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Wednesday, August 19, 2009 8:49 PM CDT
Connor had scans today that appear all clear. Praise the Lord! We don’t have official word, but expect it tomorrow.
*****It's official*****All Clear----Praise the Lord!
If you or someone you love has been diagnosed, hold on---one day at a time---God is NOT going to leave you---He is going to BLESS you!
One of the best things for me as a mom, was the day I realized it is not my job to heal my child. The healing is up to God and the doctors. My job is simply to LOVE my child---that's easy and I'm good at that!
The best therapy for my mind was listening to Christian radio (FM 89.3 in Houston). It takes a few weeks to get to know the songs, but not only did it constantly encourage and remind me of the love of Jesus and His promise to always be with us---but it reminded my children! I always had it on in the car, and I used to have to turn it on in the mornings while I put on my make-up because most of the battle is fought in the mind! So many of the songs spoke directly to my heart. The music kept my mind focused on what is right and good.
God is good all the time.
All the time, God is good.
Laura, Tony, Connor, Carson, and Chandler
Wednesday, March 18, 2009 4:59 PM CDT
Wonderful news----Connor had another set of clean scans today!!!! AND he graduates to scans every six months instead of every four! He also had a good yearly echocardiogram report today. All good news---Praise be to God!
Connor has been very busy as robotics competition season is upon us. We've already gone to Washington DC, March 26-28 will be the Texas competition in Houston @ George R. Brown Hall C, and Nationals / Worlds will be in Atlanta the weekend of his 17th birthday - April 16-18! He loves every minute of it. In his spare time, he squeezes in time for his first girlfriend, Cara. He is "thinking" about which college he might want to attend in a year and a half--for engineering, of course!
Oh, Connor has a new spring card out through Children's Art Project named "Serenity". It is yellow, purple, and green----a scene of trees, fence, and birds in the sky. Just kinda fun news to share! It can be viewed at http://www.childrensart.org/product_info.php?cPath=97&products_id=1391
He is doing beautifully!
If you or someone you love has been diagnosed, hold on---one day at a time---God is NOT going to leave you---He is going to BLESS you!
One of the best things for me as a mom, was the day I realized it is not my job to heal my child. The healing is up to God and the doctors. My job is simply to LOVE my child---that's easy and I'm good at that!
The best therapy for my mind was listening to Christian radio (FM 89.3 in Houston). It takes a few weeks to get to know the songs, but not only did it constantly encourage and remind me of the love of Jesus and His promise to always be with us---but it reminded my children! I always had it on in the car, and I used to have to turn it on in the mornings while I put on my make-up because most of the battle is fought in the mind! So many of the songs spoke directly to my heart. The music kept my mind focused on what is right and good.
God is good all the time.
All the time, God is good.
Laura, Tony, Connor, Carson, and Chandler
This year's robot- http://ccisdrobonauts.org/media/video.htm#vid12
Three week robot- http://ccisdrobonauts.org/media/video.htm#vid12
Rules of the game "Lunacy"- http://www.youtube.com/watch?v=ZnGfbGzEFrM
Robonauts- http://ccisdrobonauts.org/
Wednesday, September 3, 2008 6:03 PM CDT
Evertyone is back in school and doing fine. Connor continues to have clean scans and we are now over 2 years out of treatment. No scans until November. We feel so blessed.
Wednesday, April 16, 2008 8:34 AM CDT
Lots of good news:
------------------------------------
4/23 ALL CLEAR ON THE SCANS AND THE ECCOCARDIOGRAM WAS NORMAL!!!!!!!
Connor's heart's ejection fraction is back up to 65-70 percent from being down to 55 percent. Originally, he was at 75 percent---What a praise! The other problem the doxorubicin commonly causes is thinning of the heart wall, and Connor's is still normal! They will continue to recheck his heart each year.
------------------------------------
Connor’s robotics team, The Robonauts, earned second place at both the Texas Regionals and the New Orleans Regionals. He left the house at 5:00am this morning to leave for Nationals in Atlanta this weekend. Friday and Saturday should be televised on the NASA channel---FIRST Robotics Competition. The actual robot shipped directly from New Orleans a couple weeks ago and their practice robot (the one in the youtube video) has been having technical difficulties, so the drivers have really not been able to practice---unfortunately---but how exciting to get to go to Nationals!!
Going to National Robotics Competition----That’s a thrill.
Connor having his 16th birthday, Friday, April 18, while at Nationals----That’s awesome!
Approaching 5 years post diagnosis----That’s GOD’S GRACE!!!!
I’m so excited for him. I feel like God’s giving him an extra splash of JOY---which in turn brings my heart great joy! Connor also just got back from a band trip to San Antonio---He’ll have a lot of school work to make up, but it’s all worth it. He’s rockin-on and living life to the fullest!
Sunday, when we return from Atlanta, Connor will attend an extreme driving class which teaches you how to get out of bad driving situations (skids, spins, etc.). I think it will be scary, but a rush. This way he will have experienced what if feels like to avoid a collision all before he ever gets his real license! www.driversedge.org
Next Wednesday, April 23, Connor will have his next scans and follow-up visit. Keep that in your prayers! Also, many thanks for prayers for my sister, Faye, who recently had heart surgery---She’s doing great. And for my dad, Bill, who fell and broke his leg up near his hip while traveling. He is in therapy and trying to recoup. We are hopeful he will be steady on his feet again soon. Sometimes I think we live on prayer.
Friday night, April 25, Connor will walk the Survivor’s Lap at Relay for Life in League City. He joined the Lake Against Cancer Club at his high school, so he will also be walking with those friends. We will be giving praise to our Lord for his, Weston’s, and many friends’ healing, as well as remembering my sweet Mom and many dear friends while we walk in hope for a cure.
With love and appreciation,
The Muscat Family
Wednesday, January 23, 2008 7:35 PM CST
We're back from the Christmas surprise trip to Hawaii (Kauai, Oahu, and Maui) and had a wonderful time, but most importantly....Connor's reports from scans today are all clean! God is so good! Connor now graduates from scans every 2 months to every 3 months. The doctor did say that he will probably have to undergo one more surgery someday to enlarge the skin patch at the old tumor site. Connor is up to 5'-11 1/2", 117 pounds, wearing a size 12 or 13 shoe, and growing like crazy. They do not want his scar to stretch too much. What a great problem to have!
At his April appointment, we will also recheck his heart efficiency. The doc said that one of his chemos, Doxorubicin (the red one), can cause additional heart damage for years----of course we are praying things will have IMPROVED and will be back in normal range! With God, all things are possible. See new pictures - What a big difference from Connor's Make-A-Wish Trip in 2004.
Robotics is in full swing for Connor and more time consuming than ever before. He loves it! He spends most days until 9:00pm up at NASA, Fridays and Saturdays until 10:00pm. How awesome an opportunity to work so intensely with top engineers from the nation! Competition will be in March/April. Check it out at:
http://www.usfirst.org/VideoPlayer.aspx?video=1st_overview.flv
http://www.usfirst.org/VideoPlayer.aspx?video=woodie_pro.flv
*****THIS JUST IN*****
Connor's actual team's preliminary robot
http://youtube.com/watch?v=CAJBC-DDL9w
Monday, December 24, 2007 4:00 PM CST
Merry Christmas to all!!!
Everything is great healthwise at the Muscat household this Holiday season. Connor had good scans before Thanksgiving and does not rescan until January/February next year.
Laura is really missing her Mom this Holiday season. It still doesn't seem real that she will be spending her first Christmas in Heavan with her son Jim.
Laura will post a better update after the New Year. We have a special surprise for the boy's - all I can say for now is Aloha!
With much Love this Holiday season from the Muscat's
Tuesday, November 20, 2007 12:40 AM CST
WED UPDATE: SCANS ARE ALL CLEAR!!!!!
Thanksgiving Day will soon be here and my heart overflows with great appreciation for Connor’s healthy year, the normalcy in our daily lives, and all the support we have received from you through the years. We thank the Lord for blessing us with the continued precious gift of time together!
Today my mind keeps visiting thoughts of routine scans that will be taken tomorrow, and remembering all the families who have endured this journey alongside us, those in the journey now, and the ones enduring the tests and anxiety that could lead to diagnosis. Somehow, my mind also groups in families of the military. Joining the war efforts in a way parallels with cancer treatment---when someone goes off, you can't know for sure if they will safely return. How brave our military heroes are for making such a choice! Thank God we can hope, pray, and cast our cares upon Him! Please be in prayer for all!
Weston recently had clean scans again and we anticipate clean ones for Connor as well. I expect we will at least get preliminary results tomorrow afternoon. His MRI is around 9:00am.
My sisters and I just enjoyed time together with our dad in Las Vegas. He is spending Thanksgiving with Jennifer’s family in San Diego. He seems to be making some adjustments to life without my mom, but he’s got to be so lonely---Keep him in your prayers, too.
Wishing a blessed Thanksgiving to each of you,
Laura
Wednesday, October 10, 2007 8:48 AM CDT
Exciting News----Connor gets his braces off this afternoon! We’ll try to update the picture soon to show off his pearly whites (at least we hope they’re still white under there!)
Love and appreciation to all,
Laura and Tony
Sunday, September 23, 2007 9:49 PM CDT
Information on Laura's mother, Lois Walstead
Born: October 02, 1937
Died: September 21, 2007
Visitation: 5 to 8 p.m., Tuesday, September 25, 2007, Crespo & Jirrels, 6123 Garth Road, Baytown TX 77521.
Services: 11 a.m., Wednesday, September 26, 2007, Second Baptist Church, 500 East James Street Baytown TX 77520.
Obituary: Lois Walstead
In the peaceful presence of her loving family, Lois Walstead was joyfully reunited with her son, Jim, on Friday, September 21, 2007, following a brief but insistent battle with cancer. She was born Lois Ann Lenskold to Harry and Dorothea (Knipshield) Lenskold on October 2, 1937, in Montclair, NJ. In 1954, she met and married the love of her life, William J. (Bill) Walstead, Jr., and they were blessed with four children. Lois graduated from Mountainside School of Nursing in Montclair, and enjoyed a gratifying career as a registered nurse working in the operating room, psychiatric and emergency departments of several hospitals prior to the arrival of her first child.
Following the death of their son, Jim in 1996, Lois and Bill became active in Compassionate Friends, with Lois later serving as leader of the local Baytown chapter. It was through this organization that she reached out and accompanied many families in the wake of their own loss. Always a kind and generous woman, she touched scores of lives as a volunteer at San Jacinto Methodist Hospital. She was an active member of the Lakewood community and was involved with the swim team for many years. She was also a sustaining member of the Baytown Junior Forum, having enjoyed many years with her friends in the Red Stocking Revue. Her devotion to the Lord transcended religious affiliations. Her church families include countless dear friends from St. Paul’s United Methodist Church, St. Mark’s United Methodist Church, Alliance Bible Church, and Second Baptist Church, among others.
Her loving family includes her husband of 49 years, Bill, and their three daughters, Faye Blackshear and her husband, Murray, of Brentwood, TN, Jennifer Crowe and husband, Jackie, of Ramona, CA, and Laura Muscat and husband, Tony, of Seabrook, TX. Her twelve grandchildren were the light of her life and include Blake, Brittney, Beau, Bentley, and Bayley Ann Blackshear; Travis, Derrick, Weston, and Marshall Crowe; and Connor, Carson, and Chandler Muscat. She also leaves one brother, Robert Lenskold and his wife, Betsey, of VT, loving nieces and nephews, and constant four-legged canine companion and bedside “nurse”, Marley.
The family will receive friends from 5 to 8 p.m., Tuesday, at Crespo & Jirrels. A celebration of Lois’s life will be shared at 11 a.m., Wednesday, September 26, 2007, Second Baptist Church, 500 East James St.-Baytown, with Mark Stafford, officiating. She will be laid to rest at White Cemetery, next to her beloved son. Honoring the family as pallbearers will be Brian Connealy, Ted Johnson, Steven Fenton, Dean House, Blake Blackshear, Beau Blackshear, Travis Crowe, Derrick Crowe and Connor Muscat. Honorary pallbearers will be Bentley Blackshear, Weston Crowe, Marshall Crowe, Carson Muscat and Chandler Muscat.
For those desiring, remembrances in Lois’s memory may be made to the Baytown Chapter of The Compassionate Friends at www.compassionatefriends.org, or CureSearch for childhood cancer research at www.curesearch.org., or the Lois Walstead Nursing Scholarship to be established at Lee College.
The Walstead family wishes to thank the many treasured friends for their love, prayers and support offered throughout Lois’s amazing life, especially at the end of her journey.
Memorials: The Compassionate Friends www.compassionatefriends.org CureSearch www.curesearch.org Lois Walstead Nursing Scholarship, Lee College
Cemetery: White Cemetery
Location: Crespo and Jirrels Funeral and Cremation Services
Church: Second Baptist Church Baytown
Saturday, September 22, 2007 5:02 PM CDT
Laura's mother passed away yesterday evening about 8:30pm. She was surrounded with love from her husband Bill, and 3 daughter's: Faye, Jennifer, and my favorite Laura. All four spent the last day singing and story-telling Lois all the way to Heaven where she was surely met by her son, Jim. Jim died on Father's Day 11 years ago. He was engaged that weekend and was traveling to our house for Father's Day lunch when we learned he was killed in a single car accident.
Lois was a devoted Christian that led by example. When Connor was diagnosed with cancer four years ago, I heard a very sad phrase: a wife that loses her husband is called a widow, a husband that loses his wife is called a widower, a child that loses his parents is called an orphan, but a parent that loses a child has no words to describe it - the pain is just that great. Lois endured the loss of her son with a dignity and grace that was admired by all her knew her.
Lois was a great mother-in-law and she will be missed by all who knew her.
Tony
Monday, September 17, 2007 9:54 AM CDT
Wed 9/19: Connor scans are all clear!We will re-scan in about 2/3 months. Laura's mom continues to struggle physically, but she has all 3 girls by her side to comfort her. She remains strong spiritually and waits patiently for her time to be with Our Lord. Please remember the Walstead's in your prayer's for comfort and peace.
This is the latest email update to my mom's friends:
Mom came home from the hospital Friday late afternoon. There's just something special about being home that brings warmth to our broken hearts. Hospice is here to take care of her physical needs; Dad and us girls are here to tell her how much we love her. She even gave Marley, their golden retriever, a rawhide chewy yesterday--He loves her, too! We certainly get smiles out of her as we reminisce. The Lord has blessed us so richly with such wonderful together times.
We take great comfort in the promises of the Bible---that we will be together again in Heaven. It has been 11 long years since our precious brother / her youngest child left this earth---What joy it brings her to anticipate his big, tall hug!
She waits upon the Lord,
The Walstead family
Oh, I did think of something you can DO! She has a large ficus tree on her back porch. I thought we could bring it inside and turn it into a Tree of Faith, Hope, and Love! If you would like, send something we could attach or hang on the tree----an ornament, heart, small cross, miniature picture frame, bookmark, scripture or whatever! Anything that represents your relationship with Mom. Put your name on the back and feel free to send an accompanying note. We will share it with her as we hang it for her to admire and feel your love!
Jeremiah 17:7-8 "But blessed is the man who trusts in the LORD, whose confidence is in him. He will be like a tree planted by the water that sends out its roots by the stream. It does not fear when heat comes; its leaves are always green. It has no worries in a year of drought and never fails to bear fruit."
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*Please continue to pray for Connor---He's looking fabulous, but he will have his MRI scan tomorrow and then a follow-up doctor's appointment Wednesday to get results. We have faith that he is fine, but I don't want him to have fear especially with all that's going on with my mom. We so appreciate all your prayers for my sweet family.
Clinging to the promises of God,
Laura
Wednesday, September 12, 2007 11:02 AM CDT
I struggle for words, but realize you, too, love this precious woman. Mom is OK. We have seen some improvements from the radiation---mostly, she is eating better, but still not much at all. There is also improvement with her depth perception. She has days where she feels a little stronger and clearer of mind, but we have certainly had some tough emotional days. Her body is very weak.
Yesterday, I was completely frustrated and overwhelmed with, "I don't know what to do!" I was talking with MDAnderson about this week's appointment where I was still holding on to much hope. With all the additional findings, that appointment is no longer----That appointment was for "head lesions" and that is no longer all of our story. They are forwarding her paperwork to another department, and maybe we'll see another doctor. I really feel it is in God's hands.
Anyway, I apologized to Mom about my intensity in front of her, and she just smiled and said, "I'm at peace with whatever happens." I told her I know she is right and the one that is better off---She is blessed! I know her peace comes from the Lord.
Friday, she will finish radiation. We expect her to get out of the hospital this weekend. It will be up to her if she wants to go home or to some type of skilled nursing facility. We need to let her decide those things that she can (her thinking is still quite lucid), and trust God with the rest.
We just love her so much,
Laura
Tuesday, September 11, 2007 2:00 PM CDT
Please prayer for Laura's mother. She is in St. Joseph's hospital right now. At this point, what originally was thought to be a stroke, has been found to be metastatic cancer in her abdomen, spine, and brain. Doctors believe her back surgery to have been a completely unrelated situation. Thankfully, she is not in pain other than a recurring headache which seems to be controlled with pain medication. She is very weak, has difficulty swallowing, and some trouble with her left eye, but her spirit lies in a wonderful place and she seems to have God's peace. She is enjoying having her family together, short visits from friends, listening to Christian music and readings from the book, Heaven is Real. She sleeps much of the time. Her mind is quite alert and her memory good---only at times does she get fuzzy minded. She speaks with a very quiet voice, but is certainly able to convey her needs and deep love for each of us. She knows God has granted her so very many blessings and will carry her in this time of need.
Mom seems to be doing a little better (Friday 7th). Pathology reports Tuesday (4th) , from her liver biopsy, were unfortunately "inconclusive". It was a needle biopsy, so very few cells were extracted. Most of those were dead cells which tells them nothing. They found a few live ones that give doctors a general diagnosis of some kind of carcinoma---but they have no idea which kind. Hence, IF she chooses to do some kind of chemo, they will need another biopsy to figure out which chemicals. On the same date as her back surgery, she had a sebaceous carcinoma removed from the back of her head. But, this type can also be the RESULT of abdominal issues and not the origin. So, is it the same type of carcinoma in her abdomen, or something different? We just don't know.
The reason for her doing a little better physically, is because of three things in addition to all our prayers.
1) She began radiation treatments Tuesday (4th). It is a low dose to her brain which will total two weeks / 10 treatments. Radiation is in hopes of reducing some of her neurological symptoms which we thankfully feel are already improved.
2) The doctor began giving her partial nutrition in her IV which should give her more energy. She seems to be eating a little better, too.
3) She was put on a pain patch which keeps her pain management more even keel. Before, pain meds were administered as needed, so she would have highs and lows. One of the pain meds would knock her out so much that she was having some sleep apnea and irregular breathing which was scary. We're glad that's resolved!
Please pray for God's Holy nature to envelop our hearts and minds. Pray for Him to guide all her treatment and care, all the doctors' decisions, and if she should endure another biopsy. We still await a consultation at MDAnderson on the 12th----pray about that, too. With the additional findings of spread, I don't even know if I've been talking with the right department. It would be nice to at least have a second opinion----Maybe they will have much hope!
Monday, August 27, 2007 9:36 AM CDT
I come to you today with a plea for prayer for my sweet mother, Lois. Her health has taken an downward spiral at an unbelievable rate in the past two weeks. We call upon the Lord in this time of need.
Thank you for praying,
Laura
Wednesday, July 18, 2007 7:21 PM CDT
God continues to bless Connor with good health! I’m happy to report that his chest x-ray was clear today. It’s the only scan we had this time in conjunction with a physical exam and blood draw. We will MRI again on his next scan day in two months. He’s doing GREAT!!!
Weston recently had his scans which were also clear. His next ones will be after his TWO years out of treatment date which is a very significant hurdle. To God be the glory for both their health.
I do want to ask for prayers for Ethan, a little hospital friend of ours who is 2 years past transplant. He has been in the hospital over 5 weeks with recurring fevers that are baffling everyone. They are concerned that he may have GVH in his lungs, which would be serious. Pray for Ethan’s better health and wisdom for the doctors.
Emily needs prayer also---She just began a new treatment protocol and I don’t think the first round went so great. Pray for her physical and emotional status as well as for her family, and for God to tenderly carry them through.
Micah and Carson are doing great! Carson recently had a seizure and had another surgery, but he is recouping well and gaining strength every day.
Wednesday, July 18, 2007 10:28 AM CDT
Today is scan day. We pray for continued health and joy in life!
We just got back from Florida for Beach Week and had a wonderful time with all my extended family. This year we had 33 of us---our largest family reunion yet. What a treat to have had not only my family, but also my cousins and their families to spend time together in love and laughter!
Before embarking on Florida, we went to the Alabama coast and visited with Tony’s extended family for several days around the 4th. What a fabulous time we had with such awesome southern hospitality from Tony’s Aunt Martha and Uncle Kenny. We got to visit with several of Tony’s cousins, too. It was the perfect addition to our trip!
In June, Connor also went to Missouri’s Lake of the Ozarks for church camp. His friend, Ryan, went with him and they had a great time. Summer is passing so quickly!
Thanks for always being there for us!
Sunday, June 17, 2007 10:52 PM CDT
Thank you to Laura and the boys for a wonderful Father's Day.
Chandler's baseball team is starting to play the caliber of baseball they are capable of playing. They won Friday night and Saturday evening despite all the rain around Houston. We could not dodge the rain today, so the remainder of his tournament is postponed for a couple of weekends. We were able to attend church, eat lunch and see Ocean's 13. I was even surprised with a family garage cleanup. What a great day.
Connor continues to be the picture of health. His asthma occasionally flares up, and our minds tend to wander, but God has been good to us. I could not ask for a better Father's Day present......except a few driving lessons! Yes, I had the pleasure of experiencing Connor's driving on the open roads Saturday. We made it home safely. He needs to slow down into the turns and speed up exiting the turns, but overall he is doing OK.
Carson has returned to basketball some for the summer. He is still battling ankle pains, so he is not pushing it too hard. He is really excited about fall soccer and he does not want to risk re-injuring his ankle.
I did not get to see my Dad today, he is in San Diego with Mom on a business trip. Thanks for being such a great Dad though and being a great role model!
We will try to post more often. Thanks for continuing to follow us on our journey.
Tony
Wednesday, May 23, 2007 11:11 AM CDT
I picked Connor up from school at 9:20 this morning. He has completed his last final and his freshman year of high school. What a relief that School’s out for SUMMER!!! yay(by Connor)! God has been good---It has been a great school year with so many blessings.
Connor begins Driver’s Ed next Tuesday on May 29. I am thrilled for him! Our next scans will be July 18----Maybe he’ll even be able to drive us there with his permit if he’s not too scary of a driver! (Realistically, I probably won’t be ready for him to drive into Houston yet, but we’ll see.)
Thanks for your continued support and prayers---They truly help us get through the days, months, and years. We are nine months out of treatment and depending upon God’s Grace as we continue the count!
I did get to attend services for Sweet Caroline. Most everyone wore pink in her honor---including boys and men! It was beautiful! My sweet and thoughtful friend, Teia, drove with me to show compassion to the family and to me. My favorite part was that along the roadside on the way to the cemetery, there were people holding long signs reading…We will miss you, Caroline! Caroline will always be our hero! Etc. It brought tears to my eyes. It was such a beautiful way to show support and love.
Continue to pray for Weston, Emily, Micah, Carson, Ethan, Hasim, Dominick, Michael, Tanner, Riley, Don and the families of Caroline, Kyle, Kathy, Neil, Dakota, Aviva, Jori, John, Kelly, Ann, Jimmy, and so many more who deal with the effects of this disease. May God grant us all peace, strength, and joy on a daily basis.
Love you guys,
Tony, Laura, Connor, Carson, and Chandler
Thursday, May 17, 2007 10:03 AM CDT
I thank you for all your prayers for our Sweet Caroline----She earned her wings Monday and is now living life eternal with Jesus Christ Himself. As much as we celebrate her new life---strong, healthy, happy, and free of disease, we grieve for her family and will miss her so very much. We know she is singing praises of Glory to God and that we will see her again. Please continue to pray for her family---we love them so much.
Monday, May 7, 2007 9:34 AM CDT
The official report is finally in---“No worries. His final report is back and completely normal.” These are the words I received from sweet Bea the P. A. this morning. Praise the Good Lord! I needed that so desperately!
I’ve been incredibly emotional this past week with all that’s going on with precious Caroline, still grieving for Kyle, and with Connor having scans amidst having a bad cough for at least three weeks. Wednesday, when the tech came in to administer the IV contrast for Connor's MRI, which is about 3/4 the way through, he commented on Connor's cough sounding bad. He wanted to know if we had it checked and what his doctor had said about it. Ever since that moment, I have been completely petrified that he saw something in the lungs----and that was last Wednesday. I’ve cried on and off all week while trying to hide it from my family, but just couldn’t tell them my fears. It has worn me incredibly thin (unfortunately not like a diet).
I’m so thankful to KNOW Connor continues to be FINE and ROCK ON!!!! How I wish I could be stronger, have more faith, and not allow fear to mess with my mind. I know God has the power to help me with that, but it is so hard to let Him really have all my troubles. The Bible never promises that life as a Christian will be easy, but it does promise that Jesus will always be with us; always watching, always keeping, always providing, always defending, always loving, and never forsaking!
Breathing so much easier for Connor, but still requesting prayers for Caroline,
Laura
Thursday, May 3, 2007 12:58 AM CDT
*****5:30pm*****Preliminary report is clear!!!!!
No news as of yet (they said it might even be Friday)---I’ve been sitting at the computer for an hour waiting for word (such a waste of time, but somehow that’s what I’ve done). While I’m sitting here, I might as well write.
Yesterday, while Connor enjoyed playing pool, basketball, and video games in the hospital's Kim's Place (he's finally old enough and I'm far too old--ages 15 to 25 only), I did get to visit for a long while with Caroline’s family and hug their necks. I talked to Caroline, but being sedated, she was sleeping of course. She does respond to her family from time to time with a squeeze of the hand, nod, or raising her eyebrows which is huge encouragement to them. She is beautiful and resting peacefully. God bless her heart. The frustrating thing is that they still do not know what is causing all the kidney and lung problems. Most of the doctors’ guesses should have improved with all the mass medicines they have given her. They need God’s intervention about now. Please pray for their princess.
We’ll keep you posted,
Laura
Monday, April 30, 2007 11:57 AM CDT
Connor’s scans have been changed to Wednesday evening at 5:30 (which may really mean 7:00pm---who knows). Please be in prayer with us. He looks and feels so fabulous and we are extremely thankful!!!!! MRI being in the evening, we will NOT receive results until Thursday afternoon when we will post results. We will see Dr. Huh for his physical exam earlier in the afternoon at 3:30 and do bloodwork also at that time.
Please continue to pray for Caroline and the Manley family. I will try to sneak in a visit with them Wednesday when we are there.
Love and thanks,
Laura and Tony
Friday, April 27, 2007 11:12 AM CDT
HOW EXCITING---Connor is going to walk the Survivor’s Lap in the Relay for Life in Baytown tonight. I just registered him this morning, and he doesn’t even know it yet. I just think it’s time---It feels right! I think it will be SO POSITIVE for our whole family to see so many SURVIVORS and such an incredible amount of support. There is supposed to be over 3,000 luminaries of which Connor and cousin Weston are included---We will certainly look for their names on the bags! I pray it will be a huge moment for the heart! I know God loves us and wants us to feel supported in huge magnitudes---That’s just His size!
Connor’s next scans are Thursday, May 3. We will celebrate tonight in anticipation of continued good health blessings from our God!
Interesting: I didn’t even know it, but Connor does still have a few side effects from all the “stuff” he’s had done to him. Last night he was showing the brothers and me that when he stands, he can NOT pick up the ball of his feet or even his toes---He says it’s not too good for marching band! Also when he lies on his back with his arms out to the side, he absolutely can NOT lift his right arm even an inch! I guess none of us could without any pectoral muscles----Whatever---He’s fine with it all and I don’t think those are requirements for many things in life. He was laughing about it all and in wonderful spirits. Praise the Lord he’s doing so GREAT!!!!
Please continue to pray for Caroline, her family, and doctors. She is in her 5th week of being in ICU. Her lungs do show some improvement, but she still needs a breakthrough with her lungs and kidneys! Pray God’s wisdom to enfold upon the doctors, so they can get her out of there! *****SUNDAY MORNING***** Pray, pray, pray---Caroline had a very rough day yesterday. She was put on a ventilator, and they will be doing a lung biopsy Monday despite the dangers because they are desperate for answers! We know God is in control even when things feel chaotic---Sometimes we have to rely on what we know rather than how we feel.
Jonathon continues to need our prayers, too. He is the 15 year old boy in the car wreck. He is out of ICU, but pray for him to wake up and come out of the coma and for there to be continued great progress. The family so appreciates our prayers.
Micah’s doing great and gets his port out on Monday! Emily and Baby Carson are doing well! Praise God that Ethan has made it two years post transplant! We love our hospital friends and their families!
Can’t wait to watch our boy walk tonight!
Laura and Tony
Wednesday, April 18, 2007 1:10 PM CDT
HAPPY BIRTHDAY TO OUR CONNOR!!! We can’t believe you are 15! Driver’s Ed---Here we come! We thank the good Lord for the blessing of YOU!!! We look forward to birthday dinner tonight with all the grandparents, and enjoyed Dave and Busters last weekend with a few friends!
Friday, April 13, 2007 8:20 AM CDT
We are doing great---Connor is back in tennis now that robotics is over! He’s just about the same height as me (5’9”), and his 15th birthday is on Wednesday! He’s beginning to dream about driving! His next scans should be early May, so tuck that in your prayers. How great is our God!
Caroline is still in ICU---Pray the doctors will get answers to what exactly is going on with her lungs and kidneys. I believe it’s a bit of a mystery to them, but God certainly knows and will guide them while holding Caroline all the while.
Some great news---while looking on Caroline’s site, I saw pictures of Mickensie and she’s obviously doing fabulous and has LONG hair!!! Mickensie was in treatment with us 3 ½ years ago. She was probably three and her mom used to pull her around in a wagon. She was and still is beautiful (both bald and hairy)! Her photo was on the cover of the calendar in which Connor’s artwork was displayed a year ago. It does my heart so good to see some of the other survivors----sometimes it’s hard because the only kiddos you “see” are the ones still at the hospital. What a treasure it is to run into the success stories in clinic or anywhere---I’ll even take it online!!!
Jonathon also has good news---He is certainly improving and was finally well enough to be flown home to a Houston hospital reuniting their family.
Our prayers for these families have been touching the heart of God! Keep them flowing---Relationship and conversation with us pleases Him so!
Laura
***Go to this site to help a high school friend of mine, Amy, make "Strides for Change" with MADD: http://support.madd.org/site/TR?px=1618803&pg=personal&fr_id=1710&et=65E-ouI7PwL4XAEVAooONw..&s_tafId=10480
***Click on this to "see" Kyle--- http://obit.memorialoakschapel.com/obit_display.cgi?id=407657&listing=Current
Wednesday, April 11, 2007 10:32 AM CDT
I went to Kyle’s service yesterday---beautifully done and very much a praise and worship time with guitars and singing of great praise songs. Way to go, Kyle---apparently he did not want any organ music! The pastor seemed to remember that half the room was filled with teenagers and spoke on their level which I thought was wonderful. One thing that struck me, which I had never thought about before, was the pallbearers---such young men to also be touched so deeply by this disease. It sounds like Kyle’s faith was a huge inspiration to them all! My favorite thing is that recently his school renamed the softball field “Kyle Field” after him. He was a great athlete before leg salvage surgery and continued to be an avid fan of all sports. His mom told me that when he left this earth, the first thing she thought about was a beautiful Heavenly baseball field where he could play any position he chooses! Kyle Field in Aggieland will certainly have new meaning for me---Kyle was an incredible Aggie fan, too!
I got back last night in time to attend Connor’s band concert---They sounded great!
Please continue to keep Caroline in your prayers---Her health seems to be on a roller coaster right now.
There is another prayer request for a 15 year old named Jonathon with head injuries after a car wreck. Pray God's hand upon all these families!
***Go to this site to help a high school friend of mine make "Strides for Change" with MADD: http://support.madd.org/site/TR?px=1618803&pg=personal&fr_id=1710&et=65E-ouI7PwL4XAEVAooONw..&s_tafId=10480
Thank you from the bottom of my heart!
Saturday, April 7, 2007 4:23 PM CDT
“God, my God, I cry out. Your beloved needs you now!” That song is pounding in my heart right now. I just found out that precious Kyle went to be with Jesus yesterday. Please pray for his family. I am just so sad for them. What an awesome kid! I’m trying to help myself feel better by thinking that he died on the same day Jesus did---Good Friday---what incredible company he keeps! I pray someday his family will find comfort in that. I've been doing Beth Moore's Bible Study on Daniel. In it she talks about God's deliverance for us all from our trials. She discusses three ways God delivers us: 1)from the fire (trial), 2)through the fire, or 3)into His arms! Kyle has been delivered directly into the loving arms of Jesus!
Caroline got good news yesterday with her counts being better, and her lungs sounding and x-ray much improved! We are happy for these blessings.
I recently heard from Baby Carson’s mom, he also is doing well and continuing improvements. He will continue with maintenance chemo for two more years. He should be having his 3rd birthday soon, so I don’t know how long I can call him “Baby” Carson.
Emily and Micah both seem to be fairing fine.
I ask your prayers to include adults Debbie and Ron, also.
I thank God for all these special people in our lives whom we would have never met without our own difficult walk. We are grateful for the good health we are blessed with TODAY!
May Christ be “risen” and very much “alive” in each of our hearts for Easter tomorrow.
Love,
Laura
*****Tonight a friend sent me this video site: http://www.youtube.com/watch?v=FtAjrNqEsoM
It is the very song my heart has been crying out for Kyle's family today----I'm sure my friend had NO IDEA, but God DID!!!!
Thursday, April 5, 2007 10:19 AM CDT
Update on Caroline: She is still in ICU continuing dialysis etc. They are awaiting results from surgical lung testing done yesterday to see if she has a certain virus-CMV. Please keep this precious girl in your prayers. The big praise report for now is that I believe they’ve ruled out relapse of leukemia of which they were fearful---Thank you, Jesus!
As far as Connor, we believe we’ve figured out what caused his last allergic reaction. Last night, he took some ibuprophen and a couple hours later---he started with a fat top lip, tons of nasal congestion, and it moved up to swelling of his eyelids again. We believe he’s now allergic to ibuprophen. We were nervous to give him Benadryl because the combo seemed so bad last time---but after calling Dr. Jay, we went ahead. We made him sleep on the couch so I could easily check if he was breathing OK. I didn’t even have to enter the den to check his breathing---He snored like crazy until past midnight. We could hear it from our bedroom! It’s not normal for him to snore---I think the reaction just had him completely stopped up. I wonder if there is an ingredient similar between ibuprophen and rocephin? Anyway, we’ll stick to Tylenol from now on!
He had a great time on the Disney Band Trip!
Saturday, March 31, 2007 3:52 PM CDT
Connor is at Disney / Florida with his high school band. They left Thursday and will come back home Monday night. They will perform at Disney, but most of the time they will be experiencing fun. They will go to several parks---Disney, MGM, Epcot, Universal Studios, and they will also see a Cirque du Soleil show. I’m sure he’s having an awesome time and will come home exhausted! Thank you, Lord, for Connor being able to have “extreme fun”. Last weekend was his Botball robotics competition. You could see by his happy face that he was “in his realm”! They got 8th place out of around 23 teams. They won “Most Complex Robot”, and guess who built the majority of it?---yes, Connor---with ideas from most everyone. The best part for this mom was that when they announced the award, the ninth grade team members were saying, “Connor, Connor,” for him to go up and receive the plaque! That Sunday, we attended the Jori Zemmel Bone Cancer Walk. We hugged Jori's mom's neck (a counselor at Connor's school), we saw some hospital friends, and visited with some MDAnderson staff who were there showing support, and pondered the wonderful people we have met through our journey as well as the incredible vastness of God's grace.
Kyle continues the need to be blanketed with our prayers. He seems to have a good week, but then a not so good week. I am happy to report that his counts have been good enough to keep him home and out of the hospital! Continue to pray for strength, capabilities to eat and drink, levels related to his body functions to be “normal”, tumors to shrink, and God to calm his body, mind, and family.
Caroline (almost a full year out of bone marrow transplant and has been doing beautifully) has had an extremely difficult week. She, also, is in desperate need of prayer. She suddenly went into renal (kidney) failure. I'm not sure if it's something that just happened, or if it has something to do with Graft vs. Host. She is in ICU where they are doing dialysis and plasma pheresis ---Ug---I just checked her site to get that procedure’s name and I found out she now has pneumonia, too! Actually, I believe what brought her to the hospital was difficulty breathing which is when they found out she had fluid in her lungs and all these other issues. We know God is far, far greater than any of them. For details, go to carepages.com click on “visit a page” and then type in CarolinesPage . Let them know you are praying!
Micah also had a seizure last week---out of the blue and now there’s no evidence of it at all! It scared everyone, but he is now fine! I believe he also finished his skin radiation this week, so he is DONE with all cancer treatments---Yea! He is on seizure medicine and I think some donor rejection medications, but doing great! Visit him and leave a message at www.caringbridge.org/visit/micahfarmer.
I want to add this copied directly from Micah's page written by his mom, Angie. I just don't want it to be missed:
"He (Micah) had his big moment at the BMT (Bone Marrow Transplant) conference. There was one pediatric (him) and two adult transplant patients interviewed. When they asked Micah how cancer and transplant has changed his life, he answered that it hadn't changed his life. Now that is what I call being covered by mercy and grace. When they asked what it felt like to have a donor that he didn't know. He said, "creepy". Everyone laughed. All in all, Micah seemed to wonder what the big deal was all about. Five relapses, four years away from home, twenty-three brain tumors, stroke, pericardial tamponade, pneumonia, more surgeries, MRI's, CT's, PET scan's, lumbar puncture's and bone marrow aspiration's than I can remember, chemo injected into his spine and brain over and over, biopsies from the brain to the lower legs, unstopable vomiting and diarrhea, every holiday in the hospital, losing your best friend, pain and agony and I could go on and on. But my precious Micah walked away with a smile and happy memories. What an inspiration. I pray that in time he will only be better for the experience."
Good thing God is always “constant”--- Sometimes life is a roller coaster.
Laura
Thursday, March 22, 2007 8:06 AM CDT
Photo: Spring Break in Port O'Connor, TX.
HAPPY 11TH BIRTHDAY, CHANDLER!!!
Everyone survived Spring Break. The rainy half of the week, we mostly rested and slept late as well as attended the Houston Livestock Show to see our friend, Jordan, and her heifer named Cinderella. While there, we had our first "deep fried oreo cookie" complete with powdered sugar sprinkled atop---sounds disgusting, but actually pretty good if you don't consider nutritional value! As the weather cleared, we were able to sneak down to POC for a few days of relaxation and a small celebration for Chandler's birthday. All the boys, as well as Chandler's best friend Ethan, went wade fishing for the first time on Friday. We even caught enough fish for a couple of dinners. The evenings were spent around the campfire - not quite camping, but very close. Saturday was spent exploring Matagorda Island - I'm sure the hermit crabs are glad we are gone!
Connor is doing great. Thank you all for checking in.
Tony and Laura
Wednesday, March 21, 2007 9:55 PM CDT
Photo: Spring Break in Port O'Connor.
Everyone survived Spring Break. We were able to sneak down to POC for a few days of relaxation and a small celebration for Chandler's birthday. All the boys, as well as Chandler's best friend Ethan, went wade fishing for the fisrt time on Friday. We even caught enough fish for a couple of dinners. The evenings were spent around the campfire - not quite camping, but very close. Saturday was spent exploring Matagorda Island - I'm sure the hermit crabs are glad we are gone!
Connor is doing great. Thank you all for checking in.
Tony
Thursday, March 8, 2007 10:46 PM CST
The final report is in---Connor is clear of disease! Thank you, Lord!
We got to see lots of hospital friends yesterday which was fun. When we walked in the door to the pedi-clinic, there was Kyle with his parents. It was so nice to see him! His color was good, and he was sitting well in a wheelchair---So glad he’s up and out of a hospital bed. Keep praying for him. I talked for a while with Dominick---He says his mom has been staying out of trouble. He has only two more chemo treatments to go, and then freedom from Leukemia! He’s best buddies with Hazim, so I asked for a report: Hazim has recouped from surgery and is back in school (the hospital school). Sounds like great news to me! We saw Garrett and Gatlin (brothers diagnosed with the same Leukemia about a year apart). They look marvelous! Gatlin is still on maintenance chemo for about another 9 months, but Garrett is free and clear. We enjoyed visiting with several awesome doctors and nurses, too. My parents came in, also, to have their blood drawn for genetics testing. They say that IF they find anything, it could take 30 years. We will not hold our breath, but hopefully we have been able to contribute to research of sarcomas.
Connor’s CAT Scan was done without the IV contrast this time even though it had been ordered. Connor had an allergic reaction the last time, so we were instructed to pre-medicate him with Benadryl. OK, so we did that. He had been to the orthodontist the day before, so we also took ibuprophen as well as two puffs of albuterol for his asthma---all very normal meds for Connor. Before a CT, you are not allowed to eat for four hours, so Connor had not yet eaten for the day. Anyway, something caused Connor to begin having an allergic reaction when we arrived at the hospital---WAY before any IV contrast had been administered! We still don’t really know what caused it. Has he now developed an allergy to one of these common meds, or was it simply that we took three different drugs without eating? Who knows---He had extreme sneezing, coughing, blowing, hacking, and a swollen eyelid for at least an hour. It was very odd! The nurses did NOT want to add the IV contrast to the mix, so we didn’t. It seems to me that his body is saying it has had ENOUGH!!!! Please pray these allergic reactions will never become dangerous and we get it figured out.
With so much gratitude for clean scans,
Laura
Saturday, March 3, 2007 10:53 PM CST
Wednesday 3/07 update:Connors preliminary results are all clear again!
We received word Thursday that Weston's chest CT is clear---Yea! We are still awaiting results of his abdomen MRI. The MRI was done at the adult hospital, and there has been some problem getting it transferred to the children's hospital there in San Diego. Jennifer's family is off on a fun three day weekend riding 4 wheelers in the dunes and a college visit for their eldest, Travis.---Hopefully they will receive the rest of the good news Monday.
I got a really good report on Kyle today---He is much improved! God is showing His handiwork!
Please be in prayer about Connor's scans Wed, March 7. We are feeling quite good about them.
Love and Prayers,
Laura
Sunday morning update: I just got off the phone with Jennifer, and they received a message that ALL of Weston's scans are CLEAR---Praise the Lord! These were his 18 month post treatment scans which is when Connor relapsed, so there is extra gratefulness in our hearts! God is so good!
Wednesday, February 28, 2007 10:14 AM CST
Today is Weston’s scan day----Next Wed. will be Connor’s. Thank you for continuing to keep us all in your prayers.
Expecting good news,
Laura
Thursday, February 22, 2007 12:22 AM CST
Let me begin with a huge THANK YOU to the guys at the Diamond Ranch! They provided an awesome hunting weekend away for Connor and Tony. They were kind enough to also invite cousin Weston and his dad, but their California distance kept them from attending. A special thanks to our church friend, Dennis, for giving them Connor’s name. Connor had a great time, shot a big 8 point deer, received lots of Astro’s stuff autographed by Junction Jack, and says he’d love to take his whole family there one day!
It’s been a long time since I’ve written about the goings on in my heart, so I thought today I would. In the last couple months I feel God is giving me new peace. Right before Connor’s last scans in early January, I began to have brand new thoughts cross my mind. To be honest, I don’t believe it was my idea---I believe it is God.
For three and a half years I have begged God for Connor to be completely healed and done with all treatments forever----and for him to be blessed with a long, healthy life. Before Connor’s January scans, a different feeling came over me when I would go into prayer. An interesting scenario began to play in my mind. I began repeatedly thinking about if some kid had been begging me in a blithering, desperate way for three and a half years, I would finally be answering, “ALRIGHT ALREADY---It has BEEN done! Just say, “THANK YOU!”
So, that is what I have been doing. THANKING the Good Lord for “today”. Thanking and praising Him that my children are healthy “today” and that we had fun “today”. Amazingly, it is taking away so much of my anxiety about the future and about scans. I will not claim that I win a medal for having NO stress or anything---I just have more peace in my mind and heart. The peace allows me to “live” more each day without so much mental confinement from worry. I’m really trying to fully believe this new frame of mind truly IS from God. Why would it not be? It aligns right with God’s character---It is good (not just good-AWESOME), brings peace, healing, comfort, and ultimate love. We have received so many blessings!
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The heart story of this journey can not fully be told with information only about Connor. Atop having new peace in our own situation, there are friends of ours in dire need of God’s healing touch. Kyle’s situation has grown very serious. His doctor is doing everything possible to keep him home where he is happy, but medically he has many complications. Pray for a miracle---pray for his family as they try to be “happy” for their other child: a graduating senior with her 18th birthday this weekend. Pray they SEE and FEEL the presence of Christ.
Over 241 days after transplant, Caroline is having graft vs. host issues in her mouth, and throat which needs prayer. It is keeping her from eating. They were very concerned it was also in her lungs, but thankfully, I believe they have ruled that out. Emily is doing OK, but has had a nasty, exhausting cough for weeks and is still on various chemo treatments and still fighting---it has been five years. Hazim just had a very invasive, radical treatment done in his abdomin---Pray for great results. Sometimes it feels like the effects of this disease just won’t leave everyone ALONE!
Pray also for Neil and Dakota's families as this will be an incredibly tough time of remembrance for them. They need peace and comfort far greater than from themselves; they need it from the Lord.
On a happy note, Weston and Micah are still doing beautifully and little Carson has taken his first steps again!!! His feet are working again! What a blessing! Weston's next scans are Feb. 28, and Connor's are March 7.
Thanks for lending your heart,
Laura
Sunday, February 11, 2007 0:05 AM CST
Everything is normal on the homefront. Saturday was a relatively uneventful day. Connor had band competion and kept score at 2 basketball games. Chandler had a basketball doudle header. Carson had a basketball double header and 3 soccer games (he made 2). I'm tired just writing the schdeule down.
Many thanks to my mom (and dad), she is keeping the kids for a couple of days while Laura and I sneak off for some skiing at the Canyons and Deer Valley in Utah. I had to spoil the surprise and tell Laura we were going somewhere (she doesn't know where though) - she is in charge of the DARE skit at Chandler's school on Thursday when we get back.
The kids schedule is pretty simple the first part of the week luckily.
Thanks again Mom - WE LOVE YOU.
Sunday, January 28, 2007 8:41 PM CST
Connor received his first paycheck - time to start paying rent!
This year the Clear Lake Boys Basketball league is paying high school aged kids to keep score. Connor was thrilled to get his first offical paid job. Connor has band, robotics and tennis in addition to his scorekeeping duties. Carson is playing basketball in two leagues as well as two leagues of soccer. Chandler has basketball and baseball underway. Laura and I see each other in passing on the roads.
Life is full, but very rewarding.
Thursday, January 25, 2007 9:07 AM CST
Sorry guys, we did get Connor’s final scan reports the following day. He is CLEAR of disease---Praise the Lord! We will return in two months around spring break. No news is good news----I promise I will let you know our prayer requests. If I haven’t updated, it means we are “living” life and actually thinking about other things which is absolutely WONDERFUL!!!
Please pray for Kyle’s fighting spirit---When we saw him last week, he looked very down which broke my heart. I think when they get him home and out of the hospital, he will perk up. I don’t think any of our other friends are in a trouble spot at the moment, thank the Lord.
Have a great day and thanks for your continued prayers,
Laura
Wednesday, January 17, 2007 9:06 AM CST
5:15 preliminary report is ALL CLEAR!!!!! We won't get the final report for few days but we can sleep well tonight. More prayers answered.
-------------
Well, today’s the day---scan day. We will trust the Lord as we know He has great plans for Connor---for the LONG term! I really believe he will receive blessings of a clean bill of health. My goal will be to nap during the long MRI scan. If I’m awake, my mind goes crazy, and without a watch due to the extreme magnetism, I begin to think things are taking too long. For me, myself, and I, it’s best to doze off---I’ve learned. We don’t go in until 1:00 and will meet with the doctor at 4:00 (when Tony will join us), so don’t expect any word until this evening. Carson has a Rodeo Art reception from 5:00-6:30---I’m hoping to get home in time to take him to the last 30 minutes which should be long enough to view the student artwork and eat a cookie.
While at MDAnderson today, we will seek out Kyle for a visit. He is in a regular room, finally, and out of ICU. Pray specifically for him to be able to eat, to be rid of any infection, and for the treatments to be effective in getting rid of the cancer. Tony went to Jimmy’s funeral Monday. He was sad---He really liked and admired Jimmy. What a great guy! Keep his family in your prayers. His children are young adults and I know it is so difficult for them and his wife. Weston, Micah, and Caroline continue to do beautifully, and Baby Carson is now on maintenance chemo---Amen! Emily has been throwing up every day for two weeks, and she’s supposed to have chemo Thursday. The 13 year old Dallas boy who had the ski accident continues to slowly improve as far as I know. Thank you for praying---I know my list is always long, but my heart has grown so much.
Have a great day, and stay clear of the ice. My kids have been so disappointed that they’ve continued to have school. We expect things to be melted before we head to Houston, so we should be fine.
Love to you all,
Laura
Thursday, January 11, 2007 4:39 PM CST
Let me please ask for specific prayer for Connor’s next "clean" scans---Wednesday, January 17. As much as I hate scan day, I have come to realize that scanning is much better than being on active treatment. God will carry us through.
Kyle (15) has been in ICU again this week and is in need of all our prayers. The twists and turns of this disease can be scary and exhausting---pray also for his family. Emily has also been quite sick this week. Keep Tony’s work friend, Jimmy, and his family blanketed in prayer as each day is so difficult right now.
Further, I want to ask for prayers for a 13 year old Dallas boy---nephew of a friend of mine. He had a skiing accident and hit a tree head on. He had brain surgery Christmas Day to relieve the pressure and stayed in a New Mexico hospital until this week when he was finally flown back to a Dallas hospital reuniting his family. He is improving, but slowly. Ask God’s healing touch upon him.
I’ve been thinking much about “strength” this week. It amazes me how often people tell us how strong we are----when ironically, this situation has made us feel the absolute weakest in our lives. We are completely helpless in our own power. That’s why we need prayer, Christian radio, and messages of love and support from you guys all the time---It builds us UP and gives us God’s strength! There’s a song entitled “The Warrior is a Child” that references putting on armor each day and fighting, but acknowledges that even winners get wounded in the fight. It continues with…
“They don't know that I go running Home when I fall down
They don't know who picks me up when no one is around
I drop my sword and cry for just a while
'Cause deep inside this armor
The warrior is a child.”
If you see “strength” when you look at us, it is certainly the Strength of the Lord. We never knew the depth of God's love until we were in the depths of life. It is so nice to be back on the mountain tops!
Thank you for continuing to lift us up in prayer,
Laura and Tony
Friday, January 5, 2007 10:22 AM CST
I spent time this morning going back to the beginning of this journal and reliving our first weeks of relapse. I was not one bit surprised when the words revealed it was exactly one year ago today Connor’s port-a-cath was surgically reinserted and he endured his first dose of the new chemo---It's been so on my mind this week. What a nightmare, but what an awesome time for God to demonstrate His promise to SUSTAIN us. He was with us all the way---just as He promised. Most of the time, He showed us His love through YOU! Thank you for being there for us.
Basketball season is upon us, and I keep being reminded of a particular game last year. Connor was in the hospital getting one of his first rounds of chemo; Tony was with him. I was TRYING to keep the scoreboard and clock for Carson’s basketball game, but I was doing a horrible job. Tony kept calling because Connor kept throwing up---I would help try to figure out which nausea med to try next. There was NO WAY I wasn’t going to answer that phone and it was impossible to focus well on the game. Apparently, there was a lady from the opposing team who thought I needed her to stand over my shoulder. After several minutes of her standing there, I asked if she was watching me work the clock. She replied, “Yes,” which irritated me to no end. I stood up and offered her my chair, but of course she didn’t want to “volunteer”, she just wanted to supervise. The only reason I was doing it was because there were no other volunteers. I try to remember that in no way did she know what I was going through or why I would actually answer my phone, but lately I keep being haunted by this memory. Anyway, I guess it all worked out for the best---This year Connor and the other teen siblings have a job. The league will be paying them to keep the clock/scoreboard for the games! I hope it’s not only because of me---I think parent volunteers often get wrapped up in their own kid’s game and forget to start/stop the clock for a few seconds. Whatever!
Connor is doing great and is starting this new year off with lots of gusto! He shot lots of fireworks New Year's Eve, spent a double overnight at Trevor’s, went to group tennis drills Tuesday for the first time in SO long, and his robotics began this week. The next few months will prove to be VERY busy for him. What JOY it brings me for him to have life anew! We are so blessed!
May we all have a happy, HEALTHY 2007,
Laura
Thursday, December 21, 2006 9:59 PM CST
Merry Christmas to all.
We are off for a fun filled week of skiing in Utah. We started with the Muscat Christmas tonight. Everyone had a wonderfull time. We followed with a family exchange here when we got home. Tomorrow will be the typical scramble to get ready to go on Saturday morning.
All the anxiety of trying to leave will pale in comparison to the anxiety we endured this year as we watched God lead Connor to another victory versus cancer. Please pray for a clean year next year. Please pray for my friend and co-worker Jimmy - he has entered into what appears to be a final struggle against cancer. His spirits are high, but he is struggling mightily physically. Please pray for peace and comfort for both he and his family. Please remember the families who are mourning the loss of their loved ones this holiday - Laura and I have lost friends and co-workers to cancer this year. Please pray for those who either beat cancer this year or are still in treatment.
Kyle has had a rough couple of weeks including several days in ICU and further findings of osteosarcoma cells in his abdomen (which doctors have never seen before). Micah was also in ICU last week with fluid around his heart. It has been drained, and he is much improved. As far as I know, Emily, Caroline, and Baby Carson are doing well. Our friends' daughter who was in the car wreck, has been home for a couple weeks and is doing quite well. She has a halo on her head/neck for fracture in the neck, so much healing still needs to occur---in God's time. Also, pray for Tim---He'll have scans early Jan. and we are needing great news! Connor's next scans will be January 17. Thanks for all your prayers---The need is so great.
It seems that cancer has been a major part of our lives for almost 3 1/2 years. Fortunately, God has been an even larger part and He has lead us thru as a family. Thank you to each and everyone of you who has followed us and supported us on our journey. We could not be as strong as we are are with you!
Have a safe and wonderful holiday season. We look forward to seeing you next year.
Tony, Laura, Connor, Carson, Chandler
Monday, December 4, 2006 9:27 AM CST
First things first---Weston again had CLEAN scans!!!! YEEHAW and AMEN!!! He is 15 months out of treatment and recently went to his first post treatment gymnastics practice meet. What a thrill and a blessing that he is back to what he loves!!!! God is good!
Connor and Carson had a good time at Robotics State!! God even brought them snow in which to play! WIRED did not bring home a trophy, but they did great and had a marvelous time. We placed 24th out of 48 teams---45 of them high schools. There were only three middle school teams who made it and we placed higher than any of them! Most teams were from Texas, but there was also New Mexico, Oklahoma, Louisiana, and even Washington D.C.! What a tremendous learning experience---We are so thankful for all our wonderful volunteers! We enjoyed a visit with the Britton’s from Lubbock(Gramee’s friends). Hopefully they had fun learning about BEST robotic competition and their ears have stopped ringing. Next year’s assignment will have something to do with Mars---Our NASA guys are so excited!
Connor did get his bandaging off and really hasn’t complained about his incision since---Maybe it was the sticky stuff that was so itchy! He did mention that last week when he first wore NO hat to school, most kids told him, "Nice haircut!" When he reminded them it was NOT a "cut", they replied, "Oh yeah, I knew that!"
He’s doing great!
Laura
Thursday, November 30, 2006 9:31 AM CST
Today is Weston's scan day. Pray for my family's peace as we WAIT for results. We are confident he will be fine, but as the time is now, we just need to hear confirmation of it. I like the way Kyle's mom put it, "We will put it in God's hands---They are certainly big enough."
Connor is recouping fine from surgery, just still sore and itchy. He had over 5 hours of homework last night eventhough his homebound teacher came Tuesday---yuk! He is not yet interested in taking the sticky bandaging off his incision for fear of pain. We've been washing his hair in the sink so the bandaging doesn't get wet. Hopefully tomorrow he'll feel up to pulling it off and get a real shower---steri-strips underneath will still be adheased for a week or so.
Tonight we (Connor, Carson, and I) fly out to Lubbock for State Robotics Competition at Texas Tech! It's Carson's team who made it, but Connor is one of the mentors and was on the team the past three years. I'm sure it will be very fascinating to see all the incredibly "different" robots all formed out of the same supplies with the same mission---That's what always impresses me the most! Connor is looking forward to high school Botball competition next semester.
Enjoying being chemo free,
Laura
Monday, November 27, 2006 4:07 PM CST
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MONDAY UPDATE 2:20pm
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We are home from surgery---the port is out. They let us bring it home; kinda cool! Connor is doing fine and finally got to eat for the day. He's sore, of course, but it's nice to have it ALL over! His homebound teacher will come tomorrow, and then he will return to school Wednesday. Thursday evening we will leave for Robotics State Competition (Carson's team / Connor's a mentor) in Lubbock where we just might freeze! It's a big week---We are so grateful for all our blessings!
Friday, November 24, 2006 8:23 PM CST
We have so much to be thankful for!!! The newest news is that Connor will be having surgery to have his port-o-cath removed this MONDAY morning!! We will need to be there around 6:45am, but surgery will not be until 9:00 or so. It should only take 30 min. to an hour and then recovery before we go home. I expect to be home before the brothers get home from their school day. All this means the MRI report was also clean---It was the only scan report we did not get back scan day. Amen to that!
We are enjoying time at Faye and Murray’s beach house in Florida with their kids and my parents. We are missing Jennifer’s part of the family. We fly home Saturday and will celebrate all our blessings with Tony’s family Sunday. It’s been nice to get away from our crazy schedule.
Love to you---God is good,
Laura
Oh, I can't believe I forgot to mention---Connor stopped wearing his hat this past Saturday!!! He is spiking up his hair on top with gel. It looks really cute! We'll try to get a new pic up soon.
Weston's next scans will be Thursday, Nov. 30---Please keep him in your prayers also. We are all looking forward to a Christmas ski trip with the 12 cousins all together and all HEALTHY!!!
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MONDAY UPDATE 2:20pm
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We are home from surgery---the port is out. They let us bring it home; kinda cool! Connor is doing fine and finally got to eat for the day. He's sore, of course, but it's nice to have it ALL over! His homebound teacher will come tomorrow, and then he will return to school Wednesday. Thursday evening we will leave for Robotics State Competition (Carson's team / Connor's a mentor) in Lubbock where we just might freeze! It's a big week---We are so grateful for all our blessings!
Tuesday, November 14, 2006 10:15 PM CST
WEDNESDAY UPDATE: SCANS ARE CLEAN!!
-----------------
Today is my brother, Jim’s, birthday. The boys and I met my parents out at the cemetery with a Reeses cake and celebrated right after school. Sandra rummaged up for me a Classic Café shirt that had a Coke bottle and a fish on it---It was my gift to my parents. Jim loved to fish and drink Coke--It just screamed, “Jim” to me! He would be 39 today---he was 28 when he went Home. How I miss him so! He would very much love to see my boys participating in robotics as he was so mechanical himself. I’m sure he would teach them a bit about basketball, too. He would probably have some children himself and they would be with ours every Beach Week and on the holidays---running around with the rest of them. Sometimes I wonder if he, too, would have had a bunch of boys, or would he be the one with mostly girls? It was nice to focus on him today. My boys want to know which island near the Houston Ship Channel was the one where Jim and his friends had set up with hammocks and actually spent the night! What an awesome guy!
SEVERAL PRAYER REQUESTS:
I want to ask you all to pray about Connor’s next scans---they are tomorrow, Wednesday, pretty much all day long. He’ll have three kinds of scans and a doctor’s visit. We are certainly praying for and expecting “clean” reports. I’ll add on when we know---I expect word tomorrow, or at least the next day.
Weston’s scans will be at the end of the month. Faye is doing fine and is quite recouped and active again. Her biggest complaint is she believes the medicine makes her hands and especially her feet hurt.
Kathy’s services were beautiful. As I watched a video scrolling many pictures of her with her children, I was grasped by an overwhelming feeling of, “It’s not fair!” I’m sure even God would agree. I just couldn’t get enough of her photos---I probably watched it repeat for an hour and a half. Some friends and I gathered before the Celebration of Life and put together her “Love Tree”. We actually had two extra hearts, so we let Rachel (Kathy’s 10 year old daughter) and her cousin write on and hang the last two. They were thrilled! The tree was lovely and the lady in charge asked us to place it by the sign in book. It did us all some good to DO something special to honor such a fine friend. Last night while reading from "Having a Mary Spirit", the words, "For God never withholds good except when He has something better to give," brought me comfort.
Please pray for Lindsay---a friend or ours’ daughter. She was in a car wreck this weekend and is in need of prayer. I send up praises for our friend Tanner! The knots in his neck were NOT a return of lymphoma. They were not cancerous at all, and he is fine. Kyle’s report, however, was not what they wanted to hear. His osteosarcoma has now shown up in his hip---bummer big time. Pray for him as he returns into treatment---He knows the promises of the Lord, and God will certainly see him through. I’ve kinda learned to not even worry myself with the WHY question anymore.
God bless you all, and thank you for your continuing concern,
Laura
*Check out "View Photos" to see Robotics in action!
Tuesday, November 7, 2006 9:58 PM CST
I am home from Nashville---Faye is doing fine and came home today. Thank you so much for your prayers. We are a bit disappointed because when the doctors got the scope into her heart to make their measurements of the hole, they found at least three holes. They decided this procedure was not the correct one for Faye at this time. They chose to do nothing and continue her on blood thinners for now while considering other options. This is not necessarily bad; it just isn't what we expected. We are reminding ourselves that her heart is the SAME as it has always been---and it is strong! It was the clot that caused the problem. When God closes a door, He always opens a window!
My dear friend, Kathy, whom I love, went to be with Jesus last night. Please continue to pray for her husband, children, and sister---They will need God to gently and lovingly hold them for a long, long while. This is where the faith part gets so hard. In no way can I understand----I think that’s why the Bible tells us to lean not on our own understanding. In His miraculous and mysterious way, I know His every promise of healing has now been fulfilled---but how I desired for it to be done here on Earth. What a fine, beautiful woman who always let her Christian light shine!
I have not told my children as of yet---Just don’t have the heart. Before I left for Nashville, I asked each of our boys to paint a wooden heart for her. We will be making her a “Love Tree”. They each did a beautiful job---How I love it when they show God’s love to others. They have been shown the most awesome examples of His love through YOUR caring kindness throughout our journey---a heartfelt thank you!
Connor actually asked me about tennis today! Marching band will probably be over this week, and last week they took a break from practice---I think Connor actually got bored being home so much. Next week we’ll hopefully try a couple tennis lessons (of course we'll make sure we still have time for his awesome lap top)! What a miracle boy! We did take last Friday afternoon to attempt blowing up their jack-o-lanterns! Chandler had the great idea---we put firecrackers in the nose and eyes and let them blow! We even tried twisting several together and dropping them inside---We had a real "blast"! We were not really successful blowing off the faces, so we finally let Carson throw one out his second story window! What fun!
Thanks again for all your prayers,
Laura
Wednesday, November 1, 2006 9:44 PM CST
Connor is doing fabulous---I think he’s rather handsome, too! His hair is officially looking military, which is super short, but it looks like real hair! Sunday, I gave him a trim around the sideburns and neck just to give it definition and a specific edge. He wore a sign around his neck as his Halloween costume. It read, “FUTURE DRIVER---How scary is that?” I thought it was quite clever! What a cute kid!
Our weekend was wonderful! Connor’s band placed 7th out of 26 bands at competition, and Carson’s Robotics team, whom Connor helped mentor, got 2nd place BEST award out of 23 teams. This earned them the opportunity to go to STATE in Lubbock the first weekend in Dec.!!! They are the only junior high team going from our region---the rest are all high schools. Way to go WIRED!!
I ask you all to pray for my sister, Faye, in Nashville. She will have a surgical procedure on her heart Monday, Nov. 6, around 1:00pm. Several months ago after severe vertigo and what they believe was a tiny stroke, doctors found she has a hole in her heart (between ventricles) which has probably been there since birth---actually normal for a baby in utero. The surgeon will go through the vein in her groin and implant a tiny umbrella shaped device closing the hole. Skin or muscle will eventually grow over it. She is supposed to stay only one overnight in the hospital---amazing! Mom, Jennifer, and I will all travel to be with her. Please pray for her to have God’s peace. Also, pray for her safety in surgery and for God’s hands to be in the surgeon’s. Pray she will be fine and able to go home the next day with the problem completely solved.
Continue to pray for my precious friend Kathy and her family, young Kyle and Tanner, and sweet Emily. Our God is the God of miracles! Praises continue for Caroline, Micah, Baby Carson, Weston, and Connor!
Love to you,
Laura
Saturday, October 28, 2006 1:06 PM CDT
Guess who needs a hair cut? Yes, Connor. He is definitely starting to fill out. He needs a trim around the edges to make the hair look more defined. Even the kids at school have asked when is going to stop wearing the hat. It has been good to see him at the dinner table without a hat. Laura even had a hard time finding him at the football game halftime last night - he marched in his band hat instead of his ball cap. That might seem like a small thing, but it was actually a big step becasue he had to uncover in front of his peers to change the hats - quite a big step!
Well, today is a busy day. Carson has robotics competition in Galena Park, soccer in Sugarland, then returns to Galena Park for robotics. Connor had to be at Clear Lake at 5:30 am (yes AM!) for band practice, competition in Galena Park at 9:15, helping the intermediate school at robotics, and maybe band competion final tonight. Chandler had football practice this morning (playoffs start next week). I've got to figure out how to squeeze in about 4 hours of work somewhere as well - hope the blackberry battery holds up. We are all off to Halloween party this evening (maybe, if band finishes up in time). Laura and I might try to dress up as taxi drivers.
Monday, October 23, 2006 9:36 AM CDT
My heart is heavy today---The need for prayer is great.
I finally got through to Kathy’s sister yesterday for just a couple minutes. She needs a miracle. Things have spread. I fully believe God can provide a miracle that would show the world it is strictly by His grace!
There are more prayer requests I found out about this weekend, both teenage boys whom we were in treatment with three years ago---
-Kyle---15---has osteosarcoma (bone cancer). New scans show “activity” in his hip. They will have further scans this week. Please pray it will NOT be of concern and certainly NOT a return of cancer ---I pick the “disappear” prayer.
-Tanner---16---non-Hodgkin’s lymphoma. He had a bone marrow transplant (I think maybe his own cells) 3 years ago for relapse. I believe they were our FIRST hospital friends. He’s a big soccer player, which brings an extra interest because of Carson’s soccer. He has two lumps in his neck that have recently grown. October 30, surgeons will remove and then test them. Pray they are NOT cancerous.
Pray God’s mercy, compassion, and peace that passes all understanding upon each of these families! Cancer is certainly a disease that affects the whole family. Last week was a day of praises; today is a day of prayer requests. That’s just how it is in the cancer world---just as with many of our other struggles in life.
Praise the Lord Connor and Weston are doing so great,
Laura
********Emily's Golf Tournament is this Saturday, October 28, in Freeport. If you're interested in playing or donating, let me know! Carson's (Connor's old) Robotics team---WIRED---from Westbrook Intermediate school raised $252.50 to sponsor her. She has osteosarcoma and has a prosthetic leg---Guess who grows up to create the moving parts in those legs?---ROBOTIC ENGINEERS!!!! We were the perfect sponsor for her! I'm so proud of those kids---That was a lot of 50cent popcorn they sold in two days!
Thursday, October 19, 2006 9:52 PM CDT
Dear family and friends,
I have an urgent prayer request for a very dear teacher friend of mine---Kathy McDaniel. All I know is her sister, Gretchen, is at the hospital with Kathy. She called for prayers asking for MIRACULOUS HEALING!!!! I do not know any more than that. I'm not sure if they are in the hospital near Dallas (where she lives), or in Oklahoma (where she has been undergoing treatment for metastatic colon cancer). But one thing I do know is: Our GOD is bigger and more powerful than any medical emergency!
Please pray for the compassionate healing touch of Jesus upon my sweet friend, Kathy. She has been fighting this for three years and is the mother of a 5th grade girl, Rachel, and a 1st? grade boy, Matthew. Her husband's name is Patrick. They, along with sister Gretchen, will all need your prayers;---for it is only through the strength of the Lord that we get through some of our most difficult days. At the beginning of her cancer journey, Kathy asked me to pray for her and her family to have JOY. Let's add that to our prayer for them.
Thank you for believing in the power prayer,
Laura
Monday, October 16, 2006 11:13 PM CDT
We continue to ROCK-ON!!! All is going well with Connor. He just seems to feel better than he did at the beginning of the school year. He still wheezes from time to time, but he does his inhaler and it seems to be in control. His hair is getting thicker, but it’s still very short (too short for his liking) and quite fuzzy looking. Thankfully, he doesn’t seem to be nearly as exhausted after band practice anymore!
Mostly, I want to give a praise report!
-Connor and Weston are doing great---Thank you, Jesus!
-Caroline is fabulous and just had her 13th birthday! She is HOME, way past her 100 days of critical watch, 100 percent donor cells, and being able to eat! I just read she is having some skin issues--probably graft vs. host disease which is expected, so pray it stays controlable.
-Micah is rockin’ on, too. He’s past 50 of the 100 days, so still in Houston, but not inpatient and doing wonderfully! He’s had several weekends at home, and most importantly---He, too, is 100 percent donor cells! He will soon have some chemo into his spine, and skin radiation (he had several metastases to the skin) all for preventative measures.
-Baby Carson continues to strengthen and is now crawling all over the house! He continues chemo for leukemia, but has not had any hospital stays since he went home.
-Emily will begin her new chemo regime I believe Friday, and I pray this will be the LAST year of it---the one that gets it GONE! It will be a combination of MT-PPE and Gemcitibine. She and her mom leave Tuesday for L.A. as she will be on the Gilmore Girls Wednesday. She is also having a benefit golf tournament on Sept. 28. They could sure use your support! 8:00 or 8:30 am start in Freeport, TX. If you’re interested in playing or donating, email me, and I’ll get you the information.
A few weeks ago, I was talking with a high school friend. She asked if I had always been so involved in church. I replied that I used to do more---teach VBS, Sunday school, etc. But as I spoke, I realized that’s probably not what she’s really asking. So, I continued with...But I have never SOUGHT God like this before. There’s just something about being helpless for your child, desperate to KNOW and SEE that Almighty God is present and actively working in your specific situation---that He will make it all GOOD. As I’ve thought more about it, I know---God has not changed, I have. He has always been there and active in my life, I just wasn’t looking so desperately for Him. Now, I NEED Him---to carry the load that is far too heavy, to give me renewed HOPE, to know that someone far greater than me or any human is “in control”---the One who is LOVE Himself. It helps me so much that I don’t have to earn his compassion and mercy; for that is just who He is. That is why it is called “Amazing Grace”.
I have cried out to my God, and He continuously answers my call.
He is the One writing Connor’s story---I’m just the recorder. I couldn’t come up with swans and trains of ducks, an independent teenager duck, the whisper of “Trust me, trust me”, and rays of Sonshine and love particularly placed in a sideview mirror!---That, dear ones, is GOD!
Keep the prayers going---How He loves to hear from you!
We will scan again on Nov. 15. Weston will scan somewhere around that time also. If all is clear, they’ll schedule to surgically take out Connor’s port. Amen to that!
Laura
Monday, October 9, 2006 9:28 PM CDT
Wow, Wow, and Wow!!! Thank you, Thank you, Thank you!!! What an awesome golf tournament, dinner, auction, and raffle! We all had a wonderful time, Connor’s long term wish came true, and I believe Tony had a wonderfully overwhelming birthday! Jimbo, Andy, Jeff, and all other helpers, you deserve a gold star! We can not thank all of you enough for your hard work, attendance, cooking, raffle / auction donations, and ENORMOUS GENEROSITY! Your kindness blew us out of the water!
Connor had a blast putting on the greens and DRIVING a golf cart for the first time with his buddy Ryan all day! Grandpa is quite worried about when Connor gets his real driving permit, but what fun for 14 year old boys!
To the anonymous donor of the lap top computer, I want you to know that you completely surprised us all when you brought his long term wish to a reality!! Connor has asked for a lap top computer every Christmas since he was nine. It all started with a commercial that showed someone taking a lap top on an airplane---That’s the only reason he could come up with why he “needed” one. Of course, we replied with, “Where are you going, and who’s buying your ticket?” He’s asked for one ever since. What a complete THRILL for him that YOU made it happen!!!! Thank you so much!
Carol and Mark, thanks for the awesome jet ski rental day that you so kindly outbid me on, only to hand it over for an additional thrill for Connor. What a gift!
ALL OF YOU took a boy who has endured so very much and made him feel like the LUCKIEST BOY IN THE WORLD!!!
Our hearts overflow with gratitude,
Tony, Laura, Connor, Carson, and Chandler
Thursday, October 5, 2006 8:29 AM CDT
The Clear Lake Falcon Band will be featured on Channel 2 Morning News Friday. Channel 2 will air from 5:00 through 7:00am tomorrow throughout the morning as well as 10:15pm tomorrow night. They will also show snippets (previews) throughout their news shows this evening. I’m sure it will just be the local Houston news. Connor had to get up at 5:15am this morning for filming before school. I don’t have a clue if he’ll make the TV screen or not, but know he is in the group---all wearing navy shirts, trumpet section, the only one wearing a brown hat.
He’s pretty much been making it to everything and marching every Friday night---Their band even does a few disco moves in their program which makes it very entertaining! The football team is undefeated so far, 5 – 0, which adds to the excitement. We went to the high school robotics meeting last week and it sounds SO awesome and SO time consuming---definitely a step up from their junior high competition. As a freshman, he will compete in Botball and then assist the upperclassmen with their FIRST (name of competition) robot. This will all take place in January / February / March, so at least marching season will be over. For now, Connor is mentoring with Carson’s junior high robotics team. They actually get to work with NASA volunteer mentors! Robotics is probably the biggest school highlight for Connor---He loves it! How fortunate we are to live in a district where it is offered.
Connor took his hat off the other night and Tony and I were both surprised to see hair from a distance! He kinda looks like a military guy who just received his super short buzz. It definitely has some brown color and is way too short to tell if it will curl.
We look forward to the golf tournament this Saturday which is also Tony’s birthday! There will be an evening BBQ and silent auction Saturday evening after they finish the tournament for golfers and NON-GOLFERS ( Tony guestimates around 6:30pm). They also need helpers---CONTACT: jameschambers@hp.com. Please, come join us!!!
Here's a note from the head of the golf tournament:
All,
First, I would like to thank you all for the great response and your charity to this GREAT cause and fun Annual Golf Scramble and fund-raiser. It has shaped up to be a hopefully very successful fund raiser as well as a wonderful time for all involved.
Notes to Golfers:
Registration for the tournament will be 12:30 - 1:30 PM. With us only excepting Cash or Check for Golf Play (preferably cash). Please be prompt We have a 2:00 PM SHOTGUN Start!
$85.00 includes:
Your Scramble Golf
Beverages during tourney (Beer, Gatorade and B. Water)
Driving Range
Goody Bag
Golf course professional services
BBQ served after tourney at the Pavilion
$5.00 for TWO individual Mulligans and a Raffle ticket
$20.00 per Team ($5.00 ea.) for the Tiger Hole (a par 5 that you will be hitting 1st shot at 150 yds.) and a Raffle ticket
Awards Include:
Champion Winners Team (Team will be placed on our tournaments returning trophy)
1st, 2nd and 3rd Place Recognition (each player will receive a Medallion)
Closest to the Pin Trophy
Longest Drive Trophy
We will be playing Bogey is your friend. (No score higher than a bogie should be recorded and each group, once that score is reached, picks up and moves to the NEXT hole.)
Additional Raffle tickets can be purchased anytime before the raffle pull.
***There will be a Group Gathering from 7:00 till 10:00 ish for:
The serving of the food
Special Presentation to Connor
Silent Auction Items (So bring your check books)
Raffle items pull
Award recognitions
Fund - Raiser Presentation to Connor and Muscat Family
AND just an all out goodtime of visiting for all!!!
Location:
Oct. 7th 2:00 Shot Gun
Magnolia Creek Golf Course – League City
1501 West Bay Area Blvd. League City, TX 77573
281.557.0555
Directions
Coming from the North
Take Interstate 45 south to FM 518 in League City. Head west on 518.
Travel two miles until you reach Bay Area Blvd.
Take a left at Bay Area Blvd.
Travel one mile and you will see the course on the left.
Coming from the South
Take Interstate 45 north to FM 518 in League City. Head west on 518.
Travel two miles until you reach Bay Area Blvd.
Take a left at Bay Area Blvd.
Travel one mile and you will see the course on the left.
http://www.magnoliacreekgolf.com
Jimbo
Tuesday, October 3, 2006 1:24 PM CDT
Well, we had a fabulous weekend----definitely emotionally lightened by the wonderful scan report with the three lung spots disappearing!!! While Connor and I were driving in to MDAnderson Friday morning and had just turned onto Holcombe Blvd. approaching the Medical Center, I noticed out my side mirror a sky filled with God's Love---You know when you can see the beautiful, individual sun rays displayed across the sky? I always tell my children that is when we SEE God's love pouring onto Earth. Interestingly, I could not see it out my rear view mirror, just my side mirror. I think God meant it personally for me---to remind me of HOPE in Him and that He is always, always beside us!
We want to thank each of you so VERY much for participating in the walk, donating, and/or attending our party!!! A special thanks to my sisters and some of Connor's cousins who flew in just to be here for us. Even if you couldn't make it, we are so thankful for the wonderful support system you have been. We could not have made it without all your help and prayers. You have been our warriors---God's Army / Connor's Bold Navy---with us every step of the way to do what you can to assist in carrying the load! The Walk for Kids raised over $10,000 for families facing childhood cancer---WOW!!! I expect it will be split between MDAnderson and TX Children's Hospital.
We look forward to the golf tournament this Saturday which is also Tony’s birthday! There will be an evening BBQ and silent auction Saturday evening after they finish the tournament for golfers and NON-GOLFERS. Tony guestimates 6:30pm. They also need helpers---contact: jameschambers@hp.com. Please, come join us!!!
Saturday, October 7th, 2006
Time: Shot Gun Start 2:00 p.m. (golfers, please arrive early)
Where: Magnolia Creek Golf Course
1501 West Bay Area Blvd
League City, Texas 77573
Phone – 281-557-0555
I want to encourage you all to take your whole family to see the new movie “FACING THE GIANTS”. It is wonderful! It is the only movie I recall the entire audience applauding at the end as if it were a live performance! The whole idea of the movie is: Nothing is Impossible with God!!! It’s a football movie, with a touch of soccer (of course Carson thinks that should be flipped). But it is SO MUCH MORE!! It has something for everyone---young, old, male, female. My children and my mother all loved it, too. I laughed, cried, and was so inspired. I want to go back as a family, so Tony can see it. The movie VERY much parallels with our personal journey even though it has nothing to do with cancer. It is about when EVERYTHING seems to be going against you, believe and give it all that you have---NEVER GIVE UP! It’s about teamwork, relationship, fear of failure, respect, loss, victory, supporting others, and making the TEAM---so many lessons I want each of my children to learn (as well as myself) all demonstrated in a wonderful movie! I would be disappointed if any of you missed it, so get your family and GO!
I heard it may only be at Cinemark in Webster through Thursday. We're trying to get the whole Sharks football team w/ families to go Wednesday evening at 6:45pm so they and my husband don't miss it! Hopefully it will be at other cinemas for a while. Check the website for locations---facingthegiants.com.
Enjoying our freedom from worry,
Laura
Friday, September 29, 2006 6:51 AM CDT
Well, today we find out if the three spots in Connor’s lungs are of any concern. It will be a long day---but I am feeling some peace. I actually slept well last night which has got to be by the Grace of God---It is quite typical to not sleep much the week before scans. God is good and gave me sleep. KSBJ’s radio tower was recently hit by lightning, so I’ve been listening to CD’s. I’ve taken comfort in an older song:
When your spirit gets too week,
When the water seems too deep,
When you think there’s just no way,
I’ll be there for you night and day.
When the mountain seems too steep,
When your spirit gets too week,
I’ll be there…
God will carry us today, tomorrow, and so forth…. We can do anything as long as we let Christ strengthen us! We are expecting a very celebratory weekend!!!
***********
12:30 UPDATE: Preliminary report: All 3 spots from the last scans are clear---disappeared and confirmed to not be disease. How Great is our God!!! We do have 1 more similar spot (new), but they are fairly confident all is well with it. We will follow-up in about 6 weeks and then schedule removing his port-a-cath.
Heartfelt thanks for all your prayers,
Laura and Tony
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September 30th will be the Candlelighters Cancer Walk for Kids in Seabrook at which Connor will be honored this year. Please plan on attending---Registration begins at 8:00am and opening ceremonies are at 9:00---it's pretty short---3K which is just shy of 2 miles. I expect everything to be over by 11:00. The location will be Meador Park / Miramar Park. (Go to mapquest.com - type in the intersection of N. Meyer Rd. and Hammer St. - Seabrook TX 77586. *Bayport Blvd. is the same thing as HWY 146) Our walking team is "Connor's Bold Navy" Feel free (or not) to take any Old Navy t-shirt and use a marker or paint pen to make your own team shirt by adding the missing team name letters! Candlelighters is an organization that provides support to families faced with childhood cancer. The walk is a fund raiser---feel free to collect, give a small family donation, or just come and support us with your attendance! Any checks should be made out to "Walk for Kids" and please put "Connor's Bold Navy" in the memo. I am thrilled that BOTH my sisters and a couple Tennessee cousins are flying in to be here! Sept. 30 is actually Jennifer's birthday!
***That evening, Sept. 30,*** Around 6:00, we'll have a gathering at our home to celebrate and thank you for your support throughout this whole ordeal.---We SO appreciate all the prayers, dinners, gifts, cards, rides and care for our younger boys, etc, etc! Bring the kids and any dish to share. The more the merrier! Pass on our web address to anyone you believe would be interested. We don't even know who all has been following Connor's progress. Wouldn't this be an awesome time to surprise us? You are all invited---the blessings have been many!
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3rd Annual PHS and Friends Charity Golf Classic Benefitting Connor Muscat
When: Saturday, October 7th, 2006
Time: Shot Gun Start 2:00 p.m. (Please arrive early)
Where: Magnolia Creek Golf Course
1501 West Bay Area Blvd
League City, Texas 77573
Phone – 281-557-0555
Entry Fee: $85.00 per person or $340.00 per team
Includes: ALL BEVERAGES (beer, sport drinks and bottled water), green fee, carts, driving range, contest holes, net scoring and Trophies for 1st, 2nd and 3rd place recognition.
Golfers:
We are only 2 weeks out and I need to solidify our scramble teams. I need to communicate the teams to the Golf Course by Friday the 29th. So please reply ASAP with your availability!
Highlights:
• Deadline for team registration is Friday Sept. 29th (Please!!) Also bring cash as payment method for the tournament!
• Awards will be given for 1st, 2nd and 3rd Place team finishes with winning team being added to Traveling Trophy that returns each year. Closest to the Pin and Longest Drive Champion recognition.
• Tiger Hole option for teams at $20.00 per team. (100oing to Fundraiser)
• Golf goodie bags and raffle tickets for drawing after Tournament.
Non-Golfers: (Party in the Pavilion)
Anyone who is not playing in the tournament can show up a little before dark (as we come in) and be a part of the After Tournament Fun at the Pavilion. We will have eats and a cash bar provided by the club house (they will accept Credit Cards since this is not part of the fundraiser), as well as cake for TONY’S BIRTHDAY!
We will be having a raffle pull and Silent Auction items for the fundraiser. Please bring Cash or Check for Auction Items. Checks are to be made out to PHS&F (Checking account has been setup for this event).
Things are starting to come together to make this a great time and a successful fundraising event! Please try to attend. You do not have to play Golf to be a part of this event.
Contact: James.Chambers@hp.com
*****************************************
Hope to see you all the next two weekends,
Laura
Wednesday, September 27, 2006 9:43 AM CDT
****** The official start time for the golf tournament is 2:00pm!!! I think it originally was scheduled earlier. They request you come early to get everything situated. ******
We are doing fine---feeling lifted up through all your prayers. Friday around 9:00am will be Connor's CT scan followed by chest x-ray. Our appointment with the doctor to get results is scheduled for 11:00am. I'm assuming he won't call us back to meet with him until he has the report, so it may be a little later. Please keep us in your prayers---God is with us!
I believe all my kids made it to "See You at the Pole" this morning! What a neat day!
Love,
Laura
******************************************
September 30th will be the Candlelighters Cancer Walk for Kids in Seabrook at which Connor will be honored this year. Please plan on attending---Registration begins at 8:00am and opening ceremonies are at 9:00---it's pretty short---3K which is just shy of 2 miles. I expect everything to be over by 11:00. The location will be Meador Park / Miramar Park. (Go to mapquest.com - type in the intersection of N. Meyer Rd. and Hammer St. - Seabrook TX 77586. *Bayport Blvd. is the same thing as HWY 146) Our walking team is "Connor's Bold Navy" Feel free (or not) to take any Old Navy t-shirt and use a marker or paint pen to make your own team shirt by adding the missing team name letters! Candlelighters is an organization that provides support to families faced with childhood cancer. The walk is a fund raiser---feel free to collect, give a small family donation, or just come and support us with your attendance! Any checks should be made out to "Walk for Kids" and please put "Connor's Bold Navy" in the memo. I am thrilled that BOTH my sisters and a couple Tennessee cousins are flying in to be here! Sept. 30 is actually Jennifer's birthday!
***That evening, Sept. 30,*** Around 6:00, we'll have a gathering at our home to celebrate and thank you for your support throughout this whole ordeal.---We SO appreciate all the prayers, dinners, gifts, cards, rides and care for our younger boys, etc, etc! Bring the kids and any dish to share. The more the merrier! Pass on our web address to anyone you believe would be interested. We don't even know who all has been following Connor's progress. Wouldn't this be an awesome time to surprise us? You are all invited---the blessings have been many!
*****************************************
3rd Annual PHS and Friends Charity Golf Classic Benefitting Connor Muscat
When: Saturday, October 7th, 2006
Time: Shot Gun Start 2:00 p.m. (Please arrive early)
Where: Magnolia Creek Golf Course
1501 West Bay Area Blvd
League City, Texas 77573
Phone – 281-557-0555
Entry Fee: $85.00 per person or $340.00 per team
Includes: ALL BEVERAGES (beer, sport drinks and bottled water), green fee, carts, driving range, contest holes, net scoring and Trophies for 1st, 2nd and 3rd place recognition.
Golfers:
We are only 2 weeks out and I need to solidify our scramble teams. I need to communicate the teams to the Golf Course by Friday the 29th. So please reply ASAP with your availability!
Highlights:
• Deadline for team registration is Friday Sept. 29th (Please!!) Also bring cash as payment method for the tournament!
• Awards will be given for 1st, 2nd and 3rd Place team finishes with winning team being added to Traveling Trophy that returns each year. Closest to the Pin and Longest Drive Champion recognition.
• Tiger Hole option for teams at $20.00 per team. (100oing to Fundraiser)
• Golf goodie bags and raffle tickets for drawing after Tournament.
Non-Golfers: (Party in the Pavilion)
Anyone who is not playing in the tournament can show up a little before dark (as we come in) and be a part of the After Tournament Fun at the Pavilion. We will have eats and a cash bar provided by the club house (they will accept Credit Cards since this is not part of the fundraiser), as well as cake for TONY’S BIRTHDAY!
We will be having a raffle pull and Silent Auction items for the fundraiser. Please bring Cash or Check for Auction Items. Checks are to be made out to PHS&F (Checking account has been setup for this event).
Things are starting to come together to make this a great time and a successful fundraising event! Please try to attend. You do not have to play Golf to be a part of this event.
Contact: James.Chambers@hp.com
*****************************************
Hope to see you all the next two weekends,
Laura
Monday, September 25, 2006 8:48 AM CDT
I feel so much better today! Thank you for praying for us---I can feel the difference in my spirit!
Love to you,
Laura
******************************************
September 30th will be the Candlelighters Cancer Walk for Kids in Seabrook at which Connor will be honored this year. Please plan on attending---Registration begins at 8:00am and opening ceremonies are at 9:00---it's pretty short---3K which is just shy of 2 miles. I expect everything to be over by 11:00. The location will be Meador Park / Miramar Park. (Go to mapquest.com - type in the intersection of N. Meyer Rd. and Hammer St. - Seabrook TX 77586. *Bayport Blvd. is the same thing as HWY 146) Our walking team is "Connor's Bold Navy" Feel free (or not) to take any Old Navy t-shirt and use a marker or paint pen to make your own team shirt by adding the missing team name letters! Candlelighters is an organization that provides support to families faced with childhood cancer. The walk is a fund raiser---feel free to collect, give a small family donation, or just come and support us with your attendance! Any checks should be made out to "Walk for Kids" and please put "Connor's Bold Navy" in the memo. I am thrilled that BOTH my sisters and a couple Tennessee cousins are flying in to be here! Sept. 30 is actually Jennifer's birthday!
***That evening, Sept. 30,*** Around 6:00, we'll have a gathering at our home to celebrate and thank you for your support throughout this whole ordeal.---We SO appreciate all the prayers, dinners, gifts, cards, rides and care for our younger boys, etc, etc! Bring the kids and any dish to share. The more the merrier! Pass on our web address to anyone you believe would be interested. We don't even know who all has been following Connor's progress. Wouldn't this be an awesome time to surprise us? You are all invited---the blessings have been many!
*****************************************
3rd Annual PHS and Friends Charity Golf Classic Benefitting Connor Muscat
When: Saturday, October 7th, 2006
Time: Shot Gun Start 2:00 p.m. (Please arrive early)
Where: Magnolia Creek Golf Course
1501 West Bay Area Blvd
League City, Texas 77573
Phone – 281-557-0555
Entry Fee: $85.00 per person or $340.00 per team
Includes: ALL BEVERAGES (beer, sport drinks and bottled water), green fee, carts, driving range, contest holes, net scoring and Trophies for 1st, 2nd and 3rd place recognition.
Golfers:
We are only 2 weeks out and I need to solidify our scramble teams. I need to communicate the teams to the Golf Course by Friday the 29th. So please reply ASAP with your availability!
Highlights:
• Deadline for team registration is Friday Sept. 29th (Please!!) Also bring cash as payment method for the tournament!
• Awards will be given for 1st, 2nd and 3rd Place team finishes with winning team being added to Traveling Trophy that returns each year. Closest to the Pin and Longest Drive Champion recognition.
• Tiger Hole option for teams at $20.00 per team. (100oing to Fundraiser)
• Golf goodie bags and raffle tickets for drawing after Tournament.
Non-Golfers: (Party in the Pavilion)
Anyone who is not playing in the tournament can show up a little before dark (as we come in) and be a part of the After Tournament Fun at the Pavilion. We will have eats and a cash bar provided by the club house (they will accept Credit Cards since this is not part of the fundraiser), as well as cake for TONY’S BIRTHDAY!
We will be having a raffle pull and Silent Auction items for the fundraiser. Please bring Cash or Check for Auction Items. Checks are to be made out to PHS&F (Checking account has been setup for this event).
Things are starting to come together to make this a great time and a successful fundraising event! Please try to attend. You do not have to play Golf to be a part of this event.
Contact: James.Chambers@hp.com
*****************************************
Hope to see you all the next two weekends,
Laura
Sunday, September 24, 2006 2:56 PM CDT
This Sunday I find myself very weepy. I know it’s the weight of Friday’s scans. Sundays are often emotional for me. I think church offers me “time”-a whole hour- to sit before the throne and pour my heart out to the Lord. In a way, I actually slow down and think about my issues without the interruptions of busy daily life. On one hand, I’m confident the spots were just congestion, but on the other, I’m so scared. I’m dying to know the results of the scans, but then I don’t even want to know. I know God will never leave us, but I’m so tired of being in the valley. I keep repeating to myself---“I’m just so tired.” I think the fighting to be so strong for so long has worn me down. I sometimes wonder how I put one foot in front of the other --- It is God who gives me strength to get through the days---trust me, I don’t have anything left.
Please pray for our strength this week. Pray we will see, feel, and know God’s presence as we continue to wait. Pray the Holy Spirit to replenish my faith, hope, and joy. Ask God to bless Connor’s week with lots of fun and friends. I just love him so much.
I’ll share with you a story from one of kid’s web pages whom Jennifer met at their hospital, and we both follow his progress. His name is Riley. I believe he is eight. He went through bone marrow transplant a year or so ago for Leukemia. He is doing fine with NO cancer, but struggles with smaller health issues from the transplant. The journal reads: “The road to recovery is harder for me as a mom than the crisis times. When you are stuck in the middle and it drags on for such a long time it can be a weary road. I know how many, many of you are prayer warriors out there and it is felt, believe me!
My attitude changed and perspectives when I went to the hospital yesterday to visit Angelina and so many were there that we know. Especially a 14 year old boys' dad whom I wrote about in May. He was the one holding the white balloon for his son that just passed 2 weeks before that... and not wanting it to go up in the air with all of the others. He is the one who held me tight yesterday and reminded me to not give up and that Riley is going to make it. As my other son turns 14 tomorrow I will think of his boy who I knew with his huge smile for me everytime we talked....and of his dad who wore his shirt that day which said, ’My son is my hero...never give up.’"
This story brings fond memories of our friends: Neil, Aviva, Dakota, John, Kelly, Ann, and many others whom have blessed our road. Please pray for their families---that they may have light in their days.
Thank you for praying,
Laura
******************************************
September 30th will be the Candlelighters Cancer Walk for Kids in Seabrook at which Connor will be honored this year. Please plan on attending---Registration begins at 8:00am and opening ceremonies are at 9:00---it's pretty short. I expect everything to be over by 11:00. The location will be Meador Park / Miramar Park. (Go to mapquest.com - type in the intersection of N. Meyer Rd. and Hammer St. - Seabrook TX 77586. *Bayport Blvd. is the same thing as HWY 146) Our walking team is "Connor's Bold Navy" Feel free (or not) to take any Old Navy t-shirt and use a marker or paint pen to make your own team shirt by adding the missing team name letters! Candlelighters is an organization that provides support to families faced with childhood cancer. The walk is a fund raiser---feel free to collect, give a small family donation, or just come and support us with your attendance! Any checks should be made out to "Walk for Kids" and please put "Connor's Bold Navy" in the memo. I am thrilled that BOTH my sisters and a couple Tennessee cousins are flying in to be here! Sept. 30 is actually Jennifer's birthday!
***That evening, Sept. 30,*** Around 6:00, we'll have a gathering at our home to celebrate and thank you for your support throughout this whole ordeal.---We SO appreciate all the prayers, dinners, gifts, cards, rides and care for our younger boys, etc, etc! Bring the kids and any dish to share. The more the merrier! Pass on our web address to anyone you believe would be interested. We don't even know who all has been following Connor's progress. Wouldn't this be an awesome time to surprise us? You are all invited---the blessings have been many!
*****************************************
3rd Annual PHS and Friends Charity Golf Classic Benefitting Connor Muscat
When: Saturday, October 7th, 2006
Time: Shot Gun Start 2:00 p.m. (Please arrive early)
Where: Magnolia Creek Golf Course
1501 West Bay Area Blvd
League City, Texas 77573
Phone – 281-557-0555
Entry Fee: $85.00 per person or $340.00 per team
Includes: ALL BEVERAGES (beer, sport drinks and bottled water), green fee, carts, driving range, contest holes, net scoring and Trophies for 1st, 2nd and 3rd place recognition.
Golfers:
We are only 2 weeks out and I need to solidify our scramble teams. I need to communicate the teams to the Golf Course by Friday the 29th. So please reply ASAP with your availability!
Highlights:
• Deadline for team registration is Friday Sept. 29th (Please!!) Also bring cash as payment method for the tournament!
• Awards will be given for 1st, 2nd and 3rd Place team finishes with winning team being added to Traveling Trophy that returns each year. Closest to the Pin and Longest Drive Champion recognition.
• Tiger Hole option for teams at $20.00 per team. (100oing to Fundraiser)
• Golf goodie bags and raffle tickets for drawing after Tournament.
Non-Golfers: (Party in the Pavilion)
Anyone who is not playing in the tournament can show up a little before dark (as we come in) and be a part of the After Tournament Fun at the Pavilion. We will have eats and a cash bar provided by the club house (they will accept Credit Cards since this is not part of the fundraiser), as well as cake for TONY’S BIRTHDAY!
We will be having a raffle pull and Silent Auction items for the fundraiser. Please bring Cash or Check for Auction Items. Checks are to be made out to PHS&F (Checking account has been setup for this event).
Things are starting to come together to make this a great time and a successful fundraising event! Please try to attend. You do not have to play Golf to be a part of this event.
Contact: James.Chambers@hp.com
*****************************************
Hope to see you all the next two weekends,
Laura
Thursday, September 21, 2006 9:56 PM CDT
I want to get the information out again about the party, cancer walk, and golf tournament (Sept. 29 registration deadline--We need to clarify start time--BBQ dinner and silent auction for NON-GOLFERS and golfers). Please feel free to spread the word!
Connor is doing fine and adjusting to the early school mornings, as am I. He seems to be getting peachier on top. There is some color beginning to come in which is the brownish color his hair was last time---all bets on red this time are off! His eyelashes and eyebrows are coming in, too! It’s amazing how much difference they make. Connor acts like it’s no big deal, but it is very exciting to me!
Today, the thought of scans popped in my mind no less than a hundred times---It seems like they always do about a week beforehand. Please keep praying for “clean” reports next week! I have requested the CT scan and doctor appt. be changed from Sept. 27 to Sept. 29 because Connor has a school holiday and won’t miss more school. We need the three spots in the lungs to be gone or at least stable and unchanged---I know God knows the desires of our hearts. It’s nice that we have the party coming up to keep me busy with household projects. Sometimes, as Tony likes to tease, “A mind is a terrible thing!!!” We are looking forward to celebrating clean scans with YOU Saturday (Sept. 30) for the evening---Hope you can come!
******************************************
September 30th will be the Candlelighters Cancer Walk for Kids in Seabrook at which Connor will be honored this year. Please plan on attending---Registration begins at 8:00am and opening ceremonies are at 9:00---it's pretty short. I expect everything to be over by 11:00. The location will be Meador Park / Miramar Park. (Go to mapquest.com - type in the intersection of N. Meyer Rd. and Hammer St. - Seabrook TX 77586. *Bayport Blvd. is the same thing as HWY 146) Our walking team is "Connor's Bold Navy" Feel free (or not) to take any Old Navy t-shirt and use a marker or paint pen to make your own team shirt by adding the missing team name letters! Candlelighters is an organization that provides support to families faced with childhood cancer. The walk is a fund raiser---feel free to collect, give a small family donation, or just come and support us with your attendance! Any checks should be made out to "Walk for Kids" and please put "Connor's Bold Navy" in the memo. I am thrilled that BOTH my sisters and a couple Tennessee cousins are flying in to be here! Sept. 30 is actually Jennifer's birthday!
***That evening, Sept. 30,*** Around 6:00, we'll have a gathering at our home to celebrate and thank you for your support throughout this whole ordeal.---We SO appreciate all the prayers, dinners, gifts, cards, rides and care for our younger boys, etc, etc! Bring the kids and any dish to share. The more the merrier! Pass on our web address to anyone you believe would be interested. We don't even know who all has been following Connor's progress. Wouldn't this be an awesome time to surprise us? You are all invited---the blessings have been many!
*****************************************
3rd Annual PHS and Friends Charity Golf Classic Benefitting Connor Muscat
When: Saturday, October 7th, 2006
Time: Shot Gun Start 2:00 p.m. (Please arrive early)
Where: Magnolia Creek Golf Course
1501 West Bay Area Blvd
League City, Texas 77573
Phone – 281-557-0555
Entry Fee: $85.00 per person or $340.00 per team
Includes: ALL BEVERAGES (beer, sport drinks and bottled water), green fee, carts, driving range, contest holes, net scoring and Trophies for 1st, 2nd and 3rd place recognition.
Golfers:
We are only 2 weeks out and I need to solidify our scramble teams. I need to communicate the teams to the Golf Course by Friday the 29th. So please reply ASAP with your availability!
Highlights:
• Deadline for team registration is Friday Sept. 29th (Please!!) Also bring cash as payment method for the tournament!
• Awards will be given for 1st, 2nd and 3rd Place team finishes with winning team being added to Traveling Trophy that returns each year. Closest to the Pin and Longest Drive Champion recognition.
• Tiger Hole option for teams at $20.00 per team. (100oing to Fundraiser)
• Golf goodie bags and raffle tickets for drawing after Tournament.
Non-Golfers: (Party in the Pavilion)
Anyone who is not playing in the tournament can show up a little before dark (as we come in) and be a part of the After Tournament Fun at the Pavilion. We will have eats and a cash bar provided by the club house (they will accept Credit Cards since this is not part of the fundraiser), as well as cake for TONY’S BIRTHDAY!
We will be having a raffle pull and Silent Auction items for the fundraiser. Please bring Cash or Check for Auction Items. Checks are to be made out to PHS&F (Checking account has been setup for this event).
Things are starting to come together to make this a great time and a successful fundraising event! Please try to attend. You do not have to play Golf to be a part of this event.
Contact: James.Chambers@hp.com
*****************************************
Hope to see you all the next two weekends,
Laura
Wednesday, September 20, 2006 11:52 AM CDT
The love a father has for his son is awe inspiring! How blessed I am to have such a heart-powerful husband. Ironically, we received this video today about an incredible bond between a father and son. Copy, paste, and let your heart be touched!
http://www.youtube.com/watch?v=D52rJd9GX10&mode=related&search=
The Strongest Dad in the World
[From Sports Illustrated, By Rick Reilly]
Eighty-five times, Dick Hoyt has pushed his disabled son, Rick, 26.2 miles in marathons. Eight times he's not only pushed him 26.2 miles in a wheelchair but also towed him 2.4 miles in a dinghy while swimming and pedaled him 112 miles in a seat on the handlebars--all in the same day.
Dick's also pulled him cross-country skiing, taken him on his back mountain climbing and once hauled him across the U.S. on a bike. Makes taking your son bowling look a little lame, right?
And what has Rick done for his father? Not much--except save his life.
This love story began in Winchester, Mass., 43 years ago, when Rick was strangled by the umbilical cord during birth, leaving him brain-damaged and unable to control his limbs. "He'll be a vegetable the rest of his life." Dick says doctors told him and his wife, Judy, when Rick was nine months old. "Put him in an institution."
But the Hoyt's weren't buying it. They noticed the way Rick's eyes followed them around the room. When Rick was 11 they took him to the engineering department at Tufts University and asked if there was anything to help the boy communicate. "No way," Dick says he was told. "There's nothing going on in his brain." "Tell him a joke," Dick countered. They did. Rick laughed. Turns out a lot was going on in his brain.
Rigged up with a computer that allowed him to control the cursor by touching a switch with the side of his head. Rick was finally able to communicate. First words? "Go Bruins!" And after a high school classmate was paralyzed in an accident and the school organized a charity run for him, Rick pecked out, "Dad, I want to do that." Yeah, right. How was Dick, a self-described "porker" who never ran more than a mile at a time, going to push his son five miles? Still, he tried. "Then it was me who was handicapped," Dick says. "I was sore for two weeks."
That day changed Rick's life. "Dad," he typed, "when we were running, it felt like I wasn't disabled anymore!" And that sentence changed Dick's life. He became obsessed with giving Rick that feeling as often as he could. He got into such hard-belly shape that he and Rick were ready to try the 1979 Boston Marathon. "No way," Dick was told by a race official. The Hoyt's weren't quite a single runner, and they weren't quite a wheelchair competitor. For a few years Dick and Rick just joined the massive field and ran anyway. Then they found a way to get into the race officially - in 1983 they ran another marathon so fast they made the qualifying time for Boston the following year.
Then somebody said, "Hey, Dick, why not a triathlon?" How's a guy who never learned to swim and hadn't ridden a bike since he was six going to haul his 110-pound kid through a triathlon? Still, Dick tried.
Now they've done 212 triathlons, including four grueling 15-hour Ironmans in Hawaii. It must be a buzzkill to be a 25-year-old stud getting passed by an old guy towing a grown man in a dinghy, don't you think?
Hey, Dick, why not see how you'd do on your own? "No way," he says. Dick does it purely for "the awesome feeling" he gets seeing Rick with a cantaloupe-sized smile as they run, swim and ride together.
This year, at ages 65 and 43, Dick and Rick finished their 24th Boston Marathon, in 5,083rd place out of more than 20,000 starters. Their best time - Two hours, 40 minutes in 1992--only 35 minutes off the world record, which, in case you don't keep track of these things, happens to be held by a guy who was not pushing another man in a wheelchair at the time.
"No question about it," Rick types. "My dad is the Father of the Century."
And Dick got something else out of all this too. Two years ago he had a mild heart attack during a race. Doctors found that one of his arteries was 95logged. "If you hadn't been in such great shape," one doctor told him, "you probably would've died 15 years ago." So, in a way, Dick and Rick saved each other's life.
Rick, who has his own apartment (he gets home care) and works in Boston, and Dick, retired from the military and living in Holland, Mass, always find ways to be together. They give speeches around the country and compete in some backbreaking race every weekend, including this Father's Day.
That night, Rick will buy his dad dinner, but the thing he really wants to give him is a gift he can never buy. "The thing I'd most like," Rick types, "is that my dad sit in the chair and I push him once."
Another inspiring video of them: http://www.youtube.com/watch?v=ryCTIigaloQ
AND: http://www.youtube.com/watch?v=7AcsQ-NUPJQ&watch_response
I can only imagine the love Christ has for us---a love so deep and tender we can not comprehend. As I watched the dad carry the grown son, I pictured God also carrying us through our trials with tremendous TLC, strapping us in for this ride we call life. I couldn’t help but notice the beautiful “cantaloupe-sized smile” upon Rick’s face and think, too, of Connor’s precious smile that warms my heart. I thought about Mr. Canteloupe Connor carved after his first treatment before losing his hair---what joy! Thank you, Lord, for smiles that convey our emotion of sheer happiness, and thank you for allowing smiles to shine despite difficult terrain.
Thank you all for your tender responses to Tony! We need your support more than you can know,
Laura
****CHILDHOOD CANCER WALK FOR KIDS-- Sat. September 30th
****BENEFIT GOLF TOURNAMENT--Sat. October 7th
SEE JOURNAL HISTORY for details.
Sunday, September 17, 2006 2:25 AM CDT
Hi, it’s Tony here tonight. I haven’t updated in a long while. I have tried to update many times, but I have been unable to bring myself to actually enter an update. I could not understand why I was unable to enter until I found the entry below on another Caring Bridge website.
Sand Fleas
written by Susan Larson
posted in The Compassionate Friends newsletter
“The death of a child takes you places you’ve never been before, not only in terms of emotions, but in terms of awareness of all that is. I liken the experience to playing on the shore with your friends and complaining about an occasional bite from a sand flea. It’s painful and annoying, but at least everyone else understands how you feel when you’re bitten.
Then one day, a wave grabs you and pulls you out into the ocean where you are bitten by a shark. You feel pain you never imagined could exist. And you’re alone in unfamiliar territory. When you get back to shore, you try to explain your pain to your friends, but the worst pain they can imagine is being bitten by 1,000 sand fleas. That’s all they know. There is no way to explain it to them.
But it’s not just the pain you can’t explain. While struggling under the water you’re suddenly aware that there is infinitely more to life than what we see on the shore. You see the ocean floor with coral reefs and rock formations, things you had never before imagined. You have tapped into the vastness of creation to a higher degree. And again, there is no way to adequately describe this vastness you see and feel. You have nothing to compare it to.
You have a true sense of a greater dimension, and you know that the loved one you miss is out there. You also know your loved one is not lost, but has only gone before you to a place more beautiful and vast than those on the shore could ever imagine. Yes, you still get annoyed with the sand fleas, but you now realize how trivial they are. And even if your friends don’t understand you, you know there is Someone greater out there who does.”
I cannot begin to understand the pain associated with losing a child, but I think that after reading this I can begin to understand my current state of emotions. One person who read Sand Fleas wrote “The reason this article struck me was because of the imagery it held for me…trying to explain the unexplainable. Feeling like I am speaking another language but using the same words and phrases that people know. It’s difficult to try to convey my thoughts, feelings and emotions in the midst of my grief. The English language needs more descriptive words - or I need to discover how to use them correctly.”
So guess that is where I’m at now – stuck somewhere between a Sand Flea and shark bite. In a place that most of my friends cannot understand, nor do I hope they ever truly understand. Trying to talk, but rarely understood. Try to listen, but rarely understanding. I go to work, but even there I cannot seem to find the happiness or pleasure I once enjoyed. I find myself struggling to keep my cool as I hear the “monumental” issues of the day. Things so trivial that sometimes I am amazed at myself for not completely blowing my top! If only I could once let it go without my co-worker's having to bear the ramifications……
I am blessed with a wonderful wife, but I long for the day that Laura will find her smile again. I know that day will not ever come back in the way I so desperately long for. I am proud of the way she has touched so many in her journal entries over the past year. Without her strength I would not have made it so long without having to confront my fears and emotions. I am a lucky man to have such a person in my life. She understands where I am and together we will persevere.
I wish we could be over with the whole cancer experience. The other day Laura took Carson to lunch. During the conversation, Laura asked Carson if he was glad that Connor’s treatment was over…..Carson answered in his normal rational and logical way “Is it really over”. Even he understands that we will never be the same either individually or as a family.
Tonight we went to a neighbor’s birthday party. All the kids were swimming and eventually one of Connor’s friends pushed him the pool. Connor was a good sport and stayed in the pool swimming and diving off the diving board. He did not take his shirt off, and he was sure to come up with his hat firmly in place after going under water. My heart sank each time saw him. He should not have to worry about things like that. He is such a good kid.
I visit Connor’s website too often, looking to see who might have entered new journal entry. Wanting to know that people still care, although I know that you do. I check our email and phone often, hoping for a message. What it would say, I haven’t a clue. I guess I’m still longing for a simpler, more enjoyable time before cancer.
I think I have dealt with Connor’s relapse last December in the only manner I could and still make it thru. I have tried to be steadfast and strong – I think that is what my family needed. I went to Cabo San Lucas last week with some co-workers for a fishing trip. I was awed by the power of the waves crashing into the rocks. The rocks were strong, but the water will eventually win the struggle. I have tried to be the rock for my family, but if I do not change, the cancer, like the water, will win. I will not allow it. We are done with treatment now and I need be a better husband, father, son, brother, friend and coworker to each of you. The fleas are important too and I will try to remember a day not so long ago when they were present in my life as well.
Friday, September 15, 2006 1:18 PM CDT
Well, not much is new except for the peachy hairdo! Connor’s doing great in school and enjoying band. He is wiped out by the end of each week. The doctor said his stamina and immune system will take a good six months to get back to normal levels. His congestion is definitely improving---sometimes we think he has some alergies. He will march again tonight and I will be chaperoning (definition: testing my patience) on the bus. I’m looking forward to it and can’t believe I’m so old! I’m going to try and not be a geek mom tonight.
Thanks, as always, for being there for us.
God’s hand has reached far and wide!
Laura
*****************************************
September 30th will be the Candlelighters Cancer Walk for Kids in Seabrook at which Connor will be honored this year. Please plan on attending---Registration begins at 8:00am and opening ceremonies are at 9:00---it's pretty short. The location will be Meador Park / Miramar Park. (Go to mapquest.com - type in the intersection of N. Meyer Rd. and Hammer St. - Seabrook TX 77586. *Bayport Blvd. is the same thing as HWY 146) Our walking team is "Connor's Bold Navy" Feel free (or not) to take any Old Navy t-shirt and use a marker or paint pen to make your own team shirt by adding the missing team name letters! Candlelighters is an organization that provides support to families faced with childhood cancer. The walk is a fund raiser---feel free to collect, give a small family donation, or just come and support us with your attendance! Any checks should be made out to "Walk for Kids" and please put "Connor's Bold Navy" in the memo.
***That evening, Sept. 30,*** Around 6:00, we'll have a gathering at our home to celebrate and thank you for your support throughout this whole ordeal.---We SO appreciate all the prayers, dinners, gifts, cards, rides and care for our younger boys, etc, etc! Bring the kids and any dish to share. The more the merrier! Pass on our web address to anyone you believe would be interested. We don't even know who all has been following Connor's progress. Wouldn't this be an awesome time to surprise us? You are all invited---the blessings have been many!
*****************************************
ALSO, PLEASE JOIN US AND SPREAD THE WORD:
Connor’s Benefit Golf Tournament
Oct. 7th 12:00 Shot Gun
EMAIL YOUR ENTRIES TO: james.Chambers@hp.com
Magnolia Creek Golf Course – League City
1501 West Bay Area Blvd. League City, TX 77573
281.557.0555
http://www.magnoliacreekgolf.com
$85.00 entry fee per person or $340.00 per Team (This is a all inclusive deal, see below)
Tournaments Include:
All the beverages we can drink (Includes BEER, Sport drinks and bottled water)
Green Fee
Cart
Access to Our 22-Acre State-of-the-Art Practice Facility
Cart Tagging
Tournament Scorecards
Announcements
Contest Holes
Tournament Scoring
AND MUCH, MUCH, MORE
The tournament will have a 1st and 2nd place team’s recognition as well a Long Drive Winner. A Trophy or Plaque will be given to the winning teams.
We will be selling Mulligan tickets, money going to fund-raiser.
Raffle tickets for a drawing will be held if we have donated items to raffle. We are still working on this, proceeds going to fund-raiser.
Some of you that know of any business that would like to donate any tournament items (no matter how small) please let me know and we can include in the Raffle/Give-a ways.
The goal is a minimum of 20 Teams (80 people).
What I need now is absolute attendance and Names and Handicaps of Teams (we will be doing the Net Scoring, therefore making it fair for the hacker teams). So put a team together and reply with fore mentioned. If you are short on a team I will be filling with others that are short. This is an open tourney to PHS grads and their friends. Please send the following:
Team Sponsor :( person heading the team)
Team Members:
Individuals Handicaps:
Please reply ASAP!!
Jimbo
James.Chambers@hp.com
o 281.518.0306
m 281.413.3030
Thanks Jimbo and friends!
Tuesday, September 12, 2006 2:59 PM CDT
Picture: Summer 2005, right before Connor got braces on his teeth between 7th and 8th grade. He had fully recovered from chemo completed a year before and was strong, happy, and hairy! Actually, this picture was taken for a Make-A-Wish Foundation Christmas booklet featuring 12 Wish kids and their wishes. Unfortunately, for lack of funds, the book was never printed. The Make-A-Wish Foundation is always a great idea for making a donation to honor someone. You can even donate your airline miles. (See link below in which Connor's trip was featured.) What a great organization! We were treated like royalty!.....We can't wait for Connor to be back to looking "normal". However, I know he will never look exactly like this picture again; for he has changed, and matured. We're expecting the hair to come in about the same even though he went into chemo in 2003 having very straight blonde hair. Maybe with his maturity, he'll be more "handsome" than "cute".
***9:50pm UPDATE***********
It is so exciting----I felt some peach fuzz on Connor's head!!! We've got sprouting! I couldn't really see it, it's very blonde for now and I was teasing him about getting a magnifying glass, but I know I felt something fuzzy!!!! YAHOOOO and thank you, Lord, for the very tiny things!!!!
*****************************************
September 30th will be the Candlelighters Cancer Walk for Kids in Seabrook at which Connor will be honored this year. Please plan on attending---Registration begins at 8:00am and opening ceremonies are at 9:00---it's pretty short. The location will be Meador Park / Miramar Park. (Go to mapquest.com - type in the intersection of N. Meyer Rd. and Hammer St. - Seabrook TX 77586. *Bayport Blvd. is the same thing as HWY 146) Our walking team is "Connor's Bold Navy" Feel free (or not) to take any Old Navy t-shirt and use a marker or paint pen to make your own team shirt by adding the missing team name letters! Candlelighters is an organization that provides support to families faced with childhood cancer. The walk is a fund raiser---feel free to collect, give a small family donation, or just come and support us with your attendance! Any checks should be made out to "Walk for Kids" and please put "Connor's Bold Navy" in the memo.
That evening, Sept. 30, around 6:00, we'll have a gathering at our home to celebrate and thank you for your support throughout this whole ordeal---We SO appreciate all the prayers, dinners, gifts, cards, rides and care for our younger boys, etc, etc! Bring the kids and any dish to share. The more the merrier! Pass on our web address to anyone you believe would be interested. We don't even know who all has been following Connor's progress. Wouldn't this be an awesome time to surprise us? You are all invited---the blessings have been many!
*****************************************
ALSO, PLEASE JOIN US AND SPREAD THE WORD:
Connor’s Benefit Golf Tournament
Oct. 7th 12:00 Shot Gun
EMAIL YOUR ENTRIES TO: james.Chambers@hp.com
Magnolia Creek Golf Course – League City
1501 West Bay Area Blvd. League City, TX 77573
281.557.0555
http://www.magnoliacreekgolf.com
$85.00 entry fee per person or $340.00 per Team (This is a all inclusive deal, see below)
Tournaments Include:
All the beverages we can drink (Includes BEER, Sport drinks and bottled water)
Green Fee
Cart
Access to Our 22-Acre State-of-the-Art Practice Facility
Cart Tagging
Tournament Scorecards
Announcements
Contest Holes
Tournament Scoring
AND MUCH, MUCH, MORE
The tournament will have a 1st and 2nd place team’s recognition as well a Long Drive Winner. A Trophy or Plaque will be given to the winning teams.
We will be selling Mulligan tickets, money going to fund-raiser.
Raffle tickets for a drawing will be held if we have donated items to raffle. We are still working on this, proceeds going to fund-raiser.
Some of you that know of any business that would like to donate any tournament items (no matter how small) please let me know and we can include in the Raffle/Give-a ways.
The goal is a minimum of 20 Teams (80 people).
What I need now is absolute attendance and Names and Handicaps of Teams (we will be doing the Net Scoring, therefore making it fair for the hacker teams). So put a team together and reply with fore mentioned. If you are short on a team I will be filling with others that are short. This is an open tourney to PHS grads and their friends. Please send the following:
Team Sponsor :( person heading the team)
Team Members:
Individuals Handicaps:
Please reply ASAP!!
Jimbo
James.Chambers@hp.com
o 281.518.0306
m 281.413.3030
Thanks Jimbo and friends!
Monday, September 11, 2006 9:45 AM CDT
Today is 9/11. How I remember that day! Tony for some reason had not yet left for work, so the TV actually got turned on! He saw one of the towers aflame, and quickly called me into the room. Chandler was in 1/2 day kindergarten, so he also was home. We actually watched as the second tower was hit. What a shocking and awful day that was for America. Please pray today for our nation, our leaders, and all our brave military personnel who are so bravely standing up to fight for our freedoms. They are true heroes!
Connor is off at school again! It’s so nice that it’s becoming a “regular thing”. Last year he only went one out of three weeks! Last night he showed me what the worst part of his day was----turning the switch on his alarm clock to awaken him at 6:00! I agreed. The greatest news is that tomorrow is a “late arrival” day (meeting time for teachers) at school and he’ll get to sleep until 8:00! We can’t wait, but of course I’ll be up at 6:45 with Carson.
*****************************************
September 30th will be the Candlelighters Cancer Walk for Kids in Seabrook at which Connor will be honored this year. Please plan on attending---It usually begins around 9:00am and it's pretty short. The location will be Meador Park / Miramar Park. (Go to mapquest.com - type in the intersection of N. Meyer Rd. and Hammer St. - Seabrook TX 77586. *Bayport Blvd. is the same thing as HWY 146) Our walking team is "Connor's Bold Navy" Feel free (or not) to take any Old Navy t-shirt and use a marker or paint pen to make your own team shirt by adding the missing team name letters! Candlelighters is an organization that provides support to families faced with childhood cancer. The walk is a fund raiser---feel free to collect, give a small family donation, or just come and support us with your attendance! Any checks should be made out to "Candlelighters" and please put "Connor's Bold Navy" in the memo.
That evening, around 6:00, we'll have a gathering at our home to celebrate and thank you for your support throughout this whole ordeal---We SO appreciate all the prayers, dinners, gifts, cards, rides and care for our younger boys, etc, etc! Bring the kids and any dish to share. The more the merrier! Pass on our web address to anyone you believe would be interested. We don't even know who all has been following Connor's progress. Wouldn't this be an awesome time to surprise us? You are all invited---the blessings have been many!
*****************************************
ALSO, PLEASE JOIN US AND SPREAD THE WORD:
Connor’s Benefit Golf Tournament
Oct. 7th 12:00 Shot Gun
EMAIL YOUR ENTRIES TO: james.Chambers@hp.com
Magnolia Creek Golf Course – League City
1501 West Bay Area Blvd. League City, TX 77573
281.557.0555
http://www.magnoliacreekgolf.com
$85.00 entry fee per person or $340.00 per Team (This is a all inclusive deal, see below)
Tournaments Include:
All the beverages we can drink (Includes BEER, Sport drinks and bottled water)
Green Fee
Cart
Access to Our 22-Acre State-of-the-Art Practice Facility
Cart Tagging
Tournament Scorecards
Announcements
Contest Holes
Tournament Scoring
AND MUCH, MUCH, MORE
The tournament will have a 1st and 2nd place team’s recognition as well a Long Drive Winner. A Trophy or Plaque will be given to the winning teams.
We will be selling Mulligan tickets, money going to fund-raiser.
Raffle tickets for a drawing will be held if we have donated items to raffle. We are still working on this, proceeds going to fund-raiser.
Some of you that know of any business that would like to donate any tournament items (no matter how small) please let me know and we can include in the Raffle/Give-a ways.
The goal is a minimum of 20 Teams (80 people).
What I need now is absolute attendance and Names and Handicaps of Teams (we will be doing the Net Scoring, therefore making it fair for the hacker teams). So put a team together and reply with fore mentioned. If you are short on a team I will be filling with others that are short. This is an open tourney to PHS grads and their friends. Please send the following:
Team Sponsor :( person heading the team)
Team Members:
Individuals Handicaps:
Please reply ASAP!!
Jimbo
James.Chambers@hp.com
o 281.518.0306
m 281.413.3030
Thanks Jimbo and friends!
Saturday, September 9, 2006 8:10 PM CDT
Pam, you’re right. We were the proudest parents and grandparent in the whole stadium last night!!!! It swelled our hearts to see Connor out there participating with all the other kids in the band. I’m sure I won the Geekiest Mom Award for shouting to him from the far end and waving as big as day! I was just so excited for him. He had a good time even though he was exhausted---it was almost an 18 hour day!! They all got up early again this morning and practiced from 8:00 to noon, too. This afternoon, I took him to Trevor’s to make up for missing last weekend. I’m sure he’ll have some fun R&R.
September 30th will be the Candlelighters Cancer Walk for Kids in Seabrook at which Connor will be honored this year. Please plan on attending---It usually begins around 9:00am and it's pretty short. The location will be Meador Park / Miramar Park. (Go to mapquest.com - type in the intersection of N. Meyer Rd. and Hammer St. - Seabrook TX 77586. *Bayport Blvd. is the same thing as HWY 146) Our walking team is "Connor's Bold Navy" Feel free (or not) to take any Old Navy t-shirt and use a marker or paint pen to make your own team shirt by adding the missing team name letters! Candlelighters is an organization that provides support to families faced with childhood cancer. The walk is a fund raiser---feel free to collect, give a small family donation, or just come and support us with your attendance! Any checks should be made out to "Candlelighters" and please put "Connor's Bold Navy" in the memo.
That evening, around 6:00, we'll have a gathering at our home to celebrate and thank you for your support throughout this whole ordeal---We SO appreciate all the prayers, dinners, gifts, cards, rides and care for our younger boys, etc, etc! Bring the kids and any dish to share. The more the merrier! Pass on our web address to anyone you believe would be interested. We don't even know who all has been following Connor's progress. Wouldn't this be an awesome time to surprise us? You are all invited---the blessings have been many!
Hhhhhhhhhhhhhhhhhhhhhhhhhhhhiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihihi from Chandler
PLEASE JOIN US AND SPREAD THE WORD:
Connor’s Benefit Golf Tournament
Oct. 7th 12:00 Shot Gun
EMAIL YOUR ENTRIES TO: james.Chambers@hp.com
Magnolia Creek Golf Course – League City
1501 West Bay Area Blvd. League City, TX 77573
281.557.0555
http://www.magnoliacreekgolf.com
$85.00 entry fee per person or $340.00 per Team (This is a all inclusive deal, see below)
Tournaments Include:
All the beverages we can drink (Includes BEER, Sport drinks and bottled water)
Green Fee
Cart
Access to Our 22-Acre State-of-the-Art Practice Facility
Cart Tagging
Tournament Scorecards
Announcements
Contest Holes
Tournament Scoring
AND MUCH, MUCH, MORE
The tournament will have a 1st and 2nd place team’s recognition as well a Long Drive Winner. A Trophy or Plaque will be given to the winning teams.
We will be selling Mulligan tickets, money going to fund-raiser.
Raffle tickets for a drawing will be held if we have donated items to raffle. We are still working on this, proceeds going to fund-raiser.
Some of you that know of any business that would like to donate any tournament items (no matter how small) please let me know and we can include in the Raffle/Give-a ways.
The goal is a minimum of 20 Teams (80 people).
What I need now is absolute attendance and Names and Handicaps of Teams (we will be doing the Net Scoring, therefore making it fair for the hacker teams). So put a team together and reply with fore mentioned. If you are short on a team I will be filling with others that are short. This is an open tourney to PHS grads and their friends. Please send the following:
Team Sponsor :( person heading the team)
Team Members:
Individuals Handicaps:
Please reply ASAP!!
Jimbo
James.Chambers@hp.com
o 281.518.0306
m 281.413.3030
Thanks Jimbo and friends!
Friday, September 8, 2006 1:21 PM CDT
****Connor’s getting to march in his first Clear Lake High School football game tonight!!! I hope he has a blast!!!! We’ll all be there to watch---Gramee, too!
Hey, we finally got the golf tournament information!!! The date is October 7th. If you don’t have a “team”, try to sign up anyway and maybe we can put together a team of individuals! Thank you so much for your support throughout Connor’s fight to Victory!
- Connor’s Benefit Golf Tournament
Oct. 7th 12:00 Shot Gun
EMAIL YOUR ENTRIES TO: james.Chambers@hp.com
Magnolia Creek Golf Course – League City
1501 West Bay Area Blvd. League City, TX 77573
281.557.0555
http://www.magnoliacreekgolf.com
$85.00 entry fee per person or $340.00 per Team (This is a all inclusive deal, see below)
Tournaments Include:
All the beverages we can drink (Includes BEER, Sport drinks and bottled water)
Green Fee
Cart
Access to Our 22-Acre State-of-the-Art Practice Facility
Cart Tagging
Tournament Scorecards
Announcements
Contest Holes
Tournament Scoring
AND MUCH, MUCH, MORE
The tournament will have a 1st and 2nd place team’s recognition as well a Long Drive Winner. A Trophy or Plaque will be given to the winning teams.
We will be selling Mulligan tickets, money going to fund-raiser.
Raffle tickets for a drawing will be held if we have donated items to raffle. We are still working on this, proceeds going to fund-raiser.
Some of you that know of any business that would like to donate any tournament items (no matter how small) please let me know and we can include in the Raffle/Give-a ways.
The goal is a minimum of 20 Teams (80 people).
What I need now is absolute attendance and Names and Handicaps of Teams (we will be doing the Net Scoring, therefore making it fair for the hacker teams). So put a team together and reply with fore mentioned. If you are short on a team I will be filling with others that are short. This is an open tourney to PHS grads and their friends. Please send the following:
Team Sponsor :( person heading the team)
Team Members:
Individuals Handicaps:
Please reply ASAP!!
Jimbo
James.Chambers@hp.com
o 281.518.0306
m 281.413.3030
Thursday, September 7, 2006 8:48 AM CDT
Good Morning. Connor’s been up and out for two hours---still congested, but definitely has his personality back and didn’t seem so exhausted after band last night. It did my heart so much good to see him “play” and be silly. Tuesday afternoon his new invention was sticking plastic silverware between the floor planks of the porch and shooting them with his airsoft gun. He was ecstatic with the way shrapnel flew everywhere! He and Carson sat at the kitchen table while doing their homework, but the whole time they were talking and cracking each other up! Their laughter was music to my ears! He was also teasing Autumn, our golden retriever. He opened a low window and taped a dog treat to the outside of the screen. Autumn could sniff it, but she couldn't get it! Connor was having so much fun. When I went to unload the dishwasher, instead of dishes I found a note from him that read, “You owe me a dollar!” He had surprised me and already unloaded without me asking. Later when I brought down his laundry basket, I told him, “You owe me a dollar---We’re even!” It all brought a smile to my heart.
Somehow in the dark of night, however, fear crept back into my mind keeping me from sleep. There were words on the MRI report acknowledging “all” the possibilities of these spots in the lungs. I don’t like all the possibilities. I might actually be getting to a point where I might not “read” everything and just let the doctor tell me what I need to know. Wednesday, I was quite scatterbrained and on the verge of tears all day. I took Carson to the doctor for a physical, immunizations, and to check his swollen ankle. We also went to lunch, but I could hardly carry on a conversation---mentally, I was a million miles away.
Last night, exhausted, I went to bed early. Before crawling in, I got down on my knees (which I don’t do often enough) and I prayed. Soon, I was begging God for this to all be OVER and admitting I can’t do it anymore. But there, on my knees, I began to realize that once again I was telling God rather than listening. I felt compelled to change my prayer and asked Him to give me a more compliant heart to allow His plan to unfold, to help me live one day at a time with JOY for the moment, and to actually “go with the flow”! His word is a lamp unto our feet, not a headlight into our future. I asked for His strength to help me appreciate the days that lie ahead---whatever they entail. I just started a new Bible study on Paul/Saul and I liked that it reads, “NOTHING in Saul’s life would be a waste unless he refused to let God use it.” Anyway, I’m sure I’ll need the remedial lesson on not trying to control AGAIN, but for now I can’t tell you the relief I felt in my heart, the burden was so much lighter! Last night---I slept.
The blessings of Jesus to you,
Laura
Don't forget***
-Cancer Walk in Seabrook--- Sept. 30. We will be having a get together at our house that evening. Bring a dish to share and come enjoy the evening. 6pm until you leave.
-Benefit Golf Tournament
Oct. 7th 12:00 Shot Gun
EMAIL YOUR ENTRIES TO: james.Chambers@hp.com
Magnolia Creek Golf Course – League City
1501 West Bay Area Blvd. League City, TX 77573
281.557.0555
http://www.magnoliacreekgolf.com
$85.00 entry fee per person or $340.00 per Team (This is a all inclusive deal, see below)
Tournaments Include:
All the beverages we can drink (Includes BEER, Sport drinks and bottled water)
Green Fee
Cart
Access to Our 22-Acre State-of-the-Art Practice Facility
Cart Tagging
Tournament Scorecards
Announcements
Contest Holes
Tournament Scoring
AND MUCH, MUCH, MORE
The tournament will have a 1st and 2nd place team’s recognition as well a Long Drive Winner. A Trophy or Plaque will be given to the winning teams.
We will be selling Mulligan tickets, money going to fund-raiser.
Raffle tickets for a drawing will be held if we have donated items to raffle. We are still working on this, proceeds going to fund-raiser.
Some of you that know of any business that would like to donate any tournament items (no matter how small) please let me know and we can include in the Raffle/Give-a ways.
The goal is a minimum of 20 Teams (80 people).
What I need now is absolute attendance and Names and Handicaps of Teams (we will be doing the Net Scoring, therefore making it fair for the hacker teams). So put a team together and reply with fore mentioned. If you are short on a team I will be filling with others that are short. This is an open tourney to PHS grads and their friends. Please send the following:
Team Sponsor :( person heading the team)
Team Members:
Individuals Handicaps:
Please reply ASAP!!
Jimbo
James.Chambers@hp.com
o 281.518.0306
m 281.413.3030
Tuesday, September 5, 2006 4:38 PM CDT
Connor is doing MUCH better and attended school again today. His eyes returned to normal on Sunday. He is still congested some, but it is obvious he feels so much better and sparkle has returned in his eyes.
I did get the MRI report about 30 minutes ago. As far as I can tell, (sometimes you need a medical degree to read the reports) there are no additional scary spots. There's some fluid and scarring left from surgery, but it was quite agressive surgery and probably expected. It also referenced the spots in the lobes of the lungs.
hello people!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
from Connor
On a happy note, I did get to SEE Baby Carson in clinic on Friday!!!! He looked much more alert and stronger! God bless him!
Micah has set a new record for allogeneic bone marrow transplants. He got out of the hospital on day 14!!! His energy is high and he's able to eat some. Pray for 100 percent donor cells on his next bone marrow aspiration!
Caroline has made it to day 68 without many complications. She is also doing GREAT!!! At day 100 (Oct. 7th) she will get to go HOME to her own East Texas town, her own room, her own family! It will be a week before her 13th birthday. Pray for her continued good health.
Emily is working through the ups and downs of her new chemo and is on a trip to L.A. out in California! Pray she will feel well and get some needed R&R!
Carson's soccer team did not win this weekend's tournament, but we had a good time and played some stiff competition from all over the state! Chandler's football team won 13-0---YEA! Tony would want me to report that because he's the offensive coach. Great job, Honey!
Saturday, September 2, 2006 1:39 PM CDT
We have begun our Labor Day weekend with a little more “bang” than desired. First of all with Connor’s fever. This has dampened his opportunity to march in his first football game and to spend a couple days with his friend Trevor---bummer.
Yesterday, his blood work did prove to be OK---a little low, but not dangerously. They did take blood from his arm and chest to make sure the fever is from the virus, not an infection in his portacath line. While there, his doctor ordered an IV antibiotic for precaution. About 25 minutes into the 30-minute transfusion, Connor’s eyelids suddenly swelled WAY up. They were almost swollen shut! I ran and got a nurse and within seconds there were probably 8 to 10 doctors and nurses in our tiny room checking him for anaphylactic shock! Thank God it did not attack his airway; it was just his eyes!
They immediately administered IV Benadryl and something else to reverse the allergic reaction. We will all now memorize that Connor should NEVER have Rocephin antibiotic again in his life! No joke, I bet his upper eyelids were ½ inch thick! We stayed an additional hour and ½ to make sure the swelling was going down. His eyes improved, but they are still swollen today. We are under strict orders to keep him on a double dose of Benadryl every six hours at least through tonight, and then monitor and treat based upon swelling.
We did get results from the CT scan of his chest. It was not as crispy clean as we would have liked. There are three tiny spots in his lungs, BUT we are hoping and praying they will prove to be congestion. He is definitely sick and congested. We have had a lung scare very similar about a year ago. It was nothing serious, and the spots disappeared. Thankfully, the chest x-ray was clean, just like before. We will CT the lungs again on Sept 27. Please pray in the name of Jesus that the spots will all disappear, and we can hear the “clean” word; for by the stripes upon His back, we are healed! We expect to receive results of the MRI of his shoulder Tuesday.
Thank you for every prayer,
Laura
Thursday, August 31, 2006 9:18 AM CDT
Pray for Connor’s stamina today. He is not feeling well---a mega runny nose with a bad sore throat. No fever as of yet and I didn’t see any clear blisters, so hopefully it’s not Chandler’s virus. He seems to poop out after about three days of school in a row---I’m sure his blood levels are still far from normal. He also is afraid he won’t be up to marching Saturday night. He learned one marching position, and then he missed two weeks. Upon his return, they had him “shadow” another position, but then Tuesday gave him a third position. Yesterday, he felt like he just didn’t know the drill. Pray it will all come together in his memory banks today so he can feel up to par. I want him to have FUN and feel a part of the group! I think he would have loved to just stay home and rest today if I would have let him.
More importantly are tomorrow’s scans. Pray they find him to be NORMAL and PERFECT!!!! We did work it to where he does not have to drink barium. Upon rechecking the required scans, abdomen is not required---I think his doctor was being extra cautious which I like! Recommended are the local area (shoulder) and the chest / lungs. So, that is what we are going to do! We just checked the abdomen back in December at the time of relapse. It was clean then---certainly it’s still clean; we all agree.
I’m just feeling for him today---I’ll pray,
Laura
******************UPDATE 7:20pm********************
Connor has 102.2 degree fever---I think it is the virus. We have a call into MDAnderson to see if he has to go into the hospital, or if I can give Tylenol or anything. We are so trained not to give anything at all---Not sure about 3 weeks out of treatment.
9:00pm----The doctors are leaving it up to me. If I'm comfortable having him home, we don't have to rush to the hospital and I can give him Tylenol. BUT, they want us in clinic at 7:30 am to check his blood counts. They want him wearing a mask to protect other patients, but do want him to come for his scans---I was expecting to reschedule so we don't infect other patients. You just never know.
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We'll try to have the registration info about the walk and the golf tournament for you this week. Sept. 30 and Oct. 7 are the dates.
*****
Wednesday, August 30, 2006 10:16 AM CDT
We are so happy to NOT be administering chemo today!!!! If the schedule continued this would be our next start date. How thankful we are for all the patients and doctors who, through trial and error, found out prolonging the chemo for our type cancer doesn’t change anything. We are so glad to be OUT of active treatment!!!!
I check Connor every day for hair, but not yet. Hopefully the next few weeks will bring sprouting!
Our friends at the hospital are doing great---Thank you, Jesus!!! We do have some adult friends who are in need of prayer. Please lift up both Kathy and Jimmy (not related). They could use a God filled day and a bright ray of SONshine! Also, please remember to pray about Connor’s Friday scans.
Thanks for everything!
Laura
****We want you to know about some upcoming events****
September 30---Connor will be honored at the Candlelighters Walk for Kids with Cancer here in Seabrook. We will probably have some type of cookout afterwards at our home to thank you all for your support.
October 7---Tony's high school friends are putting on a benefit golf tournament. It just happens to be Tony’s birthday, too! What a great way to join him in celebrating!
***You are all invited to both events. Check back for more details and registration info.
Monday, August 28, 2006 9:29 AM CDT
Howdy---Connor is still doing great! We enjoyed the weekend---it was kinda slow for us with only ONE sporting event---Chandler’s first football game of the season. We joined some other families for a bowling outing and basically took it easy.
This next weekend will be CRAZY!!! Most importantly, Friday will be Connor’s scan day. We’ll arrive early (like 7:00am) and have CT scan of abdomen, chest x-ray, and MRI of shoulder/chest area. We will also have an exam by Dr. Huh. We will not expect to get results until Monday, or maybe even Tuesday due to the holiday. This being so close to the end of treatment, we certainly expect all to be clean---really, these will be new baseline scans to give radiologists something to compare to as time passes. We will all breathe easier though once we’ve heard the “clean” word for sure. Please be in prayer for this---I like God to be involved!
To keep our mind off things: Carson will have a soccer tournament in Austin, Chandler will have his football game and maybe a baseball tournament in San Antonio, while Connor will have his first marching performance at his high school game and then spend the holiday weekend with his friend, Trevor. God bless our weekend!
I woke up Saturday morning frustrated about his CT scan. Right now, he’s scheduled to have to drink the lovely barium! I’ve been trying to get them to change the CT of the abdomen to MRI, so he doesn’t have to drink it, but so far to no avail. I sent another requesting email saying, “Please”. I know these are new baselines---if we don’t get it changed now, he’ll always have to drink it for consistent scan comparisons. I’m trying to resist the temptation to cordially invite his doctor and nurse for “cocktails”. Requesting them to arrive early with us at 7:00am with stomachs in a fasting state for not one, but two large cups of nasty, chalky, milky goo! That may help them rethink the CT of abdomen!
Worry less and love more,
Laura
****We want you to know about some upcoming events****
September 30---Connor will be honored at the Candlelighters Walk for Kids with Cancer here in Seabrook. We will probably have some type of cookout afterwards at our home to thank you all for your support.
October 7---Tony's high school friends are putting on a benefit golf tournament. It just happens to be Tony’s birthday, too! What a great way to join him in celebrating!
***You are all invited to both events. Check back for more details and registration info.
Friday, August 25, 2006 8:13 AM CDT
Well, Connor finally pooped out yesterday. He had an optional pep rally for the district that he was planning on attending, but he called right after school and asked me to come pick him up and take him home. He was too tired. He has a bit of a cold, doesn’t seem to be the sore throat/fever thing, but he just wasn’t feeling perky and his nose had been running all day. This morning, he said he felt a little better. We are all looking forward to not using an alarm clock tomorrow!
In Spanish class, he informed me he made an 88 on yesterday’s pop quiz over the pronunciations of the alphabet. He continued with, “Guess when I learned the Spanish alphabet----yesterday!” Pretty good considering everyone else has been working on it two weeks. (His teacher let him go last.) He was pleased.
Yesterday were Weston’s one year scans. I’ll add on when I know the results---hopefully this afternoon. We are confident things are clean----To be honest, I don’t think my family could take anymore. Certainly God knows that, too! *****10:40am PRAISE THE LORD!!! WESTON'S SCANS ARE CLEAN!!!*****
Caroline is still doing well. She had a hospital stay for a few days of fever recently and some skin rash issues, but is back at the apartment for now.
Micah is doing beautifully---much improved, and even being able to eat a bit (throws up a bit also, but par for the course)! I believe he’s rejecting a lot of the pain meds, too---What a little man! My favorite part is that he keeps a stash of Silly String and surprise attacks the doctors and nurses when they come in. Now that will keep an eight year old perked up!
Emily is on a maintenance chemo for a bit and then will try a new chemo this fall. This maintenance one will allow her to attend high school, but it doesn’t usually kill tumor, just holds it steady. Reports after her radiation show the cancer in her lungs did not grow, maybe shrank a little, but unfortunately there are still live cells---something we all hate. Hopefully, her new chemo will kill it all for good! What a precious girl!
I haven’t heard anything about Carson lately.
Joy to each of you---Have a great day,
Laura
****We want you to know about some upcoming events****
September 30---Connor will be honored at the Candlelighters Walk for Kids with Cancer here in Seabrook. We will probably have some type of cookout afterwards at our home to thank you all for your support.
October 7---Tony's high school friends are putting on a benefit golf tournament. It just happens to be Tony’s birthday, too! What a great way to join him in celebrating!
***You are all invited to both events. Check back for more details and registration info.
Wednesday, August 23, 2006 10:42 AM CDT
School day #2!!! Connor did fine yesterday and did not feel too overwhelmed or behind. Spanish was the one class kickin’ our bootie (homebound does not work on electives- only the basics, and I don’t know Spanish either). After some instruction yesterday, he said it was easy---whew! He did find a group of his junior high friends to sit with at lunch, rather they found him. Overall, I think it went well and he is glad to be back in school.
Emotionally, I had a roller coaster day. I was so excited for Connor, but there was so much more than excitement swirling through me---anticipation, pride, fear, wonder---I think it was a release of all the emotion from the past year combined with the mental drama of wondering what this next year will bring. I completely didn’t know what to do with myself in my newfound “free time”.
I found myself at the park----the one I used to take the boys to as toddlers to feed the ducks. As I entered the parking lot, I wondered if here the tears would flow---I could tell I was holding back so much emotion. But as I sat on the bench, listened to the fountain centered in the pond, admired the calm ducks, curious seagulls, bathing crows, and resting buzzards (yes, a group of buzzards---not eating anything, just hanging out at the park in the shade of the trees), anyway, amongst nature my mind began to shift from my emotions to God.
I began to pray---thanking God for all His blessings. I praised Him for holding us together and taking such tender care of and healing Connor. I thanked Him for providing us with such an incredible support system: wonderful family, friends, medical personnel, people we hardly know, and even some strangers who are always there for us and interested in what is going on with our sick child. What a blessing it is to have a husband who is so loving, supportive, willing to share the load, and OK with having emotion! Also, the brothers, how proud I am of their unselfishness and willingness to visit and help their big brother so often. They bring Connor so much joy even when he doesn’t feel well. Sometimes it just takes children to bring on the smiles---How happy I am that God has given us all three of our boys! I asked God to continue healing for Connor, Weston, and our friends in need. I thanked God for allowing Tony and I to be at Connor’s side throughout; telling him how much we love him, rubbing his legs and back, sitting with him in appointments and at the hospital, giving him his medicines and even the shot because we love him so much… At the end of my prayer, a few raindrops fell around me. It was if God was releasing His tears, so I no longer felt the need.
I began to ask myself (or maybe it was God asking) what I had learned these three years of battling cancer with my son. My definite answer is----TO LOVE! --To love my sons with my every breath, to show and tell them every day. --To love and appreciate my husband, extended family, and friends who carry me through. --To love others, especially those I have met at the hospital who are also hurting. --To love everyone because we all hurt and need in some way. --To love Jesus and to seek Him with all my heart; for that is when I feel His presence. Yes, I have learned to LOVE more deeply.
As the noon, Texas heat began to draw my park time to a close; God provided an awesome grand finale! From out of sight in the bushes, swam a beautiful white swan across the water--- followed by a line of ten brown ducks. They paraded around the fountain spray to the far side of the pond. They just kept coming! After they had gracefully made their way onto the embankment, one little duck (sure to have hatched only this spring) made his way across the pond ALL ON HIS OWN!!! He was OK---and so will be my Connor!
God’s blessings to you,
Laura
***Weston has his one year scans tomorrow, Thursday---Please pray for clean reports and peace for my sister's family.
Tuesday, August 22, 2006 7:11 AM CDT
Connor has gone to school!!!! The blessings never seem to end. Pray he has a good day. He will stay until 6:15 for band. As thrilled as I am for him to get back to a normal schedule, I realize I am going to miss him greatly. I've gotten so used to him being around most of the time. High school schedules really don't keep the kids "around" much.
Thanks for hanging in there with us!
Laura
****We want you to know about some upcoming events****
September 30---Connor will be honored at the Candlelighters Walk for Kids with Cancer here in Seabrook. We will probably have some type of cookout afterwards at our home to thank you all for your support.
October 7---Tony's high school friends are putting on a benefit golf tournament. It just happens to be Tony’s birthday, too! What a great way to join him in celebrating!
***You are all invited to both events. Check back for more details and registration info.
Monday, August 21, 2006 12:12 AM CDT
Monday report:
Connor is feeling fine this morning and working with Mrs. Prisk (homebound teacher) right now. We’ve got a few more school supplies to get today, but I think he’s ready to begin high school---I know he’s been awfully bored last week and this weekend while his counts were low and had to live in his “bubble”.
(Connor says “Hi.”)
Carson’s soccer team did it again!!! They won first place in their tournament!
Yesterday unfortunately proved to be a difficult day for Connor. He was having SEVERE bone pain again like he had on his birthday. Carson, Tony, and I were at the soccer tournament when he called to tell us. I replied to him that the good news is your white count is coming up! Since he’s not allowed to take Tylenol or Ibuprophen, I encouraged him to take a warm bath or shower, but he didn’t bother.
A couple hours later he called to say his bone pain was still horrible and he was beginning to run fever---100.2 degrees. At this point, I left the soccer game and got a seperate ride home for Tony and Carson. When I got home, the fever had subsided to 99.9, so we didn’t have to rush to the hospital---Thank God! We massaged and put hot pads on his legs for the bone pain that was making him moan and breathe heavily. Then we switched to cold rags and started the movie Eight Below for mental distraction. By the time he went to bed he was feeling much better. Today he feels fine. We’re off to go check his counts to see if he can go to school tomorrow!!!!
Micah is doing great---NO more fevers!!! He’s having difficulty eating, but that’s par for the course! Thanks for your continued prayers.
****We want you to know about some upcoming events****
September 30---Connor will be honored at the Candlelighters Walk for Kids with Cancer here in Seabrook. We will probably have some type of cookout afterwards at our home to thank you all for your support.
October 7---Tony's high school friends are putting on a benefit golf tournament. It just happens to be Tony’s birthday, too! What a great way to join him in celebrating!
***You are all invited to both events. Check back for more details and registration info.
Sunday, August 20, 2006 9:36 AM CDT
Howdy! And Praise the Lord this Sunday! Micah is doing much better and has successfully stayed out of the ICU. His blood pressure was doing much better yesterday and he actually had NO fever during the day---no report yet about his night. WOW---just when everything got so scary, God calmed the waters! He’s got a long difficult road ahead, but isn’t it nice that they are not alone!
Connor, too, is being blessed with no sore throat or fever this weekend! Saturday, his white count was surprisingly higher than normal---at 0.8 which is still very low, but not for him after chemo. I think God knows he’d need a little something to keep from getting the sore throat virus this weekend. Chandler actually had his first fever free day Saturday. I’m glad he’s feeling better! Carson’s soccer team won both their games yesterday, so the quest for victory continues today. We are making it through with enough parents! Tony surprised Connor yesterday with a new (first) cell phone! Connor is so pleased!!! He’s been asking for one since the seventh grade---We figure he has certainly earned it!!!
Thursday, I went to the school to get work, books, and have his ARD meeting to get homebound education started. The teacher came to our home Thursday, Friday, and is planning on Monday---this should help so much in getting him caught up a bit and keep him from walking in “clueless” his first day. The band sent a big poster board with lots of signatures wishing Connor well. It was a great surprise and it brought a sweet smile to my Connor’s face! Thanks guys for making him feel missed, supported, and like all of you are his new friends!
Thankful for all our blessings,
Laura
Friday, August 18, 2006 8:05 AM CDT
************UPDATE 10:30PM*************
Micah is in great need of prayer. He has been running more fever and is now having blood pressure problems. A bacterial infection has now been identified and is most likely the culpret. Antibiotics are being given, but he needs God to calm his body. It will take two to three weeks for the new marrow to take hold and be able to FIGHT. He did feel strong enough to cut up a bit and eat some noodle soup today which will help keep his strength up. This journey is a tough one for the patient---Good thing God is tougher!!
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Happy Friday! First of all, let me report on Micah---as far as I know, all is well and his mom is feeling at peace. His bone marrow transplant, which is given just like a blood transfusion via IV, was complete by midnight. The new marrow was flown in last evening and had a police escort to the hospital---fit for King Micah! I pray this will be his step into new life---a long, healthy life. I am touched by the absolute miracle the donor gives---and it seems so easy! God bless Micah and his donor!
On the home front, Connor is doing OK---We’ll check his blood counts today and I expect his white cells to be down to around 0.1 or 0.2, which is “nothing”. The big hurdle here is that Chandler came home from school with 102 degree fever yesterday. The sore throat virus (not strep) is moving through our family. Wednesday, the doctor said, “As long as he doesn’t have fever, he may go to school.” He didn’t have fever that day, so I sent him to school the next----that’s when it hit. Not only did he probably spread it at school, but he lives in a home with a brother who has no white cell count! It will be strictly the grace of God if Connor doesn’t get it! Not only was he exposed by Chandler, but he and I spent all of last week together cooped up in a tiny hospital room while I had it. Please pray for him to not get it---and if he does, that it won't get serious.
To complicate things further, Carson has another soccer tournament this weekend over an hour away. If Chandler’s home with fever, and Connor has to go to the hospital with fever, we’ll be short a parent around here! Oh well, we’ll trust that somehow God will see us through and PROVIDE----He always does!
Expecting Connor to begin school around Wednesday,
Laura
****We want you to know about some upcoming events****
September 30---Connor will be honored at the Candlelighters Walk for Kids with Cancer here in Seabrook. We will probably have some type of cookout afterwards at our home to thank you all for your support.
October 7---Tony's high school friends are putting on a benefit golf tournament. It just happens to be Tony’s birthday, too! What a great way to join him in celebrating!
***You are all invited to both events. Check back for more details and registration info.
Wednesday, August 16, 2006 8:43 AM CDT
Day of prayer requests:
-Micah will have his transplant tomorrow---Please blanket him and his family with prayer.
-Emily’s doctors should be convening over her scans. Pray for God to oversee upcoming plans and for His Peace to envelope the family as they “wait”.
-Pray for Dominick another relapse friend of ours with Leukemia.
-Chandler now has my horrible sore throat and I’ll be taking him to the doctor today---Please pray Connor will NOT get it NOR a fever that could put him in the hospital for four days.
Praises---Baby Carson is HOME with both parents and his sister!
-Caroline continues to have improved counts!
-Connor is FINISHED with treatment and healed!
God is good all the time;
All the time, God is good!
Laura
****We want you to know about some upcoming events****
September 30---Connor will be honored at the Candlelighters Walk for Kids with Cancer here in Seabrook. We will probably have some type of cookout afterwards at our home to thank you all for your support.
October 7---Tony's high school friends are putting on a benefit golf tournament. It just happens to be Tony’s birthday, too! What a great way to join him in celebrating!
***You are all invited to both events. Check back for more details and registration info.
Monday, August 14, 2006 12:11 AM CDT
We are home! I just administered the LAST Neulasta shot to boost his white cells. Connor is feeling decent. I’m trying to catch up with household “stuff” after being gone. Tony’s work went crazy this weekend, so he had to work long hours and didn’t have a chance to spend more time at the hospital. Thursday morning, I arrived for my turn at the hospital with one change of clothes, and I was still there Sunday. I’ve got a summer cold and I’m hoping Connor won’t catch it. Mostly, I’m just wiped out. A special thank you to Lori and Jim/Paul and DeDe for adopting Carson/Chandler for the weekend!
The new picture is of Connor and all his girlfriends!!! No, it’s just a small sampling of the wonderful nurses who have taken such good care of him these past nine months. We appreciate them all!!! Look under “view photos” for a shot of our celebratory attack of silly string that surprised Connor! I think we enjoyed it more than he----just because he was feeling pretty cruddy at the time. I told him that when he perks up, he’ll really like the picture! We just love him so much and are so proud of him!
Here’s to good health and Heavenly blessings,
Laura
****We want you to know about some upcoming events****
September 30---Connor will be honored at the Candlelighters Walk for Kids with Cancer here in Seabrook. We will probably have some type of cookout afterwards at our home to thank you all for your support.
October 7---Tony's high school friends are putting on a benefit golf tournament. It just happens to be Tony’s birthday, too! What a great way to join him in celebrating!
***You are all invited to both events. Check back for more details and registration info.
Sunday, August 13, 2006 11:26 AM CDT
Ahhhh----It is finished. We still have some doses of Mesna (kidney and bladder protector) to go, but we are done with chemo. Thank the good Lord! We will head home around 1:00 or 2:00 at my best guess. We so appreciate the great and tremendously dedicated doctors, nurses, surgeons, staff, and volunteers here at MD Anderson. They truly have made this place a home away from home, and we know there is no better place to be for treatment. But it is time for us to move on---to go and live LIFE!!! I pray God will keep our minds clear of fear and just have us experience joy with a rejuvenated zest for Him and life; for He has been faithful!
Thank you, Jesus, for healing our son,
Laura
-Please pray for cousin Weston's continued health---we all just NEED to stay DONE!!! He will have scans on August 24.
-Micah had a much-improved night! Please pray for his transplant on Thursday.
-Baby Carson should get to go HOME for the first time in three months this week! He’ll continue chemo and come to the hospital periodically, but what a relief to go home.
-Emily has very important scans Monday and Tuesday---Pray for great results!
-Caroline’s counts continue to improve. She has some skin bumps they are expecting to be graft vs host disease, but this is expected and “some” is actually good. Keep praying for her full recovery and healing.
****We want you to know about some upcoming events****
September 30---Connor will be honored at the Candlelighters Walk for Kids with Cancer. We will probably have some type of cookout afterwards at our home to thank you all for your support.
October 7---Tony's high school friends are putting on a benefit golf tournament.
***You are all invited to both events. Check back for more details and registration info.
Saturday, August 12, 2006 2:57 PM CDT
Hey, hey, hey! We’re still here at the hospital, but doing fine (not great, but fine). Four chemo double doses down and ONE to GO (scheduled for 1:00am)!!! Yahoo!! I can feel the excitement stirring my insides---Connor doesn’t seem to have “excitement”, but I think that’s the chemo. We just came out of Bingo---It wasn’t our most lucky day, but we’d rather all the luck, blessing, and joy follow us out of this hospital tomorrow and into forever!
Connor and I watched “Finding Nemo” last night. It was strange because it brought my thoughts back to the very beginning of our cancer journey---literally. I believe it was the actual day of original diagnosis. Tony and I were both with Connor for the appointment to receive the pathology report. After the devastating news about our sweet eleven year old, I guess we didn’t know what to say or do---we ended up at the movie theater watching “Finding Nemo”. Connor and I enjoyed it, but Tony came out with the overwhelming feeling of, “It’s the dad’s job to protect the son.” Well Honey, I just want you to know that the movie ends with everyone home and happy, the father and son telling each other, “I love you,” and the dad saying, “Go have an adventure!” We can take that!
Interestingly, we are in the exact same room for this chemo as we were in for the very first infusion over three years ago---I don’t think we’ve been in it at any time in between---a true place of beginning and ENDING. God bless this ENDING!!!
I need to ask you all to pray for little Micah. He is eight, not ten as I had thought. He is about 1/2 way to transplant---at a point of no return---1/2 way through the lethal amount of chemo. He is not approaching it as sure footed as we would like---he is having fevers and has a lump in the side of his neck (CT scan results “inconclusive” to whether it is infection or tumor). We, the parents, believe tumor would be the better of the two as he will soon have NO white cells to fight any type of infection. His days seem to go fine without fever and him up and about---it’s the nights that have been so incredibly difficult. Pray for TODAY to be a turning point, for all symptoms to improve, and everything to transplant smoothly with God in control of everything---as we KNOW He is, was, and always will be! We know, too, that God does not need the help of any chemo to heal. We all believe Micah will pull through with the grace of God and move forward through life!
Thanks from the bottom of my heart for your prayers,
Laura
Friday, August 11, 2006 5:38 PM CDT
We’re having an OK day---Connor is actually out of his room at the moment playing Runescape on the computer. That’s amazing---that he’s out of the room---he came out yesterday afternoon, too! The other moms tease him when comes out because it’s so shocking. I think he, too, is excited about this being the last round even though he doesn’t admit it. We’re three doses down, two to go----and good riddance!!!
I went down to clinic for a bit to get some paperwork for school taken care of and got to see Brandon Pinkerton---yet, another treat. He is now 19, was in treatment with us three years ago, doing awesome, in for routine follow-up, and still as big of a sketch as he was at 16! He’s one hilarious dude. It’s so nice to see some of the cured kids---sometimes at the hospital it feels like you only see the new patients and relapses, which is tough emotionally. This has been a week filled with seeing the ones that have been cured---Now that’s uplifting for the heart! We look forward to being one of them!!
We’re hanging in there---Thanks for your continued prayers,
Laura
Thursday, August 10, 2006 9:17 AM CDT
We are doing fine this morning. Connor is still asleep; Tony is in the shower getting ready to leave for work. I got the little guys to their first day of school---all three have a new school this year. Chandler actually had to watch the clock and get out to the bus on his own---I had to leave at 7:15 to drive Carson’s carpool. Let’s all hope, for the teacher’s sake, Chandler remembered to brush his teeth!
From talking to Tony last night, Connor’s first two doses (two doses each day) went OK----one day down; four to go!!! Dr. Huh did talk to me a bit about follow-up care. The plan will be to scan in a few weeks from head to toe---New Baseline Scans---at least MRI if not also Cat Scan, and bone scan as well. Then we will come in every two months (just like before) for scans and follow up visits. We will also continue to have follow up with the surgeon and plastic surgeon I believe every three months for a bit longer.
On a happy note, I got to see lots of hospital friends yesterday, which warmed my heart! I saw the Sen family---Neil’s parents and brother. What a thrill! It was so good to hug their necks and ask how they are hanging in there---my heart breaks for them. Neil had two drawings chosen for this year’s Children’s Art Project. We sure miss and love him!
Jaime was another surprise to see yesterday. He was a patient with us three years ago also. He had osteosarcoma and I thought they had gone back to Mexico, but NOT---they are still living in Houston. Jaime is doing great, still uses one crutch, and attends physical therapy, but cancer free! He also had artwork chosen. Yesterday was the presentation for the art---Connor didn’t have any chosen this year, but he doesn’t bother to draw and turn things in! We have some old projects we’d like to bring, but haven’t done so yet---maybe next year.
I saw Caroline from afar at the Art Project, too---she looked great, but mask and gloved up! I’m sorry I didn’t get to visit with you guys!
Baby Carson is back at MDA. I got to sneak a peek at him and say, “Hi!” I had a long talk with Dawn, his mom, and she seems to be allowing God to hold her up and keep the faith!
Micah’s mom’s birthday was yesterday, so I got to wish her Happy Birthday in person. Micah will begin the Big Guns of chemo today! He will not have the total body radiation as I thought, because he has already had enough radiation in life. They will work more with chemo and radiate only his skin at a later date. Please keep him in your prayers for his transplant to go smoothly---It will be on the 17th!
Take care and God bless you,
Laura
Wednesday, August 9, 2006 8:30 AM CDT
We are up and getting ready to leave for our LAST one---Praise God!!! The Lord has been so faithful! Loads of appreciation to all of you who have kept our hearts filled with love and support. I can not express how much it has meant for each of us----even Connor just this morning was running through all your many messages---There’s just something special about hitting the down arrow and having the visual of them scrolling before you. You guys have been literal treasure to the heart sent to us by our Heavenly Father to show us His love!
Pray this last one will go smoothly with no complications and no harm to his body and organs. Pray his heart will stay strong and rebuild the strength it has lost (we’re thankful we are already done with the drug that causes the heart damage and will NOT have it this round). God has certainly seen us through the storm, been with us, and carried us---just as He promised!
Tony is going to come in after work and spend the night, so I can get the brothers off to their first day of school Thursday morning----Life continues, and we welcome the newness of this year!
What a friend we have in Jesus!
Laura
Monday, August 7, 2006 10:42 AM CDT
We are all reveling in no early morning activities today!!! We slept in a bit and all the boys had a friend spend the night. Connor was up first and made biscuits from scratch for all! What a nice guy.
I’m sure we’ll all go bowling later today---Connor and Carson have turned into such bowling buffs this summer. Connor topped his high score with a 155 this week! He’s so excited because while looking at the high school club list this week, he found a bowling club that bowls Tuesday afternoons. He’ll have band on Tuesdays for a while, but he plans on joining anyway. It just thrills my heart because I realize the miracle in him even being able to bowl---that his arm works! He also found a Lake Against Cancer club that he plans on joining, but that wasn’t quite as exciting to him.
He’s looking and feeling great! We’re dreading going into the hospital Wednesday – Sunday, but are ever so thankful to God it will be the LAST round, and he can move forward with living life and being a kid! I’m doing much, much better emotionally this time with approaching the end of treatment. The first time, I wasn’t prepared for it, but stopping treatment can be very nerve racking and scary. My mind certainly got wrapped up in the “what if’s”. This time, it’s like I’ve been there; done that. I’d rather live in the wait and scan than be on active treatment. Not that it will be stress free, but it is definitely easier on the whole family---especially my Connor!
Please pray for Emily---she will have her new scans next week to find out how effective her radiation treatments were. Pray for God’s plan to be implemented as doctors figure out what to do next. There is a possibility she can go onto an oral chemo that will allow her to attend school, but they need to know if it’s the right plan---God’s plan---for her long term health!
Also keep praying for Micah. I believe while we’re in this week, he’ll come in for his full body radiation and harsh chemo to bring him down and kill off his own bone marrow in preparation for transplant. His transplant will occur the following week. He is in need of much prayer, but they are very aware of God’s presence and goodness.
Caroline and Carson are still improving!
Praise God,
Laura
Friday, August 4, 2006 9:38 AM CDT
Connor wins most improved attitude this morning. I must admit, the early hour is tough on me, too. This will be a good step to get us ready for school---Connor will have to catch the bus at 6:30am!!
Connor said last night the band director singled out his line as the straightest he’d seen this early in practices! He told the rest of the band that---These are trumpet players---if they can do it, you can certainly do it! I think Connor liked the recognition. Hopefully, he’s starting to feel like he knows a few people at the big high school.
As for me, my latest wrestle with God has been over Micah’s relapse. Micah is our personal miracle---specifically healed and touched by God---what I desire and pray for all the time! Micah actually coded on the table a year ago. Doctor’s brought him back to life. When he came back, his mom, Angie, asked him if he remembered anything while he was “gone”. He replied that he had been talking with God. God told him he would be OK, and He touched him where he was sick (head). Micah was, I think, nine at the time. He had so many tumors in his brain that the doctors stopped counting after about 23. The doctors admit they have no explanation for him being alive. They know it is not for anything they did or have control over---definitely a miracle! More than that, without any treatment at the time, ALL of Micah’s tumors disappeared and were dead. They are gone to this day.
So---How could he relapse? How could it be true after he was healed by the Almighty?
Micah has lymphoma---relapse in the lymph glands and skin. He is already back into remission, but still on chemo and preparing for bone marrow transplant. It took me some time to pray about it and settle my emotions, but I believe the miracle will continue---Micah will soon be completely healed, forever! God obviously has a plan. I believe His word, and He told Micah he’d be OK. Maybe God knew Micah needed His personal word to get him through this last leg of his cancer journey. I’m not sure of the “why” or “how”, but I trust in the Lord.
I know God will also do what is right for Connor. He has the big picture and a plan which is always for good---for that is the unchanging nature of our loving God. My job is not to control, but to trust.
In His love,
Laura
Thursday, August 3, 2006 10:20 AM CDT
Man, somebody was tired and grumpy this morning! I think the daily getting up early is bothering a certain teenager in my household. Connor “didn’t want” anything I had to offer for breakfast this morning---I think he actually went to a four hour session of band camp with NO breakfast. This is very atypical for Connor---that problem is usually reserved for Chandler around this house! Hopefully, the hunger experience will motivate him to eat something tomorrow morning. The truth is out---He’s not always “perfect”—HA!
Hope nobody’s grumpy at your house today,
Laura
Tuesday, August 1, 2006 10:52 PM CDT
Thank you for the many birthday wishes and words of encouragement to Connor. I spent the last six days up in Maine/New Hampshire for Patrick and Cory’s wedding. My parents and sister, Faye, attended also, so it provided some grown-up family time (more relaxing than when we have all 12 kids). It was a wonderful escape and a beautiful wedding. I babysat Patrick years ago, and it’s hard to believe he’s so grown up and in love. For an extra special treat, I got to spend my whole 41st birthday with my relatives from Vermont! We had a gourmet picnic lunch on the beach in Portsmouth, New Hampshire and visited for two days.
Connor did fine while I was gone---his counts dropped on schedule, but have rebounded. He has several bruises on his arms and legs which is a sign of low platelets---the doctor wants us to recheck counts again tomorrow. Thanks to Tony and his mom for taking Connor in for blood work while I was gone! We are going to thoroughly enjoy this last “good week” and then move on to a “good life” after his last chemo. Won’t it be wonderful for him to feel well for more than a week?!!! Wow, God is so good!
Connor was able to attend his high school fish camp today; joining all the other kids finding out about schedules, having tours, and getting ID photos taken. He’s also getting to go to band camp this week---8:00am-12:00noon AND 4:30-8:30pm. Sounds like two-a-day football to me! What a blessing when he gets to participate! I’m so looking forward to him moving on with living life!
I received great news----- Caroline is now OUT of the hospital and Baby Carson is officially back at MDAnderson, out of ICU, and speaking a few words again! Praise God from whom all blessings flow!
Continuous and overflowing thanks for your prayers and messages,
Laura
Tuesday, July 25, 2006 10:58 PM CDT
Connor had a good day. We started the day with all the boys cleaning out their drawers (of clothing that is) to prepare for school!!! Later, I took them bowling for a couple hours. Connor joined us for Carson’s evening soccer game, we went out to eat, and then to Academy for some school stuff. He held up well!
I went and talked to the counselor at the Ninth Grade Center today. He will get Connor permission to wear a hat in class and, more importantly, keep him from having his schedule dropped. Apparently, if you don’t show up for the first day of school, you are dropped and it might be hard to get your class choices again. Boy, am I glad he thought of that! I didn’t even know that could be a problem. We talked also about having to sign a waiver for his attendance to make sure he can get credit for his first semester. Connor will miss the first two weeks of school for his LAST round which will already surpass the amount of days he’s allowed to miss. I am thankful our district works so well with us.
Quick update on friends:
Baby Carson is doing quite a bit better. He will finally be released from ICU and will return to MD Anderson to continue his chemo and recuperation! I can’t wait to see them again! They are hoping to go HOME in about two weeks for the first time in almost three months! God bless them.
Caroline is doing quite well. Her counts are doing well. She is still in the hospital, but if she can eat and drink more, she might get to go “home” to their Houston apartment soon. Drinking fluids is the biggest prayer request as of now along with the bone marrow aspiration taken yesterday---they need it to show 100onor cells!
Emily just got back from Austin with the Sunshine Kids and had a great time. They will go in to clinic the end of this week to see what the next step is. Pray for the doctors and Emily’s body to be healed.
Micah is preparing for his transplant in mid August. He has been blessed with an incredible 13/14 donor bone marrow match! Pray things will go smoothly for him. Pray for Mr. Donor, too---what a hero!
Thanks for your prayers,
Laura
Monday, July 24, 2006 10:47 PM CDT
Yahoo---Connor finally started to feel better this evening! It was so nice to see him up off the couch. I told him tomorrow I’ll take them bowling or whatever he’d like. I’m hoping that will be a big enough carrot to get him out of the house before his counts drop. Sometimes I think he feels better if he can get his mind off things---but he has to feel well enough to go do something. We’re just so happy that it’s almost over and God has been so good to us throughout!
Thanks for checking on him,
Laura
Sunday, July 23, 2006 10:35 PM CDT
My heart is filled with happiness---What a thrill for a mom when her son allows her to curl up alongside him and have a real conversation! Connor was feeling “really bad” as he would say. I asked him where all he feels badly and he replied that it’s mostly his stomach, but his whole body just aches all over. The best description is it’s like his whole body has a migraine. Looking at his long, saddened face, I began to tell him how proud of him we are and how it is so painful for a mom to take her kid in for chemo. I wish I didn’t have to do it, but we do because we love him so much. I continued to tell him that I’m SO glad it’s almost over for HIM. God has taken such good care of him, and I pointed out that he hasn’t had ANY transfusions, ANY delays, ANY complications, or even lost ANY weight! That’s incredible!!
He said he thinks he’s figured out why his last chemo regime was so hard on him and he got SO thin. He said that he would be SO HUNGRY, but the feeling of throwing up was even stronger---so he just couldn’t eat. When I would cook, and he would have to smell it, the hunger/nausea escalated. He said tonight while dinner was cooking, he kinda felt that way again----but he’s learned. He asked for just a plain piece of bread. It helped, and when dinner was ready, he was able to eat a bit. Anyway, I thought I’d share what he’s learned, so if you ever know someone going through chemo, it might help. He’s been through two years of testing.
It’s probably easier to say than do. I remember all too well three years ago repeatedly bringing him all kinds of foods---anything and everything---throughout the day. At most, all he could handle was one or two bites---sometimes for the whole day. Liquids were very important---we were supposed to be flushing his kidneys, but a couple sips were all he could take. Dehydration in turn causes nausea---what a vicious cycle! I would get SO frustrated because it felt like I was failing my job. I would try bribery, kindness, encouragement, being bossy, demanding, and even screaming at times. He just couldn’t eat. Eventually, I had to let go and let it be Connor's job. If he couldn’t do it, it would be the doctor's job via a feeding tube. What a stress reducer---to let go and not be in control! Interesting, that’s what God tries to tell us all the time.
Blessings to you,
Laura
Saturday, July 22, 2006 11:56 PM CDT
Connor is home! He feels pretty cruddy, but par for the course. Thank you, dear Lord, for keeping complications at bay and getting us through. Sometimes there's no going around life's storms; you have to go through them. God is thankfully by our side with His guidance each day---always holding us with His utmost TLC. What a blessing! Like the song says: "I will praise You in the storm...for You are who You are; no matter where I am!"
Lately most of my prayers have been filled with thanksgiving. Connor has done amazingly well through these seven months of chemo. It's almost hard to believe how well he's done. Again, I remind myself---He's doing so well because he has already been healed! I like that thought---even though it seemed to have come from out of the blue. I've convinced myself that because ALL good things come from the Lord, that specific thought was certainly a "good" thing and MUST have come from the Lord. I'll take that!
Anyway, sorry for the late report---Carson had a soccer game and Chandler a baseball tournament in Galveston.
God bless you---every one,
Laura
Friday, July 21, 2006 7:04 PM CDT
Howdy and thank you for continuing to check on us---I know the road has been long. We rejoice in the fact that we go home tomorrow and we only have ONE more chemo round---EVER!! Connor is doing OK and was even out of his room a bit today with the brothers. He has completed all his Iphosphamide doses and will receive the Adriamycin/Doxorubicin around 9:00pm. He’s already decided that he’ll ask for Benadryl in advance so he can just sleep through the nasty red chemo! Sounds like a good plan to me!!
The brothers came early this morning to the hospital and quickly left with the hospital kids to attend the Ringling Brothers' Circus. Connor was also invited, but wasn’t up to it. They came back to Connor’s room later and spent several hours together.
Yesterday, Tony's brother, Jay, came for a visit, and my sister came with Bayley to spend some time with Connor. I had to leave early to get Chandler to baseball, so Faye was our stand-in until Tony could get here after work. There was one point when Bayley was sitting on Connor's bed and he was gently rubbing her back. Isn't that sweet---she's only six. That evening, there was a brownie party and Faye got to meet Caroline, Micah, and their families. She was so excited---she said it was like meeting celebrities!!
Connor was having a trace of blood in his urine (not visible to the eye) the other day, so nurses and doctors have watched him closely. Today things have resolved themselves and the standard test was negative. We thank God that He continually has His healing hands upon our precious Connor.
I attended a memorial service today in the chapel. Three of the honorees were Neal, Dakota, and Aviva. When I saw the list, I just had to go. It was my honor to know and remember them---such precious children with wonderful families. I love them all!!! At the service, they light a candle, show a picture, and remember each sweet child. They talked about how each special patient teaches us how to LOVE and touches our hearts forever. It was nice to take time to focus on and pray for our dear friends; it felt like I was giving each of them a warm hug in my heart.
Praising God that He has given us PERFECT LOVE,
Laura
Wednesday, July 19, 2006 9:57 PM CDT
Connor is doing fine---one dose of Iphosphamide down, two to go! He did fine with it---he sucks on LOTS of peppermints to defer the bad taste and nausea (a great trick). He did have to ask for the Benadryl, so he is already out for the night.
The best news of the day is that I saw Caroline out of her room twice and got to visit with her and her parents. She is doing great, can come out of her room as long as she dons mask and gloves for germ protection, and she actually ATE a tiny bit today! I could see her eyes over her mask and they looked great---you can tell she’s really feeling OK! God is answering prayers again----that’s His specialty!
I went to “Kids Cook” tonight for grilled cheese and cupcakes while Connor watched a movie in his bed. They had already administered the chemo, and he usually doesn’t get out after it’s in his system. I brought him a sandwich and that’s what he had for dinner—he wasn’t interested in the cupcake. While there, I met some new kids: Zach, Charlie, and Logan. I had a long talk with a boy named Yoyo’s mom, too. I’ve met them before, but didn’t know their long story---all these kids need prayer. They are all such brave fighters! Thank you for joining me in praying for them all.
It touched my heart a couple weeks ago when I saw one of you posted a message on one of our hospital friends’ site. I just love when I can see the loving hands of God reaching so far beyond our situation and me. I know from experience it touched the other family, too---When someone you don’t even know is praying for you, you KNOW it is only through the love of Christ.
You guys are so appreciated for every word of encouragement you give us. I still check for your messages and take them so to heart every day!
Laura
Tuesday, July 18, 2006 4:51 PM CDT
Good afternoon. We have completed all our tests for the day and Connor is now at the movies enjoying his last day before the next chemo round. He and Cousin Beau are going to Kemah this evening for dinner. How we wish all our summer could be “vacation”!
We will head up tomorrow late morning to MDAnderson for results of all the tests and by the end of the day will have received chemo. He’ll have an Iphosphamide drip for the first three days, and on the third, he’ll also get the red chemo. The fourth day, which should be Saturday, we’ll get to go home! Sunday, I’ll administer his Neulasta shot to boost his white cells. Connor admitted this set of chemo is worse on him physically than the other set. This will be the last time for this specific combo---Praise God!
Our hospital friends are doing quite well:
Caroline’s transplant is definitely showing signs of early engraftment---yea! Specifically pray for her white count to increase, no infections, all her pain to go away, for her to strengthen, and that she can begin to eat.
Let the praising God begin for Micah! Specialists have found a perfect match for his bone marrow transplant!!! I believe it will occur early August. Pray he will go into it totally healthy.
Baby Carson is showing signs of waking--still in ICU. His beautiful blue eyes are now sometimes open and he has made a few purposeful hand movements. Clinically, his organs are holding up well. His parents are feeling encouraged and that God is with them.
Emily has completed radiation a week and a half early. I don’t know the reasons the doctors chose to be done, but as parents, we have to feel that GOD does not want her to have any more radiation in her lungs. She will scan in three weeks to see if the radiation was effective---please pray that it has!
Pray for my sweet adult friend Kathy. I have not had an update in quite a while despite my emails to her. She’s been on my mind often lately and I believe that’s how God reminds us to pray for and reach out to others.
Thanks for lending us your hearts,
Laura
Monday, July 17, 2006 10:36 PM CDT
Beach Week is over. We are home and exhausted, but had a great time. Why is it that you always need a vacation after a vacation? Reality is slapping us in the face as it always seems to after the wonders of Connor’s good weeks. We must carry on and complete the chemo----so close and yet so far!
We’ll leave at 7:00 am for appointments tomorrow that will test if Connor’s body is up for the next chemo round. We will have his routine echocardiogram to make sure his heart is still strong enough to receive the Adriamycin/Doxorubicin. This is the red drug that I dread putting into his body, yet I’m filled with appreciation for the doctors, scientists, and previous patients who have devoted their lives to increasing our chances for life. What a blessing! I figure that if Connor’s heart is functioning well enough to receive the drug, praise God it will be for the last time! If it is too dangerous to administer the drug, praise God that He knows and is seeing to it that Connor does not need any more of this drug! God created Connor, and He knows what is best for this child of God. I trust in His ways, and His timing; for God is good and full of compassion.
Connor will also have blood work done tomorrow---probably urine testing, too. These will see if the rest of his organs are up to the rigors of more chemo. I fully expect everything to be fine, and for our schedule to resume. Like Tony says, “This will be the last one before the LAST one!” I know God will carry us through. The light at the end of the tunnel is so bright I can hardly wait. When you get so close to the end, it feels like you just CAN’T do it one more day than you have to. Praise God that Connor has not had any complications and that’s he’s just about DONE! The following words to a song have been repeating in my mind all day:
When you believe He’s all you need,
That will be your defining moment.
When you live your life walking in His light,
Trusting Him completely,
That will be, that will be your defining moment.
There’s just something about your child going through cancer treatment that brings you to your knees and helps your realize and be thankful that God is so in control---and I am NOT!
Thanks for your continued prayers,
Laura
Thursday, July 13, 2006 7:15 PM CDT
And the fish count total-------68!!!!! The men and five of the boys went deep sea fishing today and were seriously blessed! Everyone caught several fish. The biggest fish---the kingfish---was caught by guess who? CONNOR!! Yeehaw, sometimes it’s so obvious that God has special plans for that boy!!! Check out the pictures in the photo section to see the entirety of the mass catch. What a great time was had by all! Next year, the other half of the crew will get a chance to top this year’s haul. We are preparing for a fish feast this evening!
Enjoying God’s blessings,
Laura
Tuesday, July 11, 2006 10:22 AM CDT
We are doing fine and enjoying the mass chaos of 19--soon to be 20 people in one house. Connor and the cousins (10 of the 12 being boys) are having a blast on the beach, boogie boarding, skim boarding, making sand castles, making a big “pool” on the beach by digging a big hole, lining it with plastic and filling it with water---then adding baby shrimp from out of the seaweed and small fish they catch with the cast net. They have also played many, many hands of cards!
At this point, we are assuming his counts have rebounded—I’m trying to encourage Connor to go to the local hospital to officially recheck them, but he does NOT want to leave the cousins for THAT. He actually told me he would rather ASSUME they are up. (Can’t say I blame him). For, I believe the first time, Connor is rebelling a little against some of the things he has to do “differently” than the others (water shoes, 50 sunscreen, using a shovel and not digging with fingernails, etc.)---Kinda breaks my heart for him. I am thankful he should be rebounded at this point, so I can lay off being the psycho mom.
God is good and we are so thankful Connor will have “perfect attendance”. We chose the dates a year ago, and who would have guessed it would happen to be Connor’s good week, or even more so that he would relapse in the first place! When we were waiting to see if any of the cousins were sick with runny noses etc., Connor said, “I’m not missing Beach Week, they can sleep outside!” What a blessing to all be together!
Have a blessed day and thanks for caring about us,
Laura
Monday, July 10, 2006 9:07 AM CDT
Good morning from sunny Galveston!!! Connor and I went in to MDA yesterday and his preliminary counts which included his reds were a tiny bit UP showing he had hopefully made the turn! We thanked God and were so happy that He, too, wanted Connor to have 100 percent attendance at my family’s beloved annual Beach Week!!! Well, once we were well on our way to Galveston, I called to get his final results which include the all important ANC---fighting white cells. Unfortunately, they were only at 0.2. They should be at 1.0 before we escape the “bubble boy” lifestyle---OOPS!
We decided to GO FOR IT anyway, but with caution. We did not let Connor swim in the water in fear of bacteria and made him wear water shoes to protect him from shells or glass that could cut his feet. We also made him sleep in our room with his parents rather than with all the kids. He thinks I’m a nerdy mom who’s paranoid. I had to remind him he’s still at risk of going to the hospital. His doctor is probably freaking out now that it’s Monday morning, and he’s finding out.
We are having a wonderful time despite the need for paranoia and hope the white cells will boost today!
Hug your family today,
Laura
Friday, July 7, 2006 9:43 PM CDT
Our little buddy is doing fine. His counts are very low, as expected, and he is being “the bubble boy” staying indoors and away from people and germs. His only outing today was for blood work--ouch! The hardest part is that the cousins are here (at my parents’ house) in preparation for Beach Week. Carson and Chandler spent the night, but Connor had to stay home. He doesn’t complain; he just knows it is to save Beach Week. If he were to catch a germ from the many cousins and get a fever, he would spend four days in the hospital rather than at the beach house. It is just not worth the risk.
His counts were low enough today that the doctor doesn’t want to wait all the way until Monday. He wants us to recheck counts Sunday morning at MDAnderson in case he needs a transfusion. His red cells are the ones most at risk, at 7.6, for now. Pray that his counts will be UP and rebounding on Sunday (even though that would be earlier than normal), so we can head down to the Galveston beach house with the whole gang! Wouldn’t that be an awesome way God could surprise us with joy? That way, Connor wouldn’t have to miss even one day!!!
Last night after dinner, Connor began helping me clean the kitchen---unsolicited!! He stayed and helped me with everything and even did some hand washing. I praised and thanked him. After that, he took out all the trash---again without being asked. I inquired why he was being so helpful---to thank me for taking him bowling that day, because he was so happy to be feeling well, or because he is getting so mature and saw work to be done? His reply was that he didn’t have anything else to do. What a special kid! It made me start thinking---Why does such a sweet boy have to endure so very much? And then I realized: it’s because of all he’s had to endure that he’s so sweet. God has been doing a work within his heart!
Connor’s latest fortune cookie read, “Your heart is your greatest asset.” He noticed the disproportional amount of times his cookie tells him exactly what he needs to hear. He wanted to know scientifically what the probability would be for him to continuously receive messages like that---I told him neither science nor probability had anything to do with it. God knows he needs to FEEL His divine encouragement. Connor sweetly smiled and replied, “I know.”
Thank you, Lord, for your active role in our lives,
Laura
Wednesday, July 5, 2006 9:28 AM CDT
Wow, Wow, and Wow! That’s how well Connor is doing after this past chemo round. I can hardly believe it, and it sure makes me smile!!! Sunday, we came home from the hospital after a total of 10 doses of chemo in five days---Monday, Carson and his buddies talked Connor into going bowling. He did bring a “bucket” with him for just in case, but he bowled the most of two whole games! I did notice on the drive to the alley that he just sat with a blank stare out the window with no expression---I guess I always thought it was the TV that sucked his brain and personality out, but I guess he just feels that bad. Anyway, once again, HE DID IT---the day after chemo. What an awesome dude!
Tuesday, the 4th of July, we had both sets of grandparents over for a shish kabob lunch complete with a fruit flag cake decorated by the three boys! We had a nice visit and it felt good to “socialize” after spending five days in the hospital and coming home to drab rainy weather. Connor ate amazingly well, and believe it or not, he was up to going with Taylor to shoot fireworks outside the city limits like a good little pyromaniac! He had his pocket filled with nausea meds, but had a great time. God is certainly bringing him joy so he, too, can enjoy some more days of summer.
God is answering our prayers,
Laura
Sunday, July 2, 2006 10:07 PM CDT
What a difference a year makes. Last summer seemed so easy. The picture above was taken in San Diego last year during a family vacation. The insert is Connor this past weekend. Connor is home and doing relatively well. Eight chemos down and two to go - or as I like to think about it: one more chemo and then the LAST ONE! It seems so much better than having to say two more to go. We will probably be sitting around the house for the Fourth of July. We go to the beach the following week and we don't want to do anything that might put that in jeopardy.
Have a safe and happy 4th and say an extra prayer for our troops overseas defending our freedom and way of life. We are so blessed to live in such a great country.
Sunday, July 2, 2006 12:51 AM CDT
Sunday----We are preparing to go home. Connor is receiving his last dose of Mesna to protect his liver and kidneys, and I just got back from the pharmacy picking up his $130.00 worth of meds that go home with us (Neulasta, Emend, and Levaquin). Connor’s feeling pretty cruddy, but resisting the need for Benadryl because he doesn’t want to sleep all afternoon. We should head home around 2:00. God has carried us through once again without complications---Amen and amen!
Please pray for Gustavo, probably age five. I do not know his family, but I was in the hallway last night when they were transferring him to ICU. He was coughing up blood; he's in need of prayer and the healing touch of our Lord.
Thanks for praying for God's protection over Connor's whole body,
Laura
Saturday, July 1, 2006 6:12 PM CDT
Saturday’s report: Connor is doing OK---sleeping for now. He did actually get out of bed (for the first time since chemo Wednesday afternoon) for big, exciting Bingo!!! I could tell he was struggling with nausea throughout because he was taking deep breaths and bouncing his leg with a nervous twitch, but he made it to almost the end and won two prizes! When he came back to his room, he had to ask for Benadryl for the nausea----henceforth the nap from 2:30 to 6:30, 7:00 (who knows?).
This evening I expect he will be doing a little better. I think I’m going to stay the night again because tonight’s chemo will begin around 1:00 am. There will be intermittent beeping all night long with both chemos, their flushes, all the Mesna, and other additional meds. Oh, and how can I forget the blood pressure machine that stays hooked up to Connor's arm the whole hour that the Etoposide/VP16 infuses and automatically goes off every 15 minutes. I’d hate for Tony to be sleeping on the job Monday---or worse---sleeping on the WAY to the job!
Caroline is feeling better today--YEA! Andrew and Carson have been hanging out since yesterday and I think he might spend the night again! Chandler is in San Antonio with a friend’s family--now that's a NICE escape!
Thank you so much for continuing to pray for us. We know the journey is LONG. Thank you for being amongst our many blessings. It does our hearts so much good to know you continue to remember us and our special boys.
God is with us,
Laura
Friday, June 30, 2006 11:58 AM CDT
Happy Friday!!! Connor is now in the middle of his second chemo for today---passing the ½ way point of this eighth round. We all just can’t wait to be finished FOR GOOD and resume life with new and improved perspectives! I keep clinging to the thought that Connor is dong so well on this chemo because the tumors are already GONE and he is already HEALED!! I’m sure none of us can even comprehend how ready Connor is to put this all behind him. I’m sure if I asked, he’d say, “Sure,” in his typical way. There’s got to be so much more than that swirling around his head, but he never expresses it----My woman self can’t really comprehend.
I did bring Carson up to the hospital for the day. I told him that besides being a perk for Connor, Andrew would probably love to have a friend that is not attached to an IV pole!! Actually, if they get along well, we plan on taking Andrew home with Carson so Tony can take them to do some fun things, and he can spend the night. I’m sure they, too, need mental distraction from the stresses of having a sibling undergoing treatment. God bless the siblings, too!
Caroline is doing fine---still nauseous from the harsh chemo, but I heard she’s wanting her Grandma’s gumbo this morning---that’s got to be a good sign. Official grafting will take from two to three weeks, so they wait and pray. The battle is the Lord’s.
Baby Carson has not had much change---He mostly sleeps and rests as his body heals. I do think they are continuing chemo to keep the leukemia in check, but not administering the one that had the reaction in the brain. They, too, wait and pray.
Micah is running all over the hospital as usual. You would never know he’s back on chemo. He’s such a lively little charmer!!!
Emily is doing fine with the radiation so far----Having chemo complications with her heart though. I do not know all the details, but God does.
Thanks for keeping up the prayers---they make all the difference in the world,
Laura
Thursday, June 29, 2006 4:20 PM CDT
Thursday afternoon here---Connor has already had two of his chemo doses this round. He is feeling cruddy, but in a normal sort of way. It’s been a little fun because Micah and Andrew have been hanging out some in our room playing Playstation. Andrew is Caroline’s brother, and he’s 10 which is too young to go into her room while she’s in isolation. All has gone smoothly with her transplant so far---God is good! I actually got to see the bag of pinkish/reddish marrow cells in the hallway before they were transfused. I’m assuming they were refrigerator cold too, because that’s how blood products are usually transfused (I felt the bag once when Connor was receiving red cells). When the doctors and nurses took them into her room, there were definitely butterflies in my stomach---hard to tell if it was nerves or excitement, maybe a little of both, but definitely a mind-blowing miracle of life! I did join Caroline's dad in a day of fasting and prayer for all the kids up at the hospital and our adult friends, too.
I’m hoping to bring Carson up at some point this weekend, maybe Saturday for Bingo. Chandler is going to San Antonio for the weekend with a friend’s family. Right now the boys are split between the grandparents, and I’m sure having a wonderful time. We are so blessed to have relatives living nearby! Thank you to every one of you who so kindly help us “parent” our children in different locations. Like the saying goes: Sometimes it takes a tribe to raise the children.
Keep praying for our Connor and hospital friends---It seems like there's so many tiny babies here this time which just breaks my heart.
God’s blessings to you all,
Laura
Wednesday, June 28, 2006 8:21 AM CDT
It is Wednesday----again. We will head up to MDAnderson around 9:00 for our third to last chemo treatment. I am thankful it will not be the red one. They will squeeze five treatments into four days by giving chemo every 20 hours rather than every 24---that’s the way this cycle is always given. We will expect to come home Sunday afternoon. God bless and watch over Connor’s body, spirit, and mind---We take comfort in Him and are so thankful He never said we have to do anything alone. God is always with us.
Today is Caroline’s transplant around 2:00 – 3:30pm. Please pray for her. I will join family and friends for prayer at the hospital. She will begin 100 days in isolation (family only). She is giving new meaning to “New Life Wednesday” today. God bless her, her family, and her donor, too. Somehow Connor’s chemo seems a little small today.
Thank your for your continued prayers,
Laura
Tuesday, June 27, 2006 8:55 AM CDT
Good morning! Today’s our last day of “fun” before chemo round # eight. Not sure what we’ll do---whatever Connor wants!!!! That’s how we spoil him the best!
Sunday after church, I took him to my parents’ house where he could get some special TLC and spend the night. Monday, late afternoon, I picked him up and he attended his first tennis lesson post surgery! He actually did quite well---we were all pleased. His back hand looked great, his forehand pretty good, and his serve is the most difficult---We expected that with his range of motion loss. Doctors say he’ll be weak on his right side coming across his body and pulling his arm back (sounds like tennis to me) due to the muscle extractions and relocation, but HE DID IT! It felt so good to see him play and be physical!
He also made it to his trumpet lesson last night. We had an hour to kill before Carson got out of soccer, so I took him for a surprise activity in a church parking lot. I let him DRIVE!!! I think and hope he was thrilled. That boy deserves every thrill he can get!
Prayer Request Update:
CAROLINE----Pray for a smooth bone marrow transplant Wed. morning! She has completed the total body radiation and is now on the super harsh chemo. Wednesday will literally be her new birthday thanks to the wonderful Mr. Donor Man (confidential---they don’t know who it is, but they were told that this is HIS way of giving life, since his wife was the one who could give birth). What a HERO!
EMILY----She continues radiation to her lungs. Thank God she seems to be doing well so far!
BABY CARSON----Spots on the brain are confirmed not cancerous—yeah! Doctors now believe it is a complication from one of his chemo drugs. He is still in Herman ICU and basically sedated. Pray for God’s comfort and healing for them.
MICAH----He has relapsed--breaks my heart. Pray for peace and Godly wisdom for the doctors.
Love you guys with all my heart,
Laura
Saturday, June 24, 2006 11:42 AM CDT
Connor’s still feeling and looking well overall. His legs have lots of bruises due to the low platelet count, but that should be improving. Sometimes when I look at him---very closely, it breaks my heart to see that the chemo is certainly taking its toll. Of course he’s bald, his legs are hairless and very thin---no muscle due to laying on the couch so much, he hardly has any eyebrows left, he’s down to about eight, short, stubby eyelashes on each eye, of course there’s lots of scaring from the multiple surgeries on his chest and back, there’s a lump on the opposite side of his chest where the catheter is implanted, he’s pale, and I know his heart is not functioning as well as it should-------------BUT------------His spirits are still strong, he knows God is with him, he’s been able to maintain his weight, he’s kept a functioning right arm, he’s kept up in school, and he’s looking forward to being DONE and moving on with his future!! There are truly blessings on the road of difficulty!!!
Interestingly, when we ate Chinese food the other night, Connor’s fortune cookie read, “Every burden is a blessing”. We discussed how that was no coincidence---that was again, God letting us know He is always with us!
Yesterday, Connor went sailing with the Sunshine Kids, a childhood cancer organization, and much to his pleasure; Carson came home from soccer camp! We sure missed him! We spent the evening with several families (our old camping buddies) in Friendswood.
Enjoying the good week,
Laura
Friday, June 23, 2006 9:15 AM CDT
Boy, the documentary on PBS was much harder to watch than I ever imagined! I’ve seen one before that included three of the same children with way less detail of their stories---it was a condensed version lasting a total of one hour. Two of the three were the same kids who “made it”--- (That is the version I was expecting to be aired and thought would be OK for people to watch.) That version was much easier to accept. I didn’t like the statistics on this version including five little cancer kids. I’m telling you---It breaks your heart to live in the world of cancer (or any type of suffering). That’s what leads to the eyes of the heart being opened, the Grinch like experience of your heart GROWING three sizes, and the opportunity to seek God with all your heart! Weren’t the kids the bravest you’d ever seen? I just fall in love with them all.
Connor inspires me so much---never complains, keeps his chin up, and sees that God is faithful! Sometimes I am awed by how many “normal” things he continues to do. Nicole, his nurse the first chemo regime, was so pleased that he stayed in real school---She said they always tell the kids they can, but they usually never stick it out to the end. Connor amazed her, too! I just love him with all my heart!
Thank you, Lord, for filling Connor with your exceptional inner strength! Thank you for his low key personality and ability to let things roll off his back, and for keeping sickness and infection at bay so he has been able to march forward in school. I praise you for the gift of his brothers who bring him joy and laughter! Thank you for the incredible support system you’ve put into place for our whole family---I know it is your way of actively showing us your divine LOVE! Thank you for literally carrying the burden for us when our hearts get too heavy. I praise you for your healing touch and continuing miracles that happen every day. I praise you for healing our Connor and never leaving our side---for the ways you reveal to us that your words are TRUE and you ARE the GREAT I AM!!!
In the precious name of Jesus,
Laura
Thursday, June 22, 2006 8:06 AM CDT
We were thrilled to get Connor’s blood count back yesterday----ANC (fighting whites) up to 1.4 from 0.28---now that’s more like it! His reds went up to 7.4 and his platelets increased to 40. Everything is still low, but definitely improving---no fear of transfusions at this point. We’ve been blessed with NO transfusions so far! Last chemo regime, Connor had lots of red and platelet transfusions which is just one more scary part of cancer treatment. Actually, I’ve had a new sense of appreciation towards God that Connor’s treatment really seems to go quite smoothly without complications. He truly is keeping us in His care.
I recall feeling so guilty that while I signed Carson and Chandler up for soccer, football, basketball, baseball etc., I had to sign Connor up for chemo, radiation, surgery, transfusions and so forth. It was SO not fair! If my younger kids ever complain about things not being fair, I usually tell them to ask Connor if life is “fair”. It’s a tough spot as a parent---trying to teach the kids about fairness---especially when one child requires so much attention. It’s true, life is not “fair” and it probably never will be. I try to tell my boys that we all have some lucky days, and some not, but God loves us all the same!
Anyway, we did get to go bowling yesterday and Connor invited a couple friends. He was trying to perfect bowling like the pro’s---where the ball rolls to the very outside of the lane and because of spin, curves back to the center just in time before it becomes a gutter ball! What a blessing that his arm works as well as it does! Stretching it out to the side more than 90 degrees is still a problem as well as rotating it, and stretching it way back. We really need to work it---It would be nice if he could throw a baseball with his kids one day. I really think tennis is the best way to work it for him (he’s really not a great physical therapy patient). I NEED to get him signed up!
I had a very enjoyable evening with the wives of Tony’s business partners last night. We went to The Mad Potter, had dinner catered, and painted pottery. They were very gracious and scheduled it around Connor’s chemo and tried in every way to make it a most enjoyable evening escape for little ole ME. Thank you ladies!!
Tonight’s the last of “A LION IN THE HOUSE” broadcasts about childhood cancer. 8:00pm on PBS. Keep praying for our Connor, Caroline, Micah, Emily, Hazim, and Baby Carson. Jesus loves the little children of the world!
Love and thanks to all of you,
Laura
Tuesday, June 20, 2006 10:29 PM CDT
Happy birthday to my dear ol’ dad!!! I sure do love you-more! We enjoyed spending the evening with you and making you birthday cake. We missed Carson being there, but Trevor was a good stand-in.
The huge surprise of the day was when we found out that Connor’s counts are still basically at the bottom! ANC (white fighting cells) at 0.28--- I expected them to be well over 1.0 which is what is required to go in public. The last two days, Connor’s been all over town because his normal cycle would have already had him up and safe to enter into the real world. OOPS--that can be dangerous!!
His hemoglobin/red cells are also VERY low---at 7.1---if it drops below 7.0, he will need a transfusion. He usually hangs around 8.something while on chemo. His platelets are at 26---also low. Tomorrow will be two weeks since he began his last chemo round, so this is very late for him to still be so low. Sometimes, after so many months of chemo, the bone marrow starts getting “tired”. The doctor definitely wants us to recheck them tomorrow morning to make sure he’s going UP rather than DOWN!!! We were told to be prepared to transfuse tomorrow, but I believe he’ll be up! He just looks good and acts as if he feels good---besides, he wants to go bowling tomorrow!
Pray for his body---to keep up the hard work of the fight! Pray that he has not picked up any bad germs while out and about and for NO infections! Pray he’ll rebound, so he can have FUN this week before he gets blasted again next Wednesday. Pray he will be able to GET his chemo next Wednesday as scheduled. We do not want any delays---we just want to FINISH; however sometimes the delays are necessary to keep patients SAFE. Pray God will continue to HOLD us in His arms of love and compassion---I know He will!
Pray for Caroline---she begins full body radiation tomorrow---the first of her 7 day countdown to bone marrow transplant and new birthday! God will CARRY her through!
Thanks for your prayers,
Laura
"LION IN THE HOUSE" about childhood cancer Wed. and Thurs. 8:00 on PBS. These two nights will be more about the kids experiences,not so much "talking" as was tonight's broadcast.
Monday, June 19, 2006 3:48 PM CDT
Howdy---Connor is feeling fine today. His counts should be rebounded---we just got back from the local hospital doing blood work, so we’ll know the results around 5:00. I drove to Pearland and picked up Trevor today. The new picture is of Connor and the stained glass piece he designed and made himself in a school mini-course class. He was the only boy in the class, but the teacher said he's a natural! More pics under "view photos" also.
Tony and I had a wonderful time on our much needed escape, and we got to spend time with both our dads on Father's Day.
Carson is at a soccer camp all week (in the rain), and Chandler was supposed to go to Camp Star Trails, MD Anderson’s camp for patients and siblings, but he chose NOT to go---He just wants cancer to GO AWAY and leave our family ALONE!!!! We discussed that maybe next year, when cancer is not a part of our daily lives, they may all want to go again. They really do have a fun time---all my boys have been the past two years. Connor went to the “teen” camp last year, but will be busy with high school band camp this year as it is held the first week of August.
PBS will be airing a series on childhood cancer this week. Tuesday, at 7:00pm will be the Houston documentary with, I believe, local patients. It is called "LIVING WITH THE LION: CHILDHOOD CANCER". Two weeks ago, they contacted us about an interview, but I never heard anything else. I guess they used other families---maybe some of our friends! The national documentary will air Wednesday and Thursday at 8:00pm (check your local PBS listings for the actual time). This two part series is called "A LION IN THE HOUSE".
The website is:
http://www.pbs.org/independentlens/lioninthehouse/index.htm
OR
www.houstonpbs.org
-if you are interested. I have not seen the series yet, but I have heard that it is an excellent insight as to how cancer can affect not only the person fighting the disease, but all those around them as well. If it's like another documentary that my boys and I did see, all the kids do not "make it" and it kinda gets a little scary (like our reality), but in the end, several of the kids do make it and are doing fine. It ends on a positive note. I personally feel it would be good and educational for kids Connor's age (14) and older---younger than that, I'm not sure---depends on the kid and their exposure to childhood cancer. Jennifer, maybe not your kids---I think it would hit too close to home. Just let them enjoy the fact that life is good!
Their synopsis: A LION IN THE HOUSE follows the stories of five exceptional children and their families as they battle pediatric cancer. From the trauma of diagnosis to the physical toll of treatment, this series documents the stresses that can tear a family apart as well as the courage of children facing the possibility of death with honesty, dignity and humor. As the film compresses six years into one narrative, it puts viewers in the shoes of parents, physicians, nurses, siblings, grandparents and social workers who struggle to defeat an indiscriminate and predatory disease.
Just wanted to let you guys know,
Laura
Saturday, June 17, 2006 8:02 AM CDT
Good morning! Thanks for joining us for our daily soap opera---As Our World Turns for All My Children, especially for Connor’s (Ryan’s) Hope! We can’t express how we need and are so thankful for your support. You guys are truly the typing hands of Christ---filling our hearts when our hearts feel HEAVY. Your messages make such a difference -- thank you!
Last night, my thoughtful husband informed me to pack an overnight bag and be ready to wisk off to Galveston today. His father is coming to stay with the boys (Anne is out of town). We will be joining some friends, Jim and Becky, at a bed and breakfast for some escape from reality and together time. We will return Sunday morning. What a treat! I know we’ll have a wonderful time. The boys will have fun with Grandpa, too!
Connor is feeling quite well---a little tired from low counts, but fine. We will recheck counts Monday to make sure he’s rebounding as normal and safe to get out of the house. I want him to have lots of FUN next week as I think it’s his last “feel good” week of summer that he doesn’t have other plans---hard to believe! The other night, right before he went to bed, he reached up and gave me a huge, unsolicited hug! I loved it!
Hug the ones you love today,
Laura
Friday, June 16, 2006 9:20 AM CDT
Ten years ago today, my 27 year old brother, Jim, had his earthly life cut short in a car wreck. It was Father’s Day, he had just gotten engaged in East Texas, and they were driving home around noon to celebrate with us.
The dark and rumbling sky this morning takes me back to similar weather on the day we put his body to rest. The rain felt so appropriate---like the Heavens were joining us with tears. I remember lying in bed, listening to the rain, not wanting to get up, NOT wanting to do what I had to do that day! It is still so surreal. I can’t believe it’s been ten years. It just feels like it’s been SO long since I’ve gotten to talk with my brother and hug his super tall neck! I miss him so much. I can’t even imagine the pain my parents still feel. People say losing a child makes living harder, but dying easier. Thank God for His plan for us to be together again in Heaven! We have true HOPE.
Even though Connor’s counts are super low today, we will venture out to the cemetery with my parents and eat Reese's---Jim's favorite! I figure there are not many public germs there.
Pray for my parents’ hearts today,
Laura
Thursday, June 15, 2006 4:22 PM CDT
Connor is feeling GREAT! We went to see the movie “Cars” yesterday with the Lincecum family, and we brought Ryan home with us to spend the night. They are swimming in the neighbor’s pool right now having a wonderful time (Thanks Ed and Diane!). Tonight we’ll take Ryan home because by tomorrow I expect Connor’s counts to be bottomed out and public places, friends, and swimming will all be no-no’s. We will spend the next couple days in the house staying away from germs (fun-fun).
We’ve got lots of prayer requests----
1) Caroline---She is heading into bone marrow transplant preparation next week beginning June 20th. She will have 2 days total body radiation and then 2 harsh chemos. At the end of one week, she will receive her new bone marrow from an undisclosed donor. Thank God for you, Mr. Donor Man!!! What a hero!!! Please pray for NO infections, and successful grafting without rejection. God will work out all the details----Good thing God’s in control because it’s one of those situations where everything must work perfectly. We love Caroline and her family---May God bless them.
2) Baby Carson---He is still at Herman Children’s ICU. Preliminary reports show the spots on his brain NOT to be more leukemia or infection, so----even though they are pleased, they still WAIT to find out what the spots actually are. It has been a long, difficult road so far. It has been well over a month since diagnosis and they haven’t gotten to go home, yet. Great news---blood tests show the leukemia now to be in clinical remission. God is certainly with them!
3) Emily---Monday, she will begin five weeks of daily radiation to her lungs. Pray for no complications and for her strength as radiation is exhausting. Surgery may still be in the near future, but for now they feel it would be quite invasive. Pray the radiation will greatly shrink any cancer, so surgery will be a safe option---or better yet, that all cancer cells would die and BE GONE! Our God is far greater than any cancer, chemo, or radiation machine!!!
4) Micah---Pray the antibiotics have cleared up his lymph nodes and all is well!
Thanks to you for all your compassion,
Laura
Tuesday, June 13, 2006 4:20 PM CDT
Woo—Hoo!! We all feel better today because CONNOR feels better. I can read it all over his face! He did end up throwing up, but only once, yesterday and could hardly eat. He kept asking for green grapes---He said that’s like eating and drinking at the same time! This morning, he came all the way into the kitchen (no stopping at the couch) and made his own bowl of cereal---I knew immediately that he was feeling much better!
Gramee stopped by and took us to lunch at the BBQ place---Connor’s pick. It felt good that he was up to getting out of the house and off the couch if even just for a bit.
One evening last week, we were watching a documentary about childhood cancer. We all agreed that we are doing much better than the families on TV----Of course they were showing the shock and terror of original diagnosis and getting into the beginnings of treatment---which we are way passed, by three years. Anyway, I thought Carson’s response was so insightful for an eleven year old boy. He said, “Well, they don’t have anyone to make them laugh. I try to make Connor laugh!” It is so true. Carson does a beautiful job of keeping Connor in stitches, and he often refers to the fact that laughter is the best medicine! I so rarely get any insight into how any of my boys are dealing with all this----I believe Carson has appointed himself the job of giving Connor the medicine of laughter. What an awesome brother! I am so proud of him!
May you all share in a little laughter today,
Laura
Monday, June 12, 2006 10:33 AM CDT
Connor’s not feeling too well this morning---mega nausea, but still holding his cookies. He said he woke up early and was starving, but too nauseous to get out of the bed so just went back to sleep. When he finally came downstairs he was doing that slow, deep breathing thing, like being in labor, trying to ward off the desire to throw up. I made him some oatmeal to try and fill his tummy some, but he was only able to eat a couple bites despite his hunger.
Sorry to give all the details, but I’m trying to honestly share our experience. I was so clueless at the beginning even though I certainly had known people who had cancer. I actually thought patients just throw up and loose their hair. I had no idea about the millions of other issues that are so difficult for the entire family. One thing I have learned is no two cases are exactly the same----you can have two patients with the same diagnosis and on the same chemo, but their experiences, side effects, and responses to the chemo, will certainly be different. I think this is what makes the science of oncology so difficult for the experts. We are so blessed to be walking this road now and not 50 years ago. God is good.
Looking forward to a few days from now when Connor feels better.
God bless you,
Laura
Sunday, June 11, 2006 2:42 PM CDT
Sunday brings peace that we are together and home. This morning I asked Connor how he was feeling and he replied, “Like throwing up.” He hasn’t, but he’s done a bunch of his special spitting in the bucket. He had to take a Benadryl for the nausea, so he’s been asleep for a bit.
Tony and I actually had a date---We went to church TOGETHER and out for lunch. This beats Wednesday morning as he left for work and he told me, “See you Friday night.” Seems like when Connor’s in the hospital, that’s how life is---kind of on a rotation. We actually left Carson home today to be the parent for Connor and get him whatever he needs. Chandler went to the Astro’s game with a friend. It was nice having time with my hubby.
The sermon was about our spiritual gifts and how they are not “gifts” until we give them away. God granted them to each of us to bless others with---not to hoard for ourselves. I kept thinking about all the love, support, and compassion that each of you has gifted us. You have shown us the compassion of Christ--- it IS a gift we have received from the Spirit. Now, it’s my turn to SHARE the compassion and in turn give it to the other families I meet at the hospital, or in life.
With the shock of diagnosis and desperation of relapse, I feel it is the appropriate time to “collect” the love and compassion you receive from others----Trust me---It’s the main thing, along with knowing that God is good and in control, that gets you through each day and makes you feel any better. I can’t thank each of you enough. It really is all about LOVE; loving others, and having them love you---each in our times of need. You guys have filled me so full of love (and I know it’s been Heavenly inspired) that now I’m praying I can “runneth over” into the lives of others. I don’t know exactly to whom or how, but God will lead the way!
Pay it forward!
Laura
Saturday, June 10, 2006 1:01 PM CDT
Happy Birthday, Anne---my favorite mother-in-law! Connor will be coming home from the hospital today! He has completed chemo round # 7----He’s not feeling that great, but he’s not throwing up either. He didn’t get the Doxorubicin/Adriamycin until around 8:00 am this morning, so I want him to receive fluids for a while. Right now his urine is still orange, not red anymore, but I certainly want it to be regular color before we head home to sufficiently flush his liver and kidneys. We’ll shoot for leaving around 3:00.
He did go to Pet Therapy at 11:00 today for a bit. This was a first for him---I’ve never even heard of it here at MDA before. I don’t know if it’s a new program or that we just haven’t been here on the right day. I’m just always glad when he feels good enough to get out of the bed! Actually, he’s been asking for less Benadryl to use for nausea---I don’t think he likes sleeping all day. He does so well on the Emend and Aloxi cocktail for nausea. These are both new nausea meds for pediatric patients since beginning three years ago. I had an interesting conversation with Dr. Quezada about I’m not sure if this chemo is not as harsh on his stomach as the chemo three years ago, or if it’s the better nausea meds. He is fully confident that it’s the nausea meds---this chemo regime is very strong! Connor is still weighing in around 106 pounds and he began at 108---That’s wonderful!
Can’t wait to get home,
Laura
Friday, June 9, 2006 11:26 AM CDT
Happy Friday! We are all here at the hospital---When we arrived, Tony left for work---He’s a little bit bummed because this weekend is his company’s big fishing tournament, so most of the office will be fishing today while Tony is doing paperwork. He did not participate in the tournament this year even though he LOVES fishing because it was Connor’s chemo weekend and it really takes the two of us to parent our children in different locations. I don’t know what I’d do without him! He holds our family together and I’m so thankful for his leadership and tender heart. Love you, Honey!
Connor certainly perked up when the brothers got here. They are playing Playstation in the room at the moment. I noticed on the school schedule “Just Desserts” after lunchtime, which is designed to get the kids out of their rooms and have fun and also for the kids who come in for the schooling program. After that, Mad Science will be for an hour. I think all my boys will enjoy that----It’s one of the school programs Connor will actually choose to participate in, if he feels up to it. These are both programs paid for by the Children’s Art Project---the Christmas cards etc. made by the pediatric patients here---so it’s money well spent if you ever purchase! I also checked out the movie Zathura that my kid’s have yet to see. Connor brought his travel poker set, so maybe they’ll take some time to play. All in all, I expect it to be an enjoyable day. I was pleased that the little guys really didn’t complain about spending the day at the hospital. I did take them to Mr. Gatti’s yesterday with friends and the friends spent the night. We just had to take them home pretty early this morning. It’s nice to have all my boys together.
Have a blessed day,
Laura
Oh, I did get a short update on Baby Carson last night. He is still at Herman Hospital in a very serious condition, but he is stable. Thank God! They still do not know if the spots on the brain are more leukemia or some kind of infection. I wish I could hug their necks! Please keep praying for that precious family. Also, pray for Hazim---I briefly saw his mom yesterday and they have increased his chemo---I don’t know the details, but God does. Micah has been off treatment I believe 9 weeks and he’s got some type of infection involving his lymph nodes---This is troublesome because he has had lymphoma. Pray the antibiotics take care of it quickly. I met a beautiful, 5 year old Vivianna from Mexico the day before yesterday here at the hospital. God bless her, too!
Thursday, June 8, 2006 12:31 AM CDT
Good day to all! Connor is doing quite well---He says he’s not great, but not real bad either. Janie came with a surprise visit and donuts/kolaches---I reminded Connor that’s a God love thing and he agreed! Tony’s dad is coming up for the afternoon, so I can pick the little guys up from basketball camp and I’ll probably take them to Mr. Gatti’s with their friends for the afternoon.
This chemo round we only get one drug (Iphosphamide) each day until the third day on which we get both Iphosphamide and Adriamycin/Doxorubicin---often referred to as the “red devil” or
“red death”---lovely isn’t it? It’s the one that can be cardiotoxic. His echocardiogram shows that his heart function (I’m not sure if “function” is the right word) but whatever they measure is at 55 to 60 percent down from his normal start of 70 percent. At this point, I do not think it is of concern to the doctor, and supposedly it's a common range for a kid on this chemo. If it drops below 50 percent, it will be too dangerous to administer the red drug. Please keep praying for his heart and other organs as well as this being the LAST time he ever has to play the chemo/cancer game. Thank God that after getting this drug on Friday, we only have to receive it one more time! I asked if his heart would rebuild in time, and the reply was that some do, some don’t---we’ll have to wait and see. I don’t think Connor has any symptoms or feels it in any way.
I have not had an update on Baby Carson, Caroline, Emily, or even Kyle in a bit. As far as I know Caroline and Emily are doing well as of now. I never heard if the part of Kyle’s lung removed was cancerous or not---the fact that I haven’t heard or seen them up at the hospital is getting my hopes up! Just keep praying anyway. We are all desperate to see and feel God working in our situation. That’s one thing about cancer treatment---It gives you the chance to seek God with your whole heart!
Thanks for your prayers and for hanging with us,
Laura
Tuesday, June 6, 2006 2:09 PM CDT
New picture is actually an old one -Connor in second grade and Weston in kindergarten. Jennifer found this pic while Weston was undergoing treatment. It touched us all. What are the chances that out of the 12 cousins, we'd have a pic of these two clinging to eachother? God knew long ago. She is the one who added the words of the song "Voice of Truth"---It is another inspiring song on FM 89.3.
Yes, praise God---everyone has a clean set of scans! Now we can have summer! Weston will scan again in three months; Connor at the end of treatment probably in September (which happens to be three months also). In the meantime, we will move on with love and life!
Tomorrow, Connor goes in for chemo round number 7----Only 3 more after Saturday! We requested to change him to a Wednesday schedule rather than Friday to better fit his good weeks to the weeks we have summer plans. This will be the shorter round, but the red drug. We shall overcome! We expect to come home from the hospital Saturday.
Carson and Chandler are attending a 2 ½ hour basketball camp with friends this week which will help keep them occupied. They don’t know it yet, but I think Friday they will come with me to the hospital and spend the day with their brother. It’s been a long time since they spent a whole day there, and once in a blue moon I think it’s good for them to see Connor’s reality first hand. They can play in the pedidome, watch movies, play cards and Playstation----They will survive!
Thank the good Lord for our lightened hearts tonight,
Laura
Monday, June 5, 2006 11:30 PM CDT
All the scans are done----We do not have results----so we wait. Connor did very well, of course, and another adult patient commented on how he seems like he knows exactly what he’s doing---unfortunately, he’s got a lot of experience. Weston’s reportedly went well also, with no mishaps.
I’m trying to keep scary thoughts at bay. The mind can drive you crazy. During the scan (in which I could see the screen the whole time), I try to read anything and everything into the ultrasound technician’s facial expressions, eye contact, scan pauses, comments, questions (ie “When was his last ultrasound?), and even if I think the scan is taking too long. It really makes my mind spin, but I’ve already learned that most of the time I’m wrong anyway with my speculations----So I try to force myself to stop! I remind myself that I am NOT trained to figure out what the black and white picture that looks like the Weather Channel means. I do not know what things are supposed to look like, so the shadows and highlights trouble me at times. I just need to hear that my Connor is FINE tomorrow----and I’m sure I will!
We go in the morning for the next echocardiogram, blood work, and meeting with the surgeon, Dr. Yasko, for follow up. He is the one who ordered the scans, so he will give us the report. We don’t meet with him until 2:30, so it will be late afternoon before we know anything. I will report as soon as we get home.
Thank you for all your prayers,
Laura
Sunday, June 4, 2006 11:12 PM CDT
Tomorrow will begin with an early start to MDAnderson for Connor’s scans---ultrasound of his right shoulder area and chest x-ray. We could actually be on our way home by noon. By the time we get home, Weston will be headed in for his CT scan and MRI out in California. I don’t expect either of us to have results until Tuesday. I am confident both boys are fine. It will be a prayer filled day---Thank you for supporting us!
I had a wonderful experience today----I was driving alone (no sweaty boys in the car) and I was praying about the scans asking God to have the healing compassion of Jesus upon our family----I looked up, and a butterfly fluttered across my windshield. Immediately, I felt God’s presence and reassurance. In my next breath, a song began to play on the radio that often inspires me.
It’s a song that speculates on the feelings of inadequacy and lack of understanding that Moses, David (when he fought Goliath), and Mary might have felt when they found out they were to be used by God in great ways. When wondering how they could possibly be capable, God always replied to them that it was not THEIR problem. There was a bigger picture that they couldn't see. They didn’t have to change the world, just to trust in Him. He was working out His plan, and through them, He would show the world---I am!
What an awesome song!!! It always makes me THINK about God working in all our lives---through the big issues and the small. He is always there for us, guiding us with love and compassion. What a friend we have in Jesus!
Thanks again for your prayers these next few days,
Laura and Tony
****URGENT PRAYER REQUEST****
After logging off, I checked on Baby Carson---He has been moved to Children's Herman Hospital's ICU (MDA doesn't have ICU for under 3yrs. old). He was having seizure type behavior. MRI shows spots in the brain---they don't yet know what they are, but I know the family has got to be so scared. Pray for God to control the situation and send them peace, healing, wisdom for the doctors, and that these spots are not tumors. It's times like these I have to remind myself---God is good all the time; all the time, God is good.
Saturday, June 3, 2006 11:34 PM CDT
Thank you for praying for clean reports to Monday’s scans for both Connor and Weston. God is with us; we know. We see evidence of it so often----all your messages and prayers are proof that God works through His people. Through you, He shows us His love and support. It does my heart so much good to know when I am week, exhausted, and worried you guys are always there to lift us up with LOVE whether you know us personally or not. That’s one thing I’ve learned through this experience---to LOVE on a deeper level. It’s like being the Grinch and having your heart grow three sizes!
I spent most of my life oblivious to the pain other people carry around, but usually don’t talk about. My eyes have been opened. I know pain in my heart----my brother, Jim, was killed in a car wreck, my son and nephew have endured childhood cancer. I now can sometimes see pain in the eyes of others---and I’ve learned it’s OK to talk about it.
There’s a song on FM 89.3 that talks about putting on our “plastic smiles” to cover up our pain, but God sees the “real me”----and He loves us anyway---dearly! Thank you, Lord, for loving us---even when we’re not at our best!
Connor’s enjoying his “good week”. His friend Trevor has been here for a few days keeping all our minds off Monday’s scans. He’s enjoying life these days!
Keep praying---God loves hearing from you,
Laura
Thursday, June 1, 2006 9:22 AM CDT
Thank you, Lord, for the little things! Thank you that Connor is at band camp today learning how to march just like the other freshmen. Even though he had to get up early, he was happy to be in the group. His heart is so good, and he is so brave through all he has to endure. I love that boy so much!
God is good,
Laura
Wednesday, May 31, 2006 4:59 PM CDT
Hello all,
First things first----We need everyone praying for clean scans for both Connor and Cousin Weston. I found out today that they will both have scans the same day----Monday, June 5th. Of course, Connor will be in Texas and Weston will be in California, but both will be in need of the comforting grace of God. Sometimes knowing that our God is good, full of compassion, and still sits on the throne is what brings us comfort when the looming fear of the unknown is so pressing as on scan day. I can tell thoughts of scans are already ebbing into my mind this week even though I’m confident both boys will be checked off as “clean” and no sign of disease. I just need God’s PEACE----I certainly don’t have the strength on my own; it is the Lord who strengthens me.
Connor is doing fine and his counts have rebounded nicely. He got up early this morning to go to freshman band camp to learn how to march, but it was cancelled due to the torrential rain. He will plan on attending tomorrow---mud and all!
Please pray for Ann Olson’s family----for strength and lightened hearts. Ann passed away Monday. She is an adult friend of ours/partner in Tony’s company who has completed her fight with cancer and now is at REST and FREE from pain and chemo. I know SHE is fine---It is her family that will struggle for a long while. I pray God’s peace upon their hearts.
Thanks guys, sometimes prayer is all we need,
Laura
Sunday, May 28, 2006 5:35 PM CDT
Congratulations to Carson’s soccer team---they won first place in their tournament with a win, tie, win, win!!! We are going to a party at the coach’s house this evening. It was nice to have some one on one time with Carson and have it be all about him. He slept most of the way home and I think his body is exhausted from all that running in the Texas heat.
Connor is doing fine. He and Chandler got to spend the night with Josh and Jake Friday night after our two families went out to eat. Carson and I could have gone to the tournament site Friday, but we opted to have family time---Connor was finally feeling better from nausea, and we knew his counts would be down when we returned Sunday. I got up at 4:00 Saturday morning to be at the field by 6:45---now it’s my turn with the sore throat.
Connor’s sore throat has transformed into a cough and he’s still congested, but not as much. Tony said they were good about remembering the antibiotics. We’re trusting he will not get fever tonight or tomorrow. By Tuesday, I expect his counts to begin to rebound.
Caroline and Baby Carson ( carepages.com under CarsonJames ) are both still in the hospital, but improving. Emily will have scans this week----They all need our prayers. Connor and Weston both have scans coming up in the next few weeks. Please begin praying for clean reports. The other day while thinking about upcoming scans for both boys---- I began to pray----all I could think of to say was----“Dear Heavenly Father, Please let it be OVER for our family---in the name of Jesus.” There just wasn’t anything else that came to my mind. That said it all.
Thankful that God is on our side,
Laura
Friday, May 26, 2006 10:20 AM CDT
Happy Friday----Ahhhh, school is out for summer! Connor did not make it to the last day of school. He just wasn’t up to it. I went to his school to turn in some paperwork, and they presented me with a “Thinking of You” booklet for him written by school staff and classmates. One of the NASA guys who works with the robotics team sent a thick book about robots with a very touching note inside. The two books brought tears to my eyes---There are SO many people being so supportive to our Connor. You guys certainly help us to carry on and feel God’s love!
We had a big after school water balloon and ice cream sundae party for Carson, Chandler, and some of their friends----Connor wasn’t up to inviting anyone. He did seem to perk up a bit during the party though. Hopefully he’s turning the nausea corner. I’d like to take him to do something fun today before his counts bottom out and public places become a no-no by Saturday afternoon.
Before we do anything fun, he’ll have to do blood work---I don’t expect his counts to be very low, yet, but the doctor always wants to know before heading into the weekend. Connor is quite congested as it seems after every chemo round----He is also complaining of a very sore throat. I don’t believe the sore throat is typical, so please pray it is not anything serious and that it will not cause a fever this weekend. Tony will be home with Connor and Chandler over the weekend while Carson and I will be off to a soccer tournament on the west side of Houston.
Thanks for all the love and support you continually give----we certainly need it!
Laura
* Caroline has an infection right now while her white cells are bottomed out. Please pray for her as infection can be very dangerous for cancer patients. We know she is in the palm of God’s hands and He cares for and loves her so much.
Wednesday, May 24, 2006 4:33 PM CDT
We came home last night from the hospital. Connor threw up only once today. He is doing fine. We'll see how he is in the morning, then evaluate if he can go up to school for a bit to celebrate his last day of middle school.
I spent the day at Carson's fifth grade graduation, so Connor's just been home. That should make for some good rest. Supposedly, his teachers have nothing else they are requiring out of him---He will move on to high school! What a courageous kid!
Gotta Go----Tomorrow's the last day of school, and we've got a lot to do.
Love to you all,
Laura
Sunday, May 21, 2006 6:49 PM CDT
Connor seems do be doing OK at the hospital. He's already had three of the five chemo doses (times two chemicals each dose) of this chemo round. He's just quiet in bed, and I'm sure he's watching lots of TV to pass the time and keep his mind off the nausea. Tony stayed with him last night and will stay through tonight. Tony's parents came up to visit this morning, and my mom stayed with Connor a few hours yesterday afternoon so Tony and I could attend a friend's party for graduation from law school. Way to go Colleen!
Today, I took Chandler to his baseball game and he then went to a birthday party. Carson and I went to a party welcoming him into the WAVE program for next school year. It's the same program Connor's been in for junior high and we hated that he was not with us at the party. We saw many well wishers for Connor, and I think Carson had a good time.
Last night Carson told me that his summer is going to be just going to the hospital everyday. I told him that I won't make him go to the hospital all the time. We will have a hospital schedule to deal with, but we'll try to do some fun things, too. I'm sure his memory of our summer 2003 was the hospital every day---which is not really true; it just feels like it. Please pray that God will lift all our eyes and hearts as treatment begins to feel really loooong and all consuming!
Also keep protection for Connor's organs in your prayers,
Laura
Saturday, May 20, 2006 1:01 PM CDT
Good morning to all… Connor seems to be doing well this morning in spite of nausea, but not vomiting. He seems to be transforming into a true teenager and slept until around 11:00 this morning. The hospital provides those great window treatments like in a hotel that block out the light of day. It makes it easy to sleep late. Besides, sleep is the best way to ignore the nausea.
Remember a couple weeks ago when I was writing that I know I need to step out of the me, myself, and I? Listen to the way God set up a situation completely irresistible for me to do just that…
When we finally got admitted to our room late yesterday afternoon, I immediately noticed that the patient next door to us had the name “Carson”. When I finally saw a man come out, I approached him and asked, “Are you Carson’s dad?” I proceeded to tell him that I, too, have an 11-year-old Carson, and that I already love his Carson even though I haven’t met him yet! Come to find out, their Carson just turned two and has white blonde hair and blue eyes just like my Carson. He’s adorable and has that straight flyaway hair that has a few places that poke up---Connor and Chandler were my babies that had that hairstyle!
Anyway, I joined them while they strolled Baby Carson with IV pole in tow around the hallways and we talked for probably 30 minutes. We even shared pictures because the Carson’s look so similar! He was diagnosed with ALL leukemia only seven days ago, so I know their lives are in an unbelievable whirlwind! His blasts have already responded beautifully to treatment and with God’s grace, he will be fine in time. Please join me in praying for Carson, his mom, dad, and and four year old sister. They live in the Cypress area of Houston.
Thank you, dear Lord for bringing an opportunity for me to think about someone else. It felt so good to my heart. I hope and pray it was good for them. I already know there is nothing I can say or do to make them feel better, but I hope I can be a comforting friend who understands. God bless all the little children up here at MD Anderson!
Have a great day,
Laura
Friday, May 19, 2006 10:10 AM CDT
Guess what!!!! Connor called from school and he made an 83 on his Algebra final that he took yesterday. I told him to ask his teacher what she thought he should do about next year, and she replied, “You did it! Move on to geometry!” We are so proud of him. Thanks so much to Simona again and to my wonderful husband. Tony worked for four hours one on one with Connor Wednesday evening and did a fabulous job---neither of them getting frustrated! Thanks for all your prayers, too. Sometimes the little problems in life just feel so much better when they’ve panned out.
We will go in this afternoon for chemo, but first Connor is attending the morning part of his 8th grade field trip to Schlitterbahn again. The doctors will just have to wait----Connor’s got a life to live! We expect him to come home Tuesday. We’re not yet sure if he’ll be up to attending either of the last two days of school, but we’ll try.
Yesterday was another emotional day for me----I spent a long while up at Connor’s school, and it’s hard for me to watch all those great kids without a serious care in the world! I guess I get jealous or something. With all the hoopla of what to do about math class this year and next along with trumpet tryouts for high school band Wednesday, I guess I was feeling a lot of “let’s see if he can measure up”. Hopefully, Connor didn’t feel that way and it was just me. Connor’s way more laid back than I am, thank God.
Last night we enjoyed a fabulous band concert by the Westbrook band. They are so good, if I do say so myself! Sometimes it’s hard to believe they’re just a junior high band. My parents came to enjoy, and sweet Cousin Brittney did, too. Brittney was the brave one who cheered the loudest for Connor. We all went to Dairy Queen for ice cream to celebrate afterwards.
Pray chemo will go smoothly and God will protect Connor’s body from the harsh chemicals while making sure no bad cells survive. Connor’s spirits are up as always and he’s got that precious smile illuminating his face!
Love you guys,
Laura
Wednesday, May 17, 2006 10:52 AM CDT
Happy Wednesday!! We thought Connor’s Algebra final was today, but we were wrong----it’s next Wednesday. He’s supposed to be deciding if he wants to take it Thursday or Friday before his field trip and chemo. If he waits until next Wednesday, it will be like taking it with the flu---I just can’t see his concentration being at its best, but I will let him decide.
I wanted to take this time to revisit a thought/question I wrote about a couple months ago...“What if healing is all about faith, not medicine and chemo, just faith?” Another cancer mom asked me to ponder this thought, and boy did I!
First of all, it took my mind into a tail spin---maybe even a panic. I could not think of anything else for two days. The strongest feeling it gave me was that of inadequacy! It was FAR from the PEACE that passes understanding I know the Lord wants to provide. At the end of those two days, I just couldn’t do it anymore. I had to put it to rest.
Jennifer reminded me of Paul, one of Jesus’ own disciples with great faith...He prayed three times for God to remove the thorn of his flesh. God replied that He would not remove it, but His grace would be sufficient---sufficient to strengthen and comfort in all our troubles. In our weakness, Jesus is made strong. When we feel weak in our own power is when we reach out to Jesus for His grace and strength which is far greater than our own. He will always see us through!
I’ve been known in the last few years to express a desire for a new pair of rose colored glasses. I really miss the ones I had in my youth when it seemed all of life was good and easy. Anyway, while pondering this faith question, I realized-------I don’t NEED any rose colored glasses------Jesus IS my PERSONAL PAIR; only I’m not wearing them, GOD IS. When God looks at me, He sees me through Jesus and therefore as perfect and holy. I don’t need my mind spinning about my faith being inadequate; Jesus has already paid the price and makes up for ALL my INADEQUACIES!
This is how I feel God answered my own ponderings about faith. I’m sure we all get different answers with different situations----Faith is a journey that continues and grows as we walk down life’s various pathways.
Jesus covers all your inadequacies, too.
With His love,
Laura
Sunday, May 14, 2006 11:23 PM CDT
We’ve had a wonderful Mother’s Day---Hope you did, too. The rainy weather cancelled a boat ride, but in a way it was nice to slow down a bit and catch our breaths before the next busy week filled with school, trumpet lesson and tryouts, baseball, soccer, band concert, 4th and 8th grade field trips, and concluding with chemo round number six.
Simona, a friend of mine, gifted and blessed us with her time and math tutoring talents this evening---Yes; she offered to work with Connor on Algebra during her Mother’s Day! See, I told you God would work everything out. It’s another example of when things don’t make sense, but are good---- It’s God! She actually believes Connor does have his basics and did quite well. She thinks he’s ready for the final. He’ll probably get his study guide tomorrow, and the exam is Wednesday. It will be nice that it’s his good week and he’ll be in class for review. I feel SO much better about the whole situation. Before she left, I told Connor, “What do you say?” He jokingly replied to her, “Thank you for telling my mom the exact same thing I’ve been trying to tell her (that he knew what he was doing)!” I guess it just feels better to hear it from a grown up sometimes. Actually, by reviewing, it was also studying! Thanks for allowing God to use you to bless us, Simona.
We have fabulous news---Caroline IS considered in complete remission and will begin getting prepped for bone marrow transplant in probably late June. She is still in great need of prayer, but this was a critical step. Praise Jesus! Please also keep a friend of mine’s baby, Mitchell, in your prayers also. He will have surgery Monday morning for a recurrent cyst (not cancerous) on his brain. I believe he just turned one. It will be a looooong day for the family and doctors---They will need God’s peace and guidance to see them through. God WILL be holding them in the palm of His hands!
Connor’s feeling and looking great!
Let’s all keep praying---God loves every minute of it,
Laura
Saturday, May 13, 2006 7:55 AM CDT
We are off this morning to Schlitterbahn in Galveston for a day of wet fun. I will be chaperoning while Connor is a part of the big, bad Westbrook Band. The sunshine and social aspect will be good for him. We definitely remember how sunburned Connor got over spring break, so we’re equipped with sunscreen w/ SPF 50. Connor will also wear a rash guard shirt with SPF. I hope he has tons of fun!!
He has been progressing on his Algebra assignments. He tells us he doesn’t need help and basically teaches himself (I hope he’s getting it.) We’ve had several offers for tutoring---Thank you so much!---The problem is TIME! I don’t know how life gets so busy. I t seems with all the rain make-up baseball games; we’re at the fields most nights. Hopefully, this next week will be better.
God’s blessings to you and happy Mother’s day to all,
Laura
Thursday, May 11, 2006 11:47 AM CDT
Connor’s at school again today. He was a little grumpy this morning, but I think it’s just because his teenager self had to get up at 6:30 for the second day in a row---He’s spoiled by getting to sleep until about 8:00 most of the time. He did have a headache last evening which seems OK today---I’m trying not to worry about the fact that we don’t KNOW where his counts stand. I’m sure he’s fine.
I’ve got a prayer request for one of the small problems in our lives. Yesterday, I went to his school to inquire about his Algebra class. He really hasn’t done hardly any Algebra since February’s surgery. The homebound teacher just hasn’t gotten many assignments from that teacher. We were thinking that maybe he was expecting Connor to retake it as a freshman since it is a high school credit, but come to find out, that teacher has been in the hospital as much as Connor this spring with pneumonia and bronchitis---No wonder we haven’t had many assignments---the sub probably isn’t getting the e-mails.! Anyway, the concern I found out about yesterday, is that Connor has to “pass” a math class to promote to high school. He’s missed most classes and homework for the harder half of the math book----I don’t know if he’ll pass the final exam. The administrator had a good idea---We’ll switch Connor’s schedule to 8th grade math and just let him take the final which he would probably pass. Then he could retake Algebra as a freshman.
The problem is----Connor does not want to give up so easily. He wants to complete it. So, we’ve got a week to learn a lot of Algebra before he’s back in for chemo. Please pray that God will work things out---even if he needs to retake it---but Connor needs to be at peace with that.
Thanks guys,
Laura
Wednesday, May 10, 2006 11:27 AM CDT
It’s a beautiful day in the neighborhood! ALL my boys are in school today like “normal” kids! I will go for lunch and encouragement with some old friends---Not that they’re OLD, just that they’ve been good friends for a LONG time. HA!
My heart is lighter these last couple of days than it’s been for a while. I believe prayer makes the difference. Thank you all for blanketing us in prayer!
God is good all the time;
All the time, God is good.
Laura
Tuesday, May 9, 2006 4:20 PM CDT
I’ve got a secret to share---Connor just hit a few balls with his tennis racquet up against our brick wall!! How exciting! When he came in, he said, “It was surprisingly easy!” We got permission today from Dr. Oates the plastic surgeon. Connor also had the opportunity to view the surgery slide show starring---himself! Connor’s been asking to see the photos I saw the day or so after surgery, so I emailed Dr. Oates and asked. He brought a little zip drive, plugged it in, and voila---there was Connor’s shoulder and back wide open. We could see the muscles, nerves, all the tiny tie offs, and everything---it looked like a medical book. Connor’s reaction was that it was interesting AND gross. I had told him the hard part was knowing that it’s YOU!
God has answered our prayers again---that’s one of His specialties. Connor had no fever or bone pain!!!! Thank you for joining us in prayer. God is so faithful! We will send Connor to school tomorrow. He will get to attend through next week and participate in their spring band concert next Thursday--- he’ll actually get to practice the songs this time! We are so proud of him.
I thought we would check his blood counts today, but they said Connor’s doing so well they don’t need to---only if I WANT it. I didn’t figure Connor really wanted to get pricked again and he looks like he’s doing great, so we passed. We are trusting that the cycle is following its predictable course, and he is good enough to go into public places.
I looked up “healing” in the Bible the other day---These verses really spoke to me:
-Luke 8:50 Hearing this, Jesus said to Jairus, “Don’t be afraid; just believe, and she will be healed.”
-Matthew 14:14 When Jesus landed and saw a large crowd, He had compassion on them and healed their sick.
-Matthew 15:28 Then Jesus answered, “Woman, you have great faith! Your request is granted.” And her daughter was healed from that very hour.
-1Peter 2:24 He himself bore our sins in His body on the tree, so that we might die to sins and live for righteousness; by His wounds you have been healed.
Just wanted to share some uplifting words,
Laura
Monday, May 8, 2006 4:05 PM CDT
Connor's had a good day---He accomplished quite a bit of school work. We had a double session with his homebound teacher because we have appts. tomorrow and we couldn't have her come then. He seems to be feeling fine.
Please pray that Connor will NOT have extreme bone pain. This is the night I will expect it and into tomorrow. We will go to MDAnderson tomorrow to see the plastic surgeon for follow up, so if he's hurting horribly, we'll go see Dr. Huh also. We did not go in to have blood counts done today, so we don't know how low they have dropped. We will do it tomorrow to make sure he is rebounding before sending him to school Wednesday.
Thanks for continuing to support us through this journey. By this point, it starts to feel like everyone else has moved on with life. Your messages and the number of hits on the site show me that you guys are still on our team!
Emotionally, I've had a much improved day.
Thanks for being our blessing,
Laura
Sunday, May 7, 2006 5:22 PM CDT
Sunday brings Connor feeling quite well even though we know his counts are very close to zero. He does not act ill at all. Yesterday, we braved the germs of the world and went to an afternoon showing of Ice Age Two. Carson, Connor, and I all went and enjoyed some laughter. We were very cautious of germs (trying not to “touch” anything), and I don’t think his counts were too dangerous, yet. Sometimes I just feel sorry for him because it feels like he always gets left at home. I just wanted to get him out. Actually, today I took just Connor to eat lunch at the big, exciting Sonic where we could sit outside and hopefully away from germs but also away from the four walls of home. It’s always nice to have one on one time with any of my boys.
This morning I awoke with a migraine complete with my own bout of nausea. I was struggling to function in time to attend church, but we made it. I took the younger boys and Tony stayed home with Connor. The sermon just happened to be about “healing” today, and of course, I cried again. They offered a time to come to the front to have a prayer of healing from the elders of the church. I did go up front and our pastor prayed for Connor’s healing as he has done before. Connor was in Sunday school, not with me.
I prayed for all our friends also in this battle and others whom I know need God’s touch of healing. It was an emotional service for me. I was actually brave enough to pray that God’s will be done through each of us. Normally, I like to suggest to God how I would like the healing to come---like here on earth and NOW. I know God has a plan for our family, and I know all God’s plans are for good. I also know that His healing comes in His time. I’m trying to remind myself that all God has asked me to do is trust Him. The other day, a thought came to me….”Maybe Connor is doing so well with the chemo this time because it is ALL GONE and he is already healed.” I am trying to hold on to that thought---It sounds good to me! Please pray that our faith will be strong.
God’s blessings to you,
Laura
Friday, May 5, 2006 10:05 PM CDT
OK prayer warriors---We need to pray about nausea again!! Connor has done very well this chemo round only throwing up a couple times while the first day of chemo was being infused. He’s made it through the week and has been OK. Well, tonight he has thrown up twice. Upon putting him to bed, we prayed together about it. I need God to help him rest tonight and not awaken in the morning nauseous.
The last time he got sick late in the week, it was in part due to his electrolytes being off. This chemo can knock his salts, potassium, and such, so electrolytes are possibly the problem. We drove in today and had blood work done---his counts were just beginning to go down, and they did not mention his electrolytes being off. We’ll see how he makes it through the night and morning. I’ll be busy the first half of tomorrow taking Carson to soccer tryouts, then to a party, then to his baseball game. If Connor needs fluids and electrolytes, I guess we’ll be able to deal with that, too. The good Lord always provides a way. Gatorade sounds the easiest to me! We’ll be pushing that for sure!
Thanks for praying us through another mini crisis,
Laura
*****Update Saturday Morning*****
Connor seems to be fine this morning and the weather has cleared the sports schedule. We will work on hydration all day. His counts will probably bottom out by Sunday. WE are trusting God to see us through with no fever again!
Thursday, May 4, 2006 1:08 PM CDT
Thank you Lord for family, friends, and 11 year old boys! Yesterday seemed like a day of lessons for me. I’ve been really down in the dumps and can see that I need to pull myself up and out. Like before, because I’m human, I’ve been looking around the pit rather than up---I need to keep focused upon the Lord our God who is still the performer of miracles.
I talked with my sister Jennifer yesterday. We both struggle with keeping our minds 100 percent filled with positive thoughts. We discussed that we need to step out of ourselves and do something to help others, cancer related or not. We need to get out of the me, myself, and mine. I personally need to get off the computer, get my nose out of health books, and get out of that small, dark hospital room. I’ve had myself convinced that the new people at the hospital don’t want to meet me because we’re a relapse. I have been in their shoes, and I wanted to meet the people who had been cured---relapse was scary and honestly, unacceptable. I wanted to know where all the cured kids were. Now, I know, just like Connor, they are off having life and experiencing business in a fun way. They don’t usually want to hang out at the hospital. God probably does have something for me to share with the new patients’ families---even if it’s just relationship because I understand.
After that my special friend, Kathy, reminded me that if we want to hear from God, we need to be in His word. She challenged me to pick topics and look up verses in the Bible. Today I chose “hope”. My favorite verses I found were:
Romans 15:4 For everything that was written in the past was written to teach us, so that through endurance and the encouragement of the Scriptures we might have hope.
Isaiah 40:31 But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
The after school hour brought Carson wanting to invite some friends over to play kickball---so he did. We had 7 little boys playing in the back yard and having a blast! Connor wasn’t up to “playing”, but he did go outside and enjoyed watching. The boys showed me that life can still be fun---We just need to go outside and play! Becky and Jim brought fajitas for dinner it was plenty for everyone, so I didn’t even have to cook! Becky reminded me, too, that I can not put limits upon God. He can do all things!
Anyway, it was a great day and I am feeling lifted up today! Connor is doing quite well complaining mostly just of his teeth hurting---he went to the orthodontist yesterday and got his finishing wire. This means he probably only has about 6 months left as “metal mouth”. We figure by Christmas, Connor will have real hair and perfect teeth!
God is good,
Laura
Wednesday, May 3, 2006 11:09 AM CDT
Connor seems to be doing a little better this morning! He’s taking his first shower since last Friday, now---That’s an improvement all in itself. I told him I’d like him to do some schoolwork and maybe a tiny bike ride with me today. We’ll see what he’s up for as the day continues. God is truly carrying him because last time he had these chemicals, his Wednesday was awful! Thanks for all your prayers and lifting him up.
I copied the following out of Emily’s web page---carepages.com---under EmilysQuest. It touched my heart and I wanted to share it with you:
Do you know what it is like?
to have a healthy family of 6
I forgot!
To have enough money to pay bills & buy food, gas, clothes for your family.
I forgot!
To have time to work on your house or yard.
I forgot!
To have time to take your kids fishing.
I forgot!
To get a good nights sleep.
I forgot!
TO get together with close friends and family to just have a good time.
I forgot!
To call in sick with just the flu.
I forgot!
TO enjoy going to work.
I forgot!
DO you know what it is like?
To drive a hour to the hospital with your wife and child the drive home alone not knowing when they will be able to come home.
I do!
To have you child cry from a hospital bed and say daddy please take me home.
I do!
To see your child injected with poison to kill disease in hopes of saving her life.
I do!
To see you child leave for surgery with all her limbs and come out without one.
I do!
To watch your wife open the check book to pay bills only to close knowing there is no money to even try.
I do!
To get a pay check with the total being zero because you missed work to be with your sick child.
I do!
To be at work and sick at your stomach because you are worried that you are at work and your child may not make it home from the hospital.
I do!
To drive home from that job night after night know your wife won't be there when you get home because she at the hospital with you child.
I do!
To have your kids at home crying wanting to know when mom and their sister will be home.
I do!
To worry all week as your wife and child drive in the Houston traffic to get to doctors appointments 2 to 3 times a week.
I do!
To pay $10 a day to park to see the doctor two to three times a week.
I do!
TO go to the hospital to see your child only to find out that there best friend died just minutes before you arrived.
I do!
TO worry that your child is next.
I do!
TO have to accept help from family and friends knowing you will never be able to repay them.
I do!
TO discover that you have nothing left no savings no 401K nothing and are forced to file bankruptcy.
I do!
To go to your employer crying when the news comes that the cancer is back.
I do!
To watch your child suffer and know that there is nothing you can do.
I do!
I praise and thank God that we have not experienced all of these issues. I ask for God’s mercy and divine compassion upon the many that do.
Laura
Wednesday, May 3, 2006 11:09 AM CDT
Connor seems to be doing a little better this morning! He’s taking his first shower since last Friday, now---That’s an improvement all in itself. I told him I’d like him to do some schoolwork and maybe a tiny bike ride with me today. We’ll see what he’s up for as the day continues. God is truly carrying him because last time he had these chemicals, his Wednesday was awful! Thanks for all your prayers and lifting him up.
I copied the following out of Emily’s web page---carepages.com---under EmilysQuest. It touched my heart and I wanted to share it with you:
Do you know what it is like?
to have a healthy family of 6
I forgot!
To have enough money to pay bills & buy food, gas, clothes for your family.
I forgot!
To have time to work on your house or yard.
I forgot!
To have time to take your kids fishing.
I forgot!
To get a good nights sleep.
I forgot!
TO get together with close friends and family to just have a good time.
I forgot!
To call in sick with just the flu.
I forgot!
TO enjoy going to work.
I forgot!
DO you know what it is like?
To drive an hour to the hospital with your wife and child, then drive home alone not knowing when they will be able to come home.
I do!
To have your child cry from a hospital bed and say daddy please take me home.
I do!
To see your child injected with poison to kill disease in hopes of saving her life.
I do!
To see your child leave for surgery with all her limbs and come out without one.
I do!
To watch your wife open the check book to pay bills only to close it knowing there is no money to even try.
I do!
To get a pay check with the total being zero because you missed work to be with your sick child.
I do!
To be at work and sick at your stomach because you are worried that you are at work and your child may not make it home from the hospital.
I do!
To drive home from that job night after night knowing your wife won't be there when you get home because she at the hospital with your child.
I do!
To have your kids at home crying wanting to know when mom and their sister will be home.
I do!
To worry all week as your wife and child drive in the Houston traffic to get to doctors appointments 2 to 3 times a week.
I do!
To pay $10 a day to park to see the doctor two to three times a week.
I do!
TO go to the hospital to see your child only to find out that their best friend died just minutes before you arrived.
I do!
TO worry that your child is next.
I do!
TO have to accept help from family and friends knowing you will never be able to repay them.
I do!
TO discover that you have nothing left; no savings, no 401K, nothing, and are forced to file bankruptcy.
I do!
To go to your employer crying when the news comes that the cancer is back.
I do!
To watch your child suffer and know that there is nothing you can do.
I do!
I praise and thank God that we have not experienced all of these issues. I ask for God’s mercy and divine compassion upon the many that do.
Laura
Tuesday, May 2, 2006 1:59 PM CDT
We are hanging in there! Connor made it through the night without throwing up. He says he feels “terrible”, but in a normal chemo sort of way---mostly his stomach. He is also very tired. He’s lain on the couch most of the day, always watching TV---it keeps his mind distracted. He watches a lot of the Discovery Channel---right now it the New Detectives show. I look forward to a few days from now when he will be able to get up and go outside or work on some schoolwork. It breaks my heart to see him like this---over and over again.
Please pray for God’s healing touch upon our boy. God can do anything and we know His desires are for Connor to be healed. Jesus has already paid for Connor’s healing with the stripes upon His back.
I’m looking forward to Carson’s baseball game tonight---sometimes it helps to have my mind distracted, too. This time, I’m having much more success “enjoying” parts of life. It’s like I have two separate lives---one revolving around chemo and the hospital, the other involving normal kid activities. I can get mentally sucked into the brothers’ games, go out to eat, visit with others, and actually enjoy myself. The first time Connor was diagnosed, the fear and devastation was so overwhelming that I couldn’t EVER get my mind free of cancer thoughts. Despite my need to be with friends, I would find myself struggling with the trivial nature of most of our human problems and issues. I just could NOT enjoy myself---very quickly I would feel an uncontrollable need to get out of there! I guess we’ve learned that life does go on….whether you’re in treatment or not….it does continue. Thank God He has brought us to the point of being able to enjoy it again.
Glory to God for all He has done for us,
Laura and Tony
Tuesday, May 2, 2006 1:59 PM CDT
We are hanging in there! Connor made it through the night without throwing up. He says he feels “terrible”, but in a normal chemo sort of way---mostly his stomach. He is also very tired. He’s lain on the couch most of the day, always watching TV---it keeps his mind distracted. He watches a lot of the Discovery Channel---right now it's the New Detectives show. I look forward to a few days from now when he will be able to get up and go outside or work on some schoolwork. It breaks my heart to see him like this---over and over again.
Please pray for God’s healing touch upon our boy. God can do anything and we know His desires are for Connor to be healed. Jesus has already paid for Connor’s healing with the stripes upon His back.
I’m looking forward to Carson’s baseball game tonight---sometimes it helps to have my mind distracted, too. This time, I’m having much more success “enjoying” parts of life. It’s like I have two separate lives---one revolving around chemo and the hospital, the other involving normal kid activities. I can get mentally sucked into the brothers’ games, go out to eat, visit with others, and actually enjoy myself. The first time Connor was diagnosed, the fear and devastation was so overwhelming that I couldn’t EVER get my mind free of cancer thoughts. Despite my need to be with friends, I would find myself struggling with the trivial nature of most of our human problems and issues. I just could NOT enjoy myself---very quickly I would feel an uncontrollable need to get out of there! I guess we’ve learned that life does go on….whether you’re in treatment or not….it does continue. Thank God He has brought us to the point of being able to enjoy it again.
Glory to God for all He has done for us,
Laura and Tony
Monday, May 1, 2006 1:39 PM CDT
We are prepared to go home, and Connor's IV has been disconnected. He is still laying in the bed though---not really ready for the effort it takes to leave. I will give him a little time---I just want to make sure we're home before the brothers. It would be "normal" for Mom to be home when the brothers arrive. I try to keep things as "normal" as possible for everyone.
I have spent much time this hospital stay reading about nutrition and spiritual help with cancer treatment. Lately, I've been dealing with fear---I've got to transfer that energy somewhere else. Fear does nothing beneficial. It just wears me down. I'm wanting to start researching how to build up Connor's immune system so he can fight within his own body. Pray for God's guidance in any of my efforts. There is SO much information out there.
I asked Connor the other day if he ever gets down and he just shrugged his shoulders---Then I asked if God ever lifts him up and he just smiled. That's the extent of the detail I got out of him, but I think he's doing as well as can be expected emotionally. I guess I recently did a family survey and everyone says they are OK---Chandler gave me the the thumbs up!
Thank you so much for your continued prayers,
Laura
Sunday, April 30, 2006 4:09 PM CDT
All is quiet here---Connor is sleeping peacefully---the best thing to do on days like today. They are just beginning his premeds and today is the day he'll receive both chemos---Iphosphamide and Doxirubicin/Adriamycin, the red one. I pray all will go smoothly for my brave boy.
I got to see Kyle today! He looked great especially considering he just had part of his lung removed for biopsy purposes. His 15th birthday is tomorrow and he's on his way home from the hospital now which is earlier than expected---a birthday gift from God. They do not have pathology reports back, yet. I'm praying for a report that does NOT contain the word "malignant". What a birthday gift that would be! We're praying for you, Kyle!
Hugs of appreciation to each of you,
Laura
Saturday, April 29, 2006 3:50 PM CDT
Good afternoon---Connor is doing OK. He did throw up three times, but only while the chemo was infusing. He can taste it, and I believe it’s awful---supposedly like sucking on a penny. It’s interesting that he can taste it because it goes into his chest (not mouth) and goes directly to his heart for quick distribution. I guess it gets into the bodily fluids; therefore also into his saliva---whatever.
This morning he is very congested and sneezy. I did not let him go to Bingo in fear of infecting someone with a low immune system (like anyone in this hospital). I’m not sure if it is a new cold, or if his body reacts to the chemo in a congestion sort of way. He’s had many mystery coughs and stuffy noses that seem to appear right after chemo. He does go to school, so maybe it’s just a new cold. Please pray that it will not lead to all the chest congestion and asthma next week when his counts will bottom out. God is always with us and will see him through.
Tony, Carson, and Chandler just got here for a good visit. Tony will spend the night. Connor’s been playing the Burnout Playstation game most of the morning, so I’m sure that’s what he’s teaching the brothers. I love it when we’re all together!
Connor and I both slept well. As a matter of fact, we didn’t get up until 10:30, which is incredibly late for us. The weather was so dark and rainy we didn’t realize it wasn’t still 7:00 in the morning. The sleep was good for the both of us.
I did get a chance to talk with Dr. Huh privately yesterday and get some thoughts off my chest. I think he was glad we had the opportunity, and feels positive about Connor’s progress. He doesn’t spend as much “time” with us as Dr. Raney did, so we just don’t know him as well/he doesn’t know us as well either. Dr. Huh is probably more “normal” and Dr. Raney had done this so long that he took much extra time with each of his patients. We are adjusting.
Well, I want to get to the room and enjoy my family being together for a bit.
Love and thanks to you for continued prayers,
Laura
Friday, April 28, 2006 4:12 PM CDT
Hello from MDAnderson. We are here for our fifth chemo round. We expect to come home from the hospital Monday. At that point we will be at the halfway point for chemo--Yeah! Connor is in good spirits and enjoying playing a Playstation Burnout game where you get extra points for being a reckless driver---lovely! Chemo will begin before too long and he will lose "pleasure" for a few days. God bless his heart.
We’ve heard lots of good news since we’ve been here today! Caroline’s bone marrow is clean with no more blasts. They do not officially refer to it as full remission, but most likely will be soon. Emily’s scans showed that the new chemo is working---a little shrinkage in tumors and no new ones! Kimberly is on her last chemo and it hasn’t been long for her (began chemo in Sept). She has osteosarcoma and when they removed her leg bone, the tumor was 95 percent necrotic (dead)!!! They only had to give her two more cycles after surgery. Praise God for good news!
Please blanket Connor with prayer. Pray for God to protect his kidneys, bladder, bone marrow, other body organs--- most specifically his heart. We had another echocardiogram yesterday and his heart is holding out strong---so we proceed.
Dr. Huh did decide to up his Iphosphamide doses on these odd numbered cycles only. Actually, he was having a reduced amount when it coincides with Adriamycin---the red one which we will receive Sunday. He will now get the same amount of Iphosphamide that he receives with the Etoposide/VP-16. He feels it will be safe, but push the envelope a little more. I told him that I believe he needs to follow his gut. Sometimes it is God giving you the push. Ironically, I was up most of the night being haunted by pathology and our original biopsy in 2003 that burst his tumor. (I did not share that with the doctor--but do feel the timing is interesting and probably not coincidence.) It’s hard as a mom to know how you feel about some of this, but I think I’m actually relieved to increase his chemo a little. I want to be as aggressive as we can without injuring my little buddy. He is doing so well tolerating it this time. He weighed in at 107 pounds----start weight was 108. Two years ago he had dropped down to 70 pounds while on treatment with VAC, but he was 4” shorter.
Thank you for your prayers---It is so much harder to fight away negative thoughts when it’s the middle of the night and then you are overtired. Thank God that my sweet Connor is in such good spirits today.
God bless you for blessing us so richly,
Laura
Wednesday, April 26, 2006 9:13 AM CDT
We’re doing fine. Connor’s enjoying his good week and being able to go to school. I went up to the high school yesterday to try and start making contacts and let them know about our situation. I was fortunate enough to meet with a counselor who also had a wonderful child stricken with cancer. She is so understanding and willing to help in any way. She is yet another blessing sent our way.
I will meet with the band director next week. Connor’s supposed to have trumpet tryouts next Wednesday right after coming home from having chemo. I believe we’ll need an alternative plan.
I’d like to ask for prayer for several people---First of all, Neil’s family. Please pray for God’s comfort upon them as their grief certainly continues, also that his dad, Anjan, be lead to a job. He stopped working to be the caretaker of Neil while the mom stayed in Dallas to keep her job and carry the insurance. Continue to pray for Dakota’s family also---the grief is so consuming and they need the relief of God’s peace.
Caroline needs our prayers for God to get her into remission from leukemia. She recently had to change chemo because the first was no longer working. Hopefully in May or June God will carry her safely through bone marrow transplant. Emily also needs prayer. She has osteosarcoma (bone cancer) which has gone to her lungs. She also had to change chemo due to heart complications. Their stories can be followed at www.carepages.com as CarolinesPage and EmilysQuest.
Kyle (15) also with osetosarcoma has been out of treatment for probably a year and a half, like Connor. Last time I saw them there was a spot in his lung. Pray that it was NOT cancerous. Connor had a lung scare last fall and it proved to be nothing serious---I pray this for Kyle.
Pray God’s peace upon Aviva’s family, also. Aviva (21ish) passed away a week and a half ago after a long, courageous battle including two transplants. She was a true fighter and her mom shared much laughter with many of us parents up at the hospital. We love them all.
Micah, a true miracle child, has his last chemo very soon and has been cancer free for quite a while---Praise God for this!!!! www.caringbridge/visit/micahfarmer/
Keep our adult friends in your prayers also---Kathy, Michael, Ron, Jimmy, and Ann. There are so many people fighting this horrid disease who need persistant prayer.
Thanks for also keeping Weston and our Connor continuously on your prayer lists!!!
Love to you all,
Laura
Monday, April 24, 2006 10:46 AM CDT
We’re back from the camping trip and what a great time was had by all!!! Birthdays are always better when celebrated for a whole week! The picture was taken at Connor’s party Saturday evening after we returned from the campsite. Doesn’t Connor look happy?
I want you all to notice the special boy---front right, in jeans---That is Cousin Weston who has also been through cancer treatment and looked like Connor a year ago. It does our hearts such good to see him looking so healthy and vivacious. Please keep him in your prayers for continued optimal health. It was his mom’s (my sister Jennifer’s) idea for the whole camping trip surprise.
Also, notice Connor’s duct tape flip flops that he made himself on the camping trip---how cool! We camped with ten kids and four adults in a big cabin with lots of bunk beds. The fire pit was the favorite “toy”---of course! College Aggie, Cousin Blake, joined us Wednesday evening, and my parents drove up each day to be our special guests---They don’t like to miss out on the interaction of all the cousins either. This was one of Connor’s best birthday celebrations ever---Thanks to all! More pics are in “view photos”.
Interestingly, in church yesterday after such a fun filled week, I just sobbed. There’s something about coming to God in my “broken” state, bowing down my heart, continuously giving Connor to Him, and seeking His presence. Church is often the place I will cry. The music speaks directly to my heart, and Connor is in Sunday school (not near me). Church is truly a “sanctuary” for me. Even though I am capable of experiencing joy; I hurt so much on the inside---I ache for my precious son.
Connor is at school today---actually better than that---he is on a band trip/competition. He might have to fake playing the songs, but I’m thrilled he gets to participate for social reasons. May he have another fun filled day!
Love and thanks to you all,
Laura and Tony
Wednesday, April 19, 2006 9:09 AM CDT
Good Morning! What a wonderful day!!! Connor is at school today---right on target---chemo seems to work like clockwork most of the time. We will check out early for a family camping trip! He received his “big surprise” yesterday for his 14th birthday in the form of four California cousins arriving at our door and them revealing to him the plans for a camping trip!!! Additionally, three of the Tennessee cousins will join us Thursday evening! He was so surprised and thrilled. He knew the California crew was thinking about coming at some point, but never dreamed it would be on his birthday! We all enjoyed an outing to Joe’s Crab Shack with both sets of grandparents, too.
Actually, this was so wonderful because it changed the course of a kinda rotten birthday beginning. I was awakened that morning at 4:00 am by Carson who had himself been awakened by Connor’s crying in pain. By the time I got to Connor, he was almost hyperventilating because his bone pain was so severe. Bone pain is a common side effect when the Neulasta chemically forces the body to begin massively producing white blood cells. Normally it is just achy and we need to rub his legs. This time it was so severe in his legs, shoulders and down his arms that his description was, “It feels like someone is driving nails into my bones----or, my bones are splitting in two.” He’s NEVER had it so badly before. We rubbed his legs for a long time and applied heat packs that seemed to help. Tony was such a good dad---he spent the rest of the night in Connor’s room on a mattress on the floor to be there if Connor needed him. Gotta love that man!
Later, even though still in some pain, Connor took a TAKS test at home with his homebound teacher which was quite a thrill, I’m sure. She did bring him birthday surprises and donuts, so it wasn’t all bad. After that, we went for blood work---another “fun” birthday activity---His legs were hurting so badly that it was hard for him to walk! He never complained, but you could see in his face that he needed some relief and I’m not allowed to give Tylenol or ibuprophen because it can mask a fever. Finally, the cousins were way better than any pain reliever!!! After they arrived around 2:00, he was up and playing, smiling and having FUN!!! Just what he deserves!
God continues to bless us and bring us joy! Thank you, thank you, Lord, for no fever which would have put Connor in the hospital for four days while everyone else went camping! The cousins have actually been at my mom’s since Saturday---but we didn’t want to risk getting together and sharing germs while his counts were bottomed out.
Thanks again for keeping each of us in your prayers...We certainly feel God's presence,
Laura
**Interesting recap of his ANC (fighting white blood cells this week)-----
Friday 4.3
Monday 0.1
Tuesday 0.9 With the help of Neulasta
Wednesday ? I’m sure they are over 1.0 which is required to go to public places---always with caution.
Sunday, April 16, 2006 10:28 PM CDT
Everything is good here. We had a wonderful Easter - at home, as a family, and healthy - God is good. Connor has not shown any signs that his counts are dropping - but he said he does feel like they are. We will go in for blood work either Monday or Tuesday, followed by home school for at least those days. Hopefully Connor can make school on Wednesday.
Connor did get out Friday for a little fun - PuttPutt with the brothers and his friend Robbie. Robbie even spent the night. On a funny note, Connor said he was feeling sleepy Friday afternoon. He blamed it on the Benadryl. We reminded him that he DID NOT take any Benadryl that day - he then blamed the sleepy spell on his "internal Benadryl"!
New pictures are in the photo album. The first is the boys with their "Frankenstein" dog. Autumn had a cyst removed from her hip last week. Dogs are prone to cancer as well, but we did not send the cyst off for an actual diagnosis. The second picture is Connor with his find of the day - the gold and silver money filled eggs. Carson and Chandler were not thrilleed that Connor found both top prizes.
4 chemos down, 6 to go!
Tony
Friday, April 14, 2006 4:38 PM CDT
I wanted to report that Connor is doing GREAT!!! His counts are very good today---actually kind of close to a “normal” person’s. I would send him to school today if they were having it. I think we’ll head out to Putt-Putt and get out of the house while we can. His counts will plummet this weekend bottoming out on Sunday and Monday. We will check them again Monday. His chest congestion is much improved—thank God.
Connor felt quite well yesterday, too. I had him come outside and help me wash my car. It was my sneaky way of adding a little physical therapy into his day. It was interesting--- I had to keep reminding him to use his right arm. He has become left handed for many things.
We also walked to the corner of the street and back---The weather was so beautiful!!! Later, when the brothers came home from school, we took a short bike ride around the block. This is all fabulous for just two days after chemo!!!
----(sentences edited for content)----. Also, Autumn, our golden retriever, had surgery yesterday to remove a “lump” from her right hip. It was just a cyst---but it brings a good lesson to us all: You should ALWAYS have any lump checked---They are not always bad. I try to tell my kids that it costs a $20 co-pay----If you ever find a lump or something that isn’t normal for your body, you’re worth the $20 bucks to get it checked.
Yesterday I found myself comforted by the story of David and Goliath. Who would have ever thought ---- a boy could defeat a giant warrior with only a sling and a stone! The key was that he had the power of God on his side. If chemo is our sling and stone, I am pleased that we, too, have the power and love of God on our side! We shall overcome!!
Please keep praying that God will direct the chemo to seek and destroy any bad cells that may THINK they can survive in Connor’s body. We need cancer to know how BIG and GREAT our God is!
Love to you all and happy Easter,
Laura
Editor: Connor Muscat
Wednesday, April 12, 2006 9:13 PM CDT
Photo: Connor Monday at MD Anderson -We are home now!
We are doing quite well. I think better than the last time---Maybe these chemicals (Iphosphamide and Etoposide/VP-16) are not quite as harsh; at least on his stomach. This is only the second time we've received these chemicals---eventually, we'll know his pattern with each set of chemicals.
He only threw up once today---right when I was administering his Neulasta shot/white cell booster. (It's a real thick refridgerated medicine, so it takes a loooong time to inject it--like a whole minute or two---because it HURTS). I had to tell him not to barf while I still had the needle in his arm----He held out and threw up right AFTER the shot. WHEW!!!
He perked up a couple of times and even smiled, but it didn't last long. He was not very cooperative at physical therapy and just kept saying he wanted to go home. His range of stretching did seem to be a little improved:) At dinner, he was hungry and nauseous---quite a delima! He ate a bit and then you could see his concentration to fight off the nausea. He managed OK.
When I talked to the plastic surgeon's assistant yesterday, he explained that the back muscle now coming under his arm and attached to his collar bone is no longer a "functioning muscle". It's new function is solely to protect and be padding for the nerves (brachial plexis) stretching from neck to shoulder. When we try and stretch the arm, we are basically trying to break up the scar tissue to keep the range of motion as much as possible. I was so glad I asked him to explain----I just couldn't figure out how we were going to be able to contract or stretch a muscle that now does a U-turn!
Thank you for all your prayers. God is listening and answering them---What a miracle Connor still has an arm---and it functions!
May you each have a blessed Easter weekend--when the miracle that proved the truths of Christ is celebrated.
Thanks for hanging in there with us---the road is so long,
Laura
Tuesday, April 11, 2006 9:05 PM CDT
We are home---YAHOO!!! God has blessed us with ZERO throwing up! I think the chest congestion is breaking up also. We came home with breathing treatments to keep up with through the low counts this weekend to the middle of next week which happens to be CONNOR'S 14TH BIRTHDAY!!!! We've got a big surprise on the docket!
Thank you so much for all your prayers---Connor is doing quite well.
God is good all the time; all the time, God is good!
Laura
Monday, April 10, 2006 4:08 PM CDT
We're having a bit of a rough day--- chemo began at 6:30 this morning, premeds before that, and a breating treatment before that around 4:00 am. Needless to say, I'm tired.
Connor slept until after 11:00, with the curtain drawn and the lights off. This is so good for him, but quite "cavelike" for the mom.
What upset me the most, was that Connor couldn't and wouldn't get up for a special tennis program today. Tennis champ James Blake (nationally ranked in the top ten), and another guy--Charlie something--spanish speaking, came to visit with the kids up at the hospital. There were all kinds of cameras---Watch for it on ABC---and the kids were having such fun playing foam tennis with them. Connor did come down for about four minutes, but the tennis guys came late and it was before they got here---Connor insisted he needed to go back to his bed because he felt so bad. I tried several times to get him to "suck it up" for 20 minutes or so, but he just looked at me with tears in his eyes and said, "Mom, you have no idea how bad I feel."
I was so irritated with him that I just left the room and watched the other kids have fun. It was truly breaking my heart though. It felt like all the other kids feel good enough to have fun, but not "my child". I know it is not true---There were certainly other kids not feeling well in their rooms, but you just don't see them. Therefore; it felt like mine was the only one.
Anyway---We're doing OK and I did get his tennis raquet signed by both the tennis stars! Maybe he'll care at another time. And maybe tennis is a sore subject with him after all the surgeries he's been through. I never seem to know. I try to be a good mom, but I think I pushed too hard today. May God give me patience and understanding---I don't seem to have it naturally on my own.
Tonight, at 2:30 am, Connor will have his last chemo dose for this cycle. We expect to come home tomorrow afternoon. Four down and six to go. We need prayer to get us through.
Love to you all,
Laura
Saturday, April 8, 2006 11:20 PM CDT
We'll, we're two out of five chemo doses down for this round. Connor is handling it OK. We've learned all the premeds to give, and he has not thrown up. YEA! Friday, he was in a really good mood and seemed in good spirits even though he was well aware what the day had in store for him. Actually, Thursday night, Tony commented on how "happy" Connor seemed. We think he just enjoyed going to school and being a "normal" boy so much for a week.
We didn't get chemo until around 6:30 Friday evening. It was like they first hung an IV bag of "grumpy"---then a bag of "sleepy". They moved on to "queezy"---followed up with a bag of "horrible taste in your mouth"---and finished up with an additional IV bag of "sleepy". Before all that, he was great! He's really doing well---considering.
They are also giving Connor breathing treatments every 6 hours to help with the wheezing and congestion that's been in his lungs over three weeks at this point. I think the treatments are helping.
Thanks to my mom today and Tony's parents tomorrow who are staying with Connor for the day shifts so we can be at our other boys' games. I don't know how or why, but Chandler's playing in two baseball leagues right now and Carson's playing two soccer leagues along with baseball. We are way over committed on the weekends for now. I feel a little bad about having them up with Connor, but I realize it will be treasured one on one time between them. I'm sure the blessing will far outweigh the trouble. Thank you for your willingness to help.
Thank you for all your willingness to help in any way!!
God is blessing us through you!
Laura
Thursday, April 6, 2006 9:57 AM CDT
I know I just wrote last night, but I’m so excited, I want to share….
Tony had to get up early this morning. After the alarm had gone off, I couldn’t go back to sleep----I was feeling compelled to get up and read my Bible. I’ve spent a lot of time lately thinking and talking about, and praying to God, but I haven’t taken the time to open His book, His word, the Bible. So that’s what I did.
I spent a while flipping through the pages and reading the highlighted and underlined verses that I’ve marked through the years. I was literally taken aback when I got to the book of Isaiah. Isaiah 6:8 where I read, “Then I heard the voice of the Lord saying, “Whom shall I send? And who will go for us?” And I said, “Here am I. Send me!” This is one of my old favorite verses. We actually made a quilt square with this verse on it at Family Retreat for our old church several years ago. I’ve pondered this verse and really want God to use me in this life.
As my heart began to pound at a quickened rate, my immediate response was, “I never meant in THIS way…..” Not that God SENT this illness to my son, but God knew it would be a road we would walk.
As quickly as my heart began to race, it also began to calm as my next feeling was that of God’s presence. That He has pulled me and guided me to attend Bible studies for the past eight or nine years so He could prepare us for this journey. Within a minute or two, a song began to play in my mind and in my soul giving me a new sense of hope and worship. These are the words that began to ring and sing to me….“Joshua 1:9. Be strong. Joshua 1:9. Be strong. Be strong and courageous. Do not be terrified; do not be discouraged, for the Lord your God is with you wherever you go.” It’s a Vacation Bible School song I learned while teaching several years ago. It’s true: When you teach, you learn. God was preparing me way back then.
Joshua is the man who had to take over after Moses died and lead the Isrealites into the Promised Land. Talk about huge shoes to fill! My next step was to look up Joshua 1:9. Directly across from this page is a commentary written by Chuck Swindoll about the book of Joshua. These are some of his words I have underlined: “It makes a lot of sense that God gave Joshua the same command three times…, ‘Be strong and (very) courageous.’ The Lord wanted Joshua to realize that the full weight of responsibility rested not on him, but on the Lord God.” I also have underlined, “In this seemingly impossible situation, God said, ‘Faith is the victory. Trust me. Just believe me.’” These words also appy to me and my family, just as they did to Joshua back in the Old Testament.
The Lord my God certainly was calling me out of bed this morning….I’m so glad that I listened to His call!
Praise His holy name!
Laura
Wednesday, April 5, 2006 10:16 PM CDT
Connor had another great day at school---He thinks he even did well on his Social Studies test! His carpool buddies just pick up where they left off---They all give each other a hard time; like brothers. I am so thankful for Robby and Charlie and the way they treat Connor like a normal kid. You guys are a part of God’s blessing to us! Thank you for being such great kids.
I had a little overactive mind today and had to fight back tears several times, but I’m OK. We're kinda in a tough spot---over the big surgery, but not even halfway through chemo. Today was one of those days that I needed the radio (KSBJ 89.3) telling me that God is with us and He loves us. He is guiding us every step of the way. It truly helps me.
Interesting tid bit: Connor goes to the dentist for a normal cleaning tomorrow. I notified his oncologist because I know we’re always concerned about germs and I wanted to make sure it was OK. Well, he can go, but he must take 4 amoxicillin pills 1 hour before his dentist appt. and take 3 more pills 6 hours after his appointment. Wow!
OK---We all need to start praying again for his lungs. I can’t believe this, but Connor just came down from out of bed and found his puffer. He is wheezing pretty badly again----right before we go into chemo on Friday. He’s been a little sneezy this week and still coughing, but I wasn’t too concerned until now. I don’t like the wheezing. I pray God will literally touch his lungs and heal his congestion—protecting him from any danger. I pray God will guide the doctors in doing what is right as far as even starting the chemo. God is in control and God is good. I will trust in the Lord.
Blessings to you all,
We love you,
Laura
Tuesday, April 4, 2006 8:37 PM CDT
Howdy all,
Thank you for being here and walking with us through this journey. Your support means so very much to each of us.
Connor is doing great and enjoying being at school. He’s got quite a bit of homework and is working on it now. Going to school each day helps him get it done because it’s due the NEXT day…Other assignments given while he’s sick and are just due whenever seem difficult to complete. I think he’s got several that I should nag him about, but somehow they have lost so much of their importance. I look forward to the day when his grades are what I worry about. He’s a great kid, and he does an impressive job at staying up with his schoolwork. A couple weeks ago when he was so sick from chemo and the chest gunk, Mrs. Huebel, his homebound teacher, was so good to him. She literally read his Science chapter to him and was his scribe for assignments. We are blessed to have her.
He got to go to his trumpet lesson yesterday for the first time since before surgery. He has only been able to go about once a month since beginning treatment (normally once a week). I was amazed that he sounded pretty good. He has lost his high notes, but he mustered enough energy to blow and make music. Tryouts for high school band will be in May---this will be incredibly challenging!!! He’s been in the top band this year---It will be interesting to see where he’ll be next year. Regardless, after he gets off treatment in the fall, I expect his fighting spirit to bring great things. He will miss band competition this Friday as he must return for chemo. Three weeks later, he will miss another band outing and lunch again for chemo. It breaks my heart for him to miss the “fun” parts of school and all the socializing that I feel is so important to the eighth grade. He also missed his Robotics party in January, but he never complains---He just keeps his chin up while rolling with the punches and keeping that precious smile upon his face!
Physical therapy is growing old because we go three times a week along with all our other appointments. He is doing well reaching out to the front…He can reach a little above his head (approx. 120 degrees)---The goal will be to raise his arm straight up (180 degrees)! Reaching out to the side seems to be much more difficult. The front lip of the armpit where his pectorals used to be and now the muscle swings around from his back, is still very tight. He can only lift his arm straight to the side about 50 degrees. If he holds his shoulder funny (where it's not truly stretching the right muscle), he can get it to about 90 degrees. We’ve got a lot of work to do----He says stretching it “hurts”. We meet with the plastic surgeon next Tuesday before we come home from receiving chemo. (We’ll be carrying our handy dandy barf bucket.) I will ask him if we’re where he expects.
Thank you for blanketing us in prayer for our many issues,
Laura
Sunday, April 2, 2006 9:22 AM CDT
I sure do love the “normal” days. Connor is looking and feeling well! We enjoyed Chandler’s birthday party yesterday sandwiched between baseball games. 10 year old boys are extremely active—we need to pay their teachers more!!! I did play a couple of April Fools jokes on them. I served cookies that the bottom was pressed in salt, and there was an iced cake that was foam filled and couldn’t be cut----I couldn’t resist!
It’s amazing how the feel good days are emotionally so much lighter and put a little spring in my step! My mom put her finger on my need for other childhood cancer stories despite the emotional heaviness----it’s the need to NOT feel alone. Sounds understandable to me!
Please pray for Emily and Caroline’s families. I had a long talk with Hershel, Caroline’s dad, on Friday and they have so much anxiety about her bone marrow transplant approaching in May. While we were talking, we got word of another girl who died that morning from a fungal pneumonia—three days after transplant. I reminded him that he’s just going to have to remind himself that GOD will take care of his baby.
Keep the prayers flying---We so appreciate the strength we receive from you and God,
Laura
Friday, March 31, 2006 6:02 PM CST
Blessing from the Lord: Connor did not need platelets today! He had a nose bleed last night and this morning, so I thought for sure we'd spend the day getting a transfusion. Connor told me he thought they would have rebounded----He was right! Today's blood work showed his platelet level at 50. All his counts are good enough for him to enjoy being a "normal" boy for the next week.
His chest congestion is reported to be "definately improved" with a little lingering wheezing. I asked if there is anything I can give him to dry up his chest before the next chemo, and she said to just keep him well hydrated. We continue to learn that hydration is important for so many things.
As for me, I'm feeling much better emotionally. Thank you for your prayers. I think periodically, I just have to get it out. Sometimes, when you're living in the pit, you tend to look "around" rather than "up". We must keep ourselves looking Heavenward to keep the Light of Hope in the pit.
Connor did get to school around 1:00 and physical therapy at 4:30. I just want him to play to his heart's content!!
Blessings to you all,
Laura
hhhhhhhheeeeeeeeeellllllllllllllllllllllooooooooooooooooooo-------from Connor!
hi my name is........hi my name is......hi my name is chandler:]
Wednesday, March 29, 2006 6:02 PM CST
Connor has found his SMILE!!!! He is feeling quite well with no more bouts of nausea. His chest congestion and wheezing are improving, but not perfect---I told the doctor that Connor USUALLY is a “perfect child”—HA! The neulasta has done it’s trick, and he now has the all important white cells to fight infection. He needs to completely kick this chest gunk BEFORE his next chemo round next Friday, April 7. Please keep lifting him up in prayer---God is actively involved! Sometimes, I imagine that if we all keep praying for Connor’s health, it will be like the Bruce Almighty movie….God will just answer “yes” to all that we ask.
I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!!
I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!!
I think that’s Carson’s way of saying “hello” to you all!!!
Thanks to all of you for everything you’re doing to take care of us! Thank you also for all the meals---not having to cook sometimes frees me up to catch up on laundry, writing bills, writing on the web site (like tonight), or just visiting with my kids. You guys are truly appreciated!!!!
Thanks for letting God use YOU to bless us,
Laura
Thursday, March 30, 2006 11:25 AM CST
Hey Guys,
I need your prayers today. I’m really down. If I try and think logically, I probably need to just release the stress and emotion I’ve been under with all Connor’s chest issues. While curling my hair, I had to stop and pray that God will take my mind today and fill it with his glory. I need to let go and give it to God---AGAIN! If I can just stay yolked with the Lord, I can let Him carry the heaviness. His load is easy and His burden is light. I’m supposed to go to lunch w/ Mom, Faye, and her friends, but I’m feeling I will be miserable company. I will do best to just be quiet and listen.
Sometimes, I want to just take my family and run----
I think that the little mini crisis keep my mind occupied. When Connor gets back to a good day, the emotion of the big picture sometimes comes rushing back.
I have so much to do…Chandler’s party to prepare for, bills to write, thank you notes to catch up on, baseball concessions duty schedules to make, picture packets to distribute to the team, Connor’s homework seems to stack up, emails I haven’t even opened…etc…but somehow I spent several hours on the computer this morning checking on friends in treatment (some I don’t even know), and looking up information about cancer. This probably contributed to my depressed state, but somehow I have a need for other stories---Some with great outcomes, some not. My favorite stories are the ones that give GLORY to GOD. That is how I want our story to be. I want to see and feel ---be totally aware of our AWESOME GOD and all he is doing for us!
Today I just need Him—Almighty God—my Heavenly Father to hold me and just love me and my little family---to assure me everything will be OK.
Thank you for lifting us up. I look forward to feeling your prayers. Connor did go to school and I think he was excited.
Laura
Wednesday, March 29, 2006 6:02 PM CST
Connor has found his SMILE!!!! He is feeling quite well with no more bouts of nausea. His chest congestion and wheezing are improving, but not perfect---I told the doctor that Connor USUALLY is a “perfect child”—HA! The neulasta has done it’s trick, and he now has the all important white cells to fight infection. He needs to completely kick this chest gunk BEFORE his next chemo round next Friday, April 7. Please keep lifting him up in prayer---God is actively involved! Sometimes, I imagine that if we all keep praying for Connor’s health, it will be like the Bruce Almighty movie….God will just answer “yes” to all that we ask.
I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!!
I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!! I am Carson!!!
I think that’s Carson’s way of saying “hello” to you all!!! (and maybe needing some attention).
Connor's platelets are still a concern...They dropped from 35 to 25 since Monday---under 20 requires a transfusion which we have had before. I will send him to school tomorrow as long as there are no obvious signs of dangerously low platelets(bleeding gums, nose bleeds, tiny red dots under the skin). I wanted to also send him to school Friday, but he doctor wants him BACK AGAIN to quadruple check the platelets---We're getting tired of the drive, but realize the importance. He should attend school all of next week except for Friday--next chemo start date.
Thanks to all of you for everything you’re doing to take care of us! Thank you also for all the meals---not having to cook sometimes frees me up to catch up on laundry, writing bills, writing on the web site (like tonight), or just visiting with my kids. You guys are truly appreciated!!!!
Thanks for letting God use YOU to bless us,
Laura
Tuesday, March 28, 2006 8:10 AM CST
Dear family and friends,
We need your prayers to include nausea AGAIN today!!!! For some strange reason, Connor threw up 3 times yesterday. Two of them were when he was trying to take medications the other was right after getting out of the car, so I'm not sure what that means. With our blood work report they did not mention his electrolites being out of whack again---I'll call this morning and check.
His red blood cells/hemoglobin was actually quite good at 10. I don't remember what "normal" is, but with his other chemo he normally ran at around 8. His ANC/mature fighting white cells were very low as expected--- 0.4 with a normal range of 1.7 to 7.3. I expect those to begin rebounding today. The part of the report that concerned the docs was his platelet count/blood clotting agent being at 35 with normal being 159-353. They want him back on Wednesday to double check them. If he drops below 20, he will need a transfusion. We transfused platelets and red blood cells many times last go 'round.
My understanding is that now as the Neulasta/white cell booster kicks in, his body will be very focused on making white cells, not platelets. Therefore; his platelets can drop even lower. This is one of the reasons I asked you guys to pray for his bone marrow also. In addion, one of the side effects of the chemo can later be leukemia. Simply put, we need a lot of prayer---pray without ceasing!!
I'm praying for a feel good day! I believe Beau, Bayley, and Faye will be a wonderful and welcome mental distraction.
Last night, while I was at Carson's baseball game, I kept checking in with Connor. He wasn't feeling too well and his temp. was teetering at 100.3. I was mentally making plans on how I could leave and get care and rides for my little kids, but once again the fever dropped and we did not have to go to the hospital. God is truly holding us in his hands. Yesterday, I reminded Connor that sometimes this is how we SEE that God is involved....To be honest, there is no reason Connor has no fever right now. We've had so many chemo fevers in the past with no health issues. This time his body is fighting so much crud, but we've got the blessing of being home. When the GOOD things don't even make sense, it's obviously the Good Lord!
He blesses us every day,
Laura
Monday, March 27, 2006 11:33 AM CST
We are still fever free---Praise God! Last night we were getting a little nervous. Connor went to bed with a temperature of 99.9, but we don't have to go to the hospital until 101. I checked him during the night and first thing this morning. He's still cool! I like to tell him, "You're such a cool kid," when I keep checking him for fever.
I'm getting really sick of the coughing and wheezing, but they continue to linger. Connor did work on schoolwork this morning, and we are about to head up to MDAnderson for our check on counts and chest. Hopefully, there will be no big reason for concern. After that we will attend physical therapy, but will not push the stretching because his platelets are certainly low.
Yesterday was Chandler's turn to go to the theater and have special one on one time with mom. We saw a fabulous production of "Beauty and the Beast". Chandler admitted that he liked it more than he thought he would. The boys have all had their "culture" for the year. I think one turn each is all they can handle.
Tony left yesterday for Kiawah Island in South Carolina for a training seminar---I told him that we'd miss him, but we won't feel sorry for him having to "work". We've been to Kiawah with our extended family before---It's a fabulous resort!!! We look forward to Faye, Beau, and Bayley's visit this week beginning tomorrow. I also look forward to Connor returning to school Thursday and Friday. He has not gone since before spring break and that was only for two days. When he functions, I tend to function.
Thanking the Lord for no fever,
Laura and Tony
Sunday, March 26, 2006 8:38 AM CST
First of all,let me say, "Happy 18th anniversary to may dear, sweet husband whom I love and appreciate very much."
I'm thrilled to report that Connor seems to be doing better each day. Saturday, he finally had some sparkle in his eyes. Today he looks pale (hemoglobin is most definately low), but his face looks like he feels good. Last night I asked him to compare how he felt to the day before...His answer was, "Good". Then, I asked him to compare it to normal...His answer was, "Bad". Actually, that's pretty good for being on chemo!!!!
He is still coughing and wheezing, but his cough does not sound so cruddy. God is certainly answering many prayers. Keep praying that pneumonia will not "fester" in his lungs in these few days that his counts are bottomed out. If we can get through to the middle of the week, I believe he'll be fine. We will go back in to MDAnderson tomorrow to recheck counts and lungs.
He will stay home except for doctor appointments to stay away from germs. The rest of the family continues to be a little cruddy, but nobody seems miserable or that they have it near as badly.
Thank you for your continued prayers....We couldn't do it alone. God certainly gives us His strength each day. I don't know one parent or family that can imagine having to handle this type situation. I never dreamed I'd be doing this to my child...I know God has stepped in and carries us all.
Have a blessed day,
Laura and Tony
Friday, March 24, 2006 10:35 PM CST
Connor had a long, busy day …. Homebound schooling, physical therapy, blood work, IV fluids, and a chest x-ray. We didn’t get home until around 7:30 this evening. I’m relieved to report that he is feeling a little better. His counts were a little low, not too low, yet. He is still wheezing and the doctor thought he sounded pretty bad, so they ordered another chest x-ray. It showed a little improvement from the one last weekend and still “clear” as far as pneumonia----keep praying for no pneumonia. It would be very dangerous, and we just need God to touch his lungs to take care of it. I have never known Connor's asthma and chest congestion to be so bad. It's really never been a "problem" before. Tuesday evening, he was so bad that I woke up in the night and went to check if he was still breathing. Tony nor I slept well that night.
He did not throw up today for the first time in three days. When we did the blood work, we found out his potassium and sodium were both low. They said when the electrolytes get messed up, it too can make him nauseous. We haven’t had this problem before. They switched and gave him a different bag of fluids than he started with to try and even out the electrolytes. He still is having waves of nausea, but he’s doing much better—even laughing some this evening.
Connor will need to stay home this weekend and away from germs. Unfortunately, Carson, probably started with the same chest cold Thursday. Tony and Chandler each had stuffy noses and sore throats tonight. Our house is full of germs. Hopefully, since Connor already had it, he won’t get it fresh again----I just don’t know with his white counts bottoming out and having nothing to fight. Normally, I wouldn’t even consider that he could get it again. We’ll just have to trust in the Lord to carry us through this weekend. I expect his counts will improve beginning on Tuesday. I give him a Neulasta shot (injection to increase white blood cells) after every round of chemo, so it’s pretty predictable.
OK family and friends, let’s pray him through this bout of neutrapenia (dangerously low white counts),
Thanks for everything,
Laura
Thursday, March 23, 2006 9:56 PM CST
Connor felt pretty bad Monday, Tuesday, and Wednesday. He sounded very down Wednesday when I called to check on him that morning. Laura later said that he told her, in a very sad and emotional tone, that he was "tired of feeling bad - I just want to feel good again". It breaks our hearts.
I did notice that he seemed better last night - he was even joking around at times. Today seemed to be more of a rollercoaster ride physically. Better in the morning (still not good though) and worse by evening. His multiday nausea medicine that was given via IV is now over, so we are back to intermitent bouts of nausea. His appearance seemed much better today at least. He is getting hungry, but struggles to keep much of anything down. It seems that just when we are about to our breaking point, the upswing holds. We are praying for that for tomorrow. His cold has improved and he not so miserable, but he is still wheezing which concerns us about his counts dropping. He will go to MDA tomorrow and Monday to get blood work done. We are expecting his counts to bottom out sometime over the weekend. Please pray he stays fever free - I don't think he is ready to be in the hospital for several more days.
Overall, it has been a very tiring time for all of us getting back into the swing of chemo. 3 cycles down - 7 to go: it seems like forever. I keep telling myself that after the next round he has only one more to go to be half way. I guess I'm still trying to find the positive. Any way you look at it though, and as Connors bracelet attests, cancer sucks.
On the positive side, Chandler turned 10 on Wednesday. He was very excited about his "long" present - narrow at one end and flared at the other. He proudly stated to Laura that he thought it was a shotgun! When she gave him the clue that mom bought the present, and not dad, his bubble was quickly burst because he knows mom would not buy a gun. He was happy with the lacross sticks in the end.
Tony
Monday, March 20, 2006 10:05 PM CST
We are home. It’s amazing what change a couple sets of 24 hours brings. I left Connor Saturday evening --- he was doing great and had not spent much time in his room at all---up and out, feeling pretty good, and functioning. Sunday, Connor even enjoyed a visit from his buddy, Josh and Mrs. Connie.
When I returned Sunday evening, he was in the bed and was being premedicated for his next chemo---the red one--- Doxirubicin/Adriamycin. This is the one for which he needed the echocardiogram. I watched as the Koolaid red chemo flowed through the tube and into my baby---that’s so hard on me. An hour later, it was finished and he was feeling really cruddy. His lips were dry and cracked, but he refused chapstick or a sip of water. I tried to get him to just wet his lips, but he just couldn’t. About 15 minutes after it finished, Connor went to the bathroom. Shortly after, I went into the restroom and was shocked to see Koolaid red fluid in the urinal. I knew it would turn color, I just hadn’t seen it. It kinda made me worry more about his liver and kidneys. As the hours went on, it became much less red and not at all anymore.
An hour after the Doxirubicin, they premedicated him for the Iphoshamide and halfway through, he was gagging, coughing, spitting, and feeling horrible. I had to go ask for the next---the fifth---nausea medication. We had to finish the chemo first, then a 5 minute flush, then he could finally get the adavan. I was rubbing his legs and talking him through holding on and trying not to throw up because the medicine was on it’s way---just 20 minutes. Lots of gagging and spitting later---just 15 minutes after the adavan was administered, Connor was asleep. He slept pretty well through the night.
He really didn’t wake up until around 11:00 this morning. Thank God he’s had a pretty good and sleepy day---We came home around 5:00. He has gone to bed now and is feeling OK. We came home with lots of medicines and hopefully, we’ll keep the nausea under control.
Please keep praying for our Connor. He’s such a good kid. Pray for me, too. I’ve had an exhausting, emotional 24 hours. It's hard to get back in the swing of chemo, and I think I so desperately want a “guarantee”---but I know the doctors can’t offer me one. The only guarantee I have is that God is with us, He loves us dearly, He will treat us with divine compassion, and He has a plan for Connor---not to harm him, but to give him hope and a future. God is so good!
Blessings to you all,
Laura
Sunday, March 19, 2006 8:54 AM CST
I talked with Tony up at the hospital just after 10:00 last night. Connor was sleeping and not throwing up----He made sure they PREmedicated him with all 4 meds this time. It will be interesting to see how he feels today. Eventually, we will pretty much know how he will be each day.
Yesterday proved to be a really GOOD day----just like his first round. Connor spent little time in his bed---mostly on the computer in the teen room and at bingo. I had him get up and walk several times and he was certainly “functioning”. Carson and Tony came up around 4:00. The boys played Connect Four (bingo prize) and then went to the teen room. Later they played electronic Sudoku. Around 5:30, we all four went down to the cafeteria to have dinner together. I think it was nice for Carson that his brother was feeling quite well and they could have fun together----Connor just had to push around his pole of IV medications.
Connor’s cold seemed to move up some yesterday and his nose was stuffy. I feel this is good. I’d much rather stuff be in his head rather than his lungs. I kept making him clean the computer keys and mouse with alcohol wipes to prevent his germs from getting to the other patients. The doctors did take a chest x-ray because he was wheezing so badly in the a.m. I do not know the results of it yet. I’m glad they are watching him closely.
Thanks for your continued prayers and support for our precious Connor. I know the Good Lord constantly holds him in His all powerful arms with extra T.L.C.!!!
Love to you all,
Laura
Saturday, March 18, 2006 10:09 AM CST
This morning Connor seems to be doing fine. He ate two (small pre-packaged) bowls of Frosted Flakes, and he is in the teen room now playing on the computer---tomorrow and the next few days I don't expect he'll feel well enough to leave his room. Bingo is today at 1:00--I'll encourage him to attend. The brothers have baseball practice and I don't expect them to be here.
Last night around 8:00 we finally received the chemo (Iphosphamide--we're back to our first round's drugs) after a long day of being here. His echocardiogram results came back fine which meant we could go ahead with treatment. Dr. Huh's wife had their second baby yesterday morning (it's another boy!), so we had to see another doctor making the wait longer than expected. They premedicated Connor with three nausea meds, but after about 30 to 40 minutes of the chemo drip (total drip time is one hour), Connor began throwing up---three times. The nurse actually had to stop the chemo to give him Benadryl which we also use for nausea. It puts him to sleep also. He slept fine the rest of the night---he does have to get up several times to use the bathroom because they give him lots of fluids to help flush his body.
My greatest concern right now -- and I ask for your prayers-- is that this week he has also had a cold and now he has congestion in his chest and he is wheezing. This is classic for Connor--His asthma kicks in when he gets a chest cold. My concern is that we need to get him cleared up before his counts plummet. I'm scared to death of pneumonia, and with him just lying around in a bed, it concerns me. I did bring it up to the doctor---they will have him do his asthma puffer 3x a day. I had him get up and walk with me to the gift shop this morning and sit up in a chair. Hopefully, he'll be all dried up before his counts drop.
Thanks for all your prayers,
Laura
Thursday, March 16, 2006 9:10 PM CST
We are home from our little escape to the Frio River (which is way further than New Braunsfels---note to self). Oh, how I love the escapes! The boys just played and played while I slept and slept (I had a fresh head cold and napped a lot). It was wonderful to have nothing we HAD to do!
The boys spent the whole day Tuesday whittling bows and arrows. They were so meticulous including “feathers” made of leaves and using thread to attach homemade arrowheads they chipped from rocks with a small sledge hammer. We didn’t have string, but they found some down by the river to complete their bows. They actually got them to shoot quite nicely. When the bows would break or arrows got lost, they’d make new ones. As the day grew late, Connor found a whole pack of bamboo skewers in the cabin. He figured out that they, too, can be made into arrows without all the whittling! Actually they shoot with far superior accuracy than twigs. We left several skewer arrows actually impaled into the trees around our cabin (they did not shoot each other). I think bamboo skewers will now be added to our camping supplies list. They truly are my Three Little Indians!!
Carson and Chandler braved the cold water and entered the river (Connor crossed at the shallow part to look for feathers on the other side)----They tried unsuccessfully to spear a few fish, too! The boys also played in the fire pit the whole trip---especially Chandler. He’s our family pyromaniac. We cooked s’mores every night and actually finished a whole bag of marshmallows---several caught fire and became completely blackened---as the kids say, “It’s like our school lunch!”
Wednesday, Connor was quite sunburned on the back of his neck, ears, and backs of his hands---He's hypersensative from the bactrim antibiotic he continuously takes to protect his lungs. Luckily, I had some lotion with SPF 30. We all went horseback riding and then drove to Lost Maples State Park to go on a two mile hike. We found three heart-shaped rocks on our journey which can be added to our family collection. God’s blessings just never cease. Every night at dinner, the kids’ prayers included special thanks for “family time”.
Carson kept Connor in stitches and ing up the whole trip. Tony and I think he’s a little goofy, but even Carson knows and claims he’s giving his brother the BEST MEDICINE---LAUGHTER!!! I privately told Carson what good it does Connor and what a good brother and friend he is. We’re proud of all our boys.
Tomorrow, Friday, we return to MDAnderson for chemo. Connor seems in good spirits for now. I will not be surprised if he’s a little edgy tomorrow. They will also conduct an echocardiogram to double check Connor’s heart for side effects from the chemo. Please continue to pray for Connor’s fighting spirit, for no damaging side effects, and that we will all “see and feel” the active spirit of Christ along our journey---sometimes that’s the only thing that keeps my chin up.
PRAISE REPORT: Weston’s scans all came back clean and normal. They will sleep well for the next three months. Thank God for good reports!!!
More camping pictures under "view photos".
Putting our trust in Christ,
Laura and Tony
Monday, March 13, 2006 11:16 AM CST
Connor has been great the last few days since we last updated. I know a lot of people are checking daily, so here is the latest.
Connor made it to school the end of last week. He was pretty much caught up with his outstanding work except for the English paper he is still working on. We ask him daily if he had a good day and we would get the standard “sure” answer. We still don’t get more than one word sentences too often, but he looks and feels good. The surgery continues to heal nicely. He moves the arm more and more every day. Today he started physical therapy to try and improve the range of motion. I’m sure he will be in good mood after that!
Laura did her standard magic in pulling together the last house renovations before the wedding shower on Saturday. The short list is kitchen: faux paint walls, above counter lights, curtains; dining room: ceiling paint, curtains, refinish table, new plants; den: wall paper and paint cabinet back, new lamp shades and wiring, floor plug; back porch: new plants, power-wash porch and patio. But the biggest feat of the week was cleaning her craft room! We are able to get a lot of things done and it was a great distraction. Sunday was definitely a day to sit back and do nothing.
Connor is going to physical therapy this morning. As soon as he is done we are heading to Leakey to stay in a cabin on the Frio River for a few days. The boys are looking forward to the escape. Connor is scheduled to resume chemo this Friday. He will have 8 more rounds, so we should be done in about 6 months. The past few days have been a welcome relief from the grind.
We will not post again until the weekend so have a great Spring Break in the interim.
Tony and Laura
Wednesday, March 8, 2006 11:18 PM CST
School did happen today!!!! I think he had a fine time---no complaints. He shares so little detail I never really know---I think it has something to do with the male gender. He did work on some homework and practice his trumpet tonight also---that was probably good stretching for the shoulder! I missed what it sounded like; I’m just amazed he has enough strength to practice. We’re so proud of him! We tell him he’s our little Timex---He takes a licking and keeps on ticking!
Today I went to the physical therapy place to get Connor signed up. They couldn’t get him in for his first appt. until next week. They kept telling me the only availability was Wednesday---despite the fact I kept asking for this Fri., or Mon. Finally, I began to almost cry (a rarity for me and almost funny now). I began telling her that we didn’t get to go skiing at Christmas because of relapse and we’d really like to go camping for a FEW days----We were planning on leaving Monday and returning Thursday for probable chemo on Friday. Sometimes we just want to have a LIFE!! Anyway, despite no openings, God sent us a blessing!!! A therapist walked in (I don’t even know her name) and said she changed her schedule and she can take us from 9:00 to 10:00am Monday morning!!!! PERFECT---I’ve learned when things work out better that I could have even planned, it’s probably NOT coincidence---It’s God.
I think Tony found a cabin in New Braunsfels. We will hopefully pull it off at get away and RELAX for a few days!
Have a great end of the week and pray about Weston’s scans tomorrow!
Laura
Tuesday, March 7, 2006 10:29 PM CST
Howdy Partners!!! It's rodeo time and I feel like you guys are our partners in this last battle against cancer for our little buddy! He doing GREAT!!!
We saw Dr. Yasko (surgeon) today and he's also pleased with Connor's healing. He actually OK'd him to restart chemo next week or so----the vacation is almost over. The main thing he's wanting Connor to do is MOVE his arm around and get things stretched out. He told Connor, "It's your arm, and you want it to move as normally as possible." The way for that to happen is for him to start stretching and moving the little bits that he can. He said that while watching TV, put a stack of pillows under his arm to hold it UP rather than down by his side---easy things like that. We will also begin physical therapy ASAP.
Connor will attempt school Wednesday through Friday this week. Wonderful Mrs. Huebel has done her best to get him caught up. It feels good for us all to have a few "normal" days. He will take pain medicine---we're down to just one pill. He'll also wear his sling to school mostly to remind others not to touch, bump, or pat him on the shoulder or back! He'll be fine.
I did take him up for about an hour Monday for his IPC class (Integrated Physics and Chemistry). They were racing a car he helped Robby build this weekend. They advanced to the finals which will take place tomorrow. Now that's better than traditional homework!
Tony and I are busily preparing for a huge couples wedding shower for my dear Patrick (boy I used to babysit) and his lovely bride, Cory! Best wishes to them---We are honored to "shower" you with love this Sat. It's been a nice "positive" and fun activity to occupy our minds---and get projects DONE around the house. I finally got my kitchen faux painted!
Thank you all for your continued prayers---I believe that's what is making such a positive difference. Things are always better when God is involved!
Please pray for God's guidance for Dr. Huh this week as we prepare to return to chemo.
Also, pray for my sister Jennifer's family. Weston has his routine scans (MRI and CT of abdomen) Thursday. Pray for continued perfect health for Weston and God's peace upon their hearts and minds. It's always stressful until you hear the word "clean". Weston is doing great and looks so healthy (hairy, too)---Praise God! They had a fabulous time on their Make-a-Wish trip.
In Christ,
Laura and Tony
Friday, March 3, 2006 10:49 PM CST
Connor sure did feel loved today----it seemed to be shower Connor with gifts day! He received several gifts and cookies today. What a surprise!!! Thank you all who have spoiled him and us with gifts, blankets, books, cards, notes, dinners, flowers, goodies etc.---It certainly makes us feel special and that so many of you are fighting right along with us! He continues to do and look so well. The last two days he even wore a shirt (with buttons all the way up)!!!!! Maybe next Wed. he’ll go to school and be able to manage a uniform shirt with only 3 buttons---that would have to go over his head which could maybe count as some physical therapy!!!
He does tend to hold his arm like it’s in a sling---I had to remind him that the plastic surgeon does not want it in a sling all the time for a reason. We did some of our own physical therapy for 10 minutes or so this evening. We used Girl Scout cookies as rewards—kinda like doggie treats!
I’ve thought about Neil and Dakota all day today, but I’ve learned to separate our case from all other cases. I’ll close with a copied salute to Neil. This was written by Angie, Micha’s (the miracle child’s) mom --- It can be found in Micah’s journal at www.caringbridge.org/visit/micahfarmer .
Good-bye Neil......I imagine that your heaven must include mountains of lego's! This world has lost one of the sharpest designing minds it has ever witnessed. You were so patient, wise, honest and mannerly. A true gentleman. A young man that always made my mind think of another era. One when most kids had the attributes that you held. In todays world, you were the exeption, not the rule. Your fight was long and very hard but I never ever heard a discouraging word from your lips. We loved you instantly. Your dad became one of my very best friends. My dear Neil, if you are a builder in heaven, please tell God that I would be honored to have my mansion made of lego's. I know that today you must feel so wonderful to not have pain. I am so happy for heaven's gain....so grieved at our loss.
After reading her beautiful words, you will understand why Connor liked him so much---They have many common interests. We always invited Neil to attend Connor’s school robotics competitions, but it never worked out---he would have loved it.
Love to you all,
Laura
Thursday, March 2, 2006 10:24 PM CST
This was another good day as evidenced in today's picture. Connor called us this evening while Laura and I were at Chandler's basketball game and said he was bored - he is actually getting tired of TV. Laura told them to play a game and you know what - they can do something besides electronics stuff! Chandler lost thier playoff game 20-17 so the season is officially over. Luckily he lost to Jim and Rebecca's son Isaac: they have been so good to us by taking Chandler to practice on occasion and arranging meals for us so we are not upset (not too much anyway).
Connor did visit Dr. Oates today and had the last drain tube removed. He did have to barf on the car ride in - Laura feels it was definitely nerves. He did get the tube removed without any tears though. Dr. Oates is very pleased with the healing and said it is time to get the arm in use. We did find out that the mole that was removed during surgery was nothing at all. Connor is even sleeping on his side some and tonight we let him go upstairs to sleep in his own bed. These seem like little things, but they are big steps in the road to recovery.
On a saddder note, please remember that Friday is Connor's friend Neil's funeral. Dakota (www.caringbridge.org/ar/keepthefaith) also passed away this morning ending his fight as well. We met Dakota about the same time as Neil. Both boys were cancer free at the end but died as a result of the cure. Sometimes I wonder if the rising "cure" rate is all that it is cracked up to be as we have seen way to many children "cured" of cancer, but only to die as a result of the the "cure". I try not to think about it much though - the thought can be too heavy a burden to carry.
Tomorrow wiil be a good day too!
Tony
Wednesday, March 1, 2006 11:23 PM CST
Connor is healing up fine. He feels OK as long as we keep the pain meds in him. His back has been itchy for several days and today I noticed one of his four meds has a side effect of itchiness---must be true. He's doing more and more for himself around the house, and Mrs. Huebel came today for his 2 hours of homebound schooling. I think she did the writing. The main thing I don't want him to do is go upstairs (he's sleeping on the couch) because after the last surgery, he slipped and fell down a few steps. The railing is on the side of his surgery preventing him from holding on while decending.
We go in tomorrow to have the last drain pulled---that's been an experience! He'll be more comfortable when it is out because when standing, his arm rests where the tube goes in his side and pushes on it.
Thanks to everyone for taking such good care of us---and actually spoiling us a bit,
Laura and Tony
Monday, February 27, 2006 10:44 PM CST
There’s no place like home---and that’s where we are! I want to praise God tonight---Praise Him for being the God who still performs miracles!! Connor is truly a miracle. His shoulder has been through two massive surgeries (this time the paperwork actually read “radical”), and it still functions at almost 100 percent.
To clue you all in, there was certainly a time when we thought Connor would lose his whole right arm. Tony actually went through a whole day using only his left arm, so he could understand. What an awesome man! The original plan was to have surgery the following Monday----They would remove the original tumor and everything around it. This would include all the nerves which fed the arm---and if you have no nerves, you have no function---they would have removed the whole arm. And the worst part of it all----They told us they “could not get it all”…..We were praying for God’s direct guidance, and this is when we told them we were going to talk with MD Anderson. It felt like God had taken over, once we got there. Tonight, while driving home, I was just overwhelmed with praise for our awesome God!
Connor had a very big day-----We began with the normal doctor visits (orthopedics, pediatrics, and plastics) beginning around 7:00am. They all say he’s ahead of schedule and doing great! When the plastic surgeon came in, he removed 2 of the 3 surgical drains--ouch (we came home with one). Connor no longer needs to hold his arm away from his body---he can be comfortable. He actually is supposed to start some very easy exercises to begin shoulder movement. Dr. Oates also let me view the photos of Connor’s surgery on his digital camera. It was quite fascinating---I could see his nerves (white) lined up in his shoulder as well as a few ribs and lots of red. He explained the whole process to me---I was asking because I knew the muscle transfer had to be larger than the incisions and I wanted to know everything.
Connor walked the floor two separate times and he did great. He’s much stronger and steadier than he was on Saturday. The doctors left it up to Connor if he wanted to go home today or tomorrow. It took until 3:00 for him to decide he was ready today. By the time we got everything taken care of for discharge (including my training for taking care of the surgical drain and prescriptions for his many meds), and because I’m such a mean mom and made him shower (I wanted the nurse to check my regauzing skills), we didn’t leave until almost 7:00. It feels so good to have him HOME! Thank you, Jesus for not only being our savior, but also our Lord---guiding us through this whole journey. That has been the greatest lesson through all this---to let Christ LEAD and CARRY the LOAD!
Thank you for your sincere prayers and messages---they have become a large part of our daily bread,
Laura and Tony
Sunday, February 26, 2006 1:51 PM CST
Sunday pm update: Connor had a good after noon - todays picture was taken as he made a full lap around the pediatric floor.
Each day Connor seems to be making progress. I made it to the hospital around 1 on Saturday and we tried to get Connor into a wheelchair to make the bingo games. The pain was too much for him to bear. We checked and found that he had not requested any spin medication since 5am. He should have had his next dose around 9 or 10. For the rest of the day and night we were diligent in requesting the meds every 5 hours and the evening and night were much Better. Connor is eating and drinking more and he is almost able to get up and go the bathroom by himself.
We had a good visit from Charlie, connors carpool buddy. Connor wasn't very energetic at first, but he seemed to get better as the afternoon wore on. Charlie brought a nest poster that the kids at Westbrook Int made.
Today is going well. Connor has been up a few times and that really seems to help his coloration and overall demeanor. This afternoon ought to be interesting as we will try to make a lap around the pediatric floor. The doctors are pleased with his progress and they want him eating more and walking around.
Thanks for all the postings. It is nice to know that Connor is so loved.
Tony
Friday, February 24, 2006 8:03 PM CST
Connor is doing a little better today----Our goals of the day were quite simple……1) get out of the bed. 2) eat. We have actually surpassed our goals. He has gotten out of bed 4 times and counting. We got rid of the catheter, the surgical stockings, and the air pumps on the legs for circulation. He has eaten—very little and with even less interest, but it still counts! He has also begun to take some oral pain medication which lasts longer that the IV . The doctors are pleased with everything.
Connor is still in great pain, but we’re dealing with it OK. He has been awake most of the day--- great improvement over yesterday. He’s been up to watching TV today which helps the mind a great deal. We tried using a foam wedge to help reduce the pressure on his back wound, but that made his shoulder hurt much worse. We decided the shoulder was more risky to mess with, so we returned him to his back.
We did get a preliminary pathology report showing good margins and the tumors out in full. I don’t know details, but I have asked for a printed copy (of course the nurse needs a doctor’s approval so it could take time). We like to know all the details. Join us in praying for signs that the little bit of chemo he’s had shows signs of cells. I don’t know how important it is now that the tumors are out, but it would sure make me feel better to know without a doubt this chemo tail is definitely worth it. We expect to resume chemo in approx. 3 weeks.
The note on Connor’s abdomen in the photo says, “Take this too, Dr. Oates.” It was referencing a large mole that we figured would be good to whack off while he was out. The plastic surgeon was willing, but was afraid he’d forget. We put a smiley face around the mole as a reminder. We also had a note for the orthopedic surgeon on Connor’s shoulder that read, “Go for it, Dr. Yasko!” The physician’s assistant reported that he liked it.
We really feel God is in control and is taking good care of our situation. We plan on bringing the brothers up for their first post surgery visit tomorrow for 1:00 Bingo. I know they will all enjoy being together for a few hours.
God’s peace be with us all,
Laura and Tony
***ADDED PRAYER REQUEST*** Please pray God's peace upon the Sen family---Anjan, Sreejan (11 year old brother), and Mom. Connor's best hospital friend, Neil (15), passed away Friday night. Actually, Neil has been cancer free for two years. He had bone marrow transplant---It took care of the rare leukemia, but his immune system never rebuilt. It has been an incredibly long and difficult road for Neil. He was quite the fighter---I'm proud to have been touched by his spirit. I have not had the nerve to tell Connor yet, but I feel the need. Carson and Chandler know Sreejan from cancer camp, too. They all will need to know. This is one of the hardest parts of spending time up here at MD Anderson.
Thursday, February 23, 2006 8:58 PM CST
This picture was taken this evening with Connor's buddy Ryan. Connor was not very talkative and he was in a good amount of pain. He did manage a smile for the picture - his positive attitude never leaves no matter how bad he feels.
Overall he is doing well. The doctors are very pleased with where he is now. The doctors did check the range of motion while he was under yesterday and they feel it is excellent. Connor is still in a good amount of pain, but he knows how to work the morphine pump so he is able to manage the pain on his own. We are trying to get him to eat and drink - it will help him overcome the lingering nausea from the anesthesia. Connor is mostly just laying in bed, but he will acknowledge questions with a simple answer or quick nod. We expect by the weekend he will be fully ready for visitors and Pappasitos quesidillas.
Connor did get to see the youth minister from UBC today as well - thanks for the visit, Sterling. Laura's mom is spending the night tonight, I don't know if my weak knees could handle the drain tubes yet. A special thanks to my brother David for staying late last night with Laura until Connor was settled in the room.
Carson says the surgery site looks like Connor gets an "e" for excellent!
We should sleep good tonight.
Tony
Wednesday, February 22, 2006 1:33 PM CST
4:15 It's over. The plastic surgeon said everything went as planned. I got to see Connor and he looks good and his color looks good. He is in some pain but that is to be expected.On a lighter note Carson had to take a math test for ygr advanced program he will be in next year. It was supposed to be a 3 hour test, but Carson called in 1.5 hours to say he was done and to come get him. We knew he was very intellectual in math. Well we found out today that he only did the first half of the test!!! He is going to be surprised tonight.
1:20 update from the surgeon.
I will never forget the words that I read on Connor's original diagnosis from Texas Childrens Hospital in June of 2003 - "unless complete resection is possible, long term prognosis is poor". Talk about dropping a dad to his knees. Fast forward to today - the surgeons completely resected both of Connor's right chest muscles. The tumors were lying between the two muscles - kind of like the meat between two pieces of bread in a sandwich according to my wonderful brother the surgeon. Today I feel like we have the beast beat. Connor will still have another 3 or 4 hours of surgery today, followed by a slow and sore recovery. They still have to transfer the back muscle and attach it near the collar bone to give the nerves and vessels proper coverage. The skin graft will also be done today. Two and a half years ago TCH wanted to "debulk" and "see what happens" - probably not a good ending chapter to the TCH version of the story. Today, thanks to the wonderful staff at MD Anderson we have hope that this is the first chapter in a new book with a good ending.
Thanks for the continued prayes and shows of support. We could not be as strong as we have had to be without each and everyone of you being there for us.
Tony
Wednesday, February 22, 2006 1:33 PM CST
4:15 It's over. The plastic surgeon said everything went as planned. I got to see Connor and he looks good and his color looks good. He is in some pain but that is to be expected.On a lighter note Carson had to take a math test for ygr advanced program he will be in next year. It was supposed to be a 3 hour test, but Carson called in 1.5 hours to say he was done and to come get him. We knew he was very intellectual in math. Well we found out today that he only did the first half of the test!!! He is going to be surprised tonight.
1:20 update from the surgeon.
I will never forget the words that I read on Connor's original diagnosis from Texas Childrens Hospital in June of 2003 - "unless complete resection is possible, long term prognosis is poor". Talk about dropping a dad to his knees. Fast forward to today - the surgeons completely resected both of Connor's right chest muscles. The tumors were lying between the two muscles - kind of like the meat between two pieces of bread in a sandwich according to my wonderful brother the surgeon. Today I feel like we have the beast beat. Connor will still have another 3 or 4 hours of surgery today, followed by a slow and sore recovery. They still have to transfer the back muscle and attach it near the collar bone to give the nerves and vessels proper coverage. The skin graft will also be done today. Two and a half years ago TCH wanted to "debulk" and "see what happens" - probably not a good ending chapter to the TCH version of the story. Today, thanks to the wonderful staff at MD Anderson we have hope that this is the first chapter in a new book with a good ending.
Thanks for the continued prayes and shows of support. We could not be as strong as we have had to be without each and everyone of you being there for us.
Tony
Tuesday, February 21, 2006 9:53 PM CST
Noon: The nurse just have us the update that everything is going good and that the surgeon reported that the first tumor is almost done. We don't get a lot more unless there is sconcen so no news is good news. A special thanks to Doug and Kevin from R&M for the lunch-Doug you might want to check Kevin and are if he kept some little debbie snacks for himself!
Also, plear excuse the typos since I'm quickly typing on the crackberry.
pictures are from our weekend escape to Brentwood (south of Nashville) to see the Blackshear’s. We sure do miss Faye, Murray and the cousins, especially during these trying times but at least we get to see them several times a year. We were treated to about 3” inches of fresh snow on Saturday – it was the first time that the snow remained on the ground this year. God was truly watching over us to allow us a great escape weekend.
Wednesday will be a long day for Connor. He has to report to MDA at 6:30am and surgery will be at 8:30am. He should be under for about 6 to 8 hours. Basically he will be having a breast reconstruction surgery. The two tumors will be cut out by the surgeon. Then the plastic surgeons will take over. A muscle from his back will be harvested and transferred to his shoulder to provide coverage to the blood vessels and nerves that go to his arm. If you pinch your chest muscle where it ties from the chest to the arm pit you get the idea of where the surgery will be. Connor will also have a 3” to 4” patch of skin taken from his back and placed in the shoulder area to replace the previously radiated tissue. He might not win a Mr. Universe contest, but he should retain all his functions, but with some limitations to the overall range of motion.
Please say prayer that Connor can rest comfortably. He is concerned about his ability to sleep since he knows that both his chest and back will be affected. Also, please say a prayer that TOMORROW is the LAST time Connor EVER has cancer in his body. We will be waiting it out on the 5th floor of the green zone. I will try to get to a computer to post updates thru-out the day.
We are about to try and get some sleep.
Tony
Monday, February 20, 2006 10:30 PM CST
Howdy to all and thanks for all your messages in the guestbook! We just got back from a wonderful escape from reality, and I guess I escaped so much that I didn’t even check the site---I guess sometimes I just don’t even want to think about it all!!! Friday, we checked the kids out from school around noon and jumped on a plane to Nashville to visit the cousins and ENJOY some FUN before surgery. We even skipped school today because Faye’s kids had a holiday!
The kids were completely thrilled with rolling down real hills----And then, God actually threw in the added blessing of SNOW----We went to sleep and woke up to a white landscape! It was incredibly magical and emotionally whisked us away! The kids sledded and played in the snow most of the day. Faye’s neighbor got out their 4 wheeler and pulled the kids around by rope on a knee board. They had a complete BLAST. Thanks again Mickey! That was the most exercise Connor’s had in a while. Even though it was freezing, it warmed our hearts so much to see them having such unique fun!!
Another big thrill is that Weston’s family (cousin who just completed cancer treatment) left Saturday for his Make-a-Wish trip to St. Thomas! They reported being picked up by a limo labeled “Weston’s Ride”, a room filled with balloons, and champagne and fruit drinks upon arrival. I know from experience the Make-a-Wish Foundation will see to every detail and make it a trip of a lifetime for each of their family. And I must say----They deserve it! Getting to think of and make a “wish” is such a great carrot for all these kids!
OK---We’re back and reality hits tomorrow with pre-op appointment and a meeting with Dr. Yasko. He should be able to give us his “plan” for surgery and an estimated length of time. I think it will be long! Please pray for God’s complete control over Dr. Yasko’s mind and hands. God bless him for committing his life to removing this hideous disease from precious people of all ages. Thanks to Tony’s brother, Jay, for getting us in with him. We expect surgery to be first thing Wednesday----Thanks for your continued prayers. Prayer is so powerful!
Love to you all,
Laura and Tony
Wednesday, February 15, 2006 10:51 AM CST
Hope you all felt loved this Valentine's Day---we sure did! Connor's scan went well---and then we went to IHOP for lunch. Even though he was full, we got him back to school just in time for his lunch period (probably his favorite subject)! The best part about this was that the kids at his lunch table surprised him with a dozen carnations for Valentine's Day. Also, a group of band kids (I think) gave him a new Aggie hat, and they all signed the under side of the bill. I'll have to brag on these precious kids at Connor's school. They really went above and beyond to make him feel loved and supported! Connor has always said that due to his illness, the kids are extra nice to him at school. I'm so proud of them for not making him feel like an outsider. These kids are probably the main reason he continues to stick with school even through treatment. Usually, kids on chemo do not stick with it.
Dr. Huh reports the scan showed that the tumors are stable in size (last time he said that, too, when really the armpit one shrunk a whole cm.) I'll probably call Nicole (old nurse) tomorrow and see if she can give me woman style details. Dr. Huh also reported that the tumors showed "less enhancement" which is positive. We will meet with Dr. Yasko (surgeon) next Tuesday to prepare for surgery Wednesday, Feb. 22.
Please keep praying---We need God in control of everything!
Laura and Tony
Monday, February 13, 2006 11:12 PM CST
Connor’s doing fine and enjoying the good days! He’s in school basically for the whole week. We will have another MRI tomorrow for the surgeon to sneak a last peek and get his final plan. I figure God wants to shower us with His love through a great report---Why else would we have to be at the hospital on Valentine’s Day? Sounds good to me!
We do have a few specifics for which we would appreciate your prayers:
Please pray the chemo has been successful in shrinking the tumors a considerable amount---This will be the last “proof “ we have that the chemo is affective. After surgery, there will be nothing to “measure”. On the other hand, the chemo will, at that point, be basically for preventative measures and won’t have such a big job to attack. I don’t think there is any research proving having surgery early or later changes the outcome of treatment---It just feels good to get it OUT.
Also join us in praying that God will directly lead the hands and decisions of every move the surgeons make. If they need to be more aggressive, may God give them an uncontrollable desire to take everything that needs to come out. Pray that every bad cell makes itself visible, so the surgeon can be sure to get them ALL. Pray also that the tumors remain 100 percent in tact, and we will have ZERO spillage.
Continue to pray for Connor’s body to be strong and stay up for the long fight and for his oncologist, Dr. Huh. Pray for the side effects from chemo to be minimal or none! Pray also for his spirit---that he can see and feel the presence and goodness of God through it all!
Connor seems to be handling the pressure of the upcoming surgery very well. He’s a little concerned about being able to sleep comfortably with the wound on his back as well as the shoulder. And he’s very concerned about having the drains that will be implanted REMOVED. He knows way too much this go ‘round---He knows they just jerk those tubes right of the incision when no longer needed. His plan is to have them let him know an hour before the removal---and he’ll push the pain medication button 100 times before they come. You go dude!!!
Thank you all for sharing your thoughts, prayers, and concerns in the guestbook. They truly keep us uplifted! Special appreciation goes out to our co-Aggie and friend Debbie Alenius for the "Pray without ceasing" photo creation!
Laura and Tony
Saturday, February 11, 2006 5:13 PM CST
We're doing great! Connor's been out with his brothers and friend shooting the heads and bodyparts off of army men with their airsoft guns...Sounds like a normal 13 year old boy to me! (Aren't we proud!) This weather can't be beat!
Tony and I actually had date the other night and got to go to dinner with just the two of us----Of course, I had to ask him his name first.
Laura and Tony
Friday, February 10, 2006 10:06 AM CST
It’s a rainy, cold Friday morning---Here I sit at the computer (I’ve been here over an hour)---still in my pajamas. Yesterday, Connor had his first full day at school this chemo round which gave me great relief because when he functions, I can function. Someone asked, “Why are you at home? I figured today was your first opportunity to get out of the house and go socializing.” Well, sometimes, even when we are NOT in the hospital, my HEART and MIND are still there with all our friends---the bravest and sweetest kids in the world!
Right now, we know two young men that are clinging to life---to the point where sometimes you know the kinder thing for God to do is take them HOME, but you can NEVER give up HOPE that God has a plan and a future for them here on Earth. The only thing I can do is place them in the lap of Jesus and let Him do the “taking care” while trying to remember my job is simply to LOVE and keep praying God’s peace upon them.
We also know two precious girls who have just relapsed and their families are in our shoes. One of the girl’s tumors (now in the lung) has grown even on chemo. This has delayed their surgery, and doctors are working on the “plan”. The other young lady is headed for bone marrow transplant---where doctors will bring out the “big guns” of chemo and most likely full body radiation to literally kill off her bone marrow in order to introduce some stranger’s bone marrow into her body. After this, she will spend 100 days in isolation. They live several hours from MD Anderson and she has two siblings---They’ll have to figure out how to be parents to all their children while never wanting to leave their sick child’s side.
I write today with tears streaming down my cheeks, even though Connor is doing great. You see, there’s just so much emotion wrapped up in “treatment”, and since it lasts for a whole year, you get quite attached to the precious kids.
There’s a song I like on KSBJ (89.3 FM), it states:
“I need you Jesus to come to my rescue. Where else can I go? ….Capture me with grace.” That is how I feel today.
The radio station KSBJ has been such a blessing to me. I was a listener before Connor was ever diagnosed---but God knew long before I did that I would need it. While we’ve been driving in to MD Anderson these almost three years, they not only remind me that God will NEVER leave us and is ALWAYS with us because He LOVES us more than our human minds can comprehend, but they also remind my CHILD. I usually turn it on in the morning to keep my mind focused on what is right and good. It takes a few weeks to learn the songs, but I guarantee you’ll find ones that speak to your specific needs and your heart.
Trusting in the sweet name of Jesus,
Laura
Tuesday, February 7, 2006 10:26 PM CST
THURSDAY----Connor passed his blood test yesterday and he went to school for the afternoon. Today he is at school for the whole day with a band function after until 8:00 tonight. I have no idea if he can play the songs, but right now band is for SOCIAL purposes as far as I'm concerned. I pray he will have stamina for the long day and feel like he fits in with all the other kids.
TUESDAY----Before I get rolling, let me send out a HUGE praise report----Our friend Michael is in complete remission!!!! Whoop!!!! Another friend, Kathy, had a successful surgery with clean margins to get tumors out!!! Tony always says, “The best kind of tumor to have is the one in a bucket!” Weston is enjoying getting back to "normal", and Connor has had a fabulous round and remains FEVER FREE and HOME!!!! Praise God from whom ALL blessings flow!!! God truly answers prayer---Keep praying for us all!
Tomorrow, we go to clinic for counts in the morning, and if they are high enough, I get to send Connor to school. He should attend all the way until surgery, Feb. 22, except for a few appointment days. Valentine’s Day we will have another MRI for a final view for the surgeon. I expect God to shower us with His love that special day and hopefully see dramatic progress in shrinking the tumors which will make the surgery much easier and help us be successful in getting nice, clean margins. God has already seen to it that the more difficult tumor (surgically) shrank from 3cm to 2cm after just the first round of chemo. The other one, in the chest, didn’t change much, but the surgeon is not so worried about that one (as far as difficulty getting it out). God certainly knows everything about Connor and his body---He’ll take care of our boy! Join us in praying for the surgeons—Yasko (orthopedic oncology), and Oates (plastics). Pray for God to guide their hands and every decision. We want and ASK our Heavenly Father to be in control of everything concerning our son.
Thank you Lord for all your dear people who continue to pray for our precious Connor and our family. Sometimes I just don’t know what to say when my heart becomes so heavy--Today, not for just ourselves. In the last week, we have not gotten ALL good news from our friends in our cancer world. Cancer treatment seems to be like that---sometimes it’s great news, sometimes not; and it seems you never know on which side of the fence you’ll be. Thank you Jesus for the praises above!!!! We certainly NEED the positive stories---but they all need to be handled with prayer. Emily (13?) has relapsed w/ osteosarcoma, Dakota(15) and Neil(15) continue to struggle—cancer free, praise God, but both have extreme complications, and I just found out that Caroline(12?) is suspected to have relapsed w/ leukemia.
There’s just something about the relapses that completely breaks your heart. I find myself closing my eyes, for about 10 seconds, often----I think it’s a way of escape---that this can not be real! We all just need Jesus to literally CARRY us through it all. I think when you’re a relapse, you’ve already swallowed the majority of the FEAR---You’re just literally BROKENHEARTED. And then there are the new cases and the parents with the look of total shock and fear all over their faces---We’ve been there, too. Dear Lord, help us be an extension of you. Use us to show your love. You are our true HOPE.
I ask you to pray for everyone mentioned today. Ask God to hold all the families close.
Thanks for being some of the bright spots in our days,
Laura and Tony
Sunday, February 5, 2006 9:26 AM CST
Connor has had a fairly good weekend.
Friday was a long day though. He went to MD Anderson for blood work at 1pm, followed by an anesthesiology consultation at 2pm. After 2 hours of waiting, he was informed that he could not have have a consultation because the surgeon doesn't have the surgery on the official schedule yet! After a well versed email - we have an official surgery date of February 22. Connor will not have any more chemo until after the surgery.
Saturday was a fairly good day. Connor was able to get some homework finished. He also enjoyed a visit from his cousins Jenna and Brennan. Chandler and Carson had the regular Saturday basketball games, luckily we only had 2 games instead of the usual double headers for each. Chandler's team came in second place in their game, a polite way of saying they lost. Carson's team was down 12-0 after one quarter and 21-6 at half time before rallying for an exciting 25-23 victory. Connor seemed to be feeling well enough that we weren't pushing nausea meds--While we were at basketball, he threw up twice. We hate it, but we just have to keep him medicated--We are back under control and today he's just taking the Zofran which doesn't make him so sleepy.
Today should be a fairly quiet day around the house. We will stay low since Connor's blood counts should be dropping. Hopefully he won't get a fever and we can stay together this evening.
Enjoy the day and have a fun time watching the Super Bowl. Please say a prayer for Connor's continued healing. Check back soon - we might be having a party again next weekend if Connor is up to it.
Tony and Laura
Thursday, February 2, 2006 8:42 PM CST
Picture: Last weekend during round 2 of chemo
Yahoo! We had a great day---Connor was eating ahd drinking well, but more than that---He was PERKY most of the day! He still needs the Benadryl for nausea which in turn makes him sleepy---but in between he was in a good mood and not just a section of the couch. He even did an English paper. We thank God for the people who have invented the modern nausea meds----we are much improved over the fetal position in the dark, silent, hospital room two and 1/2 years ago.
He definately could have done some homeschooling for a couple hours today---That's a good thing because the meeting I went to today gave us permission to begin tomorrow! The homebound program through the school district saves our bootie as far as attendance and gives him some one on one teaching when he's not up to real school. We are blessed to get Mrs. Huebel back this time again---she's truly and angel, and we love her!
We met with Plastic Surgery today and think surgery date will be Feb. 22---first thing in the morning. Tomorrow we go in to clinic for blood counts (which should be beginning the big drop), and we meet with anesthesiology for pre-op stuff.
We appreciate your every prayer and message--God has blessed us with prayer from people we never dreamed would hear of our battle, much less join our ranks. God is so good---He lifts us up daily through your messages and prayers.
Laura and Tony
Tony's mom forwarded this awesome story to us:
Wisdom from a Thirteen-year-old Cancer Patient
by John Fischer
John was thirteen and in treatment for non-Hodgkin's lymphoma. He loved the scriptures and could often be found reading the Bible on his own or having someone else read to him. One night when he was too weak to read, he asked his mother to take over for him where he had left off, in the second chapter of Ephesians. After about halfway through the chapter she decided to ask him what stood out so far, expecting him to come back with the often-quoted verses 8 & 9, “For it is by grace you have been saved, through faith -- and this not from yourselves, it is the gift of God -- not by works, so that no one can boast.” But instead he replied, “That workmanship verse…" or verse 10, which reads, "For we are God's workmanship, created in Christ Jesus to do good works, which God prepared in advance for us to do."
His mother was surprised and asked him why he picked that verse.
"Because God has a purpose for my life."
"How do you see that in this verse?" she asked.
Without hesitation he said, "Because I'm still here. When your work for God is done, you should be happy to go home to heaven."
Think of it. At thirteen with a life-threatening illness, this kid is aware of his purpose in life. It's very simple, as he sees it, and I think he sees it right. If you're alive, there is something God has for you to do. If we are God's creative expression, and part of that expression includes good works that He has already prepared for us to do, then if we are alive, there is more to be discovered and more to be done. When we die, it's only because the work he prepared for us to do has been completed. Time to go home. Really… it's so complicated, it takes a thirteen-year-old to figure it out.
If you are alive, it's for a purpose, because God has something for you to do. And though that purpose will be expressed differently for each one of us, it will include at least five elements in common with all believers. It will include discovering God in our world, growing up in Christ, learning to serve those around us, connecting with others who believe, and with those who don't, in order to share with them the hope Christ has given us.
Are you still here? There's a reason for that; your work isn't done. And by the way, John's still here. He's 25 now Obviously, he has work to do.
Wednesday, February 1, 2006 9:41 PM CST
The day started out tough, but ended quite well. Connor was down to 2 bites and 2 sips this morning---That's just all he could eat or drink. He just couldn't stomach the chocolate milk today. He got so sick of me and my thousands of suggestions to "Try a sip of.....What can I get you?....What about some.....How about I make you a....Would you like a drink of..." That by 11:00 or so, he told me he wasn't going to listen to me anymore---He was nauseous, and he wanted me to LEAVE HIM ALONE.
Well, I decided that he felt I was bossing him around, so I offered that if he finished his Gatorade, he could tell me to do something I didn't want to do. Bummer, but he picked that I had to clean the craft room. The messiest hidden spot in the house. I'm happy to report that you can now see the floor! I can't claim that about the table, yet--maybe tomorrow.
He did finish his Gatorade, had a glass of milk and one of water. He ate lunch and a good dinner after a 3 hour nap!
We meet with plastic surgery tomorrow----Maybe we'll actually get a surgery date. I also meet with his school tomorrow to hopefully get the home bound schooling started possibly Friday or Monday. He'll still go to real school when he's up to it.
Pray that God will grant Connor and I both some extra patience as we have to deal with eachother a little more than we probably want.
Thank you Lord for the blessing of not throwing up!
Laura and Tony
Tuesday, January 31, 2006 10:09 PM CST
We are home----Ahhhhh! We were home when the brothers got off the bus--what a relief for us all. I feel like I haven't seen or talked to my husband for more than five minutes in so long. I'll make this short so he can hold me for a while before we nod off.
Connor is doing fine---nauseous, but able to eat, drink, and not throw up. His whole body is very, very sore. If I try to rub his back or leg, he says, "ouw, ouw, ouw." When he has to sit up in bed, he says, "ouw, ouw, ouw." We're not sure if it's from the chemo, or from laying in a bed for so many days. I kinda remember it hurting him for me to rub his skin last time, too. I think the chemo can oversensatize everything in his body. I think it will pass in a few days.
God's blessings to everyone---for you are all blessings to us!
Please pray for Dakota today---Tues. morning he took a turn for the worse and was having very labored breathing. I don't know what happened this afternoon (caringbridge.org/ar/keepthefaith/). Also, pray for Connor's buddy, Neil. He is fighting a severe fungal pneumonia. Pray for God's healing touch upon all these boys and for continued forever lasting health for Cousin Weston.
Lot's of love,
Laura
Monday, January 30, 2006 10:18 PM CST
Connor had a good day---He went to the teen room for computer play twice, and he went to Bingo this evening. After Bingo he was quite nauseous, and when the nurse came to give us meds, she let us know they are now giving them only upon request to prepare for going home tomorrow afternoon. That’s when my job gets difficult----We drop from 5 to 3 nausea meds and we don’t have the convenient IV fluids. He’s doing great, but keep praying.
I took the little brothers to the Waffle House for breakfast this morning just to celebrate THEM! I told them how special they are and how proud of them we are! They were 45 minutes late for school, which probably made their day! We had to turn in Science Fair projects anyway. Sunday, right after having a nice visit at the hospital and enjoying Dr. Dolittle, the two brothers were feisty and trying to beat each other up for no apparent reason. I had to tell them that they can’t hit and kick, but if they want to tell me they leaving their brother in the hospital or that they need more attention for themselves-----I could understand those feelings and would expect them to be NORMAL. I was not successful in getting them to talk, but it did calm everyone down. I don’t think they can put their fingers on their own emotions----but hopefully it validated emotion for them.
Pray for us spiritually-------The last two days my mind has been spinning about what is faith and do I have enough? I was asked to ponder a question (I’m NOT asking for human answers—just think about it)----What if healing is based completely on faith---not , not chemo, just faith?
I find myself desiring for Christ’s physical body to be back here on Earth. Maybe I could travel to Him….If I could just touch His coat, and be blessed to hear, “By your faith, Connor is healed.” But then God answers that desire with a knowing that God does not NEED a human body to "touch" Connor. I am also reminded that we are only required to have the faith of a mustard seed.
I truly believe that God did NOT send this cancer; we live in a world where bad things happen and God is always here to see us through. I believe His plan is ALWAYS for GOOD. He can take our experiences and turn them into goodness in His time. I believe He will take care of Connor in His way of love and mercy ---That is His character. He is the great physician and almighty healer.
Trusting day by day,
Laura
Sunday, January 29, 2006 12:09 AM CST
Connor had a great night and slept well---therefore, so did I! He received his chemo at 8:30 this morning and is fairing OK. He's nauseous, but it's in control without any vomiting. I expect him to fall asleep any time now. They are administering his chemo every 20 hours rather than 24--whatever. I want to report a great blessing---Connor actually weighed 108 lbs. this morning after breakfast!!! That's back up to his original weight. He seems to crave the big, thick, chocolate milks this year--I think they are about 400 calories each. That should keep the weight on!
We have been blessed to see see some people we love this weekend---Dr. Raney (retired Aug.), Dr. Quesada, Tammy, and Sharon--Dakota's mom----- www.caringbridge/ar/keepthefaith/
The people we meet are so much of the blessings!
Trusting in Christ,
Laura and Tony
Tony won 61st place in the poker tournament out of 350 entries. His friend, Robert, won 7th! I think it was a lot of fun and a great escape for my sweet hubby. Maybe he'll get to Las Vegas another day.
Today I have a special date with Carson. We are going to the theater to see the musical Dr. Doolittle with my parents. All the boys are here with Connor now.
Saturday, January 28, 2006 9:54 PM CST
Sounds like Connor had a pretty good day----We're keeping him on all four nausea meds (five counting one they give right before the chemo drips). These cause him to sleep much of the day, but that's good. Tony's parents reported that he ate very well, also. Many, many thanks to them for putting in a 12 hour stay with our little dude today, so that we could have a little life outside these four walls. We also had to recruit my mom to attend Chandler's 2nd basketball game while I went to Carson's baseball tryouts. God has blessed us to be able to live near family----It seems like it takes the whole tribe (family and friends) to parent our boys right now. Thank you Lord that they are local, willing, and able.
Thank you all for lifting us up----Connor's body has had rest today, and my mind has been preoccupied at all the sporting events of the day. I'm much less stressed, and my mind is at peace. God is answering our prayers. Connor looks so peaceful----He is completely crashed. I hope to join him in dreamland soon.
Friday, January 27, 2006 2:15 PM CST
Hospital Info: Room 952, 713.745.8577
UPDATE 11:30pm---- We were ahead of shedule and received chemo around 3:30---Connor was doing great---down in the teen room playing Runescape (online computer game) with Carson who was home. It was the first time I was pleased they play the game---they were playing "together".
I was wrong about the chemo schedule---he DID receive the VP-16 today---and he will for five days instead of four. I guess we won't come home until Wed. This chemo finished, they came in to give the Iphosphamide and about 30 minutes into it, a wall of nausea hit Connor. He just kept saying he felt "weird" and "really bad". I had the nurses check him and we added more nausea meds around 5:00. I had to leave around 5:30 and Tony came.
Right before Carson's basketball game, Tony called to ask about other nausea meds (I don't think things were going so great, but don't know the details)---they were going to add Adavan. I think he's doing a little better. Carson's game ran late and I didn't get home until after 11:00. I hate to call this late.
Please pray specifically for an extra dose of God's peace for Connor and us. Peace, too, for his body to get rest so he can FIGHT. Pray also for our minds (I've struggled today). Sometimes it's hard to separate your own case from others you get to know at the hospital---but it is essential for keeping your spirits up. Every case seems to be so different. Good thing our God is steadfast and unwavering---I really need that!
Before I added this, I read my daily dose of being uplifted through all your guestbook entries----Thank you for lifting us up whether you "write" or not.
Laura
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All is well this afternoon. Connor's checkup was uneventful and he is hooked up and beginning the hydration process. He should get pre-meds soon and the chemo will follow late this afternoon or early this evening. Laura reported he is in good spirits - he even went to the Mad Scientist group at MDA where the kids do fun, hands on experiments (don't tell Connor it was school).
Tomorrow will be a busy day - basketball games, team pictures and even baseball try-outs on top of Connor's chemo. Say a quick prayer for Laura to have patience and be safe as she is doing the carpool, I will be at the hospital overnight. My parents will assist us Saturady at MDA while I sneak away to play in a Texas Hold-Em Tournament that is a charity for ALS: the winner gets a seat in the World Series of Poker in La$ Vega$ - Vega$ here I come!
Have a safe weekend and thanks for all the prayers and notes. God is good and he is there for us always.
Tony
Thursday, January 26, 2006 10:39 PM CST
Connor and his brothers had fun playing with their airsoft guns today after school. I think school went well---he never shares much detail. I think he’s relieved to not be ITCHIING so much from all the hair. It’s just nice to see him smile. Tonight, even though it was a school night, we sneaked out to the movie theater after dinner. We just kinda made our own weekend-----while the boys could be together.
Tomorrow morning, we’ll head in for chemo. It seems to take all day---We’ll start with blood counts, then a visit with Dr. Huh. After the doc makes sure his blood counts are fine (two hours or so in lab), he can order the chemo. Probably after lunch, we’ll be admitted into the hospital. The nurses will start IV to hydrate him for a few hours. Next they will give the premeds, and finally chemo I expect around 5:00. It was sweet Cheryl (Robin’s mom) who had to inform me that nothing about cancer treatment is fast.
Please pray for God’s protection over Connor’s body from side effects. This round we will again receive four days of Iphosphamide. The fourth day he will also get Etoposide/VP-16 rather than the Doxorubicin. Specifically pray for his heart, liver, bone marrow, kidneys, and nausea. We are going to try another new nausea medicine right before coming home this time---I expect on Tuesday.
Also pray that we will each see and feel the presence and control of God as we walk this journey. May God use us as beacons of his love to others in the hospital setting.
Laura and Tony
Thursday, January 26, 2006 8:35 AM CST
I wrote this last night, but couldn't get it to forward into the site.
Today was a much better day---the emotions of yesterday have calmed and Tony feels much better after getting it out! The hair falling out and going bald is a HUGE emotional part of treatment even though health wise it is far from our greatest concern. Connor will now look the part of a cancer patient---He will probably also lose his eyelashes and eyebrows at some point. It's not that the hair "falls out"---It just stops growing and gets to the END of the strands. That's the point of chemo---to stop the fast growing cells from producing.
I found 2 new hats for Connor - the kind he likes---although he probably has 20 others in his closet. When I picked him up from school, his scraggly, 4 inch long chunks of remaining hair just had to go. We used clippers to trim it up to about an inch (most of the dark remaining strands just fell out to the touch) and I shaped the edges and back. Now he has very thin, very blonde peach fuzz (it reminds me of his baby hair)---but it looks neat and should stop driving him crazy with the ITCH of hair being everywhere. God bless his heart---he's been through so much.
"Think about His love. Think about His goodness. Think about His grace----that brought us through," are the words I sang in church Sunday sitting next to my husband, sister, and friend. It is true...God carried us through before and He will again. The Bible tells me so! This weekend I admitted to my sister that I'm just tired---I can't carry it again. The burden is far too heavy; I just have to give it to Jesus. We then agreed---That's what God wants! He doesn't want me to carry it all.
I'll share a TRUE story....
July 2003, right after we got the original biopsy report back that had the word "malignant" in it, we took a family escape to Florida where we had several good friends vacationing. Of course our nights were sleepless. One of the nights, I would guess around 3:00am, I was 1/2 awake and I was thinking...."It would be so nice to hear God's great, big voice." You know, Charelton Heston's omni powerful voice from the old Ten Commandments movie----that's the voice I was talking about. Well, I did not even have time to think, "What would God say to me?" Immediately, I heard an answer in a soft whisper, "Trust me...Trust me."
I know it was the voice of JESUS---not Charelton Heston. I have no idea if it was audible or if I heard it inside my head, but I KNOW I HEARD IT---twice! All God has asked of me is to “TRUST HIM”. I do not know how long or difficult the valley will be, but there is no pit so deep that Jesus is not deeper. He WILL be with us all the way---I trust Him.
Thank you all for caring,
Laura
Tuesday, January 24, 2006 10:57 PM CST
Please do not read today’s update if you might be offended. If you chose to read and begin to get offended, stop reading. If you do read and get offend –too bad – you were warned. I won’t apologize if you get offended by what I say or by my tone.
This SUCKS. No this REALLY SUCKS. Today’s picture is Connor trying to sleep. He has to wear a cap at night to keep his hair, which is falling out everywhere, from driving him crazy. What did this wonderful kid/young man do to deserve this CRAP! He was diligent in using the Nioxin shampoo in hopes of keeping his hair. A least he was warned that it probably would not work. Carson and I went to the sporting good store last Sunday. We found a neat cap, Texas A&M of course, that was fitted like Connor likes. He prefers the fitted ones over those with the opening in the back – they look so much better especially if worn backwards. Well, today he finally had to break down and wear a cap at school. Of course the kids at school were trying to be nice, but they were teasing Connor about his hat - mostly because it is an A&M hat and not at TU hat. Yes I said TU and not UT, I am glad that a Texas school won the national championship in football, but A&M is the only real university of Texas. Connor was very upset tonight so we are scrambling to try and get a different hat for tomorrow. Good move Tony – if I would pull my head out I would have seen that coming. Of course I also feel like a heel because I went to an event at out office tonight, then by a jobsite, and then took one of our superintendents who worked late to dinner. By the time Laura called me, it was 8:50 and I could not get to the store to find a new hat. Tomorrow morning will probably be crappy for Connor. Laura is trying to make it to the LIDS store ASAP in the morning to get something to wear.
The reality of the situation is really sinking in to all. Chandler has been breaking down lately and is really in need of our attention. He is the most emotional of the boys and the stress is really showing. Carson of course is not very emotional, but he is quickly annoyed by Chandler and thus the bickering starts, no make that the fighting starts. Laura did try to explain to Chandler that Connor is very frustrated by all that is going on and that Connor really does not want, or like, what he is going thru. Chandler quickly pointed out that he does like it either. The toll is starting to show on Laura and myself as well. We all thing THIS SUCKS.
CANCER SUCKS.
Yes, we have heard the clichés: You are being so strong – what choice do we have? Get real – I am doing this because I have to, not because I want to. My brother Jay said it best when Connor was first diagnosed in June of 2003. The kids always come out of this better than the adults. If we are strong and positive, they will be even better. If you want a screwed up kid, be a screwed up parent. SCREW BEING STRONG – I want to have fun with my family and not see my kids suffer thru this crap.
I feel like we had a brief, but great weekend. Connor played and had fun – he was a normal kid. We did things normal families do – go to games, have friends over, laugh, play, and enjoy life. Now this stupid weekend is coming where we have to make our son feel like CRAP again – more nausea, puking, mom and dad nagging Connor to eat and drink, nights away from home, nurses waking you every 2 hours to see if you are OK (isn’t that why they have monitors on you anyway???? – I DON’T GET IT), missing the other boys basketball games, falling behind in school – YOU GET THE PICTURE. IT’S UGLY AND IT SUCKS – NO TWO WAYS ABOUT IT.
The other cliché: some good will come out of this, we just don’t know what it will be. REALLY? I like to share the good things with my friends, family, coworkers, etc. I wouldn’t wish this crap on my worst enemy. I am really interested to see what the good will be - IT BETTER BE DAMNED GOOD IF AND WHEN IT GETS HERE, AND I BETTER NOT BLINK AND MISS IT EITHER - I’LL REALLY BE TICKED OFF THEN.
I will apologize to one of you in advance because someone will probably catch my wrath, probably pretty soon too I might add. If it’s you – you don’t deserve it and I’m sorry. Please know it is the situation and don’t hold it against me.
Well, that’s my rambling. I feel better. I’m tired and tomorrow will be long. Please pray Connor has a good day Wednesday and he tolerates the weekend as well.
Tony
Focus on the Family has a neat radio broadcast about childhood cancer----You can listen to it at http://www.family.org/fmedia/bcpast.cfm
There are three parts. Part three can be found today at focusonthefamily.com
Laura
Monday, January 23, 2006 9:52 PM CST
Photo: Laura with her sister Jennifer from San Diego. Jennifer came in for the weekend to be with Laura. For those of you who do not know, Connor's cousin Weston is Jennifer and her husband Jack's son (Travis, Derek and Marshall are their sons as well). Weston was diagnosed with the same cancer Connor has. He started treatment in October of 2004 and completed treatment this year. They understand all too well what we are going thru. It was great to have her in town! Say a prayer for Weston to continue to have clear scans.
Connor had a really good day Sunday and Monday. His appetite and thirst has really improved. School went well except for the shedding. His hair is really going quick. He is disappointed but not surprised. I did pick up a new hat for him to wear - he will probably have to bring it to school tomorrow. The good news is that he knows the loss is only temporary until we beat the cancer again. The hair loss cannot take awy from his great smile and wonderful personality either. It should be a quite week until we start the next chemo this Friday.
It's great to see the guestbook entires from those of you we haven't seen in quite a while! I'll try to respond when I can, but know that we are checking and appreciate the following.
Tony
Saturday, January 21, 2006 10:24 PM CST
Having a wonderful weekend! We are so enjoying having my sister Jennifer (Weston's mom) in for her surprise visit from California. She well knows the road we are walking and came to lift us up---it's working. She came in for the get together---thank you all for joining us. We had a WONDERFUL evening.
Thanks for your prayers about eating and drinking---Connor seems to be eating more normal quantities this weekend. If he can gain back 3 of the 5 pounds he's lost before Friday's chemo, it would be GREAT!!!!
Newest update is that his hair is falling out all over the place---shower, sink, shoulders, pillow, etc. Maybe we'll go to the Lids store tomorrow to pick out some new hats. I expect all the hair to be gone by mid week. I think he's disappointed, as am I, but my mom reminded him that it's his SMILE that makes him so cute.
Last Thursday in clinic we got a heads up about the hair. I told Nicole, our old nurse whom we love, that we were using the shampoo Michael used and he never lost his hair. She looked at me sadly and said, "Oh Laura, Michael was on a totally different type of chemo." It popped our bubble, but it was probably good to prepare Connor. The very next day, exactly two weeks after his first chemo, we noticed the hair being everywhere. One more reason to treasure the Mr. Cantelope picture.
God is good all the time,
All the time, God is good!
Laura
Thursday, January 19, 2006 7:40 PM CST
The party is on for Friday night! Drop by whenever you can: 6:30ish to 10:00ish, bring a dish to share, bring the kids, let's have fun!
Yesterday (Wed.), Connor went to his first day of school---we didn't get there until 11:00, but he was there! He said the best part was seeing all the people. I think all the kids and teachers were so glad to see him! He said the worst part was feeling nauseous at lunch. He's still having difficulty eating and drinking----prayer request.
Today we went in early for the MRI that will help the doctors decide when to do surgery. After lunch he got to go back to school--Yahoo!! Tomorrow I plan to send him the WHOLE day! It's nice to have a break from eachother.
The best news of all is that after school, he actually felt up to going outside to PLAY!!!! The boys were all out together playing down by the water with the little boys from across the street. He's finally back to himself and we should have a whole week of feeling good. AHHHHH! At dinnertime, he got silly with the cantelope---Hence the photo above of Mr. Cantelope Head and Connor. You can tell by his face that he feels GOOD---enough to be silly. Every (sick kid's) mother's dream! We continued to photograph Mr. Cantelope with a big knife through his head (boys), Connor doing brain surgery on him, Mr. Cantelope throwing up his seeds, and then Mr. Cantelope as a mask on Connor's face. It was so nice to see him laughing and having FUN!
I knew God's blessings would still be present---Today, He gave us JOY!
Loving all of you,
Laura
Tuesday, January 17, 2006 9:08 PM CST
All the boys are home, safe and sound and in their own bed, Connor included. I started to say that we are a family tonight, but then I realized that we will always be a family no matter what we go thru in this journey. It is just good to be together. Enjoying the night.
We hope you can join us Friday night at our house. If you've always wanted to try som fresh elk steak, be here! Please keep checking back just in case plans change.
Tony
Tuesday, January 17, 2006 11:13 AM CST
God has blessed us with a beautiful day! I believe we will go home later this afternoon---as long as the culture reports come back clean with no sign of infection. The brothers will be so surprised. Mimi is also bringing Autumn, our dog, home today. Thank you to my parents for keeping her these two weeks----She likes to be with people, and we knew we'd be gone so much.
It so nice to see the softer side of my three boys. Yesterday, Connor chose a Bingo prize specifically for Carson. Chandler wrote a message to Connor in the guestbook all by himself, and Carson chose to sleep in Connor's bed last night. I know the boys miss eachother so very much.
Connor seems to be feeling pretty good. We're keeping him on nausea meds and the fluids always make him feel better. Even though it's not fun to be in the hospital, they always make him feel better here. Sometimes it's just the place we need to be. I expect him to have a good week. We have an MRI scheduled for Thursday, so hopefully he'll be up for some school tomorrow.
Emotionally, I'm feeling much better. I think I had to get through the emotions of the week to get to acceptance. Also, since we found out right before Christmas, the kids were always home and I had so much to do---I had to stay strong. Last week when they went back to school, it was safe to fall apart.
We want to extend again for any of you to come by Friday evening--whatever time. Bring the kids and a dish to share, and we'll just visit. We're wanting to do this periodically, so if this date doesn't work for you----we'll do it again.
With His love,
Laura
Monday, January 16, 2006 12:48 AM CST
Connor is in the hospital for a least the next day or two. Last night, he started complaining of a headache, chills, etc.. During the first course of chemo, he would get these classic symptoms when his blood counts dropped. The drop in counts are a result of the chemo and it usually hits about 7-10 days from the start of chemo. It then takes another 7-10 days for the counts to rebound - hence the typical 3 week cycles in administering chemo. Years ago, the doctors would just pump you full of chemo and hope the poison did not kill you - now they know a lot more about the proper dosages and timing. The primary count the doctors look at is the ANC (see below for a quick medical lesson). Connor is at 0.1 right now and he needs to be at at least 1.0 before he can go home (everything is rounded off so 0.1 = 100 and 1.0 =1,000: the normal range is 1.5 or 1,500 to 8.0 or 8,000). The doctors key on fevers as well because they can be a predictor of infection which the body cannot fend off if the counts are low. Well enjoy the lesson below - it's amazing how much useless stuff we have learned! All I know is that I'm ready for my wife and son to be home. Carson is enjoying his day off playing with the Kukla boys and Chandler is helping my dad work on his boat and is probably fishing some as well.
Definition of Absolute neutrophil count
Absolute neutrophil count: The real number of white blood cells (WBCs) that are neutrophils. The absolute neutrophil count is commonly called the ANC.
The ANC is not measured directly. It is derived by multiplying the WBC count times the percent of neutrophils in the differential WBC count. The percent of neutrophils consists of the segmented (fully mature) neutrophils) + the bands (almost mature neutrophils). The normal range for the ANC = 1.5 to 8.0 (1,500 to 8,000/mm3).
Sample calculation of the ANC:
WBC count: 6,000 cells/mm3 of blood
Segs: 30% of the WBCs
Bands: 3% of the WBCs
Neutrophils (segs + bands): 33% of the WBCs
ANC: 33% X 6,000 = 2,000/mm3
ANC of 2,000/mm3, by convention = 2.0
Normal range: 1.5 to 8.0 (1,500 to 8,000/mm3)
Interpretation: Normal
Neutrophils are key components in the system of defense against infection. An absence or scarcity of neutrophils (a condition called neutropenia) makes a person vulnerable to infection. After chemotherapy, radiation, or a blood or marrow transplant, the ANC is usually depressed and then slowly rises, reflecting the fact that the bone marrow is recovering and new blood cells are beginning to grow and mature.
In practical clinical terms, a normal ANC is 1.5 or higher; a "safe" ANC is 500-1500; a low ANC is less than 500. A safe ANC means that the patient's activities do not need to be restricted (on the basis of the ANC).
If you are reading this far down either you read the lesson (don't you feel educated now?) - or you skipped ahead and did not read the lesson (do you feel guilty?). I get in trouble at the office because I turn to the last page of any presentation I get and read it first.
Thanks for stopping by and checking on Connor. It makes us feel good to see the number of hits the website gets every day and the guestbook notes are very heart-warming and inspirational.
Tony and Laura
Sunday, January 15, 2006 12:57 AM CST
7pm update: Well, it was too good to be true. Connor started running a fever around 6pm this evening and now he and Laura are on their way to MD Anderson. He will be there at least three days probably. They will take blood cultures from his arm and from his port. It takes 48 hours to get the cultures back. Connor will not be released until he is at least 48 hours fever free without any medication AND clear cultures.
Sunday morning update:
Well, we're home this weekend trying to stay germ free. Connor is still fever free---truly a blessing! God is certainly listening! Unfortunately, we are still battling nausea. Connor seems to throw up once a day.
Yesterday, Tony and I took several breaks from the four walls of home to attend our other boys' three basketball games. It was fun to get our minds into the games! While we were gone, though, nobody said, "Take a sip," at home. By evening Connor only had two small glasses of water, very little to eat, was quite nauseated, and was probably dehydrated again. This morning, he threw up and looked horrible with very dark circles under his eyes.
We've gotten him to drink quite a bit this morning, and he ate some oatmeal. He's looking much better---napping for the moment. We'll see how the rest of the day goes, and if I need to take him in for fluids tomorrow, I can do that.
We're refusing to let him watch cartoons or much t.v. at all today--educational shows ONLY---a parent can only take so much. It's been family homework day---we've got three science fair projects due soon. If Connor's going to return to school this week, he'll need to catch up some so he'll have a clue what's going on in class.
Thanks again for all your messages in the guestbook---I read every day---I've read every message. Some of you are a total and plesant surprise! It's so awesome to see how wide around the globe God's hands reach. Often they make me cry because I'm so touched. Some of you have made me laugh or smile, and Sarah---you CRACKED ME UP!!!! I love that some of Connor's friends have even taken the time to write. I know God inspires it all so we can FEEL His love. Thank you for taking part in making our hearts runneth over!
I think we're looking at Friday night get together here at the house---You're all invited. (Please make sure everyone feels healthy.) Bring the kids and a dish to share.
With so much appreciation,
Laura
Friday, January 13, 2006 8:32 AM CST
Quick update Friday afternoon: This is Connor's picture from last weekend during treatment. Notice how many bags of xxxx he received - no wonder he felt like xxxx this week! We did get good news on the bone marrow test - all clean. We will scan next week and unless the tumor has increased, the current plan is one more round of chemo before surgery.
Also, we would like to thanks everyone for the continued show of love and support. We are planning to have a get together at our house next weekend (assuming Connor is still feeling up to it). Who is invited - you are if you are reading this!!!! Everyone can bring a dish, sit around, and have a good time. Check back for more information on the day and time - of course we will have to work around the basketball schedule (Carson and Chandler play double headers on most Saturdays).
Tony
Yahoo! Connor was as cool as a cucumber this morning--No fever as of yet! I was also thrilled that my 13 year old was actually up to fixing his own pop-up waffles for breakfast---AND he was "sitting" rather than "laying" on the couch. Looks like we've finally turned the nausea corner!
My wonderful husband went ahead and took Connor in for bloodwork, so I can go to Carson's awards ceremony at school this morning (He's so awesome!). I will meet up with them for an appt. w/ Dr. Huh at 11:00, and we'll find out where Connor's counts stand and FINALLY get the bone marrow report that feels like it's taking FOREVER (please pray).
As for yesterday, I've decided to share even though it was not pretty----This Momma had a terrible day. You take an over stressed, over tired, over concerned mom and mix it with a rage of hormones for the month----and you get one crazed Mama Bear!
My first mistake was setting expectations that Connor would "function" by Thurs. When he awoke and was more nauseous than Wed. and completely not functioning AGAIN, I was crushed---and got very depressed.
I went by the school and picked up his work, and despite the loving, caring staff, I was overwhelmed with the site of all the "normal" eighth grade kids and the feeling of so much being "taken away" from my precious child. He should be so enjoying the thrill of being big man on campus and everything else that goes along with the eighth grade. Tennis tryouts are also in February---which he obviously won't be on the team this year. I am literally BROKEN HEARTED for my son!
When I got home, I experienced a huge rush of anger. Anger over what all this "treatment" does to our lives. How it completely consumes our time, energy, and minds. It steals our "family" time, too. There is really nothing "fun" about cancer treatment----and I want us to have "fun" in life--as a family. I know there will be MANY BLESSINGS on this road, but I'm not there yet. I'm waiting, but I'm not in the right frame of mind---it will come with God's grace and God's timing. I don't feel like I have anything to "give" to other patient families, yet. But I know that it, too, will come in God's timing.
I don't think I ever went through "anger" last time. I'm definately experiencing different emotions this time. Before, I think everything was overshadowed by fear. Anyway, I need to apologize to my mother---She was here yesterday trying to cheer me up---she saw the whole ugly scene---Sorry Mom.
Today will be a better day,
Laura
Wednesday, January 11, 2006 10:35 PM CST
Today was quite uneventful----Halleluiah!!! Connor had basic nausea (especially if he stood up), but did manage to eat and drink. He seems to have a mystery cough---like his throat is constantly tickled. The Benadryl (actually used for nausea) seems to quiet it some. His chest is sore--- we believe from all the coughing----the port site looks fine.
I actually got out and attended a meeting at the little kids' school today, had a surprise visit from cousin Brittney and Mimi, a sort visit and long hug from De De, and went to Carson's first basketball game tonight. It was good to do some "normal" things.
Tony here now - Laura also made it to the post office today. While she was there a lady approached her and asked her it she was a model or a ballerina. If you don't believe me - ask our mayor she was there and recognized Laura! Laura needed a good laugh.
The biggest blessings we have found on our cancer journey are all the special friends and heroes we’ve met along the way. I want to ask you to pray specifically for them tonight:
Weston
Neil
Michael
Kathy
Ann
Aviva
Tanner
Caroline
Dakota
Jimmy
Ron
Kyle
Lance
John Michael
Micah
Spencer
Ashley
Leighanna
Emily
Hazim
Kimberly
also--Baby Brayden
The Good Lord certainly knows their specific needs,
Tony and Laura
Tuesday, January 10, 2006 8:06 PM CST
We are home again after IV fluids and nausea meds. By the time we got to the hospital around noon, Connor had thrown up 14 times. We're much better now, and they gave us more meds, so I think we'll be in control. Based upon last chemo, I'm hoping tomorrow will be our last day he doesn't "function". You know he feels bad when your 13 year old boy DOESN'T have enough energy to play computerized games! He just lays on the couch, like when you have the flu. Best case, he'll actually go to school on Thursday. Friday, we'll be back in clinic for counts.
Last night (before the chaos began) I had a really good cry. I'm sure I NEEDED to get it out--emotionally, I've been stuck in the "I don't WANT to do this to my kid again" faze. So, I went outside, sat on the pier, and cried out to God. I told Him over and over again that HE is going to have to do this, I just CAN'T. I can't protect his heart, I can't protect his liver, I can't cure him, I can't even make him eat and drink!------But the GRACE comes when I know that GOD CAN!!!
By the end of my cry session, after watching four ducks swim around in the moonlight, a fish jump at least 5 times, and the beauty of lights reflecting in the water, I agreed that God CAN do all this---and I'm willing to let Him use me. It helps me to know that "healing" is the job of God and the doctors-----My job is simply to "love" my son. I can do that---Loving Connor is easy and I'm good at it!
Looking forward to a good night,
Laura
Tuesday, January 10, 2006 10:34 AM CST
Connor had a rough evening and night. He threw up about 4 or 5 times last night on top of not being able to drink much yesteday when he was home. So... Laura is taking him to MDA this morning for fluids and nasuea medicine. Hopefully he does not have to stay the night.
Tony
Monday, January 9, 2006 12:50 AM CST
Round 1 is over.
Connor was discharged today around 11:30am. He felt ok yesterday. On MD Anderson's pain scale, 0 is normal and 10 is puking you guts out - Connor was around a 3 to a 7 most of the day. He never really vomitted which is good - mostly he would spit into a cup if he felt bad. He did manage to eat over the weekend as well - crackers, chocolate milk, bacon, fruit loops, pepperoni pizza, jello mostly. He also had his share of fluids - water, lime gatorade, and even Dr. Pepper. There is no way he would eat or drink on the first cycle of chemo so we feel fairly good all things considered.
We were sent home with nausea medicine as well as some antibiotics. Hopefully the antibiotics will be effective in fighting the fevers that sometimes accompany the expected white blood cell drop. We did not get to use the antibiotics in the first treatment because of Connor's age. Hopefully we won't have to be re-admitted until the next cycle of chemo. If he does get a fever, we will be in the hospital until Connor can be fever free for 48 hours without any medication. The doctors also will have to do blood cultures that are clear and the minimum culture time is 48 hours. So...if he gets a fever, it will be another 3-4 days hospital stay.
That's all for now - I'm sure Connor is glad that he is home. Carson and especially Chandler were looking forward to Connor being home. It will be a good surprise for Connor to be at home when they get off the bus.
Tony
Sunday, January 8, 2006 9:12 AM CST
Another pretty good morning. Connor reports that he just feels a little nauseus. He had about a 30min. nausea bout when chemo was just finishing around 4am, but he settled down and went back to sleep. He has not received the Doxorubicin yet. They can not give it until he finishes all the meds that go along with the Iphosphamide which should be around 1:30 today. MOstlikely, he will have to stay the night for post meds and IV fluids until Monday. We hope to be home before the brothers get off the bus.
Yesterday, he really was in bed most of the day. He was needing meds for nausea which in turn make him very sleepy----He only made it to the last five minutes of Bingo, but a nice handed him a winning card which involves a prize. The brothers came for Bingo (Chan skipped basketball) and both won a few prizes. I'm sure they were disappointed Connor was not up to joining them the whole time. They stayed for the whole afternoon and Mimi and Pop-pop joined the visit. Chan, Carson, Pop-pop and I had a big game of Horse in the pedidome where they even have basketball. Connor did join them later in the teen room to play on the computer.
Connor is still being able to eat and drink which is truly a blessing. Daily, we've been washing his hair which he was never up to doing before. He asked us to buy Nioxin Shampoo which helps with hair loss. He wants to try and keep his hair, but you have to do it EVERY day----We'll find out if it works in about 3 weeks!
Iphoshamide was again infused around 3:00am for about an hour. He receives Mesna with it to protect his kidneys and bladder. Then he continues to get Mesna for 3 more hours, another 20 minutes, and then every 3 hours for the next 9 hours. Last go 'round we only received a total of 20 min. of Mesna----goes to show you that this is definately stronger. Thanks for all the prayers to keep side effects down---God is certainly at work.
This afternoon he will receive his first dose of Doxorubicin (looks like red koolaid and can turn his temporarily red). Please say an extra prayer for God's protection of Connor's heart---which can be affected by both of these he's receiving. The doctors will be monitoring his heart periodically with (I think) ultarsound. I try to remind myself that our God is WAY BIGGER and FAR GREATER than any chemo and even cancer.
Thanks again for your prayers,
Laura and Tony
Saturday, January 7, 2006 9:59 AM CST
Connor is up and feeling pretty good this morning. He stomach must be feeling ok - he is on his second box of Fruit Loops. He did manage to talk me out of a piece of bacon as well. Applesauce is next. Laura makes sure to ask if he has any fruits or vegetables, and I wanted to stay out of trouble. Does the 2 boxes of Fruit Loops count as 2 fruits for the day????
It's been 19 months since we have been in hospital on a Saturday. The good news is there is still bingo for the kids at 1:00pm today. Connor is hoping there are some good prizes. Carson wants to come so Laura will probably bring him and then drive back to Seabrook to take Chandler to basketball practice.
Connor will get his third dose of chemo tonight at 3:00am. This will be the 2 combo. If he does well and tolerates it as he has so far we will probably get to go home Sunday afternoon sometime.
That's all for now - I'm heading back to the room to see which exciting cartoon we are watching now.
Tony
Friday, January 6, 2006 9:40 AM CST
Good Morning----and a good morning it is! I am so relieved to report that Connnor is doing MUCH better. He perked up around 10:00 last night and was able to eat for the first time since Wednesday's dinner. The new port checked out OK and after hydrating him via IV for several hours, they administered one of his chemo (Isosphamide) around 3:00 am.
He will receive Isosphamide each day for three days and on the thrid day, he will also receive Doxorubicin. On the fourth day we will hope to go home. In three weeks he will start again with Isosphamide and instead of Doxorubicin, he'll receive Etoposide. This will rotate every three weeks for thirty-something weeks. We may have surgery the end of Jan. which will delay the second round.
They gave him a new anti-nausea medication called Emend and it's working beautifully! God is answering prayers. He has not experienced any nausea so far which is amazing compared to last go 'round. He has already eaten two tiny boxes of Fruit Loops and ordered a breakfast taco! Last time it took 6 hours after chemo for him to start throwing- up BIG time, and he certainly couldn't even think about food. We've past the 6 hour mark, and he's wanting FOOD. God is so good!
He has already allowed me to open the curtain, too! Last time, he wanted the room dark with no talking or touching as he laid for at least two days in fetal position.
So, although the surgery was much more difficult than we had anticipated, the chemo is going much better. We'll take that!
Hey, he just came and found me (which means he's out of bed) to tell me he's going to the "teen room". Yahoooo!
Keep your prayers and messages coming----We've come a long way since last night when we were hit with the huge wave of anxiety and desire to take our boys and run away! I think I'm beginning to accept that we're back. Tony will spend the night with Connor tonight and I'll go home to the brothers.
Love to you all,
Laura
P.S. I want to share this...Yesterday morning, Tony asked Connor what the worst part of it all was--------His answer was the brothers....that they have to go through so much while he will be sick and in the hospital. Gotta love that heart!!!!
Thursday, January 5, 2006 8:06 PM CST
Well, it's been a long day. Surgery was very delayed---He was not taken in until around 3:30. Then, they had a hard time accessing the vein to the heart---It took them 3 tries to get the tubing in due to blockage from probable scaring. They finally went through the vein in the right side of the neck and had to cross over to the left side for the actual port device. His neck is the sorest part so far.
We're having quite a rough slap back into reality----He's quite nauseous from the anesthesia and we haven't even started chemo yet. I think they may wait until tomorrow to begin the and just let him rest tonight. The final call has not yet been made.
Tony's parents brought the younger boys up tonight for what we thought would be a time when Connor would feel really good. Chandler probably summed it up the best....... He said, "I don't like this place anymore. I mean, I like it because they try to help everyone have fun, and they have really good doctors here, but I don't like it because everyone has to suffer."
Tony and I don't really know how we feel right now. It's just a bummer, and I DON'T wANT to do this to my baby again.
Love,
Laura and TOny
Wednesday, January 4, 2006 10:15 PM CST
Photo of the day: (left to right) Chandler, Connor and Carson making a special Christmas present!
Well, tomorrow the battle (and victory) starts. Connor will report to the MD Anderson green zone 3rd floor surgery area at 11:00am to get his port-a-cath re-inserted. Surgery will be at 1:00pm and it should only last about an hour. We will be in either the 3rd floor green zone surgery area or the 5th floor green zone recovery area. As soon as he is awake and alert/hydrated he will be transfered to the 9th floor Pedi zone to get his first cocktail. The chemo will be for 4 consecutive days (best case) depending on how well he tolerates the chemo. Hopefully we can get some Pappasitos beef quesadillas in before the chemo starts. The chemo will repeat every 3 weeks for a total of 10 treatments.
Tonight we met my parents and Laura's parents at Gringos for a special dinner. Connor enjoyed his favorite - beef quesadillas follow by some ice cream. We are praying for Connor to keep his weight up during the coming months. Last round, he started at about 82 pounds and dropped as low as 70 pounds. This time he starts at 108 pounds!
Laura took the boys for photos today. Hopefully a few good ones will come out. It will be good to see and remember Connor as he is now as we progress thru treatment. I can hardly wait for the real Connor to be back even though he hasn't had to endure anything yet!
I would do or give anything for Connor not to have to go thru the coming treatments. He is a very brave and special boy. His strength continues to amaze me. As a parent, I am supposed to protect my family and sons, and at times like these I sometimes feel that I have failed in my job even though I know that it is not my fault. I am truly thankful for the special job Laura has done in making sure the boys are spiritually grounded. I might be somewhat biased, but I think I have the best wife/mom/friend around. Our faith keeps us strong in these trying times.
Thanks again for all the notes/emails/calls - keep them coming. We will report back later as soon as we get back home.
Tony
Tuesday, January 3, 2006 8:00 PM CST
O.K. everyone---It's time to start praying hard for Connor's body. Pray for his spirit and desire to fight for the long haul. Please pray for God to protect him from serious side effects. Pray especially for his heart, liver, and bone marrow..... Kidneys, bladder, and nausea would be good to include in prayer also. "And we can be confident that He will listen to us whenever we ask Him for anything in line whith His will. And if we know He is listening when we make our requests, we can be sure that He will give us what we ask for." 1John 5:14-15
Our lovely new chemo cocktail will include Ifosfamide, Doxorubicin, and Etoposide. We will begin Thursday. He will have his new port implanted Thursday afternoon 1:00-ish and when he comes out of recovery, he'll be admitted for 4 to 5 days straight for IV chemo infusion. I don't even know yet how I'm going to be a mom to my boys at home and to Connor at the hospital----One day at a time, the Lord will provide.
We met with Plastic Surgery today and they will take the back muscle and skin below the shoulder and flip it around to the front---kind of like breast reconstruction. They said it's a long muscle and should provide plenty of tissue to fill the hole left when Dr. Yasko removes the tumors. This will probably take place the last week of January.
God continues to lift us up and give us hope!
Laura and Tony
Monday, January 2, 2006 6:53 PM CST
Happy New Year to all of you! Thank you for loving us!
Well, at our home, the cat is finally out of the bag, and the beans have been spilled. We told the children today, after church and lunch at IHOP, that the reports came back, and Connor's two spots are cancer.
Our sweet Chandler (9) is the one who broke into silent tears and let his emotions flow admitting to being scared and sad---which in turn brought Dad and Mom to tears. Carson (11), on the other hand, acted a tad bit silly----but I've done this before. It's because he had way too much emotion flowing than he knows how to handle. Carson and Connor are incredibly close, and he will take it very much to heart. He will long for his brother/best friend. Connor (13) remained steadfast----He admits that he did have it pretty much figured out. He basically wants to know what the side effects will be and how it will be different. Maybe in tomorrow's meetings, we'll have some answers. Most of it we'll just have to wait and see how his body reacts to the chemicals and what our new schedule will be.
Our children not only look, but ARE incredibly different. Their reactions just show us the different fazes we will all endure in turns. We did remind them that sadness, and anger are both feelings that are NORMAL and O.K. We will all have days when we cry, want to kick things, or be alone, but most of our days we will be FINE! We encouraged them to TALK to us and let us know what they're needing.
We also talked about how God has promised NEVER to leave us, and He said we didn't have to do it alone. (This is where YOU come in)-----We informed them of all the wonderful calls and emails we've already received. At this point, I realized something---------
When God says we don't have to walk in the valley alone, He means MORE than that God, Jesus, and the Holy Spirit will be with us---- He is in the process of building us an ARMY of HIS PEOPLE to help us fight our new year's battle. We will receive His LOVE, SUPPORT, and COMPASSION through YOU!!!! You will also be "with" us.
Last chemo go 'round, we knew people were praying for us in Austrailia and Singapore as well as all over the U.S.-----But we didn't KNOW anyone who lived in either place. We would discuss the fact that this is how we KNOW it is God's hand at work. They were praying for us even though they didn't KNOW Connor----it was simply for the love of Jesus.
Thank you from all our hearts for joining us as we prepare to fight. God WANTS us to feel His love. Thank you for being the chosen ones and for loving us so much. We treasure your every message!
Laura and Tony
Friday, December 30, 2005 10:41 PM CST
chest x-ray----clean
bone scan------clean
Cat Scan of chest, abdomin, and pelvic area-----clean
Biopsy unfortunately came back with preliminary
report positive for sarcoma-----which is what we had
before. We were quite prepared for that.
So, we've got two golf balls we need to get rid of----but with God's grace, we feel it's certainly doable.
Connor nor the brothers know yet---We'll probably tell them on Sunday. I've decided that I like it in La-La Land (aka Denial). Sometimes it's feels better than reality. While awaiting "the call" today, we took the boys to Mr. Gatti's, to Best Buy, bowling, to play Putt-Putt, and then to dinner with friends. (Living in denial can be expensive, too!) I think we just want all the boys to have "fun"! Life is not too "fun" once treatment begins.
God is already taking good care of us and surrounding us with His people. We can not tell you how uplifting it is to receive your messages of encouragement and prayer. Thank you all so much. Yesterday, for our LONG DAY at the hospital, both sets of grandparents were there. Stephanie, Connie, Michele, and Connor's friends Josh and Jake all came to spend time with us. True Blessings you all are!
Monday, we have eccocardiogram and hearing tests scheduled. We will also have pre-op appointments for putting in a new port-o-cath (old one was just taken out in May). We will meet with the oncologist to talk about the plan of attack. Possibly an appointment with Plastic Surgery. Thursday probable surgery to implant port and possibly first round of chemo for four days straight.
Specific prayer requests: God's plan to enfold for Connor's treatment----God to reveal what needs to be done as far as planning chemo and surgery. We just want God to be in DIRECT GUIDANCE of each doctor's every thought about our case and to bring forth all the doctors needed for His plan.
God will truly see us through,
Laura and Tony
P.S. Thursday at the hospital Connor showed his first sign of aggitation. I had a list of all our scans after biopsy. About 1/2 way through our schedule, he took my list, tore it in two, shredded the part we'd already done, and expressed the desire to put it in the incenerator with a joking voice--the trash can had to do. I asked him how he was doing and that anger would probably be "normal". He just responded with he didn't want to spend the whole day HERE!-----We still aren't totally sure if he's put it all together that it will probably be another year! He was by far the most upbeat one of our hospital visit group. God is good.
Friday, December 30, 2005 10:41 PM CST
chest x-ray----clean
bone scan------clean
Cat Scan of chest, abdomin, and pelvic area-----clean
Biopsy unfortunately came back with preliminary
report positive for sarcoma-----which is what we had
before. We were quite prepared for that.
So, we've got two golf balls we need to get rid of----but with God's grace, we feel it's certainly doable.
Connor nor the brothers know yet---We'll probably tell them on Sunday. I've decided that I like it in La-La Land (aka Denial). Sometimes it's feels better than reality. While awaiting "the call" today, we took the boys to Mr. Gatti's, to Best Buy, bowling, to play Putt-Putt, and then to dinner with friends. (Living in denial can be expensive, too!) I think we just want all the boys to have "fun"! Life is not too "fun" once treatment begins.
God is already taking good care of us and surrounding us with His people. We can not tell you how uplifting it is to receive your messages of encouragement and prayer. Thank you all so much. Yesterday, for our LONG DAY at the hospital, both sets of grandparents were there. Stephanie, Connie, Michele, and Connor's friends Josh and Jake all came to spend time with us. True Blessings you all are!
Monday, we have eccocardiogram and hearing tests scheduled. We will also have pre-op appointments for putting in a new port-o-cath (old one was just taken out in May). We will meet with the oncologist to talk about the plan of attack. Possibly an appointment with Plastic Surgery. Thursday probable surgery to implant port and possibly first round of chemo for four days straight.
Specific prayer requests: God's plan to enfold for Connor's treatment----God to reveal what needs to be done as far as planning chemo and surgery. We just want God to be in DIRECT GUIDANCE of each doctor's every thought about our case and to bring forth all the doctors needed for His plan.
God will truly see us through,
Laura and Tony
P.S. Thursday at the hospital Connor showed his first sign of aggitation. I had a list of all our scans after biopsy. About 1/2 way through our schedule, he took my list, tore it in two, shredded the part we'd already done, and expressed the desire to put it in the incenerator with a joking voice--the trash can had to do. I asked him how he was doing and that anger would probably be "normal". He just responded with he didn't want to spend the whole day HERE!-----We still aren't totally sure if he's put it all together that it will probably be another year! He was by far the most upbeat one of our hospital visit group. God is good.
Friday, December 30, 2005 10:41 PM CST
chest x-ray----clean
bone scan------clean
Cat Scan of chest, abdomin, and pelvic area-----clean
Biopsy unfortunately came back with preliminary
report positive for sarcoma-----which is what we had
before. We were quite prepared for that.
So, we've got two golf balls we need to get rid of----but with God's grace, we feel it's certainly doable.
Connor nor the brothers know yet---We'll probably tell them on Sunday. I've decided that I like it in La-La Land (aka Denial). Sometimes it's feels better than reality. While awaiting "the call" today, we took the boys to Mr. Gatti's, to Best Buy, bowling, to play Putt-Putt, and then to dinner with friends. (Living in denial can be expensive, too!) I think we just want all the boys to have "fun"! Life is not too "fun" once treatment begins.
God is already taking good care of us and surrounding us with His people. We can not tell you how uplifting it is to receive your messages of encouragement and prayer. Thank you all so much. Yesterday, for our LONG DAY at the hospital, both sets of grandparents were there. Stephanie, Connie, Michele, and Connor's friends Josh and Jake all came to spend time with us. True Blessings you all are!
Monday, we have eccocardiogram and hearing tests scheduled. We will also have pre-op appointments for putting in a new port-o-cath (old one was just taken out in May). We will meet with the oncologist to talk about the plan of attack. Possibly an appointment with Plastic Surgery. Thursday probable surgery to implant port and possibly first round of chemo for four days straight.
Specific prayer requests: God's plan to enfold for Connor's treatment----God to reveal what needs to be done as far as planning chemo and surgery. We just want God to be in DIRECT GUIDANCE of each doctor's every thought about our case and to bring forth all the doctors needed for His plan.
God will truly see us through,
Laura and Tony
P.S. Thursday at the hospital Connor showed his first sign of aggitation. I had a list of all our scans after biopsy. About 1/2 way through our schedule, he took my list, tore it in two, shredded the part we'd already done, and expressed the desire to put it in the incenerator with a joking voice--the trash can had to do. I asked him how he was doing and that anger would probably be "normal". He just responded with he didn't want to spend the whole day HERE!-----We still aren't totally sure if he's put it all together that it will probably be another year! He was by far the most upbeat one of our hospital visit group. God is good.
Tuesday, December 27, 2005 10:04 PM CST
New info Wed 12/28:
Connor has a needle biopsy Thursday (12/29) at 7:30am followed by a bone scan prep at noon, xrays at 1pm, bone scan at 2pm, and an MRI at 7:40pm. We will probably be at MD Anderson until at least 9:30pm. A special thanks to Lori and Jim for letting Carson come over and a special thanks to DeDe and Paul for letting Chandler come over. We are off to Pappasitos to eat Mexican food with Cathy and Skipper and maybe do a family bowling night. We will update as soon as we get more info.
Tue 12/27:
Our meeting with surgeon Dr. Yasko went well today. We feel a little better-----It's nice to feel like we're getting close to "doing" something.
Good news was that both masses seem to be in the pectoral muscle---the one I thought was in the armpit and was concerned about lymph involvement is in the lip? of the armpit (if you put your fingers in armpit and thumb on chest--in that piece of the pec.) This is the one Yasko wants to needle biopsy. He does not really want to surgically go in there if not necessary due to previous radiation and a difficult location. The nerves seem to NOT be involved--Praise God!
He feels confident the one in the chest is recurrance, but that he can get it out. Explained as probable residual leftover cells they could not see in previous surgery. He feels that after the biopsy, maybe we'll have surgery to remove them both. (Tony and I are thinking POSSIBLY remove the whole pec. muscle with grafing in another--or not.) Yasko told Tony that he doesn't really "need" it for arm function.
We (Tony, Connor, and I) got to see the scan today and the two spots it revealed. Connor still seems to be doing amazingly well---rolling with the punches as we wait and see. He doesn't really talk about it or act upset. Thank you for all your prayers---God is truly holding us up!
Friday, December 23, 2005 9:48 AM CST
Photo: Summer of 2004 - Cayo Espanto, Belize, Connor's Make-A-Wish trip
Last night Connor was invited to the annual Make-a-Wish Holiday Party. There was plenty to do - face painting, games, prizes, etc. The party culminated with raffle prizes. Unfortunately, Connor's name wasn't drawn so new new TV, portable DVD player, or PS2 was in order. The Make-A-Wish group is a wonderful organization. Connor's wish was to visit a private island - he has always loved the beach. We found Cayo Espanto in a vacation magazine. Make-A-Wish contacted the owner and by coincidence his wife was being treated at MD Anderson. He graciously donated the trip to our family.
In Cayo Espanto's own words:
Discover your own private island at Cayo Espanto, where paradise and luxury come together as one. This new, five star, world class resort is for the discriminating few who demand the best life has to offer. We invite you to spend enchanting evenings and unforgettable days overlooking the Caribbean while our staff overlooks nothing. Located three miles from San Pedro in the calm waters of the Western Caribbean, off the coast of Belize, Cayo Espanto is truly a spectacular and private retreat. Although Belize is less than two hours from Miami and Houston, it remains virtually undiscovered.
To see more, please vist www.aprivateisland.com. We stayed in Casa Estrella - what an awesome place.
Being at the party and seeing what other families have to go thru make us appreciate what we have - great friends, co-workers, and families. Thanks for being a great support group for us. Tonight it's off to the Aeros hockey game to watch a few fights and maybe some hockey. Thanks for the tickets Larry.
Tony and Laura
Thursday, December 22, 2005 11:02 AM CST
Photo of the day: Christmas card picture December 2005.
What a week. On Friday, December 16, Connor had what we believed to be a routine set of scans. The x-rays were all clear and we even discussed moving the frequency of exams from every two months to every four months. On Monday though, we received news that the MRI indicated two questionable masses in the right chest wall near the original cancer site. Yesterday, we met the diagnostic Imaging and Anestisiology teams to discuss the next steps. Next Tuesday we meet with Connor's surgeon, Dr. Yasko, and on Thursday, December 29 Connor will have a fine needle biopsy. We are hoping and praying for a favorable outcome.
In the meantime, we are trying to have as much fun as possible. The boys were very disappointed to learn that we will not be leaving on Christmas Day as planned to go skiing in Lake Tahoe. We had planned on a week of skiing with their Crowe cousins from San Diego. Maybe we can find time later to use all the new outfits.
Connor spent the yesterday afternoon and night with his friend Trevor (thanks Cheryl and Mark). Carson had Austin and Shane over while Chandler had Ethan over. All five boys slept in the play room and they were actually still asleep when I left for work this morning - no telling how late they were up!
Connor does not know (or at least let on) what this all means. We only told him that there are a couple of spots that need to be tested. So please be careful if you call or send messages. We will know what this all means probably 2-5 days from the biopsy.
Have a wonderful Christmas and please say an extra prayer for Connor and our family during the coming days. Please feel free to pass on the website to as many prayer warriors as you can and please leave a message at the Guestbook site if you so choose. Knowing all of you are there for us is comforting.
Love
Tony and Laura
Monday, November 8, 2004 1:24 PM CST
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