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Connor Muscat

Connor Anthony Muscat
Born: April 18, 1992
Family: brothers Carson (1994)and Chandler (1996),
dad Tony and mom Laura
Biopsy: June 2003
Diagnosis: July 9, 2003
Undifferentiated Sacoma
on the Right Chest Wall
but treated for Rhabdomyosarcoma
due to rarity
Insert Port a cath: July 2003
Begin 39 weeks of Chemo (VAC): July 2003
Vincristine/Actinomycin D/Cytoxan
Radiation: 5 weeks October, November 2003
Surgery: December 2003
Complete chemo: June 2004
Make-A-Wish Trip: July 2004 to Cayo Espanto, Belize
Relapse: December 2005
Re insert port a cath: January 2006
Begin 30 weeks of chemo: January 2006
Iphosphamide/Doxorubicin/Etoposide
Surgery to remove two tumors: February 22, 2006
Beat cancer a second time: August 2006 VICTORY!

Journal

Wednesday, April 16, 2008 8:34 AM CDT

Lots of good news:
------------------------------------
4/23 ALL CLEAR ON THE SCANS AND THE ECCOCARDIOGRAM WAS NORMAL!!!!!!!
Connor's heart's ejection fraction is back up to 65-70 percent from being down to 55 percent. Originally, he was at 75 percent---What a praise! The other problem the doxorubicin commonly causes is thinning of the heart wall, and Connor's is still normal! They will continue to recheck his heart each year.
------------------------------------

Connor’s robotics team, The Robonauts, earned second place at both the Texas Regionals and the New Orleans Regionals. He left the house at 5:00am this morning to leave for Nationals in Atlanta this weekend. Friday and Saturday should be televised on the NASA channel---FIRST Robotics Competition. The actual robot shipped directly from New Orleans a couple weeks ago and their practice robot (the one in the youtube video) has been having technical difficulties, so the drivers have really not been able to practice---unfortunately---but how exciting to get to go to Nationals!!

Going to National Robotics Competition----That’s a thrill.
Connor having his 16th birthday, Friday, April 18, while at Nationals----That’s awesome!
Approaching 5 years post diagnosis----That’s GOD’S GRACE!!!!

I’m so excited for him. I feel like God’s giving him an extra splash of JOY---which in turn brings my heart great joy! Connor also just got back from a band trip to San Antonio---He’ll have a lot of school work to make up, but it’s all worth it. He’s rockin-on and living life to the fullest!

Sunday, when we return from Atlanta, Connor will attend an extreme driving class which teaches you how to get out of bad driving situations (skids, spins, etc.). I think it will be scary, but a rush. This way he will have experienced what if feels like to avoid a collision all before he ever gets his real license! www.driversedge.org

Next Wednesday, April 23, Connor will have his next scans and follow-up visit. Keep that in your prayers! Also, many thanks for prayers for my sister, Faye, who recently had heart surgery---She’s doing great. And for my dad, Bill, who fell and broke his leg up near his hip while traveling. He is in therapy and trying to recoup. We are hopeful he will be steady on his feet again soon. Sometimes I think we live on prayer.

Friday night, April 25, Connor will walk the Survivor’s Lap at Relay for Life in League City. He joined the Lake Against Cancer Club at his high school, so he will also be walking with those friends. We will be giving praise to our Lord for his, Weston’s, and many friends’ healing, as well as remembering my sweet Mom and many dear friends while we walk in hope for a cure.

With love and appreciation,
The Muscat Family

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Hospital Information:

Children's Cancer Hospital at M D Anderson



Links:

http://members.aol.com/sunnyasalways/SUNNYSHESMYSON.html   Awesome song by Mark Schultz--written from a father's perspective of having a child w/cancer. Listen for it on KSBJ 89.3FM
www.http://www.candle.org/mission/mission.html   The purpose of Candlelighters Childhood Cancer Family Alliance is
http://texgulf.wish.org/mission_i.htm   Featured article from Connor's trip!!!!


 
 

E-mail Author: muscat@spawmax.com or Lauramuscat@aol.com

 
 

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