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Christopher
This page has been created to keep family and friends updated on Chris' treatment. Chris was diagnosed with Stage IV Neuroblastoma 4/16/04. He went through 6 cycles of Chemo, surgery to remove the tumor, stem cell transplant, radiation and 6 months of Accutane. He was considered NED(No Evidence of Disease) and OFF treatment for 6 months.
Routine scans on 12/9/05 detected new growth on his brain. Chris had relapsed. On 12/21/05 Chris had surgery to remove the tumor. He then did 5 more rounds of chemo, more radiation, and 2 years of antibody therapy at Sloan Kettering in NY.
Chris is an energetic 6 year old that loves Baseball, Rock and Roll, trains and airplanes. He has a 5 year old little sister Breanna.
Journal
Tuesday, June 9, 2009 Todays Chris last day of school! He's very excited for summer. Bree is going to continue with the summer program at her school. They schedule daily fieldtrips to the bowling alley, waterparks, movies, etc. It wasn't worth signing Chris up for it because you have to pay for the whole summer and he has 2 weeks of summer camp, a week in NY for scans and surgery the end of July. There's only 9 weeks between when they get out and when they start back up. When he's not at camp or in NY he's going to hang out with Grandpa a couple days a week and with Tonya a couple. Sounds like they've got some fun things planned as well.
Last week was a little too busy. We had 5 dr apts, and 2 end-of-year programs. Breanna's
Awards Ceremony was on Tuesday. She got 4 awards and was quite impressed. She made honor roll, got a reading and math award and the bible award. Thursday was her graduation ceremony. The kids also put on a performance with singing and reciting poems and bible verses. Very cute.
Now for the dr recap. Tuesday Chris went back to the Urologist to follow up on the retractable testicles. They're now concerned enough that they want to do surgery to correct it. That's scheduled for late July. Risks are minimal but it is expected to take 2 1/2 hours! He was in the room as the dr was telling me about what they will do and was quite nervous. Wednesday both kids went to the dentist and got a clean report! Breanna vowed that she is never going back there again. She did not enjoy getting her teeth cleaned. Thursday Chris had a check-up with the GP. Its been decided that he should get immunized (AGAIN! Chemo wiped out all his immunizations the first go round). He got 4 shots (in the hiney no less). He was less than impressed but managed to talk me into buying him a toy at the pharmacy because "That was serious pain mom." I took advantage of being at the family doc and had him check me out too. My sinus' were really bothering me and sure enough I've got a sinus infection. I think the hectic week caught up with me because on Friday I felt worse and didn't make it into work. I slept most of the day. Yesterday Breanna had her asthma dr checkup. He's very pleased with how she's been doing and thinks we should try and step her off some of the meds she is on. She's been on 4 meds to control the asthma and its been working great. In the last 6 months she only had to use the rescue meds 3 times. So now we are going to step her off of one of them and see how she does. I'm hoping that she's outgrowing some of this and she can maintain a decent level of asthma control with less medication.
Hopefully things will slow down a little now. Chris has one more appt on Thursday with ENT and for an audiogram. After that they get the rest of the summer off from drs and can focus on some fun.
Thanks for checking on us. Hope you all have fun summer plans too!
Linda
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Links: http://www.alexslemonade.org/ Alex's Lemonade Stand
http://www.lunchforlife.org/home.aspx Lunch For Life
http://charityphotosvc.com Charity Photography to benefit Childrens Neuroblastoma Cancer Foundation
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