marshville, NC USA - Thursday, March 31, 2005 1:31 PM CST
Shauna and Spencer,
It is sooooo wonderful to read your updates and see that you are enjoying life so much!!!!! The sweet things your kids say.... I like when you said how Spencer's hair was out of control, but Annie was just so thrilled to love his hair because he had hair to love now!!!! I'm sure you feel the same way, too!!
It's so nice to see how much you love the little things the kids do and say! Every moment is a gift!!!
Have a wonderful day and keep having all of that fun!!!
Love,
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Wednesday, March 30, 2005 11:44 AM CST
The pictures are great! Sounds like Easter was a success and sounds like the zoo was lots of fun. Have a great week.
Briana Roehling
Pflugerville, TX - Tuesday, March 29, 2005 9:21 AM CST
I hope that you had a wonderful Easter! Can't wait to see the pictures.
Briana Roehling
Pflugerville, TX - Monday, March 28, 2005 8:54 AM CST
Happy Easter!!
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Sunday, March 27, 2005 1:35 AM CST
Happy to hear Spencer is feeling better, Happy Easter and God Bless.
Diane Blomquist <Blomquisttriplet@aol.com>
Taylor, Tx - Friday, March 25, 2005 8:44 AM CST
So happy to hear that you are enjoying your days!! Hope your Easter is full of all the wonderful things that Easter can be...when you aren't on treatment!!! Have a great day!!
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Thursday, March 24, 2005 10:45 AM CST
Hmmm, sounds like you need a couple of chickens or maybe a bunny rabbit or two! I am one of those people that LOVE beets!!! How exciting for the kids to watch the veggies grow. Have a wonderful and blessed Easter love,
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Thursday, March 24, 2005 8:05 AM CST
I'm glad that Spencer's cough is going away on its own. Sounds like your garden is doing well, but I had to laugh at Annie's comment about the animals. I'm not sure you could get by with a goat or chickens in your yard!
Briana Roehling
Pflugerville, TX - Wednesday, March 23, 2005 9:21 AM CST
Love the new pictures! I'm amazed at how different and grown up Spencer looks with his hair. I loved reading about how he hugged you in the kitchen - so sweet.
Hope your foot gets better. I tend to have the double standard about doctors myself, so I understand that one.
Briana Roehling
Pflugerville, TX - Thursday, March 17, 2005 1:49 PM CST
Sophie--Congratulations on having enough hair for a ponytail!!!!! Your little cousin Sara might have you on weight, but you definitely have her beat in the hair department. We can't wait to come visit in a few weeks!
Love Aunt Karen
Karen Howell <kls5@email.byu.edu>
Middleton, ID USA - Thursday, March 17, 2005 9:29 AM CST
Hi Jones family, Annie's hair looks so cute! Hope you all have a very nice week - gee wish it were in the 60s here...Happy St. Patrick's Day!
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Thursday, March 17, 2005 1:15 AM CST
Very cute. The resemblence to her beautiful mother is beaming out at the viewer.
Deborah <silverde@magiclink.com>
- Wednesday, March 16, 2005 2:40 PM CST
Wow! You did a great job on Annie's new haircut! She's looks so "mature" now. Where does she play her soccer games? Madison has a couple over at Voigt, so if that's where Annie plays and she plays around the same time, maybe we can see her play a little.
Briana Roehling
Pflugerville, TX - Wednesday, March 16, 2005 8:56 AM CST
The Jones Family, It was nice to see you on Saturday. The kids all grow so fast. Spencer is speaking so clearly now and Annie's hair looks very cute.
Julie Buckley <bucklju@yahoo.com>
Austin, TX - Sunday, March 13, 2005 7:58 PM CST
Hey Spencer...
Sounds like you've been busy at your house!! Sounds like you made quite a haul at the party..way to go!!
Nice, sunny and 60 degrees here in Salt Lake today...can you believe it??
Alisa & Devin
#1 Aerosmith fan
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Saturday, March 12, 2005 7:25 PM CST
Hi guys, Annie, good luck w/your soccer game. You're going to have alot of fun, but the boys have told me that the best part, is really the snacks!!! Jeffrey loves Spiderman & wears his costume every chance he gets, which means washing it everyday! In fact, he wore it to the grocery store the other day! Shauna, thanks for inviting us to Spencer's party. We really enjoyed it & we are so glad that Spencer is doing so well. I know that we are a big group, but I truly felt that it was important for Jay & the other 3 to be there. Enjoy your weekend. The weather is gorgeous.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Saturday, March 12, 2005 7:18 AM CST
Shauna, I'm sorry we didn't get much of a chance to visit at Spencer's party... I was SO bummed that they wouldn't let Thomas come over to the clinic! But better safe than sorry, right? I'm so glad that Spencer and your family are doing so well! Take care!
Love, Holly and
Tommy <mom03@austin.rr.com>
Buda, TX 78610 - Saturday, March 12, 2005 2:34 AM CST
Hey guys,
The new pictures are so cute, I just love Spencer's hair. I can't wait to see him again, I will be gone until late next Sunday (we leave tomorrow after my SAT, yuck), but I will get in touch as soon as we get back. I don't know how I'll make it until then without knowing how all of "my" kiddos are doing, but at least everyone seems okay now! Hope you have a great weekend and a relaxing week. Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Friday, March 11, 2005 10:10 PM CST
Spencer your look'in good! ! So how does it feel to have to wash hair again?? I think I should ask mommy how it feels to wash your hair again? Wonderful I'm sure.. Crazy how much meaning there is in having hair again.. I'm so happy for you and your family. Elora says she likes not having hair so then she doesn't have to comb it..she's silly.. I think she'll have a bit for the next school year.. I'm looking forward to it... Take care, Veronica
veronica candelas <endoice@yahoo.com>
pflugerville, tx usa - Friday, March 11, 2005 1:03 PM CST
I love the new pictures! Spencer looks great with all of that hair! I hope you are able to get your garden finished and I hope that what you plant grows. My parents have a very small garden with tomatoes and onions and there is nothing like a home grown tomatoe or onion. Have a great afternoon and enjoy the beautiful weather (I wish I could be out in it instead of looking at it out of my office window!).
Briana Roehling
Pflugerville, TX - Thursday, March 10, 2005 1:35 PM CST
Wow...the hernia is gone...I would say that is an answered prayer. That is great! I'm glad the party went well, and it's great to hear that Spencer is growing like he is. Keep up the good thoughts, and we will keep you in our prayers! :-)
Holly Krus <hgkrus@yahoo.com>
Katy, Tx - Wednesday, March 9, 2005 9:42 PM CST
Hey Shauna,
When it rains at your house, it pours! I think it's time you had a whole lot of sunshine. Maybe after the head lice is completely taken care of you can rest for a few hours before something else happens. Hang in there. You are an absolute inspiration! We're praying for you and your family at our house!
Jo Wood <djrrw@worldnet.att.net>
Tempe, AZ US - Tuesday, March 8, 2005 5:22 PM CST
Shauna, thanks for not writing "your wise OLD aunt" in your post. Also, you are very calm about your headlice situation, glad things continue to go well.
Deborah <silverde@magiclink.com>
- Tuesday, March 8, 2005 4:16 PM CST
I love stopping by to see what's new in Spencer's world. Glad to read all the great news...I also love seeing the cute pictures of the children! You all take care! xoxo
Wendy, *Spencer* Griffin & family .... www.caringbridge.org/nc/spencergriffin <wendy@wwdclt.com>
Marshville, NC USA - Tuesday, March 8, 2005 1:21 PM CST
Sounds like the off-treatment party was a success! How exciting! That is also great news that there is no hernia. Sounds like Spencer is doing well and really growing up. Keeping you in my prayers.
Briana Roehling
Pflugerville, TX - Tuesday, March 8, 2005 8:44 AM CST
YEAH SPENCER!!!!! WAY TO GO!!! YOU DID IT!!!!! SO GLAD YOU HAD A GOOD PARTY!!! HAVE FUN BEING OFF TREATMENT!!!!!
HOPE YOU DON'T GET BORED...HAHA
I'LL BE KEEPING YOU IN MY THOGUHTS AND PRAYERS! MAYBE ONE DAY WE WILL MEET!
HAVE A GREAT DAY TODAY AND EVERY DAY!!!!
BRENDA
BRENDA HARRIS <Brekh9@aol.com>
AUSTIN, TX USA - Tuesday, March 8, 2005 8:22 AM CST
What a great party, Spencer! That was so much fun, and you were so brave getting accessed this morning! I just wanted to let you guys know that after you left I found a very lonesome Little Foot hiding under a table :). I have him and I will bring him the next time I come over, I just didn't want you to worry about him. Tell everybody I said hi! Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Monday, March 7, 2005 9:58 PM CST
Sorry about the lice episode this weekend. I hope that is all cleared up now and that you are still able to have Spencer's off-treatment party today! I'm sure it will be a lot of fun.
Briana Roehling
Pflugerville, TX - Monday, March 7, 2005 9:48 AM CST
Shauna,
What time is the party? Tommy is inpatient so maybe we could stop by;-)
Holly & Tommy
www.caringbridge.org/tx/thomas <mom03@austin.rr.com>
Buda, TX 78610 - Monday, March 7, 2005 9:33 AM CST
Have fun at your off treatment party, YAH HOO!!!
Lisa
Blake's Page
Lisa Young <lyoung@austin.rr.com>
Round Rock, Texas - Sunday, March 6, 2005 11:26 PM CST
Oh boy! Never dull at the Jones' house! Lice was going around this fall but luckily Ali didn't get them, because she has so many stuffed animals it would have taken forever to get rid of them! Good luck, but you certainly have the right attitude. Have a nice week...
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Sunday, March 6, 2005 1:49 PM CST
Ooooh! I am itching all over!! What a pain in the neck (literally)! I'm so sorry about the lice - it is nice, though, to have some perspective on things like this now! I'm praying that they will be easy to get rid of!!
Take care!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Saturday, March 5, 2005 9:45 PM CST
Shauna,
Sounds like you have been busy. We will be praying for good news on Monday. Hope all is well. Tell Allie I said hi. I would love to meet her. She sounds like an incredible young women. Why has no one put her name in for five kids who care? I can't think of a more deserving person and I have never even met her. Hope Spencer has a GREAT off treatment party.
Lisa Young
Blake's Page
Lisa Young <lyoung@austin.rr.com>
Round Rock, tx - Saturday, March 5, 2005 2:25 PM CST
Hey Mike and Shauna, I just need to call you guys and will soon. But I wanted you to know we are thinking about you and praying for you all the time. My little Brandon, especially, is most faithful in praying for Spencer's "cancer to not come back." Sounds like you've been busy, but I'm glad things are well. I'll call soon. Melissa
Melissa Jones <galaxy@mstar2.net>
Taylorsville, UT USA - Friday, March 4, 2005 8:16 PM CST
Shauna,
I read something today that made me think of you guys. It's an article in March's Ensign about Elder Deiter Uchtdorf, who grew up in Germany post World War II. The article says,
Elder Uchtdorf's son, Guido, remembers a German phrase his father often used when there was a problem or a difficulty in their lives. "Man konnte sich daruber argern, aber man ist nicht verpflichtet dazu," he would say, which roughly translated means, "You could be upset about it, but you are not obligated to be." Dieter Uchtdorf feels that with agency and self-control, with the gospel of Jesus Christ...no one has to be victimized by circumstance. Terrible things can happen--and they have happened in his life--but with our hand in the hand of God, we can still chart a course that will set us free, that will eventually bring triumph. It requires courage, patience, optimism, and faith in God, but things can come out right if we stay with the task and stay in control.
Maybe your family could adopt that saying as your motto for your post-cancer lives. I love you!
Karen
Karen Howell <kls5@email.byu.edu>
Middleton, ID USA - Friday, March 4, 2005 1:39 PM CST
Hey Spencer and Shauna!
Way to go Spencer!!!!! We are praying for you!! Glad to hear that you are having fun again like little kids should get to do!!! Have fun at your off treatment party!!! You are in our thoughts and prayers!!
Brenda
Brenda Harris <Brekh9@aol.com>
austin, tx usa - Thursday, March 3, 2005 12:55 AM CST
Praying that you got Spencer before he stuck any food in his mouth this morning and that the scans go well. I'll check back for the update.
Briana Roehling
Pflugerville, Tx - Thursday, March 3, 2005 9:44 AM CST
What a great entry!! We can only look at and be thankful for today, because worrying about tomorrow only makes us miss the gift of today. Diligence and caution can still fit into our lives, but worry can have no part.
"Our anxiety does not empty tomorrow of its sorrow, but only empties today of its strength." - Charles H. Spurgeon
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Tuesday, March 1, 2005 1:19 PM CST
Wow, what an amazing visit! it does put things into perspective. I hope Spencer is enjoying his bed! James is adjusting to life in a "real" bed, also to the fact that we have made one bedroom a bunk room & the other bedroom a playroom!! We'll be keeping you in our prayers for Thursday. We have all got to get together, I think we need it & that we're all feeling about the same. I know that God will work it out & it will happen.
Wendy Faherty Jacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Tuesday, March 1, 2005 8:11 AM CST
Shauna,
If you find away to move on I bet you could sell it. I have faith that someday we will and that we will be better for what we have gone through and the wonderful families that we have met. However, everyday is a battle of wills. Is the tummy ache because he is sad, mad, fluish or is it the CANCER coming back. It is a fear that I am sure we all share. Remember, when you have a bad day that you are not alone. Our friends are so awesome but knowing that other mommies feel the way I do gives me so much peace. Of course I would not want sweet Spencer to be sick if I had the choice, but I am glad that you are in our lives, what an inspirational mommy Spencer, Sophie and Annie have. You could probably sell some of your energy too.
Love ya,
Lisa
Blake's Page
Lisa Young <lyoung@austin.rr.com>
Round Rock, Texas - Monday, February 28, 2005 4:24 PM CST
Wow...talking to a holocaust survivor really would put things into perspective. I also believe that God has ways of showing us that we are strong enough to handle the trials in life, and that we should find joy and good in all situations. I have also had some tough times in my life, but somehow, I made it through and am better for it. It wasn't easy. Sometimes I could only think of one day at a time, but it worked. It helped to think of achieving smaller goals that eventually make up a much larger goal.
You are really blessed, and I am sure you are going to make it through this! You have a lot opf prayers going your way!
Holly Krus <hgkrus@yahoo.com>
Katy, TX - Monday, February 28, 2005 11:43 AM CST
I got goosebumps reading about your visit with the Holocaust survivor.
I'm glad that Sophie had a wonderful birthday and that you got to take the kids shopping. It sounds like they made some good purchases. I'll keep Spencer in my prayers that the scan happens this week and that the results are good.
Briana Roehling
Pflugerville, TX - Monday, February 28, 2005 9:42 AM CST
Sorry you didn't get to make it for the scan, but sounds like ya'll had a great birthday day for Sophie, HAPPY BELATED BIRTHDAY SOPHIE :), keeping ya'll in our prayers.
Diane Blomquist <Blomquisttriplet@aol.com>
Taylor, TX - Monday, February 28, 2005 6:25 AM CST
Good luck with the scan today. And a very Happy Birthday to Sophie!!! Sounds like you have a fun time planned. Ali's school was cancelled due to snow, I'm tired of winter!! Have a great weekend...
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Friday, February 25, 2005 5:05 AM CST
I'll be praying for Spencer's GI scan tomorrow, hope it goes great! I'll talk to you when I get back. Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Thursday, February 24, 2005 10:40 PM CST
Hope all goes well for Spencer on Friday. Also, have a fun time at Gattiland. I sorta like that place myself. It's usually where our grandkids want to go when we take them out for their birthday dinner. Keeping you all in my prayers.
Sandy Tolleson
Pflugerville, TX USA - Thursday, February 24, 2005 3:17 PM CST
Praying for a good day tomorrow for you!!!! So much going on in your day...We will have in you in our thoughts and prayers!
Brenda
Brenda Harris <Brekh9@aol.com>
Austin, TX USA - Thursday, February 24, 2005 10:52 AM CST
Praying that you have a good day today, that Spencer's appointment goes well on Friday, and that Sophie has a very happy birthday. Gattiland is a popular choice at our house, too.
Briana Roehling
Pflugerville, TX - Thursday, February 24, 2005 9:19 AM CST
Shauna, Harley went through the same thing when he was Spencer's age about not wanting to be called "little". His grandmother made the mistake of calling him "baby" at that age and he got very mad at her. He got over it when I told him that my mom still calls me her baby since I'm the youngest.
I'm glad the appointment went well. We're thinking of you guys.
Beth Freeborn (Harley's Mom) <freeborn04@earthlink.net>
Austin, TX USA - Tuesday, February 22, 2005 4:44 PM CST
I read your update today, and I'm glad the Dr. visit went OK. The song you quoted is one I hear all the time, and I get tears in my eyes every time I hear it. It makes me think about all the people I have known, and the children I don't that face tough times. Reading your stories and those of other children, makes me realize not to take life for granted, and to give my son a hug every chance I get. We will continue to keep your fmaily in our prayers!
Holly Krus <hgkrus@yahoo.com>
Katy, TX - Tuesday, February 22, 2005 10:31 AM CST
Shauna, Glad to hear all went well at the Dr.'s office, sorry to hear it brings such heartbreaking memeories. Keeping ya'll in our prayers.
Diane Blomquist <Blomquisttriplet@aol.com>
Taylor, TX - Tuesday, February 22, 2005 5:02 AM CST
Shauna, I had never heard that song until about 2 weeks ago when I was getting my hair cut. All the ladies commented on how they loved the song. I wonder how many of them know someone affected by a life threatening illness/disease, probably more than we would guess.
Hope you have a great week.
Julie Buckley <bucklju@yahoo.com>
Austin, TX - Monday, February 21, 2005 8:58 AM CST
Madison said she saw you at the mall this weekend. I wish we had been in town to hear everyone on the radio. I'm sure you were wonderful and I'm glad they were able to raise more than their goal. Praying that you have a great week.
Briana Roehling
Pflugerville, TX - Monday, February 21, 2005 8:53 AM CST
Shauna,
You were great on the radio yesterday. Glad Spencer is doing so well.
Lisa Young
Blake's Page
Lisa Young <lyoung@austin.rr.com>
Round Rock, Texas - Sunday, February 20, 2005 2:55 PM CST
CONGRATS on running the marathon!! I hope Spencer is doing well. I miss him. I need to come see him soon. Glad to read that Annie did ok through her surgery. Tell Spencer I said hi. Miss you lots!!!
Jennifer Johnson, RN (nurse at the clinic) <jjohnson@sfcaustin.com>
Austin, TX USA - Sunday, February 20, 2005 9:43 AM CST
Hi. I found your link on Craiggy's guest book entry you left. What an adorable blue eyed cutie. That is wonderful he is in remission. I pray it lasts forever!
Hugs,
April
April and the Code Blue Family <code_blue_family@yahoo.com>
Forrest City, AR USA - Friday, February 18, 2005 11:00 AM CST
love the backfround
wishing you a great
weekend.
sending you lots of love
craig, lauren, and helen
CRAIGGY
helen <trula1@comcast.net>
- Friday, February 18, 2005 6:40 AM CST
YOU GO GIRL!!!!!
You have always been a crazy lady, and now you've proved it. It is AWESOME! I'm very proud of you. Good luck deciding what to do next.
Jo
JoLynn Wood <djrrw@worldnet.att.net>
Tempe, AZ USA - Tuesday, February 15, 2005 11:44 AM CST
Shauna, you always had such a strong spirit when we were kids. I looked up to you then, and I look up to you still. I'm 100% not surprised that you have such a strong little boy. He's just like you. Great job with the marathon!
Dawn <dawnie2@att.net>
Kent, WA USA - Tuesday, February 15, 2005 10:59 AM CST
Congratulations Shauna, what courage and strength you have to keep it up and make it to the finish line. I'm sure your whole family, friends and even strangers like me are proud of you and Spencer both for overcoming all odds and obstacles that got in your way. God Bless.
Diane Blomquist <Blomquisttriplet@aol.com>
Taylor, TX - Tuesday, February 15, 2005 5:08 AM CST
Congratulations!! I am tired just reading what you have written, also feeling guilty as I am just finishing off a brownie and probably couldn't even run a mile and here you were running 26 miles!!
I hope you enjoyed the movie!
Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Monday, February 14, 2005 9:18 PM CST
Shauna,
Wow! You are awesome. Enjoy the elation at finishing! That's definitely something not many people do in their lives.
Julie
Julie Buckley <bucklju@yahoo.com>
Austin, TX - Monday, February 14, 2005 2:30 PM CST
Way to go Shauna...
Yes, I definetly think you need at least a t-shirt, if not a bumper sticker!!
Happy Valentine's Day from Utah.
Hope you guys enjoy the movie.
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Monday, February 14, 2005 12:08 AM CST
What an inspirational story! I'm so glad that you were able to keep going. Joy and Allie sound like awesome people to help you along your way like they did! Sounds like you did great! Enjoy your break from running this week and enjoy the movie.
Briana Roehling
Pflugerville, TX - Monday, February 14, 2005 11:59 AM CST
Wow, wow, wow, wow, wow!!! I am so impressed. I know that Joy would have loved to be by your side. Congratulations on a triumphant run...you deserve a week of rest!!
Angela <angelawebb44@hotmail.com>
Meridian, ID - Monday, February 14, 2005 10:41 AM CST
Congratulations on the triumphant marathon. I am very impressed. LeRoy is training for a half marathon-and I am impressed by that, so I am super impressed by your effort. I plan to be one of the observers during LeRoy's effort; sitting by the side of the road under an umbrella with a cooling beverage in my hand-for me.
Deborah Silver <silverde@magiclink.com>
Twin Falls, ID - Monday, February 14, 2005 9:44 AM CST
Praying that all is well this morning and that you (Shauna) are able to move. Can't wait to hear how the marathon went. It got kind of hot toward the end and I was just praying that you were done already. Please pass along any tips you may have!
Briana Roehling
Pflugerville, TX - Monday, February 14, 2005 9:02 AM CST
I hope you all had a wonderful weekend.
Your whole family remains in my prayers.
I now have Spencer's candle and it reminds me of chocolate covered cherries, which are my favorite... YUM!!!
Love,Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Monday, February 14, 2005 5:41 AM CST
WOW SHAUNA YOU WERE AWESOME!!!!!!! YOU RAN A MARATHON!!!! WHOOPIE!!!! You looked great the whole time, you should be SOOOOO proud of yourself. Get some ice on your legs, keep drinking water, and make sure you are properly pampered by your family :). CONGRATULATIONS!
Allie Booth <akbooth@aol.com>
Austin, TX - Sunday, February 13, 2005 1:25 PM CST
I love Mike's "note." You guys crack me up :). Hope you're getting a good night's sleep, I'll see you in the morning! Love, Allie
P.S. Annie, hope you're feeling 100% better!
Allie Booth <akbooth@aol.com>
Austin, TX - Saturday, February 12, 2005 10:08 PM CST
Shauna,
Glad that Mike is home. Good luck in your run tomorrow, wish I could still run. Glad that Spencer is doing so well.
Lisa Young
Blake's Page
Lisa Young <lyoung@austin.rr.com>
Round Rock, Texas - Saturday, February 12, 2005 9:14 PM CST
Ewww..I think I should have skipped the tonsil photo!! Glad Annie is feeling pretty good. Wishing you lots of luck, Shauna, on the marathon. Have a great weekend.
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Saturday, February 12, 2005 2:25 PM CST
Great pics! Happy to hear of clear scans for Spencer and that Annie is feeling better. I'm sure it will make a big difference in how she sleeps and feels. I laughed so hard over your story of all of the kids sleeping with you. Especially the part when you kept having to go to the other side of the bed. That happens here, too! Yes, I will pray for clear scans forever and ever for Spencer and Ella. Good luck with your marathon!
Tina Jacks, Ella Barna's mom www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
austin, tx usa - Saturday, February 12, 2005 12:50 AM CST
Wow - I am glad to see that Annie feels better already! Children are amazing - we can learn so much from them.
You're still in our prayers!
Holly Krus <hgkrus@yahoo.com>
Katy, TX - Friday, February 11, 2005 12:41 AM CST
Praying that things are going well with Annie and that you are surviving without Mike. Are you still running the marathon this weekend? Let me know so that I can pray for you as you run.
Briana Roehling
Pflugerville, TX - Friday, February 11, 2005 9:16 AM CST
Annie, we are all so glad to hear you are home from the Hospital. get all the rest you need and eat all the ice cream you want!!
Love, The Pirro's <kmpirro@msn.com>
Metuchen, NJ - Thursday, February 10, 2005 4:35 AM CST
Annie,
What a big brave girl you are! We hope you enjoy your ice cream.
Love,
Julie
Julie Buckley <bucklju@yahoo.com>
Austin, TX - Wednesday, February 9, 2005 7:53 PM CST
You're looking none the worse for your hospital experience, Annie. Glad you are home and being pampered and waited on, like a princess....Make sure everyone takes good care of you!!
Kellie Davideit (Ian's mommy) <kelbri27@optonline.net>
Metuchen, nj usa - Wednesday, February 9, 2005 4:11 PM CST
Glad to see that you are back home and that Annie is doing well. I'm glad she enjoyed her stay at the hospital :) Maybe you should all have ice cream for dinner tonight!
Briana Roehling
Pflugerville, TX - Wednesday, February 9, 2005 2:47 PM CST
Shauna,
I have been thinking about you guys lately and I am so glad that Spencer's still cancer free, that must be a great relief to you. I'm also so sad to hear about Garrett, I know that you were very close to his family. I know that Spencer will come thru his surgery with flying colors. Take care ! Love Holly & Thomas
Holly - Mom O' Tommy www.caringbridge.org/tx/thomas <mom04@austin.rr.com>
Buda, Tx - Wednesday, February 9, 2005 2:02 PM CST
Just a quick note to let you know you are all thought of and loved. Good luck with your surgery Annie.
Love from CA.
Cheryl <mtbelle@hotmail.com>
San Jose, CA USA - Wednesday, February 9, 2005 12:57 AM CST
Shauna -
We'll be praying for Annie's surgery and recovery to go well. Your depression is so normal for a cancer mom - I think it's a kind of post traumatic stress. We don't get to experience the full effects of all of this until the treatment phase is over and life begins to return to "normal." Although we are forever changed, it does get better - not so hard to get from day to day. Your whole family continues to be in my everyday thoughts and prayers.
Laurie Randel (www.randelfamily.com) <laurie.randel@randelfamily.com>
Cedar Park, TX - Wednesday, February 9, 2005 10:34 AM CST
Just a note to let you know we are thinking of you and hope that Annie's surgery goes well. Also your feelings are validated. I feel the same way. Why, why, why... and how do you put it behind you? Hopefully it is like when the boys were first diagnosed, I was a messs, then you find a new normal. Unfortunately, our normal won't be like most peoples. I am not sure if that is good or bad but we have to make do. This site is awesome. I am so thankful to have a place to express my feelings. We miss Garrett and ya'll for that matter. Stay strong and know that you are never alone.
Lisa
Lisa Young <lyoung@austin.rr.com>
Round Rock, Texas - Tuesday, February 8, 2005 7:34 PM CST
Annie -
I don't know if you remember me, I'm Joy's sister, Angela. I was thinking about you today and hoping that everything was going well in your surgery. My son, Alex, had his tonsils and adnoids removed when he was little because of how badly he snored. He had a hard time sleeping. Now that he's had his tonsils and adnoids removed I can't hear him at all when he sleeps and he gets a much better night sleep. I hope this happens to you too. Take care of your mama and get better quick. Tell Joy, "hi" from her sister Angela.
Don't forget to eat a lot of ice cream!!
Love- Angela
Angela <angelawebb44@hotmail.com>
Meridian, ID - Tuesday, February 8, 2005 7:22 PM CST
I hope the surgery goes well, and that Annie recovers quickly. The new pictures are great...I love Spencer's T-shirt.
I introduced my 6-year-old son to your family through the website, and he told his Kindergarten class about Spencer. They all said a prayer for Spencer and for Annie's recovery (he goes to a private school at our church in Houston). You have some new friends in Houston! :-)
Holly Krus <hgkrus@yahoo.com>
Katy, TX USA - Tuesday, February 8, 2005 5:04 PM CST
You know, that part really struck me from Garrett's funeral as well - that out of all the things he got for Christmas, he most enjoyed the time with his family. He got what life is about - family, friends and making happy memories.
I'll be praying for Annie today and for all of you as Annie recovers. When Madison had her tonsils out, the doctor gave us tylenol with codeine (sp?) and told us how often to use it. Someone else who had been through the process said to set the alarm, wake her up and give her the medicine whether you think she needs it or not. So, that's what I did, and I think it really helped with the pain. She was eating macaroni and cheese the next day.
Annie, I'm praying that your surgery goes well and that you recover quickly (but not too quickly - you need a while to have an excuse to eat ice cream, pudding and jello!).
Briana Roehling
Pflugerville, TX - Tuesday, February 8, 2005 9:19 AM CST
My brother had his tonsils out when he was six. He slept so soundly after the surgery that he wet the bed every night for a week, because he was so relaxed. My mother was surprised that it made that big of a difference in how good he slept.
Annie, I hope you enjoy the icecream and how good it feels when you wake up in the morning after getting a good nights sleep!
Our prayers are with you all.
Juliene Webb
Round Rock, TX - Tuesday, February 8, 2005 7:58 AM CST
Hi. Just wanted to wish Annie (and Mom) well for tomorrow. Just think, all the ice cream you ever dreamed of! Wow! Hang in there Shauna, it is such an emotional journey. And you just had a big loss, it's okay to not have a productive day, besides making all those grilled cheese sandwiches with love is productive!! Hey Spencer, take good care of Annie til she's feeling better.
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Tuesday, February 8, 2005 0:15 AM CST
So, how cool is it that now Spencer even has movie stars rooting for him!
Good luck tomorrow Annie. I had my tonsils out six and a half years ago. It's much worse when you are an adult. You are still little, so it should be a piece of cake for you. Enjoy all the ice cream!
Love Aunt Karen
Karen Howell <kls5@email.byu.edu>
Middleton, ID USA - Monday, February 7, 2005 11:12 PM CST
Hey Annie girl!
You are probably SO EXCITED about going to the hospital tomorrow that you can't even get to sleep! That's okay, though, because it sounds like you'll be sleeping much better from now on. I'm looking forward to visiting you! I think I'll manage to sneak out of lacrosse a little early tomorrow (thanks to a strategically planned writing conference with my English teacher :)), so I can get to the hospital as early as 6:00pm. Or, I could run home and grab a bite to eat and then show up whenever's the best time for you and your mom. I'm also not above smuggling any food items in that you might have a taste for :). Good luck, I'm praying for you, and I'll see you tomorrow!
P.S. Shauna, thank you for putting my feelings about Garrett's death into words perfectly. It is just SO HARD. Hope tomorrow goes well for all of you. You can call me on my cell or I can probably find you. Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Monday, February 7, 2005 9:47 PM CST
Hi Shauna-I am still checking in on you. I hope the week goes smoothly for you and your children. Think of us here in Idaho-cold and windy.
Deborah
- Monday, February 7, 2005 9:38 AM CST
I'm glad you all got to enjoy your dates. It sounds like a great idea and a great way to spend one-on-one time with the kids.
Annie, it sounds like you did wonderful at church. You'll be in my prayers on Tuesday.
Praying that you all have a good week.
Briana Roehling
Pflugerville, TX - Monday, February 7, 2005 9:00 AM CST
Hi Spencer,
My name is Christian Bowman...
I play an actor on the t.v. show Lost named Steve.
I followed a few of these sites around and just wanted to say Aloha!
I know sometimes something small can make you feel real big sometimes...
Anyway, if you want... you can go to www.christianbowman.net to learn more about me...
I used to live in Austin, now I live in Hawaii...
Anyway, stay strong in your heart and know that people all the way across the Pacific Ocean are sending you best wishes...
Aloha,
Christian Bowman
Christian Bowman <christian_bowman@hotmail.com>
Honolulu, HI USA - Monday, February 7, 2005 0:28 AM CST
Hi Shauna, just dropping by to see how Spencer is doing. I see he's still getting plety of use out of his newest t-shirt...wear it with pride little man! Love and hugs
HelenH <geordielass999@hotmail.com>
IS YOUR FAMILY KICKIN' CANCER'S BUTT?, - Sunday, February 6, 2005 3:43 PM CST
Hi Annie, We'll be saying prayers for you that all goes well and that you get enough ice cream (yummy) have fun and enjoy the attention. Shauna, I've been reading your journals and vent all you want you have the right for sure. As another caringbridge family states F.R.O.G. (Fully Rely On God), like you said God has a plan.
Diane Blomquist <Blomquisttriplet@aol.com>
Taylor, TX - Saturday, February 5, 2005 8:27 AM CST
Hi Annie!
You are such a special girl. I'm so glad you're excited about "sleeping over" in the hospital; I'm excited to see you, too! Only four more days! If you want to start getting ready, you might pick out a fun outfit to wear, and also a favorite stuffed animal to take with you. I remember I took my "D-Dog," and he was even there when I woke up after the surgery! Hope you have a great weekend, and I can't wait to see you! Love, Allie
P.S. Shauna, we love your long entries! Any time you need the therapy, consider us a ready audience. I will probably see you tomorrow, otherwise I'll talk to you on Tuesday.
Allie Booth <akbooth@aol.com>
Austin, TX - Friday, February 4, 2005 9:54 PM CST
I don't usually sign in, though I read your entries every day, but I just have to say this...Annie has Shauna's dad's lips! In that picture you posted - it's amazing. We love you guys, and we feel so blessed to be so close.
Joy Layton <joylayton@austin.rr.com>
Round Rock, TX - Friday, February 4, 2005 8:02 PM CST
Shauna, you poor thing. I hope you get a really good night's sleep tonight. My kids always want to sleep with me when my husband is gone, too, and they have their little quirks (Madison grinds her teeth and Dalton is kind of like Sophie), but I do get to sleep.
You know, I'm right there with you when you say you don't understand why some are taken and others are allowed to remain. It reminds me of the lyrics in the Mercy Me song "Homesick" where he says, "help me Lord, for I don't understand your ways". I'm not sure we'll ever understand - or at least not until we get to Heaven ourselves.
May you have a peaceful evening and my you get a good night's rest.
Briana Roehling
Pflugerville, TX - Friday, February 4, 2005 9:35 AM CST
Yeh for clear scans! Did you ever believe you would be thanking God for "just" a hernia?? This journey changes perspective on alot of things. Don't worry, I'm always willing to read your therapeutic journaling - anytime!
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Friday, February 4, 2005 0:12 AM CST
I have just started reading your amazing stories. My sister has been keeping up with many children through caringbridge, and she sent me the links. I am SO happy to hear of the clear scans. As a mother, I know how tough it must be at times, so please know there are many people out here praying for you. I admire your strength and courage. Spencer is an adorable child!! God Bless You!
Holly Krus <hgkrus@yahoo.com>
Katy, TX - Thursday, February 3, 2005 10:57 AM CST
Well, it sounds weird to say, but I'm glad it's just a hernia. Please let Annie know that we will be praying for her as she has her turn in the hospital next week.
Briana Roehling
Pflugerville, TX - Thursday, February 3, 2005 9:14 AM CST
Thank God for the clear scans!!!
WHEW!! I can breathe now...
Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Wednesday, February 2, 2005 10:27 PM CST
HOORAY FOR CLEAR SCANS! I'm so glad you were able to get the results today, I'll bet Jennifer had a LOT to do with that :). Just a hernia, whew! I'm not sure what one is (I'll have to do some research on that) but I know it's not CANCER!!! That horrible disease has caused enough pain already this week. What a happy ending to a very sad day. I'm praying that the hernia is minor and won't require surgery, and also for Mike as he travels; I'm sure it was hard for him to keep his mind on work today!
Love, Allie
P.S. If you can let all of us journal readers and friends know what kinds of ice cream Annie likes, her favorite colors (hmmm... :)), her favorite type of flower (roses?), etc., I'm sure everyone would make her feel as special as Spencer did when he was in the hospital!
Allie Booth <akbooth@aol.com>
Austin, TX - Wednesday, February 2, 2005 8:52 PM CST
I have been checking your website every hour today, waiting for an update on the scans. I felt like holding my breath each time the page loaded, anxious to see what the scan results would be. I am SOOOOOO thankful to see that they are CLEAR!!! When I read about Garrett, I just cried--partly for his family, and partly because I was so scared that it might be you going through that some day. But, the scans are clear and that is just so wonderful. Spencer is going to beat this thing--he's a very tough kid. I am so happy you got good news! I love you so much and think about you every day.
Karen Howell <kls5@email.byu.edu>
Middleton, ID USA - Wednesday, February 2, 2005 8:13 PM CST
Yea to CLEAR scans!!!! We needed to hear that!!! I know the relief about the Hernia. When we found out that James had a hernia last April we felt like we could breathe again & were quite calm about the surgery. We even asked for Dr. Horowitz, Jay's surgeon! We are sooo glad that it's "just a hernia". We're praying for a quiet week for you guys.
Wendy Faherty Jacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Wednesday, February 2, 2005 7:08 PM CST
CONGRATS ON THE CLEAR SCANS! I've been following Spencer's page for some time now and I was anxiously awaiting an update on the results. I am so happy for you all. And you're right some good news after a sad day. Congrats again! keep up the good work, Spencer.
Trish Iribarne <trish@lenser.com>
Petaluma, CA - Wednesday, February 2, 2005 6:06 PM CST
Dear Mike and Shauna,
Your mom just forwarded me Spencer's page with last journal entry. My heart was so touched as I read it. I'm so sorry that you have had to go through such a great trial as well as watch the sadness others endure through the same thing.
I see Spencer's getting his hair back. He looks so cute. Your right, Shauna, he looks more like a little boy than a toddler.
I want you both to know how much I admire you. Your strength and faith through this ordeal is a wonderful example to all of us. We are continuing to pray for Spencer and for all of you. Our family sends our love.We care!
Love,
Ann
Ann fullmer
- Wednesday, February 2, 2005 12:50 AM CST
Glad to hear that Spencer cooperated for the scans. Now we just pray for good results. I was very sorry to learn about Garrett. It's just not fair. He was such a wonderful boy. I could tell that just from the one time I met him. My thoughts and prayers are with all of you.
Briana Roehling
Pflugerville, TX - Wednesday, February 2, 2005 8:39 AM CST
Hope the scans went well today and Spencer was able to drink all of the contrast and lie still. Praying that the scans are very detailed and show NOTHING. I'm sure it was very tough to go through scans today; I just wanted to come home and crawl under the covers and cry. Can't wait for some great news about CLEAR SCANS- I think we could all use some cheering up. Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Tuesday, February 1, 2005 5:17 PM CST
Shauna, LeRoy and I will be thinking of you and your family today. This is probably even more difficult with Garrett's passing. We will be waiting with you.
Deborah & LeRoy <silverde@magiclink.com>
- Tuesday, February 1, 2005 10:55 AM CST
Praying that all goes well today with the contrast and with the scans.
Briana Roehling
Pflugerville, TX - Tuesday, February 1, 2005 9:30 AM CST
Hi Spencer,
I'm thinking of you and your mom today as you get your scans. Praying for nothing but good news!
Tina Jacks, Ella Barna's mom www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
austin, tx usa - Tuesday, February 1, 2005 9:13 AM CST
We'll be thinking about you and praying for you tomorrow. Good luck!
Dawn <dawnie2@att.net>
Kent, WA USA - Tuesday, February 1, 2005 1:54 AM CST
Well, I think Allie needs to be nominated for some kind of award/honor. I have not met her, but from reading about her in your journal and in others, she is obviously a VERY special person. Glad to hear that you finally got one part of the insurance problems solved. Praying that your week goes well.
Briana Roehling
Pflugerville, TX - Monday, January 31, 2005 9:07 AM CST
Kid's are something, Juliana is all excited because she now has to take asthma medicine, *just like Katherine*. UGH!
I hope Annie's surgery goes smoothly and she enjoys her time in the hospital.
We are praying Spencer's scans will be negative.
Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Sunday, January 30, 2005 7:09 AM CST
Hi Guys,If you are on the 4th floor, ask for Nurse Rob. He is wonderful. Jay had him after his first surgery & then James had him after his hernia surgery. Plus, James had the same recovery nurse that Jay had, but I can't remember her name. I know, it's something else to know that you could walk the halls of the hospital w/your eyes closed & find your way around! I do hope that you all get to feeling better. I know that you have a wonderful support system, but if oyu need anything, please let me know. I know what it's like for Shawn to be out of town & the kids to be sick, etc. Jay's favorite Land Before Time song was "Big Water" & he used to call Joshua, "Chomper"& pretend that his leg was his long tail! (LBT #5). We're keeping you in our prayers.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Saturday, January 29, 2005 1:59 PM CST
You guys deserve a break. It doesn't sound like Annie is too worried about her upcoming surgery, but if she wants to talk to someone about it, Madison had her tonsils and adnoids out when she was four. We didn't get to stay overnight, though. I think we were home by 2:00.
Sorry the colds are still hanging on. It is very hard to run when you can't breathe, and I know you need to be getting ready for your marathon.
If you need anything when Mike is gone and Annie has her surgery, please let me know. I can't help out during the day, but maybe I could bring dinner or something.
Briana Roehling
Pflugerville, TX - Saturday, January 29, 2005 12:25 AM CST
Savannah is convinced that you guys are going to fly on a big airplane to come to our house so that she can share a sippy cup with Sophie! I don't know where she gets these ideas! We got all the boxes of clothes, and it was just like Christmas morning here going through them. Savannah LOVES all of the clothes for her and has been going through several new outfits a day. Sara has also been going through several outfits a day, but hers is due to her uncontrollable reflux and not due to her uncontrollable sense of fashion like her sister. Joshua thinks he's pretty cool, too, in his new clothes. Thanks so much! We are getting excited for our family vacation down to Austin in April. We are thinking about coming the 1st through the 9th if you can stand us that long. I hope things go well for you while Mike is gone. In October, I have to send Scott to Alaska for 3 whole weeks! I'm not looking forward to that. Being without a husband is not fun, especially with everything you have going on. Good luck! I love you!
Karen
Karen Howell <kls5@email.byu.edu>
Middleton, ID USA - Friday, January 28, 2005 12:07 AM CST
Praying for some peace and calm in your house, that everyone gets over their colds, that your week next week goes smoothly without Mike, and most of all, for good results from the scans.
Briana Roehling
Pflugerville, TX - Friday, January 28, 2005 8:55 AM CST
Sounds like your trip was great...
Love the new pictures.
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Thursday, January 27, 2005 6:45 PM CST
Still checking in on you. Hang in there.
Deborah & LeRoy
- Thursday, January 27, 2005 5:28 PM CST
Hi Shauna, I LOVE Spencer's picture!!
I showed the girls and this is what they said:
Katherine (age 11) awww.. he looks so cute with hair!
Carolyn (age 9) coool!!
Juliana (age 5) I asked her Julie, how does Spencer look with hair? She said, "Like a man"
OMG... isn't that too cute!!
We all love your little man here in this house, take care!!!
We will all be praying for him next week as he has his scans done.
Love, The Pirro's <kmpirro@msn.com>
Metuchen, NJ - Thursday, January 27, 2005 12:45 AM CST
Hi guys,I hope you get to feeling better soon. I took Joshua to the Pedi on Monday & it was just viral. James is going this afternoon. Great job on the run. Jay has his scan next Fri, the 4th, at 12pm. Our clinic appt is at 8:45. Maybe Racquel can schedule it at the same time & we can help you. Our friend, Rebecca from Houston, is coming up to help w/the boys. Shawn is in Chicago this week. He & Mike will just miss each other & then he's off to Dallas/Ft.Worth on Tues-Thurs. We'll be praying that scans are clear & it's just a typical 3 yr. old thing. Oh yeah, Jeffrey's not potty trained yet either, although he hasn't had quite the year Spence has, he's just stubborn! Praying for a quiet weekend for you guys & strength for next week!
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Thursday, January 27, 2005 12:07 AM CST
Hi! So sorry you all have yucky colds. No fun. I love the picture of Spencer on the home page with that lovely hair! (Though I still can't get over the red-head pictures you sent me). We will of course pray for a smooth week for the entire Jones clan. Ps They used to mix Hi-c powder in the contrast for Ian because it adds no bulk, just some flavor - but it was still never easy to get him to drink it...
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Thursday, January 27, 2005 11:25 AM CST
I'm restless too, so I'm checking on my friends. Praying for peace, comfort and a hedge of protection surrounding Spencer and family. May God in Heaven watch over you and have Angels encamped your home. Watch over this dear sweet little child, Lord see that he grows to be a big brother at his little sisters wedding. In the Name of Jesus.
Jim
Houston, TX USA - Thursday, January 27, 2005 1:58 AM CST
I'll be praying that Spencer is ok and that his restless nights are due to a cold or bad dreams and nothing more. Congrats on the 20 mile run! (Sorry about the treadmill motor, though - that kind of stinks.) I'm sure you will do awesome during your marathon. Thanks for sharing the article about GKTW. It does truly sound like a magical place.
Briana Roehling
Pflugerville, TX - Wednesday, January 26, 2005 9:32 AM CST
HI Spencer,
My name is Jenna and I came across your website. You are an inspiration, Fighter, Trooper, and one amazing kid. I love your smile. You are in my thoughts and prayers. I love making new friends. So I will come by and see how you are doing.
Your new friend Jenna
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Wednesday, January 26, 2005 1:53 AM CST
You guys are such great advocates for Spencer; he is so lucky to have you. I'll be praying that Spencer is just going through some sort of scary dream phase. Mom said jokingly that he was probably dreaming about all those scary Disney characters that he saw on your trip; I guess that's a possibility! Congratulations on your long run, sounds like you're ready for the Freescale. (Dad just found out that it's a qualifier for Boston if there are enough spots left, so of course he's trying again. He's kind of crazy like that :).) See you soon!
Allie Booth <akbooth@aol.com>
Austin, TX - Tuesday, January 25, 2005 8:17 PM CST
GKTW here we come!!!
We are so excited, and I loved looking at your pictures. We leave for Disney World on Sunday!! Dale Kohler is a second or 3rd cousin of my Dad's. Not terribly close, but they also live in Midway, so my parents know Dale and Joyce well. Midway is a small town (but you probably know that if you lived in Utah).
Thanks for signing Tuli's guestbook. Hope you all get feeling better.
Love,
Janelle
Tuli's Page <jankin74@hotmail.com>
SLC, UT USA - Monday, January 24, 2005 4:43 PM CST
You'll have to let us know how the 20 mile run went. Are you doing the 3M 1/2 this weekend? or just the freescale? I went Saturday to sign up with Team in Training for the San Diego Rock-n-Roll Marathon. The kick off is this Saturday and Training starts on the 5th. Exciting but scary. I'm sure you'll do great with your marathon.
Sorry the kids have been sick. We've been sick at our house as well. It's that time of year.
Briana Roehling
Pflugerville, TX - Monday, January 24, 2005 1:51 PM CST
Good luck getting the referrals you need for the other doctors. Tell Annie that I'm sorry she didn't turn into a butterfly. :) I love Spencer's hair! It makes him look so much more "mature". He's quite handsome! Have a great weekend.
Briana Roehling
Pflugerville, TX - Friday, January 21, 2005 1:28 PM CST
Spencer, you are such a little doll. Love the hair! Been thinking about you a lot. My oldest always remembers to bless the "other Spencer" in his prayers.
Dawn <dawnie2@att.net>
Kent, WA USA - Friday, January 21, 2005 9:59 AM CST
I am so glad that Spencer is okay. I know how you feel right now. Every little ache and pain or if they don't eat or sleep you can't help but wonder, is it the cancer. I suppose we will have those feelings for a while. At least we have all been lucky to have good doctors, Jennifer and wonderful friends. Glad your trip was great. Spencer's hair is so adorable. I have a friend who used doctor Cortez and loved him. Good luck. Hope to see you soon.
The Young's
Lisa Young <lyoung@austin.rr.com>
Round Rock, Texas - Friday, January 21, 2005 8:20 AM CST
Hi guys, we are so glad that Spencer doesn't have diabetes. After all that you've been through this past year. I love his hair. The boys got hair cuts a few weeks ago & Jay wanted his really short, like before, so his "waves" on top are gone, but he now has his "pre-cancer, pre-chemo" haircut back!! GKTW is an amazing place & the staff at the Disney parks are wonderful, as well. We're so glad that you had a wonderful time. A pediatric urologist, hmm.. if you were still w/BCBS, I wonder who they'd tell you to go & see!! We did check on Dr. Cortez & he is on Aetna! So, that's one less worry. We'll be saying extra prayers for Spencer's CT scans. I know that he'll be fine. Jay's are in 2 wks. Have a great weekend. We love the pictures.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Friday, January 21, 2005 7:37 AM CST
Hi! I found Spencer from the kickin Cancer's Butt website! He is a cutie! We have a 3 yr old who is in treatment for Rhabdo. We will add you to our prayers!
Suzi www.caringbridge.org/mi/cooper <bellesbridal@comcast.net>
Grand Blanc, MI USA - Thursday, January 20, 2005 8:54 PM CST
Glad to hear that Spencer doesn't have diabetes. I will keep him (and you) in my prayers as more tests are done to determine exactly what it is. Thanks for sharing the Disney pictures.
Briana Roehling
Pflugerville, TX - Thursday, January 20, 2005 9:58 AM CST
Hey guys! It's passing period and I need to get to 5th period, but I just wanted to let you know I was thinking about you, hope everything went great this morning! Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Wednesday, January 19, 2005 1:30 PM CST
Hey y'all! Isn't Give Kids the World AWESOME!!!! OMG!! We had the BEST time on our wish trip (2) years ago. The staff there is AMAZING!! We loved every second of our trip. It did rain a couple or three days, but we didn't care. We continue to lift Spencer up. We will be saying our prayers for Wednesday. We pray you all get GOOD results. Take care xoxoxo
Wendy, *Spencer* Griffin & family .... www.caringbridge.org/nc/spencergriffin <wendy@wwdclt.com>
Marshville, NC USA - Tuesday, January 18, 2005 11:14 AM CST
Glad to hear you had a great time on your trip (save the trip home)!! Hoping that all goes well tomorrow!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Tuesday, January 18, 2005 10:26 AM CST
Spencer looks so cute with HAIR!!!
I will be praying that your visit with the Doctor goes smoothly.
Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Tuesday, January 18, 2005 4:46 AM CST
Drat, it appears the school board scheduled my school holiday on the wrong day. Oh well, praying everything goes well on Wednesday! Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Monday, January 17, 2005 9:52 PM CST
Thanks for sharing the pictures. The kids look like they are having so much fun. I'll be praying for you all and especially for Spencer as you go in Wednesday.
Briana Roehling
Pflugerville, TX - Monday, January 17, 2005 9:16 PM CST
So glad you are all home safe and sound, with some wonderful memories. Isn't GKTW the most special place?? And I think Spencer was very brave to go on Splash Mountain, that IS a very big drop at the end! Can't wait to see more of your pictures...
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Sunday, January 16, 2005 7:45 PM CST
We're glad you're back in Austin, tired and happy. It sounds like the trip was wonderful. Alex keeps asking when he can go to Disney World. See you soon.
Julie Buckley <bucklju@yahoo.com>
Austin, TX - Saturday, January 15, 2005 9:51 PM CST
I'm so glad that you guys had such a fun time on your vacation. I read your site everyday...so I missed you while you were gone. Kudos on writing the very day you got back...I'm very impressed. I love it that you update so often. I get to hear it from Joy also, but it's nice that you take the time to write. Thank you for being such a good friend to Joy! Good luck with the unpacking; I always hated that part the very most!! We're glad you're home safe and sound.
Angela <angelawebb44@hotmail.com>
Meridian, ID - Saturday, January 15, 2005 5:14 PM CST
Glad you are back now. What a trip home! Your week at Disney sounds like it was wonderful (of course, how can any week at Disney not be?)! The Buzz Lightyear ride was one of Dalton's favorite rides, too. I'm sure you are exhausted trying to get unpacked and all. I hope you are able to get some rest.
Briana Roehling
Pflugerville, TX - Saturday, January 15, 2005 3:24 PM CST
Can't wait to hear all about the trip!
Briana Roehling
Pflugerville, TX - Saturday, January 15, 2005 8:34 AM CST
Hey Spencer!
I know you guys are having a blast at Disney, you deserve it so much! I hope you've heard by now that Garrett's doing better, you should see all the people who've signed his guestbook! Thank you so much for giving me one of your beautiful candles, it's burning on the kitchen table right now (Mom won't let me have it in my room). It's very cute, smells great, and gives off an unbelievable amount of light for something so small- actually, it's kind of like you! Tell your sisters hi for me, I can't wait to see all of you. Have a safe trip home! Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Thursday, January 13, 2005 8:25 PM CST
Hope you had a terrific time at Disney World!! What a great time to go! Can't wait to hear about it!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Thursday, January 13, 2005 10:51 AM CST
Have fun!
Alexis
- Tuesday, January 11, 2005 3:30 PM CST
My thoughts are with you from California! :)
Lubna <lubnac@yahoo.com>
Palo Alto, CA USA - Monday, January 10, 2005 5:24 PM CST
Wishing I was with you! Disney is so much more fun than work. Hope you guys are enjoying every minute of every day!
Briana Roehling
Pflugerville, TX - Monday, January 10, 2005 9:27 AM CST
Hope you guys have a terrific family time on your vacation and get all "juiced up". Lord bless you guys.
Shannon Ede <shannon@edefamily.net>
Round Rock, TX - Sunday, January 9, 2005 3:01 PM CST
Hope everyone is feeling better and that ya'll are having tons of fun.
Diane Blomquist <Blomquisttriplet@aol.com>
Taylor, TX - Sunday, January 9, 2005 8:18 AM CST
Hope you got there safely and are well into the fun-having already! If you read this - don't forget to call or email me your flight plans home so I can come pick you up, please.
Joy
Joy Layton <joylayton@austin.rr.com>
Round Rock, TX - Saturday, January 8, 2005 9:58 PM CST
HAVE FUN SPENCER!!!!!!
Alexis Johnson
- Saturday, January 8, 2005 11:24 AM CST
Glad the glucose levels were normal. One less thing to worry about as you head off for Disney World. Have a WONDERFUL time!
Briana Roehling
Pflugerville, TX - Friday, January 7, 2005 9:50 AM CST
I bet it's great to have the diabetes issue out of the way before your trip. I checked on Spence at lunch today and was completely taken aback that diabetes was even a possibility- just goes to show how much I know! Thank goodness that test came out normal. Sorry I'll miss you on the 17th, but I'll see you guys soon. Say hi to everybody for me and have a great time at Disney! Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Thursday, January 6, 2005 9:51 PM CST
Have a wonderful trip to Disneyworld!
Dawn <dawnie2@att.net>
Kent, WA usa - Thursday, January 6, 2005 7:11 PM CST
Praying that all is well with Spencer and that he feels well for the trip to Disney. I bet you are all getting excited! I know you are going to have so much fun. And I'm sure it will be much warmer in Florida than it is here this morning!
Briana Roehling
Pflugerville, TX - Thursday, January 6, 2005 9:10 AM CST
Hi! I hope Spencer is feeling better and it is all just alot of nothing, too. Have a GREAT time at Disney. Don't worry about running around trying to get every last thing, there is a huge Wal-Mart with grocery just up the road from GKTW open 24/7. Do use the "magic button", you all deserve it and the lines are too long for kids recuperating anyway. Sending warm, sunny weather wishes your way - go on the Buzz Lightyear ride for Ian...
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Thursday, January 6, 2005 8:23 AM CST
Hey Guys! It was great seeing you today and SpenceMan, you look wonderful with hair! I also see that you already have a girlfriend in Abby! I want to thank you for stopping by and seeing Garrett today. I know that it stressed Spencer and he did not want to be there, but Darrell says he did very well. I am so excited that you guys are going on your Make A Wish trip. We had a wonderful time and I know that you will too. Make sure that if you go to Epcot, go to the Living Seas exhibit (if you want, you can go to the guy that stands outside and show your button and get right in without going through all the history and line) and go to the "Crush" show, the kids will love it more than anything! It is interactive and my kids could not get enough of it, they went 2 times and Crush even remembered Caleigh even though it had been a couple of hours since we had been there. When we went in November It's a Small World was still closed, it was closed when we went in June also. In the Animal Kingdom please go to the Lion King show! They use the kids in the show so watch out Annie! Use the magic button, you deserve it. And don't forget to go to guest relations to get your handicap card (it is a red card that some rides require even though you have the button). Take advantage of the strollers or wheel chair, they are free through GKTW. Don't forget to go to the Castle of Dreams at GKTW and look for Garrett and Jacob's star while you make one for Spencer. There is so much more to tell you about it and what to expect so if you would like, give me a call and maybe I can help. Make sure you pack another suitcase just for all the goodies that you are going to get and any pictures that you take, make sure that you keep your film on your carry-on luggage. Have a great time and post lots of pictures!!
Colleen Burnham <smilesmom@msn.com caringbridge.org/tx/garrettburnham>
Round Rock, - Wednesday, January 5, 2005 9:02 PM CST
Shauna, Mike, I hope you have a WONDERFUL time in Disney.
We have had a *Jones'* style month of Dec. LOL!! I will fill you in when you get home. Enjoy your trip! The girls are so happy for you all that you are going to Disney.
Love,Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Wednesday, January 5, 2005 8:40 PM CST
Hey Shauna,
I have stayed up really late reading your journal, and I feel very sad that I didn't know about Spencer's sickness until now. Your family will be in our prayers from now on though. I am so happy that Spencer is doing well right now, and I hope that you will be able to heal as well as he does. I love you. You were always able to see the bright side of things. Even at 3:00 in the morning when I would knock on your guys' door because Melissa had locked me out of our dorm room again! Hang in there.
Love,
Jo (Peterson) Wood, your old neighbor
JoLynn Wood <djrrw@worldnet.att.net>
Tempe, AZ USA - Wednesday, January 5, 2005 3:11 AM CST
I bet you are all getting excited about Disney! You are going to have so much fun. Great new pictures! Annie, the snow globe is awesome! I will have to show Madison as she loves and collects snow globes. Maybe I'll get her a kit and let her make her own. Praying that you all stay healthy for your trip.
Briana Roehling
Pflugerville, TX - Tuesday, January 4, 2005 2:50 PM CST
Happy New Year!
Briana Roehling
Pflugerville, TX - Saturday, January 1, 2005 10:04 PM CST
Cute pictures!!!!!
Happy 2005,
The Ross Family
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Friday, December 31, 2004 9:18 PM CST
The new pictures are great! I think it's funny that Spencer doesn't like to have his picture made. I use to be like that, too. Still am to a certain degree. Good luck on your run this weekend! I bought a treadmill today, although it won't be delivered until the 12th, but hopefully I'll be able to kick my training into high gear once it gets here.
Briana Roehling
Pflugerville, TX - Thursday, December 30, 2004 6:06 PM CST
Great pictures! I bet you are all very excited about Disney! You will have so much fun!
Briana Roehling
Pflugerville, TX - Wednesday, December 29, 2004 9:05 AM CST
Hi Spencer,
Glad you're home safe and had a terrific time.
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Tuesday, December 28, 2004 9:47 AM CST
Glad that you are all home safe and that you all had a wonderful time with family. We were hoping for some snow here, but that didn't happen. Hopefully you'll get to relax this week.
Briana Roehling
Pflugerville, TX - Tuesday, December 28, 2004 8:38 AM CST
Merry Christmas! We're so glad that you guys had such a wonderful time. The kids were hoping for snow. It snowed in Dallas & in Houston, but not here! Jay is having his clinic appt at 10:30 & off-treatment party at 12 on Thurs. You're all invited & he hopes that you can make it. We saw Nurse Jennifer at HEB on Christmas Eve & it seemed like forever since we'd seen her last!! In reality it's only been 6 weeks, but it's gone by fast. Have a Happy New Year & we'll talk later.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Tuesday, December 28, 2004 8:03 AM CST
Just stopping by to let you know that your family is in my thoughts. I love the pictures. Spencer is so cute! I hope your family had a wonderful holiday!
Angela- www.caringbridge.com/ma/heathergrace
ma - Monday, December 27, 2004 5:51 PM CST
Merry Christmas!!!
I hope all is well with you and I hope you all had a very Merry Christmas.
I loved your picture, thank you!! The girls were so happy to get it.
Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Monday, December 27, 2004 5:18 AM CST
Hi Spencer! Welcome home, I hope you had a great Christmas. I'm very glad you've had so much energy to play with your cousins and friends. I look forward to seeing you sometime soon! Love, Allie
Allie Booth <akbooth@aol.com>
Austin, TX - Sunday, December 26, 2004 5:07 PM CST
Spencer and family, may you have a wonderful Christmas tomorrow with your family and friends.
Briana Roehling
Pflugerville, TX - Friday, December 24, 2004 8:41 PM CST
Hi Guys,
Glad to hear you are having fun out here. I hear a report that you and your cutie kids were busy having fun in SLC. Good to hear.
Hope you have a great Christmas!!
Hugs
The Ross Family
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Friday, December 24, 2004 6:12 PM CST
Happy Christmas Spencer - I hope Santa is kind!
HelenH <geordielass999@hotmail.com>
2005 CHILDREN'S CANCER RECOGNITION CALENDAR - $5 FROM EACH SALE BENEFITS CARINGBRIDGE FAMILIES!, - Friday, December 24, 2004 8:26 AM CST
Spencer and Family,
Wishing everyone a VERY MERRY CHRISTMAS and HAPPY NEW YEAR!!
Sending a double dose of Lots of Love, Tons of (((HUGS))) and MANY PRAYERS!
I also want to introduce a new Caringbridge kid, William http://www3.caringbridge.org/tx/william/ His papa is a friend of mine. Please stop in and give him a welcome to the Caringbridge family, Thanks!
Bulldawg
Bulldawg <bulldawg1959@gt.rr.com>
Nederland, Tx - Friday, December 24, 2004 7:29 AM CST
Happy Birthday Shauna!!!!! I hope you enjoy your day!
Dawn <dawnie2@att.net>
Kent, WA USA - Thursday, December 23, 2004 3:52 PM CST
Hey Spencer, it sounds like you are having tons of fun! I hope you are staying warm! Enjoy your visit and have a wonderful Christmas!
Briana Roehling
Pflugerville, TX - Monday, December 20, 2004 10:33 PM CST
Sounds like you are having a wonderful time! You deserve it for sure. I'm kinda jealous. It's been years since I've gotten to see Temple square at Christmas. Give my love to your family Shauna. Have a wonderful Christmas!
Dawn <dawnie2@att.net>
Kent, WA USA - Monday, December 20, 2004 12:24 AM CST
Spencer, I'm glad you got to go to the fishy room and see Jennifer and play with Allie. I'm also glad your numbers are great and that you didn't set off the alarm at the airport. But, how weird is it that they thought your dad could be some terrorist! Glad you finally made it to Utah and are having fun with your grandma, grandpa and family. Enjoy your visit and I hope you get to see some snow.
Briana Roehling
Pflugerville, TX - Friday, December 17, 2004 9:34 AM CST
Spencer,
I just wanted you to know that we are thinking of you.
Love, Ms. Lisa(the white babies mamma)
Lisa Young <lyoung@austin.rr.com>
Round Rock, tx - Thursday, December 16, 2004 10:32 PM CST
Hey Spencer!!!
my name is Alexis and i was at the youth sponsered party!How are you doing? I hope that all is well for you and your family.
~!*Alexis*!~
Alexis <lexichik204@aol.com>
- Wednesday, December 15, 2004 9:57 PM CST
I was so sad when I learned about Alex. I will keep his family in my prayers.
Have a safe trip whenever you leave and a wonderful Christmas.
Briana Roehling
Pflugerville, TX - Wednesday, December 15, 2004 9:51 AM CST
Happy Holidays from Angel Jen
My gift for everyone, especially the little ones!
CLICK GIFT
God's love and blessings now and in 2005!
I love you!
angel jen
Care Mail
angel jen <angel.jen@mymacs.org>
Burns, TN USA - Wednesday, December 15, 2004 6:32 AM CST
Shauna,
Beautiful words for a tragic event. Blake is very distraut. I don't think a child can quite understand the death of a child. Especially when you played with that child less then a week earlier. Know that you are not alone , the fear of the future is quite overwhelming. All we can do is trust and have faith that we will have long happy lives with our children and that they will not suffer the ill effects of their treatment.
Hope ya'll are having a blessed holiday season!!!
Lisa
Lisa Young <lyoung@austin.rr.com>
Round Rock , Tx - Tuesday, December 14, 2004 3:01 PM CST
You couldn't have written a more better entry. AMEN to all of it! Everything that my heart has wanted to say, but not quite sure how to say it. Thinking of Spencer and lifting him up!! Take care...xoxo
Wendy, *Spencer* & family .... www.caringbridge.org/nc/spencergriffin <wendy@wwdclt.com>
Marshville, NC USA - Tuesday, December 14, 2004 12:44 AM CST
We will be praying for Alex and his family. Your words are so eloquent and heartfelt.
Enjoy your trip to Utah! You will be quite the travelers over the next few weeks.
Julie Buckley <bucklju@yahoo.com>
Austin, TX - Monday, December 13, 2004 10:31 PM CST
Hi Spencer, I hope that your tooth is ok. That must have hurt! I hope you are getting excited about your trip. Have a great week.
Briana Roehling
Pflugerville, TX - Monday, December 13, 2004 8:54 AM CST
How exciting that you are coming to Utah. It has been really nice the last couple of days. I'll hope it stays that way unless you are wanting a "White Christmas".....I know you'll be busy, busy, busy the whole time you're here.
I know what you mean about those after-effects of cancer.....can't deal with it.....just take it one day at a time...thats all any of us can do.
Thanks for checking on Devin.
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Monday, December 13, 2004 3:08 AM CST
Hi Shauna,
Annie is a good big sister to Spencer. How cute! Sorry about Spencer's tooth. Hopefully it's nothing to worry about.
On the late effects book: I saw the book in the clinic during Ella's many appointments but never read it---I looked upon it like some sort of graduation diploma and we weren't worthy to read it until completion of chemo. Then, when I finally was given a copy, WOW! I read a few pages too and put it down. After a year off-treatment, I still haven't picked it up! I just can't think about all that right now either. Hope you all have a good week,
Tina Jacks, Ella Barna's mom www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
austin, tx usa - Sunday, December 12, 2004 10:10 PM CST
Sorry you are STILL having problems with the insurance. YUCK! And I'm sorry that you have gotten the cold. I hope that you can all get some rest this weekend and that the colds go away before you leave to visit family.
Briana Roehling
Pflugerville, TX - Friday, December 10, 2004 8:54 AM CST
Hi!!! Thought I'd drop a quick note, although I'm planning to call tomorrow too. Wanted to let you know I got that job in Oakland with the family cancer support group. I found out yesterday. I hope everybody gets to feeling happy and well before traveling for the holidays. Talk to you later. Love ya
Cheryl <mtbelle@hotmail.com>
San Jose, CA USA - Thursday, December 9, 2004 0:17 AM CST
I copied and pasted yesterdays entry that you wrote in to my own personal journal because what you wrote about is such a perfect example of the true meaning of the Christmas spirit. Thank you for sharing. The Lord has truly blessed you by surrounding you with such wonderful people. Have a great week!
Dawn <dawnie2@att.net>
Kent, WA USA - Tuesday, December 7, 2004 11:00 AM CST
Spencer and family, I hope that you all had fun last night. Our youth group really had fun and the kids enjoyed it. Madison was so excited that she finally got to meet everyone in person and she had a blast pushing Sophie around in the doll stroller. I hope everyone's cough is gone and I hope you can all get caught up on some rest. Have a great week!
Briana Roehling
Pflugerville, TX - Monday, December 6, 2004 9:11 AM CST
Spencer is so cute and I love the shirt. He will be in my prayers.
Tina www.caringbridge.org/md/lance <lneonkia@comcast.net>
- Saturday, December 4, 2004 5:48 PM CST
Hey Jones Family...Dawn passed on this wonderful web page and how grateful I am to hear that Spencer is doing well. I absolutely love his new shirt.
David Anderson <kid2kid3@hotmail.com>
Columbus AFB, MS USA - Friday, December 3, 2004 10:46 PM CST
Hey Shauna - just popped by to see how you guys were getting on and lo and behold - pictures of Spencer in his new shirt. It makes me smile to see these brave kids wearing their shirts with such pride. He has really earned that shirt!
Keep on kickin' cancer's butt little man!
HelenH <geordielass999@hotmail.com>
2005 CHILDREN'S CANCER RECOGNITION CALENDAR - $5 FROM EACH SALE BENEFITS CARINGBRIDGE FAMILIES!, - Thursday, December 2, 2004 6:04 PM CST
I love the new pictures of Spencer in his shirt! He looks great. I, too, received my "Spencer candle" in the mail yesterday, although I have not had a chance to burn it as I was at the church last night getting ready for Sunday. We are so excited and I think it is going to be so much fun. See you soon.
Briana Roehling
Pflugerville, TX - Thursday, December 2, 2004 9:32 AM CST
Hi guys, we love the shirt. Jay has decided that he wants that shirt, as well as the one that says "Chemo Man Triatholon. Push, Drip, Puke" Of course he's nine & thinks the word "puke" is funny!! We're glad you guys are doing well. We were so glad to see you at Jay's party. He really likes Spencer & Jeffrey loves to see your pictures. Lokking forward to seeing you at the Christmas party tonight & again on Sunday. Have a great day.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Thursday, December 2, 2004 7:45 AM CST
Yes, you did kick cancer's butt - Good for you Spencer!!! Have a great evening...
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Wednesday, December 1, 2004 6:18 PM CST
Thank you for the guestbook entry!! Yes, Praise God! I am feeling for ya about the insurance... I have a few choice words for them myself. Glad to see SpencerJ is doing well. We will continue to keep him in our prayers xoxoxo
Wendy, *Spencer* & family .... www.caringbridge.org/nc/spencergriffin <wendy@wwdclt.com>
Marshville, NC USA - Wednesday, December 1, 2004 8:01 AM CST
I'm sorry you are having so many problems with your insurance. I hope that your letters will resolve the issue and hopefully it will be resolved soon so that you can enjoy the upcoming holiday season. See you soon.
Briana Roehling
Pflugerville, TX - Tuesday, November 30, 2004 9:39 AM CST
Shauna, it was great to finally meet you Saturday! We are looking forward to Sunday. Hope your week is a great one.
Briana Roehling
Pflugerville, TX - Monday, November 29, 2004 9:09 AM CST
I am so glad you guys had a great Thanksgiving. We had a great one also. Blake also misses Jennifer. We get to see her tomorrow. I am glad your life is becoming more normal. However, I don't think any of us will ever be quite the same again.
Blessings,
Lisa Young
Lisa Young <lyoung@austin.rr.com>
Round Rock, Tx - Sunday, November 28, 2004 9:37 PM CST
Hope your Thanksgiving was great!!! I miss Spencer soooo much since he doesn't come to the clinic so often. I will have to come see him soon. Tell him hello for me. Hope all is well with everyone. Take care!
Jennifer Johnson (Spencer's nurse) <jjohnson@sfcaustin.com>
Austin, TX USA - Saturday, November 27, 2004 5:19 PM CST
Giving thanks for Spencer's health! Hope you're having a great time in Houston, and a very happy holiday.
Allie Booth <akbooth@aol.com>
Austin, TX - Thursday, November 25, 2004 9:32 PM CST
Happy Thanksgiving! I hope your trip to Houston is uneventful.
Joy
Round Rock, TX - Thursday, November 25, 2004 11:58 AM CST
Have a Happy Thanksgiving!!!
Briana Roehling
Pflugerville, TX - Thursday, November 25, 2004 11:02 AM CST
Wishing you and yours a wonderful Thanksgiving and happy holiday!
Lots of Love and Tons of (((HUGS)))!
Bulldawg
Bulldawg <bulldawg1959@gt.rr.com>
Nederland, t - Thursday, November 25, 2004 9:46 AM CST
Hi Shauna,
That's wonderful news to hear Spencer is feeling so good and that his memories of chemo are good! Hope you have a good Thanksgiving.
Tina Jacks, Ella Barna's mom www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
austin, tx usa - Wednesday, November 24, 2004 4:54 PM CST
I hope Mike's back is ok. If you are able to go to Houston, have a safe trip! Enjoy your Thanksgiving!
Briana Roehling
Pflugerville, TX - Wednesday, November 24, 2004 2:05 PM CST
You all never do have a dull moment!! A rattler in the garage - holy cow, I'd freak - I really really hate snakes (No snakes by me in NJ, whew!). I'm so glad Sophie's foot is getting back to normal. I will have to order Spencer's candle, Ian's is really nice, we are so happy with it. Have a wonderful Thanksgiving...
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Wednesday, November 24, 2004 1:24 PM CST
You guys deserve a serious break! I hope Sophie's foot is ok. I'm going to check out Spencer's candle. What a great idea. Have a great week.
Briana Roehling
Pflugerville, TX - Monday, November 22, 2004 8:59 AM CST
I hope Sophie is OK!! How COOL Spencer now has a candle!!
I was just on a retreat with a few women from our church and we were just talking about how nice Cathy's candles are, now I'm off to order a *Spencer* candle!!!
Tina <kmpirro@msn.com>
Metuchen, NJ - Sunday, November 21, 2004 12:35 AM CST
Never a dull moment - eh? Wow - it's like you said - good thing Mike followed Annie...Take care, Joy.
Joy
Round Rock, TX - Friday, November 19, 2004 9:07 PM CST
Yeah Spencer!! I am sooo happy to have read about Spencer's scans being clear! I hope that we will see you tomorrow at Jacob's end of treatment party.
Colleen Burnham <smilesmom@msn.com caringbridge.org/tx/garrettburnham>
- Friday, November 19, 2004 3:41 PM CST
Mike & Shauna,
We are so happy to hear that Spencer is in remission! We read the website every day and pray for Spencer every night. We wish we were closer and we wish there was more that we could do for you. Just know that we think of you every single day and we are so grateful for your example of faith and endurance. We are SO excited to see you at Christmas!
Lots of love from Kristin and Aaron!
Kristin & Aaron Jones <aaronkristinj@msn.com>
Logan, UT - Friday, November 19, 2004 1:35 PM CST
Glad you had a good "at home" day. Those ice cream sandwiches sound YUMMY! We'll be joining you as an early bird this weekend when we put up our tree. We usually do it Thanksgiving weekend, but I want to enjoy the weekend this year and want to have things done before.
Spencer and Garrett are both in my prayers as well as your families.
Briana Roehling
Pflugerville, TX - Friday, November 19, 2004 9:31 AM CST
Hi Spencer, glad to hear you are doing ok. I heard you had some great news from clinic. What a little fighter you are - keep kickin' cancer's butt buddy!
You've got a friend in me! HelenH <geordielass999@hotmail.com>
2005 CHILDREN'S CANCER RECOGNITION CALENDAR - $5 FROM EACH SALE BENEFITS CARINGBRIDGE FAMILIES!, - Friday, November 19, 2004 8:18 AM CST
How exciting, I am so happy for you and your family!
Jenny Lunn <jennylunn000@hotmail.com>
Lower Sackville, Nova Scotia Canada - Thursday, November 18, 2004 1:30 PM CST
That's Wonderful news! Congratulations! Yea Spencer! What a wonderful Thanksgiving gift!
Juliene Webb <julienetx@austin.rr.com>
Round Rock, TX - Thursday, November 18, 2004 8:42 AM CST
Talk about being thankful!! What wonderful news! I totally understand ... while it was wonderful to be done with treatment, it was hard to leave our new "family" at the hospital. It was also bittersweet when we went back to visit the green unit and Morgan didn't really remember her favorite nurses. It's nice to know that she's forgotten the bad stuff, but it's sad that the good stuff went with it.
We are so happy for you! We will pray for Spencer's continued remission and for a total recovery for the whole family!
Laurie Randel (www.randelfamily.com) <laurie.randel@randelfamily.com>
Cedar Park, TX - Thursday, November 18, 2004 8:06 AM CST
WOW!!! I see that more prayers have been answered. We love you guys and are so thrilled for Spencer's progress!
Jen Hebdon <jenhebdon@yahoo.com>
Round Rock, TX USA - Wednesday, November 17, 2004 10:46 PM CST
Congrats on the clear scans! I'm sure this Thanksgiving will have new meaning for you, as will ours. Hope you have fun celebrating.
Tina Jacks, Ella Barna's mom www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
austin, tx usa - Wednesday, November 17, 2004 10:24 PM CST
Shauna, how exciting!!!
I can't wait to tell the girls in the morning, they will be so happy!!!
We of course will continue to pray for you and your family, enjoy this Thanksgiving, you do have so much to be Thankful for!!!
Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Wednesday, November 17, 2004 10:01 PM CST
We are so excited to read this great news!! What a wonderful Thanksgiving your family will be sharing this year. We were also glad to see that your mother was blessed not have to go through surgery at this point. We love your family. We will continue to check on you regularly. Have a Great Thanksgiving.
Kandie Foster <Fosterfam08@aol.com>
Aberdeen, ID - Wednesday, November 17, 2004 8:11 PM CST
CONGRATULATIONS!!!!! HAPPY DAY!!!!! The Lord has truly blessed you this day. We are so happy for your little Spencer today. We will continue to keep him in our prayers keeping remission in our minds.
Dawn <dawnie2@att.net>
Kent, WA USA - Wednesday, November 17, 2004 1:56 PM CST
HOORAH!!! CELBRATION TIMES ARE HERE!!! We have had you in our prayers and thoughts all year but especially as this round of scans came up. How happy I was to check the site and read the good news. We love you! Perhaps this calls for a trip to Alabama??? Missing you, Tammy
Tammy Peart <tammypeart@elmore.rr.com>
Montgomery, AL 36092 - Wednesday, November 17, 2004 1:28 PM CST
SWEET WAHOO!! I know there has been alot of prayers for you guys over the past year, and I'm so happy for this answer to them. Celebrate everyday! I love you all!
Kristen Edwards <arschel@yahoo.com>
- Wednesday, November 17, 2004 11:39 AM CST
Praise God!! Wonderful!! So glad to hear the news. Floating on cloud 9, I can imagine. Take care! xoxo
Wendy, *Spencer* Griffin & family ... www.caringbridge.org/nc/spencergriffin <wendy@wwdclt.com>
Marshville, NC USA - Wednesday, November 17, 2004 11:29 AM CST
Woo hoo! I was so happy to hear your wonderful news this morning. (By the way, I'm one of Mike's friends from his Hong Kong days). I've been following Spencer's situation on your site for a while now and have been praying and hoping that these test results would come back good. It's such good news to hear after all of your struggle. I'm so happy for you. Congratulations!
Derek George
Boston, MA USA - Wednesday, November 17, 2004 9:57 AM CST
PRAISE GOD!!!! What a wonderful piece of news to start the morning with.
Briana Roehling
Pflugerville, TX - Wednesday, November 17, 2004 9:13 AM CST
YEAH! That is very exciting news. Thanksgiving will truly be a time of thanks giving this year.
Julie Buckley <bucklju@yahoo.com>
Austin, TX - Wednesday, November 17, 2004 9:00 AM CST
Hey guys, Blake started radiation today. So far so good. Hope all your tests go well, it is a very anxious time I am sure. You are such a wonderful family. We have gained so much strenght from everyone we have met at the clinic. You'll be in our thoughts and prayers this week. Tell Spencer the white baby misses his smiling face. (this is what Spencer calls baby Abby because on a particular day that he was feeling well she had on all white and he was chasing her around the clinic, hense she became the white baby)
Lisa Young <Lyoung@austin.rr.com>
Round Rock, Texas - Tuesday, November 16, 2004 9:51 PM CST
Thank you for signing my Spencer's page. You all will be in our thoughts and we will be lifting Spencer up today. I pray that all goes well for you guys. We will be doing our 3-month scan next Wednesday, 11/24 the day before Thanksgiving. I am always anxious about "scan time", but especially this year. Three years ago, just about the exact date, we were told of our Spencer's relapse, so I am on my egg shells at the moment. Thanks again for stopping by his page...Take care xoxo
Wendy, *Spencer* Griffin & family .... www.caringbridge.org/nc/spencergriffin <wendy@wwdclt.com>
Marshville, NC USA - Tuesday, November 16, 2004 10:01 AM CST
Praying that all is going well with the scans. I'm glad everyone is feeling at least a little better. I love the pictures. Your kids are beautiful!
Briana Roehling
Pflugerville, TX - Tuesday, November 16, 2004 10:01 AM CST
Hi, Good luck with the scans and anesthesia tomorrow. We will be thinking of you - congrats on the half-marathon!!! Thank you for remembering us...We are always checking on your blue-eyed boy.
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Monday, November 15, 2004 9:16 PM CST
We will say a prayer for clean scans tomorrow. Happy belated birthday to Spencer.
Jenny Braden, www.caringbridge.org/ga/jacob <bbraden3@cox.net>
Warner Robins, GA - Monday, November 15, 2004 3:01 PM CST
Praying that everyone is feeling better and praying that scans go well tomorrow.
Briana Roehling
Pflugerville, TX - Monday, November 15, 2004 11:21 AM CST
Shauna,
I showed Savannah the pictures. First I showed her Annie, then scrolled down and showed her Spencer, then Sophie, and then Savannah said, "Where's Aunt Shauna?" So, you need to add a picture of you now so I can show her. Good luck with scans!!!
Karen
Karen Howell <kls5@email.byu.edu>
Middleton, ID USA - Sunday, November 14, 2004 11:30 PM CST
you have such BEAUTIFUL children!! (even when one is sick!!) Sophie will proably be mad at you years to come when she sees that picture of her sick, but she is a cutie!!!!
We will be praying for a good report from Spencers scan on Tuesday.
We still have these two Land Before Time Sing Along tapes I want to get out in the mail for him!!
Love, The Pirro's <kmpirro@msn.com>
Metuchen, NJ - Sunday, November 14, 2004 11:24 AM CST
Way to go on finishing the half marathon, Shauna!!! You should be proud of yourself! And you are so right - many times when I am running and want to just stop, I think to myself that what I am feeling is NOTHING compared to what cancer patients feel and it gives me the inspiration to keep going just a little more. Have a very relaxful weekend!
Briana Roehling
Pflugerville, TX - Friday, November 12, 2004 1:26 PM CST
Praise God that your mom doesn't have to have surgery! What a relief that must be. Glad to see that all is going well with Spencer. Have a great weekend!
Briana Roehling
Pflugerville, TX - Friday, November 12, 2004 9:28 AM CST
It was good to see you in the office today! Spencer looks terrific!! I hope he enjoyed his brown ice cream!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Thursday, November 11, 2004 1:42 PM CST
Great pictures! Annie, I'm glad your finger isn't broken. Shauna, I'll keep your mom in my prayers and pray that all goes well.
Briana Roehling
Pflugerville, TX - Wednesday, November 10, 2004 8:55 AM CST
Praying for your mom!
Allie Booth
Austin, TX - Tuesday, November 9, 2004 8:35 PM CST
Spencer, I'm sorry you are having to get shots this week, but it sounds like you are such a big, brave boy.
Annie, I hope your finger is not broken, and I hope it doesn't hinder you during art.
Shauna, I agree with you in that all children battling cancer are miracles. From what I hear, most of them handle treatment far better than any adult and the ones I have "met" online have made such an impact on me. I can only imagine the impact they make on people they meet personally.
My prayers are with you all!
Briana Roehling
Pflugerville, TX - Tuesday, November 9, 2004 8:50 AM CST
Hi guys, I guess we'll see you tomorrow! Jeffrey & James have well checkups at 9:30! We also have a visit to the clinic scheduled for Thurs, but I'm waiting for Nurse Jennifer to call us if we need to reschedule. She was going to check w/Dr. Lockhart to see when we need to come in next. I'm not sure how to take this new life, off-treatment, w/out set schedules! I'm sure it'll get easier. I hope Annie's finger is ok & we'll be praying for you guys& thinking of oyu tomorrow.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Monday, November 8, 2004 8:48 PM CST
Spencer and Family,
I am so sorry you won't be getting the quiet, relaxing, AT HOME week you were hoping for. After all the recent celebrating with Spencer's end of treatment and birthday, you guys deserve a break! What a bummer that he needs more shots, but at least he's getting better with the accessing- I'm sure that makes the clinic visits easier. I do have to admit that I am pretty excited about him being there on Thursday, I will be sure to look for you! Love, Allie
Allie Booth
Austin, TX - Monday, November 8, 2004 8:31 PM CST
Spencer, I hope your counts are better so that you don't have to stay couped up at home this week. I hope you are able to get out and enjoy the wonderful weather!
Annie, congratulations on losing your first tooth! That was nice of the tooth fairy to let mom keep your tooth. What are you going to do with your money?
Briana Roehling
Pflugerville, TX - Monday, November 8, 2004 9:26 AM CST
I'm glad you had a good birthday, Spencer. Maybe you can "camp out" in your backyard now. Have a good weekend.
Briana Roehling
Pflugerville, TX - Friday, November 5, 2004 10:04 AM CST
Hey Spencer, Happy Birthday (I know, a little late). Thanks for being such a HERO to the rest of us. You are in our prayers.
Steve Hebdon & Family <shebdon@austin.rr.com>
Round Rock, TX USA - Friday, November 5, 2004 0:49 AM CST
Happy Birthday Spencer
Emilee
Emilee Byers <cutiepie31689@juno.com>
Spanish Fork, UT USA - Thursday, November 4, 2004 3:54 PM CST
Happy Birthday!
Bree Wlodyka www.caringbridge.org/pa/brynnwlodyka <Bree.A.Wlodyka@gsk.com>
Drexel Hill, Pa 19026 - Thursday, November 4, 2004 7:27 AM CST
Happy Birthday, Spencer! Hope all of your birthday wishes come true!
PS. I really liked the Halloween pictures!
Tina Jacks, Ella Barna's mom www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
austin, tx usa - Wednesday, November 3, 2004 11:08 PM CST
Spencer, I wanted to wish you a very special Happy Birthday! I hope your Heavenly Father continues to bless you and your family. I will be praying daily for REMISSION and good scans. You and your family deserve that blessing!
Jen Hebdon <jenhebdon@yahoo.com>
Round Rock, TX USA - Wednesday, November 3, 2004 9:37 PM CST
HAPPY, HAPPY BIRTHDAY!
IT'S YOUR SPECIAL DAY!
HAPPY, HAPPY BIRTHDAY!
WE JUST WANT TO SAY!
WE'RE SO GLAD YOU'RE THREE NOW!
WE LOVE YOU, YES IT'S TRUE!!
HAPPY, HAPPY BIRTHDAY!
FROM MORGAN & MARLEE TO YOU!!
Laurie Randel Morgan <laurie.randel@randelfamily.com>
Cedar Park, Tx - Wednesday, November 3, 2004 7:58 PM CST
Happy Birthday, Spencer! The boys are so excited for you. They love birthdays, especially since we just had 2 of them. I hope you're having a great day & guess what? NO CHEMO on your special day!! We loved your costumes. We saw some really cool dinosaur stuff at Animal Kingdom & the boys thought of you. You're going to love it there!! You can have all of the "brown" ice cream that you want, your whole family too! I think that there was a day that we had ice cream 2 or 3 times!
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Wednesday, November 3, 2004 2:14 PM CST
Happy, Happy Happy 3rd Birthday Spencer!!
Love from the Pirro Girls!
Katherine, Carolyn and Juliana
Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Wednesday, November 3, 2004 10:31 AM CST
Happy Birthday to you, Happy Birthday to you, Happy Birthday dear Spencer, Happy Birthday to you!!! I hope that you have a WONDERFUL day today and that you get lots of goodies for your birthday. Eat a piece of cake for me ok?
Briana Roehling
Pflugerville, TX - Wednesday, November 3, 2004 8:45 AM CST
What great costumes!!! We had beautiful weather here in NJ today so we had lots of fun trick or treating, too. Now everybody's in bed....Have a great week!
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Sunday, October 31, 2004 7:07 PM CST
Cute costumes! It sounds like a fun way to trick-or-treat, going from trunk to trunk. And the monster mash sounds like fun, too. Glad you had fun and hope you got lots of candy.
Briana Roehling
Pflugerville, TX - Sunday, October 31, 2004 2:06 PM CST
CUTE! CUTE! CUTE!!! Great Halloween costumes!! Sounds like you all had a blast! Big smiles!!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Sunday, October 31, 2004 11:53 AM CST
Congratulations!!! Great pictures, too. Enjoy Halloween...
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Saturday, October 30, 2004 3:06 PM CDT
I got a good laugh from your picture of the last chemo ever!! I just LOVE that picture!!
I am only praying for the best for Spencer!!
Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Saturday, October 30, 2004 11:24 AM CDT
Congrats on the last day of chemo! We pray that it will be the last-forever!!!!! Today we spent the better part of our day at Childrens with our baby. All I could think about was you guys and what an ordeal this has been for you and how strong you guys are for making it through. We are really looking forward to seeing the pictures in the near future of little Spencer with hair! (o:
Dawn <dawnie2@att.net>
Kent, WA USA - Saturday, October 30, 2004 2:16 AM CDT
NO MORE CHEMO FOR SPENCER!!! WHOOPIE!!! Congratulations on making it to the end of treatment... and whatever the future may hold, today we can all celebrate with you! I went back and looked at Spencer's treatment schedule the other day, posted in February, and it really hit me how long you have been dealing with this. It must feel so great to be DONE! Have an awesome, i.v. free weekend! Love, Allie
Allie Booth
Austin, TX - Friday, October 29, 2004 9:27 PM CDT
YIPEE! Can't wait until you deaccess Spencie tomorrow - - and great picture of Mike, by the way. Congratulations! I hope....forever!!!
Joy <joylayton@austin.rr.com>
Round Rock, TX - Friday, October 29, 2004 8:08 PM CDT
CONGRATULATIONS AND YEA!!!!!!!!!!! I know that setbacks do occur but we will pray that in this case they don't. We love you and pray for you from afar. Good luck in your next endeaver.
Angela Webb <angelawebb44@hotmail.com>
Meridian, ID - Friday, October 29, 2004 7:17 PM CDT
So sorry to hear about such a crazy CRANK week. But as my ol mammy use ta say, "The storm is always darkest before the sun comes out"...so take a deep breath and remember you have plenty o folks down south prayin for y'all. We love you!!!!!!!!!!!!! P.S. Remind me to tell you about our adventures with projectile poop while shopping and fire ant feuds next time we talk. Love Bama Babe
Tammy Peart <tammypeart@elmore.rr.com>
Montgomery, AL Elmore - Friday, October 29, 2004 1:28 PM CDT
It's Friday, and Spencer's LAST DAY OF CHEMO!!!
The girls are always praying for Spencer and they are always asking about him now. We LOVE the new pictures.
God willing this will all be behind you FOREVER!!
Love, The Pirro's <kmpirro@msn.com>
Metuchen, NJ - Friday, October 29, 2004 9:30 AM CDT
Great pictures! Hey, today is the last day! Yipeee! I hope all goes well and I hope all three kids have a blast for Halloween!
Briana Roehling
Pflugerville, TX - Friday, October 29, 2004 8:51 AM CDT
Shauna,
Sorry to hear that your day did not get any better. God willing this will all be behind you soon. Can you even remember what life was like before? I barely can. Hopefully soon both Blake and Spencer will get a tast of normalcey. One day left. We may see you tomorrow, Blakes counts are terrible so NO SCHOOL, so we will probably go to the clinic party and trick or treating. Is spencer going to wear his costume? See you tomorrow.
Lisa Young
Lisa Young <Lyoung@austin.rr,com>
Round Rock, Texas - Thursday, October 28, 2004 4:31 PM CDT
What a beautiful little boy Spencer is! And of course he's ornery. He wants to be out playing and having fun....not feeling sick and tied to an IV pole....now picture a 12 year old when he gets ornery.....my older two don't curse....but when he's feeling pain and nausea.....and I understand exactly what you mean about the one more thing department...it's amazing how that happens....I pray for you and your husband to have peace...and for Spencer and his sister too....I hope that dear sweet child starts to feel better soon....and you guys get the rest you so deserve....hang in there you're doing a great job. Sending prayers and well wishes....God Bless.
Kathy-mom to David
caringbridge.org/fl/david
kathy cummings/david fitting <joy2jak@adelphia.net>
boynton, fl usa - Thursday, October 28, 2004 3:24 PM CDT
Hang in there!!! Oh my goodness what a trying time! It's so normal for you ALL to be cranky and tired and fed up! What you've been through is not normal or fair and it's okay to be furious about it. Cling to each other and you will get through it! (Shauna, don't you just wish you could throw a bucket of water on the next person that bugs you? Maybe the bill collectors! ;o))
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Thursday, October 28, 2004 9:15 AM CDT
I'm so sorry you are having a tough week. I am sending you lots of energy and love from Cedar Park and by proxy from Boston (who just won the world series!!! you can be strong and win too!!!). I think of you often and can't wait to hear about the end of treatment. Hang in there, you can do it!
Tenille
Tenille Reichert <tenille@tenille.net>
Cedar Park, TX USA - Wednesday, October 27, 2004 11:32 PM CDT
Shauna,
I saw where you wrote that someone mentioned joining the listserve. In short, you should! We put Ella's page on the listserve for Wilms and it has been a wonderful resource and support system. I can't recommend it enough.
Tina Jacks, Ella Barna's mom www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
austin, tx usa - Wednesday, October 27, 2004 10:02 PM CDT
You're almost there! Stay with it! I read your journal entries and remember Ella's times the IV Pack. It's so much better than being in the hospital but still SO much work! I hope Spencer's time at the clinic is better tomorrow. Thinking of you all this week,
Tina Jacks, Ella Barna's mom www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
austin, tx usa - Wednesday, October 27, 2004 9:53 PM CDT
Hang on in there...a few more days...then no more chemo...remission....Hurray for Spencer!!!
Kellie Davideit <kelbri27@optonline.net>
Metuchen, nj usa - Wednesday, October 27, 2004 8:28 PM CDT
Wishing I could give you some energy. It sure sounds like you could use some. Only two more days, though! Hang in there.
Briana Roehling
Pflugerville, TX - Wednesday, October 27, 2004 8:13 PM CDT
Three more days! You can do it!
Briana Roehling
Pflugerville, TX - Wednesday, October 27, 2004 8:54 AM CDT
Hey Spencer! Sorry all the kids in the clinic made you cranky yesterday. It was kind of loud wasn't it? It was good to see you and WOW only 4 more to go! That is just wonderful! Shauna, please let me know if you would like to have me paint for Spencer, that way I can start getting everything that I need packed up. If I am not working on a deposition on the chemo days, I can be working on painting. Well, you know how tedious it gets in there. I am so glad that he likes the videos, I was afraid he was going to be scared of them. Have a good rest of the week and I will be counting down everyday with you.
Colleen Burnham <smilesmom@msn.com caringbridge.org/tx/garrettburnham>
- Tuesday, October 26, 2004 12:31 AM CDT
LeRoy and I are thinking about you-checking in on you and so forth. Hang in there this week.
Deborah & LeRoy Hayes <silverde@magiclink.com>
Twin Falls, ID - Tuesday, October 26, 2004 12:04 AM CDT
Spencer, I'm sorry the chemo is making you not feel so good. Just remember, though - after this week, that's it!
Shauna, you have got to be one patient mom! I pray that you get through this week and then get to REST!
Briana Roehling
Pflugerville, TX - Tuesday, October 26, 2004 9:44 AM CDT
You know Shauna - I read your site every day and just never post. I think about you often and hear the stories from Joy. She cares about you so much. She was also telling me the other day how grateful she was to your husband for saving her rear end when her computer was on the fritz. Anyway, we pray for your family...good luck training for your half marathon...it's probably easier than a weeks worth of chemo. Good luck!
Angela Webb <angelawebb44@hotmail.com>
Meridian, ID - Tuesday, October 26, 2004 1:50 AM CDT
Just checking on you all! Scary allergy stuff!
Coming off treatment reminded me of the fear and uncertainty I felt before giving birth to Morgan (my first baby.) So I adopted the same procedure, take it slow, do my best, and try not to panic. Oh yeah, and call the doctor till they are sick of me!
The off-treatment schedule allowed us to slow down and that's when the post-traumatic stress kicked in. So if you see it, just know what it is and that it's normal. It'll go away. One day at a time.
You are in my prayers!!! I hope your weekend was terrific!!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Sunday, October 24, 2004 11:46 PM CDT
Hi everybody! Sorry I haven't been in touch too much. Shauna, I'm glad you're mom and dad will be there this next week. Everybody's toes and fingers are crossed here in Montana. Love you all.
Cheryl <mtbelle@hotmail.com>
Lewistown, MT - Sunday, October 24, 2004 0:56 AM CDT
Hi Shauna, What a beautiful little boy you have! I love those georgous eyes (he's gonna have to beat the girls off when he's a little older!). I wish you all the luck and blessings in the world with your last chemo coming up. You've almost reached that light at the end of that long tunnel! Enjoy every second of it and when it's over...never look back (easier said than done).
Thanks for sharing your site with me.
Cathy, mom to ^i^Sabrina^i^, my hero and the wind beneath my wings <cathyscndls4kids@aol.com>
Bernie, MO - Saturday, October 23, 2004 3:42 PM CDT
And I am sitting here in NJ FREEZING right now!! It's not even that cold yet, but it is one of those overcast, raw, yucky days and I can only dream of being in the hot humid air, which people think I'm crazy, but it doesn't bother me!
I'm so glad everyone is OK, boy you guys never seem to have an easy day do you??
Love,
Tina <kmpirro@msn.com>
Metuchen, NJ - Thursday, October 21, 2004 1:28 PM CDT
After reading your entry today, I'm so glad that Sophie is ok after the allergic reaction. Yikes! As far as the other allergies, welcome to Austin. I don't think people can live here very long without becoming allergic to something.
What 1/2 marathon are you training for? I'm going to do one in November and then in January will be signing up with Team in Training to do a full marathon in June - the San Diego Rock-n-Roll. I have to agree with you that it's much better to run in 65 degree weather than 85 degree weather.
Praying that the rest of the week is a good one.
Briana Roehling
Pflugerville, TX - Thursday, October 21, 2004 9:20 AM CDT
Wow, I'm glad everyone made it thru the cupcake episode okay. How scary! I have heard how scary it is to be off treatment, you might want to join the rhabdo kids list serve, lots of parents with similar concerns posting every day. www.acor.org. By the way, you have made me very hungry for homemade donuts!
Kellie Davideit <kelbri27@optonline.net>
Metuchen, NJ USA - Thursday, October 21, 2004 2:27 AM CDT
Just wanted to drop a note to let you know how excited we are to hear about the end of Spencer's Chemo. We hope you keep writing in this everyday so we can always check on how you are doing. We can't wait to see all of you in Dec. We think of you and pray for you often.
P.S. We will try to send you home with a llama for Christmas to contribute to the Circus
Uncle Ryan and Aunt Malissa Jones <rjones@macu.org>
Salt Lake City, Ut - Wednesday, October 20, 2004 11:47 PM CDT
hello spencer and mom my name is darlene cox and my grandsonhas the same thing as spencer he is tyler tucker ,his started allso when he was two he is four now ,
he is still going through a lot but god has been with us all the way and he will be with you ,we will be keeping up with you to see how you are doing ,you are such a sweet little boy 'wher are you being treated we are getting treatments at musc in charleston,
sending tylers page lots of hugs and prayers
http://www3.caringbridge.org/sc/tylertucker/ <turpin10648@aol.com>
Greenville , sc - Wednesday, October 20, 2004 5:02 PM CDT
Just read the latest. As if you didn't already have enough to deal with! I'll say an extra prayer for you tonight.
Briana Roehling
Pflugerville, TX - Tuesday, October 19, 2004 9:31 PM CDT
Praying that Spencer doesn't get a fever and praying for a great week. That must have felt good to schedule those last appointments.
Briana Roehling
Pflugerville, TX - Tuesday, October 19, 2004 9:12 AM CDT
We LOVE the *LBT* pictures!! How perfect! We all hope Spencer is feeling better.
My girls would LOVE a circus, or a zoo in their house.
Love, The Pirro's <kmpirro@msn.com>
Metuchen, NJ - Monday, October 18, 2004 6:27 PM CDT
I like the idea of a circus (as long as it's not at my house, it's fine with me!!). My Ali likes zoo animals, but farm animals are "too stinky" so she's not too fond of them...I hope Spencer is feeling better today. I really like the dinosaurs on the home page. Have a great day!
Kellie Davideit <kelbri27@optonline.net>
Metuchen, NJ USA - Monday, October 18, 2004 10:16 AM CDT
Annie, I like your circus idea! That sounds like fun. Praying that Spencer and Shauna are feeling better.
Briana Roehling
Pflugerville, TX - Monday, October 18, 2004 9:31 AM CDT
Love the dinosaurs on the front page. Good luck with your circus! :-)
Joy Layton <joylayton@austin.rr.com>
Round Rock, TX - Sunday, October 17, 2004 9:49 PM CDT
Hey Guys!
I hope that you have had a great weekend! We will probably be seeing you tomorrow and after I write this I am going to be putting the Walking with Dinosaurs CD into my bag, so don't let me forget to give it to you. Shauna, if you are feeling anxious about going off treatment talk to me tomorrow about it. I felt the same way also. It is wonderful to be getting this over with but there are some other feelings that I would rather discuss with you in person about. Spencer, you are terrific and I am really honored to have gotten to know you and your family. We should start a Round Rock support group. I know that Wendy and I have been flirting with the idea of it, but we should really do it! See you tomorrow!
Colleen Burnham <smilesmom@msn.com caringbridge.org/tx/garrettburnham>
Round Rock, - Sunday, October 17, 2004 9:30 PM CDT
Have a great weekend!
Briana Roehling
Pflugerville, TX - Friday, October 15, 2004 8:45 AM CDT
Spencer, I'm glad you're home. Praying for you.
Briana Roehling <brianaroehling@hotmail.com>
Pflugerville, TX - Thursday, October 14, 2004 9:43 AM CDT
Just found your website and will add Spencer to our prayers. I see that you are getting near the end of your chemo regimen. We will pray that he will be finished soon and will be in remission and cancer free forever.
Jenny, mom to Jacob, www.caringbridge.org/ga/jacob <bbraden3@cox.net>
Warner Robins, GA - Wednesday, October 13, 2004 9:40 PM CDT
We are so sorry to hear Spencer is in the Hospital. I hope the package we sent him cheers him up. He is always in our prayers.
Love, The Pirro's <kmpirro@msn.com>
Metuchen, NJ - Tuesday, October 12, 2004 9:11 PM CDT
Spencer,
So sorry to hear you're in the hospital. I know how your daddy feels about it being the 'Hotel California'. I sure hope they spring you soon!! Its so much nicer to be home with ALL of your toys and everybody.
You get better soon.
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Tuesday, October 12, 2004 3:54 PM CDT
I'm sorry that Spencer is not feeling well and had to spend the night at the hospital. I pray that the doctors can figure out what is causing the fever and get Spencer back to feeling well soon.
Briana Roehling
Pflugerville, TX - Tuesday, October 12, 2004 9:00 AM CDT
I just heard about this site. I hope Spencer begins to feel better. You guys are in our thoughts and prayers daily. We love you.
Jen Hebdon <jenhebdon@yahoo.com>
Round Rock, TX USA - Monday, October 11, 2004 9:42 PM CDT
You guys are a continual inspiration for so many people. Your journal writings have inspired me to be a better person and to be thankful for the little things in life. So many things are about perspective and you guys have given us all a different perspective to life. We love you guys and we pray for you everyday. Can't wait to see you in December. Melissa
Melissa Jones <galaxy@mstar2.net>
Taylovsville, UT United States - Monday, October 11, 2004 4:03 PM CDT
I'm so glad the two of you were able to relax and enjoy your weekend together celebrating your anniversary. After reading what you two have been through the last 7 years, you definitely deserve it! Wow! I pray that clinic today goes well.
Briana Roehling
Pflugerville, TX - Monday, October 11, 2004 9:05 AM CDT
I'm so glad you had a nice, relaxing weekend. I had a great weekend, too! I'm so grateful to be able to count your family as some of our very closest friends. You and Mike are truly inspirations of faith and charity. And your kids are just gems - chips off the old block, eh? You are amazing parents. You certainly have a lot to show for your 7 years together! Congratulations!
Joy Layton <joylayton@austin.rr.com>
Round Rock, TX - Sunday, October 10, 2004 9:14 PM CDT
I am glad you guys had such a great weekend. You deserve it! Thanks again for letting me bring that book to Spencer the other day. I was so glad I could spend that time with him...you know...not always having "to do something" to him. He is one special little boy to me. See you guys tomorrow at the clinic.
Jennifer Johnson <jjohnson@sfcaustin.com>
Austin , TX USA - Sunday, October 10, 2004 8:27 PM CDT
Happy Anniversary tomorrow and continued good wishes to each one of the family!!
Ernie Eggers <ernie@sunriverofidaho.com>
- Saturday, October 9, 2004 6:50 PM CDT
Hey Spencer, we have that same book and my son loves it! He loves dinosaurs as well and two years ago we went to Glen Rose, TX to see dinosaur footprints. It was really cool. Maybe you can go there when you are off treatment.
Shauna and Mike - Happy Anniversary! I hope that the two of you have a wonderful time celebrating.
Briana Roehling
Pflugerville, TX - Friday, October 8, 2004 9:07 AM CDT
Hope you have a wonderful Anniversary celebration!!! Congratulations.....My daughter ALi loves dinosaurs, too. She says she wants to be a palentologist, also very fond of Land Before Time movies..Glad Spencer had a fun night. We check on you all often, love
Kellie Davideit <kelbri27@optonline.net>
Metuchen, NJ usa - Friday, October 8, 2004 9:02 AM CDT
Just checking up on you all! Cancer mom'dom makes you consider being a nurse, doesn't it? (But only for a second!) Morgan HATED the neupogen shots - we had a hard time with those. I hope it's going easier for Spencer. We are so glad that the end of treatment is in sight! You are in our constant prayers!!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Thursday, October 7, 2004 8:30 AM CDT
Shauna/Mike, I don't think I remember a picture (Spencer's Home page), that looks more like Mike at that age than this one. The more I look at it the more I see Mike in it. So very sorry about the awful nausea and sickness he's feeling right now. Like you, we are exercising our faith that this chapter in his life will soon be forever behind him. Hugs to all. . .
Love from Grandma Jones <anstevj@comcast.net>
Salt Lake City, UT - Wednesday, October 6, 2004 10:54 AM CDT
Praying that today goes well for everyone (I have to agree with you, Shauna - I'd rather sit in a clinic all day than have a root canal - ouch!). Glad that your weekend went well and hope that the upcoming weekend goes well, too.
Briana Roehling
Pflugerville, TX - Monday, October 4, 2004 9:26 AM CDT
That picture of you holding Sophie in the train is really a keeper! SO CUTE! Thanks for all your help this weekend.
Joy
PS for the one below...Spencer's birthday is November 3rd.
Joy Layton <joylayton@austin.rr.com>
Round Rock, TX USA - Sunday, October 3, 2004 10:29 PM CDT
Hi Spencer,
So you've got a big birthday coming up, huh?? Sounds like fun.
Been thinking of you buddy,
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Saturday, October 2, 2004 10:46 PM CDT
What a crazy day you had! I hope that the weekend is more relaxed for you. By the way, when is Spencer's birthday? You mention that it is coming soon.
Briana Roehling
Pflugerville, TX - Friday, October 1, 2004 10:28 AM CDT
Annie,
We enjoyed having dinner with your family so much! My family liked your family A LOT! I'm sorry you had to get that allergy test- I had to do it when I was in third grade and it is no fun whatsoever. Did they write numbers all over you? I remember it felt like getting about a million shots one after the other! It's great that you aren't allergic to dogs and cats, though, and you can definitely come play with Milo (our orange cat) and Josie and Jessie (our dogs) again sometime. Say hi to Spencer and Sophie for me! Love, Allie
Allie Booth
Austin, TX USA - Tuesday, September 28, 2004 6:44 PM CDT
Shauna,
I feel for you and Annie. Those scratch tests are miserable! Adam has done it twice, and Aubrey once. Aaron will be old enough on his next birthday, poor kid. Once they get on good medication though, it is worth it. It's like all of a sudden you have a different child! They feel so much better!
Here's hoping the rest of the week is less eventful. :)
We missed you on Sunday. Hopefully it won't be too much longer before you can all be able to go to church as a family on a regular basis again! You are in our thoughts and prayers.
Juliene Webb
Round Rock, TX - Tuesday, September 28, 2004 9:46 AM CDT
Hoping your enjoy your day at home today.
Briana Roehling
Pflugerville, TX - Tuesday, September 28, 2004 9:28 AM CDT
I'm so glad you had fun with Thomas. The pictures are great. I hope your cough is just allergies and nothing more. I know my allergies were BAD this weekend, so maybe that's it. Have a good week.
Briana Roehling
Pflugerville, TX - Monday, September 27, 2004 9:02 AM CDT
Hi Guys, Thomas the Tank Engine, now how cool is that! Loved the pictures, hope the cough turns out to be a big nothing. Take care and have a nice week.
Kellie Davideit (www.caringbridge.org/nj/ian) <kelbri27@optonline.net>
Metuchen, NJ USA - Sunday, September 26, 2004 8:39 PM CDT
Shauna!!
Thank you so much for the donation to Morgan's Light the Night team!! You are very thoughtful. I am constantly amazed to read about the many things that you all do for other people. Your strength is inspiring. And we continue to pray for strength and endurance for all of you and for total health for Spencer.
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Thursday, September 23, 2004 10:04 PM CDT
Hi guys,
It was nice seeing you last week at the clinic, I just wish that we could've had more time to visit. Maybe we'll see you next week. We are also counting down. Jeffrey loves to look at your pictures & we check on you everyday, even though we don't always say hi. I'm glad that Annie is enjoying dance. I remember when my niece (now 13) was starting dance. She was so cute. Have a great week & we'll keep Spencer & his falls in our prayers.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Thursday, September 23, 2004 7:42 AM CDT
Sorry you are falling down a lot Mr. Spencer. I'm just glad you are "otay". Tell your dad that I watched the newslink on KVUE and I saw him - well, I saw his backside anyway. :)
Briana Roehling
Pflugerville, TX - Wednesday, September 22, 2004 2:01 PM CDT
This is a new low for my internet activities-clicking on a link to view someone's butt.
Hang in there.
Deborah & LeRoy Hayes <silverde@magiclink.com>
- Tuesday, September 21, 2004 11:14 AM CDT
Sorry I missed your backside on tv, Mike! Mondays are our hectic days, so no tv for me. I'll have to try to watch it by the link. Glad Spencer is doing so well with his treatment. Spencer, you are much braver than I! People make fun of me when I donate blood because I can't stand needles! Hope you enjoyed your dessert at Chili's.
Briana Roehling
Pflugerville, TX - Tuesday, September 21, 2004 9:31 AM CDT
Mike, congratulations on your brush with fame!! Spencer, you look really cool in your baseball cap. Have a great week.
Kellie Davideit <kelbri27@optonline.net>
Metuchen, NJ USA - Monday, September 20, 2004 10:47 PM CDT
Great new pictures! Spencer looks so "mature". Glad that you and Mike got to get out of the house for a while and enjoy yourselves. Praying that this week is much more relaxed than last week.
Briana Roehling
Pflugerville, TX - Monday, September 20, 2004 10:18 AM CDT
Just stopping by to wish you a happy weekend.
Briana Roehling
Pflugerville, TX - Friday, September 17, 2004 8:52 AM CDT
Hi Mr. Spencer,
So you're a big guy, carrying that IV around all by yourself?? Wow. Devin always wears his in a backpack when he has IVs at home. Nothing can slow you boys down...not even cancer!!!
Glad to hear your sis got to go to dancing. Devin's sister started back in dancing last week. She LOVES it!!
Hope you keep doing GREAT!!
Praying for you buddy,
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Thursday, September 16, 2004 10:36 AM CDT
It's so strange when you realize that sheer PANIC is part of your normal routine. Good for you knowing what you needed for your night of rest and for doing that for yourself!! We pray for you all constantly!!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Thursday, September 16, 2004 10:05 AM CDT
Hey All!
Spencer, you were looking so well the other day at the clinic and I was so surprised that you talked to me! I hope that means that you are beginning to trust me as a friend! Shauna, sorry that we did not stop by to say Bye but Garrett wanted to get out of there, I am sure you will understand. I am sure we will see you next week sometime. I am going to ask Kyle if he is finished playing with some of his dinos (they just stay in the toy box) and if it is okay with him and you we would love to give them to Spencer. We also have some dino movies like the ones you will see on the Discovery Channel if you would like those. Garrett will be coming in for his 5-day chemo starting on the 27th so I am sure we will see you that week. I will just put them in my bag and whatever day you are there remind me to get them from the car. Hope you guys have a great weekend!
Colleen Burnham <smilesmom@msn.com caringbridge.org/tx/garrettburnham>
Round Rock, - Thursday, September 16, 2004 9:43 AM CDT
Yikes! If it's not one thing, it's another, right? Thank goodness for grandmas - they can always fix things. Praying that the rest of the week goes well.
Briana Roehling
Pflugerville, TX - Thursday, September 16, 2004 9:04 AM CDT
Been thinking of you guys all weekend. Hope today goes as smoothly as possible. You are still in our prayers.
Dawn <dawnie2@att.net>
Kent, WA USA - Monday, September 13, 2004 12:10 AM CDT
Praying that even though this will be a busy week, it will be a good week.
Briana Roehling
Pflugerville, TX - Monday, September 13, 2004 9:41 AM CDT
Hi Guys,
Shauna, we missed you , but I'm so glad that you went out & had a great time. I was a little worried that you were just going to stay home. We had a great time, but I can also relate to how you were feeling & the need to get away from cancer for awhile. Maybe next year! I also found out that Allie was babysitting for one of the mom's, Beth, whose son is Harley. They love Allie & I told her about how she will come up & play w/Spencer & Annie. Praying for strength for all of you this week & we'll see you on Thurs at the clinic.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Sunday, September 12, 2004 5:05 PM CDT
Just checking in!! Isn't it funny how things that may have been important - like hair - before are SOOO unimportant now! If Morgan or Marlee comes home with a mohawk when they are teens . . . it's just not a big deal! Our prayers are with you!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Friday, September 10, 2004 9:53 PM CDT
I'm glad Spencer is feeling better and that you will not have to go back to clinic for almost a week. Enjoy! Have a great first day of ballet, Annie.
Briana Roehling
Pflugerville, TX - Wednesday, September 8, 2004 9:32 AM CDT
Good Morning! I wanted to thank Annie for the beautiful message. I am so glad that Spencer was okay with his transufion, despite hives. And so excited that you are all going to Disney!! Thank you so much for checking in on us - I realized it has been a whole week since I updated, I better get to it later today..Have a great day :)
Kellie Davideit <kelbri27@optonline.net>
Metuchen, Nj USA - Sunday, September 5, 2004 7:39 AM CDT
Hey Spencer, sorry you spent most of the day in the hospital, but what great news to hear about Disney World!! We went last summer and had a blast, so I know you will, too.
Briana Roehling
Pflugerville, TX - Saturday, September 4, 2004 10:00 PM CDT
Hello! I am stopping by - by way of Connor and Jacob's website. I will be praying for Spencer now.
God Bless You All.
Love,
Laurie <kerhoulasbrown@hotmail.com>
Nashville, TN USA - Friday, September 3, 2004 1:05 PM CDT
I'm glad Spencer is feeling better after the transfusion. Hopefully you got in bed early last night and got a good nights rest. Sending prayers your way.
Briana Roehling
Pflugerville, TX - Thursday, September 2, 2004 9:07 AM CDT
I'm glad that you got to enjoy the Dora show. It sounds like it was so much fun. I'm sorry to hear that Spencer is not feeling well now. It sounds like this could be a long day. I pray that it will go well and that Spencer gets to feeling better soon.
Briana Roehling
Pflugerville, TX - Monday, August 30, 2004 9:23 AM CDT
So glad to hear you had fun at the Dora show. Spencer will be feeling better again soon. This chemo stuff is the pits.
Have a good rest of the weekend.
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Sunday, August 29, 2004 11:41 AM CDT
Hi Shauna,
Ella and I met Mike and Spencer today at the clinic. Spencer was too busy eating his raisins to talk! He looks great and is a cutie. You'll be interested in knowing that Jack and Ella have very spotty memories of the whole chemotherapy adventure. Of course, in some ways it's bittersweet--I'd like Ella to remember the nice people we've met along the way but still forget the yucky stuff. I'm sure your kids will be the same way!
We also had tickets to Dora and my kids loved the show. Hope y'all had a good time and have a good weekend with plenty of sleep. :-) Thinking of you, Tina
Tina Jacks, Ella Barna's mom www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
austin, tx usa - Friday, August 27, 2004 10:30 PM CDT
Hope you have tons of fun seeing Dora tonight! Can't wait to hear how it went. Still think of you often.
Dawn <dawnie2@att.net>
Kent, WA USA - Friday, August 27, 2004 3:36 PM CDT
I am so happy that the scan's came back clear!!
You are still in my prayers.
Tina <kmpirro@msn.com>
Metuchen, nj - Friday, August 27, 2004 5:56 AM CDT
I just read the journal history and I am so there with you on the insurance nightmare!! I just wait for the pink bills to come and that's when I call!! ;o) Probably not the best procedure, but nobody's taken away our house yet!! I figure if it gets too bad, there's always Zihuatanejo (Shawshank Redemption reference). Take care!!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Wednesday, August 25, 2004 5:49 PM CDT
Hooray, hooray!!! Great news!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Wednesday, August 25, 2004 5:39 PM CDT
Yeah on the clear scans!!!! Praise God!!!
Briana Roehling
Pflugerville, TX - Wednesday, August 25, 2004 1:24 PM CDT
Hey guys. I just read about the exciting news of CLEAR scans. I am so glad. Your whole family has been in our prayers and I am glad that you can feel the power of everyone's prayers. (As I talked to you about it before Shauna, I know it's amazing and can help you get through each day). I hope you have a great day today as well as the rest of the week. You deserve it. Love, Melissa
Melissa Jones <galaxy@mstar2.net>
Taylorsville, UT Salt Lake - Wednesday, August 25, 2004 12:02 AM CDT
Praying for good scan results and that the problems get solved with the insurance company. I think lots of people do just pay the bills so that they don't have to deal with the headache. When the bill is $100, that's not so bad, but in your case - well, I'd be fighting big time, too!
How exciting that you are going to see Dora! That should be lots of fun and should give you something to look forward to.
Briana Roehling
Pflugerville, TX - Wednesday, August 25, 2004 9:38 AM CDT
Hi Spencer & Family,
Guess what? We're going to Dora Live as well!! We'll probably be sitting together!!! We are praying for CLEAR scans & hopefully you'll know this morning. That is so sweet of Allie to come over & play. Don't you just LOVE the insurance company! We're still fighting w/them on Jay's 2 nd surgery & the urologist! The same things that you're calling them on! I wonder if they've ever had two families calling them on the same things at the same time before? It's amazing the things that they come up with. I know that it will all work out, it's just a bit frustrating until then. I'm glad that you guys are having an otherwise pretty calm week. We'll see you tomorrow at the clinic.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Wednesday, August 25, 2004 7:44 AM CDT
Hello. Thank you so much for signing Garrett's book. I guess we will be seeing more of you at the clinic this time around since his chemo calls for the 5-day chemo thing. Stick to your guns about the insurance. I have suggested at the clinic that they should have some seminar or training class for us parents that have to deal with these insurance companies! Wendy told me that Connor has some scans that are coming up again, I hope that they turn out okay. I know that this is a very anxious time waiting for the scans and then waiting for the results. We are still waiting for the results from his leg scans. They told us they saw some uptake on his shins and wanted to do MRI on them. I guess we will find out tomorrow since we are going in to have his blood work done. Connor is getting so big and he looks so good. Hopefully he will be able to warm up to us at the clinic as Garrett really likes to play with younger kids (he likes being the teacher). Our thoughts and prayers are with you and your family.
Colleen Burnham <smilesmom@msn.com caringbridge.org/tx/garrettburnham>
Round Rock, TX - Tuesday, August 24, 2004 5:45 PM CDT
Praying for all of you today. Hope all goes well, and the scans are clear! Mostly, that you all will feel peace through all the stress.
Juliene Webb
Round Rock, TX - Tuesday, August 24, 2004 9:15 AM CDT
Hope you are having a good week.
Briana Roehling
Pflugerville, TX - Tuesday, August 24, 2004 9:04 AM CDT
Hey guys! I just showed my siblings Spencer's site, and of course they loved him. My family is pulling for him, and we're all praying for clear scans tomorrow. It sounds like you're in for a rough week- hope it all goes well!
p.s. Give Spencer my love; Annie was worried on Saturday because she said Spencer wouldn't get to say goodbye! Very sweet.
Allie Booth
Austin, TX - Monday, August 23, 2004 7:21 PM CDT
Nice to read about your relaxing day! We're praying with you tomorrow!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Monday, August 23, 2004 5:02 PM CDT
HI Blue Eyes,
Glad to hear you are having some good days!! How nice that your friend from the hospital came to play. You must be a very special little boy.
Keep smiling!!
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Saturday, August 21, 2004 9:54 PM CDT
I don't think you could have handled Annie's concerns any better than you did. You are so in tune with the spirit, I am sure the Lord is guiding you in all of this. What a great comfort to know that you are an eternal family.
I still check in on you every day and pray for you too. We send all our love your way!
Dawn <dawnie2@att.net>
Kent, WA USA - Friday, August 20, 2004 2:03 PM CDT
Hello Spencer
My name is Jenna and I came across your website. You are deffinatly an inspiration to all. Annie I can tell that you love your brother very much, and you are so sweet. I love meeting new friends and I will come by again to say hi.
www.carignbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Thursday, August 19, 2004 1:16 AM CDT
Hi Spencer,
Guess what? We switched Jacob to Thurs mornings, so we'll see you guys tomorrow. It is amazing how much the siblings pick up on cancer. We are having those talks w/the boys right now. Garrett is like a brother to them. Good luck in Kindergarten Annie. Joshua really liked it. See you guys tomorrow.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Wednesday, August 18, 2004 2:40 PM CDT
Great pictures at the park. It looks like lots of fun. I had tears in my eyes reading about Annie's conversation with you about Spencer. Have a great day.
Briana Roehling
Pflugerville, TX - Wednesday, August 18, 2004 9:48 AM CDT
Hi guys, I'm hopefully back into checking the website again regularly and getting back into the swing of things. I will call soon. We pray for you every day. It was fun seeing you, Shauna, a couple of weeks ago, but it was too short, of course. We'll talk soon. Love, Melissa
Melissa Jones <galaxy@star2.net>
Taylorsville, Utah Salt Lake - Tuesday, August 17, 2004 12:22 AM CDT
I guess my prayer for a good week didn't work to well, huh? I'm sorry Spencer didn't have a good day. Praying that the week gets better.
Briana Roehling
Pflugerville, TX - Tuesday, August 17, 2004 9:44 AM CDT
Praying that you have a good week.
Briana Roehling
Pflugerville, TX - Monday, August 16, 2004 9:27 AM CDT
THIS IS FOR ALLIE - (hope she receives it). Thank you so much for your generous kindness and sacrifice of time to visit and play with Spencer! I hope when I am down in September I have a chance to meet you. What a treasure you are! Love, Ann (Spencer's grandma Jones)
Ann Jones <anstevj@comcast.net>
Salt Lake City, UT - Thursday, August 12, 2004 7:57 AM CDT
It's only been a week but I miss you guys already! I'm glad I have the website now to check in on how everything's going. I think about you often. Take care.
Tenille
Cedar Park, TX USA - Wednesday, August 11, 2004 5:37 PM CDT
Praying that you have a relaxing week.
Briana Roehling
Pflugerville, TX - Wednesday, August 11, 2004 8:38 AM CDT
Hi guys!
My name is Helen and I run the kickin' cancer's butt store. I just wanted to drop by and thank you for your support - it is much appreciated. All of the commission we make from the sales goes to help children in hospital.
If you'd like a photo of Spencer sporting his t-shirt on our little "fighter's" gallery - just drop one to my Email address and I'll put it up there for you.
Keep kickin' cancer's butt little man!
HelenH <geordielass99@hotmail.com>
uk, THE BANNER SITE - Wednesday, August 11, 2004 6:32 AM CDT
I feel for you on the insurance issues. I've had problems in the past with insurance, but not near what you are going through. Insurance is suppose to make like easy, right? Ha. I'll ad insurance issues to my prayers for you. Hope the rest of the week gets better.
Glad you enjoyed the movie. Now we just need to make time to go see it.
Briana Roehling
Pflugerville, TX - Wednesday, August 4, 2004 9:03 AM CDT
Hi Shauna,
We are thinking about you as you go through your long chemo week. It sounds so much like Ella's protocol last fall/winter. We too went into the office Monday-Friday for chemo and Ella went home on an IV bag. She couldn't carry her IV bag on her own so we would have to follow her around. All in all, it was always an exhausting week. I feel for you! Hang in there! I hope Spencer has an easy time with the nausea.
Tina Jacks, Ella Barna's mom www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
Austin, tx USA - Tuesday, August 3, 2004 9:46 PM CDT
Sorry your day yesterday was so long and you had the "little accident" with the chemo. Yikes! I'll be praying for you this week.
p.s. how was the movie? That's one I'd like to see.
Briana Roehling
Pflugerville, TX - Tuesday, August 3, 2004 8:41 AM CDT
So excited about Disney World. That's where we went for Morgan's trip in May. There are a couple of things that Give Kids the World is hesitant to tell you so I'll email you with those!! You're going to have a great time.
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, tx - Sunday, August 1, 2004 5:33 PM CDT
Yeah!!! Your wish to Disneyworld will become a reality. That is what Devin wished for too. We got our itinerary set up yesterday..........we will be leaving in 54 days!! We are so excited!!
Hope you have a great weekend!! Thinking of you!!
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Friday, July 30, 2004 10:13 AM CDT
Yeah for Disney World. You will have so much fun. And, yes, the hardest thing now will be the waiting. Have a great weekend.
Briana Roehling
Pflugerville, TX - Friday, July 30, 2004 9:22 AM CDT
My curiosity got the best of me...so I looked up that WBC that was high from neupogen: 18.1. Not quite as high as Spencers is, but still not 'normal'. I know how you feel.
Keep your chin up. This too shall pass.
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Thursday, July 29, 2004 5:46 PM CDT
Hi Spencer and family,
That extra high WBC happened to Devin not so long ago as a result of neupogen. I was in shock as well.
I hope you get your wish for Disney...just bet you will!!
Thinking of you!!
Alisa
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Thursday, July 29, 2004 5:42 PM CDT
We love you guys and think of you often. Our faith and prayers are with yours! Talk to you soon,
Todd & Melissa <JonesST@ldschurch.org>
Taylorsville, UT - Thursday, July 29, 2004 8:54 AM CDT
P.S. (from last message): If there is ANYTHING I can do to help, please don't hesitate to e-mail me.
Allie
- Wednesday, July 28, 2004 10:17 PM CDT
Mrs. Jones- It has been an enormous pleasure getting to know Spencer and your family. He is so blessed to have such loving parents and such wonderful doctors. I love Spencer and I sincerely hope I will be able to see him again. My thoughts and prayers are with your family.
Allie Booth
Austin, TX USA - Wednesday, July 28, 2004 10:02 PM CDT
Hi Shauna,
I'm happy you had a nice visit with your family. I know what you mean about the little bald heads. When I see an old picture of Ella, I'm quite taken aback. She really was bald! Completely bald!
I hope Spencer gets his counts up and starts to feel better. I'm sure he's glad to have his mom and sisters back home.
Tina Jacks, Ella Barna's mom www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
Austin, TX 78759 - Tuesday, July 27, 2004 9:12 PM CDT
my Mom had ONE contact person for my Dad at the insurance company. It was much easier for her to deal with ONE person everytime who KNEW my Father's cancer history and didn't question my Mom EVERYTIME she called.
You are in my prayers everyday. I pop on this website daily to check to see how you all are doing.
Tina <kmpirro@msn.com>
Metuchen, nj - Tuesday, July 27, 2004 7:44 PM CDT
just a thought about insurance companies, to help take some of the stress off of you, see if your husbands company has a human resource person that could deal with some of this (I know you said his company changed owners or something, but that still might work) or see if the hospitals or doctors that you are using have a patient advocate, our family has used both these resources in the past and found them very helpful.
emily cebrowski <emcebrowski@sfcn.org>
spanish fork, ut usa - Tuesday, July 27, 2004 1:55 PM CDT
We missed reading your entries while you were gone, but we are really glad you got a chance to go and see all of your family. Believe me, I know how good it can feel to see extended family. I am sure even though you missed Spencer and Mike you got a lot of loving while you were there. Loving and attention that you deserve and probably needed. Still keeping you in our hearts and prayers. Good luck with the insurance.
Dawn <dawnie2@att.net>
Kent, WA USA - Tuesday, July 27, 2004 10:10 AM CDT
Thanks for the update! I hope you and Spencer enjoy your "male bonding" time.
Briana Roehling
Pflugerville, TX - Friday, July 23, 2004 8:57 AM CDT
Sorry we aren't going to see the entire family-but we are looking forward to seeing Shauna and the girls at the reunion.
Deborah & LeRoy Hayes <silverde@magiclink.com>
Twin Falls, ID - Thursday, July 22, 2004 3:50 PM CDT
After our initial long hospital stay, the first time Morgan was accessed in the clinic, she screamed so loud and so long and ran away from everyone and then buried her head in my chest and screamed so that no one could look at her or talk to her. Jennifer asked if we wanted to consider giving her some "chill-out" drugs before the next time!! ;o) It seemed like just as she would get used to something, things would change and she would have another huge period of readjustment.
It is just fine for Spencer to be screaming and fuming! That's what we're all doing on the inside for him!! It's not right for him to have to endure all of this. For Morgan, I would tell her to go ahead and scream as loud as she could and that it was good for her to be angry, but that she had to be still because even though we hated it, it had to be done. It's good that Spencer has the fight in him; it was scariest for me when Morgan was too sick to fight back. Spencer's strong spirit and resistance will be what makes him well!!
It was good to see you too! I long for the day that we can get the kids together to play properly without worrying about passing around germs!!
Praying for strength and endurance for all of you!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Thursday, July 22, 2004 12:45 AM CDT
Shauna, I'm impressed - your journal was at 7:15 and you've already had a workout this morning!!! You go, girl. I pray that you and the girls have a safe and fun trip and that Spencer and daddy do well without you.
Briana Roehling
Pflugerville, TX - Tuesday, July 20, 2004 8:35 AM CDT
The time out chair is the busiest chair in our house lately too. And we only have two kids! It sounds to me like you guys really handle the stess very well. I think you two are a couple of the strongest people I know! Some day they will be all grown up and we will look back and laugh at those hectic days. Right???
Dawn <dawnie2@att.net>
Kent, WA USA - Monday, July 19, 2004 10:47 AM CDT
You are definitely not the only household with the siblings fighting; however, because of the additional stress your family has due to Spencer having cancer, it probably feels worse than what others experience. My prayers will be with you!
Briana Roehling
Pflugerville, TX - Monday, July 19, 2004 9:25 AM CDT
we have 3 girls and they fight like cats and dogs. No cancer in this house, I can't even imagine the stress from having a child with cancer AND listening to them fight.
Stay strong, they will work things out between themselves.
Tina <kmpirro@msn.com>
Metuchen, nj - Sunday, July 18, 2004 5:10 PM CDT
Just stopping by to wish you a wonderful weekend!
Briana Roehling
Pflugerville, TX - Friday, July 16, 2004 8:21 AM CDT
When I saw the picture of Spencer in the red shirt today, It almost looked like he was holding someone's hand. I can't remember any more of the song, but the lyrics came to mind "Walk tall, you're a child of God. Reach up, He'll take your hand."
As always, you are in our prayers.
Juliene Webb <juliene.webb@marykay.com>
Round Rock, TX - Thursday, July 15, 2004 4:21 PM CDT
Praying for you this week, especially with all of the stress you have going on.
Briana Roehling
Pflugerville, TX - Thursday, July 15, 2004 8:30 AM CDT
Thanks for talking last night, I really enjoyed it. We ordered Jay's "busy kickin' cancer's butt" t-shirt & now Joshua wants the one for the sibling, "my brother is busy kickin cancer's butt". I also saw a link for it in Connor's guestbook. I hope you all have a great weekend. We are ready for Jay to come home!! Talk to you later.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Thursday, July 15, 2004 8:16 AM CDT
Shauna-I know that we don't know each other, though I feel like I know you through your journal entries. I am really impressed and inspired by the way that you are handling this challenge in your life. Just to be a mom with young children is challenging enough, without hospital visits and insurance companies to deal with. My family is praying daily, not just for Spencer but for you, Mike and your girls. Thankyou for being so faithful, it puts everything into perspective.
Emily Cebrowski <emcebrowski@sfcn.org>
Spanish Fork, UT USA - Wednesday, July 14, 2004 11:06 PM CDT
Sorry that the scans did not come back all clear, but I will continue to pray that the lessions that did show up are nothing.
Great new pics in the photo album.
Briana Roehling
Pflugerville, TX - Wednesday, July 14, 2004 9:15 AM CDT
We've been thinking about you all day and are keeping a prayer in our hearts for you guys. Glad to hear that the day went smoothly. We'll be sure to include you in our family prayer tonight.
Dawn <dawnie2@att.net>
Kent, WA USA - Monday, July 12, 2004 7:02 PM CDT
We're glad that it went smoothly. The twirly straw is what works for Jacob & even then it is still alot to drink. Mike, you have alot of patience. We may see you on Wed. We need to take Jay's chemo to camp. We're praying for clear scans.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Monday, July 12, 2004 4:52 PM CDT
Lots of prayers from Montana today.
By the way, still no news, I'll let you know as soon as I hear something.
Cheryl <cheryly@tein.net>
Lewistown, MT USA - Monday, July 12, 2004 3:55 PM CDT
Praying for you today.
Briana Roehling
Pflugerville, TX - Monday, July 12, 2004 9:01 AM CDT
Thank you for continuing to think of Ian. We will keep you in our thoughts and prayers this morning for the scans. It's just so stressful getting them done, never mind waiting for the results. I'm glad Spencer enjoys the juice photo!
Kellie Davideit <kelbri27@optonline.net>
Metuchen, NJ USA - Monday, July 12, 2004 7:38 AM CDT
I am so glad that all of you had a wonderful weekend. The San Antonio Zoo is terrific. I was a bit worried about you (Shauna) & was going to call & tell you to let the cleaning wait & just enjoy the weekend, those days are few & far between, so I'm really glad that you did. I think most of us understand your "cranky" tone & sometimes you need to let it out. Even though we are Super Moms, we are only human & sometimes, enough is enough. We will be praying for you guys tomorrow.
Wendy Faherty www.caringbridge.org/tx/jacobf <wendyjf@austin.rr.com>
Round Rock, Tx USA - Sunday, July 11, 2004 7:25 PM CDT
Hi Shauna and Spencer,
Thank you for signing Ella's guestbook and sharing your story! Hopefully we'll run into each other at Dr. Sharp's office one day. I totally understand how quickly the copays and parking fees add up! At one time we had a copay of $35 which could add up to another monthly car payment. Luckily we were able to change insurance plans and it went down to $15 right before Ella's treatment was increased.
Hope all goes well on Monday. We will be thinking of Spencer and praying for good news!
Tina Jacks, Ella Barna's mom www.caringbridge.org/tx/ella <tjacks@austin.rr.com>
Austin, TX USA - Friday, July 9, 2004 10:22 PM CDT
Hi Spencer and family,
Glad to hear you've been able to be out playing in the pool. We are praying for nothing but good news from your scans on Monday.
Have a good weekend
Devin and family
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Friday, July 9, 2004 10:51 AM CDT
We will be praying for happy results from the scans! We love you and can't wait to see you in Park City in two weeks. I hope you still get to go on your family vacation this weekend to Sea World. Savannah sends hello's to Annie, Spencer, and Sophie and begs every other day for me to let her go to Texas again. Good luck on Monday!
Karen Howell <kls5@email.byu.edu>
Middleton, ID USA - Thursday, July 8, 2004 4:50 PM CDT
Hi Guys, thanks for stopping by yesterday. Amanda did Josh's ultrasound & remembered us from when she did James' 3 mo ago! I'm so glad that you & Mike had a great time last night! You guys deserve it. I hope that today goes well & you all have a quiet weekend.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Thursday, July 8, 2004 10:01 AM CDT
Praying for a good week for Spencer. Glad that you got to go out last night. How was the concert?
Briana Roehling
Pflugerville, TX - Wednesday, July 7, 2004 8:27 AM CDT
I am glad I am not the only woman who enjoys to get out an do the yard work!! I have sent my husband to the movies with our 3 kids, just so I could have some peace doing the mowing!! Other women think I'm crazy, and I also enjoy shoveling snow in the winter!
I hope Spencer has a good week. You all are still in my prayers.
Tina <kmpirro@msn.com>
Metuchen, nj - Monday, July 5, 2004 8:22 AM CDT
We just wanted to wish your family a happy 4th of July. We hope that you can do something fun together and that everyone is feeling good so that you can enjoy the holiday.
We send you all our love and prayers!
Dawn <dawnie2@att.net>
Kent, WA USA - Saturday, July 3, 2004 6:22 PM CDT
Dear Mike and Shauna... I will be thinking of and praying for you when Spencer has his scans done next week. I cannot even imagine how the two of you are getting through this ordeal, but I suspect that God plays a MAJOR role in your lives. You hit the nail on the head, Shauna, when you so eloquently stated that when you love someone SO much and need them with you SO much, you cannot fathom that God could have other ideas. I will pray very hard for the Jones family in the next few days and weeks, that baby Spencer will be given the reprieve you so desperately want!
I was a friend of little Ian Davideit and you touched me with your words of love and concern for his family. May God love and keep you all in his merciful care.
Suzanne M. Gorman
Monmouth Junction, NJ USA - Saturday, July 3, 2004 3:21 PM CDT
Hi, I love the pictures, especially the nap on the floor. I hope Spencer continues kickin' cancer's butt!!I have always disliked the expression "new normal" since I thought there was nothing wrong with the old normal!!! Have a great week -
Kellie Davideit www.caringbridge.org/nj/ian <kelbri27@optonline.net>
Metuchen, NJ USA - Tuesday, June 29, 2004 8:29 PM CDT
Hi guys, Shauna, we really need to coordinate the dr. thing & maybe carpool! I took Joshua in at 10:45 for a possible umbillical hernia! The girl at the desk said she'd had a previous Sears/CSC employee earlier in the day & I immediately thought of you! I hope Annie is feeling better & am glad that you & Mike were able to go on a date. Cheese- the things that the kids get cravings for. Jay has eaten alot of cheese lately as well, it must the chemo, because he wasn't much of a cheese eater before, but as soon as you stock up on it, it'll change to something else! We are praying for a relaxing weekend for you all. Hi to Spencer, Annie, Sophie, & Mike!
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Saturday, June 26, 2004 8:53 AM CDT
Hope you guys got a chance to go out. We check on you daily and pray for you too. Love to Laura from my Mom.
Dawn Nelson <dawnie2@att.net>
Kent, WA USA - Thursday, June 24, 2004 7:10 PM CDT
Sorry the week is draining and Spencer is Cranky. Hang in there.
Briana Roehling
Pflugerville, TX - Wednesday, June 23, 2004 8:54 AM CDT
LeRoy and I are still checking in on you. Hang in there.
Deborah & LeRoy Hayes
Twin Falls, ID - Tuesday, June 22, 2004 5:56 PM CDT
We are so glad to hear that things are going well for Spencer right now. Your positive attitude is really inspiring to us. I am sure that the Lord is very pleased with the way you guys are handling these challenges. Good luck today at the doctors!
Dawn Nelson <dawnie2@att.net>
Kent, WA USA - Tuesday, June 22, 2004 12:44 AM CDT
i hope every thing is geting better i miss you guys her in UTAH good luck .
love
EMILEE
Emilee Byers <cutiepie31689@juno.com>
Spanish Fork, Utah USA - Monday, June 21, 2004 10:19 PM CDT
i hope every thing is geting better i miss you guys her in UTAH good luck .
love
EMILEE
Emilee Byers <cutiepie31689@juno.com>
Spanish Fork, Utah USA - Monday, June 21, 2004 10:19 PM CDT
i hope every thing is geting better i miss you guys her in UTAH good luck .
love
EMILEE
Emilee Byers <cutiepie31689@juno.com>
Spanish Fork, Utah USA - Monday, June 21, 2004 10:19 PM CDT
YIPEE!! I hope your mom arrived safely...and I'm so glad Spencer got to start treatment (interesting what excites us these days, eh?). I, too, can't get Ian and his family off my mind. Please let me know if there's anything I can do for you this week...
Joy Layton <joylayton@austin.rr.com>
Round Rock, TX USA - Monday, June 21, 2004 7:44 PM CDT
Hey,
Glad to hear things are going better at your house and dad enjoyed his day. Spencer...you keep feeling better every day!!
Thinking of you in Utah,
The Ross Family
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Sunday, June 20, 2004 11:28 PM CDT
Glad to hear Enrichment went well. I'm sorry I missed it. Sounds like you have had a pretty rough week all around, with you being sick, and the dr appts and all. Aubrey freaks out the way Annie did when she gets shots. It sure is amazing how strong they can be when they are terrified! It's worse than the shot!
You guys continue to amaze me with your faith and strength through all of this. Your whole family is always in our prayers. I certainly hope all goes well with Spencers counts and his chemo next week. Let me know if I can be of any help, especially with next month's enrichment.
Juliene
Juliene Webb <juliene.webb@marykay.com>
Round Rock, TX - Saturday, June 19, 2004 7:57 AM CDT
Thanks for the updated pictures. You guys are such a beautiful family!!! Of course, I wouldn't have expected anything else from Shauna! (o:
Dawn Nelson <dawnie2@att.net>
Kent, WA usa - Thursday, June 17, 2004 12:31 AM CDT
Praying for health in your house.
Briana Roehling
Pflugerville, TX - Wednesday, June 16, 2004 9:04 AM CDT
Hello,
Sorry to hear you've had all the crud at your house. I'm so glad to hear at least the kids are on the mend.
That is a funny story about Spencer wanting to get his radiation again...aren't these kids funny???
You guys keep up the good fight.
Thinking of you,
Alisa
Devin's mom
www.caringbridge.com/ut/devinross <tiredofcancer@yahoo.com>
- Tuesday, June 15, 2004 11:24 PM CDT
It sounds like things are looking up for you guys. I had to laugh about riding the elevator up and down because every time we go to Fred Meyer, we have to go up and down the elevator and escalator at least once each. Isn't it wonderful how simple children can be? So innocent (and easily entertained) We continue to pray for you and hope you both feel better quickly.
Dawn Nelson <dawnie2@att.net>
Kent, WA 98031 - Tuesday, June 15, 2004 11:18 PM CDT
Thinking about you and came by to check up on everyone! Happy Belated Birthday, Mike!!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Tuesday, June 15, 2004 9:30 PM CDT
Happy Birthday to Mike. I hope you guys had a great date. Beleive me, I know exactly how much that is needed! I hope Sophie is doing better & it was just from the fever like we had talked about. James was perfectly fine & Dr. Owens said that his ears were the clearest of anyone's she'd seen all day! I was relieved, we all know what a teething baby w/an ear infection is like! Hope you all had a relaxing weekend.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Monday, June 14, 2004 8:03 AM CDT
Happy Birthday to that old geezer who is nearly over the hill--one more good year left eh? Boy it must be rough being as old as your are--I simply can't imagine it. I hope you two had a fabulous date and a very quiet weekend. We are sending all our prayers and love your way.
The Peart family
P.S. If you ever have the time anymore to waste on silly movies watch The Big Fish. It is kind of a weird show(lots of fantasy stuff thrown in) and definately not one I would normally recommend but our hometown is the location for the movie and you actually see many many shots of what little Wetumpka Alabama looks like. Most of the sites seen--including the house they live in--are only a few blocks from us.
Tammy Peart <tammypeart@elmore.rr.com>
Wetumpka, AL elmore - Sunday, June 13, 2004 10:28 PM CDT
Happy belated Birthday to Mike. I send you guys all my love and prayers! I think of you very often. Shauna, I can't believe how much Annie looks like you. It's like a flashback of when we were little girls.
Dawn Nelson <dawnie2@att.net>
Kent, WA USA - Sunday, June 13, 2004 9:22 PM CDT
Happy late Birthday to you, Happy late Birthday to you, Happy late Birthday dear MMMMIIIIIKKKKEEEE, Happy late Birthday to you! Sorry I didn't check your site yesterday - hope your birthday lasts all weekend long!
Joy Layton <joylayton@austin.rr.com>
Round Rock, TX USA - Saturday, June 12, 2004 9:33 PM CDT
Happy Birthday, son!! I guess dad and I called to late to talk to you. Hope you had a good get-away for awhile and a very pleasant day. Glad you're back from Chicago. Hope those trips aren't going to happen too often. Hugs to all! Love, Mom
Ann Jones <anstevj@comcast.net>
Salt Lake City, UT USA - Friday, June 11, 2004 11:18 PM CDT
Happy Birthday Mike!! I hope you and Shauna have a wonderful date tonight. It's hard for us to get in a date night; I can't imagine how hard it is for you. I also pray that you all have a wonderful weekend and that everyone is fever free.
Briana Roehling
Pflugerville, TX - Friday, June 11, 2004 7:51 PM CDT
HAPPY BIRTHDAY MIKE and Hello to the rest of the family!!!!!
Glad to hear of the date tonight it is a much needed break. God bless all your friends and neighbors for the help they give you.
Our prayers and love go out to you and all of your brothers and sisters, moms and dads. I know June is a big birthday month for the Jones family plus Fathers Day. Enjoy and may God Bless You and your family. Aunt Margie and Uncle Norm
Norm and Margie Turner <utahbigfoot@hotmail.com>
SLC, UT - Friday, June 11, 2004 7:19 PM CDT
HAPPY BIRTHDAY MIKE!!!!! Enjoy your last year of being twenty something. Enjoy your date tonight!
Karen <kls5@email.byu.edu>
Middleton, Id USA - Friday, June 11, 2004 5:45 PM CDT
Happy Birthday Mike!!! Your date tonight is well deserved for both of you - have fun! Continued best wishes for all of you.
Ernie E
Aberdeen, ID - Friday, June 11, 2004 4:55 PM CDT
Shauna, you poor thing! You deserve a major break! Praying that all fevers go away and you all get a nice long nap today.
Briana Roehling
Pflugerville, TX - Thursday, June 10, 2004 8:31 AM CDT
We're praying for strength & naps for all of you today! I know how hard it is when Shawn's out of town, the kids are sick & Jay has treatment. My heart is totally going out to you. Colleen, Garrett mom, said that she'd met you yesterday, she hears about Spencer all of the time. It truly is amazing the instant connection that you feel w/other families. I'm so glad that not only are the kids friends, but we as parents are friends as well. It is helping us get through this. We are keeping you in our prayers.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Wednesday, June 9, 2004 12:12 AM CDT
Praying for peace, relaxation, total health and a good night's sleep for all of you!! You are working so hard and doing such an amazing job!! Would you ever have believed that you are this strong? But, enough with the testing . . . it's time for a break! ;o) We're praying that you will continue to receive strength and endurance to carry you through the happy, healthy ending of this ordeal.
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Wednesday, June 9, 2004 12:01 AM CDT
Hi guys,
We were glad to see you at the clinic on Wed. Jacob loves seeing Spencer. Yea-off radiation! One hurdle down!! We will be praying about that fever. Having just gone through that, I know what the waiting is like. Thanks for the note about Ian. I have started going to his site after seeing his name on yours & was up until about midnight reading their past journal entries last weekend. They have really touched my heart & have shared alot of similar experiences as well. Happy Birthday to Annie. We hope you have a great weekend.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Saturday, June 5, 2004 1:16 PM CDT
Shauna and Mike,
We think of you daily and just wanted to tell you that you are a true inspiration. Your spirits are strong and you will get through this trying time. Hope to see you and the kids soon.
Julie Buckley
Austin, TX - Thursday, June 3, 2004 8:42 PM CDT
Glad you were able to enjoy the weekend and do some things you don't normally do. Praying for you.
Briana Roehling
Pflugerville, TX - Wednesday, June 2, 2004 9:06 AM CDT
Hi guys, maybe we will see you tomorrow. Jay's appt is at 2:30. We are so glad that you are reaching the end of radiation. What an experience. Jay's hair has also come in the same way. It is very blonde, soft, & fuzzy, although don't say fuzzy to him, he gets upset! His is also starting to curl on the ends & has grown in enough to spike up just a little bit! I love it! How nice to be able to go to church as a whole family & for Spencer to go in the nursery. We're praying for a quiet week for you guys.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Tuesday, June 1, 2004 1:12 PM CDT
Does the end of radiation mean done, done? As in off-treatment? If so, how exciting!! (Also, from the parents' perspective, how scary!!) Coming off treatment is such a double edged sword in that it's great to think that it's all over, but then, for us, we finally had time to worry a little more. Just remember to take it one day (or moment) at a time and remind yourselves of the amazing gifts that you have already been granted!! We continue our prayers for all of you.
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Monday, May 31, 2004 3:58 PM CDT
Hi,
Glad to hear things are going well and the radiation is almost over! Sounds like time for a celebration.
Hope all continues to go well and this cancer stuff is all a thing of the past.
Thinking of you,
The Ross Family
www.caringbridge.com/ut/devinross <arross@velocitus.net>
- Tuesday, May 25, 2004 5:59 PM CDT
Hi guys, we hope you're all well & feeling much better. We LOVE Nurse Jennifer. She is so good w/Jacob. That is wonderful that she came to the house. I'm so sorry that Spencer had to go through that again. What a trooper. We're praying for a great week for you guys.
Wendy FahertyJacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Tuesday, May 25, 2004 7:06 AM CDT
Hi, I hope the stomach bug is gone from your house by now -why does it seem that kids always get sick in the middle of the night all over the bed? At least in my house!! I hope the last week of radiation flies by and is otherwise quiet and uneventful...take care
Kellie Davideit (Ian's mom) www.caringbridge.org/nj/ian <kelbri27@optonline.net>
Metuchen, NJ USA - Monday, May 24, 2004 8:57 PM CDT
Hi my name is Brenda Crumley.My son is a Rhabdo survivor!!He is 1 1/2 years out.Your son is precious.And I will add your family to my prayers> You can get through this.I know its seems like you cant some days,but with Gods help you can.Keep your chin up. Love and prayers,Brenda
Brenda Crumley <bbettcrum4@aol.com>
Temple, Tx - Thursday, May 20, 2004 5:07 PM CDT
Like everyone else, we check your site daily and are happy that you include so many little details about Spencer and the family in your journal entries. It helps us be more specific in our prayers and feel like we are a part of what is going on. If I may--one more small poetry thought--It is easy to smile when life floats by like a song but the man worthwhile is the man who can smile when everything goes dead wrong. We don't know anybody else who keeps such a good sense of humor during a year of everything going dead wrong. Hang in there. WE LOVE YOU!
Jacob, Tammy, Samuel, and baby boy #2 Peart
Tammy Peart <tammypeart@elmore.rr.com>
Wetumpka, AL Elmore - Monday, May 17, 2004 6:25 PM CDT
LeRoy and I are checking up on your site daily-thanks for keeping the entries up. It lets us feel like we are somehow participating in Spencer's recovery all the way from Idaho.
Deborah & LeRoy Hayes <silverde@magiclink.com>
- Monday, May 17, 2004 12:14 AM CDT
I found you site after seeing it on Ian Davideit's site. I am drawn back to see how your son is doing. I wanted you to know there is another Mom in Metuchen NJ who is praying for your son. He has got the most beautiful eyes, I just love the pictures you post.
Tina Pirro <kmpirro@msn.com>
Metuchen, NJ - Thursday, May 13, 2004 8:06 PM CDT
hello YOU ARE SOOOOOO CUTE,
i havent been here before, But will srart stoping by to say hi ,and see how you are .My grandson also has rhabdomyosarcoma alveolar sub type he is three.and he is doing real good right now.iam praying for you and all the other sick chrildren god bless be strong here is tylers page if you would like to vist , http://www.caringbridge.org/sc/tylertucker/
DARLENE COX <TURPIN10648@AOL.COM>
GREENVILLE , SC - Saturday, May 8, 2004 6:03 AM CDT
Mike, Shauna, & family,
I would like to let you know that I will keep you guys in my prayers. I wish you guys the best of luck at this time.
I am thinking of guys always.
From
Mark
Mark Byers <mbyers@spanishfork.org>
Spanish Fork, UT USA - Tuesday, May 4, 2004 9:27 PM CDT
I cried when I read about the cancer survivor walk (of course it's a regular thing to cry when I read your entries). It just isn't right that a little boy so small and innocent should have to be a survivor of anything. You guys amaze me.
Karen Howell <kls5@email.byu.edu>
Middleton, ID USA - Tuesday, May 4, 2004 10:42 AM CDT
Mike, Shauna, Annie, Spencer, Shopia.
I wish you the best of luck at this time in your life. I know how it feels i had a family member die from cancer last year. I will keep you guys in my prayers.
Emilee Byers <cutiepie31689@juno.com>
Spanish Fork, UT USA - Monday, May 3, 2004 7:45 PM CDT
Dear Spencer,
When you get your port out you can come to my house. We will have a scar club in my playroom. And my mommy and daddy will come in and check on us and bring us yummy things to eat. Other kids can come too! Maybe it can be on Wednesdays.
Morgan Randel Morgan's Page <teamrandel@randelfamily.com>
Cedar Park, TX - Sunday, May 2, 2004 11:25 AM CDT
I am so sorry about your accessing trauma, but I totally understand. The difference in the experience of the nurses in the the oncology clinic vs the green unit was observable so I'm sure that the folks at Seton Northwest just don't have the same opportunities for practice. It is so infuriating when someone tries to tell you that it's Spencer's fault or that it's a bad choice in how he sits when you've seen it happen every day!!! I just wish that the anesthesiologist would realize and/or admit that it is a lack of experience. Feel free to insist on the way you want it done - even if that means them teaching you how to do it. We had a couple of similar experiences (not as bad) and ended up insisting that Jennifer do it every time. Eventually Morgan got to the point that anyone in the oncology clinic could do it. Oh yeah, and (though this is not comforting) I know for a fact that when they are moving it around and "trying to find it" that it DOES hurt, and it's not just "unfamiliar." I am mad at that guy too!! I guess it's just an opportunity for you to hone your forgiveness skills! (Me too! ;o))
The thing about all the bad stuff is that it amplifies the enjoyment of the good stuff. Who ever thought that brushing my child's teeth or seeing her skip down the hallway would evoke sheer joy in me? But it does now. Enjoy the restful times and bask in the hope that Spencer's treatments provide for his future! We're looking forward to that playdate!!
All our prayers!
Laurie
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Cedar Park, TX - Sunday, May 2, 2004 11:18 AM CDT
I felt compelled to write to you after reading your last journal entry. My 2 year old son, Anthony, was diagnosed with alveolar rhabdomyosarcoma in April 2003 and underwent 42 weeks of chemo, along with 23 radiation treatments. His most recent scans were all clear.
Your experience yesterday was appalling! Anthony was accessed every Monday as well for radiation, and was left accessed for the week. They put tape on his line and pinned it to his shirt. He couldn't have a bath for the week, but we wanted to minimize the number of times he had to be accessed. On Fridays, the line was removed. We were fortunate that he was accessed by experienced pediatric oncology nurses at the radiation clinic and at the oncology clinic.
If I can make a suggestion, perhaps you can have him accessed at your oncology clinic (apparently, the line can be left in for 7 days, and if they use tegaderm for the dressing, they don't need to change it).
Take one hour, one day at a time, and you will get through this!
Karen Jones <tjones6@cogeco.ca>
Burlington, Ont Canada - Friday, April 30, 2004 3:45 PM CDT
Mike, Shauna, Annie, Spencer, and Sophie,
I want you all to know that my prayers and thoughts are with you. I think of you always.
Love,
Steffanie
Steffanie Byers <steffaroni-21486@juno.com>
Spanish Fork, UT USA - Tuesday, April 27, 2004 3:59 PM CDT
Hi Spencer,
Just stopping by to say HI!! Hope all is well.
Keep smiling little guy.
Your friend,
Devin
www.caringbridge.com/ut/devinross <arross@velocitus.net>
- Tuesday, April 27, 2004 0:03 AM CDT
Mike, Shauna, Annie, Spencer and Sophie,
Just wanted to let you know that we've been following Spencer's (and the rest of the family's) progress. We're so glad the surgery went well. As I've read your journal entries I've been amazed at your strength through it all. Our prayers are with all of you.
Love,
The Huntington Family (Randy, April, Morgan, Cade)
April Huntington <april@sfcn.org>
Spanish Fork, Utah - Friday, April 23, 2004 8:09 PM CDT
Spencer,
This is how I feel about cancer. I wrote it and the hospital even published it!!
Cancer In Seussical Form
By Devin Ross
I do not want it in here
Not here, not there, not anywhere.
Take this cancer
Take it all!!
Let chemo make it very small.
So small it does not exist,
Take it away, I insist !!
I’ve got things to do
Places to be.
My dream is to be cancer-free !
I’m only a kid,
Should I have to fight this fight?
I wish cancer was EXTINCT
With all of my might!!
www.caringbridge.com/ut/devinross <arross@velocitus.net>
- Friday, April 23, 2004 7:05 PM CDT
Hello again Spencer and family,
Thanks so much for coming to check on me. Hopefully you guys will start having some 'smooth sailing' sometime soon.
Hope you guys have a GREAT, UNEVENTFUL weekend.....Thank God for home health, where would we be without them??
Best wishes,
Devin and family
www.caringbridge.com/ut/devinross <arross@velocitus.net>
- Friday, April 23, 2004 7:02 PM CDT
Hi, Thank you for leaving a message in Ian's guestbook. I am going to bookmark Spencer site so I can keep checking on his positive progress. We have 3 kids too and it is absolutely crazy trying to keep them all happy while trying to remember all the Dr. appts and meds too. Take care.
Kellie Davideit (Ian's mom) www.caringbridge.org/nj/ian <kelbri27@optonline.net>
Metuchen, NJ USA - Friday, April 23, 2004 5:11 AM CDT
Dear Mike,Shauna,Annie,Spencer&Sophie
Although we have been out of touch for years (like 10), Deveri let me know months ago what you are going through. We have kept up on the details through your website and just wanted you to know that our thoughts and prayers have been with you and your cute family. We were so happy to read that surgery day turned out so well (not so well for Annie it seems). Please continue to keep us posted. We will continue to pray for your family.
Jim, Emily (bawden) Cebrowski <emcebrowski@sfcn.org>
Spanish Fork, UT USA - Monday, April 19, 2004 4:25 PM CDT
You guys should rush out and buy some lottery tickets ASAP. You're due some seriously good kharma any time now.
It was nice meeting you last week,
Tony Randel - Morgan's Daddy
Tony Randel <tony.randel@randelfamily.com>
Austin, TX USA - Monday, April 19, 2004 12:56 AM CDT
Oh and by the way - to whoever it is that's listening, when we were talking about wishing for non-life-threatening conditions like broken bones or tonsilectomies, we meant INSTEAD of cancer - not IN ADDITION TO!! ;o)
Love to all!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Austin, TX - Monday, April 19, 2004 11:05 AM CDT
WHAT?! Oh my goodness!! What can you do but shake your head knowing that one day, when everyone is grown up and happy and healthy all this will make for terrific conversations. The stories you'll have. Enough already!! Boring is better!!
Praying fervently for a break in the excitement and for TOTAL HEALTH for the WHOLE FAMILY!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Austin, TX - Monday, April 19, 2004 10:57 AM CDT
Mike,Shauna and kids,
Wow I am sure glad spencer surgery went well!!!! I hope that Annie's arm will heal fast, I want you to know that not a day goes by that I don't come and see how spencer is doing. I hope that you will visit Devin's page sometime. We pray for you guys every night, good luck with everything!!!!
Love,Lisa Stayner
Lisa Stayner <bowlbabe5@cs.com>
Taylorsville, ut - Thursday, April 15, 2004 9:49 PM CDT
WOW great news Spence. Got your name from a visitor to our son's site in Iowa. Have been trying to keep up on your site as much as possible since learning of Caringbridge.org. Our son Jason is 26 and has liver cancer and we are awaiting the decision to transplant or not. Sounds like you had a great news day,Hope ours is coming soon Keep the chin up and we will all be praying for you and your family Lots of LOVE and Prayers
Bobby & Toni Rist <btrist@mchsi.com>
Lake City, Iowa USA - Thursday, April 15, 2004 9:26 PM CDT
Hey there Spence. we found your link on Devin's site.
wanted to stop by to say hello. sending you lots of love,
craig, lauren, and helen
CRAIGGY
craig <trula1@comcast.net>
- Thursday, April 15, 2004 6:53 PM CDT
Hello
This is my first time to your beautiful site. What a darling little boy you have. My friend Lisa in West Jordan told me about your site. My son, Devin, has Lymphoblastic Lymphoma so she was telling me about your site.
So glad to hear that the surgery went well....glad to hear everything will be ok with your daughter's arm. I'll tell you when it rains it pours, but sounds like things are going so well for you. I'm so glad.
We will put your family in our prayers. Please feel free to visit Devin sometime when you get a chance..I know you are VERY busy.
Keep fighting the good fight!!
Your friends in West Jordan ,UT
The Ross Family
www.caringbridge.com/ut/devinross
- Thursday, April 15, 2004 4:05 PM CDT
How wonderful that Spencer's surgery went well!! You guys are amazing, surviving two surgeries within 24 hours. Is there a medal for that? I'll have to check into it or make it up myself. Still lots of thoughts and prayers from here in Montana going your way. Love to you all.
Cheryl Singley <cheryly@tein.net>
Lewistown, MT - Thursday, April 15, 2004 2:04 PM CDT
Hi guys, we are so glad that Spencer's surgery went well. Since I check your page all of the time, Jeffrey (2 1/2) is learning who Spencer is. At first, he would call him Jacob, but now he's been saying "Pencer", as well as Annie & Sophie! Jacob would call you guys a "copycat" & I would say that you're not supposed to be trying to keep up w/the Faherty's, first Jacob's cancer diagnosis then Spencer's 6 weeks later & now James' hernia surgery & then Annie's arm 2 weeks later. Do I see a trend here! Those were some of the same thoughts & feelings that we just had when James went to the ER & we were signing papers for his surgery. We will pray for Annie & let her know that Tulips are my favorite flower as well. Jacob was glad to see Spencer yesterday & was relieved that they were able to remove the tumor. I think that it helps him to know that there are others that he knows going through this. His friend, Garrett, just finished his treatment for Rhabdo as well & they are both the same age (8). His page is www.caringbridge.org/tx/garrettburnham Well, hang in there. You're in our thoughts & prayers. Oh, congratulations on your job, Mike. I'm sure it was a relief. Believe me, we know the stress.
Wendy Faherty Jacob's Page <wendyjf@austin.rr.com>
Round Rock, Tx USA - Thursday, April 15, 2004 1:44 PM CDT
It's your stalker here! ;o) Morgan's port removal is Wednesday too! Maybe we'll see you in the waiting room! Praying for great results from Spencer's surgery!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Austin, TX - Tuesday, April 13, 2004 10:16 PM CDT
Ups and downs, but it's all in His hands!! Prayers are being offered and answered and taking it as it comes is all that's required. Praying that the surgeon agrees with Dr. Sharp and that the tumor is removed and eradicated from Spencer forever! Praying for continued strength and endurance for your entire family and for total health for Spencer!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Austin, TX - Thursday, April 8, 2004 10:35 PM CDT
Fingers crossed . . .
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Austin, TX - Wednesday, April 7, 2004 11:57 AM CDT
Hi guys, Jacob has his Vincristine this morning, so we'll be sure & find you. We are praying for you all. We honestly know what you're going through. Jacob's 1st scan was the end of Feb & his next one is in May. Shawn seemed to be ok throughout it all, but it really hit me when they were actually doing the scan. I prayed the whole time. We're glad to hear that he's having a good week. At least when he fell, he skinned his knees, when Jeffrey (2 1/2) fell, he skinned the bridge & tip of his nose! May God give you peace throughout the day.
Wendy Faherty Jacob's Page <wendyjf@austin.rr.com>
Round Rock, TX USA - Tuesday, April 6, 2004 7:40 AM CDT
Humbling and inspiring! What a beautiful image of the candle in the wind. They do dance and shine, don't they?
It was good almost running into you last Friday. ;o) We spent most of our time in the exam room so I only got to meet your mom(?) briefly. Morgan watched about 2 minutes of The Land Before Time with Spencer before it was time to go. When we got in the car, she was very worried that I didn't get your phone number so that she could see Spencer again. She really likes Spencer. You are all in our thoughts and prayers daily!!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Austin, TX - Tuesday, March 30, 2004 1:11 PM CST
Hey Shauna, Mike and family, just wanted you to know that we will be pray and fast for your family and especially Spencer, during this difficult time, and continue to put your names in the Reno Temple. Thanks for the updates on the website. Glad to see you have a good support network as well. I couldn't think of more capable parents to help Spencer, and the girls get through this.
Jennifer Goodman <jw1208@hotmail.com>
Carson City, NV - Thursday, March 25, 2004 8:23 PM CST
Shauna, I think you are right - the daily trips to the clinic and 3 feet of space to get settled in can be much harder to handle, especially on you! Without taking anything away from the terrible ickies that the kids go through, sometimes being a cancer parent seems even tougher. I continue to pray for strength and endurance for all of you as you walk THROUGH this valley (or is it over this mountain ;o) ). You are not staying here, there is another side. As always I am praying for Spencer's total health.
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Austin, TX - Thursday, March 25, 2004 7:19 AM CST
Mike & Shauna,
Kristin and I just wanted to let you know how much we love you and are concerned about you. We pray daily for Spencer to be healed and for strength and comfort for your family. We know you are experiencing difficult times at the moment, but we have lots of faith that everything will turn out all right. Take care.
Aaron Jones <aspence78@yahoo.com>
Logan, UT USA - Wednesday, March 24, 2004 8:37 PM CST
Mike and Shauna,
I just wanted to let you know how much I enjoy reading your journal entries. Your faith and strength in your struggles are inspiring to so many people. It is amazing to me that so many people are praying for one sweet little two year old boy. As always, your family is in our prayers.
Juliene Webb
Round Rock, TX - Tuesday, March 23, 2004 8:29 AM CST
Just found Spencer's page.
He will be in my prayers.
Him and Sophie are adorable!
We have a similiar story.
My daughter is a Rhabdo survivor.
She was dxed at 19 months and my son was 2months.
She contracted RSV about 1 week into treatment
and the whole family ended up with it including
my 2 month old son.
I usually don't post this much about my daughter in
someone else's guestbook, but Spencers was bringing
it all back.
Hang in there!
Andrea Amanda's Page <andreama@rcn.com>
- Sunday, March 21, 2004 7:29 AM CST
Glad to hear things are calm! We continue to pray for Spencer's complete recovery.
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Austin, TX - Thursday, March 18, 2004 3:14 PM CST
Spencer, Mike and Shauna, Thamk you for taking time from your busy days and nights to keep the journal updated. We enjoy the great family pictures. Uncle Norm and I know what a stressful time this is as we went through it with two of our children. Both are well and doing great now, due to all the faith and prayers of everyone. Love you all and the love and prayers of our family will keep coming. Glad to hear your Mom is on her way Mike I know it will be a big help. Let us know if you need us as we are only an hour away. Love Aunt Margie and Uncle Norm.
Norm and Margie Turner <utahblondie@hotmail.com>
Spring Branch, TX Blanco - Wednesday, March 17, 2004 11:01 AM CST
So sorry to hear of your families ill fortunes. Please know that I pray for all of you daily and hope to hear great news from you in the future. Spencer, hang in there, I know from experience how hard it is to smile at a time like this, but know that everyone who knows you and your family love you and are praying for you. Kisses and huggs to all of you. I love you all.
Erin McBride <ru4meangl@aol.com>
Missoula, MT USA - Tuesday, March 16, 2004 11:45 AM CST
Hey Shauna and Mike, just wanted to let you know you are in our prayers and we wish spencer the very best. Please, let us know if we can help in some way. Love, Cody B.
Cody Behrend <behrendcody@aol.com>
Meridian, ID USA - Monday, March 15, 2004 11:43 AM CST
Dear Mike and Shauna, Ernie told me about your son. I am so sorry to hear this. I hope that the lord will bless you and give you strength and faith to get through this. He is such a cute boy. We will pray for you along with all the people who love you and we will watch a miracle unfold.
Kay Behrend <kbehrgolf@hotmail.com>
Aberdeen, Id USA - Saturday, March 13, 2004 1:06 PM CST
Hi Spencer,
We're sorry that we won't see you tomorrow, but we are glad that you don't have to go back for another week. We are praying that you will have a great week at home. You guys really do need a break! You're doing great little guy! Jacob says "hi".
Wendy Faherty <wendyjf@austin.rr.com>
Round Rock, Tx USA - Tuesday, March 9, 2004 7:29 AM CST
Those eyes just knock me out! What a beautiful boy!
Morgan always loved the dinosaur bucket at the clinic too!
We continue to pray for Spencer's total health and for strength and endurance for you all!! Praying for complete protection from infection through this chemo round!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Austin, TX - Saturday, March 6, 2004 5:09 PM CST
Just got the link to this sight. As with everyone else, we are praying for Spencer and you guys, and am sure that he will be blessed. Hope to see you soon.
Uncle Steve <lindajhayes@charter.net>
Houston, Texas USA - Tuesday, March 2, 2004 10:48 PM CST
Hi Spencer & Jones Family,
Jacob wanted to say "hi" & let you know that he usually has his treatments in the afternoon on Wednesdays, that way he can be at school for most of the day. We'll let Gabbie know that it is ok for her to tell you what time we are coming in. We are so glad that Spencer is going to be able to do most of his treatments at home. This truly is a time when there are only one set of "footprints" in the sand. I look forwad to reading your entries & must say that you & Mike are doing a much better job of keeping it updated than Shawn & I are! Take care. You guys are in our thoughts & prayers on a daily basis.
Wendy & Shawn Faherty <wendyjf@austin.rr.com Jacob's page www.caringbridge.org/tx/jacobf>
Round Rock, Tx USA - Tuesday, March 2, 2004 10:22 PM CST
Hello- Things slowed down enough to be able to sign in. I wanted to let you know you've never been far from my thoughts and prayers. I'm greatful I've been able to keep tabs through this site while on the go, what a blessing. It's good to hear that Spencer's treatment is progressing, and I can't believe Sophie's one already. Remember, someone in Montana loves you all.
Cheryl Singley <cheryly@tein.net>
Lewistown, MT USA - Tuesday, March 2, 2004 9:58 PM CST
Our prayers are with you!!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Austin, TX - Monday, March 1, 2004 8:49 AM CST
Mike, Shauna, and Family,
Just wanted you to know that our family prays for Spencer and your family every day. We love you guys.
Wayne, Julie Millett and Fam <wsmillett@ida.net>
Aberdeen, ID USA - Tuesday, February 24, 2004 10:37 PM CST
I love reading your entries. You are an inspiration to us all. When I read your last entry about the swimming analogy, I first only read the last line, "We just have to keep swimming." And I thought you took it from the movie "Finding Nemo." That's what Dori says we we have to do too. You can see where my brain is these days. I'm glad things are going so well for Spencer. Take care and I'll call soon. Melissa
Melissa Jones <galaxy@mstar2.net>
Taylorsville, UT USA - Tuesday, February 24, 2004 12:25 AM CST
Shauna, Mike and children, You are stalwarts. I can't begin to imagine your days and nights. Stick to and talk to each other. Hold each other. Don't let weariness or discouragement drag you down. Know there are many, many prayers in your behalf, and Heavenly Father hears and answers those prayers. We love you. We think of you every day. One day at a time... One day at a time. Love Rena
Rena Hewitt <renahewitt@geo-western.com>
Sandy, UT Salt Lake - Monday, February 23, 2004 12:01 AM CST
Bless your heart! What a rough few minutes of panic!! Sometimes we can't be in enough places at once! Get good rest this weekend. We're praying for Spencer to remain free from infection and for his counts to come back up soon!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Austin, TX - Sunday, February 22, 2004 9:28 AM CST
Wow!! You guys have sure been through the ringer this month! I'm so glad that Sophie is feeling better and that Spencer is feeling like walking again! It was nice to meet you at the clinic today & I just wanted you to know that your entire family will be in our prayers as you walk through this valley. Remember that hope is stronger than fear! We are praying for Spencer's complete healing, for health and understanding for Sophie and Annie, and for strength and endurance for the whole family!! Let us know if there is anything we can do!
Laurie Randel Morgan's Page <laurie.randel@randelfamily.com>
Austin, TX - Thursday, February 19, 2004 1:45 PM CST
Hi Shawna,
Snow in Texas?!? It was 80 degrees here today. Karen sent me a Christmas card and I was excited to make contact with my favorite Idaho family! I hope that you are doing well. You are in my prayers.
Alan and Michelle Smith
Alan and Michelle Smith <byusmiths@yahoo.com>
Mesa, AZ USA - Tuesday, February 17, 2004 9:54 PM CST
Dear Mike & Shauna,
I have been praying for you, my family also. But I didn't have a computer access until now. Don especially wants you to know he's thinking and praying for you. I remember going through this with Skip (this is your aunt Pat by the way) and find it hard to imagine how spencer can handle it. I will continue to pray for you all and will soon have an e-mail and will write again. love Pat and Bill Bond
P.S. bill is really praying hard for your peace too. We love you.
Patricia Bond
Taylorsville, UT usa - Sunday, February 15, 2004 12:05 AM CST
Dear Jones, You are not forgotten, but in my prayers daily. Good to see little Spencer handling this chemo session a bit better. May the Lord continue to bless all of you with faith and physical strength. Our Love
Rena and Garry Hewitt <renahewitt@geo-western.com>
Sandy, UT US - Friday, February 13, 2004 1:48 PM CST
Dear Shauna, Mike and Family,
I know you are strong and have the support system you need to get through this. We are praying for you everyday and Kaylee and Ashton make sure they "Bless Shauna's little boy to get better." I think little children have a direct line to the Lord and He is very aware of you and your family. We love you.-Kristen
Kristen Edwards <arschel@yahoo.com>
Henderson , NV - Friday, February 13, 2004 12:22 AM CST
Mike and Shana
It's an honor to pray for you. I lift you up to a healing God that has a perfect plan for all of us.
Vicki Larson
Round Rock, TX USA - Friday, February 13, 2004 10:08 AM CST
Shauna,
We are all praying for the best for you and your family. May Heavenly Father watch over you and give you comfort during this trying time. We all love you. Aunt Kathy
Kathleen George <georgek@aberdeen58.org>
Aberdeen, ID USA - Wednesday, February 11, 2004 2:56 PM CST
SHAUNA AND MIKE. I'M SO GLAD I'M ON THE MAILING LIST TO HEAR ABOUT YOUR FAMILY. I PRAY FOR YOU DAILY. BE STRONG, YOUR STRENGTH WILL BE A GREAT MEDICINE FOR EVERYONE. I BECAME A GRANDMA OF FIVE ON JANUARY 19TH. I LOOKED AT THAT LITTLE GUY AND THANKED GOD FOR HIS HEALTH. MY BEST TO ALL OF YOU. LOVE, DONNA ADAMS
DONNA ADAMS <GRAMMAOF4@QWEST.NET>
POCATELLO, ID USA - Monday, February 9, 2004 10:38 AM CST
We are so happy to hear that Spencer is doing better. We pray daily for his recovery. I hope the book I sent is of some help. Spencer must be such a valiant spirit to go through all of this. I know that our Heavenly Father is so aware of your little family and your needs. You both have such positive attitudes, I know that is such a blessing for Spencer to have you both as his parents. We love you and you are in our thoughts and prayers throughout the day.
Love Auntie C. and Uncle Ralph
Chandra Hayes <Chandra29@aol.com>
Salt Lake City, Ut. US - Sunday, February 8, 2004 11:59 PM CST
Hey Jones's good to hear Spencer is eating and feeling good for the moment. We think the cheetos and ritz cracker diet sounds like a hot new fad. We love you. take care.
love Ryan & Malissa
Ryan & Malissa Jones <rjones@macu.org>
West Valley, UT - Sunday, February 8, 2004 6:05 PM CST
Hey Guys, I just wanted to let you know that we were thinking of you guys. We love you all so much and can't wait to see you. Our prayers are with you!
Love,
The other Jones family, April and Andy
April Jones <jnzby@hotmail.com>
Beryl , UT USA - Saturday, February 7, 2004 1:58 PM CST
Hey guys, It's Melissa. I'll probably call in a couple of days, but wanted you to know we're all thinking about you. I was so glad to hear that Spencer is doing better. It is such a blessing to know that we believe in a God of miracles and that He loves us and that even though we have to go through trials, we are never alone. Hang in there. We're praying for you all the time. Love, Melissa
Melissa Jones <galaxy@mstar2.net>
Taylorsville, UT USA - Wednesday, February 4, 2004 12:34 AM CST
Mike, Shauna and Family,
Good to read your comments today about little Spencer. I too am grateful that he has a brief respite. We love you. You are in our prayers. Love to all
Rena and Garry Hewitt <renahewitt@geo-western.com>
Sandy, UT US - Wednesday, February 4, 2004 11:53 AM CST
Mike, Shauna and Little Ones,
Ann keeps me updated - at least once every day - sometimes more. The web page is a great way for all to keep current on day to day things.
All of you are in our prayers daily - hourly. Good to hear that little Sophie is improving. Hopefully the children can all kick the virus.
What a struggle - burden - you have as parents right now. May you maintain your own physical well-being and be sustained by the Holy Spirit. You have our love, support and prayers. Our Love,
Rena and Garry Hewitt <renahewitt@geo-western.com>
Sandy, UT US - Monday, February 2, 2004 7:07 PM CST
Dear Jones family,
We wanted to let you know that you are in our thoughts and prayers daily, and if ever the need for anything arise, please think of us and we will help out in any way possible. We love you and hope that all the kiddos get better ASAP. Love, the Vaughns
Brittney Vaughn <Brittjae@hotmail.com>
Round Rock, TX - Monday, February 2, 2004 3:56 PM CST
Dear Mike and Shauna,
We have felt such great love and concern for all of you since learning of your recent trials. We know that Heavenly Father will sustain you and bless you through this difficult time. Some of my sweetest experiences have come during a time of extreme trial. We are praying for Spencer, Sophie, and all of you daily.
Much love from all of the Fullmer family
Ann Fullmer
Taylorsville, UT USA - Monday, February 2, 2004 12:17 AM CST
Shauna and Mike,
We heard about little Spencer through my sister in law, Crystal Stewart, and sincerely wish you all the best. May you find comfort in small things, strength and courage for hard days and most of all, best wishes of good health! We work in Ecuador with abandoned children and sick babies who have nothing at all and hurt for them too. At least your little Spencer is well loved and belongs to someone. We will keep you in our prayers.
Jennifer Stewart Gauntt <jennywren18@yahoo.com>
Quito, Ecuador - Saturday, January 31, 2004 3:12 PM CST
Dear Shauna and Mike -
Hi! I am Joy's sister, Angela. I just wanted you to know that there are people who don't even know you who care about you and are praying on your behalf. This is the blessing of being part of the Lord's family. There will be days in your life that you don't know how you can continue and then something happens, someone calls, or you just feel lifted up by all the love pouring your way. These are hard days and no one would ever wish for these challenges to be upon your family, but remember, the Lord is very aware of your situation and loves Spencer and your family more than you can even comprehend. Angels are with Spencer during his most difficult times. Your family is in our thoughts and prayers. Good luck with all that is still ahead. Be strong and strength will continue to come.
Angela Webb <angelawebb44@hotmail.com>
Merdian, ID - Friday, January 30, 2004 10:38 AM CST
Dear Mike and Shauna,
We are praying so hard for all of you, because with something like this, the whole family is affected by the disease. I know something about having your life turned upside down by health problems, and its no fun.
We are hoping and praying little Spencer rebounds soon, and his counts improve. Hang in there!
Love, Naida Stayner
Naida Stayner
- Tuesday, January 27, 2004 8:59 PM CST
Dear Mike and Shauna, Spencer and the girls,
We're so glad you sent us a Christmas letter and picture. It was wonderful to see what went on during the last year. Now we keep the family picture on the frig. and say a little prayer each time the door is opened. Which is very often. Our heart aches for little Spencer,also for the meny challenges that are bombbarding your little family. May Heavenly Fathers choicest blessings sustain you and are able to stay healthy as a family. So that little Spencer won't catch anything.
We eill be joining with your family this Sunday, in a special fast for your special little son.
Our love to each of you, Aunt Betty
Betty Pike <bpike@mqnet.net>
Alpine, UT USA - Tuesday, January 27, 2004 5:59 PM CST
Dear Mike & Shauna,
I am Kristin's (Aaron's wife) sister Sue. She told me about Spencer and we have been thinking of you ever since. Our family is praying for him every day. Our kids already say another prayer if they forget. Please know that we care and are thinking of you. She told me about this web site. Hang in there!
Sue Miller <sueajmiller@comcast.net>
Grand Rapids, MI USA - Monday, January 26, 2004 2:53 PM CST
Dear Shauna and Mike, We were saddened at the news that we recieved from your parents about little Spencer and the challenges he and his parents are facing at this time. How blessed we are to know that we have a Heavenly Father who loves each of us and is mindful of each of our individual struggles. Our love and prayers are with you daily.
Jack and Lisa Poulson <jgp@afwireless.com>
Aberdeen , Id Bingham - Monday, January 26, 2004 9:40 AM CST
Dear Shauna and Mike, We keep you in our prayers daily. We pray that you will have the strength and compfort you all need during this difficult time. And ultimatly, that Spencer will make a full recovery. We are so happy he got to go home with his family, and are praying that your news continues to be encouraging.
Heidi and Josh Stinson <emeraldwaterhawk@hotmail.com>
round Rock, Texas USA - Saturday, January 24, 2004 5:50 PM CST
Thanks for the updates, this website is wonderful. Spencer looks tired, but still precious! Our prayers are with you.
The Odom Family
Dana Odom <danao@austin.rr.com>
Round Rock, TX USA - Friday, January 23, 2004 9:11 AM CST
I love the website. Thank you for letting us know how Spencer is doing. Your family has been in our prayers constantly since we found out about the cancer. Please let us know if there is anything we can do.
Randy & Juliene Webb
Round Rock, TX - Friday, January 23, 2004 8:44 AM CST
Hello Shauna and Mike. We love your family very much. We are glad that Spencer is able to come home. The pictures of him are so cute. You are in our thoughts and prayers every day.
Matt & Misty Shreve <mshreve@cableone.net>
Pocatello, ID USA - Friday, January 23, 2004 0:45 AM CST
We hope that the good days will be good enough to carry you thru the not so good days. Your family will be in our prayers.
Foster Family <Kandiefoster@msn.com>
Aberdeen, ID USA - Thursday, January 22, 2004 10:20 PM CST
My mom has been keeping me up on everything that is happening and you're in my prayers. It is so good to hear that Spencer is able to be home and eating better. The pictures are so cute! Good Luck with everything!
Emily Stayner <estayner@cc.usu.edu>
Logan, UT - Thursday, January 22, 2004 8:35 PM CST
We are thinking of you. This is such a great way to let everyone know what is going on.
Deborah & LeRoy Hayes <silverde@magiclink.com>
Twin Falls, ID - Thursday, January 22, 2004 10:19 AM CST
Shauna and Mike, We are so happy Spencer is home. I love the swing picture. Your family is always in our thoughts. Please let us know if there is anything we can do.
Julie and Sean Buckley <bucklju@yahoo.com>
Austin, TX USA - Thursday, January 22, 2004 10:01 AM CST
Thoughts and prayers are coming your way from across the snowy moutains of Montana! Know that Heavenly Father is there for you! Keep wishing on stars!!!
Laura B. Singley aka Cheryl's Aunt Laura <LauraSue@bresnan.net>
Lewistown, MT 59457 - Tuesday, January 20, 2004 8:21 PM CST
Mike and Shauna, my heart goes out to both of you. You are in our thoughts and prayers. Let me know if there is anything I can do.
Chelsea Walker <chelseaw@rmeb.com>
Salt Lake City, UT USA - Tuesday, January 20, 2004 12:57 AM CST
I'm very sad to hear this news, but very hopeful that he will come out of this all the better--because he has the faith and prayers of so many people on his side! I will start in earnest with a growing number in praying for Spencer and for his family. You are loved!
Ryan Dalley <rdalley2002@yahoo.com>
Midvale, Utah 84047 - Tuesday, January 20, 2004 12:47 AM CST
Mike and Shauna,
Just a quick note to say we love you & you and Spencer are in our prayers.
Bob and Page Hayes <bobanspage@bigzoo.net>
Golden, CO - Monday, January 19, 2004 6:49 PM CST
Dear Jones Family,
We are saddened to hear of Spencers condition. Please know our prayers are with you at this time. As with everyone, PLEASE let us know if there is ANYTHING we can do to help. You are in our hearts and prayers.
Alan Mills
Alan Mills <mkamills@ihc.com>
Layton, UT USA - Sunday, January 18, 2004 5:19 PM CST
Dear Shauna, Mike, Spencer and co.,
Just this week we enjoyed laughing aloud through your cheerful, clever Christmas letter. I am so saddened to hear this news. You will certainly be in our prayers constantly, and we'll keep Spencer's name on the Detroit
temple roll too.
Shalissa
Shalissa Lindsay <shalissa@softhome.net>
Ann Arbor, MI - Sunday, January 18, 2004 8:18 AM CST
Hey Guys, it's Ben. I'd call but if you're there it's late, and you have a lot on your minds. Know that I love you all and that you are in my prayers. If there's anything at all that I can do, please don't hesitate to let me know.
Ben Tolman <dakben@comcast.net>
Salt Lake City, UT - Sunday, January 18, 2004 2:53 AM CST
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